Young Adults' Views on Telemedicine Consultations for Sexual Health in Australia
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Young Adults’ Views on Telemedicine Consultations for Sexual Health in Australia Cameryn Claire Garrett Submitted in total fulfillment of the requirements of the degree of Doctor of Philosophy Centre for Women’s Health, Gender and Society School of Population Health The University of Melbourne January 2012 ABSTRACT Background Young people have high rates of sexually transmissible infections and face barriers to accessing sexual health services. It had been suggested that telemedicine could overcome these barriers. Method Two investigations were conducted: SHOUT: Young people’s (aged 16-24) pre-use views on telemedicine consultations for sexual health were investigated through a national online questionnaire in Australia. TESTme: Clients’ and key informants’ views on a year-long piloted telemedicine sexual health service, which offered telephone and webcam consultations, were examined through a questionnaire and interviews. Results SHOUT: 662 questionnaires were completed. If living close to a doctor, most young people prefer to have a sexual health consultation in person. If distance is a barrier, the majority prefer a telephone consultation. 23% were willing to have a webcam consultation with a known doctor (unknown doctor: 21%). If a genital examination was necessary, an in-person consultation was preferred. Men were more willing than women to have a webcam sexual health consultation. The main concerns about webcam consultations in the free text responses involved privacy and security, relating to the possibility of webcam consultations being recorded, saved, and potentially searchable and retrievable by others online. Reasons for and implications of these concerns for digital medical consultations are discussed, drawing on the theories of Boyd, Meyrowitz, and Nissenbaum. TESTme: Client numbers were much lower than expected: 25 rural youth aged 15-24 used the service. 18 returned the questionnaire, 4 were interviewed. All chose telephone consultations, giving as their main reasons: not owning a webcam, familiarity of the i telephone, convenience, and finding video confronting. Reasons for using the TESTme service instead of visiting a clinic were: access to a female nurse, convenience, confidentiality concerns, and cost. The eight key informants who designed and ran the service were interviewed. Their nominated reasons for low client numbers were lack of discussion with the service’s target audience, barriers to optimal promotion of the service, and young people’s inaccurate perception of risk. There was evidence that the clinicians’ “expert authority” underpinned the design of the service. Conclusion This is the first study to examine young adults’ views on telemedicine consultations for sexual health care, providing evidence to inform service development in an important area of public health. The results reveal that telephone consultations were a welcomed addition to in-person care. While only a subset of respondents was willing to have a webcam consultation, the service may benefit youth who might not otherwise access sexual health services. Rather than using the results to dismiss the use of webcam consultations, they are better understood as indicating the value of offering a variety of services to cater to heterogeneous needs. Webcam consultations may become more acceptable if privacy and security concerns are minimised. ii DECLARATION This is to certify that: (i) the thesis comprises only my original work towards the PhD except where indicated in the Preface, (ii) due acknowledgement has been made in the text to all other material used, (iii) the thesis is fewer than 100,000 words in length, exclusive of tables, maps, bibliographies and appendices. _________________________________________________ Cameryn C. Garrett iii PREFACE I woke up one morning in January 2008 feeling unwell. After an unsatisfactory diagnosis from a doctor in Melbourne, I decided to contact my family doctor in America. My doctor in the States knew me and my health history, and I trusted his medical expertise. I emailed him about my symptoms, describing my sore throat and deteriorating energy. In his email reply, he asked me to send him a digital photograph of my tonsils so he could better assess the situation. I sat at my desk in front of my laptop with its built-in webcam and experimented with how to photograph my symptoms. Finally, I angled the webcam and light so my tonsils were clearly visible and sent him the photograph, along with another picture taken by my webcam of the swollen glands in my neck. After examining the photographs, my doctor suspected I had glandular fever. His diagnosis was confirmed later that week after a blood test in Melbourne. Both my American doctor and I were impressed with how emails and digital photographs had sufficed for a consultation. While recovering, I continued to consult my doctor in America online for matters such as Ibuprofen dosage. It was comforting being able to speak to my family doctor, despite being thousands of kilometres away. While far from fancy, I had just