Annual Report ‘11

annual ‘11report We are leaders in the worldwide MS movement, mobilizing millions of people to do something about MS now.

Table of Contents

1 Chairman’s & President’s Letter 12 Volunteers

2 Creating a world free of MS 13 Chapter Financials

4 Chapter Programs and Services 14 Donors

7 Research 19 Clinical Partners

8 Advocacy 20 Leadership

10 Development 21 Contact Us

Flags of Hope, MS Awareness Week National MS Society, greater NEW ENGLAND CHAPTER » ANNUAL REPORT ‘11

Chairman’s & President’s Letter The Greater New England Chapter and the National MS Society will continue to gain momentum toward a world free of multiple sclerosis.

Dear Friends, This Annual Report covers the 2011 fiscal year, beginning October 1, 2010, and ending September 30, 2011. It reports on Chapter finances, mission activities, and fundraising efforts during that time. Beyond the numbers, this report reflects the dedication and loyalty of our professional staff, volunteer leadership, generous donors, event participants, event volunteers, and corporate sponsors. The MS community in Maine, Massachusetts, New Hampshire, and Vermont is a strong and loyal network of individuals who have multiple sclerosis, plus their family members and those who care about them, and those moved by the cause. The success of the Greater New England Chapter is driven by everyone in that community giving as much as they can in time, talent, and resources, and in reaching out to their personal and professional networks to garner support for the movement. Together, our four states raised more than $10.7 million, which reflects a sustained high level of fundraising over the last six years. The Greater New England Chapter has a proud history of generously funding MS research. Our FY2011 contribution of $1.63 million to the national research effort of $40 million is notably larger than would be expected given the population size of our territory. This is a testament to the commitment of our donors, staff, and volunteer fundraisers, who communicate the need for research funding. It is that commitment that will help the Society achieve its “MS Now” $250 million research funding goal by 2015, championed by Phil Keoghan from The Amazing Race, to stop disease progression, restore function, and end MS forever. To help people address the challenges of living with multiple sclerosis, during FY2011 the Chapter offered dozens of community-based programs providing MS education, support, and advocacy across all four states. These programs focused on a broad scope of topics, ranging from information for those who are newly diagnosed to self-help groups for those who have been living with MS for many years. Home LINKS and financial assistance offered crucial direct services that enabled individuals and families affected by MS to overcome limitations imposed by the disease. And, the MS Scholarship awards provided $54,500 in support to 28 first year college students. Thank you for contributing to our shared success! We look forward to our continued partnership in fiscal year 2012 as we move closer to a world free of MS. Sincerely,

Robert Shapiro Arlyn A. White Chairman of the Board President & CEO

1 join the movement @ msnewengland.org join the movement

Creating a world free of MS.

What is MS? Multiple sclerosis, an unpredictable, often disabling disease of the central nervous system, interrupts the flow of information within the brain, and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, but teenagers and even young children can have multiple sclerosis. At least two to three times more women than men are diagnosed with the disease. MS affects more than 400,000 people in the U.S., over 2.1 million worldwide. The Causes are Unknown While the exact cause of MS is unknown, it is believed that MS is an autoimmune disease where the immune system attacks the myelin and underlying nerve fibers in the central nervous system. Scientists do not yet know what triggers the immune system to do this. Most agree that several factors are involved, including genetics, gender, and environmental triggers that have not yet been identified. The National MS Society MS can stop people from moving forward in their lives. The National MS Society exists to make sure it doesn’t. Our vision is a world free of MS. The Society mobilizes resources to address the challenges of each person affected by MS by funding cutting- edge research, driving change through advocacy, facilitating professional education, collaborating with MS organizations around the world, and providing programs and services designed to help people with MS and their families move their lives forward. In fiscal year 2011 (October 1, 2010 to September 30, 2011), the Greater New England Chapter spent 85 percent of monies raised in Maine, Massachusetts, New Hampshire, and Vermont on MS education, support, advocacy, services, and research for 18,000 individuals and their families affected by multiple sclerosis. The Chapter is governed by a dedicated volunteer Board of Trustees who provide leadership and who work in partnership with a committed professional staff to advance the Society’s mission.

2 National MS Society, greater NEW ENGLAND CHAPTER » ANNUAL REPORT ‘11 join the movement

We Support Research Chapter donors have seen their contributions launch scientific progress that has provided the springboard for breakthroughs in understanding MS and developing new treatments and measures to improve quality of life. Prior to 1993, neurologists had no therapeutic options for MS. Now, a range of therapeutic options have become available to people with multiple sclerosis and there are more and more emerging therapies on the horizon. We support scientific research aimed at stopping disease progression, restoring function and ending MS forever.

We Partner with MS Clinical Centers Chapter members are familiar with the caring eyes and optimism of the many highly-skilled physicians and other health professionals treating people who have multiple sclerosis. We promote access to comprehensive, coordinated medical care and we know these care providers are making a difference. We support one another to make progress in the movement to create a world free of MS. We count on them to end the effects of MS now. They count on us to spread awareness and to raise funds to support their work.

We Educate, Support, and Advocate for those with MS The Chapter is a reflection of the families who have been touched by MS. We meet them at educational programs and fundraising events. We see them at MS clinical centers. We talk to them over the phone, minutes after their diagnosis and throughout their lives. We honor the promise of the National MS Society to provide these families with help for today and hope for tomorrow.

3 join the movement @ msnewengland.org Programs and Services We develop, deliver and leverage resources to enhance care for people with MS and quality of life for those affected by the disease.

The Greater New England Chapter spent over $4 million in FY2011 to provide the highest quality MS education, support, public policy advocacy, and direct services to people throughout Maine, Massachusetts, New Hampshire, and Vermont. More than 4,888 people with MS, their families, friends, and health professionals attended 122 community-based programs. In addition, 428 people benefited from direct services, such as financial assistance and care management, and 2,527 individuals requested information about MS and referrals to community resources. The Greater New England Chapter stands among the leaders in the National MS Society and in the disability community in setting the standard for serving people with MS and related disabilities. MINORITY OUTREACH The Chapter serves actively in the Mayor’s Health Task Force in Lawrence, Mass., marketing the Spanish language Café con Leche telephone series. Our Multicultural Outreach Council planned two successful educational and social programs for African-Americans with MS in the Boston area. The first, attended by 67 individuals, was a half-day luncheon conference in May at the Franklin Park Golf Course. It included a variety of peer-led discussions, and two feature presentations: The African- American Experience with MS by Guy Buckle, MD, and Strategies for Making Programs & Services Every Day Easier, by Amy Alaniz, OT. The second program was in September at Ask the Experts Online the Dimock Center in Roxbury. It attracted 27 individuals, and included dinner College Scholarships and three peer-led discussions. The Minority Outreach Council continues to meet Dora Lipcon Lending Library monthly to plan educational, family, and outreach activities in Greater Boston, Lawrence, and Springfield, Mass. Education Programs MS REACH Emotional Support MS REACH creates awareness of MS and the National MS Society. It provides Employment Support information and support for people with MS and their family members, identifies Family Support local needs, and engages underserved communities. Vermont implemented Financial Assistance two meet-and-greet opportunities with Self-Help Groups in Newport and St. Albans. In Aroostook County, Maine, we participated in a large lunch-and-learn Home LINKS Care Coordination at The Aroostook Medical Center (TAMC), attended by 250 community members Information and Resources and TAMC employees. We also staffed an information table at the TAMC Keep S’myelin Kids Newsletter Community Health Fair. The Sweet Social Meet and Greet program later that day Kids Get MS Too in Aroostook County was attended by 20 people. Future plans include engaging local volunteers to assist with resource investigation in Aroostook County. Knowledge is Power MS Learn Online teleconferences: regional and collaborative: In FY2011, Chapter members engaged in 11 teleconferences, three “Ask MS REACH the Employment Expert’ small group conference calls, and three general Newly Diagnosed Programs education teleconferences: Vitamin D with Sylvia Christakos, PhD, UMDNJ, Partners in MS Care Reproductive Issues in MS with June Halper, APN-C, MSCN, FAAN, and CCSVI Peer Support & Self Help Groups in MS: The Update with Costantine Balashov, MD. Regionally, there were two teleconferences on Progressive MS: Overview of Progressive MS with Dorothy Physical Wellness Northrop, MSW, ACSW, and the “Ex-Rated” Guide to Living with MS with Shelley Professional Education Peterman Schwarz. There were six additional employment teleconferences: Public Policy Advocacy How to Apply for Jobs in the Federal Government, Social Security Disability Eligibility Quarterly MSConnection Newsletter and Application Process, Social Security Disability and Returning to Work, Jobs with Flexibility, Practical Tips for Managing Challenging MS Symptoms on the Job, and Teen InsideMS Wellness & Work. Teleconferences are recorded and can be accessed through the Social and Recreation Programs Lending Library or directly from www.MSnewengland.org.

