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Response from NHS Digital
1 Trevelyan Square Boar Lane Leeds LS1 6AE FAO: Joanne Andrews North East Kent Coroners Cantium House Country Hall Sandling Road Maidstone Kent ME14 1XD By Email Only: [email protected] Your ref: Our ref: 4 February 2021 Dear Ms Andrews Inquest into the death of Mr Ronald Richard Tilley I am writing in response to the Regulation 28 report received from HM Coroner dated 4 December 2020. This follows the death of Ronald Richard Tilley, who sadly died on 23 October 2019. This was followed by an investigation and inquest which concluded on 29 October 2020. I would like to express my sincerest condolences to Mr Tilley’s family. NHS Digital provided written statements in advance of the inquest, but did not attend the inquest. NHS Digital is a non-departmental public body created by the Health and Social Care Act 2012 and is the national information and technology partner for the health and care system. We use technology to support the NHS and social care. NHS Digital operates and maintains the Personal Demographics Service (‘PDS’) under the Spine Services No.2 Directions issued by the Secretary of State for Health and Social Care to maintain a register of NHS patients in England. PDS is the national electronic database of NHS patient details such as name, address, date of birth and NHS Number (known as demographic data). It also records the primary care registration (i.e. the GP practice with which the patient is registered for general medical services1) held by each registered patient and as notified through other NHS systems. -
Annual Report
Our 2018/19 Annual Report Health and high quality care for all, now and for future generations HC 2293 NHS England Annual Report and Accounts 2018/19 NHS England is legally referred to as the National Health Service Commissioning Board. Presented to Parliament pursuant to the National Health Service Act 2006 (as amended by the Health and Social Care Act 2012). Ordered by the House of Commons to be printed 11 July 2019 HC 2293 © Crown copyright 2019 This publication is licensed under the terms of the Open Government Licence v3.0 except where otherwise stated. To view this licence, visit nationalarchives.gov.uk/doc/open-government-licence/version/3 Where we have identified any third party copyright information you will need to obtain permission from the copyright holders concerned. This publication is available at www.gov.uk/official-documents Any enquiries regarding this publication should be sent to us at: NHS England, Quarry House, Quarry Hill, Leeds, LS2 7UE. ISBN 978-1-5286-1036-0 CCS0219647926 07/19 Printed on paper containing 75% recycled fibre content minimum Printed in the UK by the APS Group on behalf of the Controller of Her Majesty’s Stationery Office Contents A view from Lord David Prior, Chair ............................................................................7 About NHS England ......................................................................................................9 Performance Report ......................................................................................................13 Chief Executive’s -
Memorandum of Understanding Between Public Health England and the Care Quality Commission
Memorandum of Understanding between Public Health England and the Care Quality Commission INTRODUCTION 1. This Memorandum of Understanding (MoU) sets out the framework for the working relationship between Public Health England (PHE) and the Care Quality Commission (CQC). 2. PHE and the CQC recognise that there is a distinct and unique relationship between the two organisations. Accordingly the framework set out in this MoU takes account of that relationship and details ways in which PHE and the CQC will work together and alongside one another in delivering their respective statutory functions. The MoU is intended to communicate clearly and unambiguously that PHE and the CQC will work together where relevant and appropriate to do so. 3. PHE and the CQC recognise their respective statutory responsibilities and organisational status, but will always seek to collaborate and cooperate when relevant and appropriate to do so in delivering their core functions. 4. This MoU cannot override the statutory duties and powers of either PHE or the CQC and is not enforceable in law. However, PHE and the CQC agree to adhere to the principles set out in this MoU and will show proper regard for each other’s activities. 5. The MoU sets out principles that PHE and the CQC will follow in the course of day-to-day working relationships. The MoU may need to be supported by protocols and other documents not included here which set out in more detail operational considerations of how PHE and the CQC will work together. Statutory Responsibilities of PHE and the CQC 6. The Care Quality Commission (CQC) was established under the Health and Social Care Act 2008 (HSCA) and is responsible for the regulation of the quality of health and social care services. -
Health Research Authority Board Meeting Agenda Part 1 – Public Session
