Health information Better Health for the community Better Living

Spring 2008

IN THIS ISSUE AUTISM SPECTRUM DISORDERS AFFECT Leadership Message 2 AS MANY AS 1 IN 150 CHILDREN Adding a New Dimension to Neurosurgery 4 By John C. Pomeroy, MD Volunteers, Auxilians Have Invaluable Presence 6 Adult Day Health Care 7 Ask the Experts 8 mproved detection and the application of well-defined diagnostic criteria have Preventing Childhood Obesity 9 led to the recognition that Autism Spectrum Disorders—until recently thought to be rare—actually affect as many as 1 in 150 children. Autism is a Research Studies 10 I complex disorder of brain development that interferes with communication and Classes and Programs 11 social skills, and may be associated with significant intellectual disability. Autism Organ Donor Medal is also characterized by the presence of rigid of Honor 14 routines and repetitive thoughts and behaviors. Managing Joint The disorder, which is four times more common April is Autism Discomfort 15 in boys than in girls, becomes apparent in early Awareness Month Advancing the Mission 15 childhood and, to varying degrees, lasts through- Medical out one’s life. Center is home to the Cody Center for Autism and 4 Developmental Disabilities The concept of a spectrum of disorders has incor- with sites in Port Jefferson porated a group of diagnoses with many shared Station and Hampton Bays. The clinical characteristics, such as Autistic Disorder, Cody Center is ’s Childhood Disintegrative Disorder, Rett Syn- primary resource for diagnosis, drome, Asperger’s Disorder, and Pervasive treatment, and research on 6 Developmental Disorder-Not Otherwise Specified autism and related disorders. (PDD-NOS or Atypical Autism). Although To learn more, visit the Cody individuals with the latter two diagnoses are Center online at: generally less cognitively impaired, many have www.codycenter.org, or call difficulty living independently, holding jobs, or (631) 444-4000. developing relationships. 15 Autism Spectrum Disorders can usually be clinically diagnosed between the ages of 18 months and three years. There is evidence that for most children the symp- toms begin in early infancy and might be detectable as early as six months of age in high-risk children, such as newborn siblings of children with autism. Diagnosis is made by careful, systematic interviews with the parents, as well as highly struc- 16 tured communication, interaction, and play assessments. Underlying biological explanation for the developmental disorder may be detected in 5 to 10 percent of continued on page 3 MESSAGE FROM STONY BROOK UNIVERSITY MEDICAL CENTER LEADERSHIP

Richard N. Fine, MD Steven L. Strongwater, MD Dean Chief Executive Officer School of Medicine Stony Brook University Hospital

ith the spring season To celebrate the generosity of those National Nursing Home Week is comes an opportunity who have saved lives by becoming also observed in May. The Long Wfor rebirth. It seems fitting organ, tissue, marrow, and blood Island State Veterans Home offers that with this issue of Better Health, donors, and to encourage others to an alternative to assisted living Better Living, we introduce a new look donate, April is designated Donate facilities or nursing homes with its and design. Although the appearance Life Month. We are proud that the Adult Day Health Care Program for may be different, Better Health, Better Medical Center received the U.S. honorably discharged veterans, Living continues to provide important Department of Health and Human their spouses or widows, and Gold health information, including a listing Services Organ Donor Medal of Hon- Star parents. of classes, workshops, seminars, and or for successfully increasing organ other events for members of the donation rates. April is also National National Hospital Week is celebrated community. Occupational Therapy Month. Carol in May. Stony Brook’s healthcare Grosch, OTR, and Stony Brook’s inpa- professionals will be at the Smith Throughout the calendar year, tient occupational staff offer useful Haven Mall on Wednesday, May 21, to national recognition dates have been information about managing joint provide free screenings and valuable established in efforts to heighten discomfort. National Healthcare healthcare information to members of interest in specific healthcare issues Volunteer Week is observed in April. the community. important to you. Stony Brook Read about our Hospital volunteers University Medical Center healthcare and the Hospital Auxiliary, and how In this issue, Anupama Chawla, MD, professionals participate in this effort they help us to fulfill the Medical and Janet DiFalco, RN, in “Ask the by contributing articles to Better Center’s mission to improve the lives Experts,” provide useful information Health, Better Living in their areas of of our patients, families, and commu- concerning celiac disease, a disease expertise to help educate members nities, educate skilled healthcare that has seen a surge in diagnoses in of the community, and to stimulate professionals, and conduct research the last decade. Also, you can read awareness about health risks, disease that expands clinical knowledge. about the establishment of the Center prevention, and treatment. for Best Practices to Prevent and May is Stroke Awareness Month. Reduce Childhood Obesity. April is National Autism Awareness Learn about lifesaving techniques to Month. John C. Pomeroy, MD, found- treat stroke and other cerebro- We are pleased to provide you with a ing director of the Cody Center for vascular disease. We are pleased to listing of classes, programs, informa- Autism and Developmental Disabili- announce that nationally known tion on research studies, and special ties, offers insight about this disorder. cerebrovascular neurosurgeon and events offered by Stony Brook Activities are scheduled at Stony neurointerventionist Henry H. Woo, University Medical Center. We hope Brook to support the Cody Center, MD, has joined the Medical Center, you find a reason to participate in one including the Cody Walk and the creating a Cerebrovascular Center, or many of them so that you may Cody Comedy Festival. greatly expanding our stroke program. enjoy better health and better living.

