Information for patients and visitors

Multiple Sclerosis Services available in: , &

NeurologyDepartment Medicine Group Diana, Princess of Wales Hospital

Who are the local specialist team look after people living with MS?

Dr Lazarus Consultant Neurologist

This leaflet has been designed to give you important information about your condition / procedure, and to answer some common queries that you may have.

Sharalyn Anderson Neurology Nurse Specialist

Dr Riaz Consultant in Rehabilitation Medicine

Information for patients and visitors

Introduction What Service Does the The local core Specialist Multiple Sclerosis Rehabilitation Team Provide? (MS) Team consists of one Consultant – Dr The Consultant in Rehabilitation Medicine Lazarus based at Diana, Princess of Wales leads a team of professionals who provide Hospital and one Specialist Nurse – Sharalyn the following services for people living with Anderson based at Cleethorpes Primary MS: Care Centre.  Specialist assessment of needs What Service Does the Core MS  Multi-disciplinary input co-ordinated via Specialist Team Provide? the Clinical Review Forum The Consultant Neurologist at Grimsby  Individualised Rehabilitations Programs Hospital provides the following services for  Information and engagement with patients suspected to have or do have MS: specialist groups  Investigation  Referral to Social Services or Continuing  Diagnostic Care Health Team  Review services  Environmental Controls  Training to health professionals  Specialist Equipment The MS Nurse Specialist provides the  Specialist medical follow-up i.e. following support and services: Botulinum Toxin injection for Spasticity  Information about condition or symptoms management It also provides co-ordinated care and  Medication therapy packages for complex disabilities.  Other health worries If you would like more information about the Services provided: Rehabilitation Medicine Service please  Newly diagnosed Nurse Specialist Clinic contact the team on 01724290062.  Out-patients clinics at the hospital or at 2 Other Services Available... locations in the community The following services are also available to  Home visits patients, dependent on their individual  Telephone Support/consultations needs:  In-patient support  Speech & Language Therapy  Education Programmes  Focus Independent Social Care  Multi-disciplinary working  Physiotherapy  Physiotherapy Exercise Group

 Occupational Therapy

Information for patients and visitors

 Mental Health Services If I Have Recently Been Diagnosed  Continence Advisor – What Happens Next?  District Nurses If you have recently been diagnosed with MS by a Consultant Neurologist then you will be  Speech & Language Therapy referred to the Neurology Nurse Specialist –  Psychology MS.  Equipment & Wheelchairs You should be seen by the Nurse Specialist within 3 weeks of the referral.  Dietician Action if not seen within timescale:  Carer Support  Please contact the MS nurse direct  Respite Care 01472 721342 and if not available please leave a message and contact phone How Do I Access Local NHS number Services? What Are Disease Modifying Your General Practitioner (GP) can refer you to the local Consultant Neurologist. Therapies? There is a range of drugs called ‘Disease Can I Access the Local Specialist Modifying Therapies’ (DMT) – they are Nurse Service? suitable for some patients who have MS. They are not suitable for all patients with MS. You can access the local Specialist Nurse if: Disease Modifying Therapies can only be  You are registered with a North East prescribed by a licensed centre. The nearest GP licensed centre to is  You are under the care of the local Hull Hospitals and Sheffield Teaching Consultant Neurologist Hospitals.  You are under the care of a Consultant Patients will be assessed by their Consultant Neurologist from another area, for Neurologist as to whether they are suitable example; Hull Hospitals or Sheffield for DMT drugs. Hospitals If it is felt appropriate for you to start this  You are under the care of the Northern treatment then you will be referred to a Lincolnshire & NHS Foundation hospital that is licensed to prescribe these Trust (NLAG) Consultant in drugs. You will be required to attend follow- Rehabilitation Medicine up review appointment at the licensed centre to ensure they remain appropriate for you. If you are not under the care of any Consultant it is recommended that you are referred by your GP so you can access on- going Nurse Specialist support.

Information for patients and visitors

Local MS Social Support Groups The MS Support Group has been running for approx. 4 years. It is an informal opportunity to get to latest information and have a chat will people affected by MS. The 38,000 members, 9000 volunteers, 260 group occasionally has guest speakers who staff members. One aim: to beat MS. The talk about various symptoms and issues MS Society is the UK’s leading MS charity. experienced around MS. The group meets Since 1953, we’ve been providing the last Wednesday of every month from information and support, funding research 1:30 – 3:00 pm at Cleethorpes Primary Care and fighting for change. Free MS Society Centre, St Hugh’s Avenue, Cleethorpes. helpline: 0808 8008000 More information is available by calling We can provide emotional support and 01472 721342. information on: symptoms; current research; A local weekly MS Coffee morning now diagnosis; treatments; accessing services, takes place every Tuesday 10 – 11:30 am at support and benefits; and getting in touch Healing Manor, Healing Grimsby. The aim of with the MS community. the morning is to relax in the hotel lounge, be Whatever your question or connection to MS served and chat to others who understand. we’re here to listen. We are not medically Everybody is welcome. More information is qualified and we’re not benefits advisors: we available by calling 07519 360739. can't tell you what to do, but we can give you information and explore your options with you. The information we provide is always up to date and based on current evidence. Every year, we speak to thousands of people affected by MS, including:  people newly diagnosed with MS  partners or friends of people with MS  carers and young carers  health and social care professionals  people who have suspected MS but no diagnosis Contact us: Phone – 0808 800 8000 Monday to Friday 9am-9pm (not including bank holidays). Contact us in any language. Email: [email protected] Text relay service: 18001 0808 800 8000

