Family TIES is a project of the Federation for Children with Special Needs, in collaboration with and funded by the MA Department of Public Health, Bureau of Family Health & Nutrition, Division for Children and Youth with Special Health Needs.

Federation for Children with Special Needs Department of Public Health The Schrafft Center 250 Washington Street, 5th Floor Boston, MA 02108 529 Main Street, Suite 1M3 Boston, MA 02129 Phone: 617-624-6060 or 800-882-1435 Phone: 617-236-7210 TTY: 617-624-5992 TTY: 800-331-0688 Fax: 617-624-5990 Fax: 617-241-0330 www.mass.gov/dph/specialhealthneeds www.fcsn.org

1 Family TIES of Massachusetts provides information and training for families of children with special health needs or disability and their professional partners. We are a primary source for information about Early Intervention (EI) and maintain a complete listing of EI programs in MA. Driven and staffed by parents of children with special needs, we offer a unique type of emotional and practical support to families with similar life experiences.

OUR STAFF The Parent-to-Parent Coordinator, Regional Coordinators and Project Director of Family TIES are all parents of children with special health needs. Staff is located at the Massachusetts Department of Public Health (DPH) Regional Offices. For more information call your Regional Coordinator or the TOLL-FREE LINE: 800-905-TIES (8437). Pat Cameron – Family TIES Director Luanne Pike – Metrowest Region Federation for Children with Special Needs DPH Canton Office The Schrafft Center Donovan Health Building, 3rd Floor 529 Main Street, Suite 1M3, Boston, MA 02129 5 Randolph Street Phone 617-236-7210, x380 Canton, MA 02021 TTY 978-851-3829 Phone 781-774-6736 Fax 617-241-0330 TTY 781-774-6619 [email protected] Fax:781-774-6618 [email protected] REGIONAL COORDINATORS Sara Asmerom – Greater Boston Region Linda Surprenant – Western Region Massachusetts Department of Public Health DPH Northampton Office 250 Washington Street, 5th Floor 23 Service Center Road Boston, MA 02108 Northampton, MA 01060 Phone 617-624-6089 Phone 413-586-7525, x3178 TTY 617-624-5992 TTY 800-769-9991 Fax 617-624-6062 Fax 413-784-1037 [email protected] [email protected] Donna Chaplin – Southeast Region Barbara Donati – Central Region DPH Canton Office DPH West Boylston Office Donovan Health Building, 3rd Floor 180 Beaman Street 5 Randolph Street West Boylston, MA 01583 Canton, MA 02021 Phone 508-792-7880, x2337 Phone: 781-774-6602 TTY 508-835-9796 TTY: 781-774-6619 Fax 508-792-7706 Fax: 781-774-6618 [email protected] [email protected] Debra Candeloro – Northeast Region DPH Tewksbury Office PARENT-TO-PARENT COORDINATOR Tewksbury Hospital, Saunders Building Gloria Klaesges 365 East Street DPH West Boylston Office Tewksbury, MA 01876 180 Beaman Street Phone 978-851-7261, x4018 West Boylston, MA 01583 TTY 978-851-3829 Phone: 508-792-7880 x2335 Fax 978-640-1027 TTY: 508-835-9796 [email protected] Fax: 508-792-7706 [email protected]

INTERPRETER SUPPORT Phone 800-905-8437 Interprete (en español) Người phiên dịch Việt nam (trong tiếng Việtnam) Apoyo interpretativo (em português)

2 Family TIES Services and Programs

INFORMATION AND REFERRAL • Call the toll-free, state-wide phone line 800-905-TIES or contact a Parent Regional Coordinator directly at regional DPH offices. • Refer to map and list of cities and towns on the following pages to determine your region. • Information on a wide variety of topics, including community resources and services, programs for children and youth with special health needs, public benefits and support groups. • Connect with a Parent Coordinator who has life experience parenting a child with a special health need.

EARLY INTERVENTION • Family TIES maintains the Central Directory of Early Intervention (EI) programs in the state of Massachusetts. • Contact information for EI referrals is available by phone and electronically on our website, www.massfamilyties.org. • Regional Coordinators can provide information about Early Intervention services and programs.

WORKSHOPS AND TRAININGS • Call us to schedule a presentation for your group, school or organization.

PARENT-TO-PARENT PROGRAM (P2P) – MEMBER AFFILIATE OF P2P USA • P2P Coordinator connects parents who have a child with a disability, chronic illness, or special health needs to a Support Parent with similar life experience who can provide emotional support and practical suggestions. • Support Parents are offered theListening and Learning training and receive continued support. • Parent-to-parent matching is offered by health concern, special need, or area of interest. • Call your Regional Coordinator for more information about Parent-to Parent and the Family Advisor Program.

SHARE YOUR VOICE, FAMILY ADVISOR PROGRAM • Join the program and share your experience with DPH. Information you provide may be used to improve or develop new programs. • On-line sign-up forms for the Family TIES Advisors Program are available in English, Spanish, and Portuguese.

Looking for assistance? Need emotional support? Call 800-905-TIES (8437)

3 4 5 Introduction to the 2018 Edition of the Directory of Resources for Families of Children and Youth with Special Needs

This is the 21st edition of the Directory of Resources.* Family TIES of Massachusetts answers more than 10,000 calls a year from parents and professionals seeking information and services for children and youth with special needs. As parents of children with complex medical needs and other disabilities, we know finding information, services and support can be difficult and emotionally challenging. We hope the information in this directory makes the task easier for families. The Directory is published annually. A printable version of the directory is available on our website, www.massfamilyties.org. The public is welcome to print and share single or multiple pages of the directory. We love finding new resources and ways to support families. We continue to receive kind comments from people who see this book as an important resource. Thank you and please continue to call us with your suggestions and new resources. Or, use the directory Resource Entry Form at the back of the book. Email the completed form to [email protected] or fax to 617-241-0330. Many people helped develop the directory. We thank you all including our funding agency, the Massachusetts Department of Public Health, for continuing to support the work of Family TIES on behalf of families of children and youth with special health needs. And, a special thank you to Wanda Morton and Erin Anguish at the Federation for Children with Special Needs for their hard work.

TIPS FOR USING THE DIRECTORY

The directory is a great starting point to look for information and resources! Resources are organized into two sections: Resources by Topic and A-Z Resources. In the A-Z Resources section of the book, each resource has a brief description of the available supports, contact information, the regions it serves, and a category code. All resources are assigned to one or more categories. The categories refer to the topic of the information or type of service provided. When you know the name of the agency, organization or program, look for it in the A-Z Resources section of the book. If you find the resource you were looking for, be sure to visit their website for specific or additional information. The information in this directory is current through January 2018. The Resources by Topic section is helpful when you know the kind of resource or program you need. The resources in the main categories are listed by the regions served: National – Statewide – Boston – Central – Metrowest – Northeast – Southeast – West The Community Support and Inclusion category and Specific Conditions and Disabilitiescategory are broad. In these main categories, the resources are sorted by specific topics and region. The following page has a list of the topics included in these categories. Although there are many resources listed in this directory, we could not possibly list all of the resources available. If you do not find what you need, please call us! Your Regional Coordinator may know about resources in your community.

Family TIES of Massachusetts 800-905-8437 (TIES)

* Inclusion of resources in this directory does not represent an endorsement of any program or resource by the Federation for Children with Special Needs or by the Massachusetts Department of Public Health.

6 CATEGORY KEY

ACC Accessibility SC Specific Conditions and Disabilities ADV Advocacy –– ADD/ADHD ARC Arcs –– AIDS & Infectious Blood Disorders AT Assistive Technology and Adaptive –– Amputation/Limb Differences Equipment –– Asthma & Allergies CC Childcare Resources and Referral Networks –– Autism Spectrum Disorders COMM Community Support Programs –– Autonomic Nervous System & Chronic Fatigue –– Adoption –– Blind & Visual Impairment –– Bereavement –– Brain Injury –– Child Development and Parenting –– Cancer –– Culturally Diverse Networks –– Cerebral Palsy –– Family Support –– Complex Medical Conditions –– General Disability –– Connective Tissue Disorders –– Parent-to-Parent –– Craniofacial Differences –– Special Education –– Deaf & Hard of Hearing –– Wish Granting and Financial Assistance –– Deaf-Blind CS&I Community Support & Inclusion –– Developmental & Intellectual Disabilities & ED Education Sensory Integration HC Health Care –– Diabetes HOUS Housing Assistance –– Down Syndrome ILC Independent Living Centers –– Eating Disorders I&R Information and Referral Services –– Epilepsy and Seizure Disorders LGL Legal Services –– Gastrointestinal Disorders REC Recreation/Arts –– Genetic Conditions RES Respite, Family Support & Skilled Nursing –– Growth Disorders SA Service Animals –– Heart Conditions –– Kidney Conditions –– Learning Disabilities –– Mental Health Disorders –– Neurological Conditions –– Neuromuscular Conditions –– Other Conditions and Disabilities –– Speech-Related Conditions –– Spinal Cord Injury & Spine Related Disorders TR Transition to Adulthood Programs TA Travel Assistance

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 7 Federation for Children with Special Needs Programs Offered

SPECIAL EDUCATION CENTER

Provides support, information, training and workshops related to special education to families of children with special needs. Projects include: • Parent Training and Information Center (PTIC) • LINK Center/Transition • Community Outreach and Empowerment Project • Parent Consultant Training Institute

FAMILY SUPPORT CENTER

Provides parent-to-parent support for families who have children with special health needs, chronic illness or disability. Projects include: • Family TIES of Massachusetts • Pathways for Parents

HEALTH ADVOCACY CENTER

Provides healthcare information and support to families of children with special needs, and programming that helps build capacity for family partnerships between managed care organizations and parents. Projects include: • Mass Family Voices (MFV) • Family-to-Family Health Information Center (F2F)

FAMILY AND COMMUNITY ENGAGEMENT CENTER

Offers education improvement services to districts and schools in Massachusetts, and trains community volunteers to act as educational decision-makers for students whose parents are not available. Projects include: • Family and Community Engagement Team • Recruitment Training and Support Center for Special Education Surrogate Parents (RTSC) • Title 1 Support and District/School Assistance Provider

PARENT-PROFESSIONAL LEADERSHIP CENTER

Focuses on activities that help build collaborative relationships among key education stakeholders. Projects include: • Massachusetts Association of Special Education Parent Advisory Councils (MASSPAC) • Advancing Parent-Professional Leadership in Education (APPLE)

The Schrafft Center 529 Main Street, Suite 1M3 Boston, MA 02129 Phone: 617-236-7210 , TTY 800-331-0688 Fax: 617-241-0330 Informing, Educating, Empowering Families www.fcsn.org 8 TABLE OF CONTENTS

RESOURCES BY TOPIC...... 11 Accessibility ...... 11 Advocacy...... 11 Arcs...... 13 Assistive Technology and Adaptive Equipment...... 14 Child Care Resources and Referral Network ...... 15 Community Support Programs...... 16 Community Support and Inclusion...... 19 Education...... 22 Health Care...... 23 Housing Assistance...... 24 Independent Living Centers...... 25 Information and Referral Services...... 25 Legal Services...... 27 Recreation/Arts...... 28 Respite, Family Support and Skilled Nursing Programs...... 31 Service Animals...... 32 Specific Conditions and Disabilities...... 32 Transition to Adulthood Programs...... 42 Travel Assistance...... 44 State Agencies...... 45 RESOURCES A-Z...... 47 EARLY INTERVENTION SERVICES – FREQUENTLY ASKED QUESTIONS...... 195 EM PORTUGUÊS...... 197 EN ESPAÑOL...... 200 STATE AGENCIES...... 202

9 10 Resources by Topic Accessibility

RESOURCES BY TOPIC

Accessibility Universal Access Program: Massachusetts Department of Conservation and Recreation. . . . .187 NATIONAL Wheelchair Recycler, Inc...... 190 American Council of the Blind...... 55 BOSTON Handi-Ramp Foundation...... 109 Access Recreation Boston...... 49 Home Access Program...... 113 Disabilities Commission...... 90 Home Free Home...... 113 iCanShine...... 115 CENTRAL National Association of the Deaf...... 142 Driving Advisement Program...... 93 National Braille Press...... 142 RCAP Solutions Home Modification Program. . . . .164 National Center on Accessibility...... 143 METROWEST New England ADA Center...... 152 Access Recreation Boston...... 49 New England Handicap Sports Association (NEHSA). 153 Drive Safe Program...... 93 OptiNeeds, Inc...... 157 Ralph Braun Foundation ...... 164 WESTERN Safe Ride News Publications...... 167 Driving Advisement Program...... 93 Seedlings Braille Books For Children...... 168 Special Kids Fund...... 172 Advocacy TSA Cares...... 183 NATIONAL United Spinal Association...... 185 Association for Behavioral Health and Wellness . . . .62 STATEWIDE Baby’s First Test...... 65 Adaptive Driving Program, Inc...... 50 Caregivers Action Network...... 73 Alliant Helps...... 54 Center for Parent Information and Resources. . . . . 75 Central Mass. Safety Council, Inc...... 76 Center for Patient Partnerships/ Handicapped Persons Plates and Placards ...... 109 University of Wisconsin - Madison...... 76 Institute for Community Inclusion...... 117 Council of Parent Attorneys and Advocates...... 87 Institute for Human Centered Design...... 117 Creaky Joints ...... 87 Massachusetts Rehabilitation Commission Direction Service (CADRE)...... 90 Home Modification Program ...... 133 Early Intervention Family Alliance...... 94 Massachusetts State Association of the Deaf. . . . .134 Ehlers-Danlos Syndrome Network C.A.R.E.S...... 95 McGraw Center for Adaptive Sports...... 135 Every Life Foundation for Rare Diseases...... 97 Rebuilding Together Boston...... 164 Family Voices ...... 100 REquipment...... 165 Girl Power 2 Cure ...... 105 SMILE MASS ...... 169 Global Genes...... 106 Space2Thrive...... 172 11 Advocacy Resources by Topic

Insure Kids Now...... 117 Massachusetts Advocates Standing Strong . . . . . 129 Jonah & The Whale Foundation...... 120 Massachusetts Aggression Reduction Center. . . . .129 Learning Disabilities Worldwide...... 124 Massachusetts Developmental Disabilities Council. .130 National Alliance for the Mentally Ill (NAMI). . . . . 140 Massachusetts Families Organizing for Change . . . 131 National Center on Health, Physical Activity and Massachusetts Family Voices...... 131 Disability (NCHPAD)...... 144 Massachusetts Immigrant and Refugee National Council on Disability...... 144 Advocacy Coalition ...... 132 National Disability Rights Network...... 145 Massachusetts Law Reform Institute...... 132 National Hospice and Palliative Care Organization. . 146 MASSPAC...... 134 Parent Advocacy Coalition for Educational Rights. . 157 Multi-Service Eating Disorders Association (MEDA). .139 Patient Advocate Foundation...... 159 National Alliance for the Mentally Ill (NAMI). . . . . 140 Rosalynn Carter Institute for Caregiving...... 166 Parent/Professional Advocacy League (PAL). . . . . 158 Stamp Out Stigma...... 173 Partners for Youth with Disabilities...... 159 Talk About Curing Autism (TACA)...... 176 Recruitment, Training & Support Center for Special The M.O.R.G.A.N. Project...... 180 Education Surrogate Parents (RTSC) ...... 165 Think Alive Foundation, Mass. Office...... 181 SPAN: Special Needs Advocacy Network...... 172 Transition Coalition...... 182 Special Education Surrogate Parent Program (SESPP)...... 172 United Spinal Association...... 185 Spectrum for Hope, Inc. The Hope Fund...... 173 Washington Watch...... 189 Sturbridge Lyme Awareness of Sturbridge...... 175 STATEWIDE Support Brokers ...... 175 Communities for People, Inc...... 83 BOSTON Disability Evaluation Services...... 91 Advocates for Special Kids (ASK)...... 51 Disability Law Center, Inc...... 91 Boston Commission for Persons with Disabilities. . . 68 Disability Policy Consortium...... 91 Boston Public Health Commission...... 69 EPIC, Empowering People for Inclusive Communities...... 96 Caribbean Foundation of Boston, Inc...... 73 Ethiopian Dream Center, Inc...... 97 Commonwealth Learning Center...... 85 Federation for Children with Special Needs. . . . . 100 Developmental Evaluation and Adjustment Facilities, Inc. (DEAF, Inc.)...... 90 Health Care For All...... 110 Haitian American Public Health Initiatives...... 109 Health Law Advocates...... 110 IMPACT: Ability...... 116 Healthy-Kids. Info...... 111 Louis D. Brown Peace Institute...... 126 Help A Little One Foundation Children’s Advisory Network...... 112 Mayor’s Health Line of Boston...... 135 Learning Ally Youth Examples of Self-Advocacy. . . 124 Urban Pride...... 187 Lives in the Balance...... 126 Youth Advocacy Foundation ...... 193 March of Dimes, Massachusetts Chapter...... 127 Massachusetts Advocates for Children...... 129 12 Resources by Topic Arcs

CENTRAL WESTERN Ascentria Care Alliance...... 60 Disability Law Center, Inc...... 91 Gardner Community Action Committee ...... 104 Franklin Community Action Corporation...... 102 Let Us Know, Inc. (LUK)...... 125 Goodwill Industries of the Pioneer Valley...... 106 National Alliance for the Mentally Ill (NAMI). . . . . 140 Martin Luther King, Jr. Community Center ...... 128 Parent/Professional Advocacy League (PAL). . . . . 158 Multicultural Community Services...... 139 Worcester Connections Family Resource Center National Alliance for the Mentally Ill (NAMI). . . . . 140 of Y.O.U., Inc. (WCFRC)...... 191 The Consortium...... 177 YOU, Inc...... 193 Arcs METROWEST Advocates for Special Kids (ASK)...... 51 NATIONAL Haitian American Public Health Initiatives...... 109 Arc of the United States...... 60 IMPACT: Ability...... 116 STATEWIDE Let Us Know, Inc. (LUK)...... 125 Arc of Massachusetts, Inc...... 59 NORTHEAST CENTRAL Adult Learning Center of North Shore Community College...... 51 Arc of Opportunity...... 59 Commonwealth Learning Center...... 85 Arc of Southern Worcester County, The Center of Hope...... 59 Developmental Evaluation and Adjustment Facilities, Inc. (DEAF, Inc.)...... 90 METROWEST Let Us Know, Inc. (LUK)...... 125 Arc of the South Shore...... 59 LifeLinks...... 125 Center...... 77 SOUTHEAST Greater Waltham Arc...... 108 Advocacy Resource Center of Greater New Bedford. .51 Minute Man Arc for Human Services...... 137 Advocates for Special Kids (ASK)...... 51 NuPath, Inc...... 159

Cape Organization for Rights of the NORTHEAST Disabled (CORD)...... 72 Arc of Greater Haverhill-Newburyport...... 59 Cape Verdean Association of Brockton, Inc...... 73 Arc of Greater Lawrence-CLASS, Inc...... 59 Developmental Evaluation and Adjustment Facilities, Inc. (DEAF, Inc.)...... 90 Communitas (formerly Arc of East Middlesex). . . . .59 Haitian American Public Health Initiatives...... 109 Northeast Arc...... 155 Immigrants Assistance Center...... 116 NuPath, Inc...... 159

MOLIFE: Murphy and Others, Living SOUTHEAST Independently for Future Endeavors...... 138 Advocacy Resource Center of Greater New Bedford. .51 Multiple Sclerosis Society, Southeastern Office. . . .139 Arc of ...... 59 Nemasket Group...... 152 Arc of Bristol County...... 59 13 Assistive Technology and Adaptive Equipment Resources by Topic

Arc of Greater Plymouth County...... 59 Through the Looking Glass...... 181 Arc of the South Shore...... 59 Wheel to Walk Foundation ...... 190 Brockton Area Arc...... 71 Yvie’s Closet ...... 194

WESTERN STATEWIDE Berkshire County Arc...... 67 Adaptive Design Services ...... 50 United Arc of Franklin and Hampshire Counties. . . 184 Alliant Helps...... 54 All Out Adventures...... 53 Assistive Technology and Assistive Technology Center at Adaptive Equipment Spaulding Rehab Hospital...... 61 Assistive Technology Demonstration NATIONAL and Loan Regional Center...... 61 AAC Institute ...... 48 Assistive Technology Resource Center ABLEDATA...... 49 at Worcester Polytechnic Institute ...... 61 Alliance for Technology Access...... 53 Carroll Center for the Blind...... 74 Camera Mouse...... 71 Center for Applied Special Technology (CAST). . . . .75 Cochlear Implant Awareness Foundation...... 82 Central Mass. Safety Council, Inc...... 76 Crotched Mountain ATech Services...... 88 Computing for College-Carroll Center for the Blind. . 85 Danielle’s Foundation...... 89 Cotting School...... 86 Home Modification Action Project...... 113 Dreams for Emily...... 93 I CAN CONNECT: The National Deaf-Blind Easter Seals Massachusetts...... 94 Equipment Distribution Program...... 115 Institute for Human Centered Design...... 117 If I Need Help...... 116 Learning Ally Youth Examples of Self-Advocacy. . . 124 Kids’ Project Adaptive Equipment Program...... 123 Mass EDP...... 128 Learning Ally...... 124 Massachusetts Assistive Technology Loan Program. .129 Learning Ally Youth Examples of Self-Advocacy. . . 124 Massachusetts Relay Service...... 133 Lexi Kazian Foundation - Helping from Heaven. . . .125 REquipment...... 165 National Cristina Foundation...... 144 Society for Human Advancement through National Institute on Disability and Rehabilitation Rehabilitation Engineering...... 170 Research...... 147 Spectrum for Hope, Inc. The Hope Fund...... 173 New England Assistive Technology Marketplace . . .152 The Decibels Foundation...... 178 OptiNeeds, Inc...... 157 Universal Access Program: Massachusetts Pine Tree Society...... 160 Department of Conservation and Recreation. . . . .187 Ralph Braun Foundation ...... 164 Wheelchair Recycler, Inc...... 190

Rehabilitation Engineering and Assistive Technology BOSTON of North America ...... 165 Boston Home...... 69 The M.O.R.G.A.N. Project...... 180 The Parker Lee Project...... 180

14 Resources by Topic Childcare Resources and Referral Networks

CENTRAL Franciscan Hospital for Children, Hyman Novack Medical Day Care Center...... 102 Clarke School for Hearing & Speech...... 82 SPARK Center...... 172 Lowell Association for the Blind...... 126 RCAP Solutions Home Modification Program. . . . .164 CENTRAL

METROWEST Child Care Resource Center...... 79 Michael Carter Lisnow Respite Center...... 137 ACCEPT Educational Services...... 49 Boston Home...... 69 METROWEST Clarke School for Hearing & Speech East...... 82 Communities United Inc...... 83 Lowell Association for the Blind...... 126 Community Care For Kids ...... 83

NORTHEAST Franciscan Hospital for Children, Hyman Novack Medical Day Care Center...... 102 Lowell Association for the Blind...... 126 Michael Carter Lisnow Respite Center...... 137 SOUTHEAST Milton Early Childhood Alliance ...... 137 Easter Seals Massachusetts...... 94 Self Help Inc. Coordinated Family & Community Pass It On, Inc...... 159 Engagement Program...... 168 Westwood Early Childhood Office Agency...... 189 WESTERN NORTHEAST Clarke School for Hearing & Speech...... 82 Collaborative Center for Assistive Technology Child Care Circuit ...... 78 and Training...... 82 Community Teamwork, Inc...... 85 Franciscan Hospital for Children, Hyman Novack Childcare Resources and Medical Day Care Center...... 102 Referral Networks SOUTHEAST NATIONAL Child Care Network of Cape Cod and the Islands. . . 78 National Association for the Education Home/Health & Child Care Services...... 113 of Young Children...... 141 Martha’s Vineyard Community Services...... 128 National Resource Center for Health and P.A.C.E. Child Care Works ...... 157 Safety in Child Care and Early Education...... 149 Self Help Inc. Coordinated Family & Community STATEWIDE Engagement Program...... 168 Child Care Resources and Referral Networks . . . . . 78 Yawkey House of Possibilities...... 192 Massachusetts Society for the Prevention WESTERN of Cruelty to Children (MSPCC)...... 133 Child Care Outlook...... 78 BOSTON Franklin Community Action Corporation...... 102 Child Care Choices of Boston ...... 78 New England Farm Workers Council...... 153 Communities United Inc...... 83

15 Community Support, Adoption Resources by Topic

Community Support Programs SOUTHEAST Kids Grieve Too ...... 123

Adoption WESTERN

STATEWIDE Rick’s Place, Inc...... 166 The Garden: A Center for Grieving Children’s Services of Roxbury (CSR)...... 81 Children and Teens...... 178 Massachusetts Adoption Resource Exchange . . . . 129

METROWEST Child Development and Parenting Justice Resource Institute (JRI)...... 121 NATIONAL Bereavement Ability Path...... 48 Center on the Social and Emotional Foundations NATIONAL for Early Learning...... 76 Aging with Dignity - Five Wishes...... 52 Early Intervention Family Alliance...... 94 Centering Corporation...... 76 Multiples of America...... 139 Compassionate Friends ...... 85 Maggie Welby Foundation ...... 179 Courageous Parents Network...... 87 National Association for the Education of Young Children...... 141 Foundation for Grieving Children...... 102 National Resource Center for Parents Share Pregnancy & Infant Loss...... 169 with Disabilities...... 150 STATEWIDE One Tough Job...... 157 Children’s Room ...... 80 PFLAG (Parents, Families and Friends of Lesbians and Gays)...... 160 Empty Arms ...... 96 Sesame Street for Military Families...... 168 Good Grief Program...... 106 Washington State Fathers Network...... 188 Hospice & Palliative Care Federation of MA . . . . . 114 Zero to Three: National Center for Infants, Jeff’s Place Metrowest...... 119 Toddlers & Families...... 194 The Massachusetts Center for Unexpected Infant & Child Death ...... 180 STATEWIDE Children’s Services of Roxbury (CSR)...... 81 BOSTON Families First Parenting Programs...... 98 Boston Youth Sanctuary (BYS)...... 69 Family Resource Centers of Massachusetts...... 99 CENTRAL Keeping Pace with Multiple Miracles...... 122 Community Birth/Loss Support Group...... 83 Massachusetts Society for the Prevention of Cruelty to Children (MSPCC)...... 133 NORTHEAST Multi-Service Eating Disorders Association (MEDA). .139 Bertolon Center for Grief and Healing at Care PFLAG (Parents, Families and Friends of Dimensions...... 67 Lesbians and Gays)...... 160 Safe Kids...... 167 16 Resources by Topic Community Support, Family Support

BOSTON CENTRAL Boston Youth Sanctuary (BYS)...... 69 African Community Education Program (ACE). . . . .52 Elizabeth Stone House...... 95 Ascentria Care Alliance...... 60 CENTRO...... 76 CENTRAL Southeast Asian Coalition of Central MA...... 171 Employment Options Inc...... 96 METROWEST METROWEST Haitian American Public Health Initiatives...... 109 Child Care Resources and Referral Networks . . . . . 78 The Five Project Inc...... 178 Employment Options Inc...... 96 Milton Early Childhood Alliance ...... 137 SOUTHEAST Westwood Early Childhood Office Agency...... 189 Cape Verdean Association of Brockton, Inc...... 73 Catholic Social Services of Fall River...... 75 WESTERN Haitian American Public Health Initiatives...... 109 Massachusetts Society for the Prevention of Cruelty to Children (MSPCC)...... 133 Immigrants Assistance Center...... 116 Culturally Diverse Networks WESTERN East African Cultural Center (EACC)...... 94 NATIONAL Multicultural Community Services...... 139 EthnoMed...... 97 SPIRAL: Selected Patient Information Resources Family Support in Asian Languages...... 173 NATIONAL STATEWIDE Enriching Escapes...... 96 African Community Economic Development Grandparents of Kids with Special Needs ...... 107 of New England...... 52 Modest Needs...... 138 Children’s Services of Roxbury (CSR)...... 81 Sibling Leadership Network...... 169 Ethiopian Dream Center, Inc...... 97 Sibling Support Project...... 169 Interpreters Associates, Inc...... 118 Massachusetts Immigrant and Refugee STATEWIDE Advocacy Coalition ...... 132 Children’s Services of Roxbury (CSR)...... 81 Somali Development Center ...... 170 Commission on the Status of Grandparents Raising Grandchildren...... 82 BOSTON Family Resource Centers of Massachusetts...... 99 Asian American Civic Association...... 60 Massachusetts Sibling Support Network...... 133 Caribbean Foundation of Boston, Inc...... 73 Massachusetts Executive Office for Elder Affairs. . . 211 Haitian American Public Health Initiatives...... 109 BOSTON ABCD Foster Grandparents/Families Friend Program . 48

17 Community Support, General Disability Resources by Topic

NORTHEAST Myotonic Dystrophy Foundation...... 140 Grandparents As Parents Resources National Urea Cycle Disorders Network of Greater Lowell...... 107 Foundation (NUCDF)...... 151 Parent-to-Parent USA ...... 158 General Disability PFLAG (Parents, Families and Friends of Lesbians and Gays)...... 160 NATIONAL STATEWIDE Beach Center on Disability ...... 66 Children’s Services of Roxbury (CSR)...... 81 Compassion Fatigue Awareness Project...... 85 Down Syndrome Autism Connection...... 92 Disability Resources on the Internet ...... 91 Family TIES of Massachusetts...... 2 Lotsa Helping Hands...... 126 Parents’ First Call...... 158 Muscular Dystrophy Association...... 139 Parents Helping Parents...... 158 STATEWIDE PFLAG (Parents, Families and Friends of Assistive Technology Resource Center Lesbians and Gays)...... 160 at Worcester Polytechnic Institute ...... 61 BOSTON Disabilities Network, Massachusetts Council of Churches...... 91 Heads Up Mentor Program...... 110

Muscular Dystrophy Association...... 139 METROWEST CENTRAL Heads Up Mentor Program...... 110 Kai’s Village...... 122 Special Education Kennedy-Donovan Center...... 123

METROWEST NATIONAL Kennedy-Donovan Center...... 123 Cardinal Cushing Centers...... 73 May Institute Center School for Autism & SOUTHEAST Developmental Disabilities...... 134 Kennedy-Donovan Center...... 123 May Center School for Brain Injury and Neurobehavioral Disorders...... 135 WESTERN Carson Center for Human Services...... 74 STATEWIDE Goodwill Industries of the Pioneer Valley...... 106 Cardinal Cushing Centers...... 73 Dutile Tremblay Community Fund...... 94 Parent-to-Parent May Institute Center School for Autism & Developmental Disabilities...... 134 NATIONAL May Center School for Brain Injury and Foundation for Children with Microcephaly. . . . . 101 Neurobehavioral Disorders...... 135 Hand to Hold...... 109 Recruitment, Training & Support Center for Special Immune Deficiency Foundation...... 116 Education Surrogate Parents (RTSC) ...... 165

18 Resources by Topic Community Support and Inclusion

BOSTON Community Support and Inclusion Commonwealth Learning Center...... 85 NATIONAL COMPASS...... 85 A Special Wish Foundation...... 48 CENTRAL Acoustic for Autism...... 50 Assabet Valley Collaborative...... 61 Autism Eats...... 63 METROWEST Brave Kids...... 70 Assabet Valley Collaborative...... 61 Bridget Brigade Foundation...... 71 Communities United Inc...... 83 Caregivers Action Network...... 73 Caring Bridge...... 73 NORTHWEST Center for Patient Partnerships/ Commonwealth Learning Center...... 85 University of Wisconsin ...... 76 SOUTHEAST Center on the Social and Emotional Foundations for Early Learning...... 76 Schwartz Center for Children...... 167 Children’s Cerebral Palsy Movement...... 79 Wish Granting and Eye To Eye ...... 98 Financial Assistance Family Reach Foundation...... 99 First Hand Foundation ...... 101 NATIONAL Free Gas USA ...... 103 Bridget Brigade Foundation...... 71 Grahams Foundation...... 107 Do It For The Love...... 92 Health Reach ...... 110 Icing Smiles...... 115 Hear To Learn...... 111 Kids Wish Network...... 123 Help a Little One Foundation...... 111 National Autism Association...... 142 International Association for People with Disabilities...... 117 STATEWIDE Joni and Friends ...... 121 CSL Foundation...... 88 Joyful Journey Mom ...... 121 Make-A-Wish Foundation of Massachusetts. . . . . 127 Lotsa Helping Hands...... 126 Marty Lyons Foundation ...... 128 Miracle Babies...... 137 Masonic Angel Fund...... 128 My Child Without Limits...... 139 Room To Dream Foundation...... 166 National Association for the Education Sunshine Foundation ...... 175 of Young Children...... 141 The Corner Kingdom Project ...... 178 National Military Family Association...... 148

SOUTHEAST Not in Our Town, Not in Our School (NIOT)...... 156 Project Lifesaver...... 163 A Wish Come True...... 48 Ralph Braun Foundation ...... 164 Masonic Angel Fund...... 128 Rosalynn Carter Institute for Caregiving...... 166

19 Community Support and Inclusion Resources by Topic

Safe Kids...... 167 Learning Ally Youth Examples of Self-Advocacy. . . 124 Stop Bullying Now Foundation Inc...... 174 Lucy’s Love Bus...... 127 Stuttering Foundation of America...... 175 MA Adult Literacy Hotline...... 127 Take a Breather Foundation (Cystic Fibrosis). . . . . 176 Mass Mentoring...... 128 Technical Assistance Center on Massachusetts Aggression Reduction Center. . . . .129 Social Emotional Intervention...... 177 Massachusetts Association for Community Action. . 129 The Conversation Project...... 177 Massachusetts Developmental Disabilities Council. .130 The National Children’s Cancer Society McGraw Center for Adaptive Sports...... 135 Emergency Fund...... 180 Message of Hope Foundation ...... 136 The National Children’s Cancer Society Transportation Assistance Fund ...... 180 Mothers’ Milk Bank Northeast ...... 138 Think Alive Foundation, Mass. Office...... 181 Multi-Service Eating Disorders Association (MEDA). .139 Understanding Our Differences...... 184 Parent/Professional Advocacy League (PAL). . . . . 158 United Healthcare Children’s Foundation ...... 185 Partners for Youth with Disabilities...... 159 Project Bread FoodSource Hotline...... 162 STATEWIDE Project Just Because, Inc...... 163 Angels Above...... 58 Space2Thrive...... 172 Assistive Technology Demonstration Spectrum for Hope, Inc. The Hope Fund...... 173 and Loan Regional Center...... 61 The Jamie Fund...... 179 Assistive Technology Center at Spaulding Rehab Hospital...... 61 WBZ Call for Action ...... 189 Bay Cove Human Services...... 66 Youth Villages...... 193 Believe in Tomorrow Children’s Foundation...... 66 BOSTON Best Buddies Massachusetts...... 67 Autism Sprinter Inc...... 65 Blueskies Wellness Hotline ...... 68 Center Club, Inc...... 75 Bug’s Bikes...... 71 Commonwealth Learning Center...... 85 Catholic Charities...... 74 Eye To Eye ...... 98 Children Making Strides...... 79 Home for Little Wanderers...... 113 Children’s Hospital: Center for Families...... 80 Jewish Family & Children’s Service...... 120 Communities for People, Inc...... 83 Louis D. Brown Peace Institute...... 126 Community Servings...... 85 Mayor’s Health Line of Boston...... 135 Exceptional Lives...... 98 Tech Goes Home...... 177 Family Resource Centers of Massachusetts...... 99 Toward Independent Living and Learning Genesis Club, Inc...... 104 (TILL): TILL Autism Support Center...... 182 Help A Little One Foundation Children’s Yesodot of Greater Boston...... 192 Advisory Network...... 112 CENTRAL Help A Little One Foundation Family Circle...... 112 Children’s Friend & Family Services...... 80 House of Possibilities...... 114 Children’s Friend, Inc...... 80 20 Resources by Topic Community Support and Inclusion

Community Gateway...... 84 North Shore Career Center/North Shore Eye To Eye ...... 98 Youth Career Centers...... 154 HMEA: Horace Mann Educational Associates. . . . .113 Opportunity Works...... 157 Scotty Luce Coalition for Family Preservation...... 168 The Family and Professional Resource Center . . . . 178 Worcester Connections Family Resource The Immigrant Learning Center ...... 179 Center of Y.O.U., Inc. (WCFRC)...... 191 Triangle, Inc...... 183 Weber Foundation of Helping Hands, Inc...... 189 METROWEST Autism Sprinter Inc...... 65 SOUTHEAST Bay State Community Services ...... 66 Autism Sprinter Inc...... 65 Center Club, Inc...... 75 Brockton Area Multi-Services, Inc...... 71 Committee for Community Living, Inc...... 83 Child and Family Services ...... 78 CORSE: Scituate Community of Resources Community Connections...... 84 for Special Education Foundation...... 86 Growthways...... 108 Eye To Eye ...... 98 Health Imperatives...... 110 HMEA: Horace Mann Educational Associates. . . . .113 HMEA: Horace Mann Educational Associates. . . . .113 Home for Little Wanderers...... 113 Martha’s Vineyard Community Services...... 128 Jewish Family & Children’s Service...... 120 Multiple Sclerosis Society, Southeastern Office. . . .139 Jewish Family Services - Metrowest...... 120 Parent Information Network...... 158 Scituate Community of Resources Self Help Inc. Coordinated Family & Community for Special Education...... 167 Engagement Program...... 168 Self Help Inc. Coordinated Family & Community Taunton White Tigers...... 176 Engagement Program...... 168 South Shore Support Services...... 171 WESTERN Toward Independent Living and Learning Berkshire Family and Individual Resources, (TILL): TILL Autism Support Center...... 182 Family Resource Program ...... 67 Triangle, Inc...... 183 Casa Latina, Inc...... 74 Work, Community, Independence...... 191 CHD - Center for Human Development ...... 77 Yesodot of Greater Boston...... 192 Consumer Health Library at Baystate Health . . . . . 86 Dunbar Community Center...... 93 NORTHEAST Eye To Eye ...... 98 Asperger Works...... 61 Franklin Community Action Corporation...... 102 Cerebral Palsy Association of Eastern MA...... 77 Goodwill Industries of the Pioneer Valley...... 106 Child and Family Services ...... 78 Greater Springfield Senior Services...... 108 Children’s Friend & Family Services...... 80 Martin Luther King, Jr. Community Center ...... 128 Commonwealth Learning Center...... 85 New England Farm Workers Council...... 153 Community Teamwork, Inc...... 85 Pathlight ...... 159 Friend and Children’s Service...... 103 Revitalize Community Development Corp...... 165 FSI Foundation for Autism...... 104 21 Education Resources by Topic

Scan360 Family Center...... 167 Carroll Center for the Blind...... 74 The Consortium...... 177 Carroll Tech...... 74 WillPower Foundation...... 191 Cotting School...... 86 Dutile Tremblay Community Fund...... 94 Education Exceptional Lives...... 98 Federation for Children with Special Needs. . . . . 100 NATIONAL Institute for Community Inclusion...... 117 Affordable Colleges Online...... 51 MA Adult Literacy Hotline...... 128 Cardinal Cushing Centers...... 73 Massachusetts Association of Approved Center for Parent Information and Resources. . . . . 75 Private Schools (MAAPS) ...... 130 Center on the Social and Emotional Foundations Massachusetts Home Learning Association. . . . . 131 for Early Learning...... 76 Massachusetts Law Reform Institute...... 132 Council for Exceptional Children...... 87 MASSPAC...... 134 Crystal Springs...... 88 May Institute Center School for Autism & Direction Service (CADRE)...... 90 Developmental Disabilities...... 134 Educational Resources Information Center...... 95 Multi-Service Eating Disorders Association (MEDA). .139 Great Schools...... 107 Pappas Rehabilitation Hospital for Children. . . . . 157 Hear To Learn...... 111 Perkins School for the Blind ...... 160 Institute for Educational Leadership...... 117 Pioneer Institute for Public Policy Research . . . . . 161 Latham Centers...... 124 Recruitment, Training & Support Center for Special National Association of Private Special Education Education Surrogate Parents (RTSC) ...... 165 Centers...... 141 Special Education Surrogate Parent National PTA...... 149 Program (SESPP)...... 172 Special Education Resources on the Internet. . . . .172 The Guild for Human Services...... 178 The Center for Health and Healthcare BOSTON in Schools at George Washington University. . . . .177 The Guild for Human Services...... 178 826 Boston ...... 47 United States Department of Education ...... 185 Autism Spectrum Programs at the Boston Conservatory...... 65 United States Department of Education: Information Resource Center...... 185 Boston Youth Sanctuary (BYS)...... 69 United States Department of Education: Office of Community Music Center of Boston...... 84 Special Education and Rehabilitation Services. . . . 185 COMPASS...... 85 Franciscan Hospital for Children, Hyman Novack STATEWIDE Medical Day Care Center...... 102 Berkshire Hills Music Academy...... 67 Urban Pride...... 187 Beverly School for the Deaf...... 67 CENTRAL Braintree St. Coletta Day School...... 70 Cardinal Cushing Centers...... 73 African Community Education Program (ACE). . . . .52 Clarke School for Hearing & Speech...... 82

22 Resources by Topic Health Care

METROWEST Get Palliative Care...... 105 ACCEPT Educational Services...... 49 Global Healthy Living Foundation...... 106 Autism Spectrum Programs at the Grahams Foundation...... 107 Boston Conservatory...... 65 Hand to Hold...... 109 Clarke School for Hearing & Speech East...... 82 Health Finder: National Health Information Center. .110 CORSE: Scituate Community of Resources Insure Kids Now...... 117 for Special Education Foundation...... 86 National Association of Free & Charitable Franciscan Hospital for Children, Hyman Novack Clinics (NAFC)...... 141 Medical Day Care Center...... 102 National Brain Tumor Foundation...... 142 Justice Resource Institute (JRI)...... 121 National Center for Medical Home Implementation. 143 NORTHEAST National Center for the Dissemination of Disability Research...... 143 Autism Spectrum Programs at the Boston Conservatory...... 65 National Center on Health, Physical Activity and Disability (NCHPAD)...... 144 Franciscan Hospital for Children, Hyman Novack Medical Day Care Center...... 102 National Hospice and Palliative Care Organization. . 146 National Institute for Children’s Healthcare WESTERN Quality ...... 146 Clarke School for Hearing & Speech...... 82 National Institutes of Health...... 147 National Library of Medicine ...... 148 Health Care National Organization for Rare Disorders...... 149 NATIONAL National Society of Genetic Counselors...... 150 American Board on Swallowing and Needy Meds...... 152 Swallowing Disorders...... 54 Partnership for Prescription Assistance...... 159 American Mental Health Counselors Association. . . 56 Patient Advocate Foundation...... 159 Baby’s First Test...... 65 Safe Kids...... 167 Brain Trauma Foundation (BTF)...... 70 Shriners Hospitals for Children...... 169 Caring Connections...... 74 SPIRAL: Selected Patient Information Resources Center for Patient Partnerships/ in Asian Languages...... 173 University of Wisconsin - Madison...... 76 Syndromes Without A Diagnosis (SWAN)...... 176 Creaky Joints ...... 87 The Center for Health and Healthcare Data Resource Center for Child and in Schools at George Washington University. . . . .177 Adolescent Health...... 89 The Conversation Project...... 177 Every Life Foundation for Rare Diseases...... 97 The Parker Lee Project...... 180 Families USA...... 98 United Healthcare Children’s Foundation ...... 185 Family Voices ...... 100 STATEWIDE Genetic Alliance ...... 105 Boston Sight...... 69 Genetic and Rare Diseases Information Center. . . .105 Community Case Management (CCM)...... 83 Genetics Home Reference...... 105 23 Housing Assistance Resources by Topic

Cerebral Palsy of Massachusetts...... 77 NORTHEAST Disability Evaluation Services...... 91 Community Teamwork, Inc...... 85 Emergency Medical Services ...... 95 Franciscan Hospital for Children, Hyman Novack Genesis Fund...... 105 Medical Day Care Center...... 102 Genetics Home Reference...... 105 North Shore Medical Center’s Family Resource Center...... 155 Health Care For All...... 110 Health Law Advocates...... 110 SOUTHEAST Healthy-Kids. Info...... 111 Health Imperatives...... 110 Hospice & Palliative Care Federation of MA . . . . . 114 South Shore Mental Health...... 171 Massachusetts Board of Registration in Medicine. . .130 WESTERN Massachusetts Dental Society...... 130 Consumer Health Library at Baystate Health . . . . . 86 Massachusetts Family Voices...... 131 Seven Hills Pediatric Center ...... 169 Massachusetts League of Community WestMass ElderCare...... 189 Health Centers...... 132 Massachusetts Medical Society...... 132 Housing Assistance Mothers’ Milk Bank Northeast ...... 138 National Organization for Rare Disorders...... 149 NATIONAL New England Newborn Screening Program, Healthcare Hospitality Network (HHN)...... 111 UMASS Medical School...... 154 Home Modification Action Project...... 113 New England Regional Genetics Group...... 154 Joe’s House...... 120 REquipment...... 165 National Association of Housing and Safe Kids...... 167 Redevelopment Officials...... 141 Tempus Unlimited, Inc...... 177 STATEWIDE BOSTON Believe in Tomorrow Children’s Foundation...... 66 Boston Public Health Commission...... 69 Children’s Services of Roxbury (CSR)...... 81 Franciscan Hospital for Children, Hyman Novack Citizen’s Housing and Planning Association...... 81 Medical Day Care Center...... 102 Hospitality Homes...... 114 CENTRAL Mass Access: The Accessible Housing Registry. . . . 128 Seven Hills Pediatric Center ...... 169 Massachusetts Association for Community Action. . 129 Massachusetts MENTOR...... 133 METROWEST Massachusetts Rehabilitation Commission Franciscan Hospital for Children, Hyman Novack Home Modification Program ...... 133 Medical Day Care Center...... 102 MassHousing...... 134 Seven Hills Pediatric Center ...... 169 Rebuilding Together Boston...... 164 South Shore Mental Health...... 171 Specialized Housing, Inc...... 172 USDA Rural Development in Southern New England...... 187

24 Resources by Topic Information and Referral Services

BOSTON METROWEST Boston Home...... 69 Advocates...... 51 Heading Home, Inc...... 109 Boston Center for Independent Living...... 68 Mayor’s Health Line of Boston...... 135 Metrowest Center for Independent Living ...... 136 Metro Boston Housing...... 136 NORTHEAST CENTRAL Independent Living Center of North Shore Center for Living and Working...... 75 & Cape Ann, Inc...... 117 Central Massachusetts Housing Alliance...... 76 Northeast Independent Living Program...... 155

RCAP Solutions Home Modification Program. . . . .164 SOUTHEAST METROWEST Cape Organization for Rights of the Disabled (CORD)...... 72 Boston Home...... 69 Independence Associates, Inc...... 116 Cambridge Housing Authority...... 71 Family Promise Metrowest ...... 99 MOLIFE: Murphy and Others, Living Independently for Future Endeavors...... 138 Heading Home, Inc...... 109 Southeast Center for Independent Living...... 171 Metro Boston Housing...... 136 WESTERN NORTHEAST AdLib, Inc...... 51 Heading Home, Inc...... 109 Community Action of the Franklin, LifeLinks...... 125 Hampshire and North Quabbin Regions ...... 83 Metro Boston Housing...... 136 Stavros Center for Independent Living...... 174 SOUTHEAST Information and Referral Services Cape Cod Village, Inc...... 72 Road to Responsibility, Inc...... 166 NATIONAL Southcoast Fair Housing ...... 171 Brave Kids...... 70 Independent Living Centers Cookies for Kids Cancer ...... 86 Council for Exceptional Children...... 87 BOSTON Creaky Joints ...... 87 Boston Center for Independent Living...... 68 Danielle’s Foundation...... 89 Multi-Cultural Independent Living Center of Data Resource Center for Child and Boston Inc...... 139 Adolescent Health...... 89 DB-LINK: National Information CENTRAL Clearinghouse on Children who are Deaf-Blind. . . . 89 Center for Living and Working...... 75 Dravet Syndrome Foundation, Inc...... 93 Educational Resources Information Center...... 95 Ehlers-Danlos Syndrome Network C.A.R.E.S...... 95 First Signs, Inc...... 101 25 Information and Referral Services Resources by Topic

Girl Power 2 Cure ...... 105 United Way...... 186 Graves Disease and Thyroid Foundation ...... 107 BOSTON Jonah & The Whale Foundation...... 120 Boston Youth Sanctuary (BYS)...... 69 Miracle Babies...... 137 Jewish Community Centers of Greater Boston. . . . 119 National Brain Tumor Foundation...... 142 Mayor’s Health Line of Boston...... 135 National Disability Mentoring Center for Youth with Disabilities...... 144 United Way First Call for Help...... 186 National Foundation for Celiac Awareness...... 145 United Way of and Merrimack Valley...... 186 National Health Council...... 146 National Hospice and Palliative Care Organization. . 146 CENTRAL National Institute of Arthritis and Community Gateway...... 84 Musculoskeletal and Skin Diseases ...... 147 First Call for Help...... 101 National Institute of Child Health Gardner Community Action Committee ...... 104 and Human Development...... 147 Let Us Know, Inc. (LUK)...... 125 National Stuttering Association...... 150 United Way of Central Massachusetts...... 186 P.A.N.D.A.S. Network ...... 157 United Way of North Central Massachusetts. . . . . 187 Pediatric Brain Tumor Foundation ...... 159 Worcester Connections Family Resource Center Stuttering Foundation of America...... 175 of Y.O.U., Inc. (WCFRC)...... 191 STATEWIDE YOU, Inc...... 193 Boston Public Library: Access Center...... 69 METROWEST Children’s Hospital: Center for Families...... 80 Family Support Center, Charles River Association. . .100 Children’s Services of Roxbury (CSR)...... 81 Family TIES of Massachusetts...... 2 Exceptional Lives...... 98 Jewish Community Centers of Greater Boston. . . . 119 Family Information Needs Collection ...... 99 Let Us Know, Inc. (LUK)...... 125 Family TIES of Massachusetts...... 28 South Middlesex Opportunity Council...... 171 Federation for Children with Special Needs. . . . . 100 United Way of Tri-County...... 187 Grandparents Raising Grandchildren ...... 107 Help A Little One Foundation Family Circle...... 112 NORTHEAST Massachusetts Family Voices...... 131 Fidelity House ...... 101 Massachusetts Immigrant and Refugee Let Us Know, Inc. (LUK)...... 125 Advocacy Coalition ...... 132 North Shore Medical Center’s Family MassOptions...... 134 Resource Center...... 155 Multi-Service Eating Disorders Association (MEDA). .139 North Shore United Way, Inc...... 155 New England INDEX...... 153 Northshore Education Consortium Family Center. . 156 Project Bread FoodSource Hotline...... 162 United Way of Massachusetts Bay and Recruitment, Training & Support Center for Special Merrimack Valley...... 186 Education Surrogate Parents (RTSC) ...... 165

26 Resources by Topic Legal Services

SOUTHEAST Disabled Persons Protection Commission ...... 91 Cape and Islands United Way...... 72 Health Law Advocates...... 110 Cape Organization for Rights of the Legal Advocacy Resource Center...... 124 Disabled (CORD)...... 72 Massachusetts Advocates for Children...... 129 Home/Health & Child Care Services...... 113 Massachusetts Immigrant and Refugee Multiple Sclerosis Society, Southeastern Office. . . .139 Advocacy Coalition ...... 132 Taunton Department of Human Services...... 176 Massachusetts Law Reform Institute...... 132 United Way of Greater Attleboro and Taunton. . . . 186 Massachusetts Mental Health Legal Advisors Committee ...... 132 United Way of Greater Fall River ...... 186 PLAN of Massachusetts and Rhode Island...... 161 United Way of Greater New Bedford...... 186 Political Asylum/Immigration Representation United Way of Greater Plymouth...... 186 Project (PAIR)...... 161 WESTERN Recruitment, Training & Support Center for Special CHD - Center for Human Development ...... 77 Education Surrogate Parents (RTSC) ...... 165 Consumer Health Library at Baystate Health . . . . . 86 Volunteer Lawyers Project of the Boston Bar Association...... 188 Goodwill Industries of the Pioneer Valley...... 106 Hampshire County Community BOSTON Resources & Advocacy ...... 109 Greater Boston Legal Services...... 107 Martin Luther King, Jr. Community Center ...... 128 Heading Home, Inc...... 109 Northern Berkshire United Way...... 155 Mayor’s Health Line of Boston...... 135 United Way of Berkshire County...... 186 Youth Advocacy Foundation ...... 193 United Way of Pioneer Valley...... 187 CENTRAL Legal Services Ascentria Care Alliance...... 60 Community Legal Aid...... 84 NATIONAL METROWEST Academy of Special Needs Planners ...... 49 Greater Boston Legal Services...... 107 Center for Law and Education...... 75 Heading Home, Inc...... 109 Council of Parent Attorneys and Advocates...... 87 Metrowest Legal Services ...... 136 Danielle’s Foundation...... 89 Judge David L. Bazelon Center for NORTHEAST Mental Health Law...... 121 Heading Home, Inc...... 109 National Disability Rights Network...... 145 Merrimack Valley Legal Services...... 135 STATEWIDE Neighborhood Legal Services, Inc...... 152

American Civil Liberties Union of Massachusetts. . . 55 SOUTHEAST Center for Law and Education...... 75 Legal Services for Cape, Plymouth & Islands. . . . . 124 Children’s Law Center of Massachusetts...... 80 New Center for Legal Advocacy...... 152 Disability Law Center, Inc...... 91 27 Recreation/Arts Resources by Topic

WESTERN New England Handicap Sports Association (NEHSA). 153 Community Legal Aid...... 84 Northeast Passage...... 155 Disability Law Center, Inc...... 91 Pine Tree Society...... 160 Professional Association of Therapeutic Recreation/Arts Horsemanship International (PATH Intl.)...... 162 Roger Williams Park Zoo...... 166 NATIONAL Sail to Prevail ...... 167 Ability PLUS...... 49 Songs of Love Foundation...... 170 AccesSportAmerica...... 49 SpecialSurfers...... 173 Adaptive Action Sports...... 50 Team IMPACT...... 176 Adaptive Sports Partners of the Touchstone Farm Horse Power Therapeutic North Country (ASPNC) ...... 50 Horsemanship...... 181 American Dance Therapy Association...... 55 Vermont Adaptive Ski & Sports...... 187 American Hippotherapy Association...... 56 Waterville Valley Adaptive Sports...... 189 American Music Therapy Association...... 56 White Mountain Adaptive Snow Sports Program. . .190 American School of Laughter Yoga ...... 57 STATEWIDE Autism Eats...... 63 Adaptive Sports New England...... 50 Bridging the Horizon...... 71 All Out Adventures...... 53 Camp Alsing...... 71 American Camp Association of New England . . . . .55 Cardinal Cushing Centers...... 73 Barton Center for Diabetes Education...... 66 Challenged Athletes Foundation ...... 77 Boy Scouts of America- The Spirit of Crotched Mountain Accessible Recreation and Adventure Council...... 70 Sports (CMARS)...... 88 Bug’s Bikes...... 71 Do It For The Love...... 92 Cardinal Cushing Centers...... 73 Double “H” Ranch...... 92 Cerebral Palsy of Massachusetts...... 77 Enriching Escapes...... 96 Doctor Franklin Perkins School...... 92 Every Life Foundation for Rare Diseases...... 97 Easter Seals Massachusetts...... 94 I RUN 4 (IR4) ...... 115 Girl Scouts...... 105 iCanShine...... 115 Institute for Community Inclusion...... 117 Jett Foundation...... 119 Liam Nation ...... 125 Maine Adaptive Sports and Recreation...... 127 Massachusetts Special Olympics Association. . . . .134 Miss Amazing Inc...... 138 McGraw Center for Adaptive Sports...... 135 Morgan’s Wonderland...... 138 Minutes for Memories...... 137 Mouth and Foot Painting Artists (MFPA) ...... 138 Miracle League of Massachusetts...... 137 National Center on Accessibility...... 143 Nashoba Valley Adaptive Program...... 140 National Lekotek Center...... 148 New England Disabled Sports & Recreation. . . . . 153 New England Disabled Sports...... 153 Pappas Rehabilitation Hospital for Children. . . . . 157

28 Resources by Topic Recreation/Arts

Prom Angels Foundation, Inc...... 163 United Cerebral Palsy of MetroBoston, Inc...... 184 Sidekick Soccer Academy Kick with Care...... 169 Whittier Street Health Center Arts SMILE MASS ...... 169 Therapy Department...... 190 Space2Thrive...... 172 Yesodot of Greater Boston...... 192 Spectrum for Hope, Inc. The Hope Fund...... 173 Youth Engagement and Employment...... 193 Stride Adaptive Sports...... 174 CENTRAL Super Soccer Stars Shine...... 175 African Community Education Program (ACE). . . . .52 Surfing with Smiles ...... 176 Apple Tree Arts ...... 58 Tempus Unlimited, Inc...... 177 Dare to Dream Educational Farm Programs ...... 89 The Paul Center...... 180 Diamond is the Sky ...... 90 Universal Access Program: Massachusetts Greener Pastures Therapeutic Riding ...... 108 Department of Conservation and Recreation. . . . .187 Horses ‘N Harmony...... 114 VSA Arts of Massachusetts...... 188 Let Us Know, Inc. (LUK)...... 125 Waypoint Adventure...... 189 Lovelane Special Horseback Riding Program. . . . .126 BOSTON Lowell Association for the Blind...... 126 Access Recreation Boston...... 49 Miracle League of the North Shore...... 137 Autism Spectrum Programs at the Rein in a Dream, A Program of Perkins Boston Conservatory...... 65 Community Services...... 165 BOSTNet: Build the Out-of-School Time Network. . . 68 R.E.I.N.B.O.W. Therapy...... 165 Boston Ballet ...... 68 SenseAbility Gym...... 168 Boston Youth Sanctuary (BYS)...... 69 Turn Back Time...... 183 Boston Youth Zone...... 69 Wachusett Mountain Adaptive Ski Program. . . . . 188 Community Music Center of Boston...... 84 Wild Hearts Therapeutic Equestrian Program. . . . .191 Community Rowing...... 85 Windrush Farm Therapeutic Equestrian, Inc...... 191 Courageous Sailing ...... 87 METROWEST Franciscan Hospital for Children, Adaptive Sports Program...... 102 Access Recreation Boston...... 49 Jason Roberts Challenger League...... 119 Art Relief ...... 60 Jewish Community Centers of Greater Boston. . . . 119 ArtWorks...... 60 Miracle League of the North Shore...... 137 Athletes Unlimited...... 63 Piers Park Sailing Center Agency...... 160 Autism Services Association...... 64 Project B.I.N.D. (Boston Inclusion Network Autism Spectrum Programs at the for Disabilities)...... 162 Boston Conservatory...... 65 R.E.I.N.B.O.W. Therapy...... 165 Boston Ballet ...... 68 The Bridge Center...... 177 Booth Hill Farm...... 68 Toward Independent Living and Learning Community Rowing...... 85 (TILL): TILL Autism Support Center...... 182

29 Recreation/Arts Resources by Topic

CORSE: Scituate Community of Resources Community Rowing...... 85 for Special Education Foundation...... 86 Franciscan Hospital for Children, Family Support Center, Charles River Association. . .100 Adaptive Sports Program...... 102 Franciscan Hospital for Children, Greener Pastures Therapeutic Riding ...... 108 Adaptive Sports Program...... 102 Kids in Disability Sports, Inc...... 123 Friends for Tomorrow ...... 103 Let Us Know, Inc. (LUK)...... 125 Horses ‘N Harmony...... 114 Lowell Association for the Blind...... 126 Horses SenseAbility at Wildstar Farm...... 114 Miracle League of the North Shore...... 137 Jason Roberts Challenger League...... 119 Nashoba Valley Special Olympics...... 140 Jewish Community Centers of Greater Boston. . . . 119 Piers Park Sailing Center Agency...... 160 Let Us Know, Inc. (LUK)...... 125 Recreational Adult Resource Association...... 164 Liberty Tree Farm Therapeutic Equitation, Inc.. . . . 125 Recreational Education Center...... 164 Lovelane Special Horseback Riding Program. . . . .126 R.E.I.N.B.O.W. Therapy...... 165 Lowell Association for the Blind...... 126 Roman Music Therapy Services...... 166 Miracle League of the North Shore...... 137 S.T.E.P. Special Teams for Exceptional People. . . . .174 Natick Recreation and Parks Department ...... 140 Strongwater Farm Therapeutic Center...... 175 NextStep Fund Inc...... 154 The Holland Project...... 179 Performing Arts Center of Metrowest...... 160 The Love of The Game...... 179 Piers Park Sailing Center Agency...... 160 SOUTHEAST Plugged In Teen Band Program...... 161 R.E.I.N.B.O.W. Therapy...... 165 A.I.R.E. Time Foundation...... 48 SenseAbility Gym...... 168 Booth Hill Farm...... 68 Special Needs Arts Program, Inc...... 172 Cape Cod Challenger Club ...... 72 The BiNA Farm...... 177 CAPEable Adventures, Inc...... 73 The Bridge Center...... 179 Greenlock Therapeutic Riding Center...... 108 Toward Independent Living and Learning Multiple Sclerosis Society, Southeastern Office. . . .139 (TILL): TILL Autism Support Center...... 182 MY TEAM TRIUMPH-Massachusetts...... 140 United Cerebral Palsy of MetroBoston, Inc...... 184 Rainbow’s End Therapeutic Riding Stable...... 163 Windrush Farm Therapeutic Equestrian, Inc...... 191 Sail to Prevail ...... 167 Yesodot of Greater Boston...... 192 Taunton White Tigers...... 176 The Bridge Center...... 177 NORTHEAST Wellspring Farm Learning Center, LLC...... 189 ArtWorks...... 60 Wild Hearts Therapeutic Equestrian Program. . . . .191 Autism Spectrum Programs at the Boston Conservatory...... 65 WESTERN Beyond Tops Soccer...... 67 CHD - Center for Human Development: Challenge Unlimited, Inc. at Ironstone Farm...... 77 Disability Resource Program...... 77 Chelmsford Youth Baseball Patriot Division ...... 77 Community Music School of Springfield...... 84

30 Resources by Topic Respite, Family Support and Skilled Nursing Programs

Dare to Dream Educational Farm Programs ...... 89 Rewarding Work Resources...... 165 Dunbar Community Center...... 93 Spectrum for Hope, Inc. The Hope Fund...... 173 Equus Therapeutic, Inc...... 97 Tempus Unlimited, Inc...... 177 Goodwill Industries of the Pioneer Valley...... 106 The Paul Center...... 180 Jericho ...... 119 BOSTON Kehillah Project Ride...... 122 Boston Pediatric and Family AIDS Project ...... 69 Martin Luther King, Jr. Community Center ...... 128 Delta Projects, Inc...... 89 Springfield Jewish Community Center Program for Children with Special Needs ...... 173 Don Guanella Center...... 92 Therapeutic Equestrian Center, Inc...... 181 Franciscan Hospital for Children, Hyman Novack Medical Day Care Center...... 102 Transitions In Motion...... 182 Home for Little Wanderers...... 113 Ultimate Sports Program...... 184 Mayor’s Health Line of Boston...... 135 United Cerebral Palsy of Berkshire County ...... 184 Toward Independent Living and Learning Whispering Horse Therapeutic Riding Center . . . . 190 (TILL): TILL Autism Support Center...... 182 Whole Children...... 190 Yesodot of Greater Boston...... 192 YMCA of Greater Springfield...... 193 CENTRAL Respite, Family Support and Fitchburg Respite House...... 101 Skilled Nursing Programs Kennedy-Donovan Center...... 123 Michael Carter Lisnow Respite Center...... 137 NATIONAL Seven Hills Family Support Center...... 168 Arch National Respite Network Seven Hills Pediatric Center ...... 169 and Resource Center...... 60 Southbridge Respite House ...... 171 Courageous Parents Network...... 87 DavidsProject...... 89 METROWEST National Respite Locator Service...... 150 Agape Inn...... 52 Autism Services Association...... 64 STATEWIDE Delta Projects, Inc...... 89 Believe in Tomorrow Children’s Foundation...... 66 Franciscan Hospital for Children, Hyman Novack Cerebral Palsy of Massachusetts...... 77 Medical Day Care Center...... 102 Communities for People, Inc...... 83 Friendship Home ...... 103 Community Case Management (CCM)...... 83 Home for Little Wanderers...... 113 Creative Living, Inc...... 87 Kennedy-Donovan Center...... 123 Hospice & Palliative Care Federation of MA . . . . . 114 Michael Carter Lisnow Respite Center...... 137 House of Possibilities...... 114 SSeven Hills Pediatric Center...... 169 Massachusetts Lifespan Respite Coalition...... 132 South Shore Support Services...... 171 Massachusetts MENTOR...... 133 Toward Independent Living and Learning Massachusetts Society for the Prevention (TILL): TILL Autism Support Center...... 182 of Cruelty to Children (MSPCC)...... 133 31 Service Animals Resources by Topic

