Pediatric Patient Resources

North Jersey

Table of Contents

Health and Wellness Eating Disorders...... 2 Nutrition and Fitness...... …………………………………………………………...... 3

Disease Management Celiac Disease ……………………………………………………………………………...... 4 Allergies/Asthma...... 5 Juvenile Diabetes………………………………………………………………………….…...... 6 Juvenile Arthritis...... 7 Cystic Fibrosis...... 8

Behavioral and Mental Health Inpatient Psychiatric Centers…………………………………………………………………...... 9 Outpatient Mental Health/Counseling Centers………………………………...... 10 Autism...... 11 ADD/ADHD...... 12

Substance Abuse Inpatient Alcohol & Drug Treatment……………………...... 13 Outpatient Alcohol & Drug Treatment…………………………………...... 14

Other Resources Food...... 15 Classes, Seminars & Help-Group Opportunities...... 16 Transportation...... 17 Rehab & Early Intervention...... 18 Miscellaneous Links...... 19

1

HEALTH AND WELLNESS

Eating Disorders

 Eating Disorders Program at Goryeb Children’s , Summit, Morristown Phone: 1-800-247-9580 Services: Only program in NJ exclusively for children and adolescents. They offer education and treatment for eating disorders in both in and outpatient settings.

 The Renfrew Center, Ridgewood (outpatient),Philadelphia(residential) Phone: 1-800-RENFREW (736-3739) Services: Renfrew provides teenagers (age 14+) suffering from eating disorders and related mental health problems, with the tools they need to succeed-in recovery and in life.

 University Medical Center of Princeton at Plainsboro Eating Disorder Program, Plainsboro Phone: 1-877-932-8935 Services: Inpatient and outpatient services for children as young as 8 years old suffering from anorexia, bulimia and other eating disorders.

 ANAD Eating Disorder Support Groups of Northern Phone: 973-780-7388 (Caldwell) Services: Meeting time-1st Sunday of the month from 10am-11:30am Phone: 973-783-2292 x3 (Livingston) Services: Meeting time-1st Saturday of the month from 9:30am-11:30am

 Anorexia Nervosa and Associated Disorders (ANAD) http://www.anad.org/ Services: This website offers online support, educational materials, a helpline and a referral list of therapists and inpatient and outpatient programs.

2

Nutrition and Fitness

 Kid-FIT Program, Goryeb Children’s Hospital, Morristown Phone: 973-971-8824 Services: Two age specific programs for children (6-11) and teenagers (12-21) using intervention strategies, lectures and psychosocial support to teach overweight kids how to make healthier lifestyle choices. (Referral from doctor)

 Atlantic Health System, Overlook, Newton Phone: 908-522-6114 (Overlook Medical Center)/973-579-8341 (Newton) Services: One-on-one nutritional counseling by a registered dietitian. (Referral)

 Hackettstown Regional Medical Center, Hackettstown Phone: 908-441-1482 Services: One-on-one nutritional counseling sessions by a registered dietitian.

 Kids Win! Pediatric Weight Loss Program, St. Barnabas, Livingston Phone: 973-322-5664 Services: Nutritional counseling services for all ages by a registered dietitian.

 Centers for Disease Control and Prevention-Overweight & Obesity http://www.cdc.gov/obesity/childhood/index.html Services: This website defines obesity and the health risks of being overweight. Provides data and statistics, child and teen BMI calculator, and other resources.

 Kids Health from Nemours http://kidshealth.org/ Services: Comprehensive website with sections for parents, kids and teens. Kids and teen sections are interactive with info on recipes, cooking, and fitness.

 USDA http://www.choosemyplate.gov Services: Established by the Department of Agriculture, this website offers information about establishing and maintaining a healthy diet. There are tools, printable materials, and healthy eating tips. There’s an interactive section with videos & songs, games and recipes just for kids.

