Autism Spectrum Disorders

PSYCHOLOGY IN INTELLECTUAL AND DEVELOPMENTAL DISABILITIES/ AUTISM SPECTRUM DISORDERS OFFICIAL PUBLICATION OF APA DIVISION 33 Volume 41, Number 2 Fall/Winter, 2015 From the President’s Desk Anna Esbensen, PhD Cincinnat Children’s Hospital

tes. I would also like to thank all of early stages of their career. If you our presenters, who submited ex- are interested in becoming more cellent proposals, and gave won- actve in Division 33, please contact derful presentatons and posters. me, or our Student or ECP repre- We were able to partner with other sentatves (see page 21 in the Divisions this year to provide excel- Newsleter). lent Collaboratve Group Program- ming, and were selected by APA to This is going to be a very provide CEUs for several of our ses- busy year for Division 33, and I

sions. These partnerships with oth- would like to share some of the er Divisions are a wonderful chance excitng changes and highlights. We to connect our work to others’, and have been talking about member- the CEUs are a huge draw. One of ship and updatng our website at our sessions was standing room Division 33 Executve Council only, and afer running 5 minutes meetngs for almost a decade. We It was a pleasure seeing late to that session I couldn’t get contnue to make strides in making many of you in Toronto for our an- into the room! our Division more atractve to nual conventon, and an honor to members, and we are currently be taking over the gavel from Laura In additon to the wonder- preparing the new Division 33 web- Lee McIntyre and startng my year ful sessions, some of the excitng site which is up and running! as President of Division 33. Toronto actvites were not in our ofcial was a wonderful meetng. Not only Division Program. Both our Student In This Issue was it close to my hometown Representatves and our Early Ca- (which was a personal bonus), but reer Professional (ECP) group host- Message from the President: Anna Esbensen……………….1 the talks were informatve and en- Student Interview : Geraldine Dawson………………………….3 ed informal gatherings for their ID & Criminal Justce: Greg Oley & Marc Tassé……………..5 gaging. I would like to thank our peers. These actvites targeted 2014 Sarah Sparrow Award: James McPartland…………...6 Awards commitee for selectng grant writng and career mentor- 2015 Doll Award : Laraine Masters Glidden …….…………..8 Laraine Glidden and V Mark Durand ship, and provided opportunites APA Council Report: James Mulick……………………………..10 to receive the Doll Award and Ja- for building social connectons. Student Awards: Allyson Davis & Caroline Leonczyk…..13 cobson Award, as both gave Both events were well atended. I Gatlinburg Conference Reminder ………………………………15 presentatons that refected on Division 33 membership numbers………………………………15 very much look forward to our Ex- 2015 APA Conference Pictures………………………………16-18 where our feld has been and ecutve Council’s ongoing support Division 33 on line……………………….……………………………..19 where we are advancing to. These of the eforts of our student and Division 33 list of Award Winners ……………………………..21 types of refectve talks raise the ECP division members, as they ofer Division 33 Executve Council……………………………………..22 bar for all of our science and clinical unique insights into the topics and practce with individuals with intel- sessions that are most relevant to lectual and developmental disabili- researchers and practtoners in the

From the President’s Desk Anna Esbensen, PhD Division 33—Contnued

Www.division33.org . members to reach out to their hopes for how we can be more colleagues and encourage them responsive to our Division mem- to join. Our benefts contnue to bership. Please contnue to check Website: Jason Baker, one include social connectons with our new site of our Members-at-Large, has en- colleagues (at conventons and (www.division33.org) as we con- thusiastcally and comprehensive- list-serves), and with our updat- tnue to unveil new areas of the ly reviewed diferent web ed website even more opportu- site. platorms and their associated nites for connectng. As a prac- Sharon Krinsky-McHale, fees, and with the support of a tcing clinician, I see the biggest President-Elect, will shortly be Website Commitee, has brought value of joining APA as an invest- responding to submissions for our Division from 1999 (when our ment in the future of our profes- the conventon program in Den- previous website was designed) to sion. Our dues go in part to lob- ver in August 2016. I encourage 2015. We hope to be able to con- bying eforts that support reim- you to get your submissions in, nect with our membership more bursement for behavioral/ to submit for CEU credits for readily, update you on news pert- mental health services, for sup- your symposium (and to arrive nent to our feld, and respond to portng behavioral/mental health on tme for CEU credit sessions in the needs of our membership. research, and for alerts on how Denver!). to improve and advocate for our Name: Now look back a profession. Division 33 then See you in Colorado! page. Just above the volume works with the larger APA to en- number. We changed the name sure that services more specifc of our Division this summer to to our work are not forgoten. “Intellectual and Developmental What if behavioral supports re- Disabilites/Autsm Spectrum Dis- quired an additonal certfcaton orders” and thus this is the frst beyond your current psychology issue with our new name. I would licensing? What if behavioral like to thank all of our members principles were not supported/ who voted, for or against the reimbursed in clinical practce? name change. Division Leadership What if a tme-out was defned welcomes all viewpoints, and I as a form of torture? What if no hope, along with the Executve one advocated for research on Council, that the new name will IDD/ASD and its relevance to be more inclusive to our col- health, parents, siblings, health leagues working with individuals care, or the general populaton? with autsm spectrum disorder. When recruitng colleagues who

nay-say the cost of APA and Divi- Membership: We, and all sion 33 membership, please re- membership organizatons, con- mind them about the cost to our tnue to work on maintaining profession of not joining APA. members. We’ve been doing an excellent job of retaining our Next steps: With startng members and atractng new the new website, I have a couple members. I contnue to urge all

Division 33 Student Interview By: Elizabeth Will and Geovanna Rodriguez Division 33 Student Representatves An interview with Geraldine Dawson, Ph. D.

