DOCSLIB.ORG

Meeting Transcript

Total Page：16

File Type：pdf, Size：1020Kb

Download full-text PDF Read full-text
Meeting Transcript 1 INTERAGENCY AUTISM COORDINATING COMMITTEE HEALTH OUTCOMES WORKING GROUP WORKSHOP: ADDRESSING THE HOUSING NEEDS OF PEOPLE ON THE AUTISM SPECTRUM TUESDAY, July 23, 2019 The Interagency Autism Coordinating Committee (IACC) Health Outcomes Working Group convened in Rockville, Maryland at the Hilton Washington DC/Rockville Hotel & Executive Meeting Ctr, 1750 Rockville Pike, at 9:30 a.m. Susan Daniels, Ph.D., presiding. PRESENT: JOSHUA GORDON, M.D., Ph.D. Director, National Institute of Mental Health (NIMH) and Chair, IACC SUSAN DANIELS, Ph.D., Executive Secretary, IACC, Office of Autism Research Coordination (OARC), National Institute of Mental Health (NIMH) ALISON TEPPER SINGER, M.B.A., Chair, Housing Outcomes Working Group, Autism Science Foundation MAX BARROWS, Green Mountain Self-Advocates JUDITH COOPER, Ph.D., National Institute on Deafness and other Communication Disorders (NIDCD) SAMANTHA CRANE, J.D., Autistic Self-Advocacy Network DANIEL DAVIS, Administration for Community Living (ACL) 2 PRESENT: (continued) GERALDINE DAWSON, Ph.D., Duke University JILL ESCHER, J.D., M.A., Autism Society San Francisco Bay Area MELISSA HARRIS, Centers for Medicare and Medicaid Services, (CMS) (attended by phone) LORI IRELAND, M.B.A., Ireland Family Foundation JENNIFER JOHNSON, Ed.D., Administration For Community Living DESIREE KAMEKA, Madison House Autism Foundation ARUN KARPUR, M.D., M.P.H., Autism Speaks, (attended by phone) AMY LUTZ, M.A., M.F.A., EASI Foundation KIM MUSHENO, Autism Society DENISE RESNIK, DRA Collective RYLIN RODGERS (representing Ben Kaufman), Association of University Centers on Disabilities SCOTT MICHAEL ROBERTSON, Ph.D., U.S. Department of Labor (DOL) JAY SHUKERT, Parent, Advocate, San Francisco, California IVANOVA SMITH, AtWork! 3 PRESENT: (continued) STEPHEN WHITLOW, J.D., Merakey Gateway Transition Services 4 TABLE OF CONTENTS Welcome, Introductions, Roll Call, and Approval of Minutes 8 Joshua Gordon, M.D., Ph.D. Director, National Institute of Mental Health (NIMH) and Chair, IACC Susan Daniels, Ph.D., Director, OARC, NIMH and Executive Secretary, IACC Alison Singer, M.B.A., IACC Member, Chair, IACC Housing Working Group President, Audism Science Foundation Samantha Crane, J.D., IACC Member, Member, Housing Working Group Legal Director and Director of Public Policy, Autistic Self Advocacy Network (ASAN) Overview of Housing Issues 35 Status and Trends in Supports and Services from the Residential Information Systems Project 37 Heidi Eschenbacher, Ph.D., Researcher, Institute on Community Integration University of Minnesota Trends & Insights from the Autism Housing Network 57 Desiree Kameka, M.T.S., Director of Community Education & Advocacy, Madison House Autism Foundation Discussion 87 5 Public Comment Session 96 Oral Public Comments 96 Written Public Comments 114 Oni Celestin, Ph.D. Science Policy Analyst Office of Autism Research Coordination, NIMH Live Feedback 117 Discussion 118 Susan Daniels, Ph.D. Director, Office of Autism Research Coordination, NIMH and Executive Secretary, IACC Intentional Community Models 160 Live. Learn. Lead. We’re the place for That …First Place AZ 160 Denise Resnik, CEO and Co-Founder DRA Collective, Phoenix, Arizona Benjamin’s Hope: a “Live, Learn, Play, Worship” Community Where People with Autism Enjoy Lives of Dignity and Purpose 180 Krista Mason, Executive Director, Benjamin’s Hope, Holland, Michigan From House to Home: Thriving with Autism At The Center for Discovery 189 Terry Hamlin, Ed.D., Associate Director, Center for Discovery, 6 Harris, New York Organizing for Inclusive Community: Leveraging Partners and Policies to Make More Possible 208 Lindsay Johnson, Director of Policy and Partnerships, The Kelsey Discussion 226 Apartment/Dispersed Community and Service Delivery Models 235 The Arc Jacksonville Village 235 Jim Whittaker, President/CEO, The Arc Jacksonville, Jacksonville, Florida The Faison Residence: Highlights of An Inclusive, Semi-Independent Housing Community for Adults with Autism 246 Matthew Osborne, M.S., BCBA Director of Adult and Residential Services, Faison Center, Richmond, Virginia How Integrated Living Opportunities Creates Supportive Communities & Full Lives for Individuals with Developmental Disabilities 255 Maedi Tanham Carney, Integrated Living Opportunities, Maryland, Northern Virginia, and Washington, DC 7 ABLE’s Journey with Housing 273 Mary Anderson, ABLE, Inc. Dickinson, North Dakota Personalized Adult Services and Housing Navigation 290 Gail Godwin, M.A., Executive Director, Shared Support Maryland Discussion 310 Final Discussion and Wrap Up 322 Susan Daniels, Ph.D., Director, Office of Autism Research Coordination, NIMH and Executive Secretary, IACC Alison Singer, M.B.A., IACC Member, President, Autism Science Foundation Closing Remarks and Adjournment 349 8 PROCEEDINGS DR. JOSHUA GORDON: Welcome. My name is Joshua Gordon. I am the director of the National Institute of Mental Health