Impact Report

2008/09The child first and always Our mission We raise money to enable Great Ormond Street Hospital to provide world-class care for its young patients and their families, and to pioneer new treatments and cures for childhood illnesses.

Contents

Overview 03 A letter from our chief executive and executive director 05 What we raised

Objectives 06 Redevelopment 09 The Morgan Stanley Clinical Building, part of the Mittal Children’s Medical Centre 10 The Reuben Foundation Children’s Cancer Centre

Research 12 Somers Clinical Research Facility 14 Audrey Callaghan Research Fellowship

Equipment 16 Haemodialysis machine 18 Heart and lung bypass machine

Accommodation and welfare 20 Parent and family accommodation 23 Intensive Care Unit family liaison nurses

Summary 25 Looking forward 29 Chairman’s report 31 Thank you 34 Charity directors and Cover: Five-year-old Mark loves appeal board members his trips to Victoria Ward to see play specialist Lucy. They have a secret handshake and spend a lot of their time playing thumb wars. Mark is on dialysis at home while he is waiting for a kidney transplant and comes into the hospital for regular check-ups.

Left: TJ is nearly eight weeks old and is in hospital to have tests for an unidentified skin condition. Impact Report 2008/09 01

1260_GOSH_Impact_Inside_FAW.indd 1 10/12/2009 16:28 A letter from our chief executive and executive director

Any parent will tell you that there is nothing Ever since it was founded more than 150 more worrying than a child being unwell. years ago, Great Ormond Street Hospital Many of the parents we meet at Great has relied heavily on donations to help Ormond Street Hospital have an enormous establish it as one of the best children’s amount to cope with – managing daily life, hospitals in the world. Much of that work responsibilities, caring for their fundraising has allowed us to expand or other children and, of course, being at replace incredibly out-dated buildings but the bedside of their sick child. We want our biggest challenge is still to provide to do all we can to help them. Thanks to more space to treat more children and the generosity of donors to the charity help support families in a better way. we are able to provide support that This is why we were delighted in May would otherwise be unavailable. to celebrate breaking ground on the fi rst building in the next phase of this As you’ll see in this report, one of the essential redevelopment. ways donations have made a diff erence is by funding accommodation for families We are so grateful to all of you who have who travel from all parts of the UK so been so generous this year and allowed their children can be cared for at the the hospital to do so much for the children hospital. Another way is replacing some it cares for. Your donations really make of the very old equipment we have and a huge diff erence in providing the best by making new purchases to improve possible treatment available and in the treatment we off er. Gifts to the providing hope to thousands of families charity have also allowed us to fund throughout the UK and worldwide. yet more important and ground-breaking research to fi nd new cures and ways Thank you. of reducing the unpleasant side eff ects of some treatments.

Jane Collins Chief executive

Tim Johnson Executive director

Victor is 11 years old and like most boys his age enjoys playing computer games and this was how he was killing time while waiting to be discharged from the Great Ormond Street Hospital- run Rainbow Ward at North Middlesex University Hospital. Impact Report 2008/09 02/03 What we raised

Thanks to our donors, 2008/09 was the supporters but also the hard work of charity’s most successful fundraising all our volunteers and teams across year ever, raising £51.1 million. the charity, especially in such a highly challenging economic climate. Financial review 2008/09 Our total income of £60.3 million (including The charts on this page show where investment and property income) rose by our funding came from in the last year 14.6 per cent in comparison to the previous and how we used it to the benefit of the year, and this meant that we were able patients at the hospital. The funds raised to make important progress towards but not spent during this year are critical funding the next stage of the hospital’s to our committed expenditure on the redevelopment programme. This success hospital’s redevelopment programme. is thanks not only to our generous

2008/09 2007/08 (Fig 1) £ million £ million Income sources 2008/09 Donations 38.2 32.2 Legacies 8.0 9.8 63.3% Donations Trading 3.0 3.3 13.3% Legacies Other 1.9 1.4 12.3% Investments Fundraising income 51.1 46.7 Investments 7.4 4.5 5.0% Trading Property 1.8 1.4 3.0% Property Total 60.3 52.6 3.1% Other

2008/09 2007/08 (Fig 2) £ million £ million Charitable expenditure 2008/09 Redevelopment 8.8 14.2 Research 5.7 3.5 37.4% Redevelopment Medical equipment 4.1 5.7 24.3% Research and capital schemes Patient and staff welfare 2.5 2.2 Accommodation and other 2.4 1.6 Total 23.5 27.2 17.4% Medical equipment Expenditure for the year totalled £39.5 million, and capital schemes with £23.5 million being spent on charitable activities. 10.6% Parents and staff welfare 10.3% Accommodation and other

Four-year-old Aaliliah has an outpatient appointment in the hospital today but first she is tucking in to her favourite food on the planet – spaghetti. She really can’t get enough of it. Impact Report 2008/09 04/05 Objective 1 – Redevelopment In order to maintain and advance our position as a world-class centre for paediatric care and research, we desperately need to upgrade our oldest buildings and create additional space to allow more children to be treated.

