PROGRAM 2018 Annual Forum Bigger, faster & better: enabling the next era of translational medical research Wednesday 29th August 2018 The Partnership Welcome to the 2018 Annual Forum When Sydney Health Partners held its first There is increasing recognition amongst forum in May 2015 it was an idea whose time our members that SHP offers a potential had come. pathway to achieving reforms which might previously have been considered too hard. Along with the three other newly-accredited Advanced Health Research and Translation In addition, there is the potential for more Centres in Australia, SHP was a response rapid research translation in the form of to the growing requirement to remove or 14 projects we’ve supported with Medical reduce the long-standing barriers impeding Research Future Fund grants. Progress is translation of medical discoveries into promising and we are looking forward to clinical practice. their reported outcomes at the end of the year. In discussions we developed a challenging goal: by working with our partner Local Meanwhile, we’ve been heartened by the Health Districts, independent medical volume and quality of applications we’ve research institutes and the University received for the next funding round. Our of Sydney, could we achieve the greater ability to support further research projects mobility of people, funds and data we was confirmed in June, when the Federal believed was required to more quickly Government announced that Sydney Health deliver the outcomes of research to our Partners would receive a further $6.1 million patients? over three years. Its support for SHP and the other AHRTCs allows us all to proceed with In 2018 we have been working towards this confidence - both individually and as the goal by sharpening our focus on six key Australian Health Research Alliance - into areas which influence research translation. 2019 and beyond. We’ve applied resources to projects which variously aim to enable the sharing and use Thank you for taking the time to attend of data, streamline ethics and governance, our Annual Forum. To bring so many key consolidate and improve the use of bio- individuals and organisations together in banking, increase consumer and community the cause of research translation is a rare involvement, build clinical trials skills opportunity and one I know we will all and capacity and foster the discipline of embrace. implementation science to facilitate change. There’s a lot going on, and this scale up of activity has only been possible thanks to the continued enthusiastic support and Professor Garry Jennings AO engagement of everyone in our Partnership. Executive Director, Sydney Health Partners Annual Forum Program Bigger, faster & better: enabling the next era of translational medical research Wednesday 29th August 2018 1.00pm Forum Registration Lorimer Dods Theatre Foyer, Children’s Hospital, Westmead 1.30pm - 3.00pm SESSION 1 1.30pm Welcome & Introduction to Professor Kathryn North AM Professor Garry Jennings AO, Executive Director, Sydney Health Partners 1.45pm “Genomics and the Brave New World of Personalised Medicine: A Global and Local Perspective” Professor Kathryn North AM, Director, Murdoch Children’s Research Institute 2.15pm Introduction to Mr Peter Wills AC Mr Paul McClintock AO,Chair, Governing Council, Sydney Health Partners “The Biomedical Translation Fund: Crossing the “Valley of Death” from Research to Market” Mr Peter Wills AC, Chair, Biomedical Translation Fund Committee, Innovation Science Australia 2.35pm Panel Discussion: The Science of Implementing Change in a Clinical Setting CHAIR: Dr Teresa Anderson AM, Chief Executive, Sydney Local Health District Panel Members: Dr Jean-Frédéric Levesque, Chief Executive, Agency for Clinical Innovation Professor Adrian Bauman, Professor of Public Health, The University of Sydney Professor Andrew Wilson, Co-Director, Menzies Centre for Health Policy Professor Kathryn North AM, Director, Murdoch Children’s Research Institute 3.00pm Afternoon Tea 3.20pm - 5.10pm SESSION 2 3.20pm Panel Discussion: Improving the Process of Ethics and Governance CHAIR: Professor Roger Reddel, Director, Children’s Medical Research Institute Panel Members: Associate Professor Geoffrey Herkes, Senior Staff Specialist, Northern Sydney Local Health District James Cokayne, Human Research Ethics and Governance, NSW Office for Health and Medical Research Helene Abouyanni, Director of Operations, Research and Education Network, Western Sydney Local Health District Dr Lesley Ashton, Executive Director Research Operations, Coordination & Systems Planning, The University of Sydney Annual Forum Program Bigger, faster & better: enabling the next era of translational medical research 3.45pm Panel Discussion: Achieving Better Consumer and