1991 eFWCp is recognized by the eFWCp participates in the national 1996 volunteers receive the epilepsy Four Decades of Distinguished Service: epilepsy Foundation national office with Foundation’s Public Policy Institute, Foundation national Family Service Award the Affiliate of the Year award. and sends two representatives to and the allegheny County Medical society Washington, d.C. Benjamin Rush Organization Award.
significant dates in the history of the eFWCp 1995 eFWCp establishes epilepsy The first Regional Family Conference on support services in 17 counties in the Epilepsy is held in pittsburgh to offer an 1972 south central region of pennsylvania, in-depth look at the issues that affect a group of parents and friends Foundation at a neighboring booth; dealing increasing the total number of counties people with epilepsy; more than 250 concerned about the lack of services for with arthritis herself, she finds it helpful to served to 32. people attended. people with epilepsy, who began meeting talk with people who understand what she in 1971, establish the beginnings of what is going through. This experience fuels her doors open to the epilepsy resource annual Budget grows from a negative will become the eFWCp. on May 30th, the passion to arrange several support groups Center in the central pennsylvania region balance in the early 1980s to group is officially incorporated as the and classes featuring local experts for in January, and services are provided to approximately $500,000. allegheny plateau Chapter of the epilepsy adults with epilepsy and parents of Staff including Judy Painter and Rick Boyle, and 261 individuals, 96 families, and 165 board members Rich Ryan, Dr. Patricia Crumrine and 1997 a communications director is Foundation of america. children with epilepsy; the groups number Peter Rockwell accept the Affiliate of the Year award. adults during this first year. in addition, in the 20s on a regular basis. 37 professionals and social service hired to improve public relations in 1979 Lee Phillips and Bobbie Martha 1992 territories served by the eFWCp. polly phillips gets involved with 1982 eFWCp hires a full-time agencies in the area receive information the Foundation because her son, John The Foundation hosts its first- 1985 community education specialist to make and training. phillips, begins experiencing epilepsy at ever fundraiser, honoring new university Through the help of board Project School Alert presentations to a website, www.efwp.org, is developed to age four. she recognizes a need for the of pittsburgh Football Coach Foge Fazio. member Bobbie Martha, the eFWCp teachers, students, and other facilitate access to information on Foundation to be better organized so it The event puts the eFWCp on the map in secures a 2-year grant from the Junior organizations interested in learning about epilepsy and eFWCp services, and can better reach and serve people who the larger corporate community, as local league of pittsburgh and hires the epilepsy, seizure recognition, and first aid provides links to other resources. have epilepsy. polly, along with nonprofits are just beginning to go out on Foundation’s first paid program staff training. 1998 Foundation board members, calls on her their own with Fundraising events. member, linda otto, to formally develop a eFWCp receives three more sister-in-law, lee phillips, to take the helm loosely existing school and community 1993 partnering with the epilepsy awards from the epilepsy Foundation as executive director. eFWCp’s first major annual fundraiser, education program that she had been Foundation eastern pennsylvania, the national: a Special Recognition Award, Froggy’s Golf Classic, is created by steve supporting on a volunteer basis. a person eFWCp leads the way in stepping up efforts Volunteer of the Year, and an Advocacy “Froggy” Morris, peter rockwell, John who lives with epilepsy herself, otto begins with legislative affairs. in addition to award. phillips, and other Foundation board writing letters to schools in august, and is maintaining contact with local members of Jane Duffy (far right) accepts the award for a major restructuring organizes the members to raise funds for epilepsy flooded with responses of requests for Employer of the Year. the General assembly, meetings are held Foundation’s board of directors into three services. presentations