Our four-phase redevelopment programme aims to rebuild two-thirds of the hospital site over a period of more than 20 years. The first phase was completed in 2006 and we are now working on the largest and ambitious second phase of the redevelopment, which will transform clinical inpatient facilities for many of the children we look after. The Octav Botnar Wing Phase 1 Phase 1 was completed in 2006 The opening of the Octav Botnar Wing in As part of the study, and using additional and included: 2006 has transformed the lives of patients, research conducted among patients, we • the building of the Octav Botnar Wing families and staff. have identified two of the key drivers of (see right), incorporating the Somers patient satisfaction that are associated Medical Daycare Centre and the Harris “We now have so much more space,” said with the hospital environment – first, that International Patient Centre; Nathan Askew, ward manager on Sky they are given somewhere private for • the building of Weston House, Ward. “In the old ward there wasn’t space examination or treatment, and second, which includes the Paul O’Gorman in the corridors for two wheelchairs to that there are enough toys, games and Patient Hotel; pass each other and there certainly wasn’t things to do. anywhere for parents to stay overnight • the refurbishment of four floors of the with their child. The Octav Botnar Wing The space within the Octav Botnar Wing Royal London Homeopathic Hospital has changed all that. We have lots of was successfully planned to provide to create the Djanogly Outpatient natural daylight, beds for parents, a great greater opportunities for privacy including Department; and playroom and we have a dedicated staff more clinical investigation rooms and • the creation of the Hugh and Catherine room. The in-built hoists in the rooms have space around the beds. Play facilities Stevenson Centre for Childhood made moving patients from their beds to are much improved and now include Infectious Diseases and Immunology the bathrooms safer for all, and the older adolescent rooms. In The Picker Institute at the UCL Institute of Child Health. children make good use of the adolescent study, we were pleased to see that these room, where they can use the internet and improvements have been reflected in the Phase 2 watch DVDs. This is a great place to work levels of satisfaction among children and The Mittal Children’s Medical Centre and a much nicer place to be a patient.” young people, with 86 per cent stating The second phase of the redevelopment that they were always given somewhere will see the construction of the Mittal Nathan’s comments are backed up by private for examinations or treatment Children’s Medical Centre, which will an independent survey conducted by (base score 70 per cent). In response to contain two important clinical buildings The Picker Institute, which asked a series the question of there being enough toys, and allow the hospital to treat up to 20 of questions of children and parents to games and things to do, 66 per cent per cent more children. The first of these determine how satisfied they were with replied, “yes, plenty”, against a base is the Morgan Stanley Clinical Building, the care they received. Overall, the levels score of 52 per cent. which is scheduled to open in 2012 and of satisfaction within the hospital are very will contain new kidney, neurosciences high, with 85 per cent rating the care and heart and lung centres plus a new excellent or very good. Staff at the nurses’ station on Sky family and staff restaurant. Ward in the Octav Botnar Wing. Impact Report 2008/09 06/07 Th e extra space provided by the Morgan Stanley Clinical Building Objective 1 – Redevelopment will allow more parents like Ron to stay at their child’s bedside. Five-year-old Jack had meningitis as a baby, which aff ected the growth of bones in his legs and which he is now having lengthened and straightened.

Far left: Charity patrons Vernon Kay and Tess Daly joined four patients on-site for the Breaking Ground ceremony in May this year.

Left: Th e successful room designs in the Octav Botnar Wing have provided the template for those in the Morgan Stanley Clinical Building. Th e Morgan Stanley Clinical Building– part of the Mittal Children’s Medical Centre Aim Impact Lighting is central to the building’s design To relocate certain departments in the Whilst we are unable to report on the and natural daylight, presence detectors hospital to allow for the demolition of the impact of the Morgan Stanley Clinical and LED lighting will all help to reduce old buildings and the start of construction Building until it is operational, the success energy consumption further. The glazed on the Morgan Stanley Clinical Building of the Octav Botnar Wing, which has facade will maximise the amount of by the summer of 2008. served as a template, gives us every daylight to the building’s interior while confi dence that this new addition to the minimising the solar gain internally. Achievement hospital site will enable us to treat a During the last fi nancial year, we greater number of patients and will deliver Ventilation of the building will be natural appointed the contractor (within budget) a positive experience for all those who wherever possible and a glazed fl ue will for the Morgan Stanley Clinical Building, use it, while having a minimal impact extend the full height of the building, successfully moved wards from one on the environment. naturally ventilating the restaurant on the building to another with minimum ground fl oor. The bedrooms will also use disruption and noise and began the Reducing our carbon footprint is a priority mixed mode natural ventilation. construction in November 2008. for the hospital and it has set a target of 120 per cent carbon reduction and more Interior fi nishes will utilise natural paints As a result, in May 2009 we were able to than 60 per cent renewable energy and linoleum, and low-volatility organic break ground on the new building. This contribution for this next phase of the compound materials have been selected important step towards our new world- redevelopment, based on the agreed for the vast majority of fi nishes. class facilities is mainly thanks to the plan to use biofuels. generosity of many donors to the charity. All timber will be Forest Stewardship The total cost of the Mittal Children’s Heating, cooling and electricity will Council (FSC) certifi ed and come from Medical Centre is £321 million. Of this, be provided by two tri-generation units, a sustainable managed source. £75 million has been contributed by the which have the potential to run on biofuels Department of Health, with the remainder extracted from a sustainable source. The The roof of the building will be laid with to be raised through charitable donations. building will use sensor taps, effi cient toilets, sedum, a natural grassy matting that is At the end of March 2009, the charity showers and appliances, and will achieve a great insulator, which will reduce storm reported that it had raised £126 million a reduction in carbon emissions over and water run-off and increase the ecological towards the overall total. Whilst this leaves above current building regulation standards. value of the site. £120 million still to raise, the special trustees of the charity were able to give their approval to begin the construction of the fi rst phase, the Morgan Stanley Clinical Building. Impact Report 2008/09 08/09 Objective 1 – Redevelopment

Donations make a difference Last year you helped us fund: • genetics laboratories which allow us to diagnose inherited conditions using the latest state-of-the-art equipment. Thank you

