2013 Annual Report MISSION STATEMENT The National MPS Society exists to find cures for MPS and related diseases. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases.

National MPS Society PO Box 14686 / Durham, NC 27709-4686 t: 877.MPS.1001 / p: 919.806.0101 / f: 919.806.2055 e-mail: [email protected] / web: www.mpssociety.org As you read our 2013 annual report, you’ll notice the common themes of action, hope, power and change. These were not strategic goals for 2013—they are the basic foundations of the mission of the National MPS Society and a focus of our work every day of every year. 01 We have compiled the Society’s 2013 highpoints—which are impressive. But who tells a story better than an adult with MPS who received an Extraordinary Experience or a family who has seen the growth of the Society? After reading the following pages you will see what we mean.

Every year the Society offers scholarships to attend our annual conferences and, due to the popularity of this program, preference is given to first- time conference attendees. Michael Whitaker-Russell (MPS II) and Loren McClelland (MPS I) became fast friends because of that opportunity to meet in San Antonio at our 27th Annual Family Conference. See their photo on page 2.

During this conference we had the privilege to celebrate individuals with MPS I who were the first in the world to participate in an MPS clinical trial for enzyme replacement therapy. That celebration encapsulated all the themes of action, hope, power and change! In 2003, Aldurazyme™ was approved by the FDA as the first treatment for individuals with MPS I, and the Society participated in the FDA Advisory Committee Hearing for Aldurazyme. The Society participated in another FDA Advisory Committee Hearing in 2013, this time for VIMIZIM™ for MPS IVA. This treatment was approved in February 2014.

Look through this annual report and reflect on the special moments captured during 2013. See the look of joy on Nick Boyce’s (MPS I) face at his college graduation and understand the power and determination that propelled him forward. Appreciate how Jocelyn Wong (MPS IVA) acts on her beliefs and brings hope to patients from other countries. Understand that the Society launched its most diverse disease advocacy effort in Washington, DC, to date with a focus on change. Rejoice that a new company is hoping to change the lives of individuals with MPS IIIB by developing a desperately needed treatment. Appreciate how a father’s fraternity developed an action plan to raise money to ultimately cure his son’s disease.

These are only a few of the many stories. Every story is special and remarkable because the Society is comprised of many individuals and groups all working for a common mission—to find cures for all MPS and related diseases. Action, hope, power and change will continue to be a part of these stories as we move forward.

Thank you for helping us to achieve our mission.

President Executive Director

Pictured on the cover: Marie and Ryan (MPS II) Hunt

Steve Holland Barbara Wedehase I would like to thank the National MPS Society for providing a scholarship to the Annual Family “Conference in San Antonio, TX. Michael and I created lifelong relationships, but the best part was seeing we are not alone in this. There is an entire MPS family. I want to start a Courage Page to help the Society with fundraising. I want to be a part of making a change because we have hope for our future. Monique Whitaker legal guardian of Michael (MPS II) • Supported 13 families to attend the 28th Annual Family Conference in San Antonio, TX. These conference Empowerment scholarships offset the cost of 03 registration, travel and hotel. • Awarded 28 $1,000 Continuing Through Support Education Scholarships to members who are continuing their post-high school education. Scholarships were awarded to eight individuals with MPS and related diseases, to one child of an The Family Support Committee is determined to meet affected individual and to 19 siblings. the developing needs of individuals and families affected by • Funded $14,650 in Family Assistance MPS and related diseases. Since the program’s inception, more Program grants to help families obtain durable medical goods. Grants than $635,000 has been awarded in direct family assistance, included scooters, car lift, home ramp, funding medical goods, continuing education and conference WIKE bicycle stroller, sleep safe bed, adaptive car seat and adaptive stroller. scholarships, medical travel assistance and extraordinary • Assisted 20 families through the experiences. As the program continues to grow, additional Medical Travel Assistance Program. In 2013, the program awarded support opportunities will be identified for our families. $8,943 for mileage, airfare and hotel reimbursement to families traveling more than 200 miles (one way) from home for medical appointments. • Promoted and provided $2,250 in financial support for three family organized regional social gatherings Family Assistance Program Dollars in Illinois, Ohio and Utah. • Funded five Extraordinary Experiences for older children and young adults $90,000 with MPS. In 2013, the Society awarded $80,000 $4,400 for trips to Boston, Japan, London and Paris, and for driving $70,000 lessons.

$60,000 • Published the 11th annual Angels Among Us/Our Special Children $50,000 memorial publication.

$40,000 • Continued the White Rose Program and grief booklet series for families whose $30,000 child passed away during the year.

$20,000 • Recognized individuals with MPS and related diseases with Standing $10,000 Ovation awards. Two individuals from each MPS syndrome is honored each $0 quarter, acknowledging their courage, 2004 2005 2006 2007 2008 2009 2010 2011 2012 2013 resilience, tenacity and passion for life as they face the challenges of living with MPS. • Implemented online application platform for Family Support Programs. • Sent the Award of Courage signed by MPS Society President Steve Holland to all individuals with MPS and related diseases.

Pictured: Michael Whitaker-Russell (MPS II) and Loren McClelland (MPS I) 04 Knowledge Is Power

The mission of the Education and Publicity Committee is to provide an array of educational materials and health-related communications. Our commitment is to provide the most current information about MPS and related diseases through multiple resource channels. The National MPS Society embraces forward-moving technology by maintaining a new website, funding video materials and utilizing social media, while not losing site of the essential one-on-one contact with individuals and families touched by MPS.

• Promoted the 7th International MPS • Completed MPS video revisions for • Created the fact sheet Your Donation: Awareness Day on May 15. Courage at Diagnosis, Living with Courage Your Decision. • Launched 3rd annual Facebook and Journey of Hope. • Published the Society’s quarterly contest for MPS Awareness Day. • Presented videotaped San Antonio magazine, Courage, and supplement • Reached out to researchers and family conference presentations newsletters. Scientific Advisory Board on MPS Day. through link on Society website. • Increased and improved website • Provided “What is MPS?” cards to • Updated Daily Living booklet. capabilities. membership via Join the Search • Updated fact sheets: Physical Therapy, program. Transplant, Air Travel Information and Orthopedic Disorders in Children with MPS and Related Diseases.

Pictured above: Celebrating MPS Awareness Day in honor of Jackson Dunn-Kraus (MPS II) Pictured at right: Jocelyn Wong (MPS IVA) with Dr. Paul Harmatz 05

I was pleased to be a recipient of an Extraordinary Experiences grant in 2013 and travel to the Taiwan MPS Society meeting. I met with many representatives from many Asian countries. It was emotional for me as I talked with families from other countries “struggling through their MPS diagnosis. Still, I was able to share my experience with the clinical trial for MPS IVA and remained optimistic amidst our cultural differences. The community of MPS expands beyond the borders of the United States and I am happy to be part of the bridge into the Asian community. So much has changed over the years with the exchange of information between countries and from the Internet, but nothing compares to meeting families in person. Jocelyn Wong (MPS IVA) We donate to the Annual Fund because we are thankful for the National MPS Society. Each year they demonstrate fiscal transparency to donors and are an excellent steward of precious money raised. We “have seen the growth and advancement in critical life- changing initiatives. The Society provides hope for families and empowers advocates with the knowledge of rare diseases. They have and provide connections. We hope to be able to continue to donate to the Annual Fund every year so they can continue with the work of finding cures. Lynn Hopkins MPS I parent Providing Hope 07 Through Perseverance

The National MPS Society recognizes our walk/run and other • Received a three-star charity rating from Charity Navigator, representing fundraising organizers with a big THANK YOU! Our fundraising good performance that exceeds or program provides essential resources for individuals hosting meets industry standards and performs as well as or better than most charities fundraisers. This past year we increased our efforts with the in its cause. Annual Fund campaign and Text to Give, a mobile donation tool. • Supported an active membership The Society continues to embrace the fundraising evolution and roster of more than 700 members. • Raised approximately $388,000 provides our donors, membership and fundraisers the essential through walk/run and fundraising tools for success. With the increased use of social media, the events. Society is able to reach donors quickly. The • Supported 16 walk/run events and Fundraising 57 fundraising events, including: Ask Committee is dedicated to provide support through the Events (two-hour benefit that educates donors and asks for donations), bake following programs: Walk/run, Family Fundraisers, Annual Fund, sales, bowl-a-thons, concerts, golf Planned Giving, Champion a Cure, Mobile Giving, Courage tournaments, tea party, jeans day, bingo, auctions and many more. Pages, Friends and Neighbors, Combined Federal Campaign, • Raised more than $135,000 through United Way and our inaugural platform for online giving, Rally.org. our 2013 Annual Fund campaign. • Incorporated mobile pledging successfully at our annual family Annual Fund Donations conference. • Hosted 22 Courage Pages on the Society’s website, raising $35,000. $140,000 Courage Pages are informative individual family web pages designed $120,000 to raise awareness and funds for the Society. $100,000 • Added a comprehensive fundraising toolkit on our website. $80,000 • Received Combined Federal Campaign application approval. $60,000 • Created a two-minute video and Dollars Raised $40,000 launched a fundraising effort through rally.org platform.

$20,000

$0 2004 2005 2006 2007 2008 2009 2010 2011 2012 2013

Annual Fund Year

Pictured: Hopkins family 08 Planned Giving, Security for Our Future

• Secured our largest Planned Gift, Although 2013 was only the third year for Planned Giving with the $94,000, since starting this program. National MPS Society, at year’s end we had 11 Planned Giving • Included Planned Giving articles in Courage magazine. donors who became part of the Rising Sun Legacy Circle. The • Updated Planned Giving website Society also received its largest gift to be used for a parents’ tools to help members and friends of respite night at our annual conferences and for the Family Support the Society become acquainted with Planned Giving and gifts the Society programs. accepts. Planned Giving helps donors maximize the personal benefits I contributed to Planned of charitable giving and allows donors to make gifts they may Giving because I want to give not have thought possible. Individuals who make planned gifts back to an organization that to the National MPS Society, whether through their estates or was and still is a lifeline for other life-income arrangements, share a strong common bond me. This is to honor my two of generosity that will provide security for future generations. sons, Clinton and Zachary, Building this community of philanthropy helps our donors achieve who have passed away “ their personal vision and desire to give. from MPS IIIA. I was unable to share with them what I would have wished to during their lives. My planned gift ensures improvement in the lives of those who are still fighting MPS, because even with treatments there are still many battles. I’ve watched the incredible progress the National MPS Society has made over the years. Part of our family’s legacy is to help them fulfill their mission. I am so grateful for its existence, purpose and the lives they touch each day, especially my own. Tracy Szymanski with her son Zachery (MPS III), 1987–2004 Tracy Szemanski MPS IIIA parent Reinforcing 09 Our Resources

The Governance Committee provides for the board’s • Implemented a new board of directors review, self-assessment and peer effectiveness and continuing development. The committee evaluation process. recommends board policies and processes designed to provide • Discussed peer evaluation results and provided valuable feedback to each for effective and efficient governance, including review of bylaws, board member in order to improve evaluation of board members, election of board members, and the effectiveness of both the board of board orientation and education. directors and staff. • Oversaw the annual board election process. • Presented “What makes a dynamic groundbreaking nonprofit board?” as part of the board’s ongoing education and development.

The review and evaluation process of the Governance Committee was implemented in order to identify gaps and improve performance of our board members. This “process creates transparency and adds credibility to board decision making.

Lisa Todd Governance Committee chair, MPS II mother

Lisa Todd with her son Jack (MPS II) I am impressed by the passion and determination of this committee. More than 20 meetings were coordinated and every member was prepared for every meeting they attended. Based on the feedback we received, I believe the advocacy efforts of the National MPS Society “continue to be a valuable and important method of awareness, influencing legislation critical to our families. Sissi Langford MPS III mom and former chair of Committee on Federal Legislation Collective Action 11 for Collective Change

The Committee on Federal Legislation strengthens its strong message each year on Capitol Hill. The voice of the National MPS Society is recognized, and it is the committee’s function to be aware and take full advantage of capitalizing on important moments. In 2013, the Society crafted the largest and most diverse disease representative effort that has ever been coordinated for one unified advocacy while attending their annual Washington, DC visits. Legislative Committee platforms include: medical, research, health services, special education and disability policies. Regular correspondence and personal visits with policy makers at the National Institutes of Health, Food and Drug Administration, Department of Education, Social Security Administration, National Organization for Rare Disorders, and other federal and advocacy agencies occur year round.

• Partnered with Rare Disease • Met with 22 senators and 10 House of • Supported formal comments to the Legislative Advocates, a clearing Representatives over two days during Agency for Healthcare Research and house for patient advocacy groups to the annual Capitol Hill visit. Quality technical brief on enzyme promote common legislative issues. • Partnered with other rare disease replacement therapy for lysosomal • Submitted language to the Senate groups in Rare Disease Day activities storage diseases. Appropriations Subcommittee on in Washington, DC. • Updated the website to include Labor, Health and Human Services • Successfully advocated to include rare interactive advocacy for members included in the Significant Item disease language in the FDA draft and contacted all advocates to thank Report for 2014. guidance on accelerated approval. The them personally for advocacy efforts • Advocated for the US Senate to Society launched several initiatives to and invite them to join the legislative continue passage of the resolution to help reach the goal of obtaining more committee. recognize May 15, 2013, as National than 100 congressional signatures on • Created advocacy video for the MPS Awareness Day, as co-signed by a letter to the FDA. annual family conference to promote Senators Graham (R-SC), Hoeven • Supported the following legislative education and engagement with live (R-ND), Begich (D-AK), Whitehouse initiatives: Kids First Research action alerts. (D-RI), Heitkamp (D-ND), Murkowski Act of 2013; Life Span Respite (R-AK) and Boxer (D-CA). Appropriations; Compassionate • Awarded Sen. Lindsey Graham (R-SC) Allowance within the Social Security for his advocacy achievements on Administration; Orphan Drug behalf of National MPS Awareness Day Tax Credit; Undiagnosed Diseases and NIH funding for grants directed Research and Collaboration Network; at MPS research. Newborn Screening Save Lives • Attended the Rare Disease Caucus Reauthorization Act; and the Coalition briefing. Letter on Healthcare Information Technology framework.

