Queensland Youth Cancer Service Community Resource Guide for Health Professionals
Queensland Youth Cancer Service Community Resource Guide
Published by the State of Queensland (Queensland Health), December 2020 This document is licensed under a Creative Commons Attribution 3.0 Australia licence. To view a copy of this licence, visit creativecommons.org/licenses/by/3.0/au © State of Queensland (Queensland Health) 2019 You are free to copy, communicate and adapt the work, as long as you attribute the State of Queensland (Queensland Health). For more information contact: Queensland Youth Cancer Service Children’s Health Queensland Hospital and Health Service Level 12, 501 Stanley Street, South Brisbane QLD 4010 [email protected]
Disclaimer: The content presented in this publication is distributed by the Queensland Government as an information source only. The State of Queensland makes no statements, representations or warranties about the accuracy, completeness or reliability of any information contained in this publication. The State of Queensland disclaims all responsibility and all liability (including without limitation for liability in negligence) for all expenses, losses, damages and costs you might incur as a result of the information being inaccurate or incomplete in any way, and for any reason reliance was placed on such information.
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Table of Contents
Introduction ______5 Background ______5 QYCS Contact Details ______6 Central Team (Located at the Queensland Children’s Hospital) ______6 Gold Coast Hospital and Health Service (Located at Gold Coast Hospital) ______6 Metro South Hospital and Health Service (Located at Princess Alexandra Hospital) ______6 Metro North Hospital and Health Service (Located at Royal Brisbane and Women’s Hospital) ______6 Townsville Hospital and Health Service (Located at the Townsville University Hospital)______6 QYCS Referral Form ______7 Health Professional Learning and Development ______8 Education Videoconferences ______8 Free learning online modules ______8 Post Graduate Courses ______9 Information Resources ______10 Guidelines and Frameworks ______10 AYA Cancer ______10 Disease specific information ______10 Fertility ______11 Sexuality ______11 Aboriginal and Torres Strait Islander Health ______11 Culturally and Linguistically Diverse Health ______12 Schooling ______12 Survivorship ______12 Psychological ______12 Community Organisation Support ______13 General Support______13 Cancer Council ______13 Canteen Queensland ______14 Compassionate Friends Qld Inc ______14 Leukaemia Foundation ______15 Lifeline ______15 Look Good Feel Better ______16 Make a Wish Foundation ______16 The Wesley Hospital Choices Cancer Support Centre ______16 Ronald McDonald House Charities ______17 Starlight Foundation & Livewire ______17 Redkite ______17 Accommodation Support ______18 Leukaemia Foundation ______18 Sony Foundation – You Can Accommodation ______19 Ronald McDonald House ______19 Cancer Council Qld ______20 Study, Career, Education Support and Scholarships ______21 CanTeen – Education and Career Support Consultants ______21 Access Arrangements and Reasonable Adjustments (AARA) ______21 Redkite – Dare to Dream ______21 Ronald McDonald Learning Program ______21
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Wig Services ______22 Beaute Internationale ______22 Cancer Council ______22 Queensland Children’s Hospital ______22 Pink Sisters ______22 Starkles ______23 Fertility Preservation ______24 Queensland Fertility Group ______24 Breast & Gynaecological Programs ______25 The Wesley Hospital Choices Cancer Support Centre ______25 McGrath Foundation ______25 Curve Lurve ______25 Wish Programs ______26 Dreams 2 Live 4 ______26 Make A Wish Foundation ______26 Starlight Foundation ______26 Mental Health Support ______27 URGENT MENTAL HEALTH SUPPORT ______27 Headspace ______27 Kids Helpline ______27 Beyond Blue & Youth Beyond Blue ______28 Black Dog Institute ______28 Moodgym ______28 Ecouch______28 You.Nique ______28 Medicare Better Access to Mental Health Care ______29 Access to Allied Psychological Services (ATAPS) ______29 Drug & Alcohol Support ______30 Clarence Street at the Mater Youth Adult Health Centre ______30 Dovetail ______30 Australian Drug Information Network ______30 National Cannabis Prevention & Information Centre ______30 Family Drug Help ______30 Drug ARM Resource Centre ______30 National Drugs Campaign ______30 LGBTIQ+ Support ______30 Open Doors ______31 Queensland Association for Health Communities______31 Diverse City ______31 Diverse Voices ______31 Transport Services ______32 Cancer Council ______32 Central Qld Cancer Support Centre, Rockhampton ______32 Charles Wanstall Apex Lodge, Herston, Brisbane ______32 Gluyas Rotary Lodge, Townsville ______32 Patient Travel Subsidy Scheme (PTSS) ______32 Quick Links - Information for patients, carers and families ______33
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Introduction This resource has been developed to bring together information about some of the community-based organisations who provide assistance for adolescents and young adults who are diagnosed with cancer, as well as their families and friends.
The aim of the resource guide is to assist staff facilitating support for adolescents and young adults with cancer and their families.
The organisations are listed with their contact details, key areas and eligibility criteria for easy access. The resource has been collated into specific sections. As some organisations provide a number of services, they may appear in more than one section.
Referrals to community organisations can generally be completed by a staff member, however in some situations, families are able to communicate directly with the organisation. Background The Adolescent and Young Adult (AYA) years are a time when individuals develop their self-image, seek autonomy and independence from their parents and deal with issues of emerging sexuality. Social and peer acceptance; career and education considerations and the desire for independence are among the issues to be considered when caring for the adolescent patient with cancer.
The Queensland Youth Cancer Service (QYCS) has been established to support young people with cancer aged 15 – 25 years, their families and carers. The QYCS team can provide medical, nursing and psychosocial support, and assistance in coordinating treatment for AYAs.
QYCS aims to support health professionals working with AYAs with cancer. QYCS provides professional development and education for health professionals.
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QYCS Contact Details Contact QYCS with any youth cancer related enquiries. We accept referrals from doctors, nurses, allied health, and patients can self-refer directly to the Central Team via the website. We are also happy to accept general enquires that are not patient related.