mental psychology, focusing on infant development, and neuro- you. This could be working in a

science. Later, when I began my basic science lab or working out

clinical training, my frst patent in the community. Ask yourself:

was a young child with autsm. I How can my partcular skills and

was inspired by the young boy talents best be used to make a diference? What type of re- and his parents, and I immedi- ately knew that my career would search excites me? What am I passionate about? Your passion be dedicated to autsm. My train- may take you places that will ing in developmental psychology surprise you! and neuroscience was very infu- ental in how I viewed autsm. At the tme I frst began my career, Queston: The level of Dr. Dawson is a Profes- there was litle known about the training in autsm spectrum dis- sor of Psychiatry and Behavior- early symptoms and brain bases orders varies extensively across al Sciences, Pediatrics, and of autsm. My goal then and to- graduate programs and special- Neuroscience at Duke Universi- day is to understand how difer- ty areas. What kind of training ty. She is a leading expert in ences in early brain development did you fnd the most helpful in autsm, Director of the Duke afect how a child with autsm your graduate program? What Center for Autsm and Brain understands the world and to kind of training or assets do you Development, and the Presi- use this understanding to help value among students you en- dent of the Internatonal Socie- each child reach his or her full counter that supports their ty for Autsm Research. Dr. potental. competence in working with Dawson has made immense clients afected by autsm spec- contributons to the feld of Queston: The feld of trum disorders? autsm and was kind enough to autsm is wide-ranging and ofers share with us some words of a variety of research opportuni- Answer: Autsm touch- wisdom. tes. For students interested in es almost every feld of science,

autsm and in the early stages of and most research requires col- Queston: You are well their academic careers, what laboraton among scientsts known in Division 33 and the advice would you give to those from diferent felds. My earli- greater psychological commu- students struggling to fnd their est training was with an inter- nity for your work in autsm niche? disciplinary team of clinicians spectrum disorders (ASD), spe- and scientsts. Like the prover- cifcally related to early detec- Answer: My recommen- bial blind man and the ele- ton, brain development, and daton is to spend tme with peo- phant, each of us viewed au- early treatment interventons. ple on the autsm spectrum and tsm through a diferent lens, How did you become interest- their families. There are so many and by putng our knowledge ed in this line of work? ways to get involved in research together, we were able to form

that will make a diference. a more complete picture. I also Answer: In graduate Then, spend tme with diferent believe it is important to spend school, I frst studied develop- types of scientsts to fnd out tme with individuals on the what kind of research is right for 3

Division 33 Student Interview An interview with Geraldine Dawson, Ph. D. autsm spectrum and understand reer. detecton eforts? What has been autsm frsthand, rather than sole- the most rewarding? ly learn about autsm through Because of the work that reading books and artcles. My has been conducted in the areas Answer: Although we now original ideas came from observa- of genetcs and neuroscience, we know how to recognize autsm in ton rather than from reading. now know much more about the infants and toddlers, the average biological basis of autsm. There age of diagnosis remains much lat- Queston: In the past two is now an opportunity to inte- er. For children from minority eth- decades, research in autsm has grate knowledge about behavior- nic backgrounds and low income advanced tremendously. Which of al interventons with biological countries, the age of diagnosis is your contributons do you feel interventons so that we can im- even higher. There are many barri- have had the most impact in the prove outcomes of individuals ers to access to treatment that have feld? What changes do you think with autsm. My current work been difcult to overcome. There should happen next? Is there any- focuses on combining biological are other barriers across the thing, in your opinion, stll missing and behavioral treatments to lifespan that must be addressed, from the feld? help those who are stll strug- such as inclusion of people with gling despite having received autsm in all aspects of community, Answer: With my collabo- high quality behavioral treat- such as the workplace. It is most rators and members of my lab, ment. rewarding when those barriers are I’ve focused on understanding the removed and the person with au- earliest symptoms of autsm with We also need to under- tsm is able to use his or her talents the goal of developing early inter- stand how to disseminate and to beneft society and live a life with ventons that will help each child implement the knowledge we dignity and meaning. reach their full potental. With have gained – such as methods Julie Osterling and others, we for early screening and behavior- Queston: You have held used observatons taken from al interventon – to the broader various leadership positons in the home videotapes to show for the community. Many people, espe- feld of autsm. With increasing frst tme that symptoms of au- cially in low income countries, prevalence rates far exceeding the tsm can be seen in young infants. don’t have access to screening, amount of services available, what We then sought to understand diagnosis, and treatment. Tech- advice would you ofer to graduate the brain basis of these symp- nology and other innovatve ap- students and early career profes- toms. Our lab pioneered the use proaches will help us reach more sionals interested in autsm re- of electrophysiology techniques people. We need creatve peo- search with direct policy implica- for studying brain development in ple working to solve this huge tons? very young children with autsm. challenge. Later, with Sally Rogers, I helped Answer: To translate re- develop the frst comprehensive Queston: We know that search from the lab into the real early interventon model – the ASD is a pervasive disorder that world, researchers need to get out Early Start Denver Model – that afects all areas of functoning in of the lab and books and spend can be used with infants and tod- individuals, with some individu- tme building relatonships with dlers. We then showed how early als at greater risk for co-morbid people in the community, including interventon can infuence how conditons. In your personal ex- people afected by autsm, clini- the brain develops by using the perience, what has been the cians, teachers, media, and policy electrophysiological methods we most difcult aspect in working makers. It is through these partner- had developed earlier in my ca- with treatment cases and early ships that change will happen.