to teachers, students, and with staff from the Governor’s office, the the workplace. From september through eFWCp receives an unprecedented three entities, and adds a number of new staff office of the Budget, the department of to effectively deliver programs and May, she gives presentations four days a health, and the department of public awards from the national Foundation: week and reaches more than 6,000 people. Board Member of the Year, Employer of the services in western and central Welfare; and a representative is sent to pennsylvania. testify about health care reform at public Year, and Executive Director of the Year. 1988 Judith K. painter is hired as the hearings held by then First lady hillary dr. louis Catalano coordinates the next executive director, and continues to Clinton and senator harris Wofford. The foundation has been honored over the years by grow the eFWCp. after raising new funds, Westmoreland County sports dinner and the presence of community-minded board she hires a program director. Project School Alert program designs two auction; it is the first fundraiser held outside members. Included, from left, back row: Steve allegheny County for the Foundation. Greenberg, George Whitmer, Tom Chakurda, Dan giant story books Lee the Rabbit and Koch, Bob Moorehead, Peter Rockwell, Chuck 1989 an adult employment program, Because You are My Friend. Voelker, David Koch, and Larry Leventon. Front funded by a grant from the national row, from left: Julie Klym, Douglas Dick, Dave Early camp photo First Meet the Employer event is launched Taylor, Tom Trimm, and Rich Ryan. epilepsy Foundation office, is initiated to 1984 The eFWCp creates and help adults with epilepsy secure permanent as a part of the employment program. 1981 lee phillips is hired as the employment by providing job seeking skill facilitates a summer camp program for First legislation for epilepsy services in eFWCp’s first paid executive director. she training, a job club, and individual Tom Trimm, Judy Painter, Melissa Hart, Annette children with epilepsy to enjoy. pennsylvania history, h.B. 2371, is takes the Foundation from a loosely tied vocational counseling. Chelius, George Harakal, and Bill Adolph volunteers begin trucking 25 kids in a introduced into the pennsylvania house of group of interested social workers and donated van each summer to various The pennsylvania General assembly and eFWCp receives an epilepsy Family action representatives in december. doctors to a finely knit board of directors camps. With help from dr. patricia the Governor’s office double the made up of outstanding community services 2-year contract from the epilepsy Crumrine and medical staff on hand from 1994 First state funding in appropriation for epilepsy services in the leaders. Foundation national. The first Mardi Gras Gala Children’s hospital of pittsburgh, many pennsylvania’s history to finance epilepsy 1998-1999 state budget, which ensures children with epilepsy experience the The first pirates Family Fun/run Walk is programs and services begins. This enables The first Mardi Gras Gala is held, which continual full-time status of Project School in phillips’ first year, she has no staff and magic and fun of summer camp for the held to raise awareness and funds for the the eFWCp to expand services in local honors a prominent community/business Alert in western pennsylvania, and relies heavily on volunteers. While first time. The annual camp becomes Foundation; more than 1,000 people territories, and establish the first epilepsy leader. Mardi Gras quickly becomes the enables the creation of such services in attending one health fair, she is inspired by known as Camp Frog in honor of steve her interaction with the arthritis participate. Foundation affiliate services ever available Foundation’s largest fundraiser. central pennsylvania. The funds also “Froggy” Morris. in central pennsylvania. allow the Foundation to hire staff to
2 3 1991 eFWCp is recognized by the eFWCp participates in the national 1996 volunteers receive the epilepsy Four Decades of Distinguished Service: epilepsy Foundation national office with Foundation’s Public Policy Institute, Foundation national Family Service Award the Affiliate of the Year award. and sends two representatives to and the allegheny County Medical society Washington, d.C. Benjamin Rush Organization Award.