Central Team (Located at the Queensland Children’s Hospital)
Email: [email protected] Admin: 07 3068 4176 QYCS Clinical Nurse Consultant Mobile: 0427 828 068 Tel: 07 3068 5090 QYCS Nurse Educator: 07 3068 4179 QYCS Medical Oncologist: 07 3068 5938 QYCS State Manager: 0427 902 214
Gold Coast Hospital and Health Service (Located at Gold Coast Hospital)
QYCS Nurse Consultant: 07 5687 2041 QYCS Medical Oncologist: 1300 744 284 (switch)
Metro South Hospital and Health Service (Located at Princess Alexandra Hospital)
Cancer Services Clinical Nurse: 07 3176 5278 QYCS Senior Social Worker: 07 3176 2610 QYCS Clinical Psychologist: 07 3176 1827 QYCS Medical Oncologist: 07 3176 1827
Metro North Hospital and Health Service (Located at Royal Brisbane and Women’s Hospital)
Clinical Nurse Care Coordinator: 0427 512 370 QYCS Senior Social Worker: 07 3646 0522 QYCS Clinical Psychologist: 07 3646 3312 QYCS Haematologist: 07 3646 8111 (switch)
Townsville Hospital and Health Service (Located at the Townsville University Hospital)
QYCS Clinical Nurse Cancer Coordinator: 07 4433 3811 QYCS Medical Oncologist: 07 4433 1111 (switch)
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QYCS Referral Form
Fillable form available at: https://www.childrens.health.qld.gov.au/wp-content/uploads/ZIP/QYCS-referral-form.zip
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Health Professional Learning and Development
Education Videoconferences
The QYCS Central Team facilitate the delivery of a monthly Videoconference series with a different health professional presenting each month. Topics relate to adolescent and young adult (AYA) health and wellbeing, and developmentally relevant care and support in the context of a cancer diagnosis. Previous topics include difficult conversations, sexual health and fertility, epidemiology of AYA cancer, germ cell tumours, transplants in the AYA population and neurophysiology of the AYA brain.
The videoconference series is circulated every month to over 400 health professionals across Queensland and northern New South Wales.
To be added to the mailing list for the video conference series, please email [email protected]
Free learning online modules
Coventry University and Teenage Cancer Trust eLearning Webapp
Coventry University in association with Teenage Cancer Trust have designed a e-Learning Webapp for people new to working with Adolescents and Young Adults with Cancer. Because the modules are based on young people in the UK, statistics, treatment centre choice and resources are not relevant to Australian clinicians but the content provides underpinning knowledge of teenage and young adulthood in general so that the learner can understand the key principles of care and address their needs at this age and stage of life. https://cele.coventry.ac.uk/tyacancer/index.htm eviQ Education Adolescent and Young Adult Cancer Care Modules eviQ Education offers a free online learning program for Registered Nurses wanting to develop their knowledge and skills in adolescent and young adult cancer care. The program provides a broad overview of AYA cancer care in the Australian Context and was developed by the Victorian Adolescent and Young Adult Cancer Service. The program is divided into four modules:
Module 1: Cancer in adolescents and young adults
Module 2: Youth focused consultations and assessments
Module 3: Psychological and social support
Module 4: Life after cancer https://education.eviq.org.au/courses/supportive-care/adolescent-and-young-adult-cancer-care
Global Adolescent Health
The Centre for Adolescent Health also offers an intensive 8-week Global Adolescent Health online course that explores the health and wellbeing of young people across the different countries and regions of the world. More information can be found here: https://www.rch.org.au/cah/education_training/Professional_development/
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Headspace
Headspace provide free online training modules for GP’s and Allied Health professionals working with young people.
Module 1: Youth Mental Health
Module 2: Alcohol and other Drugs and Sexual Health in Young People
Module 3: Developmental Disorders and Intellectual Disability in Young People
For GP’s: https://headspace.org.au/health-professionals/gps-and-general-practice-at-headspace/
For Allied Health Professionals: https://headspace.org.au/health-professionals/ahp/
Cancer Learning
A professional development platform provided by Cancer Australia this includes evidence-based learning resources and activities: http://cancerlearning.gov.au/resources/videos/understanding-adolescents-and-young-adults-aya-cancer
Post Graduate Courses
The Centre for Adolescent Health, through the Department of Paediatrics, Faculty of Medicine, Dentistry and Health Sciences at the University of Melbourne, offers online postgraduate courses that integrate knowledge from a range of disciplines (including medicine, psychology, sociology, social work, youth work, public health and health promotion), and examines the different theoretical frameworks and professional approaches these disciplines bring to working with young people.
Course Options: Graduate Certificate Adolescent Health and Wellbeing (Oncology Stream)
Graduate Diploma Adolescent Health and Wellbeing
Masters Adolescent Health and Wellbeing
Information at: https://study.unimelb.edu.au/find/courses/graduate/graduate-certificate-in-adolescent- health-and-wellbeing/
Occasionally, scholarships are offered by CanTeen Australia to health professionals working with AYA with cancer to assist the above course. For more information, please check the Canteen website https://www.canteen.org.au/
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Information Resources
Guidelines and Frameworks
COSA (Clinical Oncology Society of Australia) AYA guidelines: https://www.cosa.org.au/publications/guidelines.aspx eviQ: Cancer Treatments Online Adolescent and Young Adults: Health Professional Resources, Clinical Procedures, Patient Resources: www.eviq.org.au
National Service Delivery Framework for Adolescents and Young Adults with Cancer. Provides a foundation for best practice care for adolescents and young adults with cancer: https://canceraustralia.gov.au/sites/default/files/publications/national_service_delivery_framework_for_ad olescents_and_young_adults_with_cancer_teen_52f301c25de9b.pdf
The Australian Youth Cancer Framework for AYA’s (CanTeen Australia 2017) https://s3-ap-southeast-2.amazonaws.com/canteen.org.au/Australian_Youth_Cancer_Framework_2017.pdf
Survivorship - Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers, Children’s Oncology Group (COG). http://www.survivorshipguidelines.org/
AYA Cancer
Queensland Youth Cancer Service - Information for young people about cancer, treatments, side effects, dealing with cancer and more: https://www.childrens.health.qld.gov.au/qycs