News from the Ad Hoc Commitee on ID and Criminal Justce Greg Olley, PhD University of North Carolina at Chapel Hill Marc Tassé, PhD The Ohio State University

making this a standing com- sium on the death penalty at Commitee members: mitee. Because this change re- APA conventons. I am sure that Greg Olley: Chair, Stephen Green- quires a vote of the membership, I speak for all Commitee mem- span, Harvey Switzky, Caroline I cannot justfy a separate vote bers when I say we appreciate Everington, Karen Salekin, Gary just for this purpose. However, the opportunity to address this Siperstein, Keith Widaman, Marc the next tme the Council must important issue. Tassé, Dan Reschly, Gary Mesibov approach the membership for a vote, please consider including As noted in earlier re- The Commitee members this mater on the ballot. ports, Commitee members are contnue to be actve in topics re- working in some capacity on over lated to intellectual disabilites The following is a sum- 25 actve Atkins cases in many and the death penalty, although mary of actvites as reported by state and federal courts around each contributes in his/her own the Commitee members. the country. Drs. Tassé, Green- way. These actvites include pub- span, Reschly, Salekin, and I have licatons and conference presenta- APA contnues to regard been the most actve in testfy- tons as well as evaluatons of cli- this Commitee as a resource in ing, although others (e.g., Drs. ents and court testmony. the development of amicus Widaman and Siperstein) have briefs. The diversity of experi- conducted evaluatons and At the August 2014 ence and talent on this Com- writen reports for the courts. meetng of the Executve Council, mitee allows me to refer Most roles involve evaluatons the Council approved an expand- Nathalie Gilfoyle, Chief Counsel and testmony. Others involve ed role for the ad hoc Commitee for APA, to the right person to consultaton. Commitee mem- and discussed a name change. In assist her and her colleagues in bers are becoming very well- the past year, new issues have developing briefs that express known resources for atorneys come before this Commitee that the science and clinical practce who just want consultaton or justfy this expanded role. I would applicable to many legal issues. resources that they can read. like the Council to consider two things with regard to this Com- Marc Tassé and I spoke As noted earlier, the ed- mitee. at the 2015 AAIDD conventon ited book on ID and the death regarding stereotypes of ID in penalty has fnally been pub- 1. Rather than using a the courtroom. Steve Green- lished by AAIDD. Commitee long and complicated name, simp- span, Mark Tassé, and I will be members Greenspan, Widaman, ly make this the Commitee on presentng on a similar topic at Switzky, Salekin, Everington, Tas- Intellectual Disability and Criminal the 2015 APA Conventon in To- sé, and Olley contributed chap- Justce. ronto. I will present later this ters. According to AAIDD, the month at the Twenteth Annual book is selling briskly. This Commitee has been Natonal Federal Habeas Corpus actve for 10 years, and the issues Seminar in Charlote. I want to In summary, the amount it addresses contnue to grow. I again thank Division 33 for the and scope of this Commitee’s would like the Council to consider opportunity to present a sympo- work contnues to grow and to

contribute science and clinical expertse to the courts in these The 2014 Sara S. Sparrow Award Address important hearings. The Com- “Guiding Science with Clinical Insights” mitee welcomes recommenda- James C. McPartland, Ph.D. tons from the Executve Council and the members of Division 33 Yale Child Study Center on actvites that would further New Haven, CT these goals. Presented at the 2014 APA Conventon in Washington, A fnal request. I have DC served as chair of this ad hoc Commitee since its incepton in 2005. I would like to suggest that As clinicians, we observe, it is tme for a new Chairperson, listen, and interpret. We vary our preferably one with younger Sara Sparrow was a close infuence on the environment, and blood. I have spoken to Dr. Mark senior colleague, a mentor, and a we allow the children we assess to Tassé, and he has expressed his friend. She was instrumental in teach us through their actons. willingness to serve in this role. my involvement in APA Division Based both on those moments and Of course, this is a decision for the 33; she encouraged me to join the archive of similar moments we Executve Council, but my recom- Division 33 and to seek involve- have amassed from experience with mendaton is to appoint Dr. Tassé ment in its governance. She ac- other children, we gauge intellect, Chairperson of this Commitee. companied me to my frst Divi- social abilites, and mood. In an age sion Happy Hour and choreo- where machine learning algorithms graphed my social networking, can detect signifcant relatonships providing feedback as instructve in any data set, detecton of unan- J. Gregory Olley and concrete as that she provid- tcipated paterns in dynamic be- Chair, Ad Hoc Commitee on Intel- ed during my clinical training at havior remains a uniquely human lectual Disability, Autsm, and the the Child Study Center. Sara is clinical skill. The eye of a clinician Death Penalty ofen recognized for her contri- enables her to make serendipitous butons to the scientfc quantf- and unantcipated insights. Because caton of adaptve functon; I feel these insights occur in the context fortunate to have worked with of social interactons, they lend Dr. Tassé of The Ohio State her as a clinical trainee. The themselves to extemporaneous ex- manner in which she balanced University is the new ploraton. By varying one’s own be- rigorous science and sensitve havior, a clinician can engage in in- Chairperson of the ID and clinical practce made a lastng formal hypothesis testng about the Criminal Justce Com- impression on me. As I transi- motvatons and inclinatons of the toned into an independent clini- mitee. child. During interactons with the cian and scientst, this interplay child, we seek to appreciate the of clinical work and the scientfc strengths and vulnerabilites of that method has become the core of individual. As scientsts, our respon- Congratulatons! my approach to studying neuro- sibility is to profer theories and developmental disabilites. I take infuse uncertainty with explanaton.

this opportunity to refect on the As clinicians, our role is to hear the

unique advantages of being a concerns of individuals afected by clinician and a scientst, a lesson neurodevelopmental disabilites adopted from the model set by and to appreciate their perspectve. Sara. I learned from Sara that these clinical skills, detectng paterns, explor-

