Annual Report & Accounts 2004
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CHILDREN with LEUKAEMIA, 51 Great Ormond Street, London WC1N 3JQ Registered Charity No. 298405 Tel: 020 7404 0808 Fax: 020 7404 3666 email: [email protected] websites: www.leukaemia.org www.runleukaemia.org www.challengeleukaemia.org This Annual Report has been printed and kindly donated by TOPS Design & Print (01708) 522117 Paul’s and Jean’s first school photographs Annual Report & Accounts 2004 Fighting Britain’s biggest child killer disease Fighting Britain’s biggest child killer disease CHILDREN with LEUKAEMIA CHILDREN with LEUKAEMIA Registered Charity No. 298405. Inaugurated in 1988 by Diana, Princess of Wales in memory of Jean and Paul O’Gorman Registered Charity No. 298405. Inaugurated in 1988 by Diana, Princess of Wales in memory of Jean and Paul O’Gorman Index Foreword by the Chairman PAGE Foreword by the Chairman 3 Charitable expenditure exceeded £10 million for the Information about the Charity 4 first time in 2004 How we began 5 What is leukaemia? 6 £6.5m Grants to third parties First international conference on the causes and prevention of childhood leukaemia 8 £3.8m Developing young talent in leukaemia research 10 £3.1m Campaigns, projects and Focus on research: 12 programmes Radiation and childhood leukaemia 12 £2.0m Stratification of chemotherapy based on levels of minimal residual disease 14 £4.1m £4.4m £4.4m Understanding infant leukaemia 15 £2.6m Paul O’Gorman centres of excellence in childhood leukaemia research 16 2001 (£4.6m) 2002 (£7.2m) 2003 (£8.2m) 2004 (£10.9m) Institute of Child Health, Great Ormond Street Hospital, London 16 2004 has been a year of growth extent of the problem of The continued growth in our Northern Institute for Cancer Research, University of Newcastle upon Tyne 16 and modernisation for childhood leukaemia. income and expenditure has Paul O’Gorman Leukaemia Research Centre, University of Glasgow 16 CHILDREN with LEUKAEMIA. demanded a strengthening of What began as a small memorial Our commitment to causation our financial management and Institute of Cancer Sciences, University College London 17 charity back in 1988 is now and prevention was reinforced this has been achieved with the Relief of suffering: 18 handling more than 1,000 by our successful conference on appointment of Ros Lewis as our donations on an average day. the causes and prevention of first Head of Finance, the Paul O’Gorman Patient Hotel, Great Ormond Street Hospital 18 This enabled our annual childhood leukaemia – the first engagement of Sayer Vincent as Paul O’Gorman House, Royal Free Hospital 19 charitable expenditure to pass ever international conference on internal auditors and the the £10 million mark for the very this theme. During the selection of Deloitte to take on Lifeline 19 first time in 2004. The following conference we launched a new the increasingly specialist role of Paul O’Gorman Respite Centre, Green Hedges 19 pages describe how these funds £1 million fund for research into external auditor with effect from were raised and spent. the causes of childhood 2005. The Charity has also been CHASE Hospice Care 19 leukaemia. The first tranche of incorporated to Limited The 17th Amazing Great Children’s Party 20 As trustees, we face the money was awarded as Paul Company status to achieve perennial difficulty of balancing O’Gorman Prizes to promising modernisation of our charitable Raising awareness 21 the needs of children who need young researchers presenting objectives and governance The Third Children’s Marathon Challenge 22 our help now, in the form of their work at the conference. The structure and opening the way to better treatment and support, remainder is to be distributed as widening the trustee base in Where does the money come from? 23 with the need to unravel the project grants to researchers 2005. causes of childhood leukaemia who successfully apply for Running events 23 and so protect future funding. As ever, we are indebted to our Special events 24 generations of children. As you friends, staff, volunteers and read this report I hope that you On the welfare front, 2004 saw supporters whose continuing Appeals 26 will feel that we have got the the opening of the Paul dedication has made possible Trustees’ policies and responsibilities 27 balance right. O’Gorman Patient Hotel at Great the vital work described over the Ormond Street Hospital, taking coming pages. On behalf of the Independent auditor’s report 28 The year saw a major switch in the number of Paul O’Gorman trustees I would like to record Statement of Financial Activities 29 our research funding portfolio – welfare facilities to four. The our gratitude for their help in funding more research and fewer grant of Green Hedges and the honouring the memory of Jean Balance sheet 30 buildings. We continued to completion of transfer of Paul and Paul through the life-saving Financial activities 2004 31 invest in the provision of welfare O’Gorman House to the Royal work of CHILDREN with services and also to carry on our Free Hospital close a chapter on LEUKAEMIA. Cash flow statement 32 work to increase public us operating this kind of facility Notes to the accounts 32-35 understanding of the nature and ourselves. 