May/June 2004

Chairman’s Message p. 2 Support Groups p. 19 Research Highlights p. 6 Calendar of Events p. 20

Greater Connecticut Chapter

The National MS Society... One thing people with MS can count on. This is Why We Ride . . . Tour for the Cure ...Sights and Sounds ...and More!

MS Bike Tour MS 150 Bike Tour

Sunday, June 6 September 18 & 19 This is why we ride – to meet our activity. Griffin Center provides the 2004 goal to raise a combined total perfect central Connecticut location of $350,000 in the two events. This for a bike festival. Choose from 10, is why we need you and your family 25, 50, 75 and 100 mile routes. and friends. If you are looking for an event that Whether you’re a once-in-a-century will excite fellow workers or double as cyclist or a pedal-churning fanatic, get a reunion of family and friends, this ready to saddle up and select the tour is it. When the ride is over everyone f you’ve got the bike, we’ve got that’s right for you. relaxes and chats. You can build the ride . . . riding is a fun way community spirit by organizing you can help raise the dollars With tours of several lengths to I friends, family and co-workers needed to fund research crucial in choose from, the bkm/Steelcase MS together into a tour team. the fight against MS, and provide the Bike Tour, a Tour for the Cure is a vital programs, information and perfect event for those who want to Fundraising isn’t hard! Teams and equipment that assist those coping push themselves to the limit, or individuals can create their own web with its devastating effects. simply enjoy a recreational outdoor continued on page 10 Yale Team Wins MS Research Center Award eurobiologist Jeffrey D. Kocsis, “All four of the new centers are In multiple sclerosis, an immune PhD, of Yale University focusing on an area of MS research attack is launched that wreaks havoc NSchool of Medicine, and a that raises tremendously exciting in the central nervous system, team of top-notch Yale scientists and possibilities – nerve tissue repair,” damaging nerve-insulating myelin physicians have been named one of says Stephen C. Reingold, PhD, the and nerve fibers (axons) in the brain four new MS Collaborative Research Society’s Vice President of Research and spinal cord. Jeffery D. Kocsis, Centers established by the National Programs. “By combining the skills PhD, and colleagues have shown that Multiple Sclerosis Society to speed the of experts in MS research, and injecting bone marrow cells from the search for the cause and cure of multi- specialists in similar diseases, or in thigh bone of rats into their veins ple sclerosis. new technological advances, these repairs myelin damage induced in The Kocsis team will use a five-year, Centers hold great potential for their spinal cords. $825,000 Collaborative MS Research speeding efforts to bring novel Now, with funding from the Research Center Award to explore facets of tis- methods of tissue repair to the fore Center Award, he is applying his sue damage in MS and to test ways of MS treatment.” findings and taking them further in cell transplantation can protect and The Awards do not fund “bricks and continued on page 9 repair central nervous system tissue. mortar” laboratory facilities, but The group is focusing on strategies to rather allow for flexible spending by restore function in persons with MS. collaborating teams based at the The new Collaborative MS Research same or separate institutions. Each of Center Awards adds $3.3 million to the four new Centers focuses on the the Society’s long-term research debilitating, immune-based damage Tickets still available for commitments to more than 300 that occurs when MS attacks nerve- Women Against MS Luncheon research projects totaling over $50 insulating myelin and nerve fibers in (see page 3). million. the brain and spinal cord. CHAIRMAN’S MESSAGE MAY/JUNE 2004

by Dan Doty, Chairman (860) 953-0601 1-(800) FIGHT MS (344-4867) he recently completed Bayer MS Walk Fax (860) 953-0602 once again reinvigorated me and clearly demonstrated to me why I walk. www.nationalmssociety.org or T www.ctnmss.org (Local Web Site) For me the MS walk is like therapy – a homecoming; a spiritual event; an emotional uplift. Thousands of Publication of the National volunteers from all walks of life descend on nine Multiple Sclerosis Society locations in Connecticut with one overriding mis- Greater Connecticut Chapter sion: to improve the lives of folks with MS. Chairman, Board of Trustees I’ve been a member of the Greater Connecticut Chapter for over 10 years Dan Doty now, and each year has been more successful than the past. In fact, it was President and Chief the commitment and enthusiasm of both the chapter staff and the Professional Officer volunteers at my first walk in 1991 that convinced me of my need to get Lisa Gerrol more involved. It was the year that our son Max was born, and my wife Chapter Programs Director Rebecca’s MS was getting to be a nuisance. Jill Zorn Community Programs Director At the UCONN Clinic, we noticed a walk flyer. I had never asked anyone Susan Raimondo for money before, but I was interested in getting involved. Asking for Communication Director donations was no problem for Rebecca, who was a professional political Jane Ferketic campaign manager. We registered for the walk. I reluctantly asked some of my closest friends and family members to support my efforts that year. The Greater Connecticut Much to my surprise their support was overwhelming. Chapter of the National Multiple As I learned more about the Society and its impact on both research and Sclerosis Society is proud to be services, I became convinced that I needed to become more involved. Over a source of information about the years, as new treatments have become available and the Connecticut multiple sclerosis. Our comments Chapter has rolled out more and more programs, my family has benefited are based on professional greatly, both directly and indirectly, from the experience. Being part of the advice, published experience Walk Team, the MS Team, has made us feel that what we do matters and is and expert opinion, but do not making a difference. represent therapeutic recom- mendation or prescription. For This year, our son Max put together his own MS Walk team through his specific information, consult a school. He was overwhelmed by the number of kids interested in qualified physician. participating – four of whom, each has a parent with MS. We’re thrilled that so many kids are eager to help. We had been trying to find a way for The Greater Connecticut Max to have some fun and feel like he is helping mom. He came up with Chapter of the National Multiple the idea and did most of the organizing himself. He must take after his Sclerosis Society does not mother. endorse products, services or manufacturers. Such names Last year the Connecticut Chapter had its first million-dollar walk. This appear in this publication solely was a huge milestone – only a few chapters have ever achieved it. All because they are considered preliminary information indicates this year’s walk is a great success also. valuable information. The Good thing, because the cost of funding research and programs is chapter assumes no liability enormous. whatsoever for the contents or Therefore, it’s up to us!! MS is no longer viewed as an untreatable illness use of any product or service with little or no hope for its victims. We can all feel very proud of the fact mentioned. that the hard-earned money we’ve contributed and raised in past years has The publisher reserves the right positively changed the lives of hundreds of thousands of people with MS. to refuse advertising deemed This is why I walk! inappropriate to the philosophy of the National Multiple Sclerosis Society. Call to Action © 2004 National Multiple Sclerosis Society, Greater Connecticut Chapter hanks to significant advances in research, the FDA has approved several treatments that may alter the T underlying disease course of multiple sclerosis, and early treatment is critically important. People with MS should consult their doctors about using one of these FDA-approved medications and other effective treatments for the symptoms of MS. If you or someone you know has MS, contact the National Multiple Sclerosis Society at Member Charity 1-800-FIGHT MS or nationalmssociety.org for more www.chcct.org information. ■