Pictured: Sissi Langford with Sen. Graham (R-SC) 12 Making the Impossible Possible

Lachlan Smith, PhD The National MPS Society awarded $530,000 in grant funding for University of Pennsylvania Philadelphia, PA 2013. Funding quality research each year is critical as we move “ Mechanisms of Failed Vertebral Bone forward with our mission to find the cures. We received 48 letters Formation in Mucopolysaccharidosis VII” of intent from researchers around the world for the grants offered. Richard Steet, PhD University of Georgia The Society also funded $25,000 to support the Lysosomal Athens, GA Disease Network’s National Institutes of Health grant. The funding

Dr. Dwight Koeberl is designated for the Neuroimaging Core, which benefits four MPS Duke University projects. A $10,000 partnership grant with the Ryan Foundation Durham, NC “ Adjunctive Therapy for Hurler Syndrome” funded the project of Dr. Elsa Shapiro from the University of Minnesota, “Longitudinal Studies of Brain Structure and Function in Vito Ferro, PhD University of Queensland MPS Disorders.” The Society also provided funding for post-doctoral Brisbane, Queensland, Australia fellows to attend the Gordon Conference on lysosomal diseases. “ Development of Pharmacological Chaperone Therapy for MPS II” A partnership grant with the International Society for Mannosidosis Jeffrey Esko, PhD and Related Diseases was awarded to Heather Flanagan-Steet, University of California, San Diego PhD, at the University of Georgia for her work, “Investigating the La Jolla, CA “Delivery of Sulfamidase to the Brain” role of cathepsin proteases in ML II cardiac pathology.”

Adriana Montano, PhD St. Louis University St. Louis, MO Money Raised and Awarded for Research $600,000 Raymond Wang, MD CHOC Children’s Hospital Orange, CA $500,000 “ Manifestations of Cardiovascular Disease in Morquio A: Evaluation, Assessment and Therapy” $400,000

$300,000

$200,000

Money Raised (5K walk/run fundraisers) $100,000 Money Raised (family fundraisers)

Money Awarded $0 2005 2006 2007 2008 2009 2010 2011 2012 2013

Pictured: Nick Boyce (MPS I) In 2001, my son Nick became a participant in the clinical trial for Aldurazyme®. We were committed to doing whatever was needed to receive a treatment that could possibility stop the progression of MPS I. Over the years, I watched my son’s overall health improve “physically and emotionally. I watched him grow into a successful, confident young man. Enzyme replacement therapy empowered him to take on any challenge and succeed at it.

As we celebrate the 10th anniversary of Aldurazyme, I’m thrilled to also be able to celebrate Nick’s graduation from Providence College. Aldurazyme changed my son’s life and has given him the hope for the future that we all wished for. I’m forever grateful to those who contributed to the creation of Aldurazyme; the impact on the lives it’s changing is immeasurable. Dawn Checrallah MPS I parent 14 Financials The financial information below has been summarized for the year 2013. The Society is a 501c3 nonprofit public charity. The complete audited financial statements and IRS Form 990 are available on request.

Financial Position

Assets Liabilities Cash $ 311,751 Accounts Payable $ 20,289 Investments 1,159,509 Contributions Receivable 15,075 Net Assets Prepaid Expenses 16,477 Unrestricted Net Assets 807,394 Property and Equipment 1,183 Temporarily Restricted 676,333 Endowment Investments 1,000,815 Permanently Restricted – Endowment 1,000,794 Total Net Assets 2,484,521

Total Assets $ 2,504,810 Total Liabilities and Net Assets $ 2,504,810

Activities

Support and Revenue Expenses Donations – General $ 112,868 Program $ 876,173 Donations – Family Assistance 146,971 General and Administrative 190,629 Donations – Research 51,758 Fundraising 125,223 Operating Grant 80,000 Total Expenses 1,192,025 Fundraising 493,651 Membership Dues 32,135 Conference Income 130,640 Sponsored Revenue 38,132 Investment Income 4,755 Total Support and Revenue $ 1,090,910 Change in Net Assets $ (101,115)

Functional Expenses

Education – Newsletters, Booklets, Web $ 86,194 Other Administrative 4% Conferences, Meetings and Travel 206,711 Office and Equipment 3% Direct Family Assistance Education – Newsletters, Booklets, Web 7% and Bereavement 54,329 Personnel 24% Conferences, Meetings Membership Database and Directory 9,145 and Travel 17% Legislative 18,757 Direct Research Grants 386,061 Fundraising 5% Direct Fundraising 60,541 Personnel 279,824 Office and Equipment 41,327 Other Administrative 49,136 Direct Family Assistance Total Functional Expenses $ 1,192,025 and Bereavement 5%

Research Grants 32% Legislative 2% Membership Database and Directory 1% 2013 Contributors 15 …with sincere thanks to our supporters

In 2013, the National MPS Society was able to provide support to families and funding for research because of the generosity of the following individuals, families, foundations, companies, groups and fundraising events. The board of directors and the Fundraising Committee thank you for your dedication and efforts. The Society makes every effort to recognize our supporters through Courage and this Annual Report. If your name is not listed, we apologize and ask that you contact us. The following list represents all donations received in calendar year 2013. If we received your donation in 2014, you will be recognized in the next Annual Report.

Platinum Silver John and Bonnie Hoegl David and Susan Holder $10,000 to $1,000,000 $1,000 to $2,999 Steve and Amy Holland BioMarin AbbVie, Inc. Employee Giving Darlene Holliday Bryson Foundation, LTD Campaign Honeywell International Charity Daniel Molinaro Foundation Amicus Therapeutics, Inc. Matching David and Kiersten Lowe Dr. and Mrs. Mel and Scott and Lynn Hopkins Fund of the Goldman Sachs Millie Anhalt Laura Hudson Philanthropy Fund Anne Lamkin Kinder Foundation Wayne and Lori Hummel Fidelity Charitable Gift Fund AT&T United Way/Employee IBM Employee Services Center Genzyme Corporation Giving Campaign William and Michelle Iglesias Kercheville Foundation Keith and Debra Banks Issaquah Swedish Cancer Orsini Pharmaceutical Wayne and Catherine Bardsley Institute Services, Inc. Joyce Rhodes Barrett Kajima Foundation Shire Human Genetic Therapies Birnam Oaks Foundation Jeffrey and Stephanie Kell Fund of the San Antonio Area Legacy Wealth Foundation Brenda Lacombe Gold Bishop-McCann John and Helen Lancaster $3,000 to $9,999 Richard and Mignon Bosse Lawrence and Peg Lessing AIG Matching Grants Program Brandy and Beau Bozarth Lessing’s, Inc. Alpha Chi Rho Educational Stephanie and Austin Bozarth Jeff and Caroline Lewandowski Foundation, Inc. Chris Brodmerkel Matthew and Shannon McNeil Edward Kimminau (MPS IV) Angel’s Hands Foundation, Inc. CA Technologies Matching Microsoft Matching Gifts Program Baltimore Community Foundation Gifts Program Ray and Amy Miller Bank of America Corporation Rob and Diane Cassil Heath and Kimberly Monesmith David and Pamela Sowder Ross and Hilary Berning Susan and Roger Chapin Leader Mark and Angie Morris Synageva BioPharmaCorporation Marsha and Robert Bozarth Amy and Dan Cherrstrom $500 to $999 Wayne and Pam Morris Jerry and Lisa Todd duAlaska, Inc. Chiesi Pharmaceuticals, Inc. John Abernathy Jim and June Murphy Tracy Szemanski KPMG, LLP Michelle and Don Churchill Mary Starr Adams Austin and Cheryl Noll III The Inner Circle Matt and Stephanie Mays Joan Cook America’s Charities Travis Parigi The Meyer Foundation, Inc. Joe and Jan Melnyk Caroline Dabney Armorel School District No. 9 Jo Anne Paterniti Thomson Reuters Morgan Stanley Smith Barney Ron and Barbara Dengel Artisan Home Resorts Bill and Betsy Pelham Herbert Tilsner Global Impact Funding Justin and Gina Develin Robert and Marjorie Austin Jr. Mark and MaryEllen Pendleton David and An Tootill Trust, Inc. John and Beth Devoe Automotive Booster Club B-20 Linda and Dave Perry Ultragenyx Pharmaceutical Donald Myers John Downing Brenda Baker and Steve Baum Pershing Mary Ellen Vernon Austin and Dorothy Noll Jr. Ernie and Debbie Dummann Mr. David Beatty Thomas and Stacy Peters Dawn Watkins Premier Source, LLC Pat and Kathy Dunn Michael Beiting PG&E Corporation Mr. and Mrs. Don and Lisa Wells Progress Energy Foundation Carrie Dunn and Melissa Kraus Elliot and Lindsey Berke Ryan Pierce Wells Fargo Advisors, LLC PSHS Softball Booster Club Dutch’s Daughter, Inc. Lee Bloemendal, MD Barbara Pryor Wells Fargo Bank, N.A. R.A. Bryan Foundation Betsy and Steve Fowler Myrna Borman Paul and Katie Rector Harold and Janet Whartnaby Sam and Nancy Ramsey Genworth Foundation Richard Bosse Robert and Elizabeth Rigney Amy and Klane White Streblow Family Foundation Sharon Glasscock Burnside First Church of God, Inc. James and Courtney Robertson Tom and Kim Whitecotton Vitaquest International, LLC Greencross Corporation Gregory and Therese Calvelo George and Athena Sarantinos Gordon Wingate Luis and Angela Guajardo George Gary Card Mr. and Mrs. Arthur Schechter Russell and Alice Witt Hamilton County Firefighters Liam and Mary Cavanagh Siemens Caring Hands James and Carol Yard Local 4416 John and Lisa Ceniceros Campaign Jim and Amy Yard Sabrina Hanitz Citigroup Payment Services Slumberland Helping Hands Ministries Clare Rose, Inc. Jack and Barbara Sorter Walter and Gretchen Clayton

continued >> >> ClearView Healthcare Partners Kiwanis Club of Poquoson Upper Moreland Township Cheryl Sena and Peter Cario Paul Harmatz, MD on Washington Street Donna Kleinert School District Tony and Shirley Catanzarite Charles and Maren Harrison Christine Clettenberg Brian and Kristine Klenke Michael and Kelly Van Buskirk Cecilton Lions Charities, Inc. K. and V. Hartz Sharon Cochenour Clint and Nikki Kremer Waldman Hirsch & Company, LLP Century Carpet, Inc. Jennifer Hemingway Cynthia Cochran John and Helen Lancaster Dorsey and Brenda Walker Children’s Healthcare Samuel and Keri Henderson Country Road Park Michael Lange Barbara Wedehase Jennifer Claffey Jim Hensler 16 David Crotty Victoria Lange Eric and Linda Wright Mr. and Mrs. James Clark Jr. Hewlett-Packard / YourCause Lynn Crumling John and Stephanie Leavelle Yard Associates, Inc. Comcast Corporation Kathleen Hillyard Ralph and Jane Daniels Dawn and Ross Lipenta Holly Zollman Amy Cooper Horizon Lines of Alaska, LLC Patrick and Debi Dee Gene and Cynthia Logan Lauren Cronmiller Jennifer Hutcheson Deloitte Services, LP Howard and Jean Madsen Carey and Mary Crumling John and Yvette Iannelli Thomas and Kimberly Dickson Daniel and Barbara Maher Volunteer Zoran Cupic W. Andrew and Lauran G. Jack Kathy and Paul Dobrowolski Esther McDougal $250 to $499 Richard and Mary Daly Jacksonville Elementary School Jani Domire Chris Meyerpeter Abbott Fund Sheri Day Jewish Communal Fund Julie Dopheide Midland Township Fire Dept. Abbott Laboratories Employee Linda Delp Joe Levit Family Foundation Thomas and Judith Downs Rob and Sharon Muller Giving Campaign Jeff and Anne Denneen Jill and Shay Johanson Nancy Dunn Ted and Kathy Nace ABC Pediatrics of Ohio, LLC Jerry and Sue Deutser Sally and James Johnson Kara Echols Susan Narducci Ryon and Caroline Acey Jaymie and Troy Dietrich Kanawha River Terminals, LLC Joseph and Janeen Eisler Sharon O’Connell Richard and Claudia Ackerman Bonnie and William Doster Beth Karas EP Energy Fred and Ronda O’Donnell Stuart and Karin Adams Dunn Contracting Christopher Kenworthy Elia Margoth Espinola Christopher and Lynda Papoi Tim Adams Carla Ellard Kevin’s Auto Sales & RVs Kayla Foltz Thomas and Vickie Patterson Helen Allison Charles and Josephine Ellard Sheri and Chad Kizer Lennie Forkas Principal Combined Fund Cynthia and Randy Anhalt Toni Ellard Joel and Lisa Klessens Joseph Gamble Organization Arkansas Elder Outreach of Empire Merchants, LLC Knights of Columbus Council Greg Givens Don C. Pung Little Rock Amy English Fred and Joyce Koehler Gregory Glyman Ben Ramsey Astoria Federal Savings Rosalbina Espana Ellen and Allan Krech Tom and Anne Gniazdowski Randall’s Home AXA Foundation Lee Evans Mr. Doug Kreul Eugene and Frances Goldfarb Improvement, LLC Sandra Babel Kristine Fair Mary and Jaime Lambea Greater Houston Community Kenneth Ray Raysteel Inc. Jessica Bailey Hildegard Penhallurick and Carrie Langsam Foundation Lonnie Rodrigue Baird and Baird, PSC Joseph Filebark Dawn and Philip Laorenza Greenwood Building Company James and Pamela Rogers Bank of America United Way Bart and Sally Finzel Lori Caldwell LeDoux Pam and Richard Gross Stacy Sadler Campaign Donald and Romona Finzel Douglas and Grace Lessing Wallis and Monica Hampton Leonard and Ann Sanchez Shawn and Amy Barkley Rod and Kathy Finzel Joan and Mark Lessing Adam and Jodi Harrington Sanofi Foundation for Margaret Barry Pamela Floyd Charles and Kendra Lesta Jason and Rebecca Harrington North America David and Flori Beauchesne Janet Forde Timothy Lethin DDS APC Harris and Associates, Inc. Michael Schleter and Terri Klein Bedford Presbyterian Church Tim and Tish Foster Levelthree Solutions Mark Haskins, DVM, PhD Alex Sinaiko Deacons Foster Poultry Farms Kathryn and Hai Lieu Joe and Beverly Herndon Mike and Barbara Smith Bill and Kay Bemis Gerald and Luella Gabriel Jenn and Jamie Lipscomb Cara Hillyard Thea Stuedli Michael and Danielle Berster Georgia Gampe Donald and Karen Louden Dr. Christine Ho Dr. and Mrs. Larry and Cheryl Bien Jean Gardner Chuck and Nancy Lukondi Kevin Hogan Mary Sweeney Suzy Blecha Joshua and Diana Gardner Barbara Lyons Sloane Hurst Stuart Swiedler and Judy Weiss Marie Bonville Roslynn and Timothy Garvin Jane Mabbitt Julie and William Johnson Alan Taylor Bottomline Technologies, Inc. Gary C. Johnson, PSC Stockton and Danielle MacInnes Gary and Paula Kacer Teamsters Local 959 Bright House Networks LLC, Kevin and Andrea Gates Donald MacMillan Paul and Nga Keith The Triumphant Fellowship Central Florida Division Gerbert, LTD Robert Harvey and Mr. and Mrs. Wendell and Church Caroline Butz Shane Gibson Roxanne Maffitt Karen Keith Timothy Schaffer, Inc. Roofing Mark and Stephanie Caldwell Fredric Gilde Kathryn and Kevin Maher Bob and Ginger Kell and Siding Camden Fire Officers Association Andrew and Jennifer Graser Marantha Bible Church Kelly King Insurance Services Albert and Betty Tully Capstan Financial Consulting Phil Haddad Gary and Sunni Markowitz Richard Kernstock United Way of the National Group Mahwish Hamlani Josephine Marzetti Larry and Susan Kirch Capital Area Ronnie Caress Lisa Hansen Tom Kirch continued >>

