DOCSLIB.ORG

FINAL Spring 2012 News

Total Page：16

File Type：pdf, Size：1020Kb

Download full-text PDF Read full-text

Load more

spring 2012: volume 18, issue 1 newsletter of the myelodysplastic syndromes foundation TABLE OF CONTENTS From the Guest Editor’s Desk Meeting Announcements 2 A Tribute to American Society of Hematology (ASH 2011) 2 Professor Terence “Terry” John Hamblin 12th International prognosis and published many of the early Symposium on MDS 4 seminal clinical papers defining this disorder. He served with great distinction as co- Oncology Nursing Society 6 Editor-in-Chief of Leukemia Research for From The Foundation 7 26 years. Professor Hamblin was awarded the Worldwide Patient Forums Binet-Rai medal for outstanding research and Support Groups 8 in Chronic Lymphocytic Leukemia (CLL) in 2002 and stated “This has been my most Nursing Perspective 12 successful area of research.” His seminal work on the prognostic value of the IgH gene MDS Centers of Excellence 14 Professor Terence Hamblin mutation status has become a cornerstone in the risk stratification of CLL patients. This Information on Clinical Trials 17 The following statement appeared as a guest editorial prepared by Drs. John M. important research discovery characterized Educational Resources 18 Bennett, David Bowen and Daniel Catovsky, two subtypes of chronic lymphocytic long time professional associates of Professor leukaemia those with or without somatic Contributions to Hamblin in Leukemia Research.1 mutation of the immunoglobulin heavy chain variable region genes. The survival of patients the Foundation 20 With great sorrow we report the death with IgH mutation averages 25 years, if no of Professor Terry Hamblin on Sunday, 8 In Memoriam 22 mutations closer to 8 years. January 2012 from complications of a In addition his contributions in the fields metastatic bowel carcinoma. of apheresis, stem cell transplantation, Born in Worcester, England in 1943; myeloma, antibody therapy, cytokine therapy schooled at Farnborough, Hampshire and DNA vaccines are well known. 1954–62; University 1962–67 and junior Professor Hamblin’s articles numbered doctor posts 1967–74 in Bristol; he became over 200 peer-reviewed publications. In Consultant Haematologist, Bournemouth retirement he embraced the social network, 1974–2003 and Professor of Immuno- writing an eloquent and informed ‘blog’, haematology at the University of Southampton which embraced his varied interests in life 1986 to 2012. He also was Honorary including medicine, sports and religion. Consultant Haematologist at Kings College For those who knew Terry, he will be Hospital, London, 2004–2012. remembered as a gregarious and spirited He was instrumental in the establishment Englishman, ready to step in with an anecdote, of the first three International Symposia on a yarn or a joyful dance at social gatherings. MDS and served on the MDS-F Board of He leaves his wife, Diane–married for 45 Directors and as its treasurer for a quarter of years–and 4 children, Karen, Richard,Angela a century. His achievements in the field and David, and grandchildren. of MDS improved greatly how patients were managed. His group in Bournemouth 1. Bennett JM, Catovsky D, Bowen D. Leukemia developed the first scoring system for Research. 2012;36:383–384. 1 Meeting Highlights and Announcements THE AMERICAN SOCIETY OF HEMATOLOGY 53RD ANNUAL MEETING & EXPOSITION On behalf of the MDS Foundation and our Board of Directors, thank you for joining us for our recent Satellite Symposium: Next Generation Approaches for Evaluation and Treatment of MDS Manchester Grand Hyatt Highlights from 53rd ASH Annual Meeting and Exposition San Diego, California December 9, 2011 The MDS Foundation held its 13th consecu- tive satellite symposium on Friday preceding the American Society of Hematology’s annual meeting. This symposium entitled “Next Generation Approaches for Evaluation and Treatment of MDS,” was chaired by Dr. Stephen D. Nimer of Memorial Sloan- Kettering Cancer Center in New York City and Chairman of the MDS Foundation and its Board of Directors. The room was filled to capacity with an audience of approximately 700 hematologists from around the world. 