SPRING 2016

PHOENIX CHILDREN’S Banding HOSPITAL FOUNDATION Together Arizona businesses are uniting employees and customers to support our patients. Find out how. LETTER FROM STEVE

Dear Friends:

Each year we care for more than 150,000 patients — lives that are touched by the care we give at Phoenix Children’s. It’s part of what motivates so many of our community’s businesses to give back to the hospital. Many of them have employees and customers who have experienced firsthand what it’s like to have a sick child, and how imperative it is to receive expert care in a place where every single person is fighting for that child as if he or she were their own. From icon and bracelet sales, grants, golf tournaments, bake sales, employee giving campaigns, event sponsorships, days of giving, outright gifts, in-kind donations, and more, our corporate friends find unique and rewarding ways to “Band Together” to support our patients. In fact, these invaluable partnerships account for nearly one-third of all funds donated to Phoenix Children’s. Their culture of giving has enriched our hospital in countless ways. But it also brings their employees together, and shows the community that they care deeply about the lives and well-being of kids in our state. In this issue of Hopes and Dreams we wanted to share their stories, and those of the patients near and dear to their hearts…the ones who have inspired them to take our hospital under their wings. To all of our corporate partners, we thank you for your time, your efforts, and your extraordinary commitment to the lives entrusted in our care. You inspire us. Sincerely,

STEVE SCHNALL Senior Vice President & Chief Development Officer

Hopes and Dreams is published by the Phoenix Children’s Hospital Foundation. To share your comments call (602) 933-2668 or email [email protected]. If you no longer wish to receive copies of Hopes and Dreams please call (602) 933-4483 or email [email protected]. “ We are keenly aware that having a world- class children’s BOARD MEMBERS Chairman: Scott Rehorn, hospital in our RED Development, LLC state is key to Past Chairman: Larry Clemmensen, the life and Community Volunteer well-being of Vice Chair, Board Secretary: Sheila Zuieback, our daughter.” Halle Family Foundation PAGE 22 PCH President and CEO: Robert L. Meyer

PCH Senior Vice President, Chief Development Officer: Steven S. Schnall

Michael Bill, MJ Insurance

Scott Bindley, Screenwriter

Taylor Burke, Rainy Partners

Kevin Czerwinski, Merit Partners, Inc.

Jeffry King, Pete King Construction

Mark Love, LKL Partners, LLC

Jonathan Pinkus, Arizona Nutritional Supplements

David Ralston, Bank of Arizona

J. Paul Rhodes, Vestar

Alexa Schneider, Kimbell, Inc.

Chris Stamets, Western Retail Advisors

EDITORIAL Senior Vice President and Chief Development Officer: Steven S. Schnall

Director of Communications, Foundation: Cheriese Chambers

Editor: Laura Jobke Contributing Writers: SPECIAL FEATURE Banding Together Stephanie Conner, 8 Elizabeth Gonzalez How you can get involved Photography: Corporate partners teaming up with Phoenix Tim Lanterman Photography; Children’s, and the kids who inspire them to do so Elaine Kessler Photography

Event Photography: Ben Arnold Photography DEPARTMENTS 2 In Brief: News and notes from around PCHF Printing: OneTouchPoint-CCI 6 Doc Talk: Dr. Robin Blitz discusses important Design: Casual Astronaut issues with volunteer Julia Banahan casualastronaut.com 28 Your Donations Matter: Stories demonstrating the impact of your donations

38 Upcoming Events: Dates you won’t want to miss

SPRING 2016 HOPES & DREAMS 1 in BRIEF NEWS & UPDATES FROM PHOENIX CHILDREN’S HOSPITAL

1928-2016 Honoring the Legacy of Dr. Herbert J. “Tim” Louis

A caring friend of the Hospital, renowned pediatric orthopaedic surgeon, and true champion for children. That’s how we’ll remember Dr. Herbert J. “Tim” Louis. Dr. Louis was an advocate for pediatric care in the Valley for more than 50 years. He arrived in Phoenix to practice pediatric orthopaedics in 1961. In the 1980s, he was appointed to the Blue Ribbon Committee to explore the development of a freestanding children’s hospital, leading to the opening of Phoenix Children’s Hospital in 1983. As Phoenix Children’s continued to grow, Dr. Louis, his wife Julie (below), and their family were stalwart supporters. Their charitable gifts established an endowed chair of pediatric orthpaedics, helped build a state-of-the-art Newborn Intensive Care Unit and enhanced the hospital’s research and educational opportunities. Dr. Louis’ vision was to create a hospital that would attract top pediatric talent to Arizona, evolve programs and expand training. To honor the Louis’ enduring commitment to Phoenix Children’s, the Dr. Herbert J. and Julie Louis “Spirit of Hope” Award was named in their honor and is given each year to a Hospital friend and philanthropist who carries on their legacy. Passionate about pediatric orthopaedics, Dr. Louis served as the Director of the Phoenix Combined Orthopaedic Residency Training Program for 20 years. His dedication to the patients and families of the Hospital was so strong that even after his retirement he’d be seen walking the halls of Phoenix Children’s, volunteering in the Animal- Assisted Therapy program with his faithful Labrador retriever Bainbridge. Dr. Louis was a tremendous healer, an outstanding teacher, an inspiring leader and a friend to all he met. Setting an example for us all, he lived a life dedicated to helping others and has left behind a lasting legacy at Phoenix Children’s.

2 HOPES & DREAMS SPRING 2016 Heart to Heart Four-year-old Jordan, who received a heart transplant at Phoenix Children’s in 2013, met the mother of her heart donor in January. The emotional reunion celebrated Jordan’s renewed health and honored the 7-month-old donor, Lukas. Jordan presented Lukas’ Jordan and her mom Esther with Heather and the transplant team mom Heather with a special teddy bear that included a recording of her heartbeat so that Heather could once again listen to her son’s heart beat.

CUTTING-EDGE CANCER TREATMENTS

Each year about 300 children the collection and analysis are newly diagnosed with cancer of genomic and proteomic at Phoenix Children’s. Thanks information gathered by to two partnerships, they have prestigious children’s hospitals access to more innovative across the nation, the real time treatments than ever before. data sharing makes Phoenix The Chan Soon-Shiong Children’s a true leader in this Children’s Precision Medicine fight that will forever alter the Institute at Phoenix Children’s course of cancer care. Hospital serves as the epicenter Patients at Phoenix Children’s of the nation’s largest childhood also have access to cutting-edge cancer initiative - the Cancer radiation therapy through our MoonShot Pediatrics Consortium. collaboration with Mayo Clinic The pediatric arm of Cancer Arizona. Recently Mayo Clinic’s MoonShot 2020 is committed Phoenix campus opened Arizona’s to applying next generation only proton beam therapy sequencing and leveraging program, providing targeted promising immunotherapies radiation with greater control over WINNING BIG to treat pediatric cancer and doses, shorter treatment times Race car driver and “The Bachelorette” other diseases. As the hub for and fewer side effects. contestant, Arie Luyendyk, Jr. (above left), appeared on a special Bachelor Fan Favorites Week of the game show “Who Wants To Be A Millionaire.” Selecting Phoenix Children’s as his charity of choice, Arie won $100,000 for the Hospital.

Senator John McCain, Dr. Patrick Soon-Shiong and Mayor Greg Stanton at the press conference announcing the Cancer MoonShot Pediatrics Consortium.

SPRING 2016 HOPES & DREAMS 3 Riding for PCH

Bike enthusiasts and music lovers revved it up during the 4th Annual “Renee and I believe Bob’s Biker Blast. The morning began with more than 500 bikers rumbling that every child into the Hospital parking lot for the deserves access to “I Ride for PCH” kickoff ride. Patients outstanding medical waved from their windows as the organization. “Bob’s Biker Blast is an care, and Phoenix bikers rolled out to Harley-Davidson epic celebration of motorcycling and Children’s Hospital of Scottsdale for the grand opening of the riding community, but it’s also provides the the world’s largest Harley dealership. about helping those in need,” said Bob Parsons. “Renee and I believe absolute best.” Later that evening the Doobie Brothers with Michael McDonald that every child deserves access —BOB PARSONS performed before a crowd of 10,000. to outstanding medical care, and Event host Bob Parsons also took Phoenix Children’s Hospital provides the stage, pledging that The Bob & the absolute best in terms of staff, Renee Parsons Foundation would quality care and pediatric specialties.” round out funds raised during the Citing their commitment to event to make a $1 million donation philanthropy and community to the Hope Fund and Crews’n support, the Governor of Arizona and Healthmobile, breaking a Hospital Mayors of Phoenix and Scottsdale record for the most money brought in also proclaimed November 7, 2015 during an event hosted by an outside “Bob and Renee Parsons Day.”

4 HOPES & DREAMS SPRING 2016 FIRST RESPONDERS HELP PCH BREAK GROUND Phoenix Children’s honored the Valley’s emergency first responders and donors to the Condition Critical campaign at the groundbreaking for the new Emergency Department and Level 1 Pediatric Trauma Center that will open in late 2017. Chandler firefighter Bubba Cox recalled the day his son Cooper was airlifted to the Hospital’s Trauma Center after he was crushed by a utility vehicle, saying, “As a parent, I pray that your child never comes here. But as a first responder, I pray that if your child needs to be treated in a hospital, that they’re treated here.”

For more information or to help visit ConditionCriticalPCH.org.