4 National MS Society, greater NEW ENGLAND CHAPTER » ANNUAL REPORT ‘11

Educational Program Highlights • Living Well with MS: (Concord, NH) Participants engaged in research and treatment presentations, a wellness EXPO, and roundtable discussions on travel, care partnering, spirituality, cognition, and spasticity. (Collaboration with MS Clinic of N.H.) Retirement Planning Red Flags - How to prepare for the risks: (Waltham MA) presented by Nathaniel Tilton, a partner at Tilton Sturman Financial in Waltham, and a frequent volunteer guest speaker for the Chapter. • Maine Wellness Expo: (Waterville, ME) a day to explore dimensions of health and well-being with an MS-focused wellness expo and an exciting array of workshops discussing strategies for living well, including staying physically fit, a nutritious diet, and recreational activities, such as adapted biking, skiing, and accessible gardening. • Relationship Matters - 8 Hours to a Lifetime of Relationship Satisfaction: (Bar Harbor, ME) addressed the needs of couples living with MS through effective communication and listening, problem solving and conflict resolution, breaking old patterns, and managing relationships proactively. The program was facilitated by David Rintell, EdD, Family Psychologist at Partners MS Center, MetroWest MS Clinical Care Center, and Partner’s Pediatric MS Center at MassGeneral Hospital for Children. • Newly Diagnosed Social and Educational Events: Diagnosed social and educational events held in all four states offered education on MS, treatments, and living well for people diagnosed in the last five years. Attendees connect with others experiencing the same issues and questions. • Complementary & Alternative Therapies in MS Treatment: (Springfield, MA) with Dr. Allen Bowling, Director of the Complementary and Alternative Medicine Service at Colorado Neurological Institute (CNI) and Clinical Associate Professor of Neurology at University of Colorado. • MS: Living Now and Looking Forward: (Springfield, MA) Neeta Garg, MD of UMass Memorial MS Center, Worcester, spoke on emerging therapies. William Goodman, PsyD of Southern Vermont Comprehensive MS Center in Bennington, Vt., presented on cognitive changes and living now with MS. And, Audrey Cecil, LICSW of Partners MS Center at Brigham & Women’s Hospital in Brookline, Mass., led a workshop about family and caregiver concerns. Kids Get MS Too In FY2011, we implemented four programs for 27 Pediatric MS families, including seven families new to the Society: Holiday Bowling, a Providence Bruins game & luncheon, A Day at Fenway, and Family Camp. Five teens “aged-out” of the program; however, several attended as mentors. The Kids Get MS Too Planning and Outreach Council, composed of three parents, two kids/teens, a young adult with MS, two Society Staff members, and David Rintell, EdD of the Partners Pediatric MS Center, plans and helps implement programs, plus facilitates outreach for Pediatric MS activities with the Chapter. Annual Meeting Conference and Stanley F. Waterman lecture Series The 2011 Annual Meeting Conference & Stanley F. Waterman Research Lecture was attended by 500 people at simultaneous meetings via audio and video in Auburn, Maine; Marlborough, Mass.; Meredith, N.H.; and Killington, Vermont. The 22nd Annual Waterman Research Lecture featured four outstanding speakers, one in each state. Dr. Mark Freedman, Professor of Medicine in Neurology at the University of Ottawa, and Director of the Multiple Sclerosis Research Unit at the Ottawa Hospital General Campus, spoke in Marlborough, MA about stem cell based therapies. Dr. Nick LaRocca, VP of Health Care Delivery and Policy Research at the National MS Society, presented in Auburn, ME on improving quality of life for those with MS through avenues other than new treatments. Dr. John Randolph, a neuropsychologist in Lebanon, NH, who completed a National MS Society Postdoctoral Fellowship, spoke in Meredith, NH on cognitive functioning in MS. Dr. Lloyd Kasper, Professor of Medicine (Neurology), Microbiology, and Immunology at Dartmouth Medical School, and Director of the Dartmouth-Hitchcock Multiple Sclerosis Clinic, presented “B cells and T cells in MS” in Killington, VT. Scholarships $54,500 was awarded to 28 college-bound students who have MS or have a parent with MS. Awards ranged from $1,000 to $3,000. Caitlin Lowell of Portland, Maine, received a National Top Scholar Award that automatically qualifies her to apply for additional scholarships for another three years of undergraduate study.

5 join the movement @ msnewengland.org Professional Education MS Update 2011 Planned and implemented by our volunteer Clinical Advisory Committee, MS Update 2011 educated neurologists and neurology residents on the complexities of medical decision making when providing care for individuals with MS. Held in Cambridge, Mass., and attended by 40 neurology residents and neurologists from the northeast, the conference offered approved continuing medical education credits, and highlighted an expert MS clinical faculty presenting topics such as differential diagnosis, neuroimaging, and treatment decisions. Caitlin Lowell (L), with her mother Medical Student Clinical Fellowship To address the growing need for neurologists National Top Scholar in the US, the Chapter awarded four-week clinical fellowships to three students, who completed their first year at Tufts, Boston Univ., and UMass medical schools. Fellows observe MS specialists in seven Comprehensive MS Care Centers in Greater Boston. Greater New England Regional MS Center Collaborative Meetings Comprised of MS Clinical Center health professionals, the Collaborative comes together to learn about and discuss topics commonly addressed at interdisciplinary MS care settings. Topics included the different MS center models of care and the management of spasticity. These meetings continue to provide valuable information and updates, plus important networking and sharing of best practices. Janet Pearce Nurse Training Program Chris Perrone Medical Student Fellow In collaboration with the New York City/Southern New York Chapter, the Janet Pearce Nurse Training program in Marlborough, Mass., attracted 100 nurses. The expert faculty consisted of nurses, physicians, mental health providers, and rehabilitation professionals, who practice in MS care settings. The course provided nursing continuing education credits, plus lectures and workshops for nurses in two tracks: those new to caring for MS patients, and those who provide advanced MS care. Meeting the Needs of those with Progressive MS Home LINKS is the Chapter’s short-term care management program that promotes enhanced quality of life and independence. After an initial home assessment, the client and care manager jointly develop goals to access information, services, and benefits to create safe, independent living. In FY2011, Home LINKS served 117 individuals chapter-wide, and increased the number of care managers in Vermont and Maine. B.Fit! Wellness Program This collaboration with The Boston Home continues to be strong and productive. B.Fit! is a structured day program that incorporates wellness, socialization, and cognitive stimulation for people with Progressive MS. In FY2011, The Boston Home completed an extensive renovation to improve the B.Fit! physical facility. To accommodate the anticipated growth to 40 participants, a part-time activity assistant will aid the full-time program director. Sonya Slifka Residence Located in the Leonard Florence Center for Living, in Chelsea, Mass., all 10 rooms at the Sonya Slifka Residence are occupied, and as of September 2011, three additional individuals with MS were residing nearby in the facility. Residents are very satisfied and grateful for the opportunity to live at the Residence. They plan and participate in monthly outings for shopping, dining, and more, including a skydiving adventure! Financial Assistance Programs The Chapter awarded direct financial assistance and home modifications grants totaling $224,881 to 416 clients in Maine, Mass., N.H., and Vermont. This is a 17 percent increase over FY2010. The top categories of assistance were: home modifications, in-home personal care assistance, homemaker services, and durable medical equipment.