Information for patients and visitors

Post: 372 Edgware Rd, , NW2 6ND or email: If the line is busy when you phone, please [email protected] leave a message with your name and phone To see our full range of information and number. We’ll return your call within 3 support visit our website: working days. Unfortunately, we can't return calls to numbers that bar withheld or www.mstrust.org.uk anonymous numbers. If you’re a health professional who would like Website: http://www.mssociety.org.uk to find out more about how the MS Trust can help you, visit: www.mstrust.org.uk/education The MS Society website provides a vast range of resources from information on MS to understanding benefits and to how you can contribute and get involved in the work: https://www.facebook.com/MSSociety

The MS Trust is a small national charity which works to make a difference today for people affected by MS. We provide:

 MS information you can trust

 education and support for MS health

professionals, to help them deliver the best possible care  research into better management of MS  support for anyone affected by MS If you’re living with MS we can help. We publish practical accessible information, online and in print, covering issues such as dealing with diagnosis, managing symptoms, choosing treatments and living well with MS, at home and at work. If you have a question

about MS call:

Freephone enquiry service on; 0800 032 38 39 or (01462 476700 – if calling from mobile)

Information for patients and visitors

The Carers’ Support Service Provision of advice, support and information Working with Carers’ in North East regarding any aspect of MS including Lincolnshire medication issues and queries. The Carers support services works with Diana, Princess of Wales Hospital carers and partners to provide: Tel: 01472 874111 (Switchboard) Road  Information and advice Grimsby, DN33 2BA  Specialist advice service Website; http://www.nlg.nhs.uk/ MS Society  Emotional and practical support MS Helpline 0808 800 8000 (Freephone)  Carer groups and social activities Email: [email protected] Website: www.mssociety.org.uk  Counselling MS Trust  Befriending Freephone enquiry service 0800 0323839 or  Advocacy 01462 476700 (if calling from mobile) Email: [email protected]  Training for carers Website: www.mstrust.org.uk  Holistic therapies North East Lincolnshire  Support when caring ends MS Support Group Tel: 01472 721342 Telephone: 01472 242277 Cleethorpes Primary Care Centre 7 days a week Monday to Friday – 8.00am – St Hugh's Avenue Cleethorpes 7.00pm Weekends – 10.00am – 2.00pm DN35 8EB Contact Details for Further North East Lincolnshire MS Society Support Volunteer Information Lorna: 07519 360739 For services in Grimsby, Cleethorpes & North East Lincolnshire Clinical Immingham: Commissioning Group - Patient Advice Sharalyn Anderson and Liaison Service (PALS) Neurology Nurse Specialist – MS Tel: 0300 3000 500 Tel: 01472 721342 Email; [email protected] Customer Care Team Please leave a message if not available: NEL CCG Email: [email protected] Athena Building Care Plus Group 5 Saxon Court Diana, Princess of Wales Hospital Gilbey Road Scartho Road Grimsby Grimsby DN31 2UJ North East Lincolnshire DN33 2BA

Information for patients and visitors

NELCCG PALS is an impartial, confidential For over 65 years – can discuss if entitled to service that can help patients, service users, state pension, pension credit, attendance their family or carers should they experience allowance, carers allowance, housing benefit any problems with the services they provide & council tax benefit. and commission. NELCCG recognise that Dial-a-Ride individuals should be at the forefront of their Tel: 01472 269199 care services and are committed to actively Office Opening Times: listening, understanding and responding to Monday – Friday 9 – 3.30 pm any feedback received. If you would like to Saturday/Sunday/Bank Holidays – Closed provide us with any feedback, good or bad, please contact the PALS team. Registration is through a Single Point of Access and then approx. £1.20 for each NEL Council – Benefits return trip. Provide accessible transport 7 National Helpline: 0800 882 200 or Local days per week (subject to driver availability) Customer Services Tel: 01472 313 131 for people who find it difficult to use public (Single point of access) transport due to illness or disability. Municipal Offices Bookings taken 3-4 days in advance Town Hall Square Grimsby, DN31 1HU Phone-n-ride Website: www.gov.uk/benefit-enquiry-line Tel: 01472 324440 or www.nelincs.gov.uk/resident/benefits Email; [email protected] Register over phone You can call if you are sick or disabled or if 6 days’ notice you are caring for someone and acting on Free for bus pass holders their behalf they can give general advice on Office Opening times: benefits. For further assistance contact Monday – Friday 8 – 5 pm Jenny Blyth, Parkinson’s UK (see above). Saturday, Sunday & Bank Holidays – Closed NEL Council – Housing Operation times: Tel: 01472 313131 Monday – Saturday 7am – 7 pm (Ask for Home Choice Lincs) Christmas, Easter and bank holiday times Municipal Offices may differ Town Hall Square To cancel a booking on the same day please Grimsby, DN31 1HU phone: 01507 608702 Website: www.homechoicelincs.org.uk Carers Support Service For assistance contact Jenny Blythe, Tel: 01472 242277 Parkinson’s UK 1 Town Hall Square Job Centre Plus Grimsby, DN31 1HY Tel: 0800 023 4888 Email: [email protected] For under 65 year olds Website: www.carersupportcentre.com/north- east-lincolnshire Pension Service Helpline Tel: 0845 606 0265 Carers Support Service works with carers and family to provide a range of support and information.

