Families Caring for an Aging America
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THE NATIONAL ACADEMIES PRESS This PDF is available at http://www.nap.edu/23606 SHARE Families Caring for an Aging America DETAILS 340 pages | 6 x 9 | PAPERBACK ISBN 978-0-309-44806-2 | DOI: 10.17226/23606 AUTHORS BUY THIS BOOK Richard Schulz and Jill Eden, Editors; Committee on Family Caregiving for Older Adults; Board on Health Care Services; Health and Medicine Division; National Academies of Sciences, FIND RELATED TITLES Engineering, and Medicine Visit the National Academies Press at NAP.edu and login or register to get: – Access to free PDF downloads of thousands of scientific reports – 10% off the price of print titles – Email or social media notifications of new titles related to your interests – Special offers and discounts Distribution, posting, or copying of this PDF is strictly prohibited without written permission of the National Academies Press. (Request Permission) Unless otherwise indicated, all materials in this PDF are copyrighted by the National Academy of Sciences. Copyright © National Academy of Sciences. All rights reserved. Families Caring for an Aging America FAMILIES CARING FOR AN AGING AMERICA Committee on Family Caregiving for Older Adults Board on Health Care Services Health and Medicine Division Richard Schulz and Jill Eden, Editors A Report of PRREPUBLICATION COPY: UNCORRECTED PROOFS Copyright © National Academy of Sciences. All rights reserved. Families Caring for an Aging America THE NATIONAL ACADEMIES PRESS 500 Fifth Street, NW Washington, DC 20001 This activity was supported by Grant No. 14-02-39 from Archstone Foundation, Grant No. 18203 from the California Health Care Foundation, Grant No. 20130622 from The Commonwealth Fund, Grant No. 940 from Health Foundation of Western and Central New York, Grant No. 2014-0094 from The John A. Hartford Foundation, Grant No. 2013-247 from The Retirement Research Foundation, Contract No. VA101-14-C-0014 from the U.S. Department of Veterans Affairs, and grants from Alliance for Aging Research, Alzheimer’s Association, an anonymous donor, The Fan Fox and Leslie R. Samuels Foundation, May and Stanley Smith Charitable Trust, The Rosalinde and Arthur Gilbert Foundation, Santa Barbara Foundation, and Tufts Health Plan Foundation. Any opinions, findings, conclusions, or recommendations expressed in this publication do not necessarily reflect the views of any organization or agency that provided support for the project. International Standard Book Number-13: 978-0-309-XXXXX-X International Standard Book Number-10: 0-309-XXXXX-X Digital Object Identifier: 10.17226/23606 Library of Congress Control Number: Additional copies of this publication are available for sale from the National Academies Press, 500 Fifth Street, NW, Keck 360, Washington, DC 20001; (800) 624-6242 or (202) 334-3313; http://www.nap.edu. Copyright 2016 by the National Academy of Sciences. All rights reserved. Printed in the United States of America Suggested citation: National Academies of Sciences, Engineering, and Medicine. 2016. Families Caring for an Aging America. Washington, DC: The National Academies Press. doi: 10.17226/23606. PREPUBLICATION COPY: UNCORRECTED PROOFS Copyright © National Academy of Sciences. All rights reserved. Families Caring for an Aging America The National Academy of Sciences was established in 1863 by an AAct of Congress, signed by President Lincoln, as a private, nongovernmental institution to advise the nation on issues related to science and technology. Members are elected by their peers for outstanding contributions to research. Dr. Marcia McNutt is president. The National Academy of Engineering was established in 1964 under the charter of the National Academy of Sciences to bring the practices of engineering to advising the nation. Members are elected by their peers for extraordinary contributions to engineering. Dr. C. D. Mote, Jr., is president. The National Academy of Medicine (formerly the Instittute of Medicine) was established in 1970 under the charter of the National Academy of Sciences to advise the nation on medical and health issues. Members are elected by their peers ffor distinguished contributions to medicine and health.Dr. Victor J. Dzau is president. The three Academies work together as the National Academies of Sciences, Engineering, and Medicine to provide independent, objective analysis and advice to the nation and conduct other activities to solve complex problems and inform public policy decisions. The Academies also encourage education and research, reccognize outstanding contributions to knowledge, and increase public understanding in matters of science, engineering, and medicine. Learn more