6 National MS Society, greater NEW ENGLAND CHAPTER » ANNUAL REPORT ‘11 Research We are a driving force of MS research and treatment to stop disease progression, restore function, and end MS forever.

The National Multiple Sclerosis Society is the largest private sponsor of MS research in the world. This year saw exciting research progress, with involved in triggering immune attacks in people with MS, unprecedented opportunities on the horizon and more leading to clues to ending MS through prevention. scientists than ever working on important questions. We are committed to freeing the world of multiple Several emerging therapies continued to advance through sclerosis by supporting and funding research activities the pipeline, including several large-scale clinical trials spanning all research stages, including early discovery focusing on progressive MS. Progress was also made research, translational research that brings promising toward the crucial goals of finding ways to restore ideas forward into actual therapeutic solutions for testing, function and improving quality of life, and toward and clinical trials. To accomplish this goal, we have addressing specific MS symptoms through exercise, established a goal to raise an additional $250 million for meditation, rehabilitation and medications. And our research efforts by 2015. understanding of factors that influence whether a person develops MS deepened this year, bringing us closer to Currently, National MS Society research restricted dollars finding ways to prevent the disease. are funding 46 research projects, fellowships, and Health Care Delivery studies currently active in our chapter The National MS Society continues to propel research territory with a total multi-year funding commitment of forward with a comprehensive research strategy to stop almost 22 million dollars. These projects are generating disease progression, restore what’s been lost, and end MS knowledge and new hope for stopping disease activity, forever. In 2011, the Society provided nearly $40 million repairing the nervous system, and preventing multiple (including $1.63 million from the Greater New England sclerosis forever. Chapter) to support over 375 new and ongoing projects, including everything from discovery research to the Society’s commercial drug development efforts through Fast Forward. This brings our total research investment to over 760 million dollars to date. New projects launched include clinical trials testing novel approaches to protecting the nervous system from MS damage; studies of adult stem cells and natural molecules that may stimulate repair of the nervous system to restore function; research on better treatments for symptoms; Our Research Goal: We are a driving and studies on viruses and intestinal bacteria that may be force of MS research and treatment to: STOP: We must stop all disease activity LOCAL RESEARCH AWARDS and prevent further progression for STOPPING THE DISEASE people already living with MS 27 Research Grants $13,732,976 RESTORE: We must restore all function that has already been lost to nervous 11 Post Doctoral Fellowship $2,447,199 RESTORING WHAT’S BEEN LOSTsystem damage from MS 8 Health Care Delivery/ END: We must work to completely Policy Contracts $5,697,476 eradicate MS and prevent it from ever ENDING MS FOREVER occurring in the future u Total $21,877,651

7 join the movement @ msnewengland.org

We are activists. Linda Bossi, Sarah Jacoby , Linda Guiod, and Arlyn White at the U.S. Capitol.

Advocacy Activism changes lives. MS activists drive public policy by making their voices heard and sharing their stories with public officials. In Maine, Massachusetts, New Hampshire, and Vermont, 28 Government Relations Committee (GRC) volunteers help define priorities, and engage in legislative, regulatory, and private sector advocacy. MS Awareness Week in March afforded us a unique opportunity to educate lawmakers about the disease and its impact on their constituents. We joined forces with the National MS Society Public Policy Office in Washington D.C. to advance federal priorities as well. Our chapter delegation attended the Society’s 19th Annual Public Policy Conference in Washington D.C. and met with congressional members to advocate for the Adult Day Achievement Center Act, Improving Access to Neurological Care and increased MS Research Funding through the Congressionally Directed Medical Research Program (CDMRP). Despite the continuing economic downturn facing state and federal government, our success has resulted from a strong grass-roots network and partnerships with health and disability organizations. Volunteers making a Difference. The Chapter has more than 6,500 registered activists in the MS Action Alert Network ready to contact federal and state officials to urge support for priority issues. The Chapter is also proud of the role that MS activists are playing beyond the Chapter through their appointments to local disability commissions, advisory boards, work groups, and councils. Judy Hallam from New Hampshire was awarded the Governor’s Accessibility Award in July at the State House during a celebration of the twenty-first anniversary of the Americans with Disabilities Act (ADA). Ken Jones, NH GRC chair and board of trustee member was inducted into the NMSS Volunteer Hall of Fame for Advocacy. Maine Highlights The Chapter secured a Governor’s proclamation and House and Senate resolutions designating the second week in March as MS Awareness Week in Maine which coincided with an MS advocacy event held in the State House’s Hall of Flags. A new Government Relations Committee was busy learning about the political landscape, exploring potential collaborative partners, identifying unmet needs, tracking the implementation of federal health care reform measures and identifying options to improve accessible transportation. Massachusetts Highlights The chapter preserved $75,000 in the FY’12 state budget for the Chapter’s Home LINKS care coordination program. Chapter staff continued working with coalition partners on the Lifespan Respite Care Grant to recognize family caregivers and to develop a respite resource guide for caregivers throughout the Commonwealth. The GRC- proposed change to the state building code that would require power door openers in public buildings was

8 National MS Society, greater NEW ENGLAND CHAPTER » ANNUAL REPORT ‘11 We develop and align human, business and financial resources to achieve breakthrough results. approved by a sub-committee of the Architectural Access Board. This is an important step to improving access to public buildings in the state. Chapter representatives presented testimony on bills related to out of pocket cost of prescription drugs, genetic privacy, spousal Medicaid waiver, and the accessible housing bond bill. We also hosted a legislative breakfast to present our public policy issues and distributed a Multiple Sclerosis Resource & Policy Directory to all state legislators. In response to Executive Order 530, a chapter designee was appointed to the Governor’s Commission for the Reform of Community, Social Service and Paratransit Transportation Services in the Commonwealth. The report of the commission will be released in the spring of 2012. New Hampshire Highlights We had several advocacy successes in New Hampshire in fiscal year 2011. The GRC collaborated with the Department of Motor Vehicles, the Governor’s Commission on Disability, local parking enforcement, and other groups to continue to advance public awareness of the parking laws and the rights of individuals with walking disabilities. In February, the chapter held our first MS Awareness event at the State House in conjunction with the Governor’s Commission on Disability. MS advocacy was the topic of a Manchester cable TV show during MS Awareness Week. The chapter was successful in ensuring access in the Medicaid program for all MS disease modifying treatments. A key volunteer served as a leader to shape the direction and implementation of the NH Lifespan Respite Care Grant. Vermont Highlights The Vermont GRC held a successful MS Awareness day at the Capitol which included the introduction of the chapter advocates on the House floor. Advocates also participated in Disability Awareness Day and the Statewide Independent Living Council legislative breakfast at the capitol. The chapter presented testimony on the landmark single payer bill that became law and AARP’s Complete Streets legislation was also enacted into law. The GRC began to partner with other disability organizations to identify mechanisms to improve accessibility and enforcement standards in Burlington. The GRC served as the most prominent advocacy voice in the need to prohibit specialty tiering in prescription drug plans which resulted in a one- year moratorium on this practice by health insurers.