2 Toll-Free Number: 1 800 FIGHT MS HIGHLIGHTS

Women Against MS

HARTFORD NEW HAVEN Friday, May 21, 2004 Friday, September 10, 2004 at at careerbuilder.com Oakdale Theater Aqua Turf Club in Wallingford in Southington

Sue Thomas Susan Campbell Susan Bysiewicz Jocelyn Maminta Author/television/ of the Secretary of State of WTNH TV radio personality Hartford Courant Keynote Speaker Emcee Keynote Speaker Emcee Elected Secretary of State in 1998, Join us to hear Sue Thomas, who recently was after serving three terms in the Connecticut diagnosed with MS. Sue Thomas’ remarkable life is Legislature, Susan Bysiewicz is the author of Ella: dramatized in the PAX TV hit show A Biography of Governor Ella Grasso, “Sue Thomas: F.B.Eye.” Join us to hear Sue tell her the nation’s first woman governor. inspiring story. Join us to hear Susan talk about the growing role of women in our democracy and share stories of inspiring women who have influenced her throughout her life. For more information or to reserve your seat, contact Mary McClintock at (860) 953-0601 x235 or [email protected]

These networking opportunities are open to people with MS and their families. Take You and Your Family Out to the Ball Game Come to the Cabaret! with the Enjoy a relaxed, informal evening Norwich Navigators at Dodd Stadium, Norwich, CT Connecticut Cabaret Theater Saturday, June 5, 2004 in Berlin, CT presenting Fiddler on the Roof Saturday, June 26, 2004 7:00 pm Enjoy an all-you-can-eat barbeque Tickets: $15 And an evening of baseball! Dinner at the Gator Garden: 5:30 pm Game begins: 7:05 pm Tickets: $10 adults; $5 children 12 & under; Children 3 & under are free. Includes barbeque and game.

To purchase tickets please contact To purchase tickets please contact Lynette Coleman at Lynette Coleman at 1-800-233-7617, ext. 238 1-800-233-7617 ext. 238, or at [email protected] or at [email protected]

3 Visit our Website at: ctnmss.org FUNDRAISING MAY/JUNE 2004

Rev up your engines for our . . . Fourth Annual MS Motorcycle Ride Sunday, July 25, 2004 Starting at TSI Harley Davidson in Ellington After the ride, enjoy . . . • Free BBQ by Little Taste of Texas and IGA • Live music by Cheeseband •Raffle Those who pre-register will be entered into a drawing for a bike detailing courtesy of Frederick Signs!

Registration Fee: $20 for riders; $10 for passengers

Honorary Co-Chairs Zeke Zalaski, State Representative, 81st District Pam Sawyer, State Representative, 55th District The MS Motorcycle Ride is sponsored by TSI Harley Davidson, Inc., and Ellington HOG Chapter

Save the date! Sovereign Bank First Annual Greater Hartford Art Auction

Thursday, September 9, 2004 at the Goodwin Hotel Sixty pieces of art from twenty prominent Connecticut artists will be auctioned. Come bid! Cash Bar / Hors D’Oeuvres Tickets: $20 per person All proceeds to benefit the National MS Society, Greater Connecticut Chapter. For more information contact Mary McClintock at (860) 953-0601, ext. 235 or [email protected]. The Greater Hartford Art Auction is sponsored by 100.5 WRCH.

4 Toll-Free Number: 1 800 FIGHT MS FUNDRAISING

Q&AWith George Nowak

his month’s Q & A is with 15 years, I left and went to the overcome are creative and visual George Nowak. George is an Courant. I was there for three years blocks. But the physical struggle of T accomplished artist and art when I had my first experience with MS adds another dimension to teacher. He lives in New Britain and MS. Eventually, I had to leave the overcome that most people can’t is the father of two college age daugh- Courant. appreciate. I may have the desire to ters. Despite his ongoing struggle with paint all day, but my muscles may While I was at the Herald, I taught MS, George continues to care for his get tired and my hands won’t do art to the gifted and talented at New father, who suffers from Alzheimer’s what my brain tells them to do. Britain High School for two hours a Disease My vision is best in the early week for nine years. When I left the hours, so sometimes I get up at Q: When were you first diagnosed Courant, I went back to teaching at 4:30 am to paint. When you have with MS and how did you react? the high school, which I did until MS, you learn to overcome. A: I was diagnosed in January 1991. last year when the program was cut. I was experiencing severe pain in my Q: What kind of support system I also teach art at the senior center feet and, after visiting my regular do you have? in New Britain and tutor children of doctor, he immediately sent me to a A: I have two daughters that I’m all ages in art. I love to take kids and neurologist . . . who immediately very close with. Erin is 21 and a teach them technique. Schools seem sent me for an MRI . . . and I was business major at the University of to stress originality and they don’t immediately diagnosed with MS. It Hartford. Sara is almost 19 and teach technique – but I believe that all happened within the space of studying journalism at Marymount. until you’ve learned technique, an hour and a half. It was unnerv- I also belong to a MS Society ing. I thought that I might have monthly support group in some sort of cancer. So, silly me, Farmington. I joined it about a year when the doctor told me that it after I was diagnosed and I’ve been was MS, I was in a sense relieved. leading it now for about a year. I like the interaction between Initially, I was hit pretty severely. I members. We discuss everything was in a wheelchair for months. from how we feel to the latest Plus, I had optic neuritis in my left medication. eye and it made me dizzy. I could- n’t allow myself to wallow in self- Q: What words of advice or pity. I kept on painting and draw- inspiration do you have for ing and I worked myself into a bet- others who may be struggling ter emotional state. After a few with MS? months, I got myself out of the A: Don’t give up and don’t dwell wheelchair. on the negative. Whatever it takes, keep on struggling. It’s a good Art gave me a clear perspective on fight. The best thing to do is to where I wanted to go. It was a god- find one other thing that you can send because it gave me a clear originality is useless. I love teaching. have such as a hobby. Everyone direction as to what I had to do, I don’t think there’s anything as should try to find something that no matter what. If the day comes important. Leaving someone with will take the focus off your MS and when I can’t paint, that will be the knowledge of how to paint is give you a reason to live and rough – but then I’ll find some how I will live forever. That’s my overcome your problem. Anyone other road, some other alternative. eternity. who has a handicap has to focus Q: What are your symptoms now? on more important things in life. A: The foot pain has never gone I also do a lot of portraits now and I For me, art is more important than away and I use a cane. I have some belong to a few art leagues. I MS. That’s the key. mental disorientation and some generally win a number of awards loss of mental coherence. I get very each year. For the last three years, Color pictures by George Nowak, exhausted in the middle of the day, I’ve been having work on display at may be viewed on our website at so I’ve learned to pace myself. I also the New Britain museum and I’ve www.ctnmss.org. have optic neuritis. I’ve lost half my placed in their show every year. My vision in the left eye, and that’s bad goal is to have a one-man show. But for an artist. I find myself struggling I don’t paint to become famous or with my right eye and squinting a make a lot of money. Art is its own lot. On the other hand, it gives you reward. a better focus on what you do have Q: Can you name something left and you really get to see things positive that has resulted from much more clearly. your having MS? Q: Tell us about your career as A: Everyone gets up every day and an artist. struggles to achieve whatever it is A: I worked at the New Britain that they want – when you have Herald doing three drawings a week. MS, you learn not only to struggle I received numerous awards from to achieve, but also to overcome. AP (Associated Press) and UPI We artists are a spoiled lot – we (United Press International). After think that the hardest things to