Walnut Street Center...... 188 North Star Foundation...... 155 Work, Community, Independence...... 191 Puppies Behind Bars...... 163 Yesodot of Greater Boston...... 192 Therapy Dog International (TDI)...... 181

NORTHEAST STATEWIDE Cerebral Palsy Association of Eastern MA...... 77 Assistance Canine Training Services...... 61 Fidelity House ...... 101 Assistance Dog United Campaign ADUC...... 61 Franciscan Hospital for Children, Hyman Novack Canines for Disabled Kids...... 72 Medical Day Care Center...... 102 Service Dog Project...... 168 New England Pediatric Care and Day School. . . . .154

SOUTHEAST Specific Conditions and Disabilities Agape Inn...... 52 ADD/ADHD Growthways...... 108 Kennedy-Donovan Center...... 123 NATIONAL Yawkey House of Possibilities...... 192 Children and Adults with Attention Deficit Disorder (CHADD)...... 79 WESTERN Eye To Eye ...... 98 Berkshire Family and Individual Resources, Family Resource Program ...... 67 National Resource Center on ADHD...... 150 Dunbar Community Center...... 93 CENTRAL Goodwill Industries of the Pioneer Valley...... 106 Eye To Eye ...... 98 Greater Springfield Senior Services...... 108 METROWEST Pathlight ...... 159 Eye To Eye ...... 98 Seven Hills Pediatric Center ...... 169 WESTERN Service Animals Eye To Eye ...... 98 NATIONAL AIDS and Infectious Blood Disorders 4 Paws for Ability...... 47 Assistance Dogs International...... 61 NATIONAL Assistance Dog United Campaign ADUC...... 61 Parents of Kids with Infectious Diseases...... 158 Canine Companions for Independence...... 72 STATEWIDE Canine Partners for Life (CPL)...... 72 AIDS Action Committee...... 52 Dogs Building Opportunities for Nurturing and Child and Family Services ...... 78 Emotional Support (DOG-BONES) ...... 92 Domesti-Pups...... 92 BOSTON Guiding Eyes for the Blind...... 108 Boston Pediatric and Family AIDS Project ...... 69

Helping Hands: Monkey Helpers for the Disabled . . 112 CENTRAL NEADS: National Education for Assistance Dog. . . .151 AIDS Project Worcester...... 52 32 Resources by Topic Specific Conditions, Asthma and Allergies

WESTERN Autism Eats...... 63 HIV/AIDS Law Consortium of Western MA...... 112 Autism Spectrum Connection...... 64 Autism Spectrum Disorder Foundation...... 64 Amputation/Limb Differences Autistic Self Advocacy Network...... 65 NATIONAL Camp Alsing...... 71 Amputee Coalition of America...... 57 Cardinal Cushing Centers...... 73 National Amputation Foundation...... 141 Doug Flutie, Jr. Foundation for Autism...... 92 New England Amputee Association...... 152 Families of Adults Affected by Asperger’s Syndrome (FAAAS)...... 98 STATEWIDE First Signs, Inc...... 101 Helping Hands Foundation...... 112 Friend-2-Friend Social Learning Society...... 103 Asthma and Allergies Generation Rescue...... 104 Latham Centers...... 124 NATIONAL May Institute Center School for Autism & Allergy and Asthma Network/Mothers Developmental Disabilities...... 134 of Asthmatics...... 53 Music for Autism...... 139 American Academy of Allergy, National Autism Association...... 142 Asthma & Immunology...... 54 National Autism Center ...... 142 American Latex Allergy Association...... 56 Talk About Curing Autism (TACA)...... 176 Asthma and Allergy Foundation of America...... 62 Food Allergy Research & Education...... 101 STATEWIDE International FPIES Association...... 118 AANE: Asperger/Autism Network...... 48 Kids With Food Allergies...... 123 Advocates for Autism of Massachusetts (AFAM). . . .51 National Foundation for Celiac Awareness...... 145 Autism Insurance Resource Center...... 63 Autism Society of America, Massachusetts Chapter. . 64 STATEWIDE Autism Speaks, New England Chapter ...... 64 Asthma and Allergy Foundation of America...... 62 Cardinal Cushing Centers...... 73 Healthy-Kids. Info...... 111 hildren Making Strides...... 79 METROWEST Doug Flutie, Jr. Foundation for Autism...... 92 Autism Alliance of Metrowest ...... 63 Down Syndrome Autism Connection...... 92 Dreams for Emily...... 93 Autism Spectrum Disorders May Institute Center School for Autism & Developmental Disabilities...... 134 NATIONAL Acoustic for Autism...... 50 BOSTON American Autism Association...... 54 Autism Sprinter Inc...... 65 Autism Care & Treatment Today!...... 63 Garrett Pressley Autism Resource Center...... 104

33 Specific Conditions and Disabilities, Autonomic Nervous System & Chronic Fatigue Resources by Topic

Toward Independent Living and Learning Dysautonomia Youth Network of America, Inc.. . . . 94 (TILL): TILL Autism Support Center...... 182 GBS/CIDP Foundation International...... 104 Triumph Center...... 183 NE PANS/PANDAS Association...... 151

CENTRAL STATEWIDE Autism Resource Center of Chronic Fatigue Immune Dysfunction ...... 81 Central Massachusetts ...... 64 Massachusetts Chronic Fatigue Immune METROWEST Dysfunction Syndrome...... 130 Autism Alliance of Metrowest ...... 63 Autism Services Association...... 64 Blind and Visual Impairment Autism Sprinter Inc...... 65 NATIONAL Family Autism Center ...... 98 American Council of the Blind...... 55 Garrett Pressley Autism Resource Center...... 104 American Printing House for the Blind...... 56 The Five Project Inc...... 178 Association of Blind Citizens...... 62 Toward Independent Living and Learning (TILL): TILL Autism Support Center...... 182 Family Connect...... 98 Triumph Center...... 183 Learning Ally...... 124 National Braille Press...... 142 NORTHEAST Seedlings Braille Books For Children...... 168 Asperger Works...... 61 Wonderbaby.org...... 191 Autism Support Center at Northeast ARC...... 65 FSI Foundation for Autism...... 104 STATEWIDE Triumph Center...... 183 American Council of the Blind...... 55 Boston Sight...... 69 SOUTHEAST Carroll Center for the Blind...... 74 Autism Sprinter Inc...... 65 Carroll Tech...... 74 Community Autism Resources Inc...... 83 Computing for College-Carroll Center for the Blind. . 85 Nantucket Autism Resource Center...... 140 Learning Ally Youth Examples of Self-Advocacy. . . 124 Southcoast Autism Center...... 171 Massachusetts Association for Parents WESTERN of the Visually Impaired...... 129 Autism Connections ...... 63 Perkins School for the Blind ...... 160 Community Resources for People with Autism. . . . 84 Real World of Work-Carroll Center for the Blind. . . .164 CENTRAL Autonomic Nervous System and Chronic Fatigue Lowell Association for the Blind...... 126 METROWEST NATIONAL Lowell Association for the Blind...... 126 American Autoimmune Related NORTHEAST Diseases Association, Inc...... 54 Lowell Association for the Blind...... 126 34 Resources by Topic Specific Conditions and Disabilities, Complex Medical Conditions

Brain Injury STATEWIDE Andrew’s Helpful Hands Foundation, Inc...... 57 NATIONAL Lucy’s Love Bus...... 127 Brain Injury Association of America...... 70 One Mission...... 156 Brain Trauma Foundation (BTF)...... 70 The Devin Laubi Foundation ...... 178 Danielle’s Foundation...... 89 This Star Won’t Go Out...... 181 Holton’s Heroes...... 113 Hydrocephalus Association...... 115 Cerebral Palsy May Center School for Brain Injury and Neurobehavioral Disorders...... 135 NATIONAL Sarah Jane Brain Foundation, Inc...... 167 Danielle’s Foundation...... 89 ThinkFirst National Injury Prevention Foundation. . 181 United Cerebral Palsy ...... 184

STATEWIDE STATEWIDE May Center School for Brain Injury and Cerebral Palsy of Massachusetts...... 77 Neurobehavioral Disorders...... 135 Tempus Unlimited, Inc...... 177

SOUTHEAST BOSTON Brain Injury Association of America...... 70 United Cerebral Palsy of MetroBoston, Inc...... 184

WESTERN METROWEST Brain Injury Association of America...... 70 United Cerebral Palsy of MetroBoston, Inc...... 184 Cancer NORTHEAST Cerebral Palsy Association of Eastern MA...... 77 NATIONAL WESTERN American Cancer Society...... 55 United Cerebral Palsy of Berkshire County ...... 184 American Childhood Cancer Organization...... 55 Cookies for Kids Cancer ...... 86 Complex Medical Conditions Family Reach Foundation...... 99 NATIONAL Joe’s House...... 120 National Brain Tumor Foundation...... 142 Aaron’s Tracheostomy Page...... 48 National Cancer Institute...... 143 American Board on Swallowing and Swallowing Disorders...... 54 Pediatric Brain Tumor Foundation ...... 159 American Liver Foundation...... 56 Smiles for Sophie Forever ...... 170 American Stroke Association (ASA)...... 57 The National Children’s Cancer Society Emergency Fund...... 180 Brave Kids...... 70 The National Children’s Cancer Society Courageous Parents Network...... 87 Travel Assistance Fund...... 180 Feeding Tube Awareness Foundation...... 100 Grahams Foundation...... 107 35 Specific Conditions and Disabilities, Connective Tissue Disorders Resources by Topic

Graves Disease and Thyroid Foundation ...... 107 MHE Coalition ...... 136 Hydrocephalus Association...... 115 National Institute of Arthritis and Immune Deficiency Foundation...... 116 Musculoskeletal and Skin Diseases ...... 147 Lyme Disease Association, Inc...... 127 National Marfan Foundation ...... 148 Lyme Disease Network...... 127 STATEWIDE National Ataxia Foundation ...... 142 Arthritis Foundation ...... 60 National Hydrocephalus Foundation...... 146 P.A.N.D.A.S. Network ...... 157 Craniofacial Differences Pierre Robin Network ...... 160 NATIONAL Platelet Disorder Support Association ...... 161 Premature Baby-Premature Child...... 161 AmeriFace...... 57 Pull-Thru Network...... 163 Children’s Craniofacial Association...... 79 Twin to Twin Transfusion Syndrome Foundation. . . . . 183 Cleft Palate Foundation...... 82 UNOS Transplant Living...... 187 Ear Community, Inc...... 94 FACES: National Craniofacial Association...... 98 STATEWIDE Foundation for Faces of Children ...... 102 Cystic Fibrosis Foundation: Massachusetts Chapter. . 88 Message of Hope Foundation ...... 136 Deaf and Hard of Hearing Rare Disease United Foundation...... 164 NATIONAL Sturbridge Lyme Awareness of Sturbridge...... 175 TrachCare, Inc...... 182 Alexander Graham Bell Association for the Deaf and Hard of Hearing ...... 53 BOSTON American Society for Deaf Children...... 57 SPARK Center...... 172 Cochlear Implant Awareness Foundation...... 82 Ear Community, Inc...... 94 METROWEST Hands and Voices...... 109 NextStep Fund Inc...... 154 Hear Now Hearing Aid Program ...... 111 SOUTHEAST Hear To Learn...... 111 Lyme Awareness of Cape Cod ...... 127 Hearing Loss Association of America...... 111 National Association of the Deaf...... 142 Connective Tissue Disorders National Institute on Deafness and Other Communication Disorders...... 147 NATIONAL National Temporal Bone, Hearing and Balance Creaky Joints ...... 87 Pathology Resource Registry...... 151 EDS Today...... 95 Starkey Hearing Foundation...... 173 Ehlers-Danlos National Foundation...... 95 Ehlers-Danlos Syndrome Network C.A.R.E.S...... 95 MHE and Me...... 136

36 Resources by Topic Specific Conditions and Disabilities, Developmental and Intellectual Disabilities

STATEWIDE Deaf-Blind Beverly School for the Deaf...... 67 NATIONAL Hearing Loss Association of America...... 111 Massachusetts Registry of Interpreters for the Deaf. .133 American Association of the Deaf-Blind...... 54 Massachusetts State Association of the Deaf. . . . .134 DB-LINK: National Information Clearinghouse on Children who are Deaf-Blind. . . . 89 The Decibels Foundation...... 178 I CAN CONNECT: The National Deaf-Blind The Learning Center for Deaf Children...... 179 Equipment Distribution Program...... 115 Universal Newborn Hearing Screening Program. . . 210 National Center on Deaf-Blindness ...... 143 BOSTON National Family Association for Deaf-Blind...... 145

Clarke School for Hearing & Speech East...... 82 STATEWIDE Developmental Evaluation and Adjustment Massachusetts State Association of the Deaf. . . . .134 Facilities, Inc. (DEAF, Inc.)...... 90 New England Consortium of Deaf-Blind Hearing Loss Association of America...... 111 Technical Assistance and Training...... 153 Hearing Rehabilitation Foundation...... 111

CENTRAL Developmental and Intellectual Disabilities and Sensory Integration Clarke School for Hearing & Speech...... 82 Clarke School for Hearing & Speech East...... 82 NATIONAL Hearing Loss Association of America...... 111 American Association on Intellectual and METROWEST Developmental Disabilities (AAIDD) ...... 54 Angelman Syndrome Foundation ...... 58 Clarke School for Hearing & Speech East...... 82 Developmental Delay Resources...... 90 Hearing Rehabilitation Foundation...... 111 Fraxa Research Foundation...... 103 NORTHEAST Girl Power 2 Cure ...... 105 Clarke School for Hearing & Speech East...... 82 International Rett Syndrome Foundation ...... 118 Developmental Evaluation and Adjustment Latham Centers...... 124 Facilities, Inc. (DEAF, Inc.)...... 90 May Institute Center School for Autism & Hearing Rehabilitation Foundation...... 111 Developmental Disabilities...... 134

SOUTHEAST National Fragile X Foundation...... 146 Pathways Awareness Foundation...... 159 Clarke School for Hearing & Speech East...... 82 PRISMS: Parents & Researchers Interested in Developmental Evaluation and Adjustment Smith-Magenis Syndrome...... 162 Facilities, Inc. (DEAF, Inc.)...... 90 Sensory Processing Disorder Foundation ...... 168 Hearing Loss Association of America...... 111 STATEWIDE WESTERN Angelman Syndrome Foundation, Clarke School for Hearing & Speech...... 84

37 Specific Conditions and Disabilities, Diabetes Resources by Topic

Upper Northeast Region ...... 58 WESTERN May Institute Center School for Autism & Down Syndrome Resource Group of Developmental Disabilities...... 134 Western Massachusetts ...... 93 Spiral Foundation...... 173 Eating Disorders CENTRAL SenseAbility Gym...... 168 NATIONAL Academy for Eating Disorders (AED)...... 49 METROWEST Eating Disorder Hope...... 95 Advocates...... 51 National Association of Anorexia Nervosa and SenseAbility Gym...... 168 Associated Disorders...... 141 National Eating Disorders Association ...... 145 Diabetes STATEWIDE NATIONAL Multi-Service Eating Disorders Association (MEDA). .139 American Diabetes Association...... 55 Juvenile Diabetes Research Foundation...... 122 Epilepsy and Seizure Disorders National Institute of Diabetes and Digestive and Kidney Disease ...... 147 NATIONAL Dravet Syndrome Foundation, Inc...... 93 STATEWIDE J Kiffin Penry Patient Travel Assistance Fund. . . . . 119 Barton Center for Diabetes Education...... 66 Juvenile Diabetes Research Foundation: STATEWIDE New England Chapter...... 122 Epilepsy Foundation...... 96

Down Syndrome Gastrointestinal Disorders

NATIONAL NATIONAL International Mosaic Down Syndrome Association of Gastrointestinal Motility Disorders. . .62 Association...... 118 Crohn’s and Colitis Foundation of America...... 87 National Center for Prenatal and Postnatal Down Syndrome Resources...... 143 Cyclic Vomiting Syndrome Association...... 88 National Down Syndrome Congress...... 145 Feeding Tube Awareness Foundation...... 100 National Down Syndrome Society...... 145 Hirschsprungs and Motility Disorders Support Network ...... 112 STATEWIDE International Foundation for 3-21 Foundation, The Learning Program Boston. . . .47 Functional Gastrointestinal Disorders...... 118 21 FrienDS...... 47 Oley Foundation...... 156 Down Syndrome Autism Connection...... 92 Pediatric Adolescent Gastroesophageal Liam Nation ...... 125 Reflux Association (PAGER)...... 159 Massachusetts Down Syndrome Congress...... 131 Parents’ First Call...... 158 38 Resources by Topic Specific Conditions and Disabilities, Genetic Conditions

STATEWIDE Incontinencia Pigmenti International Foundation (IPIF)...... 116 Crohn’s and Colitis Foundation of America...... 87 Jewish Genetic Diseases Consortium ...... 120 Genetic Conditions Joubert Syndrome & Related Disorders Foundation (JSRDF)...... 121 NATIONAL Kyra’s Krusade ...... 123 22Q and You Center...... 47 Mowat-Wilson.org ...... 138 22q Deletion Syndrome Foundation...... 47 Myotonic Dystrophy Foundation...... 140 Arthrogryposis Multiplex Congenita Support, Inc.. . .60 National Foundation for Ectodermal Dysplasia. . . .145 Association for Glycogen Storage Disease...... 62 National Gaucher Foundation...... 146 Ataxia Telangiectasia Children’s Project...... 62 National MPS Society ...... 148 AXYS...... 65 National Organization for Rare Disorders...... 149 Barth Syndrome Foundation ...... 65 National Society of Genetic Counselors...... 150 Birth Defect Research for Children...... 67 National Tay-Sachs & Allied Diseases Association. . .151 Brave Kids...... 70 National Urea Cycle Disorders Chromosome 18 Registry & Research Society. . . . .82 Foundation (NUCDF)...... 151 Chromosome 22 Central ...... 82 NBIA Disorders Association...... 151 Chromosome 9p-Network...... 82 Noah’s Never Ending Rainbow...... 154 Chromosome Disorder Outreach...... 82 Office of Rare Diseases Research...... 156 Cornelia de Lange Syndrome Foundation, Inc. . . . . 86 Osteogenesis Imperfecta Foundation...... 157 Costello Syndrome Family Network...... 86 Prader-Willi Syndrome Association USA...... 161 DavidsProject...... 89 Primary Immune Deficiency Foundation...... 162 Dup15q Alliance...... 93 Progeria Research Foundation...... 162 Ear Community, Inc...... 94 RareChromo.org...... 164 S.O.F.T. USA...... 170 EDS Today...... 95 Sotos Syndrome Support Association...... 170 Ehlers-Danlos National Foundation...... 95 Syndromes Without A Diagnosis (SWAN)...... 176 Ehlers-Danlos Syndrome Network C.A.R.E.S...... 95 Trisomy 18 Foundation...... 183 FG Syndrome Family Alliance, Inc...... 101 Tuberous Sclerosis Alliance...... 183 Fraxa Research Foundation...... 103 United Leukodystrophy Foundation, Inc...... 185 Genetic Alliance ...... 105 VHL Family Alliance...... 188 Genetic and Rare Diseases Information Center. . . .105 Williams Syndrome Association...... 191 Genetics Home Reference...... 105 Xeroderma Pigmentosum Society, Inc...... 192 Hands to Angels...... 109 Hermansky-Pudlak Syndrome Network...... 112 STATEWIDE Hunter’s Hope Foundation...... 115 Genetics Home Reference...... 105 Immune Deficiency Foundation...... 116 Greater Boston Sickle Cell Disease Association, Inc.. .108

39 Specific Conditions and Disabilities, Growth Disorders Resources by Topic

Huntington’s Disease Society of America, Learning Disabilities Massachusetts Chapter...... 115 National Organization for Rare Disorders...... 149 NATIONAL New England Connection for PKU and All Kinds of Minds...... 53 Allied Disorders...... 153 Eye To Eye ...... 98 New England Regional Genetics Group...... 154 International Dyslexia Association...... 117 Prader-Willi Syndrome Association of Learning Disabilities Association of America . . . . .124 New England...... 161 Learning Disabilities Worldwide...... 124 Rett Syndrome Association of Massachusetts. . . . 165 National Center for Learning Disabilities...... 143 Scleroderma Foundation Agency...... 167 STATEWIDE Growth Disorders Children’s Dyslexia Centers...... 79

NATIONAL Decoding Dyslexia...... 89 Dyslexia Association, Massachusetts Human Growth Foundation...... 115 Chapter (MABIDA) ...... 94 Little People of America...... 126 Learning Ally Youth Examples of Self-Advocacy. . . 124 The MAGIC Foundation ...... 179 Turner Syndrome Society of the United States . . . .183 BOSTON Eye To Eye ...... 98 Heart Conditions CENTRAL NATIONAL Eye To Eye ...... 98

Adult Congenital Heart Association...... 51 METROWEST Kawasaki Disease Foundation...... 122 Eye To Eye ...... 98 Little Hearts, Inc...... 125 WESTERN Pulmonary Hypertension Association...... 163 Eye To Eye ...... 98 STATEWIDE It’s My Heart, New England...... 119 Mental Health Disorders

Kidney Conditions NATIONAL Alliance of Hope for Suicide Survivors...... 53 NATIONAL American Mental Health Counselors Association. . . 56 National Institute of Diabetes and Digestive and Kidney Disease ...... 147 Anxiety and Depression Association of America. . . .58 National Kidney Foundation...... 147 Association for Behavioral Health and Wellness . . . .62 Balanced Mind Foundation...... 65 STATEWIDE Cardinal Cushing Centers...... 73 National Kidney Foundation of Massachusetts/ Depression and Bipolar Support Alliance ...... 90 Rhode Island/New Hampshire and Vermont, Inc.. . .148 Families for Depression Awareness ...... 98

40 Resources by Topic Specific Conditions and Disabilities, Neurological Conditions

Freedom From Fear...... 103 METROWEST International OCD Foundation...... 118 Bay State Community Services ...... 66 Judge David L. Bazelon Center for Center Club, Inc...... 75 Mental Health Law...... 121 Italian Home for Children...... 119 Juvenile Bipolar Research Foundation ...... 122 Justice Resource Institute (JRI)...... 121 Latham Centers...... 124 South Shore Mental Health...... 171 Mental Health America...... 135 Mental Help Net...... 135 NORTHEAST National Alliance for the Mentally Ill (NAMI). . . . . 140 Children’s Friend & Family Services...... 80 National Federation of Families SOUTHEAST for Children’s Mental Health (NFFCMH) ...... 145 Parent Information Network...... 158 National Substance Abuse and Mental Health Information Center...... 151 South Shore Mental Health...... 171 Stamp Out Stigma...... 173 WESTERN Suicide Prevention Resource Center...... 175 National Alliance for the Mentally Ill (NAMI). . . . . 140 Technical Assistance Center on The Consortium...... 177 Social Emotional Intervention...... 177

STATEWIDE Neurological Conditions Boston Center for Psychotherapy...... 68 NATIONAL Cardinal Cushing Centers...... 73 Acoustic Neuroma Association ...... 50 Genesis Club, Inc...... 104 Aicardi Syndrome Foundation...... 52 Massachusetts Clubhouse Coalition ...... 130 Batten Disease Support and Research Association. . .66 Massachusetts Mental Health Legal Dandy Walker Alliance ...... 89 Advisors Committee ...... 132 Foundation for Children with Microcephaly. . . . . 101 Massachusetts School of Professional Psychology Interface Referral Services...... 133 GBS/CIDP Foundation International...... 104 National Alliance for the Mentally Ill (NAMI). . . . . 140 Help a Little One Foundation...... 111 Parent/Professional Advocacy League (PAL). . . . . 158 May Center School for Brain Injury and Neurobehavioral Disorders...... 135 Youth Villages...... 193 National Ataxia Foundation ...... 142 BOSTON National Organization for Disorders Center Club, Inc...... 75 of the Corpus Callosum ...... 149 Italian Home for Children...... 119 PVNH Support & Awareness...... 163 North Suffolk Mental Health Association...... 155 STATEWIDE CENTRAL May Center School for Brain Injury and Children’s Friend & Family Services...... 80 Neurobehavioral Disorders...... 135 National Alliance for the Mentally Ill (NAMI). . . . . 140 Parent/Professional Advocacy League (PAL). . . . . 158 41 Specific Conditions and Disabilities, Neuromuscular Conditions Resources by Topic

Neuromuscular Conditions Speech Related Conditions

NATIONAL NATIONAL Cure SMA...... 88 American Speech-Language-Hearing Association. . .57 HollyRod Foundation ...... 113 Apraxia Kids Support...... 58 Jett Foundation...... 119 Childhood Apraxia of Speech Foundation Myotonic Dystrophy Foundation...... 140 of North America ...... 79 National Multiple Sclerosis Society, National Institute on Deafness and Central New England Chapter Office ...... 149 Other Communication Disorders...... 147 Parent Project Muscular Dystrophy...... 158 National Stuttering Association...... 150 Stuttering Foundation of America...... 175 STATEWIDE Joshua Frase Foundation...... 121 Spinal Cord Injury and Spine Related Disorders Other Conditions and Disabilities NATIONAL NATIONAL American Syringomyelia and Chiari Children’s Tumor Foundation...... 81 Alliance Project (ASAP)...... 57 Foundation for Ichthyosis and Related Skin Types. . 102 National Scoliosis Foundation...... 150 Lyme Disease Association, Inc...... 127 National Spinal Cord Injury Association...... 150 National Institute of Arthritis and Tarlov Cyst Disease Foundation...... 176 Musculoskeletal and Skin Diseases ...... 147 United Spinal Association...... 185 National Organization on Fetal Alcohol...... 149 STATEWIDE National Multiple Sclerosis Society, Central New England Chapter Office ...... 149 Journey Forward...... 121 MitoAction ...... 138 Spina Bifida Association of Greater New England. . .173 Sturge-Weber Foundation...... 175 Tourette Syndrome Association, Inc...... 182 United Mitochondrial Disease Foundation...... 185 Transition to Adulthood Programs NATIONAL STATEWIDE Affordable Colleges Online...... 51 Arthritis Foundation ...... 60 Cardinal Cushing Centers...... 73 Ben’s Dream-Sanfilippo Research Foundation. . . . .66 Eye To Eye ...... 98 New England Hemophilia Association...... 153 Job Accommodation Network...... 120 Tourette Syndrome Association, Inc...... 182 Mouth and Foot Painting Artists (MFPA) ...... 138 SOUTHEAST National Center on Secondary Education Multiple Sclerosis Society, Southeastern Office. . . .139 and Transition ...... 144

42 Resources by Topic Transition to Adulthood

National Collaborative on Workforce and Disability. .144 IMPACT: Ability...... 116 National Disability Mentoring Center Jewish Family & Children’s Service...... 120 for Youth with Disabilities...... 144 Price Center...... 161 National Resource Center for Parents Toward Independent Living and Learning with Disabilities...... 150 (TILL): TILL Autism Support Center...... 182 The Guild for Human Services...... 178 Yesodot of Greater Boston...... 192 Through the Looking Glass...... 181 CENTRAL Transition Coalition...... 182 Career Point ...... 73 STATEWIDE Driving Advisement Program...... 93 3LPlace...... 47 Employment Options Inc...... 96 Adaptive Driving Program, Inc...... 50 Eye To Eye ...... 98 Berkshire Hills Music Academy...... 67 GAAMHA Inc...... 104 Braintree St. Coletta Day School...... 70 Kennedy-Donovan Center...... 123 Cardinal Cushing Centers...... 73 METROWEST Carroll Center for the Blind...... 74 Computing for College-Carroll Center for the Blind. . 85 Advocates...... 51 Creative Living, Inc...... 87 Boston Home...... 69 Disability Evaluation Services...... 91 Committee for Community Living, Inc...... 83 Easter Seals Massachusetts...... 94 Employment Options Inc...... 96 EPIC, Empowering People for Inclusive Eye To Eye ...... 98 Communities...... 96 Friendship Home ...... 103 Institute for Community Inclusion...... 117 HOPEHouse...... 114 Massachusetts Advocates Standing Strong . . . . . 129 IMPACT: Ability...... 116 Massachusetts Clubhouse Coalition ...... 130 Jewish Family & Children’s Service...... 120 Massachusetts Guardianship Association...... 131 Justice Resource Institute (JRI)...... 121 Massachusetts MENTOR...... 133 Kennedy-Donovan Center...... 123 MassOptions...... 134 Price Center...... 161 Partners for Youth with Disabilities...... 159 South Shore Mental Health...... 171 Real World of Work-Carroll Center for the Blind. . . .164 South Shore Support Services...... 171 The Guild for Human Services...... 178 Toward Independent Living and Learning The Paul Center...... 180 (TILL): TILL Autism Support Center...... 182 Work Without Limits ...... 192 Triangle, Inc...... 183 Walnut Street Center...... 188 BOSTON YAVP Peer Mentoring Project...... 192 Boston Home...... 69 Yesodot of Greater Boston...... 192 Caribbean Foundation of Boston, Inc...... 73 Eye To Eye ...... 98

43 Travel Assistance Resources by Topic

NORTHEAST Autism Escapes...... 63 Achieving Monumental Strides Independently. . . . 49 Children’s Flight of Hope...... 80 Adult Learning Center of North Shore Driver Rehabilitation Institute...... 93 Community College...... 51 J Kiffin Penry Patient Travel Assistance Fund. . . . . 119 Asperger Works...... 61 Lifeline Pilots ...... 125 LifeLinks...... 125 Mercy Medical Angels...... 135 North Shore Career Center/North Shore Miracle Babies...... 137 Youth Career Centers...... 154 Miracle Flights for Kids...... 137 Opportunity Works...... 157 National Patient Travel Center...... 149 The Holland Project...... 179 The National Children’s Cancer Society Triangle, Inc...... 183 Travel Assistance Fund...... 180

SOUTHEAST STATEWIDE Cape Cod Village, Inc...... 72 Central Mass. Safety Council, Inc...... 76 CapeAbilities ...... 73 Good News Garage: A Program of Community Connections...... 84 Lutheran Social Services...... 106 ESPRIT Partnership for Independence...... 97 Statewide Access Pass...... 174

Kennedy-Donovan Center...... 123 BOSTON MOLIFE: Murphy and Others, Living The RIDE-MBTA...... 181 Independently for Future Endeavors...... 138 Road to Responsibility, Inc...... 166 CENTRAL South Shore Mental Health...... 171 Worcester Regional Transit Authority Paratransit Service...... 191 WESTERN Career Point ...... 73 METROWEST Driving Advisement Program...... 93 The RIDE-MBTA...... 181 Eye To Eye ...... 98 NORTHEAST Goodwill Industries of the Pioneer Valley...... 106 Lowell Regional Transit Authority...... 126

Travel Assistance WESTERN Statewide Access Pass...... 174 NATIONAL Air Care Alliance ...... 52 Air Charity Network...... 53 Alex’s Lemonade Stand Foundation for Childhood Cancer ...... 53 Angel Flight New England...... 58 Angel Wheels to Healing...... 58 Aubrey’s Warrior Foundation...... 63 44 Resources by Topic State Agencies

State Agencies Massachusetts Department of Transitional Assistance (DTA)...... 211 Massachusetts Commission for the Blind (MCB). . . 202 Massachusetts Developmental Massachusetts Commission for the Disabilities Council (MDDC) ...... 211 Deaf and Hard of Hearing (MCDHH) ...... 202 Massachusetts Disabled Persons Massachusetts Commission Protection Commission (DPPC)...... 211 against Discrimination...... 203 Massachusetts Executive Office for Massachusetts Department of Elder Affairs...... 211 Children and Families (DCF)...... 203 Massachusetts Executive Office of Massachusetts Department of Health and Human Services (EOHHS)...... 211 Developmental Services (DDS)...... 203 Massachusetts Families Organizing for Autism Support Centers...... 204 Change (MFOFC)...... 212 Complex Health Needs...... 204 Massachusetts Office on Disability (MOD)...... 212 Massachusetts Department of Massachusetts Rehabilitation Commission (MRC). . 212 Early Education and Care (EEC)...... 205 MassHealth (Medicaid) ...... 212 Massachusetts Department of Elementary and Children’s Medical Security Plan...... 213 Secondary Education (DESE) ...... 205 MassHealth CommonHealth...... 213 Massachusetts Department of Mental Health (DMH)...... 205 MassHealth Kaileigh Mulligan Program. . . . . 213 Massachusetts Department of Public Health (DPH)...... 206 Bureau of Family Health & Nutrition...... 206 Care Coordination Services Catastrophic Illness in Children Relief Fund . . . 206 Community Support Line ...... 207 Early Intervention Services (EI)...... 207 EI Parent Leadership Project (EIPLP). . . . . 207 EI Parnership Program (EIPP)...... 207 Regional Consultation Program (RCP). . . . 208 Growth and Nutrition Program...... 208 Massachusetts Community AIDS Resource Enhancement (MASSCARE)...... 209 Massachusetts Review Team (MRT)...... 209 Massachusetts Technology Assistance Resource Team (MASSTART)...... 209 Pediatric Palliative Care Network...... 209 SSI & Public Benefits Information...... 210 Universal Newborn Hearing Screening Program. 210 Women, Infants and Children Nutrition Program (WIC)...... 210 45 46 Resources 826 Boston

Resources A-Z

21 FrienDS 3LPlace Brings together individuals with Down syndrome for play dates, Transition curriculum for young adults with Autism and family activities, seminars, and informational meetings. developmental disabilities. 3-year residential placement. Phone: 508-989-2706 50 Whitman Street Email: [email protected] Somerville, MA 02144-1975 Website: www.21friends.org Phone: 617-764-3280 Serving: Statewide Email: [email protected] Categories: SC Website: www.3Lplace.org Serving: Statewide 22Q and You Center Categories: TR Provides diagnosis, treatment, and services to children and families. Leads the way in researching 22q11.2 deletion. 4 Paws for Ability Clinical Genetics Center Provides trained service dogs. Training is recipient-specific and 3401 Civic Center Boulevard includes Autism, mobility, signal/hearing ear, seizure assistance, Philadelphia, PA 19104 and emotional support. Phone: 215-590-2920 253 Dayton Avenue Email: [email protected] Xenia, OH 45385 Website: www.chop.edu/centers-programs Phone: 937-374-0385 Serving: National Email: [email protected] Categories: SC Website: www.4pawsforability.org Additional Languages: Spanish Serving: National Categories: SA 22q Deletion Syndrome Foundation Raises public awareness of this genetic condition. Website 826 Boston includes information about the diagnosis, copies of recent 826 Boston is a nonprofit organization dedicated to supporting newsletters, and bi-annual conference. students ages 6 to 18 with their creative and expository writing P.O. Box 532 skills, and to helping teachers inspire their students to write. Matawan, NJ 07747 Each of our free programs seeks to strengthen each student’s Phone: 877-739-1849 power to express ideas. Email: [email protected] 3035 Washington Street Website: www.22q.org Roxbury, MA 02119 Categories: SC Phone: 617-442-5400 Email: [email protected] 3-21 Foundation, The Learning Program Boston Website: www.826boston.org Provides educational, social and support programs to Serving: Boston individuals with Down syndrome, their families, educators, Categories: ED health care professionals, and the community-at-large. 57 Brown Street Weston, MA 02493 Email: [email protected] Website: www.321foundation.org Serving: Statewide Categories: SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 47 A Special Wish Foundation Resources

A Special Wish Foundation AANE: Asperger/Autism Network A Special Wish Foundation, Inc., is a non-profit charitable Helps people with Asperger syndrome and similar autism organiazation dedicated to granting the wishes of children spectrum profiles build meaningful, connected lives by providing under the age of 21 who have been diagnosed with a life- information, education, community, support, and advocacy. threatening disorders. 51 Water Street, Suite 206 1250 memory Lane N, Suite B Watertown, MA 02472 Columbus, OH 43209 Phone: 617-393-3824 Phone: 800-486-9474 Fax: 617-393-3827 Website: www.aspecialwishfoundation.org Email: [email protected] Serving: National Website: www.aane.org Categories: COMM Serving: Statewide Categories: SC A Wish Come True Additional Languages: Spanish Grants wishes to children, ages 3 to18, who have a life- threatening illness and live in Rhode Island and areas of Aaron’s Tracheostomy Page Southeastern Massachusetts. Online support to assure quality home care for children with 1010 Warwick Avenue tracheostomies and facilitate parent-to-parent support. Warwick, RI 02888 Website: www.tracheostomy.com Phone: 401-781-9199 Email: [email protected] Fax: 401-781-6227 Serving: National Email: [email protected] Categories: SC Website: www.awish.org Additional Languages: Spanish Serving: Southeast Categories: COMM ABCD Foster Grandparents/

A.I.R.E. Time Foundation Families Friend Program Offers affordable, inclusive recreation programs and events for A free program of companionship, support, and fun for children kids of all abilities and personalities. ages 12 and under, including children with special needs. Services provided by trained volunteers ages 55 and older. P.O. Box 156 Somerset, MA 02726 Elder Services Department Phone: 774-322-1753 19 Temple Place, 2nd Floor Email: [email protected] Boston, MA 02111 Website: www.sites.google.com/site/airtimefoundation Phone: 617-348-6784 Serving: Southeast TTY: 617-423-9215 Categories: REC Email: [email protected] Website: www.bostonabcd.org AAC Institute Serving: Boston Dedicated to effective communication for people who rely on Categories: COMM augmentative and alternative communication (AAC). The Parent’s Corner is a resource for parents. Ability Path 1100 Washington Avenue, Suite 317 Online Support for parents of children with special needs. Offers Camegia, PA 15106 blogs and informational resources on child development. Phone: 412-489-5527 Provides information on how to establish services for your child Fax: 412-489-5726 and parenting resources. Email: [email protected] Website: www.abilitypath.org Website: www.aacinstitute.org Serving: National Serving: National Categories: COMM Categories: AT Additional Languages: Spanish

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 48 Resources Achieving Monumental Strides Independently

Ability PLUS ACCEPT Educational Services Dedicated to helping disabled people of all abilities to realize Offers special education programs, transportation, home- their dreams of inclusion, through adaptive skiing and other based services, behavioral consults, professional development, recreation opportunities; affiliated with 10 New England sites. technology services, Medicaid, and E-rate reimbursement. P.O. Box 1447 220 N. Main Street, Suite 201 Glen, NH 03838 Natick, MA 01760 Phone: 607-733-8013 Phone: 508-653-6776 Website: www.abilityplus.org Fax: 508-653-0878 Serving: National Website: www.accept.org Categories: REC Serving: Metrowest Categories: AT, ED ABLEDATA Information, publications, and guides on assistive technology Access Recreation Boston options and programs. Funded by the National Institute on Access Recreation Boston is a coalition of organizations and Disability, Independent Living, and Rehabilitation Research. individuals dedicated to increasing and enhancing recreation 103 W. Broad Street, #400 opportunities for people with disabilities in the greater Boston Falls Church, VA 22046 area. We accomplish this through building community Phone: 703-356-8035, 800-227-0216 awareness, sharing professional expertise, and promoting Email: [email protected] collaboration. Website: www.abledata.com 200 Portland Street Serving: National Boston, MA 02114 Categories: AT Phone: 617-695-1225 X255 Additional Languages: Spanish Email: [email protected] Website: www.accessrec.org Academy for Eating Disorders (AED) Serving: Greater Boston, Metrowest A global professional association committed to leadership in Categories: ACC, REC eating disorders research, education, treatment, and prevention. Information, resources, a newsletter and an annual conference. AccesSportAmerica 11130 Sunrise Valley Drive, Suite 350 Dedicated to the discovery and achievement of higher function Reston, VA 21091 and fitness for children and adults of all disabilities through high Phone: 703-234-4079 challenge sports. Fax: 703-435-4390 119 High Street Email: [email protected] Acton, MA 01720 Website: www.aedweb.org Phone: 978-264-0985 Serving: National Fax: 978-246-6433 Categories: SC Email: [email protected] Website: www.accessportamerica.org Academy of Special Needs Planners Serving: National National organization of attorneys dedicated to planning for Categories: REC people with special needs; provides information and support through the website and written materials. Achieving Monumental Strides Independently 150 Chestnut Street, 4th Floor, Box #15 Provides individuals with resources to build independence, Providence, RI 02903 confidence and self-motivation through continuing education. Phone: 866-296-5509 Also offers mentoring programs and one-on-one coaching. Fax: 215-643-1707 P.O. Box 1184 Email: [email protected] Lowell, MA 01853 Website: www.specialneedsanswers.com Phone: 978-495-0944 Serving: National Email: [email protected] Categories: LGL Website: www.amsifoundation.org Serving: Northeast Categories: TR

49 Accoustic for Autism Resources

Acoustic for Autism Adaptive Driving Program, Inc. Raises funds through CD sales to support community activities Free phone consultation, comprehensive evaluation, advocacy, for individuals who have Autism. Well-known artists offer songs and driver training program for persons with special needs. to convey themes of love, compassion, hope and healing. 250 Milton Street, #LL002 3818 Frampton Dedham, MA 02026 Toledo, OH 43614 Phone: 508-626-6568 Phone: 419-514-9817 Email: [email protected] Fax: 567-315-8015 Website: www.adaptivedrivingprogram.com Email: [email protected] Serving: Statewide Website: www.acousticforautism.org Categories: ACC, TR Serving: National Categories: CS&I, SC Adaptive Sports New England Dedicated to increasing participation in sports among youth Acoustic Neuroma Association and young adults who have visual or mobility impairments; Information and support for patients diagnosed with acoustic increasing participation to many adaptive-specific and neuroma and other benign tumors of the cranial nerves. mainstream sports programs, raising awareness, and building 600 Peachtree Parkway, Suite 108 capacity to bring more opportunities closer to home. Cumming, GA 30041-6899 89 South Street, Suite 603 Phone: 770-205-8211, 877-200-8211 Boston, MA 02111 Fax: 770-205-0239 Phone: 617-982-2763 Email: [email protected] Email: [email protected] Website: www.anausa.org Website: www.adaptivesportsne.org Serving: National Serving: Statewide Categories: SC Categories: REC

Adaptive Action Sports Adaptive Sports Partners of the North Country Programs for individuals with physical disabilities to participate (ASPNC) in ‘action sports.’ Activities include adaptive skiing. Works with persons with both physical and developmental P.O. Box 16558 disabilities to provide rewarding sport or recreation experiences. South Lake Tahoe, CA 96151 461 Main Street, Suite 7, P.O. Box 304 Email: [email protected] Franconia, NH 03580 Website: www.adacs.org Phone: 603-823-5232 Serving: National Fax: 603-823-2102 Categories: REC Email: [email protected] Website: www.adaptivesportspartners.org Adaptive Design Services Serving: National Adapts equipment to individual needs when adaptive Categories: REC equipment is not commercially available. Comonwealth Community Services 195 Industrial Drive Northampton, MA 01060 Phone: 413-586-7424 TTY: 413-585-8922 Fax: 413-585-0881 Serving: Statewide Categories: AT

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 50 Resources Affordable Colleges Online

AdLib, Inc. Advocates Controlled by persons with disabilities, ILCs provide advocacy, Vocational, day supports and residential options, including adult information and referrals, peer counseling, independent living foster care, for teens and adults with intellectual, developmental skills, housing assistance and Personal Care Attendants. or mental health concerns. Also provides Deaf services. 215 North Street 1881 Worcester Road Pittsfield, MA 01201 Framingham, MA 01701 Phone: 413-442-7047, 800-232-7047 Phone: 508-628-6300 TTY: 413-442-7158 VP: 774-999-0606 Fax: 413-443-4338 Email: [email protected] Email: [email protected] Website: www.advocates.org Website: www.adlibcil.org Serving: Metrowest Serving: Western Categories: ILC, SC, TR Categories: ILC Additional Languages: Cantonese, Mandarin, Spanish, Vietnamese Adult Congenital Heart Association Improving the quality of life for adults with congenital heart Advocates for Autism of Massachusetts (AFAM) defects (CHD), including transition-aged youth. Provides Advocacy group established to raise awareness of the needs of supports to individuals, families, and the medical community. individuals with Autism Spectrum Disorder and their families, 3300 Henry Ave, Suite 112 to enhance their lives in our communities. Philadelphia, PA 19129 217 South Street Phone: 215-849-1260 Waltham, MA 02453 Toll-free: 888-921-ACHA Phone: 781-891-6270 Fax: 215-849-1261 Email: [email protected] Email: [email protected] Website: www.AFAMaction.org Website: www.achaheart.org Serving: Statewide Serving: National Categories: SC Categories: SC

Adult Learning Center of Advocates for Special Kids (ASK) North Shore Community College Provides special education advocacy services to families of This network’s activities raise awareness of adult education children with special needs for meetings, mediation, BSEA issues. Programs include free basic literacy and high school Hearings, and letter writing trainings. equivalency test prep courses in small, individualized classes. 165 Washington Street 1 Ferncroft Road Norwell, MA 02061 Danvers, MA 01923 Email: [email protected] Phone: 978-236-1227 Website: www.advocatesforspecialkids.org TTY: 978-236-1231 Serving: Boston, Metrowest, Southeast Email: [email protected] Categories: ADV Website: www.northshore.edu/adult_learning Serving: Northeast Affordable Colleges Online Categories: ADV, TR A resource guide including scholarships listed by disability, deadlines, and debt-forgiveness options. Shares specific AT and Advocacy Resource Center of accommodations. Greater New Bedford 140 Washington Street, Suite LL-30 Special education advocacy, tutoring, and disability awareness Reno, NV 89503 training for schools. Also provides in-home visits, benefits Email: [email protected] advocacy, parent support groups, and summer camperships. Website: www.affordablecollegesonline.org Serving: National Arc of Bristol County Categories: ED, TR 412B County Street New Bedford, MA 02740 Phone: 508-996-8551 Fax: 508-996-8553 Serving: Southeast Categories: ADV, ARCAdditional Languages: Portuguese, Spanish 51 African Community Economic Development of New England Resources

African Community Economic Development Aicardi Syndrome Foundation of New England Provides information, financial support, and connections for After-school and summer enrichment programs for children of families of children who have Aicardi Syndrome. African families in Boston; community supports for teens. Attn: Cindy & Al Meo 18 John Eliot Square P.O. Box 3202 Roxbury, MA 02119 St. Charles, IL 60174 Phone: 617-445-1200 Phone: 630-377-0252 Fax: 617-445-1220 Website: www.aicardisyndromefoundation.org Website: www.acedone.info Serving: National Serving: Statewide Categories: SC Categories: COMM AIDS Action Committee African Community Education Program (ACE) Support services for people living with HIV/AIDS; educates the An educational program for African refugee and immigrant public and advocates for fair and effective AIDS policy. children offering a Saturday program, one-on-one tutoring, 75 Amory Street mentoring, life skills, and extracurricular activities. Boston, MA 02119 Denholm Building Phone: 617-437-6200 484 Main Street, #335 Website: www.aac.org Worcester, MA 01609 Serving: Statewide Phone: 508-459-2284 Categories: SC Email: [email protected] Additional Languages: Spanish Website: www.acechildren.org Serving: Central AIDS Project Worcester Categories: COMM, ED, REC Services families or individuals living with HIV/AIDS; case management, alternative therapies, food bank, counseling Agape Inn services. Respite program for children with special needs. Center-based 85 Green Street day program on Saturdays and school vacations and an evening Worcester, MA 01604 program for persons age 17 and up. Phone: 508-755-3773, 800-756-4148 217 Plymouth Street Email: [email protected] Holbrook, MA 02343 Website: www.aidsprojectworcester.org Phone: 781-767-4358 Serving: Central Fax: 781-767-5683 Categories: SC Website: www.agapeinn.org Additional Languages: Spanish Serving: Metrowest, Southeast Categories: RES Air Care Alliance Website has listings of local resources to provide patient Aging with Dignity - Five Wishes transport or emergency relief assistance for patients needing Uses developmentally appropriate language which supports medical air transportation. youth living with life-limiting illness to express and share their 2060 State Highway 595 preferences for how they wish to be cared for and remembered. Lindrith, NM 87029 3050 Highland Oaks Terrace, Suite 2 Phone: 888-260-9707 Tallahassee FL 32301 Fax: 815-572-9192 Phone: 850-681-2010, 888-5WISHES (594-7437) Email: [email protected] Fax: 850-681-2481 Website: www.aircareall.org Email: www.agingwithdignity.org Serving: National Serving: National Categories: TA Categories: COMM

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 52 Resources Alliance of Hope for Suicide Survivors

Air Charity Network All Out Adventures National network matching people in need with free flights and Outdoor recreation made accessible by the use of adaptive travel resources. equipment, supportive techniques, and assistance as needed. 4620 Haygood Road, Suite 1 214 State Street Virginia Beach, VA 23455 Northampton, MA 01060 Phone: 757-318-7149, 800-296-3797 Phone: 413-584-2052 Fax: 757-464-1284 Fax: 413-584-2819 Email: [email protected] Email: [email protected] Website: www.aircharitynetwork.org Website: www.alloutadventures.org Serving: National Serving: Statewide Categories: TA Categories: AT, REC

Alexander Graham Bell Association for the Allergy and Asthma Network/ Deaf and Hard of Hearing Mothers of Asthmatics Resource and support network for individuals with hearing loss. Patient education and advocacy for people with asthma and Comprehensive educational website and state-based networks allergies. Monthly newsletter, books, pamphlets, and videos. provide parents with information and emotional supports. 8229 Boone Boulevard, Suite 260 3417 Volta Place NW Vienna, VA 22182 Washington, DC 20007 Phone: 800-878-4403 Phone: 202-337-5220 Fax: 703-288-5271 Email: [email protected] Email: [email protected] Website: www.agbell.org Website: www.aanma.org Serving: National Serving: National Categories: SC Categories: SC Additional Languages: Spanish Alliance for Technology Access (ATA) Alex’s Lemonade Stand Foundation for The Alliance for Technology Access provides information and Childhood Cancer support services to children and adults with disabilities. Travel For Care Program offers assistance to families who have a 1304 Southpoint Blvd., Suite 240 child that needs cancer treatment. Transportation, lodging, and Petaluma, CA 94954 meals are available to eligible families who meet criteria. Email: [email protected] 111 Presidential Blvd., Suite 203 Website: www.icdri.org Bala Cynwyd, PA 19004 Serving: National Phone: 866-333-1213 Categories: AT Fax: 610-649-3038 Website: www.alexslemonade.org Alliance of Hope for Suicide Survivors Serving: National Supports people who have lost loved ones to suicide with Categories: TA information, a blog, support groups, and memorials. Hosted by a mental health counselor and trained team of moderators. All Kinds of Minds P.O. Box 7005 Nonprofit institute that helps students struggling with Evanston, IL 60201-1763 learning to improve their success in school and life. The parent Phone: 312-933-6777 organization of All Kinds of Minds is QED Foundation. Email: [email protected] 1450 Raleigh Road Website: www.allianceofhope.org Chapel Hill, NC 27517 Serving: National Email: [email protected] Categories: SC Website: www.allkindsofminds.org Serving: National Categories: SC

53 Alliant Helps Resources

Alliant Helps American Autism Association Can ease the financial burden of families facing serious illness Educational services and financial assistance for low-income including reimbursements for travel expenses, prescriptions, families so that individuals with autism may function medical equipment, home supplies, co-pay and home services. independently and live life free of discomfort, anxiety and pain. P.O. Box 94 P.O. Box 1703 Ashland, MA 01721 New York, NY 10156 Phone: 508-505-0942 Phone: 877-654-4483 Fax: 508-309-3362 Email: [email protected] Email: [email protected] Website: www.myautism.org Website: www.allianthelps.org Serving: National Serving: Statewide Categories: SC Categories: ACC, AT American Autoimmune Related Diseases American Academy of Allergy, Association, Inc. Asthma & Immunology National organization working to alleviate suffering and the Offers an informational guide, publications and videos on topics socioeconomic impact of autoimmunity. Fosters collaboration in related to allergies and asthma; and a quarterly newsletter. Also maintains a physician referral line. education, research, patient services, referrals and a newsletter. 555 East Wells Street, Suite 1100 22100 Gratiot Avenue Milwaukee, WI 53202 Eastpointe, MI 48021 Phone: 414-272-6071 Phone: 586-776-3900, 800-598-4668 Email: [email protected] Fax: 586-776-3903 Website: www.aaaai.org Email: [email protected] Serving: National Website: www.aarda.org Categories: SC Serving: National Categories: SC American Association of the Deaf-Blind Of, by, and for deaf-blind Americans, with all types and degrees American Board on Swallowing of dual vision and hearing loss, to ensure that all deaf-blind and Swallowing Disorders persons achieve their maximum potential. Provides information and resources for families in need of a 3825 LaVista Road, W-2 speech & language pathologist with expertise in dysphagia or Tucker, GA 30084 swallowing disorders. Email: [email protected] 563 Carter Court, Suite B Kimberly, WI 54136 Website: www.aadb.org Phone: 920-560-5625 Serving: National Fax: 920-882-3655 Categories: SC Email: [email protected] Website: www.swallowingdisorders.org American Association on Intellectual and Serving: National Developmental Disabilities (AAIDD) Categories: HC, SC Offer information about intellectual and developmental disabilities, on-line resources, periodicals and publications. 501 3rd Street NW, Suite 200 Washington, DC 20001 Phone: 202-387-1968, 800-424-3688 Fax: 202-387-2193 Website: www.aaidd.org Serving: National Categories: SC Additional Languages: Spanish

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 54 Resources American Diabetes Association

American Camp Association of New England American Civil Liberties Union of Mass. (cont.) Regional information and referral for camps. Call for customized Northampton listing of children’s summer camp referrals and for information about a full range of camp choices. 39 Main Street 80 Westview Street Northampton, MA 01060 Lexington, MA 02421 Phone: 413-586-9115 Phone: 781-541-6080 Serving: Western Fax: 781-541-6084 Worcester Email: [email protected] 4 King Street Website: www.acanewengland.org Worcester, MA 01610 Serving: Statewide Phone: 508-444-2258 Categories: REC Serving: Central, Western Additional Languages: Spanish American Council of the Blind American Cancer Society Advocates for individuals who are blind/have visual impairment; A national organization with offices in many Massachusetts radio show, periodic newsletter, state Affiliate organizations to communities; provides information regarding specific diagnoses improve community access. and referral to services and supports, including parent groups. 1703 N. Beauregard Street, Suite 420 250 Williams Street, NW Alexandria, VA 22311 Atlanta, GA 30303 Phone: 202-467-5081, 800-424-8666 Phone: 800-227-2345 Fax: 703-465-5085 Website: www.cancer.org Email: [email protected] Serving: National Website: www.acb.org Categories: SC Serving: National Additional Languages: Spanish Categories: ACC, SC

American Childhood Cancer Organization Massachusetts Chapter Coordinates meetings, speakers, parent-to-parent visitation, 57 Grandview Avenue summer camps, transportation, emergency funding, and Watertown, MA 02472 publications. Phone: 617-923-4519 P.O. Box 498 Email: [email protected] Kensington, MD 20895 Phone: 301-962-3520 American Dance Therapy Association Toll-free: 855-858-2226 Provides support to professionals interested in dance therapy; Fax: 301-962-3521 website includes information about the field, related resources, Email: [email protected] and a locator for professionals in your area. Website: www.acco.org 10632 Little Patuxent Parkway, Suite 108 Serving: National Columbia, MD 21044 Categories: SC Phone: 410-997-4040 Additional Languages: Spanish Fax: 410-997-4048 Email: [email protected] American Civil Liberties Union of Massachusetts Website: www.adta.org The nation’s foremost advocate of individual rights litigating, Serving: National legislating, and educating the public on a broad array of issues Categories: HC, REC affecting individual freedom in the United States. Email: [email protected] American Diabetes Association Website: www.aclum.org Provides educational and management information about Serving: Statewide diabetes, as well as referrals and information about programs Categories: LGL for individuals with diabetes, including 504 Plan suggestions. Additional Languages: Spanish 2451 Crystal Drive, Suite 900 Arlington, VA 22202 Boston Phone: 800-342-2383 211 Congress Street Email: [email protected] Boston, MA 02110 Website: www.diabetes.org Phone: 617-482-3170 Serving: National Serving: Statewide Categories: SC 55 American Hippotherapy Association Resources

Additional Languages: Spanish New England Chapter American Hippotherapy Association 188 Needham Street, Suite 240 Promotes research, education and communication among Newton, MA 02464 therapists and others using the horse in a treatment approach Phone: 617-527-5600, 800-298-6766 based on principles of hippotherapy. Fax: 617-527-5636 P.O. Box 2014 Email: [email protected] Fort Collins, CO 80522 Website: www.liverfoundation.org/chapters/newengland/ Phone: 970-818-1322 about Fax: 877-700-3498 Serving: National Email: [email protected] Website: www.theahainc.org American Mental Health Counselors Association Serving: National Membership organization for mental health counselors; website Categories: REC includes information on the role of a mental health counselor, professional ethics, and a find-a counselor search tool. American Latex Allergy Association 107 S. West Street, Suite 779 Provides information on educational materials, support groups, Alexandria, VA 22314 publications, and product information to assist with the Phone: 703-548-6002, 800-326-2642 understanding of natural rubber latex allergy. Fax: 703-548-4775 6334 Lohmann Lane Website: www.amhca.org Eastman, WI 54626 Serving: National Phone: 608-874-4044, 888-972-5378 Categories: HC, SC Fax: 262-677-0324 Email: [email protected] American Music Therapy Association Website: www.latexallergyresources.org The mission of AMTA is to advance public awareness of the Serving: National benefits of music therapy and increase access to quality music Categories: SC therapy services. 8455 Colesville Road, Suite 1000 American Liver Foundation Silver Spring, MD 20910 Advocates, promotes education, supports research, and offers Phone: 301-589-3300 emotional support and support groups for patients, family Fax: 301-589-5175 members and caregivers for those affected by liver diseases. Email: [email protected] Categories: SC Website: www.musictherapy.org Additional Languages: Chinese, French, Spanish, Serving: National Vietnamese Categories: REC

National American Printing House for the Blind 39 Broadway, Suite 2700 Comprehensive catalogs of books, educational tools and New York, NY 10006 textbooks, assessment tools and videos, accessible products, Phone: 212-668-1000, 800-465-4837 aids, and supplies useful to blind and visually impaired people. Fax: 212-483-8179 1839 Frankfort Avenue, P.O. Box 6085 Email: [email protected] Louisville, KY 40206 Website: www.liverfoundation.org Phone: 502-895-2405, 800-223-1839 Serving: National Fax: 502-899-2274 Email: [email protected] Website: www.aph.org Serving: National Categories: SC Additional Languages: Spanish

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 56 Resources Andrew’s Helpful Hands Foundation, Inc.