Case study The Reuben Foundation Children’s Cancer Centre Lucy Gray, play specialist, Elephant Ward Aim In 2008/09, the Oncology Team saw To provide, by August 2008, eight new 2,072 patients in this age group who were “The children we see on Elephant Ward inpatient cancer beds and to refurbish being treated for a variety of cancer- are amazing; they and their families go the ward to accommodate a significant related illnesses, including solid tumours, through so much. That’s why this work rise in patients. leukaemia, neuroblastoma (cancer of the has been so important. To have a well- nervous system) and stem cell patients. planned, bright and fun space that is less Achievement clinical and more child-friendly, enables Following on from the successful Impact the children to feel much more at home.” completion of the Safari Daycare Unit The new ward has had a profound effect in 2008/09, Elephant Ward, which looks on the way the clinical unit works, and on after cancer inpatients, was completely the experience of our young patients and refurbished and operational in September their families. 2008 thanks to generous support from the Reuben Foundation, CHILDREN Staff have redesigned the ward in order with LEUKAEMIA, Scott and Suling to use the space more effectively and Mead and Abbey. have been able to accommodate the extra patients the hospital needs to admit. They We now have eight new inpatient beds have reorganised the team to streamline and have been able to treat more patients workflow and increase efficiency, which since opening, including those who have has been aided by the new nurses’ been referred to us since the closure of workstation. The revised floor plan the Paediatric Oncology Centre at Bart’s means that ward rounds are easier and the Royal London NHS Trust. We are and less equipment is needed. also now responsible for the admission To see 18-month-old Nora of all oncology referrals of children from running around Elephant Ward birth to 12 years of age. This makes you would not believe that she Great Ormond Street Hospital the third has recently had surgery to largest paediatric cancer centre in the remove a brain tumour, and wherever Nora goes, Winnie Western world. the Pooh goes too. Impact Report 2008/09 10/11 Objective 2 – Research Beating childhood disease requires more than scaled- down versions of the research into adult healthcare. We’re funding a multi-million pound programme to advance pioneering paediatric research.

Somers Clinical Research Facility Case study Aim Children and parents are given the space, Emma Franks (right), clinical research To provide a dedicated modern space time and privacy they need to make an play specialist suitable for looking after children who informed decision about whether or not are taking part in research trials as part they wish to take part in a study, with full “Through play, I help children talk about of their treatment. support from dedicated nurses, a their illness, explain what the effects pharmacist and a full-time clinical of different treatments will be – and Achievement research play specialist. generally try to make their whole Generously funded by Mrs Phyllis Somers, experience of being here more fun! the JN Somers Charitable Will Trust and The Somers Clinical Research Facility Once you’ve built up a rapport with the Friends of the Children of Great also caters for children taking part in kids, most of them realise this is an Ormond Street, the Somers Clinical intensive drug trial studies, who need OK place to be. Research Facility opened in December close monitoring at regular intervals. 2008. More than 23 new studies of Without this resource, many of these “Keeping families informed about what’s medicines are in progress and, as of June studies simply couldn’t go ahead, as involved in clinical research is crucial 2009, more than 180 children stand to inpatient beds at the hospital need to be before they give consent for a child benefi t immediately from research projects reserved for high-priority clinical cases. to take part in a study. This can be a that the hospital may otherwise have been daunting process for children, but by unable to accommodate. Ultimately, the All research at the Somers Clinical encouraging group play I have found results of the research trials undertaken Research Facility is conducted to that children can reassure each other at the hospital may lead to breakthroughs ensure maximum potential benefi t for that taking part in research isn’t scary that will make a diff erence to sick children other children, both nationally and or dangerous. all over the UK and internationally. internationally. With an in-house team of laboratory assistants and research “Play forms a valuable part of clinical Impact nurses to monitor and process results, care. We always need to be on the The Somers Clinical Research Facility researchers can ensure their fi ndings lookout for any adverse effects of the Kamal was born with a rare bone disease and hasn’t grown since provides a comfortable, safe and child- are robust, as well as being confi dent treatments we’re studying, and often he was two. Now age fi ve, he friendly environment appropriate for the that their patients have received the you can pick up signs of something is taking part in a research study needs of children involved in clinical highest quality care Great Ormond being wrong through play before a child in the Somers Clinical Research research studies. Street Hospital has to off er. says anything out loud. It also helps us Facility and visits the hospital to deal with any phobias or anxiety the regularly for treatment. He child may have and helps us to work always looks forward to playing with Emma and today they are through them.” painting a picture of a rocket. Impact Report 2008/09 12/13 Objective 2 – Research

Audrey Callaghan Research Fellowship Case study Aim Unravelling the genetic basis of a disease Dr Jasper de Boer (right), To find new ways to fight cancer at a sub- can be a crucial first step to finding new postdoctoral researcher microscopic level, targeting treatment and better treatments. In the case of to ensure the next generation of cancer Dr de Boer, the work on leukaemia has “My research has always been driven therapies cure more children, with fewer already led to early successes. He and by a desire to understand how science side effects. his colleagues have found a drug that affects humans. I was keen to join the can block the cancer-causing faulty genes UCL Institute of Child Health because Achievement in leukaemic blood cells. This drug returns of the strong ties between the research Our scientists have developed efficient the cells to their normal healthy state – laboratories and Great Ormond Street yet low-cost methods to pinpoint the effectively reversing the effects of the Hospital – it’s unique to have scientists abnormal genes that trigger disease in leukaemia. These breakthroughs have and clinicians working so closely certain cancerous cells. Carrying out been made possible by the generous together to combat childhood disease. advanced laboratory research guided support of the Callaghan family, Lord by urgent clinical issues, the Audrey and Lady Owen, Abbott Laboratories, “By developing simple yet powerful Callaghan Fellow, Dr Jasper de Boer, Alliance Family Foundation Limited and research techniques to investigate has applied these methods to find the many other generous benefactors. clinical issues critical to the health of Donations make a difference faulty genes that cause a particular children at the hospital, my colleagues Last year you helped us fund other • delivering better treatments for children type of fatal drug-resistant leukaemia. Impact and I are delivering practical ways to pioneering research projects that are: born with immune disorders; This research means clinicians on the tackle some of the most challenging cancer wards will be able to launch further childhood illnesses. The centres we • transforming the lives of children with • making inclusive education for autistic studies to see if children with this fatal form collaborate with around the UK, Europe chronic kidney disease; children a success; of leukaemia can be offered a cure. The and further afield are already using • ensuring chemotherapy is kept to a • supporting the hospital’s Pharmacy Unit; technique’s success has also kick-started the results of our research to direct minimum for children with leukaemia; • personalising heart valve treatments for work to find similar drugs for other more future work. • increasing our capacity to carry out children with heart disease; common, but nevertheless severe, forms clinical trials of new cancer medicines; • tackling cystic fibrosis in the crucial of childhood leukaemia. “I want to say a huge thank you to the • pioneering gentler and more effective early years; donors to the charity for continuing to bone marrow transplants; • innovating new surgical treatments for fund a programme of work that will • improving the way we plan operations children with feeding difficulties; allow us to roll out the benefits of this for children born with heart defects; research to treating other forms of • installing a high-tech microscope to cancer. This support has really made a • defining a safe blood sugar level for deliver ground-breaking research; and huge difference in our search to devise children with hypoglycaemia; • establishing a state-of-the-art cell targeted cancer therapies with fewer • helping us to understand and prevent sorting and analysis facility. side effects.” sudden infant death; Thank you Impact Report 2008/09 14/15 Objective 3 – Equipment Last year our donors helped us fund £2.3 million of new equipment, enabling us to replace old and out-dated machinery as well as purchasing new state-of-the-art technology.