Synageva MPS IIIB Patient Advisory Board >> Phil and Ellen Marzetti TelAlaska Ann A. Bockrath, DDS, Inc. Mike Brueggen Keelin Cromar Cooky M. and Howard Mays Leonard and Linda Terrien Apex Chamber of Commerce Bob and Ann Bryan Bob and Denise Crompton Jamie, Marty and Hal and Laura Thorsrud Betty and Barney Arceneaux Nancy Bucher Robert G. Croyle Cara McGuinniss Dave and Hiromi Tilsner Darrell Archer Gerard Budzien Brett Crozier Carroll McLean Jerry and Shirley Todd Archer Byington Glennon Molly Budzien Celeste D. Crutchfield Lily Lou McMurrey Trupointe & Levine, LLP Michelle and Gerard Buechel Christina Crutchfield Marvin McMurrey Jr. UBS Matching Gift Program Sharon and David Armendariz Raymond and Kathleen Buehler Jasmine and Emmanuel Cuffee 17 William and Karen McNeil United Way of the Capital Region David and Stacey Aronson Kathryn Bullard Noel Cuffee Marcia Mederos USA Couriers AT&T United Way Employee Susan and Dennis Burke John Cullerton Medical Marketing Kenneth and Barbara Velten Giving Campaign George Burns Ben Dahlmann and Ken Huggins Holdings, LLC Paul and Sue Verst Elizabeth Atkinson Liza Burns Stephen and Jennifer Dailey Memorial Hermann Veteran Property Services, Inc. Atlas Flooring, Inc. Rosemarie Buzzeo Dalburg family Health System Sent and Mary Visser B&M Trailers, Inc. Patrick and Karen Campbell Douglas and Jennifer Daniels Mid-State, Inc. Bob Ward B.E. Warfield Contracting Thomas and Kristine Cantwell Pamela Daoust, TTEE Sean and Piper Miller Steve and Martha Waters Joe and Susan Babic Barry Kahan and Marsha Capen Richard and Kara Darrell Barry and Carol Mitchell Paul and Kristin Wehrle Jeffrey and Caryn Bacon Mike Capri Kathryn and Tim Davidson Hugo and Marylyn Moer Tom and Theresa Weisenbach Ethert and Pauline Baird Kyle Carbert Darin and Lisa Davis Nancy Mondry Claude and Roselyn Wells Nathan and Marianne Baker Brian Caress Pat and Thomas Davitt Morgan Stanley Michael Williams Mark and Alberta Balliet Van and Renee Carmean Linda and Dan Day Theresa Morris Mr. and Mrs. Hubert and Joseph and Jacqueline Balukin John and Barbara Casino Jessie Wallingford Dean Olivia Munson Elaine Willman Laird Barber Maria Castillo Chris Debo Sean and Stephanie Muth Woodstock High School Jeffrey Bardsley Heidi and Keith Caswell Elizabeth DeFazio National Organization for Athletics Amy Barkley Cavanaugh Fundraiser John and Amelia DeFilippis Rare Disorders Woomer Insurance and Dwight and Debbie Barkley for Allison Jack and Gayla DeFoe Nave Newell, Inc. Financial Services Heather Wiesman-Barr and CBB Towne Lake, LLC Cynthia and Eugene DeFrank NCB Denis Yevstifeyev Nathaniel Barr Blakesley Chappellet Susan and John Demchak Elizabeth Neufeld, PhD Hewlett-Packard Matching Bernard Barrett Charter Oak Cindy and Alfred Dennison Oracle Corporation Matching Gift Program Kay Barry Dawn Checrallah Daniel Desko Gifts Program Nancy and Stephen Zollman Michael and Sally Bartlett Christian Life Church Robert Desnick, MD, PhD Our Country Home Lillie Hall Louis and Patricia Bartoshesky Alan Chynoweth Eric and Sheila DeVolder Russell and Alice Pae Rita and Mike Basom Michael, Margaret and Henry and Barbara DeVries Mary Jo Page Friend Jim and Maureen Basting Grace Ciacciarelli Diamondhead Bridge Club, LLC John Pagliero $100 to $249 Peter and Jackie Bates Ciao Pizza Italian Restaurant Anthony and Melissa Dicarlo Lisa Peluso 32 West Auxiliary, Inc. Ruth Bauerle Cinetel Films, Inc. Dick’s Sporting Goods Alan and Diana Pendley A+ Outdoor Services, LLC Donna and Don Becher Scott and Shirley Circle Brent and Leysa Diel Patty Phillips A-1 Delivery Services Stacey and Jeffrey Beer City of Seattle Darrell and Kay DiStefano Aimee Picard A1 Light Truck & Van Parts, Inc. Daniel and Cynthia Belmar CJTJ, LLC Janice Dittmar Jorge Portilla Abarta Oil and Gas Co., Inc. Louise Berezny Joseph and Paula Clarity Margaretha Dodge Post Oak Dental William and Catherine Abernathy Jason and Pamela Bespalec Donald Clark Barbara Donnellan Precision Excavation ABRH Lorraine and Frank Bien Col. John and Susan Clarke Dorado Sales Corporation Lawrence and Annette Pung Richard and Claudia Ackerman Jean Bienaime and Jennifer Kano Kent and Karlene Classen Dean Doty Ramsey Charity Bakers Action Air Conditioning of Big Blue Motor Sales Stephen and Denise Clayton Heather McTavish Doucet John and Debby Ratto Sarasota Big Sandy Rural Electric ClearView Healthcare Partners and Shane Doucet Chris and Kristin Raydo Accurate Data Networks, Inc. Cooperative Corporation on Newton Place Christine and Raymond Downey Marney Reid Michael and Stephanee Adams Mary Bishop Healthlink Mary Shine and Thomas Cleaver Tom and Darla Dressman Richard and Carol Riazzi Aisin Drivetrain, Inc. Bretaigne Black Caraline Cochran Betsy Drew Keith and Sherri Richbourg Jeff Ajer David Blight Ross and Belia Coddington duAlaska Company, Inc James and Mary Risbon Mr. and Mrs. Dean and Bob Utter Lincoln Gregg Cohen Stephanie and Joseph Duffy Robert Gresham Agency Kathy Aker Mike and Grace Bodura Jerrold and Marilyn Cohen Alton and Sandra Duncan Adam and Michelle Rogers Grant and D’Ann Albright Herbert and Rosemary Bohannon Margaret Cohen David Duncan Paul andElizabeth Royer Ann Alden Thomas and Diana Boland Mr. and Mrs. Arland B. Coleman Henry and Toni Duperier Alfred Saenz David Alden and family Rocco Colicchia Brice Dupoyet SanMar Corporation Debbie Allen Katherine and Joe Bonville Sally Combs Peter D’Urso Sarasota Ford Super Center Peter and Maria Allen Thomas and Joyce Boster Ina Concaugh Sonya Earl Phillip Schnelle Allstate Giving Campaign Dennis Boyd Mark and Theresa Connaughton Brian Earley Arthur and Marilyn Sheekey American Legion Riders Post Crissy and Kevin Boyles Jeff and Julia Conner Kimberly Earls Siemens Caring Hands Giving American Publishers of Sharon Brack Esther Conrad Herman and Mary Earwood Campaign Iowa, LLC Ann Braff Contract Options Jere L’Heureux Stephen Eason Sheila Slawson Tracy and Jody Ames Dale and Myriam Brandt Billy Cook David and Stephanie Eiswert Sleeping Lady Mountain Lions Leti Amideo Lewis Brazelton III Janet and Leo Cook N. Matthew Ellinwood Timothy and Amy Small Amy’s Chickabiddy Marc and Beth Brdar Dr. and Mrs. William and Richard and Karen Elliott John Specht Kevin Andersen Ann Bresnan Peggy Cook Tara and Jack Elston Jan Spin Claude and Marie Anderson Chad and Keri Briskovich John Cooper Margaret Embardo Roseanna Spizzirri George and Gail Anderson Daniel and Debra Brockman Gary and Linda Corbett Michael Epstein Diane and John Stabb Ginger Anderson Curt and Lou Ann Brooks Bruce Cormack EQT Foundation Jeremy Stearns Ralph and Martha Anderson John and Judie Brooks Bruce Cortright Equinox Group, Inc. Darlene Sweeney Sheryl Androphy Ryan Brown Coventry Corners Sandra Erber Robert Maiden and Mr. and Mrs. Gerald and Brownstown Quality Tool Lee Cowen Anne Ervine Becky Tanamachi Susan Anhalt & Design, Inc. Bob and Laura Cowin Hally Ervine Paul Tashima Phil Anischenko Bruart Collision Billi and Jeremy Crockett Lisa Ervine