2 www.StonyBrookMedicalCenter.org AUTISM SPECTRUM DISORDERS continued from cover

children; however, the majority do not and motor skills. Treatment is also have a proven biological explanation, commonly necessary for associated FOR AUTISM vs. although researchers are beginning emotional and behavioral problems, to identify a number of promising which may respond to various psycho- Presented by Lacrosse Unlimited, genetic and biological markers that logical interventions or, if indicated, Inc., Hauppauge, and hosted by appear to be associated with Autism medication. Stony Brook University Athletics, Spectrum Disorders. these inaugural Suffolk County NCAA Services at the Cody Center for regulation games will benefit the Diagnosis is only the first step. It is Autism and Developmental Disabili- Cody Center. Tickets and information important to promptly provide appro- ties include specialized diagnostic are available at www.lax4autism.com or www.lacrosseunlimited.com, priate intervention services, which evaluations for children and adults through the Stony Brook Athletics usually entail highly intensive behav- with Autism Spectrum Disorders, Ticket Office, and Lacrosse Unlimited as well as individual and family psy- ioral and educational programming. A retail locations. number of specialized therapeutic chotherapy, medication management, Tuesday, April 22 methodologies have been developed, neuropsychological testing, social Gates open at 3:00 pm often using the principles of a psycho- skills training, primary care, and 4:00 pm: Women’s Game reproductive health education and logical theory called Applied Behavior 7:00 pm: Men’s Game care. The Center provides respite Analysis (ABA). Such interventions Kenneth P. LaValle Stadium are often needed throughout pre- programs for children, as well as a Stony Brook University school and school years. Many school Resource Center that offers informa- Tickets: $10, children under 5 free districts have created programs with- tion and referrals to families. The in their schools to educate children Center’s Education Institute provides 3rd ANNUAL CODY WALK with autism. The outcome from thera- autism consultation services to school Sunday, April 27 py is highly variable, with two districts, offers family workshops, This 2.2 mile walk raises awareness extremes. Some children make and teaches master’s level courses and supports programs at the Cody Center. Includes activities for remarkable progress and may even through Stony Brook University’s children and resource tables. become assimilated into the general School of Professional Development. population, while another group of The Cody Research Consortium 8:00 am: Registration children make very slow progress and is actively engaged in increasing 9:30 am: Walk Starting line: Student Activities require supportive care, in many cas- our understanding of the clinical, Center, Stony Brook University es, throughout their lives. genetic, and brain functioning characteristics of these disorders Registration fee: $20 that may ultimately lead to more Approximately 50 percent of individu- 12th ANNUAL als with autism also have significant effective interventions. CODY COMEDY FESTIVAL intellectual disability, but even those Wednesday, May 14 with Intelligence Quotients (IQs) in 5:30 pm: Funny Bone Reception the normal range have great difficulty Charles B. Wang Center achieving independence and support- 8:30 pm: Comedy Show ing themselves. Despite many claims Staller Center for the Arts Show only: $35 of cures, autism remains without any Reception and Show: $150 specific treatments that consistently eradicate the core symptoms. Howev- Call (631) 444-4000 for tickets or er, many different approaches might information about sponsorship packages. Proceeds benefit the be effective in reducing problems in John C. Pomeroy, MD, is the founding Cody Center for Autism and communication, social skills, academ- director of the Cody Center for Autism and Developmental Disabilities. ic performance, sensory perception, Developmental Disabilities.

Call (631) 444-4000 3 Adding a New Dimension to Neurosurgery and Neurology Services By Natalie Canavor

ationally known cerebro- In addition to helping to handle acute that would have previously been diag- vascular neurosurgeon emergency cases, Dr. Woo’s advanced nosed or treated outside of Suffolk Nand neurointerventionist skills offer new hope for many whose County. He was the first on Long Henry H. Woo, MD, joined Stony lives are shadowed by devastating risk. Island to utilize the newly approved Brook University Medical Center as “Dr. Woo has increased the options for Wingspan® stent for intracranial Director of the newly established patients, particularly those with chron- atherosclerosis and the Cordis Cerebrovascular Center this past ic conditions like arteriovenous mal- EnterpriseTM stent for aneurysms. summer. He holds dual appointments formation,” says Candice Perkins, MD, He was also the first on Long Island to in the Departments of Neurosurgery Director of the Stroke Program. “I can use a new fluorescent dye during the and Radiology, and is part of the now send these patients to him, and surgical clipping of an aneurysm. clinical team for the Stroke Program. referrals are coming to us.” “Dr. Woo is a tremendous asset to “Dr. Woo provides us with a clinical In his first six months at Stony Brook, the institution and community,” expertise that simply did not exist on Dr. Woo handled more than 60 cases says Raphael Davis, MD, Chair of the Long Island,” says Richard N. Fine, MD, Dean of the School of Medicine. “He also brings a superlative expert- ise to our training programs and for investigative efforts that would not happen without him, as well as tech- niques that improve healthcare.”

Dr. Woo’s specialties include cutting- edge techniques in treating cerebral aneurysm, endovascular management of acute stroke, vascular malforma- tions of the central nervous system, and carotid and intracranial athero- sclerosis. He is adept with the newest imaging and technology systems that enable the neuorinterventionist to remove clots, seal off aneurysms, and open up clogged arteries, all without traditional surgery.

Steven L. Strongwater, MD, Chief Executive Officer of Stony Brook University Hospital, notes, “Stony Brook has kept pace with the trend toward innovative minimally invasive procedures with such things as robotic-assisted surgery. Dr. Woo’s unique skills and talent embody this trend, and he is a welcome addition to our Medical Center.” Henry H. Woo, MD

4 www.StonyBrookMedicalCenter.org Department of Neurosurgery. The creation of a fully staffed, compre- “Endovascular procedures, which hensive Cerebrovascular Center will May is National Stroke give us the opportunity to do things in take about two-and-a-half years. “It’s Awareness Month a minimally invasive way, will increase an immense undertaking involving The Stroke Center at Stony Brook exponentially. There’s an immense many people and costing between University Medical Center is the potential for lifesaving treatments that $3.5 and $6 million, something that only one on Long Island certified didn’t exist previously in the region.” could only be done in a university- by both The Joint Commission hospital setting,” says Dr. Davis. Plans and the State Depart- Building on the cerebrovascular also include the addition of a second ment of Health. For information program, Stony Brook University neuorinterventionist to the team this about the Stroke Center, call Medical Center is creating two suites year. Recruitment is underway for a (631) 444-4000. around bi-plane x-ray systems that premier neurological biomedical dramatically improve imaging for engineer, whose presence would bring more innovation—all to the endovascular surgery so that proce- notably advance research. benefit of our patients.” dures can be done far more quickly and safely. A dedicated Neuro “A comprehensive Cerebrovascular Intensive Care Unit is planned for Center will place Stony Brook among Natalie Canover is a freelance writer completion later this year that will the top institutions in the nation,” whose articles have appeared in The ensure the best post-procedural care Dr. Woo says. “It will help further New York Times, Newsday, Long Island and enable all neurological services to recruitment, enable us to apply for Business News, and other local and be located on one floor. numerous translational grants, and national publications.

STROKE IS A MEDICAL EMERGENCY.