Change lives at Phoenix Children’s when you fly

Thanks to a partnership with HMS Host and SSP America at Sky Harbor Airport, restaurants throughout the airport are collecting change for Phoenix Children’s. Change canisters are located at the checkout registers of 25 restaurants throughout the airport, including Barrio Café, Blanco, Chelsea’s Kitchen, Olive & Ivy, Delux Burger, Lo-Lo’s Chicken & Waffles and Pei Wei.

SPRING 2016 HOPES & DREAMS 5 Doc Talk: Dr. Robin Blitz & Julia Banahan

r. Robin Blitz, Director of Why do you volunteer at Phoenix The Backstreet Boy? Developmental Pediatrics, and Children’s? He’s cute! Would you like to DJulia Banahan, a volunteer, Julia: I’m going to school to become a go to lunch with him? band together each week in the nursing assistant and like being around Julia: Yes! [Laughs] Pediatric Down Syndrome Clinic. Here everyone in the office. they team up to discuss important If you were stranded on a desert issues — winning the lottery, meeting a How old are you? island and could only take one thing Backstreet Boy and maybe even starting Julia: 25 with you, what would it be? their own musical act. Julia: My phone, to listen to music. Dr. Blitz, why developmental Dr. Blitz: A bottle of really good red wine. Julia, what’s it like working pediatrics? with Dr. Blitz? Dr. Blitz: [To Julia] Notice she didn’t ask Are you sure? That’s all you get! Julia: It’s really fun! I like working here. how old I am! [Laughs] Why Dr. Blitz: That’s all I need! Dr. Blitz: Thank goodness she developmental pediatrics? I always didn’t say, “She’s a tyrant!” wanted to work with children, Name something you’ve done once and my dad told me I had to go to that you’d love to do again. medical school instead of becoming Julia: Singing and dancing. a psychologist. I couldn’t decide Dr. Blitz: I love singing and dancing too! what to specialize in, but I realized developmental pediatrics allows me If you won the lottery, what’s to be a psychologist, psychiatrist, the first thing you’d do? neurologist and physiatrist all at once, Julia: Save it in the bank. while helping children and families get what they need to be happy, healthy Not the answer I expected, and successful. but very practical! Dr. Blitz: That’s easy, because I think What’s it like working with Julia? about it all the time! I’d help my sisters BANDING TOGETHER FOR Dr. Blitz: I love seeing her happy face. pay off their mortgages. Then I’d build She works hard and listens to her a developmental pediatric center that DEVELOPMENTAL PEDIATRICS music. And I like to hear about the boys would have all of the services and she goes to lunch with! personnel needed to provide even more The Board of Visitors rallied more than 500 phenomenal care to our patients and retail and restaurant partners and thousands Do you go to lunch with boys often? families. of shoppers in support of Phoenix Children’s Julia: Just at school! during their 16th Annual Care Card event. Would you rather go shark diving, Cardholders received 20% off their purchases Name one word to describe the bungee jumping or sky diving? for 10 days, while Phoenix Children’s received other person. Both: None! a $200,000 donation to the Developmental Julia: Optimistic. Pediatrics Department from Care Card sales, Dr. Blitz: Aw, thank you! Julia is a self- What is the best compliment you’ve bringing the two-year contribution from Care advocate. ever received? Card sales to $461,000. Julia: That I’m a sweetheart and a hard If you could meet anyone, living or worker. dead, who would it be? Dr. Blitz: That’s easy, because Julia just Dr. Blitz: Golda Meir, former prime gave it to me! Optimistic — minister of Israel. that’s such a wonderful compliment. Julia: Nick Carter.

6 HOPES & DREAMS SPRING 2016 Dr. Blitz attended medical school at The Ohio State University, completing her internship and residency at Children’s National Medical Center and her fellowship at the University of Maryland Medical Center. She is a Clinical Associate Professor of Pediatrics at the University of Arizona College of Medicine.

SPRING 2016 HOPES & DREAMS 7 8 HOPES & DREAMS SPRING 2016 We’re honored to have businesses and organizations Band Together with Phoenix Children’s Hospital through corporate partnerships. In the following pages we tell the stories of the patients whose family members work for some of these organizations that are BAND making a difference. TOGETHER with Phoenix Children’s Hospital

ach year corporate partners contribute nearly individual donors to make a larger impact together. 30 percent of all philanthropic donations Since one in four children in the state will receive to Phoenix Children’s. Partnering with us care from a Phoenix Children’s provider within supports more than just our mission and the next five years, it’s likely that many of your the families we serve — it can also benefit colleagues, clients, vendors and customers have been Eyour organization, employees, clients and impacted by the Hospital. By Banding Together with even your customers. Workplace giving increases Phoenix Children’s, your business can help these camaraderie, establishes a corporate culture of children and thousands more throughout the state. philanthropy, and provides an opportunity for

For more information on Banding Together with Phoenix Children’s, please contact (602) 933-2658 or [email protected].

SPRING 2016 HOPES & DREAMS 9 BANDING TOGETHER...

Treffen & Credit Unions for Kids

. Rex is a fitting nickname for is highly involved with fundraising 10-year-old Treffen Rexius, who efforts for Phoenix Children’s, T has repeatedly faced adversity helping organize giving campaigns with fearless determination. and employee jean days. Over He was a seemingly-healthy the last 20 years, credit unions 10-month-old when a routine throughout Arizona have raised doctor’s appointment ended with more than $6.5 million for 1 Darn his mom Adrianne rushing him Cool School and Camp Rainbow, to Phoenix Children’s. Diagnosed contributing more than $600,000 with a congenital heart defect, last year alone. “Donations not Treffen underwent three open heart only help patients like Treffen, but surgeries in four weeks. Because every child who might need care at of the long periods of sedation, his Phoenix Children’s,” Adrianne says. development regressed significantly. “You never know you’ll need the But, with the fortitude of a Hospital until you do.” Tyrannosaurus rex, Treffen quickly relearned to sit up, eat and roll over. Since then he has endured several additional heart surgeries. During his last hospitalization, he kept up with his schoolwork at the Hospital’s 1 Darn Cool School, a program particularly close to Adrianne’s heart. Her employer, Landings Credit Union, is a part of Credit Unions for Kids, a collaboration of credit unions that raises money for programs at Phoenix Children’s, including the school. “After surgery Treffen didn’t want to do his schoolwork, but the teachers were so patient and encouraging,” Adrianne recalls. She

10 HOPES & DREAMS SPRING 2016 Carter & Costco

‘‘ e’ve always met the most amazing families treated at Phoenix Children’s during Costco’s campaign,” recalls Desiree Allen. “We W just never thought we’d be one.” Desiree and her husband Matt both work for Costco and have helped raise money for Phoenix Children’s during their month-long campaign each May. In June Desiree and Matt witnessed firsthand the impact of the funds they’ve helped raise over the years. Their son Carter was born with a serious heart defect that caused only half of his heart to develop. Just days after birth he began a series of three complex surgeries to allow the right side of his heart to compensate for the left side. But following the second surgery Carter went into heart failure and was placed on the transplant list. In January, he received his new heart and is doing well, showing no signs of rejection. “I am honored to work for a company that so generously gives back to Phoenix Children’s. After spending a considerable amount of time there, I have seen each and every day how our donations make a difference,” Desiree says. Through the generosity of their members, employees and a corporate match, Costco contributed more than $1.4 million to the Hospital last year, bringing their lifetime giving to more than $11 million.

MARY KATHARINE & ABC15

‘‘ orking on the ABC15 Telethon rods — that significantly reduced the for Phoenix Children’s Hospital curvature and her pain. Now a high Wgives me a great sense of school senior planning for college, Mary accomplishment,” says Ryan Katharine has been inspired by her Steward, Director of Engineering for experiences and hopes to work in the ABC15. “I’m grateful for the care our medical field. daughter received and am proud to Success stories like hers are the heart give back.” When Ryan was first offered of the ABC15 Telethon, which has raised the job and his family was relocating to more than $1 million for the Hospital Arizona, he and his wife Roseanne had in its first four years. “The patients and one main concern: finding high-quality families helped by Phoenix Children’s pediatric care for their daughter Mary entrust us with their journey, often Katharine, who had scoliosis. “After during the most difficult times of their researching Phoenix Children’s, we felt lives,” says Suzanna Stanton, Community peace of mind,” says Roseanne, who also Manager at ABC15. “It’s a privilege and Above: Mary Katharine and Ryan after surgery. works for ABC15. When Mary Katharine honor to be able to share their stories to reached seventh grade and the curvature hopefully help and inspire others.” Right: X-rays showing the curvature of Mary of her spine was an astounding 87 Katharine’s spine before degrees, she underwent two procedures and after surgery. in the Herbert J. Louis, MD Center for Pediatric Orthopaedics — a spinal fusion and an extension to lengthen the original

SPRING 2016 HOPES & DREAMS 11 BANDING TOGETHER...

