An Independent supplement by medIAplAnet to usA todAy A piece of cake safe travels Gluten-free activists apply Gluten-free pressure for FdA standards on-the-go

December 2011 CeliaC awareness

3tips sweet success Actress Jennifer Esposito esPosito dishes about how she has fully embraced a gluten-free diet Photo:Jennifer 2 · december 2011 An Independent supplement by medIAplAnet to usA todAy

CHallenGes tip Mostly undiagnosed, celiac disease, affects more Americans 1 than Type 1 diabetes, Crohn’s disease and cystic fibrosis combined. ConsUlt yoUrUr pHpHysiCiAnCiAn We recommend A gluten-free lunch box tips for parents on keeping food fun and interesting Going against the grain pAGe 4 hen you particularly among the elderly. many good gluten-free alternatives think of the Causing damage to the small intes- “If you have for dessert and breadstuffs, there holidays, tine that leads to nutritional defi- celiac disease are many “naturally” gluten-free you often ciencies, this autoimmune disorder foods to enjoy. think of spares no age, race, or gender. or suffer from As for the Fasano family, we’ll food. Not Now, close on the heels of the be dining on our favorite fish and celiac aWareness, 5th edition, gluten sensitivity, december 2011 justw any food, but the mouthwater- growing diagnosis and awareness seafood recipes, accompanied by ing kind that is filled with gluten of celiac disease comes another don’t despair as fresh salads and lightly cooked publisher: megan brunhofer [email protected] like turkey and cornbread stuffing, condition related to the consump- you think about vegetables—a tradition true to my Business Developer: sara Quigley dinner rolls and delicious breads, tion of wheat, barley and rye: gluten southern Italian heritage. Happy [email protected] those holiday Designer: missy Kayko pumpkin pie, chocolate cake and sensitivity. The numbers are tricky, gluten-free holiday eating! [email protected] lemon tarts. Every family has their but we estimate that approximately goodies.” Alessio Fasano, M.D, is director of Managing Director: eric alexander [email protected] favorite “gluten-filled” holiday treat. 15 million Americans suffer from the University of Maryland Center for Editorial Manager: luciana colapinto In 2003, we opened a “Pandora’s some form of gluten sensitivity. Celiac Research and professor of pedi- [email protected] Box” of disorders related to gluten, Our recent research shows that atrics, medicine and physiology at the Contributors: Whitney ahret, maven a toxic protein found in wheat. That although the condition mimics University of Maryland School of Medi- browning, celiac disease foundation, Jennifer esposito, dr. alessio fasano, year the University of Maryland the clinical symptoms of celiac cine.Founded in 1995, the Center John forberger, dr. stefano Guandalini , Center for Celiac Research released disease, it doesn’t cause the same for Celiac Research is an Gluten intolerance Group, dr. bana Jabri, michael Koehler, Kim Koeller, cynthia revolutionary research now known intestinal damage. international leader in Kupper, dr. rallie mcallister, national as the “prevalence study” showing If you suspect that you are suf- promoting the awareness foundation for celiac awareness, Jules shepard, Wendy taylor that one in 133 Americans has celiac fering from symptoms that might of celiac disease to provide disease, a widely recognized auto- be related to gluten consumption, better care, improved Distributed within: Alessio Usa today, december 2011 immune disorder that damages don’t diagnose yourself. Visit your Fasano, quality of life, and more this section was created by your intestine and can also wreak physician to rule out celiac disease M.D. adequate support for the mediaplanet and did not involve Usa professor of today or its editorial departments. havoc on your metabolism, neuro- before giving up gluten to see if your pediatrics, celiac disease commu- logical, musculo-skeletal and even symptoms resolve. medicine, nity worldwide through and physi- folloW Us on facebooK & tWitter! cardiovascular system. ology direc- excellence in research, facebook.com/MediaplanetUsA Healthy holiday fare tor, center clinical care and educa- twitter.com/MediaplanetUsA A rising concern If you have celiac disease or suf- for celiac tion.www.celiaccenter.org. researchuni- mediaplanet’s business is to create new Formerly thought of as a rare child- fer from gluten sensitivity, don’t versity of mary- customers for our advertisers by providing hood illness, the rate of celiac dis- despair as you think about those land schoolchool of Alessio FAsAno, M.D. readers with high quality editorial content medicine that motivates them to act. ease is rising among all age groups, holiday goodies. Not only are there [email protected] CENTER for CELIAC RESEARCH Clinical Care • Support Services • Education • Research The Center for Celiac Research at the 15 years of discovery University of Maryland is recognized as a Celiac Clinic world leader in the fi eld of celiac disease & Aiello Center at BWMC gluten sensitivity. It houses a comprehen- 203 Hospital Drive, Suite 308 sive, multidisciplinary program covering Glen Burnie, MD 21061 clinical care for adults & children, support Appointments: 410-328-6749 services, education & scientifi c research. WWW.CELIACCENTER.ORG and a Gluten Happy Holidays Free New Year 1) Spangler Traditional Peppermint Candy Canes, 1 box of 12 canes $1.79 www.spanglercandy.com 17 2) Dum Dums Original Lollipops, 10.4 oz bag $2.79 www.spanglercandy.com 3) Saf-T-Pops Assorted Lollipops, 18 12 oz bag $2.79 www.spanglercandy.com 4) San-J Tamari Peanut Gluten Free Asian Dressing, 23 $3.29 www.san-j.com 7 5) San-J Gluten Free Szechuan Sauce, $3.99 www.san-j.com 6) San-J Organic Gluten-Free Tamari Soy Sauce Travel Packs, $4.49 www.san-j.com 7) Popchips Barbecue Potato Chip, $1.29 single serve or 3 oz. bag $2.99, www.popchips.com 8) Pastariso Instant Rice Mac & Cheese Meal Cup, $2.49 5 4 www.maplegrovefoods.com 9 9) Lucy’s Gluten Free Vegan Chocolate Cookies, $4.99 box or $1.49 bag www.drlucys.com 15 10 10) Lucy’s Gluten Free Vegan Sugar Cookie, $4.99 box or $1.49 bag www.drlucys.com 11) Lisanatti® The ORIGINAL Almond shreds, $3.99 www.lisanattifoods.com 6 12) Lisanatti® RiceCheeze chunks, 16 $3.99 www.lisanattifoods.com 2 13) Kettle Cuisine Thai Curry Chicken Soup, $3.99 www.kettlecuisine.com 3 14) Kettle Cuisine Three Bean Chili, 1 $3.99 www.kettlecuisine.com 15) Garden Lites Gluten Free All Natural Butternut 20 Squash Soufflé, $3.99 www.GardenLites.com 8 16) Garden Lites Gluten Free All Natural Roasted Vegetable Soufflé, $3.99 www.GardenLites.com 12 17) Canyon Bakehouse Gluten-Free Cinnamon Raisin Bread, $4.99-$5.99 www.canyonbakehouse.com 21 18) Canyon Bakehouse Gluten-Free Rosemary & Thyme Focaccia, $4.99-$5.99 www.canyonbakehouse.com 13 19) Bakery On Main Apple Raisin Walnut Gluten Free 19 Granola, $5.99 www.bakeryonmain.com 11 20) Glow Gluten Free Ginger Snaps, $5.49 www.glowglutenfree.com 21) Glow Gluten Free Chocolate Chips Cookies, $5.49 www.glowglutenfree.com 22) Glow Gluten Free Double Chocolate Chips Cookies, 14 $5.49 www.glowglutenfree.com 23) MI-DEL Gluten Free Gingerbread Men Cookies, 22 $3.49 www.midelcookies.com 24) Personalized Christmas Stocking, price available 24 upon request www.merrystockings.com PAID FOR BY ADVERTISERS