5 Visit our Website at: ctnmss.org RESEARCH MAY/JUNE 2004 Meet New Research Advocate Jonas Anderson ngoing advances in maintained his strong commitment to the fight biomedical research against MS. “I felt I’d learned too much to abandon Oare crucial to solving the fight against MS, he says, “so after leaving the Yale the MS puzzle and improving Center, I contacted the Greater Connecticut Chapter the quality of life for people of the National MS Society to set up a time to meet. I with MS. Of course, you was ready to contribute in any way they needed me – probably know that. But did stuffing envelopes, staffing a booth at a fundraising you know how the Greater event – anything. The Chapter personnel were Connecticut chapter gets the wonderful to work with, and when they offered me a word out and ensures that volunteer position as a research advocate, I was up-to-the-minute information ecstatic. It felt like the perfect match for me.” on ground-breaking research reaches not only our constituents, but the broader Today, Anderson is an analyst in the Mental Health community as well? Intensive Case Management Program of the West Haven VA Medical Center. Enter the Research Advocate – a volunteer champion of the National MS Society’s research mission, who Noting that “there are many wonderful physicians out promotes the Society’s research activities and there,” such as Drs. Marco Rizzo and Timothy communicates programs in MS research to Vollmer, with whom he worked, Anderson also points constituents, donors, and the general public in the out that there are valuable lessons to be learned from chapter area. That’s a tall order. The Greater those who live with MS everday. Connecticut Chapter has two research advocates who “I made many friends while working with patients have served the Society well in this position: Diane and their families at the Yale Center. They were some Biegel, PhD and Keisha Winston. Now meet the of the most amazing, positive, friendly, and humble newest addition to the important group of volunteers: people I’ve ever met. I have great respect for them. Jonas Anderson. They taught me much about living and persisting “As a research advocate, I believe my role is to educate through tremendous adversity.” people about MS and show them the significant difference research efforts have made and are making in the lives of people and families effected by this disease,” says Anderson. “Important research can’t progress without funding. I hope my advocacy will On the Lookout for help people see the dramatic difference their Outstanding Employers contributions make.” he National Multiple Sclerosis Society is once Toward that end, he explains, “Research advocates again seeking nominations for its annual present information in open forums and answer TEmployer of the Year award, recognizing local questions about the progress of MS research. I speak employers who have made significant contributions to civic associations, professional organizations, toward the hiring and retention of workers with support groups, and concerned citizens. I believe that multiple sclerosis as well as other disabilities. there are many people out there who would Through this prestigious award the Society has the contribute their time and/or money to MS research if opportunity to acknowledge employers for positive they understood the impact of the disease and the difference their contributions can make.” employment practices and, at the same time, pub- licly highlight and encourage those efforts. A native of Salt Lake City, Utah, who has also lived in To be eligible, an employer must: West Virginia and France and studied abroad in Israel, Jordan and Egypt, Anderson received his Bachelor’s • Currently have an employee with MS. degree in English from Brigham Young University, • Support and comply with the Americans with and earned a Master’s of Science in Psychology from Disabilities Act. Yale University. It was after receiving his Master’s that • Have taken one or more actions that have Anderson joined the Yale Center for Multiple Sclerosis increased or enhanced employment Treatment and Research as Clinical Trials Recruitment opportunities for an individual with MS. Director and Organizational Management Associate. • Have taken a leadership role and serve as a “I was not at all familiar with MS before joining the role model in advancing disability rights. Yale Center,” notes Anderson, “but my work there (Not mandatory for employers with less than quickly put me in contact with many patients and 100 employees.) families affected by the disease. Almost overnight I became deeply concerned about MS. During my two Members of the Greater Connecticut Chapter are years there I learned much about the disease and encouraged to submit nominees to our chapter became personally invested in research efforts to find office no later than June 30, 2004. Award winners better methods of treating it.” will be announced in late 2004. Though Anderson eventually left the Yale Center, he For more information please contact Jane Ferketic at [email protected] or 860-953-0601 ext. 230.

6 Toll-Free Number: 1 800 FIGHT MS INSIDE MS A Lasting Remembrance Donor creates family programs endowment fund hen someone And she never complained.” you love deeply Though she was sidelined professionally, Susan did W passes away, cre- not allow MS to diminish her spirit. “Susan was ating a lasting remem- remarkable,” says her husband, “Although there brance of that person is were understandable low moments, she retained one of the most special her enthusiasm for life. It was almost as if the more things you can do, accord- disabled she became the more she wanted to do ing to Dr. Jeffrey Hyams. things. Sitting at home was not an alternative. Dr. Hyams recently created Whether it was going out for lunch or visiting the the Susan B. Hyams mall or sitting in the park, she always insisted on Memorial Fund at the doing something.” Greater Connecticut Chapter of the National One such “something” was MS Vacation Week – a MS Society as a tribute to his late wife. The fund semi-annual five-day getaway at Easter Seals Camp will provide scholarships to people with MS to Hemlocks in Hebron for people with MS. “Susan attend MS Vacation Week, his wife’s favorite pro- loved going to camp,” recall her parents, “She loved gram held by the Chapter. talking to the people there. She loved the entertain- ment, the boating, the dancing . . . there is a great “A warm and intelligent person with an engaging picture that was taken of some of the aides holding inner vitality and an infectious smile,” that’s how her up so that she could dance.” Dr. Jeffrey Hyams describes his wife, Susan. This is a sentiment that is echoed by all those who knew Given the impact that MS Vacation Week had on the vibrant West Hartford woman who passed away her life, the Margolis and Hyams families have in November 2002 at the age of 50. chosen to honor Susan’s memory by establishing the Susan B. Hyams Memorial Fund to help others “Susan had a smile for everyone,” say her parents enjoy the benefits of Vacation Week. Alice and Herbert Margolis, “She loved people and people loved her. She was a very happy person.” “MS Vacation Week was so important to her,” notes That upbeat attitude helped Susan Hyams cope Dr. Hyams. “It raised her spirits and brightened her with the increasingly debilitating toll that multiple life. We felt it was a fitting tribute to her. The fund sclerosis took on her body. will enable those with limited financial resources to attend and enjoy the camp as she did.” Growing up in West Hartford, Susan Hyams dreamt of becoming a nurse. A candy striper at Mount In addition, the Margolis’ have dedicated a large Sinai Hospital in Hartford since the age of 15, she planter in West Hartford Center in memory of their picked up her undergraduate degree at daughter. The planter sits in a little park that Susan Northeastern University in Boston and then took loved to visit in her last years. off for the University of Pennsylvania, where she Susan Hyams died a year and half ago on Thanks- pursued her dream by becoming a nurse giving weekend, surrounded by her family. The anesthetist. It was at the University of Pennsylvania legacy she left behind is her unrelenting zest for life. that she met her husband Jeffrey, who was studying “One lesson we learned from Susan is that self-pity to become a doctor at the university’s medical doesn’t get you very far and that ‘living’ life is what school. It was also during that period of time that we need to do,” says her husband. “We know she is Susan experienced her first attack of optic neuritis with us each day and our sorrow is tempered by that eventually led to her diagnosis of multiple our rich memories.” sclerosis. And then, of course, there is her trademark. Says After she married and moved to Boston, where her her father: “I have a montage in my office – forty- husband was an intern, Susan started to develop three photos of Susan, from childhood until the intermittent motor symptoms. Nonetheless, she end . . . and every one of them is with a smile.” continued to work as a nurse at Brigham Women’s Hospital. Later, Susan did take time to spend with her newborn son Eli, now a grown man, soon to Paid Advertisement graduate from the University of Pennsylvania School of Medicine. When the Hyams’ moved to West Hartford and Eli turned three, Susan went back to nursing at Mount Sinai Hospital. “Susan loved her work,” say her parents, “Going to the hospital was the highlight of her day. She developed so many friendships there. She was a terrific nurse anesthetist.” Despite her disease, Susan continued to work until, at the age of 37, her MS significantly worsened and she was forced to give up her job. Still, say her parents, “She continued to take care of her family and her dog.