significant dates in the history of the eFWCp 1995 eFWCp establishes epilepsy The first Regional Family Conference on support services in 17 counties in the Epilepsy is held in pittsburgh to offer an 1972 south central region of pennsylvania, in-depth look at the issues that affect a group of parents and friends Foundation at a neighboring booth; dealing increasing the total number of counties people with epilepsy; more than 250 concerned about the lack of services for with arthritis herself, she finds it helpful to served to 32. people attended. people with epilepsy, who began meeting talk with people who understand what she in 1971, establish the beginnings of what is going through. This experience fuels her doors open to the epilepsy resource annual Budget grows from a negative will become the eFWCp. on May 30th, the passion to arrange several support groups Center in the central pennsylvania region balance in the early 1980s to group is officially incorporated as the and classes featuring local experts for in January, and services are provided to approximately $500,000. allegheny plateau Chapter of the epilepsy adults with epilepsy and parents of Staff including Judy Painter and Rick Boyle, and 261 individuals, 96 families, and 165 board members Rich Ryan, Dr. Patricia Crumrine and 1997 a communications director is Foundation of america. children with epilepsy; the groups number Peter Rockwell accept the Affiliate of the Year award. adults during this first year. in addition, in the 20s on a regular basis. 37 professionals and social service hired to improve public relations in 1979 Lee Phillips and Bobbie Martha 1992 territories served by the eFWCp. polly phillips gets involved with 1982 eFWCp hires a full-time agencies in the area receive information the Foundation because her son, John The Foundation hosts its first- 1985 community education specialist to make and training. phillips, begins experiencing epilepsy at ever fundraiser, honoring new university Through the help of board Project School Alert presentations to a website, www.efwp.org, is developed to age four. she recognizes a need for the of pittsburgh Football Coach Foge Fazio. member Bobbie Martha, the eFWCp teachers, students, and other facilitate access to information on Foundation to be better organized so it The event puts the eFWCp on the map in secures a 2-year grant from the Junior organizations interested in learning about epilepsy and eFWCp services, and can better reach and serve people who the larger corporate community, as local league of pittsburgh and hires the epilepsy, seizure recognition, and first aid provides links to other resources. have epilepsy. polly, along with nonprofits are just beginning to go out on Foundation’s first paid program staff training. 1998 Foundation board members, calls on her their own with Fundraising events. member, linda otto, to formally develop a eFWCp receives three more sister-in-law, lee phillips, to take the helm loosely existing school and community 1993 partnering with the epilepsy awards from the epilepsy Foundation as executive director. eFWCp’s first major annual fundraiser, education program that she had been Foundation eastern pennsylvania, the national: a Special Recognition Award, Froggy’s Golf Classic, is created by steve supporting on a volunteer basis. a person eFWCp leads the way in stepping up efforts Volunteer of the Year, and an Advocacy “Froggy” Morris, peter rockwell, John who lives with epilepsy herself, otto begins with legislative affairs. in addition to award. phillips, and other Foundation board writing letters to schools in august, and is maintaining contact with local members of Jane Duffy (far right) accepts the award for a major restructuring organizes the members to raise funds for epilepsy flooded with responses of requests for Employer of the Year. the General assembly, meetings are held Foundation’s board of directors into three services. presentations to teachers, students, and with staff from the Governor’s office, the the workplace. From september through eFWCp receives an unprecedented three entities, and adds a number of new staff office of the Budget, the department of to effectively deliver programs and May, she gives presentations four days a health, and the department of public awards from the national Foundation: week and reaches more than 6,000 people. Board Member of the Year, Employer of the services in western and central Welfare; and a representative is sent to pennsylvania. testify about health care reform at public Year, and Executive Director of the Year. 1988 Judith K. painter is hired as the hearings held by then First lady hillary dr. louis Catalano coordinates the next executive director, and continues to Clinton and senator harris Wofford. The foundation has been honored over the years by grow the eFWCp. after raising new funds, Westmoreland County sports dinner and the presence of community-minded board she hires a program director. Project School Alert program designs two auction; it is the first fundraiser held outside members. Included, from left, back row: Steve allegheny County for the Foundation. Greenberg, George Whitmer, Tom Chakurda, Dan giant story books Lee the Rabbit and Koch, Bob Moorehead, Peter Rockwell, Chuck 1989 an adult employment program, Because You are My Friend. Voelker, David Koch, and Larry Leventon. Front funded by a grant from the national row, from left: Julie Klym, Douglas Dick, Dave Early camp photo First Meet the Employer event is launched Taylor, Tom Trimm, and Rich Ryan. epilepsy Foundation office, is initiated to 1984 The eFWCp creates and help adults with epilepsy secure permanent as a part of the employment program. 