2015-201 6

Signposting guide to cancer and palliative care services available within Aneurin Bevan University Health Board

Version 4

Emyr Jones E MYR .J ONES June3@ 201WALES5 . NHS. UK Page 1 This information guide has been produced to enable Health Care Professionals within Aneurin Bevan University Health Board to signpost or refer individuals who require further advice, support or treatment to other health and social care services in the statutory and voluntary sector.

If you have any suggestions or information which would be useful for future versions, or any other comments on this guide, please contact:

Emyr Jones Macmillan Palliative Care Pharmacist Llanarth House, Unit 1 Newbridge Gateway Bridge Street Newbridge NP11 5GH Tel: 01495 241284 Email: Emyr.Jones3@.nhs.uk

To ensure the most up to date version is used and also to access more information please visit the following websites:

http://www.gpmtc.wales.nhs.uk (Under palliative care guidelines and resources) or

www.aneurinbevanhb.wales.nhs.uk (Under Cancer services –signposting guide)

The producers of this information guide cannot accept responsibility for any information, advice or service given by any of the individuals or organisations included in this booklet.

Emyr Jones June 2015 Page 2 Content 1. Local Support Groups /Grwpiau Cymorth Lleol Cancer Support Gwent Cancer Support Young Person’s Project (CHYPS) CancerCareline Latch - Welsh Children’s Cancer Charity Tŷ Hafan (The Children’s Hospice in Wales) North Gwent and South Breast Cancer Support Group South Gwent Breast Cancer Support Group Bridges Breast Cancer Support Group in Monmouth Progress

2. Carers/ Gofalwyr Crossroads Care Age Cymru Gwent Age Concern Torfaen Chepstow Carers Group Torfaen Young Carers Service Abergavenny Carers UK Carers Project Crossroads Carers Contact Centre Young Carers Project Carers Centre Torfaen Caerphilly Carers Support

3. Hospice and Community Support / Hosbis a Chymorth Cymunedol Hospice of the Valleys St David’s Foundation Hospice Care Marie Curie Hospice, Penarth

4. Macmillan Cancer Information & Support Services / Gwybodaeth Cancr Macmillan a Gwasanaethau Cymorth Macmillan Torfaen Library & Information Service Macmillan Monmouthshire Library & Information Service Macmillan Library & Information Service

5. Financial Support and Benefits/ Cymorth Ariannol a Manteision Macmillan Support Line Tenovus – Cancer Support Line Emyr Jones June 2015 Page 3 Citizens’ Advice Bureau Money Advice Service Disability Advice Project, Monmouthshire County Council One Stop Shops Department for Work and Pensions (DWP)

6. Equipment/ Cyfarpar British Red Cross Helping Hands – Rhymney Cancer Self Help Group

7. Pets (re-homing etc)/ Anifeiliaid Anwes (ail – gartrefi ayyb) All Creatures Great and Small The Cinnamon Trust

8. Bereavement/ Profedigaeth Cruse in Bereavement Care Caerphilly and Gwent Macmillan Support Line

9. Other / Arall Gwent Association of Voluntary Organisations (GAVO) Education Programmes for Patients

10. National Organisations/ Sefydliadau Cenedlaethol

Emyr Jones June 2015 Page 4 (CHYPS) Management Block, County Hospital, , , NP4 5YA, The office is manned 9am-1pm Administrator Direct Line: 01496 768633 Project Manager - direct line: Tel: 01495 768735 Email: [email protected]

 24 hour staffed helpline: Local Support 01495 760066  Find CHYPS on Facebook and Twitter  CHYPS - Young Persons' Project offers Groups/ Grwpiau cancer support to any young person aged between 11 - 21, who is affected Cymorth Lleol by a significant person being diagnosed or bereaved from cancer, Many people find it helpful to share their who may benefit from emotional experiences with others who understand support and/or complementary what they're going through. There therapies. This can include parent, are many support groups in Gwent for people sibling, grandparent etc. affected by cancer.  Workshops.  In-house training - eg AQA counselling course. Gwent cancer support  We are flexible with the delivery of our services. We are able to visit Management Block, County Hospital, schools and colleges or alternative Griffithstown venues throughout the borough of Pontypool, NP4 5YA. Gwent, at a time convenient for you. The office is manned 9am-1pm  Free counselling service. Administrator Direct Line: 01496 768633  Free befriending service and advocacy Project Manager - direct line: Tel: 01495 service. 768735  Complementary therapies. Email: [email protected]  Offer support to whole families and to any families with any long term health  Gwent Cancer Support is a voluntary conditions. organisation for all people affected by cancer - including families and friends CancerCareline - run by people who have experienced

the trauma of this illness. 15 Woodbine Road, Blackwood, Gwent NP12  Offers counselling, befriending and 1QF advocacy services for patients and Tel: 01495 221660 (24hr helpline, 365 days their families affected by cancer. per year)  Complementary therapy service to E-mail: [email protected] cancer patients and their carers. Web site: www.cancercareline.co.uk

