New Support Group for the Emotional Side of DNA Discoveries
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Q&A With Gina Daniel Severance speaks with Gina Daniel, DSW, LCSW, whose personal experience—her discovery that she’s an NPE (not-parent- expected)—has redirected her professional goals, putting the spotlight on the challenges and needs of individuals with misattributed parentage experiences. She recently earned her doctorate, her dissertation a study of the NPE experience, and she’s working to help create awareness among mental health professionals and improve their knowledge about the specific needs of people who’ve discovered misattributed parentage.Did your upbringing influence your desire to be a social worker and if so, in what way? I expected to become an elementary teacher growing up and had no idea what social work was until I was in my 20s. However, once I discovered social work, I knew that was what I needed to do. My upbringing was full of moments when I was a little social worker (counseling, advocating, and educating) but I did not know it until later. I was raised by a single father who worked hard to be sure we could pay the rent. All the moms in the neighborhood helped to raise me. You were already a social worker and well into your doctoral studies when you decided to change the topic of your dissertation. Can you explain why you chose to align your scholarly interests with your NPE experience? I was. That was quite the detour. I trust my gut with most everything I do. I could not find a way to study school social work (my profession) in a way that felt interesting to me. Once the NPE event happened, I brought it to my committee and they helped me determine that this was the path that fit better for me. Knowing there was little to no scholarly research at that time was a huge attraction to me as well. I agreed and was willing to do the extra work. How, specifically, did you design your thesis—what were you looking to discover and how did you propose to accomplish that? I knew I would do interviews for qualitative research. The idea of secrets kept was fascinating. Also, the impact that this discovery had on me and how off balance I felt at middle age got me interested in the impact on identity. The obvious path was discussing the impact on family of origin relationships—living or deceased and on the new family relationships—living or deceased. You interviewed 51 people. Can you describe those interviews—how you selected subjects and what the interviews involved? I was a part of one of the private NPE Facebook groups that agreed to work with me then backed out. Another Facebook group offered assistance then stalled. Finally, a woman who was starting another NPE Facebook group offered to assist. I was a member but did not participate for a long time. The process was an advertisement of the study and a link for those interested. The criteria for interviews included having discovered paternity through a direct-to-consumer DNA Ancestry test, living in North America, being over 18. The first round of interviews was in the fall of 2019, the second round of interviews was in the fall of 2020. Unfortunately, the first round interviews were not used in the final study. It’s a complicated story but every one of those interviews mattered significantly to me and, interestingly, my findings were the same. The interviews were incredible. People were so willing to share their personal stories, so interested in helping other NPEs, and were so vulnerable and lovely. I feel incredibly lucky to have shared some time with all of these amazing individuals. Can you summarize your overall findings? To summarize my research, there appears to be a significant psychological blow to participants discovering paternity/family secrets through a direct-to consumer (DTC) DNA ancestry test. There’s a struggle to incorporate the new information. Half of the participants in my research sought mental health counseling in order to cope. Personal identity is changed as a result (incorporating new family, concerns with previous family, health issues, and ethnicity changes); resemblance to family is a significant component within this experience; participants prefer the truth over not having the truth (despite the emotional difficulty); and social supports (e.g. Facebook groups) are helpful and after a certain point appear to become a ‘pay it forward’ place. In my research I called this ‘healing through helping.’ You’d already had an NPE experience, and although it was relatively new, you’d had some time to process your emotions. Was there anything revealed in the interviews that surprised you? I had time to process and discussed with a therapist as well. The similarities in the emotions that most people shared mirrored my experience. I was surprised at the sense that some of this felt universal—deception, lies, shock/surprise, understanding, hurt—and all mostly at middle age. What, if anything, would you describe as universal in the experience of your interviewees? Similar emotions that erupt suddenly when the discovery is learned and then occasional eruptions of the same emotions, maybe less intensely, over time. Also, the idea that almost everyone feels alone at the beginning of this process—as if they are the only ones going through this. If you had to choose the top three most difficult challenges or most difficult emotional issues experienced by NPEs what would they be? Shock/surprise, anger, and feeling alone. Also the rejections from new family that happen for many. Can you give an overview of the kinds of issues NPEs have with respect to identity and what are some strategies for dealing with them? To be completely honest, I don’t feel I went as deeply as I should have for the identity questions. When I asked questions about if identity changed, the vast majority said yes. When I pressed the “yes” responses further with “how,” I was often met with pause in thought. However, ethnicity and health information were the most often described areas where identity shifts occurred. Seeking information about new family was necessary in order to understand more about self. I included resemblance into this section as this topic came up so often in interviews as related to not looking like family of origin, then looking like new family, children looking like new grandfathers, etc. As far as strategies, I don’t think I have any to offer based on what was provided through the research outside of have a professional genetic counselor or mental health professional to talk with while processing these complex shifts. This is a complex, multi-part question. I’ve noticed that for many NPEs, this experience seems to become central, becoming almost the centerpiece of their identity and front and center in their lives in an ongoing way. Is there a danger in that—in lives being overtaken in a sense by this experience? Like with many things, it depends on how much it impacts your functioning in your typical life. I’m not sure how it can not become a central feature of a life when so much of what you’ve known about yourself is upended while doing a recreational activity. For some, how do you reconcile trust again after this occurs? What can individuals do to help integrate the experience so it’s not overwhelming and doesn’t come ultimately to define them? So, it can be overwhelming and create a new definition of themselves. However, the idea is that it is now an expanded definition. You are what you were and what you now know. It’s realizing that piece, I think, that’s helpful as people process the losses and grievances along the way with this experience. Is there an end goal of assimilating this experience, or will it always be front and center? In my opinion, assimilating is the goal. What we cannot control, we cannot control. People may not choose to have us in their lives, and we have no option but to accept that. People may be deceased, and we get no answers to the questions we have about our existence. We again have to find a way to accept that. These are not easy tasks, but to remain in a place of anger and sadness only steals your life from you. Many NPEs belong to support groups on Facebook and perhaps elsewhere. Can you comment on the benefits and also the limitations? There are significant benefits belonging to a healthy group of people sharing similar experiences with something brilliant to offer us in the way of hope, support, or suggestion when needed. This is what it is to be a social human finding your ‘tribe.’ However, the limitations are when professional help is needed and people use Facebook—or when people on Facebook want to be professional mental health professionals doling out advice and are not qualified. You wish to help educate mental health professionals about how to better treat NPEs. What are the biggest needs in that education? Awareness of this experience to start with. Therapists are trained to work with clients with issues related to grief, loss, shame. What are they lacking that prevents them from being able to better help NPEs? We all hope the therapists we work with understand how to work with grief, loss, and shame, but judging from my research, many NPEs seeking mental health help were met with flippant comments minimizing their experiences. That tells me that perhaps they are not viewing this experience from the lens of grief, loss, and shame. The impact of secrets on families is an area to understand more, as well as all the ways an individual can become an NPE.