Donor Spotlight

The People for Whom The Mark J. Rosen, MD, Erin Popovich Fights 2 Master FCCP Endowment 8 DONOR SPOTLIGHT December 2019 CHEST Foundation CONTENTS Board of Trustees Executive Committee Edward J. Diamond, MD, MBA, FCCP President & Trustee Ian T. Nathanson, MD, FCCP President-Elect & Trustee Doreen J. Addrizzo-Harris, MD, FCCP Immediate Past President & Trustee Robert De Marco, MD, FCCP President-Designate & Trustee Stephanie M. Levine, MD, FCCP CHEST President Clayton T. Cowl, MD, MS, FCCP CHEST Past President Robert A. Musacchio, PhD CHEST Executive Vice President and CEO Trustees Christopher L. Carroll, MD, FCCP Sai P. Haranath, MD, MPH, FCCP Candace A. Huebert, MD, FCCP Roozehra Khan, DO, FCCP Burton L. Lesnick, MD, FCCP The People for Whom Erin Popovich Fights 2 Donald A. Mahler, MD, FCCP Jairo A. Melo, MD, FCCP Barbara A. Phillips, MD, MSPH, FCCP The Mark J. Rosen, MD, Master FCCP Endowment 8 Jill Popovich David J. Steiger, MBChB, FCCP Patti Tuomey, EdD Foundation Activities Soared at CHEST 2019 10 CHEST Foundation Staff Robert A. Musacchio, PhD New CHEST Foundation Board Members Hope CHEST Executive Vice President and CEO to Spearhead Community Building, International Rudy Anderson, CAE Associate Executive Director, CHEST Foundation Expansion, and Technologic Innovation 14 Angela Perillo, MBA Director, Development & Foundation Operations Caitlin Moroney, MA Champion’s Circle 16 Individual Giving Manager, CHEST Foundation Andrew Gillen Founder’s Society 21 CHEST Foundation Programs and Development Specialist CHEST Foundation Founder and Honorary Patron Bart Chernow, MD, Master FCCP and Peggy Chernow CHEST Publishing & Production Staff Nicki Augustyn, CAE SVP, Marketing, Communications, and Publishing Kavitha Reinhold | Director, Publishing Pam Goorsky | Manager, Editorial Resources Martha Zaborowski Publications & Digital Content Editor Claudia Egresits | Senior Branded Design Specialist chestfoundation.org PRESIDENT’S LETTER I am so very excited to become the 13th President of the CHEST Foundation. The Foundation is in its strongest position since it was founded in 1996. We continue to support and produce high quality programs that build upon our overarching pillars of patient access, empowerment, and clinical research. Rudy Anderson, Angela Perillo, Caitlin Mahoney, and Andrew Gillen comprise our core staff, each with a different focus and amazing passion and teamwork. Robert Musacchio is the CEO of both CHEST and the CHEST Foundation. He is intensely engaged and supportive of the Foundation. A new President is given the opportunity to influence strategy and vision. My goal is to enhance recognition and awareness of our many great programs, projects, and other accomplishments. This year, Hans Lee, MD, from Johns Hopkins, led a team to Uganda to implement bronchoscopy and thoracoscopy by implanting the equipment and training five physicians to provide advanced airway and pleural procedures. This project was just one leg of long-term enduring efforts to improve the provision of respiratory health care to this population. Uganda is a low income country with a largely rural population of 37 million, so the impact of this CHEST Foundation community service grant is enormous. The Foundation will continue to prioritize empowerment of communities in need throughout the new year. The Uganda effort, another impactful program, was led by Dana Hickman, a nurse practitioner. She identified the need in Forsyth County, Georgia, to empower patients with COPD, along with their families and caregivers. Forsyth County is a rapidly growing county near the Blue Ridge Mountains with much of its growth in senior housing, assisted living, and multigenerational homes. Many of the over 500,000 Georgia residents with COPD reside there. This program developed a center-of-excellence for COPD that prioritizes education, compassionate support, and personal guidance in addition to high quality medical care. These are just a few examples that I find particularly exciting. They represent only a small portion of the CHEST Foundation activity that includes additional community service and clinical research grants, disease-specific tool kits for patients and caregivers, and 80 patient education publications that have been translated into multiple languages. In 2019, the Foundation funded 80 travel grants to bring early career chest physicians to our national meeting where they engaged in Foundation meetings and events. Through additional grant support and distribution, the Foundation delivers on its goal of supporting research – including research on specific diseases and research to assess and optimize patient-provider interactions. We have enjoyed great success with our fundraising events. This year, Dr. Doreen Addrizzo-Harris chaired the Kentucky Derby event in New York City. The Feldman Family Foundation hosted their annual Poker Night in Chicago and also supported Casino Night at our annual CHEST meeting