participated in my first telemedicine consultation and I was intrigued by the possibilities. I have been interested in how the Internet can improve people’s health and wellbeing for several years. For my Master of Women’s Health dissertation, I examined the role played by an online support group in the lives of women with Androgen Insensitivity Syndrome, a type of intersex condition. The Internet has the potential to not only connect patients with doctors, but also to connect people with others who share similar medical conditions. Later in 2008, an opportunity arose to conduct research for my PhD about the use of telemedicine (specifically webcam and telephone consultations) to increase access to sexual health services. This project resonated with me both because of my personal favourable experience with telemedicine and because of my previous research on the Internet and health. A third factor influencing my interest in this project was that I was an international student. Living in Australia, on the other side of the world from my country of birth, I was acutely aware of the convenience the Internet allowed for communicating with people in different iv locations. Not only could I write an email to my family and friends in America that was sent nearly instantly to them, I could also use webcams to see their faces and feel closer to them. I wake up most mornings with an email from my mom asking me about my day and informing me of my family’s activities back at home. I use Skype to have webcam conversations with my family and friends frequently. Talking with my family and friends through webcams feels a lot more like talking to them in person than speaking with them by telephone. They can see me and I can see them. For example, when I move into a new apartment, I can take them around, room to room, on a virtual tour of my new place. They can comment on the furniture and the wall colouring. In a lot of ways it is like they are there with me. In my personal life, I had experienced how the Internet had profoundly changed the means by which people communicate with family and friends, and witnessed the ability for webcam to bring together people who are physically separated in a way never before possible. For my PhD research I was interested in investigating how similar technology could be used to alter and enhance the way we communicate with healthcare professionals. This thesis is composed of two research studies. The main study, titled SHOUT, was a national online questionnaire examining young people’s views on telemedicine consultations for sexual health. The second study investigated clients’ and key informants’ views on TESTme, a piloted telemedicine sexual health service in rural Victoria run by the Melbourne Sexual Health Centre. Chapter 1 is a literature review. In the chapter, I examine the barriers young people face to accessing sexual health services, explore the possibilities of online health, and provide an introduction to telemedicine. The whole TESTme study is described in Chapter 2. The methods of the SHOUT study are outlined in Chapter 3 and the results in Chapter 4. In Chapter 5, I examine why the acceptability of webcam consultations was low by drawing on the theories of electronic media and social behaviour, networked publics, and contextual integrity. In Chapter 6, I describe participants’ willingness to have webcam and telephone consultations by different key factors and explore whether there is a place for telemedicine in sexually transmissible infection (STI) care. Finally, in Chapter 7, I reflect on the findings from the research studies, draw together the threads woven throughout this thesis, and suggest implications for future research, policy, and practice. v ACKNOWLEDGEMENTS Thank you, Maggie Kirkman, for your invaluable guidance, wisdom, and support during my PhD. One could not ask for a better mentor. You have been an amazing supervisor and I feel so lucky to have you on my team. You have taught me so much and helped me to grow into a confident and able researcher. Thank you for your encouragement, for challenging me to produce research of the highest calibre, and for always being there to answer whatever questions I had or help solve whatever problems I came across. I also appreciate the guidance given by my other supervisors. Jane Hocking, thank you in particular for your assistance with the statistics. Christopher Fairley and Marcus Chen, thank you for welcoming me at the Melbourne Sexual Health Centre, for your help in designing and implementing the research studies, and your assistance with funding. I would like to thank Candice Fuller, James Unger, Jun Kit Sze, Mark Chung, and Afrizal Afrizal at the Melbourne Sexual Health Centre for their assistance with my research studies. Thank you as well to all the participants for their generous contributions of time. I was grateful to be awarded a Melbourne International Research Scholarship, a Melbourne International Fee Remission Scholarship, an Institute for a Broadband-Enabled Society PhD Top-Up Scholarship, a Harold Mitchell Foundation Travel Fellowship, and a Public Health Investing in Research Student’s Training Grant to undertake my doctoral research.