and in that capacity, the chair of the Interagency Autism Coordinating Committee. I want to welcome members of the IACC as well as the chairs and members of the Working Group on addressing the housing needs of people on the autism spectrum. The speakers who are here today, quite a great list of people who are going to talk about this topic, public attendees both here and those listening on the web. This is the final one at least for this iteration of a series of workshop that the IACC has conducted to do in-depth dives into particular topics of relevance for those on the autism spectrum and their families. Addressing the housing needs of people with autism and on the autism spectrum is 9 incredibly crucial, incredibly important and a growing issue as we recognize the need to consider individuals on autism as they progress throughout the lifespan. I am going to open with an apology, which is that my schedule prohibits me from staying here the whole day. I am going to be in and out this morning and then I am going to have to leave you around midday. But I am going to stay for as much of it as I can and Susan and the rest of my staff will fill me in on any particular issues of importance. With that, I am going to turn it over to Susan and the chairs. DR. SUSAN DANIELS: Good morning. I am Susan Daniels, Director of the Office of Autism Research Coordination at the National Institute of Mental Health. Welcome to everyone in our viewing audience, people in the room, our Working Group members, members 10 of the IACC and our speakers today. We really appreciate you being here to talk about this really important topic and look forward to getting into our material. I have a few announcements. One is that there is a live feedback link available on the webcast for anyone who might want to put in a last minute public comment and that will be open until 11:30. I was told it would be until 11:30. Yes? 11:30. Feel free to put in a comment there if you have not put in a comment already. Also, we do have disability accommodations available, a quiet room. As always, the webcast is closed captioned and there is CART available in the room. We are going to take some time for introductions in a minute, but first I would like to give you just a little background on why we are having this workshop. 11 As you see, the title of our workshop is addressing the housing needs of people on the autism spectrum. In 2019, the IACC convened this Working Group on housing issues for individuals with ASD [Autism Spectrum Disorder]. And the Working Group mission statement is in the autism community, we face a mounting housing crisis with growing population of autistic adults with diverse needs, lacking appropriate living situations. The goal of this Working Group is to examine a wide variety of housing options and service models for people with autism and to develop strategies to achieve a broad array of supported housing options throughout all of our communities that enable autistic individuals to achieve person-centered outcomes. This Working Group is going to be looking at research and best practices on 12 housing, implementation of federal regulations, and housing issues faced by autistic individuals with more severe disabilities. The Working Group members are listed on the slide. They are also on our website. We just wanted to provide this for people who might be looking at this on the web. We do have our slides posted as well. There are external members who have been invited to provide their expertise to the Working Group as well as members of the IACC in the Working Group. The activities the Working Group has undertaken so far include a conference call that took place on June 20. We are having this workshop. And tomorrow the Interagency Autism Coordinating Committee is meeting in full committee and will have a brief discussion of the outcomes of this workshop. 13 We will be publishing a workshop summary in the fall. And the IACC may pick up this topic again when it reconvenes. The IACC is set to sunset on September 30, 2019, but there is pending legislation to reauthorize it, but the committee would go on hiatus until there is a new committee formed. Because of the short timeline, we are not going to be able to dive deeper into activities around this topic. This discussion will be a key starting point for the committee's deliberations of this topic. We look forward to a great discussion today. We would ask you to please be mindful of – we have several times for discussion throughout the day and we want everyone to have a chance to speak. If you have already spoken a little bit in the day, please give a chance to someone else to make comments before volunteering to comment at every 14 comment period. But we do welcome everyone to participate and hope that there will be a robust discussion. With that, I would like to give an opportunity to our chair, Alison Singer, who is a member of the IACC, a long-time member of the IACC, to give a brief introduction, and we also will be hearing from another IACC member, Samantha Crane.