ing hunches, recognizing ability as In the recently funded Autsm measure improvement over the well as disability, and appreciatng Biomarkers Consortum for Clini- course of weeks months. Discov- the perspectve of stakeholders, cal Trials (ABC-CT; ery of biomarkers for specifc make one a beter, more respon- www.asdbiomarkers.org), this neural processes may enable us sible scientst. approach enables us to collect to move towards personalized and integrate data from neuro- medicine, with treatments se- Of course, clinical acumen science experiments in 5 states lected based on direct quantfca- is insufcient to advance clinical in the U.S. in collaboraton with a ton of impaired functon in spe- research. Even the most ob- network of 14 research centers cifc systems and the efectve- servant clinical eye will be unable in Europe. As evidenced by this ness of a treatment estmated by to detect certain facets of human example, neuroscientfc meth- its impact on this system in the behavior relevant to understand- ods permit more sensitve and short term. ing neurodevelopmental disabil- methodologically rigorous ity. There may be meaningful testng of the hypotheses we can Given the early stage of diferences in children with ASD develop as clinicians. biomarker development in ASD, that occur with a subtlety or infre- these translatonal goals are dis- quency that precludes detecton The benefts of being a tal. However, as exemplifed by during a standard clinical assess- clinical scientst are most evident Sara, we, as clinician scientsts, ment. There may be important when we consider the potental are positoned to enact proximal processes at play in the brain that applicatons of neuroscientfc benefts through our interactons have not yet developmentally discoveries. This is the crux of with families. When the profes- emerged in behavior. Lastly, be- translatonal research; in our role sional conductng research is also cause overt behavior is the amal- as clinicians, we are positoned the professional seated across gamaton of many distnct pro- to apply novel scientfc under- the table explaining a diagnosis cesses operatng in complex inter- standing for the beneft of indi- of autsm or formulatng a treat- play, there may be relevant dis- viduals with neurodevelopmen- ment plan, that person is ideally tnctons in functonal processes tal disorders and their families. positoned to communicate with that are simply not evident in be- In my own research program, our families about the science of clin- havior. Sara developed the Vine- clinical objectves are to improve ical care. The internet is replete land to address the limitatons of the diagnosis and treatment of with myths and misunderstand- clinical insight; in my program of autsm spectrum disorder (ASD). ings about autsm. A clinician research, we adopt the tools of By quantfying the neural bases steeped in research methods can neuroscience to supplement our of social-communicatve behav- help families determine the most clinical work and to inform us of ior, we can improve our efec- appropriate strategies to ensure the mechanisms underpinning tveness as clinicians. An electro- that their tme, energy, and f- behavior. As in the standardiza- physiological recording of an in- nancial resources are most efec- ton of the Vineland, neuroscien- fant’s brain actvity may reveal tvely applied to beneft children tfc methods add a level of objec- atypical response to language with neurodevelopmental disa- tvity not possible in clinical as- many months before speech de- bilites. In acceptng this award, I sessment. A neuroscientst can be lays become evident, suggestng thank Sara for modeling the confdent that identcal equip- the potental for interventon manner in which clinician- ment and identcal procedures prior to the development of clini- scientsts can journey with fami- yield consistent data. This is true cally signifcant problems. The lies from the clinic to the lab and of a single lab or labs on diferent current state of clinical science back again. contnents; this consistency and for treatment recommendaton objectvity enables collaboraton relies on clinical judgments to on a scale that transcends the cul- select treatment and requires tural and linguistc idiosyncrasies clinician or parent observaton to that complicate clinical research.

Doll Award Winner—Laraine Masters Glidden St. Marys College of Maryland

The Lifespan of Family Research in Intellectual and Developmental Disabilites: Generatvity versus Stagnaton

What follows is a summary of a presentaton by the author on the occasion of her receiving the 2015 Edgar A. Doll Award for her Lifetme Achievements in the Area of Intellectual and Developmental Disabilites

Stage 1--Childhood 1993), individual diferences that Fields of research, like As exemplifed by Far- diferentally predict a range of out- people, have lifespans. Also like ber’s work and that of many oth- comes (Crnic, Friedrich, people, research domains are dy- ers, this early stage focused on &Greenberg, 1983), and models namic and organic, and ofen are crisis—both reality and existen- and theories of adaptatons given impetus at some point in tal---and burden, but not to the (Blacher, 1984; McCubbin & Pater- tme by what later becomes iden- total exclusion of rewards and son, 1983) My own research com- tfed as a seminal work. In the satsfactons. Pearl Buck (1950) paring parents who adopted chil- case of family research in intellec- is one of many writers who rec- dren with IDD with the more typical tual and developmental disabili- ognized growth and adaptaton. birth parents demonstrated that tes (IDD) that seminal work was a “I learned respect and reverence the inital poorer outcomes for birth monograph by Bernard Farber for every human mind. It was my parents did not persist, and that the (1959). Hypotheses were about child who taught me to under- adoptve-birth factor was out- negatve efects, and conclusions stand so clearly that all people weighed by parental individual were framed in the negatve, with are equal in their humanity and diferences especially the power of focus on potentally disruptve that all have the same human the personality trait of Neurotcism efects on the marriage, and ad- rights.” During the decades (Glidden & Jobe, 2009; Glidden & verse efects on siblings, especial- from the 1950’s to the 1980’s, Schoolcraf, 2003), with low levels ly sisters. Other studies published Stage 1 gradually transitoned of this trait associated with positve during this period reinforced the into Stage 2—Adolescence, dur- outcomes for both birth and adop- noton of the burden of rearing a ing which the recogniton that tve parents. child with IDD, and the unre- the burdens of rearing a child mitng caretaking that character- with IDD not only co-existed with Stage 3—Emerging Adulthood ized the parentng (Holt, 1958). rewards and satsfactons, but Beginning approximately in were even balanced or out- the early 1990s, family research This focus on burden typi- weighed by them. burgeoned with its expansion both fed what I am identfying as Stage in quantty and in new domains and 1--Childhood of the lifespan of Stage 2—Adolescence additonal identtes. Syndrome family research in IDD. In my In additon to the coun- emphases and behavioral pheno- presentaton for the Doll Award, I terbalance of burden with re- types as predictors of family adjust- outlined a past and current 3- ward, Stage 2 is characterized by ment led to conclusions about the stage lifespan, with a vision state- th the increasing focus on adapta- Down syndrome advantage ment orientaton to a 4 and fu- ton over tme, and the consider- (Hodapp, 1999) and the autsm dis- ture stage. In this summary, I aton of methodological issues advantage. Large data sets, the briefy describe each of these four such as comparison groups importance of economic contexts, stages. (Stoneman, 1989; Glidden, and longitudinal research across

