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Better Living with Chronic Obstructive Pulmonary Disease (COPD)

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Better Living with Chronic Obstructive Pulmonary Disease (COPD) Better Living with Chronic Obstructive Pulmonary Disease A Patient Guide Third Edition Better Living with Chronic Obstructive Pulmonary Disease A Patient Guide is a joint project of the Statewide Respiratory Network, Queensland Health and Lung Foundation Australia, COPD National Program. This work is copyright and copyright ownership is shared between the State of Queensland (Queensland Health) and Lung Foundation Australia 2016. It may be reproduced in whole or in part for study, education or clinical purposes subject to the inclusion of an acknowledgement of the source. It may not be reproduced for commercial use or sale. Reproduction for purposes other than those indicated above requires written permission from both Queensland Health and Lung Foundation Australia. © The State of Queensland (Queensland Health) and Lung Foundation Australia 2016. For further information contact Statewide Respiratory Clinical Network, Healthcare Improvement Unit, Clinical Excellence Division, e-mail: [email protected] and Lung Foundation Australia, e-mail: [email protected] or phone: 1800 654 301. For permissions beyond the scope of this licence contact: Intellectual Property Officer, Queensland Health, email: [email protected]. To order resources or to provide feedback please email: [email protected] or phone 1800 654 301. Queensland Health Statewide Respiratory Clinical Network and Lung Foundation Australia, COPD National Program – Better Living with Chronic Obstructive Pulmonary Disease A Patient Guide. ISBN 978-0-9872272-8-7 First edition published 2008, Second edition published 2012, Third edition published 2016. Better Living with Chronic Obstructive Pulmonary Disease A Patient Guide Foreword Chronic Obstructive Pulmonary Disease (COPD) is the second leading cause of avoidable hospital admissions. COPD impacts significantly on the day-to-day lives of people with the disease, their families and carers, and the health system. While there is no cure for COPD, there are many things people can do to improve their symptoms and therefore the quality of their lives. The Statewide Respiratory Clinical Network identified the need for standardised, evidence-based patient information to be available to people with COPD. In response to this need, a team of health care professionals experienced in providing care to Professor Christine Jenkins, AM, MD, FRACP, FThorSoc people with lung conditions compiled the original handbook in 2008. The original Chair, Lung Foundation Australia publication is now onto its Third Edition and has been reviewed and updated in Clinical Professor, University of Sydney Thoracic Physician, Concord Hospital line with current evidence-based best practice. The aim of this booklet is to provide useful information about how to live well with a chronic lung condition and offer practical advice about what people with COPD can do to improve their well-being. We hope this book will be a valuable resource for all people with COPD, their carers and health professionals, particularly those living in regional and remote areas. Queensland Health and Lung Foundation Australia are committed to supporting those with COPD to manage their condition and get the best they can out of life. This booklet is an important step to better living with COPD. Dr John Wakefield, Deputy Director-General, For access to this resource on-line, visit www.lungfoundation.com.au or for Clinical Excellence Division further information, call Lung Foundation Australia on 1800 654 301. ©The State of Queensland (Queensland Health) and Lung Foundation Australia 2016 I Acknowledgements Queensland Health and Lung Foundation Australia wish to James Walsh, Physiotherapist, acknowledge the efforts of all those involved in the development, The Prince Charles Hospital, Brisbane, QLD review and subsequent updates of Better Living with Chronic Robert Walton, Clinical Psychologist, Obstructive Pulmonary Disease A Patient Guide. Nambour General Hospital, Nambour, QLD Current Chair: Associate Professor Stephen Morrison Brett Windeatt, Respiratory Clinical Nurse, Former Chairs: Dr Chris Zappala, Professor Ian Yang Logan Hospital, Meadowbrook, QLD Statewide Respiratory Clinical Network, Queensland Michelle Wood, Physiotherapist, The Prince Charles Hospital, Brisbane, QLD Associate Professor Ian Yang, Thoracic Physician, 1st Edition Project Officers The Prince Charles Hospital, Brisbane, QLD James Walsh (Coordinating Author), Physiotherapist, 1st Edition Statewide COPD Clinical Network, The Prince Charles Hospital, Brisbane, QLD Queensland, Steering Committee Helen Seale, Assistant Director of Physiotherapy, Thoracic Reviewers