3

DISEASE MANAGEMENT

Celiac Disease

 CSA Celiac Support Group of Central New Jersey, Short Hills Phone: 973-912-0253 (Ellie [email protected])

 Goryeb Children’s Hospital, Morristown, Summit Phone: 973-971-5676/908-522-8714

 The Kogan Celiac Center of Barnabas Health, Livingston Phone: 1-888-724-7123

 Celiac Sprue Association Cel-Kids Network http://www.csaceliacs.info/cel_kids.jsp Services: Website has kids’ recipes, games and education for kids and parents.

 Kids Health from Nemours http://kidshealth.org/ (both kids &teen tabs have articles on celiac disease) Services: Celiac defined, signs and symptoms, treatment options, and foods to avoid.

 Celiac Central http://www.celiaccentral.org/kids Services: Website features separate sections for kids and parents, allowing kids to have their own space to explore and contribute. Kids section features games, guides and personal stories. The parents section includes articles and research news specific to parenting gluten-free children, plus links to recipes and product reviews.

 R.O.C.K. (Raising Our Celiac Kids), Blairstown, Morristown Phone: [email protected] 808-362-7752/ [email protected] 201-965-7309 Services: Support group for parents and families of kids with celiac disease or gluten intolerance.

4

Allergies/Asthma

 Food Allergy & Asthma Support Group of Northern NJ, Livingston Email: [email protected] Services: Group focusing on education, support, community outreach, and fundraising. Meets on the 3rd Monday of each month: 200 S. Orange Ave, Livingston, 7:30pm-9pm.

 Centers for Disease Control and Prevention-Asthma Page http://www.cdc.gov/asthma/children.htm Services: This website provides games and learning activities as well as videos for children and teenagers. Kids learn what asthma is as well as how to manage their asthma and how to control environmental triggers.

 The Pediatric/Adult Asthma Coalition of New Jersey http://www.pacnj.org/ Services: This website provides information on how to control asthma, and how to use medications, inhalers and peak flow meters. In addition, it provides a list of asthma triggers in a number of different languages and asthma action plans in English and Spanish that can be printed and completed by the patient’s clinician.

 Kids with Food Allergies http://www.kidswithfoodallergies.org/ Services: Food allergy information, food and cooking assistance, help in finding allergy-free foods, products and services, and free educational webinars.

 Allergy & Asthma Network, Mothers of Asthmatics http://www.aanma.org/ Services: Leading patient education organization, this website has podcasts, links to publications, community outreach programs and many resources. (Site in Spanish as well).

 Kids Health from Nemours http://kidshealth.org/ Services: Comprehensive interactive website for kids and teens for those with asthma.

5

Juvenile Diabetes

 Camp Nejeda, Stillwater http://www.campnejeda.org/ Services: Overnight camp for children 7-16 years of age with Type 1 Diabetes. Also offers year-round programs and conferences for families.

 St. Clare’s Regional Diabetes Center, Dover Phone: 973-989-3637 Services: An American Diabetes Association recognized program which provides inpatient and outpatient care for children and adults-as well as comprehensive diabetes and nutrition education, support groups, and community outreach.

 BD Diabetes Center & Pediatric & Adolescent Endocrine Center, Goryeb Children’s Hospital, Morristown, Summit Phone: 973-971-4340 Services: Certified by the American Diabetes Association. Provides age specific support groups, targeted seminars, social events, and education materials.

 Planet D-American Diabetes Association http://www.diabetes.org/living-with-diabetes/parents-and-kids/planet-d/ Services: Website for kids and teens with diabetes. Support for Your Family tab links to Local Family Events which offers fun and social events in the local area.

 Children with Diabetes http://www.childrenwithdiabetes.com Services: An online community for kids with type 1 diabetes.

 Juvenile Diabetes Family Support Group, New Brunswick Phone: 908-391-0220 [email protected] Services: Family based support group; meets 1st Thursday of each month-7pm

 Diabetes Foundation http://diabetesfoundationinc.org/ Services: Provides education, camp scholarships and indigent assistance with diabetic medications and supplies aiming to improve quality of life for diabetics.

6

Juvenile Arthritis

 Kids Health from Nemours http://kidshealth.org/ Services: Comprehensive interactive website for kids and teens explaining arthritis, how it’s treated, and explaining how to live with arthritis.