Haemodialysis machine Case study Aim Impact Tasleem (right), age 17 To urgently replace an existing Children who need haemodialysis find it haemodialysis machine, which is no takes over their whole life as they visit the “I have been a patient at Great Ormond longer fit for purpose, so that the Dialysis hospital three times per week and spend Street Hospital since I was 18 months Service can continue to treat 75 patients four hours each time on the machine. old, when I was diagnosed with kidney every year. This machine takes on the role Some lose a whole day every time they problems. Since then I have had two of the kidneys, cleaning and filtering the come in due to the distances they have transplants. The first one only lasted six patient’s blood. to travel to and from the hospital and, as months before my body rejected it but children can wait up to two years for the second was more successful and Achievement a transplant, this is very disruptive for lasted eight years, which is about the A new haemodialysis machine was the whole family. life span for a kidney transplant. installed in September 2008, and was paid for by two legacy donations from Mrs The Renal Department at Great Ormond “I am now 17 and am back on dialysis Florence Brown and Mr Jack Owen Rose. Street Hospital provides a comprehensive waiting for a new kidney. I come into It is used six days per week and will allow diagnostic and treatment service for the hospital three times a week for four us to perform up to 600 vital dialysis children of all ages with kidney disease, hours each time. While I am here I catch sessions a year, which keep our patients including acute and chronic kidney failure. up on college work – I am studying who are awaiting kidney transplants alive. In 2008/09 more than 4,000 outpatient health and social care at college and visits and more than 780 inpatient would like to be a paediatric nurse or admissions were made, making Great work with children. Ormond Street Hospital the largest paediatric renal centre in the UK as “My youngest sister is also on dialysis well as the UK’s largest centre for renal here and luckily we come on the same transplantation and one of the largest day. We spend so much time here that in the world. the staff are like our extended family.” Impact Report 2008/09 16/17 Heart and lung machine Objective 3 – Equipment

Case study Heart and lung bypass machine Sarah Cox (above) by her parents, Aim Impact Jennie and Nigel To replace three existing heart and lung Great Ormond Street Hospital treats bypass machines that are ten years old 10,000 children each year for complex “Our daughter Sarah was born in good and reaching the end of their useful lives heart and lung diseases. These machines health although four weeks early. and are threatening our standard of care. will enable us to continue our ground- However, six days later she was These machines take over the function of breaking work and treat children for diagnosed with viral meningitis and the heart and lungs during a number of procedures such as open heart surgery, after a week at our local hospital, she diff erent surgical operations performed tracheal reconstruction, heart transplants, was transferred to Great Ormond Street at Great Ormond Street Hospital. heart and lung transplants and those Hospital when the virus started affecting requiring the implantation of a longer-term her heart. Achievement heart-assist device, such as the Berlin Heart. In March 2009, we bought and installed “At fi rst she seemed to get better but three new heart and lung machines in our The new machines have already allowed then began to deteriorate again as Cardiac Critical Care Ward. Each of these us to improve levels of care. They have the virus destroyed parts of her heart. essential pieces of equipment will allow us less tubing than the older machines, At three weeks old, we were told that to treat up to 624 patients per year. They which gives our surgeons better access there was no chance of recovery and were funded through proceeds from the to the patient, and reduces the patient’s that it might be 12-48 hours before party to launch the 2008 Formula 1 exposure to donor blood, which is she left us. After having her baptised, Santander British Grand Prix and through particularly important for tiny neonates we started to say goodbye. the charity’s Festival of Running event. and small children.

“Then came the miraculous news that a heart had become available. We could not take it in as we had believed there was no hope. We knew nothing about Donations make a difference transplants but the nurse specialist gave us all the information we needed Last year you helped us to fund: • hand-held analysers for our Intensive and the operation went ahead when • equipment to diagnose prenatal Care Units; Sarah was just 23 days old. Just over chromosomal abnormalities, • a neuroradiology reporting workstation; three weeks later, we took her home. eg Down’s syndrome; • gastroscopes; • syringe pumps for giving pain • anaesthetic equipment for operating “Sarah was very lucky. She is the youngest relief to patients; theatres; surviving heart transplant patient in • vital sign bedside monitoring • an ultrasound machine for operating the UK. This was only made possible for intensive care; by an overseas donor as organs cannot theatres; currently be donated from children • equipment for monitoring blood • oesophageal monitoring equipment; and under two months of age in the UK. We and bone marrow cells; • a gamma camera for radiology. are immensely grateful to the family • ventilators; Thank you that made the decision to donate.” • dental chairs; Impact Report 2008/09 18/19 Objective 4 – Accommodation and welfare We believe in caring not only for the child but for the whole family. This care comes in many forms, from financial advice and spiritual counselling to the provision of accommodation for parents and parent liaison nurses on the wards.

