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Scottish Parliament Cross Party Group on Learning Disability Easy Read Legacy Report 2016-2021 Produced for the CPG by ENABLE Scotland, Secretariat

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Scottish Parliament Cross Party Group on Learning Disability Easy Read Legacy Report 2016-2021 Produced for the CPG by ENABLE Scotland, Secretariat Scottish Parliament Cross Party Group on Learning Disability Easy Read Legacy Report 2016-2021 Produced for the CPG by ENABLE Scotland, Secretariat 1. Introduction. 2. Membership. 3. Background Information. 4. Keys to Life. 5. Coming Home. 6. Review of Mental Health (Care and Treatment) Act. 7. Education. 8. Social Care. 9. COVID-19 Pandemic. 10. Looking Ahead. ClicSummaryS to add text Members: - Jackie Baillie MSP (Convenor) (Labour) - Joan McAlpine MSP (Deputy Convenor) (SNP) - Jeremy Balfour MSP (Conservative) - Alex Cole-Hamilton MSP (LIberal Democrat) - Oliver Mundell MSP (Conservative) - Mark McDonald MSP (Independent) - Alison Johnstone MSP (Green) 1. Introduction. Cross Party Group on Learning Disability Easy Read Legacy Report 1. Introduction This report is about the Cross-Party Group on Learning Disability in the Scottish Parliament. This report will talk about all the things the Cross-Party Group has been able to do since 2016. It will also look ahead to what it could do in the future. The Cross-Party Group is important because it lets members of the Scottish Parliament and other people involved in important decision making the chance to hear from people with a learning disability and their carers. 2. Membership. Cross Party Group on Learning Disability Easy Read Legacy Report 2. Membership The Cross-Party Group is made up of people from all the major political parties in Scotland. It also is made up of 19 charities. ENABLE Scotland is the group's secretariat. A secretariat is the office or people responsible for the management of an organisation or group. Scottish Labour's Jackie Baillie is the Convenor of the Cross-Party Group. The Scottish Nationalist Party's (SNP) Joan McAlpine is the Vice Convenor. A Convenor is someone whose job is to call people together for meetings of a committee and then chair the meetings. 3. Background Information. Cross Party Group on Learning Disability Easy Read Legacy Report 3. Background Information The 2016 election of MSPs resulted in an SNP-led minority government. A minority government is when the government is made up of MSPs from 1 party,. It means that the party in government did not get more MSPs elected than the total elected from all the other parties. A lot of the parliament's time was taken up with Brexit. In March 2020, the Coronavirus pandemic started. This changed everyone's lives. It had a big impact on people with a learning disability. Cross Party Group on Learning Disability Easy Read Legacy Report 3. Background Information It also had an impact on the families of people with a learning disability and their carers. It also had an impact on the organisations that work with and support people with a learning disability. Because of this the work of the Cross- Party Group on Learning Disability has never been more important. The work it does can make life better for people with a learning disability in Scotland. Cross Party Group on Learning Disability Easy Read Legacy Report 3. Background Information The next election of the Scottish Parliament is in May 2021. After that election the Cross-Party group will keep working to improve the lives of people with a learning disability. Keep reading to learn more about the different things the Cross-Party Group worked on from 2016 to 2021. 4. Keys to Life. Cross Party Group on Learning Disability Easy Read Legacy Report 4. Keys to Life The Keys to Life is a 10 year strategy to make life better for people with a learning disability in Scotland. It started in 2013. When the Cross-Party Group met in 2016, the Keys to Life Plan was 3 years old. It was made by the Scottish Government and COSLA. COSLA is the group of local councils in Scotland – they come together to work on some things. The Cross-Party Group has spoken about the Keys to Life lots over the last 5 years. Cross Party Group on Learning Disability Easy Read Legacy Report 4. Keys to Life At first, we spoke about getting updates from the Government on what had been achieved since the strategy launched in 2013. Scottish Government staff have attended the Group regularly. They come along to give us updates about the Keys to Life and what it is achieving. Cross Party Group on Learning Disability Easy Read Legacy Report 4. Keys to Life In 2019 a new Keys to Life plan for the years 2019 to 2021 was presented to the group. It set out 4 key themes to focus on: • Living • Learning • Working • Wellbeing