NSW HIV, STI and HCV Minimum Data Set Data Dictionary Version 2.4 NSW HIV, STI and HCV Minimum Data Set Data Dictionary – Version 2.4 1 Suggested citation: NSW Ministry of Health HIV, STI and HCV Minimum Data Set Data Dictionary, Sydney. NSW MINISTRY OF HEALTH 73 Miller Street North Sydney NSW 2060 Tel: 02 9391 9000 Fax: 02 9391 9101 TTY: 02 9391 9900 www.health.nsw.gov.au This work is copyright. It may be reproduced in whole or part for study or training purposes subject to the inclusion of an acknowledgment of the source. It may not be reproduced for commercial usage or sale. Reproduction for purposes other than those indicated above requires written permission from the NSW Ministry of Health. © NSW Ministry of Health 2012 SHPN ISBN Further copies of this document can be downloaded from the NSW Ministry of Health website: www.health.nsw.gov.au Version Control Information Version Status Contents & nature of Author Date modifications 1.2 Current NSW HIV/AIDS and Sexual AIDs/Infectious Diseases Jun 2005 Health MDS Data Dictionary Branch N/A Never Pilot HCV MDS NSW Hepatitis C MDS Mar 2009 published Advisory Committee 2.0 Draft First issue integrated with HIV- D. Fukunishi - Presented to Oct 2010 STI MDS data definitions the NSW Hepatitis C MDS Steering Committee 2.1 Draft Second issue incorporating NSW Metrics Group - Sep 2011 suggestions from NSW Metrics Improving HIV-STI MDS Group Consistency working group 2.2 Draft Minor changes in data elements NSW Metrics Group - Sep 2011 and document pages Improving HIV-STI MDS Consistency working group 2.3 Final draft HCV data elements NSW HCV Working Group / Dec 2011 improvements NSW HCV Advisory Committee 2.4 Final Business rules update NSW Metrics Group - May 2012 Improving HIV-STI MDS Consistency working group Last Date Saved: 22/05/2012 1:30 PM Filename: HIV-STI-HCV MDS data dictionary vrs 2.4.doc NSW HIV, STI and HCV Minimum Data Set Data Dictionary – Version 2.4 2 Table of Contents Section Page Table of Contents ...............................................................................................................................3 Introduction .........................................................................................................................................4 Scope .................................................................................................................................................4 Guide for Use .....................................................................................................................................4 Data item format .....................................................................................................................5 Abbreviations ......................................................................................................................................7 1. Data Record Concept ......................................................................................................................8 1.1. Non-admitted patient occasion of service ......................................................................... 8 2. Activity Related Data Elements .......................................................................................................9 2.1. Principal service provided ................................................................................................9 2.2. Session type .................................................................................................................. 12 2.3. Service provider type ..................................................................................................... 14 2.4. Service unit identifier ..................................................................................................... 16 3. Client/Patient Related Data Elements ............................................................................................ 17 3.1. Aboriginal and Torres Strait Islander origin ..................................................................... 17 3.2. Age range ...................................................................................................................... 19 3.3. Country of birth .............................................................................................................. 20 3.4. Interpreter required ........................................................................................................ 23 3.5. Postcode ....................................................................................................................... 24 3.6. Preferred language ........................................................................................................ 25 3.7. Sex ................................................................................................................................ 27 3.8. Transgender (extended option) ...................................................................................... 28 3.9. Clinical trial (extended option) ........................................................................................ 29 3.10. Co-infection (extended option) ..................................................................................... 30 3.11. Injecting drug use risk (extended option) ...................................................................... 31 3.12. People living with HIV (extended option) ...................................................................... 32 3.13. People released from custodial settings (extended option) ........................................... 33 3.14. Presence of symptoms (extended option) .................................................................... 34 3.15. Sex work risk (extended option) ................................................................................... 35 3.16. Sexual contact risk (extended option)........................................................................... 36 3.17. Status - HCV (extended option) ................................................................................... 37 Appendix A: Data domain for country of birth ........................................................................ 38 Appendix B: Data domain for preferred language .................................................................. 42 NSW HIV, STI and HCV Minimum Data Set Data Dictionary – Version 2.4 3 Introduction This data dictionary documents the work done in relation to the NSW HIV/AIDS and Sexual Health Ambulatory Care Minimum Data Set (MDS) and the NSW Hepatitis C MDS prior to September 2011 and proposes common data structures that will allow future systems integration and use of common business rules for recording activity. The NSW HIV/AIDS and Sexual Health Ambulatory Care MDS was developed in 2006 to collect state- wide outpatient activity data for HIV and sexual health facilities. This data is used in the NSW AIDS Resource Distribution Formula (AIDS-RDF) which is applied in the distribution of AIDS Program funding to public health facilities and in local services planning. The MDS is comprised of a small number of agreed items defined in a Data Dictionary and its core concept is the Non-admitted Patient Occasion of Service (NAPOOS) that is defined by the NSW Department of Health Reporting System (DOHRS) Activity Glossary of Terms 2004/2005. The NSW Hepatitis C MDS was developed in 2009 with a patient-centred format that does not measure occasion of services. It records number of patients that were assessed for hepatitis C treatment, number of patients who initiated treatment and number of patients who completed treatment within the reporting period. The current NSW AIDS-RDF model uses three data input elements: HIV, STI, and Needle and Syringe Program (NSP) data, but does not include priority populations because this data was not available. The inclusion of data items that enable identification of members of selected priority populations can potentially strengthen the NSW AIDS-RDF model. This data dictionary sets standard metrics for collecting priority populations data as proposed by the • NSW HIV/AIDS Strategy 2006-2009: Overview and Action Plan • NSW Sexually Transmissible Infections Strategy 2006-2009 • NSW Hepatitis C Strategy 2007-2009 • NSW HIV/AIDS, Sexually Transmissible Infections and Hepatitis C Strategies: Implementation Plan for Aboriginal People 2006-2009. The data standards presented in this document have been developed through extensive consultation with a wide variety of stakeholders throughout the HIV/AIDS, sexually transmissible infection (STI) and hepatitis C virus (HCV) sectors, and it refers to existing data collections standards already in place, including: • NSW Health Data Dictionary for Client Registration Data Collection in the new Enterprise Data Warehouse version 2.0 – February 2008 • NSW Community Health and Outpatient Care Data Dictionary version 2.1 – February 2009 • NSW HIV/AIDS and Sexual Health Ambulatory Care Minimum Data Set Data Dictionary version 1.2 – June 2005 • NAP Data Collection Data Dictionary version 1.3 – September 2011 Scope The scope of the NSW HIV, STI and HCV MDS covers clinical and counselling activities of specialist HIV-STI-HCV treatment and care provided in outpatient care settings. At this stage, health promotion activities are not fully-defined. Guide for Use This document should be used to guide the development of new systems, alternative reporting tools (such as paper forms) and data extracts for reporting to NSW Health. It is essential that all classifications used in