9Th International Conference & 1St Global Aya Cancer Congress

TEENAGE CANCER TRUST

presents the 9th iNTERNATIONAL CONFERENCE & 1st GLOBAL AYA Cancer CONGRESS

5-7 December 2016 at The Assembly Rooms, Edinburgh, UK

Early Registration Deadline: 1 June 2016 Abstract Submission Deadline: 1 July 2016 Preliminary Programme Preliminary Programme 1st Global AYA Cancer Congress: Working Together: Achieving More

Please note that the programme outlines the topic areas to be covered. Specific presentation titles will be confirmed at a later date. This programme is subject to change without notice and we recommend that all participants check the final programme nearer the time posted on the Conference website.

monday 5 DECEMBER

08:00 Registration and Coffee /Poster Set Up 14:00 -16:30 Session 3: Treatment Across The AYA Age Range 08:45 Welcome and Introduction to the Conference 14:00 Different Approaches to Treatment Across the Age Span Siobhan Dunn, Chief Executive, Teenage Cancer Trust, UK Dan Stark, Senior Lecturer in Cancer Medicine and an Honorary and Sam Smith, Congress Chair, Teenage Cancer Trust, UK Consultant in Medical Oncology, St James’s University Hospital, Leeds, UK 09:00 -11:30 Session 1: Global Perspectives 14:30 Nursing Perspective – The Pros and Cons of an 09:00 Working Together, Achieving More Age Appropriate Environment Siobhan Dunn, Chief Executive, Teenage Cancer Trust, Louise Soanes, Teenage Cancer Trust Nurse Consultant, Chief Executive, Teen Cancer America and Simon Davies, The Royal Marsden, London, UK Peter Orchard, Chief Executive, CanTeen Australia 15:00-15:30 Refreshment Break, Networking, Exhibition and Posters 09:15 Keynote Lecture: Global Cancer 15:30 Treatment Across The Richard Sullivan, Director, Institute of Cancer Policy, The Debate: Co-Director, Conflict & Health Research Program, Professor of Age Range Cancer and Global Health, King’s College, London, UK Brandon Hayes-Lattin, Clinical Director, Center for Hematologic Malignancies & Director, Adolescent and Young 09:55 Questions and Answers/Discussion Adult (AYA) Oncology, Knight Cancer Institute, Oregon Health 10:00 Global Japan and Science University, Portland, USA Kayo Nakata, Assistant Section Chief - Center for Cancer Gilles Vassal, Pediatrician - Oncologist – Pharmacologist, Control and Statistics, Osaka Medical Center for Cancer and Professor of Oncology, Institut de Cancérologie Gustave- Cardiovascular Diseases, Osaka, Japan Roussy, Villejuif, France Mike Leahy, Consultant Medical Oncologist, The Christie 10:30 Refreshment Break, Networking, Exhibition and Posters Hospital, Manchester, UK 11:00 Global India David Thomas, Director of The Kinghorn Cancer Centre and Prakash Chitalkar, Director Sri Aurobindo Cancer Institute / Head of the Cancer Division, The Garvan Institute, Sydney, Professor of Medical Oncology, Sri Aurobindo Institute of Australia Medical Sciences, Madhya Pradesh, India 16:30 Day’s Summary & Close 11:30 All Speaker Panel: Questions and Answers/Discussion

17:00-19:00 11:45 -12:30 Session 2: Oral Presentation of Poster Viewing and Submitted Abstracts Networking: Welcome Drinks Reception with Scottish 11:45 Three Oral Presentations Flavour at the Assembly Rooms