decades all characterized this 22, 55-68. pression: its trajectory and stage. Fathers and siblings correlates in mothers rearing were more ofen included as Buck, P. (1950). The child children with intellectual disa- research partcipants in addi- who never grew. New York: John bility . Journal of Intellectual ton to mothers. More fre- Day. Disability Research , 47 , 250 – quently, there was a focus on 263 . resilience rather than on cri- Crnic, K.A., Frierich, W.N., sis and maladjustment. & Greenberg, M.T. (1983). Adap- Hodapp R. M. (1999) taton of rfamilies with mentally Indirect efects of genetc Stage 4—Adulthood— retarded children. A model of mental retardaton disorders: Generatvity or Stagnaton? stress, coping, and family ecology. theoretcal and methodologi- Based on a review by American Journal of Mental Def- cal issues. In L.M. Glidden (Ed.) Dykens (2015) and this up- ciency. 88, 125-138. Internatonal Review of Re- date, we have not yet moved search in Mental Retardaton, beyond Stage 3. Although Dykens, E.M. (2015). 22, 27–50. the research, increasingly, is Family adjustment and interven- worldwide, it is stll more de- tons in neurodevelopmental dis- Holt, K.S. (1958). The scriptve than hypothesis- orders. Current Opinion in Psychi- home care of severely retard- testng, and involves mostly atry, 28, 121-126 ed children. Pediatrics, 22, samples of convenience. To 744-755. make progress and prevent Farber, B. (1959). Efects stagnaton we need programs of a severely mentally retarded McCubbin, H.I., & of natonal/internatonal col- child on family integraton, SRCD Paterson, J.M. (1983). The laboraton that will provide Monograph No. 71, family stress process: The resources for large and di- verse samples, hypothesis- Glidden, L.M. (1993). double ABCX model of family testng research designs that What we do not know about fami- adjustment and adaptaton. encompass family-based lies with children who have devel- Marriage and Family Review, metrics, that is longitudinal in opmental disabilites: Queston- 6, 7-37. nature, and includes behav- naire on Resources and Stress as a ioral, biomarker, cultural, and case study. American Journal on macroeconomic variables. Mental Retardaton, 97, 481-495. Such research will move beyond the status quo, be sum- Glidden, L.M., & Jobe, matve in nature, and is more B.M. (2009). By choice or by likely to be replicable and chance: Longitudinal perspectves applicable because of its on resilience and vulnerability in comprehensive nature. We adoptve and birth parents of chil- have come a long way, but dren with developmental disabili- we stll have a long way to go. tes. In L.M. Glidden & M. M. Selt- zer (Eds.). Internatonal review of References research in mental retardaton, Families, Vol. 37, (pp. 61-93). San Blacher, J. (1984). Diego, CA: Academic Press/ Sequental stages of parental Elsevier. adjustment to the birth of a child with handicaps: Fact or Glidden , L. M., & artfact? Mental Retardaton, Schoolcraf , S. A . ( 2003 ). De-

My Last Report From APA Council of Representatves

James A. Mulick, PhD Division 33 Representatve –The Ohio State University

sides as well, many coming to a My term as Division 33 head in my last Council term. Representatve is over as of the The last session of Council for number of members in those end of 2015. At the end, I will me was in August of this year units, had grown “too large.” have served as Council Repre- when we met in Toronto, and The real work of the Associa- sentatve for 12 of the last 15 that session saw to of the most ton was done by boards and years, and has flled in for per- important issues that have commitees and all that was vious representatves on a few emerge over the last decade lef for Council to do in the occasions before those years. dominate the agenda. These twice-a-year meetngs was to During that tme I saw many two issues are stll moving ratfy their actons and approve changes and in the leadership along in their own way, so all I the budget. The new structure of APA and in the way APA has can do here is provide a brief was implemented last year as been regarded by the general update. Members can, howev- an “experiment” that Council public, by the scientfc commu- er, consult the APA website for could end with a vote to do so, nity, and by the government additonal informaton as the even as it enacted bylaws agencies with which APA has two very diferent processes amendments designed to ofer always fruitully interacted with unfold. In some ways the two the members a chance to vote its well-placed presence in issues have become interrelat- them into permanence. We Washington, D.C. ed in how they are unfolding, passed a few of the, with more because one issue involves how to be ofered in the next few Over those years, APA APA will govern itself in the meetngs. We debated ofering has generally prospered. It has future, and the other arguably pro and con statements, with managed its assets well, espe- involves how it failed to govern some members of Council so cially the real estate holdings itself properly in the past. denigratng the votng mem- and other investments, and has bership as to say out loud that made a reasonably efectve I have writen about whenever pro and con state- transiton of the massive APA the Good Governance Project ments were ofered, the mem- publishing enterprise to the which was established three or bers always defeated atempts electronic age of research data- four years ago to “streamline” to amend the bylaws. We (not base archive management. APA the actons of APA so that it me) adopted and informaton- style is the standard for aca- could be “nimble” in respond- only statements format that demic publishing in many disci- ing to the great issues facing would not argue in favor or plines. Recently, APA has American Psychology, our sci- against the new bylaws, but sought to decrease the dues ence, and our professional con- presumably just to make them burden for members, especially cerns. The Council, with a rep- clear as to their efect to the younger members. resentatve structure designed members, so as not to confuse to provide a seat for every them with any hint of advoca- There have been down- state and division based on the cy. The new regime would allow the board of directors,