American School of Laughter Yoga American Syringomyelia and Chiari Alliance Helps people lead happier and healthier lives using laughter as Project (ASAP) a healing modality; offers online trainings, resources and links to Works to improve the lives of people with Syringomyelia, Chiari local Laughter Clubs serving diverse populations, including those malformations, and related disorders. Publishes a newsletter and with disabilities, cancer and mental health issues. offers videotapes, a conference, and support groups. 122 Hurlbut Street, Suite 9 P.O. Box 1586 Pasadena, CA 91105 Longview, TX 75606-1586 Phone: 626-755-5999 x2 Phone: 903-236-7079, 800-272-7282 Fax: 888-502-3715 Email: [email protected] Website: www.laughteryogaamerica.com Website: www.ASAP.org Serving: National Serving: National Categories: REC Categories: SC

American Society for Deaf Children AmeriFace ASDC is a national, independent nonprofit organization whose Information and emotional support for individuals with facial purpose is providing support, encouragement and information differences and their families to increase public understanding to families raising children who are deaf or hard of hearing. through awareness programs and education. P.O. Box 23 P.O. Box 751112 Woodbine, MD 21797 Las Vegas, NV 89136 Phone: 800-942-2732 Phone: 888-486-1209 Fax: 410-795-0965 Fax: 702-341-5351 Email: [email protected] Email: [email protected] Website: www.deafchildren.org Website: www.ameriface.org Serving: National Serving: National Categories: SC Categories: SC Additional Languages: Spanish Amputee Coalition of America American Speech-Language-Hearing Association Empowers people affected with limb loss to achieve their full Professional organization of audiologists, speech-language potential through education, support and advocacy. Offers pathologists, and speech, language, and hearing scientists a summer camp program (for youth ages 10-17), an annual offering information about related conditions and treatments. conference and scholarships, and excellent emergency 2200 Research Boulevard planning tips. Rockville, MD 20850 900 East Hill Avenue, Suite 390 Phone: 800-638-8255 Knoxville, TN 37915 TTY: 301-296-5650 Phone: 888-267-5669 Fax: 301-296-8580 Email: [email protected] Email: [email protected] Website: www.amputee-coalition.org Website: www.asha.org Serving: National Serving: National Categories: SC Categories: SC Andrew’s Helpful Hands Foundation, Inc. American Stroke Association (ASA) Provides a wide variety of supportive activities for families of Dedicated to prevention, diagnosis and treatment to save lives children who are facing Bone Marrow Transplantation. from stroke, helps people better understand and avoid stroke, P.O. Box 751 guides healthcare professionals and provides information to Hudson, MA 01749 enhance the quality of life for stroke survivors. Phone: 978-375-3704 7272 Greenville Avenue Email: [email protected] Dallas, TX 75231 Website: www.andrewshelpfulhands.com Phone: 800-242-8721 Serving: Statewide Website: www.strokeassociation.org Categories: SC Serving: National Categories: SC

57 Angel Flight New England Resources

Angel Flight New England Angels Above Works to secure free transport for individuals who need Proceeds support activities to normalize the lives of children and transportation assistance and have limited financial resources. families at Mass General Hospital for Children. Activities include Arrangements are coordinated with FAA licensed pilots to carry parties, in-home manicures, massages, and special events. patients when regularly scheduled flight services will not suffice. 99 Mammoth Road 492 Sutton Street P.O. Box 9501 North Andover, MA 01845 Lowell, MA 01854 Phone: 978-794-6868, 800-549-9980 Phone: 978-452-4833 Fax: 978-794-8779 Email: [email protected] Email: [email protected] Website: www.angelsabovecharity.org Website: www.angelflightne.org Serving: Statewide Serving: National Categories: CS&I Categories: TA Additional Languages: Spanish Anxiety and Depression Association of America Promotes prevention, treatment and cure of anxiety disorders, Angel Wheels to Healing and works to improve the lives of all people affected by Provides compassionate non-emergency long-distance ground anxiety disorders. transportation to patients in need. 8701 Georgia Avenue, Suite 412 4620 Haygood Road, Suite 1 Silver Spring, MD 20910 Virginia Beach, VA 23455 Phone: 240-485-1001 Phone: 800-768-0238 Fax: 240-485-1035 Fax: 757-318-9174 Email: [email protected] Email: [email protected] Website: www.adaa.org Website: www.angelwheels.org Serving: National Serving: National Categories: SC Categories: TA Apple Tree Arts Angelman Syndrome Foundation Community school offering developmentally appropriate music, Advances awareness and treatment of Angelman Syndrome theater, and instrumental and vocal programs for all ages. through education, information and support for individuals with Angelman Syndrome, their families and concerned parties. 1 Grafton Commons, #23 Grafton, MA 01519 75 Executive Drive, Suite 327 Phone: 508-839-4286 Aurora, IL 60504 Phone: 630-978-4245, 800-432-6435 Fax: 508-839-4286 Fax: 630-978-7408 Email: [email protected] Email: [email protected] Website: www.appletreearts.org Website: www.angelman.org Serving: Central Serving: National Categories: REC Categories: SC Additional Languages: Spanish Apraxia Kids Support Information about apraxia of speech or developmental Angelman Syndrome Foundation, verbal dyspraxia. Upper Northeast Region 416 Lincoln Avenue, 2nd Floor Provides resources specific to the region. They also host Pittsburgh, PA 15209 fundraising events allowing families to connect with each other. Phone: 412-343-7102 Email: [email protected] Email: [email protected] [email protected] Website: www.apraxia-kids.org Website: www.upneangels.com Serving: National Serving: Statewide Categories: SC Categories: SC Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 58 Resources ARCS

Arcs Arc of Greater Plymouth, Inc. Local Arcs provide a variety of support services for individuals 52 Armstrong Road with intellectual or developmental challenges and their families. Plymouth, MA 02360 National and State Arcs serve as advocacy organizations, to Phone: 508-732-9292 raise awareness of the needs of this community. Fax: 508-732-9229 Email: [email protected] Arc of Bristol County Website: www.thearcofgp.com 141 Park Street Serving: Southeast Attleboro, MA 02703 Phone: 508-226-1445 Arc of Massachusetts, Inc. Email: [email protected] 56 Chestnut Street Website: www.arcnbc.org Waltham, MA 02453 Serving: Southeast Phone: 781-899-1344 Additional Languages: Portuguese, Spanish Website: www.arcmass.org Serving: Statewide Arc of Cape Cod Categories: ARC P.O. Box 428 Hyannis, MA 02601 Arc of Opportunity Phone: 508-790-3667 564 Main Street Fax: 508-775-5233 Fitchburg, MA 01420 Email: [email protected] Phone: 978-343-6662, Ext: 1028 Website: www.arcofcapecod.org Fax: 978-343-8852 Serving: Southeast Email: [email protected] Additional Languages: Portuguese, Spanish Website: www.arcofopportunity.org Serving: Central Communitas (formerly Arc of East Middlesex) Additional Languages: American Sign Language, Spanish 26 Princess Street Arc of South Norfolk County Wakefield, MA 01880 789 Clapboardtree Street Phone: 781-942-4888, Ext: 4011 Westwood, MA 02090 Fax: 781-942-0820 Phone: 781-762-4001 Email: [email protected] Fax: 781-461-5950 Website: www.theemarc.org Email: [email protected] Serving: Northeast Website: www.sncarc.org Serving: Metrowest Arc of Greater Haverhill-Newburyport 57 Wingate Street, Suite 301 Arc of the South Shore Haverhill, MA 01832 371 River Street Phone: 978-373-0552 North Weymouth, MA 02191 Email: [email protected] Phone: 781-335-3023 Website: www.thearcofghn.org Email: [email protected] Serving: Northeast Website: www.arcsouthshore.org Additional Languages: Spanish Serving: Metrowest, Southeast

Arc of Greater Lawrence Arc of Southern Worcester County, The Center of Hope One Parker Street 100 Foster Street, P.O. Box 66 Lawrence, MA 01843 Southbridge, MA 01550 Phone: 978-975-8587 Phone: 508-764-4085, 800-870-8685 TTY: 800-439-2370 TTY: 508-764-4085 Fax: 978-975-0498 Fax: 508-765-0255 Email: [email protected] Email: [email protected] Website: www.classinc.org Website: www.thecenterofhope.org Serving: Northeast Serving: Central Additional Languages: Spanish Additional Languages: Spanish

59 ARCS Resources

Arc of the United States Arthrogryposis Multiplex Congenita Support, Inc. 1825 K Street NW Provides understanding and moral support for anyone affected Washington, DC 20006 with the diagnosis. Offers conferences, meetings, studies, online Phone: 202-534-3700, 800-433-5255 forum, and information in Spanish. Fax: 202-534-3731 P.O. Box 6291 Email: [email protected] Spartanburg, SC 29304 Website: www.thearc.org Phone: 805-552-6274 Serving: National Email: [email protected] Categories: ARC Website: www.amcsupport.org Serving: National Arch National Respite Network Categories: SC and Resource Center Additional Languages: Spanish Assists and promotes the development of quality respite and crisis care programs; helps families locate services; serves as a ArtWorks strong voice for respite in all forums. Art classes for children with special needs. 4016 Oxford Street Annandale, VA 22003 11 Salem Street Phone: 703-256-2084 Medford, MA 02155 Email: [email protected] Email: [email protected] Website: www.archrespite.org Website: www.in2shades.com Serving: National Serving: Metrowest, Northeast Categories: RES Categories: REC

ART Relief Ascentria Care Alliance Dedicated to using and promoting the use of art to support Helps refugees and other immigrants with basic needs, legal health, development, education, social-economical adjustment, advice, Counseling and training to become self-sufficient; also cultural inclusion, dignity and integrity in the community. provides resettlement services. 51 Kondazian Street 11 Shattuck Street Watertown, MA 02472 Worcester, MA 01605 Phone: 617-924-1285 Phone: 774-243-3100 Email: [email protected] Website: www.ascentria.org Website: www.artrelief.info Serving: Central Serving: Metrowest Categories: ADV, COMM, LGL Categories: REC Asian American Civic Association Arthritis Foundation A variety of services for Chinese families; English Classes, job Supports research, provides information and referral, as well training, social services, youth development, child care. as service programs and support groups for individuals with 87 Tyler Street, 5th Floor arthritis, including children with Juvenile Rheumatoid Arthritis. Boston, MA 02111 29 Crafts Street, Suite 450100 Phone: 617-426-9492 Newton, MA 02458 Fax: 617-482-2316 Phone: 617-244-1800, 800-766-9449 TTY: 617-426-9157 Fax: 617-558-7686 Email: [email protected] Email: [email protected] Website: www.aaca-boston.org Website: www.arthritis.org Serving: Boston Serving: Statewide Categories: COMM Categories: SC Additional Languages: Chinese

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 60 Resources Assistive Technology Resource Center at Worcester Polytechnic Institute

Asperger Works Assistance Dog United Campaign (ADUC) Assists adults with ASD with employment, builds employers’ Provides information to individuals and guidance to assistance understanding of ASD, and provides support and advice for dog programs. adults with ASD and employers so they can work together and 5860 Labath Avenue benefit each other. Rohnert Park, CA 94928 60 Island Street Phone: 707-545-0800 Lawrence, MA 01840 Email: [email protected] Phone: 978-710-9951 Website: www.assistancedogunitedcampaign.org Email: [email protected] Serving: National, Statewide Website: www.aspergerworks.org Categories: SA Serving: Northeast Categories: CS&I, SC, TR Assistive Technology Center at Spaulding Rehab Hospital Assabet Valley Collaborative Offers evaluations, recommendations and help to identify FSP serves at-risk students and their families who do not funding sources for technological services for individuals with meet the criteria for state agency services. All FSP services are disabilities. voluntary, and students are referred by the school. 300 First Avenue 28 Lord Road, Suite 125 Charlestown, MA 02129 Marlborough, MA 01752 Phone: 617-952-5163 Phone: 508-460-0491 Website: www.spauldingrehab.org Fax: 508-460-0493 Serving: Statewide Website: www.avcollaborative.org Categories: AT, CS&I Serving: Central, Metrowest Additional Languages: Spanish Categories: COMM Additional Languages: Spanish, Portuguese Assistive Technology Demonstration and Loan Regional Center Assistance Canine Training Services Helps people with disabilities in Eastern Massachusetts make New England affiliate to Assistance Dog United Campaign informed decisions about assistive technology to ensure that (ADUC) hosting NH and ME summer camp programs to teach children and adults with disabilities have equal opportunities. children about the experience of having a service animal. 89 South Street P.O. Box 52 Boston, MA 02111 North Conway, NH 03860 Phone: 617-226-2634 Phone: 781-856-0055 Email: [email protected] Email: [email protected] Website: www.eastersealsma.org Website: www.assistancecanine.org Serving: Statewide Serving: Statewide Categories: AT, CS&I Categories: SA Assistive Technology Resource Center at Worcester Assistance Dogs International Polytechnic Institute Provides information to individuals and guidance to assistance Disseminates technical information regarding availability and dog programs. use of assistive devices for individuals with disabilities. P.O. Box 809 Worcester Polytechnic Institute Brownsburg, IN 46 100 Institute Road, Room 129 Email: [email protected] Worcester, MA 01609 Website: www.assistancedogsinternational.org Phone: 508-831-5000 Serving: National Website: www.me.wpi.edu/research/ATRC Categories: SA Serving: Statewide Categories: AT, COMM

61 Associataion for Behavioiral Health and Wellness Resources

Association for Behavioral Health and Wellness Asthma and Allergy Foundation of America Provides a forum and rich library of white papers on behavioral Provides practical information, community-based services and health and wellness topics. support; organizes state and national advocacy efforts; and 1325 G Street NW, Suite 500 funds research to find better treatments and cures. Washington, DC 20005 Website: www.aafa.org Phone: 202-449-7660 Categories: SC Email: [email protected] Website: www.abhw.org National Serving: National 8201 Corporate Drive, Suite 1000 Categories: ADV, SC Landover, MD 20785 Phone: 800-727-8462 Association for Glycogen Storage Disease Email: [email protected] Offers a quarterly newsletter and educational booklet, as well as Serving: National an email support group for families and professionals. Additional Languages: Spanish P.O. Box 896 Durant, IA 52747 Statewide Phone: 563-514-4022 109 Highland Avenue Email: [email protected] Needham, MA 02494 Website: www.agsdus.org Phone: 781-444-7778 Serving: National Fax: 781-444-7718 Categories: SC Email: [email protected] Website: www.asthmaandallergies.org Association of Blind Citizens Serving: Statewide Additional Languages: Spanish Provides Information and Referral Services, a newsletter, a Categories: SC radio show, and an Assistive Technology Fund to maximize opportunities for all blind and visually impaired persons. Ataxia Telangiectasia Children’s Project P.O. Box 246 The A-T Children’s Project was formed to raise funds to accelerate Holbrook, MA 02343 first rate international scientific research aimed at finding a cure Phone: 781-961-1023 and improving the lives of all children with A-T. Fax: 781-961-0004 Email: [email protected] 5300 West Hillsboro Boulevard, Suite 105 Website: www.blindcitizens.org Coconut Creek, FL 33073 Serving: National Phone: 954-481-6611, 800-543-5728 Categories: SC Email: [email protected] Website: www.atcp.org Association of Gastrointestinal Motility Disorders Serving: National Categories: SC Connects patients, families, friends and caregivers for support, education, advocacy, outreach, research, and support through a variety of resources and programs. 12 Roberts Drive Bedford, MA 01730 Phone: 781-275-1300 Fax: 781-275-1304 Email: [email protected] Website: www.agmd-gimotility.org Serving: National Categories: SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 62 Resources Autism Insurance Resource Center

Athletes Unlimited Autism Connections Year-round recreation, sports, camps, social, and leisure Assists families, individuals, schools, and agencies in Western programs for children and adults with disabilities. Camp Echo Mass. with information and support for children with autism. Bridge offers six weeks of summer fun in Newton Center. P.O. Box 66163 Pittsfield Newton, MA 02466 100 North Street, #322 Phone: 617-796-1527 Pittsfield, MA 01201 TTY: 617-796-1089 Phone: 413-443-4780 Fax: 617-796-1512 Email: [email protected] Easthampton Website: www.newtonathletesunlimited.org 116 Pleasant Street, Suite 366 Serving: Metrowest Easthampton, MA 01027 Categories: REC Phone: 413-529-2428, 800-892-7003 Fax: 413-529-2567 Aubrey’s Warrior Foundation Website: pathlightgroup.org/programs-and-services/autism- Provides assistance to families for emergency transportation connections needs and resources to provide medical treatment, therapies and Serving: Western rehabilitative equipment for their children with special needs. Categories: SC P.O. Box 20145 Additional Languages: Spanish Monroe, GA 30655 Phone: 678-304-9929 Autism Eats Email: [email protected] Autism Eats provides information on autism-friendly non- Website: www.aubreyswarriorsfoundation.org judgmental environments for family dining, socializing and Serving: National connecting with others who share similar joys and challenges. Categories: TA Phone: 413-582-5312 Website: www.autismeats.org Autism Alliance of Metrowest Serving: National Provides families affected by Autism Spectrum Disorders with Categories: CS&I, REC, SC information, education and support. Monthly support groups and activities are available to family members. Autism Escapes 1881 Worcester Road, Suite 100A Serves as an Angel Network for families of children with autism. Framingham, MA 01701 Arranges air travel on private jets for families in need of medical Phone: 508-652-9900 care for their children. Email: [email protected] 226 King George Road Website: www.autismalliance.org Warren, NJ 07069 Serving: Metrowest Phone: 732-667-7781 Categories: SC Website: www.autismescapes.org Serving: National Autism Care & Treatment Today! Categories: TA Provides financial assistance to families of children diagnosed Additional Languages: Spanish with Autism Spectrum Disorder to fund effective treatments, assessments and needed life supports. Autism Insurance Resource Center 21600 Oxnard Street, Suite 1800 Provides information on issues related to insurance coverage for Woodland Hills, CA 91367 Autism-Related Treatments and Services. Phone: 818-340-4010, 877-922-8863 UMass Medical School Email: [email protected] 55 Lake Avenue North, #S3-301 Website: www.act-today.org Worcester, MA 01655 Serving: National Phone: 800-642-0249 Categories: SC TTY: 800-764-0200 Website: https://disabilityinfo.org/airc Serving: Statewide Categories: SC

63 Autism Resource Center of Central Massachusetts Resources

Autism Resource Center of Central Massachusetts Autism Speaks, New England Chapter Provides information and referral, family support groups, Provides a wide range of information, resources, and support resource library, software preview and equipment loans and a programs; also arranges for public awareness campaigns. newsletter. 85 Devonshire Street, 9th Floor 71 Sterling Street Boston, MA 02109 West Boylston, MA 01583 Phone: 617-726-1515 Phone: 508-835-4278 Fax: 781-461-8811 Fax: 508-835-3723 Email: [email protected] Email: [email protected] Website: www.autismspeaks.org Website: www.autismresourcecentral.org Serving: Statewide Serving: Central Categories: SC Categories: SC Autism Spectrum Connection Autism Services Association Offers online information on the diagnosis, treatments, and Serving people with Autism Spectrum Disorders and their therapies; books, conferences, and workshops; and current families; provides information and referrals, social activities, research opportunities. respite services, school vacation programs, a newsletter, and MAAP guest speakers. P.O. Box 524 47 Walnut Street Crown Point, IN 46308 Wellesley Hills, MA 02481 Phone: 219-789-9874 Phone: 781-237-0272 Email: [email protected] Fax: 781-237-5020 Website: www.aspergersyndrome.org Email: [email protected] Serving: National Website: www.autismservicesassociation.org Categories: SC Serving: Metrowest Categories: REC, RES, SC Autism Spectrum Disorder Foundation Works with families and autism-specific organizations to Autism Society of America, decrease some of the financial burden through providing Massachusetts Chapter funding for programs that benefit an autistic child’s Promotes access and opportunity for all individuals with autism specific needs. and their families. Education, advocacy, public awareness and 228 W. Lincoln HWY 301 research form the cornerstones of ASA’s mission. Scherervill, IN 46375 47 Walnut Street Phone: 877-806-0635 Wellesley Hills, MA 02481 Fax: 484-423-2346 Phone: 781-237-0272, Ext: 17 Email: [email protected] Fax: 781-237-5020 Website: www.myasdf.org Email: [email protected] Serving: National Website: www.autism-society.org Categories: SC Serving: Statewide Categories: SC Additional Languages: Spanish

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 64 Resources Barth Syndrome Foundation

Autism Spectrum Programs at the AXYS Boston Conservatory A resource to connect families who face issues related to sex Pairs students ages 9+ who have Autism Spectrum Disorder chromosomes. Offers online support & discussion groups, with graduate students for weekly lessons. A complementary as well as reading lists and information about research. team that includes a music therapist, speech therapist, special P.O. Box 861 educators, and professional musicians and educators with a Mendenhall, PA 19357 diagnosis of Autism. Phone: 303-400-9040, 888-999-9428 22 The Fenway Fax: 303-838-0753 Boston, MA 02215 Email: [email protected] Phone: 617-912-9104 Website: www.genetic.org Fax: 617-912-9101 Serving: National Email: [email protected] Categories: SC Website: www.berklee.edu/biaesn Serving: Boston, Metrowest, Northeast Baby’s First Test Categories: ED, REC Houses the nation’s newborn screening clearinghouse; included are current support and services information and links to Autism Sprinter Inc. individual state’s programs. Supported and funded as a result Empowers and enriches the lives of families with loved ones of the Newborn Screening Saves Lives Act passed in 2008. on the spectrum through dedication to improving community 4301 Connecticut Avenue NW, Suite 404 outreach, advocacy, resources and support. Washington, DC 20008 16 Latern Lane Phone: 202-966-5557 Randolph, MA 02368 Fax: 202-966-8553 Phone: 617-475-0344 Email: [email protected] Email: [email protected] Website: www.babysfirsttest.org Website: www.autismsprinter.com Serving: National Serving: Boston, Metrowest, Southeast Categories: ADV, HC Categories: CS&I, SC Balanced Mind Foundation Autism Support Center at Northeast ARC Educates families and the public about mood disorders, bipolar Information and support for families of people with autism; disorder, and depression. Website offers information, message supports a parent/professional network, facilitates a parent boards, chat rooms, and lists of practitioners. support group. Depression and Bipolar Support Alliance DBSA- 6 Southside Road ATTN: Balanced Mind Parent Network Danvers, MA 01923 55 E. Jackson Blvd., Suite 490 Phone: 978-777-9135, 800-728-8576 Chicago, IL 60604 Fax: 978-762-3980 Phone: 312-642-0049, 800-826-3632 Website: www.ne-arc.org/services/autism-services/autism- Email: [email protected] support-center/ Website: www.dbsalliance.org Serving: Northeast Serving: National Categories: SC Categories: SC Additional Languages: Spanish Additional Languages: Spanish

Autistic Self Advocacy Network Barth Syndrome Foundation Activities include public policy advocacy, community Provides both a comprehensive website and online support engagement, quality of life research, and the development and also helps to connect families to each other. of Autistic cultural activities. 2005 Palmer Avenue, #1033 P.O. Box 66122 Larchmont, NY 10538 Washington, DC 20035 Phone: 914-303-6323 Email: [email protected] Toll Free: 855-662-2784 Website: www.autisticadvocacy.org Fax: 518-213-4061 Serving: National Email: [email protected] Categories: SC Website: www.barthsyndrome.org Serving: National Categories: SC

65 Barton Center for Diabetes Education Resources

Barton Center for Diabetes Education Beach Center on Disability A year-round camp, retreat, and conference center offering a Research briefs, publications and fact sheets on family issues. residential summer camp, family retreats, weekend programs, University of Kansas education, and support programs. 1200 Sunnyside Avenue, Room 3136 30 Ennis Road Lawrence, KS 66045 P.O. Box 356 Phone: 785-864-7600 North Oxford, MA 01537 TTY: 785-864-3434 Phone: 508-987-2056 Fax: 786-864-7605 Fax: 508-987-2002 Email: [email protected] Email: [email protected] Website: www.beachcenter.org Website: www.bartoncenter.org Serving: National Serving: Statewide Categories: COMM Categories: SC, REC Additional Languages: Spanish

Batten Disease Support and Research Association Believe in Tomorrow Children’s Foundation Support and networking for families of kids with Batten Disease. Provides hospital and respite housing services to critically ill 1175 Dublin Road children and their families. Columbus, OH 43215 6601 Frederick Road Phone: 800-448-4570 Baltimore, MD 21228 Email: [email protected] Phone: 410-744-1032 Website: www.bdsra.org TTY: 410-744-1984 Serving: National Email: [email protected] Categories: SC Website: www.believeintomorrow.org Serving: Statewide Bay Cove Human Services Categories: CS&I, HOUS, RES Provides a range of services including Early Intervention services, support groups, and case management services. Ben’s Dream-Sanfilippo Research Foundation 66 Canal Street Raises awareness and research funds for orphan diseases such Boston, MA 02114 as Sanfilippo Syndrome mucopolysaccharide disorders. Phone: 617-371-3000 P.O. Box 81268 Fax: 617-371-3100 Wellesley, MA 02481 Website: www.baycove.org Phone: 617-899-4158 Serving: Statewide Fax: 781-235-4015 Categories: CS&I Email: [email protected] Website: www.bensdream.org Bay State Community Services Serving: Statewide An array of services including the Children’s Behavioral Categories: SC Health Initiative, Community Support programs, and Family Stabilization FST-programs. 1120 Hancock Street Quincy, MA 02169 Phone: 617-471-8400 Fax: 617-376-0619 Email: [email protected] Website: www.baystatecs.org Serving: Metrowest Categories: CS&I, SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 66 Resources Birth Defect Research for Children

Berkshire County Arc Best Buddies Massachusetts Provides advocacy and support for families of children with The mission of Best Buddies is to enhance the lives of people special needs. with intellectual disabilities through opportunities for 395 South Street one-to-one friendship and integrated employment. Pittsfield, MA 01201 529 Main Street, Suite 202 Phone: 413-499-4241, 800-552-1771 Boston, MA 02129 TTY: 413-552-1771 Phone: 617-778-0522 Fax: 413-445-7863 Fax: 617-778-0526 Email: [email protected] Email: [email protected] Website: www.bcarc.org Website: www.bestbuddies.org/massachusetts Serving: Western Serving: Statewide Categories: ARC Categories: CS&I Additional Languages: American Sign Language, Spanish Additional Languages: Spanish

Berkshire Family and Individual Resources, Beverly School for the Deaf Family Resource Program The Children’s Center for Communication at BSD provides comprehensive educational programs including Toddler Offers a variety of respite options, skill development classes Playgroup, Baby Sign, American Sign classes, and SibShops. and support groups to families of teens and adults with special needs. Service providers are bilingual. 6 Echo Avenue Beverly, MA 01915 771 South Church Street Phone: 978-927-7070 North Adams, MA 01247 TTY: 978-927-7200 Phone: 413-664-9382 Fax: 978-927-6536 Email: [email protected] Email: [email protected] Website: www.bfair.org Website: www.cccbsd.org Serving: Western Serving: Statewide Categories: CS&I, RES Categories: ED, SC Additional Languages: Spanish Additional Languages: American Sign Language

Berkshire Hills Music Academy Beyond Tops Soccer Post-secondary school for special learners with musical abilities. A program for any child with mental and/or physical disabilities, Two-year program. Summer program also available. organized by Wilmington Youth Soccer Association volunteers, 48 Woodbridge Street designed to provide the opportunity to learn and play soccer. South Hadley, MA 01075 688 Main Street, Suite 8 Phone: 413-540-9720 P.O. Box 106 Fax: 413-534-3875 Wilmington, MA 01887 Email: [email protected] Phone: 978-694-6030 Website: www.berkshirehills.org Email: [email protected] Serving: Statewide Website: www.beyondtops.com Categories: ED, TR Serving: Northeast Additional Languages: Spanish Categories: REC Additional Languages: French Bertolon Center for Grief and Healing at Care Dimensions Birth Defect Research for Children Offers a variety of counseling, pastoral, and grief services Offers a parent matching program and links to support groups to families, including support groups and an annual for a huge variety of birth defects. Also manages information memorial service. about research opportunities for many genetic conditions. Hospice of the North Shore 976 Lake Baldwin Lane, Suite 104 75 Sylvan Street, Suite B-102 Orlando, FL 32814 Danvers, MA 01923 Phone: 407-895-0802 Phone: 888-283-1722 Fax: 407-566-8341 Email: [email protected] Email: [email protected] Website: www.caredimensions.org Website: www.birthdefects.org Serving: Northeast Serving: National Categories: COMM Categories: SC

67 Blueskies Wellness Hotline Resources

Blueskies Wellness Hotline Boston Center for Independent Living Provides a myriad of services, including a free and confidential Controlled and directed by persons with disabilities, ILCs provide Help Chat for kids and teens over the age of 13 who are victims advocacy services, information, referrals, peer counseling, and of all forms of bullying. independent living skills training. 232 Pleasant Street, 2nd Floor 60 Temple Place, 5th Floor Methuen, MA 01844 Boston, MA 02111 Phone: 978-655-1823, 888-336-1411 Phone: 617-338-6665, 866-338-8085 Fax: 978-655-1759 TTY: 617-338-6662 Email: [email protected] Fax: 617-338-6661 Website: www.blueskieswellnessinc.org Email: [email protected] Serving: Statewide Website: www.bostoncil.org Categories: CS&I Serving: Boston, Metrowest Additional Languages: Spanish Booth Hill Farm Categories: ILC Therapeutic horseback riding with standard-sized and miniature horses. Boston Center for Psychotherapy 65 Booth Hill Road Provides consultation to schools around issues of classroom North Scituate, MA 02066 behavior management and student counseling individual or Phone: 781-545-2340 group sessions-to address emotional and social well-being. Email: [email protected] 1415 Beacon Street, Suite 120 Serving: Metrowest, Southeast Brookline, MA 02446 Categories: REC Phone: 617-958-1875 Email: [email protected] BOSTNet: Build the Out-of-School Time Network Website: www.BostonInstitute.org Promotes out-of-school time OST-program quality and Serving: Statewide accessibility for all families; Network includes over 500 Categories: SC before- and after-school programs in Boston.

6 Beacon Street, Suite 810 Boston Commission for Persons with Disabilities Boston, MA 02108 To facilitate full participation in all aspects of life by persons Phone: 617-720-1290 with disabilities, the Commission works to remove architectural, TTY: 617-720-1292 procedural, attitudinal, and communication barriers. Fax: 617-720-1291 Email: [email protected] Boston City Hall Website: www.bostnet.org One City Hall Square, Room 967 Serving: Boston Boston, MA 02201 Categories: REC Phone: 617-635-3682 Additional Languages: Spanish Fax: 617-635-3290 Email: [email protected] Boston Ballet Website: www.cityofboston.gov/disability Non-profit institution in Boston offering ballet and adaptive Serving: Boston dance classes for all ages. Scholarship and financial Categories: ADV assistance available. Additional Languages: Spanish 19 Clarendon Street Boston MA 02116 Phone: 617-456-6000 Email: [email protected] Website: www.bostonballet.org Serving: Boston, Metrowest Categories: REC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 68 Resources Boston Youth Zone

Boston Home Boston Public Library: Access Center Provides an accessible residence for adults with complex Reference information and circulating materials on a wide range medical needs, including Multiple Sclerosis, as well as durable of disabilities and disability issues. Information is accessible to equipment and customized adaptive equipment services for individuals with disabilities by the latest technologies. the general public. 700 Boylston Street, Suite 300 2049 Dorchester Avenue Boston, MA 02116 Dorchester Center, MA 02124 Phone: 617-536-5400 Phone: 617-825-3905 TTY: 617-536-7055 Fax: 617-825-1951 Fax: 617-266-8948 Email: [email protected] Email: [email protected] Website: wwww.thebostonhome.org Website: www.bpl.org/central/access.htm Serving: Boston, Metrowest Serving: Statewide Categories: AT, HOUS, TR Categories: I&R Additional Languages: Spanish Boston Pediatric and Family AIDS Project Community-based, culturally competent, comprehensive care Boston Sight for women, children, adolescents and families infected, affected Aims to transform the understanding, treatment, and care of or at risk of HIV/AIDS. complex corneal disease. Comprehensive medical services and a Dimock Community Health Center Patient and Community Support Center available on site. 55 Dimock Street 464 Hillside Avenue, Suite 205 Roxbury, MA 02119 Needham, MA 02494 Phone: 617-442-8800 Phone: 781-726-7337, 888-725-3725 Fax: 617-442-1702 Fax: 781-726-7310 Website: www.dimockcenter.org Email: [email protected] Serving: Boston Website: www.bostonsight.org Categories: SC, RES Serving: Statewide Additional Languages: Spanish Categories: HC, SC

Boston Public Health Commission Boston Youth Sanctuary (BYS) Hosts Mayor’s Health Line; offers comprehensive child, A therapeutic after-school program for youth ages 6-11 who adolescent, and family health programs; community-based have experienced traumatic events or negative circumstances initiatives for the homeless. in their lives. Provides clinical and case management services 1010 Massachusetts Avenue, 6th Floor designed to improve youths’ functioning in all domains. Boston, MA 02118 2216 Dorchester Avenue Phone: 617-534-5395 Dorchester, MA 02124 Fax: 617-534-5358 Phone: 617-322-3380 Email: [email protected] Fax: 617-989-9899 Website: www.bphc.org Email: [email protected] Serving: Boston Website: www.bostonyouthsanctuary.org Categories: ADV, HC Serving: Boston Additional Languages: American Sign Language, Chinese, Categories: COMM, ED, I&R, REC French, Haitian Kreyol, Portuguese, Spanish, Vietnamese Boston Youth Zone Maintains resource information on activities, opportunities, and other fun information for children and teens, plus important information and resources for parents. 1483 Tremont Street Roxbury, MA 02119 Phone: 617-635-4202 Email: [email protected] Website: www.bostonyouthzone.com Serving: Boston Categories: REC

69 Boy Scouts of America - The Spirit of Adventure Council Resources

Boy Scouts of America - The Spirit of Brain Injury Association of America (cont.) Adventure Council Inclusive recreational opportunities through local Packs. Western Region 180-C Elm Street 411 Unquity Road Pittsfield, MA 01201 Milton, MA 02186 Phone: 413-443-0200, 888-554-5553 Phone: 617-615-0004 Fax: 413-443-0211 Fax: 617-615-0005 Email: [email protected] Email: [email protected] Website: www.biama.org Website: www.scoutspirit.org Serving: Western Serving: Statewide Categories: REC Brain Trauma Foundation (BTF) Additional Languages: Spanish Improves the outcome of patients worldwide by developing best practices, conducting research, and educating medical Brain Injury Association of America professionals and consumers. Information, education and support to assist children and adults 1999 S. Bascom Avenue, Suite 1040 living with traumatic brain injury TBI and their families. Campbell, CA 95008 1608 Spring Hill Road, Suite 110 Phone: 408-369-9735 Vienna, VA 22182 Website: www.braintrauma.org Phone: 703-761-0750, 800-444-6443 Serving: National Fax: 703-761-0755 Categories: HC, SC Email: [email protected] Website: www.biausa.org Braintree St. Coletta Day School Serving: National Provides academic, vocational, and support services to children Categories: SC ages 3 to 22 who have autism and/or developmental disabilities. Massachusetts Chapter 85 Washington Street 30 Lyman Street Braintree, MA 02184 Westborough, MA 01581 Phone: 781-848-6250 Phone: 508-475-0032, 800-242-0030 Fax: 781-848-0604 TTY: 508-948-0593 Email: [email protected] Fax: 508-475-0040 Website: cushingcenters.com Email: [email protected] Serving: Statewide Website: www.biama.org Categories: ED, TR Serving: Statewide Additional Languages: Translator upon Request

Southeast Region Brave Kids 3119 Cranberry Highway, Suite 5F A UCP initiative for children and youth with disabilities and East Wareham, MA 02538 chronic illnesses, providing an online social networking Phone: 508-743-0333, 888-607-7678 community, and information on conditions and diagnoses. Fax: 508-743-0335 c/o UCP Email: [email protected] 1825 K Street NW, Suite 600 Website: www.biama.org Washington, DC 20006 Serving: Southeast Phone: 202-776-0406, 800-872-5827 Email: [email protected] Website: www.ucp.org Serving: National Categories: CS&I, I&R, SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 70 Resources Camp Alsing

Bridget Brigade Foundation Bug’s Bikes Provides direct funding to offset monthly expenses to families Provides funding to families raising children with disabilities, so of children who have cancer, Mitochondrial Disease, or other they can buy a sometimes costly adapted bike, and can assist serious medical conditions. A second fund can offer quality-of- families to identify bike-riding training resources. life funds for the family. 5 Maxwells Green, #101 9 Emerson Road Somerville, MA 02144 Winchester, MA 01890 Phone: 617-293-6503 Email: [email protected] Email: [email protected] Website: www.bridgetbrigade.org Website: www.bugsbikes.org Serving: National Serving: Statewide Categories: COMM, CS&I Categories: CS&I, REC

Bridging the Horizon Cambridge Housing Authority Bridging the Horizon is a 501c3 non-profit initiative aimed at A Department of the City of Cambridge with a mission to providing entertainment experiences for people with Special develop and manage affordable housing for residents. Needs at a low cost. 362 Green Street, 3rd Floor 38 Plaisted Circle Cambridge, MA 02139 Salem, NH 03079 Phone: 617-864-3020 Phone: 603-401-5907 TTD: 800-545-1833 x112 Email: [email protected] Fax: 617-868-5372 Website: www.bridgingthehorizon.org Website: www.cambridge-housing.org Serving: National Serving: Metrowest Categories: REC Categories: HOUS Additional Languages: Haitian Kreyol, Portuguese, Spanish Brockton Area Arc Provides a variety of support services for individuals who have Camera Mouse intellectual or developmental challenges and their families. Software developed to help people with disabilities use the 1250 West Chestnut Street computer, available for free download. Mainly for people who do Brockton, MA 02301 not have reliable control of a hand but who can move their head. Phone: 508-583-8030 Egan Professor of Computer Science Fax: 508-583-1739 Carroll School of Management Email: [email protected] Boston College Website: www.brocktonareaarc.org Fulton Hall 460 Serving: Southeast Chestnut Hill, MA 02467 Categories: ARC Email: [email protected] Additional Languages: Cape Verdean Kriolu, Haitian Kreyol, Website: www.cameramouse.org Spanish Serving: National Categories: AT Brockton Area Multi-Services, Inc. (BAMSI) Camp Alsing Offers resources and support, developmental disabilities services, Camp Alsing is a residential summer camp in Unity Maine for education, family support and stabilization services, individual children with high-functioning autism. Alsing campers become and family counseling, and more. more connected and flexible through our program of fun and 10 Christy’s Drive engaging activities. Brockton, MA 02301 81 Brighton Avenue Phone: 508-580-8700 Portland, Maine 04102 Fax: 508-580-3114 Phone: 207-805-4155 TTY: 508-580-0437 Website: www.campalsing.com Email: [email protected] Email: [email protected] Website: www.bamsi.org Serving: National Serving: Southeast Category: REC, SC Categories: CS&I Additional Languages: Cape Verdean Kriolu, Haitian Kreyol, Portuguese, Spanish

71 Canine Companions for Independence Resources

Canine Companions for Independence Cape Cod Challenger Club Provides highly-trained assistance dogs for children ages 5 and Provides recreational activities to enrich the quality of life for up—and adults with disabilities, free of charge. children and young adults with physical and/or developmental 286 Middle Island Road disabilities. Medford, NY 11763 418 Bumps River Road Phone: 631-561-0200, 800-572-2275 Osterville, MA 02655 Fax: 631-561-0230 Phone: 508-420-6950, Ext: 1136 Website: www.cci.org/northeast Fax: 508-420-6959 Serving: National Email: [email protected] Categories: SA Website: www.capecodchallenger.org Serving: Southeast Canines for Disabled Kids Categories: REC Promotes the promotion of child-canine assistance teams to promote independence and social awareness. Cape Cod Village, Inc. 255 Park Avenue, Suite 601 Strives to meet the ongoing residential and community living Worcester, MA 01609 needs of adults on the Autism Spectrum Disorder. Phone: 978-422-5299 P.O. Box 2129 Fax: 978-422-7380 Orleans, MA 02653 Email: [email protected] Phone: 774-316-4640 Website: www.caninesforkids.org Serving: Statewide Email: [email protected] Categories: SA Website: www.capecodvillage.org Serving: Southeast Canine Partners for Life (CPL) Categories: HOU, TR Dedicated to training service dogs, home companion dogs, and residential companion dogs to assist individuals who have a Cape Organization for Rights wide range of physical and cognitive disabilities. of the Disabled (CORD) P.O. Box 170 Provides information and referral, advocacy, independent living Cochranville, PA 19330 program, deaf and hard of hearing independent living program Phone: 610-869-4902 and peer assistive technology program. Fax: 610-869-9785 106 Bassett Lane Email: [email protected] Hyannis, MA 02601 Website: www.k94life.org Phone: 508-775-8300, 800-541-0282 Serving: National Fax: 508-775-7022 Categories: SA TTY: 800-541-0282 Email: [email protected] Cape and Islands United Way Website: www.cilcapecod.org Information specialists throughout the state are available Serving: Southeast to direct families to appropriate local services. Included are Categories: ADV, ILC, I&R programs and services for individuals with disabilities. Additional Languages: Spanish P.O. Box 367 1600 Falmouth Road, Unit 25 Centerville, MA 02632 Phone: 508-775-4746, 800-462-8002 Fax: 508-778-9228 Email: [email protected] Website: www.uwcapecod.org Serving: Southeast Categories: I&R Additional Languages: Spanish Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 72 Resources Caring Bridge

Cape Verdean Association of Brockton, Inc. Career Point Serves the Cape Verdean community in the Greater Brockton Assists job seekers of all abilities in learning effective tools for area by providing social services, education, health, becoming competitive in today’s labor market. Career planning employment, referral services and consular assistance. assistance, workshops, and resume development; job postings. 575 N. Montello Street 850 High Street Brockton, MA 02301 Holyoke, MA 01040 Phone: 508-559-0056 Phone: 413-532-4900 Fax: 508-559-9337 Fax: 413-532-0737 Email: [email protected] Email: [email protected] Website: www.cvassociation.webs.com Website: www.careerpointma.org Serving: Southeast Serving: Central, Western Categories: ADV, COMM Categories: TR Additional Languages: Cape Verdean Kriolu, Portuguese Additional Languages: Spanish

CapeAbilities Caregivers Action Network Supporting people with disabilities across Cape Cod; offers Serves a broad spectrum of caregivers from the parents of life skills training and employment, residential, and children with special needs to the families of wounded soldiers. transportation services. 1130 Connecticut Avenue NW, Suite 300 Lydon Center Washington, DC 20036 895 Mary Dunn Road Phone: 202-454-3970 Hyannis, MA 02601 Email: [email protected] Phone: 508-778-5040 Website: www.caregiveraction.org Fax: 508-778-9642 Serving: National Email: [email protected] Categories: ADV, CS&I Website: www.CapeAbilities.org Serving: Southeast Caribbean Foundation of Boston, Inc. Categories: TR To prevent unnecessary institutionalization of the elderly and disabled, while providing worthwhile jobs for local people. CAPEable Adventures, Inc. 317 Blue Hill Avenue Chapter of Disabled Sports USA, promoting adaptive sports and Dorchester, MA 02121 outdoor recreation. For local residents children and adults-and Phone: 617-445-1228 visitors to the Cape who have any disability. Fax: 617-427-6355 36 Atkins Road, #C1 Email: [email protected] East Sandwich, MA 02537 Website: www.caribbeanfoundationofboston.com Phone: 508-566-3298 Serving: Boston Email: [email protected] Categories: ADV, COMM, TR Website: www.capeableadventures.org Serving: Southeast Caring Bridge Categories: REC Free, personalized websites that support and connect loved ones during critical illness, treatment and recovery. Cardinal Cushing Centers 2750 Blue Water Road, Suite 275 Provides academic, vocational, housing, recreational, and Eagan, MN 55121 transition services for individuals ages 6-22 with autism and Phone: 651-452-7940 developmental disabilities. Fax: 651-681-7115 405 Washington Street Email: [email protected] Hanover, MA 02339 Website: www.caringbridge.org Phone: 781-826-6371 Serving: National Fax: 781-826-1559 Categories: CS&I Email: [email protected] Website: www.cushingcenters.org Serving: National, Statewide Categories: ED, REC, TR Languages: Translator upon Request

73 Caring Connections Resources

Caring Connections Casa Latina, Inc. Online assistance on Specific Advance Directives, hospice, end- Latino-led and Latino-focused organization. Promotes self- of- life, financial planning, caregivers, grieving, palliative care. sufficiency and a sense of community among local Latinos to NHPCO develop educational, access and action programming. 1731 King Street 140 Pine Street, #6 Alexandria, VA 22314 Florence, MA 01062 Phone: 800-658-8898 Phone: 413-586-1569 Email: [email protected] Fax: 413-586-1597 Website: www.caringinfo.org Website: www.casalatinainc.org Serving: National Serving: Western Categories: HC Categories: CS&I

Carroll Center for the Blind Catholic Charities Serves blind/visually-impaired persons by providing A multi-service agency serving refugees and immigrants. rehabilitation, skills training, education, and self-sufficiency. Email: [email protected] Summer programs for students ages 15-22. Website: ccab.org 770 Centre Street Categories: CS&I Newton, MA 02458 Serving: Statewide Phone: 617-969-6200, 800-852-3131 Email: [email protected] Boston Website: www.carroll.org 51 Sleeper Street Serving: Statewide Boston, MA 02210 Categories: AT, ED, SC, TR Phone: 617-482-5440

Carroll Tech Brockton A web-based distance learning service for blind and visually 169 Court Street impaired individuals and rehabilitation professionals. Brockton, MA 02302 770 Centre Street Phone: 508-587-0815 Newton, MA 02458 Fax: 508-580-0837 Phone: 617-969-6200, 800-852-3131 Website: www.carrolltech.org Lowell Serving: Statewide Merrimack Valley Catholic Charities Categories: ED, SC 70 Lawrence Street Lowell, MA 01852 Carson Center for Human Services Phone: 978-452-1421 Offers behavioral health and wellness programs including assistive technology, family support, adult day, and summer Somerville camp and internships for transition-age youth. 270 Washington Street Somerville, MA 02143 77 Mill Street Phone: 617-625-1920 Westfield, MA 01085 Fax: 617-629-2246 Phone: 413-568-1421

Fax: 413-572-4104 Springfield Email: [email protected] 65 Elliot Street Website: www.carsoncenter.org Springfield, MA 01105 Serving: Western Phone: 413-452-0605 Categories: COMM Fax: 413-452-0647 Website: www.diospringfield.org

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 74 Resources Center for Parent Information and Resources

Catholic Charities (cont.) National 7011 8th Street NW Worcester Washington, DC 20012 10 Hammond Street Phone: 202-986-3000 Worcester, MA 01610 Fax: 202-986-6648 Phone: 508-798-0191 Email: [email protected] Email: [email protected] Serving: National Website: www.ccworc.org Additional Languages: Spanish

Catholic Social Services of Fall River Statewide A multi-service agency serving and resettling refugees and 105 Chauncy Street, 6th Floor, Suite 3 immigrants. Boston, MA 02111 1600 Bay Street Phone: 617-451-0855 P.O. Box M/South Station Fax: 617-451-1167 Fall River, MA 02724 Email: [email protected] Phone: 508-674-4681 Serving: Statewide Fax: 508-675-2224 Email: [email protected] Center for Living and Working Website: www.cssdioc.org Serving: Southeast Promotes the full inclusion of persons with disabilities in society Categories: COMM and the development of Independent Living Centers. Website: www.centerlw.org Center Club, Inc. Categories: HOUS, ILC To provide comprehensive, effective, and innovative community- oriented rehabilitation services to individuals significantly Fitchburg challenged by mental illness in the Boston area. 76 Summer Street 31 Bowker Street Fitchburg, MA 01420 Boston, MA 02114 Phone: 978-345-1568 Phone: 617-788-1000 TTY: 978-345-1568 Fax: 617-788-1070 Fax: 978-342-5412 Email: [email protected] Serving: Central Website: www.centerclubboston.org Serving: Boston, Metrowest Worcester Categories: CS&I, SC 484 Main Street, Suite #345 Additional Languages: Spanish Worcester, MA 01608 Phone: 508-798-0350, 800-570-4020 Center for Applied Special Technology (CAST) TTY: 508-755-1003 Provides technology for individuals with disabilities, resource VP: 508-762-1164 and development, advocacy for inclusion in schools, and use of Fax: 508-797-4015 adaptive devices. Email: [email protected] Serving: Central 40 Foundry Street, 3rd Floor Additional Languages: Spanish Wakefield, MA 01880

Phone: 781-245-2212 Email: [email protected] Center for Parent Information and Resources Website: www.cast.org The central resource for Parent Training Information PTI-Centers Serving: Statewide and Community Parent Resource Centers (CPRCs). Categories: AT c/o Statewide Parent Advocacy Network 35 Halsey St., Fourth Floor Center for Law and Education Newark, NJ 07102 Works to advance the right of all students to a high-quality Phone: 973-642-8100, Ext: 106 education. Email: [email protected] Website: www.parentcenterhub.org/find-your-center Website: www.cleweb.org Serving: National Categories: LGL Categories: ADV, ED Additional Languages: Spanish

75 Center for Patient Partnerships/University of Wisconsin - Madison Resources

Center for Patient Partnerships/University of Central Mass. Safety Council, Inc. Wisconsin - Madison CMSC auto school will assist individuals with physical, Provides free health care advocacy services to patients with life- intellectual, emotional or social disabilities to determine if they threatening and serious illness and their families. would be eligible for a Massachusetts Driving License. 975 Bascom Mall, Suite 4311 186 West Boylston Street, Route 12 Madison, WI 53706-1399 Wachusett Plaza Phone: 608-890-0321 West Boylston, MA 01583 Email: [email protected] Phone: 508-835-2333 Website: www.patientpartnerships.org Fax: 508-835-2869 Serving: National Email: [email protected] Categories: ADV, HC, SC&I Website: www.centralmasafety.org Serving: Statewide Center on the Social and Emotional Foundations Categories: ACC, AT, TA for Early Learning (CSEFEL) Strengthens the capacity of Head Start and child care programs Central Massachusetts Housing Alliance to improve the social and emotional outcomes of young Provides listing of local shelters, subsidized apartments, and children; offers technical assistance and online Parent single room occupancies for single individuals. Tenant’s rights Training Modules. information and access to Housing Assistance Program also. Vanderbilt University 6 Institute Road Dept. of Special Education Worcester, MA 01609 Box 328 GPC Phone: 508-752-5519 Nashville, TN 37203 Fax: 508-752-5009 Phone: 615-322-8150 Email: [email protected] Fax: 615-343-1570 Website: www.cmhaonline.org Email: [email protected] Serving: Central Website: www.csefel.vanderbilt.edu Categories: HOUS Serving: National Categories: CS&I, ED CENTRO Multi-service, multi-cultural community center for family and Centering Corporation individual empowerment and advocacy services; coordinates Maintains comprehensive education and resources for bereaved community activities and support, offers counseling and mental children and adults, as well as educational workshops for health services, and serves as a DDS Family Support Center. caregivers and families. 11 Sycamore Street 7230 Maple Street Worcester, MA 01608 Omaha, NE 68134 Phone: 508-798-1900 Phone: 402-553-1200, 866-218-0101 Fax: 508-798-1908 Fax: 402-553-0507 Email: [email protected] Website: www.centering.org Website: www.centroinc.org Serving: National Serving: Central Categories: COMM Categories: COMM Additional Languages: Spanish

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 76 Resources Chelmsford Youth Baseball Patriot Division

Cerebral Palsy Association of Eastern Massachusetts Charles River Center Multi-service agency offering recreation and rehabilitation Provides a variety of support services for individuals who have programs, Early Intervention, physical therapy, occupational intellectual or developmental challenges and their families. therapy, speech therapy, day care, and personal care attendants. 59 East Militia Heights Road 103 Johnson Street Needham, MA 02492 Lynn, MA 01902 Phone: 781-972-1000 Phone: 781-593-2727, 800-454-2727 Fax: 781-444-5146 Fax: 781-593-2542 Email: [email protected] Website: www.cpfamilynetwork.org/resources/cerebral- Website: www.charlesrivercenter.org palsy-association-eastern-massachusetts/ Serving: Metrowest Serving: Northeast Categories: ARC Categories: CS&I, RES Additional Languages: Spanish Additional Languages: Spanish CHD - Center for Human Development Cerebral Palsy of Massachusetts Counsels, educates, and supports individuals, providing Provides recreation and rehabilitation programs including information and referrals, support services, and community physical therapy, occupational therapy, speech therapy, early presentations. intervention, day care, and Personal Care Attendants. 332 Birnie Avenue 600 Technology Center Drive Springfield, MA 01107 Stoughton, MA 02072 Phone: 413-733-6624, 800-232-0510 Phone: 800-924-7570, 877-479-7577 Fax: 413-439-2109 Fax: 617-479-5352 Email: [email protected] Email: [email protected] Website: www.chd.org Website: www.masscp.org Serving: Western Serving: Statewide Categories: CS&I, I&R Categories: HC, REC, RES, SC Additional Languages: Spanish

Challenge Unlimited, Inc. at Ironstone Farm CHD - Center for Human Development: Disability Instructive horseback riding programs for people with Resource Program disabilities. Many offer a sliding fee scale. Provides listing CFS’s Disability Resource Program offers adaptive sports loaner of PATH Intl. programs throughout the state. equipment, recreation and competition for individuals with 450 Lowell Street physical disabilities. Andover, MA 01810 367 Pine Street Phone: 978-475-4056, 877-632-8386 Springfield, MA 01105 Fax: 978-475-4046 Phone: 413-788-9695 Email: [email protected] Fax: 413-439-2109 Website: www.ironstonefarm.org Email: [email protected] Serving: Northeast Website: www.chd.org/disabilityresources Categories: REC Serving: Western Additional Languages: Spanish Categories: REC

Challenged Athletes Foundation Chelmsford Youth Baseball Patriot Division Provides grants for sports wheelchairs, hand cycles, mono skis, Offers a team experience to players with physical and or sports prosthetics, training and competition expenses to support intellectual disabilities ages 5-adult. This is available to residents athletic endeavors for individuals with physical disabilities. of Chelmsford, as well as other communities. 9591 Waples Street Chelmsford, MA 01824 San Diego, CA 92121 Email: [email protected] Phone: 858-866-0959 Website: www.chelmsfordyouthbaseball.org Fax: 858-866-0958 Serving: Northeast Email: [email protected] Categories: REC Website: www.challengedathletes.org Serving: National Categories: REC

77 Child and Family Services Resources

Child and Family Services Child Care Resources and Referral Networks Offers family counseling, advocacy, parent mentors, legal Provides information, referral, education, training, and technical consultation, family outings and groups. Services are free, assistance concerning child care to parents, childcare providers, confidential and voluntary. employers and community groups. Website: www.child-familyservices.org Phone: 800-345-0131 Serving: Northeast, Southeast Website: www.eec.state.ma.us/childcaresearch Categories: CS&I Categories: CC Additional Languages: Portuguese, Spanish, Interpreters Child Care Choices of Boston Headquarters 105 Chauncy Street, 2nd Floor 3057 Acushnet Avenue Boston, MA 02111 New Bedford, MA 02745 Phone: 617-542-5437 Phone: 508-990-0894 Email: [email protected] Fax: 508-990-0298 Website: www.childcarechoicesofboston.org Serving: Boston Emergency Services Additional Languages: Spanish 118 Long Pond Road, Suite 102 Plymouth, MA 02360 Child Care Circuit Phone: 800-469-9888 190 Hampshire Street Fax: 508-747-8835 Lawrence, MA 01840 Phone: 800-660-2868, 978-686-4288 Fall River Fax: 978-975-3120 66 Troy Street Email: [email protected] Fall River, MA 02720 Website: www.childcarecircuit.org Phone: 508-676-5708 Serving: Northeast Fax: 508-676-1948 Additional Languages: Spanish Categories: COMM Hyannis 100 Independence Drive, Unit 8 Child Care Network of Cape Cod and the Islands Hyannis, MA 02601 372 North Street Phone: 508-778-1839 Hyannis, MA 02601 Fax: 508-775-1245 Phone: 508-778-9470, 888-530-2430 Fax: 508-775-3710 Lawrence Email: [email protected] 439 South Union Street, Box D4 Website: www.childcarenetwork.cc Lawrence, MA 01843 Serving: Southeast Phone: 978-687-5852, Ext: 237 Additional Languages: Portuguese, Spanish Fax: 978-687-5857 Child Care Outlook Mental Health Clinic 393 Main Street 1061 Pleasant Street Greenfield, MA 01301 New Bedford, MA 02740 Phone/TTY: 413-774-2318 Phone: 508-996-8572, 800-722-5567 Fax: 413-773-3834 Fax: 508-991-8618 Email: [email protected] Website: www.communityaction.us Serving: Western Additional Languages: Spanish

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 78 Resources Children’s Dyslexia Center

Child Care Resource Center Children Making Strides Support and information for parents of children with Autism, Fitchburg including groups, trainings, mentoring, early intervention, school 1480 John Fitch Highway and home-based programs, referrals, and resources. Fitchburg, MA 01420 4 Barlows Landing Road, Suite 13 Phone: 978-343-7395, 800-660-6269 Pocasset, MA 02559 Fax: 978-342-6095 Phone: 508-563-5767 Serving: Central Fax: 508-563-5774 Additional Languages: Spanish Email: [email protected] Worcester Website: www.childrenmakingstrides.com 799 West Boylston Street Serving: Statewide Worcester, MA 01606 Categories: CS&I, SC Phone: 508-856-7930 Fax: 508-798-8735 Children’s Cerebral Palsy Movement Serving: Central Our mission is to improve the quality of life and outcomes of children with CP beginning with the design, funding, and Childhood Apraxia of Speech Foundation of implementation of an innovative therapeutic dance pilot study. North America Phone: 714-746-4085 Strengthens the support systems of children with apraxia, Email: [email protected] provides information in a comprehensive online library related Website: www.childrenscerebralpalsymovement.org to childhood apraxia. Serving: National 416 Lincoln Avenue Categories: CS&I Pittsburgh, PA 15209 Phone: 412-343-7102 Children’s Craniofacial Association Website: www.apraxia-kids.org Empowers and gives hope to individuals and families affected by Serving: National facial differences by addressing medical, financial, psychosocial, Categories: SC emotional, and educational needs. 13140 Coit Road, Suite 517 Children and Adults with Attention Deficit Disorder Dallas, TX 75240 CHADD Phone: 214-570-9099, 800-535-3643 Works to improve the lives of people with ADHD through Email: [email protected] education, advocacy and support. Offers support groups, Website: www.ccakids.com information and sharing. Serving: National Website: www.chadd.org Categories: SC Categories: SC Children’s Dyslexia Centers National The Scottish Rite Masons, Northern Masonic Jurisdiction offers 4601 President’s Drive, Suite 300 free tutoring for children with dyslexia and tutor training. There Lanham, MD 20706 are 3 centers in Mass. Newtonville, Woburn, and Worcester. Phone: 301-306-7070, 800-233-4050 500 West Cummings Park, Suite 4400 Fax: 301-306-7090 Woburn, MA 01801 Serving: National Phone: 781-281-0492 Additional Languages: Spanish Fax: 781-281-7059 Email: [email protected] or [email protected] Metrowest Website: www.childrensdyslexiacenters.org Wayland, MA Serving: Statewide Email: [email protected] Categories: SC Serving: Central, Metrowest

79 Children’s Flight of Hope Resources

Children’s Flight of Hope Children’s Hospital: Center for Families Founded to meet the transportation needs of children Provides families with information and referral resources to who require medical treatment many miles from home. find the supports they need to understand their child’s medical Mission request line: 919-460-4334. condition and take part in their child’s care. 1101 Aviation Parkway, Suite D 300 Longwood Avenue, Farley 111 Morrisville NC 27560 Boston, MA 02115 Phone: 919-466-8593 Phone: 617-355-6279 Fax: 919-655-1628 Fax: 617-730-1949 Email: [email protected] Email: [email protected] Website: www.childrensflightofhope.org Website: www.childrenshospital.org Serving: National Serving: Statewide Categories: TA Categories: CS&I, I&R Additional Languages: Spanish Children’s Friend & Family Services Offers mental health services, parent-to-parent support, Children’s Law Center of Massachusetts mentors, and intensive family services. Local offices in Lynn, Provides free legal service for children of low-income families in Lawrence, and Gloucester. areas affecting health, education and civil rights. 110 Boston Street 298 Union Street Salem, MA 01970 Lynn, MA 01901 Phone: 978-744-7905 Phone: 781-581-1977, 888-543-5298 Fax: 978-740-9145 Fax: 781-598-9364 Email: [email protected] Email: [email protected] Website: www.childrensfriend.net Website: www.clcm.org Serving: Central, Northeast Serving: Statewide Categories: CS&I, SC Categories: LGL Additional Languages: Spanish Additional Languages: Spanish

Children’s Friend, Inc. Children’s Room (an affiliate of Seven Hills Foundation) Provides a caring and safe support environment to children and Offers childcare, adoption and foster management, individual teenagers after the death of someone close to them, typically a and family counseling and bereavement and grief supports. parent or a sibling. 21 Cedar Street 1210 Massachusetts Avenue Worcester, MA 01609 Arlington, MA 02476 Phone: 508-753-5425 Phone: 781-641-4741 Fax: 508-757-7659 Fax: 781-641-0012 Email: [email protected] Email: [email protected] Website: www.childrensfriend.org Website: www.childrensroom.org Serving: Central Serving: Statewide Categories: CS&I Categories: COMM

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 80 Resources Citizen’s Housing and Planning Association

Children’s Services of Roxbury (CSR) Chromosome 9p-Network One of the largest, minority-operated human services agencies This nonprofit organization links families to resources and hosts in Massachusetts, serving more than 6,000 people annually. an annual event for Monosomy 9P, otherwise known as Alfi’s 520 Dudley Street Syndrome or 9P-, a rare chromosome anomaly. Roxbury, MA 02119 P.O. Box 71 Phone: 617-445-6655 Tillson, NY 12486 Fax: 617-541-5861 Phone: 920-931-2644 Email: [email protected] Email: [email protected] Website: www.csrox.org Website: www.9pminus.org Serving: Statewide Serving: National Categories: COMM, HOUS, I&R Categories: SC

Children’s Tumor Foundation Chromosome Disorder Outreach National organization providing support, informational An extensive online library of available up-to-date articles, material on the National Neurofibromatosis Foundation, newsletters, research opportunities, interaction with our medical the MA chapter, and Neurofibromatosis. advisory board, and a listserv that’s online 24 hours a day. 400 Crown Colony Drive, #601 P.O. Box 724 Quincy, MA 02169 Boca Raton, FL 33429 Phone: 617-456-4706 Phone: 561-395-4252 Fax: 617-773-5510 Email: [email protected] Email: [email protected] Website: www.chromodisorder.org Website: www.ctf.org Serving: National Serving: National Categories: SC Categories: SC Additional Languages: Spanish

Chromosome 18 Registry & Research Society Chronic Fatigue Immune Dysfunction An advocacy organization composed primarily of the parents of Advocates for effective medical research and treatments, individuals with one of the Chromosome 18 abnormalities. provides information and supportive services to help patients, 7155 Oakridge Drive their families and loved ones cope more effectively. San Antonio, TX 78229 P.O. Box 690305 Phone: 210-657-4968 Quincy, MA 02269 Fax: 210-657-4968 Phone: 617-471-5559 Email: [email protected] Fax: 617-472-5157 Website: www.chromosome18.org Email: [email protected] Serving: National Website: www.masscfids.org Categories: SC Serving: Statewide Categories: SC Chromosome 22 Central Online support group for all disorders related to Citizen’s Housing and Planning Association Chromosome 22. Website offers message boards, family Provides research and advocacy on disability housing. Runs the stories, and parent contacts. Hosts periodic family events. “Mass Access” program, which links persons with disabilities with owners and managers of accessible housing. 7108 Partinwood Drive 18 Tremont Street, Suite 401 Fuquay-Varina, NC 27526 Boston, MA 02108 Phone: 919-567-8167 Phone: 617-742-0820, 800-466-3111 Email: [email protected] Fax: 617-742-3953 Website: www.c22c.org Email: [email protected] Serving: National Website: www.chapa.org Categories: SC Serving: Statewide

Categories: HOUS

81 Clarke School for Hearing & Speech East Resources

Clarke School for Hearing & Speech Cochlear Implant Awareness Foundation Offers comprehensive audiological services. Hearing screening Provides information, resources, support, and financial and assessment available at Assistive Devices Center in assistance to persons who may be eligible for cochlear implants. Northampton. 130 South John Street 47 Round Hill Road Rochester, IL 62563 Northampton, MA 01060 Phone: 800-795-0824 Phone: 413-584-3450 Email: [email protected] TTY: 413-584-3450 Website: www.ciafonline.org Email: [email protected] Serving: National Website: www.clarkeschool.org Categories: AT, SC Serving: Western Additional Languages: American Sign Language Categories: AT, ED, SC Additional Languages: American Sign Language Collaborative Center for Assistive Technology and Training Clarke School for Hearing & Speech East An assistive technology training and evaluation center that Offers comprehensive audiological services. provides consultation to schools and offers a weekly open lab 1 Whitman Road time for parents and professionals. Canton, MA 02021 97 Hawley Street Phone: 781-821-3499 Northampton, MA 01060 TTY: 781-821-3499 Email: [email protected] Phone: 413-586-4900 Website: www.clarkeschool.org Fax: 413-586-0180 Serving: Boston, Central, Northeast, Metrowest, Southeast Email: [email protected] Categories: AT, ED, SC Website: www.collaborative.org Additional Languages: American Sign Language Serving: Western Categories: AT Cleft Palate Foundation National organization maintains an informative website Commission on the Status of Grandparents including materials on the condition and more for individuals Raising Grandchildren who have cleft lip and/or cleft palate. Offers a comprehensive, current Resource Guide for grandparents raising grandchildren; offers legal support at 1504 East Franklin Street, Suite 102 1-866-778-0939; offers local support groups across the state, Chapel Hill, NC 27514 information and resources. Phone: 919-933-9044, 800-242-5338 Fax: 919-933-9604 c/o Colleen Pritoni, GRG Coordinator Email: [email protected] 600 Washington Street, 6th Floor Website: www.cleftline.org Boston, MA 02111 Serving: National Phone: 617-748-2454 Categories: SC Email: [email protected] Additional Languages: Spanish Website: www.massgrg.com Serving: Statewide Categories: COMM

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 82 Resources Community Case Management (CCM)

Committee for Community Living, Inc. Community Autism Resources Inc. Provides supported housing, personal management skills, self- Information on Autism Spectrum disorders, newsletter, courses advocacy programs, family support counseling and mentoring, and clinics. Support to parent networks. evening social events, community education/outreach, and 33 James Reynolds Road, Unit C volunteer opportunities. Swansea, MA 02777 1301 Centre Street Phone: 508-379-0371, 800-588-9239 Newton, MA 02459 Fax: 508-379-0269 Phone: 617-964-6860 Website: www.community-autism-resources.com Email: [email protected] Serving: Southeast Website: www.nwwcommittee.org Categories: SC Serving: Metrowest Categories: CS&I, TR Community Birth/Loss Support Group Supports parents who have experienced miscarriage, stillbirth, Communities for People, Inc. or death of a newborn. Provides its clients with home-based clinical services, residential Jillian Mariani, LICSW and group homes, supervised Pre-independent and Independent UMass Memorial Health Care Living apartments, and several levels of intensive foster care. 119 Belmont Street 418 Commonwealth Avenue Worcester, MA 01605 Boston, MA 02215 Phone: 508-334-1298 Phone: 617-267-1031 Serving: Central Fax: 617-267-8552 Categories: COMM Website: www.communities-for-people.org Serving: Statewide Community Care for Kids Categories: ADV, CS&I, RES Information and referrals to licensed child care programs. 1509 Hancock Street Communities United Inc. Quincy, MA 02169 Education and family services for children 15 months- 5 years Phone: 617-657-5305 and their families Creative Start programs in Arlington, Newton, Email: [email protected] Waltham, Watertown, and Woburn. Website: www.qcap.org/our-programs/early-childhood- 109 Water Street, Unit 2D education-&-care/community-care-for-kids Watertown, MA 02472 Serving: Metrowest Phone: 617-744-6076 Categories: CC Fax: 617-744-6075 Website: www.communitiesunitedinc.org Community Case Management (CCM) Serving: Boston, Metrowest Case management program for medically complex children Categories: CC under 22 who require more than 2 hours of continuous nursing services per day to remain safely at home. Community Action of the Franklin, Hampshire and 333 South Street North Quabbin Regions Shrewsbury, MA 01545 Community Action provides social and advocacy services to Phone: 800-863-6068 people in Franklin and Hampshire Counties and the North Email: [email protected] Quabbin region of Massachusetts. Serving: HC, RES 393 Main Street Categories: Statewide Greenfield, MA 01301 Additional Languages: Spanish Phone: 413-774-2318 TTY: 413-774-2318 Fax: 413-773-3834 Email: [email protected] Website: www.communityaction.us Serving: Western Categories: ILC Additional Languages: Spanish

83 Community Connections Resources

Community Connections Community Music Center of Boston Day center, employment, transition, supported living, life skills, Provides music therapy education and music therapy to those transportation. Additional locations: Fall River, Plymouth, who most likely would not receive such opportunities due to Marion, Somerset and Mashpee. social, environmental, emotional and financial constraints. 261 White’s Path 34 Warren Avenue South Yarmouth, MA 02664 Boston, MA 02116 Phone: 508-362-1140, 800-308-1321 Phone: 617-482-7494 Fax: 508-362-9198 Fax: 617-482-6267 TTY: 508-398-2738 Email: [email protected] Email: [email protected] Website: www.cmcb.org Website: www.communityconnectionsinc.org Serving: Boston Serving: Southeast Categories: ED, REC Categories: CS&I, TR Community Music School of Springfield Community Gateway High-quality music training in a context that promotes multi- Provides Central Massachusetts with an internet gateway to culturalism in the greater Springfield community. Offers local and worldwide disability resources and events. Community instruction to students of all ages, abilities, and financial means. gateway also includes a statewide email support group. 127 State Street P.O. Box 150 Springfield, MA 01103 Grafton, MA 01519 Phone: 413-732-8428 Phone: 508-839-6172 Fax: 413-788-7270 Fax: 508-887-8812 Email: [email protected] Email: [email protected] Website: www.communitymusicschool.com Website: www.communitygateway.org Serving: Western Serving: CS&I, I&R Categories: REC Categories: Central Additional Languages: Spanish Community Resources for People with Autism Assists families, individuals, schools, and agencies in Western Community Legal Aid Mass. with information and support for children with autism. Civil legal service covering social security benefits, SSI, 116 Pleasant Street, Suite 366 employment and housing issues. Easthampton, MA 01027 405 Main Street, 4th Floor Phone: 413-529-2428, 800-892-7003 Worcester, MA 01608 Fax: 413-529-2567 Phone: 508-752-3718, 800-649-3718 Email: [email protected] TTY: 508-755-3260 Website: www.communityresourcesforautism.org Fax: 508-752-5918 Serving: Western Website: www.communitylegal.org Categories: SC Serving: Central, Western Additional Languages: Spanish Categories: LGL Additional Languages: Korean Russian, Spanish, Vietnamese

