FORDS Facility Oncology Registry Data Standards Revised for 2011 (Incorporates all updates since FORDS was originally published in July 2002) Includes updates to January 1, 2011 See Appendix C for a summary of changes. © 2002 AMERICAN COLLEGE OF SURGEONS All Rights Reserved ii Table of Contents Preface 2010.......................................................................................................................... xi SECTION ONE: Case Eligibility and Overview of Coding Principles........................... 1–31 Case Eligibility ............................................................................................................... 3 Tumors Required by the CoC to be Accessioned, Abstracted, and Followed........... 3 Reportable-by-Agreement Cases............................................................................... 3 Ambiguous Terms at Diagnosis................................................................................. 3 Class of Case.............................................................................................................. 5 Date of First Contact.................................................................................................. 5 Overview of Coding Principles ..................................................................................... 7 Unique Patient Identifier Codes................................................................................. 7 National Provider Identifier....................................................................................... 7 Coding Dates.............................................................................................................. 7 Cancer Identification.................................................................................................. 8 Patient Address and Residency Rules........................................................................ 13 In Utero Diagnosis and Treatment............................................................................. 14 Comorbidities and Complications ............................................................................. 14 Stage of Disease at Initial Diagnosis ......................................................................... 15 AJCC TNM Staging................................................................................................... 15 Collaborative Staging................................................................................................ 17 First Course of Treatment .......................................................................................... 19 Treatment, Palliative, and Prophylactic Care ............................................................ 27 Embolization.............................................................................................................. 28 Outcomes ................................................................................................................... 28 Case Administration .................................................................................................. 29 SECTION TWO: Coding Instructions ..............................................................................33–356 Patient Identification ..................................................................................................... 35-88 Accession Number..................................................................................................... 37 Sequence Number ...................................................................................................... 38 Medical Record Number............................................................................................ 40 Social Security Number ............................................................................................. 41 Last Name .................................................................................................................. 42 First Name.................................................................................................................. 43 Middle Name (Middle Initial).................................................................................... 44 Patient Address (Number and Street) at Diagnosis ................................................... 45 Patient Address at Diagnosis–Supplemental ............................................................. 46 City/Town at Diagnosis (City or Town).................................................................... 47 State at Diagnosis (State)........................................................................................... 48 Postal Code at Diagnosis (ZIP Code) ........................................................................ 50 County at Diagnosis................................................................................................... 51 iii Patient Identification (continued) Patient Address (Number and Street)–Current .......................................................... 52 Patient Address–Current–Supplemental.................................................................... 53 City/Town–Current.................................................................................................... 54 State–Current ............................................................................................................. 55 Postal Code–Current (ZIP Code)............................................................................... 57 Telephone................................................................................................................... 58 Place of Birth............................................................................................................. 59 Date of Birth.............................................................................................................. 60 Date of Birth Flag ...................................................................................................... 61 Age at Diagnosis........................................................................................................ 62 Race 1......................................................................................................................... 63 Race 2......................................................................................................................... 65 Race 3......................................................................................................................... 66 Race 4......................................................................................................................... 67 Race 5......................................................................................................................... 68 Spanish Origin–All Sources (Spanish/Hispanic Origin) ........................................... 69 Sex.............................................................................................................................. 70 Primary Payer at Diagnosis........................................................................................ 71 Comorbidities and Complications #1 ........................................................................ 73 Comorbidities and Complications #2 ........................................................................ 75 Comorbidities and Complications #3 ........................................................................ 76 Comorbidities and Complications #4 ........................................................................ 77 Comorbidities and Complications #5 ........................................................................ 78 Comorbidities and Complications #6 ........................................................................ 79 Comorbidities and Complications #7 ........................................................................ 80 Comorbidities and Complications #8 ........................................................................ 81 Comorbidities and Complications #9 ........................................................................ 82 Comorbidities and Complications #10 ...................................................................... 83 NPI–Managing Physician.......................................................................................... 84 NPI–Following Physician.......................................................................................... 85 NPI–Primary Surgeon................................................................................................ 86 NPI–Physician #3 (Radiation Oncologist–CoC Preferred) ....................................... 87 NPI–Physician #4 (Medical Oncologist–CoC Preferred).......................................... 88 Cancer Identification.....................................................................................................89-119 Class of Case.............................................................................................................. 91 NPI–Institution Referred From.................................................................................. 93 NPI–Institution Referred To...................................................................................... 94 Date of First Contact.................................................................................................. 95 Date of First Contact Flag.......................................................................................... 96 Date of Initial Diagnosis...........................................................................................