Parent and family accommodation Case study Aim Impact by Danielle Keeley and Chris Heels To provide 37 rooms and flats for the Feedback from parents suggests that (right), parents of patient Summer Rose parents and siblings of patients who are this is an invaluable service that allows undergoing long-term care so that they them to stay nearby when their child is “A few hours after our beautiful can stay close to the hospital. in hospital and helps remove some of the daughter, Summer Rose, was born stress during an incredibly worrying time. she began to have seizures and Achievement Research has proven that having family was transferred to Great Ormond Over the course of the year, we had 1,600 nearby can aid recovery and so siblings Street Hospital. family visits to these rooms, with an average are also welcome meaning families can stay of eight days. be together and maintain as normal a life “Doctors discovered that the section as possible during their stay. of Summer Rose’s brain that controls co-ordination and breathing has not The accommodation also allows for the developed properly and this is what families of patients who are going to need causes her to fit. It has been a hard few continued care at home to familiarise weeks. Not only is our little girl ill but themselves with the medication and we are away from friends and family. equipment that they will need. Having time to practise while still under the watchful “Thankfully, we have been able to stay eye of staff at the hospital can reduce in the parent accommodation, which is anxiety about leaving hospital and gives just across the road from the hospital. parents the chance to ask questions. This has been a real life-line for us. There is not enough room on the ward for us both to stay, so being close by and being together means that we are able to support each other.

“Staying here means that we don’t have to do the expensive three-hour round trip from home every day (especially as neither of us are able to work at the moment) and having some time to ourselves in the evening away from the hospital, and sleeping in a proper bed, means that we are, to some extent, less stressed, which is not only good for us but also for Summer Rose.” Impact Report 2008/09 20/21 Donations make a difference Objective 4 – Accommodation and welfare Last year you helped us to fund: • the Staff Counselling Service; • the Ethics Service; • the Palliative Care Team; • medical support to clinical • a bone marrow transplant workforce redesign; quality manager; • the Voluntary Services Department; • a bone marrow transplant parent • children and young people’s liaison nurse; participation in decision making; • the Transforming Cleft and • the arts and humanities programme; Craniofacial Services; • meals for breastfeeding mothers; • a renal nurse counsellor; • our Children First for Health website; • the chaplaincy; and • the staff nursery subsidy; • the Adolescent Medicine Service. • health and welfare activities; Thank you

Case study Intensive Care Unit (ICU) family liaison nurses By Brenda (near left), Jude’s mum Aim To help meet the goal of improving To fund three family liaison nurses for planned admission information for spinal “Jude was born at only 22 weeks and the Intensive Care Unit for one year, to surgery patients, the team set up a system doctors told me they didn’t think he provide both emotional and practical whereby children and families are met would make it to 30 weeks. He was support to families who have critically ill pre-operatively, giving the opportunity for taken to University College London children in hospital. any issues and concerns to be addressed Hospitals and was there for a week in advance. The same service is also before they found he had a problem Achievement available for families from referral with his gut – a bowel perforation – Generously funded by donors including hospitals whose baby will need to be and they needed to operate. That’s The Atkin Foundation, these nurses played transferred to Great Ormond Street when we came to Great Ormond a leading role in the psychosocial care of Hospital immediately after birth. Street Hospital. 700 ICU families they saw last year. This service was set up following feedback The family liaison nurses have also been “Esther (far left) the family liaison nurse, from parents and families on the ICU, who fundamental in the establishment of other came in the very fi rst day I was here. It asked for more support during what is an support services such as the Parent was so tough – especially as my partner extremely stressful time. Admission of Telephone Support Network. Staff ed by was working in Malaysia and most their child to ICU had a profound eff ect parents of previous patients, to provide of my family are in Uganda. I used on the majority of families and the shortfall support to parents and families on the to break down almost every day but in psychosocial care became acutely ICU, this service complements and works Esther’s really been there for me. She apparent. Since the establishment of the closely with the specialist psychosocial would come and ask me how I was, service parents have felt more confi dent support already in place on the unit. explain again what the doctors had in asking nurses and consultants told me and hold my hand and tell me questions about their child’s condition. Feedback from parents has been actively to hang in there. She’d also help with sought with regular reviews of suggestions form-fi lling and walk to the operating Impact and actions. Bereavement care for both theatre with me. The service puts the family at the centre families and staff has been improved, of their work, assessing each individual with a signifi cant increase in the uptake “Over the past three months we’ve family’s needs in order to give them the of bereavement follow-up appointments been back a few times for operations required support, whether that comes by families. and treatment and Esther has always from within the hospital itself or from been here for me. If she wasn’t I would external agencies. This has given parents All of these initiatives have led to a marked defi nitely have gone through this hard the confi dence to ask what are often decrease in the number of ICU-related time on my own and I don’t know how daunting questions about their child’s complaints to our Patient Advice and I would have coped.” condition or treatment and has helped Liaison Service (PALS). to ease some of their anxiety. Impact Report 2008/09 22/23 Looking forward

Our objectives for the forthcoming year aim Research to build upon the successes of 2008/09, We aim to: always working to ensure that the hospital • continue funding our three-year multi- has what it needs to help not only the million pound programme in support patients of today but also the sick children of breakthrough paediatric research of the future. across the hospital’s clinical units and the UCL Institute of Child Health; Redevelopment • establish a world-class research Morgan Stanley Clinical Building programme to study and treat childhood We aim to: gut disorders; • continue construction work of the • appoint the UK’s first chair to lead Morgan Stanley Clinical Building, as research into children’s palliative part of the Mittal Children’s Medical care; and Centre, with completion of the structure to ground level by December 2009; • improve our effectiveness in funding research, by applying for • agree the equipment requirements for membership of the Association of the inpatient wards and theatres in the Medical Research Charities. Morgan Stanley Clinical Building and to begin fundraising for them; Our wish list of research essentials • agree the plan for operational We are committed to finding treatments commissioning of the building – for and cures for some of the most complex implementation from September 2010; and difficult illnesses for the benefit of • agree the interior design; children at the hospital and worldwide. • finalise the way-finding strategy; and Your support could help to fund: • agree the arts strategy, finalise the arts projects, and scope out and commission • a high-tech microscope facility to push the patient journey to theatre project. forward the frontiers of research into childhood disease: £616,000 Our wish list for new facilities • a professor to apply the latest scientific We need to replace cramped, out-dated breakthroughs to treat children born wards with new modern facilities to give with metabolic disorders: £452,000 a better, more flexible and comfortable • a consultant to research the genetic service for our patients and their families. basis of birth defects: £10,000 • the daily cost of a research fellow Your support could help to: working to prevent brain damage • fund a ward in the Morgan Stanley in children with blood sugar Clinical Building: £2 million problems: £120 • fund a four-bed high dependency Nephrology Unit: £500,000 • fund an isolation room in our Above: Artist’s impression of Neurosciences Unit: £100,000 a four-bed high dependency • pay for a parents’ room in the Morgan unit in the Morgan Stanley Stanley Clinical Building: £97,000 Clinical Building. • fund a patient and family reception Below: Funding for research area: £34,000 is fundamental if we are to help some of the sickest children of today as well as those of tomorrow. Impact Report 2008/09 24/25 Looking forward continued

