Oxford Global Health and Bioethics International Conference Day 2 - Tuesday 18 July 2017 Keble College, Oxford Morning Plenary Session —O’Reilly Theatre 17 - 18 July 2017 Jeffrey Kahn 9.00-10.15 Johns Hopkins Berman Institute of Bioethics at the Horizon: A Proposal for a Future-Facing Global Bioethics

Day 1 - Monday 17th July 10:15– 10:30 Coffee — Douglas Price Room (1st Floor) 8:30-9:20 Registration – Main Entrance of the Sloane Robinson Building Euzebiusz Jamrozik Morning Plenary Session —O’Reilly Theatre Victims, vectors and villains: are those who opt out of vaccination morally re- 10:30 –11:20 Michael Parker and Patricia Kingori sponsible for the deaths of others?

University of Oxford Angus Dawson Welcome 9.20-10:50 Devi Sridhar What role should sustainability play in global bioethics? University of Edinburgh, and University of Oxford Parallel Sessions—see separate sheet for details Governing Global Health: Who Runs the World and Why? 11:25 –12:40 Parallel Session 4a Parallel Session 4b Parallel Session 4c 10:50-11:10 Coffee — Douglas Price Room (1st Floor) 12.40–13.40 Lunch —Keble College Dining Hall Parallel Sessions—see separate sheet for details 13.40–14.55 Parallel Session 5a Parallel Session 5b Parallel Session 5c 11:10-12.25 Parallel Session 1a Parallel Session 1b Parallel Session 1c 15:00-16:15 Parallel Session 6a Parallel Session 6b Parallel Session 6c 12.25-13.30 Lunch —Keble College Dining Hall 16:15-16:35 Coffee — Douglas Price Room (1st Floor) 13.30-14.45 Parallel Session 2a Parallel Session 2b Parallel Session 2c Afternoon Plenary Session—O’Reilly Theatre Chair: Nina Hallowell 14:55-16:10 Parallel Session 3a Parallel Session 3b Parallel Session 3c Ruth Macklin 16:10-16:30 Coffee & Poster Session — Douglas Price Room (1st Floor) Albert Einstein College of Medicine The Global Gag Rule: US policy denies funds for vulnerable women in low- Afternoon Plenary Session—O’Reilly Theatre Chair: Katherine Littler resource countries Liza Dawson 16.35-17:50 Florencia Luna NIH/NIAID Division of AIDS FLACSO Ethical framework for the conduct of clinical trials in public health emergencies A way forward with layers: the two steps process 16.30-17.45 Jonathan Herington Maureen Kelley Kansas State University University of Oxford Health Emergencies, Resource Allocation and Individual Health Security Vulnerability and Agency

Annette Rid 18:30—20:00 Drinks Reception — Ashmolean Museum King's College London Setting research priorities during epidemics of emerging infectious diseases Hosted by the Ethox Centre, Nuffield Department of 19:00-21:00 Conference Dinner—Keble College Dining Hall Population Health, University of Oxford Day 1 O’Reilly Theatre Seminar Room 1 Seminar Room 2 Parallel Session 1a Chair: Liza Dawson Parallel Session 1b Chair: Jennifer Roest Parallel Session 1c Chair: Annette Rid Gail Geller Kenneth Ngure Carleigh Krubiner Johns Hopkins Berman Institute of Bioethics Jomo Kenyatta University of Agriculture and Technology Johns Hopkins Berman Institute of Bioethics Ethical, legal, and social implications of genomics for infectious diseases What should the role of male partners be in women’s consent to re- Ethics Guidance for How Zika Virus Vaccine R&D Can and Should Be and epidemics: A framework for issue-spotting on a global scale search during pregnancy? Insights from a HIV prevention study in Kenya Responsive to the Needs of Pregnant Women 11:15 Scholastica Zakayo to Nir Eyal KEMRI-Wellcome Trust Research Programme Susan Bull Harvard T.H. Chan School of Public Health 12.30 Conducting research with families of children admitted with malnutri- University of Oxford Vaccine Testing for Emerging Infections: The case for individual Ran- tion - reflections on researchers' responsibilities to respond to vulnera- How can we ensure international data sharing is equitable? domization bilities identified Sassy Molyneux Kate Gooding Justin Dixon KEMRI-Welllcome Trust Research Programme Malawi-Liverpool-Wellcome Trust Clinical Research Programme Durham University Building the field: Developing networks to support ethics research and Continuums and contexts in decisions on trial participation Truth, Blood and Morality: Exploring Perceptions of Clinical Trials as a practice for health policy and systems research (HPSR) in sub-Saharan Form of Moral Triage at a TB Vaccine Trial Site in South Africa Africa