The group has continued to get updates about the Keys to Life. Cross Party Group on Learning Disability Easy Read Legacy Report 4. Keys to Life Some members of the CPG have felt that the Keys to Life has good ideas, but hasn’t always made a lot of changes happen. Some members of the CPG think that other things need to be done to improve life for people who have a learning disability. People First put forward a petition to the Scottish Parliament in January 2020. It asked for a Bill of Rights for People who have a learning disability. In September 2020 ENABLE Scotland spoke about a new campaign. The campaign was asking for a Commissioner for People with Learning Disabilities and Autism. They would stand up for people with a learning disability and autism's rights. They would be able to explain what needs to happen to make things in Scotland better for people with a learning disability and autism. Cross Party Group on Learning Disability Easy Read Legacy Report 4. Keys to Life People in the Group have different ideas for how to make sure people with a learning disability have their rights upheld. But everyone agrees that changes should be led by people who have a learning disability. The Group has heard lots of evidence and presentations about what life is like for people who have a learning disability. In 2020 the Fraser of Allander Institure came to the group to update on a new year long research programme. In September 2020 they told us about their report. The group welcomed their work and thought it was high quality. The group said they would support the Fraser of Allander Institure with their work. 5. Coming Home. Cross Party Group on Learning Disability Easy Read Legacy Report 5. Coming Home The group said that 'where people live' was something important to look at in 2016 and 2017. We spoke about it at lots of meetings. At that time, Dr Anne MacDonald came to some meetings to update us on the work that she had been doing for the Scottish Government. It was to look at people with a learning disability who were in hospital for too long. It also looked at who had to move away from where they stay to get the support they need. A report called 'Coming Home’ then came out in November 2018. It said that some people with a learning disability had to move away from where they wanted to live to get support. It said that some other people were living in hospital. Cross Party Group on Learning Disability Easy Read Legacy Report 5. Coming Home That went against what the government said should happen. They said people should be able to live in their own home and the community they want to. 453 people with a learning disability were cared for away from where they lived. 79 of them had to move out of Scotland to get the support they needed. The people didn't want to be where they were. The group spoke about this lots. Joan McAlpine – our deputy convenor - put a motion to parliament. This is a way for MSPs to show they support an idea. Cross Party Group on Learning Disability Easy Read Legacy Report 5. Coming Home The motion got support from MSPs from lots of political parties. After the report came out the group wrote to the Cabinet Secretary for Health and Sport. We asked what the Scottish Government would do to change what was happening to people and make it right. In February 2021 the Review of Adult Social Care said that there should be a Scotland wide approach for making things right and that £20 million should be spent to make this happen. 6. Review of Mental Health (Care and Treatment) Act. Cross Party Group on Learning Disability Easy Read Legacy Report 6. Review of Mental Health (Care and Treatment) Act The Independent Review of Learning Disabilities and Autism in the Mental Health Act happened during this 2016 – 2021 session of parliament too. This was a significant achievement for the group. The review happened because our Convenor put forward an amendment to the changes to the law - an idea - to parliament to have it. The review was led by Andrew Rome. It looked at the treatment of people with a learning disability and autism in the mental health act. The review included the voices of many groups of people who were affected by the law. Cross Party Group on Learning Disability Easy Read Legacy Report 6. Review of Mental Health (Care and Treatment) Act The review also included the voices of medical professionals. It also included the voices of carers of people with a learning disability and people with autism. The review suggested some changes to the law to make sure that people with a learning disability and autistic people had their human rights upheld. The group spoke about the review a lot. We even invited people to attend our group and keep us up to date about how the review was going.
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