Gwent Cancer Support Young Cancercareline provides a range of support Person’s Project services to anyone affected by cancer - Emyr Jones June 2015 Page 5 patients, carers, family and friends - living in  Financial and Detailed Summary: the borough of Caerphilly. Services provided include: Children with cancer.  The drop in centre is open Monday to  Complementary Therapies. Friday 10-2pm  Bereavement Support.  Tuesday Friends – self help and support group - 1.30-3.30 pm every Tŷ Hafan (The Children’s Tuesday  Craft Group – meets Friday of each Hospice in Wales) week 11am -2pm Hayes Road, Sully,CF64 5XX  C – Red Men’s Support Group (call Tel: 029 2053 2200 01495 221660 for more details) Email: [email protected]  Offers counselling; advocacy; Complementary Therapies including  This is a family-orientated children’s aromatherapy, reflexology, hospice based in Sully in the Vale of relaxation, reiki, visualisation and Glamorgan beauty therapies.  Tŷ Hafan provide short breaks,  Assistance with benefit forms. palliative and end of life care to  Craft Group – meets Friday of each children suffering from life-limiting week 10am -1.30pm. conditions (those which mean that  Health promotion e.g. smoking the child or young person is not cessation. expected to reach the age of 19).  Internet café – access, workshop  Children and their families might training facility (for clients, family and receive support for many years, or friends). IT training on Wednesday just for a few days at the end of life. 1.30pm to 3pm.  Either way, Tŷ Hafan provides love,  Monthly day trips care and support for the children and their families free of charge.  Referrals can be made by anyone, e.g. Latch - Welsh Children’s parent, professional or family friend, however the parent or carer’s Cancer Charity consent must be given before the referral can proceed. Waunfawr School House, 9 Waunfawr Road, Crosskeys, NP11 7PG Tel: 01495 270751 Breast Cancer Support Email: [email protected] Website: www.latchwales.org Groups

 They offer holidays and other treats, North Caerphilly Breast activity weekends, and an annual children’s party. They can help with Cancer Support Group travelling expenses and any extra White Rose Information & Resource Centre, requirements at home. Elliotstown, New Tredegar NP24 6EF  Support groups dealing with Tel: 07986937968 – Paula Williams specialised aspects of childhood  The group meets once a month on a cancer which include talks by health Monday between 10.30 am to 12.30pm.  care professionals. The following meetings are planned for 6th October, 3rd November and 1st December 2014. Emyr Jones June 2015 Page 6  The aim is to give support ,information open Tues and Thurs 9.30am-1pm and advice where appropriate, everyone and then 2pm-4pm, which offers a welcome. personal and confidential service to ladies who have undergone all types of breast surgery.

North Gwent and South Bridges Breast Cancer Powys Breast Cancer Support Support Group in Monmouth Group Drybridge Park, Wonastow Road, Monmouth, 20 Cresta Road, Abergavenny NP7 7AU Monmouthshire, NP25 5AS Tel: 01873 858973 Tel: 01600 715638 (Mon-Fri, 9am-5pm) Website: www.bridgescommunity.org.uk  The group meets on the third Monday  Meets on the first Wednesday of each of January, March, May, July, month at 7.30 pm. Social coffee/chat. September and November. Questions and answers evenings by  The meetings are held at the Kings professionals. Arms Hotel in Abergavenny. Speakers/outings/complementary  It is open to all those who have had therapies and fundraising and breast cancer and their partners and befriending. We need your input too. friends. It is to give support; information; fundraising and to have