Load more

Recommended publications
  • HHS Announces Appointment of New Membership and New Chair for the Interagency Autism Coordinating Committee
    For Immediate Release Contact: Office of Autism Research Coordination/NIH October 28, 2015 E-mail: [email protected] HHS Announces Appointment of New Membership and New Chair for the Interagency Autism Coordinating Committee The U.S. Department of Health and Human Services (HHS) today announced the appointments of new and returning members to the Interagency Autism Coordinating Committee (IACC), reauthorized under the Autism CARES Act. After an open call for nominations for members of the public to serve on the committee, Secretary of Health and Human Services, Sylvia M. Burwell, appointed this group of individuals to provide her with advice to advance research, strengthen services, and increase opportunities for people on the autism spectrum. The public member appointees include three adults on the autism spectrum, several family members of children and adults on the autism spectrum, clinicians, researchers, and leaders of national autism research, services, and advocacy organizations. Many of the appointed individuals serve dual roles, dedicating their professional careers to helping people on the autism spectrum because of their personal experiences with autism spectrum disorder (ASD). The first meeting of the new committee will take place on November 17, 2015 in Rockville, Maryland. In addition to the new public members, the IACC will have a new chair when it reconvenes. Dr. Thomas Insel, who served as the Director of the National Institute of Mental Health (NIMH) and as Chair of the committee for more than a decade, announced his planned departure for Google Life Sciences in at the end of October 2015. Dr. Bruce Cuthbert, who will become Acting Director of NIMH on November 1, has been appointed to serve as the IACC Chair over the next year.
    [Show full text]
  • Constructing Narratives and Identities in Auto/Biography About Autism
    RELATIONAL REPRESENTATION: CONSTRUCTING NARRATIVES AND IDENTITIES IN AUTO/BIOGRAPHY ABOUT AUTISM by MONICA L. ORLANDO Submitted in partial fulfillment of the requirements for the degree of Doctor of Philosophy Department of English CASE WESTERN RESERVE UNIVERSITY May 2015 2 CASE WESTERN RESERVE UNIVERSITY SCHOOL OF GRADUATE STUDIES We hereby approve the dissertation of Monica Orlando candidate for the degree of Doctor of Philosophy.* Committee Chair Kimberly Emmons Committee Member Michael Clune Committee Member William Siebenschuh Committee Member Jonathan Sadowsky Committee Member Joseph Valente Date of Defense March 3, 2015 * We also certify that written approval has been obtained for any proprietary material contained therein. 3 Dedications and Thanks To my husband Joe, for his patience and support throughout this graduate school journey. To my family, especially my father, who is not here to see me finish, but has always been so proud of me. To Kim Emmons, my dissertation advisor and mentor, who has been a true joy to work with over the past several years. I am very fortunate to have been guided through this project by such a supportive and encouraging person. To the graduate students and faculty of the English department, who have made my experience at Case both educational and enjoyable. I am grateful for having shared the past five years with all of them. 4 Table of Contents Abstract ............................................................................................................................... 5 Chapter 1: Introduction Relationality and the Construction of Identity in Autism Life Writing ........................ 6 Chapter 2 Clara Claiborne Park’s The Siege and Exiting Nirvana: Shifting Conceptions of Autism and Authority ................................................................................................. 53 Chapter 3 Transformative Narratives: Double Voicing and Personhood in Collaborative Life Writing about Autism ..............................................................................................