Judy Hallam receiving NH Advocacy Award

9 join the movement @ msnewengland.org Development Highly motivated and dedicated staff, volunteers, and donors generate substantial financial resources to be used in the fight against MS.

The Chapter organized and implemented a wide range of successful fund raising activities to generate $9.9 million. Large- scale events such as Walk MS, Bike MS, and Challenge Walk MS were complemented by Marathon Strides Against MS, Women on the Move, Fashion Plates Luncheon, Link Up for MS Golf Tournament, MileStones Gala, Wine & Dine for MS, Savor the Flavors, Harborfest, Plane Pull and the MS Auto Rally. Additional events included MS Night at POPS, MS Invitational Golf Tournament, Boston Volvo 5k Road Race, and our first stair climb, Climb to the Top: Boston. Bike MS $3.61 million Close to 3,700 riders joined forces to raise money and increase awareness while participating in the eight rides that made up the 2011 Bike MS season. In the 2011, we added a new one-day ride in beautiful Bar Harbor Maine. The new bike MS Ride Bar Harbor extended our bike MS into northern Maine and added to our offering of destination events. Bike MS showcases the beauty of New England with rides on the island of Martha’s Vineyard, Cape Cod, Maine, Vermont, New Hampshire and the Berkshires. Walk MS $2.67 million Close to 15,000 walkers participated in Walk MS at 47 locations throughout Maine, Massachusetts, New Hampshire and Vermont. In addition to newly added walks in Maine and Vermont, our new fall walks were additions to our calendar. Walk MS is not just a fund raising event; walk is about community and rallying around those living with MS. MS Challenge Walk $1 million The tenth annual MS Challenge Walk brought together an incredible group of more than 500 walkers to journey 50 miles over three days on Cape Cod. Over 325 three-day crew and one-day volunteers supported this effort. Highlights from the weekend included an emotional candlelight ceremony that bonded walkers, crew, and volunteers; dramatic weather throughout the weekend and an exuberant finish in Hyannis. Marathon Strides Against MS $345,658 The 2011 MSAMS Team not only met the challenge of running the Boston Marathon® but was once again the event that had our highest fundraising per participant. This is no small task when you realize the Team was made up of 75 runners. The Team included 60 Invitational numbers provided by the B.A.A. and 15 runners that either qualified to run Boston or obtained their numbers from other sources. Each runner is required to raise a minimum of $3,250, the highest minimum requirement for of any of our events. MileStones $389,613 The MileStones Gala honored The Lipcon & Palmer Family with the MileStones in Philanthropy award and honored R.J. Kelly Company with the Corporate MileStones Award. The event had over 325 people and was held at the Sheraton Hotel Boston with entertainment provided by David Osmond. Golf $196,255 Link Up for MS: We hosted over 20 foursomes Ipswich Country Club. MS Invitational Golf: TA Associates Realty hosted 36 foursomes at the Woodland Golf Club. Van Houten Invitational Golf: The Van Houten family hosted the event at the Concord Golf Course. MS Harborfest $85,536 This three day event started with a Benefit Auction held at the Portland Yacht Services in Portland, Maine. On Saturday, sixty-nine sail boats competed in the Sailboat Regatta. Sunday finished off the weekend with both Lobster Boat Races and a ugT Boat Muster.

10 National MS Society, greater NEW ENGLAND CHAPTER » ANNUAL REPORT ‘11

Women on the Move Luncheons $64,220 Fashion Plates: Close to 350 people gathered at the Boston Sheraton Hotel to view a fashion show featuring women with MS modeling the latest fashions from Ports & Co. Women on the Move, Maine: Over 240 guests joined us for a presentation by David Osmond. Endurance Events $202,929 Boston Volvo 5K Road Race: Once again the National MS Society was honored to return as the charity of choice for the 13th annual Boston Volvo 5k Road Race. This Thanksgiving tradition brought more than 1,300 runners from around the city, state and country to raise money and awareness for MS. Ray Ciccolo, owner of Village Automotive Group, not only hosted and sponsored the event, he ran along with everyone, starting from the front row. Runners were welcomed to the event by Ray Ciccolo and a member of the chapter’s board of trustees, Anthony Everett. Climb to the Top – Boston: Over 125 participants climbed the 61 floors of the Hancock Tower with the top racer finishing in less than eight minutes. Falmouth Road Race: Over 25 participants competed in this half marathon in Massachusetts.

community fundraising Many ambitious members organize private fundraising events to benefit the Chapter. These events engage family, neighbors, and professional colleagues in supporting our mission. Thank you to the community fundraisers: • Adam Pinkney • Jaime DeSousa • Molly McGowan & • Annamarie Wright • Janice Portlock & Maddie Poirier • Ashley Caceres & Carol Gates • Nancy Reardon Jordan Edwards • John Paolilli Sr. • Patty Thorpe • Christine Basiliere • Justin Roberts • Robert O’Brien • Christopher Duncan • Kathy DeLuca & • Sadi Khan • Danika Ulrich-George Tanya Kimball • Steve Tempesta • Diversifed Project • Katie Parker • Tara Lee Thomas Management • Lise Lavoie • Tracy Bolduc • Edie Simister • Mary Acre • Eric Web • Melissa Cyr & Total Raised Kevin Fowler • Garrett Clark $163,897

11 join the movement @ msnewengland.org Volunteers We mobilize the talents and resources of people who want to do something about MS.

The Greater New England Chapter depends on volunteers to help create a world free of MS. Nearly 5,500 volunteer positions were filled in Fiscal Year 2011, totalling 60,000 hours. In 2011, there were 62 individuals in Chapter Leadership roles, that ranged from participating as a Chapter Trustee to chairing various committees. There were 4,203 volunteers, who helped at 65 different fundraising events. Chapter Programs utilized 1,082 volunteers, who served as Self Help Group Leaders, Government Relations committee members, MS Ambassadors, speakers, Clinical Advisory Committee members, Direct Services volunteers, Peer Support Volunteers, and many other positions. There were 639 volunteers who participated in the MS Champions program. The Greater New England Chapter is grateful for all of the volunteers who helped move us forward during 2011. Without our relentlessly positive volunteers, who give so freely of their time and talents, the Chapter could never accomplish its goals.

National MS Society Volunteer Hall of Fame 2011 Inductees The National MS Society’s Volunteer Hall of Fame is a place reserved for outstanding individuals who have given themselves entirely to create a world free of MS. The Greater New England Chapter is very well represented there with now 16 members. This year, three more exemplary individuals were added to that hallowed hall.

Funding the Mission Advocacy Health Professionals Barbara Green has demonstrated Ken Jones contributes tremendous Peter Riskind, MD, PhD of UMass an extraordinary and longstanding leadership and dedication to Memorial Medical Center provides commitment to fundraising and to advocating on behalf of people outstanding service and leadership leadership in moving others on with multiple sclerosis at the state, in improving programs and services behalf of people with MS. federal, and local levels. for people with MS, and for enhancing professional education about MS for other care providers.

12 National MS Society, greater NEW ENGLAND CHAPTER » ANNUAL REPORT ‘11 Chapter Financials Eighty-five percent of monies raised directly supported the Society’s mission.