Karson & Bank of Arizona

n 2011 Chad and Jovina Skogen’s youngest Ison, Karson, was diagnosed with type 1 diabetes. But just as they started to adjust to their new normal of finger pricks and insulin injections, Karson began struggling to breathe. Thinking it might be an infection, they were shocked to find out on Christmas Eve that Karson had a massive tumor in his chest, caused by acute lymphoblastic leukemia. For the next year, he underwent high-dosage EMILY & WELLS FARGO chemotherapy and radiation. Chad is Vice President and Business Banking ‘‘ Relationship Manager at Bank of Arizona. never thought I’d be living in surgery to prevent further kidney “Giving back really represents our values and Ithat neighborhood,” Wendy damage. Emily’s kidney function is culture, and is part of why I decided to work Tunison says. “But I’m thankful now stable, allowing the now-14- here,” he says. “I really appreciate that Bank I was because that’s how Emily year-old to play basketball and of Arizona does so much to help the Hospital, got the care she needed.” Wendy softball. because Phoenix Children’s is personal to and her husband had fallen In December their family joined my family.” In fact, they grew so close to one on hard times and were living 140 other walkers from Wells doctor that they named their dog Mazey, in in low-income housing when Fargo, Wendy’s employer, for the honor of anesthesiologist Dr. Aubrey Maze. their 7-year-old daughter Emily Ignite Hope candlelight walk to the Karson underwent two-and-a-half started experiencing frequent Hospital. Wells Fargo has been a additional years of chemotherapy and is now headaches. Her pediatrician partner since 1987, gifting nearly in remission and can focus on managing his diagnosed her with migraines, but $600,000 to Phoenix Children’s, diabetes. Nothing slows down this 8-year-old, when the Crews’n Healthmobile including more than $18,000 last who loves to play soccer and football, ride ATVs — Phoenix Children’s “doctor’s year. “I appreciate everything and swim. “We’re grateful he’s able to act like a office on wheels” that travels to Wells Fargo does to help Phoenix normal kid again. When we give back, Phoenix underprivileged neighborhoods — Children’s through donations Children’s is our top priority,” Chad says. parked nearby, Wendy decided to and volunteerism. I’ve seen how get another opinion. Hospital employees don’t just go After examining her, Dr. Randy to work every day; they fight for Christensen recommended that your child. As a parent, that means Emily undergo testing to ensure everything.” the headaches weren’t a symptom of something more serious. When a nurse took her blood Emily with her mom Wendy and sister Rachel. pressure, it was dangerously high — 198/145. Emily was rushed to Phoenix Children’s where she was diagnosed with kidney disease. She spent 17 days in the Pediatric Intensive Care Unit and underwent

12 HOPES & DREAMS SPRING 2016 Caleb & Vanguard

‘‘ aleb was in the Newborn Intensive Care Unit (NICU) Cand my wife had just been diagnosed with cancer; it was incredibly difficult,” recalls Caleb’s dad Mel Villalobos. After a healthy pregnancy, Mel’s wife, Miko, experienced a difficult labor. She would later find out a tumor had been blocking the birth canal, depriving Caleb of oxygen for several minutes. After an emergency C-section, he was airlifted to Phoenix Children’s, where he was treated with cooling therapy to lower his body temperature and prevent brain damage. He spent weeks in the NICU, while Miko underwent a full hysterectomy and chemotherapy. Having suffered no permanent effects, Caleb is a very active 3-year- old — and Miko is cancer free. For the last two years, Mel’s employer, Vanguard, has been supporting Phoenix Children’s through employee giving and volunteering, efforts that mean everything to Mel. “Your actions and donations help families through very difficult times,” he says. “When a volunteer gave Caleb a donated toy, I felt comfort that someone was supporting us.”

SPRING 2016 HOPES & DREAMS 13 BANDING TOGETHER...

SAMMY & MARRIOTT

“ rom the bottom of my heart, I want Fto thank everyone who helps raise awareness and funds for Phoenix Ava & KTAR/Arizona Sports Children’s, a hospital that has given my family so much,” says Nicole Duval. ince 2009, Valley radio stations KTAR and Arizona Sports have broadcast Her son Sammy was diagnosed with Sa two-day, 18-hour radiothon to raise money for Phoenix Children’s. The congenital heart disease at birth, and Arizona Sports and KTAR Give-A-Thon has raised more than $8.1 million, and was closely monitored by cardiologists last year became the second-largest event of its kind in the country. KTAR and at Phoenix Children’s. At 4 years old Arizona Sports employees rally behind the event. But for one KTAR employee, it’s his heart began to grow larger on one personal. “It’s a privilege for me to partner with other local businesses to raise side. He needed immediate surgery. money for the Hospital,” says Nick Funari, an Integrated Marketing Specialist. Within 24 hours of the procedure, his “I’m able to do a better job because of my personal experience with the hospital.” heart began beating irregularly, but Nick’s stepdaughter Ava was diagnosed with stage 4 after round-the-clock care and expert neuroblastoma, a form of cancer that grows in nerve cells, when treatment from the cardiology team, she was 18 months old. She endured high doses of chemotherapy he made a full recovery. and radiation, and underwent surgery to remove tumors from her Sammy, now 9, continues to be brain and abdomen. Due to the extreme nature of her treatments, observed for his heart condition, as Ava’s hair fell out, her teeth slowly disintegrated and eventually well as a seizure disorder, but he’s her kidneys failed. After bravely battling for three-and-a-half very active and loves to play sports. years, Ava passed away. Nicole says, “We’ll always be grateful After everything their family had endured, Nick and his wife to Phoenix Children’s for the care and Chrisie wanted to help other families battling cancer and started love they provided Sammy. As General the Arizona Cancer Foundation for Children. The Foundation strives Manager of the Courtyard Phoenix North to advance treatment options through research and also assists Marriott Hotel, I’m honored to help raise families with travel assistance. During September, Childhood Cancer funds for this hospital.” Awareness Month, the Foundation provided a $500 check and True to their “spirit to serve” “Sunshine Pack” of age-appropriate items to one family each day. philosophy, Marriott became the first Nick relishes the opportunities to give back through their corporate partner of Children’s Miracle Foundation, as well as Give-A-Thon. “I’m blessed to work for a company that Network Hospitals 33 years ago and sees the importance of helping the children of our community who are sick has raised more than $100 million or injured.” It’s that attitude from KTAR and Arizona Sports employees that nationwide and $1.3 million for Phoenix helps the community connect with the Hospital. “We are in awe of the way our Children’s. In 2015 Marriott properties employees and audiences respond to Give-A-Thon,” says Scott Sutherland, Vice hosted fundraisers throughout the President and Market Manager of Bonneville Phoenix. “It demonstrates the Valley, bringing in more than $140,000 special bond that local news and sports radio has with its audience.” for the Hospital, including $65,000 Nick is grateful to be able help the doctors and nurses he considers extended from the 14th Annual Children’s family. “I’ll always have a place in my heart for the Hospital. I sleep better at Miracle Network Hospitals Charity Golf night knowing that if Eve or Eli [Ava’s siblings] need medical attention, Phoenix Tournament hosted by Wildfire Golf Children’s would be there for them.” Club at JW Marriott Phoenix Desert Ridge Resort & Spa. Rob Steigerwald, Chief Operations Officer at Marriott Top: Nick, Eve, Chrisie International, says “We put people first and Eli with Ava’s photo. Left: Ava in 2012. and are honored to support the patients and families who are such great examples of persistence and strength.”

14 HOPES & DREAMS SPRING 2016 Angie & Jersey Mike’s

“ e’ve found that along with making Wa difference in the well-being of our community, supporting the Hospital brings our employees and customers together in a unique way,” says Duane Layton, Owner and Operator of Jersey Mike’s. Each March, Jersey Mike’s Subs holds a Month of Giving, accepting donations from customers. All sales from one Day of Giving are donated to Phoenix Children’s. But in addition to raising more than $150,000 for the Hospital over the past three years, Jersey Mike’s has seen an unexpected result from their efforts. “During the Month of Giving, employees and customers form special bonds by sharing the life-changing experiences they’ve had with Phoenix Children’s,” Duane says. Angie Rowley, a store manager, was diagnosed with severe scoliosis at age 15. She was referred to Phoenix Children’s where she underwent a complex 8-hour operation to straighten the curvature. “When I was first diagnosed, I was scared for my future and all the things I might no longer be able to do, especially ballet,” she remembers. But today, at age 22, she’s dancing, going to college and working for Jersey Mike’s, serving sandwiches and her community by giving back to the hospital that changed her life.

Jersey Mike’s employees raise funds for the Hospital during their annual Day of Giving.

SPRING 2016 HOPES & DREAMS 15 BANDING TOGETHER...

Elena & Telemundo

“ iving back to Phoenix Children’s is Gvery personal to me now that Elena has been a patient,” says Elena’s grandmother Virginia Luna. Two years ago Elena began to have migraines, which became debilitating when they triggered widespread pain throughout her body. “She was in so much pain that she couldn’t move and I couldn’t touch her,” her mom Rebecca Ruiz says. Thanks to a team that included specialists from pain management, neurology, psychology and physical therapy, Elena’s pain is managed so well that she’s able to play on her school’s basketball team. “It was heartbreaking for me to watch her in agony,” Virginia says. “I’m thrilled that my employer is partnering with the Hospital to help kids like Elena.” Virginia is the office manager at Telemundo Arizona, which will be hosting a Spanish-language telethon for Phoenix Children’s on May 18 to raise funds and awareness for the Hospital. Virginia says, “It means so much to have Phoenix Children’s in our community, and I’m excited to see the impact the telethon will have.”

Elena and her brother Elias

Tune in to Telemundo KTAZ 39 (Phoenix) and KHRR 40 (Tucson) for the Telethon on May 18!