    [Show full text]
  • Transcript of the December 12, 2008 Meeting of the Full IACC
    Page 1 U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES INTERAGENCY AUTISM COORDINATING COMMITTEE FULL COMMITTEE MEETING FRIDAY, DECEMBER 12, 2008 The meeting came to order at 9:00 a.m. in Conference Room A of 6001 Executive Boulevard, Rockville, Maryland. Thomas Insel, Chair, presiding. PRESENT: THOMAS R. INSEL, M.D., IACC Chair, National Institute of Mental Health DELLA HANN, Ph.D., IACC Executive Secretary, Office of Autism Research Coordination, National Institute of Mental Health DUANE F. ALEXANDER, M.D., National Institute of Child Health and Human Development ELLEN W. BLACKWELL, M.S.W., Centers for Medicare and Medicaid Services JUDITH COOPER, Ph.D., National Institute of Deafness and Other Communication Disorders (For James Battey M.D., Ph.D.) LEE GROSSMAN, Autism Society of America GAIL R. HOULE, Ph.D., Department of Education STORY C. LANDIS, Ph.D., National Institute of Neurological Disorders and Stroke WALTER KOROSHETZ, M.D., National Institute of Neurological Disorders and Stroke (For Dr. Story Landis) CINDY LAWLER, Ph.D., National Institute of Environmental Health Sciences Neal R. Gross and Co., Inc. 202-234-4433 Page 1a PRESENT (continued): CHRISTINE M. McKEE, J.D. PATRICIA A. MORRISSEY, Ph.D., Administration for Children and Families LYN REDWOOD, R.N., M.S.N., Coalition for SafeMinds ALISON TEPPER SINGER M.B.A., Autism Science Foundation STEPHEN M. SHORE, Ed.D., Autism Spectrum Consulting and Adelphi University EDWIN TREVATHAN, M.D., M.P.H., Centers for Disease Control and Prevention PETER VAN DYCK, M.D., M.P.H., Health Resources and Services Administration Neal R. Gross and Co., Inc.
    [Show full text]
  • Disabling Composition: Toward a 21St-Century, Synaesthetic Theory of Writing
    Disabling Composition: Toward a 21st-Century, Synaesthetic Theory of Writing Dissertation Presented in Partial Fulfillment of the Requirements for the Degree Doctor of Philosophy in the Graduate School of The Ohio State University By Melanie Yergeau Graduate Program in English The Ohio State University 2011 Dissertation Committee: Brenda Brueggemann, Advisor Cynthia Selfe, Advisor H. Lewis Ulman Copyright by Melanie Yergeau 2011 Abstract My dissertation examines the ways in which composition pedagogies have, both in theory and in practice, systematically worked to exclude individuals with disabilities. Persisting in composition studies is the ideological belief that traditional writing and intelligence are somehow inherently linked, that traditional literacy is central to defining one’s intellectual worth. This privileging of composing as print-based, I contend, masks the notion that writing is simply one among many systems of making and conveying meaning, that among our readers are those who cannot always access the messages delivered within print-based texts. I argue that disability studies can enable us to reconceive the rhetorical triangle and what it means to compose. Disability studies allows us to perceive the ways in which traditional writing—and composition studies’ investment in traditional writing— normalizes and has been normalized by our understanding of “the” rhetorical triangle. But disability studies also allows us to regard the ways in which multimodal composing normalizes and has been normalized by our understanding of “the” rhetorical triangle. In order to create the inclusive, radically welcoming pedagogy that so many teacher- scholars strive for, I suggest that we disable composition studies—what we think we know about composers, composing, and composition(s).