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 84 Resources Computing for College - Carrol Center for the Blind

Community Rowing COMPASS A variety of adaptive rowing programs for youth and adults A range of services including COMPASS School, a day program in who have physical and intellectual disabilities, and veterans Jamaica Plain, Holden School, a middle/high school program in Approved USOC Paralympic Sports Club. Chelsea, and supports for families who have involvement with Harry Parker Boathouse the Department of Children and Families. 20 Nonantum Road 294 Bowdoin Street Brighton, MA 02135 Dorchester, MA 02122 Phone: 617-779-8267 Phone: 857-220-2333 Fax: 617-779-8269 Fax: 617-506-8106 Email: [email protected] Email: [email protected] Website: www.communityrowing.org Website: www.compassboston.org Serving: Boston, Metrowest, Northeast Serving: Boston Categories: REC Categories: COMM, ED

Community Servings Compassion Fatigue Awareness Project A free program that provides medically appropriate meals and Promotes an awareness and understanding of Compassion nutritional assistance for people with acute life-threatening Fatigue and its effect on caregivers, along with practical illnesses, their dependents and their caregivers. resources to support caregivers. 18 Marbury Terrace Website: www.compassionfatigue.org Jamaica Plain, MA 02130 Serving: National Phone: 617-522-7777 Categories: COMM Fax: 617-522-7770 Email: [email protected] Compassionate Friends Website: www.servings.org Maintains a listing of local support groups in Massachusetts Serving: Statewide for individuals dealing with the death of a loved one, including Categories: CS&I those who have lost a child. 1000 Jorie Blvd., Suite 140 Community Teamwork, Inc. Oak Brook, IL 60523 CTI offers numerous programs across four divisions to assist Phone: 630-990-0010, 877-969-0010 with housing, food, child care and fuel assistance for those Fax: 630-990-0246 encountering financial hardships. Email: [email protected] 155 Merrimack Street Website: www.compassionatefriends.org Lowell, MA 01852 Serving: National Phone: 978-459-0551 Categories: COMM Fax: 978-453-9128 Website: www.commteam.org Computing for College - Carroll Center Serving: Northeast for the Blind Categories: CC, CS&I, HOUS Advanced computer training for visually impaired high school and college students, ages 15-22. Commonwealth Learning Center 770 Centre Street Provides 1:1 tutoring and assessment services to all ages in all Newton, MA 02458 subject areas. Specializing in working with individuals who learn Phone: 617-969-6200, 800-852-3131 differently. Email: [email protected] 220 Resevoir Street, Suite 6 Website: www.carroll.org Needham, MA 02494 Serving: Statewide Phone: 800-461-6671 Categories: AT, SC, TR Fax: 781-444-6916 Email: [email protected] Website: www.commlearn.com Serving: Boston, Northeast Categories: ADV, CS&I, ED, SC

85 Consumer Health Library at Baystate Health Resources

Consumer Health Library at Baystate Health CORSE: Scituate Community of Resources for A compendium of online health information in a wide variety of Special Education Foundation languages and EthnoMed, which provides ethnic and medical Parents and educators collaborating to create and fund information pertinent to immigrant and refugee groups. programming like after-school, recreational, technology, and 759 Chestnut Street training programs for special education students in Scituate. Springfield, MA 01199 P.O. Box 512 Phone: 413-794-1865 North Scituate, MA 02060 Email: [email protected] Phone: 781-545-7736 Website: www.libraryinfo.bhs.org/home Email: [email protected] Serving: Western Website: www.corsefoundation.org Categories: CS&I, HC, I&R Serving: Metrowest Additional Languages: French, Japanese, Portuguese, Categories: CS&I, ED, REC Vietnamese, Cape Verdean Kriolu, Haitian, Chinese, Hmong, Khmer, Russian, Kreyol, Spanish Costello Syndrome Family Network Offers a forum for families to connect and share information Cookies for Kids Cancer about Costello Syndrome. Hosts a bi-annual conference for Raises awareness and funds for pediatric cancer research; families and the medical community. coordinates fundraising events all over the country for those who 1702 Tyndall Drive want to help find cures for cancers of childhood. Panama City, FL 32401 P.O. Box 415 Phone: 848-228-CSFN (2736) Califon, NJ 07830 Email: [email protected] Phone: 888-978-5313 Website: www.costellosyndromeusa.org Email: [email protected] Serving: National Website: www.cookiesforkidscancer.org Categories: SC Serving: National Categories: I&R, SC Cotting School The first day school in the country for children with physical and Cornelia de Lange Syndrome Foundation, Inc. medical challenges to learning. We also operate HOPE House, a A host of services that attract, educate, and unite families post- graduate transitional residence serving 8 young adults. touched by this rare birth disorder. 453 Concord Avenue 302 West Main Street, #100 Lexington, MA 02421 Avon, CT 06001 Phone: 781-862-7323 Phone: 860-676-8166, 800-223-8355 Fax: 781-861-1179 Fax: 860-676-8337 Email: [email protected] Email: [email protected] Website: www.cotting.org Website: www.cdlsusa.org Serving: Statewide Serving: National Categories: AT, ED Categories: SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 86 Resources Crohn’s and Colitis Foundation of America

Council for Exceptional Children Creaky Joints A nationwide information network, sponsored by US DOE, which Wellness and exercise programs that help people with arthritis gathers information about the education and development of lead healthier, active lives with online and off-line resources. individuals who have disabilities and /or who are gifted. 515 North Midland Avenue 2900 Crystal Drive, Suite 1000 Upper Nyack, NY 10960 Arlington, VA 22202 Phone: 845-348-0400, 800-701-8275 Phone: 703-620-3660, 888-232-7733 Fax: 845-348-0210 Fax: 703-264-9494 Website: www.creakyjoints.org TTY: 866-915-5000 Serving: National Email: [email protected] Categories: ADV, HC, I&R, SC Website: www.cec.sped.org Serving: National Creative Living, Inc. Categories: ED, I&R Provides get-always for fun and relaxation in a safe, nurturing environment. Our home-like environment provides supervision Council of Parent Attorneys and Advocates and support; caring staff coordination activities and outings. An independent nonprofit, tax-exempt organization of 368 South Main Street attorneys, advocates, and parents. Our primary mission is P.O. Box 3177 to secure high quality educational services for children with Andover, MA 01810 disabilities. Phone: 978-470-3165 P.O. Box 6767 Fax: 978-470-3115 Towson, MD 21285 Email: [email protected] Phone: 410-372-0208, 844-426-7224 Website: www.creativelivingandover.org Fax: 410-372-0209 Serving: Statewide Website: www.copaa.org Categories: RES, TR Serving: National Categories: ADV, LGL Crohn’s and Colitis Foundation of America A nonprofit volunteer-driven organization dedicated to finding Courageous Parents Network the cure for Crohn’s Disease and ulcerative colitis. An online network for parents of children with life-limiting illness, providing resources and support around issues of National anticipatory grief and end-of-life planning. 733 Third Avenue, Suite 510 Newton, MA 02458 New York, NY 10017 Phone: 617-571-1779 Phone: 800-932-2423, 888-694-8872 Email: [email protected] Email: [email protected] Website: www.courageousparentsnetwork.org Website: www.crohnscolitisfoundation.org Serving: National Serving: National Categories: COMM, RES, SC Categories: SC Additional Languages: French New England Courageous Sailing 72 River Park Street, Suite 202 Courageous Sailing is a community that embraces sailing as a Needham, MA 02494 platform for life-long learning, personal growth and leadership; Phone: 781-449-0324, 800-314-3459 a center of sailing excellence committed to removing barriers to Fax: 781-465-7273 access for all Boston youth, the public and people with physical Email: [email protected] and intellectual challenges. Website: www.crohnscolitisfoundation.org/chapters/ Charlestown Navy Yard Serving: Statewide One First Avenue Categories: SC Boston, MA 02129 Phone: 617-242-3821 Fax: 617-635-3263 Email: [email protected] Website: www.courageoussailing.org Serving: Boston Category: REC

87 Crotched Mountain Accessible Recreation and Sports (CMARS) Resources

Crotched Mountain Accessible Recreation Cure SMA and Sports (CMARS) Cure SMA provides families with a variety of resources, from daily CMARS provides lessons for children with disabilities to learn life, to medical issues, to dealing with grief. to ski, snowboard, kayak, canoe, cycle, hike, and participate in 925 Busse Road sports with the support of adaptive equipment. Elk Grove Village, IL 60007 1 Verney Drive Phone: 800-886-1762 Greenfield, NH 03047 Fax: 847-367-7623 Phone: 603-547-3311 x1664 Email: [email protected] Email: [email protected] Website: www.curesma.org Website: www.crotchedmountain.org/Programs-and- Serving: National Services/accessible-recreation/ Categories: SC Serving: National Categories: REC New England Chapter Crotched Mountain ATech Services P.O. Box 2902 Marketplace for refurbished medical and adaptive equipment. Woburn, MA 01888 Phone: 508-476-2174 57 Regional Drive, #7 Email: [email protected] Concord, NH 03301 Serving: Statewide Phone: 603-226-2900 Website: www.rem.crotchedmountain.org Serving: National Cyclic Vomiting Syndrome Association Categories: AT Provides education and support to those affected by cyclic vomiting, abdominal migraine, and related disorders. Crystal Springs P.O. Box 270341 Provides educational, residential, therapeutic, medical, clinical Elkhorn, WI 53227 and behavioral services to children and adults living with severe Phone: 414-342–7880 to profound mental and physical disabilities. Fax: 414-342–8980 38 Narrows Road Email: [email protected] P.O. Box 372 Website: www.cvsaonline.org Assonet, MA 02702 Serving: National Phone: 508-644-3101 Categories: SC Fax: 508-644-2008 Email: [email protected] Cystic Fibrosis Foundation: Website: www.crystalspringsinc.org Massachusetts Chapter Serving: National The mission of the Cystic Fibrosis Foundation is to assure the Categories: ED development of the means to cure and control Cystic Fibrosis.

CSL Foundation 220 North Main Street, Suite 104 Provides support grants wishes, provides medical equipment, Natick, MA 01760 family assistance, scholarships, and education for children and Phone: 508-655-6000, 800-966-0444 teenagers struggling to overcome health and life challenges. Fax: 508-653-6942 30 North Avenue Email: [email protected] Burlington, MA 01803 Website: www.cff.org Phone: 781-222-5136 Serving: Statewide Fax: 781-222-5136 Categories: SC Email: [email protected] Website: www.csl-foundation.org Serving: Statewide Categories: COMM

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 88 Resources Delta Projects, Inc.

Dandy Walker Alliance DavidsProject Offers informational activities and works to increase awareness Offers camperships to children who are accepted to of the congenital birth defect Dandy-Walker. MPS summer camps. 10325 Kensington Parkway, Suite 384 260 Kala Heights Drive Port Kensington, MD 20895 Townsend, WA 98368 Phone: 877-326-3992 Phone: 360-379-0684 Email: [email protected] Fax: 360-858-7660 Website: www.dandy-walker.org Email: [email protected] Serving: National Website: www.davidsproject.org Categories: SC Serving: National Additional Languages: Spanish Categories: SC, RES

Danielle’s Foundation DB-LINK: National Information Clearinghouse on A non-profit resource for families of children with cerebral palsy Children Who Are Deaf-Blind and brain injuries. Provides education and estate planning, as National information clearinghouse for children birth-22 who well as grants for specialized equipment. are deaf and blind. Catalog and resource database, listings of 1 Liberty Place, 1650 Market Street, 36th Floor specialists and consultants. Services are free. Philadelphia, PA 19103 345 N. Monmouth Avenue Phone: 800-511-2283 Monmouth, OR 97361 Website: www.daniellesfoundation.org Phone: 508-838-8754, Serving: National TTY: 800-854-7013 Categories: AT, I&R, LGL, SC Fax: 503-838-8150 Email: [email protected] Dare to Dream Educational Farm Programs Website: www.nationaldb.org Therapeutic horseback riding programs for people with Serving: National disabilities of all ages. Categories: I&R, SC 16 Daniel Shays Highway Orange, MA 01364 Decoding Dyslexia Phone: 978-575-0341 Raise awareness of the value of early screening, the use of Fax: 978-575-0431 evidence- based education and remediation practice and, Email: [email protected] teacher training, for adults and children with the challenges Website: www.crimsonacres.org of Dyslexia. Serving: Central, Western Email: www.decodingdyslexiama.org Categories: REC Serving: Statewide Categories: SC Data Resource Center for Child and Adolescent Health Measurement Initiative Delta Projects, Inc. The Data Resource Center advances the effective use of public Provides long- and short-term respite for children and adults data on the health and health-related services for children, with developmental disabilities, plus an array of supports for youth and families in the United States. individuals with disabilities and their families. Department of Population, Family & Reproductive Health 118 Allied Drive Johns Hopkins Bloomberg School of Public Health Dedham, MA 02026 615 North Wolfe Street Phone: 781-449-8545 Baltimore, MD 21205 Fax: 781-449-8544 Email: [email protected] Email: [email protected] Website: www.cahmi.org Website: www.deltaprojects.org Serving: National Serving: Boston, Metrowest Categories: HC, I&R Categories: RES

89 Depression and Bipolar Support Alliance Resources

Depression and Bipolar Support Alliance Diamond is the Sky DBSA educates the public, healthcare professionals, and Provides affordable resources and social opportunities to people legislators about the diagnosis and treatment of bipolar of all ages with special needs as well as their families, educators, disorder and depression. and greater communities in the state of Massachusetts. 55 E. Jackson Blvd, Suite 490 P.O. Box 20234 Chicago, IL 60604 Worcester, MA 01602 Phone: 800-826-3632 Phone: 774-823-5016 Fax: 312-642-7243 Email: [email protected] Email: [email protected] Website: www.dits.org Website: www.dbsalliance.org Serving: Central Serving: National Categories: REC Categories: SC Additional Languages: Spanish Direction Service (CADRE) New England State-specific resources for state and local education and early 115 Mill Street intervention systems, sample letters (in 13 languages), literature P.O. Box 102 search tool, and parent centers, families and educators to Belmont, MA 02478 improve programs and results for children with disabilities. Phone: 617-855-2795 1144 Gateway Loop, Suite 200 Fax: 617-855-3666 Springfield, OR 97477 Email: [email protected] Phone: 541-686-5060 Website: www.dbsboston.org Fax: 541-686-5063 Serving: Statewide Website: www.directionservice.org/cadre Serving: National Developmental Delay Resources Categories: ADV, ED Dedicated to meeting the needs of those working with children Additional Languages: Spanish who have delays in sensory motor, language, social and emotional areas. Disabilities Commission 5801 Beacon Street To facilitate full participation in all aspects of life by persons Pittsburgh, PA 15217 with disabilities, the Commission works to remove architectural, Phone: 800-497-0944 procedural, attitudinal, and communication barriers. Fax: 412-422-1374 Email: [email protected] Boston City Hall Website: www.devdelay.org One City Hall Square, Room 967 Serving: National Boston, MA 02201 Categories: SC Phone: 617-635-3682 Fax: 617-635-3290 Developmental Evaluation and Adjustment Email: [email protected] Facilities, Inc. (DEAF, Inc.) Website: www.boston.gov/departments/disabilities- DEAF, Inc’s mission is to encourage and empower deaf commission individuals to lead an independent and productive life. Serving: Boston We provide comprehensive support. Categories: ACC 215 Brighton Avenue Additional Languages: Spanish Allston, MA 02134 Phone: 617-505-4823, 800-886-5195 TTY: 617-254-4041 Fax: 617-254-7091 Email: [email protected] Website: www.deafinconline.org Serving: Boston, Northeast, Southeast Categories: ADV, SC Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 90 Resources Disabled Persons Protection Commission

Disabilities Network, Massachusetts Western Council of Churches 32 Industrial Drive East Annual meeting for ecumenical fellowship, networking time, Northampton, MA 01060 leading to stronger ecumenical relations among those engaged Phone: 413-584-6337, 800-222-5619 in disability ministry. TTY: 413-582-6919 14 Beacon Street, Suite 416 Fax: 413-584-2976 Boston, MA 02108 Email: [email protected] Phone: 617-523-2771 Website: www.dlc-ma.org Fax: 617-523-1483 Serving: Western Email: [email protected] Categories: ADV, LGL Website: www.masscouncilofchurches.org Additional Languages: Spanish Serving: Statewide Categories: COMM Disability Policy Consortium Additional Languages: American Sign Language Promotes inclusion by guiding statewide development of policies people with disabilities to participate in the political, economic, Disability Evaluation Services and social mainstream of the Commonwealth of Massachusetts. Offers disability benefits and educational services including 11 Dartmouth Street, Suite 301 ergonomic evaluations, education and training programs, Malden, MA 02148 vocational rehabilitation services, assistance with Social Services Phone: 617-542-3822 Disability Insurance SSDI-applications and appeals. Fax: 877-234-9309 University of Massachusetts Medical School Email: [email protected] 55 Lake Avenue North Website: www.dpcma.org Worcester, MA 01655 Serving: Statewide Phone: 774-455-8293 Categories: ADV TTY: 800-720-3480 Phone: 800-888-3420 Disability Resources on the Internet Website: www.des.umassmed.edu/services/disability- A subject guide to thousands of the best disability resources transition-strategies on the internet, and a state-by-state guide to disability-related Serving: Statewide organizations on government agencies. Categories: ADV, HC, TR 4 Glatter Lane Centereach, NY 11720 Disability Law Center, Inc. Email: [email protected] Provides free legal assistance and training to people with Website: www.disabilityresources.org disabilities throughout the state in areas including special Serving: National education services, accessibility, and discrimination. Categories: COMM Statewide 11 Beacon Street, Suite 925 Disabled Persons Protection Commission Investigates and oversees allegations of abuse by caretakers Boston, MA 02108 to persons with disabilities ages 18-59 in state care and private Phone: 617-723-8455, 800-872-9992 settings. 24-HR. HOTLINE: 1-800-426-9009 TTY: 800-381-0577 Fax: 617-723-9125 300 Granite Street, Suite 404 Email: [email protected] Braintree, MA 02184 Website: www.dlc-ma.org Phone: 617-727-6465, 888-822-0350 Serving: Statewide TTY: 888-822-0350 Categories: ADV, LGL Fax: 617-727-6469 Additional Languages: Spanish Website: www.mass.gov/dppc Serving: Statewide Categories: LGL

91 Do It For The Love Resources

Do It For The Love Don Guanella Center Brings children with severe challenges, people living with life- A short-term emergency and residence respite for women with threatening illness and wounded veterans to live concerts to developmental delays, age 18 and older, located in Chelsea and inspire joy, hope and lasting celebratory memories. maintained by TILL Inc. 360 Grand Avenue, #350 37 Nichols Street Oakland, CA 94610 Chelsea, MA 02150 Phone: 844-484-3568 Phone: 781-302-4613 Email: [email protected] Email: [email protected] Website: www.doitforthelove.org/wishgrants Website: www.tillinc.org/respite.html Serving: National Serving: Boston Categories: COMM, REC Categories: RES

Doctor Franklin Perkins School Double “H” Ranch Offers residential educational program for boys who have Year-round fun and emotional support to children ages 6-16 Asperger Syndrome ages 12-18-and therapeutic day programs facing critical illness. Provides the venue for weekends sponsored for children ages 4-18 with mental health and behavioral needs. by a number of family-based support programs. 971 Main Street 97 Hidden Valley Road Lake Lancaster, MA 01523 Luzerne, NY 12846 Phone: 978-365-7376 Phone: 518-696-5676 TTY: 978-368-6437 Fax: 978-368-8861 Fax: 518-696-4528 Email: [email protected] Website: www.doublehranch.org Website: www.perkinsprograms.org Serving: National Serving: Statewide Categories: REC Categories: REC Doug Flutie, Jr. Foundation for Autism Dogs Building Opportunities for Nurturing and Aids families who need assistance in caring for their children Emotional Support (DOG-BONES) with autism; funds education and research into the causes and Provides well-trained therapy dog teams for visitation to nursing consequences of autism. facilities, hospitals, rehab centers, schools and other locations P.O. Box 2157 where they provide therapeutic contact with the elderly, the Framingham, MA 01703 disabled, or the young. Fax: 508-270-8855 Email: [email protected] 38 Garden Road Website: www.flutiefoundation.org Scituate, MA 02066 Serving: National, Statewide Phone: 781-264-5537 Categories: SC Email: [email protected] Additional Languages: Spanish Website: www.therapydog.info/index.htm

Serving: National Down Syndrome Autism Connection Categories: SA An online community for parents whose children have both Down syndrome and Autism Spectrum Disorder. Domesti-Pups P.O. Box 740893 Provides therapy dogs, trained rescue dogs and service dogs for Arvada, CO 80006-0893 persons with disabilities to improve quality of life. Phone: 720-757-7007 Lincoln, NE 68542 Email: [email protected] Phone: 1-866-515-pups (7877) Website: www.ds-asd-connection.org Email: [email protected] Serving: Statewide Website: www.domesti-pups.org Categories: COMM, SC Serving: National Categories: SA

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 92 Resources Dup15q Alliance

Down Syndrome Resource Group of Driver Rehabilitation Institute Western Massachusetts Offers resources for rehabilitation specialists, occupational Local supports and information shared by parents of children therapists, and families who want to support individuals with with Down Syndrome. Organizes support group meetings at developmental or intellectual disabilities to learn to drive. least three times a year and social activities for teen members. 29 Tafts Corner Center, #160 c/o Joanne Charland, President Williston, VT 05495 220 Brookdale Drive Phone: 802-233-8724 Springfield, MA 01104 Email: [email protected] Phone: 888-706-1670 Website: www.driverrehabinstitute.org Email: [email protected] Serving: National Website: www.dssupport.org Categories: TR Serving: Western Categories: SC Driving Advisement Program Dravet Syndrome Foundation, Inc. Clinical evaluations completed by a licensed and registered Promotes research, awareness, support to individuals with occupational therapist; on-road evaluation and training with a Dravet Syndrome and related epilepsies. Offers grants for licensed driving instructor may also be recommended. patients and also awards iPads. Mercy Medical Center P.O. Box 3026 271 Carew Street Cherry Hill, NJ 08034 Springfield, MA 01104 Phone: 203-392-1950 Phone: 413-748-6880 Fax: 203-907-1940 Website: www.mercycares.com Email: [email protected] Serving: Central, Western Website: www.dravetfoundation.org Categories: ACC Serving: National Additional Languages: Spanish Categories: I&R, SC Dunbar Community Center Dreams for Emily Offers recreational, educational, and mentoring programs. After- Raises awareness and advocates for IDIC15 and Autism. Raises school program includes tutoring, games and athletics. Summer funds to meet the needs of those affected, as well as monetary day camp program and multicultural services. donations to assist with research. 33 Oak Street 19 5th Avenue Springfield, MA 01109 Taunton, MA 02780 Phone: 413-788-6143 Phone: 508-617-7185 Fax: 413-781-8233 Email: [email protected] Website: www.springfieldy.org Website: www.dreamsforemily.com Serving: Western Serving: Statewide Categories: CS&I, REC, RES Categories: AT, SC Additional Languages: American Sign Language, Spanish

Drive Safe Program Dup15q Alliance Provides driver evaluations, upon request. Provides support and promotes awareness, research, and c/o Newton-Wellesley Hospital Department of targeted treatments for chromosome 15q duplication syndrome. Rehabilitation Services P.O. Box 1669 2014 Washington Street Highland Park, IL 60035 Newton, MA 02462 Phone: 855-387-1572 Phone: 617-243-6172 Email: [email protected] Website: www.nwh.org/departments-and-services/rehab/ Website: www.dup15q.org occupational-therapy/drive-safe Serving: National Serving: Metrowest Categories: SC Categories: ACC Additional Languages: Spanish

93 Dutile Tremblay Community Fund Resources

Dutile Tremblay Community Fund Early Intervention Family Alliance Scholarships for summer Autism Camps and scholarships for National organization of family members and supporters Tools for Trade to graduating Shawsheen Tech students. dedicated to improving the national early intervention program 121 Pollard Street for eligible infants and toddlers and their families. North Billerica, MA 01862 6545 North Olney Phone: 978-479-2668 Indianapolis, IN 46220 Website: www.dutile.org Email: [email protected] Serving: Statewide Website: https://disabilityinfo.org/records/early-intervention- Categories: COMM, ED family-alliance/ Serving: National Dysautonomia Youth Network of America, Inc. Categories: ADV, COMM Dedicated to serving young people who are diagnosed with various childhood Dysautonomia conditions. Provides youth East African Cultural Center (EACC) members with a support and outreach network. Serves as a community connection for families and individuals 1301 Greengate Court new to Western Mass. and seeking assistance with community Waldorf, MD 20601 and social services and connections. Phone: 301-705-6995 11 Wilbraham Road Fax: 301-638-3962 Springfield, MA 01109 Email: [email protected] Phone: 413-391-1872 Website: www.dynainc.org Email: [email protected] Serving: National Website: www.eaculturalcenter.blogspot.com Categories: SC Serving: Western Categories: COMM Dyslexia Association, Massachusetts Chapter Languages: Somali (MABIDA) Providing support to parents of children who have Dyslexia and Easter Seals Massachusetts their community of support. Camps; statewide information and referral. Assistive technology MABIDA program, job training and employment program in Worcester P.O. Box 562 and Boston. Summer camps are located in Poland, Maine and Lincoln, MA 01773 Hebron, Connecticut. Phone: 617-650-0011 Central Office Email: [email protected] 484 Main Street Website: www.massbranchida.org Worcester, MA 01608 Serving: Statewide Phone: 508-751-6350, 800-244-2756 Categories: SC TTY: 800-564-9700 Fax: 508-831-9768 Ear Community, Inc. Email: [email protected] Online community for those who have hearing loss, Microtia, Website: www.easterseals.com/ma Atresia, Hemifacial Microsomia, Treacher Collins, or Goldenhar Serving: Statewide Syndrome. Offers advocacy, information, support, and funding. Categories: AT, REC, TR 280 E. 1st Avenue, Unit 704 Broomfield, CO 80038 Email: [email protected] Website: www.earcommunity.com Serving: National Categories: SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 94 Resources Emergency Medical Services

Eating Disorder Hope Ehlers-Danlos Syndrome Network C.A.R.E.S Comprehensive website with general and condition-specific Dedicated to those affected by EDS. Information on current information, types of therapies, state by state support groups research, support networks, information for schools and more and treatment program listings, free webinars, and more can be found on their website. resources for adult and pediatric patients. P.O. Box 66 Phone: 888-274-7732 Muskego, WI 53150 Email: [email protected] Phone: 262-514-2851 Website: www.eatingdisorderhope.com Fax: 262-514-2851 Serving: National Email: [email protected] Categories: SC Website: www.ehlersdanlosnetwork.org Serving: National EDS Today Categories: ADV, I&R, SC Provides information and support to individuals affected by Ehler-Danlos, their families, and the medical community. Elizabeth Stone House P.O. Box 1382 Provides programs in English and Spanish to support parents’ Mays Landing, NJ 08330 emotional needs and promotes parenting skills. Phone: 609-385-6599 P.O. Box 300039 Email: [email protected] Jamaica Plain, MA 02130 Website: www.edstoday.org Phone: 617-427-9801 Serving: National Fax: 617-427-6252 Categories: SC Email: [email protected] Website: www.elizabethstonehouse.org Educational Resources Information Center Serving: Boston A national information system designed to provide ready Categories: COMM access to an extensive body of education-related literature. Additional Languages: Spanish Administered by the National Library of Education (NLE). ERIC Project c/o Computer Sciences Corporation Emergency Medical Services 655 15th Street NW, #500 Emergency medical services & information, education and Washington, DC 20005 technical support to public and medical providers about Phone: 800-538-3742 emergency medical services available in their community. Email: [email protected] Categories: HC Website: www.eric.ed.gov Serving: National Boston Categories: ED, I&R 785 Albany Street Additional Languages: Hmong, Spanish Boston, MA 02118 Phone: 617-343-2367 Ehlers-Danlos National Foundation Fax: 617-343-1199 Creates and shares resources, provides support, shares Email: [email protected] knowledge and funds research for those affected by the Website: www.cityofboston.gov/ems connective tissue disorder Ehlers-Danlos Syndrome. Serving: Boston Additional Languages: Spanish 7918 Jones Branch Drive, Suite 300 McLean, VA 22102 Cape and Islands Phone: 703-506-2892 26 Bayview Street Fax: 703-506-3266 West Yarmouth , MA 02673 Email: [email protected] Phone: 508-771-4510, 800-932-7345 Website: www.ednf.org Fax: 508-771-1692 Serving: National Email: [email protected] Categories: SC Website: www.ciemss.org Serving: Southeast Additional Languages: Portuguese, Spanish

95 Employment Options Inc. Resources

Emergency Medical Services (cont.) Empty Arms Empty Arms connects people who have experienced a Central miscarriage, stillbirth, or infant loss, with one another so that 361 Holden Street they feel less alone. Holden, MA 01520 Phone: 508-854-0111 140 Pine Street, Room B2 Fax: 508-853-3672 Florence, MA 01062 Email: [email protected] Phone: 413-544-5922 Website: www.cmemsc.org Email: [email protected] Serving: Central Website: www.emptyarmsbereavement.org Serving: Statewide Metrowest Categories: COMM 25 B Street, Suite A Burlington, MA 01803 Enriching Escapes Phone: 781-505-4367 It is our hope to make vacationing easier for families with Fax: 781-272-6967 disabilities by organizing and funding trips that include Email: [email protected] therapists of various disciplines. Enriching Escapes will provide Website: www.mbemsc.org financial assitance, up to the entire cost of a family’s “escape,” Serving: Metrowest, Northeast base on each family’s level of need. 3225 S MacDill Avenue, Suite 129-193 Southeast Tampa, FL 33629 12 Wareham Street, Suite C2 Email: [email protected] Middleboro, MA 02346 Website: www.enrichingescapes.org Phone: 508-946-3960 Serving: National Fax: 508-946-3961 Categories: COMM, REC Email: [email protected] Website: www.semaems.com EPIC, Empowering People for Inclusive Communities Serving: Southeast EPIC prepares young people with disabilities to be actively engaged community leaders through education, leadership Western development and community service. 168 Industrial Park Drive 89 South Street, Suite 406 Northampton, MA 01060 Boston, MA 02111 Phone: 413-586-6065 Phone: 617-917-5181 Fax: 413-586-0947 Fax: 617-917-5191 Email: [email protected] Email: [email protected] Website: www.wmems.org Website: www.epicleaders.org Serving: Western Serving: Statewide Categories: ADV, TR Employment Options Inc. The only program in Massachusetts focusing on parental Epilepsy Foundation mental health is a collaborative partnership with University of National organization that works for people affected by seizures Massachusetts Medical School, and AstraZeneca. through research, education, advocacy and service. Resource materials for consumers, schools, and community. 82 Brigham Street Marlborough, MA 01752 Categories: SC Phone: 508-485-5051 Fax: 508-485-8807 Email: [email protected] Website: www.employmentoptions.org Serving: Central, Metrowest Categories: COMM, TR

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 96 Resources Exceptional Lives

National EthnoMed 8301 Professional Place East, Suite 200 Website containing medical and cultural information about Landover, MD 20785-2353 many immigrant and refugee groups. Cultures include: Phone: 301-459-3700 Cambodian, Chinese, Eritrean, Ethiopian, Hispanic/Latino, Fax: 301-577-2684 Hmong, Karen, Oromo, Somali, Somali Bantu, Tigrean and Website: www.epilepsy.com Vietnamese. Serving: National Harborview Medical Center 325 Ninth Avenue Statewide Seattle, WA 98104 Epilepsy Foundation New England Phone: 206-744-4192 335 Main Street, #8 TTY: 206-744-2800 Wilmington, MA 01887 Website: www.ethnomed.org Phone: 617-506-6041, 888-576-9996 Serving: National Fax: 617-542-7312 Email: [email protected] Categories: COMM Website: www.epilepsynewengland.org Additional Languages: Spanish, Vietnamese, Chinese, Serving: Statewide Cambodian, Karen, Eritrean, Ethiopian, Hmong, Oromo, Additional Languages: Spanish Somali, Somali Bantu and Tigray

Equus Therapeutic, Inc. Every Life Foundation for Rare Diseases Instructive horseback riding programs for people with Dedicated to raising awareness of the need to screen, identify, disabilities. Many offer a sliding fee scale. and develop medical treatments and protocols to enhance the lives of those affected by rare diseases. 85 Miner Road Lanesborough, MA 01237 77 Digital Drive, Suite 210 Phone: 413-358-1535 Novato, CA 94949 Email: [email protected] Phone: 415-884-0223 Website: www.equustherapeutic.org Fax: 415-884-0562 Serving: Western Email: [email protected] Categories: REC Website: www.everylifefoundation.org Serving: National Categories: ADV, HC, REC ESPRIT Partnership for Independence Supports adults with learning disabilities and other related disorders living in Cape Cod. Exceptional Lives Free, online Guides for parents of children with developmental P.O. Box 433 disabilities to help them navigate through difficult processes Centerville, MA 02632 such as how find out if a child qualifies for special education, and Phone: 508-862-1662 access social security (SSI) and other disability benefits. Fax: 508-862-1665 Email: [email protected] 77 Heath Street Website: www.esprit-pfi.org Brookline, MA 02445 Serving: Southeast Phone: 617-388-3638 Categories: TR Email: [email protected] Website: www.exceptionallives.org Serving: Statewide Ethiopian Dream Center, Inc. Categories: CS&I, ED, I&R A one-stop place for Ethiopians and Africans seeking to orient themselves to life in America; education, training, social activities, housing, medical advocacy, immigration paperwork. 20 Millbury Street Worcester, MA 01610 Phone: 508-304-8692 Email: [email protected] Website: www.ethiopiandreamcenter.org Serving: Statewide Categories: ADV, COMM

97 Eye to Eye Resources

Eye to Eye Families of Adults Affected by Asperger’s Syndrome Using an arts-based curriculum, mentors help kids who have (FAAAS) learning disabilities and attention deficit hyperactivity disorder Promotes public awareness, community education, and family understand their way of learning and building self- esteem. support. Also brings awareness of Asperger Syndrome to medical 50 Broad Street, Suite 1702 communities and general population. New York, NY 10004 P.O. Box 514 Phone: 212-537-4429 Centerville, MA 02632 Email: [email protected] Phone: 508-790-1930 Website: www.eyetoeyenational.org Email: [email protected] Serving: National, Boston, Central, Metrowest, Western Website: www.faaas.org Categories: CS&I, SC, TR Serving: National Categories: SC FACES: National Craniofacial Association Dedicated to assisting children and adults who have craniofacial Families USA disorders resulting from disease, accident, or birth. A grassroots network of organizations and individuals working for the consumer perspective in national/state health policy. P.O. Box 11082 1225 New York Avenue NW, Suite 800 Chattanooga, TN 37401 Washington, DC 20005 Phone: 423-266-1632 Phone: 202-628-3030 Email: [email protected] Fax: 202-347-2417 Website: www.faces-cranio.org Email: [email protected] Serving: National Website: www.familiesusa.org Categories: SC Serving: National Categories: HC Families First Parenting Programs Strengthens families through parent education workshops and counseling. We also train professionals from diverse disciplines Family Autism Center – The Arc South Norfolk to enhance their capacity to support today’s families. Assists families, individuals, schools, and agencies with information and support for children with autism. 9 Galen Street, Suite 400 Watertown, MA 02472 789 Clapboardtree Street Phone: 617-868-7687 Westwood, MA 02090 Fax: 617-744-6981 Phone: 781-762-4001 Email: [email protected] Fax: 781-461-5950 Website: www.families-first.org Email: [email protected] Serving: Statewide Website: www.arcsouthnorfolk.org/family-autism-center.html Categories: COMM Serving: Metrowest Categories: SC Families for Depression Awareness Additional Languages: Spanish A national nonprofit organization helping families recognize and cope with depressive disorders. The organization provides Family Connect education, outreach and advocacy to support families. American Foundation for the Blind AFB-and the National 391 Totten Pond Road, Suite #101 Association for Parents of Children with Visual Impairments Waltham, MA 02451 NAPVI-website. Phone: 781-890-0220 Website: www.familyconnect.org Fax: 781-890-2411 Serving: National Email: [email protected] Categories: SC Website: www.familyaware.org Serving: National Categories: SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 98 Resources Family Resource Centers of Massachusetts

Family Information Needs Collection Cape Cod Family Resource Center A vast collection of books, videos, and other materials that 29 Bassett Lane pertain to disabilities, on loan to families in the Worcester area. Hyannis, MA 02601 Worcester Public Library Phone: 508-815-5100 3 Salem Square Worcester, MA 01608 Community Action Family Resource Center Phone: 508-799-1655 90 Federal Street TTY: 508-799-1724 Greenfield, MA 01301 Fax: 508-799-1713 Phone: 413-475-1555 Website: www.worcpublib.org Serving: Statewide The Family Center – Community Connections of Brockton Categories: I&R 1367 Main Street Additional Languages: Spanish Brockton, MA 02301 Phone: 508-857-0272 Family Promise Metrowest Family & Community Resource Center A cooperative, interfaith partnership offering homeless families 530 Broadway, 3rd Floor, Suite 301 transitional shelter, meals and case management as families Lawrence, MA 01841 seek permanent housing. Phone: 978-975-8800 P.O. Box 847 The Family Place Natick, MA 01760 61 Main Street, 2nd floor, Suite 218 Phone: 508-318-4820 North Adams, MA 01247 Website: www.familypromisemetrowest.org Phone: 413-663-7588 Serving: Metrowest Categories: HOUS Family Resource Center, Berkshire Children and Families 480 West Street Family Reach Foundation Pittsfield, MA 01201 Provides financial relief and support to families fighting pediatric Phone: 413-442-5333 cancers; funds provided by Family Reach primarily support everyday living and non-medical treatment related expenses Family Resource Center Family Service Association that arise during a child or young adult’s treatment period. 45 Rock Street 142 Berkeley Street, 4th Floor Fall River, MA 02720 Boston, MA 02116 Phone: 508-567-1735 Phone: 857-233-2764 Email: [email protected] The Family Resource and Development Center Website: www.familyreach.org 128 Union Street, 3rd Floor Serving: National New Bedford, MA 02740 Categories: CS&I, SC Phone: 508-994-4521

Family Resource Centers of Massachusetts Island Wide Youth Collaborative: Provides multi-cultural parenting programs, support groups, A Massachusetts Family Resource Center early childhood services, and information and referral resources 111 Edgartown Road for families. Oak Bluffs, MA 02557 Serving: Statewide Phone: 508-693-7900 Categories: CS&I Lynn Family Forward Resource Center Boston-Suffolk County Family Resource Center Centerboard, Inc. 780 American Legion Highway 16 City Hall Square Roslindale, MA. 02131 Lynn, MA 01901 Phone: 617-469-8501 Phone: 781-598-9467

The Bridge Family Resource Center MOC Fitchburg Family Resource Center 101 University Avenue, Suite A3 356 B Broad Street, 4th Floor Amherst, MA 01002 Fitchburg, MA 01420 Phone: 413-549-0297 Phone: 978-829-0163

99 Family Support Center, Charles River Association Resources

Nantucket Family Resource Center Family Voices 20 Vesper Lane, L-1 Gouin Village A national grassroots network advocating on behalf of children Nantucket, MA 02554 with special health care needs regarding health care reform on Phone: 508-332-6821 the state and federal level. P.O. Box 37188 NFI Family Resource Center of Greater Lowell Albuquerque, NM 87176 27 Prescott Street Phone: 505-872-4774, 888-835-5669 Lowell, MA 01852 Fax: 505-872-4780 Phone: 978-455-0701 Email: [email protected] Website: www.familyvoices.org Quincy Family Resource Center Serving: National 1120 Hancock Street Categories: ADV, HC Quincy, MA 02169 Phone: 617-481-7227 Federation for Children with Special Needs Provides information, support, and assistance to parents of The Springfield Family Support Programs children with disabilities, their professional partners, and Family Resource Center their communities. Services include through such services as 18 Gaucher Street its website, publications, phone consultation, conferences, Springfield, MA 01109 workshops, publications and many others. Phone: 413-733-7699 The Schrafft Center 529 Main Street, Suite 1M3 Worcester Connections Family Resource Center Boston, MA 02129 484 Main St., Suite 460, 4th floor Phone: 617-236-7210, 800-331-0688 Worcester, MA 01608 TTY: 800-331-0688 Phone: 508-796-1411 Fax: 617-241-0330 Email: [email protected] Family Support Center, Charles River Association Website: www.fcsn.org Information and referrals, trainings, support groups, case Serving: Statewide management and autism services specifically around advocacy, Categories: ADV, ED, I&R programs, and networking. Additional Languages: Cantonese, Portuguese, Spanish 4 Strathmore Road Natick, MA 01760 Feeding Tube Awareness Foundation Phone: 508-651-5900 Online resource for parents including a PDF Guide to Tube TTY: 781-972-0104 Feeding and resource information about living with a feeding Email: [email protected] tube for families, daycare, and schools. Website: www.charlesrivercenter.org P.O. Box 29 Serving: Metrowest New Hyde Park, NY 11040 Categories: I&R, REC Email: [email protected] Website: www.feedingtubeawareness.org Serving: National Categories: SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 100 Resources Foundation for Children with Mocoscephaly

FG Syndrome Family Alliance, Inc. First Signs, Inc. A voluntary, non profit organization dedicated to enhance the Dedicated to educating parents and pediatric professionals quality of life for those individuals and families affected by FG about the early warning signs of autism and other Syndrome or related disorders. developmental disorders. 922 NW Circle Blvd, Suite 160, PMB 290 P.O. Box 358 Corvallis, OR 97330 Merrimac, MA 01860 Email: [email protected] Email: [email protected] Website: www.fgsyndrome.org Website: www.firstsigns.org Serving: National Serving: National Categories: SC Categories: I&R, SC

Fidelity House Fitchburg Respite House Offers intensive case management services, respite, flexible Serves adults ages 18 and up. funding, support groups, Latino medical services, recreation, and 1460 John Hitch Highway residential services for persons with developmental disabilities. Fitchburg, MA 01420 Heritage Place Phone: 978-632-4322 439 South Union Street, Suite 401 Website: www.sevenhills.org Lawrence, MA 01843 Serving: Central Phone: 978-685-9471, Ext: 161 Categories: RES Fax: 978-687-0147 Email: [email protected] Food Allergy Research & Education Website: www.fidelityhhs.org Provides resources, diagnosis, treatment and management, and Serving: Northeast living with food allergies; specific types of allergens; supports for Categories: I&R, RES severe allergies and research opportunities. Additional Languages: Spanish 7925 Jones Branch Drive, Suite 1100 McLean, VA 22102 First Call for Help Phone: 800-929-4040 Comprehensive information and referral help line providing Fax: 703-691-2713 information on community, health, and human services. Email: [email protected] c/o United Way of Central Massachusetts Website: www.foodallergy.org 484 Main Street Serving: National Worcester, MA 01608 Categories: SC Phone: 508-757-5631 Fax: 508-757-2712 Foundation for Children with Microcephaly Email: [email protected] Provides information and parent-to-parent support for families Website: www.unitedwaycm.org of children who are diagnosed with Microcephaly, Lissencephaly, Serving: Central Polymicrogyria, or related disorders. Categories: I&R 21620 N 26th Ave., #140 Phoenix, AZ 85027 First Hand Foundation Phone: 623-476-7494 Provides funding for individual children under age 18-with Toll-Free Phone: 877-476-5503 health needs when insurance and other financial resources Email: [email protected], have been exhausted. [email protected] 2800 Rock Creek Parkway Website: www.childrenwithmicro.org Kansas City, MO 64117 Serving: National Phone: 816-201-1569 Categories: COMM, SC Email: [email protected] Website: www.firsthandfoundation.org Serving: National Categories: CS&I

101 Foundation for Faces of Children Resources

Foundation for Faces of Children Franciscan Hospital for Children, Adaptive Sports Dedicated to improving the lives of children with craniofacial Program conditions, including cleft lip, cleft palate, and other head and 3 adaptive sports programs for children who have special needs: facial differences. Adaptive Bike Camp and Adaptive Baseball Camp. 258 Harvard Street, #367 30 Warren Street Brookline, MA 02446 Brighton, MA 02135 Phone: 617-355-8299 Phone: 617-254-3800, Ext: 2280 Email: [email protected] Email: [email protected] Website: www.facesofchildren.org Website: www.franciscanhospital.org/mdc Serving: National Serving: Boston, Metrowest, Northeast Categories: SC Categories: REC Additional Languages: Spanish Franciscan Hospital for Children, Foundation for Grieving Children Hyman Novack Medical Day Care Center Provides grants to non-profit organizations and programs which Offers social opportunities to children 3 months to 6 years, with assist, educate, counsel and comfort children, teens, young complex medical needs requiring individualized education, adults and their families after a loved one’s death. developmental, and rehabilitative services. P.O. Box 162143 30 Warren Street Altamonte Springs, FL 32716 Brighton, MA 02135 Email: [email protected] Phone: 617-254-3800, Ext: 3500 Website: www.foundationforgrievingchildren.org Email: [email protected] Serving: National Website: www.franciscanhospital.org/mdc Categories: COMM Serving: Boston, Metrowest, Northeast Categories: CC, ED, HC, RES Foundation for Ichthyosis and Related Skin Types Offers information and medical research, including a national Franklin Community Action Corporation family conference, on ichthyosis and related disorders. Also offers Serving Franklin County and North Quabbin area, provides financial assistance. social and advocacy services and child care referrals. 2616 North Broad Street 393 Main Street Colmar, PA 18915 Greenfield, MA 01301 Phone: 215-997-9400 Phone: 413-774-2318 Toll-Free: 800-545-3286 TTY: 413-774-2318 Fax: 215-997-9403 Fax: 413-773-3834 Email: [email protected] Email: [email protected] Website: www.firstskinfoundation.org Website: www.communityaction.us Serving: National Serving: Western Categories: SC Categories: ADV, CC, CS&I Additional Languages: Spanish

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 102 Resources Friendship Home

Fraxa Research Foundation Friend and Children’s Service Funds research projects aimed at treatment and promoting The mission is to strengthen the life skills of families, children awareness of Fragile X; publishes a newsletter & informational and individuals of all ages. Programs include Early Childhood booklets, sponsors a web site & listserv, organizes parent programs through the Family Resource Center, Parent Education, advocacy groups, and holds fundraising events. Family Support programs and Teen Violence Prevention 10 Prince Place, Suite 203 and Asset Building Programs. Newburyport, MA 01950 111 North Common Street Phone: 978-462-1866 Lynn, MA 01902 Fax: 978-463-9985 Phone: 781-598-5517 Email: [email protected] Fax: 781-581-6614 Website: www.fraxa.org Email: [email protected] Serving: National Website: www.fcslynn.org Categories: SC Serving: Northeast Categories: CS&I Free Gas USA Provides financial assistance to individuals in need of gasoline Friend-2-Friend Social Learning Society to drive to work, medical appointments, school etc. Grants are Develops programs and educational materials to enhance awarded monthly to pre-qualified candidates based on level the public’s understanding of ASD. Latest focus is bullying and of income, need, circumstance and the availability of grant helping adults to understand their role in addressing it. funding. 2941 Kingsway P.O. Box 2632 Vancouver, BC, Canada V5R 5J2 Kalamazoo, MI 49003 Phone: 604-528-0560 Email: [email protected] Email: [email protected] Website: www.freegasusa.org Website: www.friend2friendsociety.org Serving: National Serving: National Categories: CS&I Categories: SC

Freedom From Fear Friends for Tomorrow A mental health advocacy association dedicated to impacting Enhances the lives of children facing extraordinary mental the lives of those affected by anxiety, depressive and related and physical challenges through the therapeutic benefits of disorders through advocacy, education, research and horseback riding. community support. P.O. Box 213 308 Seaview Avenue Lincoln, MA 01773 Staten Island, NY 10305 Phone: 781-259-8909 Phone: 888-442-2022 Fax: 781-259-8758 TTY: 718-351-1717 Email: [email protected] Fax: 718-980-5022 Website: www.friendsfortomorrow.org Email: [email protected] Serving: Metrowest Website: www.freedomfromfear.org Categories: REC Serving: National Categories: SC Friendship Home Quality respite care and support services for individuals with developmental disabilities and their families, as well as short- term overnight retreats, ranging from one night to two weeks. 458 Main Street P.O. Box 916 Norwell, MA 02061 Phone: 781-659-8202 Fax: 781-659-8205 Email: [email protected] Website: www.friendshiphome.net Serving: Metrowest Categories: RES, TR

103 FSI Foundation for Autism Resources

FSI Foundation for Autism Garrett Pressley Autism Resource Center Works to raise funds in the local community for families of Enhances the lives of children affected by Autism Spectrum children who have Autism Spectrum Disorder, raise Autism Disorder with a range of comprehensive services to address Awareness, and build community. Offers grants to Everett recreational, educational, social, and economic circumstances. families to benefit their child who has Autism. 468 Norfolk Street 80 Foster Street Mattapan, MA 02126 Everett, MA 02149 Phone: 617-216-1676 Phone: 617-593-3950 Fax: 617-296-4800 Email: [email protected] Email: [email protected] Website: www.fsi4autism.org Website: www.GPautismresourcecenter.org Serving: Northeast Serving: Boston Categories: CS&I, SC Categories: SC

GAAMHA Inc. GBS/CIDP Foundation International Provides vocational training for the developmentally Provides information, education and a network for patients disabled, school to work programs, substance abuse and affected by Guillain-Barré Syndrome and Chronic Inflammatory transportation services. Demyelinating Polyneuropathy and variants. 208 Coleman Street Extension 375 East Elm Street, Suite 101 Gardner, MA 01440 Conshohocken, PA 19428 Phone: 978-632-0934 Phone: 610-667-0131, 866-224-3301 Fax: 978-630-3337 Fax: 610-667-7036 Email: [email protected] Email: [email protected] Website: www.gaamha.com Website: www.gbs-cidp.org Serving: Central Serving: National Categories: TR Categories: SC

Gardner Community Action Committee Generation Rescue Information specialists are available to direct families to Dedicated to recovery for children with autism spectrum appropriate local services. disorders by providing guidance and support for medical 294 Pleasant Street treatment to directly improve the child’s quality of life. Gardner, MA 01440 13636 Ventura Boulevard, #259 Phone: 978-632-8700, 888-993-3322 Sherman Oaks, CA 91423 Fax: 978-630-4684 Phone: 877-982-8847 Email: [email protected] Website: www.generationrescue.org Website: www.gardner-cac.org Serving: National Serving: Central Categories: SC Categories: ADV, I&R Genesis Club, Inc. Assists individuals with a mental illness to attain employment, housing, wellness and friendships. 274 Lincoln Street Worcester, MA 01605 Phone: 508-831-0100 Fax: 508-753-1286 Email: [email protected] Website: www.genesisclub.org Serving: Statewide Categories: CS&I, SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 104 Resources Girl Scouts

Genesis Fund Get Palliative Care Provides funding for the specialized care and treatment of New Resource website to explain the concepts and provide resources England children born with birth defects, developmental and around Palliative Care services, including Pediatric Palliative intellectual disabilities, and genetic diseases. Care services around the country. Children’s Hospital Boston at Waltham Email: [email protected] 9 Hope Avenue Website: www.getpalliativecare.org Waltham, MA 02453 Serving: National Phone: 781-216-2840 Categories: HC Fax: 781-216-2845 Email: [email protected] Girl Power 2 Cure Website: www.thefeingoldcenter.org Raises public awareness, offers emotional support, and provides Serving: Statewide technical advice on educational, medical, and community Categories: HC matters among families living with Rett Syndrome. 1881 South 14th Street, #1 Genetic Alliance Amelia Island, FL 32034 Represents more than 600 consumer and health professional Phone: 904-277-2628 organizations, working together to improve the quality of life for Fax: 904-212-0587 everyone impacted by genetics. Email: [email protected] 4301 Connecticut Avenue NW, Suite 404 Website: www.girlpower2cure.org Washington, DC 20008 Serving: National Phone: 202-966-5557 Categories: ADV, I&R, SC Fax: 202-966-8553 Email: [email protected] Girl Scouts of Eastern MA Website: www.geneticalliance.org Offers a program during the school year for girls, regardless of Serving: National disability; also offers inclusive summer camps. Categories: HC, SC Serving: Statewide Categories: REC Genetic and Rare Diseases Information Center Provides information about rare genetic conditions, relevant Boston research, genetic testing, services available, advocacy groups, 420 Boylston Street, Suite 505 and information cited in medical journal articles. Boston, MA 02116 P.O. Box 8126 Phone: 617-482-1078, 844-306-4736 Gaithersburg, MD 20898 Fax: 617-482-9045 Phone: 301-251-4925, 888-205-2311 Email: [email protected] TTY: 888-205-3223 Website: www.gsema.org Fax: 301-251-4911 Additional Languages: Spanish Email: [email protected] Website: www.rarediseases.info.nih.gov/GARD Southeast Serving: National 111 East Grove Street Categories: HC, SC Middleboro, MA 02346 Phone: 508-923-0800, 800-242-0925 Genetics Home Reference Fax: 508-923-7676 Provides consumer-friendly information about a large number of Email: [email protected] genetic conditions. Includes a resource guide on finding genetics Website: www.girlscoutseasternmass.org professionals. Website: www.ghr.nlm.nih.gov Serving: National, Statewide Categories: HC, SC

105 Global Genes Resources

Girl Scouts of Central & Western MA Good Grief Program Worcester Offers training and consultation services to families, educators, 81 Goldstar Blvd health providers, and communities. Heart to Heart provides Worcester, MA 01606 free consultation to parents of grieving children, children facing Phone: 800-462-9100, 413-584-2602 serious illness or that of a loved one. Fax: 508-852-7674 Boston Medical Center Department of Pediatrics Good Grief Program Western Vose Hall 426 301 Kelly Way 72 East Concord Street Holyoke, MA 01040 Boston, MA 02118 Phone: 800-462-9100, 413-548-2602 Phone: 617-414-4005 Fax: 413-536-1383 Fax: 617-414-3361 Email: [email protected] Email: [email protected] Website: www.gscwm.org Website: www.bmc.org/programs/good-grief-program Additional Languages: Spanish Serving: Statewide Categories: COMM Global Genes A rare genetic disease patient advocacy organization, centered Good News Garage: A Program of Lutheran on increasing rare disease awareness, public and physician Social Services education, building community, and supporting research. Provides refurbished donated vehicles to people with disabilities 28 Argonaut, Suite 150 who otherwise could not afford to purchase their own. Cars will Aliso Viego, CA 92656 be used to transport the client to employment. Phone: 949-248-7273 340 Granite Street, 3rd Floor Email: [email protected] Manchester, NH. 03102 Website: www.globalgenes.org Phone: 603-669-6937, 877-400-6065 Serving: National Fax: 603-626-7763 Categories: ADV Email: bbuckley@ goodnewsgarage.org Website: www.goodnewsgarage.org Global Healthy Living Foundation Serving: Statewide Advocates for improved access to care, diagnosis, early Categories: TA and innovative medical intervention, long-term lifestyle improvement, and therapeutic compliance. Goodwill Industries of the Pioneer Valley 515 N. Midland Avenue Provides a wide range of services: case management, financial Upper Nyack, NY 10960 assistance, trained respite providers, family counseling, Phone: 845-348-0400 advocacy, social activities and job training. Fax: 845-348-0210 570 Cottage Street Email: [email protected] Springfield, MA 01104 Website: www.ghlf.org Phone: 413-788-6981 Serving: National Website: www.ourgoodwill.org Categories: HC Serving: Western Additional Languages: Spanish Categories: ADV, CS&I, I&R, REC, RES, TR Additional Languages: Portuguese, Spanish

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 106 Resources Greater Boston Legal Services

Grahams Foundation Graves Disease and Thyroid Foundation Empowers parents of premature babies through support, Provides information and support to parents, patients, family advocacy, and research to improve outcomes for their preemies members, caregivers, friends and professionals dealing with and themselves. Graves Disease or Thyroid Disorder. 1205 Louisiana Avenue P.O. Box 2793 P.O. Box 755 Rancho Santa Fe, CA 92067 Perrysburg, OH 43552 Phone: 877-643-3123 Phone: 888-466-2948 Email: [email protected] Email: [email protected] Website: www.gdatf.org Website: www.grahamsfoundation.org Serving: National Serving: National Categories: I&R, SC Categories: CS&I, HC, SC Great Schools Grandparents As Parents Resources Network of Online database profiles 200,000 public, private and charter Greater Lowell schools pre-K to grade 12; offers articles, worksheets and videos Provides information, training, and support for grandparents to help parents support learning at home. raising their grandchildren. Website: www.greatschools.org Merrimack Valley Catholic Charities Serving: National 70 Lawrence Street Categories: ED Lowell, MA 01854 Additional Languages: Spanish Phone: 978-452-1421 Fax: 978-454-9968 Greater Boston Legal Services Email: [email protected] Provides free civil non-criminal-legal assistance to low-income Website: www.ccab.org people in Boston and 31 cities and towns. Serving: Northeast Website: www.gbls.org Categories: COMM Categories: LGL Additional Languages: Spanish Boston Grandparents of Kids with Special Needs 197 Friend Street Online group for grandparents associated with the Kindering Boston, MA 02114 Center and the National Sibling Support Group, dedicated to the Phone: 617-371-1234, 800-323-3205 lifelong concern of brothers and sisters of people with special TTY: 617-371-1228 health, developmental and mental concerns. Fax: 617-371-1222 Website: www.gksn.org Serving: Statewide Serving: National Additional Languages: Chinese, Spanish, Vietnamese Categories: COMM Cambridge/Somerville Grandparents Raising Grandchildren 60 Gore Street, Suite 203 Serves as a resource to the commonwealth on issues affecting Cambridge, MA 02141 grandparents raising grandchildren, under the Executive Office Phone: 617-603-2700 of Elder Affairs. Staff can offer Information and Referral Services. Fax: 617-494-8222 c/o Colleen Pritoni, GRG Coordinator Serving: Metrowest 600 Washington Street Additional Languages: Spanish Boston, MA 02111 Phone: 617-748-2454 Asian Outreach Neighborhood Intake Locations Chinese Email: [email protected] Progressive Association Website: www.massgrg.com 28 Ash Street Serving: Statewide Boston, MA 02111 Categories: I&R Phone: 617-357-4499

107 Greater Boston Sickle Cell Disease Association, Inc. Resources

Greater Boston Sickle Cell Disease Greener Pastures Therapeutic Riding Association, Inc. Therapeutic horseback riding and hippotherapy under the Enhances life for individuals affected by Sickle Cell Disease or direction of a physical therapist or therapeutic riding instructor trait, with condition-specific information, support group and for people with disabilities. social supports, and community-building activities. 124 Proctor Road 1803 Dorchester Avenue Chelmsford, MA 01824 Dorchester, MA 02124 Phone: 978-244-1144 Phone: 617-825-4595 Email: [email protected] Email: [email protected] Website: www.flyingchangestables.com/greenerpastures Website: www.gbscda.org Serving: Central, Northeast Serving: Statewide Categories: REC Categories: SC Additional Languages: Spanish, Haitian Greenlock Therapeutic Riding Center Therapeutic horseback riding and Hippotherapy under the Greater Springfield Senior Services direction of a physical therapist or therapeutic riding instructor for people with disabilities. “You’re not alone” program offers $500 to $700 respite stipend for LGBT community members caring for disabled or frail 59 Summer Street partner, friend or family member. See eligibility criteria. Rehoboth, MA 02769 Phone: 508-252-5814 66 Industry Ave., #9 Fax: 508-252-5814 Springfield, MA 01104 Email: [email protected] Phone: 413-781-8800 Website: www.greenlock.org Website: www.gsssi.org Serving: Southeast Serving: Western Categories: REC Categories: CS&I, RES Growthways Greater Waltham Arc Provides supports for children and adults with developmental Agency dedicated to improving the lives of people with disabilities; social and recreational activities, case management, developmental disabilities and their families. and advocacy to reduce family stress. 56 Chestnut Street 41 North Pearl Street Waltham, MA 02453 Brockton, MA 02301 Phone: 781-899-1344 Phone: 508-941-6505 TTY: 781-899-8555 Fax: 508-583-7651 Fax: 781-899-2197 Email: [email protected] Email: [email protected] Website: www.growthways.org Website: www.gwarc.org Serving: Southeast Serving: Metrowest Categories: CS&I, RES Categories: ARC Additional Languages: American Sign Language, Spanish Guiding Eyes for the Blind Enriches the lives of those who have vision impairment or Autism Spectrum Disorder with trained dogs, for assistance, companionship, and emotional support. 611 Granite Springs Road Yorktown Heights, NY 10598 Phone: 845-878-3330, 800-942-0149 Fax: 845-878-3749 Website: www.guidingeyes.org Serving: National Categories: SA

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 108 Resources Heading Home, Inc.

