The Loop Newsletter: Edition 32

Network News Fantastic achievement for volunte ers who support patients at the end of their lives at the Royal and Broadgreen University Hospitals NHS Trust; they have been awarded a prestigious Queen’s Award for Voluntary Service at a ceremony at the hospital. The award is the highest award given to UK volunteer groups, being equivalent to the Member of the Most Excellent Order of the British Empire (MBE).

It was presented at an official ceremony by Her Majesty’s Lord-Lieutenant of Merseyside, Mr Mark Blundell, accompanied by Deputy Lieutenants Colonel Martin Amlôt OBE OStJ DL and Mr Nigel Lanceley, in the presence of The Right Worshipful, The , Councillor Malcolm Kennedy. The Care for the Dying, Volunteers Service provides support for patients who are receiving end of life care in the hospital, complementing the clinical care provided by the professional medical and healthcare staff. Our very own Network People’s Voice Member, Bob Giles, was among the volunteer team to receive the award.

Resources A five-minute film based on the findings of a University of York research project looking at good practice in life story work for dementia is now available. The film can be used by anyone (for non-commercial purposes) free of charge, for example for staff training or awareness raising. There is also a short summary of the research findings which lists key features of good practice and a full report. They are very keen to hear whether these resources are useful: please contact [email protected]

Apologies to Eden Valley Hospice for a mistake in the last edition. The news article should read: Over recent months Eden Valley Hospice has been working with Healthwatch Cumbria to create their very first Patient Charter. The charter turns the hospice’s values into promises or commitments to patients and their families. More information and a copy of the charter can be found here.

Eilidh Macdonald, Policy and Advocacy Manager Scotland at Hospice UK, shares details of a new briefing produced by the charity highlighting steps that Scotland's Integration Authorities can take to enable more children and adults with terminal and life-shortening conditions to access palliative and end of life care.

Conferences Registration is still live for the 2018 OU Death and Dying Group Conference, End of life care: Addressing the issues and meeting the challenges, taking place at the Open University on Wednesday 21st March 2018.

The first national NIHR & Charities Consortium for Hospice and Community Research conference will be held in London on 19th April 2018 which will share examples of new research across the UK. To register your attendance please complete the NIHR & Charities Research Consortium Conference Registration Form by 28th February 2018. We welcome registration from physicians, nurses and AHPs who are (or would like to become) involved in palliative care research in the hospice or community setting.

Every Day Mindful: A practical way of resourcing well-being for health professionals working in palliative and end of life care - 28th March 2018 at St Christopher’s Hospice, London. This one-day workshop will offer you insights and practical tools that when put into practice, will help to interrupt a sense of the relentless busyness of work and life.

The Elephant In The Room: a full, frank and open discussion on those difficult topics. Conference to be held at St Catherine’s Hospice in Preston on 8th March 2018 at 9.30 am – 4.30 pm. Book online or request an invoice at [email protected]

At The Heart of the Matter: Palliative Care and Heart Failure – Wigan and Leigh Hospice conference on 11th May 2018 at Leigh Sports Village, Greater Manchester (flyer attached1).

The Loop Newsletter: Edition 32

Education 29th June 2018 at St Christopher’s Hospice, London – Mental Capacity at End of Life: Implications for Practice. This study-day aims to introduce an overview of the challenges, whilst also providing the opportunity to consider what best practice looks like across the capacity spectrum – from assessment, best interests, and onto Deprivation of Liberty Safeguards. There will be consideration of relevant case law, and the interplay between capacity and other legislative frameworks including the Care Act 2014 (with particular reference to the interface with Adult Safeguarding), and the Mental Health Act 1983.

Interested in Research around Palliative and End of Life Care? Have an idea but not sure where to start? Need to network with people interested in research? Whether you are a curious clinician, seasoned academic or enthusiastic novice this research catalyst event is for you. To be held on 18th April 2018 at 11 am – 4 pm at Edge Hill University (flyer attached2). Register online here.

Publications Four LTC scenarios have now been published on the NHS RightCare website. The scenarios include dementia, multi-morbidity, colon cancer, kidney disease and Parkinson’s, both in full and summary versions, are available.

Surveys/Consultations/Opportunities Challenge Dementia is a national search for products, technologies and services that could transform the way people live with dementia, enabling them to remain connected to the people and places around them. The prize is open to entries until the 13th April 2018, and they’re looking for entries from individuals, groups, organisations and partnerships. They could come from those close to the problem and its impact, or those who seek to bring a completely new and different perspective to the challenge. At this stage they are looking for a great idea with potential, rather than a fully developed business case.

The NHS70 Parliamentary Awards: In July 2018, the NHS will celebrate its 70th birthday. As a key part of this activity, the NHS70 Parliamentary Awards has been established to engage MPs in celebrating 70 years of the NHS, identifying and highlighting innovative and high-quality care across every constituency in , and thanking staff for their dedication, hard work and commitment by recognising and honouring their achievements. The NHS70 Parliamentary Awards will be launched by Dr Sarah Wollaston MP, Chair of the Commons Health Select Committee, in Parliament. MPs will invite, receive and consider potential nominations from their local health and care organisations, and then choose who to officially nominate for a national award before the nomination window closes at 1 p.m. on Friday, 23rd March 2018 - so get your nominations in!

News Woodlands Hospice in Liverpool, with their local MP, secures Parliamentary debate on future funding. Following a recent visit to Woodlands Hospice in Liverpool, , MP for Liverpool, Walton, took the hospice funding issues identified by Woodlands, to an adjournment debate in the House of Commons this week. He praised the care provided by Woodlands Hospice, “a place brimming with life” through its wide range of services which enable people with life-limiting conditions to live their lives in “a positive and independent way”. He highlighted that the hospice had to raise £1.3m each year through the support of its local community against a backdrop of financial uncertainty and squeezed living standards. The MP for Liverpool, Walton, said he hoped the debate would focus attention on funding for the hospice sector across the UK as a whole and the need for viable funding that was longer term and better planned. Listen to the debate.

We hope that you have found our Network newsletter useful. If you wish to opt out of receiving future newsletters please email: [email protected] and ask to be removed from the distribution list.

Edition 32:February 2018 2