2 DECEMBER 2011 • SAN DIEGO, CALIFORNIA The MDS Foundation is blessed with a strong and supportive circle of members and friends… Download our ASH Presentations online at www.mds-foundation.org ■ Introduction Presentation: Next Generation Approaches for Evaluation and Treatment of MDS ■ Revised International Prognostic Scoring System (IPSS-R): Developed by the International Working Group for Prognosis in MDS (IWG-PM) ■ Molecular Characterization of MDS & Predisposition ■ Impaired ribosome function and the molecular biology of the 5q- syndrome ■ Combinational therapy and newer agents in MDS ■ Advances in HSC Transplantation for Myelodysplasia: Cord Blood Transplantation & RIC 3 THE 12TH INTERNATIONAL SYMPOSIUM ON MYELODYSPLASTIC SYNDROMES the myelodysplastic syndromes foundation, inc. 4 THE 12TH INTERNATIONAL SYMPOSIUM ON MYELODYSPLASTIC SYNDROMES 5 37TH ANNUAL CONGRESS ONCOLOGY NURSING SOCIETY and support, will provide the tools needed 12:45–1:00 pm by the oncology nurse to support this Setting Expectations for the Initial patient population. Treatment of MDS: Practical Tools THE MDS FOUNDATION PRESENTS The International Nurse Leadership LUNCHEON SYMPOS I UM for Effective Management Board for the MDS Foundation will Treatment triggers and supportive care introduce a supplement to the Clinical strategies: cytopenias, iron overload, Journal of Oncology Nursing which outpatient management incorporates an update on the science Sandra E. Kurtin, RN, MS, AOCN, ANP-C of MDS, practical tools for clinical The Myelodysplastic management of MDS including iron 1:00–1:15 pm Syndromes: Challenges and Strategies overload, a discussion of quality of life in Patient and Family Support for Effective Outpatient the patient living with MDS, and a review Throughout the Continuum of Care Management of strategies and resources for support. Patient and Family Forums — what we learn from our patients May 3, 2012 LEARNING OBJECTIVES 12 pm to 1:30 pm Jayshree Shah, APN-C, MSN, RN, BSN, BS Upon completion of this program, Hilton New Orleans Riverside Hotel 1:15–1:30 pm Grand Ballroom A participants should be better able to: New Orleans, Louisiana • Correlate diagnostic findings and Navigating the Web for MDS: Lunch will be served. The first 350 people will be accommodated. patient specific factors as they relate Web-based Resources for to risk stratification, treatment Patients and Nurses selection and prognosis in MDS. Sara M. Tinsley, ARNP,AOCN • Operationalize strategies to identify treatment triggers, facilitate FACULTY VISIT THE MDS FOUNDATION BOOTH #839 treatment initiation, proactively Sandra E. Kurtin, RN, MS, identify and manage treatment AOCN, ANP-C LUNCHEON SYMPOSIUM related adverse events. Hematology/Oncology Nurse Practitioner On behalf of The Myelodysplastic Syndromes • Identify best practice models for Arizona Cancer Center Foundation and our Board of Directors, we invite outpatient management of the older Clinical Assistant Professor of Nursing you to join us for our Satellite Symposium: adult with MDS including supportive Clinical Assistant Professor of Medicine care strategies. University of Arizona The Myelodysplastic • Discuss the patient and family Tucson, Arizona, USA Syndromes: Challenges perspective relative to living with Jean A. Ridgeway, MSN, APN, MDS and developing systems for NP-C, AOCN and Strategies for Effective active participation and support. Leukemia/Stem Cell Transplant Outpatient Management Nurse Practitioner AGENDA University of Chicago Medical Center May 3, 2012 • New Orleans, Louisiana 12:00–12:05 pm Department of Hematology Oncology Hilton New Orleans Riverside Welcome and Introduction Chicago, Illinois, USA Understanding the pathophysiology of the Sandra E. Kurtin, RN, MS, AOCN, ANP-C Jayshree Shah, APN-C, MSN, RN, disease, risk-adapted treatment selection, triggers 12:05–12:45 pm BSN, BS for active therapies, and strategies for managing Nurse Practitioner – Leukemia Division anticipated disease and treatment related adverse Scientific Update: Recent Advances John Theurer Cancer Center events will provide the oncology nursing professional in Strategies for the Treatment of Hackensack University Medical Center with the tools to assist patients and their families MDS — From Prognosis to Hackensack, New Jersey, USA in meeting the challenge of living with MDS. Treatment Selection Providing the best support possible requires an Updates on the pathobiology of the Sara M. Tinsley, ARNP, AOCN appreciation of the true experience of the patient disease and risk adapted treatment Malignant Hematology Nurse Practitioner and family. A summary of patient and family selection including the IPSS-R H. Lee Moffitt Cancer Center experiences, and identified needs for education Jean Ridgeway, MSN, APN, NP-C, AOCN Tampa, Florida, USA 6 From The Foundation “helping you give hope...” The MDS Foundation is a multi- disciplinary, international organization MDS FOUNDATION PUBLICATIONS devoted to support, research, treatment, The MDS Foundation provides the following ➧ Insurance and Reimbursement and education for patients, caregivers, information to physicians and patients, free Resources for MDS Patients physicians, and other health care of charge: providers. The organization is based ➧ Planned Giving Program: upon the premise that international ➧ The MDS News A Guide to Financial Planning cooperation will accelerate the process ➧ The MDS leading to the control and cure of Messenger these diseases. (Free E-News) Please join
Recommended publications
  • A Current Listing of Contents Volume 3, Number 3, 1983