    [Show full text]
  • Oral and Written Public Comments
    Public Comments July 21-22, 2021 1 Table of Contents Oral Comments ............................................................................................................................................. 4 Christopher Banks on behalf of The Autism Society of America .................................................................. 5 Jill Escher, J.D., M.A. on behalf of National Council on Severe Autism ........................................................ 7 Bin Feng ....................................................................................................................................................... 10 Kelly Israel on behalf of Autistic Self Advocacy Network ............................................................................ 11 Noemi Spinazzi on behalf of M.D., Down syndrome-Autism workgroup of the Down Syndrome Medical Interest Group ............................................................................................................................................. 15 Written Comments ..................................................................................................................................... 16 Oren Evans .................................................................................................................................................. 17 Ramey Chisum............................................................................................................................................. 18 Resa Warner ...............................................................................................................................................
    [Show full text]
  • Transcript for the IACC Full Committee Meeting on July 9, 2013
    1 U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES INTERAGENCY AUTISM COORDINATING COMMITTEE FULL COMMITTEE MEETING TUESDAY, JULY 9, 2013 The Interagency Autism Coordinating Committee (IACC) met in Room 10, Sixth Floor, C Wing, Building 31, 31 Center Drive, Bethesda, Maryland, from 9:09 a.m. until 5:28 p.m., Thomas Insel, Chair, presiding. PRESENT: THOMAS INSEL, M.D., Chair, IACC, National Institute of Mental Health (NIMH) SUSAN DANIELS, Ph.D., Executive Secretary, IACC, NIMH IDIL ABDULL, Somali American Autism Foundation JAMES BALL, Ed.D., BCBA-D, JB Autism Consulting and Autism Society of America (attended by phone) ANSHU BATRA, M.D., Our Special Kids JAMES BATTEY, M.D., Ph.D., National Institute on Deafness and Other Communication Disorders (NIDCD) 2 PRESENT (continued): LINDA BIRNBAUM, Ph.D., National Institute of Environmental Health Sciences (NIEHS) (attended by phone) COLEEN BOYLE, Ph.D., M.S.Hyg., U.S. Centers for Disease Control and Prevention (CDC) JOSEPHINE BRIGGS, M.D., National Center for Complementary and Alternative Medicine (NCCAM) SALLY BURTON-HOYLE, Ed.D., Eastern Michigan University MATTHEW CAREY, Ph.D., Left Brain Right Brain (attended by phone) JAN CRANDY, Nevada State Autism Treatment Assistance Program and Nevada Commission on Autism Spectrum Disorders GERALDINE DAWSON, Ph.D., Duke University DENISE DOUGHERTY, Ph.D., Agency for Healthcare Research and Quality (AHRQ) TIFFANY FARCHIONE, M.D., U.S. Food and Drug Administration (FDA) ALAN GUTTMACHER, M.D., Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) LAURA KAVANAGH, M.P.P., Health Resources and Services Administration (HRSA) DONNA KIMBARK, Ph.D., U.S.
    [Show full text]
  • Episode 22 - Be Kind Don't Rewind SCRIPT
    Episode 22 - Be Kind Don't Rewind SCRIPT Hello, and welcome once again to Neurologic. I'm your host Leo Jones. Yesterday, on February 11th, Autism Speaks - defined as an autism charity organization - launched their re-introduction, 15-year anniversary celebration and “Year of Kindness” campaign, which includes a new logo, ‘profile stories’ of selected autistics, links to revisions in the organization, a ‘for the record’ page, and of course, information regarding their “Year of Kindness”. Is this the change we've been fighting for? Is Autism Speaks finally, after all these years, listening and [radically] changing? Will the wounds they inflicted be properly treated with recompense, atonement, and apology? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ For those of you who may be unaware, or have a very limited grasp of the history of Autism Speaks, allow me to give you a cursory understanding of why this organization has been repeatedly criticized, scrutinized, denounced and condemned by autistics and autistic-led communities. Content warning: the following language and descriptions may be traumatic for some, and may contain descriptions of violence, abuse and other disturbing actions or events. A lot of the following is from In The Loop About Neurodiversity, as well as several other sources which are cited in the PDF copy of the script for this episode. (https://intheloopaboutneurodiversity.wordpress.com/2019/09/13/the-ableist-history-of-autism-speaks/) [Italic paragraphs adapted From In The Loop About Neurodiversity] Autism Speaks was founded in 2005 by Bob Wright and his wife, Suzanne Wright, grandparents of an autistic child named Christian. Bob Wright was the vice chairman of General Electric as well as CEO and chairman of NBC Universal from 2001 to 2007.
