Epilepsy and Seizure Disorders: a Resource Guide for Parents

Epilepsy and Seizure Disorders: a Resource Guide for Parents

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EF ¤ ¤ 7 ¢ G % H ? 3/ ! ! = C - A I 0 J www.chadkids.org/epilepsyonline Epilepsy and Seizure Disorder: A Parent Resource Guide 2 WWhathat is epilepsy/seizure disorder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hat are the different kinds of epilepsy / seizure disorder? 7KHUHDUHPDQ\NLQGVRIHSLOHSV\7KH\HDFKFDXVHGLIIHUHQWV\PSWRPVDQGWKH\HDFK QHHGGLIIHUHQWWUHDWPHQWV,GHQWLI\LQJWKHW\SH'RUW\SHV(ZLOOKHOS\RXUFKLOGVGRFWRUVXJ JHVWWUHDWPHQWRSWLRQV Generalized Seizures 7KLVW\SHRIVHL]XUHLQYROYHVWKHZKROHEUDLQDQGLVWKHPRVWFRPPRQW\SHRIHSLOHSV\,QD JHQHUDOL]HGVHL]XUHWKHDEQRUPDOHOHFWULFDODFWLYLW\DIIHFWVWKHHQWLUHEUDLQ7KHVHVHL]XUHV SURGXFHPXVFOHWZLWFKHVFRQYXOVLRQVDQGORVVRIFRQVFLRXVQHVV3HRSOHZLWKWKLVW\SHRI HSLOHSV\GRQRWUHPHPEHUKDYLQJDVHL]XUH Partial Seizures 7KLVW\SHRIVHL]XUHLQYROYHVRQO\SDUWRIWKHEUDLQ6RPHWLPHVDSDUWLDOVHL]XUHFDQ VSUHDGWRLQYROYHWKHZKROHEUDLQ7KLVLVNQRZQDVDSDUWLDOVHL]XUHWKDWVHFRQGDULO\ JHQHUDOL]HV )RUPRUHLQIRUPDWLRQRQVHL]XUHW\SHVSOHDVHUHIHUWRWKHFKDUWRQSDJH www.chadkids.org/epilepsyonline Epilepsy and Seizure Disorder: A Parent Resource Guide 3 How is epilepsy/seizure disorder diagnosed? <RXUGRFWRUZLOODVNDORWRITXHVWLRQV ZKHQWU\LQJWRGLDJQRVHHSLOHSV\DQG GHWHUPLQHWKHW\SHV7KHGLDJQRVLVLV EDVHGRQVHYHUDOH[DPVDQGWHVWV LQDGGLWLRQWRDQLQWHUYLHZDERXW\RXU FKLOGVFRQGLWLRQ7KHIDFWV\RXSURYLGH WKHGRFWRUDUHYHU\LPSRUWDQWLQ GLDJQRVLQJ\RXUFKLOGVHSLOHSV\DQG GHFLGLQJRQWUHDWPHQW )RUPRUHLQIRUPDWLRQUHJDUGLQJGLDJQRVLVSOHDVHVHHFKDUWRQSDJH What causes epilepsy/seizure disorder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www.chadkids.org/epilepsyonline Epilepsy and Seizure Disorder: A Parent Resource Guide 4 What might trigger a seizure? 6RPHSHRSOHUHSRUWYHU\VSHFLILFWULJJHUVRULPPHGLDWHFDXVHVWKDWFDQEULQJDERXWD VHL]XUH&KLOGUHQZLWKHSLOHSV\DUHPRUHOLNHO\WRKDYHDVHL]XUH'KDYHDORZHU VHL]XUHWKUHVKROG(ZKHQWKH\KDYHDFROGWKHIOXRURWKHUFRPPRQLOOQHVVHV6RPH FRPPRQVHL]XUHWULJJHUVLQFOXGHWKHIROORZLQJ 1RWHQRXJKVOHHS )RRGDOOHUJLHV 6WUHVV )ODVKLQJOLJKWV'HJIURP YLGHRJDPHVVWUREHOLJKWV( $OFRKRO 'HK\GUDWLRQ 3RRU'LHW ,QDFWLYLW\ What are the treatment