Know these warning signs of stroke and teach them to others. Every second counts.

• Sudden numbness or weakness of the face, arm, or leg, especially on one side of the body

• Sudden confusion, trouble speaking or understanding

• Sudden trouble seeing in one or both eyes

• Sudden trouble walking, dizziness, loss of balance or coordination

• Sudden, severe headache with no known cause

Call 911 immediately if you experience symptoms. Time lost is brain lost.

Make sure the people you care about learn to recognize a stroke and act quickly. —American Stroke Association, 2008.

Call (631) 444-4000 5 VOLUNTEERS, AUXILIANS HAVE INVALUABLE PRESENCE AT THE MEDICAL CENTER

olunteers and auxilians make equipped with a hydraulic lift to Volunteer of the Year. She joined the a significant contribution to enable the transport of critically ill volunteer program in November 1997 VStony Brook University Med- infants in isolettes. It also features and logged over 1,500 hours of volun- ical Center’s patients and their family a new safety package that allows teer service helping patients and staff members, staff, and the community. medical personnel to remain strapped in the Infant Hearing program. Jamie Volunteers often play an important in while caring for a patient in transit. Barbera, Rochelle’s supervisor, says role in the delivery of a multitude of The Auxiliary also donated a Deltex of her service, “Mrs. Masters is not services that support patient care, and CardioQTM monitor to the Surgical only a superb volunteer, she is a spe- the Auxiliary has worked long and Intensive Care Unit. This device, cial person and epitomizes the dedica- hard to raise funds to support the valued at $11,000, is a noninvasive way tion and devotion that is such an institution’s purchasing power when to measure the cardiac performance essential part of the mission of Stony other resources have not been avail- and fluid status of critically ill patients, Brook University Medical Center.” able. Both groups have an invaluable reducing risks to patients, their length presence at the Medical Center. of stay, and costs. The Junior Volunteer Program at Stony Brook offers young men and Last year, the volunteer workforce The Stony Brook University Hospital women between the ages of 14 and 17 contributed approximately 43,000 Auxiliary has over 200 members, an opportunity to serve their commu- hours of service. Over the past many of who are charter members, nity while exploring career options. 25 years, the Stony Brook University having helped develop the organiza- This past fall, three Junior Volunteers Hospital Auxiliary has contributed tion over 25 years ago. New members were recognized and given “Excel- over $6 million toward the purchase of are always welcome. This September lence in Service Awards.” special equipment, and to support 25, the Auxiliary is hosting its annual innovative programs. The Auxiliary gala. (See page 13 for details.) For a Ravina Chawla, a senior at Smithtown has pledged $2 million toward patient membership application, or to find out High School, participates in an Inter- care in the coming years. more about tickets or sponsorship faith program, the varsity swim team, opportunities for the upcoming Gala, and is in the math and Spanish honor Most recently, the Auxiliary author- call (631) 444-4000. societies. Ravina completed over 290 ized the purchase of a new ambulance hours of volunteer service. Herman for use by the Hospital’s Emergency This June, Stony Brook University Rivera, Ravina’s supervisor in the Medical Services, a donation valued Medical Center’s volunteers will be Radiology Department, says, “Ravina at almost $140,000. The ambulance is honored for their service during an has an excellent rapport with patients annual luncheon. Last year, 500 volun- and staff and is extremely reliable teers were recognized for reaching and responsible.” In addition to volun- milestones ranging from teering at the Medical Center, Ravina 100 to 9,500 hours of volunteers at a soup kitchen. service. Rochelle Masters was named Vincent Leombruno is a senior at the 2007 Senior Ward Melville High School and a

From left: Ashlie Tam of Hauppauge High School, Vincent Leombruno of Ward Melville High School, and Ravina Chawla of Smithtown East High School were recently honored with “Excellence in Service" awards in the Junior Volunteer Program at Stony Brook University Medical Center.

6 www.StonyBrookMedicalCenter.org ADULT DAY HEALTH CARE AT THE LONG ISLAND STATE VETERANS HOME

By Jonathan C. Spier

aring for an elderly family member at home can be one of life’s most April 27-May 3 is National difficult challenges. Families often grapple with the struggle of trying Healthcare Volunteer Week Cto keep their loved ones at home, while worrying if they are providing At Stony Brook University Medical adequate care. Often, caregivers assume that their only option is to place Center, new volunteers are always loved ones in an assisted living facility or a nursing home. But families may welcome. If you are at least have another option available to them—adult day health care. 14 years of age, have time to share, enjoy working with people, The Adult Day Health Care Program at and want to make new friends, the Long Island State Veterans Home becoming a hospital volunteer (LISVH) operates six days a week, from may be one of the most rewarding 8:00 am to 4:00 pm, and is open to all things you can do. You can honorably discharged veterans, their contribute as few as three hours spouses or widows, and Gold Star a week, need no experience, and parents. Honorably discharged veterans can choose from 60 different are entitled to a federal per diem benefit assignments. For information, to offset the cost of care. call (631) 444-4000. The basic philosophy of the LISVH is to member of the fencing team. A enrich lives by building skills and main- former Stony Brook University taining capabilities and independence. Medical Center patient, he decided to The Adult Day Health Care Program volunteer to help other patients and offers a full range of comprehensive demonstrate his appreciation for the therapeutic healthcare services in a safe, medical staff. He volunteers in the comfortable, and supervised setting. A Lyme Disease Lab. His supervisor, coordinated team approach to treatment May 11-17 is National integrates a wide range of healthcare Mel Evans, notes, “Vincent is a Nursing Home Week reliable, courteous, and intelligent services to meet individualized needs, Learn more about the Long Island young man who is a positive addition including a complete array of rehabili- State Veterans Home at Stony Brook tative services such as physical, occupa- to our staff.” Mr. Evans adds that if University by visiting our Web site at tional, and speech therapies; therapeutic Vincent were a job applicant, he would www.listateveteranshome.org or call recreation; social work; spiritual and hire him on the spot. (631) 444-4000. nutrition counseling; and hospice Ashlie Tam is a senior at Hauppauge and palliative care. LISVH serves two High School, a varsity swimmer, and nutritious meals each day, has on-site dentistry, ophthalmology, podiatry, a member of the Hauppauge High psychiatry and psychological services, plus a barbershop and beauty salon. School Symphony Orchestra. Ashlie Educational activities and peer support enhance opportunities to socialize. volunteers in the Pediatric Playroom where she completed a total of 105 Participants in our adult day health care receive door-to-door transportation hours of service. Ashlie’s supervisor, and the medical, personal, and rehabilitative care they require. The LISVH Paulette Walter, says, “Ashlie is one care team can assist families with coordinating community physician appoint- of our most dependable volunteers ments. Older adults who are cognitively and/or physically impaired with con- and someone we can always count on ditions that increase their care needs also benefit greatly from our services. to help keep our patients involved in Primary caregivers benefit from knowing that their loved ones are safe, and beneficial activity.” in an environment where different health needs can be promptly met.

