Dementia Australia Annual Report 2017-2018

Dementia Australia Annual Report Bringing all the 2017–18 dementias together Dementia Australia is registered as Dementia Australia Limited About ABN 79 625 582 771 ACN 607 890 317 Our Patrons this Annual His Excellency General The Honourable Sir Peter Cosgrove AK MC (Retd), Report Governor-General of the Commonwealth of Australia This report highlights Dementia Australia’s progress and achievements, including its financial statements, Her Excellency the Honourable Linda Dessau AC, throughout 2017– 18. Governor of Victoria Her Excellency, the Honourable Marie Bashir, Dementia Australia was established on 18 October Governor of New South Wales 2017 when the federation of Alzheimer’s Australia became Dementia Australia Limited. During the first Dr Valerie Asche AM, Patron in Northern Territory quarter of the 2017–18 financial year, the Federation Dr Don Aitkin AO, Patron in Australian Capital of Alzheimer’s Australia continued operation whilst in Territory transition to forming the new national peak body. Ambassadors For the purposes of this document all activity is referred to as Dementia Australia activity unless Lyn Allison reporting requirements demanded otherwise. David Astle We welcome your feedback on this report and any Natarsha Belling of the activity reported. Christine Bryden Email: [email protected] or call Ita Buttrose AO OBE 02 6278 8900 Ben Crocker Terence Donovan Takaya Honda Amy Jackson Sam Mitchell Andrea Nicolas Jessica and Lisa Origliasso, The Veronicas Sir Michael Parkinson CBE Anne Phelan OAM Sue Pieters-Hawke Mark Seymour Nicola Stevens Denis Walter OAM The Hon. John Watkins AM Pat Welsh Doris Younane To read more about our Ambassador Program visit https://www.dementia.org.au/ambassadors ISSN 2652-0931 © Copyright 2018 Dementia Australia The cover image was taken at the Dementia Australia 17th Biennial National Dementia Conference, October 2017 at Melbourne Convention and Exhibition Centre to commemorate the launch of Dementia Australia and the unification of the Federation of Alzheimer’s Australia. Photo: Darren James. Caption: The Bondi2Berry Ride to Remember, our biggest national community fundraising event, drew 60 riders in September 2017. Natarsha Belling, Channel 10 newsreader and Dementia Australia Ambassador was there to wish them luck. Natarsha is with Bondi surf lifesaver Andrew Reid (left), project leaders Pierre Sullivan and Nick Young and chef Jason Roberts. Bringing all the dementias together Who are we? Our history Dementia Australia is the national peak body for Dementia Australia was officially launched in people, of all ages, living with all forms of dementia, October 2017 as the new voice of Alzheimer’s their families and carers. Australia, a unified national peak body for people of all ages, living with all forms of dementia, their What do we do? families and carers. • We represent the more than 436,000 Australians From a grassroots community of passionate carers living with dementia and the estimated 1.2 million around Australia, we have evolved into the leading involved in their care. organisation providing a voice for people impacted • We work with individuals and families, all levels of by dementia. We have offices in regional and rural government, and other key stakeholders to ensure Australia, as well as in all the capital cities. that people of all ages with all types of dementia, as well as their families and carers, are Our vision appropriately supported – at work, at home An inclusive future where all people impacted by (including residential aged care) or in their local dementia receive the care and support they choose. community. • We are an important advocate for those impacted Our purpose by dementia and, due to our close engagement To transform the experience of people impacted by with people impacted by dementia, we provide dementia by elevating their voices and inspiring input on policy matters and identify service gaps. excellence in support and care free from • We draw on our expertise to collaborate with a discrimination. wide range of stakeholders including researchers, technology experts and providers. Our values • We provide support services, education and • Diversity and Equality information aimed at addressing the gaps in • Respect and Inclusiveness mainstream services. • Integrity and Accountability Dementia Australia is a member of Alzheimer’s Disease International, the umbrella organisation of dementia associations around the world. Dementia facts and figures What is dementia? Dementia describes a collection of symptoms that are caused by disorders affecting the brain. It is not one specific disease. Dementia affects thinking, behaviour and the ability to perform everyday tasks. Brain function is affected enough to interfere with a person’s normal social or working life. It is essential that a medical diagnosis is obtained at an early stage when symptoms first appear, to ensure that a person who has a treatable condition is diagnosed and treated correctly. If the symptoms are caused by dementia, an early diagnosis will mean early access to support, information, and medication should it be available. Caption: The National Carillon in Canberra was lit up in teal for World Alzheimer’s Day in 2017. Photo: Maddie Manning. 