 Kids Get Arthritis Too http://www.kidsgetarthritistoo.org/ Services: This website gives an overview of juvenile arthritis, lists resources, medications, & explains natural treatments & therapies. Separate interactive sections for kids and teens. Free Welcome Kit.

 Camp CHAT, Hackettstown http://www.arthritis.org/new-jersey/juvenile-arthritis/ Phone: 856-673-1370 Services: Six day sleep away camp for children with arthritis and rheumatic disease.

 Pediatric Rheumatology at Goryeb Children’s Hospital, Morristown Phone: 973-971-4096 Services: Comprehensive services for children and adolescents with rheumatic diseases as well as patient education and family counseling.

 The Bristol-Myers Squibb Pediatric Rheumatology Center, New Brunswick Phone: 1-888-637-9584 Services: Provides comprehensive diagnosis, education, treatment and follow-up for children with rheumatic disease.

 Arthritis Foundation http://www.arthritis.org/new-jersey/juvenile-arthritis/ Services: Juvenile arthritis programs and activities.

7

Cystic Fibrosis

 Respiratory Center for Children at Goryeb Children’s Hospital, Morristown Phone: 973-971-4142 Services: Specialists provide evaluation, educational programs, treatment, and follow-up care.

 Cystic Fibrosis Center at Bristol-Myers Squibb Children’s Hospital, New Brunswick Phone: 732-828-3000 Services: The Cystic Fibrosis Center is one of only 3 level III CF centers in the state of NJ that is accredited by the national CF Foundation. Offers a team approach to the diagnosis, treatment and follow-up of infants, children and adolescents with cystic fibrosis.

 Cystic Fibrosis Foundation http://www.cff.org/ Phone: 1-800-Fight CF (344-4823) Services: Provides patient assistance resources, links to state chapters, local CF events, information on clinical trials, and link to accredited Care Centers.

 Greater New Jersey Chapter of Cystic Fibrosis Foundation, Parsippany http://www.cff.org/Chapters/newjersey/ Phone: 973-656-9200 Services: Calendar of events posted on website for greater New Jersey area.

 New Jersey State Organization of Cystic Fibrosis http://www.njsocf.org/ Phone: 973-595-1232 Services: Provides counseling, referrals and educational materials to patients and their families.

8

BEHAVIORAL & MENTAL HEALTH

Inpatient Behavioral Health Centers

 Youth Consultation Service, various locations http://www.ycs.org/index.php Phone: 973-482-8411 Services: Over 70 programs for children from birth to age 25.

 Children’s Crisis Intervention Services, St. Clare’s, Boonton Township Phone: 973-625-0280 Services: Inpatient unit providing care for children and adolescents between 5 and 17 years of age.

 Summit Oaks Hospital, Summit Phone: 908-522-7000 Services: Program offers evaluations, crisis interventions, and stabilization programs for children ages 5 to 17.

 Atlantic Health System, Morristown, Summit, Newton Phone: 1-800-247-9580 Services: Voluntary inpatient programs for older adolescents.

 Carrier Clinic, Belle Mead Phone: 1-800-933-3579 Services: Inpatient, residential and educational services to adolescents age 13- 18 years of age. The Clinic offers inpatient hospitalization services on a short- term basis; East Mountain School offers a program for 7th through 12th grade classified special education students; and East Mountain Youth Lodge is a residential treatment program providing 24-hour clinical, therapeutic and educational treatment to 13 to 18 year old adolescents.

9

Outpatient Mental Health/Counseling Centers

 St. Clare’s Behavioral Health Center, Budd Lake, Denville, Parsippany Phone: 1-888-626-2111 Services: Short-term family and group counseling as well as consultation to schools and educational programs for the community.

 Family Guidance Center of Warren County, Hackettstown Phone: 908-852-0333 Services: Individual, group and family counseling to children and adults for those with chronic serious mental health issues as well as those with general life adjustment issues.

 New Bridge Services, Mountain Lakes http://newbridge.org/ Phone: 1-888-746-9333/973-839-2520 Services: Counseling programs for pre-school aged children through young adults.