1981 lee phillips is hired as the employment by providing job seeking skill facilitates a summer camp program for First legislation for epilepsy services in eFWCp’s first paid executive director. she training, a job club, and individual Tom Trimm, Judy Painter, Melissa Hart, Annette children with epilepsy to enjoy. pennsylvania history, h.B. 2371, is takes the Foundation from a loosely tied vocational counseling. Chelius, George Harakal, and Bill Adolph volunteers begin trucking 25 kids in a introduced into the pennsylvania house of group of interested social workers and donated van each summer to various The pennsylvania General assembly and eFWCp receives an epilepsy Family action representatives in december. doctors to a finely knit board of directors camps. With help from dr. patricia the Governor’s office double the made up of outstanding community services 2-year contract from the epilepsy Crumrine and medical staff on hand from 1994 First state funding in appropriation for epilepsy services in the leaders. Foundation national. The first Mardi Gras Gala Children’s hospital of pittsburgh, many pennsylvania’s history to finance epilepsy 1998-1999 state budget, which ensures children with epilepsy experience the The first pirates Family Fun/run Walk is programs and services begins. This enables The first Mardi Gras Gala is held, which continual full-time status of Project School in phillips’ first year, she has no staff and magic and fun of summer camp for the held to raise awareness and funds for the the eFWCp to expand services in local honors a prominent community/business Alert in western pennsylvania, and relies heavily on volunteers. While first time. The annual camp becomes Foundation; more than 1,000 people territories, and establish the first epilepsy leader. Mardi Gras quickly becomes the enables the creation of such services in attending one health fair, she is inspired by known as Camp Frog in honor of steve her interaction with the arthritis participate. Foundation affiliate services ever available Foundation’s largest fundraiser. central pennsylvania. The funds also “Froggy” Morris. in central pennsylvania. allow the Foundation to hire staff to
2 3 deliver employment services in central awareness and donations with the slogan: participates in national’s youth research eFWCp leads a branding initiative in a symposium for professionals working that Project School Alert is highly effective pennsylvania. Epilepsy is What You Have, Not What You and awareness campaign, Entitled to conjunction with six other major markets with individuals with developmental in increasing the public’s understanding of Are. Respect, which teams up with pop music across the country and the national disabilities was held in november in epilepsy and appropriate first aid steps. a new and improved newsletter, stars #nsynC. office. The eFWCp coordinates efforts pittsburgh. More than 80 attendees hear a Interaction, is unveiled. published 2000 Mardi Gras is recognized among which delve into the needs of persons presentation from an area neurologist on The eFWCp is named Affiliate of the Year quarterly and mailed to over 6,300 the top annual social events in pittsburgh 2002 The eFWCp is named Affiliate of with epilepsy/seizure disorders so that all new treatment options for epilepsy for an unprecedented third time. residences, it puts a face on epilepsy by by local society newspaper editors. the Year by the epilepsy Foundation affiliates can be ready to address the patients and learn about eFWCp programs 2006 telling the stories of people’s experiences national, and associate director peggy specific challenges associated with the and services. eFWCp Board of directors with the disorder throughout the eFWCp The first Family picnic is held in pittsburgh Beem-Jelley is honored as Affiliate Staff condition. a tag line is developed by member Joyce Bender is named Volunteer service area. to provide the opportunity to socialize Person of the Year. MarC advertising, and is adopted and 2005 The pittsburgh, erie and of the Year by the epilepsy Foundation with other individuals and families trademarked by the national office. harrisburg Fun run/Walks for epilepsy national. The Foundation creates a glossy, 16-page affected by epilepsy in a fun, relaxed The Annual Regional Conference on receive a Golden Circle Award from information book, publishes a number of The Steve “Froggy” Morris – G. Peter atmosphere; 40 families attend. Epilepsy is held in erie, with more than Two new fundraising initiatives, the erie national, and the Mardi Gras Gala is the new educational and special event Rockwell Endowment Fund is established. 