COSA (Clinical Oncology Society of Australia) Early detection of cancer in AYAs: http://wiki.cancer.org.au/australia/COSA:Early_detection_of_cancer_in_AYAs
Adolescents and Young Adults with Cancer, National Cancer Institute (NCI). AYA information, research and literature, and quiz. http://www.cancer.gov/types/aya
Canteen- Guidelines, resources and professional development. https://www.canteen.org.au/supporting-young-people/im-a-health-professional/guidelines-resources-and- professional-development/
Clin Trial Refer app for connecting patients, doctors and clinical trial sites. https://s3-ap-southeast-2.amazonaws.com/canteen.org.au/Australian_Youth_Cancer_Framework_2017.pdf
Disease specific information
Cancer Council Qld - http://www.cancerqld.org.au/
National Cancer Institute - http://www.cancer.gov/cancerinformation
MacMillan UK - https://www.macmillan.org.uk/
Leukaemia Foundation of Qld - https://www.leukaemia.org.au/blood-cancer-information/
Australia and New Zealand Sarcoma Association - https://sarcoma.org.au/
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Fertility
AYA cancer fertility preservation, Clinical Oncology Society of Australia (COSA). Fertility preservation for AYAs diagnosed with cancer: Guidance for health professionals. http://wiki.cancer.org.au/australia/COSA:AYA_cancer_fertility_preservation
Maybe later baby? A guide to relationships, sex and fertility for young people with cancer, Canteen. https://www.canteen.org.au/resource/a-guide-to-fertility-for-young-people-with-cancer/
Maybe later baby? A guide to fertility for young people after cancer, Canteen. https://www.canteen.org.au/resource/guide-fertility-young-people-cancer/
American Society of Clinical Oncology: Recommendations on Fertility Preservation in people treated with cancer. ASCO’s practice guidelines for oncologists about available fertility preservation methods and related issues in people treated for cancer (published in 2006): www.asco.org
National Institute for Health and Care Excellence (NICE), Cryopreservation to preserve fertility in people diagnosed with cancer: http://pathways.nice.org.uk/pathways/fertility#path=view%3A/pathways/ fertility/cryopreservation-to-preserve-fertility-in-people-diagnosed-with-cancer.xml&content=view-quality- statement%3Aquality-statements-fertility-support
COSA (Clinical Oncology Society of Australia) Fertility preservation: http://wiki.cancer.org.au/australia/COSA:AYA_cancer_fertility_preservation
Sexuality
CanTeen - frequently asked questions: https://www.canteen.org.au/youth-cancer/treatment/coping-treatment/sexuality/
Cancer Council Australia - Sexuality, intimacy and cancer (PDF or eBook): http://www.cancer.org.au/about-cancer/living-with-cancer/
True - relationships and sexuality education: http://www.true.org.au/
American Cancer Society, Sex and the woman with cancer https://www.cancer.org/treatment/treatments-and-side-effects/physical-side-effects/fertility-and-sexual- side-effects/sexuality-for-women-with-cancer.html
American Cancer Society, Sex and the man with cancer https://www.cancer.org/treatment/treatments-and-side-effects/physical-side-effects/fertility-and-sexual- side-effects/sexuality-for-men-with-cancer.html
Aboriginal and Torres Strait Islander Health
Cancer Council QLD - Aboriginal cancer journeys: https://www.health.qld.gov.au/atsihealth
Aboriginal and Torres Strait Islander Health Branch - Health Information and Resources: https://www.health.qld.gov.au/atsihealth/health_professionals.asp
Queensland Health Intranet - Indigenous Health: http://qheps.health.qld.gov.au/tville/service-groups/indigenous-health/index.htm
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Culturally and Linguistically Diverse Health
Cancer Council - “Let’s talk about living with cancer”: https://cancerqld.org.au/cancer-information/find-resources/cancer-resources/
Queensland Health Intranet ATSI people and CALD people – links to resource kits and interpreter services: https://qheps.health.qld.gov.au/caru/networks/cognitive-impairment-toolkit/atsi
Schooling
Cerebra “Returning to school” - A teachers guide for pupils with Brain Tumours: https://cerebra.org.uk/download/returning-to-school-after-a-brain-tumour/
Good Universities Guide - The Good Universities Guide is a national website that can assist with searching for scholarships, finding courses and submitting applications: https://www.gooduniversitiesguide.com.au/scholarships
Cancer Council QLD - “Cancer in the School Community” A guide for staff members: http://www.cancervic.org.au/downloads/booklets/Cancer_in_the_School_Community/Cancer_In_The_Scho ol_Community.pdf
Queensland Youth Cancer Service - Thinking Ahead: Your guide to school, study and work: LINK
School Community Industry Partnership Service - not-for-profit, community based organisation offering a Ready for Work program (15 – 24yrs old) and also a Certificate II in Retail Services (15 – 19yrs old) to young people which includes work experience and connections to industry mentors to support the young person as they look to gain work, return to work or increase their work hours. www.scips.org.au
Survivorship
Canteen Life After Cancer – A series of webpages for AYAs after cancer: https://www.canteen.org.au/youth-cancer/life-treatment/
Cancer Australia - Principles of Cancer Survivorship: https://www.canceraustralia.gov.au/publications-and-resources/cancer-australia-publications/principles- cancer-survivorship
Psychological
Clinical Oncology Society of Australia(COSA) Psychosocial management of AYAs diagnosed with cancer: http://wiki.cancer.org.au/australia/COSA:Psychosocial_management_of_AYA_cancer_patients eMental Health in Practice a directory of Australia, evidence-based, free (or low cost), publicly funded digital mental health programs and resources. https://www.emhprac.org.au/
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Community Organisation Support
General Support
Cancer Council Locations / Contact Details Key Areas Eligibility Email: [email protected] • Cancer Information Service available to all ages Website: www.cancerqld.org.au • Types of cancer undergoing cancer treatment. Helpline: 13 11 20 • Learn to cope Support for patients and family • Cancer Treatment members available. Brisbane • Resources 553 Gregory Terrace • Support Programs Fortitude Valley QLD 4006 • Call/Ask/Chat Phone: (07) 3634 5100 • Emotional support • Cancer Connect Bundaberg West QLD 4670 • Brain Tumour support Phone: (07) 4150 4500 • Counselling Service
• Accommodation lodges Cairns • Transport services 169 Aumuller Street • Wig & Turban Service Bungalow QLD 4870 • Look Good Feel Better Phone: (07) 4047 5500 • Financial support