GLUTEN FREE • LACTOSE FREE 1.877.MYBIPRO - BIPROUSA.COM 4 · december 2011 An Independent supplement by medIAplAnet to usA todAy insiGHt best tiPs raising happy, gluten-free kids your gluten-free rallie McAllister, parents: implementing a M.D., MpH gluten-free diet; they also need the impact gluten-free diet compliance lunchbox family physician gluten-free diet is no walk social skills and confidence to stay and overall emotional health. With and coauthor of in the park Packing a nutritious school lunch the mommy md safe wherever they go. Plan meals a little research, you can easily find for children can be a challenge for Guide to Your A diagnosis of celiac disease or together and use role play to teach kid-friendly gluten-free foods like any parent, but for those with chil- baby’s first Year gluten sensitivity significantly your child how to communicate his pizza and cupcakes at grocery stores dren who are gluten-intolerant, it impacts children and families, and or her needs. in your area. can be especially difficult to make vide energy throughout the day. there are challenges when raising ■ look at it as a bonding expe- ■ it’s not always about the food. ■■ sure they’re getting the nutrients Dairy products, like milk and a child with special dietary needs. rience. A gluten-free diet can be a The holiday season is a wonderful they need each and every day. cheese, are good sources of cal- With the right information, a few major adjustment, but it also pro- time to teach your child the value Because children following glu- cium. Calcium-fortified orange ten-free diets may not get enough juice and broccoli are additional helpful hints and a good attitude, vides opportunities for families of volunteerism. NFCA’s Awareness fiber or critical nutrients like sources of this important mineral. parents and kids can live, learn and to bond through learning. Activi- All-Stars Fundraiser is a wonder- calcium and iron, parents should ■■ While food is always the gold thrive on a gluten-free diet. ties like reading labels, cooking, or ful way for kids across the country strive to choose foods that are good standard for providing complete, ■ early education and empow- ordering in a restaurant can be a to unite and raise money for celiac sources of these nutrients. balanced nutrition, I recom- erment are essential. Children chance to make lasting memories disease! Whatever the project, With a little research and sup- mend incorporating nutri- with celiac must together. encouraging your child to support port, parents can find the balance tional shakes to supplement learn how to ■ The art of substitution. Stay- a cause they feel passionate about between a nutritious, gluten-free a healthy diet, as long as they advocate for their ing focused on healthy gluten-free can help them find happiness and diet and ensure that their children are gluten-free. These bever- health. This foods is important, but sometimes build character. will grow and thrive. ages are portable, nutritious, means more children with celiac just want to fit ■■ Include foods that are high in and easy for parents to pack in than knowing in with all the other kids. Feelings WhiTney ehreT protein like eggs and nuts to pro- a lunchbox. the basics of a of deprivation and isolation can [email protected]