    [Show full text]
  • Testimony of Amy S.F. Lutz President, EASI Foundation: Ending Aggression and Self-Injury in the Developmentally Disabled March 13, 2017
    Testimony of Amy S.F. Lutz President, EASI Foundation: Ending Aggression and Self-Injury in the Developmentally Disabled March 13, 2017 My name is Amy Lutz, and I am the president of EASI Foundation: Ending Aggression and Self-Injury in the Developmentally Disabled, a non-profit that supports autistic and other intellectually disabled individuals with dangerous behaviors and their families. First of all, thank you so much to the members of the Committee for including me in this critical conversation concerning the Commonwealth's most vulnerable citizens. 1 am particularly grateful that this hearing was still held even though ODP has already revised its proposal to force waiver recipients in day programs to spend 75 % of their time in fully integrated settings - a regulation whose virtually unanimous opposition was the catalyst for today's meeting. It would have been so easy for the Committee to thank ODP for its quick response - for which the agency should be commended - and to cancel this hearing, considering the matter resolved. But there is still a massive disconnect between the ideological policies of ODP and the needs and preferences of those with I/DD and their families that demands your attention, and - I hope - your intervention. Consider the fact that this 75% rule was floated in the first place, even though the exact same requirement was included in the initial draft of New Jersey's State Transition Plan. Surely, ODP could not have missed the massive protests from individuals with disabilities, their families, advocates, providers and legislators that forced the state's Division of Developmental Disabilities to submit a significantly revised STP just this past December removing this requirement, among other changes.
    [Show full text]
  • Autism in the US: Social Movement and Legal Change Daniela Caruso Boston Univeristy School of Law
    Boston University School of Law Scholarly Commons at Boston University School of Law Faculty Scholarship 2010 Autism in the US: Social Movement and Legal Change Daniela Caruso Boston Univeristy School of Law Follow this and additional works at: https://scholarship.law.bu.edu/faculty_scholarship Part of the Education Law Commons Recommended Citation Daniela Caruso, Autism in the US: Social Movement and Legal Change, 36 American Journal of Law and Medicine (2010). Available at: https://scholarship.law.bu.edu/faculty_scholarship/571 This Article is brought to you for free and open access by Scholarly Commons at Boston University School of Law. It has been accepted for inclusion in Faculty Scholarship by an authorized administrator of Scholarly Commons at Boston University School of Law. For more information, please contact [email protected]. AUTISM IN THE US: SOCIAL MOVEMENT AND LEGAL CHANGE Boston University School of Law Working Paper No. 10-07 (March 23, 2010) Daniela Caruso This paper can be downloaded without charge at: http://www.bu.edu/law/faculty/scholarship/workingpapers/2010.html DANIELA CARUSO AUTISM IN THE US: SOCIAL MOVEMENT AND LEGAL CHANGE 36 AMERICAN JOURNAL OF LAW AND MEDICINE __ (2010) Abstract - The social movement surrounding autism in the US has been rightly defined a ray of light in the history of social progress. The movement is inspired by a true understanding of neuro-diversity and is capable of bringing about desirable change in political discourse. At several points along the way, however, the legal reforms prompted by the autism movement have been grafted onto preexisting patterns of inequality in the allocation of welfare, education, and medical services.