Page 1 of 63 HEALTH RESEARCH AUTHORITY BOARD MEETING AGENDA PART 1 – PUBLIC SESSION Date: Tuesday 24 July 2018 Time: 1.30pm – 3.15pm Venue: etc venues, Avonmouth House, 6 Avonmouth Street, London SE1 6NX Item Item details Time Attachment Page (mins) no 1. Apologies Verbal - Janet Messer Janet Wisely 2. Conflicts of interest Verbal - 3. Minutes of the last meeting 10 - 16 May 2018 A 4. Matters arising Verbal - Including: - HRA Annual Report and Accounts 2017-18 published 5. Update from Chair 5 Verbal - 6. Chief Executive update 10 To be tabled - 7. HRA Directorate update 5 To be tabled - 8. Transformation Programme update 10 B Including: - SIP Proportionality project 10 C 9. Update on progress of research transparency work 5 Verbal - 10. Pilot proposal for an HRA Accountable Centre Model for 15 D improvement evaluations Page 1 of 2 HRA Board Meeting Agenda – Part 1 (2018.07.24) Page 2 of 63 11. Finance report: April – June 2018 10 E Items for information 12. Annual Freedom of Information Report (2017/18) F 13. Annual Complaints Report (2017/18) G 14. Summary of 06.06.2018 Audit & Risk Committee meeting H 15. Out of session business conducted / External areas of Verbal interest since previous meeting 10 - Update regarding recruitment of Nick Hirst to support Research System Programme circulated 07 June 2018 - Statement issued by NIHR regarding Improving Performance in Initiating and Delivering Clinical Research circulated 07 June 2018 - Update regarding two studies to be published circulated 17 June 2018 16. Any other business 5 Verbal - (Any AOB items should be notified to the Head of Corporate Governance no later than 24 hours prior to the Board meeting barring exceptional circumstances) 17. -
Saving and Improving Lives: the Future of UK Clinical Research Delivery
Saving and Improving Lives: The Future of UK Clinical Research Delivery Published 23 March 2021 Saving and Improving Lives: The Future of UK Clinical Research Delivery Contents Ministerial foreword ....................................................................................................................... 3 The value of clinical research ....................................................................................................... 5 Our lifeline during COVID-19 ....................................................................................................... 5 Our opportunity to grow, adapt and improve ............................................................................... 6 Our hope for the future ................................................................................................................. 7 Our chance to help others ............................................................................................................ 8 Our time to act is now .................................................................................................................. 9 Our vision for UK clinical research delivery ............................................................................. 12 Clinical research delivery embedded in the NHS ...................................................................... 12 Patient-centred research ............................................................................................................ 12 Streamlined, efficient and innovative clinical -
The Health Care Workforce in England
The health care workforce in England Make or break? November 2018 Summary In advance of the publication of the NHS long-term plan, this briefing highlights the scale of workforce challenges now facing the health service and the threat this poses to the delivery and quality of care over the next 10 years. It sets out the reasons why the long-term plan and supporting workforce strategy must address the urgent and mounting challenges facing the health care workforce. This briefing will be followed in the coming weeks by a more in-depth report that explores five key levers available nationally and locally that could help ameliorate the workforce crisis affecting both health and social care. Key messages • The workforce challenges in the NHS in England now present a greater threat to health services than the funding challenges. • Across NHS trusts there is a shortage of more than 100,000 staff. Based on current trends, we project that the gap between staff needed and the number available could reach almost 250,000 by 2030. If the emerging trend of staff leaving the workforce early continues and the pipeline of newly trained staff and international recruits does not rise sufficiently, this number could be more than 350,000 by 2030. • The current shortages are due to a number of factors, including the fragmentation of responsibility for workforce issues at a national level; poor workforce planning; cuts in funding for training places; restrictive immigration policies exacerbated by Brexit; and worryingly high numbers of doctors and nurses leaving their jobs early. • Central investment in education and training has dropped from 5% of health spending in 2006/7 to 3% in 2018/19. -
UNDERSTANDING the NEW NHS a Guide for Everyone Working and Training Within the NHS 2 Contents 3