continued >> >> Jeanette Espinola and Karen Graven James and Saundra Huff Karl Kunkle Andre and Melissa Marcotte Fredy Henriquez Rose Marie Greco Kaye Hughes Jody Kussin R.L. and P.J. Mariner Olen and Donna Evans Paul Greely William and Margaret Hughes KY Wide Heating & Cooling Allyson Mark Brian and Jeannette Fantl Peggy and James Greenbaum Humana Rick and Nataliya Lacroix Jennifer Marsh Michael Farmer Sydney Greenblatt Jonathan and Marie Hunt Andres Lambea Marsh and McLennan Agency Maureen Farni Agnes Greene Hunter Family of Companies John and Joyce Lane Keith Marshall 18 Robert and Amy Farrell Richard Greene Casey and Jason Hurst Donna Kay Langan Clayton and Iva Martin Pamela Farthing Leonard and Phyllis Greenstein Michael Hurwitz Sissi Langford Loretta Marzetti Grant Faulconer Greg Krockta Woodcarving, Inc. Hutch Chevrolet Buick - Trenton and Katy Langkamp Dorothy Mask Debbie and Mike Faulhaber Ted Gregory GMC, Inc. Terry or Jo Ann Lapp David Massa Anthony and Irene Feduccia Mrs. Julianne Grundfest Warren Hutmacher Martha LaRue Ernie and Sherri Massa Dennis Feerrar Guardian Security Systems, Inc. John and Janelle Kunellis Rick and Kum Cha Lash William Massa Jr. Phyllis Feibelman Tesa Guevel Rocco Imbesi Catherine Latella Caroline Masur Louis Fenerlis Stanton and Jean Gunnells IMU Social Media Kenneth and Julia Lawhorn Sam and Holly Masur John and Wendy Ferguson Christopher and Patricia Guyre Independent Land Surveying Robert and Katie Lawson Winford Matthew Ferguson Mini Storage Rita Haan J&L Insulation L.B. Foster Milne and Janice Matthews Marlene Finger William Hagerman Olivia Jackson Benton and Dorothy Leach Michael and Deborah Matyas Deborah Finney Mick and Shirley Hagermann Mahta Jahanshahi Chris and Anna Leatherow Jack May Gail Finney Christy Stephens and Jerry Hall D.P. Jarrell David Lebec Mayer Agri Equipment, Inc. Ken and Kate Fischer Sheryl and Gerald Hall Dr. and Mrs. Alan and Doug and Angela Lee Bryan and Alma Mazur Michael Fischer Alan and Lori Halvorsen Pam Jarrett Charles and Michele Leestma Ben and Elizabeth McAndrew Greg and Sarah Fletcher Tanya Hammen Shawn and Pamela Jennings Eric Lefkof Pat McCann Holly Fletcher Timothy and Betty Hammer Trisha Jensen Vicki Leigh Eyewear Unlimited Frances McCauley Maria and Steven Foshay Thomas Hanzlick Aleck and Stacey Johnson Ken and Julie Leighton Cathie McCloskey Larry and Marjorie Foster Happy Faces Children’s Center Kevin and Beth Johnson Laurie and Mike Leiva Stephen and Marie McClurg Donald and Mary Jane Fowler Dan and Connie Hardesty Johnson & Johnson Mel and Vickie Lemos Chester and Beth McCormick Jamie and Jason Fowler Billy and Diane Hardison Dennis and Debbie Jones Monica Leone and family Brooke Mcdonough Jeff Fowler Virginia and Jason Hardwick Fred and Phyllis Jones Brian Leske Daniel and Anne McIlroy Ronald and Sheila Francis Rodney and Donna Hardy Mark and Brenda Jones Velva and Fred Levine Samuel McKay Russel and Rebecca Francois Raymond and Tracy Harmon Dan and Nancy Jordan Roy and Janine Levitch Raymond and Amanda McPartlin Frank Hager Insurance Stacie and Steve Harris Stephen and Wendy Joseph Alan and Libby Levy John and Susannah Mechem Michael and Karen Frey Harris and Eliza Kempner Fund Kathleen Joyce Kay and Joel Levy John and Jenny Mehling Emily Fritz James and Kelly Hart Jtee’s William Levy Lance Melching Ian and Shelly Fritz Shelby and Tim Haslett Junior Womans Club of Hilton Raymond Lewand Jr. Kenneth Merola Tatiana Froud Jeni Hasselbrack Village, Inc. Michael and Karen Lewandowski Dianna Messenger Thad Fuller Karen Hauer Mark and Ellen Kalish Alyson Lewis Adam Mickelson G & F Carpet, Inc. Steve and Michelle Hayes James and Mary Kalteux Barry and Barbara Lewis Frank and Jane Middleton Heather Gaillard Andrea Haynes Jerry and Pat Kanney Mary Libbey Joe and Paige Migliozzi Terry Davis, Jodi Davis and Shawn Healy Joan and Marvin Kaplan Liberty Savings Bank Clifford and Kellie Miller Cari Gainous Punkin and Walter Hecht Mark and JoBeth Kaplan Adam and Sally Lieberman Donald and Joan Miller Cathy and John Gallo Judy Heitman John and Janet Kappel Liller Construction, Inc. Jeff and Chris Miller Thomas and Sylvia Gamache Mary Herrero Sara Kardashian James and Debra Lindsey John and Rosalind Miller Garage Floor Coating of D. Lane Hersey Jay and Gerry Karkowsky George Lino Kristin Miller Atlanta, LLC Mark and Darlene Hesprich Raimund and Inge Kasner Christy Little Richard and Beverly Miller Hector Garces Lester and Travis Hewitt Sean Keenan Robert and Joan Littlehale Sandra Miller W.R. and Pamela Gates Highplains Land, LLC Cristina Kell Livewire Fitness Patricia Mioduch Robert and Florence Gauthier Brady and Emily Hoak James and Sharon Kellock Gregory and Susan Lock Jeffery and Shaney Mitchell Tracey Gegenheimer Robbin and Anita Hodgkins Stephen Kennedy Eugene and Shirley Long Ray and Lorna Mitchell James Geissner Jay and Judy Hoeschler Ardis and Henry Ketterer Michael Longo Nancy Monbry Gemelli Fine Foods, Inc. Chris and Melissa Hogan John and Marilyn Kilner Richard and Mary Losee Eric and Amber Mongan Genentech Givingstation Michael and Sandra Hoisington Brad, Jeni, Eddie and Helen Loughran Ilsa Monteith Dean Genes Holcomb Real Estate Services Makena Kimminau Tushar Lovalekar Matthew Mooney Rick and Debbie Germaine Nancy Holland Margaret Kinal Catherine Lovoi Tracy and Ruth Anne Moore Matthew Giangrande Cathryn Hollfelder Ian and Tracy King Eleni Lucido William and Mary Moore Alan and Karen Gibson Tom and Jackie Holt Patrick King Adrian Lufschanowski Richard and Eva Morgan Dennis Gilfoyle Raelene Holton King’s Trucking & Excavation, Inc. Elena Lukondi Glenn and Debra Morris Jeffrey and Christine Gill John and Mary Hoover William Kiray John and Rosemary Lykos Jr. Ron and Chris Morrissey Give With Liberty Employee Joe and Tina Hopkins Judith Kirby Lance and Karol Lynch Mountain Pediatrics Donations Mark Hopkinson Susan and Sam Kirsch M & F Bank Ian and Holly Munro Glassboro FOP Lodge 108 Lori and Jonathan Hops Nancy Kitko Rene and Patricia M’Sadoques Michael and Anita Muonio Jodie Gleason Donald and Phyllis Howard Earl and Doris Klenke Chris and Cathy Maat Dan Murphy Katherine Glennon Lois Howard Melony Knapp Mark and B. Jeanette Mabie Doug Murphy Morris Glesby Lou Howard Susan Kolkmeier Tom Maciel Lester Kathleen Murphy Gloucester County PBA Todd and Jennifer Howard Gayla Kraetsch Hartsough Patricia Madeux Steve Murphy Local 122 Bonnie and Frank Howarth Andy and Meg Kramer Barbara and George Malina David and Cathy Musselman Thomas and Jean Gniazdowski Connie Howe Jonathan and Jenna Kratsas Mallard Creek Presbyterian Teresa and Jonathan Musselman Carol Gold Thomas Greiner and Brian and Jana Kregel Church Circle of Rebekah Kelsey Myers Ilana Goldberg Rachel Howell Elizabeth Kregel Joseph and Jeanne Mallia Maxine Myers Barbara Goldfield Kerry Hrenko Steven and Lynn Kregel Carolyn Managan Carol Nareski Toni and James Graham Timothy and Gina Hudson Mary Kuhn Evangelia Manioti National Christian Foundation

continued >> Adam and Lisa Pollock Christine Savage Calvin and Connie Stroble Megan Pollock Darrell and Patty Saylor Pauline Stukus Thomas and Sharyln Pope JoAnn Scarpelli James Stultz Angeline Cook and Ken and Terri Schaefer Caroline and Bernie Sullivan Elizabeth Porter John and Karen Schirripa Ashley Summers Potomac Combined Federal Alan and Deborah Schmidt Cindy, Dallas and Kirsti Summers Campaign Jacob and Madeline Schmidt Supreme Lobster 19 Karen and Jack Primm Mary Schmidt Lisa Sweeney Progress Energy Service Joanne Schreiner Sarah Swindell Company, LLC Robert and Lori Schrock Mary Tai Flossie Pryor Larry and June Schultz Jackie Tanghe Virginia Purcell Maurice and Christina Sciammas Ann, Hannah and Grace Tate Barbara and Keith Pushee Sue and John Scott Bob and Barb Taylor Tamela Putnam Louis and Nancy Scudieri Curtis and Michelle Taylor Q-S Technologies Nicole Scully Denise and Stephen Taylor Ian Quartermus Timothy and Melinda Scully William and Deborah Testerman Thomas and Erin Quinlan Stacy Seaberg The Circle of Mary Steve and Laurel Radius Matthew and Christine Seabrook The Equipment Superstore Jennifer Radtke Eloise Searls The GE Foundation Janet Rafferty Secant Medical The O Street Museum Foundation Heather Leigh Photography Christian and Constance Seger The Prudential Foundation Joyce Randall Brady Seidl Matching Gifts John Randles Alice Small and Terry Seitz The TM Group Sue Rattman Andrew Selzman Sherry and Charles Thelen Lila Rauch Lynn Ann Sembach Marcus and Rebecca Thomas Celeste Raydo Sewell Motor Express Richard and Kathleen Thomas Elaine Reed Marcy Shaner Jeannie Thompson Stella Reeve Gary and Cindy Shaw Robert and Nancy Thomson Jon and Vickie Reif Laura Sheffield Sheila and Michael Thornton Board members Roy Zeighami and Gordon Wingate in Gary Reisenberg Carolyn Shelton Three Rivers Medical Washington, DC William and Suzanne Reiter Elizabeth Shelton Daniel and Elizabeth Tieman Bonnie and Ralph Rennaker Roger and Tara Shultz Timothy and Gretchen Tierney >> Karen Navas Rick and Debbie Pastura Chip and Wendy Rennaker Shirley and Hymie Shwiel Mark Tindell Ross Nelle Melvaree Pate Dianne Renzi Nancy Siegfried Fern Titus Sheri Neu Nishant Patel John Reuscher Robert and Frankie Sies Elaine Troy New Vienna Buckeyes 4-H Club Joseph Patrick Horace and Carolyn Richbourg Mark and Stacy Simmons Barry Trygar Scott Newar Stacy Patrick Douglas Richmond Robert and Kathryn Singer Laura and Michael Tuccillo Andrew and Joyce Nielsen Jessica Pecyna Judith Ries Ann Sirota Eric and Laurie Turner Noonan, Brockman & Pollock Pediatric Dental Associates Patricia Rigby Chet Sizer Tim and Cindi Turner DDS, Inc. Pediatric Health Center Ron Rineer Jackie Skodny Two Men And A Truck Anne Novak Peelle and Lundy Realtors Ava Rinehart Alan and Lynn Skolnick United Way - Valley of the Sun David and Mona Noyes Paul Pelphrey Rosemary Riney Burt and Leenie Skolnik United Way of Monongalia & Daniel and Pamela O’Brien Jeffrey and Paula Pennock Gary and Bonita Ritondaro Joel and Karen Slossburg Preston Counties Daniel O’Donovan Perkasie Lions Club RMH Marketing & Media Charles Lopez and Laura Sluzas United Way of Palm Beach Bernard O’Hara Gregory Perkins Robert R. McCormick Foundation Steven and Carol Smith County, Inc. Karen O’Malley John Perry Sara and Patrick Roberts Virginia Smith United Way of Southern Thomas and Barbara O’Malley Personal Assistance Services Jared and Breanna Robinett George Smolen Kentucky, Inc. James and Mary O’Rourke of Colorado Liana and Travis Rock David and Sandra Smyth United Way of The Virginia Michael and Mary Ellen John and Diane Pesarsick Kay Rogers William Snyder III, Kristen Hunt Peninsula O’Shaughnessy Kent and Nina Peter Sherrie and Tony Roman and Linda Snyder Michael and Veronica Vacca Eileen and Larry O’Steen Brady C. Peters Carl and Donna Rose Gordon E. Snyder Jr. Erin Valdez Ann O’Malley Robert and Irene Peters Kerri Rose Arnold Snygg Robert and Lorraine Vanatt Glenn and Cara O’Neill Susan Peters Peter and Rosemary Rotelli Daniel Soliday Michelle and Alan Vitulich Karen Oberhausen Janice Peterson Hickman and Carey Rowland Stuart and Gina Solomon Joann Viviani Jeri Davidson and Lee Oehler Jim and Debbie Petrigala Brian and Stephanie Rubinstein Suzanne and Jan Sorige K Vojack Constance Offenbacker Thao Phan Bert Rucker Southern Protective Group, LLC Jerry and Sue von Handorf Mary Anne Oliger Vernon and Patricia Phillips Jim Kremers and Sally Rullman Joshua and Sheri Sowden Joseph von Handorf Heather Ollison Dennis O’Donnell and David and Julie Russo Larry and Janice Spadt Mary Beiting and Floyd and Barbara Olsen Robyn Piasecki Holly and George Russo Tracy Szemanski Jeff von Handorf James Olson, DDS Zachary Piefer George Rustay Curtis and Marilyn Speed Robert and Amy Voso Wauneta Ortloff Dan and Pam Pierce Kathleen Ryan Myra Speer Ronald and Sharon Voss Virginia Osborne Piller Plastics, Inc. Douglas and Trang Tran Sabel Larry Stabb Beverly Waddell Donald and Marybeth Owens Harold and Faye Pinkerton James and Leiselle Sadler Michael and Cindy Stachowiak Michael and Rhia Wagner Mr. Ozzgod Dr. and Mrs. Anthony and Deborah Saeger Alberta and William Stanley Brick and Kim Wahl Robert Pace Latona Pisa Sushil Sagarwala Meghan and Billy Stark Becky and Chris Waibel Marie Palladino Matthew and Teresa Pitner Michael and Nicole Saldamarco Bob and Susan Steiner Terry and Nancy Wain Tom and Barbara Palmer Beth A. Pletcher, MD Rhonda and Mark Sampson Arthur Stephan Ken and Courtney Walker Jeanne and Bruce Palzer Cindy and Bill Plunkett Stephen and Kate Sande Kenneth Stewart Robert Wallace Andrea Papa Mike and Sharon Poggi Allison Sapp Maureen Stickney Joseph and Harriet Walsh Shana and Doug Parker Vernon Pohlmann Dr. and Mrs. A.L. and Stacy Stone Zhanzhi Hu and Pei Wang Angela Sarantinos continued >> >> Jim and Kathy Ward Donor Jennifer Barkley Mr. and Mrs. Hubert Brasseaux Julie Cannistra Kenneth and Victoria Warner Valerie and Steve Barnett Samantha Bratter Keith and Jennifer Cantin $26 to $99 William and Rosemarie Shirley Barr Elizabeth Braunlin Gustavo and Maria Elena Robert and Patricia Aaserude Waterbury Shari and Jason Bassermann Timothy and Nicole Brennan Cardenas Dagoberto and Josefina Abreu Gayle and Kenneth Watler Charlie and Danielle Bateman Allison Bresnahan Carey Hearing Centers, LLC Lee Ann and Derek Adams Melodie Watson Keith Chanoch and Donna Brinkley Barbara Carichner Kenneth and Donna Ahles Linda Weaver Caren Bateman David and Mary Bristol Gregory and Leslie Carlson 20 Zainab Ahmed Weaver Brothers, Inc. Jody and Mark Batton Donnie and Patty Brock Michael Carlson Lise Aissen Ann Wedig Megan Bauer Gray and Donna Brookshire Scott Carney Lorena Alarcon Jeremy and Jill Wood Weishaar Herschel and Gloria Baughman Allison Brown Carolyn Carniaux Terry and Karen Alexander Mark and Jill Weiss Lucille Bohr and Kristine Bauman Ann and James Brown Sr. C. Patrick Carroll Ron and Betsy Allen Sid and Leslie Weiss Alice and Ron Beam Douglas and Marisa Brown Kenneth and Patricia Carter Gregg Allison Gary and Tracy Wells Tammylee and Nathan Beam Heath and Paola Brown Drs. William and Jennifer Carter Jaya Allken Wells Fargo Community Wayne and Pamela Beard Karl and Kathleen Brown Kevin and Kathy Casey Allstate Giving Campaign Support Campaign Douglas Bech Brown Charitable Foundation Ryan Caso Lisa Ambrose Stephen and Jane Wendel Samuel Becherer Mr. and Mrs. Robert Brown Mr. and Mrs. Laurence and American Bank of Texas Chrstine and Adam Wernersbach Susan Beckmann Sharon Browne Helen Cass Nancy Anderson Jana and David Wertzberger Lynn Bell Delbert and Jody Brownfield Marcy Cassaro Richard and Carol Anderson David and Nannette Wheelis Jessica Benitez Ryan and Kari Broze Ashley Castle William and Margo Anderson Lewis Whitaker Jr. James and Beulah Bennett Robert and Marianne Brulhardt Denise Caswell Jane Andrews Mack and Linda White John and Alicia Bennett Brenda Brummett Anthony Cataldi Sr. Nancy Andrews Sara and Thomas White Jack Berger Vaughn and Nancy Bryson Joe Cavanaugh Timothy and Michelle Annis Darrell Whittle Linda Berger Dick Buchanan Kathy Cavanaugh Wendye Anttila Barbara and David Wiedman Patrick and Kathryn Berger Leonard Bujnicki Jr. Bethany and Chet Chambers Aon Foundation Ron and Kim Wiest Don and Nina Bergquist Larry and Myrl Burdett Lewis and Ann Chapman Don Applegarth William Rice and Lynette Wigbels Daniel and Esther Bergstrom Donna Burgess Andrew Charest Silvia Aquino Thomas Will Ralph and Alice Berkman Carrie Burke Ben Charlesworth Barbara M. Arbo Eileen Williams Joel and LeeAnn Bernbaum Paul and Nancy Burke Steve and Karole Chesser Lonnie Arnett John Williams Lloyd and Janet Berning Jennifer Burnett Frank Chovanetz Darcey Arnold Kim and Jeff Williams Laurie Berry Linda Burtt Karen Cicciarella Nancy Arnold Teresa Williams Virginia Berry Smith Tony and Claudia Busse Kirk Vogel and Ruth Clancy Sue and Don Aron Roger Riale Jr. and Jennifer and John Besse Sharon Butchko Meg Clark James and Sarah Ashe Laura Williamson D.J. and Colleen Bickers Kevin Byrd Patricia Clarke Richard and Danna Atherton Shirley Wirkler John, Jenny, T.J. and Byrne & Shaw, PLLC Rebecca Clarke Atlas First, LLC Allen and Grace Wirth Molly Birmingham Emily Byrnes Ruth Clarke Matthew and Lindsay Austin Barbara Wischmeier Brian Birtell Mr. and Mrs. Richard and Steven and Jennifer Clarke Martine Avello Richard and Kathleen Wise Jennifer Bishop Sue Cadena William Clarke Beth Averbeck Jeffrey and Mary Wlahofsky Todd and Nicole Blancheri Jeffrey and Laurel Cahn Vicki Clayton Emma Ayres Jeffrey and Carol Wolf Mary E. Wolff Blom Gary and Sonja Cain Scott and Cathy Cloud Anthony and Tara Azzardi Wolff-Toomim Foundation Robert and Anne Boggiano, MD Patricia Cain Coastal Pediatric Associates Natalie Babeo Josh and Jill Woloszynek Bill and Shirley Bohr Karen and Gary Calautti Melinda and Gavin Cobb Timmy Bagwell Howard and Joan Wood Monica Bolin Steve Calbert Alyce Cochran Andrew and Heidi Bahmueller Leslie Wood Gary and Theresa Bomely Michael and Karen Calhoun Kevin and Kristina Coen Kathleen Bailey Donna Woods Dorothy Bonan Stoney Calloway Linda Cohen Rebecca and Robert Bailey Susan Woodward Jeffrey and Deborah Boschert Keith and Christy Camacho Lisa Cohen Margaret Baker Constance Budzien and David and Brooke Bowersox Dan Cameron Phillip and Lori Cohen Balog family Catherine Worwa David Boyle Kathleen Cammarota James and Martha Colby Scott Barbary Sharla Schipper and Zachary and Cortney Branaman Caroline and W.J. Campbell Mary Jo and Larry Collet Leonard and Barbara Barcousky Roger Wyngarden George and Jean Brandt John Campbell Compass Healthcare Marketers and family Dorothy Wynne Melanie Brannan Nancy Campbell John and Janet Cook Jane Barker, PhD Jason and Lauren Yard James Bransfield Petra Campos continued >> John Yard Richard Zachariason Jim Zambrano Roy and Zezee Zeighami Shiming Shi and Bijun Zhang Janet and Andrew Ziffer Doris Zigler Simon Zimmerman IV Erla and Harry Zuber