Jonathan C. Spier is the Community Relations Director for the LISVH.

Call (631) 444-4000 7 By Anupama Chawla, MD, and Janet Difalco, MS, RN, CPNP

ASK THE EXPERTS

Q.What is celiac disease and how is it diagnosed?

Celiac disease, also known A surge in the diagnosis of celiac If your doctor thinks you might have as celiac sprue or gluten disease has occurred over the last celiac disease, you will probably need A. decade. This is at least in part due to to have your blood tested for several intolerance, is an inherited digestive disease. However, many increased recognition by physicians of antibodies associated with the disease. people with the disease do not have a the wide range of symptoms that may You will be asked to continue eating known affected family member. Those occur with the disease. gluten since a gluten-free diet may with celiac disease have an intolerance affect the results of the blood test. to foods containing gluten, a protein Symptoms of celiac disease found in barley, rye, and wheat. Gluten may include: If the blood test suggests celiac is found in a large number of foods • Chronic diarrhea disease, your doctor will likely recom- and medications. Celiac disease is • Constipation mend a small bowel biopsy. This is a procedure usually done under associated with certain other condi- • Delayed growth tions including Down syndrome and sedation in which a small thin tube • Failure to thrive (poor growth) type 1 diabetes. called an endoscope is passed • Flatus through your mouth and into your In celiac disease, the body’s immune • Infertility stomach and small intestine to take system responds to gluten by attack- • Irritability in children a tiny sample of your small intestine ing the lining of the small intestines. • Muscle cramps to examine closely. In the medical This lining is made up of villi. The villi • Osteoporosis field, this is the “gold standard” test normally absorb the nutrients from recommended to establish a definitive • Pale, foul smelling stool the foods we eat. When the villi are diagnosis of celiac disease. • Pale sores in the mouth damaged, the body can’t get the (aphthous ulcers) nutrients it needs (malabsorption). The only treatment for celiac disease Unhealthy villi can lead to malnutri- • Recurrent miscarriage is a lifelong gluten-free diet. For most, tion despite the quantity and quality • Recurring abdominal pain the diet will stop the symptoms and of the foods eaten. and bloating begin healing the damage to the small • Seizures intestines. Foods allowed and those to Celiac disease may be under-diag- • Skin rash (dermatitis avoid include: nosed since the symptoms vary herpetiformis) greatly and are similar to many other • Tingling/numbness in legs Foods Allowed: diseases. Some people with celiac Amaranth, arrowroot, buckwheat, • Tiredness disease develop symptoms as children cassava, corn, flax, Indian rice grass, and others as adults. A number of • Tooth discoloration or Job’s tears, legumes, millet, nuts, those affected never develop symp- loss of enamel potatoes, quinoa, rice, sago, seeds, toms at all. Celiac disease can occur • Unexplained anemia sorghum, soy, tapioca, wild rice, with or without digestive symptoms. • Weight loss or gain and yucca.

8 www.StonyBrookMedicalCenter.org CENTER FOR CHILDHOOD OBESITY ESTABLISHED

Foods to Avoid: he Department of Family Medicine at Stony Brook University Medical Barley, bromated flour, cracked Center recently received a five-year $1.33 million grant from the New wheat, durum flour, einkorn, emmer, T York State Department of Health (DOH) to create a Center for Best enriched flour, farina, graham flour, Practices to Prevent and Reduce Childhood Obesity. Slated to become a state hydrolyzed wheat protein, kamut, model for childhood obesity prevention, the Center is one of three institutions phosphated flour, plain flour, rye, self- in the state and the only one on Long Island to receive the grant. The Center rising flour, semolina, spelt, triticale, will organize with healthcare providers in Nassau and Suffolk counties to wheat, wheat bran, wheat germ, prevent, treat, and screen for obesity in women of childbearing years, women wheat starch, and white flour. who are pregnant, and infants.

Some processed foods, medicine, “This is an exciting opportunity to reduce the prevalence cosmetics, and everyday products may of obesity very early in life when physiological processes contain barley, rye, or wheat. Your related to energy balance are being set and eating habits doctor may suggest working with a are established,” says Josephine Connolly-Schoonen, PhD, dietitian (a specialist in food and nutri- RD, Clinical Assistant Professor of Family Medicine and tion) to learn more about the diet, Director of the Center. how to read food labels, and inquire about how food is prepared when The Center will develop training strategies to Slated to become dining out in restaurants. Despite the counsel pregnant women on optimal weight gluten-free diet restrictions, you can gain, promote healthy eating by mothers and a state model for eat a healthy well-balanced diet. their infants, create environments that support childhood obesity breastfeeding, implement procedures related to prevention, the If you believe that you or your child the introduction of solid foods to infants, and may have celiac disease, speak with help establish healthy relationships with food. Center is … the your physician about a referral to only one on Long a pediatric or adult gastroenterologist. Programs established through the Center It is generally not recommended to in- will build on other nutrition education and Island to receive stitute a gluten-free diet on one’s own. outreach efforts operated by Family Medicine. the grant. One such effort is Heart Links, a community Dr. Chawla will be discussing celiac nutrition project funded by the DOH since disease at the Mall Walkers Club 1993 and spearheaded by a team of dedicated registered dietitians and other meeting on May 28. See Classes public health professionals from Stony Brook and partnering agencies. To and Programs on page 13. date, 23 area school districts have developed healthy eating programs through Heart Links. The Center will also work in conjunction with WIC (Women, Infants, and Children), a nutrition, education, and supplemental food program for low-income pregnant and breastfeeding women. Anupama Chawla, MD, is board certified in pediatrics, pediatric gastroenterology, and Partnering agencies with the Center include the Nassau County Department is a Certified Nutrition Support Physician. of Health, Suffolk County Department of Health, Suffolk County Cornell She is the Director of the Division of Pedi- Cooperative Extension, and Stony Brook Child Care Services. Also involved atric Gastroenterology and Nutrition at are the Medical Center’s Departments of Obstetrics and Gynecology, Stony Brook University Medical Center. Pediatrics, Physical Therapy, and Rehabilitative Science. Janet Difalco, MS, RN, is a Certified Pediatric Nurse Practitioner in the Division Meet Josephine Connolly-Schoonen, PhD, RD, at the Mall Walkers Club of Pediatric Gastroenterology in the Department of Pediatrics at Stony Brook meeting on April 30, where she will be speaking about weight manage- University Medical Center. ment. See Classes and Programs on page 12.