England UNDERSTANDING THE NEW NHS A guide for everyone working and training within the NHS 2 Contents 3 NHS ENGLAND INFORMATION READER BOX Introduction 4 Directorate ◆ The NHS belongs to us all Medical Operations Patients and information Nursing Policy Commissioning development Foreword (Sir Bruce Keogh) 5 Finance Human resources NHS values 6 Publications Gateway Reference: 01486 ◆ NHS values and the NHS Constitution Document purpose Resources ◆ An overview of the Health and Social Care Act 2012 Document name Understanding The New NHS Structure of the NHS in England 8 Author NHS England ◆ The structure of the NHS in England Publication date 26 June 2014 ◆ Finance in the NHS: your questions answered Target audience Running the NHS 12 ◆ Commissioning in the NHS Additional circulation Clinicians working and training within the NHS, allied ◆ Delivering NHS services list health professionals, GPs ◆ Health and wellbeing in the NHS Description An updated guide on the structure and function of Monitoring the NHS 17 the NHS, taking into account the changes of the Health and Social Care Act 2012 ◆ Lessons learned and taking responsibility ◆ Regulation and monitoring in the NHS Action required None Contact details for Dr Felicity Taylor Working in the NHS 20 further information National Medical Director's Clinical ◆ Better training, better care Fellow, Medical Directorate Skipton House NHS leadership 21 80 London Road SE1 6LH ◆ Leading healthcare excellence www.england.nhs.uk/nhsguide/ Quality and innovation in the NHS 22 ◆ High-quality care for all Document status This is a controlled document. While this document may be printed, the The NHS in the United Kingdom 24 electronic version posted on the intranet is the controlled copy. -
Joint Framework: Commissioning and Regulating Together
With support from NHS Clinical Commissioners Regulation of General Practice Programme Board Joint framework: Commissioning and regulating together A practical guide for staff January 2018 Publications Gateway Reference: 07488 Contents 1. This framework ..................................................................................................... 3 1.1 Purpose of the framework .................................................................................... 3 1.2 Who this framework is for ..................................................................................... 3 1.3 The Regulation of General Practice Programme Board ....................................... 4 1.4 Our principles ....................................................................................................... 4 1.5 Changing landscape of primary care .................................................................... 4 2. Collaborative working arrangements ................................................................. 6 2.1 Benefits of collaboration ....................................................................................... 6 2.2 Routine information sharing ................................................................................. 6 2.3 Local meetings ..................................................................................................... 8 2.4 Support for improvement ...................................................................................... 8 2.5 Emerging and urgent concerns (non-routine) ...................................................... -
Securing Cyber Resilience in Health and Care: a Progress Update
Securing cyber resilience in health and care: A progress update February 2018 DH ID box Title: Securing cyber resilience in health and care: A progress update Author: DDP/Cyber Security and Innovation/13920 Document Purpose: Policy Publication date: January/2018 Target audience: Parliament, Public, NHS providers, GP practices, Clinical Commissioning Groups, Commissioning Support Units Contact details: Digital, Data and Primary Care, Department of Health, Quarry House, Leeds / 39 Victoria Street, London You may re-use the text of this document (not including logos) free of charge in any format or medium, under the terms of the Open Government Licence. To view this licence, visit website www.nationalarchives.gov.uk/doc/open-government-licence/ © Crown copyright 2016 Published to gov.uk, in PDF format only. website www.gov.uk/dh 2 Introduction The scale of the challenge Cyber-attacks are an increasing global threat. There are regular reports of attacks impacting on different sectors and different countries around the world. The NHS has faced a number of cyber-attacks. The May 2017 WannaCry cyber-attack was unprecedented and the largest ever ransomware cyber-attack. And while it was not the target, WannaCry affected the NHS. With the next large-scale attack more of a question of "when" not "if", there remains a need for the health and care system to remain resilient against attack, to protect patient data and patient care. Since 2010 the Department of Health and Social Care (‘the Department’), working with its Arms- Length Bodies (ALBs), has led a significant programme to strengthen cyber resilience across health and care. -
Burscough Family Practice Privacy Notice – Legal Requirements to Share