• Legal support Gold Coast 1 Short Street • Health Professional Southport QLD 4215 resources Phone: (07) 5503 3700 • Education • Information Sunshine Coast • Referrals and Resources Big Top Market Fresh, Shops DA1 • Conferences & DA2 (Entrance on Duporth • Cancer Research Avenue, outside of shopping • Fact sheets centre.) • Statistical reports 12-20 Ocean Street Maroochydore QLD 4558 Phone: (07) 5451 6000
Mackay 4a, 6-8 Discovery Lane North Mackay, Qld, 4740 Phone: (07) 4842 2000
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Canteen Queensland Locations / Contact Details Key Areas Eligibility General Enquiries: • Peer support including a Young people aged 12-25 who are Website: www.canteen.org.au 24/7 online community. dealing with: Phone: 1800 226 833 • Free, confidential • Having cancer themselves counselling and individual • A parent or sibling’s Counselling or youth support: support by qualified staff cancer Email: [email protected] (face to face or by phone, • The death of a parent or Phone: 1800 835 932 email, online chat) sibling from cancer • Youth-friendly • CanTeen works with Education & Career Consulting: information, books and young people who have [email protected] resources needs related to their [email protected] • QLD Offices in Brisbane cancer experience Phone: 0411 451 233 and Townsville regardless of when the cancer occurred. Brisbane office: Suite 6, 33 Vulture St, West End, QLD 4101 Phone: (07) 3108 1444 Fax: (07) 3844 1000 Email: [email protected]
North Queensland office: Unit 3, Level 1, Park Haven Medical Centre, 7 Bayswater Road, Hyde Park, QLD, 4812. Phone: (07) 4700 5636 Fax: (07) 4724 3327 Email: [email protected]
Compassionate Friends Qld Inc Locations / Contact Details Key Areas Eligibility Drop in Centre / Office: • Self-help support group Bereaved parents, grandparents 505 Bowen Terrace, New Farm 4005. for bereaved parents, and siblings grandparents and Phone: (07) 3254 2657 siblings Fax: (07) 3358 2533 • Telephone support, Postal Address: groups and education P.O Box 1930, New Farm, Qld • Drop in centre
Website: www.compassionatefriendsqld.org.au Email: [email protected]
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Leukaemia Foundation Locations / Contact Details Key Areas Eligibility Address: 213-217 St Pauls Terrace, Patient needs to have blood Fortitude Valley, 4006 • Support for patients born cancer-related illness undergoing treatment Postal address: GPO Box 9954, for any type of blood Brisbane 4001 born cancer-related illness and their families. Phone: (07) 3318 4418 • Self-contained unit-style accommodation (free to https://www.leukaemia.org.au/ regional families) • Informal, emotional, and educational support • Recreational activities for children undergoing treatment, their siblings, and families. • Financial assistance on a case-by case basis. • Exercise Programs – Fit to Thrive • 20/30 Chat Support Group – regular catch ups across the state for those aged between 20- 30 years with a blood cancer experience
Lifeline Locations / Contact Details Key Areas Eligibility 24-hr Crisis Counselling Line 24/7 Crisis Support via phone Services available to anyone.
Phone: 13 11 14 Crisis Support Chat (one-on-one online 7pm – 4am, 7 days) Website: www.lifeline.org.au Lifeline Service Finder App via iTunes
Facts & Information resources, self-help tools
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Look Good Feel Better Locations / Contact Details Key Areas Eligibility Phone: 1800 650 960 Look Good Feel Better is a free Patients undergoing or national community service recovering from cancer Postal Address: program dedicated to teaching treatment. PO Box 290 Broadway cancer patients how to manage NSW 2007 the appearance-related side- effects caused by chemotherapy E-mail: [email protected] and radiation treatment. Website: http://lgfb.org.au Women, men and teens (13- 19 years) participate in a practical workshop which covers skin care, make-up and head wear demonstrations, leaving them empowered and ready to face their cancer diagnosis with confidence
Make a Wish Foundation Locations / Contact Details Key Areas Eligibility Phone: 1800 032 260 Wishes are granted to children Make-A-Wish Australia grants and teens that have been wishes to children between the Postal Address: diagnosed with a life- ages of three and 18 PO Box 5006, Burnley, Victoria, threatening medical condition. Australia, 3121
Email: [email protected] Website: www.makeawish.org.au
The Wesley Hospital Choices Cancer Support Centre Locations / Contact Details Key Areas Eligibility Phone: 1800 227 271 • Multidiscipline team, All people with cancer and their Phone: (07) 3377 9874 including nurses, family and friends Email: [email protected] counsellors, physiotherapists and Support is available regardless of Address: nutritionists where primary treatment is Drysllwyn House, 47 Cadell St, • Assistance with cancer received Auchenflower treatment decisions • Advice about stress https://wesley.com.au/services/the- management, sexuality wesley-hospital-choices-cancer- and fertility issues, support-centre survivorship, menopause, exercise and nutrition
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Ronald McDonald House Charities Locations / Contact Details Key Areas Eligibility Ronald McDonald Learning Program Education Learning Program & Families with seriously ill (RMLP) Scholarships – qualified tuition children who are receiving Phone: 1300 307 642 provided for child/teen whilst medical treatment. Email: [email protected] undergoing cancer treatment Website: www.rmhc.org.au Educational catch-up program for seriously ill children who have had lengthy absences from school
Scholarships to provide financial assistance towards vocational and tertiary studies for children who have experienced
Starlight Foundation & Livewire Locations / Contact Details Key Areas Eligibility Website: https://starlight.org.au Online Community Programs Young people aged between 10 Address: G Floor, 310 Vulture St. Entertainment and support in and 20 years living with a serious Kangaroo Point, QLD 4169 hospital illness, chronic health condition or disability - and their siblings Phone: 1300 727 827 Wish Granting
Website: www.livewire.org.au Social connection, games, prizes Livewire is Starlight’s leading program and hang out with other teens for adolescents.
Email: [email protected]
Phone: (02) 8425-5971 (Mon – Fri, 9am – 5pm)
Redkite Locations / Contact Details Key Areas Eligibility Phone: 1800 733 548 • Information and For children and young people Email: [email protected] counselling between 0-18 years, and their Website: www.redkite.org.au • Financial assistance families. Redkite is the • Education and career Australian cancer charity Level 3, 80 Petrie Terrace support providing essential support Brisbane QLD 4000 • Bereavement support young people with cancer, and PO Box 2224, Milton QLD 4064 their families and support Phone: (07) 3087 4750 networks.