fun. Prostate Cancer Support South Gwent Breast Cancer Groups Support Group Room F13, Beechwood House, Christchurch Road, St: Julians, Newport NP19 8AJ Progress Phone 01633 280171 ℅ Dept of Urology Email: [email protected] Royal Gwent Hospital, Newport, NP20 2UB. Web site: www.sgbcsg.org.uk Tel: 01633 234237 (24hr Answer machine) E-mail: [email protected]  Meet 2nd Monday of every month at Web site: www.progress- 7.30pm at the Best Western Parkway prostatecancer.org.uk Hotel, off Cwmbran Drive, Cwmbran (Tel: 01633 871199).  Bi-monthly meetings (Jan, March,  The South Gwent Breast Cancer May, July, Sept, and Nov) held on the Support Group holds informal and 2nd Wednesday of the month at the friendly monthly meetings. These give Urology Department Royal Gwent ladies who have had breast cancer Hospital, Newport at 5.30pm-7pm. the opportunity to talk with others  Provides support for patients affected who have experienced, or may be by prostate cancer and their loved experiencing the same feelings as ones. you.  Has a “Partners in Progress” group for  Also Lavender Lingerie and Swimwear wives/partners in Newport, Tel: (01633) 840202 -

Emyr Jones June 2015 Page 7

Crossroads Care South East Wales – Monmouthshire Young Carers Project County Hospital, Coedygric Road Griffithstown NP4 5YA Opening hours: 9am-5pm Tel: 01495 769996

Carers/ Gofalwyr Fax: 01495 213949 E-mail: [email protected] Website: www.carers.org A carer is someone of any age who provides unpaid support to family or friends who  The project provides support to young could not manage without this help. This people aged 8 - 18 years who have a could be caring for a relative, partner or caring role or are affected by a friend who is ill, frail, disabled or has mental relative’s illness/condition, via social health or substance misuse problems. Carers activities, information, advocacy and may even be juggling paid work with their school support. unpaid caring responsibilities at home. The term carer should not be confused with a care worker, or care assistant, who receives Age Cymru Gwent payment for looking after someone. 12 Baneswell Road, Newport Crossroads Care South East NP20 4BP Tel: 01633 763330 Wales Email: [email protected] County Hospital, Coedygric Road Griffithstown NP4 5YA  Principle objective is to promote the Opening hours: 9am-5pm independence of older people, Tel: 01495 769996 thereby improving the quality of their Fax: 01495 213949 lives. E-mail: [email protected]  Offer welfare and benefits advice Website: www.carers.org (benefits assessment but also help in completing forms ) for residents aged  Crossroads Care South East Wales over 50 provides respite services to carers across Blaenau Gwent, Caerphilly, Monmouthshire, Newport and Torfaen. Carers Projects  Services can range from basic check Blaenau Gwent Carers Project calls to high-level domiciliary care and Age Cymru Gwent are mainly provided in the person's Ty Ebbw Fach, Chapel Road, home. Group services for individuals NP13 2ND with mild to moderate Dementia are Tel / Fax: 01495 321780 available depending on locality. E-mail: [email protected] Transport and domiciliary services are Website: www.ageuk.org.uk/cymru/gwent/ also available.

Emyr Jones June 2015 Page 8  Blaenau Gwent Carers Project offers o Gardening confidential advice and information to o Shopping carers aged 18 or more. Amongst o Assisted shopping other things, advice may be given on o Chaperone benefits, care assessments and o Dog walking respite options. The project produces a twice-yearly newsletter. In addition to the above services, Choices is  Special events for carers are able to consider low level house maintenance organised throughout the year, such and other varied tasks. A free benefit check as day trips, tea dances and will be undertaken at the initial visit if information days. The team leader required. makes domiciliary visits to carers requiring a home visit. Within Monmouthshire, nailcutting only is available through Choices. Respite care service Tel: 01633 240195 Age Concern Torfaen Email: [email protected] 12/13 Broad Street, , Torfaen NP4 7BQ  The respite care service is provided Tel: 01495 774455 within Monmouthshire and Newport  Information and advice for older counties. people on a range of issues including  Following an initial visit by a member benefits and health. of staff, the appropriate service is  Provide lunch clubs, befriending, a then provided by trained care handyperson scheme, a shopping workers. service, tenancy support service and  There is sometimes a charge, but this daily living aids. is variable and dependent on funding.  Also at the Widdershins Centre, East In some areas it may be provided free Avenue, Pontypool NP4 5AB – Tel: of cost – please contact for more 01495 769264 details.  The service can be delivered 24 hours, Chepstow Carers Group 7 days a week, throughout the year. 2 Victoria Road, Bulwark, Chepstow, NP16 5QN Choices Tel: 01495 360159/ 01633 656371 Tel: 07592 503757 Fax 01495 244292 Email: [email protected] E-mail: [email protected]