Alpha Chi Rho with the Yard family (MPS II) >> Kim Cook Vidmantas and Cecilia Duda Lotus Fong Bob Guletz Tom and Cris Holcomb family Ross and Monica Cook Mark and Louise Dudle Kimberly Forand Jackie Gull Donald Max Holland Cooper Industries Foundation Patrick Duffy Frank and Rebeccca Fosnacht Tamara Haas Steven Holley Matching Gift Plan Jonathan Dunayer Kenneth and Karen Fournier Dr. and Mrs. John and Terri Hollmann McKenzie Corcoran Douglas, Lori and Katie Dunbar Frank Bianco Builder, Inc. Cheryl Hackett Catherine Holste Loretta Cordova de Ortega Patricia Dunn Kate Morse Frantz Thomas and Ruth Hackman Trudie Homonai Jacqueline Corsini Theresa Dunn Dr. Manuel Muniz and Heather Haemer Charles and Erna Hoover 21 Joyce and Tom Cotton Chris and Annette Durcholz Irene Frias Marian Hagedorn Kevin Hoover Robert and Katherine Coughlin Janice Durcholz Eric Friedlaender Johnathan and Brenda Haggett Carlton and Susan Hornung Scott Coulson Julie Durnen Roy and Carrie Fronczyk Karen Hagy Jennifer Houser Mary E. Couture Pamela and Theodore Dzubinski Kimberly Frye Laura Hahn Rose Marie Houser James and Jo Ann Cradock Jeff Eaker Lara Fuller Anthony and Jacki Hall Paul and Laurie Howard Barbara Crawford Mike and Barbara Eaker Robert and Suellen Fultz Pewter Hall Mrs. Mary Hughes Steven and Lisa Jo Crees Eugenie Ebert Anna Funkhouser Stewart Hall Melinda Hughes Mark and Susan Crego ECH Enterprises Douglas and Linda Fussinger Rob Hallowell Peter and Channing Huhn Kevin Croke Karen Edelstein Micalla Gadawski Polly Ann Halsted Jaxson Hung Jill Crowley Lydia Edgal James and Catherine Gagnon Cindy and Steve Hamblen Ann Hunter Matthew and Patricia Croyle Joyce Edwards Marcia Galan Karen Hambright Barbara Hunter Charles and Tiffany Culbertson Wayne Edwards Sr. Karen Gallati Beth Hamilton Elizabeth Hunter and Brett David and Maureen Cunningham Karen, Lindsey and Hannah Efird Richard and Jennifer Gallo Holly and Scott Hanewacker Schaapveld Ryan and Kelly Curry Larry Ehret Brenda Gardner Katelin Haney William Hyman Eric and Sheryl Czekanski Rachel Eichler James and Linda Garrett Lois Hanske Bernadette Iannelli Selina D’Alessio Jane Eilerman and Andrea Foltz Richard and Ronni Gates Paul and Patty Hansma Linda and Allan Iezzi Lucille and Paul Dahlberg Susan Eisler Tricia and Andy Gates Curt and Shirley Hanson ING Jennifer Dahm Todd and Julie Ellingson Suzy Gavars Diana Hanson Jim and Nora Inglish Diane Dalton John Elliott Melissa Gels Kimberly and Frank Harker Austin and Melinda Innis Mark and Jeanne Dant Matt and Cydnie Elliott Ralph and Janet Gels Duane and Connie Harmon Rebecca Intfen Bill and Laura Dapper Grant and Mieke Embry Sonia Genovesi Jeffrey and Barbara Harrell Morimi and Midori Iwama Mike, Lisa, Maria, Molly, Sarah, Brian Engel Steven and Kim Gentile Aline Harris J&H Enterprises, LLC Johnny and Gracie Day Clark and Susan Ensz Anne Gentry-Smith Kathie Hartley J.E. Malone, Inc. Pamela and Robert Dean Rev H. Wayne and Al and Rosalie George Wes and Angela Hartley Brian and Heather Jackson Dennis and Barbara Decker Joan Eppehimer Cynthia Getner Dean and Darby Hartman Leslie Jackson George and Mary Decker Jackie Epps-Hardy Scott Ghertner Dan and Mari Anne Hartmann Jackson County Rural Electric Gerard Decker Kay and Hubert Erb Jenifer Gibson Herb and Lela Hartso Michael, Susan and Joshua James and Melissa Deen Barbara Erlichson Dr. Urs Giger Patricia Hartzell Jacobson Melanie DeFilippis Kenneth and Ruth Espenshade Sharon Gillham Tonia and Ronny Harvey Andrea Jaffe Jessica DeHaan Steven and Kathryn Espenshade Beverly Gillig Cory Hastings Rosemary Januschka Steve and Alanna Delacrausaz Rick and Francie Espino Girl Scout Nations Capital Ralph and Beverly Hattabaugh Marsha Jasper Kurt Dalhroos Caroline and Stephen Esses Troop 3769 Walter and Judi Hauck III Holly Jeffreys Camille and John Delany John and Geraldine Euliano Michelle Girvan William Hauselt Lawrence Shelley and Delta Construction Kelly Evans Thomson Housing Lisa Glatstein Candy Hausken Julie Jensen David Deluca Authority Robert and Barbara Gleason Lorraine Hawley Julie Jesiolowski Sandra Demello Mary Jo and Kevin Evers Andrew and Stephanie Glock Andrew Hayes Barbara Johnson Roger and Mary Demeny Thomas and Carole Fagrelius Allison and Cameron Glumac DT and Shannon Hayes George and Linda Johnson Mary Denneen Daniel and Andrea Fair Kathy Godegast Dr. and Mrs. Larry and De Ann Johnson and family Lynn and Nancy DePeal Janice and Jim Falick Sharon Godell Barbara Hays Barbara and Russ Johnston Geri and Dan Desmond Helen Fallon Dennis and Chris Goggins Lyle and Jade Hays June Johnston John and Marjorie Desmond William and Nancy Fallon Marc Goldberg Ryan and Jessica Hazlett Gayle Jonassen Donald and Sylvia Dessert Tasha and Bruce Farrell Natalie Boyd Goldstein Myra Heck Lynda Jondle Andrea Detamore Claire Farver Ron Graham and Gina Gonsalves Steve and Lisa Heck Abe and Veronica Jones Richard and Teresa Detmers Vincent and Joanne Fasano Joann Goode Dwayne and Tracy Heeter Bryan Jones Anna Furr and Terry Dexter Ernest and Teresa Fata Jennifer and Micheal Goodwin Jon and Mary Sue Heine Chris Jones Richard and Kim Diamond Geraldine Faucett David and Marsha Gorewitz Glenn and Tammy Heise James and Laura Jones Kim and Geri Dickerman George Feduccia Lee and Tammy Gottschall Trish Hejazi John and Margaret Jones Linda Dickerson Jacqueline A. Fenaroli Jodi Gradolph Elaine Helfman Rhonda Jones Thomas and Judith Diederich Patricia Fennell Blake and Ashley Graeber III Chester and Jennifer Hembree Sally Jones Doug Diehle Cheryl and Ken Ferguson Grand Slam Marketing George and Judith Hemingway Jon Joodi Chris and Char Dieseth Lucille Fernandez Robert and Viji Grant Trey Henderson Jorgensen & Company Louise Dietzen Kelly Ferry Georgianna Grasso Denny Henkel Erin Jozwiak Patricia DiLuzio Charles and Corinne Feyock Joanne Gratiot Robert and Michelle Hess Janet Juban Ellen and Jerry Dimbat Robert Field Juliana Grayson John Higgins Russell and Kaydi Kacer Angela Divirgilio Michelle Figlar Randy and Christine Greaser Floyd and JoAnn Hill Kathleen Kacevich Denmar and Ellen Dixon David and Sandra Filippi David and Margaret Greeley Maria Hill Ayyasamy Kandavel Lowell and Mariclaire Dixon Alex Fineman Mr. and Mrs. Heyward Green Bridget Hilliard Heidi Kanealy Paula Dixon First Savings Bank of Perkasie Robert and Monica Green David Hoeffert Rick and Beth Kania Beth Dobler Amanda Fisher Tom Greene Elizabeth and Chris Hoff Jay Kaplan Jennifer Dodd Amy Fisher, MS, CGC Forrest and Lorena Griffin Cynthia Hoffman Jeffery Kaplan Marty Dorfner Mike and Cathy Fitzgerald Paul and Lauren Grossbard Michele and David Hoffman Cissie Rauch and Alan Kaplan, MD Mary Dozbaba Andrew and Joan Flynn Tim Grow Hogan, Derifield & Perdue Bert Kaplowitz Jeanne and Maurice Drew LaVerne and Peggy Foess Charles Grube Frederick and Kathleen Hoge Paul and Leslie Karas

