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Downloaded from Patient experience studies in the circumpolar region: a scoping review Journal: BMJ Open ManuscriptFor ID peerbmjopen-2020-042973 review only Article Type: Original research Date Submitted by the 21-Jul-2020 Author: Complete List of Authors: Ingemann, Christine; University of Southern Denmark Faculty of Health Sciences, National Institute of Public Health; University of Greenland, Institute of Nursing and Health Sciences Hansen, Nathaniel; Tufts University School of Medicine Hansen, Nanna; University of Southern Denmark Faculty of Health Sciences, National Institute of Public Health Jensen, Kennedy; Dartmouth College Geisel School of Medicine, Larsen, Christina; University of Southern Denmark Faculty of Health Sciences, National Institute of Public Health Chatwood, Susan; University of Alberta School of Public Health Quality in health care < HEALTH SERVICES ADMINISTRATION & Keywords: MANAGEMENT, PUBLIC HEALTH, QUALITATIVE RESEARCH, PRIMARY CARE http://bmjopen.bmj.com/ on October 1, 2021 by guest. 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Protected copyright. 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For peer review only - http://bmjopen.bmj.com/site/about/guidelines.xhtml BMJ Open Page 2 of 35 1 2 3 1 Patient experience studies in the circumpolar region: a scoping review 4 BMJ Open: first published as 10.1136/bmjopen-2020-042973 on 5 October 2020. Downloaded from 5 6 2 Christine Ingemann*, Centre for Public Health in Greenland, National Institute of Public 7 3 Health, University of Southern Denmark, Studiestræde 6, 1455 Copenhagen, Denmark; 8 4 Greenland Centre for Health Research, Institute of Nursing and Health Research, 9 10 5 Ilisimatusarfik – University of Greenland, Nuuk, Greenland; [email protected]; 11 6 +4565507822; ORCID: 0000-0002-1390-4952 12 7 13 14 8 Nathaniel Fox Hansen*, Tufts University School of Medicine, Boston, Massachusetts, 15 9 United States; ORCID: 0000-0002-3368-9938 16 10 17 18 11 Nanna Lund Hansen,For Centre peer for Public review Health in Greenland, only National Institute of Public 19 12 Health, University of Southern Denmark, Copenhagen, Denmark 20 13 21 22 14 Kennedy Jensen, Geisel School of Medicine at Dartmouth, Hanover, New Hampshire, 23 15 United States 24 16 25 26 17 Christina Viskum Lytken Larsen, Centre for Public Health in Greenland, National 27 18 Institute of Public Health, University of Southern Denmark, Copenhagen, Denmark; 28 19 Greenland Centre for Health Research, Institute of Nursing and Health Research, 29 30 20 Ilisimatusarfik – University of Greenland, Nuuk, Greenland; ORCID: 0000-0002-6245- 31 21 4222 32 22 33 23 Susan Chatwood, University of Alberta, School of Public Health, Edmonton, 34 35 24 Yellowknife, Canada; 36 25 37 26 *corresponding authors http://bmjopen.bmj.com/ 38 39 27 Christine Ingemann ([email protected]) and Nathaniel Fox Hansen 40 28 ([email protected]) contributed equally to this paper. 41 29 42 43 30 Word count: 4,588 44 31 45 on October 1, 2021 by guest. Protected copyright. 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 1 For peer review only - http://bmjopen.bmj.com/site/about/guidelines.xhtml Page 3 of 35 BMJ Open 1 2 3 33 Patient experience studies in the circumpolar region: a scoping review 4 BMJ Open: first published as 10.1136/bmjopen-2020-042973 on 5 October 2020. Downloaded from 5 6 34 7 8 35 KEYWORDS 9 10 36 patient experience, patient satisfaction, circumpolar, arctic, scoping review, Indigenous, 11 12 37 rural healthcare, telehealth 13 14 38 15 16 39 ABSTRACT 17 18 40 Objective: PatientFor experiences peer of healthcare review and health systemsonly constitute a crucial pillar 19 20 41 of wellness and the quality of care itself. Across the Arctic, patients’ interactions with the 21 22 42 healthcare system are colored by challenges of access, historical inequities, and social 23 24 43 determinants. Though it is well understood that these challenges affect care outcomes, 25 44 prior research across the Arctic has explored patient experiences only inconsistently, with 26 27 45 isolated research efforts that address various components of the care experience. The aim 28 29 46 of this scoping review was to identify and describe peer-reviewed literature on patient 30 47 experience studies conducted within the circumpolar region. Our objective was to 31 32 48 determine the extent, range and nature of studies conducted, and to summarize and 33 34 49 disseminate findings relevant to patient experiences. 35 36 50 Design: In an international partnership between Danish/Greenlandic, Canadian, and 37 http://bmjopen.bmj.com/ 38 51 American research teams, a scoping review of published research exploring patient 39 40 52 experiences in circumpolar regions was undertaken. 41 42 53 Results: Of the 2,824 articles initially found through systematic searches in seven 43 44 54 databases, 96 articles were included for data extraction. Findings from the review 45 55 included unique features related to Indigenous values, rural and remote health, climate on October 1, 2021 by guest. Protected copyright. 46 47 56 change, and telehealth. 48 49 57 Discussion: The review findings provide an overview of patient experiences measures 50 51 58 currently used in circumpolar nations. These findings may be used to guide future studies 52 53 59 of patient experiences. These findings could be complimented by consensus and 54 60 participatory approaches that would build on Indigenous values present in circumpolar 55 56 61 nations, and further inform how we understand patient experiences. These findings can 57 58 62 be used to inform health system improvement and guide health policy decisions that will 59 60 2 For peer review only - http://bmjopen.bmj.com/site/about/guidelines.xhtml BMJ Open Page 4 of 35 1 2 3 63 respond to patient needs in the circumpolar context and other nations who share common 4 BMJ Open: first published as 10.1136/bmjopen-2020-042973 on 5 October 2020. Downloaded from 5 64 features related to Indigenous values, rural and remote context, and climate change 6 7 65 impacts. 8 9 66 10 11 67 ARTICLE SUMMARY 12 13 68 Strengths and limitations of this study 14 15 69 This scoping review represents the most comprehensive and detailed examination of 16 17 70 existing literature on patient experiences in the circumpolar region.