Parallel Session 2a Chair: Susan Bull Parallel Session 2b Chair: Arianne Shahvisi Parallel Session 2c Chair: Ruchi Baxi Gloria T. Mason Charlotte Cliffe Elysee Nouvet Harvard Medical School Kings College London Western University Ethical implications for the Establishment of Biobanks in West Africa An ethical analysis on whether all transgender children, regardless of The need to care, learn, and improvise: Enacting research ethics during their country of origin, should have access to treatments, such as hor- the West Africa Ebola outbreak 13.30 mone replacement therapy and gender reassignment, before they reach to Geremew T Tsegaye 18 John Pringle Armauer Hansen Research Institute McMaster University 14.45 Jayne Lucke The ethics of biobanking: background, principles and standard oper- Lessons in research ethics: Experiences of clinical research participation La Trobe University ating procedures for Research Ethics committee in Ethiopia during the West Africa Ebola crisis Where truth lies: Navigating ethics at the intersection of LGBTI health and wellbeing research, policy and practice Dorcas Kamuya Anna Chiumento KEMRI-Welllcome Trust Research Programme Tiia Sudenkaarne University of Liverpool Examining if and how stakeholders could be engaged about bio- University of Turku Global health research ethics in emergencies: a question of trust? banking, and if and how the concept of social licence maybe useful: a A Womb of One's Own? Feminist and Queer Bioethical Inquiries into protocol in development Justice and Vulnerability in Surrogacy Parallel Session 3a Chair: Florencia Luna Parallel Session 3b Chair: Gail Geller Parallel Session 3c Chair: Anna Chiumento Alexandra Fehr Alex Hinga Gabriel Gyang Darong Emory University KEMRI Wellcome Trust Research Programme University of KwaZulu-Natal Patient and Surrogate Views of Community Consultation for Emergency Addressing Ethical Issues for Health and Demographic Surveillance Sys- “Safeguarding” the anonymity of “vulnerable populations” in research: Research 14:55 tems in sub-Saharan Africa the field experience with people living with HIV/AIDS in rural South Africa to Barthalomew Wilson Louise Bezuidenhout 16:10 Partnership for Research on Ebola Virus University of Oxford Charlotte Hammer Engaging Communities in Clinical Research During a Public Health Emer- Hidden Challenges to Open Data in African Research: Examining the University of East Anglia gency: Case Study of PREVAIL I Phase 2 randomized placebo-controlled Interplay Between Trust and Visibility (Re-) Conceptualising vulnerability as a part of risk in global health Trial emergency response Derrick Aarons Ruchi Baxi Ayesha Ahmad The Caribbean Public Health Agency University of Oxford St Georges University of London Infectious Diseases Data and Sample Sharing: Perspectives on Ethics and The ethics of research collaboration in emergencies: A collaborating Ethical Evaluation of Trials of Interventions to Prevent Violence Against Governance role for research ethics committees Women and Girls Day 2 O’Reilly Theatre Seminar Room 1 Seminar Room 2 Parallel Session 4a Chair: Stuart Rennie Parallel Session 4b Chair: Kate Gooding Parallel Session 4c Chair: Derrick Aarons Nili Eyal Mphatso Mwapasa Claire Leonie Ward Rishon Lezion University of Malawi University of Basel Beyond the Ethical Boundaries of Solidarity: Solidarity as a Legal Motiva- "Are we getting the bioethics right?" - The use of biometrics within the Defining Health Research for Development (HRD): The Perspective of tion for Vaccination health care system in Malawi Stakeholders From An International Health Research Partnership In 11:25 Ghana And Tanzania to Halina Suwalowska Peter West-Oram University of Oxford Allana Roach & Cheryl Macpherson 12.40 Christian-Albrechts-Universität zu Kiel Ethical and socio-cultural aspects of autopsy in biomedical settings in St. George's University Achieving Solidarity, and Justice, for Refugee Health low and middle- income countries What constitutes research benefits in international research conducted in LMICs? Arianne Shahvisi Adamu Addissie Maru Mormina Brighton and Sussex Medical School Brighton and Sussex Medical School University of Winchester Health-worker migration and migrant health-care: seeking cosmopoli- Adoption of 'Rapid Ethical Assessment' as a practical method for as- Capacity strengthening, human development and cosmopolitan solidar- tanism in the NHS sessing ethical issues relating to biomedical research projects in a De- ity in global genomic research veloping Country