7 Visit our Website at: ctnmss.org PROGRAMS MAY/JUNE 2004 Achievement Award Nomination

Nominations are currently being accepted for the National Multiple Sclerosis Society Achievement Award. The award recognizes and honors people with multiple sclerosis who represent what individuals with MS accomplish in their personal and/or professional lives despite the obstacles they face. The Chapter’s year 2004 Achievement Award Winner will be selected in June. If someone in your family, support group, workplace or among your friends meets the criteria, please submit their names on the attached form. Individuals may nominate themselves or others by submitting their names, an explanation of their achievements and how MS affects them to Jane Ferketic at the chapter office before June 15. “Helping the Chapter spread the word that people with MS can lead MS Achievement Award Nomination productive lives was an honor.” Christina Ferraro I would like to nominate the following person for the National MS Society Achievement Award Winner 2003 Educator, Mother, Person with MS Achievement Award.

Name ______Address ______City______State______Zip ______Phone (day)______(evening)______E-mail ______Nominated by ______Phone (day) ______(evening)______E-mail ______On a separate sheet, please tell us about the nominee’s achievements and how MS has affected his/her life. Include the nominee’s present activities, recent accomplishments, resourcefulness and perseverance demonstrated in coping with MS; degree to which the nominee’s selection would encourage people with MS, and the nominee’s role with the Chapter. Fax to (860) 953-0602, e-mail: [email protected] Or mail to: Jane Ferketic National MS Society 705 North Mountain Road, Suite G-102 Newington, CT 06111