some of whom would be elect- just before the Toronto Con- and investments, not from our ed directly by the members venton afer a 7-month inves- operatng budget or dues or instead of being drawn from tgaton. The 542-page report ongoing income. APA has had a Council, to have control of f- concluded that prominent psy- very reassuring set of assets, nances and all “internal gov- chologists worked with the and while the net sum will take ernance,” such as publishing C.I.A. to blunt dissent inside a smashing hit, we will stll and staf maters. The council the agency over the interroga- have a very respectable porto- would be allocated policy ton program. It indicated fur- lio to weather any unforeseen maters afectng external is- ther that ofcials at the Ameri- fnancial storms, but the loss is sues, while funding for the pos- can Psychological Associaton stll no laughing mater. sible fscal implicatons for im- colluded with the Pentagon to plementng these actons make sure that the associa- There was one major would be out of their hands. ton’s ethics policies did not acton taken by Council in To- The Council would have a posi- hinder the ability of psycholo- ronto in an efort to set a new ton on the board of directors, gists to be involved in the in- course for APA in the afer- albeit small. Thus, the council terrogaton program, thus math of the scandal. The newly could “do things” that providing cover in the form of created “Council Leadership “mater,” and “nimbly,” with- the presence of “health profes- Team” was asked by APA out worrying about the me- sionals.” Hofman presented a Council to create a Work chanics of the Associaton. descripton of his work to Group to review current con- Council in Toronto, and an- fict of interest policies and The new regime was swered questons from the make recommendatons for partly implemented via members. There were resigna- new policies “for each board/ “temporary delegaton” to the tons and one major fring. The commitee/- task force/Council present Board of Directors afermath contnues, including member” and that would be when the book by the famed the need to pay Hofman mil- signed of on an annual ba- investgatve reporter James lions of dollars for his work, as sis. This need arose in view of Risen (Pay Any Price: Greed, well as to pay for the consider- the Hofman report’s fnding Power, and Endless War) hit able collateral costs of the that there had been signifcant the stands, in which he indicat- scandal to the Associaton. I confict of interest (COI) prac- ed that he had come into pos- made some back-of-the- tces within APA that were session of evidence of envelope calculatons as I add- problematc. “collusion” between agencies ed up the potental liabilites in of the military and government my head based on what I was The specifc charge and members of APA govern- hearing around the meetng was: H.(13A) Council requests ance and executve staf had (which is not atributable to the development of a state- provided cover for the Bush any specifc person or budget ment of principles regarding Administraton’s torture prac- discussion) and came up with confict of interest for each tces (see htp:// an fgure that approached board/commitee/task force/ www.hufngtonpost.com/ $9000 per page of the Hofman Council member to sign on an news/james-risen/). The Board Report when all is said and annual basis. A subgroup of responded eventually by hiring done over the next few members of Council, boards, (by the hour) a team led by months and years of this unbe- commitees, and the member- David Hofman, a Chicago law- lievable blown cover up. I ship will be formed by the yer with the frm Sidley Austn could be wrong. But one thing Council Leadership Team to to investgate the allegatons. was stated clearly, the money create virtually such a state- Hofman presented his report would come from our assets ment which will be fnalized at

My Last Report from APA Council Contnued...

James A. Mulick, PhD

the February 2016 Council meetng.

Dr. Eric Buter will be Congratulatons to Dr. James A. Mulick, PhD the new Council Representa- tve for Division 33. He will Recipient of A Presidental Citaton from APA help guide you all through the decisions to be made about Presented by APA’s Barry Anton, PhD APA governance, to represent 2015 APA Conference, Toronto, Canada the interests of Division members in whatever form you all allow governance to take, and to advance the science and practce of our specialty. My thought upon the end of a very long period of service is just this; the best example of Council actng nimbly in the past was in taking those actons which resulted in the

PENS document that started the whole unseemly process in 2005 leading to the Hofman Report and the resultng terri- ble cost to the Associaton and to our discipline. The PENS report was writen over a single weekend and adopted by the Board as an emergency acton and later accepted by the Council (and much later disavowed as people under- stood its faws and implicatons). That seems to be an important lesson to my way of thinking.

Division 33 Student Awards Awarded to: Allyson Davis, Loma Linda University Caroline Leonczyk, University of Alabama

ness, remain nonjudgmental, and fve facets of mindfulness signif- The Infuence of the Five Facets of remain nonreactve (Baer et al., cantly predicted decreases in Mindfulness on Parental Distress 2008; Cash & Whitngham, parentng stress. Similarly, in- and Satsfacton in Parents of Chil- 2010). creases in the abilites to ob- dren with Developmental Delays serve, to describe, to act with Allyson L. Davis, M.A. In the current study, we awareness, and to remain nonre- ~~~~~~~~~~~~~~~~~~~~~~~~~~~~ utlized data from the Mindful actve signifcantly predicted in- Extensive research has Awareness for Parentng Stress creases in satsfacton with the shown that parents of children (MAPS) Project to examine the parent child relatonship. In- with developmental delays (DD) relatonship between the fve creases in all fve facets also sig- experience elevated levels of facets of mindfulness and par- nifcantly predicted increases in stress compared to parents of typ- entng stress and satsfacton at satsfacton with parentng per- ically developing children (Baker baseline and following an MBSR formance. et al., 2003; Neece, Green & interventon. The study included Baker, 2012; Oelofsen & Richard- 91 parents of children ages 2.5 to Based on the results of son, 2006). Increased stress levels 5 years and diagnosed with DD. the current study, it appears that contribute to negatve outcomes Parentng stress was measured the broad construct of mindful- for both parents and their chil- using the Parentng Stress Index ness is important, with all com- dren (Crnic, Gaze, & Hofman, (Abidin, 1990), parentng sats- ponents contributng to positve 2005; Eisenhower, Baker, & facton was measured with the outcomes. Parental stress and Blacher, 2005; Hastngs, Daley, Parentng Satsfacton Scale the parentng experience are Burns, & Beck, 2006). Parents in (Guidubaldi and Cleminshaw challenges for this populaton this populaton also report de- 1994), and mindfulness was and the results of this study creased parentng satsfacton, measured using the Five Facets show that this is a very efectve which impacts parentng practces of Mindfulness Questonnaire interventon. that negatvely afect child out- (Baer et al., 2006). We found comes (Donenberg & Baker, 1993; that higher inital abilites to act The study must be considered Hassall, Rose, & McDonald, 2005; with awareness and to remain within the context of some limi- Holmbeck et al., 1997). Research- nonjudgmental were signifcantly tatons, including the fact that ers have recently begun invest- correlated with lower baseline we were unable to use the wait- gatng Mindfulness-Based Stress stress levels. Baseline levels of list control design due to the col- Reducton (MBSR) for parents of the fve facets were not signif- lecton of the fve facets data in children with DD and preliminary cantly related to inital levels of the interventon groups. Addi- results indicate that it is efectve satsfacton with the parent-child tonally, all measures used were for this populaton (Bazzano et al., relatonship. However, higher parent report. In the future, it 2013; Dykens et al., 2014; Neece, levels of the abilites to remain would be benefcial to include 2014). The construct of mindful- nonjudgmental and nonreactve physiological measures of stress ness has been operatonalized to were associated with increased and observatonal measures of include fve skills or components levels of satsfacton with par- the parent-child relatonship in that appear to contribute to over- entng performance. Following order to correct for potental all well-being, including to ob- the interventon, increases in all reporter bias associated with serve, describe, act with aware-