Community Involvement CHAIR: Dr Michael Brydon, Chief Executive, Sydney Children’s Hospitals Network Westmead Panel Members: Jo Root, Policy Director, Consumers Health Forum of Australia Karen Carey, Chair, NHMRC Community & Consumer Advisory Group Professor Juanita Sherwood, Academic Director, National Centre for Cultural Competence, The University of Sydney Dr Coralie Wales, Manager of Community and Consumer Partnerships, Western Sydney Local Health District 4.10pm Panel Discussion: Building Capacity and Recruitment for Clinical Trials CHAIR: Mr. Danny O’Connor, Chief Executive, Western Sydney Local Health District Panel Members: Associate Professor Rachael Morton, Director of Health Economics, NHMRC Clinical Trials Centre Professor Vlado Perkovic, Executive Director, The George Institute, Australia Associate Professor Judith Trotman, Director, Haematology Clinical Research Unit, Concord Hospital 4.35pm Panel Discussion: Harmonising and Sharing Data between Districts and Institutes CHAIR: Professor Laurent Rivory, Pro-Vice-Chancellor (Research), The University of Sydney Panel Members: Professor Tim Shaw, Director of Research in Implementation Science and eHealth, The University of Sydney Dr Diane Watson, Chief Executive, Bureau of Health Information Dr Zoran Bolevich, Chief Executive & CIO, eHealth NSW 5.00pm Closing Remarks Professor Garry Jennings AO, Executive Director, Sydney Health Partners Mr Paul McClintock AO, Chair, Sydney Health Partners 5.10pm – 6.30pm Forum Networking Drinks Keynote Speakers & Presenters Professor Kathryn North AM Mr Peter Wills AC Director of the Murdoch Children’s Research Chair, Biomedical Translation Fund Institute Committee Co-Deputy Chair, National Genomics Future Innovation and Science Australia Mission In June 1996, Mr Wills was appointed Chair of NHMRC’s Research Committee as a Member in the General Division Professor Kathryn North AM is Director of of the Order of Australia for service to the Murdoch Children’s Research Institute the community. In June 2001, he was and the David Danks Professor of Child appointed as a Companion in the General Health Research at the University of Division of the Order of Australia for service Melbourne. to social and economic advancement through the development of public policy Professor North is trained as a physician, in relation to biomedical research and neurologist and clinical geneticist and biotechnology. was awarded a doctorate for research in neurogenetics. She completed a In 1996, Mr Wills chaired the committee, postdoctoral fellowship in the Harvard formed by the Minister for Health and Genetics Program. Aged Care, Dr Michael Wooldridge, which took on the task of assessing Australia’s Professor North is a national and health and medical research. The Wills international leader in Genomic medicine. report was released in 1999 and was In 2014, she was appointed as Vice Chair instrumental in bringing medical research of the Global Alliance for Genomics and to the attention of the media and increasing Health – a collaborative network of over funding for Australian science. This report: 500 organisations across over 70 countries. The Virtuous Cycle: Working Together for Commencing in 2016, she leads an Health and Medical Research lead directly NHMRC-funded national network of over to the formation of Research Australia and 80 institutions - the Australian Genomics Mr Wills remains an active and important Health Alliance. member of the Research Australia board, of which he is Deputy Chair. Professor North has received a number of awards including the GSK Australia Mr Wills was also appointed a member of Award for Research Excellence (2011), The Biotechnology Consultative Group the Ramaciotti Medal for Excellence in formed in 1999, to advise Biotechnology Biomedical Research (2012) and Member Australia and the Commonwealth of the Order of Australia (AM) for service to Biotechnology’s Ministerial Council on the medicine in the field of neuromuscular and development of the National Biotechnology neurogenetics research (2012). She chaired Strategy. In 2002 Mr Wills retired as NHMRC Research Committee (2012-2018) Chairman of the Australian Research and International Advisory Board of the Council. He has been Chairman of the Great Ormond Street Institute of Child Garvan Institute of Medical Research, Health (UK) and is a member of the Board Chairman of the Australian Research of the Victorian Comprehensive Cancer Council and also contributed to the Centre. National Biotechnology Strategy. In 2001 Mr Wills served on the committee, Chaired by Chief Scientist Dr Robin Batterham, Alfred Medical Research and Education which lead to the Federal Government’s precinct. As a researcher, his interests Innovation Statement include the prevention and