 Atlantic Health System, Morristown, Newton, Summit Phone: 1-888-247-1400 Services: Individual, group and family counseling services for children and teens.

 A Center for Counseling and Psychotherapy Services, Hackettstown Phone: 1-888-843-7224 Services: Individual and group counseling services for children and teenagers.

 Family Intervention Services, Denville http://www.fisnj.org/ Phone: 973-324-7879 Services: Counseling, education, support and mentoring programs.

 Cornerstone Family Programs, Morristown Phone: 1-800-984-1414

10

Autism

 Autism New Jersey http://www.autismnj.org/ Phone: 1-800-4-AUTISM Services: Treatment recommendations, information, and resource listings. Also information on financial assistance, schools and programs and physicians.

 Autism Society http://www.autismsource.org/ Phone: 1-800-328-8476 Services: Latest information regarding treatment, education, research and advocacy. Publishes a quarterly journal.

 Autism Speaks http://www.autismspeaks.org/ Services: Website has research, new articles, resource guide, autism apps, and a 100 Day Kit for newly diagnosed families to make the best possible use of the 100 days following their child’s diagnosis.

 Developmental Center for Children and Families, Budd Lake Phone: 973-691-5553 Services: Program for students with a range of abilities.

 Equine Tranquility Wellness Center, Andover Phone: 201-970-3400 Services: Specialize in children of all ages with emotional, psychological, and/or physical disabilities.

 Pediatric Behavioral Health Services, Morristown Phone: 973-971-6305 Services: Psychological services and community education.

 Mom 2 Mom, Statewide http://www.mom2mom.us.com/ Services: A peer counselor helpline for mothers of children with special needs.

11

ADD/ADHD

 Equine Tranquility Wellness Center, Andover Phone: 201-970-3400 Services: Specialize in children of all ages with emotional, psychological, and/or physical disabilities.

 Advocare Comprehensive of New Jersey Phone: 973-455-7444 Website: www.advocarecompneurologyofnj.com Services: Specialize in the treatment of disorders may including tics, concussions, developmental delay, autism, and learning difficulties. Physicians provide diagnosis and treatment for such disorders with compassion and cutting-edge care.

 Advocare Pediatric Neurology Associates Phone: 973-993-8777 Website: www.advocarepna.com Services: Serve Northern New Jersey with offices in Morristown, Sparta, and Summit and use state-of-the-art testing and treatment techniques to evaluate childhood language, learning, and attention deficit disorders; developmental disorders such as autism; headaches; and other problems, including childhood seizure disorders, tics, and Tourette's syndrome.

 National Resource Center on ADHD http://help4adhd.org/ Phone: 1-800-233-4050 Services: Gives basic information about ADHD, as well as resources and support.

 CHADD http://www.chadd.org/ Services: Provides education, advocacy and support for individuals as well as parents and caregivers of children with ADHD. CHADD membership provides more information, such as a magazine and networking possibilities. Family Educational Program taught by certified parents in the community or online.

12

 Virtual Online Chapter of CHADD http://www.chadd.net/template.cfm?affid=002&p=about Services: Webinar 2nd Tuesday of each month-8pm-9:30pm; or Teleconference 4th Thursday of each month-12pm-1:30pm.

 P.A.C.E. (Parent Advocacy Council for Education), Morristown http://morrispace.org/index.html Services: Parent-to-parent support and advocacy group founded by Morris School District parents whose goal is to work towards the understanding of, respect for, and support of optimum education for all children with learning differences. Discussion groups and classes. Parents from other school districts are welcome. SUBSTANCE ABUSE

Inpatient Detoxification and Substance Abuse Treatment

 Daytop Village of New Jersey, Mendham http://daytopnj.org/index.php Phone: 973-543-5656 Services: Offers 3 to 12 month residential programs for adolescents between 13 and 18 years old.

 Summit Oaks Hospital, Summit http://www.summitoakshospital.com/ Phone: 1-800-753-5223 Services: Short term detox and rehab programs.