Division 33 Student Awards 2009). To explore this relaton- nifcantly predicted IQ, b = 1.97, t only using parental report ship, our study examined wheth- (222) = 4.7, p < .001; and IQ signif- measures. Additonally, it will be er IQ mediates the relatonship cantly predicted autsm sympto- interestng to examine the rela- between prematurity matology, b = -.08, t(222) = -4.27, p tonship between parents’ mind- (gestatonal age) and autsm < .001. Afer controlling for IQ, ges- fulness levels and child outcomes. symptomatology in a sample of tatonal age was no longer a signif- Finally, as a long-term research children born prematurely. cant predictor of autsm sympto- goal, it may be useful to incorpo- matology. rate aspects of mindfulness that Methods: The study in- are partcularly benefcial into cluded 231 mother-child dyads in Discussion: Within our pre- other interventons for parents. which the child had been born term sample, the relatonship be- very prematurely (<32 weeks ~~~~~~~~~~~~~~~~~~~~~~~~~~~~ tween gestatonal age and autsm gestaton) at UAB Hospital be- symptomatology did not persist The Role of IQ in Autsm Sympto- tween 1996-1999. Data at follow afer controlling for IQ. This sug- matology Among Children Born up ages 5 - 9 (M = 6.85) were gests that the autsm symptoms in Prematurely collected via psychological as- our sample may be related to more sessment and parent report. global cognitve impairment. John- Caroline Leonczyk, Fred Biasini, Children were given either the son and Marlow (2011) and others and William Andrews Wechsler Intelligence Scale for hypothesize that ASD in preterm University of Alabama at Birming- Children, Fourth Editon or the children may result from diferent ham Diferental Ability Scales to mechanisms than in the full-term measure their cognitve ability. populaton, with more of an em- Children born premature- Parents completed the Social phasis on environmental factors. ly are at an increased risk for intel- Communicaton Questonnaire For example, they may be more lectual disability compared to (SCQ) to screen for autsm symp- likely to have abnormal brain devel- their full-term peers. There is tomatology. Six percent of this opment due to adverse perinatal growing evidence that they are at sample screened positve for ASD events (e.g., brain hemorrhage), an increased risk for autsm spec- on the SCQ and 14 % had an in- which ofen lead to more global trum disorders (ASD) as well. tellectual disability. Simple linear impairment. While the SCQ has Among children born premature- regression analyses were used to good diagnostc utlity for identfy- ly, degree of prematurity (i.e., test that the mediaton model ing ASD in this populaton, children shorter gestatonal age) is associ- upheld the assumptons of medi- with other neurodevelopmental ated with lower IQ (e.g., Bhuta, aton (Baron and Kenny, 1986). A disabilites (e.g., intellectual disabil- et al., 2002) and higher autsm subsequent hierarchical linear ity) ofen have false positves symptomatology (e.g., Limper- regression was used to test (Johnson et al., 2010). The high rate opoulos et al., 2008). Within the whether IQ mediated the rela- of neurodevelopmental impair- preterm populaton, high levels of tonship between gestatonal age ments in children born prematurely autsm symptomatology are more and autsm symptomatology. may cloud diferental diagnosis in common among children with children born prematurely. Further congitve impairment (Johnson et Results: The data met study is needed to profle social al., 2011); however, the relaton- the conditons for mediaton. communicaton defcits in this pop- ship between prematurity and Specifcally, gestatonal age sig- ulaton in relaton to cognitve abil- autsm symptomatology may per- nifcantly predicted autsm symp- ity and compared to full-term peers sist even in children without cog- tomatology, b = -.24, t(229) = - with ASD. nitve impairment (Kuban et al., 2.03, p < .05; gestatonal age sig-

Looking for a fun Spring trip? Join Division 33 members and other profes- sionals at the 2016 Gatlinburg Conference

March 9th—11th, 2016 Catamaran Resort, San Diego California

htp://www.ucdmc.ucdavis.edu/mindinsttute/ gatlinburg/index.html

Division 33 Membership Update Eric Buter, PhD, Chair Katy Mezher, PhD, Associate Chair Current as of November 11th, 2015 Type Number

Professional Afliates 8

Students 86

Associate 30

Member 424

Total in Division 33 548

Fellows (also members) 78

Division 33 Photos!

Division 33 has a new and improved on-line presence

Come visit our new Division 33 Website!

www.division33.org

Special Thanks to the Division 33 Website Commitee: Katy Mezher Jonathan Weiss Hillary Hurst Bush David Michalec

With special thanks to Jason Baker who spearheaded this commitee and designed the website!!