Parallel Session 5a Chair: Michael Selgelid Parallel Session 5b Chair: Maru Mormina Parallel Session 5c Chair: Maureen Kelley WHO Session Aliya Oulaya Affdal Alun Davies University of Montreal KEMRI-Wellcome Trust Research Programme Abha Saxena Fertility preservation for young girls or preservation of social inequali- “Praise the rain if you’ve been rained on”: The challenges and out- World Health Organization, Geneva ties? A multicentric study: Canada, France and Morocco comes of engaging school students with health research in Kilifi, Kenya 13.40 Introduction of WHO’s work in setting Norms & Standards Roy Gilbar to Kyaw Tun Andreas Reis, Amy Fairchild Netanya Academic College 14.55 Defence Services Medical Academy, Yangon World Health Organization, Geneva; Texas A&M University, USA Disclosure of genetic information to the patient’s relatives: Can bioeth- Ethical issues in recruitment of young people in clinical research in Launch of the WHO Guidelines on Ethical Issues in Public Health ics and law help increase the low rates of genetic testing? Myanmar Surveillance Abha Saxena TBC Abebayehu Tora World Health Organization, Geneva Addis Ababa University WHO Guidelines on Managing Ethical Issues in Infectious Disease Health beliefs of young rural children at high risk for podoconiosis: a Outbreaks qualitative study in Southern Ethiopia

Parallel Session 6a Chair: Ruth Macklin Parallel Session 6b Chair: Ruth Horn Parallel Session 6c Chair: Salla Sariola Nabeel Mangadan Konath Maxwell Smith Stuart Rennie Public Health and Bioethics Consultant McGill University University of North Carolina Concepts of Resilience and Responsiveness in attempting a Reconcilia- Ethics for Pandemics Beyond Influenza: Planning for Future Ethical Perceptions of benefit among research participants: (how) do they 15:00 tion of the Tensions in the Prevention versus Treatment Debate Challenges in Pandemic Preparedness and Response matter? to Ana Komparic Niall Winters 16:15 Morven C Shearer Simon Fraser University University of Oxford University of St Andrews Ethical Challenges in the Development and Implementation of New A Priority View of Technologies in Global Health Ethical approval: the rate-limiting step in global health research? Tuberculosis Technologies: A Qualitative Study of Stakeholder Perspec- tives Bridget Pratt Sapfo Lignou University of Melbourne Ziyu Liu Anglia Ruskin University Constructing citizen engagement in research priority-setting to attend to Erasmus University Rotterdam Health research in humanitarian crises: A post-research ethics analysis dynamics of power and difference Patient Engagement at the Level of the Household: A Feasible Way to Improve the Chinese Healthcare Delivery System towards Justice