 New Hope, Marlboro http://www.newhopefoundation.org/ Phone: 1-800-705-HOPE (4673)/732-946-3030 x245 Services: Treatment program for adolescents between 13 and 17 years old.

 Princeton House Behavioral Health, Princeton Phone: 800-242-2550

13

Services: Short-term inpatient treatment for adolescents.

 ALA-Call/Substance Abuse Hotline Phone: 1-800-322-5525 Services: Information and referral hotline for NJ residents with alcohol and drug problems. Information is available concerning hospitalization and treatment - facilities which covers the entire state of NJ. There is also a service for non- English-speaking callers.

 Addictions Hotline of NJ Phone: 1-800-238-2333 or 211 Outpatient Alcohol & Drug Treatment

 Center for Family Services, various locations Phone: 856-428-5688 Services: Twelve week program with weekly motivational group sessions, individual and family sessions, and self-help meetings, all designed to encourage youth to remain drug and alcohol free.

 Rehab After School, various locations Phone: 1-800-238-HELP (4357) Services: For those who show early warning signs of having a substance problem, but do not meet the criteria to be involved in a formal treatment program.

 Daytop Village of New Jersey, Parsippany Phone: 973-539-5624 Services: Intensive outpatient programs, one to five visits per week, with transportation provided for adolescents between 12 and 19 years old.

 Hackettstown Regional Medical Center, Hackettstown Phone: 908-850-6810 Services: Day program for adolescents age 13 to 19 who have problems created by the use, or abuse, of alcohol and/or drugs.

14

 Step Ahead, Succasunna Phone: 1-877-927-7837/973-927-9555

 Excel Treatment Center, Dover Phone: 973-989-7500 Services: Traditional outpatient and intensive outpatient services for adolescents with a serious substance use problem as well as those who do not yet need a formal and structured treatment program.

OTHER RESOURCES

Food

 Community Food Bank of New Jersey, Hillside http://www.cfbnj.org/ Phone: 908-355-3663 Services: Serving Morris, Somerset, Middlesex, Union, Essex, Hudson, Bergen and Passaic counties.

 NORWESCAP Food Bank, Phillipsburg http://www.norwescap.org/ Phone: 908-454-7000 Serving: Sussex, Warren and Hunterdon counties.

 New Jersey Food Pantries http://www.foodpantries.org/st/new jersey/ Services: Listing of food pantries and food banks throughout the entire state of New Jersey.

 NJ Supplemental Nutrition Assistance Program (NJ SNAP) http://www.njsnap.org

15

Phone: 1-800-687-9512 Services: This nutrition assistance program helps low-income individuals and families buy the groceries needed to eat healthy.

 Women, Infants, and Children (WIC) Phone: 1-866-44NJWIC (446-5942) Services: Food assistance for low-income infants and children up to age five.

 Community Food Pantry of Washington, Washington Phone: 908-689-2547 Classes, Seminars and Help-Group Opportunities

 New Jersey Self-Help Group Clearinghouse http://www.njgroups.org/ Phone: 1-800-367-6274 Services: Provides contacts for over 4,500 NJ support groups for most illnesses, addictions, disabilities, and other stressful life solutions.

 Goryeb Children’s Hospital, Morristown, Summit http://www.atlantichealth.org/goryeb/ Phone: 973-971-5000 Services: Kid-FIT: A health management program overweight children from 6-21; Pet Therapy program; Teen Health FX link on the Goryeb website: website providing online resource for teenagers with questions about their health, relationships, their body, their sexuality and more; Diabetes Center and the Pediatric and Adolescent Endocrine Center; and Children’s Heart Center.

 Hackettstown Regional Medical Center, Hackettstown http://www.hrmcnj.org/ Phone: 908-852-5100 Services: T.C. Kids program (providing occupational, physical and speech- language therapy); Babysitting Basics Class for kids from 11-13 years old.

 St. Clare’s Health System, Denville, Dover, Sussex http://www.saintclares.org/

16

Phone: 1-866-STCLARE (782-5273) Services: Center for Pediatric Sleep Medicine for children 3-18; The Children’s Neurology & Epilepsy Center; Concussion Center for Children & Adolescents; Babysitter Course for kids 11-14 years old; and CPR classes for adolescents.