120 people in attendance. and harrisburg Fun run/Walks, are Top Golden Circle Award winner, having brochures and posters, and successfully 2001 The endowment will provide scholarships a public relations campaign launched in conjunction with each city’s netted more than $204,000 – more than bridges the gap with media outlets to to young people with epilepsy so that they launches the distribution of four display minor league baseball team. any other affiliate in the country. The bring epilepsy/seizure disorders into the can attend Camp Frog. boards, each targeting specific audiences eFWCp is again named Affiliate of the public eye. in an effort to connect individuals 2004 Judy painter is named Executive Year. For the first time,Camp Frog is offered for a experiencing epilepsy with the eFWCp to Director of the Year for the second time by First Teen Getaway offers teens that have week at two different locations in the state. benefit from its existing services. The the epilepsy Foundation national, and louis a Saturday Spring Spectacular takes place epilepsy the opportunity to share The first week of camp is at Camp Conrad display boards are distributed to doctor’s Testoni, president of the eFWCp Board of at the Community College of allegheny experiences and feelings about living with Weiser in Wernersville, and the second is at offices, epilepsy medical clinics, directors, is named Volunteer of the Year. County Boyce campus. at this expanded the disorder, while also building Camp Fitch in north springfield. pharmacies, and libraries throughout version of the eFWCp’s annual conference friendships and having fun. offices in erie and Johnstown are opened. western pennsylvania. format, more than 70 attendees hear The eFWCp holds its first Women and These new offices allow the organization 1999 from experts on a variety of epilepsy- Epilepsy conference in november in eFWCp’s Mardi Gras Gala in June the epilepsy Foundation national to better serve individuals and families related topics while children enjoy games, pittsburgh. seventy-seven women and their receives the first and only epilepsy approves the addition of another 17 affected by epilepsy in the northwest and crafts, activities, and the basketball loved ones attend the conference to hear Foundation National Fund Raising Award. counties located in west and central The Because You Are My Friend coloring book is central areas of the state. showmanship of Mighty Mike simmel. from experts on topics including hormones regions of the northern part of the state, used for school presentations and given to families First full year of operating Project School with children newly-diagnosed with epilepsy and epilepsy, social concerns, and issues bringing a total of 49 counties into the research projects are launched during the Alert and Adult/Employment projects in affecting pregnancy. eFWCp service territory. summer in erie and pittsburgh to the central region of the state. The Because You Are My Friend book is turned into a coloring book for project determine how best to serve both african The pittsburgh steelers, and steelers pennsylvania’s state budget increases by a parent advisory Committee is school alert presentations for pre-K and american and hispanic families living with offensive lineman alan Faneca, invite $50,000 to help the Foundation serve its established to aid the Foundation in elementary schools. epilepsy. The results of these projects families to training camp in august at st. new territories; $25,000 is allotted for promoting epilepsy awareness and serve as guiding forces in the vincent College in latrobe. Forty-one reaching the northwest part of the state. advocacy, and to create a corps of The School Nurse Update is published. development and implementation of new ‘Faneca Fans’ watch the steelers practice The newsletter is sent to 1,600 nurses and outreach initiatives to these communities, volunteers; the group also develops a The Annual Regional Conference on from the sidelines, and meet alan Faneca provides updates on newer treatments for including a Soul Food luncheon for human quarterly newsletter, ParentLink, written Epilepsy takes place in harrisburg, and several other players after practice for children who have epilepsy. service professionals serving african by, for, and about parents of children with marking the first time it is held outside of The new face of the EFWCP website autographs and pictures. alan offers many epilepsy. americans and a direct mail outreach words of encouragement to all the kids and pittsburgh. eFWCp holds a regional conference for a redesigned website is launched in campaign addressing issues of stigma and talks openly about growing up with school nurses in state College in pittsburgh police Training academy invites February. The site has a brand-new look misconceptions about epilepsy in black epilepsy. he also speaks with news crews november, with 20 school districts eFWCp to provide seizure recognition and and very comprehensive information; communities. from two local Tv stations to promote participating in the one-day event. first aid training for academy recruits. from the diagnosis & treatment of epilepsy awareness and the services Family Conferences on Epilepsy are held in 2003 epilepsy, to the programs & services available through the eFWCp. a scholarship program is created, and five The annual Mardi Gras Gala offered by the eFWCp, to news about the erie and Johnstown in november. More receives the Golden Circle Award from the than 40 attendees in each location hear $1000 scholarships are awarded to teens Foundation’s achievements, events, and 2007 The eFWCp receives three Golden epilepsy Foundation national. This from experts on topics ranging