Call (631) 444-4000 9 Research Studies

For more information DICE STUDY FOR HEART DO YOU HAVE CRACK OR treatment of complications of and to enroll in studies, FAILURE COCAINE PROBLEMS? current HIV therapy including Brookhaven National call (631) 444-4000. The Heart Failure and insulin resistance (leading to Cardiomyopathy Center at Laboratory seeks people diabetes), and possibly body Stony Brook University who use crack and cocaine, fat distribution (HIV Medical Center is seeking 18 to 55 years old and in lipodystrophy). Volunteers are volunteers with heart failure good health, for participation offered compensation up to ARE YOU OVERWEIGHT? to participate in the Direct in brain imaging medical $1,700 plus transportation Men and women, 25 to 45 Impedance Cardiography in research. Confidentiality expenses. years of age are needed to the Evaluation of heart failure maintained. Transportation participate in a research (DICE) study that seeks to provided. Fee paid. study looking at markers of prove if a simple device that MALE PARTICIPANTS pre-diabetes in overweight demonstrates heart function NEEDED people. This study is being can be used to predict future VOLUNTEERS NEEDED Men, ages 18 to 50, in good health. The study includes a FOR STUDY OF PANDEMIC conducted at the General health, currently married or monthly phone call to follow FLU VACCINE Clinical Research Center cohabitating are needed for your health and symptoms. Participants must be 18 to at Stony Brook University a brain imaging and medical 45 years of age and in good research relationship conflict Medical Center. Participants health. Compensation of will be compensated up $550 will be paid upon study conducted by Brook- OPTIMAL MEDICAL to $750. completion of study. haven National Laboratory, THERAPY FOR Neuropsychoimaging Group. HEART FAILURE Confidentiality maintained. CESAREAN DELIVERY The OPTIMAL study offers a Transportation provided. VOLUNTEERS NEEDED no-cost consultation with a HIV CLINICAL TRIALS For a study to demonstrate heart failure specialist to The HIV Clinical Trial Center the efficacy of Seprafilm® review the medical therapy of Stony Brook University SEEKING CHILDREN Adhesion Barrier in reducing you receive for heart failure Medical Center offers and provides a written numerous clinical trials of AND ADOLESCENTS WITH adhesion formation following TYPE 1 DIABETES recommendation based on new medications or both primary and repeat Children and adolescents, current national guidelines to combinations of medications cesarean deliveries. Pregnant 6 to 18 years of age, with be used for discussion with for the treatment of HIV for women, 18 to 40 years of a recent diagnosis of type 1 your regular physician. the newly diagnosed patient age, who are planning delivery with HIV and for patients who diabetes are needed to at Stony Brook University have developed a resistance participate in a six-month Hospital may be eligible to study to determine if PROBE STUDY FOR to their current therapy. pioglitazone can reduce participate in this study. HEART FAILURE Clinical trial appointments, insulin requirements. This Has your cardiologist laboratory studies, and study is being conducted at POST-MENOPAUSAL recommended an implant of a medications are dispensed the General Clinical Research WOMEN NEEDED biventricular pacemaker due free of charge. Compensation Center at Stony Brook The General Clinical Research to heart failure? In the PROBE is offered for time and travel. University Medical Center. Center at Stony Brook study, through the use of a University Medical Center special monitor, investigators are attempting to predict how seeks post-menopausal STUDY OF HIV/AIDS AND well patients benefit from CHROMIUM PICOLINATE SEEKING CHILDREN women 50 to 65 years of biventricular pacemakers The General Clinical Research WITH IBS age on hormone replacement (“extra wire”) or Center at Stony Brook Children, 8 to 17 years of therapy for participation in CRT/resynchronization University Medical Center age, with a diagnosis of MRI research. Volunteers devices. This study is being is seeking volunteers 18 irritable bowel syndrome must be healthy and without conducted by the Heart years of age and older with a (IBS), are needed to metal or electronic implants. Failure and Cardiomyopathy diagnosis of HIV or AIDS to determine if drinkable Confidentiality maintained. Center at Stony Brook research the effectiveness of aloe vera gel will decrease Fee paid. University Medical Center. chromium picolinate in the symptoms.