 Newton Medical Center, Newton Phone: 973-383-2121 Services: Safe Sitter Babysitting classes for kids 11-14; Teen DBT which teaches skills to deal with daily challenges and regulate emotions.

Transportation

 Access Link-New Jersey Transit http://www.njtransit.state.nj.us Phone: 1-800-955-2321 Public transportation provided for those with disabilities who are unable to use the local fixed route bus. Must apply in-person for eligibility prior to first time use. Reservations are required, and standard NJ Transit fares apply.

 New Jersey Find A Ride http://www.njfindaride.org/ Services: An online directory of public and accessible transportation options for people with disabilities and others in NJ who don’t have access to a car.

 Logisticare http://www.logisticare.com/index.php Phone: 1-866-527-9834 Services: Non-emergency transportation for Medicaid and certain Medicare plans. Transports in and out of state. If the ride is late or doesn’t show, call “Where’s my Ride” at 1-866-527-9934. Appointments can be made online.

 Skylands Ride, Sussex County http://www.sussex.nj.us/Cit-e-Access/webpage.cfm?TID=7&TPID=1565 Phone: 973-579-0480 Services: Those with disabilities and general public for local errands as well as

17

non-emergency medical appointments. Monday-Friday.  Warren County Transportation (WCT) Phone: 1-866-594-4044 Services: Warren County residents who are disabled, low-income, or who live in certain areas of the county. Call to determine eligibility.

 SCOOT, Somerset County Phone: 908-231-7151 Services: Public transportation Monday-Friday. All are eligible. Serving Hillsborough, Manville, Somerville, Bridgewater, Bedminster, Bound Brook. Rehab & Early Intervention

 Hackettstown Regional Medical Center T.C. Kids Program, Hackettstown Phone: 908-850-6835 Services: Provides occupational, physical and speech therapy as well as audiology services to the region’s pediatric population.

 Developmental Center for Children and Families, Budd Lake Phone: 973-691-5553 Services: Provides occupational, physical and speech therapy as well as behavioral therapy.

 Atlantic Rehabilitation Institute, Morristown Phone: 973-971-4451 Services: Program for children who have special needs. The team includes speech-pathologists and physical and occupational therapists.

 ChildWorks Therapy Center, Morris Plains Phone: 862-219-5678 Services: Provides speech, occupational, and as well as social skills groups and enrichment programs.

 KidTherapy, Chester Phone: 908-879-7067

18

Services: Sensory integration clinic which offers occupational therapy, physical therapy and speech and language therapy. They also offer social facilitation services.

 Children’s Specialized Hospital, Mountainside Phone: 1-888-244-5373 Services: Specialized programs for kids including occupational therapy, physical therapy, speech therapy, psychology, Rehabilitation Technology and Neurorehabilitation.

Miscellaneous Links

 Family Support Center of NJ http://www.fscnj.org/ Services: Provides information and referrals on family support programs and services to families caring for a child with a disability, medical condition, rare disease or other special needs.

 New Jersey Health Link http://www.nj.gov/njhealthlink/ Services: A comprehensive healthcare consumer information website serving the needs of all individuals living in NJ. This website provides details about services and eligibility as well as contact names and numbers.

 Easter Seals http://www.easterseals.com/ Services: Provides services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities. Camp Merry Heart in Hackettstown is for youth 6-21 with disabilities who require minimal to moderate supervision and support.

 New Jersey Division of Disabilities http://www.state.nj.us/humanservices/ddd/home/ Services: Funds a wide array of services intended to help support individuals with developmental disabilities who reside in the community.

19

 ARC of Somerset County, Manville Phone: 908-725-8544 Services: After school program for developmentally disabled children ages 6-21. Transportation home provided at the end of the day.

 New Bridge Services, Boonton, Montville, Pompton Plains http://newbridge.org/ Phone: 973-839-2520 Services: Programs for pre-school through adolescents include: resolving conflict, career counseling, GED preparation & stress management.

20