12:30 - 14:00 Lunch, Networking, Exhibition and Posters tuesday 6 DECEMBER

08:15 Registration and Coffee /Poster Viewing 14:00 -17:45 Session 6: Challenges of Communication and Engagement 08:45 Welcome to the Day Congress Chair, Teenage Cancer Trust, UK Sam Smith, 14:00 Primary Care Olga Kostopoulou, Reader in Medical Decision Making, Imperial 09:00 -10:00 Session 4: Oral Presentation of College London, Faculty of Medicine, Department of Surgery & Submitted Abstracts and Poster Cancer, London, UK Awards 14:30 Breaking Significant News 09:00 Three Oral Presentations Anne Katz, Adjunct Professor, Faculty of Health Sciences - College of Nursing, University of Manitoba, Winnipeg, Canada 09:45 Poster prize awards 15:00 Integrated Assessment Mapping 10:00 Refreshment Break, Networking, Exhibition and Posters Jamie Cargill, Teenage Cancer Trust Lead Nurse Teenager and Young Adults (TYA) South West, Bristol Haematology and 10:30 -13:00 Session 5: Cognitive & Psychological Oncology Centre, Bristol, UK Research, Screening and Assessment 15:30-16:00 Refreshment Break, Networking, Exhibition and Posters 10:30 Keynote Lecture: The Brain and Adolescent Behaviour 16:00 Engagement with Young People with Cancer Iroise Dumontheil, Reader in Cognitive Neuroscience & Carlo Clerici, Researcher /Medical Director at the National Honorary Research Associate, Department of Psychological Cancer Institute of Milan, Department of Pathophysiology Sciences, Birkbeck, University of London , UK Medical - Surgical and Transplant , University of Milan, Milan, Italy 11:10 Questions and Answers/Discussion Andrea Ferrari, Pediatric Oncology Unit, Fondazione IRCCS 11:15 Long-term Cognitive Outcomes in Survivors of Istituto Nazionale Tumori, Milan, Italy AYA Cancer Kevin Krull, Department of Epidemiology and Cancer Control, 16:30 Session TBC St Jude Children’s Research Hospital, Memphis, USA Sue Morgan, Teenage Cancer Trust Nurse Consultant, Leeds General Infirmary and St James Hospital, Leeds, UK 11:45 Psychosocial Assessment and Screening in AYA Pandora Paterson, General Manager Research & Youth Cancer 17:00 Motivational Interviewing Services and Adjunct Associate Professor in the Faculty of Tim Anstiss, Member: British Psychological Society & Fellow: Nursing, Sydney Medical School, University of Sydney, CanTeen, Royal Society of Arts, UK Sydney, Australia All Speaker Panel: 12:15 Psychological Interventions 17:30

Brad Zebrack, Associate Professor, University of Michigan Questions and Answers/Discussion School of Social Work 17:45 Day’s Summary & Close

12:45 All Speaker Panel: Questions and Answers/Discussion 19:30 Optional Social Event: 13:00 - 14:00 Lunch, Networking, Exhibition and Posters Gala Dinner wednesday 7 DECEMBER

08:15 Registration and Coffee /Poster Viewing 13:45-15:55 Session 8: Maximising Benefits and Minimising Harm 08:45 Welcome to the Day Congress Chair, Teenage Cancer Trust, UK Sam Smith, 13:45 Hodgkins Lyphoma Case Study John Radford, Professor of Medical Oncology, Director of 09:00 -12:30 Session 7: Advances in AYA Care – New Research, Institute of Cancer Sciences University of Manchester, Developments and New innovations Manchester, UK

09:00 Genetic Screening 321 14:15 New TYA Survival Data Julian Barwell, Senior Lecturer in Cancer Genetics, Honorary Mike Hawkins, Raoul Reulen, Chloe Bright, Centre for NHS Cancer Genetics Consultant, University of Leicester, UK Childhood Cancer Survivor Studies, University of Birmingham, UK

09:30 Breast Cancer in AYA 15:00 All Speaker Panel: Rebecca Johnson, Medical Director of the Adolescent and Questions and Answers/Discussion Young Adult (AYA) Oncology Program at Seattle Children’s Hospital and Assistant Professor of Pediatrics at the University 15:15 Keynote Lecture: of Washington School of Medicine, Seattle, USA Physical and Emotional Burden of Cancer Brian Lobel, Performer and Senior Lecturer, University of 10:00 Melanoma in AYA Chichester in Department of Theatre (Performing Arts), James Larkin, Consultant Medical Oncologist, The Royal Chichester, UK Marsden, UK 15:55 10:30 Osteoscaroma in AYA Close and Thank you Siobhan Dunn, Chief Executive, Teenage Cancer Trust, UK Stefan Bielack, Medical Director, Klinikum Stuttgart - Olgahospital, Zentrum für Kinder-, Jugend- und Frauenmedizin, Stuttgart, Germany