Haitian American Public Health Initiatives Handi-Ramp Foundation Committed to working with and for the Haitian community in A free consulting service that works with real estate agents to the areas of culturally appropriate health education, support help families that have a member with a disability select the and advocacy, and opportunities for economic development. right home. 1601-1603 Blue Hill Avenue 510 North Avenue P.O. Box 260386 Libertyville, IL 60048 Mattapan, MA 02126 Phone: 847-996-6299 Phone: 617-298-8076 Fax: 847-816-8866 Email: [email protected] Email: [email protected] Website: www.haphi.org Website: www.handirampfoundation.org Serving: Boston, Metrowest, Southeast Serving: National Categories: ADV, COMM Categories: ACC Additional Languages: Haitian Kreyol Hands and Voices Hampshire County Community Resources A parent driven, parent/professional collaborative group & Advocacy dedicated to supporting children who are deaf or hard of Comprehensive information and referrals for Hampshire County, hearing and the professionals who serve them. including support groups, emergency assistance, and children P.O. Box 3093 and family services. Boulder, CO 80307 17 New South Street, Suite 116 Phone: 303-492-6283, 866-422-0422 Northampton, MA 01060 Email: [email protected] Phone: 413-582-4237 Website: www.handsandvoices.org Fax: 413-586-6715 Serving: National Serving: Western Categories: SC Categories: I&R Additional Languages: Spanish Hands to Angels Supports identification and eventual prevention of rare genetic Hand to Hold disorders and provides financial assistance to families coping Matches seasoned parents of preemies with parents in need with the many complications of these disorders. of support. The peer-to-peer relationship offers support from Phone: 804-241-2009 someone who is familiar with the experience of preterm birth, Email: [email protected] life in the NICU, a child born with special health care needs, Website: www.handstoangels.org pregnancy and/or infant loss. Serving: National Website: www.handtohold.org/support/match Categories: SC Serving: National Categories: COMM, HC Heading Home, Inc. Additional Languages: Spanish Offers housing in family, individual shelter units, and transitional housing in Boston, Cambridge, and Medford. Also maintains Handicapped Persons Plates and Placards Community Legal Assistance Service Project. Persons with diagnosed diseases or disorders which substantially c/o The Schrafft Center impair or interfere with mobility are eligible for HP license plates 529 Main Street, Suite 100 or placards. Charlestown, MA 02129 Registry of Motor Vehicles Phone: 617-864-8140 136 Blackstone Street Fax: 617-864-2541 Boston, MA 02109 Email: [email protected] Phone: 877-368-8000 Website: www.headinghomeinc.org Website: www.mass.gov/rmv Serving: Boston, Metrowest, Northeast Serving: Statewide Categories: ACC Categories: HOUS, LGL

109 Heads Up Mentor Program Resources

Heads Up Mentor Program Health Imperatives Peer mentoring program for children and youth, ages 8 to 22, Promotes positive decision-making skills, provides preventive who are living with a family member who has a mental illness. health and social services. 60 Gore Street 942 West Chestnut Street Cambridge, MA 02141 Brockton, MA 02301 Phone: 617-876-4210 Phone: 508-583-3005 (V/TTY) Fax: 617-661-9749 24/7 Hotline: 508-588-8255 Email: [email protected] Fax: 508-583-9809 Website: www.helpfamilies.org Email: [email protected] Serving: Boston, Metrowest Website: www.healthimperatives.org Categories: COMM Serving: Southeast Additional Languages: Spanish Categories: CS&I, HC Additional Languages: Cape Verdean Kriolu, Haitian Kreyol, Health Care For All Portuguese, Spanish A coalition of healthcare consumers and advocates providing information, referral, personal and legal advocacy regarding Health Law Advocates health care and health insurance in Massachusetts. Public interest law firm whose mission is to provide pro bono One Federal Street legal representation to low-income residents experiencing Boston, MA 02110 difficulty accessing or paying for needed medical services. Phone: 617-350-7279, 800-272-4232 Attn: Intake Coordinator TTY: 617-350-0974 One Federal Street, 5th Floor Fax: 617-451-5838 Boston, MA 02110 Website: www.hcfama.org Phone: 617-338-5241 Serving: Statewide Fax: 617-338-5242 Categories: ADV, HC Email: [email protected] Additional Languages: Spanish Website: www.healthlawadvocates.org Serving: Statewide Health Finder: National Health Categories: ADV, HC, LGL Information Center Additional Languages: Spanish NHIC is a health information referral service that links consumers and health professionals with health questions to organizations Health Reach best able to provide answers. Multilingual health information for refugees and their 1101 Wootton Parkway health care providers, offering a wide variety of materials Rockville, MD 20852 in 100 languages. Phone: 240-453-8280 Specialized Information Services, NLM Fax: 301-984-4256 Two Democracy Plaza, Suite 510 Email: [email protected] 6707 Democracy Blvd., MSC 5467 Website: www.healthfinder.gov Bethesda, MD 20892-5467 Serving: National Phone: 301-496-1131 Categories: HC Toll-free: 888-346-3656 Additional Languages: Spanish Fax: 301-480-3537 Email: [email protected] Website: www.healthreach.nlm.nih.gov Serving: National Categories: CS&I

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 110 Resources Jewish Family & Community Services

Healthcare Hospitality Network (HHN) Hearing Loss Association of America Hospitality houses ranging from small houses to houses with Largest national organization for people with hearing loss. over 100 guest rooms. Additional members include the American Provides information, education, advocacy and support. Cancer Society, St. Jude Children’s Research Hospital, Mercy 7910 Woodmont Avenue, Suite 1200 Medical Angels, and Fisher House Foundation. Bethesda, MD 20814 22640 Hazel Lane Phone: 301-657-2248 Rapid City, SD 57702 Fax: 301-913-9413 Toll-Free Phone: 800-542-9730 Website: www.hearingloss.org Email: [email protected] Serving: National Website: www.hhnetwork.org Categories: SC Serving: National Additional Languages: American Sign Language Categories: HOUS Boston Healthy-Kids. Info Phone: 617-624-5458 Promotes a better understanding of the health/education needs Fax: 617-624-5075 of students with asthma and other chronic health conditions. Email: [email protected] 79 Elmore Street Website: www.hearatboston.org Newton, MA 02459 Phone: 617-965-9637, 617-930-4327 Cape Cod Email: [email protected] Phone: 508-432-4065 Website: www.healthy-kids.info Email: [email protected] Serving: Statewide Website: www.hearinglosscapecod.org Categories: ADV, HC, SC Central Hear Now Hearing Aid Program Email: [email protected] Provides hearing aids to people with limited financial resources, Website: www.hearinglosscentralma.wordpress.com and promotes hearing health awareness while supporting research and education. Hearing Rehabilitation Foundation Starkey Hearing Foundation Provides and promotes speech communication training for 6700 Washington Avenue children and adults with hearing loss. South Eden Prairie, MN 55344 35 Medford Street Phone: 866-354-3254 Somerville, MA 02143 Fax: 952-828-6900 Phone: 617-628-4537 Email: [email protected] Email: [email protected] Website: www.starkeyhearingfoundation.org Website: www.hearf.org Serving: National Serving: Boston, Metrowest, Northeast Categories: SC Categories: SC Hear To Learn Offers materials in English and Spanish for children with hearing Help A Little One Foundation (H.A.L.O.) loss. SignIt is a free online beginner American Sign Language Funding for individuals with neurological disorders for items curriculum for parents of children who are deaf or hard of not covered by insurance (i.e., adaptive tricycles, wheelchair hearing (ages 0-3). www.infanthearing.org/signit lifts, technology, programs, and transportation for special excursions). National Center for Hearing Assessment and Management 2620 Old Main Hill Logan, UT 84322 Jewish Family & Community Services Website: www.heartolearn.org 1430 Main Street Serving: National Waltham, MA 02451 Categories: CS&I, ED, SC Phone: 781-647-5327 Fax: 781-693-5579 Email: [email protected] Website: www.jfcsboston.org Serving: National Categories: CS&I, SC Additional Languages: Spanish

111 Help A Little One Foundation (H.A.L.O.) Children’s Advisory Network Resources

Help A Little One Foundation (H.A.L.O.) Hermansky-Pudlak Syndrome Network Children’s Advisory Network A volunteer self-help, not-for-profit support group for persons H.A.L.O. helps families navigate the complex regulations and families dealing with Hermansky-Pudlak Syndrome HPS- governing care of people with disabilities in Massachusetts. and related disorders, such as Chediak Higashi Syndrome. 1330 Boylston Street One South Road Chestnut Hill, MA 02467 Oyster Bay, NY 11771 Email: [email protected] Phone: 516-922-4022, 800-789-9477 Website: www.halo.org/halo-can Fax: 516-624-0640 Serving: Statewide Email: [email protected] Categories: ADV, CS&I Website: www.hpsnetwork.org Serving: National Help A Little One Foundation (H.A.L.O.) Categories: SC Family Circle Additional Languages: Spanish H.A.L.O. provides support and mentoring, information and referral, events and workshops to families of children with Hirschsprungs and Motility Disorders neurological impairment. Support Network 1330 Boylston Street The HMDSN can help point families to support groups and other Chestnut Hill, MA 02467 parent contacts in their area. Listservs are available for families Email: [email protected] of children or adults with Hirschsprungs Disease. Website: www.halo.org/halo-can Email: [email protected] Serving: Statewide Website: www.hirschsprungs.info Categories: CS&I, I&R Serving: National Categories: SC Helping Hands Foundation Support group made up of parents who have children with HIV/AIDS Law Consortium of Western Massachusetts upper limb differences and who are concerned with the Provides referrals to volunteer attorneys for persons with HIV & challenges facing the child and the entire family. AIDS, as well as some direct legal representation and advocacy. P.O. Box 332 425 Union Street, Suite 6 Medfield, MA 02052 West Springfield, MA 01089 Email: [email protected] Phone: 413-306-5164 Website: www.helpinghandsgroup.org Fax: 413-306-5783 Serving: Statewide Email: [email protected] Categories: SC Website: www.chd.org/adult-services/community-based- programs/hivaids-law-consortium Helping Hands: Monkey Helpers for the Disabled Serving: Western Raise and train capuchin monkeys to act as live-in companions Categories: SC for individuals with physical disabilities. Additional Languages: Spanish 541 Cambridge Street Boston, MA 02134 Phone: 617-787-4419 Email: [email protected] Website: www.monkeyhelpers.org Serving: National Categories: SA

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 112 Resources Home Modificiation Action Project

HMEA: Horace Mann Educational Associates Home for Little Wanderers Provides children’s services, family support programs, residential Variety of programs to support all children, of all ages. services, and adult day and foster care program to children and Counseling, after-school programs, parenting supports adults with developmental disabilities and their families. available. Also hosts a respite program to offer hourly or 8 Forge Park overnight care for children who are HIV infected or affected. East Franklin, MA 02038 10 Guest Street Phone: 508-298-1100 Boston, MA 02135 Fax: 508-298-1400 Phone: 617-267-3700, 888-466-3321 Email: [email protected] TTY: 617-927-0699 Website: www.hmea.org Fax: 617-267-8142 Serving: Central, Metrowest, Southeast Website: www.thehome.org Categories: CS&I Serving: Boston, Metrowest Additional Languages: Spanish Categories: CS&I, RES Additional Languages: Spanish, Vietnamese, Haitian Creole HollyRod Foundation Offering help and hope through compassionate care to families Home Free Home living with Autism or Parkinson’s Disease. Volunteer architects design barrier-free home renovations that 2934 1/2 N. Beverly Glen Circle allow people to live with greater safety and freedom. Los Angeles, CA 90077 66 Hillview Avenue Website: www.hollyrod.org Port Washington, NY 11050 Serving: National Phone: 516-883-0403 Categories: SC Email: [email protected] Website: www.homefreehomegroup.org Holton’s Heroes Serving: National Provides support, information and therapy tools for children Categories: ACC and their families affected by a post birth brain injury. P.O. Box 11173 Home/Health & Child Care Services Marina Del Ray CA 90295 Serving Brockton, Attleboro and surrounding towns. Provides Website: www.holtonsheroes.org information and referrals for childcare services and in-home Serving: National health and homemaker services for the elderly and disabled. Categories: SC Attn: Nancy Chiappini 185 Main Street Home Access Program Avon, MA 02322 An initiative of Handi Ramp, helps individuals and families find Phone: 508-436-6059 realtors who can assist in the search for a handicap accessible Email: [email protected] home or consultants who can modify a current home. Website: www.hhcc.org 510 North Avenue Serving: Southeast Libertyville, IL 60048 Categories: CC, I&R Phone: 847-860-7700, 800-876-7267 Additional Languages: Spanish Fax: 847-816-8866 Website: www.homeaccessprogram.org Home Modification Action Project Serving: National Web-based services to support the public’s need for a skilled Categories: ACC workforce to provide these services, a clearinghouse on home modification with a search tool for resources, by state. Andrus Gerontology Center, University of Southern California 3715 McClintock Avenue Los Angeles, CA 90089 Phone: 213-740-1364 Fax: 213-740-7069 Email: [email protected] Website: www.homemods.org Serving: National Categories: AT, HOUS

113 HOPEhouse Resources

HOPEhouse Hospice & Palliative Care Federation of A transitional residential program that supports up to eight Massachusetts young adults in their quests to live independently, despite Provides regulatory information, palliative care providers, learning or physical challenges. and community-based programming to support individuals 453 Concord Avenue with life-limiting conditions who are facing end-of-life Lexington, MA 02421 planning decisions. Phone: 781-862-7323 20 Commercial Drive, Suite 1 Email: [email protected] Wrentham, MA 02093 Website: www.cotting.org Phone: 781-255-7077 Serving: Metrowest Email: [email protected] Categories: TR Website: www.hospicefed.org Serving: Statewide Horses ‘N Harmony Categories: COMM, HC, RES A non-profit therapeutic riding program offering equine therapies and utilizing a ramp and mounting block to enable Hospitality Homes Volunteers offer visitors to the Boston area for medical care a individuals with a variety of disabilities to mount a horse easily. comfortable place to sleep, access a bathroom, and limited 139 Grove Street kitchen use in their private residences. Bellingham, MA 02019 P.O. Box 15265 Phone: 401-217-9888 Boston, MA 02215 Email: [email protected] Phone: 888-595-4678 Website: www.HorsesNHarmony.org Fax: 617-582-7980 Serving: Metrowest, Central Email: [email protected] Categories: REC Website: www.hosp.org Serving: Statewide Horse SenseAbility at Wildstar Farm Categories: HOUS Horse SenseAbility offers Therapeutic Riding and Horsemanship, as well as other programs to participatnats with emotional, House of Possibilities neurological, and cognitive challenges, and those in difficult life Provides high quality programs and much needed relief and circumstances. hope. Respite provider 8-21 adult day habilitation, community 16 Nason Hill Lane based day supports and employment support 22+. Sherborn, MA 01770 350 Washington Street Phone: 508-744-6774 Easton, MA 02356 Email: [email protected] Phone: 508-205-0555 Website: www.HorseSenseAbility.org Website: www.houseofpossibilities.org Serving: Metrowest Serving: Statewide Categories: REC Categories: CS&I, RES

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 114 Resources Icing Smiles

Human Growth Foundation I CAN CONNECT: The National Deaf-Blind Equipment Provides support, services, education, and research on behalf of Distribution Program children and adults who have growth hormone deficiency due to A national program that provides distance communications genetic conditions, endocrine or metabolic disorders or diseases. equipment and training to eligible individuals with significant 997 Glen Cove Avenue, Suite 5 combined hearing and vision loss. Glen Head, NY 11545 Perkins School for the Blind Phone: 800-451-6434 175 North Beacon Street Fax: 516-671-4055 Boston, MA 02472 Email: [email protected] Phone: 617-972-7826 Website: www.hgfound.org Fax: 617-972-7668 Serving: National Email: [email protected] Categories: SC Website: www.icanconnect.org Serving: National Hunter’s Hope Foundation Categories: AT, SC Provides information and support to parents, patients, family members, caregivers, friends and professionals dealing with I RUN 4 (IR4) Krabbe Disease and related leukodystrophies. A non-profit to raise money and awareness for bi-lateral hip P.O. Box 643 dysplasia. Runners are matched with someone to run for and 6368 West Quaker Street dedicate their runs and workouts to that individual. Orchard Park, NY 14127 Email: [email protected] Phone: 716-667-1200 Website: www.whoirun4.com Email: [email protected] Serving: National Website: www.huntershope.org Categories: REC Serving: National Languages: Translator upon request Categories: SC iCanShine Huntington’s Disease Society of America, Coordinates and oversees local bike camps, to foster Massachusetts Chapter independent bike-riding skills for individuals with disabilities Dedicated to finding a cure providing support services to those (ages 8 and up). Website includes materials on hosting a camp, living with HD and their families. recruiting volunteers, and coordinating publicity. P.O. Box 14, Suite 203A P.O. Box 541 Chelmsford, MA 01824 Paoli, PA 19301 Phone: 978-905-5588, 888-554-8102 Phone: 610 647-4176 Email: [email protected] Email: [email protected] Website: www.hdsa.org Website: www.icanshine.org Serving: Statewide Serving: National Categories: SC Categories: ACC, REC

Hydrocephalus Association Icing Smiles Offers education, publications, resource library, and medical Our mission is to provide custom celebration cakes to families networks on its comprehensive website and emotional support impacted by the critical illness of a child. through its growing network of HA Partners. 4725 Dorsey Hall Drive, Suite A-807 4340 East West Highway, Suite 905 Ellicott City, MD 21042 Bethesda, MD 20814 Phone: 443-420-7096 Phone: 301-202-3811, 888-598-3789 Fax: 301-202-3813 Email: [email protected] Email: [email protected] For Spanish: [email protected] Website: www.hydroassoc.org Website: www. icingsmiles.org Serving: National Serving: National Categories: SC Categories: COMM Additional Languages: Spanish

115 If I Need Help Resources

If I Need Help IMPACT: Ability Helps reunite those who might become lost, disoriented or need This program at Triangle, Inc. empowers people with disabilities assistance in a critical moment with their families, loved ones, and organizations to prevent abuse and promote healthy and caregivers. relationships. P.O. Box 803356 Triangle, Inc. Santa Clarita, CA 91380 420 Pearl Street Phone: 661-524-6732 Malden, MA 02148 Email: [email protected] Phone: 781-322-0400 Website: ifineedhelp.org TTY: 781-322-0401 Serving: National Email: [email protected] Categories: AT Website: www.triangle-inc.org Serving: Boston, Metrowest Immigrants Assistance Center Categories: ADV, TR Information and referral, and advocacy for non-English speaking residents in the New Bedford area to assist them in receiving Incontinencia Pigmenti International appropriate social services. Foundation (IPIF) 58 Crapo Street Provides education, family support, advocacy, and funds New Bedford, MA 02740 research in the United States and worldwide. Provides online Phone: 508-996-8113 support group. Fax: 508-993-6621 78 Saint Moritz Drive Email: [email protected] Erial, NJ 08081 Website: www.immigrantsassistancecenter.org Phone: 212-452-1231 Serving: Southeast Fax: 212-452-1231 Categories: ADV, COMM Email: [email protected] Additional Languages: Portuguese, Spanish Website: www.ipif.org Serving: National Immune Deficiency Foundation Categories: SC Relative to the 185+ conditions in this category, offers an array of materials, online resources, family networking through P2P, local Independence Associates, Inc. networks, and a biennial national conference. Provides comprehensive services to help people with disabilities 110 West Road, Suite 300 learn to live independently. Services include assessment, peer Towson, MD 21204 counseling, advocacy, skills training, and information/referral. Phone: 800-296-4433 100 Laurel Street, Suite 122 Email: [email protected] East Bridgewater, MA 02333 Website: www.primaryimmune.org Phone: 508-583-2166, 800-649-5568 Serving: National TTY: 508-583-2165 Categories: COMM, SC Fax: 508-583-2165 Email: [email protected] Website: www.iacil.org Serving: Southeast Categories: ILC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 116 Resources International Dyslexia Association

Independent Living Center of North Shore & Institute for Human Centered Design Cape Ann, Inc. Dedicated to promoting accessibility and universal design. It is ILCs are controlled and directed by persons with disabilities home to the New England ADA Technical Assistance Center and and provide advocacy services, information, and referral, peer can answer questions and provide information and guidance on counseling, and independent living skills training. the Americans with Disabilities Act. 27 Congress Street, Suite 107 200 Portland Street, Suite 1 Salem, MA 01970 Boston, MA 02114 Phone: 978-741-0077 Phone: 617-695-1225 TTY: 978-741-0077 TTY: 617-695-1225 Fax: 978-741-1133 Fax: 617-482-8099 Email: [email protected] Email: [email protected] Website: www.ilcnsca.org Website: www.humancentereddesign.org Serving: Northeast Serving: Statewide Categories: ILC Categories: ACC, AT

Institute for Community Inclusion Insure Kids Now Offers training and technical assistance, develops innovative, Provides information about Medicaid and the Children’s Health educational employment, as well as recreation and living Insurance Program CHIP-for families seeking health insurance options for children and adults with disabilities. coverage for children and teens and families needing help University of Massachusetts Boston locating a dentist. 100 Morrissey Boulevard Toll-Free Phone: 877-543-7669 Boston, MA 02125 Website: www.insurekidsnow.gov Phone: 617-287-4300 Serving: National TTY: 617-287-4350 Categories: ADV, HC Fax: 617-287-4352 Email: [email protected] International Association for People with Disabilities Website: www.communityinclusion.org International association for people with disabilities, their family Serving: Statewide members, other advocates and professionals who work together Categories: ACC, ED, REC, TR to create a more inclusive society. 2013 H Street NW, Suite 404 Institute for Educational Leadership Washington, DC 20006 Committed to leadership in education by developing and Phone: 202-540-9020 supporting leaders, strengthening School-Family-Community Fax: 202-540-9019 connections, and improving systems that serve children and Email: [email protected] youth through its programs. Website: www.tash.org 4301 Connecticut Avenue NW, Suite 100 Serving: National Washington, DC 20008-2304 Categories: CS&I Phone: 202-822-8405 Fax: 202-872-4050 International Dyslexia Association Email: [email protected] Dedicated to the study and treatment of dyslexia and related Website: www.iel.org language-based learning differences. In addition, we fund Serving: National research on neurological, educational and developmental issues Categories: ED as they relate to dyslexia. Additional Languages: Spanish 40 York Road, 4th Floor Baltimore, MD 21204 Phone: 410-296-0232 Fax: 410-321-5069 Email: [email protected] Website: www.interdys.org Serving: National Categories: SC

117 International Foundation for Functional Gastrointestinal Disorders Resources

International Foundation for Functional International OCD Foundation Gastrointestinal Disorders Support, Information and Referral Services for individuals with International organization focused on GI issues in adults and obsessive-compulsive disorder and their family and friends. Local children. Comprehensive website includes facts, symptoms, support groups, clinician referral listing, reference materials, treatment and management, FAQs, and family resources. newsletter and annual conference. P.O. Box 170864 18 Tremont Street, Suite 308 Milwaukee, WI 53217 Boston, MA 02108 Phone: 414-964-1799, 888-964-2001 Phone: 617-973-5801 Fax: 414-964-7176 Fax: 617-973-5803 Email: [email protected] Email: [email protected] Website: www.iffgd.org Website: www.iocdf.org Serving: National Serving: National Categories: SC Categories: SC Additional Languages: Spanish International FPIES Association Provides a central place for families and researchers to come International Rett Syndrome Foundation together; dedicated to improving the diagnosis, treatment and Provides information for families. They also have an online quality of life for those with FPIES through advocacy, education, community and regional contacts for additional support. support, and research. 4600 Devitt Drive 319 Richmond Avenue Cincinnati, OH 45246 Point Pleasant Beach, NJ 08742 Phone: 800-818-7388 Email: [email protected] Fax: 513-874-2520 Website: fpies.org Email: [email protected] Serving: National Website: www.rettsyndrome.org Category: SC Serving: National Categories: SC International Mosaic Down Syndrome Association Helps and supports parents of children with mosaic Down Interpreters Associates, Inc. syndrome in meeting new people and research. The website Offers services in 44 languages, employing certified medical includes education, support, and Family Connect, an online interpreters who follow a Standard of Practice, have training in parent-to-parent program. Confidentiality and HIPAA, and receive a CORI check. P.O. Box 321 529 Main Street, Suite 200 Stow, MA 01775 Charlestown, MA 02129 Phone: 855-463-7221 Phone: 617-886-5110 Website: www.imdsa.org Fax: 781-629-2699 Serving: National Website: www.interpretersassociates.com Categories: SC Serving: Statewide Categories: COMM Additional Languages: Cape Verdean Kriolu, Chinese, French, Haitian Kreyol, Portuguese, Spanish, Vietnamese

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 118 Resources Jewish Community Centers of Greater Boston

Italian Home for Children Jeff’s Place Metrowest Services individual’s emotional and/or behavioral challenges, Facilitates healthy integration of loss for children, teens, and providing outpatient, residential, and academic services their families by helping them feel connected with each other Therapeutic Mentoring and In-Home Therapy services through and less alone in their grief journey. the Children’s Behavioral Health Initiative (CBHI). 34 Deloss Street 1125 Centre Street Framingham, MA 01702 Jamaica Plain, MA 02130 Phone: 508-879-2800 Phone: 617-524-3116 Email: [email protected] Email: [email protected] Website: www.jeffsplacemetrowest.org Website: www.italianhome.org Serving: Statewide Serving: Boston, Metrowest Categories: COMM Categories: SC Jericho It’s My Heart, New England Offers dances, summer camp, and therapeutic horseback riding Provides support, spreads awareness, educates, and advocates for exceptional children and adults. for those affected by Acquired and Congenital Heart defects. 537 Northampton Street Spanish phone line: 877-586-6888. P.O. Box 1039 P.O. Box 111 Holyoke, MA 01041 Danvers, MA 01923 Phone: 413-538-7450 Phone: 351-201-1533 Fax: 413-536-5691 Fax: 866-222-0334 Email: [email protected] Email: [email protected] Website: www.jericobeca.org Website: www.itsmyheartnewengland.org Serving: Western Serving: Statewide Categories: REC Categories: SC Additional Languages: Spanish Jett Foundation Raises and appropriates funds for Duchenne Muscular J Kiffin Penry Patient Travel Assistance Fund Dystrophy research to find a cure and programming to ensure Provides reimbursement of travel expenses for patients and their children with Duchenne have the opportunity to enjoy a full life. families who received medical care or treatment for an epilepsy/ 68 Evergreen Street, Suite 1 seizure disorder. Visit website for eligibility criteria. Kingston, MA 02364 8301 Professional Place, Suite 200 Phone: 781-585-5566 Landover, MD 20785 Fax: 781-585-5233 Phone: 800-332-1000 Website: www.jettfoundation.org Email: [email protected] Serving: National Website: www.epilepsy.com Categories: REC, SC Serving: National Categories: SC, TA Jewish Community Centers of Greater Boston Provides information and referrals, distributes its Family Jason Roberts Challenger League Education workbook, and coordinates a parent-to-parent Baseball League for girls and boys with special needs ages 5 to program for families of children with neurological challenges. high school graduation. 333 Nahanton Street 94 Sprague Street Newton, MA 02459 Readville, MA 02136 Phone: 617-558-6522 Phone: 617-364-9249 Email: [email protected] Fax: 617-364-5070 Website: www.bostonjcc.org Email: [email protected] Serving: Boston, Metrowest Website: www.leaguelineup.com/jasonrobertschallengerleague Categories: I&R, REC Serving: Boston, Metrowest Additional Languages: Russian Categories: REC

119 Jewish Family & Children’s Service Resources

Jewish Family & Children’s Service Job Accommodation Network Provides a wide variety of support services to individuals with Free service of the US Department of Labor, providing technical disabilities of all ages, including Information and Referral assistance to individuals with disabilities and employers about Services, social connections, adult planning and day services. the ADA and accommodations for individuals with disabilities. 1430 Main Street P.O. Box 6080 Waltham, MA 02451 Morgantown, WV 26506 Phone: 781-647-5327 Phone: 304-293-7186, 800-526-7234 Email: [email protected] TTY: 877-781-9403 Website: www.jfcsboston.org Fax: 304-293-5407 Serving: Boston, Metrowest Website: www.askjan.org Categories: CS&I, TR Serving: National Categories: TR Jewish Family Services - Metrowest Additional Languages: Spanish Center for Family Assistance provides programs for vulnerable children and young families, focusing on adoption, parent and Joe’s House youth education, and community support. Provides a nationwide online service that helps cancer patients 475 Franklin Street, Suite 101 and their families find lodging near treatment centers, many Framingham, MA 01701 with discount rates. Phone: 508-875-3100 505 E 79th Street, Suite 17E Fax: 508-875-4373 New York, NY 10075 Email: [email protected] Phone: 877-563-7468 Website: www.jfsmw.org Email: [email protected] Serving: Metrowest Website: www.joeshouse.org Categories: CS&I Serving: National Categories: HOUS, SC Jewish Genetic Diseases Consortium

The Jewish Genetic Diseases website has contact information for many other websites for specific Jewish genetic disorders. They Jonah & The Whale Foundation also have information on carrier screening. Supports families of disabled/chronically ill children educationally and medically; website includes information 450 West End Avenue about funding and emotional supports for parents and siblings. New York, NY 10024 Phone: 855-642-6900 Phone: 877-495-6624 Email: [email protected] Fax: 724-772-4998 Website: www.jewishgeneticdiseases.org Website: www.jtwf.org Serving: National Serving: National Categories: SC Categories: ADV, I&R

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 120 Resources Justice Resource Institute (JRI)

Joni and Friends Journey Forward Christian organization offering support programs for parents Dedicated to improving the lives of those who have suffered a of children with disabilities. Trainings for churches building a spinal cord injury through a comprehensive exercise program welcoming community, a family-to-family pen pal program, with an aim toward increasing independence and function. and local family retreats. 5 Shawmut Road P.O. Box 3333 Canton, MA 02021 Agoura Hills, CA 91376 Phone: 781-828-3233, 866-680-5636 Phone: 818-707-5664 Fax: 781-828-4777 Fax: 818-707-2391 Email: [email protected] Email: [email protected] Website: www.journey-forward.org Website: www.joniandfriends.org Serving: Statewide Serving: National Categories: SC Categories: CS&I Additional Languages: Spanish Joyful Journey Mom Explores parenting experiences and helpful resources shared, New England through the lens of a parent of children with special needs, 307 Highlander Way including adoption issues. Manchester, NH 03103 Email: [email protected] Phone: 603-218-3650 Website: www.joyfuljourneymom.com Website: www.joniandfriends.org/new-england Serving: National Category: CS&I Joshua Frase Foundation Judge David L. Bazelon Center for Dedicated to supporting ongoing medical research for Mental Health Law myotubular myopathy and other related congenital myopathies Legal advocacy for the civil rights and human dignity of people and families lacking the resources for medical equipment. with mental disabilities. Excellent links to other sites that concern c/o Alison Rockett Frase legislation, public policy and advocacy. P.O. Box 2041 1101 15th Street NW, Suite 1212 Ponte Verde Beach, FL 32004 Washington, DC 20005 Phone: 904-607-1358 Phone: 202-467-5730 Fax: 904-273-9818 TDD: 202-467-4232 Email: [email protected] Fax: 202-223-0409 Website: www.joshuafrase.org Email: [email protected] Serving: Statewide Website: www.bazelon.org Categories: SC Serving: National Categories: LGL, SC Joubert Syndrome & Related Disorders Foundation (JSRDF) Justice Resource Institute (JRI) International network of parents who share knowledge, Provides education, training, advocacy, mediation, adoption experience, and emotional support. Offers a networking list, services, counseling, housing, transportation and residential newsletter, and a biennial conference. services. 9 Dorenfeld Court 160 Gould Street, Suite 300 Petaluma, CA 94952 Needham, MA 02494 Phone: 614-864-1362 Phone: 781-559-4900 Email: [email protected] Email: [email protected] Website: www.jsrdf.org Website: www.jri.org Serving: National Serving: Metrowest Categories: SC Categories: COMM, ED, SC, TR Additional Languages: Cape Verdian Creole, Portuguese, Spanish

121 Juvenile Bipolar Research Foundation Resources

Juvenile Bipolar Research Foundation Kawasaki Disease Foundation Dedicated to the support of research for the study of early onset Raises awareness and provides information about diagnosis and bipolar disorder. treatment, facilitates family support and promotes research. 277 Martine Avenue, Suite 226 9 Cape Ann Circle White Plains, NY 10601 Ipswich, MA 01938 Phone: 914-468-1297 Fax: 978-356-2079 Email: [email protected] Email: [email protected] Website: www.jbrf.org Website: www.kdfoundation.org Serving: National Serving: National Categories: SC Categories: SC

Juvenile Diabetes Research Foundation Keeping Pace with Multiple Miracles Provides information on diagnosis and treatment, one to one Network for families and families-to-be of multiple birth support and practical suggestions to individuals and families children. affected by Juvenile Diabetes. 194 South Main Street 26 Broadway, 14th Floor West Bridgewater, MA 02379 New York, NY 10004 Phone: 508-559-0040 Phone: 800-533-2873 Fax: 508-559-0041 Fax: 212-785-9595 Email: [email protected] Email: [email protected] Website: www.keepingpace.org Website: www.jdrf.org Serving: Statewide Serving: National Categories: COMM Categories: SC Kehillah Project Ride Juvenile Diabetes Research Foundation: Provides children ages 6 and older with modified tricycles and New England Chapter information about adaptive sports programs in Western Mass. Provides information on diagnosis and treatment, support and Springfield Jewish Community Center (JCC) practical suggestions. Networking coffee program for parents of Kehillah Special Needs Program children with Type 1 Diabetes. 1160 Dickinson Street 60 Walnut Street Springfield, MA 01108 Wellesley, MA 02481 Phone: 413-739-4715 Ext: 325 Phone: 781-431-0700 Email: [email protected] Fax: 781-431-8836 Website: www.kehillah-sjcc.org/project-ride Email: [email protected] Serving: Western Website: www.jdrf.org/newengland Categories: REC Serving: Statewide Categories: SC

Kai’s Village Provides community-based support for families facing the challenges of disability and serious illness. Facebook page. 2 Grafton Common P.O. Box 561 Grafton, MA 01519 Email: [email protected] Serving: Central Categories: COMM

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 122 Resources Kyra’s Krusade

Kennedy-Donovan Center Kids’ Project Adaptive Equipment Program 10 program centers offer a wide range of assistance through Offers high quality wooden adaptive equipment made with care. education, advocacy, flexible services, and respite options 149 Front Street Emergency Respite Care, Specialized Foster Care-for children P.O. Box 518 and adults. Bath, ME 04530 1 Commercial Street Phone: 207-443-3341 (V/TTY) Foxboro, MA 02035 Fax: 207-443-1070 Phone: 508-772-1200, 800-537-4707 Email: [email protected] TTY: 508-698-3926 Website: www.pinetreesociety.org Fax: 508-543-9488 Serving: National Email: [email protected] Categories: AT Website: www.kdc.org Serving: Central, Metrowest, Southeast Kids Wish Network Categories: COMM, RES, TR An international charitable organization dedicated to infusing Additional Languages: Spanish hope, creating happy memories, and improving the quality of life for children who have experienced life-altering situations. Family Support Center 4060 Louis Avenue 171 Main Street, 3rd Holiday, Florida 34691 Floor Milford, MA 01757 Phone: 727-937-3600, 888-918-9004 Phone: 508-473-5700 Website: www. kidswishnetwork.org Serving: National Kids Grieve Too Categories: COMM KGT at Hope Health helps children and families cope with the impact of serious illness and loss. Services include support Kids with Food Allergies groups, individual counseling, and referral service. Dedicated to fostering optimal health, nutrition, and well-being Pediatric Palliative Care Program of children with food allergies by providing education and a 765 Attucks Lane caring support community for their families and caregivers. Hyannis, MA 02601 4259 W Swamp Road, Suite 408 Phone: 508-957-0200 Doyleston, PA 18902 Email: [email protected] Phone: 215-230-5394 Website: www.hospicecapecod.org Fax: 215-340-7674 Serving: Southeast Email: [email protected] Categories: COMM Website: www.kidswithfoodallergies.org Serving: National Categories: SC Kids in Disability Sports, Inc. Additional Languages: Spanish Provides recreational, social, and sports opportunities for individuals with disabilities, ages 5-40. Kyra’s Krusade P.O. Box 1397 Comprehensive resource center serving children with physical Lowell, MA 01853 disabilities and their families, specializing in Arthrogryposis and Phone: 866-712-7799 other less-publicized physical disabilities. Email: [email protected] 947 E. Johnson Road, Suite 143 Website: www.kidsinc.us Gahanna, OH 43230 Serving: Northeast Phone: 614-750-2198 Categories: REC Fax: 614-478-3223 Email: [email protected] Serving: National Categories: SC

123 Latham Centers Resources

Latham Centers Learning Disabilities Worldwide Residential care and support for individuals, ages 8-22, Advances the education and general welfare of children with challenged with Prader-Willi Syndrome, Asperger’s Syndrome, perceptual, conceptual or coordinative learning disabilities. Bipolar Disorder, reactive Attachment Disorder, Post-Traumatic Newsletter, calendar of events. Stress Disorder, and developmental and educational disabilities. 179 Bear Hill Road, Suite 104 1646 Main Street, Route 6A Waltham, MA 02451 Brewster, MA 02631 Phone: 978-897-5399 Phone: 508-896-5776 Fax: 978-897-5355 Fax: 508-896-8310 Email: [email protected] Email: [email protected] Website: www.ldworldwide.org Website: www.lathamcenters.org Serving: National Serving: National Categories: ADV, SC Categories: ED, SC Legal Advocacy Resource Center Learning Ally A legal services hotline offering basic legal information, referral The leading accessible audiobook library for students with to free legal services for low-income persons, and referral to the disabilities, such as visual impairment or dyslexia. private bar for others. Information on Massachusetts law only. 20 Roszel Road 197 Friend Street Princeton, NJ 08540 Boston, MA 02114 Phone: 800-221-4792 Email: [email protected] Phone: 617-603-1704, 800-342-5297 Website: www.learningally.org TTY: 617-371-1226 Serving: National Fax: 617-371-1188 Categories: AT, SC Website: www.larcma.org Serving: Statewide Categories: LGL Learning Ally Youth Examples of Self-Advocacy Learning Ally is a non-profit organization dedicated to empowering students of who are dyslexic, blind and visually- Legal Services for Cape, Plymouth & Islands Free legal assistance to low-income families regarding SSI, social impaired who read and learn differently so that they may thrive. security, unemployment benefits, housing issues and some Email: [email protected] family law. Website: www.learningally.org 460 West Main Street Serving: Statewide Hyannis, MA 02601 Categories: ADV, AT, CS&I, SC Phone: 800-742-4107 Fax: 508-790-3955 Learning Disabilities Association of America Email: [email protected] Dedicated to enhancing the quality of life for all individuals Serving: Southeast with learning disabilities and their families through advocacy, Categories: LGL education, research and service. Additional Languages: Portuguese, Spanish 4156 Library Road Pittsburgh, PA 15234 Phone: 412-341-1515 Fax: 412-344-0224 Email: [email protected] Website: www.ldanatl.org Serving: National Categories: SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 124 Resources Little Hearts, Inc.

Let Us Know, Inc. (LUK) Liberty Tree Farm Therapeutic Equitation, Inc. A human service agency working with communities, youth and A therapeutic riding center for individuals of all abilities. families providing a continuum of programming including: Offering hippotherapy and R.E.I.N.B.O.W. therapy for children counseling, prevention, intervention and education services. with special needs. Email: [email protected] 24 Liberty Street Website: www.luk.org Acton, MA 01720 Categories: ADV, I&R, REC Phone: 978-263-8776 Additional Languages: Haitian Creole, Spanish Email: [email protected], [email protected] Website: www.libertytreefarm.com Fitchburg Serving: Metrowest 545 Westminster Street Categories: REC Fitchburg, MA 01420 Phone: 800-579-0000, 978-345-0685 LifeLinks, Inc. Fax: 978-345-3602 Provides services and supports in Southern NH and Northeast Serving: Central, Metrowest, Northeast Massachusetts for people with developmental disabilities including residential care, non-vocational day programs, shared Worcester living, independent living, family support and education & 40 Southbridge Street recreation activities. Worcester, MA 01608 285 Mill Road Phone: 508-762-3000 Chelmsford, MA 01824 Fax: 508-438-1492 Phone: 978-349-3000 Fax: 978-453-7077 Lexi Kazian Foundation – Helping from Heaven Email: [email protected] Provides education, therapy and playground equipment, therapy Website: www.lifelinksinc.net toys, resources and scholarships for families and therapists in Serving: Northeast need of financial assistance and/or community support. Categories: ADV, HOUS, TR 105 Townline Road, Suite 132 Additional Languages: Spanish Vernon Hills, IL 60061 Phone: 847-624-5394 Lifeline Pilots Fax: 847-680-1295 Coordinates free compassionate flights on small aircraft Website: www.helpingfromheaven.org for patients of all ages and families members needing Serving: National transportation because of a difficult medical situation. Categories: AT Greater Peoria Regional Airport 6100 W. Dirkson Parkway, Suite 302 Liam Nation Byerly Terminal Coordinates athletic programming designed for children of all Peoria, IL 61607 ability levels. Facilitates monthly support network for families Phone: 309-697-6282, 800-822-7972 of children with dual diagnoses of Down syndrome and Autism Fax: 309-210-9800 Spectrum Disorder. Email: [email protected] Website: www.lifelinepilots.org P.O. Box 425 Serving: National Tewksbury, MA 01876 Categories: TA Phone: 978-902-3661 Email: [email protected] Little Hearts, Inc. Website: www.liamnation.org Offers support, networking, resources, and hope to families Serving: Statewide affected by a congenital heart defect. Categories: REC, SC 110 Court Street, Suite 3A P.O. Box 171 Cromwell, CT 06416 Phone: 860-635-0006, 866-435-4673 Fax: 860-635-0006 Email: [email protected] Website: www.littlehearts.org Serving: National Categories: SC

125 Little People of America Resources

Little People of America Louis D. Brown Peace Institute This resource for all forms of dwarfism provides resources for Bringing inner peace to the community and families affected by parent support, medical support, advocacy, education, and violence. Programs are aimed at providing emotional support to social interaction. families dealing with traumas associated with violence. 250 El Camino Real, Suite 218 15 Christopher Street Tustin, CA 92780 Dorchester, MA 02122 Phone: 714-368-3689, 888-572-2001 Phone: 617-825-1917 Fax: 714-368-3367 Fax: 617-265-2278 Email: [email protected] Email: [email protected] Website: www.lpaonline.org Website: www.ldbpeaceinstitute.org Serving: National Serving: Boston Categories: SC Categories: ADV, CS&I

New England Chapter Lovelane Special Horseback Riding Program Email: [email protected], [email protected] Provides therapeutic horseback riding services. Website: www.lpadistrictone.org 40 Baker Bridge Road Serving: Statewide Lincoln, MA 01773 Phone: 781-259-1177 Lives in the Balance Fax: 781-259-4877 Advocates on behalf of behaviorally challenging kids and their Email: [email protected] parents, teachers, and other caregivers and to provide free, Website: www.lovelane.org web-based resources. Founded by child psychologist and Serving: Central, Metrowest author Dr. Ross Greene. Categories: REC 85 Exchange Street, Suite 201 Portland, ME 04101 Lowell Association for the Blind Website: www.livesinthebalance.org Dedicated to working with the blind and visually impaired, Email: [email protected] offering social activities for children, teens, and adults. Serving: Statewide 169 Merrimack Street, 2nd Floor Categories: ADV Lowell, MA 01852 Phone: 978-454-5704 Lotsa Helping Hands Email: [email protected] An easy-to-use private group calendar, specifically designed for Website: www.lowellassociationfortheblind.org organized helpers. Serving: Central, Metrowest, Northeast 288 Washington Street, Suite 316 Categories: AT, REC, SC Brookline, MA 02445 Additional Languages: Spanish Email: [email protected] Website: www.lotsahelpinghands.com Lowell Regional Transit Authority Serving: National Lowell’s paratransit service provides door to door transportation Categories: CS&I to those who are unable to use LRTA’s fixed route bus service. 145 Thorndike Street Lowell, MA 01852 Phone: 978-459-0164 Email: [email protected] Website: www.lrta.com Serving: Northeast Categories: TA

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 126 Resources March of Dimes, Massachusetts Chapter

Lucy’s Love Bus MA Adult Literacy Hotline Funding for integrative therapies available for those diagnosed Free information on Adult Secondary Education GED/HiSet prep, with cancer before the age of 21 years who are currently ESOL reading, writing, math and citizen classes for adults offered undergoing treatment or suffering from the late effects of throughout Massachusetts. cancer treatment. Toll-free: 800-447-8844 89 South Street, Suite LL02 Website: www.mass.gov/edu/literacyhotline Boston, MA 02111 Serving: Statewide Phone: 857-277-1984 Categories: CS&I, ED Fax: 857-277-1807 Email: [email protected] Maine Adaptive Sports and Recreation Website: www.lucyslovebus.org Year-round adaptive recreational programs for people with Serving: Statewide physical disabilities ages four and up. Categories: CS&I, SC 8 Sundance Lane Newry, ME 04261 Lyme Awareness of Cape Cod Phone: 207-824-2440, 800-639-7770 Provides education and promotes awareness of Lyme Disease, Fax: 207-824-0453 both acute and chronic and other tick borne illnesses. Email: [email protected] 17 D Trinity Place Website: www.maineadaptive.org Mashpee, MA 02649 Serving: National Phone: 508-477-7896, 774-238-2316 Categories: REC Email: [email protected] Website: www.lymeticks.org Make-A-Wish Foundation of Massachusetts Serving: Southeast and Rhode Island Categories: SC Dedicated to granting the favorite wishes of children between ages 2 ½ and 18 who have been diagnosed with life-threatening Lyme Disease Association, Inc. medical conditions. Lyme disease education, prevention, research, funding, and One Bulfinch Place, 2nd Floor patient support. Informative website includes diagnostic and Boston, MA 02114 research details, information for schools, and family supports. Phone: 617-367-9474, 888-354-9474 P.O. Box 1438 Fax: 617-367-1059 Jackson, NJ 08527 Email: [email protected] Phone: 888-366-6611 Website: www.massri.wish.org Fax: 732-938-7215 Serving: Statewide Email: [email protected] Categories: COMM Website: www.lymediseaseassociation.org Serving: National March of Dimes, Massachusetts Chapter Categories: SC To improve the health of babies by preventing birth defects, premature birth and infant mortality; research, community Lyme Disease Network services, education and advocacy. General information about diagnosis, symptoms, and treatment 112 Turnpike Road, Suite 300 of Lyme Disease; also publicizes support groups in many Westborough, MA 01581 Massachusetts communities. Phone: 508-366-9066 43 Winton Road Fax: 508-366-6634 East Brunswick, NJ 08816 Website: www.marchofdimes.org/massachusetts Email: [email protected] Serving: Statewide Website: www.lymenet.org Categories: ADV Serving: National Categories: SC

127 Martha’s Vineyard Community Services Resources

Martha’s Vineyard Community Services Mass Access: The Accessible Housing Registry Provides information, trainings, child care, early childhood Database at Citizen’s Housing and Planning Association; free programs, mental health services, and family support programs. program to help individuals with disabilities find rental housing 111 Edgartown Road in Massachusetts, primarily accessible and barrier-free housing. Vineyard Haven, MA 02568 18 Tremont Street, Suite 401 Phone: 508-693-7900 Boston, MA 02108 TTY: 774-549-9659 Phone: 617-742-0820, 800-466-3111 Fax: 508-693-7192 Fax: 617-742-3953 Email: [email protected] Email: [email protected] Website: www.mvcommunityservices.com Website: www.chapa.org Serving: Southeast Serving: Statewide Categories: CC, CS&I Categories: HOUS Additional Languages: Spanish Mass EDP (Equipment Distribution Program) Martin Luther King, Jr. Community Center Offers free or low-cost specialized phone equipment and basic Information and referral, multicultural services and advocacy for telephone service to individuals with a wide range of disabilities. children and youth with disabilities. Runs inclusive after-school 151 Campanelli Drive, Suite A program for youth ages 6-22 that are DDS eligible. Marlborough, MA 02346 3 Rutland Street Phone: 800-300-5658 Springfield, MA 01109 Fax: 508-947-1450 Phone: 413-746-3655 Email: [email protected] Fax: 413-746-5646 Website: www.mass.gov/eopss/agencies/massdp Website: www.mlkjrfamilyservices.org Serving: Statewide Serving: Western Categories: AT Categories: ADV, CS&I, I&R, REC

Marty Lyons Foundation Mass Mentoring Established in 1982 to fulfill the special wishes of children ages Offers training and technical assistance to help organizations 3-17 who have been diagnosed as having a terminal or life- develop and sustain high-quality mentoring programs. threatening illness by providing and arranging special wishes. 75 Kneeland Street, 11th Floor 354 Veterans’ Memorial Highway, 2nd Floor Boston, MA 02111 Commack, NY 11725 Phone: 617-695-1200, 866-627-7366 Phone: 631-543-9474 Fax: 617-695-2435 Fax: 631-543-9479 Email: [email protected] Email: [email protected] Website: www.massmentors.org Website: www.martylyonsfoundation.org Serving: Statewide Serving: Statewide Categories: CS&I Categories: COMM

Masonic Angel Fund Assistance to children who do not fit the criteria for social service programs. Applications for assistance are filled via confidential request from school principals, counselors, and nurses. P.O. Box 1389 Orleans, MA 02653 Phone: 508-255-8812 Email: [email protected] Website: www.masonicangelfund.org Serving: Southeast, Statewide Categories: COMM Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 128 Resources Massachusetts Association for Parent of the Visually Impaired

Massachusetts Adoption Resource Exchange Massachusetts Aggression Reduction Center Works with public and private adoption agencies to recruit School programs, conferences, workshops, consultation, and adoptive families for children in foster care. research on bullying, cyberbullying, and violence prevention. Bridgewater State University, Maxwell Library 20 Boston - Main Office Bridgewater, MA 02325 19 Needham Street, Suite 206 Phone: 508-531-1784, 508-955-0272 Newton, MA 02461 Fax: 508-531-5784 Phone: 617-964-6273, 800-882-1176 Email: [email protected] TTY: 617-542-7772 Website: www.marccenter.org Fax: 617-542-1006 Serving: Statewide Email: [email protected] Categories: ADV, CS&I Website: www.mareinc.org Categories: COMM Massachusetts Assistive Technology Loan Program Serving: Statewide Low-interest loan program for the purchase of assistive Additional Languages: Spanish technology equipment, coordinated by Easter Seals Mass. Easter Seals AT Loan Program Springfield 484 Main Street, Suite 600 c/o Department of Children and Families Worcester, MA 01608 140 High Street, 5th Floor Phone: 800-244-2756, Ext: 428 or 431 Springfield, MA 01105 Fax: 508-751-6444 Phone: 413-452-3431 Email: [email protected] Website: www.massatloan.org Massachusetts Advocates for Children Serving: Statewide Free legal services for income-eligible families on educational Categories: AT issues for children 3-22. Advocacy for parents, including Autism Special Education Legal Support Center. Massachusetts Association for Community Action 25 Kingston Street, 2nd Floor Statewide association of 24 Community Action Agencies in Boston, MA 02111 Massachusetts; enhances the ability of community agencies to Phone: 617-357-8431, Ext: 224 better provide emergency assistance to people in crisis. Fax: 617-357-8438 105 Chauncy Street, Suite 301 Email: [email protected] Boston, MA 02111 Website: www.massadvocates.org Phone: 617-357-6086 Serving: Statewide Fax: 617-357-6542 Categories: ADV, LGL Email: [email protected] Additional Languages: Spanish Website: www.masscap.org Serving: Statewide Massachusetts Advocates Standing Strong Categories: CS&I, HOUS A statewide self-advocacy organization to ensure that people with cognitive and developmental disabilities are Massachusetts Association for Parents of the treated equally. Our mission is to empower self-advocates Visually Impaired through education. Parent support to families of children with visual impairments; 500 Harrison Avenue, Suite 230 speaker meetings, internet resources, quarterly newsletters, Boston, MA 02118 social events and legislative advocacy opportunities. Phone: 617-624-7549 P.O. Box 382 Fax: 617-542-5116 Watertown, MA 02471 Serving: Statewide Email: [email protected] Categories: ADV, TR Website: www.mapvi.org Serving: Statewide Categories: SC

129 Massachusetts Association of Approve Private Schools (MAAPS) Resources

Massachusetts Association of Approved Private Massachusetts Clubhouse Coalition Schools (MAAPS) Committed to helping people with mental illness find A nonprofit association of Chapter 766-approved private schools employment, housing, education, services and support dedicated to providing educational programs and services to in the community. Recovery/rehabilitation centers called students with special needs. “Clubhouses.” 607 North Avenue 15 Vernon Street 15 Lakeside Office Park Waltham, MA 02453 Wakefield, MA 01880 Phone: 617-872-0190 Phone: 781-245-1220 Fax: 781-398-1735 Fax: 781-245-5294 Email: [email protected] Email: [email protected] Website: www.massclubs.org Website: www.maaps.org Serving: Statewide Serving: Statewide Categories: SC, TR Categories: ED Massachusetts Dental Society Massachusetts Board of Registration in Medicine Dental referral service for children with special needs, low Oversees licensure of physicians. Online resources include income dental assistance by application. physician profiles, Patient Complaint Line, office-based surgery 2 Willow Street, #200 guidelines, and tips on financial issues related to healthcare. Southborough, MA 01745 200 Harvard Mill Square, Suite 330 Phone: 508-480-9797, 800-342-8747 Wakefield, MA 01880 Fax: 508-480-0002 Phone: 781-876-8200 Email: [email protected] TTY: 781-876-8395 Website: www.massdental.org Fax: 781-876-8383 Serving: Statewide Website: www.mass.gov/massmedboard Categories: HC Serving: Statewide Categories: HC Massachusetts Developmental Disabilities Council Massachusetts Chronic Fatigue Immune Promotes opportunities for people with developmental Dysfunction Syndrome disabilities to enhance independence, productivity, integration, and inclusion, including conference funding. Information, support, resources and education for persons with Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS/ 1150 Hancock St., Suite 201 CFS-and Fibromyalgia FM), as well as supporting advocacy Quincy, MA 02169 and research. Phone: 617-770-7676 P.O. Box 690305 TTY: 617-770-9499 Quincy, MA 02269 Fax: 617-770-1987 Phone: 617-471-5559 Website: www.mass.gov/mddc Email: [email protected] Serving: Statewide Website: www.masscfids.org Categories: ADV, CS&I Serving: Statewide Categories: SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 130 Resources Massachusetts Home Learning Association

Massachusetts Down Syndrome Congress Western Statewide parent organization holds annual conference, picnic, 1000 Wilbraham Road and workshops throughout the year. Publishes a newsletter for Springfield, MA 01109 parents. Maintains a list of parent support groups. Phone: 413-782-2500 Ext: 321 20 Burlington Mall Road, Suite 261 Fax: 413-572-9707 Burlington, MA 01803 Email: [email protected] Phone: 781-221-0024, 800-664-6372 Fax: 781-221-0011 Massachusetts Family Voices Share resources and updates about health care legislation Email: [email protected] and how it affects families of children with special needs, Website: www.mdsc.org promote opportunities for families to work in partnership with Serving: Statewide professionals in the health care service system, and support each Categories: SC other in our advocacy efforts on behalf of our children. Additional Languages: Spanish c/o Federation for Children with Special Needs The Schrafft Center Massachusetts Families Organizing for Change 529 Main Street, Suite 1M3 Provides Family Leadership Series and works to educate the Boston, MA 02129 community about advocacy, services, and local, state and Phone: 617-236-7210, 800-331-0688 federal resources for individuals with disabilities. TTY: 800-331-0688 Serving: Statewide Fax: 617-241-0330 Categories: ADV Email: [email protected] Website: www.fcsn.org/mfv Statewide Serving: Statewide P.O. Box 421 Categories: ADV, HC, I&R Salem, MA 01970 Phone: 774-855-6001 Massachusetts Guardianship Association Email: [email protected] The MGA website is maintained exclusively for informational Website: www.mfofc.org purposes and does not constitute legal advice. MGA does not Additional Languages: Spanish offer legal advice or recommend private attorneys. P.O. Box 320621 Central West Roxbury, MA 02132 71 Sterling Street Email: [email protected] West Boylston, MA 01583 Website: www.massguardianshipassociation.org Phone: 508-918-4059 Serving: Statewide Fax: 508-520-6054 Categories: TR Email: [email protected]

Metro Boston Massachusetts Home Learning Association 45 Lexington Street Advocates and educates for home learning as an alternative Everett, MA 02149 to public or private schooling. Dedicated to maintaining and Phone: 617-605-7404 broadening homeschooler freedoms. Fax: 781-874-9572 164 Norfolk Street Email: [email protected] Holliston, MA 01746 Northeast Email: [email protected] 48 Central Street, 2nd Floor Website: www.mhla.org Manchester-by-the-Sea, MA 01944 Serving: Statewide Phone: 617-935-2264 Categories: ED Email: [email protected]

Southeast 109 Fairhaven Road Mattapoisett, MA 02739 Phone: 508-999-4436 Fax: 508-997-9239 Email: [email protected]

131 Massachusetts Immigrant and Refugee Advocacy Coalition Resources

Massachusetts Immigrant and Refugee Massachusetts Lifespan Respite Coalition Advocacy Coalition Uniting caregivers around the need for respite, improving Coalition concerned about the rights of Massachusetts’ coordination of services, training and recruitment of respite newcomer communities. Education about the citizenship providers, developing a statewide plan for respite provision and process, access to state benefits, and training. advocating for funding and services. 105 Chauncy Street, Suite 901 464 Common Street, Suite 226 Boston, MA 02111 Belmont, MA 02478 Phone: 617-350-5480 Phone: 617-863-6244 Fax: 617-350-5499 Email: [email protected] Email: [email protected] Website: www.massrespite.org Website: www.miracoalition.org Serving: Statewide Serving: Statewide Categories: RES Categories: ADV, COMM, I&R, LGL Additional Languages: Spanish Massachusetts Medical Society Website offers a comprehensive patient section on how to find a doctor, speakers, patient safety, medication information, Massachusetts Law Reform Institute healthcare proxy information, and an online newsletter. A support center for advocates who represent low-income, elderly, or disabled persons. Help with public programs, health Waltham Woods Corporate Center care, employment, housing, family law, immigration, and 860 Winter Street disability rights. Waltham, MA 02451 Phone: 781-893-4610, 800-322-2303 Ext: 7311 40 Court Street, Suite 800 Fax: 781-893-8009 Boston, MA 02108 Email: [email protected] Phone: 617-357-0700, 800-717-4133 Website: www.massmed.org Fax: 617-357-0777 Serving: Statewide Website: www.mlri.org Categories: HC Serving: Statewide Categories: ADV, ED, LGL Massachusetts Mental Health Legal Additional Languages: Haitian Kreyol, Portuguese, Spanish Advisors Committee An independent state agency of the Supreme Judicial Court. Massachusetts League of Community Health Centers Advice and legal representation on treatment rights, custody Association serving 52 community health centers through and visitation matters, guardianship abuse, insurance advocacy, technical assistance, training, and development. discrimination, educational rights, housing bias, and Patient Referral Line: 800-475-8455. mistreatment. 40 Court Street, 10th Floor 24 School Street, Suite 804 Boston, MA 02108 Boston, MA 02108 Phone: 617-426-2225, 800-475-8455 Phone: 617-338-2345, 800-342-9092 Fax: 617-426-0097 Fax: 617-338-2347 Email: [email protected] Email: [email protected] Website: www.massleague.org Website: www.mhlac.org Serving: Statewide Serving: Statewide Categories: HC Categories: LGL, SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 132 Resources Massachusetts Society for the Prevention of Cruelty to Children: Project Unite

Massachusetts MENTOR Massachusetts School of Professional Psychology Foster care program for children with emotional and behavioral Interface Referral Services issues due to abuse and/or neglect. Also has Host Home Collects and categorizes a wide range of valuable resources program for children with developmental disabilities. Other related to mental health and wellness for the benefit of the services include supported living, transitional programming and general public as well as educators/mental health professionals. post-program care. 1 Wells Avenue 270 Bridge Street, Suite 201 Newton, MA 02459 Dedham, MA 02026 Phone: 617-332-3666, Ext: 1411 or 888-244-6843 Phone: 781-326-4207 Email: [email protected] Fax: 781-326-4654 Website: www.msppinterface.org/home Website: www.ma-mentor.com Serving: Statewide Serving: Statewide Categories: SC Categories: HOUS, RES, TR Massachusetts Sibling Support Network Massachusetts Registry of Interpreters for the Deaf Committed to supporting brothers and sisters of people with disabilities by creating welcoming communities for siblings Works with the Deaf Community to meet the interpreting needs across the lifespan. of Massachusetts residents by enhancing the quality and availability of sign language interpreters. 465 Medford Street, Suite 500 Charlestown, MA 02129 Website: www.massrid.org Phone: 617-807-0558 Serving: Statewide Email: [email protected] Categories: SC Website: www.masiblingsupport.org

Serving: Statewide Massachusetts Rehabilitation Commission Home Categories: COMM Modification Program State-funded loan program provides loans to improve Massachusetts Society for the Prevention of Cruelty accessibility to the principal residence of adults with disabilities to Children (MSPCC) and families of children with special needs. Focuses on at-risk families and foster care; services include Early 600 Washington Street Intervention, Parent Centers, daycare, after-school programs, Boston, MA 02111 family counseling and support programs. Phone: 617-204-3600, 800-245-6543 3815 Washington Street, Suite 2 Fax: 617-727-1354 Boston, MA 02130 Website: www.mass.gov/mrc Phone: 617-983-5800 Serving: Statewide Fax: 617-983-5840 Categories: ACC, HOUS Email: [email protected] Additional Languages: Spanish Website: www.mspcc.org Serving: Statewide Massachusetts Relay Service Categories: CC, COMM, RES Provides means for individuals with hearing loss or speech disability to communicate via a text-based device for relay Massachusetts Society for the Prevention of Cruelty phone conversations (TTY-TTD); those using a regular phone can to Children: Project Unite communicate through relay with those on a text-based device. In a project overseen by DCF, case managers provide support and assistance to Latino families in the Holyoke area. 703 W. Housatonic Street, Suite 148 Pittsfield, MA 01201 9 Sullivan Road Phone: 800-720-3479 Holyoke, MA 01040 TTY: 800-720-3480 Phone: 413-532-9446 Email: [email protected] Fax: 413-533-1598 Website: www.mass.gov/eopss/agencies/massrelay Serving: Western Serving: Statewide Categories: COMM Categories: AT

133 Massachusetts Special Olympics Association Resources

Massachusetts Special Olympics Association MASSPAC Thousands of children and young adults with disabilities Statewide network of Special Education Parent Advisory Councils participate in five annual statewide competitions. (PACs). Support and coordinates the development of Special Yawkey Sports Training Center Education PACs in each school district. 512 Forest Street c/o Federation for Children with Special Needs Marlborough, MA 01752 The Schrafft Center Phone: 508-485-0986 529 Main Street, Suite 1M3 Fax: 508-481-0786 Boston, MA 02129 Email: [email protected] Phone: 617-236-7210, 800-331-0688 Website: www.specialolympicsMA.org TTY: 800-331-0688 Serving: Statewide Fax: 617-241-0330 Email: [email protected] Categories: REC Website: www.fcsn.org/MASSPAC Serving: Statewide Massachusetts State Association of the Deaf Categories: ADV, ED Advocacy and protection for the Deaf, Hard of Hearing and Deaf- Blind people in Massachusetts; focus on access to a May Institute Center School for Autism & variety of Deaf interventions. Co-hosts activities and an annual consumer conference with MCB and MRC. Developmental Disabilities Home-based, center-based and school consultations for P.O. Box 52097 Boston, MA 02205 children who have Autism, brain injury, behavioral health, or Email: [email protected] developmental disability. Residential and year-round programs Website: www.massdeaf.org provide education and vocational training to individuals Serving: Statewide ages 2.9-22. Programs are based on applied behavioral Categories: ADV, SC analysis (ABA). Additional Languages: ASL Boston and Northeast MassHousing 41 Pacella Park Drive The state’s affordable housing bank, offering rates below 50-E Concord Street, Suite 550 conventional market to support rental and home ownership Wilmington, MA 01887 opportunities for low-and moderate-income families. Randolph, MA 02368 One Beacon Street Phone: 978-909-3990, 781-437-1300, 800-778-7601 Boston, MA 02108 Phone: 617-854-1000, 800-882-1154 TTY: 781-440-0461 TTY: 866-758-1435 Fax: 781-437-1240 Fax: 617-854-1029 Email: vdeltoro [email protected] Email: [email protected] Website: www.mayinstitute.orgwww.mayinstitute.org/ Website: www.masshousing.com autismschools Serving: Statewide Serving: National, Statewide Categories: HOUS Categories: COMM, ED, SC Additional Languages: Portuguese, Spanish Boston and Southeast MassOptions 41 Pacella Park Drive A statewide service hosted by the Executive Office of Elder Affairs; Randolph, MA 02368 offers information and referrals for seniors and individuals with Phone: 781-437-1281, 800-778-7601 disabilities. Email: [email protected] Phone: 844-422-6277 Website: www.mayinstitute.org/autismschools Website: www.massoptions.org Serving: Statewide Categories: I&R, TR

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 134 Resources Merrimack Valley Legal Services

May Institute Center School for Autism & Mental Health America Developmental Disabilities (cont.) A nonprofit mental health advocacy organization. Resource Center serves the general public by providing literature, Central and Western referrals, and technical assistance. Emergency Telephone 48 Capital Drive Number: 800-273- 8255. West Springfield, MA 500 Montgomery Street, Suite 820 Phone: 413-785-5462, 800-778-7601 Alexandria, VA 22314 Email: [email protected] Phone: 703-684-7722, 800-969-6642 Website: www.mayinstitute.org/autismschools TTY: 800-433-5959 Fax: 703-684-5968 May Center School for Brain Injury and Email: [email protected] Neurobehavioral Disorders Website: www.mentalhealthamerica.net Day and residential school provides 24 hour care and services Serving: National to individuals ages 5-22 with brain injury, neurological disease Categories: SC or neurobehavioral disorders. Program is based on applied behavioral analysis (ABA). Mental Help Net 596 Summer Street Comprehensive guide to mental health on-line, featuring over Brockton, MA 02302 7500 individual resources. Phone: 508-588-8800, 800-778-7601 Phone: 888-993-3112 Email: [email protected] Website: www.mentalhelp.net Website: www.mayinstitute.org/braininjuryschool Serving: National Serving: National, Statewide Categories: SC Categories: COMM, SC Mercy Medical Angels Mayor’s Health Line of Boston Helps coordinate free air transportation for individuals seeking Applications for public insurance, answers question about medical treatment. Also hosts Operation Iraqi Freedom OIF- coverage, public programs, private and non-group insurance and Operation Enduring Freedom (OEF-for veterans and their options, multilingual services, pharmacy programs and low cost families call 888-662-6794 for details). dental services. 4620 Haygood Road, Suite 1 1010 Massachusetts Avenue, 2nd Floor Virginia Beach, VA 23455 Boston, MA 02118 Phone: 757-318-9174, 800-296-1217 Phone: 617-534-5050, 800-847-0710 Fax: 757-464-1284 TTY: 800-847-0710 Email: [email protected] Fax: 617-534-2297 Website: www.mercymedical.org Email: [email protected] Serving: National Website: www.bphc.org/aboutus/mayors-health-line Categories: TA Serving: Boston Categories: ADV, CS&I, HOUS, I&R, LGL, RES Merrimack Valley Legal Services Additional Languages: Cape Verdean Kriolu, Haitian Kreyol, Free legal advice and representation to low-income and elderly Spanish persons, representing those with a denial of public benefits, disabled children and adults who are denied Social Security, McGraw Center for Adaptive Sports domestic violence cases, housing, and landlord/tenant cases. The McGraw Center serves as a resource for residents and a 35 John Street, Suite 302 vacation destination for increasingly mobile and connected Lowell, MA 01852 adaptive sports enthusiasts. Phone: 978-458-1465, 800-336-2262 TTY: 978-452-4740 Nickerson State Park Fax: 978-458-3481 3488 Main Street Email: [email protected] Brewster, MA 02631 Website: www.northeastlegalaid.org Phone: 877-976-7272 Serving: Northeast Website: spauldingrehab.org/about/advocacy/mcgraw_ Categories: LGL center Additional Languages: Spanish Serving: Statewide Categories: ACC, CS&I, REC