10 www.StonyBrookMedicalCenter.org Classes and Programs April, May, June 2008

SEEKING HEALTHY For information on classes, programs, and events Care Center, features expert VOLUNTEERS visit www.StonyBrookMedicalCenter.org, go to guest speakers who offer Healthy adults, 18 to 65 “In The Community,” and click on “Calendar of information on a variety of years of age, non-smokers Events.” For questions, call (631) 444-4000. topics. or those smoke-free for five Wednesdays, 7-9 pm years, are needed to May 7: Speaker, Patricia participate in a research Society, in collaboration with Autism and Cadolino, LMT study on the safety and Stony Brook University Developmental How Stress Affects our tolerability of Poly-MVA Hospital, is offering family Disabilities Health and Well-being, and (minerals, vitamins, amino support for patients with the Powerful Benefits of acids) over a 9- to 15-week blood cancer. Meetings are CODY CENTER Message Therapy period. This study is being WORKSHOPS facilitated by an oncology conducted at the General June 4: Speaker, Allen G. Presented by the Cody Center, nurse and a social worker. Clinical Research Center at Meek, MD one-week advance Registration is required. Stony Brook University registration is required. Mondays, 6-7 pm Holiday Inn Express Medical Center. April 14 Stony Brook Thursday, May 1, 7-9 pm May 12 Free Dental Care for Children and June 9 Adults with Autism and SEEKING VOLUNTEERS LIVING AND COPING WITH WITH A HISTORY OF Related Disorders Stony Brook University Cancer CANCER EDUCATIONAL ASTHMA Speaker: Patricia Lewis, DDS, Center SERIES Volunteers, 18 to 65 years of Stony Brook University Dental Free Presented by Stony Brook age, smoke-free for 10 years, Care for the Developmentally University Cancer Center and and taking a steroid inhaler Disabled Program LOOK GOOD…FEEL BETTER the Department of Care PROGRAM daily for the past six months, Management, this educational Charles B. Wang Center Offered in conjunction with are needed to participate in series is open to people with Room 201 the American Cancer Society an eight-week study on the cancer, and family and friends for women with cancer effectiveness of mindfulness Wednesday, May 7, 7-9 pm of those undergoing treatment. meditation on asthma. You Recreation Night undergoing treatment, this Thursdays, 7-9 pm will be taught mindfulness Representatives from Long two-hour beauty program is May 8: Living and Coping meditation techniques such Island recreation programs facilitated by a licensed with Cancer to Maintain as sitting meditation, body for children with special cosmetologist. Included are Quality of Life scan meditation, and walking needs will give short presen- tips on skin and hair care, meditation. Compensation of tations on programs and makeup instructions, and May 15: Managing Side up to $100 will be paid upon activities such as adolescent demonstrations of wig, Effects of Treatment turban, and scarf use. completion of this study. social activities, horseback May 22: Communicating with Registration is required. riding, martial arts, music, Your Healthcare Team physical fitness, running, Mondays, 6-8 pm May 29: Physical Therapy: sailing, surfing, swimming, May 5 SEEKING VOLUNTEERS Helping with Fatigue WITH CYSTIC FIBROSIS and summer camp. June 2 Volunteers 18 years of age June 5: The Importance of Stony Brook University Stony Brook Technology Park or older with cystic fibrosis Good Nutrition Endeavor Hall, Room 120 Call 444-4000 for location. are needed to participate in Free Conference Room a 28-week research study Fee: For all workshops, Stony Brook University Cancer conducted by the General suggested donation is $10 BREAST CANCER Center Clinical Research Center at EDUCATION and SUPPORT Free Stony Brook University GROUP Medical Center to examine Cancer Care For men and women UPPER GI CANCER the efficacy of IGF-1, a diagnosed with breast cancer, SUPPORT GROUP treatment to maintain or FAMILY SUPPORT GROUP this monthly education and Patients who have had improve body weight and The Long Island Chapter of support group, sponsored by esophageal and stomach composition. the Leukemia & Lymphoma the Carol M. Baldwin Breast cancer are encouraged to

Call (631) 444-4000 11 Classes and Programs April, May, June 2008

attend this informative Diabetes • Interactive work with a Thursdays, 7-9 pm support group. Registration unique set of strategies and May 1: Introduction: Learn is required. DIABETES tools to facilitate changing about heart disease, treatment, and prevention. Wednesdays, 7 pm SELF-MANAGEMENT your relationship with food EDUCATION CLASSES May 14 May 8: Risk Factor A comprehensive three-day • Guidelines and goal setting June 11 Reduction—Taking Charge of educational program for related to exercise Conference Room Your Cardiac Health: Learn people with type 1, type 2, and Stony Brook University Cancer • Comprehensive, research- ways to lessen your risk for Center gestational diabetes which based lessons on nutrition for heart disease. Free covers meal planning, blood managing weight, diabetes, May 15: Stress Management: glucose monitoring, exercise, high cholesterol, high blood What is stress? How does NATIONAL CANCER use of medications, acute and pressure, and gastrointestinal stress influence your health SURVIVORS DAY chronic complications, stress, problems through diet and and heart? Learn stress A celebration of life to travel, vacationing, and exercise management techniques. acknowledge Stony Brook community resources. University Medical Center’s Registration is required. Program fee includes a May 22: Home Exercise pedometer and a copy of the Program: Learn how to begin continuing care and concern April 28, 29, 30, 6-9 pm for cancer survivors. The book, Losing Weight a home exercise program. May 19, 20, 21, 9 am-noon program includes food, June 9, 10, 11, 6-9 pm Permanently with the Bull’s- May 29: Eat Your Heart Out: carnival games, entertain- Eye Food Guide, by Josephine Learn label reading and meal Stony Brook Technology Park ment, empowerment, and Connolly Schoonen, PhD, RD. planning skills for a balanced, resources for cancer Call 444-4000 for location. heart healthy diet. survivors of all ages. Fee: Insurance accepted Tuesdays, 5:45-6:45 pm June 5: Medication Registration is required. where applicable April 8, 15, 22, 29 May 6, 13, 20, 27 Guidelines: What you need to Sunday, June 1 June 3, 10, 17, 24 learn about your cardiac 11 am-2 pm medications, what they are Diet and Nutrition Family Practice Center Call 444-4000 for location. used for, and why. 181 Belle Mead Road Free TARGET FITNESS WEIGHT Heart Center, Damianos East Setauket MANAGEMENT PROGRAM Conference Room Fee: $210 Children’s Health Tired of the weight loss roller Stony Brook University coaster–always losing and Hospital, Level 5 KIDS HEALTH & SAFETY gaining the same 10, 20, or Free EXPO 30 pounds? Looking for Heart Health Stony Brook University Medical research-based strategies to Mall Walkers Center, the Elsie Owens North lose weight for good? CARDIAC EDUCATION Brookhaven Family Health PROGRAM FOR PATIENTS Center, SafeKids Suffolk, and If so, join the Target Fitness AND FAMILIES SMITH HAVEN MALL WALKERS other local organizations will Weight Management Program A six-week heart disease Sponsored by Stony Brook be co-hosting this free event and learn how to get the awareness program University Medical Center, the featuring health screenings, in- weight off and keep it off. This conducted by healthcare Mall Walkers Club meets the formation, and demonstrations 12-week interactive program professionals to provide last Wednesday of every on how to preserve safety and includes the following: patients, families, and friends month and provides a snack prevent injuries to children • An individualized diet with a comprehensive and blood pressure screening during traditional summertime prescription with the overview of heart health and starting at 8 am, followed by and year-round activities. carbohydrate, protein, and fat important information about an informative lecture at 9 am. Wednesday, July 9 levels based on your medical the factors that influence April 30: Losing Weight 10 am-3 pm history and needs heart disease. CPR training is Permanently with the Bull’s- Flowerfield • Body composition offered to participants in Eye Food Guide St. James measurement and conjunction with the program. Speaker: Josephine Connolly- Free individualized weight goals Registration is required. Schoonen, PhD, RD