11:00-11:20 Refreshment Break, Networking, Exhibition and Posters

11:20 Proton Beam Therapy Danny Indelicato, Associate Professor Department of Radiation Oncology, University of Florida Proton Therapy Institute, Jacksonville, USA

11:50 Keynote Lecture: Precision Medicine/Genomics David Thomas, Director of The Kinghorn Cancer Centre and Head of the Cancer Division, The Garvan Institute, Sydney, Australia

12:30 All Speaker Panel: Questions and Answers/Discussion

12:45 - 13:45 Lunch, Networking, Exhibition and Posters It is our great pleasure to invite you to attend a historic and momentous congress for healthcare professionals hosted by teenage cancer trust

From 5 to 7 December, in the beautiful city of Edinburgh, Teenage Cancer Trust will be hosting the very first

Adolescent and Young Adult Global Cancer Congress. The Global Congress will build on the success of the previous eight Teenage Cancer Trust International GLOBAL ACCORD TEAM Sam Smith (Chair), UK Conferences and the strong international relationships that have developed through worldwide Rebecca Lawrence-Bristol advances in AYA cancer treatment and services. (Conference Organiser), UK Wendy Ramm, UK The development - to create the first truly global event in AYA cancer - is in recognition that awareness Dr Rebecca Block, USA and concern regarding the problem and the uniqueness of cancer in adolescents and young adults is Simon Davies, USA becoming more and more universal. Pandora Patterson, Australia

The first of this series will be hosted by Teenage Cancer Trust on behalf of the new Global Accord INTERNATIONAL which has been set up as a collaboration between three charitable organisations - Teenage Cancer ADVISORS Trust, Teen Cancer America and CanTeen Australia - for the purpose of creating a truly global Asia/Africa/India approach to this conference series. Each year the Congress will rotate geographically, starting with Prakash Chitalkar, India the UK in December 2016. Francine Kouya, South Africa Cameroon We have been busy making excellent preparations for a top quality educational and networking Huyong Zheng, Asia forum. Our programme is truly international – with experts from all corners of the globe coming to Australia share their expertise and knowledge with us. Our speakers have been nominated by our International Antoinette Anazodo Lyndal Moore Advisors, so we know that we can look forward to stimulating presentations. There will also be the David Thomas opportunity for delegates to present their work by way of the Call for Abstracts. We can also look Europe forward to enjoying the colours, sounds and flavours of Scottish hospitality by way of our social Laurence Brugieres programme. You will find more information about all these aspects in this Announcement. Stefan Bielack Andrea Ferrari Our aim is that all participants leave this important Congress having learnt from our experts and each Valerie Laurence other, with renewed energy and motivation so that they return to their workplaces to drive forward UK quality improvements in practice and care of young people with cancer. Maria Cable Tim Eden Working Together – Achieving More. Faith Gibson Sue Morgan MBE John Radford Do come and join us for this landmark event. Dan Stark Mike Stevens (Chair of International Advisors) Myrna Whiteson MBE Sam Smith Siobhan Dunn Mike Stevens USA John Lettario Lennie Sender Stuart Siegel Pam Simon