Equipment Accommodation and welfare We aim to: We aim to: • fund £2 million of children’s specialist • fund £1 million of welfare activities for medical equipment. our patients, their families and our staff. • fund an Intensive Care Outreach Our wish list for new equipment Network at a cost of £380,000. It is essential that our exceptional doctors and nurses have leading-edge equipment Our wish list for family accommodation to provide children with world-class care. It is vital that we help children and families cope with what can inevitably We need: be a traumatic experience when visiting • units for recording electrical activity hospital. There can be no better care and in the brain: £250,000 reassurance than for a child to know that • a mobile ultrasound machine: £53,350 their parent is right beside them. • pressure-relieving mattresses: £3,258 Your support could help to: • patient-controlled analgesia • fund the annual upkeep of 16 rooms for pumps: £2,495 parents and families to stay overnight near their sick children: £33,000 • fund a bed for parents to stay beside their child in our new building: £300

A patient-controlled analgesia pump (top) and a mobile ultra-sound machine (bottom right) are two of the pieces of equipment that we need to fund next year, along with essential beds for parents in the new Morgan Stanley Clinical Building. Impact Report 2008/09 26/27 Chairman’s report

On behalf of all the special trustees of Additionally, we recognise the ongoing Great Ormond Street Hospital Children’s need to replace old equipment with new Charity, I’d like to thank all of you who to help clinicians provide better treatments have been so generous this year. As you for children. I know the hospital has done will have read in this report, your support all it can to only present the most essential has allowed us to make a significant pieces of equipment for funding by the difference to the hospital and to the charity and we hope that with the continued children and families it cares for. generosity of our supporters, we can support these requests. As we go forward our biggest challenge remains funding the vital redevelopment of Finally, we must continue to fund welfare the hospital. Many patients are still being programmes, particularly our patient and cared for in old, cramped and generally family accommodation. To have your child unsuitable facilities. Our vision is for one treated so far from home is difficult enough, of the leading children’s research hospitals without then being separated from them. in the world to have state-of-the-art facilities. With your continued help, we aim to make None of this will be easy, particularly in this happen. view of the difficult economic conditions. We anticipate NHS funding to be under We still have to raise £120 million to pressure and even more demands being allow us to complete the next phase of made on the generosity of individuals the redevelopment to complete the Mittal and organisations to help. We know that Children’s Medical Centre. Next year, we childhood disease does not recognise aim to raise sufficient funds to remain on the recession and it is up to us to do schedule to open the first building, the more than ever to achieve our fundraising Morgan Stanley Clinical Building, in 2012. targets. This won’t be possible without the continued generosity of thousands We remain committed to continuing to of individuals and companies. We are fund pioneering medical research. The extremely grateful to all of you who have special trustees of the charity regularly helped and make no apologies for asking receive presentations from researchers for your continued support. and clinicians updating us on the progress of their work. They are engaged in Thank you. world-leading programmes that will make a significant difference to the lives of children for many generations to come. We aim to raise over £5 million towards this vital research next year. Alan Hodson Chairman

Kira is a High School Musical fan and has brought her favourite HSM pyjamas and pillows for her stay on Sky Ward. But she is going home today after having had surgery on her back. Impact Report 2008/09 28/29 Our sincere thanks go to those individuals and organisations overleaf who have so generously supported the charity this year.

We would also like to thank the general public. Thousands of people give generously to us throughout the year and these donations are critical to the important work we do for sick children. On behalf of the inspiring patients and remarkable staff, thank you.