12 www.StonyBrookMedicalCenter.org April, May, June 2008

May 28: Celiac Disease: Joint Replacement Center, Is it an Epidemic or seminar topics cover the SPECIAL EVENTS Undiagnosed Disease? normal anatomy of the hip Speaker: Anupama Chawla, MD and knee and call attention National Hospital Week June 25: “Am I to signs and symptoms of what can go wrong, such Philanthropic?” Three Ques- Stony Brook University Medical Center, in cooperation with as tendonitis, bursitis, tions You Should Be Able To Smith Haven Mall, will celebrate National Hospital Week by synovitis, meniscal tears, Answer About Gifts To Charity providing free health screenings, including blood pressure, and osteoarthritis. Learn how Speaker: Alexandra P. Brovey, glucose, and cholesterol, and providing valuable healthcare to get a good diagnosis and JD, LLM information to members of the community. about treatments involving Learn about services at the Medical Center and meet with diet and nutrition, exercise, Smith Haven Mall, Food Court healthcare providers. Free medication, and surgery. Call for upcoming seminar dates. Wednesday, May 21, 10 am-3 pm Smith Haven Mall, Center Court Monthly Seminars, 9-11 am Massage Lake Grove Stony Brook Technology Park Free INFANT AND CHILD Call 444-4000 for location. MASSAGE CLASSES Free This three-session program, Hospital Auxiliary Gala conducted by a licensed Pregnancy and massage therapist and Hosted by the Stony Brook University Hospital Auxiliary, this Childbirth year’s event will benefit the Stony Brook University Heart certified infant/child Center, with special recognition to “grateful patient,” Dr. massage therapist, instructs PREGNANCY EDUCATION Richard N. Fine, Dean, Stony Brook University School of parents in massage CLASSES Medicine. techniques to soothe a For women delivering at Stony cranky baby, reduce stress Brook University Hospital, For tickets and sponsorship opportunities go to and pain, relieve symptoms these educational classes www.StonyBrookMedicalCenter.org and go to “In The Community,” of gas and colic, and develop promote optimal maternal, and click on “Calendar of Events.” crucial bonding skills. fetal, and newborn health. Classes for premature or Topics of discussion include Thursday, September 25, 6-9 pm medically fragile babies are “Staying Healthy During East Wind Caterers, Wading River also available. Children of all Pregnancy,” “Breastfeeding ages are welcome, and Mom and Infant Feeding Choices,” gets a massage as part of “Preparing for Labor and problems. Registration is with large varicose veins in the class. Bring baby or doll Delivery,” and “Taking Care of required. one or both legs, accompanied and a small blanket. Yourself and Baby at Home.” by pain and/or swelling. Wednesdays, 7-9 pm Mondays, May 5, 12, 19, Registration is required. Screenings are conducted by May 7, June 4 10:30-11:30 am board certified vascular Thursdays, 11 am-noon Stony Brook University Tuesdays, June 3, 10, 17, surgeons. For an appointment May 1, 8, 15 Hospital 10:30-11:30 am call (631) 444-4000. June 5, 12, 19 Free Stony Brook Technology Park Stony Brook University Saturday, April 12, 8 am-4 pm Call 444-4000 for location. Hospital Screenings Stony Brook Vein Center Fee: $60 Free East Setauket VARICOSE VEIN Free SCREENING Pain Treatment PRENATAL BREASTFEEDING CLASS The Department of Surgery Saturday, April 26, 8 am-4 pm at Stony Brook University Stony Brook Outpatient HIP AND KNEE PAIN Learn what you need to know SEMINAR about breastfeeding to help Medical Center offers free Services Presented by Stony Brook you and your baby get off to a screenings for individuals Hampton Bays University Medical Center’s good start and avoid common between ages 18 and 64, Free

Call (631) 444-4000 13 Classes and Programs April, May, June 2008

ORAL CANCER SCREENING detection, and sun safety well being. Participants will Women’s Health Each year approximately lectures, informational learn practical and powerful 30,000 Americans are displays, and a complete skin methods including Eastern HERBAL USE IN WOMEN’S HEALTH diagnosed with oral cancer, exam by a dermatologist. breathing techniques, Featuring professionals from and more than 8,000 die. Sunscreen samples and sun meditation, low-impact Stony Brook University Early diagnosis is essential protection products will also yoga, and gain skills for Medical Center, this to prevention and can be be available. Appointments dealing effectively with community education performed through a quick for screenings are preferred, challenging emotions and program provides up-to-date and painless screening. The but walk-ins are welcome. situations. A weekly group information featuring expert Dental Care Center at Stony speakers on topics important Saturday, May 10 follow-up practice will be Brook University offers a day to women of all ages. 9 am-noon scheduled. of free screenings with no This lecture will concentrate appointment necessary. Stony Brook University Cancer April 18, 19, 20, 21 on herbs traditionally used for Center 6-9 pm Thursday, April 24 menopause, painful menses, Free 9:30 am-6 pm Friday and Monday and other complaints. It will 9 am-4 pm also present scientifically Dental Care Center Wellness Saturday and Sunday based safety information and Stony Brook University possible interactions with Free WELLNESS—THE ART OF Charles B. Wang Center other medications. Fee: $375; $200 (Full-time LIVING, PART I Wednesday, May 7, 7-8:30 pm MELANOMA SCREENING This workshop is for anyone students and seniors over 65; Speaker: Raja Jaber, MD This free screening includes who wishes to enhance their limited needs-based Sayville Public Library melanoma awareness, physical, emotional or mental scholarships available.) Free