about the National Academies of Sciences, Engineering, and Medicine at www.national-academies.org. PRREPUBLICATION COPY: UNCORRECTED PROOFS Copyright © National Academy of Sciences. All rights reserved. Families Caring for an Aging America Reports document the evidence-based consensus of an authoring committee of experts. Reports typically include findings, conclusions, and reccommendations based on information gathered by the committee and committee deliberations. Reports are peer reviewed and are approved by the National Academies of Sciences, Engineering, and Medicine. Proceedings chronicle the presentations and discussions at a workshop, symposium, or other convening event. The statements and opinions contained in proceedings are those of the participants and have not been endorsed by other participants, the planning committee, or the National Academies of Sciences, Engineering, and Medicine. For information about other products and activities of tthe Academies, please visit nationalacademies.org/whatwedo. PRREPUBLICATION COPY: UNCORRECTED PROOFS Copyright © National Academy of Sciences. All rights reserved. Families Caring for an Aging America COMMITTEE ON FAMILY CAREGIVING FOR OLDER ADULTS RICHARD SCHULZ (Chair), Director, University Center for Social and Urban Research, University of Pittsburgh MARIA P. ARANDA, Associate Professor, University of Southern California School of Social Work SUSAN BEANE, Vice President and Medical Director, Healthfirst Inc. SARA CZAJA, Leonard M. Miller Professor and Scientific Director, Center on Aging, University of Miami Miller School of Medicine BRIAN DUKE, System Director, Senior Services, Main Line Health JUDY FEDER, Professor, McCourt School of Public Policy, Georgetown University LYNN FRISS FEINBERG, Senior Strategic Policy Advisor, AARP Public Policy Institute LAURA N. GITLIN, Director and Professor, Center for Innovative Care in Aging, Johns Hopkins University School of Medicine LISA GWYTHER, Director, Duke Family Support Program; Associate Professor, Department of Psychiatry and Behavioral Sciences, Duke University ROGER HERDMAN, Retired LADSON HINTON, Geriatric Psychiatrist and Professor, Department of Psychiatry and Behavioral Sciences, University of California, Davis PETER KEMPER, Professor Emeritus, Health Policy and Administration; Demography, Pennsylvania State University LINDA NICHOLS, Co-Director, Caregiver Center, Memphis Veterans Affairs Medical Center; Professor, Preventive and Internal Medicine, University of Tennessee Health Science Center CAROL RODAT, New York Policy Director, PHI 3DUDSURIHVVLRQDO+HDOWKFDUH,QVWLWXWH , Inc. CHARLES SABATINO, Director, Commission on Law and Aging, American Bar Association KAREN SCHUMACHER, Professor, College of Nursing, University of Nebraska Medical Center ALAN STEVENS, Director, Center for Applied Health Research Program on Aging and Care, Baylor Scott & White Health DONNA WAGNER, Dean, College of Health and Social Services, New Mexico State University JENNIFER WOLFF, Associate Professor, Department of Health Policy and Management, Bloomberg School of Public Health, Johns Hopkins University Study Staff JILL EDEN, Study Director KATYE MAGEE, Senior Program Assistant AMY BATCHELOR, Research Associate (through May 2015) KATHRYN ELLETT, U.S. Department of Health and Human Services Detail (April through July 2015) GUZ ZIMMERMAN, Research Associate (starting July 2015) SHARYL NASS, Director, Board on Health Care Services Consultant VICKI FREEDMAN, Populations Study Center, University of Michigan v PREPUBLICATION COPY: UNCORRECTED PROOF6 Copyright © National Academy of Sciences. All rights reserved. Families Caring for an Aging America Copyright © National Academy of Sciences. All rights reserved. Families Caring for an Aging America Reviewers This report has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published report as sound as possible and to ensure that the report meets institutional standards for objectivity, evidence, and responsiveness to the study charge. The review comments and draft manuscript remain confidential to protect the integrity of the deliberative process. We wish to thank the following individuals for their review of this report: ELISABETH BELMONT, MaineHealth CHRISTOPHER M. CALLAHAN, Indiana University Center for Aging Research and Regenstrief Institute, Inc. ANDREW CHERLIN, Johns Hopkins University EILEEN CRIMMINS, University of Southern California PEGGYE DILWORTH-ANDERSON, University of North Carolina at Chapel Hill DAVID GRABOWSKI, Harvard Medical School PAMELA HYMEL, Walt Disney Parks and Resorts JUDY D. KASPER, Johns Hopkins Bloomberg School of Public Health ARTHUR KLEINMAN, Harvard Medical School CAROL LEVINE, United Hospital Fund MARGARET