    A Current Listing of Contents Volume 3, Number 3, 1983

    a current listing of contents Volume 3, Number 3, 1983 Published by Susan Searing, Women's Studies Librarian-at-Large, University of Wisconsin System 112A Memorial Library 728 State Street Madison, Wisconsin 53706 (608) 263- 5754 a current list in^ of contents Volume 3, Number 3, 1983 Periodical 1i terature is the cutting edge of women Is scholarship, feminist theory, and much of women's culture. Feminist Periodicals: A Current Listing of Contents is published by the Office of the Women's Studies Librarian-at-Large on a quarterly basis with the intent of increasing public awareness of feminist periodicals. It is our hope that Feminist Periodicals will serve several purposes: to keep the reader abreast of current topics in feminist literature; to increase readers' familiarity with a wide spectrum of feminist periodicals; and to pro- vide the requisite bibliographic information should a reader wish to subscribe to a journal or to obtain a particular article at her library or through interlibrary loan. (Users will need to be aware of the limitations of the new copyright law with regard to photocopying of .copyrighted materials.) Table of contents pages from current issues of major feminist journals - are reproduced in each issue of Feminist Periodicals, preceded by a comprehensive annotated 1isting of a1 1 journals we have selected. As publ ication schedules vary enormously, not every periodical wi11 have table of contents pages reproduced in each issue of FP. The annotated 1isting provides the following information on each journal : Year of first publ ication. Frequency of publication. a U.S. subscription price(s) .
  • HERALD PAGE6 the Only English-Jewish Weekly in Rhode Island and Southeastern Massachusetts

    HERALD PAGE6 the Only English-Jewish Weekly in Rhode Island and Southeastern Massachusetts