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news tip 2 3 tiPs ‘tis the season GEGEt involvED! to be gluten-free If you happen to be hosting a gluten-free guest, you can still prepare a flavorful feast that includes all of the trimmings without the gluten. 1) new traditions. Making minor adjustments to traditional family recipes is easy and you A towEr oF HopE. A 12-foot don’t have to look beyond the gluten-free cake brings attention aisles of your local grocery store to the need for FDA standards. to find celiac-friendly alterna- Photo: Charles Votaw tives to gluten-laden ingredients. Use gluten-free bread to create a tasty stuffing or cornstarch to thicken gravy. the icing on the gluten-free cake 2) Clean cooking. Ensure all cooking surfaces and utensils are Grassroots movement Forberger began the experiment to stage, or newspapers or blogs, but “With this new regulation in place carefully cleaned to avoid cross- spurs gluten-free labeling bring attention to labeling needs of actually spend their time to come standardizing what gluten-free contamination. process gluten-free products. With the help over and listen to us … I think it says means, everyone has to play by the 3) label literacy. Many pre- of many activists and Whole Food a lot.” same rules as far as testing and set pared condiments and sauces This May, when nearly 12 feet of Market’s baker Lee Tobin, that cake’s Gluten-free is currently the fastest some sort of equilibrium,” Shepard contain hidden sources of gluten. If in doubt, leave it out! gluten-free goodness towered above soaring legacy now holds the prom- growing grocery sector, and labeling said. “When they go into effect, it Remember, gluten-free doesn’t a crowd that included Food and Drug ise of change. regulations will bring consistency to will make label-reading easier for mean it can’t be gourmet. When Administration Deputy Commis- “It’s one thing to have a commu- the market. Taylor took ownership of families and take a little of the stress the family gathers around the sioner for Food, Michael Taylor, activ- nity back something at an event the issue following the recent event, out of shopping when you do have table, you can provide an array of ists knew little of the progress that and then it falls off the radar and you and the FDA reopened the issue at a gluten restrictions.” food to please every palate while would be left in the cake’s shadow. didn’t get a hold on people who actu- pace that even shocked issue cham- These activists can now have their ensuring a healthy, happy holi- Gluten-free cooking expert and ally make a change,” Forberger said. pions. A comment period recently cake and eat it too! day for all! author Jules Shepard, and glu- “For them (FDA officials) to show up closed and the agency expects final WenDy TAylor [email protected] ten-free activist and athlete John and not just listen to us on the social regulations during 2012. [email protected]

Santa’s sharing his favorite comfort food this holiday.

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inspiration tip don’t miss! 3 From care to cure opment in high-risk children, identifying better treatments GEGEt CCrEArEAtivE When the term “celiac disease” and identifying diagnostic mark- in tHE kitCHEn comes up, everyone’s first thought ers and treatments for gluten is “gluten-free diet.” This associa- sensitivity. tion is so common that the gluten- First, a mouse model with celiac free diet is considered to be the disease was developed to help cure; however, this is a major mis- demonstrate that upregulation conception. While the gluten-free of the inflammatory factor IL-15 diet is the only current treatment (found in active celiac patients) for celiac disease, it is not and induces loss of oral tolerance to never will be a cure. gluten and reproduces the early Celiac disease is an autoim- stages of celiac disease . mune disorder. Since its trigger- The next generation model ing agent (gluten) is known and will likely allow researchers to the targeted tissue is accessible, test treatments to cure active researchers have an opportunity celiac, and to understand the link to uncover disease mechanisms between celiac disease and auto- DElECtABlE DEliGHts. and establish new avenues for pre- immunity. Jennifer Esposito makes vention and treatment. Stefano Guandalini, MD, Founder gluten-free baked goods. Photo: jennifer esPosito The University of Chicago Celiac and Medical Director and Bana Jabri, Disease Center has identified sev- MD, PhD, Director of Research at eral goals in its research: devel- The University of Chicago Celiac Jennifer Esposito finds a new life overcoming celiac disease. oping a cure, preventing devel- Disease Center.