16 HOPES & DREAMS FALL 2015 Wyatt & Fry’s Food Stores “ hen you spend weeks in the hospital with a child suffering from Wa chronic illness, you have plenty of time to think,” says Lynn Pellistri. Her son Wyatt was born with a rare congenital heart defect that caused the left side of his heart to be severely underdeveloped. As Wyatt underwent the second of three major heart surgeries, Lynn sat in the waiting room at Phoenix Children’s with just one thought crossing her mind. “If Wyatt makes it through surgery, I promise to give back to this hospital in whatever way I can.” Today Wyatt is a high school freshman with a magnetic personality who enjoys hanging out with his siblings, playing guitar and serving on the Hospital’s Children’s Advisory Board. And for the past 15 years, Lynn has kept her promise. In addition to her roles on the Family Advisory Council at Phoenix Children’s and Board of Directors at Ronald McDonald House Charities of Phoenix, she volunteers for the Hospital through her employer, Fry’s Food Stores, which has contributed more than $119,000 and countless hours of employee volunteer time to Phoenix Children’s over the past decade. “I’m proud to work for an organization that goes above and beyond to support my volunteer efforts and improve our hospital,” she says. “As a parent who has prayed for my child to have the doctors and resources needed to heal, I truly appreciate the significance of Fry’s generosity.”

NATALEE & RE/MAX

t RE/MAX, there’s a common Natalee, a 20-year-old college Aunderstanding that businesses student and daughter of RE/MAX are only as healthy as their Property Manager Cherie Lauro, is one communities. That’s one reason that of those living examples. At 8 years Valley RE/MAX agents have teamed old, Natalee was diagnosed with a up with Phoenix Children’s. Making brain tumor. She underwent brain donations to the Hospital in their surgery to remove the tumor, but clients’ names after a home sale, afterwards was unable to walk and agents contributed more than $67,000 talk, requiring years of rehabilitation. last year and $2.1 million over the During her treatment and recovery past 24 years. “Children’s hospitals Natalee found comfort from the need our support to continue to therapy dogs, and is now studying provide world-class care, research to become a social worker, with the and education for families,” says hopes of someday being a part of the Mike Reagan, Senior Vice President Animal-Assisted Therapy program of Business Alliances at RE/MAX. at Phoenix Children’s. “During the “We hear the personal stories from time when your child is fighting, you our agents about their loved ones build relationships that you can’t and clients and can actually see living even describe,” Cherie says. “It’s very examples of how our donations are natural for us to remain involved and spent.” want to give back to the hospital that saved her life.”

SPRING 2016 HOPES & DREAMS 17 BANDING TOGETHER...

CHRISTINE & URUN LLC

ince their first race in 2013 URun LLC has donated more than $250,000 to SPhoenix Children’s and employees have lent their support to events like Ignite Hope and the ABC15 Telethon. We spoke with Bill and Valerie Spata, Co-Founders of URun, about why they Band Together with Phoenix Children’s.

What was the inspiration one runner and one race at a time. healthy 16-year-old — an all-star behind URun? We work with national and local soccer player taking honors classes. We wanted to host fun, unique events charities, with a passion and drive to like Blacklight Run, Foam Glow 5K, support Phoenix Children’s Hospital. What does Banding Together with Bubble Run and So Glow 5K to raise Phoenix Children’s mean to you? funds and awareness for children’s Why Phoenix Children’s? The support, guidance and care that hospitals and childhood cancer After transferring Christine’s care our daughter received at Phoenix research. We’re committed to giving to Phoenix Children’s, doctors Children’s serve as the foundation of back to the community by donating discovered that Christine had been URun. Through our partnership we’re a large portion of the proceeds from misdiagnosed and that she actually able to express our gratitude and each race. had a very treatable autoimmune change people’s lives, just as Phoenix disorder. She received exceptional Children’s changed ours. Why is it so important to you treatment and is now a thriving, to give back? Our family was rocked to its core when our daughter Christine was diagnosed with acute lymphoblastic leukemia at 4 years old. Ryleigh & Walmart/Sam’s Club Understanding that URun families are deeply affected by pediatric am’s Club and parent company Walmart share the belief that every cancer and other serious illnesses Schild deserves the chance to live better. That’s why they have and injuries, we want to help — supported Children’s Miracle Network Hospitals for the last 29 years, raising more than $750 million for CMN Hospitals and $10.5 million for Phoenix Children’s. And while employees support the Hospital year- round through bake sales, jeans days, fundraising competitions and volunteer opportunities, the bulk of their donations have been raised one dollar at a time through their annual campaign. “When our associates ask members and customers to donate a dollar to Phoenix Children’s, they know they are making a difference in many children’s lives, including my daughter’s,” says David Mitzel, Market Manager for Sam’s Club, whose daughter Ryleigh was diagnosed with acute lymphoblastic leukemia at age 6. “We always say ‘one associate asking one customer for one dollar at a time makes miracles happen.’ As my wife and I can attest, it truly does.” Ryleigh underwent 26 months of treatment and continues to be monitored in the Center for Cancer and Blood Disorders but is cancer free. Three years post-treatment, the now-11-year-old loves to play soccer and aspires to be a pediatric cancer nurse.

“We’re committed to giving back to the community by donating a large portion of the proceeds from each race.” —Bill and Valerie Spata

18 HOPES & DREAMS SPRING 2016 Ryleigh at 11

SPRINGFALL 20162015 HOPES & DREAMS 19 BANDING TOGETHER...

Apollo Education Group

“

HOENIX CHILDREN’S HOSPITAL PROVIDES INVALUABLE SERVICES TO THE MOST VULNERABLE among us — our children,” said Greg Cappelli, Apollo Education Group Chief Executive Officer. “Apollo Education Group is proud to support such an honorable organization and P commends its commitment to high quality care that helps children and their families in true times of need.” Since 1990 Apollo Group/University of Phoenix and their employees have given more than $1.1 million, dozens of scholarships and thousands of volunteer hours to Phoenix Children’s. Last year alone, the organization contributed more than $300,000 in cash and in-kind donations, including the presenting sponsorship of Beach Ball. Meet some of the inspiration behind why they Band Together for the Hospital.

Santino Erica

“As an employee volunteer, I have the chance to help the Hospital that helped my family,” says Elda Dudley, a Senior Student Records Specialist at University of Phoenix. Elda was heartbroken to find out during her third trimester that her daughter Erica’s kidney was not developing properly. She found comfort after meeting with doctors at Phoenix Children’s. Erica underwent surgery when she was just 1 month old, and her kidney has been functioning well ever since. The now-3-year-old just began preschool, and when she’s old enough to appreciate it, Elda plans to share with Erica the stuffed kangaroo hospital staff gave her prior to surgery. “Phoenix Children’s made a difference for my family and I love being able Born three weeks early, Santino has two rare conditions that to have that same impact on other families.” affect his joints and the formation of his brain. After initially doing well, he was rushed to Phoenix Children’s at 2 months old when he was having difficulty breathing and eating. “Watching your child fight for his life is the toughest thing any parent can face,” says his dad Bobby Gomez, an Accounts Receivable Specialist at University of Phoenix. Though he has battled through many procedures and hospitalizations, Santino, now 2, has made huge strides. Bobby says, “We still have several milestones ahead of us that we know he will meet with the help of his team. We feel blessed to live near the best children’s hospital in the country.”

20 HOPES & DREAMS SPRING 2016 We are blessed to live near the best children’s hospital in the country.

Serina

“Phoenix Children’s Hospital took care of my daughter when I feel I failed her. Serina was 2 years old when she began to have what I thought was a seizure. I called 911, and she was rushed to the Emergency Department, setting in process a series of events that would change our lives forever. I was a young working mother, blind to the fact that domestic violence was taking place in my home. I entrusted the man I loved with my daughter’s care while I worked, and Serina paid the ultimate price. She suffered a broken jaw, bruising and hemorrhaging. But the staff at Phoenix Children’s not only took care Brendan, Caitlin, Nick and Nathaniel of Serina; they opened my eyes to what was happening and helped us rebuild our lives. For Michael Draper and his wife Nicole, Phoenix Serina is now a strong, determined, 12-year- Children’s has been a second home for the last decade. old — president of her student council and on Four of their five children have spent significant time as the basketball team. I am eternally grateful to patients: Brendan was born with a hormone deficiency Phoenix Children’s for everything they have and is treated in the Endocrinology Division; Caitlin done for my family. As a donor and volunteer, I was diagnosed with juvenile rheumatoid arthritis and dedicate my life to helping Phoenix Children’s receives care from the Division of Pediatric Rheumatology; and victims of domestic violence.” and twins Nick and Nathaniel receive treatment for — Erika Seeley, University of Phoenix nuclear mitochondrial disorder and see specialists in Institutional Liaison neurology, cardiology, pulmonology, gastroenterology and endocrinology. “Phoenix Children’s has some of the most intelligent, kind, dedicated, and all-around amazing people we’ve had the privilege of knowing,” Michael says. Having worked at Apollo Group, he is impressed with their level of community support. “It is especially meaningful to my family that Apollo supports Phoenix Children’s, given the strong emotional connection we have with their doctors and staff.”