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8 Toll-Free Number: 1-800-FIGHT MS RESEARCH Research Center Award Settlement of Lawsuit continued from page 1 Means Better Access to rodent models of EAE, an MS-like disease. Specifically, this team is exploring how myelin and Medical Equipment axonal damage occurs in EAE, and whether bone Under Medicaid marrow cell transplantation or other treatments can protect axons as well as repair myelin. recent class action lawsuit concerning the Team members Nancy H. Ruddle, PhD, a noted denial of access to needed medical equip- immunologist, and Peter Cresswell, PhD, an expert on A ment for Medicaid recipients, which was the biochemistry and cell biology of the initial events brought by Connecticut Legal Services and New in an immune response, are investigating how myelin Haven Legal Assistance Association against the and axons are damaged in EAE models. Together, they Department of Social Services (DSS), has resulted in are exploring how the immune attack in different a settlement that can mean better help for people models of EAE may lead to nerve tissue damage in with MS. different ways. They also are seeking to determine Under the terms of the settlement, DSS will consider which pathway may lead to progressive disease. all requests for medical equipment – which includes Dr. Kocsis is tackling the important question of tissue canes, crutches, walkers, wheelchairs, bed pans, repair by transplanting bone marrow-derived stem hospital beds, special toilet seat, and oxygen cells into mice with EAE to determine if myelin machines – regardless of whether or not the item in damage can be repaired and the disease course question is included on its pre-established list of altered. Cells will be “harvested” from bone marrow covered equipment. The agency will assess on a case in collaboration with Diane S. Krause, MD, PhD, an by case basis whether or not the equipment meets its expert in bone marrow cell biology. standard of durable medical equipment and whether the item is medically necessary for the individual A method of protecting axons is being investigated as requesting it. well. Stephen G. Waxman, MD, PhD, winner of the National MS Society/American Academy of In its assessment, DSS has agreed to consider Neurology’s 2002 John Dystel Prize for MS Research, whether the requested equipment can help the has shown that a drug that blocks sodium channels individual maintain independent living, and avoid reduces axonal damage in one type of EAE. He is now placement in an institution. Thus, items such as stair extending these studies to other MS models, glides and voice-activated environmental control examining how specific abnormalities in sodium units will be paid for under Medicaid if they are channels lead to nerve cell dysfunction. Al Lo, MD, meant to help people with medical needs and the PhD, who has contributed important data toward this person requesting them is dependent upon them to effort, will continue to work on these studies. stay in the community. To obtain an item not included on the DSS list, Another method of nerve tissue protection is being individuals must acquire a prescription from their investigated by team member Richard Flavell, PhD, physician. A Medicaid-participating supplier of the a noted expert in autoimmunity whose laboratory equipment must then request “prior authorization” recently showed that the immune messenger protein in writing from DSS. To find out whether a supplier TGF-beta plays a critical role in controlling is enrolled in the Medicaid program, ask your local autoimmune disease by inhibiting T cells. He is drug store or supply company, or call DSS at 860- helping the team explore the role of TGF in regulating 424-5217. DSS has 20 business days from the date EAE and possibly preventing nerve tissue damage. the request is submitted to issue an approval or These basic research efforts will address the clinically denial. The agency must notify the Medicaid important areas of immunotherapy and recipient of a denial in writing, advising the neuroprotection. Combining established MS individual of his or her right to a hearing. investigators and superb scientists from other fields To receive the DSS publication, “How to Get Durable will provide new approaches and expertise to help Medical Equipment through the Medicaid Program,” translate this basic research into novel treatment go on line to www.dss.state.ct.us/svcs/medical/dme. strategies for people with MS. For more information, contact Kevin Brophy at In addition to the Yale University team, recipients of Connecticut Legal Services, 203-756-8074 or 1-800- Collaborative MS Research Center Awards also 413-7797; or Sheldon Toubman at New Haven Legal included teams from John Hopkins University that Assistance Association, 203-946-4811. aims to identify new therapeutic approaches that will Paid Advertisement slow or stop diseases progression; the Mayo Clinic, that is investigating whether newly discovered small molecules called aptamers, and/or larger antibodies, can stimulate myelin repair; and Cleveland Clinic and formerly New England Wheels West Inc. 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9 Visit our Website at: ctnmss.org FUNDRAISING MAY/JUNE 2004 This is Why We Grand Prize! Ride . . . continued from page 1 he top fundraiser of the bkm/Steelcase Bike Tour will take home a pages to help their fundraising Tfully accessorized Trek or Giant Mountain Bike. efforts. A web page is the perfect place to tell why you ride, and add Grand Prize provided courtesy of Bloomfield Bike. a photo or include your own goal. Create your web page by simply clicking on www.ctnmss.org. Each route features rest stops, safety motorcycles and sag wagons. Finish line festivities and a traditional pasta lunch courtesy of Vito’s of Newington will cap off the day. Mohegan Sun MS 150 Bike Tour, Sights and Sounds Prizes! The name and a few finer details All cyclists receive a commemorative tour t-shirt and water bottle with have changed, but the fall bike their minimum fundraising donation of $100. tour’s commitment to excellence RAISE WIN has not. If you’ve never tried a two $10,000 $500 Bike Shop Gift Certificate, MS Tour of Champions Trip, Tour day bike adventure, 2004 is your jersey, Mission Possible Club, Millennium Circle and Gold Spokes year. Over 225 cyclists are expected Club to turn out for the 150-mile route $ 7,500 MS Tour of Champions Trip, Tour jersey, Millennium Circle and Gold Spokes Club that begins and ends at Hammon- $ 5,000 Tour jersey, Tour beach towel, Tour sweatshirt, Millennium Circle asset State Park. From the begin- and Gold Spokes Club ning to the end of the tour you’ll $ 2,500 Tour jersey, Tour sweatshirt, Millennium Circle and Gold Spokes travel along picturesque roads, Club $ 1,000 Tour jersey and Gold Spokes Club through charming New England $500 Tour sweatshirt and Gold Spokes Club towns and along the Connecticut $250 Tour Beach Towel coastline. Your overnight will be at Sunrise Resort in Moodus. ELITE FUNDRAISING CLUBS Gold Spokes Club Here’s how the 2-day tour works. Raise $500 or more in 2003 and receive a Gold Spokes bike seat bag. On Saturday morning everyone Raise $500 or more in 2004 and receive a Gold Spokes prize next year. checks in, throws their overnight bags in the back of the truck, gets Millennium Circle Raise $2,000 or more and receive a commemorative gift and local their bike a quick check-up . . . and recognition. leaves the starting line together. MS Tour of Champions Food never tastes as good as it Raise $7,500 or more and become eligible to join top fundraisers on a does at a bike tour rest stop! weekend getaway in the continental U.S. Raise $20,000 or more and Dedicated volunteers serve up become part of the International Tour of Champions. some delicious surprises, along Mission Possible Club with traditional oranges and Raise $10,000 or more and receive Millennium Circle benefits in bananas. If your tire needs a bit of addition to a Mission focused award and national recognition. air, a mechanic is on hand to help. Thankful supporters cheer you on as you cross day-1’s finish line. Then sit back and enjoy a Honorary Co-Chairs luncheon feast. By now you’re chatting with fellow enthusiasts The Greater Connecticut Chapter is pleased to announce that meteorologist like old friends. Relax on Saturday Art Horn and health reporter Carolyn Pennington, both of NBC 30, will night playing high stakes bingo, serve as Honorary Co-Chairs of the bkm/Steelcase MS Tour for the Cure. then head for bed. Sunday you awaken to a rooster call (our own honorary mascot!), and wolf down a huge breakfast with familiar, happy faces. A few stretches to work out body kinks and you’re on the road again. As you arrive in Hammonasset the sun will be setting on a beautiful, fall weekend. You’ll be proud because you reserved the date and made the commitment to close Art Horn Carolyn Pennington out the 2004 cycling season in style. NBC 30 Meteorologist NBC 30 Health Reporter Jump on www.ctnmss.org and sign up now!!! 10 Toll-Free Number: 1-800-FIGHT MS FUNDRAISING

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11 Visit our Website at: ctnmss.org INSIDE MS MAY/JUNE 2004 Ask the Professional ictor Freedman is a life- always go to meetings with clients. So I’ve teamed up long Hartford resident who with a colleague with whom I worked earlier in my V has worked in the career. I like to say that I’ve got the looks and he’s got insurance industry for 23 years. the legs! I make the phone calls . . . he goes to the Diagnosed with MS in 1985, eight meetings. We utilize one another’s strengths. It’s a years ago he traded in his seat in the partnership that’s been mutually beneficial. corporate boardroom for a home office and his own business. Today, Q: What special problems do people with he has an active business called disabilities face in obtaining insurance? Victor Freedman Benefit Design Group providing A: There are more than 2,000 insurance companies out group and key person benefit there. Some are so uptight that you can’t get insurance planning for individuals and small businesses. Freedman unless you’re able to run the Boston Marathon in five also specializes in obtaining all types of insurance for people minutes. They simply won’t look at you. Others are with disabilities. He can be reached at (860) 246-4519. much more lenient. So the biggest problem is that the disabled believe that they’re uninsurable. That’s Q: When were you diagnosed with MS and how have absolutely not true. You can get insurance – and it you coped with it? doesn’t always cost more money. You just have to know A: After being diagnosed with MS in 1985, I went where to look for it. You have to find the right carrier. through the normal emotional processes of anger, My experience includes helping people obtain: term denial, acceptance, self pity and even went for psycho- and whole life insurance, short and long-term disability logical therapy. Like anyone, I needed to learn about insurance and health insurance. the disease and about the man I was becoming. The trouble is that, while the insurance is out there, After more than 18 years of having MS, my physical you have to know what you’re doing and you have to condition changes daily. Every day brings about search the market for it. That takes time, and the physical and mental challenges. I choose to have a average insurance agent may not be willing to spend positive attitude and to constantly meet those that kind of time. I’m willing to take the time, because challenges. Working out regularly has been not only I understand what it is like to live with a disability. physically beneficial, it has also contributed to my emotional well-being. Q: Why do you believe it’s worth the time? A: Two years ago I got an e-mail from a girl in Q: Why did you decide to leave the corporate world Chicago who had ALS – Lou Gehrig’s Disease. It’s a and strike out on your own? terminal disease and she needed life insurance. I got A: After 15 years working in a corporate environ- her the insurance she was looking for and it didn’t ment, my physical challenges made it a necessity for cost a lot of money. To find life insurance for me to reexamine how I do my business and where. I someone like that made me feel that I’d done was fortunate to be able to establish an at-home something worthwhile. I have so many similar stories. office environment. Initially, it was scary not knowing That’s why I do it. It may take longer and I may not if I could motivate myself everyday. However, it’s make as much in commissions . . . but I do it because proven to be one of the best choices I have made. I understand what people with disabilities go through.