from with seizure disorders to attend a noteworthy happenings. Circle Awards from national. The 13th recognition is reserved for events that healthy living with a chronic condition to secondary school. annual Mardi Gras Gala grosses $400,000 raise more than $100,000 in net proceeds, an interactive Cd-roM is developed. This treatment options and available for epilepsy support services and programs. First ever Gateway Clipper cruise and the eFWCp is the only affiliate to technological tool is a resource for community resources. The pittsburgh pirates annual Fun The billboard at the Allegheny County International socialization and education event held in receive such an honor. dr. lou Catalano, educators and healthcare professionals Airport run/Walk grosses over $100,000 for the pittsburgh sees nearly 100 adults in eFWCp board member, received the who can help others learn more about eFWCp staff work with staff from the university of pittsburgh’s office of Child first time. The thirdGolden Circle is for a billboard campaign is launched in attendance. Excellence in Fundraising award in epilepsy, and can be a way for families development to design program Froggy’s Golf Classic. pittsburgh during national epilepsy recognition of his work on the annual affected by epilepsy to share information during national epilepsy awareness evaluation tools. The measurement awareness Month, which increases Westmoreland County sports dinner and about seizure disorders with other family Month in november, the eFWCp auction. members and friends. instruments are piloted in the spring. results from the data collected indicate
4 5 deliver employment services in central awareness and donations with the slogan: participates in national’s youth research eFWCp leads a branding initiative in a symposium for professionals working that Project School Alert is highly effective pennsylvania. Epilepsy is What You Have, Not What You and awareness campaign, Entitled to conjunction with six other major markets with individuals with developmental in increasing the public’s understanding of Are. Respect, which teams up with pop music across the country and the national disabilities was held in november in epilepsy and appropriate first aid steps. a new and improved newsletter, stars #nsynC. office. The eFWCp coordinates efforts pittsburgh. More than 80 attendees hear a Interaction, is unveiled. published 2000 Mardi Gras is recognized among which delve into the needs of persons presentation from an area neurologist on The eFWCp is named Affiliate of the Year quarterly and mailed to over 6,300 the top annual social events in pittsburgh 2002 The eFWCp is named Affiliate of with epilepsy/seizure disorders so that all new treatment options for epilepsy for an unprecedented third time. residences, it puts a face on epilepsy by by local society newspaper editors. the Year by the epilepsy Foundation affiliates can be ready to address the patients and learn about eFWCp programs 2006 telling the stories of people’s experiences national, and associate director peggy specific challenges associated with the and services. eFWCp Board of directors with the disorder throughout the eFWCp The first Family picnic is held in pittsburgh Beem-Jelley is honored as Affiliate Staff condition. a tag line is developed by member Joyce Bender is named Volunteer service area. to provide the opportunity to socialize Person of the Year. MarC advertising, and is adopted and 2005 The pittsburgh, erie and of the Year by the epilepsy Foundation with other individuals and families trademarked by the national office. harrisburg Fun run/Walks for epilepsy national. The Foundation creates a glossy, 16-page affected by epilepsy in a fun, relaxed The Annual Regional Conference on receive a Golden Circle Award from information book, publishes a number of The Steve “Froggy” Morris – G. Peter atmosphere; 40 families attend. Epilepsy is held in erie, with more than Two new fundraising initiatives, the erie national, and the Mardi Gras Gala is the new educational and special event Rockwell Endowment Fund is established. 120 people in attendance. and harrisburg Fun run/Walks, are Top Golden Circle Award winner, having brochures and posters, and successfully 2001 The endowment will provide scholarships a public relations campaign launched in conjunction with each city’s netted more than $204,000 – more than bridges the gap with media outlets to to young people with epilepsy so that they launches the distribution of four display minor league baseball team. any other affiliate in the country. The bring epilepsy/seizure disorders into the can attend Camp Frog. boards, each targeting specific audiences eFWCp is again named Affiliate of the public eye. in an effort to connect individuals 2004 Judy painter is named Executive Year. For the first time,Camp Frog is offered for a experiencing epilepsy with the eFWCp to Director of the Year for the second time by First Teen Getaway offers teens that have week at two different locations in the state. benefit from its existing services. The the epilepsy Foundation national, and louis a Saturday Spring Spectacular takes place epilepsy the opportunity to share The first week of camp is at Camp Conrad display boards are distributed to doctor’s Testoni, president of the eFWCp Board of at the Community College of allegheny experiences and