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Accommodation Support
Leukaemia Foundation Locations / Contact Details Key Areas Eligibility Phone: (07) 3055 8200 Offers free accommodation to On application. Email: regional and rural patients and [email protected]. their families. Accommodation is close to treating hospitals and is Village Green Apartments (800m modern, self-contained home- from Royal Brisbane Women’s away-from-home. Hospital) LFQ also offers residents transport Address: to and from Brisbane’s treating King St, Bowen Hills, Brisbane hospitals. Phone: 1800 620 420
Clem Jones – Sunland Village
Address: 170 Middle St, Coopers Plains Phone: (07) 3259 1000 Fax: (07) 3259 1099
ESA Village (1.4 kilometres from both the Mater and Princess Alexandra Hospitals)
Address: 41 Peter Doherty St, Dutton Park Phone: (07) 3055 8200 Fax: (07) 3055 8299
Queensland Freemasons Village (Located across the road from The Townsville Hospital) Address: 41/100 Angus Smith Drive, Douglas Phone: 07 4727 8000
Leukaemia Foundation Herston Village Address: 196 Herston Rd, Herston QLD 4006 Phone: (07) 3252 2277
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Sony Foundation – You Can Accommodation Locations / Contact Details Key Areas Eligibility For bookings and information: The You Can Accommodation Cancer diagnosis (confirmed by [email protected] Scheme provides free referrer) Phone: (02) 9383 6230 accommodation to 15 – 25 year old cancer patients who live in Age 15 – 25 years at time of Referral required: regional and rural areas in diagnosis https://www.sonyfoundation.org/ Australia who need to travel to Enrolled for Medicare patient-referral-form major cities for appropriate cancer treatment services that are not Not be receiving, or eligible for, available closer to home. financial assistance for travel and accommodation from third party The scheme is intended to insurance or other Australian subsidise the unavoidable financial government services Quest Locations: costs of accommodation for www.questapartments.com.au/ adolescent and young adult (AYA) Be referred for treatment at their cancer patients and their families nearest health service Over 170 locations Australia wide from regional and rural Australia that have no option but to travel a Receive treatment at an approved long distance to receive essential health service specialist medical services from an Travel from their residence for approved medical specialist. treatment at least 100km (one way), or at least 200kms in a week by making multiple trips to and from treatment (except in QLD – 50km and WA 70km) *
Ronald McDonald House Locations / Contact Details Key Areas Eligibility Head office: Facilities include private family On application. Phone: 1300 307 642 rooms with en-suites and common Email: [email protected] kitchens, lounges, quiet rooms and Priority is given to families whose play areas. children have been recently Level 5, 501 Stanley Street South diagnosed, seriously injured or Brisbane QLD Australia 4101 Phone: (07) 3068 3465 who require emergency treatment, and families traveling 283 Vulture Street South Brisbane QLD Australia 4101 long distances from their home. Phone: (07) 3845 1600 You can contact the Houses 22 Garrick Terrace Herston QLD, directly to enquire about bookings. 4006 Referrals to the House can also be Phone: (07) 3257 0328 made by General Practitioners and 100 Angus Smith Drive, Douglas the Medical or Social Work staff at QLD the child's hospital. Phone: (07) 4775 5600
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Cancer Council Qld Locations / Contact Details Key Areas Eligibility For bookings or enquiries, call the Accommodation with fees Staying in Cancer Council Cancer Council on: 13 11 20 calculated on a per person per accommodation lodges is an Monday to Friday, 8am to 6pm night basis, within the daily option if you qualify for the allowance of the Queensland Queensland Government’s Patient Or contact the relevant lodge Government’s Patient Travel Travel Subsidy Scheme (PTSS). below: Subsidy Scheme (PTSS), to limit https://cancerqld.org.au/get- out of pocket expenses for support/cancer-support- patients. Accommodation services/accommodation- includes: lodges/lodge-locations/ • Air-conditioned, self- Charles Wanstall Apex Lodge contained units and Address: 37 Fleming Road studio-style apartments Herston Qld 4006 pleasantly decorated and Phone: (07) 3708 8235 designed for comfort and relaxation; • A telephone and Ellis Lodge television in each unit, Address: 24 Edmondstone Street plus internet access upon South Brisbane Qld 4101 request; Phone: (07) 3170 0900 • All linen requirements and
complete laundry facilities Marylyn Mayo Lodge including washing Address: 564 Mulgrave Road machines and dryers; Woree Qld 4870 • Food preparation areas Phone: (07) 4047 5600 and cooking facilities; • Parking on premises for Central Queensland Cancer guests and caregivers; and Support Centre • A recreational area, Address: 43 Upper Dawson Road complete with barbecue Phone: (07) 4932 8600 facilities, books, DVDs, magazines and children’s toys. Olive McMahon Lodge Address: 2 Scott Street East Toowoomba Qld 4350 Phone: (07) 4690 5900
Gluyas Rotary Lodge Address: 24 Warburton Street North Ward Qld 4810 Phone: (07) 4796 8400
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Study, Career, Education Support and Scholarships
CanTeen – Education and Career Support Consultants Locations / Contact Details Key Areas Eligibility Online referral form: Education and Career Support Young people diagnosed with https://www.canteen.org.au/ Consultants provide assistance for cancer between the ages of 15 – health-professionals/education- adolescents and young adults to 25 years. and-career-support-referral/ get back on track with school, study or work. CanTeen ECS consultants [email protected] [email protected]
Access Arrangements and Reasonable Adjustments (AARA) Locations / Contact Details Key Areas Eligibility More information and online Students may be granted an Students who have medical application: extension, additional time, a conditions or experience other https://www.qcaa.qld.edu.au/ change in venue for an circumstances that may be a examination, or a scribe. barrier to their performance in senior/assessment/aara assessment should talk to their school about applying for Access arrangements and reasonable adjustments (AARA).
Redkite – Dare to Dream Locations / Contact Details Key Areas Eligibility Apply online: Provides grants of up to $1,000 to Diagnosed with cancer between https://daretodream.redkite. help young people achieve their the ages of 0 – 18 years old. org.au/how-to-apply study and work goals. Must provide a letter from your They also offer scholarships of health professional confirming the $2,000 or $5,000 for young people diagnosis. These are available for who have cancer, or cancer up to two years after treatment survivors, to help with a range of ends and can be used for expenses. expenses.