135 Message of Hope Foundation Resources

Message of Hope Foundation Metrowest Legal Services Inspires community involvement to support children with special Free legal services for those that are income-eligible. Represents needs, chronic and life-threatening illnesses through the Happy disabled children and adults who are denied social security Hope Bag project. benefits and special education services. P.O. Box 277 63 Fountain Street, Suite 304 Wareham, MA 02576 Framingham, MA 01702 Phone: 888-201-4673 Phone: 508-620-1830, 800-696-1501 Email: [email protected] TTY: 800-696-1501 Website: www.messageofhopefoundation.org Fax: 508-620-2323 Serving: Statewide Website: www.mwlegal.org Categories: CS&I, SC Serving: Metrowest Categories: LGL Metro Boston Housing Additional Languages: Portuguese, Spanish Assists families to affordable housing; regional provider of rental voucher assistance to disabled, and low/moderate income MHE and Me residents of Boston and 29 surrounding communities. International and national online communities to support 125 Lincoln Street, 5th Floor children and adults who have Multiple Hereditary Exostoses Boston, MA 02111 (also known as Hereditary Multiple Osteochondromas). Phone: 617-859-0400, 800-272-0990 P.O. Box 651 Fax: 617-426-4256 Pine Island, NY 10969 Email: [email protected] Email: [email protected] Website: www.mbhp.org Website: www.mheandme.com Serving: Boston, Metrowest, Northeast Serving: National Categories: HOUS Categories: SC Additional Languages: French, Spanish Metrowest Center for Independent Living ILCs are controlled and directed by persons with disabilities MHE Coalition for the purpose of empowering people with disabilities to Dedicated to finding the causes, treatments and ultimately the take control of their lives. Advocacy services, information and cure for Multiple Hereditary Exostoses and to providing support referrals, peer counseling, and independent living skills training. and information to families living with this rare bone disorder. 280 Irving Street 6783 York Road, #104 Framingham, MA 01702 Parma Heights, OH 44130 Phone: 508-875-7853 Agency Phone: 440-842-8817 TTY: 508-875-7853 Email: [email protected] Fax: 508-875-8359 Website: www.mhecoalition.org Email: [email protected] Serving: National Website: www.mwcil.org Categories: SC Serving: Metrowest Categories: ILC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 136 Resources Miracle League of the North Shore

Michael Carter Lisnow Respite Center Miracle Babies Programs for children including daycare, after-school care, Unites families with their critically ill newborns in the NICU. Monday overnights, Weekend Respite. The Center also provides Works to reduce NICU admissions through prevention, education Elementary School Disability Awareness programs. and research. 112 Main Street 8745 Aero Drive, Suite 111 Hopkinton, MA 01748 San Diego, CA 92123 Phone: 508-435-1222 Phone: 858-633-8540 Fax: 508-435-9849 Website: www.miraclebabies.org/about Email: [email protected] Serving: National Website: www.hopkintonrespite.com Categories: CS&I, I&R, TA Serving: Central, Metrowest Categories: CC, RES Miracle Flights for Kids Helps families overcome financial obstacles by flying their Milton Early Childhood Alliance seriously ill children to receive proper medical care and to get Supports families of young children and expands access to second opinions. Accepts financial and frequent flyer mile affordable, quality early childhood education. Funded by the donations. Massachusetts Department of Early Education and Care. MECA is 5740 S. Eastern Avenue, Suite 240 administered by its Lead Agent, Discovery Schoolhouse, Inc. Las Vegas, NV 89119 495 Canton Avenue Phone: 702-261-0494, 800-359-1711 Milton, MA 02186 Fax: 702-261-0497 Phone: 617-696-2262 Email: [email protected] Email: [email protected] Website: www.miracleflights.org Website: www.miltonearlychildhoodalliance.org Serving: National Serving: Metrowest Categories: TA Categories: CC, COMM Miracle League of Massachusetts Minute Man Arc for Human Services An all-volunteer, non-profit organization that gives children Supports people with disabilities throughout their lives. with disabilities a chance to play baseball as part of a team in an Programs include Early Intervention, after-school/after-work, organized league at no cost to their family. recreation, camps, and adult day services. P.O. Box 524 35 Forest Ridge Road Acton, MA 01720 Concord, MA 01742 Phone: 978-263-3043 Phone: 978-287-7900 Email: [email protected] Fax: 978-287-7901 Website: www.miracleleagueofma.com Website: www.minutemanarc.org Serving: Statewide Serving: Metrowest Categories: REC Categories: ARC Miracle League of the North Shore Minutes for Memories An all volunteer, non-profit organization that gives children Creates memories for children ages 5-25 who have sustained with disabilities a chance to play baseball as part of a team long- term injuries. Child’s primary care physician must write a in an organized league at no cost to their family. letter of recommendation for the program. Phone: 978-927-7070 148 Captain Eames Circle Email: [email protected] Ashland, MA 01721 Website: www.cccbsd.org/community/miracle-league Phone: 617-581-3116 Serving: Boston, Metrowest, Central, Northeast Email: [email protected] Categories: REC Website: www.minutesformemories.org Serving: Statewide Categories: REC

137 Miss Amazing Inc. Resources

Miss Amazing Inc. Morgan’s Wonderland A pageant for girls and young women with disabilities provides This ultra-accessible family fun park offers an atmosphere of opportunities to build self-esteem in a supportive environment. inclusion. Phone: 402-913-0392 5223 David Edwards Drive Email: [email protected] San Antonio, TX 78233 Website: www.missamazing.org Phone: 210-495-5888, 877-495-5888 Serving: National Email: [email protected] Categories: REC Website: www.morganswonderland.com Serving: National MitoAction Categories: REC Informative website, educational and networking opportunities for the community. Marcel’s Way Family Fund provides grants to Mothers’ Milk Bank Northeast individuals affected by Mitochondrial Disease. A non-profit community milk bank operating under the P.O. Box 51474 guidelines of the Human Milk Banking Association of North Boston, MA 02205 America. Provides donated, pasteurized human milk to babies in Phone: 888-648-6228 fragile health. Email: [email protected] 377 Elliot Street, Building J Website: www.mitoaction.org Newton Upper Falls, MA 02464 Serving: National Phone: 617-527-6263 Categories: SC Fax: 617-527-1005 Email: [email protected] Modest Needs Website: www.milkbankne.org Modest Needs is a national nonprofit empowering members of Serving: Statewide the general public to make small, emergency grants to low- Category: CS&I, HC income workers who are at risk of slipping into poverty. 120 E 23rd Street, FL 5 Mouth and Foot Painting Artists (MFPA) New York, NY 10010 Run by disabled artists to help them meet their financial needs. Phone: 844-667-3776 Members paint with brushes held in mouths or feet. Email: [email protected] 2070 Peachtree Court, Suite 101 Website: www.modestneeds.org Atlanta, GA 30341 Serving: National Phone: 770-986-7764, 877-6372-872 Categories: COMM Fax: 770-986-8563 Email: [email protected] MOLIFE: Murphy and Others, Living Independently Website: www.mfpausa.com for Future Endeavors Serving: National Provides support through supported employment, independent Categories: REC, TR living, educational opportunities, and community connections. 43 Daniel Street Mowat-Wilson.org Fairhaven, MA 02719 Site includes links to various agencies and a network of over 65 Phone: 508-992-5978 families worldwide, including a community posting forum. TTY: 508-992-5978 Email: [email protected] Fax: 508-999-7188 Website: www.mowatwilson.org Email: [email protected] Serving: National Website: www.molifeinc.com Categories: SC Serving: Southeast Additional Languages: Spanish, Vietnamese Categories: ADV, ILC, TR Additional Languages: Spanish

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 138 Resources My Child Without Limits

Multicultural Community Services Multiple Sclerosis Society, Southeastern Office Variety of family supports and services offered, including Mobilizes people and resources to drive research for a cure and educational advocacy. to address the challenges of everyone affected by MS. 1000 Wilbraham Road 101A First Avenue Springfield, MA 01109 Waltham, MA 02451 Phone: 413-782-2500 Phone: 800-344-4867 Fax: 413-796-1955 Fax: 781-890-2089 Email: [email protected] Email: [email protected] Website: www.mcsnet.org Website: www.nationalmssociety.org/Chapters Serving: Western Serving: Southeast Categories: ADV, COMM Categories: ADV, CS&I, I&R, REC, SC Additional Languages: Spanish, Vietnamese Muscular Dystrophy Association Multi-Cultural Independent Living Center of Boston Inc. Provides medical and psycho-social supports, services and ILCs are controlled and directed by persons with disabilities, for referrals to families who are affected by the 43 related diseases. the purpose of empowering people with disabilities to advocate Website: www.mdausa.org and take control of their lives. Categories: COMM, 329 Centre Street Additional Languages: Spanish Jamaica Plain, MA 02130 National Phone: 617-942-8060 222 S. Riverside Plaza, Suite 1500 Fax: 617-942-8630 Chicago, Illinois 60606 Email: [email protected] Phone: 800-572-1717 Website: www.milcb.org Email: [email protected] Serving: Boston Serving: National Categories: ILC Additional Languages: Chinese, French, Portuguese, Statewide Spanish 33 Lyman Street, #205 Westborough, MA 01581 Multi-Service Eating Disorders Association (MEDA) Phone: 508-898-3375 Provides education & awareness about eating disorders & Fax: 508-366-2272 their underlying causes, in order to develop a compassionate Email: [email protected] community that promotes hopefulness & supports. Website: www.mda.org/office/massachusetts 288 Walnut Street, Suite 130 Music for Autism Newton, MA 02460 Raises public awareness and enriches lives through autism- Phone: 617-558-1881 friendly interactive concerts specifically developed for children Email: [email protected] who have Autism and their families. Website: www.medainc.org Serving: Statewide Email: [email protected] Categories: ADV, CS&I, ED, I&R, SC Website: www.musicforautism.org Serving: National Categories: SC Multiples of America Raises awareness of the needs of multiple birth children by My Child Without Limits fostering local support groups and enhancing the quality of Online resource focused on child development, with diagnosis educational materials available. and services resources. Sponsored by several UCP programs. 2000 Mallory Lane, Suite 130-600 Email: [email protected] Franklin, TN 37067 Website: www.mychildwithoutlimits.org Phone: 248-231-4480 Serving: National Email: [email protected] Categories: CS&I Website: www.multiplesofamerica.org Serving: National Categories: COMM

139 My Gym Challenged America (MGCA) Resources

My Gym Challenged America (MGCA) Nashoba Valley Adaptive Program The goal of My Gym Challenged America Foundation is to Instructors work with students with cognitive disabilities, provide equipment and services that enhance the quality of visual/ or hearing impairment, and amputees and those with life and improve the physical, cognitive, emotional, and social lower extremity weaknesses who require outriggers or forearm development of childeren who are physically or developmentally crutches with ski tips attached. challenged and those coping with chronic illness. 79 Powers Road 15300 Ventura Boulevard, Suite 523 Westford, MA 01886 Sherman Oaks, CA 91403 Phone: 978-692-3033 Email: [email protected] Email: [email protected] Website: www.mygymchallengedamerica.org Website: www. skinashoba.com Serving: National Serving: Statewide Categories: COMM Categories: REC

MY TEAM TRIUMPH–Massachusetts Nashoba Valley Special Olympics Athletic ride-along program for children, adults and veterans Supports athletes with special needs ages 6-18 through training, with disabilities to participate in triathlons or road races; coaching and competition. provides equipment needed to allow Captains to participate. c/o Rodenbush Community Center P.O. Box 3168 65 Main Street Bourne, MA 02532 Westford, MA 01886 Phone: 508-356-3190 Website: www.nvso.org Email: [email protected] Serving: Northeast Website: www.myteamtriumph-ma.org Categories: REC Serving: Southeast Categories: REC Natick Recreation and Parks Department Inclusive recreation programs include Arrowhead Club for Camp Myotonic Dystrophy Foundation (Arrowhead campers a monthly activity program), year round A MDF toolkit, support groups, family connections, webinars, teen and adult programs, Parents Night Out programs, and more. and conferences to educate affected individuals, the medical 179 Boden Lane community, and community at large. Natick, MA 01760 1004A O’Reilly Avenue Phone: 508-647-6530 San Francisco, CA 94129 Fax: 508-647-6535 Phone: 415-800-7777, 866-968-6642 Email: [email protected] Email: [email protected] Website: www.natickma.gov/recreation Website: www.myotonic.org Serving: Metrowest Categories: REC Serving: National Categories: COMM, SC National Alliance for the Mentally Ill (NAMI) Dedicated to providing education, support, and advocacy for Nantucket Autism Resource Center people with mental illness and their family members Information and resources for Nantucket families affected by Categories: ADV, SC Autism Spectrum Disorders. 10 Surfside Road National Nantucket, MA 02554 3803 N. Fairfax Drive, Suite 100 Phone: 508-228-7285, Ext: 1224 Arlington, VA 22203 Email: [email protected] Phone: 703-524-7600, 800-950-6264 Website: www.autismspeaks.org/family-services/nantucket- TTY: 703-516-7227 Fax: 703-524-9094 autism-speaks-resource-center Website: www.nami.org Serving: Southeast Serving: National Categories: SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 140 Resources National Association of Private Special Education Centers

National Alliance for the Mentally Ill (NAMI) (cont.) National Association of Anorexia Nervosa and Associated Disorders Statewide Seeks to alleviate the problems of eating disorders, especially 529 Main Street, Suite 1M17 anorexia nervosa and bulimia nervosa; provides information Charlestown, MA 02129 about eating disorders, sources and facilities for treatment. Phone: 617-580-8541 220 N. Green Street Fax: 617-580-8673 Chicago, IL 60607 Email: [email protected] Phone: 630-577-1330 Website: www.namimass.org Email: [email protected] Serving: Statewide Website: www.anad.org Central Serving: National Worcester State Hospital Categories: SC 309 Belmont Street, Room G-139 Worcester, MA 01604 National Association of Free & Charitable Clinics Phone: 508-368-3562 (NAFC) Fax: 508-363-1523 Organization’s website includes Find A Clinic and free discount Email: [email protected] pharmacy card. Clinics may provide a range of medical, dental, Serving: Central pharmacy, vision and/or behavioral health services. Western 1800 Diagonal Road, Suite 600 333 East Street, Room 417 Alexandria, VA 22314 Pittsfield, MA 01201 Phone: 703-647-7427 Phone: 413-443-1666 Fax: 866-875-3827 Fax: 413-395-2018 Email: [email protected] Email: [email protected] Website: www.nafcclinics.org Website: www.namibc.org Serving: National Serving: Western Categories: HC Additional Languages: Spanish National Association of Housing and National Amputation Foundation Redevelopment Officials Information specific to the needs of above-the-knee, below-the- Provides information concerning pertinent legislation, issues knee, and arm amputees; peer counseling, support, and medical impacting housing and community development programs. equipment available. 11 Beacon Street, Suite 722 40 Church Street Boston, MA 02108 Malverne, NY 11565 Phone: 617-367-0008 Phone: 516-887-3600 Fax: 617-720-2529 Fax: 516-887-3667 Website: www.massnahro.org Email: [email protected] Serving: National Website: www.nationalamputation.org Categories: HOUS Serving: National Categories: SC National Association of Private Special Education Centers Promotes high-quality programs for individuals with disabilities National Association for the Education and their families and advocates for access to alternative of Young Children placements and services. Free on-line referral service. Works on behalf of children 0-8 with a primary focus on 601 Pennsylvania Avenue NW, Suite 900-South Building educational and developmental services and resources. Washington, DC 20004 1313 L Street NW, Suite 500 Phone: 202-434-8225 Washington, DC 20005 Fax: 202-434-8224 Phone: 202-232-8777, 800-242-2460 Email: [email protected] Fax: 202-328-1846 Website: www.napsec.org Website: www.naeyc.org Serving: National Serving: National Categories: ED Categories: CC, CS&I

141 National Association of the Deaf Resources

National Association of the Deaf National Autism Center Grassroots advocacy, captioned media, certification for Provides leadership and evidence-based resources to families, American Sign Language ASL-interpreters, publications, legal practitioners, policymakers, programs, and organizations. assistance, public awareness and youth programs. Offers parent trainings and houses an affiliated school with 8630 Fenton Street, Suite 820 model classrooms. Silver Spring, MD 20910 41 Pacella Park Drive, Door 2 Phone: 301-587-1788 Randolph, MA 02368 TTY: 301-587-1789 Phone: 877-313-3833 Fax: 301-587-1791 Fax: 781-440-0401 Email: [email protected] Email: [email protected] Website: www.nad.org Website: www.nationalautismcenter.org Serving: National Serving: National Categories: ACC, SC Categories: SC Additional Languages: American Sign Language Additional Languages: Spanish

National Ataxia Foundation National Braille Press Dedicated to improving the lives of affected individuals through A comprehensive catalog of adult and children’s titles, literacy support, education and research. programs, Children’s Book Club, and downloadable PortaBooks 600 Highway 169 South, Suite 1725 (read through portable Braille machines or computers). Minneapolis, MN 55426 88 Saint Stephen Street Phone: 763-553-0020 Boston, MA 02115 Fax: 763-553-0167 Phone: 617-266-6160, 888-965-8965 Email: [email protected] Fax: 617-437-0456 Website: www.ataxia.org Email: [email protected] Serving: National Website: www.nbp.org Categories: SC Serving: National Categories: ACC, SC National Autism Association Offers a variety of resources including free downloadable safety National Brain Tumor Foundation brochures, swimming program lists, Big Red Safety Toolkit, safety Shares research, coordinates community advocacy and program grants, and community support lists. fundraising activities, and provides information to help in caring One Park Avenue, Suite 1 for individuals diagnosed with a brain tumor. Portsmouth, RI 02871 55 Chapel Street, Suite 200 Phone: 877-622-2884 Newton, MA 02458 Fax: 401-293-5342 Phone: 617-924-9997 Email: [email protected] Phone: 617-924-9998 Website: www.nationalautismassociation.org Email: [email protected] Serving: National Website: www.braintumor.org Categories: COMM, SC Serving: National Categories: HC, I&R, SC .

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 142 Resources National Center of Deaf-Blindness

National Cancer Institute National Center for Medical Home Implementation Comprehensive glossary, drug dictionary, research directory, An online resource with links to articles, policy statements and clinical trials, information on treatment funding, and reports for anyone interested in creating a medical home for publications. Services available by phone, LiveHelp Online Chat, children and youth. and email. American Academy of Pediatrics Phone: 800-422-6237 141 Northwest Point Blvd. Email: www.cancer.gov/global/contact/email-us Elk Grove, IL 60007 Website: www.cancer.gov Phone: 800-433-9016, Ext: 7605, 847-434-7605 Serving: National Email: [email protected] Categories: SC Website: www.medicalhomeinfo.org Languages: Spanish Serving: National Categories: HC National Celicac Association 20 Pickering Street National Center for Prenatal and Postnatal Down Needham, MA 02442 Syndrome Resources Phone: 617-262-5422, 888-4-CELIAC Online resource including free newsletter for expectant and Email: [email protected] new parents and professionals, sharing a collection of balanced resources to support families. National Center for the Dissemination University of Kentucky of Disability Research 100 Sturgill Development Bldg. Provides support for a number of Rehabilitation Research and Lexington, KY 40506 Training Centers (RRTCs). Serve as national resource for providers Fax: 859-323-1064 Email: [email protected] and individuals with disabilities. Website: www.downsyndromepregnancy.org 4700 Mueller Boulevard Serving: National Austin, TX 78723 Categories: SC Phone: 512-476-6861, 800-266-1832 Fax: 512-476-2286 National Center on Accessibility Email: [email protected] Works to make art, beaches, sports, national monuments, Website: www.ncddr.org amusement parks, golf courses, swimming pools, trails, and Serving: National playgrounds inclusive for all people. Website lists accessible Categories: HC recreational opportunities. 501 North Morton Street, Suite 109 National Center for Learning Disabilities Bloomington, IN 47404 Offers information about learning disabilities LD—through Phone: 812-856-4422 a comprehensive library of articles, advocacy guides, policy- TTY: 812-856-4421 related publications, checklists, worksheets, and forms. Fax: 812-856-4480 32 Laight Street, Second Floor Email: [email protected] New York, NY 10013 Website: www.ncaonline.org Phone: 212-545-7510, 888-575-7373 Serving: National Fax: 212-545-9665 Categories: ACC, REC Email: [email protected] Website: www.ncld.org National Center on Deaf-Blindness Serving: National Promotes achievement for children/youth who are deaf-blind Categories: SC and assists in addressing need for personnel with the skills and knowledge to serve children and youth who are deaf-blind. 345 N. Monmouth Avenue Monmouth, OR 97361 Phone: 503-838-8754 Fax: 503-838-8150 Email: [email protected] Website: www.nationaldb.org Serving: National Categories: SC Additional Languages: Spanish

143 National Center on Health, Physical Activity and Disability (NCHPAD) Resources

National Center on Health, Physical Activity and National Council on Disability Disability (NCHPAD) Independent federal agencies making recommendations to Focused on health promotion/obesity management among the President and Congress to enhance the quality of life for all people with disabilities. Americans with disabilities and their families. Lakeshore Foundation 1331 F Street NW, Suite 850 4000 Ridgeway Drive Washington, DC 20004 Birmingham, AL 35209 Phone: 202-272-2004 Phone: 800-900-8086 TTY: 202-272-2074 Fax: 205-313-7475 Fax: 202-272-2022 Website: www.nchpad.org Email: [email protected] Email: [email protected] Website: www.ncd.gov Serving: National Serving: National Categories: ADV, HC Categories: ADV Additional Languages: Spanish National Center on Secondary Education National Cristina Foundation and Transition Encourages companies and individuals to donate computers Resources, technical assistance, and information on secondary and other technology, which is then matched to charities, education and transition for youth with disabilities. Funded by schools and public agencies around the world. US DOE, Office of Special Education Programs. 339 Lea Drive Institute on Community Integration, University of MN 150 West Chester, PA 19382 Pillsbury Drive SE, 6 Pattee Hall Phone: 203-863-9100 Minneapolis, MN 55455 Email: [email protected] Phone: 612-624-5659 Website: www.cristina.org Fax: 612-624-9344 Serving: National Email: [email protected] Categories: AT Website: www.ncset.org Serving: National National Disability Mentoring Center for Youth Categories: TR with Disabilities Additional Languages: Spanish Provides organizations opportunities to learn about best practices, connect with others doing similar work, and receive National Collaborative on Workforce and Disability training and technical assistance. Composed of partners with expertise in disability, education, 95 Berkeley Street, Suite 109 employment, and workforce development policy and practice. Boston, MA 02119 c/o Institute for Educational Leadership Phone: 617-556-4075 4301 Connecticut Avenue NW, Suite 100 TTY: 617-314-2989 Washington, DC 20008 Fax: 617-556-4074 Phone: 202-822-8405, 877-871-0744 Email: [email protected] TTY: 877-871-0665 Website: www.pyd.org/national-center Fax: 202-872-4050 Serving: National Website: www.ncwd-youth.info Categories: I&R, TR Serving: National Categories: TR Additional Languages: Spanish

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 144 Resources National Foundation for Ectodermal Dysplasia

National Disability Rights Network National Family Association for Deaf-Blind Oversees the federally mandated system in each state which A nonprofit, volunteer-based family association. National provides protection of the rights of persons with disabilities network of families focusing on issues of deaf-blindness. through legally based advocacy. 141 Middle Neck Road 820 1st Street NE, Suite 740 Sands Point, NY 11050 Washington, DC 20002 Phone: 800-255-0411 Phone: 202-408-9514 Fax: 516-883-9060 TTY: 202-408-9521 Email: [email protected] Fax: 202-408-9520 Website: www.nfadb.org Email: [email protected] Serving: National Website: www.ndrn.org Categories: SC Serving: National Categories: ADV, LGL National Federation of Families for Children’s Mental Health (NFFCMH) National Down Syndrome Congress Links more than 120 chapters and state organizations focused Information, advocacy, and support concerning all aspects of life on the issues of children and youth with emotional, behavioral, for individuals with Down syndrome. or mental health needs and their families. 30 Mansell Court, Suite 108 12320 Parklawn Drive Roswell, GA 30076 Rockville, MD 20852 Phone: 770-604-9500, 800-232-6372 Phone: 240-403-1901 Fax: 770-604-9898 Email: [email protected] Email: [email protected] Website: www.ffcmh.org Website: www.ndsccenter.org Serving: National Serving: National Categories: SC Categories: SC Additional Languages: Spanish National Foundation for Celiac Awareness Dedicated to increasing diagnoses of celiac disease and other National Down Syndrome Society gluten-related disorders and improving quality of life for those The mission of the NDSS is to benefit people with Down on a lifelong gluten-free diet. syndrome and their families through national leadership in P.O. Box 544 education, research, and advocacy. Ambler, PA 19002 8 E 41st Street, 8th Floor Phone: 215-325-1306 New York, NY 10017 Fax: 215-643-1707 Phone: 212-460-9330, 800-221-4602 Email: [email protected] Fax: 212-979-2873 Website: www.beyondceliac.org Email: [email protected] Serving: National Website: www.ndss.org Categories: I&R, SC Serving: National Additional Languages: Translator Upon Request Categories: SC Additional Languages: Spanish National Foundation for Ectodermal Dysplasia Help to families dealing with ectodermal dysplasia. Regional National Eating Disorders Association and national educational publications and newsletter. Financial Dedicated to expanding public understand and prevention of assistance to qualified families for medical and dental items. eating disorders and promoting access to quality treatment and 6 Executive Drive, Suite 2 support through education, advocacy, and research. Fairview Heights, IL 62208 200 W 41st Street, Suite 1203 Phone: 618-566-2020 New York, NY 10036 Fax: 618-566-4718 Phone: 800-931-2237 Email: [email protected] Fax: 212-575-1650 Website: www.nfed.org Email: [email protected] Serving: National Website: www.nationaleatingdisorders.org Categories: SC Serving: National Categories: SC

145 National Fragile X Foundation Resources

National Fragile X Foundation National Hospice and Palliative Care Organization Education awareness, resources and research regarding Fragile X Provides people with information and support when they are syndrome. Extensive parent resources through website. planning ahead, caring for a loved one, living with an illness or 2100 M Street NW, Suite 170, Box 302 grieving a loss; also state specific advance directives. Washington, DC 20037-1233 1731 King Street Phone: 800-688-8765 Alexandria, VA 22314 Fax: 202-747-6208 Phone: 703-837-1500, 800-658-8898 Email: [email protected] Fax: 703-837-1233 Website: www.fragilex.org Email: [email protected] Serving: National Website: www.nhpco.org Categories: SC Serving: National Categories: ADV, HC, I&R National Gaucher Foundation Additional Languages: Chinese, Spanish The mission of NGF is to find a cure for Gaucher Disease by funding research, promoting awareness and educational National Hydrocephalus Foundation programs, and offering support groups and financial assistance. Comprehensive website leads to organizational resources on 5410 Edson Lane, #220 diagnosis, treatments, and resources. Rockville, MD 20852 12413 Centralia Road Phone: 800-504-3189 Lakewood, CA 90715 Fax: 770-934-2911 Phone: 562-924-6666, 888-857-3434 Email: [email protected] Email: [email protected] Website: www.gaucherdisease.org Website: www.nhfonline.org Serving: National Serving: National Categories: SC Categories: SC

National Health Council National Institute for Children’s Healthcare Quality Advocates for those with chronic diseases and disabilities; Activities focus on pediatric clinical care and quality committed to healthcare that will cover all, curb costs, abolish improvement; offers webinars, conferences, online toolkits on exclusions, eliminate caps, and ensure access to long-term care. family leadership, ADHD, and childhood obesity. 1730 M Street NW, Suite 500 30 Winter Street, 6th Floor Washington, DC 20036 Boston, MA 02108 Phone: 202-785-3910 Phone: 617-391-2743, 866-787-0832 Fax: 202-785-5923 Fax: 617-391-2701 Email: [email protected] Email: [email protected] Website: www.nationalhealthcouncil.org Website: www.nichq.org Serving: National Serving: National Categories: I&R Categories: HC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 146 Resources National Kdiney Foundation

National Institute of Arthritis and Musculoskeletal National Institute of Diabetes and Digestive and Skin Diseases and Kidney Diseases Information specialists help locate NIH materials and other Information dissemination to increase knowledge about sources of medical information. Publications include information digestive diseases. Works to identify and respond to about NIAMS-sponsored research and are updated periodically. informational needs about digestive diseases. 1 AMS Circle Building 31, Room 9A06 Bethesda, MD 20892 31 Center Drive, MSC 2560 Phone: 301-495-4484, 877-226-4267 Bethesda, MD 20892-2560 TTY: 301-565-2966 Phone: 800-860-8747 Fax: 301-718-6366 TTY: 866-569-1162 Email: [email protected] Fax: 703-738-4929 Website: www.niams.nih.gov Email: [email protected] Serving: National Website: www.niddk.nih.gov Categories: I&R, SC Serving: National Categories: SC National Institute of Child Health and Additional Languages: Spanish Human Development Provides information on health issues within the NICHD research National Institute on Disability and domain. Information Resource Center with trained information Rehabilitation Research specialists available to respond to inquiries M-F 8:30-5:00 EST. Generates and promotes new knowledge to improve the ability P.O. Box 3006 of people with disabilities to perform activities of their choice in Rockville, MD 20847 the community. Phone: 800-370-2943 400 Maryland Avenue SW, 7E-247 TTY: 888-320-6942 Washington, DC 20202 Fax: 866-760-5947 Phone: 800-872-5327 Email: [email protected] Fax: 202-245-7323 Website: www.nichd.nih.gov Website: www2.ed.gov/about/contacts/gen/indexhtml?src=ft Serving: National Serving: National Categories: I&R Categories: AT

National Institute on Deafness and Other National Institutes of Health Communication Disorders Consumer health publication and health information resources, Compilation of information related to hearing and deafness; including grants, research, and clinical trials. balance; smell and taste; voice, speech, and language. 9000 Rockville Pike National Institutes of Health Bethesda, MD 20892 31 Center Drive, MSC 2320 Phone: 301-496-4000 Bethesda, MD 20892 TTY: 301-402-9612 Phone: 800-241-1044, 800-241-1055 Email: [email protected] Email: [email protected] Website: www.nih.gov Website: www.nidcd.nih.gov Serving: National Serving: National Categories: HC Categories: SC National Kidney Foundation Serves kidney patients and families, transplant recipients of all types, and donors and donor families; provides a wealth of educational and supportive programs. 30 East 33rd Street New York, NY 10016 Phone: 212-889-2210, 800-662-9010 Fax: 212-689-9261 Email: [email protected] Website: www.kidney.org Serving: National Categories: SC

147 National Kidney Foundation of MA/RI, NH and VT, Inc. Resources

National Kidney Foundation of Massachusetts/ National Marfan Foundation Rhode Island/New Hampshire and Vermont, Inc. National support network for people with Marfan syndrome or Works to prevent kidney and urinary tract diseases, improve the related connective tissue disorders. Online community. health and well-being of individuals and families, and increase 22 Manhasset Avenue availability of all organs for transplantation. Port Washington, NY 11050 85 Astor Avenue, Suite 2 Phone: 516-883-8712, 800-862-7326 Norwood, MA 02062 Fax: 516-883-8040 Phone: 781-278-0222, 800-542-4001 Email: [email protected] Fax: 781-278-0333 Website: www.marfan.org Email: [email protected] Serving: National Website: www.kidney.org/offices/nkf-serving-new-england Categories: SC Serving: Statewide Categories: SC Massachusetts Chapter 9 Hope Avenue National Lekotek Center Waltham, MA 02453 Makes the world of play accessible to children with disabilities Phone: 617-846-4975 through special play and learning centers. Lekotek kids learn Email: [email protected] new skills that build the base for literacy, mathematical Website: www.marfan.org/marfan/3844/Massachusetts- reasoning and computer use. Chapter 2001 N. Clybourn Avenue, 1st Floor Serving: Statewide Chicago, IL 60614 Phone: 773-528-5766, 800-366-7529 National Military Family Association Fax: 773-537-2992 Focuses on issues important to military families including child Email: [email protected] care, health care, spouse employment, secure retirement, and Website: www.lekotek.org support for widows and widowers. Serving: National 3601 Eisenhower Avenue, Suite 425 Categories: REC Alexandria, VA 22304 Phone: 703-931-6632 National Library of Medicine Fax: 703-931-4600 Database of medical information including the health care Email: [email protected] system, access to journals, abstracts and medical records. Website: www.militaryfamily.org 8600 Rockville Pike Serving: National Bethesda, MD 20894 Categories: CS&I Phone: 301-594-5983, 888-346-3656 Fax: 301-496-2809 National MPS Society Email: [email protected] Works to put parents of children with MPS in touch with each Website: www.nlm.nih.gov other. Website offers “Ask the Parents” section. Also offer Serving: National scholarships for education, experiences, and medical needs. Categories: HC P.O. Box 14686 Durham, NC 27709 Phone: 919-806-0101, 877-677-1001 Fax: 919-806-2055 Email: [email protected] Website: www.mpssociety.org Serving: National Categories: SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 148 Resources National Resource Center for Health and Safety in Child Care and Early Education

National Multiple Sclerosis Society, Central New National Organization on Fetal Alcohol England Chapter Office Dedicated to eliminating birth defects caused by alcohol Information and comprehensive support services for individuals consumption during pregnancy and improving the quality of life and families affected by multiple sclerosis. for those affected individuals and families. 101A First Avenue 1200 Eton Court NW, 3rd Floor Waltham, MA 02451 Washington, DC 20007 Phone: 781-890-4990, 800-344-4867 Phone: 202-785-4585, 800-666-6327 Fax: 781-890-2089 Fax: 202-466-6456 Email: [email protected] Email: [email protected] Website: www.nationalmssociety.org/Chapters/MAM Website: www.nofas.org Serving: National Serving: National Categories: SC Categories: SC

National Organization for Disorders of National Patient Travel Center the Corpus Callosum Ensures that no financially-needy patient is denied access to Provides information for parents and an online discussion forum distant specialized medical evaluation, diagnosis or treatment and helps families to network with each other. for lack of a means of long-distance medical air transportation. PBM 363, 18032-C Lemon Drive 4620 Haygood Road, Suite 1 Yorba Linda, CA 92886 Virginia Beach, VA 23455 Phone: 714-747-0063 Phone: 800-296-1217 Fax: 714-693-0808 Fax: 800-550-1767 Email: [email protected] Email: [email protected] Website: www.nodcc.org Website: www.patienttravel.org Serving: National Serving: National Categories: SC Categories: TA Additional Languages: Spanish National Organization for Rare Disorders A unique federation of more than 140 nonprofit voluntary health National PTA organizations serving people with rare disorders and disabilities. A not-for-profit association of parents, educators, students and Offers Patient Assistance and Patient Organization resources. other citizens active in their schools and communities. 55 Kenosia Avenue 1250 N. Pitt Street Danbury, CT 06810 Alexandria, VA 22314 Phone: 203-744-0100, 800-999-6673 Phone: 703-518-1200, 800-307-4782 TTY: 203-797-9590 Fax: 703-836-0942 Fax: 203-263-9938 Email: [email protected] Email: [email protected] Website: www.pta.org Website: www.rarediseases.org Serving: National Serving: National Categories: ED Categories: HC, SC National Resource Center for Health and Safety in Massachusetts Office Child Care and Early Education 1900 Crown Colony Drive, 4th Floor Provides resources to families and providers relative to children’s Quincy, MA 02169 health and safety. Info about childcare programs, nutritional Phone: 617-249-7300 and physical activity checklists, and other topics. Fax: 617-249-7301 13120 E 19th Avenue, Mail Stop F541 Serving: Statewide P.O. Box 6511 Aurora, CO 80045 Email: [email protected] Website: www.nrckids.org Serving: National Categories: CC Additional Languages: Spanish

149 National Resource Center for Parents with Disabilities Resources

National Resource Center for Parents National Scoliosis Foundation with Disabilities Fosters ongoing research and educates and nurtures the Services, information and referrals, consultation, training, community of those affected by scoliosis in areas such as early materials, and research programs for families in which a parent, detection through screening programs, treatment methods, pain grandparent, or child has a disability. management and patient care. 3075 Adeline Road, Suite 120 5 Cabot Place Berkely, CA 94703 Stoughton, MA 02072 Phone: 510-848-1112, 800-644-2666 Phone: 781-341-6333, 800-673-6922 TTY: 510-848-1005 Fax: 781-341-8333 Fax: 510-848-4445 Email: [email protected] Email: [email protected] Website: www.scoliosis.org Website: www.lookingglass.org Serving: National Serving: National Categories: SC Categories: COMM, TR National Society of Genetic Counselors National Resource Center on ADHD Genetic counselors work as members of a health care team Answers questions on a broad range of topics: educational providing information and support to families who have rights, treatment options, diagnostic procedures, and locating members with birth defects of genetic disorders and to families support and services. who may be at risk. 4601 Presidents Drive, Suite 300 330 N. Wabash Avenue, Suite 2000 Lanham, MD 20706 Chicago, IL 60611 Phone: 301-306-7070 Phone: 312-321-6834 Fax: 301-306-7090 Fax: 312-673-6972 Email: [email protected] Email: [email protected] Website: www.help4adhd.org Website: www.nsgc.org Serving: National Serving: National Categories: SC Categories: HC, SC Additional Languages: Spanish National Spinal Cord Injury Association National Respite Locator Service Information, support networks, and resource center for Online consumer guide regarding choosing a respite care individuals with spinal cord injury and their families. provider, additional funding and support information, and tool Website: www.spinalcord.org to identify resources in your state. Serving: National Website: www.archrespite.org/respitelocator Categories: SC Serving: National Categories: RES National Stuttering Association Dedicated to bringing hope and empowerment to the stuttering community, professionals, and the general public. Education, training, support, friendship, and information. 119 W. 40th Street, 14th floor New York, NY 10018 Phone: 212-944-4050, 800-937-8888 Fax: 212-944-8244 Email: [email protected] Website: www.nsastutter.org Serving: National Categories: I&R, SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 150 Resources NEADS: National Education for Assistance Dog

National Substance Abuse and Mental Health National Urea Cycle Disorders Foundation (NUCDF) Information Center Dedicated to the identification, treatment, and cure of urea cycle This national center, a component of the U.S. Public Health disorders, providing information and education for families and Service, provides a range of information on mental health, healthcare professionals. treatment and support services. 75 South Grand Avenue 5600 Fishers Lane Pasadena, CA 91105 Rockville, MD 20857 Phone: 626-578-0833, 800-386-8233 Phone: 877-726-4727 Fax: 626-578-0823 TDD: 800-487-4889 Email: [email protected] Fax: 240-221-4295 Website: www.nucdf.org/ucd.htm Email: [email protected] Serving: National Website: www.samhsa.gov Categories: COMM, SC Serving: National Categories: SC NBIA Disorders Association Dedicated to providing support to families, physicians, and National Tay-Sachs & Allied Diseases Association support providers with information about an inherited disease Dedicated to the treatment and prevention of Tay-Sachs, called Neurodegeneration with Brain Iron Accumulation (NBIA). Canavan and related genetic diseases, and to providing 2082 Monaco Court information and support services to families affected by these El Cajon, CA 92019 diseases. Phone: 619-588-2315 2001 Beacon Street, Suite 204 Fax: 619-588-4093 Boston, MA 02135 Email: [email protected] Phone: 617-277-4463 Website: www.nbiadisorders.org Fax: 617-277-0134 Serving: National Email: [email protected] Categories: SC Website: www.ntsad.org Serving: National NE PANS/PANDAS Association Categories: SC Supports the medical community and caregivers of children with a Pediatric Autoimmune Neuropsychiatric Disorder National Temporal Bone, Hearing and Balance Associated with Streptococcal Infections (PANDAS), and Pathology Resource Registry Pediatric Acute-onset Neuropsychiatric Syndrome (PANS). Maintains the national temporal bone registry, offers activities in P.O. Box 592 the field of human temporal bone and auditory brain stem study; Raynham Center, MA 02768 and provides updates on temporal bone donation or research. Email: [email protected] NIDCD, Mass. Eye & Ear Infirmary Website: www.nepans.org 243 Charles Street Serving: National Boston, MA 02114 Categories: SC Phone: 617-573-3711, 800-822-1327 TTY: 800-439-0183 NEADS: National Education for Assistance Dog Fax: 617-573-3838 Provides hearing and service dogs for people who are deaf or Email: [email protected] use a wheelchair; trains and provides rescued dogs and donated Website: www.tbregistry.org puppies to promote independence. Serving: National P.O. Box 1100 Categories: SC Princeton, MA 01541 Phone: 978-422-9064 TTY: 978-422-9064 Fax: 978-422-3255 Email: [email protected] Website: www.neads.org Serving: National Categories: SA

151 Needy Meds Resources

Needy Meds New Center for Legal Advocacy National online service to help patients identify prescription Makes referrals to the Southeastern Mass. Legal Assistance assistance programs, free and low-cost clinics, condition-specific Corporation, to provide legal services for children with programs, and camps and associated scholarships. disabilities. Intakes for referrals are processed by phone only. P.O. Box 219 257 Union Street Gloucester, MA 01931 New Bedford, MA 02740 Phone: 800-503-6897 Phone: 800-244-9023 Fax: 206-260-8850 Website: www.freelegalaid.com Email: [email protected] Serving: Southeast Website: www.needymeds.org Categories: LGL Serving: National Additional Languages: Portuguese, Spanish Categories: HC Additional Languages: Spanish New England ADA Center One of ten regional ADA Centers that comprise the ADA National Neighborhood Legal Services, Inc. Network, providing information, guidance, and training on the Information, referrals and legal assistance for families in Lynn, Americans with Disabilities Act (ADA). with referrals throughout Massachusetts. 180-200 Portland Street, Suite 1 Website: www.neighborhoodlaw.org Boston MA, 02114 Serving: Northeast Phone: 800-949-4232, 617-695-0085 Categories: LGL Fax: 617-482-8099 Additional Languages: Khmer, Russian, Spanish, Vietnamese Email: [email protected] Website: www.NewEnglandADA.org

Serving: National Lawrence Office Categories: ACC 170 Common Street, Suite 300

Lawrence, MA 01840 New England Amputee Association Phone: 978-686-6900 Peer support to children and adults who have had a limb Fax: 978-685-2933 amputation and their families; periodic community meetings and events, Peer Visiting Program, and resource-sharing. Lynn Office 181 Union Street, Suite 201 185 Sterling Road, Suite 1A Lynn, MA 01901 Lancaster, MA 01523 Email: [email protected] Phone: 781-599-7730, 800-747-5056 Website: www.newenglandamputeeassociation.com TTY: 781-599-7730 Serving: National Fax: 781-595-2022 Categories: SC

Nemasket Group New England Assistive Technology Marketplace Information and referral, advocacy, workshops and support Provides information and access to equipment and devices that groups. Offers support in English, Spanish, and Portuguese. can change the lives of people with disabilities, both temporary (Closed referral system DCF). and permanent. Membership is free. 109 Fairhaven Road 120 Holcomb Street Fairhaven, MA 02719 Hartford, CT 06112 Phone: 508-999-4436 Phone: 860-242-2274 Fax: 508-997-9239 TTY: 860-286-3113 Email: [email protected] Fax: 860-286-3111 Website: nemasketgroup.org Email: [email protected] Serving: Southeast Website: www.neatmarketplace.org Categories: ADV Serving: National Additional Languages: Portuguese, Spanish Categories: AT

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 152 Resources New England INDEX

New England Connection for PKU and New England Farm Workers Council Allied Disorders Assists migrant and seasonal farm workers and other low- Provides support and services to families affected with PKU income groups with employment and job skills training; and allied disorders, encourages research, and increases public childcare voucher program in Western Mass. awareness. Support network for parents and conferences. 11-13 Hampden Street 27 Murray Circle Springfield, MA 01103 Raynham, MA 02767 Phone: 413-272-2200, 866-573-4684 Email: [email protected] Fax: 413-731-5399 Website: www.necpad.org Email: [email protected] Serving: Statewide Website: www.partnersforcommunity.org Categories: SC Serving: Western Categories: CC, CS&I New England Consortium of Deaf-Blind Technical Additional Languages: Spanish Assistance and Training Technical assistance and consultation relative to “effective New England Handicapped Sports Association practices” in deaf-blind education. (NEHSA) 175 North Beacon Street Trained volunteers offer instruction for individuals with Watertown, MA 02472 disabilities to ski and snowboard in winter; kayak, rowing, and Phone: 617-924-3434 paddleboard in summer at Mount Sunapee in Newbury, NH. TTY: 617-924-5523 Mount Sunapee Resort Fax: 617-972-7354 P.O. Box 2135 Email: [email protected] Newbury, NH 03255 Website: www.perkins.org/services/other/nec Phone: 603-763-9158 Serving: Statewide Email: [email protected] Categories: SC Website: www.nehsa.org Serving: National New England Disabled Sports Categories: ACC, REC Year-round adaptive sport instruction to adults and children with physical and cognitive disabilities. New England Hemophilia Association 39 Loon Brook Road Empowers those with bleeding disorders through education, Lincoln, NH 03251 advocacy, and supports. Hosts a variety of activities, offers Phone: 603-745-9333 assistance and scholarships, and advocacy efforts. Fax: 603-728-1771 347 Washington Street, #402 Email: [email protected] Dedham, MA 02026 Website: www.nedisabledsports.org Phone: 781-326-7645 Serving: National Fax: 781-329-5122 Categories: REC Email: [email protected] Website: www.newenglandhemophilia.org New England Disabled Sports & Recreation Serving: Statewide A group of volunteers that come from all over New England to Categories: SC provide people with special needs a chance to experience the Additional Languages: Spanish outdoors through adaptive ski. Route 302 New England INDEX Bretton Woods, NH 03575 Free information and referral about programs and services to Phone: 603-278-3398 individuals with disabilities in Massachusetts. Fax: 508-429-8106 Eunice Kennedy Shriver Center Email: [email protected] University of Massachusetts Medical School Website: www.nedisabledsports.org 55 Lake Avenue North, S3-301 Serving: Statewide Worcester, MA 01655 Categories: REC Phone: 800-642-0249 TTY: 800-764-0200 Fax: 774-455-6565 Email: [email protected] Website: www.disabilityinfo.org Serving: Statewide Categories: I&R 153 New England Newborn Screening Program, UMASS Medical School Resources

New England Newborn Screening Program, NextStep Fund Inc. UMASS Medical School Offers education, resources, and in-person activities and events All newborns undergo mandatory screening for 10 genetic for young people coping with serious illness, including cancer, disorders. If you have not received information about newborn HIV/AIDS, sickle cell disease, and metabolic and mitochondrial screening, call this number for information about this process disorders. and about specific genetic disorders. 99 Bishop Allen Drive Biotech 4, 2nd Floor Cambridge, MA 02139 377 Plantation Street Phone: 617-864-2921 Worcester, MA 01605-2300 Website: www.nextstepnet.org Phone: 774-455-4600 Serving: Metrowest Fax: 774-455-4657 Categories: REC, SC Email: [email protected] Website: https://nenspumassmed.edu/NBS Noah’s Never Ending Rainbow Serving: Statewide Raises public awareness and assists families who have children Categories: HC with Trisomy and related chromosome disorders. Fundraising Additional Languages: Khmer, Haitian Kreyol, Portuguese, events help to sponsor conferences and related activities. Spanish, Vietnamese 7737 6th Avenue Kenosha, WI 53143 New England Pediatric Care and Day School Phone: 262-605-3690 Pediatric skilled nursing facility offers long and short term respite Email: [email protected] care for children with highly specialized medical needs. Website: www.noahsneverendingrainbow.org 78 Boston Road Serving: National North Billerica, MA 01862 Categories: SC Phone: 978-667-5123 Fax: 978-663-5154 North Shore Career Center/North Shore Email: [email protected] Youth Career Centers Website: www.nepc.org/overview.html Youth Career Centers assist area youth looking for career Serving: Northeast assistance and job opportunities. Services are free. Assessment Categories: RES services, personalized career planning, job shadowing, referrals, apprenticeships, and training. New England Regional Genetics Group Website: www.nscareers.org Consortium of genetic service providers and consumers of Serving: Northeast genetic services promote health by increasing the awareness of Categories: CS&I, TR genetic concerns, the understanding of the role of genetics in Gloucester Office health care, and the availability of appropriate services. 5 Pleasant Street 222 Main Street Gloucester, MA 01930 Wayland, MA 01778 Phone: 978-283-4772 Phone: 617-963-0900 Fax: 978-283-4773 Email: [email protected] Website: www.nergg.org Lynn Office Serving: Statewide 20 Wheeler Street Categories: HC, SC Lynn, MA 01902 Fax: 617-727-3712

Salem Office 70 Washington Street, 1st Floor Salem, MA 01978 Phone: 978-825-7200 Fax: 617-727-5989

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 154 Resources Northern Berkshire United Way

North Shore Medical Center’s Family Northeast Arc Resource Center Provides a variety of support services for individuals who have Provides a range of resources through the Behavioral Health intellectual or developmental challenges and their families. Library. Hosts conferences, workshops, family support programs, 64 Holten Street and can assist you with your research needs. Danvers, MA 01923 Family Resource Center Phone: 978-762-4878 Mass General for Children at North Shore Medical Center TTY: 978-762-4873 57 Highland Avenue Fax: 978-762-3980 Salem, MA 01970 Website: www.ne-arc.org Phone: 978-354-2660 Serving: Northeast Fax: 978-354-7777, 978-354-2670 Categories: ARC Email: [email protected] Additional Languages: American Sign Language, Spanish Website: www.nsmcfamilyresourcecenter.org Serving: Northeast Northeast Independent Living Program Categories: HC, I&R ILCs are controlled and directed by persons with disabilities, for

the purpose of empowering people with disabilities to advocate North Shore United Way, Inc. and take control of their lives. Information specialists are available to assist and direct families to local services. 20 Ballard Road Lawrence, MA 01843 248 Cabot Street Beverly, MA 01915 Phone: 978-687-4288 Phone: 978-922-3966 TTY: 978-687-4288 Fax: 978-922-0611 Fax: 978-689-4488 Email: [email protected] Email: [email protected] Website: www.unitedwaymassbay.org/regions/north-shore/ Website: www.nilp.org Serving: Northeast Serving: Northeast Categories: I&R Categories: ILC

North Star Foundation Northeast Passage Assistance Dog placements for children, especially children with Offers community, home- and school-based recreational therapy Autism Spectrum Disorder. Works with the child, family, and and recreational and competitive adaptive sports. Adapted community to assist the child in maximizing potential. equipment available to rent. 20 Deerfield Lane Hewitt Hall, 4 Library Way Storrs, CT 06268 Durham, NH 03824 Phone: 860-423-0664 Phone: 603-862-0070 Email: [email protected] TTY: NH: 800-735-2964, ME: 207-955-3323 Website: www.northstardogs.com Fax: 603-862-0249 Serving: National Email: [email protected] Categories: SA Website: www.nepassage.org Serving: National North Suffolk Mental Health Association Categories: REC Community-based services to those confronting emotional difficulties, mental illness, developmental disabilities, substance Northern Berkshire United Way abuse, or other challenges in daily living. Information specialists are linked to their own comprehensive 301 Broadway Avenue database and are available to assist and direct families to Chelsea, MA 02150 appropriate local services. Phone: 617-889-4860 P.O. Box 955 TTY: 617-884-4856 North Adams, MA 01247 Fax: 617-889-4635 Phone: 413-663-9062 Website: www.northsuffolk.org Fax: 413-663-3106 Serving: Boston Website: www.nbunitedway.org Categories: SC Serving: Western Additional Languages: Spanish Categories: I&R

155 Northshore Education Consortium Family Center Resources

Northshore Education Consortium Family Center Office of Rare Diseases Research Resource center for families and professionals offering Online repository for information about rare medical or genetic educational materials, community resource information, and conditions, research and medical trials, patient advocacy and support programs focused on special needs and at-risk youth. travel groups, and reports to federal agencies. 112 Sohier Road National Center for Advancing Translation Sciences Beverly, MA 01923 National Institute of Health Phone: 978-232-9755, Ext: 1253 6701 Democracy Boulevard, Suite 1001, MSC 4874 Fax: 978-232-9449 Bethesda, MD 20892 Email: [email protected] Phone: 301-402-4336 Website: www.nsedu.org Fax: 301-480-9655 Serving: Northeast Email: [email protected] Categories: I&R Website: www.ncats.nih.gov/gard Serving: National Not in Our Town, Not in Our School (NIOT) Categories: SC Guides and inspires people and communities to work together to Additional Languages: Spanish stop hate and build safe, inclusive environments, resist bullying, and promote an atmosphere of acceptance and inclusion. Oley Foundation P.O. Box 70232 Information education and outreach for families with children Oakland, CA 94612 and adults dependent on home parental IV-and/or enteral Phone: 510-268-9675 tube-fed- nutrition. Also offer supports in Dutch. Fax: 510-268-3606 Albany Medical Center Email: [email protected] 43 New Scotland Avenue, MC-28 Website: www.niot.org/front Albany, NY 12208 Serving: National Phone: 518-262-5079, 800-776-6539 Categories: CS&I Fax: 518-262-5528 Languages: Translator Upon Request Email: [email protected] Website: www.oley.org NuPath, Inc. Serving: National Provides a variety of services for a network of parents, Categories: SC professionals, and friends. Services include: social and recreation opportunities, workshops, public education, parent and sibling One Mission support groups, advocacy support, and respite. Funds a range of patient & family support programs that provide 147 New Boston Street vital services designed to educate, empower and lift the spirits of Woburn, MA 01801 pediatric cancer patients and their families. Phone: 781-935-7057 1881 Worcester Road, Suite 204 Fax: 781-935-4227 Framingham, MA 01701 Email: [email protected] Phone: 508-628-9090 Website: www.nupathinc.org Email: [email protected] Serving: Metrowest, Northeast Website: www.onemission.org Categories: ARC Serving: Statewide Additional Languages: Spanish Categories: SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 156 Resources Parent Advocacy Coalition for Educational Rights

One Tough Job P.A.C.E. Child Care Works Supports parents by providing them with current, reliable and Provides child care referrals and information on evaluating practical information on a variety of parenting topics related to quality childcare, plus resources on various parenting issues. raising children from infancy through adolescence. 105 William Street, 4th Floor Children’s Trust Fund New Bedford, MA 02740 55 Court Street, 4th Floor Phone: 508-999-9930, 800-338-1717 Boston, MA 02108 Fax: 508-984-3559 Phone: 617-727-8957, 888-775-4543 Website: www.paceccw.org Fax: 617-775-8997 Serving: Southeast Email: [email protected] Categories: CC Website: www.onetoughjob.org Additional Languages: Portuguese, Spanish Serving: National Categories: COMM P.A.N.D.A.S. Network Additional Languages: Spanish Raises awareness of PANDAS/PANS through a comprehensive website with an ongoing database, research, newsletters, and Opportunity Works scientific advisory board; hosts support groups and conferences. Enhances the quality of life for people with disabilities by 655 Oak Grove Avenue, #1373 promoting a culture of dignity and respect and ensuring Menlo Park, CA 94026 individualized services to maximize independence. Email: [email protected] 10 Opportunity Way Website: www.PANDASNetwork.org Newburyport, MA 01950 Serving: National Categories: I&R, SC Phone: 978-462-6144 TTY: 978-499-8314 Pappas Rehabilitation Hospital for Children Fax: 978-465-5972 Residential and day school for students with complex medical Website: www.opportunityworks.org needs. Community recreation programs, after school and Serving: Northeast summer day programs and hippotherapy. Categories: CS&I, TR 3 Randolph Street OptiNeeds, Inc. Canton, MA 02021 Phone: 781-828-2440 OptiNeeds provides free corrective eyewear to athletes with TTY: 781-830-8370 disabilities. Fax: 781-821-4086 Email: [email protected] Email: [email protected] Website: www.optineeds.org Website: www.prhc.us Serving: National Serving: Statewide Categories: ACC, AT Categories: ED, REC

Osteogenesis Imperfecta Foundation Parent Advocacy Coalition for Educational Rights Supports research, education, awareness, and mutual support Created by parents of children and youth with disabilities to help through local network groups, chatrooms, e-newsletter, and other parents and families facing similar challenges. comprehensive Information Center on website. 8161 Normandale Boulevard 804 W Diamond Avenue, Suite 210 Bloomington, MN 55437 Gaithersburg, MD 20878 Phone: 952-838-9000 Phone: 301-947-0083, 800-981-2663 Fax: 952-838-0199 Fax: 301-947-0456 Email: [email protected] Email: [email protected] Website: www.pacer.org Website: www.oif.org Serving: National Serving: National Categories: ADV Categories: SC

157 Parent Information Network Resources

Parent Information Network Parents’ First Call Parent support group designed by parents to help families A parent-to-parent outreach program for new parents of babies challenged by children’s mental health, emotional, or born with Down Syndrome. behavioral needs. MDSC 47 East Grove Street 20 Burlington Mall Road, Suite 261 Middleborough, MA 02346 Burlington, MA 01803 Phone: 508-947-8779 Phone: 781-221-0024 Fax: 508-947-8824 Fax: 781-221-0011 Email: [email protected] Email: [email protected] Website: www.bamsi.org/program/parent-information- Website: www.mdsc.org network-pin/ Serving: Statewide Serving: Southeast Categories: COMM, SC Categories: CS&I, SC Additional Languages: Spanish

Parent Project Muscular Dystrophy Parents Helping Parents Medical and support information and resources for families of Offers free, confidential and anonymous weekly support groups children affected by Duchenne and Becker Muscular Dystrophy. for parents throughout Massachusetts. 401 Hackensack Avenue, 9th Floor 108 Water Street Hackensack, NJ 07601 Watertown, MA 02472 Phone: 201-250-8440, 800-714-5437 Phone: 617-926-5008, 800-632-8188 Fax: 201-250-8435 Fax: 617-926-5011 Email: [email protected] Email: [email protected] Website: www.parentprojectmd.org Website: www.parentshelpingparents.org Serving: National Serving: Statewide Categories: SC Categories: COMM Additional Languages: Spanish Parents of Kids with Infectious Diseases Parent/Professional Advocacy League (PAL) Assists the families of children living with hepatitis, HIV/AIDS, or A statewide network of families, local family support groups, other chronic viral diseases by offering emotional, financial, and and professionals who advocate on behalf of children and informational support. adolescents with mental, emotional or behavioral special needs, P.O. Box 5666 and their families. Vancouver, WA 98668 Email: [email protected] Phone: 360-695-0293, 877-557-5437 Website: www.ppal.net Fax: 360-695-6941 Categories: ADV, CS&I, SC Email: [email protected] Statewide Website: www.pkids.org 15 Court Square, Suite 660 Serving: National Boston, MA 02108 Categories: SC Phone: 617-542-7860, 866-815-8122 Fax: 617-542-7832 Parent-to-Parent USA Serving: Statewide Committed to promoting access, quality and leadership in Additional Languages: Spanish parent-to-parent support across the country. Central 1825 K Street, Suite 250 40 Southbridge Street, Suite 310 Washington, DC 20006 Worcester, MA 01608 Phone: 855-238-8979 Phone: 508-767-9725 Email: [email protected] Fax: 508-767-9727 Website: www.p2pusa.org Email: [email protected] Serving: National Serving: Central Categories: COMM

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 158 Resources Pediatric Brain Tumor Foundation

Partners for Youth with Disabilities Pathways Awareness Foundation Mentoring and skill building programs for youth ages 14-22 with Dedicated to raising awareness about the benefit of early disabilities. detection and early therapy for children with physical movement 95 Berkeley Street, Suite 109 differences; parent-answered toll-free line providing help. Boston, MA 02116 150 North Michigan Avenue Phone: 617-556-4075 Chicago, IL 60601 TTY: 617-314-2989 Phone: 800-955-2445 Fax: 617-556-4074 Email: [email protected] Email: [email protected] Website: www.pathways.org Website: www.pyd.org Serving: National Serving: Statewide Categories: SC Categories: ADV, CS&I, TR Patient Advocate Foundation Partnership for Prescription Assistance Seeks to safeguard patients through effective mediation May be able to help you get brand-name and generic medicines assuring access to care, maintenance of employment and free or nearly free if you don’t have prescription coverage and preservation of financial stability relative to their diagnosis of can’t afford your medicines. life-threatening or debilitating diseases. Phone: 888-477-2669 421 Butler Farm Road Website: www.pparx.org Hampton, VA 23666 Serving: National Phone: 800-532-5274 Categories: HC Fax: 757-873-8999 Additional Languages: Spanish Email: [email protected] Website: www.patientadvocate.org Pass It On, Inc. Serving: National Used and recycled medical equipment and assistive technology Categories: ADV, HC for children with special needs. P.O. Box 2120 Pediatric Adolescent Gastroesophageal Reflux Mashpee, MA 02649 Association (PAGER) Phone: 508-477-6966, 800-267-6768 Provides information and parent-to-parent support around Website: www.passitonforkids.org issues of gastro-esophageal reflux in children and teens. Hosts Email: [email protected] online newsletter, research news, and related articles. Serving: Southeast 404 Wheaton Place, Suite C Categories: AT Catonsville, MD 21228 Phone: 301-601-9541 Pathlight Email: [email protected] Flexible cash assistance for families who have a family member Website: www.reflux.org with developmental disabilities living in most Hampshire County Serving: National cities and towns. Categories: SC 220 Brookdale Drive Springfield, MA 01104 Pediatric Brain Tumor Foundation Phone: 413-732-0531 Maintains national database on primary tumors, provides Fax: 413-732-1168 educational and emotional support to families. Offers college Email: [email protected] scholarship program to brain tumor survivors. Website: www.pathlightgroup.org 302 Ridgefield Court Serving: Western Asheville, NC 28806 Categories: CS&I, RES Phone: 828-665-6891, 800-253-6530 Fax: 828-665-6894 Email: [email protected] Website: www.curethekids.org Serving: National Categories: I&R, SC

159 Performing Arts Center of Metrowest Resources

Performing Arts Center of Metrowest Pierre Robin Network A nonprofit, fully accredited member of the National Guild of Parent-led organization providing diagnosis and resource Community Schools of the Arts, offering private music and information, practical parenting tips, parent-to-parent support acting lessons, music classes, dance and movement classes. through Outreach Parents, email groups and message boards. St. Andrew’s Episcopal Church 3604 Biscayne 3 Maple Street, Lower Floor Quincy, IL 62305 Framingham, MA 01702 Phone: 217-224-0698 Phone: 508-875-5554 Fax: 217-224-2867 Email: [email protected] Email: [email protected] Website: www.pacmetrowest.org Website: www.rarediseases.org/organizations/pierre-robin- Serving: Metrowest network/ Categories: REC Serving: National Categories: SC Perkins School for the Blind Offers individualized education programs for children Piers Park Sailing Center Agency ages 0-22 with blindness, visual impairment, and deafblindness, Community sailing center in Boston’s Inner Harbor, provides including additional disabilities. year-round recreational and personal growth opportunities for people of all ages and abilities. 175 North Beacon Street Watertown, MA 02472 95 Marginal Street East Phone: 617-924-3434 Boston, MA 02128 TTY: 617-924-5525 Phone: 617-561-6677 Fax: 617-972-7315 Email: [email protected] Email: [email protected] Website: www.piersparksailing.org Website: www.perkins.org Serving: Boston, Metrowest, Northeast Serving: Statewide Categories: REC Categories: ED, SC Pine Tree Society PFLAG (Parents, Families and Friends of Lesbians Offers summer programs for children with disabilities, a three- and Gays) day program for child and parent to explore augmentative Provides support and resources for families and friends of gay, communication and custom-made adaptive equipment. lesbian, bisexual, transgender and gender-expansive children, 149 Front Street adolescents, and adults. Bath, ME 04530 1828 L Street NW, Suite 660 Phone: 207-443-3341 Washington, DC 20036 Email: [email protected] Phone: 202-467-8180 Website: pinetreesociety.org Fax: 202-467-8194 Serving: National Email: [email protected] Categories: AT, REC Website: www.pflag.org Serving: National, Statewide Categories: COMM