Check out the Division 33 Facebook Page!

htps://www.facebook.com/APADiv33

The page has updates, informaton from APA, job/training opportunites, and more up-to-date news about the Division. Check it out!

Edgar A. Doll Award Sara Sparrow Early Ca- Jacobson Award (est. 1980) reer Research Award (est. 2007) (est. 2008) 1981 Sam Kirk 1982 Gershon Berkson 1983 Marie S. Crissey 1984 Sidney Bijou 1985 no award 1986 Norman Ellis 1987 Ed Zigler 1988 H. Carl Haywood 1989 Donald MacMillan 1990 Henry Leland 1991 Alfred Baumeister 1992 Earl Buterfeld 1993 Brian Iwata 1994 Ivar Lovaas 1995 Stephen Schroeder 1996 Donald Baer 1997 Richard Eyman 1998 Nancy Robinson 1999 Murray Sidman 2000 Todd Risley 2001 Don Routh 2002 Travis Thompson 2003 John Borkowski 2004 Gene P. “Jim” Sacket 2005 Robert Sprague 2006 Ann Streissguth 2007 Douglas K. Determan Richard Foxx 2008 Michael Guralnick Luc Lecavalier 2009 Sara Sparrow James Mulick 2010 Bruce Baker Laura Lee McIntyre 2011 Michael Aman Stephen Greenspan 2012 Ann Kaiser Anna Esbensen 2013 Steve Warren Sally Rogers 2014 Wayne Silverman James McPartland 2015 Laraine Masters Glidden V. Mark Durand

APA DIVISION 33 Fall/Winter 2015 VOLUME 41, NUMBER 2

PSYCHOLOGY IN INTELLECTUAL AND DEVELOPMENTAL DISABILITIES/ AUTISM SPECTRUM DISORDERS

Editorial Policy

Psychology in Intellectual and Developmental Disabilites/Autsm Spectrum Disorders is an ofcial publicaton of Division 33 of the American Psychological Associaton. It is devoted to keeping members informed about the actvites of Division 33 and to present news and comment concerning all aspects of service, research, disseminaton, and teaching in psychology and IDD/ASD. Brief artcles about policy issues in psychology and IDD/ASD, as well as descriptons of service programs and preliminary research summar- ies are invited. We are especially interested in artcles invitng the reacton and comment of colleagues in future issues. Comments and leters will be published as space allows. Manuscripts must conform to APA style and should be submited via an email atachment. Artcles, comments, and announcements should be sent to the current Division 33 President untl a new Newsleter Editor is selected. Books, flms, videotapes, and other material also may be submited to the Editor for possible review. Unless stated otherwise, opinions expressed are those of the author and do not neces- sarily represent ofcial positons of Division 33.

AMERICAN PSYCHOLOGICAL Newsleter Editors ASSOCIATION - DIVISION 33 David Michalec Intellectual and Developmental Disabilites/ [email protected] Sigan Hartley Autsm Spectrum Disorders [email protected]

President Division 33 Commitees Anna Esbensen Awards Commitee Assistant Professor Jan Blacher, Chair Division of Developmental & Behavioral Pediatrics [email protected] Cincinnat Children’s Hospital Medical Center MLC 4002, 3430 Burnet Ave. Consttuton and Bylaws Cincinnat, OH 45229 Greg Olley, Chair [email protected] [email protected]

President-Elect (Program Chair) Fellows Sharon J. Krinsky-McHale Bruce Baker, Chair Research Scientst [email protected] Head, Laboratory of Cogniton and Development Department of Psychology Membership New York State Insttute for Basic Research in Eric Buter, Chair Developmental Disabilites [email protected] 1050 Forest Hill Road Katy Mezher, Associate Chair Staten Island, NY 10314 [email protected] [email protected] Early Career Representatve President-Elect Designate Abbey Eisenhower Gael Orsmond, PhD [email protected] [email protected] Rachel Fenning [email protected] Past-President Laura Lee McIntyre Nominatons and Electons Department of Special Educaton & Clinical Sciences Laura Lee McIntyre 5208 University of Oregon [email protected] Eugene, OR 97403-5208 [email protected] Student Representatves Geovana Rodriguez—UC Riverside Secretary-Treasurer [email protected] Cameron Neece Elizabeth Will—Colorado State [email protected] [email protected]

APA Council Representatve ID and the Criminal Justce System Eric Buter Marc Tassé [email protected] [email protected]

Members-at-Large Women in Psychology Representatve Jonathan Weiss, PhD, C. Psych Elizabeth Laugeson [email protected] [email protected] Jason Baker [email protected]

AMERICAN PSYCHOLOGICAL ASSOCIATION -Division 33 Psychology in Intellectual and Developmental Disabilites/Autsm Spectrum Disorders Applicatons for Membership

APA members & Non-Students Student Memberships

Name: ______Name: ______

Address: ______Address: ______

______

Phone (___) ______Phone (___) ______

Email: ______Email: ______

Interest Area (s): ______Afliaton: ______Student Member of APA: ( ) Yes ( ) No ______Faculty Endorsement: This student is enrolled as a student in a course of study which is pri- APA Membership Status: marily psychological in nature. ( ) Afliate ( ) Associate Signature: ______( ) Member ( ) Fellow Afliaton: ______

Current Fees: Current Fees: $30.00 = APA Associates, Members, & Fellows $15.00 = APA Student Afliate $30.00 = Non-APA psychologists $15.00 = Non-APA Student Afliate $30.00 = Other interested individuals *APA charges $2.00 for renewals for members Please return your form to: Dr. Eric Buter, Division 33 Membership Chair Natonwide Children’s Hospital, Child Development Center Checks are payable to : 187 W. Schrock Rd. “APA Division 33” Westerville, OH 43081 [email protected]

Check out the Division 33 Facebook Page!

htps://www.facebook.com/APADiv33

The page has updates, informaton from APA, job/training opportunites, and more up-to-date news about the Division. Check it out!