Burscough Family Practice Stanley Court Lord Street Burscough L40 4LA Burscough Family Practice Privacy Notice – Legal requirements to share How your information is shared so that this practice can meet legal requirements The law requires Burscough Family Practice to share information from your medical records in certain circumstances. Information is shared so that the NHS or Public Health England can, for example: plan and manage services; check that the care being provided is safe; prevent infectious diseases from spreading. We will share information with NHS Digital, the Care Quality Commission and local health protection team (or Public Health England) when the law requires us to do so. Please see below for more information. We must also share your information if a court of law orders us to do so. NHS Digital NHS Digital is a national body which has legal responsibilities to collect information about health and social care services. It collects information from across the NHS in England and provides reports on how the NHS is performing. These reports help to plan and improve services to patients. This practice must comply with the law and will send data to NHS Digital, for example, when it is told to do so by the Secretary of State for Health or NHS England under the Health and Social Care Act 2012. More information about NHS Digital and how it uses information can be found at: https://digital.nhs.uk/home NHS Digital sometimes shares names and addresses of patients suspected of committing immigration offences with the Home Office. More information on this can be found here: https://www.gov.uk/government/publications/information-requests-from-the-home-office-to-nhs- digital Care Quality Commission (CQC) The CQC regulates health and social care services to ensure that safe care is provided. -
NHS England's Responsibilities for Quality
OFFICIAL Paper: PB.07.03.2018/10 NHS ENGLAND – BOARD PAPER Title: NHS England’s responsibilities for quality Lead Directors: Jane Cummings, Chief Nursing Officer Steve Powis, NHS England Medical Director Purpose of Paper: For Information This paper sets out NHS England’s functions relating to service quality. It outlines an initial map of the functions and processes in place, and how this translates into actions to improve service quality. The paper also suggests areas where we could ensure consistency of practice across these functions and the wider organisation, whilst recognising that our impending running cost cuts means overall we are going to have to do less, not more, as an organisation. The Board is invited to: Note the functions, processes and governance in place across the organisation, and how we work across NHS England in order to take action; and Note our work with NHSI and other ALBs to strengthen improvement capabilities across the NHS Page 1 of 14 OFFICIAL NHS England’s responsibilities for quality Purpose 1. This paper maps out NHS England’s formal functions relating to service quality. It gives an outline of the processes in place and how this translates into actions to improve service quality. The paper also suggests areas where we could ensure consistency of practice across these functions and the wider organisation. Background 2. The Health and Social Care Act 2012 states that NHS England has a duty to continually drive improvements in the quality of care across a comprehensive health service. Quality is defined in statute as having three dimensions: safety, clinical effectiveness and patient experience. -
Methodological Challenges in Post-Licensure Vaccine Safety Studies Using Large Routinely Collected Datasets
Methodological challenges in post-licensure vaccine safety studies using large routinely collected datasets by Julia Margaret Toffa-Stowe A thesis submitted in partial fulfilment of the requirements of the Manchester Metropolitan University for the degree of Doctor of Philosophy by Published Work (Route 2) Manchester Metropolitan University 2017 Table of Contents 1. Abstract 2. Acknowledgments 3. Introduction 3.1 Vaccine safety concerns past and present 3.2 Routinely collected health data 3.3 Pre-Licensure 3.4 Post-Licensure 3.4.1 Signal detection 3.4.2 Signal Strengthening 3.4.3 Individual Causality Assessment 3.4.4 Hypothesis Testing 3.4.5 Statistical Methods 3.5 Ethical and Legal framework 3.6 Summary 4. Critical account of Published Works 4.1 Study 1: Intussusception / Rotavirus vaccination 4.2 Study 2: Narcolepsy in adults / Pandemic Influenza vaccine 4.3 Study 3: Convulsions / Pandemic and Seasonal Influenza vaccine 4.4 Study 4: Bacterial and Viral Infections / Measles Mumps and Rubella vaccine 4.5 Study 5: Guillain-Barré syndrome / Seasonal Influenza vaccine 4.6 Study 6: Idiopathic Thrombocytopenic Purpura / second dose of Measles Mumps and Rubella Vaccine 4.7 Study 7: Bell’s Palsy / Seasonal Influenza vaccine 5. Methodological Challenges in Post-Licensure Vaccine Safety Studies 5.1 Setting up the study 5.2 Study design and dealing with confounding 5.3 Case identification 5.4 Defining index data 5.5 Cleaning Data 5.6 Media attention 5.7 Validation 5.8 Publication 5.9 The communication of risk 6. Conclusions 7. Published works 8.