 The full range of Choices is available within Blaenau Gwent, Caerphilly and  A carers group run by carers for Newport counties. carers. The team leader visits new clients to  Meet for a coffee and a chat to establish their needs, and is able to support each other. offer services at a chargeable,  Open to everyone in a caring role. competitive rate, including: o Nail cutting o Domestic cleaning

Emyr Jones June 2015 Page 9 Torfaen Young Carers Service Tel: 01633 258376 Email: Tel: 01495 762200 [email protected]  Works with children and young people aged 8-17  Information and support services for  Provides support to reduce the carers who live in Newport. worries, stress and isolation that  Run training/workshops for carers. young carers often experience Produce a newsletter twice a year and  Young Carers Forum meets once a hold outreach sessions across the month town and in the hospitals and GP surgeries.  Based in the Newport Market - so feel Abergavenny Carers UK free to call in at any time. 35 Poplars Close, Mardy, Abergavenny NP7 6LU Tel: 01873 855543/831228 Newport Young Carers Project  Give support, information, advice and befriending to carers. Campaigns 114 Lower Dock Street Newport NP20 about any complaints received. 2AF Tel: 01633 251192  Guest speakers at most meetings Alternatively, Tel: 01633 656656 giving advice and information on any subject that is of interest to caring.  The Newport Young Carers Project works to support young people under 18 who have significant caring Monmouthshire Carers responsibilities for a family member. Project GAVO, Ty Derwen, Church Road, Newport, S. Carers Centre Torfaen Wales NP19 7EJ Acorn Suite, 3 Central Mews, off Crane Street Tel: 01633 241553 Pontypool NP4 6LY

 Ensures that carers know where to go Tel: 01495 753838 to get help, have an opportunity to talk about support they may need and  Located in Pontypool town centre and have help to get that support. offers support and advice for carers  Monmouthshire Young Carers Project living across the borough. is a way for young people between  Has a full itinerary of activities. It is the ages of 8-18 to have a break. It open Monday to Friday from 11am- provides social activities, youth clubs, 3pm. advocacy, information and training courses. Caerphilly Carers Support Crossroads Carers Contact Homeleigh, Llanarth Road, Pontllanfraith, Blackwood NP12 2LH Centre Tel: 01495 231 731 Newport Market, High Street, Newport, NP20  1DD Monthly Carers Support and Friendship Group. We meet at: Emyr Jones June 2015 Page 10 Caerphilly Visitors Centre and Bargoed Library.  Community Specialist Palliative Care for people within the borough of  Contact for more details Blaenau Gwent which aims to deliver free, high quality, specialist palliative care to patients suffering life limiting See hospices/support groups illness, including comprehensive above who also may also support for their families, throughout have carer support groups. treatment, end of life and bereavement. See Finance section for carers allowance advice  Hospice at Home service with qualified nurses, health care assistants and volunteer befrienders Hospice and for the provision of night care and day respite Community Support/  Consultant-led clinical service with Hosbis a Chymorth Clinical Nurse Specialist support and advice available 24 hours a day, 7 Cymunedol days a week, 365 days a year

 Social Workers and Welfare Rights Advisors offering both emotional and practical support, assisting with many issues of concern e.g. arranging plans for future care or accessing grants and benefits.

 Day Centre, where patients and their families can access information, meet with clinical staff and attend programmes of support (e.g. breathlessness and fatigue management) in a context of social interaction, support and friendship

 Complementary Therapy to help promote relaxation and alleviate Hospice of the Valleys fatigue, anxiety, stress and depression

Festival Drive, Ebbw Vale, Blaenau Gwent  Chaplaincy - supporting care for the NP23 8XF “whole person” and recognising the Tel: 01495 717277 Fax: 01495 724188 importance of spiritual and religious Email: [email protected] care as well as physical and emotional Web address: needs. www.hospiceofthevalleys.org.uk Emyr Jones June 2015 Page 11 Relaxation, aromatherapy,  Physiotherapy, providing advice and Snoezelen® multi-sensory room, guidance to help maximise reflexology, art and creative therapies independence and achieve personal available. goals.  2 bedded in-patient unit at two local nursing homes.  Bereavement support service,  2 Social Workers and 3 welfare Rights including bereavement groups Advisors.  Specialist Palliative Care advice to  Bereavement Support Service, professional colleagues in Ysbyty including bereavement groups Aneurin Bevan  7 – Day a week bedside assessment by CNS.  The Challenge Project – a joint project  Unicorn project to support children with the Alzheimer’s Society providing and young people. palliative and end of life care for  Carers groups. people with Dementia