STONY BROOK RECEIVES ORGAN LOOKING FOR A PHILANTHROPIC SOLUTION TO BOOST YOUR DONOR AWARD FINANCIAL FITNESS? If you are 55 years of age or older, you can make a gift to the tony Brook Universi- service, area, or cause of your choice at Stony Brook ty Hospital was April is Donate Life University Medical Center and receive a fixed income for the Spresented with a Month rest of your life. For as little as $10,000, your cash gift will U.S. Department of Health We celebrate those who enable you to receive a steady source of income–part of and Human Services help save and enhance which is tax-free. For example, if you are 60 years of age, you Organ Donor Medal of the lives of others through can get a fixed rate of 5.7%; if you are 75, you can get a fixed organ donation. National Honor for raising rates of rate of 7.1%. See additional sample ages and rates below. Donate Life Month raises eligible donors. This effort public awareness of the ONE-LIFE RATES TWO-LIFE RATES was led by the Hospital’s critical need for organ, AGE RATE AGE RATE Organ Task Force. Stony tissue, marrow, and blood 55 5.5% 55/55 5.0% Brook was honored for donation. To learn more 60 5.7% 60/60 5.4% achieving and sustaining about donating, visit 65 6.0% 65/65 5.6% an organ donation rate of www.donatelife.net. 70 6.5% 70/70 5.9% 75 percent or higher for 75 7.1% 75/75 6.3% any twelve-month period between August 2005 and June 80 8.0% 80/80 6.9% 2007. Stony Brook was one of only 14 hospitals in the greater 85/85 7.9% New York metropolitan area to be honored. One of the most 85 9.5% important decisions you can make is to become an organ 90+ 11.3% 90/90 9.3% donor. To register to become an organ and tissue donor, go For more information or to obtain a no-obligation illustration, to www.health.state.ny.us/nysdoh/donor/index.htm. call (631) 444-4000.

14 www.StonyBrookMedicalCenter.org MANAGING JOINT DISCOMFORT

By Carol Grosch, OTR, with contributions from Stony Brook University Medical Center’s Inpatient Occupational Therapy Staff

he quality of your life may Practical tips about pinky side of your hand. depend on your ability to partic- joint protection can April is National • For comfort and to Tipate in daily routines and benefit everyone. To Occupational Therapy slow the progression of leisure activities. If joint discomfort minimize discomfort Month disease, modify tech- interferes with life activities that are and stress on joints: Stony Brook University niques for manipulating important to you, the quality of your • Use large muscle Medical Center offers small objects. comprehensive life is negatively impacted. The exper- groups when carrying • Use custom-made occupational and physical tise of an occupational therapist (OT) and lifting. Pick up splints to rest your joints therapy services at an objects with both and reduce swelling. may help. OTs are trained to evaluate outpatient facility located conditions and develop treatment hands, and carry at 33 Research Way, • Respect pain, as it may plans with the goal of allowing you to close to your body East Setauket. For more be an indication of over- continue such things as dressing or (i.e., carrying a bag information, call (631) stressed joints. gardening, safely and more efficiently. with a shoulder strap 444-4000. • Pace yourself and plan is less stressful than rest periods. An important strategy in managing using the more painful hand grip, life with conditions such as arthritis is because larger joints are used). OTs provide intervention for many to incorporate joint protection princi- • Adapt handles on household other diagnoses. To obtain the services ples into daily routines to help reduce utensils and tools to increase their of an occupational therapist, speak with stress on joints. OTs can suggest per- diameter and decrease stress on joints your physician. To learn more, visit sonalized changes to incorporate into from a tight grip. the American Occupational Therapy your activities and lifestyle. • Avoid excess movement toward the Association’s Web site at www.aota.org.

ADVANCING THE MISSION BUILDING A CULTURE OF PHILANTHROPY AT STONY BROOK

By Carrie Bhada

tony Brook University Medical Some of our programs, such as Child Development Council all help to Center is growing. We are Life; Health Occupations Partnership define our culture as philanthropic. Sexpanding our physical space, for Excellence (HOPE), a program treating more patients, educating introducing healthcare careers to You, too, can help. Consider Stony more students, and training additional underserved high school students; Brook University Medical Center for your next charitable contribution. staff. Supporting this growth is the Babies and Children’s Memorial Garden; and others are made possible Whether you choose to contribute or important to becoming a world-class through generous donations. But simply spread the word that our Med- institution. there is a greater need for support. ical Center is growing to serve you better, you will help to build upon our Private philanthropic support can Creating a culture of philanthropy culture of philanthropy. help to further transform our Medical advances our mission to serve the Center. Improvements made possible community. Grateful patient support Our “Say Thank You” brochures by private contributions are reflected of the telefund program, faculty and are located throughout the Medical in the satisfaction reported by our staff contributions to the annual fund, Center. For more information, call patients. Where giving is part of the continued generosity of the Hospi- the Office of Advancement at (631) the culture, institutions thrive. tal Auxiliary, and the newly created 444-2899.

Carrie Bhada is Director of Development, University Advancement.

Call (631) 444-4000 15 Better Health Better Living

Produced by the Office of Communications. Assistant Vice President Yvette St. Jacques Director of Medical Center Publications 7

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Copy Editor o Therese Xeller R Art Director Karen Leibowitz SHOWCASE YOUR TALENTS AND JOIN Designer Panarama Design THE “RISING STARS” SHOW Photo Credits Sam Levitan, John Griffin, Media Services, Ron Mason Photography he Rising Stars talent show brings a sense of accomplishment to pediatric performers, as well as improves their self-esteem and confidence during a period This information is intended to educate in which they are trying to live their lives as normally as possible. Organizers of people about subjects pertinent to their T health, not as a substitute for consultation the 2008 Rising Stars Talent Show and Art Exhibit, sponsored by The Sunrise Fund, are with a personal physician. seeking talented students, faculty, and others to join pediatric oncology and hematology

Stony Brook University/SUNY is an equal patients on stage performing in dance, song, and other acts. The show will take place on opportunity, affirmative action educator Sunday, April 27, beginning at 2:00 pm at the Student Activity Center on the main campus and employer. This publication can be of Stony Brook University. made available in an alternate format upon request. If you require a disability- related accommodation, please call Individuals wishing to perform in musical, dance, comedic, or other artistic/creative acts (631) 444-4000. are welcome to participate. Magic acts are particularly encouraged. Dancing and singing groups may also join the fun on stage.

The Sunrise Fund raises awareness about childhood cancer and provides programs for pediatric oncology patients and families treated at Stony Brook University Medical Center. For more information, call (631) 444-4000.

Nonprofit Organization U.S. Postage PAID Stony Brook 14 Technology Drive, Suite 2 University East Setauket, NY 11733