Ronald McDonald Learning Program Locations / Contact Details Key Areas Eligibility Phone: 1300 307 642 The Ronald McDonald Learning On application. Program is a national program of https://learningprogram.rmhc. Ronald McDonald House Charities org.au/index.php helping children and adolescents with serious illness catch up on their missed education following lengthy hospital stays and absence from school.
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Wig Services
Beaute Internationale Locations / Contact Details Info 12a Windorah Street (PO Box 1327) Queensland’s largest hair and beauty wholesaler affiliated with QCH Stafford, Brisbane Qld 4053 and oncology department.
Phone: (07) 3856 5399 www.beauteinternationale.com.au Fax: (07) 3856 5120
Cancer Council Locations / Contact Details Info To book an appointment or for more Wig and Turban loan libraries located in all Cancer Council QLD information contact the Cancer offices Council on: Website: https://cancerqld.org.au/get-support/cancer-support- Phone: 13 11 20 services/wig-and-turban-service/
Queensland Children’s Hospital Locations / Contact Details Info Contact: Lesley Pampling Wig Loan Library for adolescents under the age of 18 years Oncology Administration Officer undergoing cancer treatment in QLD. Phone: (07) 3068 5456
Pink Sisters Locations / Contact Details Info P.O. Box 4551 Turbans and Wigs online store Lake Haven, NSW 2262 Website: http://www.pinksistersparties.com.au/ Phone: 0405 317 496 Email: [email protected]
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Starkles Locations / Contact Details Info Myer Centre Brisbane CBD Starkles provides wigs, extensions, headwear and accessories for Shop 84, Level E Myer Centre, women who have hair loss due to cancer and other medical 91 Queen Street, Brisbane, conditions. QLD 4000 Phone: (07) 3229 0005 Website: http://www.starkles.com.au/product-category/wigs/ Fax: (07) 3229 0020
Starkles Boutique Gold Coast Unit 11 Mudgeeraba Industrial Park, 30 Mudgeeraba Road, Mudgeeraba, QLD 4213 Phone: (07) 5530 5159
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Fertility Preservation
Queensland Fertility Group Locations / Contact Details Info Phone: 1800 039 179 Queensland Fertility Group offer egg freezing, female fertility preservation and semen freezing for a cost. Some items may be Clinic locations: covered by Medicare. https://www.qfg.com.au/our-clinics More information on services: https://www.qfg.com.au/tests-treatments/fertility-preservation
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Breast & Gynaecological Programs
The Wesley Hospital Choices Cancer Support Centre Locations / Contact Details Info Information, appointments or • Help making decisions about surgery and treatment bookings: • Connection with breast care nurses and peer support Phone: 3232 6548 • Provision of complimentary relaxation therapies Email: [email protected] • Post-surgery exercise classes Website: • Advice about stress management, sexuality & fertility, https://wesley.com.au/services/the- survivorship, menopause, exercise and nutrition wesley-hospital-choices-cancer- • A range of support services like the wig & turban library, support-centre rural and regional workshop program, and community education programs
The programs are offered FREE of charge to everyone (regardless of where you are receiving treatment) and they aim to improve the quality of your life.
McGrath Foundation Locations / Contact Details Info Phone: (02) 8962 6100 Support provided free of charge to help families in Australia through Fax: (02) 9958 0140 breast cancer by providing physical, psychological and emotional support from the time of diagnosis and throughout treatment. Street Address: McGrath Foundation 54 Chandos Street, St Leonards, NSW Find a nurse: 2065 https://www.mcgrathfoundation.com.au/get-support/find-a- nurse/?gclid=CjwKCAjwps75BRAcEiwAEiACMSSP3RfnZSHtSjUs5 Postal Address: PO Box 471, St noKbCqMEOmDBQ5ZHvyf0BckmZdHV3wPuNo7VRoCnGMQAvD_BwE Leonards, NSW 1590 www.mcgrathfoundation.com.au
Curve Lurve Locations / Contact Details Info http://www.curvelurve.com.au/ Education initiative aimed at increasing breast awareness for teachers, teenagers and parents
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Wish Programs
Dreams 2 Live 4 Locations / Contact Details Info http://dreams2live4.org.au/ Dreams2Live4 helps make dreams come true for patients aged between 17 – 97 years who are living with metastatic cancer
Make A Wish Foundation Locations / Contact Details Info http://www.makeawish.org.au Grants wishes to children and adolescents between the ages of 3 and 18 years who have a life-threatening illness
Starlight Foundation Locations / Contact Details Info https://starlight.org.au/ Grants wishes for a seriously ill child or adolescent up to 21 years of age
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Mental Health Support
URGENT MENTAL HEALTH SUPPORT
Queensland Children’s Hospital Royal Brisbane Women’s Hospital Princess Alexandra Hospital
Acute Response Team (24 hours) Acute Care Team (24hours) Acute Mental Health (24 hours) PH: 3068 2555 PH: 3834 1605 PH: 1300 642 255
Consultation Liaison Psychiatry Consultation Liaison Psychiatry Consultation Liaison Psychiatry Service Service Service
PH: 07 3068 1111 (switch) PH: 07 3646 8111 (switch) PH: 07 3176 2831
Townsville Hospital Gold Coast Hospital Emergency Service
Acute Response Team (24 hours) Acute Response Team (24 hours) Call 000 (triple zero)
PH: 1300 642 255 PH: 1300 642 255
Consultation Liaison Psychiatry Consultation Liaison Psychiatry Service Service
PH: 07 4433 3000 (switch) PH: 1300 744 284
Headspace Locations / Contact Details Info Face to Face - to find a centre: Early intervention mental health services for 12-25 year olds www.headspace.org.au/headspace- centres/ Headspace offer support with mental health, health and wellbeing, study and career support, alcohol and drugs and more. Online Counselling: www.headspace.org.au/eheadspace
Phone Counselling: 1800 650 890
Kids Helpline Locations / Contact Details Info Kids Helpline website: Kids Helpline is Australia’s only free, private and confidential, www.kidshelpline.com.au/teens/ telephone and online counselling service for young people aged up to 25 years. Phone: 1800 55 1800 They also offer live online chat.