continued >> >> Joseph and Michelle Karl Robert and Betty Leadbitter Robert Martucci Mount Vernon Baptist Church Charles and Jeannine Phelps Deanna Karlson Lebuda Totte Bray Agency Lawrence Marzetti Mark and Karen Muehlenkamp Charles and Ellyn Phillips Gloria and Irwin Katz Kenneth and Sandra Ledford Shelley Mason Ken and Jackie Mueller Leslie Phillips Corinne Kaufmann Kevin and Robyn Lee Philip Massa Mark and Tina Mulder Angela and Stephen Phyfer Cathleen Keane Pauline Lee Helene E. Matesa Tom Mulkerin Lindsay Piccotti Scott Keaton Terry and Margaret Lee Ron and Kristin Mattheson Robb and Lisa Muller Mike and Carol Pierce 22 Sheri Kee Vanessa Lee Anne Mauro Christopher and Candide Mullin Deane and Meredith Pinchak Stephen Scott Keenum Jeffrey and Deena Leider Julie May Matilda Mullis Bill and Nancy Piskothy Christine and Kirk Kehrley Lisa Leininger Leon and Angie May Brian and Deborah Murphy Jonathan and Rebecca Pitts Kathleen Kell Sandra Leisey John and Cynthia McCabe Brian and Virginia Murphy Roger and Ruth Pline Catherine Kelleher Jill Leitz Ted and Susan McCannon James and Margaret Muschett Jay and Lori Podesky Robert Kelley Jeanette Lelong Joyce McCauley Paul and Gail Myers Crystal Polis Jackie and Tiffany Kemp Tom and Martha Lemieux Anne McClelland James and Margaret Myrick Michael and Martha Pontone David Kendall Lemon Drops Apparel and Gifts James and Kimberly McClelland Jennifer and Ryan Nace John Popies William and Anita Kenelly August and Janet Lentricchia Mike and Ramona McClurg Josh and Sheree Nall James Popp Quinn Kennedy Rene Leogrande Neal and Julia McCluskey Dawn Nelson Tom and Carrie Porzel Terri Kenney Daniel Leonard Mary McCoy Lisa Nelson Posh Little Pig, LLC Douglas Kent Alicia Lescano James Mccune Mary Ann Nestheide Richard and Linda Post Tiffany and Philip Kessler Bobby and Laura Lester Jill and Mike McDermott New York Presbyterian Hospital Morley and Liz Potash Paul and Kathryn Kimbel Thomas Lester Karen and James McGetrick Casey Newell Janet Povall Kevin and Mary Kimmet Amy Levy Laura McKeithen Gregory Newell Cynthia and George Powers Alan and Kathleen Kimura Joanne and Bruce Levy Scott McKinley Laura Newman Irving and Paula Pozmantier Bill King Ann Lewis Judy McKinstry Mr. and Mrs. Terry and Chuck and Diane Preas Jason King Kevin and Sabria Lewis Michael and Bridget McNichols Emily Nicholas Premiere Environmental Michael and Staci King Mr. and Mrs. William Lewis Jr. Richard and Michele McPartland Emily and Shawn Nichols Linda Preslar Rosa King Scott and Gabriella Lich Patrick and Rebecca Ann Doris Nolan Oneil Cindy Preuss Betty Kingston Peter Lieberman McTavish Deborah and David Nuttle Billy and Sharon Prince Gary and Janet Kirch Dawn Lingo Julie Johnson Mcveigh Claire O’Brien Pro Auto Glass Robert and Mary Kirch Charles and Ruth Lint Claudia Medina Danielle O’Connor Amy Procacci Elura Kish Nicole LoCascio Martin and Ann Meehan John and Sheralyn O’Connor Karla Proffit Jerry and Katherine Klemm Jr. Sharon Lockhart Nancy Mendelsohn, MD Erin and Michael O’Donnell Brian and Bonnie Mae Provance Dale Klenke Rachel Lodewyk Helen Mennes Raymond and Julia O’Hara Nicole Prudhomme Jason Kleps Lauri and Lou Loibl Rose Ann Mercado Daniel O’Malley Kimberly and Billy Pruett Jim and Susan Kliewer Beth and Nick Lombardo Molly Mercer Paula Manor and Steve O’Malley John and Renee Pruitt Tim and Kathy Knott Katie Long Dan and Julie Mercier Marissa O’Neill Richard and Joy Pulaski Nancy Knudsen Katie and Timothy Long Merle King Lawn Service Michele Oakley Dean Putterman Ivan and LeAnn Koblitz Andrea Longston Eric and Vicki Merrell Roy and Martie Oates Mark B. Pyper Esq. Justin and Shelly Koblitz Valerie Lopez Lenard and Susie Merrell Trisha and Mike Offenbacker Felicidad Quilo Carolyn Koch Michele Lord Mary Ann Messick Evan Ogrodnik R&B Foam Insulation, Inc. Allen and Mary Jane Koehler Lee and Sherri Louden David and Christina Michelmore Stacy and David Olesky Carol Raabe Louise and Ed Kofron Wes and Jill Lovell Andrew Mickelson Paula Deckas Olsen Stephanie and Edmund Rabuse Danielle Koors William Lowenberger Brad Middendorf Julie Opheim Tammy and Dan Ragonese Neil and Terri Korte Karen Lubbers Alison and Christopher Miller John and Kathleen Opitz Shelly Raichel Ed Kowalski Nicholas Lubbers Amy Miller Elizabeth Opp Nick Rakowski Barbara Kozlowski Pediaflex Therapy Center, LLC Arnie and Jan Miller Orsborn, Suthphen, & O’Neal, PA Tom and Sirena Ramirez Ed Kozlowski Kathleen Lundgren David and Lorraine Miller Robert and Barbara Osgood Maryann Ramshorn Elizabeth and Jayson Kramer Kathy Lutz Eric Miller, OD, PC Kim Osterloh Brad and Lisa Randall Madonna and Francis Kramer William and Connie Lux Jessica Miller Kenneth and Carol Osterlund Keith and Marie Raney Ronald A Kramer Anthony and Christine Machi June Miller Kim Outten Mick and Laura Raney Zach Kramer Sharon Johnson and Lavae Mack Patrick and Beth Miller Sharlene Pallick Roger and JoAnne Ransom Kimberly Krehely Sharyn Madison William and Margaret Milligan Robert Palumbo Andrea and Benjamin Ranstrom Robert and Barbara Krollage Jamie Magerl and Brian Matthews Paul Miltgen Florence Paolilli Marcia Rasmussen Carol Kuhn Don and Carol Manning Brian and Julie Mollett Jeffrey Paquin Tina Ratto Dan Kulbieda James and Tina Manning James Monaco Lisa Parmelee Jack and Arlene Rawitscher Jerry and Delores Kunz Mark and Varty Manoukian Stacey and Lew Montgomery Michael and Margaret Pashen Patrick and Brittani Ray Christa Kurtansky Jennifer Marasciullo David and Jamie Moon Mark and Beth Patafio Razoo Foundation Jennifer and Erik LaBelle Gary and Lana Marble Jamie and Barb Moore Gloria Paulus Debbie and Ron Reagan Ladies Ancient Order of Kathie Marchalonis Jason and Colleen Moore Alan and Donna Payne Ryan and Cassandra Reamer Hibernians Denise Marcotte Isabel Morales Matthew and Ann Marie Paul and Carol Redmond Brad Lamison Mary Marcotte Bernard and Evelyn Morgan Pendleton Gerard and Kimberly Redublado William and Jacqueline Land Alain and Claudina Marcus Jack and Wanda Morgan Nathan Pendleton Floyd and Sharon Reed John and Suzy Landa Peter Margolis Kevin Morgan Ingersoll Rand Paul Pendleton Randy and Jean Ann Reed Veronica Landeros Jimmy and Renea Marine Sheila and Tom Morley Gary Pepper Robert and Patricia Reed Cami Lane Steven and Loriann Marsh Judy Morris Pete and Harriet Peters Ronald Regelski Helaine and David Lane Wayne Marshall Patricia and Scott Morris Glen and Melinda Petersen Mark and Joan Rehl Whitney Langone David Marshall Jr. Zachary and Dawn Morrison Lisa Petersen Thomas and Cynthia Reinhardt Angela and Jonathan Lanham Mrs. Bernice Martin Hubert Morrow Stanton and Mary Peterson Donald and Marie Reising Karen and Glenn Larson Mary Kathryn Martin Kristan Morse Craig and Elizabeth Petre Resonate Church Jennifer Schiller Darren and Patty Latham Ruzannah and Jerry Martin Charles and Marsha Mortel Michael and Michele Petrella Jim and Jennifer Restemayer Richard and Michelle Lautato Deborah Martinez Taundra, Brian and Darrell and Stacey Pevler Candice Reynolds Autumn Mortensen continued >> >> Renata Ribeiro Alves John and Ann Semk Dana Riddick Brian Service Pete Rieg Seymour Pediatrics Timothy and Cindy Riga Ati Shafik Amy Rose Rivas Vishal Shah Gabrielle Rivas Marc and Jeri Shapiro Riverbend Cabinets, LLC Gregory and Patricia Sharp 23 Joseph and Catherine Rizzo Greg Sharrits Jerry Roberts Loretta Shaw Sally and Charles Roberts Ron Shebik Melynda and Marc Rochon Nancy, Kent and Joe Shelton John and Isabella Rodrigues Wayne and Glenda Shelton Erika Rogers Rozann Sheppard Joel and Becky Roman Kevin and Kathy Sheridan Richard and Darlene Rome Robert and Ann Sheridan Anne Ronan Sherman Medical PA Kelly Rose Daniel and Rachel Winters Patricia Bridge and Eileen Rose Shinkle Eileen and Tom Rosencrants LeRoy and Marge Shipley Joel and Kate Rosenthal Dennis and Sharon Shoemaker Arthur and Betty Roswell Andrew Shope Becca Rotelli Mignanelli Stuart and Jennifer Siedman Richard and Marcia Roush Donna Sieve MPS III parents Patrick and Britanni Ray at the 2013 family conference Carol Rucker Joseph M. Silberstein Earl Ruebeck Robert and Mary Beth Silver Stephen and Kristina Rupolo Sandy Silveria Louis and Mildred Stielper Brian and Barbara Tighe Claire Von Handorf Sally and Garry Rust Barbara Simmer Sebrina Stiggers Michael and Vicki Timpson Lois Von handorf Michael and Sandy Ruszkiewicz Sam and Judy Sims Patricia Stillwell Gary and Barbara Titter Michael Von Handorf Jason and Janet Ruyle Patrick Skacel Julia Stogoski David and Pam Tobey David and Lori Vorbeck Mildred Ryan Barbara Skinner Amerigo Storace Nita Todd W.J.E., Inc. David and Susan Ryder Lou and Chris Slavik Isaac and Brooke Story Todd and Gerry Toll Ray and Kelly Waddell Paul and Kathy Rysz Tami and Don Slawson Jeannie Stover Faith Tootill Sarah Aaserude and Kim Sakaue Lyn and Paul Slinka Roberts Irene Streblow Chris Torres Todd Waddell Lexy Salinas Robert and Cheryl Slowey Nancy Stringham Sergio Torres Christi Wadle Saltzman’s Professional Tax Helen and Richard Small Robert and Jennifer Stroh Christopher and Jonda Towner Karen Wagenbrenner Michelle Samenfeld Edward Smith Socorro Stroud Robert and Janine Townsley Marty and Sandy Wagner Daniel and MaryAnn Sammons Harold and Clara Smith Justin and Crystal Stuckwisch Amanda and Michael Trahan Arthur and Carolyn Waldrum Sarah Sanfilippo Julia Smith Anissa Stumbo Frank and Susan Trainor James and Pauline Walker Evangelina and Sammy Santos Lachlan Smith Sue Neal Insurance Agency, Inc. Soraida Treviño Jay and DeAnna Walker Edward and Christen Sauer Lorelei and John Smith Kevin and Nancy Sullivan Truist Altruism, Connected Chad and Kathleen Wallace Danni Sayman Raymond and Julia Smith Mike and Candy Sullivan Maria and Joe Tuckett Tammie Wallace Elaine Hendricks and Ron and Brenda Smith Elizabeth Sunde James and Bonnie Tully David Walsh James Schaefer Jr. Shirley Smith Perry Barbaro and Eleanor Svedi Nancy Turigliatto Walters and Company Paul and Lisa Scharr Susan Smith Greg and Amanda Swafford April Turkington Bea Walton Alda and Leo Schenker Terry and Judy Smith Jeff and Liesa Swanson Steve and Shannon Turmail Roger and Karen Wardell Deanna Schiel Gary and Katherine Smothers Kim and Bill Swartz Bill and Patty Turney Trevor Warren Toby Schiel Carol Snarey Daren Sweeney Jean Jacobsen and Richard Evie Warshawsky Christine Schilling Jack and Marlene Snodgrass Paul and Ellen Sweeny Underwood Robert and Suzanne Washburn Ed Schmidt Angela Sochacki Donald and Rachel Swicker John, Jeanene, Jennifer and Tressia Watkins Adam, Dawn, Kaylee and Fanet Soifer Clara Szczechura Jill Underwood Rebekah Watson A.J. Schneider Elisabeth Somerville John and Diane Szuchy United Way of Massachusetts Sandra Watson Jim and Judy Schneider Deborah Sondock Noel and Nancy Talcott Bay and Merrimack Valley Sheryl and Andy Weatherford Billie Jo Scholten Michelle Sorensen Andrew and Mary Tanghe Debi Urschel Kevin and Shari Webb April Schoolcraft Michelle Spooner Edward and Cynthia Tank Neil Valentine Brendan Wedehase Krista Schoulties Anna Spriggs Kenneth and Carol Taskey Thomas and Ruthann Marie Wegener Rick and Catherine Schuett Laura Stankard Robert and Anita Taulton Van Orden Daniel Weiss Linda Schuler Doris Stanley N.K. and B. Taylor Harry and Janice VanHorne Martin Weisz Greg and Jane Schulte Jeanine Stapleton Mr. and Mrs. Robert Taylor Edward and Mary Vargas Brian and Jessica Wellman Karen Schulte Sergio and Angela Stasi Susan Taylor Jenny and Mack Varner David Wenger Carole Scott Marten Steen TCF Foundation Kyle Vaughn Caryn Wenrich Kimberly Scott Robert D. Steiner, MD Pamela Teich Lisa Vaughn Joan Werner David and Diane Scotting David Steinhart Donald and Lynda Thaler Veesart Financial, LLC Dana Whalen Thomas and Carole Scully Myrna Stelman The Carle Collection Amanda Vella Monique Whitaker Edith, Ann and Stephen Seefeldt David and Kathy Stembridge The Sanfilippo Syndrome Medical Judy and John Verbeke Richard and Margaret White Paul Seifert Douglas and Janet Stephan Research Foundation, Inc. Verizon Foundation Aloma Whitley Carolynne Seiffert Barbara Stevens Henry and Jean Thomas Kris and Jeff Viar Raymond and Samantha Lauren Seilnacht Jobi and Dixie Stevens Sharon Thomas Richard Vincent Whittaker Steve Self Marla and Randy Stevens Terry Thomas Charles Vite, DVM, PhD Thomas and Blanca Wier Sellersville Family Smile Care P.C. Mike and Brenda Stevens Nancy and Tommy Thornton Andrew Vlass Karen Wiersum Gail Seltzer Jay Stickles Greg and Cheryl Thurman Bernie and Donna Vogler Donna Wiese Arbisi and Eric and Rebecca Tice Don and Shirley Wiese continued >> >> Mr. and Mrs. Jerry and Karl and Lisa Zimmerman Henry and Karen Ayer Scott and Kimberly Broekhuizen Steve Cuomo Connie Wildberger Melissa Zimmerman Harriet and Thomas Ayers Joseph and Jeani Brown Luke Curran Cindy Wiley Mr. and Mrs. Harvey Zinn Nicole Babinec William Brubaker Dan and Susan Curry Alison Beautz and L. John and Anna Zogg Debbie Baker Emmele Reed and Lane Bruce Dailygood Carter Williams Donna and David Zopf Pat and Michelle Baldwin Bryan Bowman Dodge Laura Ann Daughtry Dennis and Linda Williams Annette Zubia Paris Bamberg Chrysler Jeep Jana and Randy Davis 24 Henry Williams Cheryl Zuckerman Carol Bappert Cathy Buckley Kimberly Davis Maureen Williams Andrew and Louise Kate Barbato Rae Burk Mark and Jean Davis Jerry and Kaylene Willis Zygmuntowicz Julie Barenblat Robert and Ruth Bush Mr. and Mrs. J. C. Dearmon Wilmington Auto Center Angela and Roger Zylstra Brian and Carrie Barie Susan Byers Jean Deitz Brad and Susan Wilson Jeff Baron Kathy and Jim Byrne Frances Demarco Christian and Ginger Wilson Lorraine Baron Marilyn Caplovitz Cynthia and Robert Denig John and Charlotte Wilson Patron Mark Baron Dean and Jane Carey Denim Day Michelle Winkler $5 to $25 Rick Baron Linda Carignan MaryAnn and Marshall Detwiler Philip Winston Albert and Rita Abbott Mary Ellen Barringer Oscar and Marian Carlson Valerie Dibenedetto Winterbrooke Inc. Kevyn and Stacey Adams Sandra Barstow Paul and Linda Carlson Barbara Diemer Philip and Allison Wise D.P. and P.J. Adcock Sheryl Bates Therese Carlson Nevenka and Geoff Dines Jerry and Kathleen Wittingen Johnda Adkins Ursula Bean Janice Carpi Brian and Paula Dlouhy Matt and Rachel Wojnarowski Kahleen Adler Donald and Ann Beiting James and Louise Carte Dr. and Mrs. Stuart Dobbs Mr. and Mrs. Steven Wolf Audrey Ahrendt Rose Ann and Dominic Timothy and Svetlana Caulfield Sharon Domfrocht David Wolpin Jeff and Libby Aiken Bencivenga Larry and Leslie Chalfant Robert and Ellamae Donovan Linda Wood Charles Strong Jr. and John and Jane Benedict William and Marsha Chayka Nancy Doran Woodsville High School Marleen Alexander George Berends Sylvia Clanton Lisa Dorriere Jason and Rachel Worwa Alliant Energy Foundation, Inc. Roberta Bernstein Penny Clark Arlene Dorsey Kenneth and Catherine Worwa Ronald and Judy Allison Dorothy Bhola Saundra and Larry Clark Colleen Dowd Yuladys Wrubel Donald and Julie Ames Dayton and Anita Birdwell Lawrence and Jo Ann Coan Thomas and Debra Dowling Mary Wursthorn Jane Analla Margaret Blackwelder James and Janice Coffey Marilyn Dubovsky Linda Wynkoop Shawn Andersen Paul and Alice Blankenship James and Judith Coglianese James Dumas Jr., DDS Joseph and Faith Yack Jon and Chlene Anderson Olive Blough Joan Cohen Col. Ronald and Karen Duncan Kitty Yelland Barbara Andrus Joseph Bonville Phil and Sally Cohen Shauna Dunlevy Jarrett Yingling Susan Anganes Robert and Eve Bonville Jan Conrad Dena Dutile Jill Young Richard Ansbaugh Eleanor Boyles Cathryn Cavanagh and Lynn Edelman Kacy Zeeck Linda Apolinar Nancy Brada Peter Coppola Maryann and Dale Edgar Kathryn Ziegler Rebecca Armstrong William Bradley Terry Cox Bruce and Reva Edison Linda Ziemnik Sally Armstrong Eleni Braley Ray Coxe Geri Lynn Edwards Molly Ziessler Roland and Bonnie Arnold William and Jamie Bray Antonietta Cozzini Cat Ehlen Gerald Zimmer Kelly Austin Herbert Bridge Meliza Cruz-Lopez L. Joy Eisenman David and Diana Zimmerman Viviane Avant Tom and Madeline Brockway Korinna and John Cubbison continued >>

