In Palliative Care Across Europe and to Include As Fax Many Members As Possible in the Daily Life of the Association

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In Palliative Care Across Europe and to Include As Fax Many Members As Possible in the Daily Life of the Association A JOURNAL OF THE EUROPEAN ASSOCIATION FOR PALLIATIVE CARE www.ejpc.eu.com | Volume 25 number 3 number 25 Volume | may/June 2018 may/June Highlights in this issue ■ traFFicKing ■ Education ■ clinical managEmEnt Modern slavery and human trafficking Sarah Stead and colleagues Eight patients with DNACPR forms is infrequently reported the literature. describe initiatives in two UK in their medical notes nonetheless Read Beth Ward’s account of a baby ambulance services resulting received cardiopulmonary resucitation. and his mother, believed to have been in improved education on end-of- Lucy Baxter and colleagues examine trafficked into the UK life care among paramedics the evidence Copyright © Hayward Medical Communications 2018. All rights reserved. No unauthorised reproduction or distribution. For reprints or permissions, contact [email protected] A JOURNAL OF THE EUROPEAN ASSOCIATION FOR PALLIATIVE CARE 09:22 Page 97 A JOURNAL OF THE EUROPEAN ASSOCIATION FOR PALLIATIVE CARE www.ejpc.eu.com | Volume 25 Number 3 Number 25 Volume | May/June 2018 May/June Highlights in this issue ■ TRAFFICKING ■ EDUCATION ■ C LINICAL MANAGEMENT Modern slavery and human trafficking Sarah Stead and colleagues Eight patients with DNACPR forms is infrequently reported the literature. describe initiatives in two UK in their medical notes nonetheless Read Beth Ward’s account of a baby ambulance services resulting received cardiopulmonary resucitation. and his mother, believed to have been in improved education on end-of- Lucy Baxter and colleagues examine trafficked into the UK life care among paramedics the evidence Editors Dr Ros Taylor, MBE, London, UK Dr Sarah Russell, London, UK Deputy Editors Dr Carol Davis, Southampton, UK Professor Philip Larkin, Dublin, Ireland Editorial Advisory Board Dr Carlos Centeno, Pamplona, Spain Dr Massimo Costantini, Reggio Emilia, Italy Dr Joanne Droney, London, UK Dr Marilène Filbet, Lyon, France Professor Bridget Johnston, Glasgow, UK Professor Stein Kaasa, Trondheim, Norway Dr Daniela Mosoiu, Brasov, Romania Professor David Oliver, Chatham, UK Professor Lukas Radbruch, Bonn, Germany Professor Tiina Saarto, Helsinki, Finland Professor Keri Thomas, Shrewsbury, UK Corresponding Members of Editorial Advisory Board Professor Eduardo Bruera, Houston, USA Professor Cynthia Goh, Singapore, Republic of Singapore Dr Emmanuel BK Luyirika, Kampala, Uganda Professor Rod MacLeod, Sydney, Australia Dr Faith Mwangi-Powell, Nairobi, Kenya Professor Russell K Portenoy, New York, USA Dr Luzito J de Souza, Mumbai, India Dr Roberto Wenk, Buenos Aires, Argentina Dr Mohammad Zafir Al-Shahri, Riyadh, Saudi Arabia 98 | www.ejpc.eu.com European Journal of Palliative Care | 2018; 25(3) Copyright © Hayward Medical Communications 2018. All rights reserved. No unauthorised reproduction or distribution. For reprints or permissions, contact [email protected] Published by a division of Hayward Group Limited Address for The European Journal of Palliative Care is an official journal of the correspondence The Pines European Association for Palliative Care, Onlus (EAPC). The EAPC was Fordham Road established to promote palliative care in Europe and to act as a focus for all Newmarket CB8 7LG, UK those who work, or have an interest, in the field of palliative care. Tel +44 (0)1638 723560 It is the goal of the EAPC to gather and represent all healthcare professionals and volunteers working in palliative care across Europe and to include as Fax many members as possible in the daily life of the association. +44 (0)1638 723561 Email The EAPC was created in 1988 by 42 founding members from nine [email protected] European countries. It has grown rapidly since its foundation. In 2017, Editorial enquiries email the EAPC has individual members from 48 countries across the world and [email protected] collective members from 56 national associations in 32 European countries, representing a movement of many thousands of health- and social care Advertising enquiries +44 (0)1638 723560 workers and volunteers contributing to palliative care. Website www.hayward.co.uk If you would like to know more and/or become a member of the EAPC, please visit www.eapcnet.eu Publisher Martin Griffiths Managing Editor Paul Docherty Advertising & Subscriptions Executive Vicki Hornsey Art Editor Richard Seymour The data, opinions and statements appearing in the articles herein are those of the contributor(s) concerned; they are not necessarily endorsed by the Publisher, Editors or Editorial Board. Accordingly, the Publisher, Editors and Editorial Board and their respective employees, officers Note from the publisher and agents accept no liability for the consequences of any inaccurate or misleading data, opinion or statement. It is with regret that after 24 years The European Journal of Palliative Care The European Journal of Palliative (EJPC) is closing its presses. On behalf of its publisher, Hayward Medical Care is abstracted/indexed in the Cumulative Index to Nursing