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Beyond Blue & Youth Beyond Blue Locations / Contact Details Info Websites: Mental health Information and online resources, helplines and www.beyondblue.org.au/ online support services. www.youthbeyondblue.com
Black Dog Institute Locations / Contact Details Info Black Dog Institute website: Education, research, clinical, and community-orientated facility https://www.blackdoginstitute.org.au/ offering specialist expertise in depression and bipolar online.
Moodgym Locations / Contact Details Info Moodgym website: Self-help interactive program with modules for depression, www.moodgym.anu.edu.au generalised anxiety and worry, social anxiety, relationship breakdown, loss and grief.
Ecouch Locations / Contact Details Info Ecouch website: Free online psychological therapy. www.ecouch.anu.edu.au
You.Nique Locations / Contact Details Info Accoras Family Mental Health Children and teenagers in South Brisbane and Gold Coast Support Service Office at Level 1, 316 Evans Road Offers sessions in-home and at school, Mon-Fri 9-5 Salisbury 3274 1884 https://www.accoras.com.au/
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Medicare Better Access to Mental Health Care Locations / Contact Details Info Any General Practitioner Medicare rebates available for selected mental health services provided by GPs, psychiatrists, psychologists (clinical and registered) and eligible social workers and occupational therapists.
GP referral required.
Max 10 individual sessions per calendar year (additional 6 sessions in exceptional circumstances). Some practitioner’s bulk bill (no out of pocket expenses) Rebate amount (co-payment fee) varies dependent on practitioner
Access to Allied Psychological Services (ATAPS) Locations / Contact Details Info Any General Practitioner GP referral to psychologists, social workers, mental health nurses, occupational therapists and Aboriginal and Torres Strait Islander health workers with specific mental health qualifications.
Max 12 sessions per calendar year (additional 6 sessions for exceptional circumstances).
All bulk billed (no co-payments)
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Drug & Alcohol Support
Clarence Street at the Mater Youth Adult Health Centre Locations / Contact Details Info https://www.mater.org.au/health/ Clarence Street is part of the Mater Young Adult Health Centre. services/mater-young-adult-health- Located in South Brisbane, it is a free, confidential service centre/what-we-do/clarence-street supporting young people to make positive changes to their alcohol and other drug use.
Dovetail Locations / Contact Details Info www.dovetail.org.au free professional support to any worker or service in Queensland who engages with young people affected by alcohol and drug use
Australian Drug Information Network Locations / Contact Details Info www.adin.com.au Provides a central point of access to internet-based alcohol and other drug information
National Cannabis Prevention & Information Centre Locations / Contact Details Info www.ncpic.org.au A website providing cannabis information to the community, users, their families and the various workforces involved in the delivery of cannabis related interventions
Family Drug Help Locations / Contact Details Info www.sharc.org.au/program/family- A service designed specifically to address the support and drug-help information needs of parents, other family members, and significant others of someone with problematic alcohol and other drug use
Drug ARM Resource Centre Locations / Contact Details Info www.drugarm.com.au Provides free public lending library specialising in alcohol and other drug resources
National Drugs Campaign Locations / Contact Details Info www.drugs.health.gov.au Aims to educate young people about the negative consequences of drug use model positive alternatives to drug use and provide information about where to access support services.
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LGBTIQ+ Support
Open Doors Locations / Contact Details Info www.opendoors.net.au Provides support to young people who identify as Lesbian, Gay, Bisexual and/or Transgender those who have a diverse gender and/or sexuality those who are exploring their sexuality gender identity
Queensland Association for Health Communities Locations / Contact Details Info www.qahc.org.au Website to promote the health and well-being of lesbian, gay, bisexual, and transgender Queenslanders
Diverse City Locations / Contact Details Info Headspace Nundah Diverse City is a life skills program for young people aged 12 to Phone (07) 3370 3900 or email 25 who identify as lesbian, gay, bisexual, transgender, intersex, [email protected] queer, questioning, asexual, pansexual or any other expression of diverse genders and/or sexualities. Headspace Woolloongabba Phone: (07) 3249 2222 or email [email protected]
Headspace Meadowbrook Phone: (07) 3804 4200 or email [email protected]
Headspace Ipswich Phone (07) 3280 7900 or email [email protected]
Diverse Voices Locations / Contact Details Info http://diversevoices.org.au/ Diverse Voices is a non-profit organisation with a focus on the wellbeing of LGBTIQ+ communities. Counselling Service: 1800 184 527 Patients can also access their counselling service, QLife, which provides a place to talk about mental health, relationships, isolation, coming out, and a host of other concerns.
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Transport Services
Cancer Council Locations / Contact Details Info Phone: 13 11 20 Offers volunteer airport or transit centre pick up services.
Central Qld Cancer Support Centre, Rockhampton Locations / Contact Details Info Phone: (07) 4932 8600 Free transport service for patients without a vehicle (48hrs notice)
Charles Wanstall Apex Lodge, Herston, Brisbane Locations / Contact Details Info Phone: (07) 3250 3555 A volunteer transport service from airport or transit centre. Qld Cancer Fund Volunteers can take you to and from hospital for your treatments and are available for shopping, craft activities, weekend outings and support
Gluyas Rotary Lodge, Townsville Locations / Contact Details Info Phone: (07) 4721 1644 A courtesy bus to and from Townsville hospital at set times during the day and is close to a bus stop for the city bus service
Patient Travel Subsidy Scheme (PTSS) Locations / Contact Details Info PTSS Guideline Part A – Information The Queensland Health Patient Travel Subsidy Scheme (PTSS) for Qld Health staff, patients and their provides financial assistance to patients and in some cases their carers, all forms: carer’s, to enable access to specialist medical services that are not available locally. https://www.qld.gov.au/health/servic es/travel/subsidies/ptss-forms A subsidy is provided to approved patients and carers (escorts) to assist in the cost of travel and accommodation to the nearest specialist medical service that is more than 50 km from the patient's nearest hospital. An application form must be completed and forwarded to the hospital nearest to the patient's place of residence. These hospitals are responsible for all aspects of patient travel, and inquiries regarding the subsidy should be directed to these facilities.