 Education, delivering accredited training to other healthcare St Anne’s Hospice professionals and the provision of (also run by St David’s Hospice Care) student placements in collaboration Harding Avenue, Newport NP20 6ZE with the University of South Wales Tel: 01633 820317 and University E-mail: [email protected] Website: www.stdavidshospicecare.org St David’s Hospice Care Blackett Avenue, Newport NP20 6NH  10 Specialist Palliative Care in-patient Tel: 01633 851051 beds, Consultant lead. E-mail: [email protected]  Social Work, Occupational Therapy Website: www.stdavidshospicecare.org and Physiotherapy available.

 Complementary Therapies including  Community Specialist Palliative Care reflexology and aromatherapy are service. available.  24hr Hospice at home service with  24hrs, 7 days a week admission. qualified Nurses and Care Assistants.

 Provides palliative care throughout the unitary authorities of Caerphilly, Marie Curie Hospice, Penarth Monmouthshire, Newport, Torfaen, Holme Tower, Bridgeman Road, Penarth, and Mid & South Powys , CF64 3YR  Support and advice from Clinical Tel: 029 20426000 Nurse Specialists (CNS) Website: www.mariecurie.org.uk  Out of hours advice service from CNS  4 Day hospices, based at Blackett  Part of the National Marie Curie Avenue in Newport, Ystrad Mynach Cancer Care charity and one of 11 Community Hospital, Marie Curie hospices within the UK. Community Hospital and at Usk It has a 30-bedded in-patient unit and House in Brecon for patients and a day therapy unit providing specialist carers. Free transport is provided. palliative care.

Emyr Jones June 2015 Page 12  Complimentary Therapies including reflexology, aromatherapy and The service will support and listen to people hypnotherapy are available. affected by cancer by offering confidential  Physiotherapy and Occupational one to one session to provide: Therapy. - Someone to talk to.  There is a team of Community - Help with finding and understanding Specialist Nurses providing advice and of cancer-related information. support for patient in their own - Benefits awareness. homes. - Sign-posting to other organisations. - Guided access of IT resources and  The Social Work Department provide internet sites. emotional support, financial and

practical advice and bereavement support. Macmillan Torfaen Libraries  Marie Curie offer respite care for Cancer Information & carers in the community - accessed through community nurse service Support Service (Tel: 01495 740818) Cwmbran Library, Gwent Square Cwmbran NP44 1XQ Tel: 01633 647654 Email: [email protected] Macmillan Monmouthshire Libraries Cancer Information

& Support Service Baker Street, Abergavenny, Monmouthshire Macmillan Cancer NP7 5BD Tel: 01873 735980/ 07826876772 Information & Support Email: [email protected] Services/Gwybodaeth Cancr Macmillan a Macmillan Blaenau Gwent Gwasanaethau Cymorth Libraries Cancer Information Macmillan Cancer Support and Libraries in & Support Service Gwent are working together to provide The Circle, Blaenau Gwent, Tredegar information to people affected by cancer in NP22 3PS their local communities. This service is Tel: 01495 355857 available in various libraries across Aneurin Email: [email protected] Bevan. The service is available in various libraries across Please contact the specific service for details Blaenau Gwent. Please contact the service for of locations and times. details of locations and times. This service provides cancer and drop in information sessions in libraries, for people living with cancer, their carers, friends, http://www.macmillan.org.uk/ family, members of the public and professionals.

Emyr Jones June 2015 Page 13  Offers high quality, up-to-date cancer Tenovus – Cancer support information for cancer patients, their families and carers. line  Macmillan online community provides Tenovus Cancer Information Centre, Velindre support and resources including Hospital, Whitchurch, Cardiff CF14 2TL forums, social media and support Administration: 029 2019 6100 groups, covering practical and Helpline: 0808 808 1010 emotional issues, coping with loss, Website: www.tenovus.com treatment and surgery, living beyond cancer, friends and family, and more.  Social workers and welfare rights officers in the welfare rights department are experienced in Macmillan support line advising cancer patients about benefit Tel: 0808 808 00 00 (Monday to Friday 9am- entitlement. 8pm). Citizens’ Advice Bureau