2 3 Information about the Charity How we began CHILDREN with LEUKAEMIA is the Registered Charity Number: CHIEF EXECUTIVE Edward Copisarow registered working name of the 298405 Foundation for Children with SCIENTIFIC ADVISERS Prof. A. V. Hoffbrand, DM, FRCP, Leukaemia (formerly The Paul Solicitors: FRCPath, DSc (Chairman) O'Gorman Foundation for Children Nabarro Nathanson Prof. J. M. Chessells, MD, FRCP, FRCPath Prof. M. Coleman, BM, BCh, MSc, MFPhm with Leukaemia) which was Lacon House, Theobald’s Road Prof. N. E. Day, MA, PhD, MRCPath constituted as a charity under a Trust London WC1X 8RW Prof. J. Golding, MA, PhD, FSS, DSc Prof. J. M. Goldman, DM, FRCP, FRCPath Deed dated 4 January 1988, in Prof. D. L. Henshaw, BSc, PhD memory of Paul O’Gorman who died Auditors: Prof. H. G. Prentice, MB, FRCP, FRCPath on 6 February 1987 and his sister UHY Hacker Young AMAZING GREAT CHILDREN’S PARTY Jean, who died on 3 November St Alphage House, 2 Fore Street Hugo Amaya-Torres (Chairman) 1987. The Charity was inaugurated London EC2Y 5DH CELEBRITY FRIENDS Jeremy Beadle (Chairman) by Diana, Princess of Wales on 12 Russ Abbot • Debbie Arnold January 1988 at Mill Hill County High Bankers: Jane Asher • Colin Baker Floella Benjamin • David Berglas School where Paul had been a pupil. National Westminster Bank Plc Rodney Bewes • Christopher Biggins 30 North Audley Street Cilla Black • Brenda Blethyn Patricia Brake • Sir Richard Branson The objects of CHILDREN with London W1A 4UQ Johnny Briggs • Tim Brooke-Taylor LEUKAEMIA during the year of Faith Brown • June Brown Frank Bruno • Max Bygraves 2004 were: Developments since year Sir Michael Caine • Brian Cant end Jasper Carrott • Frank Carson Christopher Cazenove • George Cole • The relief of children On 1 January 2005, the Graham Cole • Joan Collins suffering from leukaemia. Foundation for Children with Phil Collins • Jess Conrad John Conteh • Bernard Cribbins • The promotion of research Leukaemia transferred its assets Roger Daltrey • Paul Daniels into the causes of and operations to Children with Jim Davidson • Dickie Davies Sharron Davies • Roger de Courcey childhood leukaemia. Leukaemia, a company limited Declan Donnelly • Jason Donovan • The promotion of research by guarantee with Company Glynn Edwards • Bruce Forsyth Peter Gilmore • Reg Gutteridge into the treatment and cure number 4960054. The registered Haruhisa Handa • Ainsley Harriott of childhood leukaemia. charity number for this new Barry Hearn • Bob Holness Bob Hoskins • Jane How company remains the same as Michael Howe • Nerys Hughes Gareth Hunt • David Janson Details of the Charity's activities for the Foundation. David Jason • Gorden Kaye In February 1987 leukaemia killed charity which she inaugurated in are available from the principal Kevin Keegan • Diane Keen Paul O’Gorman. He was fourteen January 1988. Henry Kelly • Felicity Kendal office of the Charity: The objects of the new company Sarah Kennedy • Eddie Kidd years old. The O’Gormans’ agony 51 Great Ormond Street are: Burt Kwouk • Bonnie Langford Eddie Large • George Layton did not stop there. Just nine The Paul O'Gorman Foundation London WC1N 3JQ Rosemary Leach • Rula Lenska months later cancer also killed for Children with Leukaemia is • The relief of children Lennox Lewis • Gary Lineker Joanna Lumley • Linda Lusardi Paul’s sister, Jean. today simply called CHILDREN Tel: 020 7404 0808 suffering with leukaemia. Sandy Lyle • Sir Paul McCartney Fax: 020 7404 3666 • To raise public awareness Debbie McGee • Anthony McPartlin with LEUKAEMIA but Paul's spirit Philip Madoc • Ruth Madoc Always a caring boy, Paul had email: [email protected] and knowledge in matters Ron Moody • Garfield Morgan continues to inspire our work. www.leukaemia.org relating to childhood Patrick Mower • Tom O’Connor made his parents promise to help Bill Oddie • Richard O’Sullivan other children with leukaemia leukaemia. Nick Owen • Nicholas Parsons What began as a small memorial The current serving Trustees • The promotion of Su Pollard • Robert Powell and within weeks of his death Pauline Quirke • Claire Rayner charity is now Britain’s leading who all served for the whole of research into the causes, Angharad Rees • Anneka Rice they started fundraising. charity dedicated exclusively to the year are: alleviation, prevention, Linda Robson • Tessa Sanderson Gerald Scarfe • Phillip Schofield the conquest of childhood treatment and cure of Lloyd Scott • Pat Sharp In November 1987, just days Eddie O'Gorman (Chairman) childhood leukaemia and Ivor Spencer • Michaela Strachan leukaemia through pioneering Eric Sykes • Chris Tarrant after Jean’s death, they met The Earl Cadogan DL to publish the results of Angela Thorne • David Vine Diana, Princess of Wales.