SPRING 2016 HOPES & DREAMS 21 ven after all she’s been through, Emilia is a typical 5-year-old who loves playing with Legos and reading. She’ll start kindergarten this year, and her mom Mary knows what she might be up against because she Elooks different than other children. But Mary realizes she’ll get through it, relying on the same spunk that has gotten her through a diagnostic journey. Just 5 pounds at birth, Emilia never ate well. She was slow to gain weight, and then, when she was 2 months old, she refused to eat. Obviously concerned, her parents took her to see a gastrointestinal specialist The physician leveled with them: “Your daughter needs to be in the hospital.” Alarmed, David and Mary Crowell took their frail daughter to the Emergency Department at Phoenix Children’s. Emilia was admitted right away, and the family met Dr. Jeffrey Weiss, a hospitalist who offered them encouragement — and stayed long after his shift ended to ensure the Crowells were taken care of that night. Then, he offered them a piece of advice they’ll never forget — that finding the root cause of Emilia’s problems would likely be more akin to a marathon than a sprint. At the time, they had no idea how right he was. After two weeks in the hospital and numerous tests, Emilia returned home. She didn’t have a diagnosis, but she was receiving the nutrition she needed through

Diagnosing a complex health condition can be more like a marathon than a sprint, and it takes patience to finish the race. MAKING STRIDES

22 HOPES & DREAMS SPRING 2016 a feeding tube. They continued with testing And the marathon continues. when new symptoms arose: vomiting and “Her life expectancy is unknown. No diarrhea. one in the world has her exact symptom “We couldn’t figure out how to stop it,” pattern,” Mary says, so there’s no one Mary says. “Every month, there would be to look to as an example. “Because it’s a a week where her whole body would just progressive disease, the worst diagnosis is drain everything.” When she was about the pulmonary hypertension.” 15 months old, the diarrhea and vomiting But all the Crowells can do is move were so severe that they had to take Emilia forward. They talk to researchers who to the emergency room for dehydration. are studying Emilia’s specific genetic In walked Dr. Weiss. “We jumped for mutation and see pulmonary hypertension joy,” Mary recalls. After a day of IV fluids, specialists. Emilia returns to Phoenix Dr. Weiss asked them: “What test has not Children’s for gastrointestinal care and been done?” Mary remembered a GI doctor emergency treatment as needed. suggesting they consider heart-related from genetic testing: Emilia was diagnosed “We are keenly aware that having a world- testing, including an echocardiogram. with an early aging syndrome called neonatal class children’s hospital in our state is key “Does she have any symptoms?” Dr. progeroid syndrome. Specifically, the test to the life and well-being of our daughter,” Weiss asked. identified a mutation in the CAV1 gene, which Mary says. “And we’re eternally grateful “No,” Mary replied. “But it’s the only is linked to Emilia’s pulmonary hypertension for Dr. Weiss’ thoughtfulness, wisdom and thing we haven’t done.” and lipodystrophy, a condition affecting the genuine desire to help our child.” The test revealed pulmonary way the body processes and stores fat. As she grows older, Mary knows that hypertension, a rare, progressive disease. There are fewer than 10 people in the things won’t always be easy for Emilia, A type of high blood pressure, it can be world diagnosed with this error. “And physically or emotionally. deadly, especially if it’s not caught early. even among people who have the same “She’s going to have to put up with “When it comes to kids with pulmonary error, their symptoms are different,” Mary some teasing,” Mary says. “But she’s really hypertension, a lot is unknown,” Mary adds. “Some have the lipodystrophy but feisty. And I think this personality is going says. “If you are symptomatic as an adult, not the pulmonary hypertension. Others to serve her well.” you’re in heart failure. And finding it before have pulmonary hypertension but not The nature of the marathon has taught you’re symptomatic is a miracle.” lipodystrophy. Emilia happens to have Emilia’s parents a little something too. The early discovery of this condition was both — and she’s the only one.” “When you’re in the midst of it, you think vital, because Emilia was able to take less Uncovering Emilia’s underlying you’re going to solve things overnight. invasive medications than the next level of diagnosis took time. Researching and And when that doesn’t happen, that’s treatment, a 24-hour IV. understanding it — and finding others who hard to come to terms with,” Mary says. But the diagnosis, though it was a lucky understand it — took more time still. “Dr. “But the smallest developments were find, didn’t address Emilia’s gastrointestinal Weiss was so prophetic about it being a huge, and we’ve learned to celebrate the struggles. Those continued. When marathon,” Mary says. little things.” Emilia returned to Phoenix Children’s for a procedure related to her pulmonary hypertension, she was in the midst of an episode of diarrhea and vomiting. BANDING TOGETHER: EMILIA & SRP Emilia was admitted again, and doctors used a scope to examine her It’s children like Emilia who inspire David’s employer, SRP, to support Phoenix gastrointestinal tract, revealing something Children’s. “Helping to provide quality, state-of-the-art healthcare for our more than her previous blood tests didn’t show: celiac 5,000 employees and their families is paramount,” says Mark Bonsall, SRP’s General disease — an extreme sensitivity to gluten. Manager and Chief Executive Officer. Over nearly three decades, SRP has donated “Unlike many parents given this more than $1 million to Phoenix Children’s — from supporting the Hospital’s water diagnosis, we were ecstatic,” Mary says. “As safety efforts, to providing funding to the Southwest Valley Center Specialty and soon as we stopped feeding her gluten, the Urgent Care Center. SRP employees also contribute to the Hospital through their cyclical vomiting and diarrhea stopped.” Boosters Campaign, giving more than $100,000 last year. Bonsall, a past Chairman But a key piece of the puzzle was still of the Hospital’s Board of Directors, says, “We recognize the enormous impact that missing. access to high quality pediatric medicine has on the health and long-term outcomes More than a year later, when Emilia was of our community’s youngest patients. In the most direct sense, Phoenix Children’s has two-and-a-half, they received the results positively impacted the lives of many of our employees, customers and their families.”

SPRING 2016 HOPES & DREAMS 23 A LEAP OF FAITH Cassidy had to fight to beat the odds. Her family and Phoenix Children’s team fought alongside her.

S HE SAT FACE TO FACE WITH A NEONATAL SPECIALIST, But Cassidy was born with VACTERL Dan Davis had to come to grips with the seriousness of association, various birth defects that affect anatomy including the spine, heart, his daughter’s condition. esophagus, kidneys and limbs. Though A Having twins is overwhelming for most couples, but not all babies are affected the same way, Cassidy’s case was severe: she was born with the Davis family learned from ultrasounds that while their a disconnected esophagus, fluid around her son was developing normally, their daughter would be born brain, a damaged kidney, a heart defect, with physical deformities and likely a range of other major misshapen vertebrae, severely clubbed arms and missing fingers. She was just 3.7 pounds, health problems. Dan and his wife at the time made the but she was all fight. And fighting with her decision that they wouldn’t give up on their daughter. was the surgical team at Phoenix Children’s. At just 2 days old, Cassidy underwent her “We took a leap of faith,” he says. first surgery. Dr. David Notrica, a surgeon The twins were born at 32 weeks, and both babies were and the Hospital’s Trauma Medical Director, attached her esophagus to her stomach, while immediately transported to Phoenix Children’s. Colton was a neurosurgeon placed a shunt to drain excess born small, at 4.6 pounds, but other than minor issues with fluid around her brain. Next, Dr. Notrica feeding typical of preemies, he had no health problems. He performed a bypass of the small intestine. Her body was fragile, leading to went home at 6 weeks. complications. Cassidy caught an infection,

24 HOPES & DREAMS SPRING 2016 and during the small intestine bypass, her lung doctors and nurses to leave. “I wanted to talk to collapsed and she had to have a chest tube her alone. I held her hand, and I told her it was inserted. OK if she let go — that it would be OK no matter Cassidy underwent another surgery to place what.” That, he says, was another turning a new shunt, and following the procedure, the point. She was clearly a fighter. Davis family received the worst news to date: There were times in the hospital when BANDING TOGETHER: Cassidy was unlikely to survive – and if she did, hope seemed lost. “We didn’t think we’d she’d need intense medical attention for the make it home with her,” Dan says. But with CASSIDY & COX rest of her life. the support of the nurses, doctors and staff of The Davises prayed. And Cassidy kept on the Newborn Intensive Care Unit at Phoenix ENTERPRISES fighting. Dr. Notrica fought too. “He’s the one Children’s, Cassidy and her family made it who saved my daughter’s life,” Dan says. through every surgery, every life-threatening Dan Davis is thankful to the staff Cassidy needed to be intubated to open her scare. at Phoenix Children’s for giving airway so she could breathe, but her previous “I can’t say enough about how supportive his daughter a life far beyond surgeries complicated the situation. Dr. Notrica they were,” Dan recalls. what was expected. He’s also performed a rare surgical procedure called an After 112 days, the Davises took their grateful to have had the support aortopexy to open her airway and allow her to daughter home. Even then, a long road lay of his employer of more than 18 breathe. This success was a turning point. ahead. But they made it through. Cassidy grew years, Cox Communications. But the fight was far from over. In the early stronger. “There is a sense of pride months, Cassidy went into cardiopulmonary When she was 9 months old, she had working for Cox Communications, arrest multiple times a day. “When she coded, surgery to place a coil in her heart to close a with the support and resources we watched them take out the paddles to hole. Three months after that, she had surgery Cox provides to organizations revive her,” Dan remembers. “It was so brutal to remove a cystic kidney. within the community like watching a tiny baby go through that.” Born without a main forearm bone and Phoenix Children’s,” Davis says. Finally, Cassidy’s parents decided she missing thumbs, Cassidy also has undergone Cox has donated more than shouldn’t have to endure that struggle several procedures on her limbs. Around her $2.3 million to Phoenix Children’s, anymore. “We let the staff know that the only first birthday, she started the long surgical funding projects that empower way we wanted them to revive her moving process of having her arms straightened and patient families through forward would be through medication,” Dan lengthened. education and access to mobile says. And to treat severe scoliosis, she’s had devices. “We are proud of our He accepted the possibility that his daughter numerous spine surgeries as well. The titanium ongoing partnership and support might die. “It was the hardest thing I’ve ever rod that’s in her back is scheduled to be of Phoenix Children’s, not only done,” Dan says. In that moment, he asked the removed this spring, at which time several of in the technology services Cox her vertebrae will be fused together. provides, but also through grants Dan estimates that she has endured made by our employee-driven roughly 40 surgeries. Cox Charities that have funded Now 11, Cassidy continues to programs such as Connected visit Phoenix Children’s regularly Patient and the Journey Board for specialized care. But she’s not App,” says Susan Anable, Vice defined by her health challenges. President of Public Affairs, Cox She’s a kid who loves cheerleading, Communications Southwest. reading, art and school. She aspires “The team at Phoenix Children’s to be a doctor or veterinarian. continues to take good care of “Cassidy is the most inspiring Arizona’s children and families, person I have ever encountered. and we are proud to support She has the spirit of a superhero their work.” and the heart and soul of an angel,” Dan says. “She’s the sweetest, most sincere, loving, caring little girl any parent could ever dream of.” He has no doubt his kind, smart, resilient daughter will accomplish whatever she wants in life. There’s also little doubt that Cassidy’s middle name is perfect: Faith.