Tel: 0844 477 202

Website: www.citizensadvice.org.uk

 Citizens Advice Bureau offer free,

confidential, impartial and independent advice on a number of issues including debt, benefits, Financial Support and employment, housing and many more Benefits/Cymorth issues. Ariannol a Manteision Benefit enquiry line Website: https://www.gov.uk A new diagnosis may result in extra costs for the patient (e.g. due to travelling, special Tel: 0800 882 200 diet, or childcare) at a time when finances are restricted, due to an inability to work.  Advice and information on the Below is a list of support services which can benefits that can be claimed for the offer advice or support. disabled or for carers. Macmillan Support Line Money Advice Service

Tel: 0808 808 00 00 (Monday to Friday 9am- Tel: 0300 330 0520 8pm) E-mail: http://moneyadviceservice.org.uk

E-mail: [email protected]  Citizens Advice Cymru is working with the new Money Advice Service to  For any financial support questions deliver face to face money advice sessions across Wales, to help

Emyr Jones June 2015 Page 14 everyone make the most of their  OSS are staffed by customer service money. advisors who can put local people in  The Money Advice Service is an touch with council services, voluntary independent organisation, here to and private sector services, provide help individuals manage their money information about local events and better. groups.  Help to find the right people to deal Disability Advice Project, with the enquiry Cwmbran Department for Work and Unit E Avondale Business Park, Avondale Pensions (DWP) Way, Cwmbran Benefit Enquiry Line: 0800 882 200 Torfaen, NP44 1XETel: 01633 485 865 Website: www.dwp.gov.uk [email protected] http://www.dap-wales.org.uk  DWP is responsible for social security benefits, such as Income Support and  The Disability Advice Project is a Attendance Allowance. Torfaen based charity that serves the  The DWP has several agencies that needs of disabled people, their handle these benefits, including families and carers in our community. Jobcentre Plus, the Pension Service  The Project also operates in the and the Disability and Carers Service. surrounding areas of Blaenau Gwent,  Offers general benefit information Caerphilly, Monmouthshire, including local help. Newport,

 This agency assists with filling out forms and help with tribunals, they Personal Independence operate on an appointments basis Payment (PIP) Monday – Thursday 10am – 4pm PIP claim line -0800 917 2222

PIP enquiry line - 0845 850 3322 Monmouthshire County  PIP is to help towards some of the Council One Stop Shops extra costs arising from a health General 01291 426400 condition or disability. It is based on [email protected] how a person’s condition affects them, not the condition they have Abergavenny 01873 735800 [email protected] Disability Living Allowance

Caldicot 01291 426400 (DLA) [email protected] DLA Helpline - 0845 712 3456 https://www.gov.uk/dla-disability-living- Chepstow 01291 635700 allowance-benefit/how-to-claim [email protected]  Tax-free benefit for disabled children Monmouth 01600 775200 aged under 16. It is not affected by [email protected] income or savings. It is for help with the extra costs incurred due to a disability. It is not based on the

Emyr Jones June 2015 Page 15 disability but the needs arising from may find the following information about it. disability equipment useful.

Attendance Allowance British Red Cross

AA Helpline - 0845 712 3456 Newport, Bradbury House, Mission Court, https://www.gov.uk/attendance-allowance Newport, NP20 2DW. Tel: 01633 245753  Tax-free, non-means tested benefit for people aged 65 or over who need Medical Equipment Service help with personal care because of

physical or mental disability.  Facility where by members of the public can take out on a short - term Carers Allowance (CA) loan basis a range of wheelchairs CA Helpline - 0845 608 4321 (manual) and also commodes. https://www.gov.uk/carers-allowance  The service is available Monday, Wednesday and Friday 9am-4pm  Taxable benefit for people who are looking after or supporting a friend, Practical Aids to Living relative or neighbour, for 35 hours a week or more who could not manage Service/ Shop without their help. The person they care for does not have to be related  Within the shop members of the or live with them. public can view, obtain impartial advice on and purchase a wide range of low cost medical & daily living aids See hospices above as they equipment.  The ethos of the Practical Aids to have their own benefits Living shop is to promote officers independence both inside and outside the home.  All items are geared towards making everyday tasks both easier and safer for older and disabled people and individuals recovering from accident, injury or illness.

The shop has in stock a wide range of items including:

 Wheelchairs & wheelchair accessories Equipment/ / Bathing aids. Toilet aids / Incontinence aids / Walking aids / Washing & dressing aids / Household Cyfarpar aids

Patients may experience some form of  The shop is open Monday - Friday disability as a result of their condition and 9am-4pm.