and Communications, the EJPC would like to thank the current Editors, Allied Health Literature (CINAHL) Drs Ros Taylor and Sarah Russell and Editorial Board members, and Scopus. and all previous Editors and Editorial Board members for their efforts The titles the European Journal of Palliative Care and le Journal over the last 24 years. We could not have done this without you. Européen de Soins Palliatifs are the property of Hayward Group Limited and, together with the content, are The EJPC has been a wonderful journal to work on and and it is with heavy bound by copyright. Copyright © 2018 hearts that we have made this decision. We feel honored and privileged to have Hayward Group Limited. All rights reserved. contributed in whatever small measure to the field of palliative care. ISSN 1352-2779 (Print) ISSN 1479-0793 (Online) Submissions Printed by The EJPC is no longer able to accept submissions for articles. Articles already The Magazine Printing Company Plc submitted but not yet published are currently in transit for an alternative outlet. For all editorial enquiries, please contact [email protected] Cover picture: Ambulance panning, Alberto Zanardo Shutterstock.com Subscriptions The EJPC is no longer able to accept new subscriptions. For all subscription enquiries, please contact us at [email protected] PEFC Certified This product is from sustainably managed forests and www.ejpc.eu.com controlled sources PEFC/16-33-254 www.pefc.org European Journal of Palliative Care | 2018; 25(3) www.ejpc.eu.com | 99 Copyright © Hayward Medical Communications 2018. All rights reserved. No unauthorised reproduction or distribution. For reprints or permissions, contact [email protected] Comment DITTY_ABOUT_SUMMER/SHUTTERSTOCK.COM What next for to others (acknowledging Sir Richard & S ome 2 Colt Hoare 18th century antiquarian, Avril Jackson relationships traveller, historian for inspiration for Julie Ling can be rare pearls. knowledge ..? Avril Jackson this sentence). manages the EAPC The relationship am Guglani The European Journal of Palliative blog and social between the & S media activities. Dr Sarah Russell wrote about Care (EJPC) has been a place to Julie Ling is Chief European Journal DHREs BA(Hons) MSc RGN the place of death in present well-argued, well-evidenced Executive Officer of of Palliative Care Head of Research, the EAPC. Hospice UK, Joint medicine last week. and thought-provoking knowledge and (EJPC) and the Editor EJPC He reminded us EAPC is one of those. Since the launch Dr Ros Taylor ideas. In the last nine months as joint MBE MBBChir that ‘Medicine, like editors, we have seen submissions that of the journal in 1994, we have forged Palliative Medicine religion or art, is a strong and mutually effective bond. Physician, Joint have stretched the mind, expanded the Editor EJPC one attempt to soul and fuelled the fires of the heart. The combined efforts of the EAPC and Royal Marsden fathom death and the EJPC have provided our members Hospital, London The use of this metaphor to describe therefore to fathom the EJPC is no accident. Thomas and readers with a wide range of 1 life, suffering and loss’. This has been Carlyle,3 the 19th century Scottish papers, including several seminal a little easier the last 24 years with philosopher, reminded us that the EAPC White papers, and have also the knowledge and practice shared by heart always sees before the head can published the book of abstracts for this journal. Shared with countries see. From novice authors, to early many EAPC congresses. We have where dying in pain is the norm, career researchers to writers of always welcomed the EJPC at our where there are no opioids to soothe, international renown, the EJPC has congresses and are grateful for their but also with countries where every provided an international space to be generous donation of prizes for our organ can be transplanted, where nudged in our hearts, provoked into award winners over many years. people have choices. The extremes of thoughtful reflection and called to Another example is our collaboration medicine can be democratised by action in our palliative care practice. As on the EAPC blog. Launched in 2012, knowledge, but as Guglani goes on to Susan Sontag said ‘descriptions mean the blog promised to publish shorts post say ‘knowledge runs separate to nothing without examples’.4 twice a week – from personal 1 understanding’ . The information We thank all the authors, patients perspectives to moving stories and explosion hasn’t led to a knowledge and families who have been presented improved care. Enthusiastic – definitely. explosion; perhaps even less to an and represented for sharing their Over-ambitious – maybe. Sleepless understanding of our brief lives, what wisdom and practice. After all: ‘great nights planning content – lots! matters to each of us and those who thoughts speak only to the thoughtful We quickly decided to build on our care for us and with us. Knowledge mind, but great actions speak to all links with the EJPC, inviting authors to needs curating; we believe this mankind’5 ■ contribute short posts. Since 2012, the journal will be sorely missed for that References: EAPC blog has published 761 posts of very reason.
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