The University of Chicago Celiac Disease Center Cooking to cope veryone’s heard the No, bring in the bagels!’ It’s insane. ing gluten-free alternatives. clichéd demanding These are guys who could care “I realized so much of my life actress stories. When less—gluten-free, not gluten-free.” has been wonderful memories of award-winning food,” she said. “What Do You Miss actress Jennifer taking it to the kitchen is something I feel like I have to do Esposito arrives on Esposito happily shares the fla- for people. I understand watching eset, it’s usually others making vors and health benefits of her someone eat your favorite food, and With You demands—for her homemade gluten-free food. After years of you can’t have it.” baked goods. misdiagnosis, painful symptoms, She wants the website and bak- From Care to Cure Diagnosed with celiac disease fatigue and hair loss so extreme ery to give back a bit of hope to those in 2009, Esposito learned the art of it forced her to wear a wig when who find themselves learning to gluten-free baking through neces- filming the series Samantha live without gluten. sity and began bringing her own Who?, she was thrilled food “Life is not over, it is changing,” cooking to cope with her illness. choices could return her health. Esposito offered. “Your self that you Our efforts span the full spectrum Now, with her own website and in Following months of online knew is not that way anymore. You of celiac disease support and research the process of opening a gluten-free searches and physical gluten-with- were probably not well and doing • Expert diagnosis and treatment • Professional education programs bakery, she’s constantly hassled by drawals, she experimented and rec- a lot of adjusting to figure out how • Free screening days • Trailblazing research aimed at the cast and crew of her TV series reated her aunt’s carrot cake during to live that way. Well, let that go, • Gluten-free Care Packages curing celiac disease by 2026 Blue Bloods. a strong craving. She not only came because now it’s a completely new “These are guys who are used out with a great cake, but a passion journey.” Join us in Chicago! For the 15th International Celiac Disease Symposium in 2013 to having coffee and cigarettes for for recreating food—something she And, it’s a journey Esposito is breakfast,” Esposito laughs. “They now does for others on her website determined to make satisfying. Learn more at ask me once a week if I don’t bring jennifersway.org. Readers leave www.cureceliacdisease.org something in, ‘Jennifer, where’s a wish list of missed foods, and WenDy TAylor your stuff? Bring in the cookies! Esposito takes to her kitchen, creat- [email protected]

8941_CeliacAd_RL.indd 1 11/3/11 2:22 PM 7

Gluten-free itinerary while holiday travel doesn’t rank high on any wish list, traveling with gluten-intolerance increases stress at every unknown rest stop and food court.

“I used to pride myself on not car- rying any snacks,” said Cynthia Kupper, RD, CD, the executive director of the Gluten Intoler- ance Group. “More and more, I’ve started carrying granola or trail mix. I think it’s important to be prepared.” While those emergency supplies are key, experts also agree know- TITOSVODKA.COM ing the right questions to ask is crucial. Kim Koeller, president of GlutenFree Passport, notes that wait staff can answer questions about ingredients or dedicated fryers easier than determining if an item is gluten-free.

High-tech help Kupper points to the number of standardized preparation prac- tices among chain restaurants as security for those weighing options. Those who are gluten intolerant also benefit from web- sites, including Koeller’s Gluten- Free Passport, that offer mobile apps identifying safe dining options. These lists keep options handy when on the road. tis’ the season Special conditions arise during the holidays with hotel buffets and fixed menus. In order to avoid sickness following that Christmas brunch or New Year’s Eve dinner, experts recommend calling ahead to see if an off- menu meal can be arranged.

WenDy TAylor [email protected] 8 · december 2011 An Independent supplement by medIAplAnet to usA todAy

All Boar’s Head meats, cheeses and condiments are GLU TEN FREE. We congratulate the following organizations for facilitating research and raising awareness of Celiac Disease: Celiac Sprue Association National Foundation for Celiac Awareness Gluten Intolerance Group Celiac Disease Foundation American Celiac Disease Alliance