Q: Has MS affected your ability to work? The Chapter does not endorse products, services, manu- A: I needed to learn to work a little differently – and facturers, or vendors. The Chapter assumes no liability smarter. I have all the stamina to make phone calls and whatsoever for the contents or use of any product or schedule appointments and the like. However, I can’t service mentioned. Paid Advertisement

12 Toll-Free Number: 1-800-FIGHT MS PROGRAMS MS Learn Online To Cover Managing Your Symptoms

he National MS Society’s informative MS Learn Online series is an excellent way for people with MS and their families to keep on top of topics and issues of relevance to them. To access MS Learn Online any- T time, go to the National MS Society website – www.nmss.org – select Living with MS, then Webcasts and Conferences. Interested individuals can also join the MS Learn Online mailing list by e-mailing [email protected]. Series Three: Managing Your Symptoms, will feature a discussion with Dr. Randall Schapiro, Director of the Fairview MS Center in Minneapolis, MN, on the following topics: •May 20 Fatigue • June 3 Tremors and Balance • June 17 Gait and Spacticity • July 1 Dizziness and Vertigo

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13 Visit our Website at: ctnmss.org PROGRAMS MAY/JUNE 2004 Grateful Member Thanks to Your Help, t feels so good to brighten someone’s day! We We’ll Never Walk Alone! thought we’d share with you this letter of Ithanks that recently arrived in our office. ore feet aside, the Bayer MS Walk held on Thank you from the bottom of my heart for the two Sunday, April 18th was a foot-stomping success tickets to the Ice Show. I cannot even begin to tell S. . . and no one deserves a standing ovation you how excited I am to be able to attend a live more than the hundreds of walkers and volunteers performance.It will be the thrill of a lifetime for who gave so selflessly of their efforts and energies. me! Your strong support helped us raise $850,000 to date I have loved the sport of ice skating for years and toward our goal of $1,075,000 that will be put to years, and have followed the stars by watching it good use in our fight against MS. on t.v. I had called to see how much the tickets would cost, and how close they could seat me, This is why we walked . . . and we couldn’t have done because of my visual field defect. Living on it without you! NOTE: Pledges are due by May 28th. disability, I simply couldn’t afford to go. So you can imagine how much I appreciate this opportunity! I was diagnosed with MS fifteen years ago, and I have a lot of nerve pain. But I am thankful to God MS Lobby Day that I’m still on my feet. Others have it so much pproximately 20 people with harder. MS from the Greater and Thank you again so much. A Western CT Chapters of the Sincerely, MS Society attended MS Lobby Day at the State Capitol on Wednesday, Margaret Adams April 21. Following an update of the issues, those attending heard from the following four legislators who took time out from their busy Dialing for MS schedules to speak: Representative James Amann, CT State Senator elp find a cure for MS just by making a Edith Prague phone call! SBC has pledged to give House Majority Leader Hour chapter five cents of every dollar Senator Martin Looney, Senate Majority Leader you spend on long distance calls made from Senator Edith Prague, Assistant President Pro your home. Tempore of the Senate Senator Kevin Sullivan, President Pro Tempore of the Absolutely no additional out-of-pocket Senate costs for you! SBC will aggregate your calls when you make in-state, out-of-state, Key issues discussed by the legislators and people with international and calling card calls. They’ll MS included: send our Chapter a check equal to 5% of • Prescription Drug Access – impact on Medicaid & the cost of all those long-distance calls. ConnPace Beneficiaries of a Preferred Drug list and To enroll in the program all you on Medicaid beneficiaries of new co-pays and have to do is call 1-800-635- potential premiums 7638, and tell them you want five cents of every • Medicare Supplement Insurance Policies – allowing dollar you spend on your long-distance calls to go people with disabilities to purchase the same plans to the Greater Connecticut Chapter of the National that those over 65 are able to purchase Multiple Sclerosis Society. The code number for the • Long Term Care, including expansion of the PCA chapter is 3606. waiver program and nursing facility transition grant.

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14 Toll-Free Number: 1-800-FIGHT MS RESEARCH

Study Finds Modest Link Between Stress and Multiple Sclerosis Attacks new study that combines results of people’s individual reactions to stress may come previously published research findings into play. They emphasize that these data should A suggests that acute attacks of multiple not be used to infer that persons with MS are sclerosis may be associated with stressful life responsible for their exacerbations, but rather events. The study, appearing in the British should encourage further investigations into the Medical Journal and funded in part through potential link between stress and relapse. National MS Society postdoctoral fellowships, is This study contributes new insights into the a “meta-analysis” (which statistically combines existing literature concerning the possible link findings) of previously published studies of the between stress and MS attacks, but it does not topic of stress and MS. resolve the issue. Many of the studies cited had Multiple sclerosis is thought to be an significant limitations. This was particularly true autoimmune disease that targets the brain and of those studies that examined first MS attacks, spinal cord. In its most common form (“relapsing- where in some cases, participants had to recall remitting MS”), neurological symptoms of the stressful events that had occurred several years disease come and go in the form of acute attacks prior to the interview. It is possible that stress followed by periods of partial or complete may affect the timing of exacerbations without recovery. It is still not known what causes MS, or affecting the long-term course of the disease. what triggers relapses, although upper Learning to manage stress is especially important respiratory infections have been linked to for those with MS. However, there is currently no relapses in some individuals. Although there have evidence that managing stress would alter been many studies examining a possible link disease course. The National MS Society is between stress and MS, conclusions have been funding research that investigates whether controversial. This is because stress has many teaching stress management techniques can help different meanings and has been defined and individuals with MS and their caregivers both studied in many different ways that are hard to physically and psychologically. The National MS compare. Moreover, studies of stress and the long- Society provides suggestions in “Taming Stress in term course of MS are lacking. Multiple Sclerosis,” a brochure available on its David Mohr, PhD, and colleagues (University of Web site, www.nmss.org. California at San Francisco) searched the medical Paid Advertisement literature for studies from 1965 to February 2003 that contained the terms “stress,” “trauma,” and Ride-Away Corporation Helps You “multiple sclerosis.” The investigators Get Back On The Road Again! independently reviewed the papers, analyzing methods, statistics, and outcomes. They excluded studies that focused solely on physical trauma or medical conditions, and also excluded studies that did not provide adequate details of methods and outcomes. National MS Society-funded postdoctoral fellows Laura Julian, PhD, and Darcy Cox, PsyD, contributed to the analysis. The authors included 14 studies that met their screening criteria, including studies that looked at MS relapses after diagnosis as well as initial MS attacks. In 13 out of 14 studies, the authors Ride-Away is New England’s largest provider of vehicles noted a significant increase in the likelihood of modified for people with disabilities. The MS relapse following stressful life events, such as company sells new and previously owned vehicles as well as offering a full marital problems or financial difficulties. range of vehicle modifications The authors conclude that these studies indicate including hand controls, wheelchair and scooter lifts, a modest association between stressful events ramps, raised doors, lowered and MS relapses, but also note the limitations of floors and specialized gas, brake and steering controls. their study. The quality of the studies they Extended warranties and financing are reviewed varied, and the authors of those studies also available. Rental vehicles are available on a daily, weekly did not always consider or report other factors or monthly basis with 24 hour emergency roadside assistance. (such as upper respiratory infections) that might have triggered relapses. Furthermore, the association between stress and relapse was not consistent among patients, or even in one individual over time.