feelings about living with Weiser in Wernersville, and the second is at offices, epilepsy medical clinics, directors, is named Volunteer of the Year. County Boyce campus. at this expanded the disorder, while also building Camp Fitch in north springfield. pharmacies, and libraries throughout version of the eFWCp’s annual conference friendships and having fun. offices in erie and Johnstown are opened. western pennsylvania. format, more than 70 attendees hear The eFWCp holds its first Women and These new offices allow the organization 1999 from experts on a variety of epilepsy- Epilepsy conference in november in eFWCp’s Mardi Gras Gala in June the epilepsy Foundation national to better serve individuals and families related topics while children enjoy games, pittsburgh. seventy-seven women and their receives the first and only epilepsy approves the addition of another 17 affected by epilepsy in the northwest and crafts, activities, and the basketball loved ones attend the conference to hear Foundation National Fund Raising Award. counties located in west and central The Because You Are My Friend coloring book is central areas of the state. showmanship of Mighty Mike simmel. from experts on topics including hormones regions of the northern part of the state, used for school presentations and given to families First full year of operating Project School with children newly-diagnosed with epilepsy and epilepsy, social concerns, and issues bringing a total of 49 counties into the research projects are launched during the Alert and Adult/Employment projects in affecting pregnancy. eFWCp service territory. summer in erie and pittsburgh to the central region of the state. The Because You Are My Friend book is turned into a coloring book for project determine how best to serve both african The pittsburgh steelers, and steelers pennsylvania’s state budget increases by a parent advisory Committee is school alert presentations for pre-K and american and hispanic families living with offensive lineman alan Faneca, invite $50,000 to help the Foundation serve its established to aid the Foundation in elementary schools. epilepsy. The results of these projects families to training camp in august at st. new territories; $25,000 is allotted for promoting epilepsy awareness and serve as guiding forces in the vincent College in latrobe. Forty-one reaching the northwest part of the state. advocacy, and to create a corps of The School Nurse Update is published. development and implementation of new ‘Faneca Fans’ watch the steelers practice The newsletter is sent to 1,600 nurses and outreach initiatives to these communities, volunteers; the group also develops a The Annual Regional Conference on from the sidelines, and meet alan Faneca provides updates on newer treatments for including a Soul Food luncheon for human quarterly newsletter, ParentLink, written Epilepsy takes place in harrisburg, and several other players after practice for children who have epilepsy. service professionals serving african by, for, and about parents of children with marking the first time it is held outside of The new face of the EFWCP website autographs and pictures. alan offers many epilepsy. americans and a direct mail outreach words of encouragement to all the kids and pittsburgh. eFWCp holds a regional conference for a redesigned website is launched in campaign addressing issues of stigma and talks openly about growing up with school nurses in state College in pittsburgh police Training academy invites February. The site has a brand-new look misconceptions about epilepsy in black epilepsy. he also speaks with news crews november, with 20 school districts eFWCp to provide seizure recognition and and very comprehensive information; communities. from two local Tv stations to promote participating in the one-day event. first aid training for academy recruits. from the diagnosis & treatment of epilepsy awareness and the services Family Conferences on Epilepsy are held in 2003 epilepsy, to the programs & services available through the eFWCp. a scholarship program is created, and five The annual Mardi Gras Gala offered by the eFWCp, to news about the erie and Johnstown in november. More receives the Golden Circle Award from the than 40 attendees in each location hear $1000 scholarships are awarded to teens Foundation’s achievements, events, and 2007 The eFWCp receives three Golden epilepsy Foundation national. This from experts on topics ranging from with seizure disorders to attend a noteworthy happenings. Circle Awards from national. The 13th recognition is reserved for events that healthy living with a chronic condition to secondary school. annual Mardi Gras Gala grosses $400,000 raise more than $100,000 in net proceeds, an interactive Cd-roM is developed. This treatment options and available for epilepsy support services and programs. First ever Gateway Clipper cruise and the eFWCp is the only affiliate to technological tool is a resource for community resources. The pittsburgh pirates annual Fun The billboard at the Allegheny County International socialization and education event held in receive such an honor. dr. lou Catalano, educators and healthcare professionals Airport run/Walk grosses over $100,000 for the pittsburgh sees nearly 100 adults in eFWCp board member, received the who can help others learn more about eFWCp staff work with staff from the university of pittsburgh’s office of Child first time. The thirdGolden Circle is for a billboard campaign is launched in attendance. Excellence in Fundraising award in epilepsy, and can be a way for families development to design program Froggy’s Golf Classic. pittsburgh during national epilepsy recognition of his work on the annual affected by epilepsy to share information during national epilepsy awareness evaluation tools. The measurement awareness Month, which increases Westmoreland County sports dinner and about seizure disorders with other family Month in november, the eFWCp auction. members and friends. instruments are piloted in the spring. results from the data collected indicate