Impact Report 2008/09 30/31 Thank you

A H N U Lord Sugar and Lady Sugar Abbey and Santander Mrs R Hall Nationwide Building Society UK Greetings Ltd The Bernard Sunley Charitable Foundation Mrs Doreen Rosemary Agnew Mr and Mrs Peter Hambro Newby Trust Ltd Uniserve (Holdings) Ltd Tesco Ahmadiyya Muslim Association UK The David Hammond Charitable New Wimbledon Theatre US Airways The Philip Ullmann Trust The Almanac Gallery Foundation (part of the Ambassador Theatre Group) The Ulverscroft Foundation American Express Europe Ltd Harlow Greyhound Stadium The Norton-Freeman Charitable Trust V United Biscuits The Annandale Charitable Trust Angela Hartnett The Violet and Milo Cripps The Variety Club Children’s Charity Ask Restaurants Ltd The Heathside Charitable Trust O Charitable Trust The Garfield Weston Foundation Celia and Edward Atkin Heating Plumbing Supplies Ltd Oxford University Press V.P. Contractors Ltd The Charles Wolfson Charitable Trust Herbert Smith LLP The Wolfson Foundation B Paul Holland P W Bankwood Group The Houghton Dunn Charitable Trust The Pears Foundation Sergeant H S Weekes Gifts in kind Alan and Sara Bennie Mrs Christina Minnie Humphries Peirson-Hagger family and friends Weightmans LLP A&B Vintners The Bestway Foundation Adam Huntington Whiteley Mrs Irene Phillips Countess Jeanne-Marie Absolute Taste Andrew Birkin Sara and Paul Phillips Wenckheim Dickens Basement Jaxx Bishopsgate Preparatory School I Philips AVENT Nick Wheeler British Airways London Eye Bond Street Association Invesco Perpetual Paul Pindar Friends and family of Cosima Wiltshire Graham Brown, Motion House Digital Mrs Florence Brown Dr Rhian Isaac Pink Lady® apples Friends and family of Connor Wright Daily Mirror BSG Management Services Ltd Powell Publishing David Wyatt Daily Express Tiggy Butler J Premier Portfolio Daily Star Mr Mohammed Abdul Latif Jameel Guests of the Public Private Y Dream Toys C Mark C Johnson Finance Awards Young & Co.’s Brewery PLC Flair Leisure Products Plc Mark and Kate Caldicott Formula One Management Ltd Capita Group plc K R Graff The Card Awards Malik Karim and Chris Deville The RD Crusaders Foundation Hasbro in the Community Children Against Darkness Kingsmead Publications Ltd Friends and family of Johnny Reay ING Renault F1 team The Children’s Welfare and Research Mr Harry Arthur Kenneth Kirby Redeem Plc Landor Foundation The Kirby Laing Foundation The Ronson family Lettice The Churchill Theatre, Bromley (part Knightsbridge School Mr Jack Owen Rose Macfarlanes of the Ambassador Theatre Group) Atul Kochhar, Chef Patron, Benares Group Rowlands Pharmacy Magic 105.4 FM Club Donne Italiane The Al Fayed Charitable Foundation Dr Vijay Mallya Friends and family of Charlotte Coulton L S The Barclay Foundation Mediacom Mr and Mrs Peter Cruddas Ian and Lesley Lay Jez and Natasha San JM Barrie Morgan Stanley Legal & General Group plc The Schroder Foundation Mrs Heather Beckwith Motion House Digital D Legoland Windsor Park Limited Tom and Mimi Sheldon The Botnar family MSL Global Tom Davies Monty Levy The Shetland Pony Grand National British Heart Foundation N*E*R*D Mr Reginald Degg LexisNexis Butterworths Shoosmiths The Bunting family Plunge Films Diego and Veronique De Giorgi Hugo Llewelyn Shop Direct Group Ltd CHILDREN with LEUKAEMIA Duncan Raban Mrs Audrey Dell Smiths Medical Charles Dickens Red Bull M The Spring Carnival Committee 2008 The Walt Disney Company Shop Direct Group Ltd E Magic 105.4 FM Doug Stewart The Clore Duffield Foundation Stiletto Entertainment Mr J Elliott Mapeley Estates Limited Stoneleigh Deer Park Golf Club The Djanogly Foundation T2 Design Solutions Ltd Enesco Mazars Charitable Trust Captain’s Charity 2008 GlaxoSmithKline Tandem Films Evans Randall MBNA Europe Bank Limited SuccessTrack Business Training Ltd Lord and Lady Harris The Times Exposure Geraldine McCaughrean Sweets for Life Ltd Martin and Zoe Harris The Walt Disney Company Limited The McGrath family Syco Music/Sony Music Entertainment The Bernard Lewis Family Charitable Trust Universal Music F Mrs Audrey Meissner Jean-Michel and Isabel Sylvestre Scott and Suling Mead US Airways Fiorelli Metro (Associated Newspapers Limited) Aditya and Megha Mittal Vodafone McLaren Mercedes Formula One Management Ltd Metronet Rail SSL T Morgan Stanley Mr David Frost MIA Developments Ltd Tesco Stores Limited Mike Nelson MITIE Group PLC Harold Tillman Oak Foundation G Neville Mizen and Marian Stringer The Tompkins Foundation The Reuben Foundation The George Edward Bessell DFM Trust Movers & Shakers Property Towergate Charitable Foundation JN Somers Charitable Will Trust Globo Balear SA Networking Club Toys R Us Mrs Phyllis Somers Goldman Sachs The Muir Maxwell Trust Trailfinders Hugh and Catherine Stevenson Mr and Mrs Gottschalk Greggs East Impact Report 2008/09 32/33 Charity directors and appeal board members