options? &KLOGKRRGHSLOHSV\LVXVXDOO\WUHDWHGZLWKPHGLFDWLRQVWKDWSUHYHQWVHL]XUHV,IWKH PHGLFDWLRQVGRQRWZRUNRULIWKHFKLOGKDVWRRPDQ\VLGHHIIHFWVWKHUHDUHRWKHU WUHDWPHQWRSWLRQV7KHVHLQFOXGHVXUJHU\WKHNHWRJHQLFGLHWRUYDJXVQHUYH VWLPXODWLRQ'916(2WKHUWUHDWPHQWWKHUDSLHVDUHEHLQJWHVWHGEXWKDYHQRW\HWEHHQ )'$DSSURYHG Medication &KLOGUHQRIWHQWDNHWKHVDPHDQWLHSLOHSWLFPHGLFDWLRQVDVDGXOWV0HGLFDWLRQPD\EHLQ WKHIRUPRIWDEOHWVVSULQNOHVFDSVXOHVRUV\UXS 7KHVHPHGLFDWLRQVDUHGHVLJQHGWRSUHYHQWVHL]XUHV6RPHDUHVXFFHVVIXOZLWKDIHZ VHL]XUHW\SHVRWKHUVKDYHDEURDGHUUDQJHRIDFWLRQ:KHQHYHUSRVVLEOHGRFWRUVWU\ WRFRQWUROVHL]XUHVZLWKRQHPHGLFDWLRQ6RPHFKLOGUHQKRZHYHUPD\QHHGWRWDNH PRUHWKDQRQH www.chadkids.org/epilepsyonline Epilepsy and Seizure Disorder: A Parent Resource Guide 5 &KLOGUHQPD\UHVSRQGVRZHOOWRPHGLFDWLRQWKDWQRIXUWKHUVHL]XUHVRFFXUDVORQJDV WKHPHGLFDWLRQLVWDNHQUHJXODUO\DVGLUHFWHGE\WKHGRFWRU1RWKDYLQJVHL]XUHVGRHV QRWPHDQWKDWWKHPHGLFDWLRQLVQRORQJHUQHHGHG$OZD\VDVNWKHGRFWRUEHIRUH VWRSSLQJDVHL]XUHPHGLFDWLRQ'RLQJVRZLWKRXWPHGLFDOVXSHUYLVLRQPD\UHVXOWLQD VHL]XUHRUDQRWKHUW\SHRIUHDFWLRQ )RUPRUHLQIRUPDWLRQUHJDUGLQJ\RXUSUHVFULSWLRQVDVZHOODVPHGLFDWLRQWLSVVHHSDJH Ketogenic Diet ,IPHGLFDWLRQVGRQRWFRQWURODFKLOGVVHL]XUHVDGRFWRUPD\ UHFRPPHQGDVSHFLDOKLJKIDWORZFDUERK\GUDWHGLHWFDOOHGD NHWRJHQLFGLHW &DUERK\GUDWHVDUHVWULFWO\OLPLWHGDQGSDUHQWVKDYHWREHYHU\ FDUHIXOWKDWWKHFKLOGGRHVQRWHDWIRRGVWKDWDUHQRWRQWKHGLHW RUKDYHQRWEHHQSUHPHDVXUHGDQGSUHZHLJKHG 7KHGLHWUHTXLUHVDWHDPHIIRUW− WKHIDPLO\WKHSK\VLFLDQWKH GLHWLWLDQWKHQXUVHDQGLIWKHFKLOGLVROGHQRXJKWKHFKLOG KLPVHOIKHUVHOI−DOOZRUNLQJWRJHWKHUWRPDNHVXUHWKHGLHWLV IROORZHGDQGDQ\VLGHHIIHFWVDUHPRQLWRUHG Vagus Nerve Stimulation 9DJXVQHUYHVWLPXODWLRQ916LVDW\SHRIVXUJLFDOLQWHUYHQWLRQWKDWPD\EHWULHGZKHQ VHL]XUHVFDQQRWEHFRQWUROOHGE\RWKHUPHWK RGV7KHWUHDWPHQWZRUNVE\VHQGLQJUHJXODU VPDOOEXUVWVRIHOHFWULFDOHQHUJ\WRWKHYDJXV QHUYHDODUJHQHUYHLQWKHQHFNWKDWOHDGVGL UHFWO\LQWRWKHEUDLQ7KHHQHUJ\FRPHVIURPD VPDOOGLVNOLNHJHQHUDWRUDERXWWKHVL]HRID VWRSZDWFKVXUJLFDOO\ LPSODQWHGXQGHUWKHVNLQRQWKHFKHVW 7KHJHQHUDWRULVFRQQHFWHGWRZLUHVXQGHUWKH VNLQWKDWDUHZUDSSHGDURXQGWKHYDJXVQHUYH7KH916LVSXWXQGHUWKHVNLQE\D VXUJHRQ www.chadkids.org/epilepsyonline Epilepsy and Seizure Disorder: A Parent Resource Guide 6 What do I need to know about taking care of my child? 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