Dr. Mohr and colleagues do not claim that the 5 year / 50,000 mile warranty on Braun lowered floor minivan conversions. data demonstrate a “causal” relationship between 3 year / 36,000 mile warranty on all Braun lifts and additional products. stressful events and MS onset or relapses, but Let Ride-Away help you get on the road again. instead suggest that these results encourage Contact an office near you at further research to define which stressful events 1-888-Ride-Away may likely be associated with changes in MS, or visit us online at www.ride-away.com what biologic processes may be at work, and how 15 Visit our Website at: ctnmss.org INSIDE MS MAY/JUNE 2004

2004 MS CT Citizen of the Year Gala Committee CO-CHAIRS ROCCO FERRARO MICAHEL LECH JIM SANDLER MEMBERS DR. DAVID G. CARTER Gala Committee Members (l to r): Sean McNamee, Jim MARIO DILORETO Sandler, Kevin Maloy, Rocco Ferraro, Jim Koplik, Michael THOMAS FERREIRA Lech, Dr. D. Carter OZ GRIEBEL ROSS HOLLANDER ROBERT LANDINO MIKE LAPITINO KEVIN MALOY SEAN MCNAMEE ALAN OYUGI MARK POWERS JASON ROMANO JEFFREY ROSENBERG MICHELLE ROULE PHIL SCHONBERGER

(Left to right) Lisa Gerrol, Jim Koplik, Mary McClintock, Michael Bolton, and Representative Jim Amann

Jim and Andrea Koplik admire the award commemorating their involvement in the 2004 MS Connecticut Citizen of the Year Gala Oh, What A Night! MS Honors Jim Koplik t was a night to remember on Wednesday, March 17, when Connecticut’s premier music impresario Jimmy Koplik was presented with the first-ever MS Citizen of the Year Award at the Greater I Connecticut Chapter’s 2004 Gala held at the careerbuilder.com Oakdale Theater. The celebratory event raised $290,000 to benefit MS research and programs. Among the VIPs on hand to congratulate Koplik – and enjoy the post-reception concert by Sting – were singer Michael Bolton; CT Secretary of State, Susan Bysiewicz; CT House Majority Leader, Jim Amann; President of Eastern Connecticut State University, Dr. David Carter; Executive Director of Michael Bolton Charities, Jackie Smaga; and Marty Brooks of Madison Square Garden-CT. “Jimmy makes Connecticut a better, more vibrant place to live,” said Chapter President Lisa Gerrol. “His passion for excellence in his work and his dedicated efforts towards improving our community make him an exemplary civic leader. We are thrilled to have him involved in our mission to end the dev- astating effects of MS.” A resident of Connecticut for more than 30 years, Koplik is known for his charitable generosity and his community involvement. The president of Clear Channel Entertainment-CT, Music, he has produced a slew of legendary concerts including The Eagles at the Yale Bowl in 1990, all of the Rolling Stones’ Connecticut appearances, Paul McCartney, Billy Joel, Dave Matthews Band and Jimmy Buffett. Most recently, Koplik was instrumental in inaugurating the new University of Connecticut football stadium at Rentschler Field with a concert by Bruce Springsteen and the E Street Band.

16 Toll-Free Number: 1-800-FIGHT MS PROGRAMS

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Allergan, Inc. LAZ Parking, Ltd. Alliance Limousine, LLC Madison Square Garden CT Bouvier Beckwith & Lennox, Inc. Kevin and Beth Maloy Clear Channel Radio Manafort Brothers, Inc. Concert Services, Inc. Northeast Utilities Deloitte. PSEG Power Connecticut, LLC Haggett, Longobardi & Company, LLC Philip & Robin Schonberger Hartford, New England’s Rising Star Sovereign Bank Holliday Fenoglio Fowler, L.P. Teva Neuroscience Kenneth and Christine Kitchings WFSB TV - Channel 3 Lawrence & Memorial Hospital Marc S. Levine Real Estate Interests Downes Construction Company Cindy Citrone

Got questions? Classifieds We’ve got answers! For Sale: Invacare XLT Hand Cycle. $1,100 or best offer. Call Alec at (860) 522-8101 x 322 or (860) Call us at (860) 953-0601 or 646-7519. (800) 233-7617 (in CT) These are just some of the questions we can answer: •How do I decide on a treatment for MS? • Can I have a baby if I have MS? Paid Advertisement • Which neurologists in CT specialize in MS? Home Sweet Home • What is available to help with my symptoms? •How can I talk to my family or HEALTHCARE friends about my MS? Wheelchairs – Manual, • Should I tell my employer I have MS? Motorized, & Lightweight Bathroom Aids Home Healthcare because we care Call us with your questions! Stairway & Wheelchair Lifts 1-800-4-PELTONS 1-800-473-5866 Hospital Beds • Walkers The Greater Connecticut Chapter is proud to FREE IN-HOME EVALUATIONS Hours: Mon-Fri, 8:30-6; Sat 9-5 offer a helpline, available Monday through Friday DELIVERY AVAILABLE 100 Main St., Middletown • 346-3336 657 Silas Deane Hwy, Wethersfield • 529-6305 We bill Medicare and most other insurances 112 Main St., East Hartford • 568-3710 from 8:30 a.m.–4:30 p.m.

17 Visit our Website at: ctnmss.org CHAPTER NEWS MAY/JUNE 2004

Donate Vehicles Local Aquatic Short-Term Online to Help Programs Equipment Loans Fight MS New England Athletic he Greater Connecticut Club, Cromwell. Mondays aving difficulty getting rid of Chapter’s equipment loan and Fridays 10:45 a.m. Call an unwanted vehicle? Tired closet provides people T of placing classified ads? Lynn at (860) 267-7012. with MS and their families H Worried about the vehicle’s attrac- Gaylord Hospital, devices that can be used to tiveness to car hunters? Well, now Wallingford. Monday- maximize their health and you can donate vehicles to the Saturday during posted independence. National Multiple Sclerosis Society hours. Call pool office (203) All medical equipment, wheel- by visiting www.ctnmss.org. Your 284-2800 x3438. chairs, lifts, electric scooters, donation not only helps to end the walkers, and hospital beds are devastating effects of multiple sclero- Hospital for Special Care, loaned for three months with sis, but you can take an income tax community and group mem- the option of renewal. deduction based on the blue book berships available. Call value of the vehicle. Remember, we 1-877-HSC-POOL. For more information about do not reject vehicles based on their the equipment loan closet appearance or condition. Visit call Amy Watkins at (860) www.ctnmss.org or call Elena at 953-0601 ext. 247, or (860) 953-0601 ext. 226. [email protected].

