1 ISOQOL 12th Annual Conference of the International Society for Quality of Life Research Building Bridges to Enhance Quality of Life October 19 - 22, 2005 San Francisco, California USA Conference Committee Chair Ron Hays, PhD, USA Conference Committee Co-Chairs Anita Stewart, PhD, USA Leo S. Morales, MD, USA Final Program 2 Table of Contents Table of Contents Schedule at a Glance .......................................................................................................................... 3 Scientific Program Committee / ISOQOL Leadership ......................................................................................................................... 4 Welcome / About ISOQOL ................................................................................................................ 5 General Information ......................................................................................................................6 - 7 Program Schedule, Wednesday..................................................................................................8 - 12 Program Schedule, Thursday ...................................................................................................13 - 26 Program Schedule, Friday .........................................................................................................27 - 41 Program Schedule, Saturday ....................................................................................................42 - 53 Hotel Floor Plan ................................................................................................................................. 54 Exhibitors ............................................................................................................................................ 55 Acknowledgements / Contributing to ISOQOL ...................................................................56 - 57 Advertisements ...........................................................................................................................58 - 63 Notes..............................................................................................................................................64 - 67 2006 Meeting Dates / Location .........................................................................................Back Cover Schedule-at-a-Glance 3 Wednesday, Thursday, Friday, Saturday, October 19 October 20 October 21 October 22 8:30am Registration Opens 7:30am Registration 7:30am Registration 7:30am Registration Grand Foyer Grand Foyer Grand Foyer Grand Foyer 9:30am- Workshops 8:00am- Posters on Display 8:00am- Posters on Display - 3 8:00am- Posters on Display - 5 12:30pm 1 Bayview Room A 12:00pm Bayview Room 12:00pm Bayview Room 11:45am Bayview Room 2 Grand Ballroom C 3 Seacliff Room C/D 8:45am- Presidential Welcome 9:00am- Plenary 2 8:00am- Plenary Session 3 4 Marina Room 9:00am Grand Ballroom A 10:15am Policy Applications 9:15am QOL Assessment in 5 Grand Ballroom B of QOL Clinical Practice 6 Bayview Room B 9:00am- Plenary 1 Grand Ballroom A Grand Ballroom A 7 Garden Room 10:15am Measuring Health 8 Seacliff Room A/B Grand Ballroom A 10:15am- Break/Meet the 9:15am- Break/Meet the 11:15am Author:Poster 10:15am Author: Poster 12:30pm- Lunch on your own 10:15am- Break/Meet the Author: Session 3 Session 5 1:30pm 11:15am Poster Session 1 Bayview Room Bayview Room Bayview Room 1:30pm- Workshops 11:15am- Parallel Session 3 10:15am- Parallel Session 6 4:30pm 9 Bayview Room A 11:15am- Parallel Session 1 12:45pm Symposium 3 11:45am Oral Session 6-A 10 Seacliff Room C/D 12:45pm Symposium 1 Intellectual Property IRT 11 Grand Ballroom C Measuring PROs in Grand Ballroom A Grand Ballroom A 12 Seacliff Room A/B Children Oral Session 3-A Oral Session 6-B 13 Grand Ballroom B Grand Ballroom A Cancer Mental Health 14 Marina Room Oral Session 1-A Seacliff Room A/B Seacliff Room A/B 15 Bayview Room B Serious Disease Oral Session 3-B Oral Session 6-C 16 Garden Room Seacliff Room A/B Spirituality/Pallative Analytic Methods Oral Session 1-B Seacliff Room C/D Seacliff Room C/D 6:00pm- Opening Reception HRQOL in Children Oral Session 3-C Oral Session 6-D 7:00pm Grand Ballroom A Seacliff Room C/D Caregivers Preferences Oral Session 1-C Garden Room Garden Room Data Collection Garden Room 12:45pm- Business 11:45am-Lunch on your own 2:15pm Meeting Lunch 1:00pm 12:30pm-Posters on Display - 2 and Networking 6:30pm Bayview Room Session 12:30pm- Posters on Display - 6 Grand Ballroom B/C 5:00pm Bayview Room 12:45pm-Lunch Session: Peer 2:00pm Review Process 2:15pm- Parallel Session 4 1:00pm- Joint ISOQOL/SMDM Atrium 3:45pm Symposium 4 3:30pm Oral Session IRT Grand Ballroom A/B/C 2:00pm- Parallel Session 2 Grand Ballroom A 3:30pm Symposium 2 Oral Session 4-A 