Emyr Jones June 2015 Page 16  Specialist national charity which seeks to relieve the anxieties, problems, Helping Hands – Rhymney and sometimes injustices, faced by Cancer Self Help Group elderly and terminally ill people and their pets.

75 High Street, Rhymney NP22 5NB and Tel: 01685 844888/840974 E-mail: [email protected]

 Helping Hands provides free loan medical aids e.g. wheelchairs, commodes, cushions, mattresses etc, operates a door to door hospital transport service and organises complimentary therapies and counselling. Bereavement/  There is a drop in centre is open Monday to Friday 10am-4pm at 92 Profedigaeth High Street , Rhymney When people lose someone they love, a period of grief usually follows. It is almost impossible for humans to experience loss without feeling some kind of grief. Grief is a normal response to the loss of a loved one. Bereavement is the process of grieving, and each person's experience is unique. Below is a list of support services which can offer advice or support. Pets (re-homing etc) /Anifeiliaid Anwes (ail Cruse in Bereavement Care Caerphilly and Gwent – gartrefi ayyb) Orion Suite, The Centre for Business, All Creatures Great and Small Enterprise Way, Church Farm, Llanfrechfa, Newport NP20 2AQ Cwmbran NP44 8AD Tel: 01633 251982 Tel: 01633 866144 (This is diverted out of Email: [email protected] hours) E-mail:  To provide information, bereavement [email protected] support or group support to bereaved  A registered charity specialises in adults and children. caring for abandoned and/or abused animals. Bereavement Support Group in Monmouth The Cinnamon Trust  Held at Bridges Community centre at Tel: 01736 757 900 on the 1st Tuesday of every month.

Emyr Jones June 2015 Page 17  Drybridge Park, Wonastow Road, Education Programmes for Monmouth, Monmouthshire, NP25 5AS Patients  Tel: 01600 715638 (Mon-Fri, 9am- 5pm) for more information GAVO, Ty Derwen, Church Road, Newport, S. Wales NP19 7EJ Tel: 01633 241563 Macmillan Support Line  NHS based training programme that

provides opportunities to people who Tel: 0808 808 00 00 (Monday to Friday 9am- live with long-term health conditions 8pm). to develop new skills to manage their Website: www.macmillan.org.uk conditions more effectively on a day-

to-day basis, with these skills they can “We listen, we learn, we act to help people make a tangible impact on their live with and beyond cancer.” disease and quality of life.

See hospices/support groups  The courses can also help to manage above who also have emotional changes brought on by bereavement support groups pain, stress, fear, anger and depression. The course covers a range of topics including the importance of nutrition and exercise, dealing effectively with pain and fatigue, planning for the future, communicating with family, friends Other/Arall and health care professionals

Gwent Association of Voluntary Organisations (GAVO)

Tel: 01633 241550

 Community Voluntary Organisation

which is committed to strengthening

the effectiveness of the Voluntary and

Community Sector across Blaenau

Gwent, Caerphilly, Monmouthshire

and Newport.

 Promoting opportunities for Voluntary Organisations to work together through participation

Emyr Jones June 2015 Page 18 National Organisations/ Sefydliadau Cenedlaethol Provides information & support to people Asbestos Awareness & Support Cymru affected by brain tumours. They also provide Tel: 02920 363550 a Befriender telephone counselling service. www.a-a-s-c.org.uk Asbestos Awareness and Support Cymru Breast Cancer Care Cyrmu (AASC) is providing a Wales wide network of Tel: 0808 8006000 help and support to victims of asbestos www.breastcancercare.org.uk related diseases and their families. Provides support and practical assistances to anyone affected by cancer. Asian Women's Breast Cancer Group Tel: 07790 538499 British Liver Trust www.awbcp.co.uk Tel: 0800 652 7330 Asian Women's Cancer Group is based within www.britishlivertrust.org.uk the heart of Asian community and dedicated Provides information about cancer as well as to providing support to women who have other diseases of the liver. experienced cancer. British Lung Foundation Beating Bowel Cancer Tel: 0845 8502020 Tel: 0870 8506050 www.lunguk.org www.beatingbowelcancer.org Provides information about lung cancer.