What’s New In The Raymond P. Howell Library? Books: Audiotapes: Products and Plans for Universal Ask the Doctor About Progressive MS. With Dr. David Homes. Over 1,700 products from over Dawson. An NMSS teleconference, 1/29/04. 450 manufacturers. Plus, 51 plans for Meeting the Emotional Challenges of Progressive MS. Universal Homes. Barrier Free Designs. With Dr. Rosalind Kalb. An NMSS teleconference, Produced by the editors of Home Planner 2/5/04. 2 tape series. and published by Home Planners, LLC, January 2000. 128 pages. To Work or Not to Work: Positive Decision-Making in Climbing Higher. By Montel Williams with Lawrence the Workplace. An employment teleconference Grobel. Up-to-the-minute information on new MS sponsored by the NMSS. February 26, 2004. research and guidance for managing MS. Penguin Blindsided: Richard M. Cohen. Richard Cohen’s Books Ltd., 2004. 225 pages. account of living with a devastating illness. Read by Multiple Sclerosis Q & A, Reassuring Answers to Richard Ferrone. 4 audio cassettes produced by Harper Frequently Asked Questions. By Beth Ann Hill. Penguin Collins Publishers Inc., 2003. Running time is 5 hours. Group Inc., 2003. 139 pages. To borrow these materials or for a complete list of My Story: A Photographic Essay on Life with Multiple library resources, contact the Chapter at (860) 953- Sclerosis. By Amelia Davis with a forward by Mrs. 0601 or visit www.ctnmss.org. Richard Pryor. Demos Medical Publishing, Inc., 2004. 112 pages.

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18 Toll-Free Number: 1-800-FIGHT MS SUPPORT GROUPS

BLOOMFIELD HARTFORD NEW LONDON SOUTH WINDSOR Support 4th Thursday 10:30 am 3rd Thursday, 7 pm 4th Wednesday, 6:30 pm Newly diagnosed and Groups Bloomfield Senior Center Chelsea Place Lawrence and Memorial under 35 only Lenny (860) 242-8354 Victor (860) 246-4519 Hospital, Baker 4th Saturday, 10 am Nancy (860) 688-4584 Auditorium South Windsor Please contact lead- MADISON Carol Vara (860) 442- Ambulatory Care Center ers for information COLCHESTER 1st & 3rd Wednesday 0711 ext. 2483 Andrea (860) 643-2717 and remember that 2nd Saturday, 11:30 am - 1:00 pm dates and times may 10:30 am - 12 pm Memorial Town Hall NEWINGTON VERNON change from month Harrington Court Karen (203) 245-4691 2nd & 4th Thursday 1st Friday, 7:00 pm 7:00 pm to month. Ed (860) 537-1919 MANSFIELD Vernon Police Peggie (860) 267-9759 Newington Senior and Department, Community The names and 35 and under only Disabled Center Room Bring photo ID numbers listed are EAST HARTFORD Charlie (860) 667-1314 Nancy C. (860) 742-5155 not to be used for any 2nd Saturday, 12 pm Nancy N. (860) 871-6634 2nd Thursday, 7:00 pm solicitation or Natchaug Hospital OLD SAYBROOK East Hartford Public promotional purpose. Keisha (860) 234--9229 rd WEST HAVEN Library 3 Wednesday 10:30 am St. Paul Church Thursdays 12 pm For other support Lisa (860) 645-1523 MANCHESTER Bruce (860) 767-2039 VA Hospital, Bldg. 2 group information 1st Monday 10 am June (860) 399-8296 2nd Floor EAST WINDSOR Church of Christ contact the chapter Veterans only 394 Lydall Street office. 3rd Thursday, 6:30 pm PUTNAM Mary Lou (203) 932-5711 Warehouse Point Library Nancy (860) 643-5137 rd On-line support can 3 Friday 7 pm ext. 2276 Jeanie (860) 668-2792 Donna (860) 646-6335 be found at Day Kimball Hospital WOODBURY www.msworld.org MIDDLETOWN Pat (860) 779-0398 FARMINGTON 1st Wednesday 1:00 pm 2nd Saturday, 1 pm 3rd Monday, 7-9 pm ROCKY HILL United Methodist Church Wadsworth Glen Northwest Village School 3rd Thursday 1-3 pm Ray (203) 756-6362 Call chapter for more OTHER SUPPORT Wheeler Clinic Cora Beldon Library information George (860) 793-9589 Celeste (860) 347-1362 Infoline * * * * * * * * * * GLASTONBURY MILFORD Carin (860) 379-6745 Maureen (860) 537-2145 24-hour counseling 3rd Monday, 7 pm 2nd & 4th Saturday Dial “211” Laurel Gardens 1:30 pm SIMSBURY David (860) 633-8533 Milford Hospital rd Samaritans Carol (860) 657-2013 Joy (203) 378-0936 3 Friday 11 am-1 pm 24-hour support John (203) 874-1225 Simsbury Senior Center GRANBY (860) 232-2121 Lois (203) 878-6222 Peter (860) 651-5481 2nd & 4th Monday 1:00 pm SOUTHINGTON Salmon Brook 2nd Monday, 7:00 pm *Groups may change dates from month to Apartments Bradley Memorial month; please call Jane (860) 653-2436 Hospital Christine (860) 721-6400 leaders before attend- ing a group. Carleen (860) 378-0260

Support for People with MS Announcing New Support Groups: Ages 17 to 21 • The Windsor Locks group has moved to East Young people with MS who are often hesitant to Windsor. The group will now be meeting at the take advantage of the programs offered to help Warehouse Point Library on the third Thursday them may find just the thing in a new national of each month. For more information, call telephone support group. The group, established Jeanie at (860) 668-2792. especially for those between the ages of 17 to 21, • NOTE CHANGE OF DAY: A new group meets at includes a toll-free monthly group, quarterly edu- the United Methodist Church in Woodbury on cational teleconferences and several other pro- the first Wednesday of each month at 1 pm. For grams. This is an opportunity to network with more info, contact Ray at (203) 756-6362. other young people across the country who are •A group for newly diagnosed and young adults also dealing with the effects of MS. under 35 in South Windsor meets on the Our chapter’s own Sandy Marshall, a nurse with fourth Saturday of every month from 10 am – the Institute of Living who previously facilitated 12 pm at the South Windsor Ambulatory Care our local Parenting with MS support group, Center, 1350 Sullvivan Avenue. For more info, worked with the national staff to develop the call Andrea (860) 643-2717. support group and now serves as the program’s group facilitator. For additional information about this group or other programs for children and teens with MS contact Lynette Coleman at (860) 953-0601, ext. 238 or [email protected].

19 Visit our Website at: ctnmss.org NON-PROFIT ORGANIZATION U.S. POSTAGE PAID Hartford, CT Greater Connecticut Permit # 01870 Chapter

National Multiple Sclerosis Society Greater Connecticut Chapter 705 North Mountain Road, Suite G-102

Newington, CT 06111

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CALENDAR OF EVENTS OF CALENDAR 004 2 MAY/JUNE MAY/JUNE