    [Show full text]
  • More Positive Autism Young Blogger Asks Age Old Question
    It saddens me everyday to see that the ABA “advocates” want to make this a zero-sum game: either you’re an absolute ABA supporter or you “swim with the dolphins.” It should be extremely frightening to society at large to hear parents call their children useless, or to think that ABA and institutions are the only options for autistic people. It is even sadder when a Globe and Mail reporter doesn’t do her research to either get her facts right, or to get the very important other side of the story from autistic people and the many parents like me who just wants my son to go to school and be allowed to receive the accommodations he requires – whatever they may be at different points throughout his life. PERM ALINK POSTED BY ESTEE KLAR-WOLFOND AT 11/22/2006 11:33:00 PM 7 COM M ENTS LINKS TO THIS POST WEDNESDAY , NOVEM BER 15, 2006 More Positive Autism I'm about to go away for a few days and may not post to my blog. I find I'm at a loss for words these days, which is a sure sign I need to retreat, be alone, collect my thoughts. In the meantime, for Toronto viewers, I've posted a little more "positive autism," and I hope that people will figure out that no matter what level of "functioning" we can surely all learn from each other. It's like what Jonathan Lerman says, a man who at ten was still completely mute, who is learning to speak more and more today, going on nineteen years of age: "There's no such word as can't." And you don't have to be a Nobel Laureate either! Vernon Smith, Nobel Prize Winner & Autistic, PERM ALINK POSTED BY ESTEE KLAR-WOLFOND AT 11/15/2006 12:11:00 PM 6 COM M ENTS LINKS TO THIS POST THURSDAY , NOVEM BER 09, 2006 Young Blogger Asks Age Old Question To cure or not to cure, that is the question.
    [Show full text]
  • Reactions from IMFAR 2017
    Spectrum | Autism Research News https://www.spectrumnews.org NEWS Reactions from IMFAR 2017 BY CLAIRE CAMERON 9 MAY 2017 13 May 2017: Day three Shafali Jeste Associate professor of psychiatry and neurology, University of California, Los Angeles Encouraging collaboration: “I returned home from the meeting feeling inspired and invigorated by the research being done in autism across a wide spectrum of development (from early infancy to adulthood) and investigative domains (from cognitive neuroscience to implementation science). What makes this meeting particularly special is that individuals with incredibly diverse backgrounds, areas of expertise and perspectives are all unified by the common goal of better understanding autism. The meeting provides an opportunity for cross-talk between investigators who may otherwise never meet, and gives trainees and junior faculty direct access to senior scientists and clinicians.” Neural circuits: “This year, I was particularly struck by the strength in neuroscience, especially around imaging and electrophysiological biomarkers in early infancy. These studies clearly demonstrate that disruptions in brain development occur well before behavioral signs emerge, reinforcing the potential for even earlier detection of risk and initiation of interventions. Some common themes that emerged at this meeting include the need for multidisciplinary investigations integrating brain and behavior; strategies for data-sharing to improve sample sizes, especially in rare populations; and standardization of methods used
    [Show full text]
  • Autism Spectrum Disorders: What Every Parent Needs to Know Consistent with the Most Recent Advice and Information Available from the American Academy of Pediatrics
    li.rpert Guidance From the American Academy of Pediatrics UTISM SPECTRU M DISORDERS What Every Parent Needs to Know EtJIIORS ALAN I. R osENBLATT, MD, FAAP PA UL s. CARBONE, MD, FAAP WITH WINNIE Yu American Academy of Pediatrics DEDI CATED TO THE J-I EALTH OF ALL C HI LDREN" e Also Available From the American Academy of Pediatrics Common Conditions Guide to Toilet Training* ADHD: What Every Parent Needs to Know Heading Home With Your Newborn: From Allergies and Asthma: What Every Parent Birth to Reality Needs to Know Mommy Calls: Dr. Tanya Answers Parents’ Top My Child Is Sick! Expert Advice for Managing 101 Questions About Babies and Toddlers Common Illnesses and Injuries New Mother’s Guide to Breastfeeding* Waking Up Dry: A Guide to Help Children Newborn Intensive Care: What Every Parent Overcome Bedwetting Needs to Know Raising Twins: From Pregnancy to Preschool Developmental, Behavioral, and Your Baby’s First Year* Psychosocial Information CyberSafe: Protecting and Empowering Kids Nutrition and Fitness in the Digital World of Texting, Gaming, and Food Fights: Winning the Nutritional Social Media Challenges of Parenthood Armed With Insight, Mental Health, Naturally: The Family Guide to Humor, and a Bottle of Ketchup Holistic Care for a Healthy Mind and Body A Parent’s Guide to Childhood Obesity: The Wonder Years: Helping Your Baby and A Road Map to Health Young Child Successfully Negotiate the Major Nutrition: What Every Parent Needs to Know Developmental Milestones Sports Success Rx! Your Child’s Prescription for the Best Experience
    [Show full text]