Dementia Together An evaluation of the Dementia Together Service provided by Sue Ryder, Ipswich, Suffolk. Ruth Strudwick Katie Tyrrell Andreea Tocca Christopher Hayre March 2019 CONTENTS 1. CONTENTSINTRODUCTION 7 1.1 Why the service was developed 7 1.2 Dementia Together 8 1.1.3 INTRODUCTIONTriage Levels ................................................................................................. 7 9 1.1. 1.3.1Why theLevel service 1 – Curiouswas developed ...................................................................... 7 9 1.2. 1.3.2Dementia Level Together 2 – Concerned ................................ .......................................................... 8 9 1.3.3 Level 3 – Crises 9 1.3. Triage Levels ................................................................................................... 9 1.4 Service Delivery 10 1.3.1. Level 1 – Curious ....................................................................................... 9 1.4.1 Information 10 1.3.2.1.4.2 Level Navigation 2 – Concerned .................................................................................. 10 9 1.3.3. Level 3 – Crises ......................................................................................... 9 2. METHODS 11 1.4. Service Delivery ............................................................................................. 10 2.1 Ethics 11 2.2 1.4.1.Methods Information ............................................................................................... 10 12 2.3 1.4.2.Data Navigation Analysis ................................................................................................ 10 13 2.4 Participant demographics 14 2. METHODS ........................................................................................................ 11 3. FINDINGS2.1. Ethics AND ................................ DISCUSSION ............................................................................. 11 15 3.1 Dementia Together service activity (April 2017- December 2018) 15 2.2. Methods ......................................................................................................... 12 3.2 Outcome 1: An equitable and responsive service, enabling users 16 2.3. toData find Analysis the right ................................ service at the right ................................time for them in the ................................way that . 13 they want. (Holistic service provision) 2.4 Participant demographics ............................................................................... 14 3.3 Outcome 2: Promoting choice and control through the provision 18 3. FINDINGSof information AND to DISCUSSION raise awareness ................................ and understanding................................ of dementia. ......... 15 3.4 Outcome 3: Improving the physical and mental wellbeing of 21 3.1. Dementia Together service activity (April 2017- December 2018) .............. 15 those with dementia and their carers. 3.2. OutcomeOutcome 4: 1:Enabling An equitable people and with responsive dementia service,to live independently enabling users to find the 21 rightin service their own at the homes right fortime longer for them by ensuring in the way carers that feelthey better want. able(Holistic to cope. service provision) .............................................................................................................. 16 3.3. Outcome 2: Promoting choice and control through the provision of information to raise awareness and understanding of dementia. .......................... 18 www.uos.ac.uk Page 2 3.4 Outcome 3: Improving the physical and mental wellbeing of those with dementia and their carers. .................................................................................... 21 CONTENTS 3.5 Outcome 5: Reducing the impact on other services though 25 Outcome crisis 4: avoidanceEnabling people with dementia to live independently in their own homes for longer by ensuring carers feel better able to cope. .............................. 21 3.5.1 Stakeholder perspectives 25 3.5 Outcome 5: Reducing the impact on other services though crisis avoidance . 25 1. INTRODUCTION ................................................................................................. 7 3.5.2 Crisis prevention: Carers and PwD perspectives 26 3.5.13.5.3 Stakeholder Monitoring perspectives Dementia ................................ Intensive Support Team................................ (DIST) referrals.......... 25 30 1.1. Why the service was developed ...................................................................... 7 3.5.4 Crisis avoidance: Service development 32 3.5.2 Crisis prevention: Carers and PwD perspectives ...................................... 26 1.2. Dementia Together .......................................................................................... 8 3.6 Outcome 6: Involvement of the wider community in supporting 33 3.5.3 Monitoring Dementia Intensive Support Team (DIST) referrals ................. 30 1.3. Triage Levels ................................................................................................... 9 those with dementia 3.5.43.6.1 Crisis Peer avoidance: Support Service development .................................................... 32 34 1.3.1. Level 1 – Curious ....................................................................................... 9 3.7 Outcome 7: Enhancing the lives of volunteers 36 3.6 Outcome 6: Involvement of the wider community in supporting those with 1.3.2. Level 2 – Concerned .................................................................................. 9 dementia3.8 Outcome ................................ 8: Improving the................................ local social economy................................ through increased............... 33 38 1.3.3. Level 3 – Crises ......................................................................................... 9 turnover in dementia friendly pubs, cafes 3.6.1 Peer Support ............................................................................................. 34 1.4. Service Delivery ............................................................................................. 10 4. 3.7CONCLUSIONS Outcome 7: Enhancing the lives of volunteers ................................................ 36 40 1.4.1. Information ............................................................................................... 10 5. 3.8RECOMMENDATIONS Outcome 8: Improving the local social economy through increased turnover in 41 dementia friendly pubs, cafes ............................................................................... 38 1.4.2. Navigation ................................................................................................ 10 6.4. APPENDICESCONCLUSIONS ................................................................................................ 40 45 2. METHODS ........................................................................................................ 11 5. AppendixRECOMMENDATIONS 1: Regular Support ................................ provided in the Community................................ by Dementia..................... Together 41 45 2.1. Ethics ............................................................................................................. 11 Appendix 2: Volunteering Opportunities 48 6. APPENDICES ................................................................................................... 45 2.2. Methods ......................................................................................................... 12 Appendix 3: Complaints 49 Appendix 1: Regular Support provided in the Community by Dementia Together 45 2.3. Data Analysis ................................................................................................. 13 Appendix 4: Stakeholder Engagement 51 Appendix 2: Volunteering Opportunities ............................................................... 48 2.4 Participant demographics ............................................................................... 14 Appendix 5: Project to engage with GP Surgeries 58 Appendix 3: Complaints ........................................................................................ 49 3. FINDINGS AND DISCUSSION ......................................................................... 15 Appendix 4: Stakeholder Engagement ............................................................... 51 3.1. Dementia Together service activity (April 2017- December 2018) .............. 15 Appendix 5: Project to engage with GP Surgeries ................................................ 62 3.2. Outcome 1: An equitable and responsive service, enabling users to find the right service at the right time for them in the way that they want. (Holistic service provision) .............................................................................................................. 16 3.3. Outcome 2: Promoting choice and control through the provision of information to raise awareness and understanding of dementia. .......................... 18 www.uos.ac.uk Page 2 www.uos.ac.uk Page 3 DISCLAIMER © University of Suffolk 2019 Whilst every effort has been made to ensure that the information contained in this report is accurate and up to date, neither the authors nor the University of Suffolk can accept legal responsibility or liability for anything done by readers as a result of any errors or omissions. All rights reserved. No part of this publication may be reproduced, stored in a retrieval system or transmitted