Program The Prince Charles Hospital, Brisbane, QLD Judith Hart, Australian COPD Patient Taskforce Heather Allan, Director, COPD National Program, Associate Professor Christine McDonald, Lung Foundation Australia Respiratory Physician, Austin Hospital, Melbourne, VIC Simon Halloran, Physiotherapist, Vanessa McDonald, Clinical Nurse Consultant, Bundaberg Base Hospital, QLD John Hunter Hospital, Newcastle, NSW Dr Bill Scowcroft, Co-Chair, Australian COPD Patient Taskforce 1st Contributing Authors Myrna Wakeling, Talk Lung Care Support Group Robyn Cobb, Physiotherapist, The Prince Charles Hospital, Brisbane, QLD 2nd Edition August 2012 Project Officers Annette Dent, Respiratory Scientist, Pauline Hughes, Respiratory Nurse Practitioner, The Prince Charles Hospital, Brisbane, QLD Metro North Health Service District, Brisbane, QLD Mary Doneley, Social Worker, David McNamara, Respiratory Clinical Nurse Consultant, The Prince Charles Hospital, Brisbane, QLD Nambour General Hospital, Nambour, QLD Emily Gill, Dietician, James Walsh, Physiotherapist, Royal Brisbane and Women’s Hospital, Brisbane, QLD The Prince Charles Hospital, Brisbane, QLD Di Goodwin, Respiratory Clinical Nurse Consultant, Helen Seale, Assistant Director of Physiotherapy Thoracic Royal Brisbane and Women’s Hospital, Brisbane, QLD Program, The Prince Charles Hospital, Brisbane, QLD Kathleen Hall, Physiotherapist, Heather Allan, Director, COPD National Program, The Prince Charles Hospital, Brisbane, QLD Lung Foundation Australia Simon Halloran, Physiotherapist, Judy Henry, Project Co-ordinator, Lung Foundation Australia Bundaberg Base Hospital, Bundaberg, QLD Karen Herd, Dietician, Lead Reviewers The Prince Charles Hospital, Brisbane, QLD Dr Vanessa McDonald, Clinical Nurse Consultant, Michele Kennedy, Respiratory Clinical Nurse Consultant, John Hunter Hospital and The University of Newcastle, Logan Hospital, Meadowbrook, QLD Newcastle, NSW Renae Knight, Occupational Therapist, Associate Professor Ian Yang, Thoracic Physician, Brisbane South Respiratory Service, QLD The Prince Charles Hospital, Brisbane, QLD Jennie Lettieri, Speech Pathologist, Toowoomba Hospital, QLD Lisa McCarthy, Thoracic CNC, The Prince Charles Hospital, 2nd Edition Contributing Authors Brisbane, QLD Dr Helen Reddel, Research Leader, Clinical Management, David McNamara, Respiratory Clinical Nurse Consultant, Woolcock Institute of Medical Research, Sydney, NSW Nambour General Hospital, Nambour, QLD Moira Fraser, Clinical Nurse Specialist, Judy Ross, Respiratory Clinical Nurse Consultant, Concord Hospital Medical Centre, NSW Princess Alexandra Hospital, Woolloongabba, QLD Amanda Ballard, Senior Social Worker, Helen Seale, Physiotherapist, Metro North Health Service District, Brisbane, QLD The Prince Charles Hospital, Brisbane, QLD Susan Marshall, Senior Psychologist, John Serginson, Respiratory Nurse Practitioner, Metro North Health Service District, Brisbane, QLD Caboolture Hospital, QLD Wendy Noyce, Advanced Occupational Therapist, Stella Snape-Jenkinson, Advanced Occupational Therapist, Metro North Health Service District, Brisbane, QLD Heart Lung Team, The Prince Charles Hospital, Brisbane, QLD Judy Powell, Project Manager, Primary Care COPD Tracy Tse, Pharmacist, National Program, Lung Foundation Australia The Prince Charles Hospital, Brisbane, QLD Elizabeth Harper, Program Manager, Pulmonary Barb Williams, Respiratory Clinical Nurse, Rehabilitation and Lungs in Action, COPD National Logan Hospital, Meadowbrook, QLD Program, Lung Foundation Australia II Better Living with Chronic Obstructive 2nd Edition Statewide Respiratory Clinical Network, QLD Pulmonary Disease Consumer Reviewers Judy Hart, QLD A Patient Guide Caroline Polak Scowcroft, ACT Ezy Breathers Support Group, Northlakes, QLD Third Edition Pulmonary Rehabilitation Booklets The following COPD Pulmonary Rehabilitation Booklets were reviewed and used as models to produce this Patient Guide: Contents Brisbane South Community Health Service District Chapter Page Bundaberg Health Service District Cairns Health Service District 1. Introduction .................................................1 Nambour General Hospital 2. The lungs ....................................................2 Gold Coast Health Service District The Prince Charles Hospital 3. Lung conditions ...........................................5 The Alfred Pulmonary Rehabilitation Program 4. Lung function tests .......................................8 3rd edition Review: 5. Your role in managing your COPD ................11 Lead reviewers Professor Ian Yang, Thoracic Physician, 6. Stopping smoking and preventing a relapse ...16 The Prince Charles Hospital and The University of Queensland, Brisbane, QLD 7. Knowing your medicine ...............................20 John Serginson, Nurse Practitioner Respiratory,
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