3:30pm- Joint ISOQOL/SMDM Privately Funded Cancer 5:00pm Poster Session 6 Research Seacliff Room A/B Bayview Room Grand Ballroom A Oral Session 4-B Oral Session 2-A Children 7:00pm- Social Dinner/Awards Cancer: Measurement Seacliff Room C/D 10:00pm and Closing Ceremony Seacliff Room A/B Oral Session 4-C Atrium Restaurant Oral Session 2-B Neurology/Disability Analytic Issues Garden Room Seacliff Room C/D Oral Session 2-C 2:30pm- Posters on Display - 4 Diverse Populations 6:45pm Bayview Room Garden Room 3:45pm- Afternoon Break 3:30pm- Afternoon Break 4:15pm Grand Foyer 4:00pm Grand Foyer 4:15pm- Parallel Session 5 4:00pm- Invited Symposium: 5:45pm Symposium 5 5:30pm Hearing from Overcoming Limitations Stakeholders Grand Ballroom A Grand Ballroom A Oral Session 5-A Different Sources of 5:30pm- Meet the Author: Data PLEASE NOTE: 6:30pm Poster Session 2 Seacliff Room A/B WORKSHOPS Bayview Room Oral Session 5-B REQUIRE Urology/Neurolgy ADDITIONAL 6:30pm- Mentor/Mentee Seacliff Room C/D FEES AND 7:15pm Reception Oral Session 5-C REGISTRATION Atrium Preferences IS REQUIRED. Garden Room 5:45pm- Meet the Author: 6:45pm Poster Session 4 Bayview Room 4 Leadership ISOQOL 2005 Scientific Program Committee and Leadership Chair: Ron Hays, PhD, USA Co-Chairs: Anita Stewart, PhD, USA & Leo S. Morales, MD, USA Program Committee Members Rick Berzon, DrPH, USA Mona Martin, RN, MPA, USA Andrea Bezjak, MD, Canada Elaine McColl, PhD, UK Annabel Bowden, PhD, USA Carol M. Moinpour, PhD, USA Serge Briançon, MD, France David Osoba, MD, Canada Julie Brown, MSc, UK Geraldine Padilla, PhD, USA Peter Fayers, PhD, UK Bryce Reeve, PhD, USA David Feeny, PhD, Canada Carolyn Schwartz, ScD, USA Ashu Rajan Gandhi, MD, India Claire Snyder, PhD, USA Ted Ganiats, MD, USA Karen H. Sousa, RN, PhD, USA Mark Haggard, PhD, USA Henk van Stel, PhD, The Netherlands Sehyun Kim, PhD, Korea Albert Wu, MPH, MD, USA President Board of Directors David Feeny, PhD, Canada Andrea Bezjak, MD, MSc, Canada Andrew Bottomley, PhD, Belgium President-Elect Graeme Hawthorne, PhD, Australia Peter Fayers, PhD, UK Donna Lamping, PhD, UK Kwok-fai Leung, PDipOT, China Secretary-Treasurer Elaine McColl, MSc, UK Diane Fairclough, DrPH, USA Carolyn Schwartz, ScD, USA Laura Schwartzmann, MD, Uruguay Past President Ingela Wiklund, MSc, PhD, Sweden Albert Wu, MD, MPH, USA ISOQOL Management Team Executive Director Degnon Associates 6728 Old McLean Village Drive Laura E. Degnon, USA McLean, VA, 22101 USA 703.556.9222 Editor of Journal FAX: 703.556.8729 Neil Aaronson, PhD, The Netherlands Email: [email protected] Ron Hays, PhD, USA, incoming editor www.isoqol.org Welcome/About ISOQOL 5 Welcome Dear Colleagues, On behalf of the International Society for Quality of Life Research (ISOQOL), it is our pleasure to welcome you to ISOQOL’s 12th Annual Conference in San Francisco, California, October 19 to 22, 2005. San Francisco has a diversity of residents, culture, and entertainment blended together in one of the most densely populated and beautiful cities in the U.S. The importance of quality of life to the community is evidenced by the decision in July to ban outdoor smoking in city-owned parks, plazas and public sports venues. With its famous Golden Gate and Bay bridges, the city is the ideal location for “Building Bridges to Enhance Quality of Life.” The conference theme and location re- flects ISOQOL’s openness to a variety of perspectives on the conceptualization, measurement, and applications of quality of life research. We welcome you to San Francisco for our 12th annual meeting. This is another important step in fostering collaboration among investigators and moving the field of quality of life research forward. Ron D. Hays, PhD, Anita Stewart, PhD, Leo Morales, MD Chair and Co-Chairs, 12th Annual Conference of ISOQOL About ISOQOL ISOQOL Mission The scientific study of Quality of Life relevant to health and healthcare is the mission of the Inter- national Society for Quality of Life Research (ISOQOL). The Society promotes the rigorous investi- gation of health-related quality of life measurement from conceptualization to application and practice. ISOQOL fosters the worldwide exchange of information through: • Scientific Publications • International Conferences • Educational Outreach • Collaborative Support for HRQOL Initiatives ISOQOL Special Interest Groups Special Interest Groups have been established to facilitate communications between researchers with specific interests, ranging from methodology (e.g. clinical applications; cross-cultural re- search and translation methods), to applications of QoL in particular populations (e.g. HIV/AIDS). For more information and to join a Special Interest Group, visit our website at www.isoqol.org. ISOQOL Committees ISOQOL members are encouraged to