Bike MS 35% Challenge Walk 10% National Client Special Programs Programs Events 15% Walk MS 27% 14% 26% Research Contributions 17% Community 12% Programs 11%

Fundraising Public Other Legacies Grants 11% Education Revenue >1% >1% 11% 2%

Administration Other Professional 3% >1% Educational 4% revenue expenses Walk MS $2,694,478 Research $1,638,906 Bike MS $3,612,062 National Programs $1,471,200 MS Challenge Walk $1,018,662 Client Programs (ME,MA, NH & VT) $2,585,760 Special Events $1,478,139 Community Programs $1,041,334 Contributions $1,221,988 Public Education $1,018,877 Government Grants $87,500 Professional Education & Training $359,476 Legacies $64,667 Other Expenses $1,184 Other Revenue $212,746 u Total Revenue $10,390,242 Administration $337,413 $1,097,395 Less Benefit to Donor -$1,169,761 Fundraising Transfer from Reserves $331,064 u Total Expenses $9,551,545 Net Total Revenue $9,551,545 Net of Benefit to Donor

Complete, audited financial statements are available on request.

13 join the movement @ msnewengland.org Donors

We are grateful to all of our friends who support the Greater New England Chapter of the National Multiple Sclerosis Society through their energies, talents, and gifts. This list represents those who have made individual contributions of $1,000 or more to our Annual Fund, our fundraising events, or in honor or in memory of another. Again, thank you for this significant outpouring of assistance. We could not continue to move forward without your participation!

Golden Circle premier $25,000+ leader $5,000 - $9,999

ffMs. Claudia Goldin ffBAE Systems Employee ffMassachusetts Department of Community Fund Public Health ffCommunity Health Charities of ffMr. & Mrs. Robert Keeley Maine ffMr. Robert L.W. McGraw & ffMr. Steve Berkson Mrs. Elizabeth H. McGraw ffMr. & Mrs. Douglas Bryant ffMr. & Mrs. Alfred A. Slifka ffMr. & Mrs. Louis Caputo ffMr. & Mrs. Richard Slifka ffMs. Christine Carberry ffThe Barbara Epstein Foundation ffMr. Gary Carlston ffThe Claudia & Steven Perles ffMr. & Mrs. Clark Chandler Family Foundation ffMs. Barbara Clews ffThe Donald McGraw Foundation ffMr. John E. Crowley ffYawkey Foundation ffDr. & Mrs. David Dawson ffMr. Michael Delaney visionary $10,000 - $24,999 ffMr. Edward DeNoble

ffAnonymous ffMr. & Mrs. Joseph Fallon ffMs. Margaret Bostrom ffHelaine & Milton Goldenberg ffMs. Jan Brett & Mr. Joseph Hearne ffMs. Barbara Green & ffCamp Burt-Tetlow Foundation Mr. Dan Rattner ff ffCharles Hill Anderson Trust Ms. Mimi Jigarjian ff ffMr. Ani D. Chitaley Mrs. Charlotte Kaitz ff ffDr. & Mrs. Martin J. Cohen Mr. Stephen L. Kaufer ff ffMr. & Mrs. Arthur J. Collias Ms. Lynne Lipcon ff ffCommunity Health Charities of Marjorie W. Sloper Charitable New England Foundation ff ffMr. & Mrs. David Gladstone Mr. David Mittelman ff ffMr. & Mrs. Peter Galligan Nehemias Gorin Foundation ff ffMr. & Mrs. Leif Jacobsen Mr. Eric R. Olander ff ffIBM Employee Services Center Mrs. Barbara R. Palmer ff ffMr. Jonathan S. Lavine Mr. Maurice Samuels ff ffMr. & Mrs. Eli Lipcon Mr. & Mrs. Ronald Schram ff ffMaine Community Foundation Ms. Terre Tadsen ff ffMr. & Mrs. Shawn Martin Dr. & Mrs. Francis X. Van Houten ffMedical Information Technology Inc. champion $2,500 - $4,999 ffThe Hon. & Mrs. Mitt Romney ffMs. Amy Avergun ffMr. & Mrs. Eli Rubenstein ffMr. Alex Blavatnik ffMr. Barry Sternlicht ffBoyle Transportation ffMr. & Mrs. Paul Van Houten ffMr. Richard Brooks, Jr.

14 National MS Society, greater NEW ENGLAND CHAPTER » ANNUAL REPORT ‘11

ffMr. Richard F. Connolly, Jr. ffAnna Jaques Hospital ffMr. Steven Connolly ffMr. James Fournier ffMr. & Mrs. Michael Curtin ffMr. Peter Antico ffMs. Mimi Coppersmith ffMr. Michael Foy ffMr. & Mrs. William Curry ffMr. Peter Arden ffMrs. Vasilili Condakes ffMr. Neville D. Frankel ffMr. & Mrs. Michael Davis ffMs. Brenda Barbour ffMs. Jennifer Z. Conway ffMrs. Mildred Freeman ffMr. Lyle Fulkerson ffMr. Steve Barnes ffMs. Amy B. Cook ffMr. Edward F. Gagne ffJan & Tom Fuller ffBarrington Foundation ffMr. Frank Corcoran ffMr. George M. Galvin ffMr. & Mrs. Robert Garty ffMr. Julius Baskys ffMs. Marg A. Corjay ffMr. James Gancarz ffMr. Paul D. Goodhue ffMs. Gale Beaton ffMs. Judy Cornell ffMr. Dimitri Georgakopoulos ffMs. Jean Goulden ffMs. Camilla Bennett ffMr. Daniel J. Correira ffMs. Elizabeth Gershun ffMr. Mike Gross ffMrs. Amy Berube ffMs. Madeline G. Corson ffMr. Duncan Gilkey ffMs. Teresa Hacunda ffMr. Kenneth Bickford ffMs. Adrienne A. Cote ffMrs. Karen Godoy ffMs. Jennifer Hansen ffMr. Eric R. Binkowski ffMr. William G. Coughlin ffMrs. Kathleen M. Goeben ffMs. Barbara Jordan ffMs. Syndi Blatt ffMs. Denise Cronin ffMs. Leslie Gold ffJordan L. Shapiro Trust ffMr. Robi Blumenstein ffMs. Lori J. Cross ffMr. Steven Goldstein ffMr. & Mrs. Robert Kearney ffMr. Harry Blumenthal ffMr. William Cummings ffMr. David Grabel ffMr. & Mrs. Robert Keeley ffMr. James Bolger ffMr. Joseph Curran ffMr. Robert B. Grant ffMs. Lisa Kennedy ffMs. Rosemarie Boucher ffMr. Donald Cutler ffMr. Bruns Grayson ffMr. Jacob Lipcon ffMrs. Sally A. Boyer ffMr. Mark S. Cyker ffMr. Matthew Greif ffMr. Richard Mason ffMr. Steven C. Boyle ffMr. Daryl C. Dawson ffMr. Bob C. Grieshaber ffMr. & Mrs. Michael Mingolelli ffMrs. Deborah Bozzuto ffMr. & Mrs. Gregory DeBor ffMs. Heather Griffin ffMr. Paul Montrone ffMr. Don Brewer ffMr. Thomas Dee, Jr. ffMs. Patricia Griffin ffMount Desert Island High School ffMs. Carliss Brown & ffMrs. Kathleen De Luca ffMs. Jennifer Grunbeck Mr. Randolph Hawthorne ffMr. David Murray ffMr. Stephen Demirjian ffMr. William E. Hall, Jr. ffMr. Dale K. Brown ffMs. Karen Nichols ffDr. Ginger Dickerson ffMs. Deborah S. Hallenbach ffMrs. Marleigh Brown ffMr. Michael Olafsson ffMr. Michael T. Dobbs ffMr. Frank Halusca ffMr. Dan Browne ffMr. John Overbay ffMr. Robert Doman ffMs. Melanie A. Hanson ffMrs. Susan Burlone ffMr. Charles Palmer ffDr. Graca Dores ffMiss Rochelle B. Harp ffMs. Susan J. Butler ffMrs. Ginny Perron ffMr. Albion Drinkwater ffMs. Christine A. Harris ffMr. Bernard Byrnes ffMr. James Pinard, Jr. ffMr. Arthur X. Duffy ffMr. Kevin R. Harrop ffMs. Fridel Byrnes ffMr. Timothy C. Quill ffMs. Betty J. Dupree ffMrs. Nancy Haugen-Thomas ffMs. Barbara W. Callahan ffMr. Stanley J. Riemer ffMr. Steven R. Duval ffMs. Phyllis T. Hawkins ffMr. Dale Carleton ffRobert Reiser & Co., Inc. ffMs. Candace Dyal ffMr. Mark Healy ffMr. Larry Castellani ffDr. Edgar W. Robinson ffMr. Paul Edgerley ffMs. Carmela Heedles ffMr. Steve D. Catalano ffMr. Daniel E. Rothenberg ffDr. Maria Ellis ffMr. Timothy P. Henry ffMr. Frank D. Catrickes ffRoy A. Hunt Foundation ffMs. Alice H. Evans ffMs. Susan Hennessey ffMrs. Susan E. Chaisson ffMr. & Mrs. Robert Shapiro ffMr. Paul Fallisi ffMs. Gretchen Herault ffMs. Fay M. Chandler ffMr. & Mrs. Frank Stieger ffMs. Joy M.Farr ffMr. Robert J. Hickey ffMr. Stephen E. Champagne ffMr. John Sviokla ffMr. John Ferriss ffMr. Ian D. Highnet ffMr. Amit Chandra ffThe Roth Family Foundation ffMs. Ivy Feuerstadt ffMs. Nina Horner ffMs. Lea Chapin ffUnited Way of Mid-Maine ffMs. Frances P. Field ffMrs. Margaret C. Houlding ffMr. & Mrs. S. Woodworth Chittick ffMr. Robert S. Finley ffMr. Brian Houle pacesetter $1,000 - $2,499 ffMr. Paul Ciampa ffFire and Iron Motorcycle Club ffMr. John N. Howard ffMr. Oded Aboodi ffMr. Emilio Ciasullo ffMr. David Fischer ffMs. Patricia Howard & ffAir Products Foundation ffMr. Gerald J. Cimmino ffMr. Robert Flanagan Dr. Donald Logan ffMr. Joe Alexander ffMr. Harold Cohen ffMr. Jeff Fleece ffMrs. Joyce Hunt ffAlliance Data ffMs. Ann B. Colony ffMr. Todd M. Ingwersen