Special trustees Christmas Carol Service Corporate Partnerships Chair from November 2008 Nick and Linda Johnston Dominic and Cathy Chair Committee Board Huw Jenkins Rose Marie and Erland Shorthouse Mr Alan Hodson Chair Chair Karlsson Standard Chartered PLC Jamie Cayzer-Colvin Paul Pindar Board members from Mr and Mrs Nagi R Hugh and Catherine Mr John Ballard Founder June 2008 Kawkabani Stevenson Mrs Susan Burns Michael Andrew Board members Carmel Allen Jason Chaffer The Lake House Lord Sugar and Ms Diana Dunston Victoria Asprey Simon Ainslie Fiona Clutterbuck Foundation Lady Sugar Mr Richard Glynn Carolyn Benson Marc Allera Michael Evans Jude Law Andrew and Katrina Taee Mr George Jenkins Julia Bonas Jason Chaffer Diana Saghi Kawkabani Eugene and Stephanie Chris and Carole Taylor Mr Hugo Llewelyn Jo Bowlby Russell Chambers Charly Malek Léouzon The Taylor Family Richard Burrows Nick Clarry Dominic Vail Keith and Muriel Lipman Foundation Associate trustees Amy Christianen Si-Ahmed Zoë Couper Gavin and Luise Richard and Susan Ms Gabrielle Abbott Shaun Gay Steve Din Members MacDonald Thornton – The Thornton Mr David Elms Robin Gibbs Duncan Edwards 4 Charity Foundation Jim and Jules Mann Foundation Mr Andrew Fane Fiona Gooley Richard Glynn (retired Mr and Mrs Terence Charles and Sophia Mason Stanley and Beatrice Mr Gary Steinberg Charles Hale December 2008) Miranda Davis Adams The Maaike McInnes Tollman Mr Michael Weston Matthew Hurlock Stuart Grant Karim Halwagi Nick and Kate Austin Charitable Trust Laura and Barry Townsley Karen Irving Jenny Halpern Prince Jason Herbert Mr Tony Ball Scott and Suling Mead The Toy Trust Directors Sandra Jordan Jamie Hopkins Mr and Mrs Peter Beckwith George Michael and Amanda and Dominic Vail Chief executive Diana Saghi Kawkabani Steve Ingham Alan and Sara Bennie Kenny Goss CT van Hoorn Dr Jane Collins Timothy Knatchbull Cyrus Kapadia Emily and Len Blavatnik Mitch and Alison Moore Charitable Trust Luchie Lawrence Stephanie Lvovich Tim and Sarah Bunting Hilton and Louise Vivid Imaginations Executive director Stephanie Léouzon Ruby McGregor-Smith John and Susan Burns Nathanson The Garfield Weston Mr Tim Johnson Gaelle Liaudet Simon Smith CB Richard Ellis Andrew and Marina Foundation Alison Loehnis Andrew Taee (retired Patron Jason and Belinda Chaffer Newington Michael and Rachel Director of corporate Martha Mehta November 2008) Gary Lineker OBE Sir Trevor and Lady Chinn Amicia and Richard Weston partnerships Nancy Mitchell Andria Vidler John Coldman Oldfield Mr Pierre and Mrs Antonia Dalmahoy Simon Moore Chair until June 2008 The Peter Cruddas Elizabeth and Daniel Peltz Dr Yvonne Winkler Tony Murkett Ken Costa Foundation Simon Picken QC and Mr and Mrs Roger Wyatt Director of major gifts Miriam Nevill The DG Charitable Trust Dr Sophie Picken fundraising Alice Page Board members until Dr Genevieve and Paul and Deidre Pindar Mr Neal Donnelly Luciana Redi June 2008 Mr Peter Davies Andrew Priston Joyce Reuben Susan Burns Ian and Penny Davis Alexandra Raphael Director of finance, Kate Rock Lady Chinn Sarah and Lloyd Dorfman and family IT and HR Jayne Smith Lord Coe Alex and Tara Easton The Reuben Foundation Mr Andrew Hibbert Bonnie Staley Michael Evans André Elshout and Stuart and Bianca Roden Lady Ailsa Stonor Charles Hale Mike Elms The Rothermere Director of marketing Dawn Vernon Alan Hodson Michael and Foundation and communications Claude Vogel Thomas Hughes-Hallett Francesca Evans The Countess of Rothes Ms Lesley Miles Bridgett Walters Alan Kilkenny OBE FDD International The Dr Mortimer and Fiona Williams Stephanie Léouzon Dorothee and Pierre-Henri Theresa Sackler We would like to thank Scott Mead Flamand Foundation all of the board and Anthony Salz Gary and Catherine Grant The Basil Samuel committee members who Andrew Taee Charles and Kaaren Hale Charitable Trust give their time and energy Dominic Vail Mrs R E Heale Vipin and Beatrice Sareen to help the charity in its Alan and Christiane Hodson Ian and Carol Sellars fundraising. David and Elizabeth James The Michael Shanly The Jenkin Family Charitable Trust

Impact Report 2008/09 34/35 Charity directors and appeal board members continued

Patrons Jamie Bamber Christopher Biggins Matthew Bourne OBE Kenneth Branagh Simon Callow CBE Founder Sophie Dahl Heather Beckwith Joanna David Rupert Everett Chair Susan Hampshire OBE Rosemary Squire OBE Sheila Hancock OBE Jason Isaacs Board members Damian Lewis Garth Bearman Robert Lindsay Nicola Bearman Helen McCrory Julietta Dexter Michael Pennington John Frieda Arlene Phillips OBE Joyce Hytner Jodie Prenger Lady Lloyd Webber Jonathan Pryce Tim Morgan Imelda Staunton OBE Norma Tuckey Juliet Stevenson CBE Oliver Vigors David Suchet OBE Adrian Wyatt Barbara Windsor MBE

Founder members Benefactors Ambassador Theatre David Dein Group Alexander and Cristina Christian and Nicola Fitzgibbons Bearman The Willie and Mabel Heather Beckwith Morris Charitable Trust Sir John Beckwith The Gosling Foundation Judy Craymer See Tickets Disney Theatrical Group ShareGift The Dorfman Foundation Victoria Palace Theatre Globo Balear SA Bill Kenwright Ltd Christopher Little Literary Agency Live Nation The Mackintosh Foundation Francesca and Lauren McDermid Evans Really Useful Group Theatres Mr and Mrs Tuckey Tabitha is used to hospitals. She was born early weighing only 3lb 10oz and before the age of two had already undergone two heart surgeries. She was referred to Great Ormond Street Hospital for an unidentified allergy which means that she finds it hard to put on weight. Although she is now seven years old, she only weighs two stone. But this doesn’t stop her indulging in her love of ballet and all things theatrical.

1260_GOSH_Impact_Inside_FAW.indd 36 10/12/2009 16:29 Great Ormond Street Hospital Children’s Charity 40 Bernard Street London WC1N 1LE 020 7239 3000 www.gosh.org

Produced by Great Ormond Street Hospital Marketing and Communications Designed by Wardour, London +44(0)20 7016 2555 Photography by Richard Learoyd and Adam Laycock Printed by Granite, utilising vegetable- based inks on Revive 50:50 silk. Thank you to the patients and families who were interviewed or gave permission for their pictures to be used for this report, as well as the many members of the UCL Institute of Child Health/ Great Ormond Street Hospital staff who helped during its production. This Impact Report is available to view at www.gosh.org. Should you require this document in another language or format please contact us at the details above. ® Great Ormond Street Hospital Children’s Charity. Registered charity no. 235825