SPRING 2016 HOPES & DREAMS 25 BANDING TOGETHER...

BAND TOGETHER CAMPAIGNS

ITH A SPECIAL PROMOTION OR CAMPAIGN, YOU CAN SUPPORT OUR PATIENTS AND promote your business at the same time. It’s a great way to engage your customers in making a difference in our own community. We can help create a custom W campaign for your company. Other possibilities include: • Ask customers to make a donation to • Hold a jeans day when employees make Phoenix Children’s at the register to a donation to Phoenix Children’s in receive a PCHF wristband or paper icon. exchange for wearing jeans to work.

• Select a day or month to donate a fixed • Donate the proceeds from a grand percentage of proceeds to the Hospital. opening day, week or weekend to the Hospital. • Collect change for the Hospital. • Select Phoenix Children’s as the • Donate proceeds from a specific beneficiary of a company event. menu item or product back to Phoenix Children’s. • Sponsor one of the Foundation’s events.

DID YOU KNOW THAT “DOING GOOD” HELPS BUSINESSES DO WELL? 9 in 10 58% consumers are likely to switch brands of global consumers are willing to one associated with a good cause, to pay more to companies committed to given similar price and quality. helping increase child survival rates.

$1 = $6 84% The majority of customers prefer to of consumers consider a do business with a company that is doing company’s social and environmental good. In fact, for every $1 a company commitments before deciding what gives to a charitable cause, $6 is earned. to buy or where to shop.

Sources: *2015 Cone Communications/Ebiquity, Global CSR Study, **2014 Nielsen Company, Doing Well By Doing Good

26 HOPES & DREAMS SPRING 2016 Band together with Phoenix Children’s today: 602-933-2626

SPRING 2016 HOPES & DREAMS 27 YOUR DONATIONS MATTER

GET FIT, STAY HEALTHY KohlsFit at Phoenix Children’s Hospital hosted Battle of the Barriers — a fun day of obstacles and outdoor activities — for more than 2,000 kids and families. The KohlsFit program was created to help kids and families lead healthy lifestyles. Kohl’s Trimming the Trees presented Phoenix Children’s with a grant of more than Fifteen professional interior The trees were revealed wreaths decorated by mall $233,000 in support of the designers decorated during a cocktail reception retailers and the sale of program. Phoenix Children’s Christmas trees in themes and remained on display at custom-made ornaments receives funds from the sale ranging from Marvel Scottsdale Fashion Square provided by PHX Architecture, of Kohl’s Cares products sold Superheroes to Christmas where shoppers could place bringing in $58,000 for the in Kohl’s stores across with the Queen during the their bids. Additional funds Hospital. the country. annual Festival of Trees. were raised by auctioning Special thanks to sponsors and designers: Ace Hardware, Change by Design, Charles Glover Interiors, Debra GOLFING FOR GOOD May Himes Interior Design, Sabrina Goin, Esther Boivin McLane Foodservice Interiors, Palm Design Group, hosted the 14th Annual Pulte Homes, Quite Lovely Duel in the Desert Design, Loewen Design Group, golf tournament at the Scottsdale Modern Luxury, Brown’s Classic Autos, PHX Ocotillo Golf Resort Architecture, Syndicate in Chandler, raising more PR, The Team – Russ Lyon than $20,000. McLane Sotheby’s International SunWest hosted their Realty, Precision Delivery, annual golf tournament DeCesare Design Group, at Grayhawk Golf Club, Robert Graham, Riley Fawcett, IMI Design Studio, Camelback bringing in an additional Interior Design, PHG Design & $60,000 for the Hospital. Development and Scottsdale Fashion Square.

28 HOPES & DREAMS SPRING 2016 Condition Critical The Condition is Critical to build a new Emergency Department and Level 1 Pediatric Trauma Center. Currently our emergency and trauma teams treat more than 83,000 patients each year in a space built to accommodate COOL TREATS FOR A CAUSE 22,000. The community is responding to the call Phoenix Children’s patients for help, and we are grateful to all donors who have eagerly taste-tested Blizzard contributed to the campaign, including recent gifts of: treats as Valley-wide Dairy Queen restaurants donated $100,000 from the APS Foundation; $100,000 from the $1 or more from each Blizzard Margaret T. Morris Foundation; and $75,000 from the sold on Miracle Treat Day to JW Kieckhefer Foundation. the Hospital. Dairy Queen also collected donations during a Free Cone Day in celebration of their 75th Anniversary and sold paper balloons, raising nearly $75,000 for Phoenix Children’s.

LEAVING A LEGACY Last year Phoenix Children’s received nearly $2.5 million from donors in the form of planned gifts, the majority of which came from wills or bequests. Other generous supporters chose to name Phoenix Children’s as a beneficiary of their retirement assets or created split interest gifts, where they receive some income for the rest of their lives, and the remainder is left to the Hospital. While many of these charitable supporters Leading Innovation wished to remain anonymous, their donations made a More than 150 guests attended Leadership Circle members programs and projects. At the significant impact on patients this year’s Leadership Circle have been instrumental Annual Luncheon on April 14, and programs throughout the Launch at the home of in bringing cutting-edge members heard proposals Hospital. For more information Char and Bill Hubble. Chair technology and research and voted on how their funds on leaving your legacy at Jill Krigsten was joined by to Phoenix Children’s. Each will be used throughout the Phoenix Children’s contact patients who shared how member gives a minimum Hospital. For more information (602) 933-2678 Leadership Circle gifts have donation of $1,000, with many visit PCHLC.org. or LegacyGiving@ changed their lives. giving more, and their gifts phoenixchildrens.com. are pooled to benefit specific

SPRING 2016 HOPES & DREAMS 29 PARA LOS NIÑOS Broadcast live from Metrocenter Mall, the Entravision Para Los Niños Radiothon featured broadcast team Armida & La Flaca, who encouraged listeners to make donations by phone or in person, raising more than $160,000 for Phoenix Children’s. A Ray of Hope Special thanks to sponsors More than 2,500 people shared their stories of hope. Bank of Arizona, The Container Metrocenter and Meineke. showed their support The event raised more than Store, Big O Tires, Culver’s, for patients and families $360,000 for the Hospital’s Desert Schools Federal Credit spending the holidays at Hope Fund. Walkers also Union, Grand Canyon Title Phoenix Children’s during donated more than $20,000 Agency, LabCorp, Muscular the 4th Annual Ignite Hope in toys for patients to open Moving Men, Rubio’s, Statistics candlelight walk, presented on Christmas day. & Data Corporation, Valley of by Albertsons. When the the Sun Active 20-30 Club/ record-number of walkers Special thanks to our Valley Kids Foundation, Whole arrived at the Hospital they presenting sponsor Foods, CBRE, Interstate were introduced via video Albertsons, media partner Batteries, Pepsi, Scottsdale A SCRAPPING SUCCESS to the patients inside who 12 News, and corporate Fashion Square, Tour West waved their own candles sponsors AmTrust Bank, America, The Phoenix Plaza Thanks to a $50,700 gift from down at the crowd in Feld Entertainment and RED and Zoyo Neighborhood the Ottosen Family Foundation, appreciation. Before the Development. We appreciate Yogurt. our Child Life team has a lighting of the Phoenix partners Bell Honda, Gila River new tool to make hospital Children’s Christmas tree, Casinos, Pizza Hut, Odyssey stays more comfortable: patients performed and Services Corporation, URun, medical scrapbooks. These customized scrapbooks, offered in English and Spanish, explain medical terminology, ‘FUN’DRAISING while providing interactive AT ITS BEST activities, opportunities for self-expression and Proving that fundraising really educational resources. Child should be fun, CDW hosted a Life Specialists will be able variety of engaging employee to distribute nearly 11,000 of events in July, from a pizza these medical scrapbooks to eating contest and raffle, patients and families. to Wii Bowling and a golf tournament, bringing in their largest total to date – nearly $37,000 – for the Hospital.

30 HOPES & DREAMS SPRING 2016 YOUR DONATIONS MATTER

Sports Super Heroes Step Up Twenty-eight student athletes, ages 12 to 17, teamed up to create a Youth Sports Philanthropy Board, the Sports Super Heroes. The ambitious teens raised nearly $40,000 for the Condition Critical campaign to build a new Emergency Department and Level 1 Pediatric Trauma Center.