15 join the movement @ msnewengland.org

ffMs. Ellen Irvin ffMr. Mark D. Mandel ffMr. Brian Palmer ffMrs. Judith B. Schumacher ffMr. Mark Iverson ffMs. Emily L. Manville ffMs. Tara Pannell ffMr. & Mrs. Robert Scumaci ffMr. Brian Jadul ffMr. Philip W. Marks ffMrs. Ellen L. Parlee ffMr. Manhar C. Shah ffMrs. Rekha Jangi ffMarr Charitable Foundation ffMr. George Parlapanides ffShepherd Hill Regional High ffMr. Vladimir Jelisavcic ffMs. Pamela Mathews ffMr. Charles R. Parmele IV School ffBarbara Jenkins & Eli Kwartler ffMr. Paul Mathias ffMr. Nicholas Pascale ffMr. Stephen L. Sheldon ffMs. Rebecca M. Joldersma ffMathworks ffMr. Jonathan Penn ffMs. Willow B. Shire ffMr. Kevin C. Joler ffMr. Gerald McCarthy ffDr. Neil F. Petersen, Sr. ffMr. Donald Shulman ffMrs. Jennifer L. Joscelyn ffMr. Michael S. McGrath ffMr. David Phillips ffMs. Catherine Sibley ffMr. Robert S. Joseph ffMr. Kevin McGuirk ffMr. N. Paul Piccirillo ffMrs. Edie Simister ffMrs. Shannon Joy ffMs. Melanie M. McKinnon ffMr. Thomas Pimentel ffMr. Larry J. Simonds ffMr. Sam Judd ffMr. Steven J. McLaughlin ffMr. & Mrs. Richard Piotti ffMr. & Mrs. Michael Simpson ffMr. Donald Judson ffMr. Joseph J. McMullen ffMr. Peter A. Podgurski ffMr. Eric Slifka ffJoan & Frank Kaplan ffMs. Piper McNealy ffMr. Robert A. Poissant ffSouthern Indiana Orthopedics ffMr. Bob Kalinowski ffMr. Stephen McSweeney ffMr. Andrew T. Preas ffMr. James A. Sousa ffMs. Amy Kanyuk ffMr. & Mrs. William Mekrut ffMr. Timothy C. Quill ffMs. Rochelle Spielman ffMs. Julie Kelleher ffMs. Marcia R. Meltzer ffMs. Dianne Ranno ffMiss Laurie A. Stanley ffDr. John Kelley ffMrs. Lisa Milas-Kyriazi ffMr. & Mrs. Ralph Reinherz ffMrs. Catherine N. Stewart ffMr. Timothy Kelly ffMrs. Lee Miller ffMr. Wayne S. Reisner ffDr. Darryl Tannenbaum ffMr. William Keough ffMr. Barry Mintzer ffMr. Misael N. Reyes ffMr. Christopher Tashjian ffSenator John Kerry ffMs. Leanne Moore ffMs. Frances Richards ffMr. Matthew Tevelde ffMr. William J. Kingston, Jr. ffMs. Judith Moore ffMr. Michael W. Richmon ffTheta Xi Housing Corporation ffMr. John C. Knapp ffMr. John J. Morgan ffMr. Gerald Riedel ffThe Trustees Funds of Bethesda ffMs. Carole Knight ffDr. Vincent A. Morgan ffMr. Peter Riehl ffMs. Lori Thomas ffMr. Gene Kosman ffDr. Lynanne B. Morganstern ffMr. Alex Rigopulos ffMr. William D. Thompson ffMr. Demos Kouvaris ffMr. Benjamin Morris ffMr. Robert E. Riley ffMr. James J. Tiampo ffMr. Michael Krupka ffMs. Mary E. Morrison ffDr. Peter Riskind ffMrs. Josephine Timmons ffMs. Jill G. Lagace ffMs. Monica Moura ffMr. Alan Rockett ffMr. Keith Tracy ffMr. Paul LaRoche ffMr. Robert Mountain, Jr. ffMr. Jeffrey A. Rose ffMr. Michael R. Trotta ffMr. Dick Lee ffMr. Terry L. Murdock ffDr. Ronald N. Rosen ffUnited Way of Greater Nashua ffMs. Lorraine B. Leith ffJessica & Charles Myers ffDr. Stewart Rosen ffUnited Way of Greater Portland ffMrs. Terry Lindsey ffMr. Esteban Neely ffMr. Brian Rossi ffUnited Way of Pioneer Valley ffMr. Mathhew O. Littlefield ffMr. Ofer Nemirovsky ffMr. John M. Roth ffMr. Stephen Urquhart ffMs. Susan Lipstein ffNortheastern University ffMr. Terry W. Rothermel ffMr. Robert Uschold ffMr. John S. Llewellyn ffMr. Daniel O’Brien ffMs. Roberta L. Rubin ffVision Land Group ffMr. Paul S. Lowry ffMr. James E. O’Brien ffMr. William K. Russell ffDr. Vissia Viglietta ffMr. Richard A. Lozyniak ffMr. Mark O’Brien ffMrs. Elizabeth P. Rutherford ffMr. & Mrs. Edward R. Walter ffMr. Robert P. Luckey ffMs. Susan O’Brien ffMr. John C. Rutherford ffMr. James Ward ffMs. Maggie R. Lund ffMr. Ronald O’Kelley ffMrs. Joanne Sagansky ffMr. George F. Winfield ffMr. Walter E. Lynch ffMr. Fred Oliver ffMs. Laura L. Sanders ffMs. Arlyn A. White ffMr. Ronald T. Machakos ffMs. Anne Marie O’Reilly ffMrs. Eleanor Sandler ffMr. Stephen White ffMrs. Susan Madigan ffMr. Erich E. Orenchuk ffJeff & Lauren Sawyers ffMr. Robert Wellen ffMs. Joanne Magliozzi ffMs. Aideen P. O’Sullivan ffMr. Michael Schneider ffMr. Nathan Withington ffMr. Philip J. Mahoney ffMr. Timothy O’Toole ffMr. Barry A. Schiro ffMs. Julie Wolf ffMr. Michael Malchow ffMr. Jason M. Paine ffMr. Robert Schlager