    ***************CAR-R T SO RT**C-027 24:l 0l/<li./97 R.I. JEWISH HISTORICAL ASSOC JA 130 SESSIONS ST. Rhode Is Iand J ew~~; ~; ~~~:~ .. ~ .~ .. ~; ~:~~~~:;;~\.ll,... l.l,I Sports HERALD PAGE6 The Only English-Jewish Weekly in Rhode Island and Southeastern Massachusetts VOLUME LXVI, NUMBER 50 CHESHVAN 18, THURSDAY, OCTOBER 31, 1996 35, PER COPY Assassination of Rabin Spurred Teens to Be More Active in Politics by Michele Chabin have coped in the yea r since the JERUSALEM (JTA)-For 14- assassination has depended on year-old Gavriella Lazar of their political and reli gious iden­ Jerusalem, life has never been tities, Ravi v said . quite the same since the assassi­ Before the assassination, he nation of Prime Minister Yitzhak said, right-wing teens had a Rabin one year ago. stronger sense of ideological "I've become more active po­ identity than their left- w ing litically," said Lazar, the daugh­ counterparts. ter of a Conservative rabbi w ho "Theassassinationhelped the describes her politica l views as doves define their identity, and left wing. served as a ca ta Iyst for group "Before the assassina ti on, I identification. Once the initial was somewhat involved, but grief wore off, they experienced since then I've started going to a relative sense of optimism be­ more d emons trations. I' m a cause they felt they had a cause, member of Peace Now Youth, a legacy to fulfill." and I pay a lot more attention to Conversely, teens who op­ what's going on in the coun­ posed Rabin's poli cies "felt very try." pessimistic.
  • Committee's Sewer Routing Decision Possible Mar. 18

    Committee's Sewer Routing Decision Possible Mar. 18

    THEmTTEM OF MILLBURN AND SHORT HILLS Thursday, March 6,1986 Founded 1888 Volume/98, Number 10 Serving the township for 98 years Member, Audit Bureau of Circulations ,35 Cents per Copy, $15 per Year by Mail to Your Door New leases seen for present school tenants Piano Preludes' bid was for $2,550 cupies $136,273 for the second year. leases when the school board initially Brennan in which it notified him that Rents paid by tenants of the South for the first year and $2,820 for the se­ In addition to acting on the South Mountain School during the coming The board puts the annual advertised for bids, submitted pro­ it would not make a new bid proposal. operating cost of maintaining the posals in the second round of bidding. The Pennsylvania firm had submit­ cond year to lease the 300 square feet Mountain School bids Monday night two years will apparently exceed the the Board of Education is scheduled Board of Education's annual costs in building at $120,000. The board had rejected the initial ted a high bid of $105,305 last month. it now occupies. Approval of the bids is scheduled to bids because they failed to equal the Summit Child Care Center, in its Citron Enterprises, which operates to award a contract for the purchase maintaining the unused public school the South Mountain Nursery and of a new telephone system for the building. take place at the Board of cost of maintaining the school bid of this week, offered to pay Education’s meeting Monday night building.
  • Town Faces Legal Hurdle on Station Condemnation

    Town Faces Legal Hurdle on Station Condemnation

    O f MILLBURN AND SHORT HILLS T hursday, May 9,1985 Pounded 1888 Vol. 97, N u m b er 19 Serving the iownthip for 97 years 35 Cents per Copy, $15 per Year by Mail to Your Door & Member, Audit Bureau of Circulations -----------3 ------------------------------ t Bees’ nest Town faces legal hurdle clean-up starts fire on station condemnation k An attempt by a workman to burn a A new legal roadblock, one brand­ mitted at Tuesday night’s meeting of of late last year to acquire the sta­ to demolish the 84-year-old station bees’ nest out of the eaves of an Old ed by township attorney Roger Clapp the governing body, Mr. Clapp said tion. and replace it with a 2-story office Short Hills Road home Mondaj as “totally frivolous,” has been P&R attorneys were planning to ap­ P&R’s latest legal move, Mr. Clapp building which would contain com­ nited the roof and set off a blaze erected by P&R Associates, owners peal an April ruling by Judge Bed­ said Tuesday night represented an muter facilities. damaged three rooms of of the Millbum railroad station, in an ford and “have indicated they will “effort to obstruct” the orderly movement of the case. Approximately two months after residence before it was brot attempt to derail this municipality’s seek a stay of the May 20 meeting. the Planning Board approved the The decision which P&R is plann­ sr control. No one was inji acquisition of that property through P&R plans the board of directors of seriously in the blaze.