Gifts of Love Nine area Love’s Travel Stops & Country Stores sold Children’s Miracle Network Hospitals icons, and the Joseph All in for PCH City location hosted Everyone was a winner for leukemia research for Life has raised more their second annual golf at the 10th Annual at the Center for Cancer than $600,000 for the tournament, bringing in Children’s Fight For Life and Blood Disorders. Center for Cancer and nearly $60,000 for the Casino Night. More than The event was hosted by Blood Disorders. hospital.

330 attendees rolled Javier Soto of 3TV and Special thanks to event the dice for our patients featured a silent auction, sponsors Capstone Pinto at Scottsdale Resort at wine pull, dinner and Valley Mining Corp. and McCormick Ranch to casino games. In its 10 Agave Pediatrics. raise more than $78,000 years, Children’s Fight

SPRING 2016 HOPES & DREAMS 31 FEEL GOOD PARTNERSHIP An invaluable sponsor and partner of the Hospital, Harkins Theatres donated the proceeds from sales of their Loyalty T-shirts, as well as gifts for patients, fundraising screenings, patient and family movies, raffle items and much The One & Only Beach Ball more. Last year Harkins contributed nearly $124,000 More than 800 guests decked and the state’s one and only program the fiesta continued to the Center for Cancer out in Mexican Riviera chic Level 1 Pediatric Trauma as guests danced the night and Blood Disorders and joined us under the stars Center. Teenagers Javonte and away to music by DJ Rani “g.” more than $1 million of in- at Jet Linx Scottsdale for Mackenzie shared how their Special thanks to Life Preserver kind support. the 23rd Annual Beach Ball, lives were saved at Phoenix sponsors UnitedHealthcare chaired by Blair Moffett and Children’s, and the Kemper & and University of Phoenix and Taucha Silk (above). Guests Ethel Marley Foundation was Life Saver sponsors Alivia were transported to Cabo presented with the Dr. Herbert Franzone Hair, American San Lucas, and the “One & J. and Julie Louis Spirit of Airlines, ANDERSON Advertising, Only” theme was especially Hope Award in recognition of Discount Tire, Ensemble Real fitting, as the event raised their generous $10 million gift Estate Solutions, Freeport more than $1 million for our to the Emergency Department McMoRan, Head to Toe Therapy new Emergency Department and Trauma Center. After the and MJ Insurance.

DRIVING SUCCESS KEEPING KIDS SAFE AT HOME Bell Honda donated $100 Valley Toyota Dealers made a to Phoenix Children’s for $105,000 donation to sponsor every car sold during July. the Kids Safe at Home injury prevention program and Water The dealership, a title Watchers water safety program. sponsor for Ignite Hope, Combined with grants from engaged customers and Toyota’s corporate headquarters, employees to join in and the carmaker’s lifetime giving to contribute to the effort, Phoenix Children’s has reached raising more than $60,000. more than $1 million.

32 HOPES & DREAMS SPRING 2016 YOUR DONATIONS MATTER

BEST PALS The Patient and family Alumni Leadership (PALs) group is a philanthropic team of former patients or family members who give back to the Hospital. Last year PALs raised more than $28,000, including a $15,000 grant from the BHHS Legacy Foundation, and awarded grants in support of pain management and medical education programs.

Miles That Matter Last year Miles That Matter participants and MVPs (Most Valuable Patients) joined forces with popular races across the Valley to Off to Camp raise $80,000 for Phoenix Children’s. Competitors ran, Each year more than 100 patients treated in by the family of 9-year-old cancer survivor swam and biked in the Tempe the Center for Cancer and Blood Disorders Elizabeth (pictured above right with Camp Tri, El Tour de Mesa, Grand attend Camp Rainbow, where they can Director Maureen Salloom) raised $45,000 Canyon University’s Run to Fight Children’s Cancer, escape from daily life as a patient and a for Camp Rainbow through participant Turkey Day Run, Moon Valley bond with other children who have faced fundraising for the Disneyland 10K. Grasshopper Bridge 5K, similar battles, while horseback riding, Additionally, Credit Unions for Kids donated Bubble Run, Foam Glow and swimming, and canoeing. Camp Rainbow is nearly $150,000 from their fundraising Scottsdale Challenge. Visit funded solely through donations, relying on efforts, the Herbert H. and Barbara C. Dow PCHMilesThatMatter.org to see charitable support to send patients to camp Foundation made a $15,000 contribution, and races that support Phoenix Children’s in 2016. free of charge. The EBB Foundation, started K2 Adventures Foundation donated $3,000.

SPRING 2016 HOPES & DREAMS 33 AN ALL-STAR FUNDRAISER In July and August, Carl’s Jr., a Give-A-Thon sponsor, asked customers to “Be An All-Star for Kids” by making a donation of $1 or more, bringing in more than $25,000 for Phoenix Children’s.

A Hole in One More than 250 golfers hit the record-setting $365,000 for Delta Diversified, NYCB & greens for the 17th Annual the Hospital’s Hope Fund. Amtrust Bank, Brown & Phoenix Children’s Hospital Brown Insurance, Cresa Golf Tournament at Troon Partners, Billing Tree Payment North Golf Club. Getting into Special thanks to title Solutions, GoodLooking Play On the swing of things, golfers sponsors CBRE and MJ Healthcare, DPR Construction, The Phoenix Alumnae Chapter and their guests gathered at Insurance and additional Patrick Bowman with of Tri Sigma, supported by a the Night BeFORE Party at Two sponsors Ensemble Real People’s Mortgage, Scottsdale matching grant from the Sigma Brothers Tap House & Brewery. Estate Solutions, Kitchell, Insurance, Polsinelli, Alliance Sigma Sigma Foundation, The tournament, silent and live Talking Stick Resort, Bank of Arizona, Pacific Office contributed $25,000 to provide auctions and helicopter golf Infiniti of Scottsdale, MGA Automation, Troon Golf, PING, enhancements for the Child ball drop raised a tournament Pediatric Home Healthcare, and Troon North. Life playroom at Phoenix Children’s inpatient unit at Dignity Health Mercy Gilbert Medical Center. These funds will allow the Hospital to IN THE SPIRIT Each Halloween season, Spirit purchase necessary storage, Halloween stores across the Valley host in- seating, activity space, media store fundraising campaigns through icon sales. equipment, games and toys for Proceeds benefit our Child Life Department. Last patients and their families. year local stores contributed more than $92,000, hosted a Halloween party in The Zone and donated costumes to patients to ensure that kids spending the holiday in the hospital would have a happy Halloween.

34 HOPES & DREAMS SPRING 2016 YOUR DONATIONS MATTER

IT’S IN THE CARDS The artwork of five patients treated at the Center for Cancer and Blood Disorders adorned our annual holiday cards. Cards were sold online and at local retailers. Corporate partners purchased exclusive rights to use a custom piece of artwork for the holiday season. Now in its 29th year, the holiday card program raised nearly $68,000 for the Center.

Thank you to the following retail sponsors: Billing Tree, FASHION-FORWARD Blue Cross Blue Shield of PHILANTHROPY Arizona, Freedom Financial Network, University Mechanical Chico’s, White House|Black & Engineering Contractors, Market and Soma Intimates Taylor Morrison, Cobblestone sold limited edition items Steps in the Right Direction Auto Spa, Curacao, and Del Sol and encouraged customers to Furniture. make donations at the register More than 250 participants patients Ethan (above) and during spring and holiday moved one mile per day Joseph served as national campaigns, raising nearly for 27 days, completing fundraising coaches for the $32,000 for Phoenix Children’s. a marathon – plus one event. mile For The Kids – and Special thank you to Mountain raising over $55,000 for the West Credit Union Association Hospital during the 2nd and Credit Unions for Kids Annual Miracle Challenge. for your support of Miracle Phoenix Children’s Challenge.

GENEROUS GAMERS ‘ACE’ING PHILANTHROPY Nearly 800 gamers participated in Extra Life by playing video, online, Ace Hardware and the Ace board and card games for 24 hours RSC contributed nearly straight. Boosted by the efforts of the $100,000 to Phoenix Children’s Phoenix Guild, the gaming community last year through numerous raised more than $47,000 for Phoenix campaigns, including selling Children’s. ornaments and limited-edition buckets, collecting change, and hosting fundraisers.

SPRING 2016 HOPES & DREAMS 35 EMPLOYEES OUR PATIENTS The heart our employees have for our patients shows not just in their work, but their charitable giving. During Fashionable Fundraising the 2015 We Got HEART! employee giving campaign, More than 200 girls matching the American Special thanks to the 2,000 employees and contract from around the Valley Girl doll she was carrying. following sponsors and workers donated more than donors: The Brooke participated in the With 900 attendees at four $650,000 to support 71 hospital & James Levy Family, programs and departments. inaugural American Girl shows, the event raised Dreiseszun Family Since 2005, employees have Fashion Show at JW more than $50,000 for The Foundation, MGA Pediatric given back more than $4.2 Marriott Desert Ridge Emily Center Family Health Home Healthcare, Morgan million to the Hospital. Resort. Each young Library. Stanley, Penrose Academy, model walked the runway Waverly Salon, Paul Mitchell Salon and The dressed in historical Glam Parlor. or contemporary attire

On the Road to Saving Lives Earnhardt Scottsdale Lexus donated $250 to Phoenix Children’s for every new Lexus sold in November and matched donations made to the year-end 400 Reasons tax credit campaign, resulting in a $30,000 gift to the Hospital.