16 National MS Society, greater NEW ENGLAND CHAPTER » ANNUAL REPORT ‘11

Tributes Event Sponsors ffSouth Shore Music Circus ffPoland Springs The Greater New England ffSpectrum Medical Group ffRide-Away bike ms Chapter of the National Multiple ffTeva Neuroscience ffSpectrum Medical Sclerosis Society is gratified to ffWachusett Brewing Co. ffWCVB TV 5 presenting sponsor receive many contributions in ffWCSH6 ffWhole Foods Cape Cod Getaway honor of, or in memory of more ffWMUR-TV9 than 2,000 individuals during challenge walk ms ffWorcester Telegram & Gazette fiscal year 2011. While space does ffEMD Serono & Pfizer ffCES, Inc. not permit us to acknowledge ff SAINT JOSEPH’S COLLEGE DJ Mark Watson of MAINE fashion plates all of these wonderful intentions ffDowneast Magazine presenting sponsor ff in this publication, please know EMD Serono & Pfizer Great Maine Getaway ffGerry No. 5 V.F.A.- that we do recognize the heartfelt ffiCapital, LLC Marblehead, MA ffABC22 emotion that goes into each of ffPorts & Company ffGreater Boston YMCA ffApplebee’s these gifts, and we thank you ffKnight Productions ffBack Bay Bicycle link up for ms for assisting our efforts while ffLaconia Savings Bank honoring those you care about. ffBar Harbor Bank and Trust ffEastern Bank Foundation Services ffLamey Wellehan Shoes ff Lucey Family ffMaplewood County Day Camps Bequests ffBartlett Orchards ffNew York Life The following is a list of those ffBerkshire Bike & Board harborfest ffNewburyport Five Cent Savings individuals whose estate gifts ffBiogen Idec ffBangor Savings ffPure Protein ffBlue Cross Blue Shield of provided for our mission-driven ffDisability RMS Vermont ffStonyfield activities. ffGlobal Partners ffBon Appetit ffSturdy Memorial Group ffGuy Amundsen, Sr. ffBrightroom ffSaco Biddeford Savings ffSubway ffCharles E. Marshall ffCape Cod Bagel ffVerrill Dana ffTim Hortons ff Mary Murray ff ffCo-operative Insurance ffWatson Enterprises Inc. WHOM 94.9 For information about making Companies ffWHSN a planned gift or becoming a ffCozy Harbor of Maine passes for ms ffWLBZ2 member of the Lawry Society, ffCreed Ice ffBiogen Idec please contact Jonathan Nierman ffCycleMania women on the move walk ms at 781-693-5150. ffData Associates luncheon maine ff ffEarl’s Fitness Cyclery EMD Serono & Pfizer ff Mission Possible ffEastern Mountain Sports Martin’s Point Health Care This club is for individuals who ffFantini’s Bakery ff22 News WWLP raised over $19,000, at least one ffGreylock Outdoors ffABC 22 WVNY Event Supporters dollar for every person who has ffHannaford ffAccorda MS in Maine, Massachusetts, ffHillside Lumber ffBigogen Idec and Elan milestones New Hampshire and Vermont. ffCarret Investment Counselors ffHonest Tea ffBioness ff2nd Half, Inc. ffNew England Rehabilitation ffBlue Cross Blue Shield of VT bike ms ffAccurate Glass & Aluminum, Inc. Hospital of Portland ffDaily Hampshire Gazette ffLiam Kennedy ffAdler Blanchard & Freeman, LLP ffOmnova Solutions ffData Associates ffSusan Martin ffAdvanced Fuel Solutions ffOrdinary Cycles ffDomino’s Pizza ffSumner Weeks ffAJ Rose Carpets & Flooring ffPowerBar ffGenzyme ffAlliance Energy, LLC ffPremier Education Group ffMurphy Sullivan Kronk walk ms ffArcadia Solutions ffPrice Chopper ffNovartis ffPamela Littell ffAtlantic Product Services, Inc. ffRaleigh ffPatients Like Me ffAtlantic Retail Properties ffREI ffPerewitz Cycle Fabrications

17 join the movement @ msnewengland.org

ffBernie & Phyl’s Furniture ffK-Sea Transportation In Kind donations ffFood Should Taste Good ffBerry, A Division of Suffolk ffLaw Office of Robert E. Factor bike ms ffHarry & Davids ffBest Petroleum ffLegends Furniture ffHonest Tea ffBartlett Farms ffBoston Herald ffMasko Corporation ffSalter School ffBianco Provisions Incorporated ffBowdoin Construction Corp. ffMcSweeney Painting ffBJ’s Corporate office walk ms ffCamin Cargo ffMintz Levin ffBlue Mango Foods ffAquafina Water (Coca Cola) ffCassidy Turley FHO ffMobile Software ffCape Cod Bagel ffCape Cod Potato Chips ffChapman Construction & ffMorrissey & Company ffCape Cod Chips ffEvery Little Breeze Catering Design ffMurray Hills, Inc. ffChappaqua Granola ffHonest Tea ffChestnut Hill Realty ffNAIOP Massachusetts, Inc. ffChobani Yogurt ffRegenie’s Pita Chips ffCommodore Builders ffNew England Sports Network ffClif Bar ffStarbuck’s Coffee ffCraftmaster Furniture, Inc. ffNIC Holding Corporation ffConstellation Wine ffSubway ffD.J. Cronin, Inc. ffNordblom Company ffCountry Kitchen/LePage ffTarget ffDanversbank ffNortheast Assoc. Bakeries ffWhole Foods Market ffDeSanctis Insurance Agency, Inc. ffNorthern Bank ffCozy Harbor ffDillon Energy ffOffice Resources, Inc. ffDippin Donuts marathon strides against MS ffDimensional Insight ff ffOffice Works ffFantini Bread Boston Bodyworker ffDiversified Project ffPackard Design ffFriendly’s Restaurant Management Media Sponsors ffParagon Top Sales, Inc. ffFrito-Lay ffDonahue & Associates, Inc. ffDaily Hampshire Gazette ffPeabody & Arnold, LLP ffGovernors Restaurant ffDrew Company ff100FM The Pike ffPinnacle Financial Group ffHannaford ffEastern Bank ff104.5 WXLO-FM ffR.J. Kelly Company ffHyannis Ice Cream ffElaine Construction ffTelegram & Gazette ffRaymond F. Bouley ffIrving/Circle K ffEMD Serono Landscaping, Inc. ffWCVB-TV5 Boston ffLarabar ffEmpire Recycling, LLC ffRichards, Barry, Joyce & ffWMUR-TV9 Manchester ffLite Life ffFarfaras & Son Plumbing & Partners, LLC ffWWLP-TV22 Springfield ffLongHorn Steakhouse Heating Co., Inc. ffRiemer & Braunstein, LLP ffABC22 Burlington ffMarket Fresh Produce ffGellatly & Criscione Services ffSalvatore Capital Partners ffTime Warner Cable Corp. ffMezza Luna ffSchnadig International ffWLBZ ffGeorge E. Warren Corporation ffPanera Bread Corporation ffWHOM 94.9 FM ffGlencore, LTD ffPepperidge Farms ffSealy ffOldies 104 ffGlobal Furniture USA ffPepsi Bottling Group ffSiena Engineering Group ffWHSN ffPittsfield Bus Company ffGlobal Partners, LP ffSpagnolo Gisness & ffPoland Spring ffGoulston & Storrs Associates, Inc. Chapter Programs ffPop Chips ffGrubb & Ellis ffStructure Tone, Inc. Corporate Sponsors ffGuardian Life Insurance ffThe Alter Group ffPremier Education Group ffAcorda Therapeutics Company ffThe Gutierrez Company ffPrice Chopper ffAstra Zeneca ffHolland & Knight ffThe Murphy Committee ffShaw’s Warehouse ffAvanir Pharmaceuticals ffInland Underwriters ffToscano & Ardito, CPA ffSt. Joseph’s College ffBayer ffInspectorate America Corporation ffU.S. Trust, Bank of America ffStarbucks ffBiogen Idec ffIntertek Private Wealth Management ffVineyard Cash N Carry ffBraintree Rehab. Hospt. ffItalia & Lemp, Inc. ffUBS Financial ffWachusett Brewing Co. ffEMD Serono ffJackson National Life Insurance Co. ffUS Storage Centers, Inc. ffGenzyme ffJofran, Inc. ffVision Maintenance, Inc. ms challenge walk ffBlue Diamond Almonds ffMedtronic ffJohn Galt Staffing, Inc. ffWachusett Mountain Ski Area ffCabot Creamery ffSpaulding Rehab ffJones & Bartlett Learing, LLC ffWB Engineers & Consultants ffCape Cod Potato Chips ffTEVA Neuroscience ffJP Morgan ffWells Fargo Bank ffCedars

