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Directory of Services for Families with Children Or Young Persons with Special Needs Or a Disability

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Directory of Services for Families with Children Or Young Persons with Special Needs Or a Disability 1 | P a g e Directory of Services for families with children or young persons with special needs or a disability. This directory contains an amalgamation of information of services locally and nationally that can support a family who have a child or young person with special needs or a disability. The aim of this directory is for the family to find all this information in one directory instead of having to research on the internet. All the information given in the service directory is considered to be up to date at the 17th of December 2015. Sometimes entities circumstances do change over time and with that in mind, we advise to back up the data with a quick search online to get the relevant information. It is the service endeavour to update and add data yearly to ensure that the directory continues to be relevant for purpose. This directory was produced for the CPFT by Family Voice Peterborough. Disclaimer The information in this directory is to signpost you to the relevant services available for families who have a child or young person with special needs or a disability. Family Voice Peterborough on behalf of the CPFT has tried to ensure that the information in this directory is accurate. However, CPFT and Family Voice Peterborough will not accept liability for any loss, damage or inconvenience arising as a consequence of any use of or the inability to use any information in this directory. CPFT and Family Voice Peterborough endeavours to provide a directory of the highest quality; however, we cannot guarantee that our directory will be error-free. We are not responsible for claims brought by third parties arising from your use of this directory. CPFT and Family Voice Peterborough assume no responsibility for the contents of linked websites. The inclusion of any link should not be taken as endorsement of any kind by the CPFT or Family Voice Peterborough of the linked website or any association with its operators. Further, CPFT and Family Voice Peterborough have no control over the availability of the linked pages. Copyright The directory is protected by copyright. It may not be copied, reproduced, republished, downloaded, posted, broadcast or transmitted in any way except for your own personal, non-commercial use. Prior written consent of the copyright holder must be obtained for any other use of material. Copyright in all materials comprising or contained within this directory remains with CPFT and Family Voice Peterborough and other copyright owner(s) as specified. No part of this directory may be distributed or copied for any commercial purpose. Feedback Your feedback helps us make this directory better. Any feedback can be given either to the CPFT or to Family Voice Peterborough. 2 | P a g e I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...... When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours late, the plane lands. The stewardess comes in and says, "Welcome to Holland." "Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland. ©1987 by Emily Perl Kingsley. All rights reserved Dear Parent, A word of comfort and to say above all that is OK to cry! Please also allow a word of encouragement, you may or may not identify yourself with the text above, as truly there is no road map for what you are feeling …….. but you are not alone. In time and when you feel ready, we are leaving you invaluable contacts of others that can and will make you journey easier. Knowledge and taking care of You are fundamental, please remember this journey that now begins is a Marathon not a Sprint!!! A fellow parent carer 3 | P a g e My child is diagnosed/needs help, what now? □ Physical disability/Visual/Hearing/Speech Impairment □ Mental disability/ASD/ADHD/Behaviour/Sensory □ Complex disabilities/SWAN/Downs 4 | P a g e Dear Parent, this list is not exhaustive but rather a starting point for you. General Information, Advice and Support in Peterborough: Page 5 Local Offer Peterborough Associations and charities offering information, representation and support for families with children who have Special Needs or a Disability Services in Peterborough: Page 15 Respite/Incontinence/Wheelchair/Sleep therapy Educational Therapy/ Portage/CAHMS OT (Occupational Therapy) SALT (Speech and Language Therapy) Social Care Services offered by the Local Authority What to do in Peterborough: Page 25 Sport Activities Leisure Benefits, Financial Support and Funding in Peterborough: Page 39 Financial Support, Benefit Help and Funding Educational Support in Peterborough: Page 41 Parent Partnership SEND Partnership Officer Independent Support Services Educational Psychologist Important and useful websites nationally: Page 43 Jargon Buster: Page 62 5 | P a g e General Information, Advice and Support in Peterborough: Local Offer Peterborough A Local Offer gives children and young people with special educational needs or disabilities and their families’ information about what support services the local authority think will be available in their local area. Peterborough's local offer is aimed at providing better support and services for children and young people with special educational needs or disabilities and their families. In this one place, you can find information about providers of the following services: Special educational provision. Health services. Social care services. Other educational provision. Training. Travel arrangements for children and young people to schools, colleges and early years settings. Preparing for adulthood, including housing and employment. Leisure and social opportunities. https://www.peterborough.gov.uk/residents/special-educational-needs/local-offer/ Associations and charities offering information, representation and support for families with children who have Special Needs or a Disability: Asperger Autism Support Group For children with or suspected as having Aspergers / Autism. Come and join us for a chat if you're worried about anything or just have a chance to chill with us. ** Children unfortunately cannot attend, so other arrangements need to be made ** Address: Whittlesey Youth Centre, 15 Scaldgate, Whittlesey, Peterborough, Contact: Annette Tel: 01733 203 624. Mondays - 9.30 - 11.30 Fridays 1pm - 2pm 6 | P a g e Barnardos Barnardo’s transforms the lives of the most vulnerable children across the UK through the work of our services, campaigning and research expertise. We believe we can bring out the very best in every child whether the issue is child poverty, sexual exploitation, disability or domestic violence. Address: Unit 7, The Valley Centre, Sugar Way, Peterborough, PE2 9QB Tel: 01733893322 Email: Contact form on website Website: http://www.barnardos.org.uk/shop/peterborough/shop-view.htm?id=SHP-45465 CAMEO At CAMEO, we are able to offer you a number of different treatments or interventions that can be helpful. Each person can benefit from different treatment options, so our starting point is a thorough assessment. The service is for people who are resident in Cambridgeshire and Peterborough (including local Schools, Colleges and Universities) those experiencing some of the symptoms of psychosis and related disorders, and who haven’t had extensive treatment in the past. CAMEO is happy for people to phone for a chat, and if they think interventions won’t help you, they can suggest other sources of help and care. Address: CAMEO North Team, 53 Thorpe Road, Peterborough, PE3 6AN Tel: 01733 318 102 Email: [email protected] Website: http://www.cameo.nhs.uk/ Children's Integrated Disability Team The Children's Integrated Disability Service offers advice and support to parents/carers/children affected by disabilities within the greater Peterborough area. Referrals for needs assessments, advice on respite care, occupational therapy referrals, Hearing/sensory impairment, physical disability, and activities/short breaks. Tel: 01733 864397/200 Website: http://fis.peterborough.gov.uk/kb5/peterborough/fsd/organisation.page?id=PWtisj43RXc 7 | P a g e Cool2Care Cool2Care works with families throughout Cambridgeshire to find suitable personal assistants to care for their disabled child and to offer a respite option.
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