36 HOPES & DREAMS SPRING 2016 YOUR DONATIONS MATTER

Leaders Emerge Last year members of Emerging Leaders raised more than $50,000 for programs throughout Phoenix Children’s, including the Condition Critical campaign, the Hope Fund and the Family Care Cart. More than $20,000 was brought in through The 7 Chef Series Freak Out! event held at DeSoto Central Market that included appearances by DJ Mr. Phoenix and Steve and Nina from KMLE Country 107.9, circus acts, and carnival-inspired dishes from the Valley’s best-known chefs.

PIZZA HELPING PATIENTS Donating a portion of proceeds from their online promotion, Papa John’s raised nearly $38,000 for the Hospital. The pizza restaurant also provided gift cards to donors who became monthly Champions of Hope during Give-A-Thon and offered an Arizona Diamondbacks first pitch experience to one lucky patient family.

Hope for the Future Team Hope members joined Hospital staff, volunteers and a patient named Hope for the inaugural “Hope for the Future” event. During the inspirational evening Hope and her father Mike shared their journey at by the staff members who pet therapy dog, Gus. Phoenix Children’s after helped them along the way, Members of Team Hope she suffered a major including their physician, make an annual donation stroke. They were joined nurses, therapists, security of $1,000 or more to the staff, and Hope’s favorite Hospital’s Hope Fund.

SPRING 2016 HOPES & DREAMS 37 UPCOMING EVENTS

AUGUST 17 & 18 Arizona Sports and KTAR’s Give-A-Thon for Phoenix Children’s Hospital

Tune in to KTAR News 92.3 FM and Arizona Sports 98.7 FM for the annual Give-A-Thon, broadcast live from the Hospital. Our largest fundraiser of the year features patient families sharing their stories, a phone bank staffed by volunteers, partner check presentations and celebrity appearances. Listeners can become Champions of Hope with a monthly pledge of $20 or more and have a teddy bear delivered to a patient in their name. For more information visit GiveAThonforPCH.com. MAY Telemundo Telethon Don’t miss the 18 Telemundo Telethon on KTAZ 39 and KHRR 40. Broadcast all day from Phoenix Children’s and hosted by Telemundo personalities, Unidos Para PCH will include patient stories, partner check presentations and a phone bank staffed by sponsors and volunteers. For information contact [email protected].

38 HOPES & DREAMS SPRING 2016 APRIL 30 AUGUST 18-20 Red Wagon Round Up Para Los Niños Radiothon The Phoenix Children’s Hospital Teen Board will collect wagons and supplies for our patients The Phoenix Entravision stations will broadcast the during this donation drive. For information visit “Para Los Niño’s” Radiothon on KDVA 106.9 FM, KLNZ GivetoPCHF.org/PCH-Teen-Board. 103.5 FM, KVVA 107.1 FM and KBMB 710 AM. Listeners are invited to call-in and pledge their financial support or visit collection sites at various locations throughout MAY 14 the Valley. Contact [email protected] for Challenge Cup Pro-Am sponsorship opportunities. Tee off at Desert Mountain’s Cochise Course for the Challenge Cup hosted by Sedgwick. A PGA pro will play with each foursome, and the event includes tee prizes, an after party and awards, with all proceeds benefiting Phoenix Children’s. Register at GivetoPCHF.org/Events/The-Challenge-Cup.

MAY 15 Desert Peaks Golf Invitational The 6th Annual Desert Peaks Golf Invitational offers a four-person team scramble format, fantastic contests and raffle prizes, happy hour drink prices and fun “fore” everyone at Apache Wells Country Club. For information contact Shawna at (480) 654-6808 or [email protected].

MAY 16 – AUGUST 31 Papa John’s During their summer campaign, Papa John’s will donate 10% to the Hospital for every online order placed using promo code PCH.

JUNE 22 – 26 Ringling Bros. and Barnum & Bailey Circus Use the code PCH25 when ordering through SEPT. JW Marriott Wildfire Golf Ticketmaster, and Feld Entertainment will make Children’s Miracle a donation to Phoenix Children’s for every ticket Network Hospitals Golf purchased. 12 Tournament Tee off at Wildfire Golf Club during JULY 1 – JULY 31 the 15th Annual Children’s Miracle Network CDW Fun Drive Hospitals’ Golf Tournament that includes hole The employees at CDW will host a variety of events activities, raffle prizes and a silent auction. For and contests to raise money for the Hospital, including a golf tournament open to the public. details email [email protected].

SPRING 2016 HOPES & DREAMS 39 UPCOMING

EVENTS SEPTEMBER 15 McLane Sunwest Children’s Miracle Network Hospitals Golf Tournament McLane Sunwest will host their annual golf tournament and awards luncheon at Grayhawk Golf Club. Email [email protected] for details.

SEPT. Kicking For Miracles SEPTEMBER 1 - 27 Master Shin’s World 17 Class Tae Kwon Miracle Challenge Move one mile per day through any activity you Do students are choose to complete the Miracle Challenge – fundraising for the Hospital accomplishing your own fitness goals while helping by Kicking For Miracles. If your our patients. Visit MiracleChallenge.org for more information. child is a martial artist, visit ShinTKD.com to find out how to sign up.

SEPTEMBER 1 - 30

Going Gold SEPTEMBER 29 We’re asking the Valley to “Go Gold” for childhood cancer McLane Foodservice Duel in awareness this September. the Desert Golf Tournament To find out how can your McLane Foodservice will host the 15th Annual Duel business can Go Gold and help in the Desert Golf Tournament at Ocotillo Golf raise funds for the Center for Cancer and Blood Resort, offering a hole-in-one contest, marshmallow Disorders, contact Tim at (602) 933-2626 or putting contest, raffle and silent auction. For [email protected]. information visit McLane.com.

Miles That Matter Make your miles really count by visiting PCHMilesThatMatter.org to find out which upcoming 5Ks, marathons, bike races and triathlons support Phoenix Children’s. Want to go the extra mile and fundraise for a patient at Phoenix Children’s? Visit us online to find out how we can help you along the way.

40 HOPES & DREAMS SPRING 2016 Valley Partners Check out these fundraising campaigns supporting Phoenix Children’s Hospital at our partner locations throughout the Valley.

APRIL 11 - JULY 2 Chico’s White House|Black Market Soma Intimates Boston Proper (online only) MAY 1 – 31 Albertsons

MAY 1 – 31 Safeway

MAY 1 – 31 Costco Wholesale

AUGUST 25 – SEPTEMBER 30 Love’s Travel Stops & Country Stores

AUGUST 29 – OCTOBER 9 Walmart & Sam’s Club

JUNE 1 – JULY 28 CAMPAIGN JULY 28 MIRACLE TREAT DAY Dairy Queen On July 28 participating Valley Dairy Queen restaurants will donate proceeds from their Hopdoddy Burger Bar Blizzard Treat sales to Phoenix Children’s. Hopdoddy Burger Bar will donate $1 to JULY 23 Camp Rainbow for every Goodnight Burger sold BUCKET PROMOTION at their Scottsdale and Town & Country locations. SEPTEMBER 19 – OCTOBER 3 CAMPAIGN Stream Logistics Ace Cares for Kids Use Stream Logistics for freight transportation On July 23 purchase a 5-gallon and $1 from every shipment will be donated to bucket for $5 and receive 20% off Phoenix Children’s throughout 2016. all items that fit inside. Fry’s Community Awards Program ONGOING Make a difference for our patients every time Big O Tires you shop at Fry’s Food Stores by registering your Change young lives by donating your V.I.P. card for Phoenix Children’s Hospital spare change in Valley stores. (Organization #55366) at FrysFood.com. Sky Harbor Airport Kohl’s Cares Watch for change canisters at 25 HMS Host Phoenix Children’s receives funds from the sale and SSP America restaurants throughout the of $5 Kohl’s Cares products sold in Kohl’s stores. airport including Barrio Café, Olive & Ivy, Delux Visit Kohls.com/KohlsCares or stop by your local Burger, Pei Wei and more. store to see the products.

SPRING 2016 HOPES & DREAMS 41 NON-PROFIT ORG US POSTAGE PAID PHOENIX AZ PERMIT NO. 961

2929 E. CAMELBACK ROAD, SUITE 122 • PHOENIX, AZ 85016

BAND TOGETHER with Phoenix Children’s Hospital

To find out how, contact (602) 933-2658 or [email protected].

Phoenix Children’s Hospital Phoenix Children’s Hospital Specialty and Urgent Care Specialty Care – Foundation Main Campus Center – Northwest Valley Mercy Gilbert Center 1919 E. Thomas Road 20325 N. 51st Ave., Ste. 116 3420 S. Mercy Rd., Ste. 121, (602) 933-4483 Phoenix, AZ 85016 Glendale, AZ 85308 Gilbert, AZ 85297 [email protected] (602) 933-1000 (602)-933-0003 (602) 933-3366 (Cardio) GivetoPCHF.org (888) 908-KIDS (5437) (602) 933-6262 (Neuro) www.phoenixchildrens.org Specialty and Urgent Care facebook.com/FriendsofPCH Center – Scottsdale Specialty Care – Pediatric Inpatient Unit – Yuma Center twitter.com/FriendsofPCH 6990 E. Shea Blvd. Mercy Gilbert Scottsdale, AZ 85254 1501 W. 24th St., Ste. 203 3555 S. Val Vista Dr. (602)-933-0004 Yuma, AZ 85364 Gilbert, AZ 85296 (855) 372-0664 (602) 933-4900 Specialty and Urgent Care Center – Southwest Valley Specialty and Urgent Care 1665 N. Avondale Blvd., Center – East Valley Avondale, AZ 85392 5131 E. Southern Ave. (602)-933-0005 Mesa, AZ 85206 (602)-933-0002