Massachusetts Chapter Greater Boston PFLAG P.O. Box 541619 Waltham, MA 02454 Phone: 781-891-5966 Phone: 866-427-3524 Fax: 781-891-7444 Email: [email protected] Website: www.gbpflag.org

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 160 Resources Price Center

Pioneer Institute for Public Policy Research Political Asylum/Immigration Representation Mass. Report Card allows parents to learn about local public Project (PAIR) schools, find out how well they perform, and compare them with PAIR is nationally recognized pro bono model that provides free other schools from across Massachusetts. The tool is available at: legal services to asylum-seekers and to promote the rights of www.massreportcards.org. detained immigrants. 185 Devonshire Street, Suite 1101 98 North Washington Street, Suite 106 Boston, MA 02110 Boston, MA 02114 Phone: 617-723-2777 Phone: 617-742-9296 Fax: 617-723-1880 Fax: 617-742-9385 Email: [email protected] Website: www.pairproject.org Website: www.pioneerinstitute.org Serving: Statewide Serving: Statewide Categories: LGL Categories: ED

PLAN of Massachusetts and Rhode Island Prader-Willi Syndrome Association USA Provides planning and trust management services to individuals Provides information and support, quarterly parent support with special needs throughout Massachusetts and Rhode Island. groups, family events, conferences, parent sharing list of parents who can be contacted for support, and newsletter. 1340 Centre Street, Suite 102 Newton, MA 02459 8588 Potter Park Drive, Suite 500 Phone: 617-244-5552 Sarasota, FL 34238 Fax: 617-795-0589 Phone: 800-926-4797 Email: [email protected] Website: www.pwsausa.org Website: www.planofma-ri.org Serving: National Serving: Statewide Categories: SC Categories: LGL Statewide Platelet Disorder Support Association 27 Westward Circle Offers support services and a comprehensive website with North Reading, MA 01864 patient and public education, peer support through active Phone: 978-207-1185 discussion boards, and research and advocacy supports. Email: [email protected] 8751 Brecksville Road, Suite 150 Cleveland, OH 44141 Premature Baby-Premature Child Phone: 440-746-9003, 877-528-3538 Online support and resources, including suggested reading, Fax: 844-270-1277 developmental milestones, and support network. Email: [email protected] Website: www.prematurity.org Website: www.pdsa.org Email: [email protected] Serving: National Serving: National Categories: SC Categories: SC

Plugged In Teen Band Program Price Center Focus is to give young people a venue to learn to work in a group, Services include residential, day, habilitation, and vocational and improve their music skills while learning about the value training, including the ASCENT Advocacy, Social Skills, Career and importance of social activism. Exploration, Networking and Transitions-after-school program 40 Freeman Place for individuals ages 14-22. Needham, MA 02492 27 Christina Street Phone: 781-956-4281 Newton, MA 02461 Email: [email protected] Phone: 617-244-0065 Website: www.pluggedinband.org Fax: 617-244-0069 Serving: Metrowest Email: [email protected] Categories: REC Website: www.thepricecenter.org Serving: Boston, Metrowest Categories: TR Additional Languages: Translator Upon Request

161 Primary Immune Deficiency Foundation Resources

Primary Immune Deficiency Foundation Progeria Research Foundation Focus is peer support, condition-specific health information, Dedicated to finding a cure and effective treatments for Progeria; resources related to living with immune deficiency, college offers information, resources, and support through their website scholarship program. and community activities. 110 West Road, Suite 300 P.O. Box 3453 Towson, MD 21204 Peabody, MA 01961 Phone: 800-296-4433 Phone: 978-535-2594 Fax: 410-321-9165 Fax: 978-535-5849 Email: [email protected] Email: [email protected] Website: www.primaryimmune.org Website: www.progeriaresearch.org Serving: National Serving: National Categories: SC Categories: SC

PRISMS: Parents & Researchers Interested in Project B.I.N.D. (Boston Inclusion Network for Smith-Magenis Syndrome Disabilities) Dedicated to providing information to families, sponsoring A program at the Boys and Girls Clubs of Dorchester specifically research, and fostering partnerships to raise awareness. Hosts an designed to encourage the educational and social enrichment active parent-to-parent network. and advancement of children with special needs. 21800 Town Center Plaza, Suite #266A-633 Boys and Girls Club of Dorchester Sterling, VA 20164 1135 Dorchester Avenue Phone: 972-231-0035 Dorchester, MA 02125 Fax: 972-499-1832 Phone: 617-288-7120 Website: www.prisms.org Fax: 617-288-8221 Email: [email protected] Serving: National Website: www.bgcdorchester.org Categories: SC Serving: Boston Categories: REC Professional Association of Therapeutic Additional Languages: Spanish Horsemanship International (PATH Intl.) PATH Intl.’s mission is to change and enrich lives by promoting Project Bread FoodSource Hotline excellence in equine-assisted activities and therapies. Statewide information and referral service for people P.O. Box 33150 facing hunger. FoodSource Hotline provides information Denver, CO 80233 in 160 different languages. Phone: 800-369-7433 Phone: 800-645-8333 Fax: 303-252-4610 TTY: 800-377-1292 Email: [email protected] Website: www.projectbread.org/get-help Website: www.pathintl.org Serving: Statewide Serving: National Categories: CS&I, I&R Categories: REC Additional Languages: Spanish

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 162 Resources Rainbow’s End Therapeutic Riding Stable

Project Just Because, Inc. Pulmonary Hypertension Association Supplies adults and children in need with a variety of support. Provides information and emotional support to patients of all We provide clothing, toiletries, gift baskets, career items, school ages and their families and comprehensive downloadable, free supplies, blankets, toys, furniture, baby items, housewares, etc. resources. Patient-to-Patient Support Line: 1-800-748-7274 86 South Street 801 Roeder Road, Suite 1000 Hopkinton, MA 01748 Silver Spring, MD 20910 Phone: 508-435-6511 Phone: 301-565-3004 Email: [email protected] Fax: 301-565-3994 Website: www.projectjustbecause.org Website: www.phassociation.org Serving: Statewide Serving: National Categories: CS&I Categories: SC

Project Lifesaver Puppies Behind Bars Vital law enforcement tool that finds missing people with Trains dogs to become guide dogs, companion and therapy dogs Alzheimer’s, Autism, and related conditions and reunites them for children with vision impairment. with their family members or caregivers. 263 West 38th Street, 4th Floor Project LifeSaver International Headquarters New York, NY 10018 201 SW Port Street, Lucie Boulevard, Suite 202 Phone: 212-680-9562 Port Lucie, FL 34984 Fax: 212-689-9330 Phone: 772-446-1271, 877-580-5433 Email: [email protected] Website: www.projectlifesaver.org Website: www.puppiesbehindbars.com Serving: National Serving: National Categories: CS&I Categories: SA Prom Angels Foundation, Inc Provides safe, fun and socially empowering activities for people PVNH Support & Awareness with special needs. Events include sporting activities, holiday A community of support and information; organizes an parties and the “Special Needs Prom.” annual PVNH Disorder Awareness Day. PVNH is a rare neuronal migration disorder. 1034 East Washington Street Hanson, MA 02341 206-1082 West 8th Avenue Phone: 617-529-9166 Vancouver, British Columbia V6H1C4 Fax: 781-924-1225 Phone: 604-714-1222 Email: [email protected] Email: [email protected] Website: www.promangels.org Website: www.pvnhsupport.com Serving: Statewide Serving: National Categories: REC Categories: SC Additional Languages: French Pull-Thru Network Dedicated to the needs of those born with an ano-rectal Rainbow’s End Therapeutic Riding Stable malformation or colon disease and any of the associated Instructive horseback riding programs for people with diagnoses. disabilities. Many offer a sliding fee scale. Provides listing of PATH c/o Lori Parker Intl. programs throughout the state. 1705 Wintergreen Parkway 12 Jarvis Lane Normal, IL 61761 North Attleboro, MA 02760 Phone: 309-262-0786 Phone: 774-254-2861 Email: [email protected] Email: [email protected] Website: www.pullthrunetwork.org Website: www.rainbowsendriding.com Serving: National Serving: Southeast Categories: SC Categories: REC

163 Ralph Braun Foundation Resources

Ralph Braun Foundation Real World of Work-Carroll Center for the Blind Can fund up to 25% maximum of $5,000-toward costs Provides paid summer part-time work experience for visually associated with vehicle conversion or a wheelchair lift. The impaired students ages 16-20. online application process is opened quarterly. 770 Centre Street 631 West 11th Street Newton, MA 02458 Winamac, IN 46996 Phone: 617-969-6200, 800-852-3131 Phone: 574-607-5995 Fax: 617-969-6204 Email: [email protected] Website: www.carroll.org Website: www.ralphbraunfoundation.org Serving: Statewide Serving: National Categories: SC, TR Categories: ACC, AT, CS&I Rebuilding Together Boston Rare Disease United Foundation Local chapter of national organization that coordinates volunteers to provide home repairs and renovations to low- Provides education, family support, advocacy, and information income families with children with special needs. for the community of people affected by rare Diseases in Rhode Island and Massachusetts. Manages Facebook Group. P.O. Box 301209 Jamaica Plain, MA 02130 P.O. Box 16294 Phone: 617-971-0058 Rumford, RI 02916 Fax: 617-971-0729 Phone: 401-434-0052 Email: [email protected] Fax: 401-434-0039 Website: www.rebuildingtogetherboston.org Email: [email protected] Serving: Statewide Website: www.rarediseaseunited.org Categories: ACC, HOUS Serving: Statewide Categories: SC Recreational Adult Resource Association Provides accessibility to social, recreation, education and pre- RareChromo.org vocational opportunities to clients and respite for their families A UK-based organization with insightful online resources, through day and evening/weekend programs. practical guides for living with various medical needs, and 295 High Street informative online newsletters. Lowell, MA 01852 Email: [email protected] Phone: 978-453-5598 Website: www.rarechromo.org Fax: 978-453-0270 Serving: National Email: [email protected] Categories: SC Website: www.raraagency.org Serving: Northeast RCAP Solutions Home Modification Program Categories: REC Provides home modification financing to disabled persons and their families. Funding through the MA Rehabilitation Recreational Education Center Commission and the Community Economic Development Available 7 days a week and is designed to provide a fun, safe, Assistance Corp. nurturing and accepting recreational opportunity to families. 205 School Street 83 Pine Street, Suite 102 Gardner, MA 01440 Peabody, MA 01960 Phone: 978-630-6725, 800-488-1969 Phone: 978-717-5062 Fax: 978-630-6754 Fax: 978-717-5064 Email: [email protected] Email: [email protected] Website: www.rcapsolutions.org Website: www.recreationaleducationcenter.com Serving: Central Serving: Northeast Categories: ACC, AT, HOUS Categories: REC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 164 Resources Rewarding Work Resources

Recruitment, Training & Support Center for Special REquipment Education Surrogate Parents (RTSC) A durable medical equipment DME-reuse program managed by Strives to recruit, train, and support volunteers who will support MA Rehabilitation Commission. Gives a second life to donated the needs of children in state custody through the educational DME such as wheelchairs, adapted strollers, standers and gait advocacy process. trainers, shower chairs, and more. Offers refurbished devices at c/o Federation for Children with Special Needs no cost. The Schrafft Center 600 Washington Street, 2nd Floor 529 Main Street, Suite 1M3 Boston, MA 02111 Charlestown, MA 02129 Phone: 508-713-9690, 800-261-9841 Phone: 617-236-7210, 800-331-0688 Email: [email protected] TTY: 800-331-0688 Website: www.dmerequipment.org Fax: 617-241-0330 Serving: Statewide Email: [email protected] Categories: ACC, AT, HC Website: www.fcsn.org/rtsc Serving: Statewide Rett Syndrome Association of Massachusetts Categories: ADV, COMM, ED, I&R, LGL Parent volunteers will call and provide information and support to families. Rehabilitation Engineering and Assistive Technology 217 South Street of North America Waltham, MA 02153 Provides a list of Technology Assistance Projects nation-wide. Phone: 781-444-8164 1560 Wilson Blvd., Suite 850 Email: [email protected] Arlington, VA 22209 Website: www.rettsyndromemass.org Phone: 703-524-6686 Serving: Statewide TTY: 703-524-6639 Categories: SC Fax: 703-524-6630 Email: [email protected] Revitalize Community Development Corp. Website: www.resna.org Volunteers provide home repairs and renovations to low income Serving: National families with children with special needs, as well as to elderly and Categories: AT physically challenged homeowners. Colonial Block Building Rein in a Dream, A Program of Perkins 1145 Main Street, Suite 107 Community Services Springfield, MA 01103 A center for therapeutic horsemanship specializing in mental, Phone: 413-788-0014 emotional, and behavioral issues for children ages 4-22. Hands- Website: www.revitalizecdc.org on activities and riding. Serving: Western 971 Main Street Categories: CS&I Lancaster, MA 01523 Phone: 978-365-7376 Rewarding Work Resources Fax: 978-368-8861 Provides a comprehensive and current list of Personal Care Email: [email protected] Attendants PCA-through MassHealth, or privately funded respite Website: www.perkinsprograms.org services for children and adults. Serving: Central Categories: REC P.O. Box 1251 Brookline, MA 02446 R.E.I.N.B.O.W. Therapy Phone: 866-212-9675 A hippotherapy program geared for children with special needs. Email: [email protected] Reinbow is located at two sites, Windrush and Liberty Tree Farms. Website: www.rewardingwork.org Serving: Statewide Phone: 339-206-0110 Categories: RES Email: [email protected] Website: www.reinbowtherapy.org Serving: Boston, Central, Metrowest, Northeast Categories: REC

165 Rick’s Place, Inc. Resources

Rick’s Place, Inc. Roman Music Therapy Services Serves families with children age 5-18 when someone close Strives to meet the needs of the community through music in their life has died. A safe, compassionate environment for therapy experiences; uses the power of music to support children affected by the death of a close family member. personal and interpersonal growth. 35 Post Office Park, Suite 3514 333 North Avenue Wilbraham, MA 01095 Wakefield, MA 01880 Phone: 413-348-3120 Phone: 781-224-3300 Email: [email protected] Fax: 781-224-3306 Website: www.ricksplacema.org/ Email: [email protected] Serving: Western Website: www.romanmusictherapy.com Categories: COMM Serving: Northeast Categories: REC Road to Responsibility, Inc. Supports adults with disabilities in a wide variety of settings. Room To Dream Foundation Offers residential services, employment, day habilitation and Creates healing environments in hospitals, communities, and community supports. homes for children and adolescents who are facing chronic 1831 Ocean Street illnesses, through a Wish program. Marshfield, MA 02050 1188 Centre Street Phone: 781-834-1300 Newton, MA 02459 Fax: 781-834-7513 Phone: 617-332-3066 Email: [email protected] Fax: 617-274-1515 Website: www.roadtoresponsibility.org Email: [email protected] Serving: Southeast Website: www.roomtodreamfoundation.org Categories: HOUS, TR Serving: Statewide Categories: COMM Roger Williams Park Zoo Award-winning zoo, home to hundreds of fascinating species Rosalynn Carter Institute for Caregiving from around the world. Handicap accessible. Open everyday, Goal to increase the use of “science that works” to support both except Christmas. professional and family caregivers offers online resources such as 1000 Elmwood Avenue a comprehensive Caregiver Assessment tool. Providence, RI 02907 Georgia Southwestern State University Phone: 401-785-3510 800 GSW Drive Fax: 401-941-3988 Americus, GA 31709 Email: [email protected] Phone: 229-928-1234 Website: www.rwpzoo.org Fax: 229-931-2663 Serving: National Email: [email protected] Categories: REC Website: www.rosalynncarter.org Serving: National Categories: ADV, CS&I

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 166 Resources Scleroderma Foundation Agency

Safe Kids Scan360 Family Center Led by Boston Children’s Hospital, Safe Kids implements One-Stop Family Center and Network for Springfield residents evidence- based programs such as car-seat checkups, safety offers assistance to families in the community who have a family workshops and sports clinics, to help prevent childhood injuries. member with a developmental disability. Serving: National, Statewide 11 Wilbraham Road, 2nd Floor Categories: CS&I, HC Springfield, MA 01109 Phone: 413-731-3110 National TTY: 413-731-3116 Safe Kids Worldwide Fax: 413-731-3111 1255 23rd Street NW, Suite 400 Website: www.scan360.org Washington, DC 20037 Serving: Western Toll-Free Phone: 202-662-0600 Categories: CS&I Fax: 202-393-2072 Additional Languages: Spanish Email: [email protected] Website: www.safekids.org Schwartz Center for Children Offers a wide range of therapeutic programs for young children, Safe Ride News Publications and a Chapter 766-approved school for children and youth ages Advocates for improved standards, laws, and programs related 3-22 with multiple disabilities. to childhood injury prevention. Website offers educational One Posa Place information about safe car and plane travel. Dartmouth, MA 02747 P.O. Box 38 Phone: 508-996-3391 Edmonds, WA 98020 Fax: 508-996-3397 Phone: 425-640-5710, 800-403-1424 Email: [email protected] Fax: 425-640-5417 Website: www.meetingstreet.org Website: www.saferidenews.com Serving: Southeast Serving: National Categories: COMM Categories: ACC Additional Languages: Portuguese, Spanish

Sail to Prevail Scituate Community of Resources Sailing programs encourage people with disabilities to be active for Special Education participants by steering the boat and trimming sails. Outcomes Provides the highest quality educational experience so that include increased self confidence and improved leadership skills. students with special needs can reach their full potential through a variety of fundraising events and activities. 86 Thames Street Newport, RI 02840 P.O. Box 512 Phone: 401-849-8898 North Scituate, MA 02060 Fax: 401-848-9072 Phone: 781-545-7736 Website: www.sailtoprevail.org Email: [email protected] Website: www.corsefoundation.org Serving: National, Southeast Serving: Metrowest Categories: REC Categories: CS&I

Sarah Jane Brain Foundation, Inc. Scleroderma Foundation Agency Maintains a registry of individuals affected by brain injury, for Supports for people with Scleroderma, Raynauds, Sjogren’s researchers delving into therapies and treatments. Their sister Syndrome, Systematic Sclerosis and their families and friends, project site offers opportunities for youth to start including emotional support, education, and research. a club at their own school to get the word out about TBI’s 300 Rosewood Drive, Suite 105 www.sarahjanebrainclub.tumblr.com. Danvers, MA 01923 101 West End Avenue, 23rd Floor Phone: 978-463-5843, 800-722-4673 New York, NY 10023 Fax: 978-463-5809 Phone: 212-576-1180 Email: [email protected] Fax: 212-964-4249 Website: www.scleroderma.org Email: [email protected] Serving: Statewide Website: www.thebrainproject.org Categories: SC Serving: National Categories: SC

167 Scotty Luce Coalition for Family Preservation Resources

Scotty Luce Coalition for Family Preservation Sensory Processing Disorder Foundation Support group for families with children with complex medical/ The SPD Foundation is a world leader in research, education and developmental challenges. Meets monthly in Worcester. advocacy for Sensory Processing Disorder. 93 McCracken Road 5420 S. Quebec Street, Suite 103 Millbury, MA 01527 Greenwood Village, CO 80111 Phone: 508-831-0999 Phone: 303-221-7827 Fax: 508-756-7328 Fax: 303-322-5550 Email: [email protected] Email: [email protected] Website: www.communitygateway.org/local/scotty.htm Website: www.spdfoundation.net Serving: Central Serving: National Categories: CS&I Categories: SC

Seedlings Braille Books For Children Service Dog Project Offers free and low-cost Braille books to individuals up to age 21. Donates Great Danes as service dogs to those with severe balance The Rose Project provides encyclopedia articles in braille for and mobility limitations, and provides applicant training. student’s projects and reports at no cost. 37 Boxford Road 14151 Farmington Road Ipswich, MA 01938 Livonia, MI 48154 Phone: 978-356-0666 Phone: 734-427-8552, 800-777-8552 Email: [email protected] Fax: 734-427-8552 Website: www.servicedogproject.org Website: www.seedlings.org Serving: Statewide Serving: National Categories: SA Categories: ACC, SC

Self Help Inc. Coordinated Family & Community Sesame Street for Military Families Engagement Program An online library plus apps, interactive games, art, and music Committed to strengthening families through community activities to support children’s emotional needs resulting from connection, social support, parent services, and child care a parent’s military service, including homecoming, relocation, assistance. deployment, injuries and grief counseling. 780 West Main Street Email: [email protected] Avon, MA 02322 Website: www.sesamestreetformilitaryfamilies.org Phone: 508-559-1666 Serving: National Fax: 508-583-3808 Categories: COMM Email: [email protected] Website: www.selfhelpcpc.org Seven Hills Family Support Center Serving: Metrowest, Southeast Provides support to families facing challenges caring for loved Categories: CC, CS&I ones with disabilities. Services include information, training, networking, resources, and administration of flexible funding. SenseAbility Gym 799 West Boylston Street, Suite 2 A parent-led sensory gym giving children with special needs a Worcester, MA 01606 safe, fun, indoor area where they can play and accommodate Phone: 508-796-1850 their sensory needs. Fax: 508-849-3898 8 Charlesview Road Website: www.sevenhills.org Hopedale, MA 01747 Serving: Central Phone: 508-381-1231 Categories: RES Email: [email protected] Website: www.senseabilitygym.com Serving: Central, Metrowest Categories: REC, SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 168 Resources SMILE MASS

Seven Hills Family Support Center (cont.) Sibling Leadership Network Online resources relative to the concerns of siblings of all ages, North Central Family Support Center youth to adulthood, including self-advocacy tools. Hosts a 1480 John Fitch Highway national conference. Fitchburg, MA 01420 332 S. Michigan Avenue, Suite 1032-S240 Phone: 978-343-7395 Chicago, IL 60604-4434 Serving: Central Phone: 312-996-1002 Additional Languages: Spanish Email: [email protected] South Valley Family Support Center Website: www.siblingleadership.org 208 Charlton Road Serving: National Sturbridge, MA 01566 Categories: COMM Phone: 774-241-2500 Fax: 508-347-3528 Sibling Support Project Serving: Central A national program dedicated to supporting brothers and Additional Languages: Spanish sisters of people with special health and developmental needs, featuring the SIBSHOPS trainings for local organizations who Seven Hills Pediatric Center take charge of workshops. Pediatric skilled nursing facility offers long- and short-term 6512 23rd Avenue NW, #322 respite care for children with highly specialized medical needs. Seattle, WA 98117 22 Hillside Avenue Phone: 206-297-6368 Groton, MA 01450 Fax: 509-752-6789 Phone: 978-448-3388 Email: [email protected] Fax: 978-448-2329 Website: www.siblingsupport.org Website: www.sevenhills.org/affiliates/pediatric-center Serving: National Serving: Central, Metrowest, Western Categories: COMM Categories: HC, RES Sidekick Soccer Academy Kick with Care Share Pregnancy & Infant Loss Supports programs throughout Massachusetts so that children Serves those whose lives are touched by the tragic death with special needs can enjoy the world’s most popular game on of a baby. a weekly basis. 402 Jackson Street 81 Ash Street, #1 Saint Charles, MO 63301 Waltham, MA 02453 Phone: 636-947-6164, 800-821-6819 Phone: 508-264-1372 Fax: 636-947-7486 Email: [email protected] Email: [email protected] Website: www.sidekicksocceracademy.com/kick-with-care- Website: www.nationalshare.org curriculum Serving: National Serving: Statewide Categories: COMM Categories: REC

Shriners Hospitals for Children SMILE MASS Dedicated to delivering the highest quality of care to children A variety of programs include playground development, with a host of orthopaedic and neuromusculoskeletal disorders Ambassador running team, and loaner equipment for vacation and diseases, as well as cleft lip and palate. and short-term usage. 516 Carew Street 66 Dudley Road Springfield, MA 01104 Sudbury, MA 01776 Phone: 413-787-2000, 800-322-5905 Phone: 617-967-7755 Website: www.shrinershospitalsforchildren.org/hospitals/ Email: [email protected] locations/springfield.aspx Website: www.smilemass.org Serving: National Serving: Statewide Categories: HC Categories: ACC, REC

169 Smiles for Sophie Forever Resources

Smiles for Sophie Forever Statewide Provides financial and emotional support to families burdened 18 Richard Road by pediatric brain tumors, increases awareness and provides Lexington, MA 02421 financial support to St. Jude Hospital. ATTN: Pamela Healey 31722 Leeward Court Phone: 781-862-8273 Avon Lake, OH 44012 Email: [email protected] Phone: 216-346-0913 Website: www.trisomy.org Email: [email protected] Serving: Statewide Website: www.smilesforsophieforever.org Categories: SC Serving: National Categories: SC Somali Development Center Supports, promotes and advocates for the success of Somalis Society for Human Advancement through as they arrive in Massachusetts; Adult literacy programs, Rehabilitation Engineering orientation and acculturation, housing, employment services, Provides custom-designed assistive computer technology to legal assistance, healthcare information, and cultural supports. enable non-speaking children and adults to communicate 10 Malcolm X Blvd., 2nd Floor with others. Roxbury, MA 02119 UMASS Dartmouth Phone: 617-522-0700 285 Old Westport Road North Fax: 617-522-7484 Dartmouth, MA 02747 Email: [email protected] Phone: 508-999-8482 Website: www.sdcboston.org TTY: 508-999-9250 Serving: Statewide Fax: 508-999-8489 Categories: COMM Email: [email protected] Website: www.umassd.edu/outreach/share Songs of Love Foundation Serving: Statewide Dedicated to providing personalized songs for children and Categories: AT teens currently facing tough medical, physical or emotional challenges, free of charge. S.O.F.T. USA P.O. Box 750809 Support organization for Trisomy 18, 13, and related disorders; Forest Hills, NY 11375 offers support for parents who have children with chromosome Phone: 718-441-4588, 800-960-7664 disorder and education to families and professionals. Fax: 718-441-7372 Email: [email protected] National Website: www.songsoflove.org 2982 South Union Street Serving: National Rochester, NY 14624 Categories: REC ATTN: Barb Vanherreweghe Phone: 585-594-4621, 800-716-7638 Sotos Syndrome Support Association Email: [email protected] A social support environment for professionals and families of Website: www.trisomy.org individuals with Sotos Syndrome. Serving: National P.O. Box 4626 Categories: SC Wheaton, IL 60189 Phone: 888-246-7772 Email: [email protected] Website: www.sotossyndrome.org Serving: National Categories: SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 170 Resources Southeast Center for Independent Living

South Middlesex Opportunity Council Southcoast Autism Center Information specialists housed in offices throughout the state Offering full- and half-day ABA programming for toddlers and are linked to their own comprehensive database and are preschoolers diagnosed with Autism Spectrum Disorder. available to assist and direct families to appropriate 69 Main Street local services. Fairhaven, MA 02719 7 Bishop Street Phone: 508-997-1311 Framingham, MA 01702 Email: [email protected] Phone: 508-872-4853 Website: www.southcoastautismcenter.com TTY: 508-872-4853 Serving: Southeast Fax: 508-620-2310 Categories: SC Website: www.smoc.org Serving: Metrowest Southcoast Fair Housing Categories: I&R Works to eliminate housing discrimination, advises individuals with disabilities about their rights to receive reasonable South Shore Mental Health accommodations and reasonable modifications in housing. Provides services for children, teens, and families experiencing 257 Union Street serious emotional problems, behavioral issues, developmental New Bedford, MA 02740 disabilities, and substance abuse; wrap-around services, Phone: 774-473-8333 outpatient counseling, school, transition/employment services. Email: [email protected] 500 Victory Road Website: www.southcoastfairhousing.org Quincy, MA 02171 Serving: Southeast Phone: 617-847-1950, 800-852-2844 Categories: HOUS Fax: 617-786-9894 Website: www.ssmh.org Southeast Asian Coalition of Central Massachusetts Serving: Metrowest, Southeast Supports, promotes and advocates for the success of Southeast Categories: HC, SC, TR Asians in Central Massachusetts; social, emotional, cultural, and economic supports, including job training programs. South Shore Support Services 484 Main Street, Suite 400 Provides supports to people with developmental disabilities, Worcester, MA 01608 assists individuals and families with housing, respite, and Phone: 508-791-4373 transportation concerns and recreation resources. Fax: 508-459-5284 435 Columbian Street Email: [email protected] P.O. Box 890126 Website: www.seacma.org Weymouth, MA 02190 Serving: Central Phone: 781-331-7878 Categories: COMM Fax: 781-331-4882 Email: [email protected] Southeast Center for Independent Living Website: www.soshoresupport.org ILCs are controlled and directed by persons with disabilities, for Serving: Metrowest the purpose of empowering people to take control of their lives. Categories: CS&I, RES, TR 66 Troy Street, #3 Fall River, MA 02720 Southbridge Respite House Phone: 508-679-9210 A regional respite house serving children from ages 4-18, TTY: 508-579-9210 overseen by Seven Hills. Fax: 508-677-2377 465 Alpine Drive Email: [email protected] Southbridge, MA 01550 Website: www.secil.org Phone: 508-765-1633 Serving: Southeast Serving: Central Categories: ILC Categories: RES

171 Space2Thrive Resources

Space2Thrive Special Education Surrogate Parent Program (SESPP) Focuses on developing inclusive home and playground A project of MA Department of Elementary and Secondary environments as well as recreational activities for children of all Education, providing educational advocates for children who ages and abilities; pre-registration is requested. receive services from the Department of Children and Families. Email: [email protected] P.O. Box 1184 Website: www.space2thrive.org Westborough, MA 01581 Serving: Statewide Phone: 508-792-7679 Categories: ACC, CS&I, REC Fax: 508-616-0318 Email: [email protected] SPAN: Special Needs Advocacy Network Website: www.espprogram.org Network of trained special education advocates. Meetings open Serving: Statewide to parents and interested others. Will provide a listing of local Categories: ADV, ED advocates in private practice by calling their phone number. Special Kids Fund P.O. Box 509 A charity organization affiliated with an array of non-profit North Attleboro, MA 02761 organizations; runs its own Wheelchair Assistance Program. Phone: 508-655-7999 Email: [email protected] 111 Autumn Road Website: www.spanmass.org Lakewood, NJ 08701 Serving: Statewide Email: [email protected] Categories: ADV Website: www.specialkidsfund.org Serving: National SPARK Center Categories: ACC Boston Medical Center oversees this therapeutic, medically- specialized program for children of all ages. Special Needs Arts Program, Inc. Provides people with disabilities opportunities that cultivate 255 River Street creative expression, build peer relationships, and foster self- Mattapan, MA 02126 esteem through life-enhancing activities in the arts. Phone: 617-414-0502 Fax: 617-534-2057 P.O. Box 598 Email: [email protected] Lexington, MA 02420 Website: www.bmc.org/programs/spark-center Phone: 781-325-8025 Serving: Boston Email: [email protected] Categories: CC, SC Website: www.snaparts.org Serving: Metrowest Special Education Resources on the Internet Categories: REC A collection of internet accessible information and resources of interest to those involved in the fields related to special Specialized Housing, Inc. education. Innovative housing for adults with additional needs. Works with Email: [email protected] families to create and manage independent living situations, Website: www.seriweb.com provides financial information, housing, recreation and work. Serving: National 45 Bartlett Crescent Categories: ED Brookline, MA 02446 Phone: 617-277-1805 Fax: 617-277-0106 Email: [email protected] Website: www.specializedhousing.org Serving: Statewide Categories: HOUS

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 172 Resources Starkey Hearing Foundation

SpecialSurfers SPIRAL: Selected Patient Information Resources Volunteers offer free surf lessons to children and adults with in Asian Languages special needs in June, July and August at Gooch’s Beach, A collection of links to Asian-language patient care documents. Kennebunkport, ME. Call for details and to register. Tufts University c/o Melissa Denis 145 Harrison Avenue 146 Holmes Road Boston, MA 02111 Scarborough, ME 04074 Phone: 617-636-3988 Phone: 207-205-3985 Fax: 617-636-3805 Website: www.aquaholicsspecialsurfers.org Email: [email protected] Serving: National Website: spiral.tufts.edu Categories: REC Serving: National Categories: COMM, HC Spectrum for Hope, Inc. Additional Languages: Chinese, Hmong, Japanese, Khmer, The Hope Fund Vietnamese, Korean, Lao, Thai Spectrum for Hope provides funding or financial assistance to families who have multiple children with special needs for Springfield Jewish Community Center Program for therapeutic, educational, or recreational opportunities, etc. Children with Special Needs 7 Essex Drive, Suite 62 Programs for children and teens with cognitive and Peabody, MA 01960 developmental delays, Down Syndrome and autism spectrum Phone: 978-578-3446 disorders. Email: [email protected] 1160 Dickinson Street Website: www.spectrumforhope.org Springfield, MA 01108 Serving: Statewide Phone: 413-737-4313 Categories: ADV, AT, CS&I, REC, RES Fax: 413-737-4348 Email: [email protected] Spina Bifida Association of Greater New England Website: www.jewishwesternmass.org Provides a range of support services, including New Parent Serving: Western resource packet, family activities, support groups, clothing and Categories: REC equipment sharing program, and health guide. 219 East Main Street, Suite 100B Stamp Out Stigma Milford, MA 01757 This initiative is spearheaded by the Association for Behavioral Phone: 508-482-5300, 888-479-1900 Health and Wellness (ABHW), to reduce the stigma surrounding Fax: 508-482-5301 mental illness and substance use disorders. Email: [email protected] 1325 G Street NW, Suite 500 Website: www.sbagreaterne.org Washington, DC 20005 Serving: Statewide Email: [email protected] Categories: SC Website: www.stampoutstigma.com Serving: National Spiral Foundation Categories: ADV, SC Committed to improving the quality of life for children with sensory processing disorder in the home, classroom and Starkey Hearing Foundation community. Provides hearing aids to people with limited financial resources; 74 Bridge Street promotes hearing health awareness, research and education. Newton, MA 02458 6700 Washington Avenue Phone: 617-969-4410, Ext: 240 South Eden Prairie, MN 55344 Fax: 617-969-4412 Phone: 866-354-3254 Email: [email protected] Fax: 952-828-6900 Website: www.thespiralfoundation.org Email: [email protected] Serving: Statewide Website: www.starkeyhearingfoundation.org Categories: SC Serving: National Categories: SC

173 Statewide Access Pass Resources

Statewide Access Pass 55 Federal Street, Suite 210 Persons with disabilities are eligible for half-fare bus and train Greenfield, MA 01301 passes. For more information or to apply, contact your local Phone: 413-774-3001, 800-804-1899 transit authority. TTY: 413-772-2556 Categories: TA Fax: 413-772-2556

MBTA S.T.E.P. Special Teams for Exceptional People The RIDE Eligibility Center Social, recreational, sporting events, and activities for children 570 Rutherford Avenue, 1st Floor and adults. Siblings and families are included. Boston, MA 02129 P.O. Box 8857 Phone: 617-337-2727, 800-392-6100 Lowell, MA 01853 Fax: 617-222-3259 Phone: 978-251-8245 Email: [email protected] Email: [email protected] Website: www.mbta.com/theride Website: www.stepinc.us Serving: Statewide Serving: Northeast Categories: REC PVTA 2808 Main Street Stop Bullying Now Foundation Inc. Springfield, MA 01107 Raises money for school districts around the country to address Phone: 413-781-7882, 877-779-7882 and eliminate the ongoing bullying problem. Students can call Fax: 413-788-7272 LIFELINE at 1-800-273-8255. Email: [email protected] 9835-16 Lake Worth Road Website: www.pvta.com Lake Worth, FL 33467 Serving: Western Phone: 561-374-0673 Email: [email protected] WRTA Paratransit Website: www.stopbullyingnowfoundation.org 60 Foster Street Serving: National Worcester, MA 01608 Categories: CS&I Phone: 508-791-9782 Languages: Translator Upon Request Fax: 508-752-1676 Email: [email protected] Stride Adaptive Sports Website: www.wrtaparatransit.com Private ski lessons at Jiminy Peak Mountain for Mono-ski, Serving: Central 3- or 4-track, and adaptive snowboarding for individuals who are visually or hearing impaired or have intellectual disabilities. Stavros Center for Independent Living 4482 NY Highway 150 ILCs are controlled and directed by persons with disabilities, with West Sand Lake, NY 12196 the purpose of empowering people with disabilities to advocate Phone: 518-598-1279 and take control of their lives. Fax: 518-391-2563 Website: www.stavros.org Email: [email protected] Serving: Western Website: www.stride.org Categories: ILC Serving: Statewide Categories: REC 210 Old Farm Road Amherst, MA 01002 Phone: 413-256-0473, 800-804-1899 Fax: 413-256-0190 Email: [email protected]

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 174 Resources Support Brokers

Strongwater Farm Therapeutic Center Suicide Prevention Resource Center We offer both mounted and immounted programs to individuals Support, training, and resources to assist organizations and of all abilities, community groups, rehabilitative agencies and individuals to develop suicide prevention programs, and to the general public. advance the National Strategy for Suicide Prevention. 500 Livingston Street 43 Foundry Avenue P.O. Box 754 Waltham, MA 02453 Tewksbury, MA 01876 Phone: 800-273-8255, 877-438-7772 Phone: 978-851-5540 TTY: 617-964-5448 Fax: 978-851-2906 Email: [email protected] Website: www.strongwaterfarm.org Website: www.sprc.org Serving: Northeast Serving: National Categories: REC Categories: SC

Sturbridge Lyme Awareness of Sturbridge Sunshine Foundation Answers the dreams of chronically ill, seriously ill, physically Provides information specific to the diagnosis, financial challenged and abused children ages 3-18. supports, and advocacy efforts for those affected by insect-borne diseases; also hosts monthly support group in Sturbridge. 1041 Mill Creek Drive Feasterville, PA 19053 Email: [email protected] Phone: 215-396-4770 Website: www.lymenet.org Fax: 215-396-4774 Serving: Statewide Email: [email protected] Categories: ADV, SC Website: www.sunshinefoundation.org Serving: Statewide Sturge-Weber Foundation Categories: COMM Support and opportunities to individuals and providers impacted by a port wine birthmark and related conditions such Super Soccer Stars Shine as Sturge-Weber syndrome and Klippel-Trenaunay. Uses soccer as a vehicle to teach life skills to individuals with 12345 Jones Road, Suite 125 developmental disabilities. Builds self-awareness, confidence, Houston, TX 77070 and gross and fine motor skills—all while having a blast! Phone: 973-895-4445, 800-627-5482 1 Thompson Square, Suite 301 Fax: 973-895-4846 Charleston, MA 02129 Email: [email protected] Phone: 781-777-7171 Website: www.sturge-weber.org Fax: 781-827-0877 Serving: National Email: [email protected] Categories: SC Website: boston.supersoccerstars.com/shine/ Serving: Statewide Stuttering Foundation of America Categories: REC Online resources, services and support to those who stutter and their families, as well as support for research into the causes of Support Brokers stuttering and training programs for professionals. Statewide, for-fee service hosted by Arc of Massachusetts. P.O. Box 11749 Provides services in the areas of advocacy, brokering, planning, Memphis, TN 38111 referral for individuals with disabilities and the elderly. Phone: 901-761-0343, 800-992-9392 217 South Street Fax: 901-761-0484 Waltham, MA 02453 Email: [email protected] Phone: 781-891-6270 Website: www.stutteringhelp.org Fax: 781-891-6271 Serving: National Email: [email protected] Categories: CS&I, I&R, SC Website: www.thearcofmass.org/programs/supportbrokers/ Additional Languages: Chinese, French, Portuguese, Serving: Statewide Spanish, Vietnamese Categories: ADV

175 Surfing with Smiles Resources

Surfing with Smiles Tarlov Cyst Disease Foundation Surfing with Smiles gives the chance for those with special needs Dedicated to improve the level of understanding, diagnosis and and abilities to learn how to surf for free. treatment of Tarlov cysts. 931 Ocean Boulevard 326 Norton Road Hampton, NH 03842 Knoxville, TN 37920 Phone: 603-929-7467 Phone: 865-577-4945 Email: [email protected] Email: [email protected] Website: www.surfingwithsmiles.wix.com/surfingwithsmiles Website: www.tarlovcystfoundation.org Serving: Statewide Serving: National Categories: REC Categories: SC

Syndromes Without A Diagnosis (SWAN) Taunton Department of Human Services Offers support, advice and information on the challenges that Community Relations Counselor has database to assist and families face when there is no diagnosis. direct families to appropriate local services. 1745 Lorna Lane 30 Olney Street Otsego, MI 49078 Taunton, MA 02780 Phone: 269-692-2090, 888-880-7926 Phone: 508-821-1420 Email: [email protected] Fax: 508-821-1444 Website: www.undiagnosed-usa.org/globalgenes.htm Website: www.taunton-ma.gov/human-services-department Serving: National Serving: Southeast Categories: HC, SC Categories: I&R

Talk About Curing Autism (TACA) Taunton White Tigers Dedicated to educating, empowering and supporting families All inclusive sports program for any athletes, ages 4-22. We focus affected by autism. on team building, social skills, and sportsmanship. Athletes from 2222 Martin Street, Suite 140 all towns welcome. Irvine, CA 92612 306 Winthrop Street, #164 Phone: 949-640-4401, 855-726-7810 Taunton, MA 02780 Fax: 949-640-4424 Phone: 978-844-9331 Website: www.tacanow.org Email: [email protected] Serving: National Website: www.tauntonwhitetigers.com Categories: ADV, SC Serving: Southeast Additional Languages: Spanish Categories: CS&I, REC

Take a Breather Foundation (Cystic Fibrosis) Team IMPACT Gives children living with Cystic Fibrosis and their family the Enhances the lives of children facing life-threatening and chronic opportunity to “take a breather” from everyday emotional, illnesses by matching them with college athletic teams to create financial, and spiritual stresses cased by their disease. Creating a support network of laughter, strength and support. smiles, laughter, and magical memories is our goal. 500 Victory Road, 4th Floor 107 Forrest Avenue, Suite 105 Quincy, MA 02171 Narberth, PA 19072 Phone: 617-801-0248 Phone: 610-664-1826 Email: [email protected] Fax: 610-664-1827 Website: www.goteamimpact.org Email: [email protected] Serving: National Website: www.takeabreatherfromcf.org Categories: REC Serving: National Categories: COMM, SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 176 Resources The Conversation Project

Tech Goes Home The Bridge Center TGH School helps Boston Public School parents and caregivers Recreational and skill building activities for children and youth and their children gain access to the skills and hardware needed with disabilities summer camp, horseback riding, after school for 21st century success. and weekend activities. P.O. Box 961379 470 Pine Street Boston, MA 02196 Bridgewater, MA 02324 Phone: 617-635-2822 Phone: 508-697-7557 Email: [email protected] Fax: 508-697-1529 Website: www.techgoeshome.org Email: [email protected] Serving: Boston Website: www.TheBridgeCtr.org Categories: CS&I Serving: Boston, Metrowest, Southeast Categories: REC Technical Assistance Center on Social Emotional Intervention The Center for Health and Healthcare in Schools Technical assistance on behavior and social/emotional issues at George Washington University to caregivers, service providers, families, and administrators; A nonpartisan policy resource and technical assistance center trainings, workshops, seminars, newsletter, parent resources. partnering with foundations, government agencies, school Email: [email protected] districts and providers to support school-connected initiatives. Website: www.challengingbehavior.com 2175 K Street NW, Suite 200, Room 213 Serving: National Washington, DC 20037 Categories: CS&I, SC Phone: 202-994-4895 Fax: 202-994-1449 Tempus Unlimited, Inc. Email: [email protected] Provides recreation and rehabilitation programs including Website: www.healthinschools.org physical therapy, occupational therapy, speech therapy, early Serving: National intervention, day care, and Personal Care Attendants. Categories: ED, HC 600 Technology Center Drive Stoughton, MA 02072 The Consortium Phone: 800-924-7570, 877-479-7577 An organization of parents and professionals who advocate Fax: 877-313-6664 on behalf of children with mental, emotional or behavioral Email: [email protected] specials needs. Website: www.masscp.org 187 High Street, Suite 202 Serving: Statewide Holyoke, MA 01040 Categories: HC, REC, RES, SC Phone: 413-536-2401, 800-894-2401 Fax: 413-536-4166 The BINA Farm Email: [email protected] A comprehensive therapeutic environment for individuals with Website: www.wmtcinfo.org special needs. Programs include horseback riding, music therapy, Serving: Western yoga, massage therapy, life skills, and rock climbing. Categories: ADV, CS&I, SC 207 Union Street Natick, MA 01760 The Conversation Project Phone: 508-651-2462 Helps people talk about their wishes for end-of-life care. Website Fax: 508-651-2463 includes a helpful Starter Kit. Email: [email protected] 20 University Road, 7th Floor Website: www.binafarm.org Cambridge, MA 02138 Serving: Metrowest Phone: 617-301-4868 Categories: REC Email: [email protected] Website: www.theconversationproject.org Serving: National Categories: HC, CS&I

177 The Corner Kingdom Project Resources

The Corner Kingdom Project The Five Project Inc. Grants to design beautiful yet functional rooms for children with Promotes advocacy skills for individuals and families, provides disabilities or life-threatening illnesses, providing them with a training and consultation to Autism professionals and parents in safe, comfortable space to sleep, play, and live. China and those planning to work in China. 46 Bear Path Lane 33 Fitch Terrace Hudson, NH 03051 Randolph, MA 02368 Email: [email protected] Phone: 617-543-2488 Website: www.cornerkingdomproject.org Email: [email protected] Serving: Statewide Website: www.thefiveproject.org Categories: COMM Serving: Metrowest Categories: COMM, SC The Decibels Foundation Additional Languages: Chinese Offers workshops, educational, equipment, and financial resources to families of children with hearing loss. Provides The Garden: A Center for Grieving specialized early intervention services. Children and Teens 2 Mill & Main Place, Suite 418 Provides support to grieving young people and their families. Maynard, MA 01754 Discussion groups are geared toward helping young people Phone: 978-637-2622 identify and share their feelings and begin the healing process. Email: [email protected] 168 Industrial Drive, #1 Website: www.decibelsfoundation.org Northampton, MA 01060 Serving: Statewide Phone: 413-584-1060, 413-582-5312 Categories: AT, SC Email: [email protected] Website: www.cooley-dickinson.org/programs-services/vna- The Devin Laubi Foundation hospice/the-garden Provides financial and emotional support to families of children Serving: Statewide Western with cancer up to age 18. Categories: COMM 504 Main Road Westport, MA 02790 The Guild for Human Services Phone: 508-636-7369 Residential school for students with mental health issues, autism, Email: [email protected] developmental disabilities, and emotional and behavioral Website: www.mydevin.org challenges, ages 6 to 22 years. Serving: Statewide 521 Virginia Road Categories: SC Concord, MA 01742 Phone: 781-893-6000 The Family and Professional Resource Center Fax: 781-795-7450 High-quality educational information, community resources and Email: [email protected] parent support programs for families who have children with Website: www.guildhumanservices.org special needs and who are at-risk. Serving: National,, Statewide 112 Sohier Road Categories: ED, TR Beverly, MA 01915 Phone: 978-232-9755, Ext: 1356 Email: [email protected] Serving: Northeast Categories: CS&I

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 178 Resources The MAGIC Foundation

The Holland Project The Love of The Game Unique recreational, educational and vocational opportunities UMass Lowell’s DifferenceMaker program sponsors sporting for teens with Autism and other disabilities using creative arts, events for individuals with developmental disabilities with help nature, and animals. from college athlete volunteers. Black Sheep Farm 322 Aiken Street 81 Church Street Lowell, MA 01854 Merrimack, MA 01860 Phone: 978-934-4000 Phone: 978-764-8611 Email: [email protected] Fax: 978-997-1289 Website: www.uml.edu/Innovation-Entrepreneurship/ Email: [email protected] DifferenceMaker/Meet-the-DifferenceMakers/Love-of-the- Website: thehollandproject.org Game.aspx Serving: Northeast Serving: Northeast Categories: REC, TR Categories: REC

The Immigrant Learning Center The Maggie Welby Foundation Free English classes for immigrant and refugee adults. Staffs a The Maggie Welby Foundation offers grants for children and guidance counselor/coordinator for American Disability Act. families that have a financial need for a particular purpose. Grants may extend to children and families in need of help with 442 Main Street bills, athletic opportunities, memdical needs, or an opportunity Malden, MA 02148 that a child would not otherwise have. Phone: 781-322-9777 TTY: 800-439-2370 7 Needle Court Dardeene Prairie, MO 63368 Fax: 781-321-1963 Email: [email protected] Email: [email protected] Website: www.maggiewelby.org Website: www.ilctr.org Serving: National Serving: Northeast Categories: COMM Categories: CS&I

The Jamie Fund The MAGIC Foundation Promotes social acceptance through interactive programs, Education and support services for families of children with a including iCARE (Introducing Children to Acceptance through wide variety of disorders that affect a child’s growth. Reading and Education), funding, and training. 4200 Cantera Drive, #106 P.O. Box 256 Warrenville, IL 60555 Mansfield, MA 02048 Phone: 630-836-8200, 800-362-4423 Email: [email protected] Fax: 630-836-8181 Website: www.thejamiefund.org Email: [email protected] Serving: Statewide Website: www.magicfoundation.org Categories: CS&I Serving: National Categories: SC The Learning Center for Deaf Children Additional Languages: Spanish A challenging curriculum of academic excellence for deaf students from infancy through high school. 848 Central Street Framingham, MA 01701 Phone: 508-879-5110 Fax: 508-875-9203 Email: [email protected] Website: www.tlcdeaf.org Serving: Statewide Categories: SC

179 The Massachusetts Center for Unexpected Infant and Child Death Resources

The Massachusetts Center for Unexpected Infant The National Children’s Cancer Society and Child Death Transportation Assistance Fund Coordinates services to families who are affected by SIDS or Families who have a child with cancer may apply for financial other causes of infant mortality; 24-hr. counseling, home visits, assistance to help pay for mileage, airfare and lodging when parent support groups and parent-to-parent contacts. their child needs to stay near the hospital for treatment. 500 North Broadway, Suite 1850 Boston Medical Center St. Louis, MO 63102 72 East Concord Street, Vose 4 Phone: 314-241-1600 Boston, MA 02118 Fax: 314-241-1996 Phone: 617-414-7437, 800-641-7437 Website: www.thenccs.org/financial-assistance Fax: 617-414-5555 Serving: National Email: [email protected] Categories: CS&I, SC, TA Website: www.magriefcenter.org Serving: Statewide The Parker Lee Project Categories: COMM Dedicated to helping children obtain the medical supplies and equipment they desperately need. The M.O.R.G.A.N. Project 1810 S Kaufman Street, Suite 204 Supports caregivers of children with special healthcare needs; Ennis, TX 75119 offers information, equipment program, and grants. Phone: 469-441-1485 4241 N. Highway 1 Email: [email protected] Melbourne Beach, FL 32935 Website: www.theparkerleeproject.org Phone: 321-506-2707 Serving: National Email: [email protected] Categories: AT, HC Website: www.themorganproject.org Serving: National The Paul Center Categories: ADV, AT Saturday respite care, transitional program, school vacation program, summer day camps and Camp Paul overnight camp. The National Children’s Cancer Society 39 Concord Road Emergency Assistance Fund Chelmsford, MA 01824 Families who have a child that has been inpatient for 30 days Phone: 978-256-4396 within a month may apply for $300 to pay for expenses including Fax: 978-256-3054 rent, mortgage, utilities, childcare, prescriptions, etc. Email: [email protected] Phone: 314-241-1600 Website: www.thepaulcenter.org Fax: 314-735-2014 Serving: Statewide Email: [email protected] Categories: REC, RES, TR Website: www.thenccs.org/financialassistance Serving: National Categories: CS&I, SC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 180 Resources Touchstone Farm Horse Power Therapeutic Horsemanship

The RIDE-MBTA ThinkFirst National Injury Prevention Foundation MBTA’s paratransit service; provides door-to-door transportation Educational programming, online training, and local chapters to to those who are unable to use public transportation because of prevent brain, spinal cord, and other traumatic injuries. physical, cognitive, psychiatric, or sensory disability. 1801 N. Mill Street, Suite F 570 Rutherford Avenue, 1st Floor Naperville, IL 60563 Boston, MA 02129 Phone: 630-961-1400, 800-844-6556 Phone: 617-337-2727 Email: [email protected] TTY: 617-222-5415 Website: www.thinkfirst.org Email: [email protected] Serving: National Website: www.mbta.com/theride Categories: SC Serving: Boston, Metrowest Categories: TA This Star Won’t Go Out Serving families with children diagnosed with cancer through Therapeutic Equestrian Center, Inc. financial grants. Can be used for medical expenses, items for the Provides physical, learning and recreational opportunities for child with cancer or personal expenses such as rent and utility children with special needs through horseback riding lessons. payments. 537 Northampton Street 118 Billings Street Holyoke, MA 01040 Quincy, MA 02171 Phone: 413-532-1462 Email: [email protected] Email: [email protected] Website: www.tswgo.org Website: www.equestriantherapy.org Serving: Statewide Serving: Western Categories: SC Categories: REC Through the Looking Glass Offers resources on adaptive equipment and training to family Therapy Dog International (TDI) members of individuals with special needs. Regulates, tests and registers therapy dogs and handlers for the 3075 Adeline Road, Suite 120 purpose of visiting nursing homes, hospitals, etc. Berkeley, CA 94703 88 Bartley Road Phone: 510-848-1112, 800-644-2666 Flanders, NJ 07836 Fax: 510-848-4445 Phone: 973-252-9800 Email: [email protected] Fax: 973-252-7171 Website: www.lookingglass.org Email: [email protected] Serving: National Website: www.tdi-dog.org Categories: AT, TR Serving: National Categories: SA Touchstone Farm Horse Power Therapeutic Horsemanship Think Alive Foundation, Mass. Office Supports individuals facing physical, cognitive, emotional, Financial support for youth with disabilities to pursue goals and behavioral and learning challenges. explore a wide range of passions otherwise inaccessible. 13 Pony Farm Lane P.O. Box 1080 Temple, NH 03084 Amherst, MA 01004 Phone: 603-654-6308 Phone: 505-470-3296 Email: [email protected] Email: [email protected] Website: www.touchstone-farm.org Website: www.thinkalive.org Serving: National Serving: National Categories: REC Categories: ADV, CS&I

181 Tourette Syndrome Association, Inc. Resources

Tourette Syndrome Association, Inc. TrachCare, Inc. Information and referrals, adult and parent support groups, Opportunities for families caring for children with trachs to kids group, lending library, advocacy services, newsletter, and connect and share resources. Information Guide includes physician referral service. comprehensive listing of skilled nursing and PCA agencies. 42-40 Bell Boulevard, Suite 205 P.O. Box 440215 Bayside, NY 11361 Somerville, MA 02144 Phone: 718-224-2999 Phone: 207-233-3709 Fax: 718-279-9596 Email: [email protected] Email: [email protected] Website: www.trachcare.org Website: www.tourette.org Serving: Statewide Serving: National Categories: SC Website: www.tsa-ma.org Categories: SC Transition Coalition Maximizes professional development opportunities for Statewide secondary transition, college, and career readiness of youth Attn: Barbara Fink with disabilities. P.O. Box 254 University of Kansas, Transition Coalition, Haworth Hall Shrewsbury, MA 01545 1200 Sunnyside Avenue Phone: 888-486-8738 Lawrence, KS 66045 Serving: Statewide Phone: 785-864-0686 Fax: 785-864-4149 Toward Independent Living and Learning (TILL) Website: www.transitioncoalition.org TILL Autism Support Center Serving: National Supported living options for young adults with special needs. Categories: ADV, TR Services include respite/family support, PCA, children’s intensive supports and information and referral. TILL Autism Support Transitions In Motion Center, Phone: 781-302-4835 Equine-assisted occupational therapy, hippotherapy, and 20 Eastbrook Road, Suite 201 therapeutic riding lessons to enhance independence for adults Dedham, MA 02026 and children with a disabilities. Phone: 781-302-4600 P.O. Box 495 Fax: 781-329-4254 Belchertown, MA 01007 Email: [email protected] Phone: 802-272-2013, 559-321-7815 Website: www.tillinc.org Email: [email protected] Serving: Boston, Metrowest Website: www.transitionsinmotion.com Categories: CS&I, I&R, REC, RES, SC, TR Serving: Western Additional Languages: Haitian, Spanish, Vietnamese Categories: REC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 182 Resources Twin to Twin Transfusion Syndrome Foundation

Triangle, Inc. Tuberous Sclerosis Alliance Triangle partners with schools, community organizations, and Dedicated to finding a cure for Tuberous Sclerosis while businesses to promote integrated school-to-work career training improving the lives of those affected; offers information and and placement. resources with online support and in-person support groups. 420 Pearl Street 801 Roeder Road, Suite 750 Malden, MA 02148 Silver Spring, MD 20910 Phone: 781-322-0400 Phone: 301-562-9890, 800-225-6872 TTY: 781-322-0401 Fax: 301-562-9870 Fax: 781-322-0410 Email: [email protected] Email: [email protected] (Malden) Website: www.tsalliance.org [email protected] (Randolph) Serving: National Website: www.triangle-inc.org Categories: SC Serving: Metrowest, Northeast Categories: CS&I, TR Turn Back Time A farm and nature-focused program for children, specializing in Trisomy 18 Foundation children with emotional/behavioral difficulties. On-line resources for families and professionals, research, 250 Marshall Street advocacy, educational info, photos, and volunteer opportunities. Paxton, MA 01612 4491 Cheshire Station Plaza, Suite 157 Phone: 978-760-3707 Dale City, VA 22193 Email: [email protected] Phone: 810-867-4211 Website: www.tbtinc.org Email: [email protected] Serving: Central Website: www.trisomy18.org Categories: REC Serving: National Categories: SC Turner Syndrome Society of the United States A forum where those affected by the disease can work together Triumph Center with medical professionals to better understand the condition. Services include counseling, play therapy, cognitive- 11250 West Road, Suite G behavioral therapy; parent and school consultations, and Houston, TX 77065 summer programs. Phone: 832-912-6006, 800-365-9944 Fax: 832-912-6446 36 Woburn Street Email: [email protected] Reading, MA 01867 Website: www.turnersyndrome.org Phone: 781-942-9277 Serving: National Email: [email protected] Categories: SC Website: www.triumphcenter.net Serving: Boston, Metrowest, Northeast Twin to Twin Transfusion Syndrome Foundation Categories: SC Immediate educational, emotional and financial support to

families with a diagnosis of Twin-to-Twin Transfusion Syndrome. TSA Cares Offers information on policies, procedures and what to expect at 411 Longbeach Parkway airport security specifically for passengers with disabilities who Bay Village, OH 44140 want to prepare for the screening process prior to flying. Phone: 440-899-8887, 800-815-9211 Email: [email protected] Phone: 866-289-9673 Website: www.tttsfoundation.org Website: www.tsa.gov/travel/passenger-support Serving: National Serving: National Categories: SC Categories: ACC Additional Languages: Spanish

183 Ultimate Sports Program Resources

Ultimate Sports Program United Cerebral Palsy Teaches sports to kids with disabilities alongside their friends. Offers an information and referral service, legislative advocacy, 267 Falley Drive technology initiatives and research programs to consumers and Westfield, MA 01085 families of children with Cerebral Palsy. Phone: 413-562-9746 1825 K Street NW, Suite 600 Email: [email protected] Washington, DC 20006 Website: www.uspkids.com Phone: 202-776-0406, 800-872-5827 Serving: Western Fax: 202-776-0414 Categories: REC Email: [email protected] Website: www.ucp.org Understanding Our Differences Serving: National Aims to increase acceptance of those with disabilities through Categories: SC hands-on classroom activities with 3rd and 5th grade curriculum. United Cerebral Palsy of Berkshire County 100 Walnut Street Offers assistance with general and educational advocacy, Newtonville, MA 02460 assistive technology, computer training, and a loaner program Phone: 617-559-6075 of durable medical equipment. Email: [email protected] 535 Curran Highway Website: www.understandingourdifferences.org North Adams, MA 01247 Serving: National Phone: 413-664-9345 Categories: CS&I Fax: 413-663-5019 Email: [email protected] United Arc of Franklin and Hampshire Counties Website: www.ucpberkshire.org Offers a Family Friend Program, Positive Parenting Resource Serving: Western Center (funded, in part, by DCF), DCF Transitional Program, and Categories: REC, SC Coalition for Supporting Parents with Cognitive Challenges. Additional Languages: Spanish 294 Avenue A Turner’s Falls, MA 01376 United Cerebral Palsy of MetroBoston, Inc. Phone: 413-774-5558 Agency services to families with special needs, including Fax: 413-863-5219 information and referral, financial assistance, PCAs, support Email: [email protected] Website: www.unitedarc.org groups, residential and day supports for adults. Serving: Western 71 Arsenal Street Categories: ARC Watertown, MA 02472 Additional Languages: Spanish Phone: 617-926-5480 TTY: 617-926-8051 Fax: 617-926-3059 Email: [email protected] Website: www.ucpboston.org Serving: Boston, Metrowest Categories: REC, SC Additional Languages: Spanish

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 184 Resources United States Department of Education: Office of Special Educaton and Rehabilitation Services

United Healthcare Children’s Foundation United States Department of Education Offers grants of up to $5,000 for families of children with critical Information on policies, programs and personnel at U.S. healthcare treatment, services, or equipment not covered or not Department of Education. Features updates on current fully covered by their parents’ health benefit plans. education legislation. MN017-W400 400 Maryland Avenue SW P.O. Box 41 Washington, DC 20202 Minneapolis, MN 55440 Phone: 800-872-5327 Phone: 855-698-4223 TTY: 800-437-0833 Email: [email protected] Fax: 202-401-0689 Website: www.uhccf.org Email: [email protected] Serving: National Website: www.ed.gov Categories: CS&I, HC Serving: National Categories: ED United Leukodystrophy Foundation, Inc. Additional Languages: Spanish Provides patients and family with information about diseases and identifying resources at the same time that promotes United States Department of Education: education and research about Leukodystrophy. Information Resource Center 224 North Second Street, Suite 2 The Office of Communications and Outreach leads USDOE’s DeKalb, IL 60115 communications and outreach efforts. Phone: 815-748-3211, 800-728-5483 400 Maryland Avenue SW Fax: 815-748-0844 Washington, DC 20202 Email: [email protected] Phone: 202-245-7468 Website: www.ulf.org TTY: 800-437-0833 Serving: National Fax: 202-401-8607 Categories: SC Website: answers.ed.gov Serving: National United Mitochondrial Disease Foundation Categories: ED Promotes research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to United States Department of Education: Office of affected individuals and families. Special Education and Rehabilitation Services 8085 Saltsburg Road, Suite 201 Supports programs and research that help educate, rehabilitate, Pittsburgh, PA 15239 and improve the lives of children and youth with disabilities. Phone: 412-793-8077, 888-317-8633 400 Maryland Avenue SW Fax: 412-793-6477 Washington, DC 20202 Email: [email protected] Phone: 800-872-5327 Website: www.umdf.org TTY: 800-437-0833 Serving: National Fax: 202-401-8607 Categories: SC Website: www.ed.gov/about/offices/list/osers/index.html Serving: National United Spinal Association Categories: ED Focuses on improving the quality of life for people living with spinal cord injuries and disorders. Services include a newsletter, peer support, and accessibility consultations. 120-34 Queens Blvd., #320 Kew Gardens, NY 11415 Phone: 718-803-3782 Fax: 718-803-0414 Email: [email protected] Website: www.unitedspinal.org Serving: National Categories: ACC, ADV, SC

185 United Way Resources

United Way United Way of Greater Attleboro and Taunton Information specialists housed in offices throughout the state 247 Maple Street are linked to their own comprehensive database and are Attleboro, MA 02703 available to assist and direct families to local services. Phone: 508-222-2337 Statewide Hotline: 211. Fax: 508-222-4190 Categories: I&R Email: [email protected] Website: www.uwgat.org United Way First Call for Help c/o The Medical Foundation Serving: Southeast 95 Berkeley Street Boston, MA 02116 United Way of Greater Fall River Phone: 877-211-6277 30 Bedford Street TTY: 617-536-5872 Fall River, MA 02738 Fax: 617-451-0062 Phone: 508-678-8361 Serving: Boston Fax: 508-678-3947 Website: www.uwgfr.org United Way of Berkshire County Serving: Southeast 200 South Street Pittsfield, MA 01202 United Way of Greater New Bedford Phone: 413-442-6948 128 Union Street, Suite 105 Fax: 413-442-5050 New Bedford, MA 02740 Email: [email protected] Phone: 508-994-9625 Website: www.berkshireunitedway.org Email: [email protected] Serving: Western Website: www.unitedwayofgnb.org Additional Languages: Spanish Serving: Southeast