Aldurazyme Celebration attendees at the 2013 annual family conference >> David and Adele Elbrecht Jamie and Lori Geesling Marlys Herring Aron and Caroline Kirch Greg and Melissa Lowe Martin and Ann Elliott Christa Gersh Mike and Janice Hill Bill and Lisa Kirch William G. Lucas Michele Elvander Katherine Getchell Pat Hill Chris Kirch Eduardo and Anita Luera Wilbur and Irene Erhardt Nancy Gianni Tonya Hitsman Tom and Julie Kirch Bill and Susan Lutz Karine Etieve Kristin Gibbons Joann and David Holder Emily Knoch James and Kathryn Lynch Wendy Fader Nancy Gill Miranda Hooker Metro Kohlmeier Jeff and Debbie Lynch Katheryn Fagernes Mick and Robbie Gillig Shirley Allen and Judith Hoppe Helmuth and Leslie Kossart Jean Lystad 25 Eric Fair John Gladysz Carol Hornback Mr. Brian Krase Thomas and Jeanne MacLeod Erik and Jen Fair John and Jennie Gladysz Mr. and Mrs. Wayne Howser Andy and Cindy Kronebusch G. A. Manning Sherri Fannell Mildred Goldstein C. Sherman and Helen Hoyt Dale Kronebusch Bill and Eileen Manthe Judy Faust Diana Golke Bill and Judy Hunt Suelynn Kronebusch Jeffrey and Laura Marin Linda Feldheim Berengere Goodman John and Angela Hunter Theresa Kronebusch Angela Marques Stephanie Felix Joshua and Gretchen Goodwin Diana Hussman Patricia Kuciel Alissa Marzetti Denise Ferrara Alexandra Gordon Michael and Patricia Hydanus Kathy Kulisek Patrick Matalone Linnea Fields Michael Grady Robert Idalski Thomas Labathe Kristin Mateja Marjorie Fields John and Miriam Graham Imperial Orchid Travel Elaine LaFave Jennifer Mathews Margaret Fieschko Onilee and Joshua Gray Lindsey Jackson Eleanor Lago Melvin and Stephanie Matthews Donna Finnegan Gary and Pam Green Seth Jackson Laura Lallos Edward Matthiesen Lois Finney Bretta Grocer Ruth Jacobson Doug and Anna Mae Lambert Michaelle and Wolfgang Mauch Karen and Larry Fischer Yetta Grosman Gilbert Julia Luft and Raymond Jevitt Kenn and Lisa Lambert James and Eleanor McCaffrey Barb Fisher Janet Gruick Margo Johns Mark and Deanna Lambert Greg and Karen McClure Douglas Fitzpatrick Juan and Sylvia Guajardo Erica Johnson Dane and Yasmine Lancaster Nat McClure Nell Fookes Arline and Ben Guefen Janet Johnson Larry and Jennifer Latham John and Dinah McClymonds Cynthia Foster Corinne Gunther Joan and Gregory Johnson Mr. and Mrs. James Lau Vickie McFarlan Ken and Sandra Fowler Elizabeth Gutmann Pattye and Andrew Johnson Nancy Lavin Max McGee Larry and Carol Fradkin Robert and Diana Haime Terry Johnson James Layne Marcia McGuffey Rebecca Franey Jill and Elmer Haley Yvonne Johnson Jenna Leader Kathleen McNair Mr. and Mrs. Paul and Jack and Corine Harding Laurie Joseph Susan Leitner Maureen McNulty Alice Franz Johanna Harmeier Anthony Justice Simon and Sandy Levido Vicky McRae Maurice and Diana Frey Phil and Gloria Harris Kathleen Kapes Korie Levitan Nena McSween Larry and Millie Frieden John Hartgraves Gail Katz Liberty Diversified International Bridget Meacham Dustin Fry June Hartwell Mr. and Mrs. Barry Kaufman Joseph Lilore Michael and Maureen Meehan Jeannine Fullerton Andria Hathaway Martha Kern Brenda Lindsay Bret and Diana Meyer Fern Funk Joan Heckman Jeanne Kiefner Roger and Marilyn Line Lindsey Meyer Phyllis Fyffe Ron Heideman Deborah and Donnie King Emily Lisi Diane Mick Brad and Rita Gabel Terrance and Roxann Heintz Jason and Diane King Donna and David Littrell Haynes, Frankie and Sandra Gassner Pamela Heman Wes and Barb King Rosemary and Bill Lohstroh Suzie Miller Paul and Susan Gauthier Mr. and Mrs. Stan Henderson Jane Kingsland Douglas and Connie Lott continued >> >> Jeff and Yvonne Miller Positive Waves Denise Sonni-Birlin Dan Warning Jerry Miller Helen and Mark Post James and Brenda Spackman Patricia Washkowiak Julia Miller Barbara Powell Lori and Stuart Speer Julian Watson James and Margaret Milosevich Bithcer and Beatrice Prophete Ron and Linda Speltz Edward and Karen Weber Dina Minisi Lorraine Pucher-Petersen Dana Spina J. E. Weigel Don and Mary Sue Mitchell Alexander and Barbara Puskus Karen Spitzley Trey Weiss 26 Ricky and Cynthia Molin Beverly Quinn Gerhard Gehrke and Edith White Kathy Molique Kimberly Rackliffe Martha Splinter Michael and Amy White Alfred and Christy Mollozzi Christina Byrne and Lois Spradley Jennye Whitecotton Tracy Morse Anitra Radice Bob and Ginny Stark Tracey Whitehouse Madeline and Merritt Moseley Lynn and Jerome Rajchel Marlene Steele Steele Studio Myra Wick Craig and Leesa Mott Ethel Ranson Lynn and Marjorie Steiner Stephen Wick Fred and Deanna Mott Robert Rate Stephanie McNeill Legacy Sandra Wiget Lacye Mounce Ed Rawe Foundation Rick and Rebecca Wildman Margaret Moyer James and Janis Raynak Mr. and Mrs. Daniel Stevens David and Karen Wilk Brian Moynihan Linda Redick Tracy and Scott Stevenson Michael and Carol Wilk Ezekiel Muessig Steve and Susie Reed Paola Steyling Jack and Betty Willer Suzan Mullins Delores Rego Laura Stiansen Thomas and Emily Williams Lori and Edward Murphy Karen Reichek Douglas and Susan Stone Sarah Winebrenner Jessy Muttathil Marianne Reid, DVM Eugenia and John Stone Judy Wise Marthesia Myers Carol Reynolds Peter and Sarah Storlie Mary Wolfe Myers High School Class Donna Ricca Dr. Sid and Marsha Stranathan Karin Wong Phillip Nale George and Carol Rice Strides for Sara Walk Patrick Wyers Bernadine Nardin Virginia Richards Donna Stump Ed and Brenda Yosowitz Mary and Robert Nehrboss Ruthann Richardson Steve and Debbie Sturgill Denise Youmans Matt Nethercutt Rosie Ridgeway Larry and Diane Suhr Warren Young Jake and Mary Anne Newton Michaela Rivkowich Lacey Swartz Thomas Younger Leslie Niepp Vicki Robbins Melissa Tages Erika Zapata Steve Niewald Elaine Rodocker Jeffrey P. Tall David and Nora Zaring Bob and Jane Noll Leno and Deborah Rogers Glenna Rae Taylor Jennifer Zmuda Madison Noll Eric and Paula Roll Ronald and Joyce Tebbe Paul and Mary Zobro David and Frances Notley Jr. Theresa Roman Janet and Gary Tellier Beverly and Ronald Nurenberg Gary and Nicole Rose Susan Tellini Jack and Doreen O’Brien Sheila and Marvin Rosenberg E. Kay Thames Michelle and Charles O’Malley Robert and Deborah Rottman Marlene Thocker Eugene and Elizabeth O’Shea Concetta Rudes Kent and Robin Thomas Constance Oehler Ruffin & Ruffin Enterprises, LLC Lori Moss and Joseph Thomas Craven and Sue Oehler Carol Russell Patricia Thomas E.J. Oelschlager Gerald and Kathleen Rybarczyk Gary and Jayne Thompson Amy Ogle Rocke Saccone Ted and Lisa Thotland Richard D Oleary Johanne Saichek Three Rivers CFC Larry Oliver Catherine Sanders David and Catherine Thurston Doris Olson Naresh Sandhu Terry and Gwendolyn Tisdale Kari Olson Melissa Santoro Jake Todd Dr. Asha Orthodontics Judy Sassano Frank, Colleen, Kelly and Linda Ortiz Terrence Satterfield Ryan Trainor Ronald Owen Joan Saward John Trainor Mary Page Anna Schepker Lois Treadway Lauren Palang Peter and Catherine Schreiber Carol Treutlein Margaret Palmerlee Mary Schrock Constance Trivette Manuel and Isabel Paniagua Albert Schroeder Barbara Turiciano Henry Paris Nicole Scotchel Thomas Uebelacker Jennifer Parr John and Linda Scott Carol Underwood Susan and Ed Patterson Lori Shackelford Sue Underwood Lindsay Paull Lynn Shafer Marie VanLandingham Tracey Payne Joel Bloom and Jody Shapiro Earl and Shirley Vitus Patricia Peasley Mr. and Mrs. Donald Shwayder Matthew and Sandra Vliet Pediatric Dental Specialists, PA Peter Sibner Dan and Nancy Vogel Shirley Pelletier Richard and Ellen Sidman Sean Vogt Carolyn Pepper Jean Silas Nicholas and Lauren Volpenhein Ambrose and Patricia Perreault Robert and Belinda Sims Linda Volpicelli Mildred Peters Suzanne Skasik David Von Handorf Norman and Elizabeth Peterson Marybeth Skunta Joanna Von Handorf Fred and Francine Pevow David and Shellie Smith Rose Von Handorf Beverly Pfankuch Denise and Matthew Smith Edward VonHandorf Douglas and Mary Pica Jim and Suzanne Smith Art and Marilyn Vredeveld David Pierce Joan Smith Shirley Wain Rebecca Platt John Kahler and Shari Smith John and Maria Walker Lisa Plue Patricia Snyder Leesa Wallace James and Jennifer Podesky Marilyn and Tom Sonnenberg Alan Walter 2013 Fundraising Events Abel family A Wish for Evan, Bozarth family Dress Down Halk Fall Festival, hosted by Kenton Fult’s Dress Down Day, Providence Schools Dress hosted by John and Kristi Abel Jeans Day for MPS Day, host- Carla Halk hosted by Kroger employees Down Day in memory of 2nd Annual Walker benefit ed by Austin and Stephanie Hike NH in honor of Liam, LB Foster Denim Day, hosted by Aurora, hosted by Diana Renzi concert, hosted by Ken and Bozarth hosted by Alissa Marzetti LB Foster employees Push Up Challenge, hosted 27 Courtney Walker Bozarth Houston Ask Event - Hope for Hunter Gala, hosted by Lemon Drops fundraising event, by Alpha Chi Rho Educational 3rd Annual Concert for A Cure, Annabelle’s Journey, hosted by Michelle Hoffman hosted by Glenn and Kathy Foundation hosted by Dorothy and Ryan Austin and Stephanie Bozarth Hopkins family annual CaBI Miller Rockland Boulders fundraiser, Mask Bozarth wedding gift event, clothing party, hosted by Lynn Logan County Bank Jeans hosted by Janeen Eisle Alves Ironman Arizona for the hosted by Beau and Brandy Hopkins Friday, hosted by Logan Ryan’s birthday open house, Pagliero family, hosted by Jeff Bozarth Hughes’ 60th wedding County Bank employees hosted by Johnathon and Alves Carving a Decoy auction anniversary fundraiser, hosted Logan’s Heroes, hosted by Marie Hunt Armorel Key Club MPS Awareness fundraiser, hosted by Sandra by Donna Weaver Anne Schnare Sarah’s sweet 16 birthday party, Day fundraiser, hosted by and Lonnie Rodrigue Ice Cream Corner 4th annual Mad Hatter Tea Party, hosted by hosted by Thomas and Kristina Lee Charity Bakers for Nolan Awareness and Bridge Club, Stephanie and Austin Bozarth Ruthann Van Orden Automotive Booster charity Ramsey, hosted by Jackson- hosted by Janelle Kunellis Maura’s Awareness Day T-shirt Scotty’s 16th Birthday Bash, golf tournament, hosted by ville Schools Charity Bakers Italian Festival, hosted by fundraiser, hosted by Amber hosted by Tom and Kim Harry Wilson Charles Schwab bake sale and Caroline and Jeff Lewandowski and Eric Mongan Whitecotton Bake sale in honor of Julia employee gift day, hosted by Jackson and Sydney’s birthday Max & Erma’s fundraiser for Shots for Sean Memorial Golf Dolpheide, hosted by Allie Diane Russell fundraiser, hosted by Carrie Riley, hosted by Robb and Tournament, hosted by Ernie Rosenberg Coach Bag Bingo, hosted by Dunn and Melissa Kraus Lisa Muller and Debbie Dummann Birthday donations in memory Gerald Hall Jacksonville Elementary School MPS Awareness Day ribbon Sowden annual golf outing, of Allison Kirch, hosted by the Cross Creek charity golf Jumpathon, hosted by Jennie fundraiser, hosted by Ryan and hosted by Josh and Sheri Kirch family tournament, hosted by William Springer Cassandra Reamer Sowden Bowl for Kristofer, hosted by Bagwell Johnson family Spooktacular Noah Mehling trivia night, Sowden Bank Jeans Day, hosted Jennifer and Chris Christiansen Cure for Gavin, hosted by fundraiser, hosted by Chris hosted by the Hamilton County by Josh and Sheri Sowden Bowling for A Bear Bowl-a- Kimberly Legg and Mercedes Johnson Firefighters 4416 Todd lemonade stand, hosted Thon, hosted by Upper More- Do It Fore Dan golf tournament, Karima’s MPS 50/50 raffle Post Office Café events, hosted by Jack Todd land High School Key Club hosted by Ray and Amy Miller fundraiser, hosted by Carol by Kerri Rose and Mark Lessing Von Handorf Bike Across the Donuts for Dominic, hosted by Rucker Prairie Point fundraiser, hosted Country, hosted by Jeff and Nancy Hutzell by Prairie Point Schools Mary Von Handorf 2013 Walk/Run Events 3rd Annual It Works Family Fun 14th Annual Run for Erin, Clara’s Courage Walk/Run, Memorial Walk for Kyle Witt, Post Office Café Run for Mark Run, hosted by Kate Martin hosted by Stacy Peters hosted by Shane Gibson hosted by the Witt family and Casey Lessing, hosted by 3rd Annual Walk/Run for Andrew’s Walk n’ Roll, hosted Hop for Hunter, hosted by MPS Run For Their Lives, Kerri Rose Cameron, hosted by Brian and by Sharon Cochenour Michelle Hoffman hosted by Steve Holland and Rays of Hope Family Fun Walk, Julie Mollett Annual NC Run for MPS and Kassie’s Kause, hosted by Mike Scott Hardin hosted by Jennifer Fair and 6th Annual Strides for Sara, ML, hosted by Mike Schleter and Trisha Offenbacker North Carolina 5K Run for MPS/ Stephanie Kell hosted by the Dickerson family and Terri Klein Marshall Academy 5K Run, ML hosted by Mike Schleter 11th Annual BioMarin Run, Bike for Brooke and Fun Walk, hosted by Marshall School and Terri Klein hosted by Suyvonne Bell hosted by Holly Zimmerman 2013 Adopt a Runner, Champion a Cure Participants Families across the country have raised more than $55,000 through Adopt a Runner, Champion a Cure. Each year with renewed hope, we reach out to families and share that they too can make a difference and help raise money for research while not hosting or even attending an event. It is easy and the rewards are tremendous. Thank you to the following families who embraced the 2013 challenge.