Bladder & Bowel Foundation Cancer Black Care (CBC) Tel: 0845 3450165 www.cancerblackcare.org.uk www.bladderandbowelfoundation.org Cancer Black Care (CBC) provides a Provides information & support for all types comprehensive support service to ALL of bladder and bowel related problems for members of the community, who are patients, families, carers and healthcare affected by cancer. professionals. Cancer Larygectomee Trust Bone Cancer Research Trust Tel: 01422 205522 Tel: 0113 258 5934 Tel: 020 89614151 www.bonecancerresearch.org.uk www.cancerlt.org Aim is to improve outcomes for people with Provides support and understanding for primary bone cancer through Research, people who are about to have, or have had, a Awareness, Information and Support. laryngectomy.

Bowel Cancer UK Cancer Research UK Tel: www.bowelcanceruk.org.uk Tel: 0808 800 4040 Bowel Cancer UK is dedicated to raising www.cancerresearch.org awareness, improving the quality of those Information Nurses are available to call with affected and ultimately, reducing deaths any questions about cancer. There is also an from bowel cancer. interpreting service to talk in preferred language. Brain Tumour Action Tel: 0131 4663116 Changing Faces www.braintumouraction.org.uk Tel: 0845 46500240 www.changingfaces.org.uk

Emyr Jones June 2015 Page 19 Offers support to people who have Macmillan Cancer Support disfigurements to their face or body Tel: 0808 8080000 following treatment for cancers of the head, www.macmillan.org.uk neck, mouth, throat and skin. Mouth Cancer Foundation Tel: 01924 950950 Coal Industry Social Welfare Organisation www.mouthcancerfoundation.org Tel: 01443 485233 Mouth Cancer Foundation is dedicated to http://ciswo.org/ helping people with mouth, throat and other CISWO is a National Charity which has a focus head and neck cancers deal with the crisis of on the key role of delivering community and cancer. personal welfare services within mining and former mining communities Myeloma UK Tel: 0800 9803332 Colostomy Association www.myeloma.org.uk Tel: 0800 3284257 or 0800 5876744 Myeloma UK is the only UK cancer www.colostomyassociation.org.uk organisation dealing specifically with Offers support, reassurance & information to myeloma and its related disorders anyone who has had a colostomy or is facing one. Ochre Tel: 0800 8223370 Gynae C www.ochrecharity.co.uk Tel: 01793 491116 Promotes awareness of oesophageal cancer. www.gynaec.co.uk/index.html Provides telephone, letter & email support Ovarian Cancer Action for women with any type of gynaecological Tel: 020 82387605 cancer (ovary, cervix, womb & vulva) and www.ovarian.org.uk their partners. Aims to improve survival for women with ovarian cancer & raise awareness. Ileostomy & Internal Pouch Support Group Tel: 0800 0184724 Pancreatic Cancer UK www.the-ia.org.uk Tel: 0203 1771686 Helps anyone who has had or is about to www.pancreaticcancer.org.uk have their colon removed or is facing one. Provides information, support, awareness & research funding. Kidney Cancer UK Tel: www.kcuk.org Prostate Cancer Charity Provides patients and their carers with Tel: 0800 0748383 improved access to reliable information www.prostate-cancer.org.uk about kidney cancer and its treatment. Provides information & support to those affected by prostate cancer.

Lymphoma Association Sexual Dysfunction Association Tel: 0808 8085555 Tel: 020 74867262 www.lymphomas.org.uk www.sda.uk.net Provides emotional support & information on Provides information on sexual problems that a range of issues to anyone with lymphatic can affect women and men. Provide lists of cancer and their families, carers and friends. local specialist practitioners, as well as fact sheets.

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Skinship UK Tel: 01387 760567 Skinship UK runs a confidential helpline which offers help, information and support to anyone with any kind of skin problem, including skin cancer.

Stoma Wise Tel: 01978 355626 www.stomawise.co.uk We are an internet based support network for people who have undergone any of the following Surgical Procedures: ileostomy, colostomy or urostomy surgery.

Tenovus Tel: 0800 8081010 www.tenovus.org.uk

Thyroid Cancer Support Group Wales Tel: 0845 0092737 www.thyroidsupportwales.co.uk We offer education to patients and families to better understand the condition.

Upper GI Cancer Support Group Tel: 01443 443051 All Upper GI patients welcome either pre or post-op from all over Wales.

Urostomy Association Tel: 01225 833080 www.urostomyassociation.org.uk The Urostomy Association (UA) was formed to assist people who are about to undergo or who have undergone surgery resulting in a urinary diversion/ileal conduit.

Waldenstrom's Macroglobulinaemia Support Group Tel: 0117 3735733 www.wmuk.org.uk Provides information on WM by way of information booklets, education forums for patients. We also provide a discussion forum.

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