United Way of Central Massachusetts United Way of Greater Plymouth 484 Main Street 934 West Chestnut Street Worcester, MA 01608 Brockton, MA 02301 Phone: 508-757-5631 Phone: 508-583-6306 Fax: 508-757-2712 Email: [email protected] and Website: www.unitedwaycm.org 134 Court Street, Suite #5 Serving: Central Plymouth, MA 02360 Additional Languages: Spanish Phone: 508-747-6160 Website: www.uwgpc.org United Way of Franklin County Serving: Southeast 51 Davis Street, Suite 2 Categories: I&R Greenfield, MA 01301 Phone: 413-772-2168 United Way of Massachusetts Bay and Merrimack Valley Fax: 413-772-2160 51 Sleeper Street Email: [email protected] Boston, MA 02210 Website: www.uw-fc.org Phone: 617-624-8000 Serving: Western Email: [email protected] Website: www.unitedwaymassbay.org Serving: Boston, Northeast

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 186 Resources Vermont Adaptive Ski & Sports

United Way of North Central Massachusetts UNOS Transplant Living 649 John Fitch Highway Website offers a comprehensive collection of Stories of Hope, Fitchburg, MA 01420 patient resources, information about each step in the Transplant Phone: 978-345-1577, 800-551-2021 process, and links to support groups across the country. Fax: 978-345-7683 P.O. Box 2484 Email: [email protected] Richmond, VA 23218 Website: www.uwncm.org Phone: 804-782-4800 Serving: Central Fax: 804-782-4817 Additional Languages: Spanish Email: [email protected] Website: www.transplantliving.org United Way of Pioneer Valley Serving: National 1441 Main Street, Suite 147 Categories: SC Springfield, MA 01103 Phone: 413-737-2691 Urban Pride Email: [email protected] Empower and support parents of children with disabilities in Website: www.uwpv.org inner city Boston to improve the lives of children at home, in Serving: Western school and in the community. One Westinghouse Plaza, Building D, Suite 11, 2nd Floor United Way of Tri-County Hyde Park, MA 02136 46 Park Street Phone: 617-206-4570, Ext: 301 Framingham, MA 01702 Fax: 617-206-4576 Phone: 508-872-3291, 888-811-3291 Email: [email protected] Fax: 508-875-8862 Website: www.urbanpride.org Email: [email protected] Serving: Boston Website: www.uwotc.org Categories: ADV, ED Serving: Metrowest Additional Languages: Spanish Universal Access Program: Massachusetts USDA Rural Development in Southern New England Department of Conservation and Recreation Services homeowners and homebuyers. Education and Provides outdoor recreation opportunities in Massachusetts workshops are offered, as well as subsidies for income eligible state and urban parks for visitors of all abilities. Free admission families. USDA may provide financing for accessibility features. to state parks for individuals with disabilities. 451 West Street, Suite 2 Massachusetts Department of Conservation and Recreation Amherst, MA 01002 251 Causeway Street, Suite 900 Phone: 413-253-4300, 800-352-8015 Boston, MA 02114-2104 TTY: 413-253-4590 Phone: 617-626-1250 Fax: 413-253-4347 Fax: 617-626-1351 Website: www.rurdev.usda.gov/ma Email: [email protected] Serving: Statewide Website: www.mass.gov/eea/agencies/dcr Categories: HOUS Serving: Statewide Categories: ACC, AT, REC Vermont Adaptive Ski & Sports Empowering individuals with disabilities through year-round, statewide sports and recreation. 77 Alpine Drive Pico Mountain Killington, VT 05751 Phone: 802-786-4991 Fax: 802-786-4986 Website: www.vermontadaptive.org Serving: National Categories: REC

187 VHL Family Alliance Resources

VHL Family Alliance Wachusett Mountain Adaptive Ski Program Offers medical information, patient information, and family Offers unique programs for those with special challenges. support for individuals affected by Von Hippel-Lindau Disease. 499 Mountain Road 1208 VFW Parkway, Suite 303 Princeton, MA 01541 Boston, MA 02132 Phone: 978-464-2300, 800-754-1234 Phone: 617-277-5667, 800-767-4845 Fax: 978-464-5462 Fax: 866-209-0288 Email: [email protected] Email: [email protected] Website: www.wachusett.com Website: www.vhl.org Serving: Central Serving: National Categories: REC Categories: SC Additional Languages: French, Portuguese, Spanish Walnut Street Center Empowers adults with developmental disabilities to make Volunteer Lawyers Project of the meaningful life choices. Offers a variety of services that provide opportunities to live, work and socialize in the community. Boston Bar Association Free legal services to income eligible individuals in the areas of 291 Mystic Avenue Disability/ SSI, special education, housing, family law etc. For Medford, MA 02155 referrals, call 617-603-1700 or 617-371-1234. Phone: 617-776-1448 Fax: 617-629-3568 99 Chauncy Street, Suite 400 Website: www.wscinc.org Boston, MA 02111 Serving: Metrowest Phone: 617-423-0648 Categories: RES, TR TTY: 617-338-6790 Fax: 617-423-0061 Washington State Fathers Network Email: [email protected] Provides support, resources, curriculum, training regarding Website: www.vlpnet.org fathers of children with special needs. Serving: Statewide 16120 NE Eighth Street Categories: LGL Bellevue, WA 98008 Phone: 425-653-4286 VSA Arts of Massachusetts Fax: 425-747-1069 Publishes a guide to over 200 accessible arts and entertainment Email: [email protected] opportunities throughout the state for people with disabilities. Website: www.fathersnetwork.org The Nonprofit Center Serving: National 89 South Street, Suite 101 Categories: COMM Boston, MA 02111 Additional Languages: Spanish Phone: 617-350-7713 TTY: 617-350-6535 Fax: 617-482-4298 Email: [email protected] Website: www.vsamass.org Serving: Statewide Categories: REC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 188 Resources Westwood Early Childhood Office Agency

Washington Watch Wellspring Farm Learning Center, LLC Alert bulletin on issues going on in Washington DC and how they Provides array of horse activities for children with special needs will affect people with disabilities. of all ages. 1660 L Street NW, Suite 700 42 Hiller Road Washington, DC 20036 Rochester, MA 02770 Website: www.washingtonwatch.com Phone: 508-763-5896 Serving: National Fax: 888-577-9425 Categories: ADV Email: [email protected] Website: www.wellspringfarmlearningcenter.com Waterville Valley Adaptive Sports Serving: Southeast Waterville Valley Adaptive Sports is dedicated to empowering Categories: REC individuals with disabilities through access and instruction in sports and recreation for life. WestMass ElderCare P.O. Box 505 Through MassHealth’s PCA Program, provides assessment, Waterville Valley, NH 03215 evaluation and training for consumers who wish to self-direct Phone: 603-236-8311, Ext: 3175 their care as the employer of their personal care attendants. Email: [email protected] 4 Valley Mill Road Website: www.watervilleadaptive.com Holyoke, MA 01040 Serving: National Phone: 413-538-9020, 800-462-2301 Categories: REC Fax: 413-538-6258 Email: [email protected] Waypoint Adventure Website: www.wmeldercare.org Athletic programs uniquely adapted to accommodate people Serving: Western with a wide range of disabilities. All programs are custom Categories: HC tailored to the diverse needs of individuals and groups. 453 Concord Avenue Westwood Early Childhood Office Agency Lexington, MA 02421 The Early Childhood Office is staffed by Early Childhood Phone: 781-325-7980 Coordinator. Services include outreach and activities for families Email: [email protected] with young children, and professional development resources. Website: www.waypointadventure.org 200 Nahatan Street Serving: Statewide Westwood, MA 02090 Categories: REC Phone: 781-461-9548 Email: [email protected] WBZ Call for Action Website: www.westwood.k12.ma.us/index.cfm?pid=19106 Nonprofit telephone information, referral and action service Serving: Metrowest dedicated to resolving people’s problems. Categories: CC, COMM 1170 Soldiers Field Road Boston, MA 02134 Phone: 617-787-7070 Fax: 617-787-7237 Website: www.boston.cbslocal.com/ Serving: Statewide Categories: CS&I

Weber Foundation of Helping Hands, Inc. Supports individuals and families in dire need as a result of life- threatening illnesses or other catastrophic situations. 1035 Main Street Melrose, MA 02176 Email: [email protected] Website: www.theweberfoundation.com Serving: Northeast Categories: CS&I

189 Wheel to Walk Foundation Resources

Wheel to Walk Foundation White Mountain Adaptive Snow Sports Program A non-profit organization that helps children and young White Mountain Adaptive Snow Sports School at Loon adults 21 years and younger-with disabilities obtain medical Mountain. equipment or services that is not provided by their insurance P.O. Box 26 companies. Lincoln, NH 03251 P.O. Box 20146 Phone: 603-278-3398, 603-745-9333 Portland, OR 97294 Fax: 603-728-1771 Phone: 503-257-1401 Email: [email protected] Email: [email protected] Website: www.nedisabledsports.org Website: www.wheeltowalk.com Serving: National Serving: National Categories: REC Categories: AT Whittier Street Health Center Arts Therapy Wheelchair Recycler, Inc. Department Provides much needed mobility to people without insurance or Inclusive arts programs: music, art, and dance/movement other means, through recycling and refurbishing used electric therapy for individuals or groups. CHAMPS after-school power chairs and scooters. programs; staff will travel into the community. 9 Summer Street 1290 Tremont Street Ashland, MA 01721 Boston, MA 02120 Phone: 508-460-6328 Phone: 617-427-1000 Email: [email protected] Fax: 617-858-2674 Website: www.wheelchairrecycler.org Email: [email protected] Serving: Statewide Website: www.wshc.org Categories: ACC, AT Serving: Boston Categories: REC Whispering Horse Therapeutic Riding Center Trained professionals assist individuals with physical and Whole Children mental limitations to achieve independence through a variety of Offers social skills, life skills and recreational programs after- therapeutic means. school, weekend and during school vacation. 253 Hampden Road 41 Russell Street East Longmeadow, MA 01028 Hadley, MA 01035 Phone: 413-525-2174 Phone: 413-585-8010 Email: [email protected] Email: [email protected] Website: www.whisperinghorse.org Website: www.wholechildren.org Serving: Western Serving: Western Categories: REC Categories: REC

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 190 Resources Work, community, Independence

Wild Hearts Therapeutic Equestrian Program Wonderbaby.org Year-round therapeutic riding, hippotherapy, equine facilitated Online database of articles written by parents of young children psychotherapy for children, adults and military veterans with with visual impairments or multiple disabilities, as well as links to physical, cognitive, emotional and/or social challenges. resources and ways to connect with other families. P.O. Box 314 P.O. Box 682 West Bridgewater, MA 02379 Watertown, MA 02471 Phone: 508-857-1737 Email: [email protected] Email: [email protected] Website: www.wonderbaby.org Website: www.wildheartstherapeutic.org Serving: National Serving: Southeast, Central Categories: SC Categories: REC Worcester Connections Family Resource Center Williams Syndrome Association WCFRC of Y.O.U., Inc. Supports research and the development of the most up-to-date Help in connecting to community services; parent educational educational materials regarding Williams syndrome. workshops, support groups, advocacy and parent leadership. 570 Kirts Boulevard, Suite 223 484 Main Street, 4th Floor, Suite 460 Troy, MI 48084 Worcester, MA 01608 Phone: 248-244-2229, 800-806-1871 Phone: 508-796-1411 Fax: 248-244-2230 Fax: 508-796-1455 Email: [email protected] Website: www.worcestercommunityconnections.org Website: www.williams-syndrome.org Serving: Central Serving: National Categories: ADV, CS&I, I&R Categories: SC Additional Languages: Spanish

WillPower Foundation Worcester Regional Transit Authority Provides financial support to local families and individuals with Paratransit Service disabilities when private insurance or other institutions do not. Persons with disabilities unable to use regular public transport P.O. Box 1244 are eligible to receive unrestricted curb-to-curb van/cab service. Northampton, MA 01061 60 Foster Street Phone: 413-426-4703 Worcester, MA 01608 Email: [email protected] Phone: 508-752-9283 Website: www.willpowerfoundation.org TTY: 877-743-3852 Serving: Western Fax: 508-797-5540 Categories: CS&I Website: www.therta.com Serving: Central Windrush Farm Therapeutic Equestrian, Inc. Categories: TA Instructive horseback riding programs for people with Additional Languages: Spanish disabilities. 479 Lacy Street Work, Community, Independence North Andover, MA 01845 Provides Residential, Individual and In Home Supports, Phone: 978-682-7855, 888-642-4907 Employment, Community Based Day Supports & Life Skills Email: [email protected] Day Habilitation. Website: www.windrushfarm.org 135 Beaver Street Serving: Central, Metrowest Waltham, MA 02452 Categories: REC Phone: 781-899-8220 Fax: 781-899-3828 Email: [email protected] Website: www.wearewci.org Serving: Metrowest Categories: CS&I, RES Additional Languages: Spanish

191 Work Without Limits Resources

Work Without Limits Yawkey House of Possibilities A statewide network managed by UMasss Medical School of Provides respite care, day service programs and community employers and collaborative partners that aims to increase based day service. employment among individuals with disabilities. Stonehill College 333 South Street 350 Washington Street Shrewsbury, MA 01545 Easton, MA 02357 Phone: 508-856-2710 Phone: 508-205-0555 Fax: 508-856-8543 Fax: 508-205-0557 Email: [email protected] Email: [email protected] Website: www.workwithoutlimits.org Website: www.houseofpossibilities.org Serving: Statewide Serving: Southeast Categories: TR Categories: CC, RES

Xeroderma Pigmentosum Society, Inc. Yesodot of Greater Boston Provides the XP family with support, advocacy, information and Builds Jewish community foundations for families challenged protection while promoting research. (Offers a summer camp for by disability by providing parent and sibling support, transition XP families Camp Sundown). resources, and family social events. 437 Snydertown Road 1430 Main Street Craryville, NY 12521 Waltham, MA 02451 Phone: 518-929-2174 Phone: 781-647-5327 Email: [email protected] Fax: 781-693-5072 Website: www.xps.org Email: [email protected] Serving: National Website: www.jfcsboston.org/ourprograms/ Categories: SC peoplewithdisabilities/yesodot/tabid/359/default.aspx Serving: Boston, Metrowest YAVP Peer Mentoring Project Categories: CS&I, REC, RES, TR A transitional program that provides daily structure for young adults with psychiatric disabilities. Daily structured groups to help build pre-vocational, vocational, educational and life skills. 60 Lowell Street, 2nd Floor Arlington, MA 02476 Phone: 781-643-5093 Fax: 781-643-8056 Email: [email protected] Website: www.yavp.org Serving: Metrowest Categories: TR

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 192 Resources Youth Villages

YMCA of Greater Springfield Youth Villages Offers social and recreation activities, physical therapy, and Provides intensive in-home, residential and transitional services athletic opportunities for children and adults with disabilities in various locations across the state. and their families. Website: www.youthvillages.org 275 Chestnut Street Serving: Statewide Springfield, MA 01104 Categories: CS&I, SC Phone: 413-739-6951 Website: www.springfieldy.org Arlington Serving: Western 18 Claremont Avenue Categories: REC Arlington, MA 02476-5812 Additional Languages: Spanish Phone: 781-648-6200 Fax: 781-646-9106 YOU, Inc. A private, non-profit child welfare and behavioral health Lawrence organization serving troubled and at-risk children, adolescents 439 South Union Street and families in Worcester county. Lawrence, MA 01843 81 Plantation Street Phone: 781-937-7974 Worcester, MA 01604 Fax: 978-681-9508 Phone: 508-849-5600 Fax: 508-849-5617 Plymouth Website: www.youinc.org 36 Cordage Park Circle, Suite 123 Serving: Central Plymouth, MA 02360 Categories: ADV, I&R Phone: 508-732-6500 Additional Languages: Spanish Fax: 508-732-6501

Youth Advocacy Foundation West Springfield Ensures equal opportunity in life achievement for Boston youth 30 Capital Drive, Suite A West by enforcing a child’s right to a quality education; offers technical Springfield, MA 01089 assistance, legal representation, and training to families. Phone: 413-452-3600 Fax: 413-452-3601 44 Bromfield Street, 2nd Floor Boston, MA 02108 Woburn Phone: 617-910-5840 400 West Cummings Park, Suite 5200 Fax: 617-541-0904 Woburn, MA 01801 Website: www.youthadvocacyfoundation.org Phone: 781-937-7900 Serving: Boston Fax: 781-937-7901 Categories: ADV, LGL Additional Languages: Spanish Worcester

324 Grove Street, 1st Floor Youth Engagement and Employment Worcester, MA 01605 Maintains resource information on activities, opportunities, and Phone: 508-368-4300 other fun information for children and teens, plus important Fax: 508-368-4301 information and resources for parents. 1483 Tremont Street Roxbury, MA 02120 Phone: 617-635-4202 Email: [email protected] Website: www.boston.gov/health-and-human-services/bcyf- youth-engagement-and-employment Serving: Boston Categories: REC

193 Zero to Three: National Center for Infants, Toddlers & Families Resources

Yvie’s Closet Zero to Three: National Center for Infants, Toddlers Accepts donations and offers durable medical equipment (DME) & Families to families living in Southern NH and MA. Information and resources for parents of children from birth to P.O. Box 636 age 3 years. Londonderry, NH 03053 1255 23rd Street NW, Suite 350 Phone: 603-818-1554 Washington, DC 20037 Email: [email protected] Phone: 202-638-1144 Website: www.nhfv.org/resources/yvies-closet Fax: 202-638-0851 Serving: National Website: www.zerotothree.org Categories: AT Serving: National Categories: COMM

Categories Key: CS&I Community Support & Inclusion REC Recreation/Arts ACC Accessibility and/or Travel ED Education RES Respite, Family Support & Skilled Nursing Programs ADV Advocacy HC Health Care SA Service Animals ARC Arcs HOUS Housing Assistance SC Specific Conditions and Disabilities AT Assistive Technology & Adaptive Equipment ILC Independent Living Center TR Transition to Adulthood Programs CC Childcare I&R Information and Referral Services TA Travel Assistance COMM Community Support Programs LGL Legal Services 194 EARLY INTERVENTION SERVICES – FREQUENTLY ASKED QUESTIONS

Massachusetts Early Intervention (EI) is a program for infants and toddlers, birth to the third birthday, who have a developmental delay or are at risk of a developmental delay. Early Intervention provides family-centered services to support the development of eligible children. EI helps the child: • Develop positive social-emotional skills • Gain knowledge and skills • Use appropriate behaviors to meet their needs and to develop independence EI helps families: • Know their rights • Communicate their child’s needs • Help their children develop and learn

Who is eligible for EI? Any Massachusetts family with a child under three years of age may be eligible for EI services if the child: • Is not reaching age-appropriate milestones in one or more areas of development • Is diagnosed with certain conditions that may result in a developmental delay • Has a medical or social history which may put the child at risk for a developmental delay

Who pays for EI? Most health insurances cover EI services. There are no co-payments or deductibles or other costs to the family. The Massachusetts Department of Public Health, MassHealth and private health insurance cover EI services.

How is a referral made? The process is simple. Anyone can make a referral to an Early Intervention Program. To find a certified Early Intervention program, call 800-905-TIES(8437) or visit the Family TIES website at www.massfamilyties.org. Referrals are made directly to the program. There are 60 EI programs in Massachusetts covering the whole state. A prescription or insurance referral from a health care provider is not needed.

What happens after the referral is made? An EI team will complete an evaluation to determine eligibility. The evaluation looks at all areas of a child’s development. If the child is eligible, a service plan will be created with the family. An important principle of EI is to establish a partnership with the family and caregivers of the child. The service plan outlines the early intervention outcomes and services. Services may be provided by a developmental specialist, physical therapist, speech- language pathologist, psychologist, occupational therapist, social worker, nurse, and other specialty service providers. A service coordinator from the EI program will ensure that the family’s priorities, needs and concerns are addressed.

195 Early Intervention Services – Frequently Asked Questions

Where and how are services provided? Infants and toddlers develop and learn through meaningful experiences and interactions in familiar places. EI services may be provided at home, in early care and education programs, playgroups, or within the family’s community. Children benefit the most when the family and caregivers take part in visit activities.

The Early Intervention process from the initial contact through transition out of the program, is collaborative, individualized and reflects the child’s and family’s priorities, learning styles, culture and community.

196 RECURSOS OFERECIDOS EM PORTUGUÊS

Advocates / MetroWest Autism Alliance Advocates ajudam pessoas que enfrentam problemas de desenvolvimento, saúde mental ou outros desafios da vida. Nós nos associamos com indivíduos e famílias para moldar soluções criativas para até mesmo os maiores obstáculos. Nós fornecemos uma ampla gama de serviços para pessoas que enfrentam desafios de vida, como vícios, envelhecimento, autismo, lesões cerebrais, deficiências intelectuais e desafios de saúde mental. No Advocates, milhares de indivíduos e famílias que vivem em Massachusetts encontram os apoios que eles precisam para levar vidas saudáveis, produtivas e gratificantes. Advocates - Main Office Autism Alliance Of MetroWest 1881 Worcester Road 1881 Worcester Road (Route 9 West) Suite 100A Framingham, MA 01701 Framingham, MA 01701 Tel: (508) 628-6300 Tel: (508) 652-9900

Website: https://www.advocates.org Site em Português: https://www.advocates.org/pt/sitemap

Apoio à Pais e Mães Jovens Este programa é estruturado para oferecer serviços domiciliares para grávidas e pais adolescentes com menos de 20 anos de idade morando na região metropolitana de New Bedford e Fall River, provendo apoio e informações sobre gravidez e maternidade/paternidade. Os serviços são voltados para adolescentes de alto-risco que estão desconectados dos serviços necessários. Oferece uma equipe bilingüe e bicultural em Português e Espanhol. Child & Family Services, Inc. 66 Troy Street Fall River, MA 02720 Tel: 508-676-5708 Website: https://child-familyservices.org/young-parent-support-yps/

Associação Caboverdiana de Brockton, Inc. E uma organização comunitária. Tem como a meta principal de assistir, promover, e server os membros de comunidade Caboverdiana e outros povos de Brockton e arredores incluindo crianças e idosos. Oferece educação, de saude, emprego, serviços de recomendações, serviços consular. 575 North Montello Street, P.O. Box 1875 Brockton, MA 02303 Tel: 508-559-0056 FX: 508-559-9337 Website: www.cvassociation.org

197 Recursos oferecidos em Português

Health Alliance of Cambridge A Cambridge Health Alliance é um sistema de saúde comunitária formada por três hospitais, mais de vinte clínicas de saúde e vários programas comunitários, localizados ao norte de Boston, nas cidades de Cambridge, Somerville, Everett, e Revere. Diagnósticos e tratamento para a maior parte das condições de saúde são oferecidos a pessoas de todas as idades Vários funcionários do corpo médico, de enfermagem e assistentes falam mais de um idioma, além disso, intérpretes estão disponíveis, gratuitamente. A maior parte dos médicos da Cambridge Health Alliance aceita todos os grandes planos de seguro de saúde. Se você não tiver seguro médico existem vários programas disponíveis que podem ajudar. De acordo com a sua renda, você pode qualificar para o MassHealth, o Network Health, ou o Free Care. Os funcionários da Assistência Financeira da Cambridge Health Alliance pode lhe explicar os programas, fornecer os formulários de solicitação e ajudar a preenchê-los. Atendimento de emergência 24 horas ao dia são encontrados no Cambridge Hospital, Somerville Hospital, e no Whidden Hospital. 1493 Cambridge Street Cambridge, MA 02139 Central Telefônica: 617-665-2300 Informações sobre os serviços de intérpretes: 617‐665‐1000

MAPS - Aliança de falantes de Português em Massachusetts A MAPS tem oferecido uma extensa variedade de serviços sociais e de saúde para as comunidades de língua portuguesa desde 1970. A missão da MAPS é de melhorar a vida dos indivíduos e famílias falantes de Português moradores de Massachusetts e ajudá-los a tornar-se colaboradores, participantes ativos na sociedade americana enquanto mantenedores de uma forte identidade étnica e um senso de comunidade. A MAPS trabalha com e para a comunidade Brasileira, Cabo Verdiana, Portuguesa e outras comunidades da lingua Portuguesa. Os serviços oferecidos são: assitência a cidadania, violência doméstica/abuso sexual, educação de alcoól para motoristas, serviços para terceira idade, emprego e desenvolvimento profissional, serviços de apoio familiar, HIV/doenças sexualmente transmissíveis, serviços de integração de imigrantes, programa educativo de intervenção em agressores, traduções/notario público. Website em Português: http://www.maps-inc.org/pt-pt/ A MAPS tem escritórios em cinco comunidades de Massachusetts:

Brighton Dorchester Lowell 697 Cambridge Street, Suite 203 1 Stoughton Street 11 Mill Street Brighton, MA 02135 Dorchester, MA 02125 Lowell, MA 01852 Tel: 617-787-0557, 800-232-7725 Tel: 617-825-5897 Tel: 978-970-1250 TTY: 617-787-0557 TTY: 617-825-5897 TTY: 978-970-1250 FX: 617-779-9586 FX: 617-825-4167 FX: 978-970-0843

Cambridge Framingham Somerville 1046 Cambridge Street 24 Union Avenue, Suites 8-10 92 Union Square Cambridge, MA 02139 Framingham, MA 01702 Somerville, MA 02143 Tel: 617-864-7600 Tel: 508-872-2652 (English) Tel: 617-764-2091 TTY: 617-864-7600 508-397-9051 (Portuguese) FX: 617-764-0111 FX: 617-864-7621 508-259-9889 (Spanish)

198 Recursos oferecidos em Português

New England Community Center New England Centro Comunitário é uma organização sem fins lucrativos, com serviços voltados para o desenvolvimento sócio-educativa, a defesa cultural e melhoria integral na qualidade da vida humana. A missão do nosso Centro Comunitário é oferecer programas que atendam às necessidades da comunidade Brasileira, melhorando a qualidade de vida e promover o envolvimento da comunidade através do fornecimento de recreação, atividades culturais, educação, saúde, bem-estar e actividades de fitness, bem como a Justiça Social Advocacia. 810 Washington St. # 3 Stoughton, MA 02072 Tel: (781) 436-3018 Website: http://newenglandcommunitycenter.org

Lista de organizações que oferecem serviços de apoio familiar comunitária e domiciliar com terapeutas que falam Português: Arbour Counseling Services, Wocester 617-782-0505 Wayside Youth & Family Support, Milford 508-745-6294, Framingham 508-630-5907 Eliot Children Youth & Family Center - Family Support & Training, Malden 781-395-0632 North Suffolk Mental Health Association - Family Support & Training, Revere 617-647-0503 pager Brockton Area Multi-Services, Inc. - Family Support & Training, Brockton 508-587-2579x30 Children’s Friend & Family Services - Family Support & Training, Lynn 781-593-7676 Riverside Community Care, Needham, MA 02494, 781-752-6857 intake

199 ORGANIZACIONES QUE PROVEEN SERVICIOS PARA FAMILIAS QUE HABLAN ESPAÑOL

Caminos • Ofrece una variedad de servicios, incluyendo traducción e interpretación. • Provee información a las familias sobre vivienda, salud, educación y empleo. • Conecta familias a otras organizaciones para asistencia, cuando sea apropiado. • Aboga por las familias que hablan español. Concilio hispano de Fitchburg (Fitchburg Spanish Council) 24 Third Street Fitchburg, MA 01420 Tel: 978-345-1882

Casa Latina, Inc. Casa Latina es la única organización dirigida por latinos en el condado de Hampshire. Nuestra misión es promover la autosuficiencia y el sentido de comunidad entre los latinos locales para desarrollar programas educativos, de acceso y de acción basados en las capacidades y necesidades de la comunidad. 140 Pine Street, #6 Florence, MA 01062 Tel: 413-586-1569 Fax: 413-586-1597 Website: www.casalatinainc.org

CENTRO • Ofrece una variedad de servicios, incluyendo traducción e interpretación. • Provee información sobre los servicios disponibles para las familias que hablan español. • Conecta familias a otras organizaciones para los servicios, cuando es apropiado. • Dirige “Madres Latinas Unidas,” un grupo de apoyo para los padres de niños con necesidades especiales.

11 Sycamore Street Centro de apoyo familiar, North Central Worcester, MA 01608 18 Fairmount Street Tel: 508-798-1900 Fitchburg, MA 01420 Website: www.centroinc.org Tel: 978-343-5836

Centro de Accesso Latino • Ofrece una variedad de servicios, incluyendo los servicios de intérprete. • Provee información sobre los programas y servicios que existen en su comunidad para la comunidad latina o hispana. • Conecta familias a otras organizaciones para asistencia cuando sea apropiado. • Ayuda a las familias latinas con servicios legales sobre inmigración, SSI, vivienda y otros problemas. 1162 Acushnet Avenue New Bedford, MA 02746 Tel: 508-999-9946

200 Organizaciones que proveen servicios para familias que hablan español

El Centro del Cardenal • Ofrece una variedad de servicios, incluyendo traducción e interpretación. • Brinda información sobre los servicios disponibles para las familias que hablan español. • Refiere familias a otras organizaciones para asistencia cuando sea apropiado. 76 Union Park Street Boston, MA 02118 Tel: 617-542-9292 Website: www.elcentrodelcardenal.org

Centro Hispanoamericano • Ofrece una variedad de servicios, incluyendo asesoría y servicios de traducción. • Conecta familias a otras organizaciones para servicios que ellos no ofrecen. 112 Spruce Street Leominster, MA 01453 Tel: 978-534-3145

Centro Presente • Ofrece una variedad de servicios, incluyendo traducción e interpretación. • Administra una división de servicio social que puede ayudar a las familias con diferentes problemas, como conseguir vivienda y escribir cartas oficiales, tal como las cartas que otorgan poder. • Proporciona servicios legales de inmigración para ayudar con las peticiones de asilo y con solicitudes para renovar permisos de trabajo. 12 Bennington Street, Suite 202 East Boston, MA 02128 Phone: 857-256-2981 Fax: 857-256-2958 Email: [email protected] Website: www.cpresente.org

La Alianza Hispana • Ofrece una variedad de servicios, incluyendo la asesoría. • Provee información sobre los servicios disponibles para las familias que hablan español. • Conecta familias a otras organizaciones para servicios cuando sea apropiado. • Administra un programa educativo, “Acceso a su salud,” para ayudar a las gente a entender el cuidado médico administrado. 1000 Massachusetts Avenue, #101 Boston, MA 02118 Tel: 617-427-7175 Email: [email protected] Website: www.laalianza.org

201 STATE AGENCIES Massachusetts agencies that oversee various services for individuals with disabilities.

Massachusetts Commission for the Blind (MCB) Massachusetts Commission for the Deaf and Provides specialized social and rehabilitative services, as Hard of Hearing (MCDHH) well as medical and financial assistance, to blind individuals. Provides services for individuals who are deaf or hard of Translation services are available in all languages. hearing; including interpreters, case management and Website: www.mass.gov/mcb technology services. 600 Washington Street Boston Boston, MA 02111 600 Washington Street Phone: 617-740-1600, 800-882-1155 Boston, MA 02111 TTY: 617-740-1700, 800-530-7570 Phone: 617-727-5550, 800-392-6450 Video Phone: 617-326-7546 TDD: 800-392-6556 Fax: 617-740-1810 Fax: 617-626-7685 Email: [email protected] Website: www.mass.gov/eohhs/gov/departments/mcdhh New Bedford 888 Purchase Street, Suite 203 Regional Offices New Bedford, MA 02740 Phone: 508-993-6140, 800-989-4411 Pittsfield TTY: 800-392-6556 160 North Street, Suite 201 Fax: 508-993-0320 Pittsfield, MA 01201 Phone: 413-788-6427 Springfield Video Phone: 413-347-4094 436 Dwight Street, Room 109 Fax: 413-448-2466 Springfield, MA 01103 Phone: 413-781-1290, 800-332-2772 Plymouth TTY: 800-332-2772 61 Industrial Park Road Fax: 413-746-8570 Plymouth, MA 02360 Phone: 617-740-1600, 800-882-1155 Worcester TTY: 617-740-1700, 800-530-7570 390 Main Street, Suite 620 Fax: 508-830-9433, Attn: MCDHH Worcester, MA 01608 Phone: 508-754-1148, 800-263-6944 Springfield TTY: 508-754-1148 State Office Building Fax: 508-752-7832 436 Dwight Street, Suite 204 Springfield, MA 01103 Phone/TTY: 413-788-6427 Video Phone: 413-301-0915 Fax: 413-731-5177

Westborough 167 Lyman Street Westborough, MA 01581 Phone: 413-788-6427 (Voice/TTY) Video Phone: 508-762-1124 Fax: 508-616-3594

202 State Agencies

Massachusetts Commission against Discrimination Metro Region MCAD is the state’s chief civil rights agency. The Commission 411 Waverly Oaks Road, Suite 304 works to eliminate discrimination on a variety of bases and Waltham, MA 02452 areas, and strives to advance the civil rights of the people. Phone: 781-314-7500 Areas of discrimination include employment, education, housing, credit lenders, mortgages, public accommodations or Northeast Region establishments. Regional offices in New Bedford, Springfield Hogan Regional Center and Worcester. 450 Maple Street One Ashburton Place, Room 601 Danvers, MA 01923 Boston, MA 02108 Phone: 978-774-5000 Phone: 617-994-6000 TTY: 617-994-6196 Southeast Region Fax: 617-994-6024 68 North Main Street Email: [email protected] Carver, MA 02330 Website: www.mass.gov/mcad Phone: 508-866-5000

Massachusetts Department of Children Massachusetts DDS Family Support Centers and Families (DCF) Each DDS area has at least one Family Support Center. Child protection agency responsible for the enforcement of child Additionally, there are special programs for families of children protection laws. Offers services for families who are at risk of and youth with complex health needs, autism spectrum disorder abuse or neglect, including foster care, adoption, adolescent and culturally and linguistically diverse populations. For more services, domestic violence, and Collaborative Assessment information about these programs, contact the central office or Program. Regional and area offices list available on website. your DDS area office or visit www.mass.gov\dds. 600 Washington Street, 6th Floor DDS Family Support Centers across the state act as a hub for Boston, MA 02111 a wide range of general family support services including Phone: 617-748-2000, 800-792-5200 information and referral, parent networking and trainings. DCF Ombudsman: 617-748-2444 Family Support Centers may provide the following services and TTY: 617-261-7440 supports and more for families of children and adults who are Fax: 617-261-7435 eligible for DDS services: Website: www.mass.gov/dcf • funding for respite care • camp scholarships Massachusetts Department of Developmental • recreational and social opportunities Services (DDS) • assistance with job placement The Department of Developmental Services (DDS) provides • community, residential and day supports funding for family support programs and services across the • transportation state designed to provide information, assistance, and an array of supportive services to families with children and adults with disabilities who are eligible for DDS services. Family Support

Central Office Haitian American Public Health Initiatives 500 Harrison Avenue 1603 Blue Hill Avenue Boston, MA 02118 Mattapan, MA 02126 Phone: 617-727-5608, 888-367-4435 Phone: 617-298-8076 TTY: 617-624-7783 Website: www.HAPHI.org Fax: 617-614-7577 Email: [email protected] Scan360 Family Center Website: www.mass.gov/orgs/department-of- 11 Wilbraham Road developmental-services Springfield, MA 01109 Phone: 413-731-3110 Central Western Region 140 High Street, Suite 301 TTY: 413-731-3116 Springfield, MA 01105 Fax: 413-731-3111 Phone: 413-205-0800, 800-328-3123 203 State Agencies

Autism Spectrum Division Family Autism Center 500 Harrison Avenue 789 Clapboardtree Street Boston, MA 02118 Westwood, MA 02090 Phone: 617-727-5608 Phone: 781-762-4001 Ext: 310 Fax: 617-727-9842 Fax: 781-461-5950 Email: [email protected] Massachusetts DDS Autism Support Centers Website: www.arcsouthnorfolk.org/family-autism-center.html Provides people of all ages who are eligible for DDS wide array Serving: Metrowest of services. Northeast Arc Autism Support Center Autism Alliance of MetroWest 6 Southside Road 1881 Worcester Road Danvers, MA 01923 Framingham, MA 01701 Phone: 978-777-9135 Ext: 2301, 800-728-8576 Phone: 508-652-9900 Fax: 978-762-3980 Email: [email protected] Website: www. Email: [email protected] autismalliance.org Serving: Metrowest Website: www.ne-arcautismsupportcenter.org Serving: Northeast Autism Resource Center of Central Massachusetts Additional Languages: Spanish 71 Sterling Street West Boylston, MA 01583 TILL: Autism Support Center Phone: 508-835-4278 20 Eastbrook Road, Suite 201 Fax: 508-835-3723 Dedham, MA 02026 E-mail: [email protected] Phone: 781-302-4600 Website: www.autismresourcecentral.org Website: www.tillinc.org/autism_training.html Serving: Central Massachusetts Serving: Boston, Metrowest

Community Autism Resources, Inc. Asperger Syndrome Specific 33 James Reynolds Road, Unit C Swansea, MA 02777 AANE: Asperger/Autism Network Phone: 508-379-0371, 800-588-9239 51 Water Street, Suite 206 Fax: 508-379-0269 Watertown, MA 02472 Email: [email protected] Phone: 617-393-3824 Website: www.community-autism-resources.com Fax: 617-393-3827 Email: [email protected] Autism Connections Website: www.aane.org 116 Pleasant Street, Suite 366 Serving: Statewide Easthampton, MA 01027 Additional Languages: Spanish Phone: 413-529-2428, 800-892-7003 Fax: 413-529-2567 Massachusetts DDS Complex Health Needs Website: www.autismconnectionsma.org Serving: Western Family Bridges: Multicultural Community Services Additional Languages: Spanish 3 State Street Westfield, MA. 01085 Berkshire Office Phone: 413-562-4885 Ext: 22 100 North Street, Suite, 322 Contact: Arlene Lockenwitz Pittsfield, MA 01201 Phone: 413-443-4780, Ext: 15 Family Partnerships of the Southeast: BAMSI Fax: 413-443-6581 155 Webster Street, Unit D Email: [email protected] Hanover, MA 02339 Phone: 781-878-4074 Contact: Michael Lonergan, Director of Family Support

204 State Agencies

Family Partnerships of the Northeast: Lifelinks, Inc. Massachusetts Department of Mental Health (DMH) 285 Mill Road Assures and provides access to services and suports to meet the Chelmsford, MA 01824 mental health needs of individuals of all ages, enabling them to Phone: 978-349-3039 Ext: 3049 live, work, and participate in their communities. Contact: Eileen Lee Central Office Email: [email protected] 25 Staniford Street Boston, MA 02114 Home First Program: HMEA, Inc. Phone: 617-626-8000 TTY: 617-727-9842 8 Forge Park Fax: 617-626-8131 East Franklin, MA 02038 Email: [email protected] Phone: 508-298-1100 Website: www.mass.gov/orgs/massachusetts-department- Contact: Jeanne Clapper of-mental-health Email: [email protected] Central Shriver Clinical Services Family Support Office 361 Plantation Street, 1st Floor 93 McCracken Road Worcester, MA 01605 Millbury, MA 01527 Phone: 774-420-3140 Phone: 508-831-0999 TTY: 774-420-3155 Fax: 774-420-3165 Contact: Tricia Luce, Director of Family Support Metro Boston Massachusetts Department of Early Education 85 East Newton Street and Care (EEC) Boston, MA 02118 Licenses child care facilities, including residential and placement Phone: 617-626-9200 programs. Promotes the inclusion of children with special needs TTY: 617-626-9257 and disabilities in a variety of child care settings and oversees Fax: 617-626-9216 voucher programs; oversees Child care Resources and Referral Networks and vouchers for child care. Northeast Suburban: Tewksbury 51 Sleeper Street, 4th Floor P.O. Box 387 Boston, MA 02210 Tewksbury, MA 01876 Phone: 617-988-6600 Phone: 978-863-5000 TTY: 800-439-2370 TTY: 978-640-1193 Fax: 978-863-5091 Fax: 617-988-2451

Website: www.mass.gov/eec Northeast-Suburban: Westborough Hadley Building 167 Lyman Street Massachusetts Department of Elementary and Westborough, MA 01581 Secondary Education (DESE) Phone: 508-616-3500 Oversees the public education of all children in Massachusetts. TTY: 508-616-3533 The department is responsible for ensuring that all the Fax: 508-616-3599 provisions of Massachusetts special education law are met. Helps to implement policies by providing training and technical Southeast: Brockton assistance to school districts and parents, reviewing and 165 Quincy Street approving local school districts’ programs and plans. Provides Brockton, MA 02302 mediation and due process hearings, and establishes standards Phone: 508-897-2000 and qualifications for service providers. TTY: 508-897-2102 75 Pleasant Street Fax: 508-897-2024 Malden, MA 02148 Phone: 781-338-3000 Western 1 Prince Street TTY: 800-439-2370 Northampton, MA 01061 Website: www.doe.mass.edu Phone: 413-587-6200 TTY: 413-586-6592 Fax: 413-587-6203

205 State Agencies

Massachusetts Department of Public Health (DPH) DPH promotes the health and well-being of all residents by ensuring access to high-quality public health and healthcare services, and by focusing on prevention, wellness and health equity. The Division for Children & Youth with Special Health Needs within the Bureau of Family Health and Nutrition plans, implements, and evaluates public health programs for children and youth with special health care needs and their families. Division programs work to build a comprehensive, coordinated, community-based, family- centered system of care for CYSHCN and their families. If you would like to learn about more of the programs that the DPH offers besides those listed here, please call the main number: 617-624-6060. Website: www.mass.gov/dph/specialhealthneeds

Bureau of Family Health & Nutrition 250 Washington Street, 5th Floor Boston, MA 02108 Phone: 617-624-6060, 800-882-1435 TTY: 617-624-5992 Fax: 617-624-5990

Office of Family Initiatives Oversight and leadership of DPH initiatives to ensure family involvement in and a family-centered focus to all Division for Children & Youth with Special Health Needs and Early Intervention programs. Families of CYSHCN are supported to participate in policy and program development, implementation, and evaluation. Major projects include Family TIES of Massachusetts and Early Intervention Parent Leadership Project. 250 Washington Street, 5th Floor Boston, MA 02108 Phone: 617-624-5979 TTY: 617-624-5992 Fax: 617-624-5990 Contact: Suzanne Gottlieb Email: [email protected] Fax: 617-624-5990

The following is a list of selected resources available through the Massachusetts Department of Public Health, Bureau of Family Health and Nutrition.

Care Coordination Services Catastrophic Illness in Children Relief Fund Families whose child has a special health care need and are A fund created by the Massachusetts legislature to provide experiencing difficulty obtaining, maintaining or coordinating financial assistance to families who are MA residents, for medical, social or educational services may be eligible for expenses incurred for the medical and related needs of children DPH Care Coordination services. Care Coordinators work with under age 22 which are not otherwise covered by a private families to assist in coordinating services from public and private insurer, federal or state healthcare assistance or any other agencies to meet the special needs of their children. Services are financial resource. CICRF is the payer of last resort, after the free, voluntary and confidential. Care Coordinators are housed in family makes all reasonable attempts to pursue other funding each DPH regional office. sources. Expenses must exceed 10% of the family’s gross annual 250 Washington Street, 5th Floor income up to $100,000 and 15% of gross family income in excess Boston, MA 02108 of $100,000. Phone: 800-882-1435, 617-624-6060 250 Washington Street, 5th Floor TTY: 617-624-5992 Boston, MA 02108 Fax: 617-624-5990 Phone: 800-882-1435, 617-624-6060 Website: www.mass.gov/eohhs/gov/departments/dph/ TTY: 617-624-5992 programs/family-health/care-coordination.html Fax: 617-624-5990 Website: www.mass.gov/cicrf Additional Languages: Spanish

206 State Agencies

Community Support Line: 800-882-1435 Early Intervention Parent Leadership Project (EIPLP) The Dept. of Public Health’s toll-free statewide Community EIPLP is a parent-driven project created to support families Support Line offers information, technical assistance and whose children receive EI services. The Project works to develop referral for families of children with special health needs and an informed family constituency, promote the development their providers. Experienced Community Resource Specialists of lifelong advocacy and leadership skills and support the EI are available to assist families Monday through Friday except system to become increasingly family-centered. Regional parent holidays-from 9:00 a.m. until 5:00 p.m. Resource Specialists coordinators provide training, mentoring, and support that assists answer questions and provide information and referral to a families to take on multiple partnering roles within the EI system. broad range of programs including: Public benefits information Phone: 800-586-1157 and eligibility, Catastrophic Illness in Children Relief Fund, TTY: 800-769-9991 Care Coordination services, family-to-family supports, other Website: www.eiplp.org programs within the Department of Public Health, other agencies, and community-based programs that may be able to provide assistance. Early Intervention Partnerships Program (EIPP) The Early Intervention Partnerships Program (EIPP) within the 250 Washington Street, 5th Floor Division for Pregnancy, Infancy and Early Childhood (PIE) is Boston, MA 02108 a home visiting program that serves women with identified Phone: 800-882-1435, 617-624-6060 maternal or infant risk factors across the state. The purpose TTY: 617-624-5992 of EIPP is early identification of maternal and infant risk; and Fax: 617-624-5990 linkage of families to services to prevent or reduce poor health Website: www.mass.gov/eohhs/gov/departments/dph/ and/or developmental outcomes. EIPP is coordinated by an programs/family-health/community-support-line.html existing Early Intervention Program. There are seven sites in Additional Languages: Spanish Massachusetts that serve families during the perinatal period. They offer the necessary supports to promote maternal health Early Intervention Services (EI) and optimal post-pregnancy outcomes as well as a focus on Early Intervention in Massachusetts is a statewide, integrated infant growth and development through the first year of life. developmental service available to the families of children from 250 Washington Street, 5th Floor birth up to the third birthday, for whom there are developmental Boston, MA 02108 concerns due to identified disabilities, or whose typical Phone: 617-624-5910, 800-882-1435 development is at risk due to certain birth or environmental TTY: 617-624-5992 circumstances. Fax: 617-624-5990 Early Intervention programs provide comprehensive, integrated Website: www.mass.gov/eohhs/gov/departments/dph/ services, utilizing a family-centered approach to facilitate the programs/family-health/early-intervention-partnerships- developmental progress of eligible children. Early Intervention program services are designed to meet the developmental needs of each child and the needs of the family related to enhancing the child’s development. 250 Washington Street, 5th Floor Boston, MA 02108 Phone: 617-624-5975, 800-882-1435 TTY: 617-624-5992 Fax: 617-624-5990 Contact: Patti Fougere, Assistant Director, Early Intervention, Bureau of Family Health & Nutrition Email: [email protected] Website: www.mass.gov/dph/earlyintervention

207 State Agencies

Regional Consultation Program (RCP) Southeast Regional Consultation Program The Regional Consultation Programs provide consultation, Schwartz Center for Children training and/or direct services to young children with complex 1 Posa Place medical/health needs, enrolled in EI or other community Dartmouth, MA 02747 programs and their families. RCP’s primary goals are to: Phone: 508-742-6443 • Provide consultation to children and families and community Fax: 508-996-3397 programs where young children typically access services Contact: Sonia Amaral, Coordinator • Assist EI programs to meet the complex medical needs of Email: [email protected] eligible children • Build community capacity by expanding skills and Western Regional Consultation Program knowledge of community providers to ensure the inclusion Thom Springfield Infant Toddler Services of young children with complex care requirements, and RCP 1506A Allen Street, Bicentennial Plaza services are provided regionally in conjunction with early Springfield, MA 01118 intervention programs Phone: 413-783-5500 Contact the RCP that serves your EI region for more information. Fax: 413-782-7612 Contact: Emily Sullivan, Coordinator, Ext: 116 Boston Regional Consultation Program Email: [email protected] Thom Boston Metro Early Intervention Parent Coordinator: Karen Klimek, Ext: 127 555 Amory Street Email: [email protected] Jamaica Plain, MA 02130 Phone: 617-383-6207 Family TIES of Massachusetts Fax: 617-383-6520 Please see information at the front of the book. Contact: Lea Brosnan Email: [email protected] Growth and Nutrition Program Central Regional Consultation Program The Growth and Nutrition Program (GNP) under the Nutrition Criterion Child Enrichment Division in the Bureau of Family Health & Nutrition (BFHN) 345 Fortune Boulevard is a 30 year old Program established by the Massachusetts Milford, MA 01757 Legislature to address the problem of under-nutrition among Phone: 508-473-3422 Ext: 322 young children in the Commonwealth. There are many causes of Fax: 508-473-0994 growth deficiency including medical, developmental, nutritional, Contact: Jodi Russell, Coordinator and psychological reasons and the most effective treatment Email: [email protected] involves a multidisciplinary team of experts. All Massachusetts children from birth to six years of age with declining growth can Metrowest Regional Consultation Program be referred for evaluation and treatment by their primary care South Shore Mental Health providers to these clinics, regardless of the family’s income. 500 Victory Road 250 Washington Street, 6th Floor Quincy, MA 02171 Boston, MA 02108 Phone: 617-774-1048 Phone: 617-624-6149 Fax: 617-328-0461 TTY: 617-624-5992 Contact: Kathleen Haran-Kovacs, Coordinator Fax: 617-624-6179 Email: [email protected] Contact: Julie Schaeffer Email: [email protected]. Northeast Regional Consultation Program Professional Center for Child Development Website: www.mass.gov/dph/growthnutrition 32 Osgood Street Andover, MA 01810 Phone: 978-475-3806 Fax: 978-475-6288 Contact: Rachel Daniels, Director, Ext: 242 Email: [email protected] Contact: Christy Murray, Ext: 243 Email: [email protected]

208 State Agencies

Massachusetts Community AIDS Resource Greater Boston/Northeast/Southeast Regions Enhancement (MASSCARE) Children’s Hospital Boston Project School Care MassCARE is a statewide program that serves women, infants, 300 Longwood Avenue children and youth living with HIV and their families. Medical Boston, MA 02115 case management and family support services are available at 5 Phone: 857-218-4333 sites statewide. The Consumer Program for Women, Youth, and Fax: 617-730-0049 Families offers training and networking opportunities for adults Contact: Stephanie Porter, MSN, RN and adolescents. Email: [email protected] 250 Washington Street, 5th Floor Phone: 857-218-4331 Boston, MA 02108 Fax: 617-730-0049 Phone: 617-994-9819 Contact: Kimberly Loring, RN, BSN, MEd TTY: 617-624-5992 Email: [email protected] Fax: 617-624-5990 Contact: Sandra Broughton Western Region Email: [email protected] Baystate Medical Center Children’s Hospital Website: www.mass.gov/dph/masscare 759 Chestnut Street Springfield, MA 01199 Medical Review Team (MRT) Phone: 413-794-9591 Reviews children and youth, ages birth to 22 years, for Fax: 413-794-3207 short and long-term admission to pediatric skilled nursing Contact: Carrie Somppi facilities in Massachusetts, based on both medical and Email: [email protected] developmental criteria. Pediatric Palliative Care Network Northeast Regional Health Office Serves children under age 19 with a wide range of Tewksbury Hospital life-limiting diagnoses and their families. Services are to 365 East Street, Tewksbury, MA 01876 improve the quality of life of the child and family by meeting Phone: 978-851-7261, Ext: 4022, 800-882-1435 the physical, emotional and spiritual needs experienced during TTY: 978-851-3829 the course of illness, death and bereavement. Services include, Fax: 978-640-1027 but are not limited to, outreach to referring providers; intake Email: [email protected] and assessment; case management; pain and symptom Website: www.mass.gov/eohhs/gov/departments/dph/ management consultation; social services and counseling; programs/family-health/medical-review-team.html respite; spiritual care; advanced care planning; volunteer support services; bereavement services; collaborative care planning with Massachusetts Technology Assistance Resource primary care providers; and coordination of care with other providers. The expectation is that most services are provided in Team (MASSTART) the child’s home. Provides nursing consultation with parents, schools, and health care providers to ensure health and safety of children with 250 Washington Street, 5th Floor special health needs in schools. Boston, MA 02108 Phone: 800-882-1435, 617-624-6060 Central Region Email: [email protected] University of Massachusetts Medical Center Pediatric TTY: 617-624-5992 Pulmonary & Cystic Fibrosis Center Fax: 617-624-5990 55 Lake Avenue North Website: www.mass.gov/ppcn Worcester, MA 01655 Phone: 508-856-4155 Fax: 508-856-2609 Contact: Dorothy Page, FNP, MSN Email: [email protected]

209 State Agencies

SSI & Public Benefits Information Women, Infants and Children Trainings on public benefit programs SSI, CommonHealth, and Nutrition Program (WIC) Kaileigh Mulligan-are provided to state and local agencies, The Massachusetts Women, Infants and Children WIC-Nutrition health care and human service providers, and parent groups/ Program is a health and nutrition program that provides organizations upon request. nutrition education and counseling, education and counseling, 250 Washington Street, 5th Floor specific nutritious foods, and referral to health care for low to Boston, MA 02108 moderate income pregnant, breast feeding or non-breastfeeding Phone: 617-624-5961, 800-882-1435 women, infants and children under five. WIC also provides breastfeeding support, immunization screening and referral to TTY: 617-624-5992 other health and human services, and collaborates with the U.S. Fax: 617-624-5990 Department of Agriculture to distribute coupons for fresh fruits Website: www.mass.gov/eohhs/gov/departments/dph/ and vegetables, redeemable at Farmers’ Markets. Massachusetts programs/family-health/ssi-and-public-benefits-training-and- WIC has 35 local programs across the state, with over 120 sites. tech-assistance.html Eligible families are able to enroll and receive WIC services the same day. Universal Newborn Hearing Screening Program 250 Washington Street, 6th Floor Babies born in Massachusetts are screened for hearing loss Boston, MA 02108 before they leave the hospital. Our program contacts families Phone: 800-WIC-1007 (942-1007) whose infant did not pass and those infants that may have been missed. We help make follow-up appointments for further TTY: 617-624-5992 testing and are available to pay for the screening and the Fax: 617-624-6179 hearing test after any available insurance. Families whose infant Email: [email protected] has a hearing loss also receive parent-to-parent support and Website: https://www.mass.gov/women-infants-children- help with enrollment into Early Intervention. The Program also wic-nutrition-program provides a variety of networking and support opportunities for Additional Languages: French, Haitian Kreyol, families of older children with hearing loss. Portuguese,Spanish 250 Washington Street, 5th Floor Boston, MA 02108 Phone: 800-882-1435 TTY: 617-624-5992 Fax: 617-994-9822 Website: www.mass.gov/dph/newbornhearingscreening Additional languages: Spanish

Hearing Aid Program for Children Provides financial assistance for the purchase of a Hearing Aid Package to families’ of children and youth under age 21 who meet certain financial eligibility criteria. Families must submit an application to determine eligibility. All available sources of funding for hearing aids, including health insurance, must be used prior to billing the Hearing Aid Program. Note: Financial guidelines and eligibility are subject to change based on availability of funds. 250 Washington Street, 5th Floor Boston, MA 02108 Phone: 800-882-1435, 617-624-6060 TTY: 617-624-5992 Fax: 617-624-5990

210 State Agencies

Massachusetts Department of Transitional Massachusetts Executive Office for Elder Affairs Assistance (DTA) Promotes the dignity, independence and rights of Massachusetts’ Provides food assistance, job assistance, cash assistance, elders, and supports their families, through advocacy and the emergency shelter, and domestic violence programs for the development and management of programs and services. Commonwealth. Regional offices listed on website. Assistance Publishes a statewide guide & directory for Grandparents As Line: 877-382-2363. Parents. Elder Abuse or Neglect Hotline: 800-922-2275 V/TDD). 600 Washington Street Prescription Advantage: 800-243-4636, TTY: 877-610-0241, Senior Legal Helpline: 866-778-0939. Boston, MA 02111 Phone: 617-348-8400, 800-249-2007, 800-445-6604 One Ashburton Place, 5th Floor Boston, MA 02108 TTY: 800-449-0000 Phone: 617-727-7750, 800-243-4636 Fax: 617-348-5479 TDD/TTY: 800-872-0166 Website: www.mass.gov/dta Fax: 617-727-9368 Email: [email protected] Massachusetts Developmental Disabilities Website: www.mass.gov/elders Council (MDDC) Promotes opportunities for people with developmental Massachusetts Executive Office of Health and disabilities and their families to enhance independence, Human Services (EOHHS) productivity, integration, and inclusion. Offers consumer Oversees all Health and Human Services state agencies; hosts scholarships for disability-related conferences. Related Virtual Gateway, a virtual on-line catalog of consumer services; publications and videos are available for review, some and works with United Way to provide MASS 2-1-1, a statewide available in Spanish. resource locator service www.mass211.org). 1150 Hancock Street, Second Floor, Suite 201 One Ashburton Place Quincy, MA 02169 Boston, MA 02108 Phone: 617-770-7676 Phone: 617-573-1600 TTY: 617-770-9499 Website: www.mass.gov/eohhs Fax: 617-770-1987 Website: www.mass.gov/mddc

Massachusetts Disabled Persons Protection Commission (DPPC) Investigates and oversees allegations of abuse by caretakers to persons with disabilities ages 18-59 in state care and private settings. 300 Granite Street, Suite 404 Braintree, MA 02184 Phone: 617-727-6465 V/TTY: 888-822-0350 Fax: 617-727-6469 Website: www.mass.gov/dppc

211 State Agencies

Massachusetts Families Organizing for Change Massachusetts Office on Disability (MOD) (MFOFC) Advocacy, information and referral service for individuals with This organization provides leadership training and works disabilities. Works to assure the advancement of legal rights and to inform and educate individuals, families and community for the promotion of maximum opportunities, supportive services, members about advocacy, services, and local, state and federal accommodations and accessibility in a manner which fosters resources for individuals with disabilities. Regional chapters dignity and self determination. MOD is the Commonwealth’s throughout the state. Americans with Disabilities Act Coordinating Agency. Website: www.mfofc.org McCormack Building One Ashburton Place, Room 1305 Statewide Boston, MA 02108 P.O. Box 421 Phone: 617-727-7440, 800-322-2020 Salem, MA 01970 TTY: 800-322-2020 Phone: 774-855-6001 Email: [email protected] Fax: 617-727-0965 Website: www.mass.gov/mod Central Celia E. Brown Massachusetts Rehabilitation Commission (MRC) Phone: 508-918-4059 Provides transition to adulthood services, including vocational Fax: 508-520-6054 counseling, training and support for adults with disabilities. Other Email: [email protected] services include home care assistance, supported living services, independent living services, and vocational rehabilitation services. Metro Boston Also oversees Brain Injury and Statewide Specialized Community Lauri Medeiros Services Program BISSCS). Regional offices are located in Braintree, Phone: 617-605-7404 Brockton, Brookline, Boston, Fall River, Fitchburg, Framingham, Fax: 617-294-1988 Greenfield, Holyoke, Hyannis, Lawrence, Lowell, Malden, Milford, Email: [email protected] New Bedford, North Adams, Pittsfield, Plymouth, Roxbury, Salem, Somerville, Springfield, Sturbridge, Taunton, and Worcester. MRC Northeast Ombudsman: 617-204-3603. Employer Services: 800-245-6543. O. Sophia Johansson 600 Washington Street Phone: 617-935-2264 Boston, MA 02111 Email: [email protected] Phone: 617-204-3600, 800-245-6543 Fax: 617-727-1354 Southeast Website: www.mass.gov/mrc Emily Murgo Nisenbaum Phone: 508-999-4436 MassHealth (Medicaid) Fax: 508-997-9239 Massachusetts offers MassHealth Coverage, including primary Email: emilynisenbaum@ nemasketgroup.org or supplemental policies, available on a sliding scale fee, for families who do not meet income guidelines for the free or lower Western cost plans. MassHealth offers coverage intended to provide Susan Crosby, MSW primary or supplemental health insurance to families without Phone: 413-782-2500 Ext: 321 insurance, to families who have insurance but need help paying the premiums or paying the deductibles and co-payments, to Email: [email protected] women who are pregnant, to families who have children under the age of 18, and to people with disabilities.

Main Office One Ashburton Place, 11th Floor Boston, MA 02108 Phone: 617-573-1770; 800-841-2900 TTY: 800-497-4648 Website: www.mass.gov/masshealth

212 State Agencies

MassHealth Customer Service Center MassHealth CommonHealth Phone: 800-841-2900 Primary and supplementary low-cost insurance for children TTY: 800-497-4648 with disabilities whose families do not meet the income level Website: www.mass.gov/masshealth requirements to be eligible for MassHealth Standard or SSI. It may pay for items that are frequently not covered by insurance To apply for MassHealth, you must contact the Enrollment policies, e.g. dental, durable medical equipment, etc. This Center that services your area, or visit: www.www.mass. insurance is offered by MassHealth. gov/eohhs/insurance OR www.mass.gov/eohhs/consumer/ Phone: 800-841-2900 insurance/apply-for-health-coverage. MassHealth Kaileigh Mulligan Program Chelsea A Medicaid program for children with severe disabilities or illness 45 Spruce Street that pays for medical services so that they may live at home. Chelsea, MA 02150 Phone: 781-485-2500, 888-665-9993 MassHealth Key Resources TTY: 888-665-9997 Fax: 781-485-3400 Disability Special Accommodations Ombudsman: 617-847-3468 Springfield TTY: 617-847-3788 88 Industry Avenue Enhanced Coordination of Benefits: 800-462-1120 Springfield, MA 01104 Prior Authorization Unit: 800-862-8341 Phone: 413-785-4100, 800-332-5545 TTY: 800-596-1276 MassHealth Standard/CommonHealth Premium Fax: 413-785-4180 Assistance Program: 800-862-4840 MassHealth Member Customer Service: 800-841-2900, Taunton TTY: 800-497-4648 21 Spring Street, Suite 4 MassHealth Dental Customer Service: 800-207-5019, Taunton, MA 02780 TTY: 800-466-7566 Phone: 508-828-4600, 800-242-1340 TTY: 800-596-1272 MassHealth Member Provider Services: 800-841-2900 Fax: 508-828-4611 MassHealth Fraud Hotline: 877-437-2830 MassHealth Member Ombudsman: 617-847-3468, Tewksbury TTY: 617-847-3788 367 East Street Tewksbury, MA 01876 Phone: 800-408-1253 TTY: 800-231-5698 Fax: 978-863-9300

Children’s Medical Security Plan Overseen by MassHealth, this plan provides free or low-cost coverage for basic health care if your family does not otherwise qualify for MassHealth Medicaid). Amount of payment is based on family size and income. MassHealth Enrollment Center P.O. Box 290794 Charlestown, MA 02129

213

ENTRY FORM Family TIES Directory of Resources for Families of Children and Youth with Special Needs The Schrafft Center P: 617.236.7210 FEDERATION FOR CHILDREN WITH SPECIAL NEEDS 529 Main Street, Suite 1M3 800.331.0688 www.fcsn.org Boston, MA 02129 F: 617.241.0330

Agency name: ______FT Staff initials ______New resource Phone: ______TTY:______

Change to current listing Toll-free phone:______Fax: ______

Address: ______

Email: ______

Website:______Agency description (3 lines max): ______RESOURCE CATEGORIES (please check all that apply)

ACC – Accessibility SC – Specific Conditions and Disabilities SC – Specific Conditions and Disabilities (cont.) ADV – Advocacy ADD/ADHD Growth Disorders ARC – Arcs AIDS & Infectious Blood Disorders Heart Conditions AT – Assistive Technology and Adaptive Amputation/Limb Differences Kidney Conditions Equipment Asthma & Allergies Learning Disabilities CC – Childcare Resources and Referral Networks Autism Spectrum Disorders Mental Health Disorders COMM – Community Support Autonomic Nervous System & Chronic Neurological Conditions Adoption Fatigue Neuromuscular Conditions Bereavement Blind & Visual Impairment Other Conditions and Disabilities Child Development and Parenting Brain Injury Speech-Related Conditions Culturally Diverse Networks Cancer Spinal Cord Injury & Family Support Cerebral Palsy Spine-Related Disorders General Disability Complex Medical Conditions TR – Transition to Adulthood Programs Parent-to-Parent Connective Tissue Disorders TA – Travel Assistance Special Education Craniofacial Differences Wish Granting and Financial Assistance Deaf & Hard of Hearing CS&I – Community Support & Inclusion Deaf-Blind ED – Education Developmental & Intellectual Disabilities HC – Health Care & Sensory Integration HOUS – Housing Assistance Diabetes ILC – Independent Living Centers Down Syndrome I&R – Information and Referral Services Eating Disorders LGL – Legal Services Epilepsy and Seizure Disorders REC – Recreation/Arts Gastrointestinal Disorders RES – Respite, Family Support and Skilled Nursing Genetic Conditions SA – Service Animals

THIS RESOURCE IS: OR MASSACHUSETTS REGIONAL, SERVING: National If the resource is Boston Metrowest Southeast “Statewide” do not Statewide fill out this section. Central Northeast Western

LANGUAGES SERVED: English Chinese Portuguese Spanish Vietnamese Other ______

Please print your name and phone number below in case we have questions. Return to Federation for Children with Special Needs by FAX or by mail. NAME: ______TITLE:______PHONE: ______216