18 We apologize for any mistakes or omissions, and ask that you contact us so that we can correct our records for future publications. National MS Society, greater NEW ENGLAND CHAPTER » ANNUAL REPORT ‘11

We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS.

Partners in MS Care The Chapter has partnerships with eight Centers for Comprehensive MS Care. Through these relationships we enhance the care and services available to people with multiple sclerosis.

Fletcher Allen Hospital Partners Multiple Sclerosis Center Multiple Sclerosis Center of at Brigham and Women’s Hospital Northern New England Boston, Massachusetts Burlington, Vermont Partners Pediatric MS Center at the Lahey Clinic, Inc. Massachusetts General Hospital for Children Multiple Sclerosis Clinical Center Boston, Massachusetts Lexington, Massachusetts St. Elizabeth’s Medical Center Mount Auburn Hospital Multiple Sclerosis Center Multiple Sclerosis Care Center Boston, Massachusetts Cambridge, Massachusetts UMass Memorial Medical Center Newton Wellesley Hospital Multiple Sclerosis Center Multiple Sclerosis Clinical Center Worcester, Massachusetts Newton, Massachusetts

19 join the movement @ msnewengland.org Leadership An outstanding group of key volunteers serve on the Chapter Board of Trustees and Clinical Advisory Committee to establish the Chapter’s goals and strategic direction, and to guide the staff as they deliver on the promise of the Society’s mission.

Executive Committee Trustees Trustee Council David M. Dawson, MD Melissa Frumin, MD, MS Robert E. Shapiro Adam J. Brodsky Charlene A. Antonellis Chairman Linda Buchwald, MD Clark Chandler Neeta Garg, MD, DM Research Advocate Arthur J. Collias Barbara Green, PhD Eli Lipcon Louis Caputo Robert A. DiPalma Eric Klawiter, MD, MSc Immediate Past Chair Christine A. Carberry James J. Dunlop R. Phillip Kinkel, MD Douglas E. Bryant Sue Ellen Epstein Douglas K. Clarke James R. Lehrich, MD 1st Vice Chair Neal F. Finnegan Nancy Lowenstein, ORT, David M. Dawson, MD S. Woodworth Chittick David Hatch BCN Vice Chair Jack Enright Albert J. Kaneb Sarah Minden, MD Anthony Everett William H. Keough Michael Moore, MD Mary E. Jalbert Vice Chair Joseph P. Fallon John Herbert Sullivan Steven Moskowitz, MD Lyle W. Fulkerson Marjorie Van Houten David Moultrup, MSW, Piper R. McNealy Elise G. Waterman LICSW Jan Fuller Vice Chair Howard L. Weiner, MD Peter Riskind, MD, PhD, Eli Rubenstein Peter A. Galligan Eric M. Wolf Immediate Past Chair Vice Chair Robert T. Garty, CFA David Rintell, EdD David A. Gladstone James E. Hoyes Arthur Safran, MD Treasurer Kevin C. Joler, CPA Clinical Advisory Lynne Stazzone, RN, NP Kenneth A. Jones Committees Richard E. Toran, MD Michael A. Mingolelli, Jr. John P. Weaver, MD Assistant Treasurer Robert Keeley Maine Howard L. Weiner, MD Joan Gordan Kaplan Brandon Kelly Paul Muscat, MD, Chair Clerk Liam Kennedy Biljana Beretich, MD Vermont Cathy MacPherson Douglas Buxton, MD Angela Applebee, MD, Chair Management Paige S. Magratten Lynn Howard, FNP Phil Aitken, MD Arlyn A. White Robin L. W. McGraw Howard Kessler, PhD Lainie Andrew, PhD President & CEO Amy R. Morse Thomas McOsker, SLP Sue Kasser, PhD, UVM Phil Morse, PhD Richard Kershen, MD Linda Guiod, RN, MSSMC John J. Neuhauser, PhD Kathryn Seasholtz, DO Yang Mao-Draayer, MD Executive Vice President of Mary C. Otis Chapter Programs, Services & James Stevenson, MD, PhD Sandra McGrath, APRN Advocacy Michael J. Patterson Alissa Towle, PT Janis Peyser, PhD Bob J. Picone Mary Otis, RN John Pierce Lori Espino Executive Vice President of Daniel M. Rattner Alexius Sandoval, MD Resource Development Kate Regal Ronald B. Schram Massachusetts and New Renee Shea Hampshire Vice President, Robert F. Scumaci Finance & Administration Ellen S. Lathi, MD, Chair Gail M. Kelly Sheehan Paula Bellin, MD Brenda Barbour Richard B. Slifka Linda Buchwald, MD Associate Vice President, Patricia A. Thorpe Guy Buckle, MD, MPH Volunteer Development Paul F. Van Houten Ann Cameron Cabot, DO Steve Sookikian Andrew Zimmon Claudia Chaves, MD Associate Vice President, Tanuja Chitnis, MD Communications

20 -This list is as of November 2011 National MS Society, greater NEW ENGLAND CHAPTER » ANNUAL REPORT ‘11

Chapter Headquarters 101A First Avenue Waltham, MA 02451-1115

Maine 74 Gray Road Falmouth, ME 04105

New Hampshire 1361 Elm Street, Suite 106 Manchester, NH 03101

Southeastern Massachusetts 3119 Cranberry Highway, Unit 5E East Wareham, MA 02538-4803

Vermont 75 Talcott Road, Suite 40 Williston, VT 05495-8122

1-800-344-4867 www.MSnewengland.org [email protected]

Facebook.com/MSnewengland YouTube.com/MSNewEngland Twitter.com/MS_newengland

21 Year MS Challenge W r 10 alke Ou rs