Information for patients and visitors

Focus Independent Adult Social Care Grimsby, DN33 1HE Tel: 01472 256256 Website: www.carelink/org.uk (Single Point of Access) Or can be referred to Carelink through Single Email; [email protected] Point of Access on Tel: 01472 256256. Website: http://www.focusadultsocialwork.co.uk/ Assessment will be made for eligibility for state funding. Service provided 24 hours per 24 hours a day 7 days a week day 365 days per year providing a range of Provides access to community health and alarms or sensors and also provides social care support or advice and telephone response alerts received from information. Also provides a Social Care ‘lifeline’ alarm equipment (telecare). Crisis Response, includes Joint Assessment This service is for: for cared for and carer. Also available is Carers Additional Support Service (CASS)  Older people who may be vulnerable due assessment which can provide payment for to age, illness, isolation carer. Assessment will look at potential for  People at risk due to disability or long support from carer support worker for carer. term illness or those prone to falls Age UK  People with learning difficulty or mental Tel: 01472 344976 health issues Email; [email protected] Website: www.ageuk.org.uk/northeastlincs  Victims of crime, domestic violence or 27 Osborne Street abuse Grimsby, DN31 1EY  Anyone who feels vulnerable, for Service offered: whatever reason Advice on accessing local services, Aids to Care managing finances, benefits advice, café at Tel: 01472 256256 (Single Point of Access) Osborne Street, foot care, community Equipment provision transport, debt advice, drop-in centre, For patients under the care of events, exercise, help with funeral Rehabilitation will be assessed by the arrangements, holidays/outings, housing Occupational Therapist for any equipment / advice, IT/computer training, lunch club, aids needs. If not under Brigg Rehabilitation minibus, retirement planning, rooms for hire, would go through Single Point of Access. shopping, social activities. Hairdresser, solicitor free legal advice, dementia service, Carer Alert bingo, counselling, hearing tests and lots Tel: 01472 312318 more. Please ring for further information. NEL Council, Municipal Offices, Town Hall Square, Carelink Grimsby, DN31 1HU Tel: 01472 312312 Website; www.nelincs.gov.uk www.care-link.org.uk email; [email protected] In the Search ‘keywords’ box, type “Carers Centre4 strategy” – this will take you directly to the Wootton Road relevant page

Information for patients and visitors

A 24 hour Carers Alert Phone Line run by (01724) 290132 or at the PALS office which Carelink in the event anything should happen situated on C Floor. to the carer. Alternatively you can email: A Carer’s Emergency Plan is implemented to [email protected] ensure the person being cared for continues to be supported whilst the carer is unable to Northern Lincolnshire and Goole NHS do so. Foundation Trust Disabled Persons Car Badges Diana Princess of Wales Hospital Tel: 01472 325193 Scartho Road Grimsby Citizens Advice Bureau 01472 874111 Advice Line: 08444 111444 General Hospital If ringing from a mobile call: 0300 3300 650 – Cliff Gardens (charged at local rate) Scunthorpe 4 Town Hall St. Grimsby DN31 1HN Mon-Fri 01724 282282 9am-4pm or Immingham Resource Centre Goole & District Hospital Tuesday 9am–12noon. Woodland Avenue Website: www.grimsbycab.org.uk Goole Advice line is a national number but will 01405 720720 usually be answered in Lincolnshire by a www.nlg.nhs.uk trained assessor. PLEASE BE AWARE; average calls last eight minutes with an Date of issue: March, 2016 average approximate cost of 50p. Free Review Period: March, 2019 advice – local branch. Author: Neurology Nurse Specialist (MS) Concerns and Queries IFP-905 If you have any concerns / queries about any © NLGFT 2016 of the services offered by the Trust, in the first instance, please speak to the person providing your care. For Diana, Princess of Wales Hospital Alternatively you can contact the Patient Advice and Liaison Service (PALS) on (01472) 875403 or at the PALS office which is situated near the main entrance. For Scunthorpe General Hospital Alternatively you can contact the Patient Advice and Liaison Service (PALS) on