Bennett family, Hunter, Ciara Gibson family, Clara (MPS IIIA) Kirch family, in memory of Klenke family, in memory of Szemanski family, in memory of and in memory of Tommy Dunn-Kraus family, Jackson Allison (MPS IIIA) Kraig (MPS II) Clinton and Zachary (MPS IIIA) (MPS IIIA) (MPS II) Klein-Schleter family, Jennifer Marine family, Austin (ML II/III) Tootill family, Shannon (MPS IIIA) Caswell family, Sam (MPS I) Espinola family, Dominic (MPS II) (ML III) Robson family, Jaeda (MPS IIIA) Yard family, Christian (MPS II) Courage Pages at www.mpssociety.org The following families have their own website in Courage Pages through the National MPS Society. Whether you are hosting an event or raising awareness for MPS and related diseases, these custom pages are a terrific way to reach donors and help enhance your fundraising efforts. Consider having us build your family’s custom website for free. To view these inspirational sites, click “Courage Pages” on the right margin of our homepage (www.mpssociety.org). Thank you to the following families:

Evan Abel Alan Charest Allison Kirch (in memory of) Maura Mongan Trinity Walker Hunter Beam Kali Gegenheimer Kraig Klenke (in memory of) Michael Whitaker-Russell Scotty Whitecotton Annabelle Bozarth Mackenzie and Isabella Jennifer Klein Jack Todd Christian Yard Sam Caswell Hardesty Danny Miller Alyson Von Handorf Reed Zeighami 28 Classifications Mucopolysaccharidoses (MPS) and related diseases are genetic lysosomal storage diseases caused by the body’s inability to produce specific enzymes.

SYNDROME SYNDROME Normally, the body uses enzymes to break down and recycle materials MPS I MPS IVA in cells. In individuals with MPS EPONYM EPONYM Hurler, Scheie, Hurler-Scheie Morquio A and related diseases, the missing ENZYME DEFICIENCY ENZYME DEFICIENCY or insufficient enzyme prevents a-L-Iduronidase Galactose 6-sulfatase the proper recycling process, resulting in the storage of materials SYNDROME SYNDROME in virtually every cell of the body. MPS II MPS IVB As a result, cells do not perform EPONYM EPONYM properly and may cause progressive Hunter Morquio B damage throughout the body, ENZYME DEFICIENCY ENZYME DEFICIENCY including the heart, bones, joints, Iduronate sulfatase b Galactosidase respiratory system and central nervous system. While the disease SYNDROME SYNDROME may not be apparent at birth, signs MPS IIIA MPS VI and symptoms develop with age as EPONYM EPONYM more cells become damaged by the Sanfilippo A Maroteaux-Lamy accumulation of cell materials. ! ENZYME DEFICIENCY ENZYME DEFICIENCY Heparan N-sulfatase N-Acetylgalactosamine 4-sulfatase (arylsulfatase B) SYNDROME MPS IIIB SYNDROME EPONYM MPS VII Sanfilippo B EPONYM ENZYME DEFICIENCY Sly a-N-Acetylglucosaminidase ENZYME DEFICIENCY b-Glucuronidase SYNDROME MPS IIIC SYNDROME EPONYM MPS IX Sanfilippo C ENZYME DEFICIENCY ENZYME DEFICIENCY Hyaluronidase Acetyl CoA: a-glycosaminide acetyltransferase SYNDROME

SYNDROME ML II/III EPONYM MPS IIID I-Cell, Pseudo-Hurler polydystrophy EPONYM ENZYME DEFICIENCY Sanfilippo D N-acetylglucosamine-1- ENZYME DEFICIENCY phosphotransferase N-Acetylglucosamine 6-sulfatase Board of Directors

Steve Holland, PRESIDENT Kristine Klenke STAFF Amy Holland 7604 Sherry Creek Road 4908 Barbara Road Worden, IL 62097 EXECUTIVE DIRECTOR River Oaks, TX 76114 618.888.2204 Barbara Wedehase [email protected] 817.625.6999 [email protected] [email protected] MPS II parent [email protected] DEVELOPMENT DIRECTOR MPS I H-S parents Austin Noll Terri Klein 9805 Fallen Leaf Drive [email protected] Stephanie Bozarth, VICE PRESIDENT Middleton, WI 53562 6203 Larstan Drive 608.203.6086 PROGRAM DIRECTOR Alexandria, VA 22312 [email protected] Laurie Turner 703.256.1980 MPS III parent [email protected] [email protected] MPS IV parent MaryEllen Pendleton TECHNICAL AND DEVELOPMENT SUPPORT 56 E. Vinedo Lane Kelly Rose Tom Gniazdowski, TREASURER Tempe, AZ 85284 Anne Gniazdowski 480.831.2157 [email protected] [email protected] 315 Meadowview Court CONTROLLER MPS III aunt Springboro, OH 45066 Angela Guajardo 937.748.8809 [email protected] [email protected] Lisa Todd [email protected] 11111 Jordan NE MPS II parents Albuquerque, NM 87122 505.797.3603 S C I E N T I F I C Kim Whitecotton, SECRETARY [email protected] ADVISORY BOARD 1413 Emigrant Way MPS II parent Modesto, CA 95358 Alessandra D’Azzo, Ph.D. Gordon Wingate 209.544.2708 Lorne A. Clarke, M.D. [email protected] 16319 Jordyn Lake Robert Desnick, M.D., Ph.D. MPS II parent Tomball, TX 77377 832.498.1724 Patti Dickson, M.D. Jeff Bardsley [email protected] Matthew Ellinwood, D.V.M., Ph.D. 1209 Daviswood Drive MPS III parent Mark Haskins, Ph.D., V.M.D. McLean, VA 22102 John Hopwood, Ph.D. 703.547.7087 Roy Zeighami William G. Mackenzie, M.D. [email protected] 6420 Diamond Drive Joseph Muenzer, M.D., Ph.D. MPS II adult McKinney, TX 75070 972.965.5253 Elizabeth Neufeld, Ph.D. Dawn Checrallah [email protected] Beth A. Pletcher, M.D. 58 Leroy Drive MPS III parent Kathy Ponder, M.D. Riverside, RI 02915 Mark Sands, Ph.D. 401.639.2689 PRESIDENT EMERITA Edward Schuchman, Ph.D. [email protected] Marie Capobianco MPS I parent Ernie Dummann Calogera Simonaro, Ph.D. Steve Holland William Sly, M.D. Carrie Dunn Mary Majure Couture Charles H. Vite, D.V.M., Ph.D. 920 Edgemoor Road Linda K. Shine Steven Walkley, D.V.M., Ph.D. Cherry Hill, NJ 08034 David Wenger, Ph.D. 856.795.4528 [email protected] Chester Whitley, M.D., Ph.D. MPS II parent John H. Wolfe, V.M.D., Ph.D. NON-PROFIT ORG. National MPS Society U.S. POSTAGE PO Box 14686 PAID Durham, NC 27709-4686 CHAPEL HILL, NC PERMIT #74