Conference Venue The Assembly Rooms Edinburgh 50 George Street Edinburgh n Head of Nursing and n Chief Executive n Emeritus Professor, Clinical Services Teenage Cancer Trust University of Bristol EH2 2LR Teenage Cancer Trust and Chair of www.assemblyroomsedinburgh.co.uk n Congress Chair International Advisors Conference Secretariat Index Communications Meeting Services Crown House, 28 Winchester Road Romsey, Hampshire, SO51 8AA UK T: + 44 (0) 1794 511331 E: [email protected] W: www.teenagecancertrust.org call for abstracts social programme and global exchange Welcome Reception with displays Scottish Flavour The accepted submitted abstracts will be an important part of the 5 December 2016 at 5pm at The Assembly Rooms, Edinburgh educational material available at this Global Congress. We have lots of Recognising the importance to delegates of networking opportunities, we room for posters and have also set aside oral presentation sessions within will hold a Welcome Reception in the Assembly Rooms to follow on from the programme. the day’s programme on 5 December. We also wish to encourage new presenters and delegates to share their All delegates are welcome and attendance is free of charge but delegates work informally in the Global Exchange which will be a zone within our must pre-book to attend. Exhibition and catering area. This will be an opportunity to network with colleagues and sample some We have put together a Call for Abstracts and Global Exchange Displays Scottish delights in the beautiful surroundings of the Ballroom. and this is available at: www.teenagecancertrust.org/conference All Drinks and nibbles will be provided. presenters must register to attend. Come and enjoy this informal reception. If you have some material that you think would be of interest to your global colleagues, do submit it to this historic global event – it is a special Dress code: Informal opportunity. Gala Dinner registration 6 December at 7.30pm at Mansfield Traquair, Edinburgh All Registrations must be made on-line, via our secure system. You will Tickets £60 find a link to the system at www.teenagecancertrust.org/conference We are planning a unique Gala Dinner to mark the special occasion of The system accepts payment by credit card (card company charges this historic 1st Global AYA Cancer Congress and extend the networking apply), cheque or bank transfer. opportunities at this event. Our system enables you to book yourself onto the Conference and This will be a celebratory evening in a magnificent building. produce your own invoice, to refer to your employer or to claim your After a pre-Dinner drinks reception, a three course dinner will be served, expenses. HOWEVER please note that ALL INVOICES – WITH NO with Scottish music to enjoy. EXCEPTIONS – are payable ahead of the Conference and it remains the Ticket price is £60 and must be pre-booked and paid for. responsibility of the participant to ensure payment. The Secretariat cannot enter into contact with any participant’s finance team. Dress code: Cocktail Dress All delegates must ensure that the Secretariat has received payment ahead of the event. Full Registration includes participation in all Conference sessions for the Accommodation 3 days of the programme, poster viewing, access to the Exhibition, one copy of the Conference Programme and Abstract Book, your lunches, For convenience of booking at the same time as registering, the teas and coffees on each day of the Conference and an invitation to the Organisers have made block bookings with a range of hotels as local to Whisky Tasting Reception (pre-booking required) at the end of Day 1. The Assembly Rooms Edinburgh as possible, including our Conference Hotel, The George Hotel. Special Conference deals are in place for a limited time. Refer to the Hotel Listing for prices and codes to make registration fees your booking. Conference block bookings will be released a month ahead of the Conference, so late bookings will be subject to ad hoc availability: early Nurses/Social Doctors/ Workers/ booking is recommended. professional FULL CONFERENCE professional equivalent equivalent For all hotel bookings, a credit card number must be provided. Early Registration For information on how to book, refer to the Hotel Listing. £550 £400 (booked before 1st June 2016) Late Registration £700 £500 (booked from 2nd June 2016) Joining Instructions On-site £750 £520 (booked from 5th December 2016) A final briefing will be E-Mailed to all registered participants around 14 days before the Conference. We recommend that ALL participants obtain the latest programme and joining instruction information from the website before travelling to the event. Nurses/Social Doctors/ Workers/ The hosts reserve the right to alter any part of the Conference programme in the professional ONE DAY REGISTRATION professional equivalent event of unforeseen circumstances. equivalent Early Registration £275 £210 (booked before 1st June 2016) Insurance Late Registration £305 £225 Neither Teenage Cancer Trust, the Conference venue, nor the Organisers can accept (booked from 2nd June 2016) responsibility for any loss or injury relating to participants. All participants are On-site £315 £235 encouraged to obtain their own travel insurance policy for their trip, to include the (booked from 5th December 2016) unfortunate need to cancel Registration. Notes about Registration Fees: Follow us online: www.teenagecancertrust.org 1. All invoices must be settled within 14 days of issue. facebook.com/teenagecancertrust 2. If payment for an Early Registration is not received within 14 days of the Early Registration twitter.com/teenagecancer Deadline, the Late Fees will apply. 3. A submission of a booking means that the fees for that booking become due, whether or not a participant attends. Teenage Cancer Trust is a registered charity: 4. A Cancellation Policy is in place – please refer to the website. 1062559 (England & wales); SC039757 (Scotland)