4 DEMENTIA AUSTRALIA Annual Report 2017 –2018 Contents Key statistics An estimated 436,000 Australians are living with dementia and nearly 1.2 million people are involved in their care.1 In the absence of a medical breakthrough, it is predicted there will be 1.1 million Australians living with dementia by 2058.1 In 2018, dementia was estimated to cost Australia more than $15 billion. By 2025, the total cost of dementia is predicted to increase to more than $18.7 billion in today’s dollars, and by 2056, Key achievements 6 to more than $36.8 billion.2 A message from our Chair 7 Dementia is Australia’s second A message from our CEO 8 leading cause of death overall, and the leading cause of death A message from the Chair of the of women.3 Finance and Investment Committee 9 Dementia Australia Advisory Dementia affects almost 50 Committee Report 10 million people worldwide, and that number is predicted to Dementia Australia: A Business Plan 11 increase to 131.5 million people • Unification: A Single Entity 12 by 2050.4 • Centre for Dementia Learning 14 Every three seconds someone in • The value of strategic partnerships 16 the world develops dementia.4 • Fundraising 17 Alzheimer’s disease is the most common form, but there are more • Strategic Direction – development 18 than 100 diseases that may cause 17th Biennial National Conference 20 dementia.5 Our organisation 22 Memory Walk & Jog 28 1. Dementia Australia (2018). Dementia Prevalence Data Our technology 46 2018–2058, commissioned research undertaken by NATSEM, University of Canberra. Our thanks 50 2. The National Centre for Social and Economic Modelling NATSEM (2016) Economic Cost of Dementia in Australia 2016–2056 3. Australian Bureau of Statistics (2017) Causes of Death, Australia, 2016 (cat. no. 3303.0) 4. Alzheimer’s Disease International https://www.alz.co.uk/ about-dementia 5. Dementia Australia https://www.dementia.org.au/ information/about-dementia/types-of-dementia Caption: Students from East Brunswick Primary School with the banner they made to raise awareness during Dementia Awareness Month 2017. Photo: Darren James. Annual Report 2017 –2018 DEMENTIA AUSTRALIA 5 Key achievements • Throughout the unification process we ensured the continuity of support for people living with dementia, their families and carers. • We secured overwhelming support from stakeholders all over Australia to change the organisation name from Alzheimer’s Australia to Dementia Australia to more accurately reflect that support, advocacy, information and education is available for people of all ages living with all forms of dementia. • We established the Dementia Australia Centre for Dementia Learning as the leading national provider of dementia practice education in Australia. • We delivered our first national Memory Walk & Jog campaign, with 10 flagship and 34 DIY walks across the country, and more than $1.2 million raised. • We delivered our annual Dementia Awareness Month campaign, ‘You Are Not Alone’, which resulted in more than 400 media stories and 60 events around Australia. • We developed a suite of technology using virtual reality, interactive video games and apps to transform dementia care and practice recognised by national and international awards (see page 46 for details). Auctioneer Nigel Spoljaric from Pickles Auctions takes bids on a work at The Eclectic Perspective exhibition and auction of artwork created by people living with dementia held in Canberra in May 2018. The event features works by participants from the Dementia and the Arts program. Its aim is to provide art opportunities to every person in the ACT living with dementia. 6 DEMENTIA AUSTRALIA Annual Report 2017 –2018 A message from our Chair • being a more nimble, agile, and responsive organisation able to deal with the rapidly changing landscape, and strategically working towards The year 2017– 18 has long-term sustainability; been an extraordinary • streamlining our operations, embedding achievement for us as an consistency, ensuring nationally informed decision- organisation with significant making and efficiency; decisions made about our • increasing our capacity to secure financial support, future direction. This inspiring increased donations and improving our financial year Dementia financial sustainability; and,

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