4 5 a video is created by eFWCp to raise staff in the Johnstown office partner with pittsburgh, division of Child neurology awareness about the impacts the Johnstown Chiefs minor league and three office locations of the pediatric epilepsy/seizure disorders have on families hockey team to present seizure alliance group participate in this program and how the eFWCp can help them to awareness, helmet safety, and head injury to replicate a model of care coordination improve their quality of life. The video is prevention programs to area elementary developed at dartmouth hitchcock released during Mardi Gras 2007. school students. staff also collaborates university hospital. with the Johnstown rotary to distribute The eFWCp moves from its longtime home bike helmets to participating schools. in the vocational rehabilitation Center on Forbes avenue to its current home in the The eFWCp is certified as an affiliate Cardello Building on the north shore. meeting the national standards of excellence created by the epilepsy Grants are received from national to Foundation national. The eFWCp is one of provide a Women in epilepsy Conference in only five affiliates in the country to harrisburg, attended by 60 people, and to achieve this distinction. create employer Training programs.
2008 The eFWCp receives two Golden Circle Awards from national.
The eFWCp receives the John H. Harris EFWCP supporters in the Erie area gathered at Presque Isle State Park for the 2011 Highmark Walk Sharon Aulicino Dick Barton Award from variety the Children’s Charity for a Healthy Community of pittsburgh. This award recognizes outstanding service to children with 2011 The eFWCp participates in the disabilities in southwestern pennsylvania. highmark Walk for a healthy Community for the first time in erie. The highmark eFWCp receives a grant and staff provides Walk for a healthy Community is educational presentations to almost 450 underwritten by highmark Blue Cross Blue seniors and their caregivers at senior shield, which covers the cost of the walk centers, nursing homes, and assisted living and allows all of the money raised by facilities in allegheny County. Andrew Stockey, Jim Krenn, and Tony Watson, co- participants to go to the organization they chairs of the 2011 Pittsburgh Fun/Run with Andrew are supporting. The eFWCp meets the epilepsy Foundation McCallion, one of 6 scholarship winners. national’s affiliate standards, one of the 2010 The eFWCp partners with the pa Medical first affiliates in the country to do so. The eFWCp receives two Golden home project to provide a statewide 2009 Circle Awards from national. training conference on epilepsy in The eFWCp receives three Golden harrisburg as part of the annual EPIC-IC Circle Awards from national. The 15th in partnership with the upMC health plan, the eFWCp develops a model Conference. The conference provides an annual Mardi Gras Gala breaks fundraising opportunity for over 150 primary and attendance records, with 900 guests program for families raising children with Joyce Bender Sandy Bettor seizures. The start sMarT (seizure pediatric care providers to learn more bringing in more than $423,000 in support about managing epilepsy and seizures in of eFWCp programs and services. Management awareness & recognition Training) program provides parents with their patients. long-time eFWCp board of director’s support and help in developing seizure lundbeck, inc. awards the eFWCp with a member Joyce Bender becomes chair of self-management skills to minimize the $10,000 grant to start a new program, the epilepsy Foundation national’s board. negative impact of seizures upon the life called studio e: The epilepsy art Therapy of their child and family. program. studio e will encourage The eFWCp receives a federal grant under individuals living with epilepsy to find the us department of health & human their voice through art. This program is services, Maternal and Child health expected to launch in the summer of services division’s innovative strategies in 2012. serving Children & youth with epilepsy The 17th annual Mardi Gras Gala is project access program. This project recognized by local papers; rated the #9 creates an opportunity for the eFWCp to Best event in pittsburgh by the post- work with quality improvement programs Gazette’s Marylynn uricchio of seen and within both primary pediatrics and the #4 Best event in pittsburgh by Tribune specialty care. Children’s hospital of The helmet safety program encourages children to review’s Kate Benz of Fanfare. Louis Catalano, MD Tom Chakurda stay safe while riding their bicycles
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