in New Orleans. We held our first golf outing in Chicago. Kim French and Patrice Diamond hosted a “Girls Night Out” event at a boutique in Chicago. At the time of this writing, we are preparing to attend the Golden Era of Erin Popovich event in San Antonio, Texas. This is the largest fundraising event in our history and represents the public kick-off of the Erin Popovich Endowment that supports patient access, empowerment, and research directed toward interstitial lung disease. The Foundation continues to produce The Lung Health Experience in cities across the nation. Participants undergo spirometry screening and obtain lung health education. This is one of many ways that the Foundation has demonstrated and will continue to realize its goal of access – which means giving patients, families, and caregivers access to medical specialists for information and second opinions, and removing barriers that patients face in obtaining the tools and knowledge they need to improve their health. It is a privilege to support the CHEST Foundation; 95% of our dollars directly support our programs. I encourage you to join me, along with the Foundation staff and Board of Trustees, in our ongoing efforts to crush lung disease, as we avail our patients to access, empowerment, and research. An easy way to start is by logging onto chestfoundation.org/donate. I can be contacted at any time via email and mobile number below. I wish each of you a joyous holiday season, as we appreciate our many blessings and embrace opportunities to help those who are less fortunate. Sincerely, Ed Diamond, MD, MBA, FCCP [email protected] +1 (847) 652-5622 December 2019 1 SPOTLIGHT The People for Whom Erin Popovich Fights t’s a December evening at the AT&T Center some personal insight into the Endowment’s Iin San Antonio, Texas. A special crowd of mission and the evening’s event: “Lung disease San Antonians and many others from across isn’t the most talked about, most popular thing the US have donned their best cocktail attire that people give to or try and sock hop shoes to dance the night away and support, but in order, to top hits of the 1950s. Interactive attractions to help patients who have capture all eyes, making the multigenerational trouble breathing and guests nostalgic for the era of Rock & Roll, Doo- don’t have access to a lot of Woop, and Motown. Everyone can still taste the vital things to help them fine dinner prepared by San Antonio’s top survive and maintain a chefs Andrew Weissman, Pieter Sypesteyn, and somewhat good quality of Manuel Aredondo. life, we must share our stories and try to get as much care as we can for those patients. They are What’s dominant on everyone’s minds, however, out there. They are hurting. And they need help. is not the catchy tunes or the upscale dinner. To have the support of the CHEST Foundation This is not the holiday party to end all holiday for that purpose is just fantastic.” parties; it’s The Golden Era of EP, a fundraiser benefiting the Erin Popovich Endowment and Jill’s sense of the night’s goals is echoed by her its mission—to promote access, empowerment, long-time best friend Meghan, who was also and research for patients living with interstitial her mother’s caregiver: “I think she would be lung disease and for their oft-forgotten so excited about everything going into the Erin caregivers. Popovich Endowment and about reaching as many families as possible. She would talk Erin Popovich suffered from an interstitial lung about that. She’d be like, ‘I wonder how other disease for more than 10 years. This evening people with ILD are dealing with this.’ She had event’s co-hosts are Erin Popovich’s daughter, oxygen machines at her house, and she was like, new CHEST Foundation Board member Jill ‘I wonder what people with ILD who don’t have Popovich, and Dr. Jairo Melo, a Board member oxygen machines are doing, and what those who and the doctor who guided the Popovich family can’t afford to have them do.’ She was concerned through Erin’s experience with ILD. Jill provides about this and wanted to help people.” 2 chestfoundation.org SPOTLIGHT It is in honor of Erin’s desire to help anyone she could—whether she had known them for five minutes or a lifetime—that the CHEST Foundation has partnered with the Popovich family to create the Erin Popovich Endowment. It sheds light on the stories of people with ILD and strives to empower those patients to gain access to the right resources and have research to support their cause. The People for Whom These are the people for whom Erin Popovich fought in her lifetime and for whom she fights now Erin Popovich Fights in spirit. U S Navy Photo/Journalist 1st Class Preston Keres * * * * Waking up in her Jackson, New Jersey, home the morning of Sunday, January 8, 2006, Jeanmarie DeBiase thought about turning 44 years old that day. Preparations for a big family dinner celebration were already underway.

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