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Quick Links - Information for patients, carers and families Organisation Key info Queensland Youth Cancer Service Queensland information and support for young people aged 15-25 years about cancers, treatments, side https://www.childrens.health.qld.gov.au/qycs effects, dealing with cancer and more.
Youth Cancer Service Information for young people about cancers, treatments, side effects, dealing with cancer and more. www.youthcancer.com.au Hospital-based treatment and support services for young people aged 15 – 25 years with cancer located throughout Australia.
Cancer Council Australia Information on different cancer types, treatment, counselling and supportive care options. http://www.cancer.org.au/
Canteen National support organisation for adolescents and young adults (15 – 24 years) living with cancer. www.canteen.org.au Including education consulting, emotional and financial support.
Sony Foundation National youth cancer initiative to establish a network of age-appropriate specialised youth cancer centres and https://www.sonyfoundation.org/ services. Accommodation services also available.
Australian Cancer Trials This website contains/provides information that displays the latest clinical trials in cancer care, including http://www.australiancancertrials.gov.au/ trials that are currently recruiting new participants.
Compassionate Friends Bereavement support for parents, grandparents and siblings. www.compassionatefriendsqld.org.au
Leukaemia Foundation The Leukaemia Foundation is Australia's peak body for blood cancer, funding research and providing free http://www.leukaemia.org.au/ services to support people with leukaemia, lymphoma, myeloma and related blood disorders, and their families.
ANZCHOG (Australian and New Zealand Children’s The leading body representing the interests of children Haematology/Oncology Group) and adolescents with blood diseases and cancer, and their families. http://www.anzchog.org/
Australia and New Zealand Sarcoma Association Current research and up to date information and resources about sarcoma for patients, families and www.sarcoma.org.au carers.
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Children’s Oncology Group (COG) A National Cancer Institute supported clinical trials group, is the world’s largest organisation devoted https://childrensoncologygroup.org/ exclusively to childhood and adolescent cancer research.
Camp Quality Provides camping and recreation opportunities for teenagers with cancer. www.campquality.org.au/
Cancer.Net Video series for Teens and Young Adults. http://www.cancer.net/navigating-cancer- Fact sheets on Dealing with cancer, coping with changes care/young-adults to your body, questions to ask your Doctor. http://www.cancer.net/navigating-cancer- care/teens
Dreams 2 Live 4 Dreams2Live4 helps make dreams come true for patients aged between 17 – 97 years who are living http://dreams2live4.org.au/ with metastatic cancer. eviQ eviQ has information sheets about cancer treatments (chemotherapy and radiotherapy) and related https://www.eviq.org.au/eviQNavigationPatientsa procedures for patients and carers ndCarers.aspx
Fertility - Maybe later baby? A guide to fertility for young people with cancer. https://www.canteen.org.au/resource/a-guide-to- fertility-for-young-people-with-cancer/
Jimmy Teens Videos for cancer patients made by cancer patients. Views and experiences that the doctors can’t tell you. https://jtvcancersupport.com Supported by TCT
Lance Armstrong Foundation This organisation was founded by Lance Armstrong following his cancer diagnosis. It has a special Young www.livestrong.org Adult Alliance dedicated to the issue of young people with cancer.
Look Good Feel Better A national program which helps young people living with cancer to improve their appearances and self- http://lgfb.org.au/ esteem.
Make A Wish Foundation of Australia Grants wishes to children under 18 years who have a life-threatening illness. http://www.makeawish.org.au
MacMillan Group “I'm still me” https://be.macmillan.org.uk/Downloads/CancerInf A guide for young people living with cancer. This ormation/ChildrenAndYoungPeople/MAC6706Imsti booklet is U.K. based for 12 – 25 year olds living with llme.pdf cancer.
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National Cancer Institute Information for adolescents and young adults with cancer (US site that includes wide range of disease and www.cancer.gov/types/aya age specific information on diagnoses, treatment, prevention, clinical trials and survivorship).
Redkite An Australian cancer charity providing essential support to children and young people (0–18 years) with cancer, http://www.redkite.org.au/ and their families and support networks.
Ronald McDonald House Provides accommodation and education packages for adolescents and families of adolescents diagnosed and https://www.rmhc.org.au/ being treated with cancer.
McGrath Foundation Support provided free of charge to help families in Australia through breast cancer by providing physical, www.mcgrathfoundation.com.au psychological and emotional support.
Patient Travel Subsidy Scheme (PTSS) Patient Travel Subsidy Scheme (PTSS) provides financial assistance to patients to enable access to specialist https://www.qld.gov.au/health/services/travel/su medical services that are not available locally. bsidies/ptss-forms
Headspace Australia’s National Youth Mental Health Foundation providing support for young people going through a http://headspace.org.au/ tough time.
Reach Out ReachOut provides practical tools and support to help young people get through everything from everyday http://au.reachout.com/ issues to tough times.
Scar Stories Scar Stories Inc. is a charity that supports young adult cancer patients and survivors through creative http://www.scarstories.org/ initiatives.
Starlight Foundation and Livewire Online Community for young people 10 to 20 with a serious illness or disability, and their siblings, includes chat, https://starlight.org.au/ blogs, games, music and news. https://www.livewire.org.au/
Stupid Cancer Stupid Cancer, a US non-profit organisation, is the largest charity that comprehensively addresses young http://stupidcancer.org/ adult cancer through advocacy, research, support, outreach, awareness, mobile health and social media.
Teenage Cancer Trust UK based website that provides education and support for teenagers fighting cancer. Provides information www.teenagecancertrust.org about health facts, challenges, conferences, events and news.
Youth Beyondblue Information on where young people can find support with anxiety and depression resulting from a cancer www.youthbeyondblue.com diagnosis or treatment.
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Wesley Hospital Choices Cancer Support Centre Multidiscipline team assisting with cancer treatment decisions and advice. https://wesley.com.au/services/thewesley- hospital-choices-cancersupport-centre
Kids Helpline Helpline is Australia’s only free, private and confidential, telephone and online counselling service www.kidshelpline.com.au/teens/ for young people aged up to 25 years.
Diverse Voices Diverse Voices is a non-profit organisation with a focus on the wellbeing of LGBTIQ+ communities. http://diversevoices.org.au/
National Drugs Campaign Aims to educate young people about the negative consequences of drug use. www.drugs.health.gov.au
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