ANNUAL REPORT 2013 Ann Partridge, MD, MPH Kathy Miller, MD Lisa J

ANNUAL REPORT 2013 Ann Partridge, MD, MPH Kathy Miller, MD Lisa J. Frank, President Chair, YSC Medical Advisory Board Indiana University Hospital Karen I. Kennedy, Vice President Dana-Farber Cancer Institute Simon Cancer Center John Hennessy, Secretary Harvard Medical School Michael Wirth, Treasurer Anne Moore, MD Deborah Axelrod, MD Weill Cornell Breast Center NYU Clinical Cancer Center Weill Cornell Medical College Dinamarie Alcuri Tania Chomiak-Salvi Leslie Bernstein, PhD Larry Norton, MD Anna Cluxton City of Hope Memorial Sloan-Kettering Cancer Center Lise Geduldig Courtney Hagen Ira Bleiweiss, MD, FCRP Kutluk Oktay, MD, FACOG Icahn School of Medicine at Mount Sinai Innovative Fertility Preservation and IVF Karen Kochevar Karen Lawson W. Archie Bleyer, MD Olufunmilayo Olopade, MD Joy Simha, Co-Founder St. Charles Health System University of Chicago Medical Center Desirée Walker Knight Cancer Institute at the Oregon Ann Partridge, MD, MPH Health and Science University Edith Perez, MD Mayo Clinic Cancer Center Ernie Bodai, MD DIRECTORS EMERITI Breast Cancer Survivorship Clinic Bert M. Petersen, Jr., MD, FACS Ken Preston at Kaiser Permanente, Sacramento, Calif. St. Barnabas Hospital Randi Rosenberg (1965-2010) New York University School of Medicine Judy E. Garber, MD, MPH Cynthia Rubin Dana-Farber Cancer Institute Karrie Zampini Robinson, LCSW Harvard Medical School Fighting Chance Aron Goldhirsch, MD Jose Russo, MD, FCAP European Institute of Oncology Fox Chase Cancer Center Laurie Goldstein, MD Breast Cancer Research Laboratory Founder, East Side Women’s NCI-NIEHS Breast Cancer & Environment Jennifer Merschdorf, Chief Executive Officer Ob-Gyn Associates Research Center Stacy Lewis, Chief Program Officer, Deputy Chief Executive Clifford Hudis, MD Lillie Shockney, RN Lori Atkinson, Chief Community Officer Memorial Sloan-Kettering Cancer Center The Johns Hopkins Breast Center Heather McGrew, Chief Operating Officer President, American Society Jenna Glazer, Senior Director of Development of Clinical Oncology George W. Sledge, Jr., MD Stanford University Medical Center Kathryn M. Kash, PhD Mary Ajango Megan McCann Thomas Jefferson University Richard G. Stevens, PhD Kristen Buckler Dana McCaw-Lane Jefferson Medical College UConn Health Center Natasha Campos Jennifer Owens Dessie Chappin Jean Rowe Roz Kleban, MSW Alexander J. Swistel, MD Michelle Esser Nirmala Singh Memorial Sloan-Kettering Cancer Center Weill Cornell Medical Center Naomi Gewirtz Jennifer Stanley Thomas Kolb, MD, PC Deborah Toppmeyer, MD Erin Hawkins Kristin Stanley Lichy & Kolb Radiology Rutgers Cancer Institute of New Jersey Annie Hiller Medha Sutliff Jennifer Johnson Nicole Taylor Minetta Liu, MD Kimberly Van Zee, MD Peter Lenz Mollie Toland Mayo Clinic Cancer Center Memorial Sloan-Kettering Cancer Center Evelyn Lynn Curt White Susan Love, MD Eric P. Winer, MD Dr. Susan Love Research Foundation Dana-Farber Cancer Institute

Edward A. Luce, MD * as of 12/31/2013 University of Tennessee For more information visit youngsurvival.org/about/staff Health Science Center

As Young Survival Coalition (YSC) celebrated its 15th anniversary in 2013, we reflected on our accomplishments, while focusing on the future. Inside you’ll read about the Face 2 Face networks YSC introduced to connect young breast cancer survivors in neighborhoods all over the U.S. (pages 2-3), along with the Research Think Tank we convened (pages 6-7) and ways you can be involved. Sincere thanks to all the volunteers, donors, partners, families and supporters who ensure our critical work continues.

Jennifer Merschdorf Chief Executive Officer Young Survival Coalition

Photo by Michael Segal Photography Annual Report designed by Stephanie Werthman TOP 5 INVASIVE CANCERS DIAGNOSED IN YOUNG WOMEN

% BREAST 38

% MELANOMA 20

% UTERINE CERVIX 12

% LEUKEMIA 10

NON- MORE THAN % 35 HODGKINS YOUNG WOMEN ARE DIAGNOSED LYMPHOMA 7 WITH BREAST CANCER

(BASED ON PROBABILITY OF DEVELOPING BREAST CANCER.) EVERY DAY AMERICAN CANCER SOCIETY, SURVEILLANCE RESEARCH, 2013

BREAST CANCER FACTS & FIGURES 2013-2014

Enough to fill 3 NFL STADIUMS 250,000 to capacity. YOUNG WOMEN DIAGNOSED BEFORE AGE 40 ARE LIVING WITH BREAST CANCER TODAY

BASED ON U.S. CENSUS, 2000 On the community boards, I received the encourage- ment from other women that I needed. I knew my surgery choice was the best decision for me, but I had so many questions and reservations. I needed input from other women around the world to help convince my heart what my head already knew.

– SARA O, DIAGNOSED AT 31

It was very helpful to speak to another survivor. I’m very thankful for YSC at a time like this.

2 – NICOLE A, DIAGNOSED AT 29

I want other young women, especially those recently diagnosed, to know there is light at the end of the tunnel. The best part of leading a YSC F2F is watching the group grow! Our last meeting was standing room only. This has been an honor and a rewarding experience!

– JESSICA K., DIAGNOSED AT 35 CHICAGO F2F LEADER

Photo courtesy of Amy Clark Studios The YSC online community boards allow women all over the world to meet virtually, anytime it is convenient for them. There are nearly 18,000 members with 30 active and diverse forums including reconstruction, treatment, nutrition and fertility. Connect online at community.youngsurvival.org.

When facing breast cancer at a young age, there are some things Local YSC Face 2 Face networks (F2F) allow that only another young survivor young women to meet in person where they can understand. live. An F2F can act as a support group, social group, or involve a speciﬁ c activity such as biking YSC Sync offers three easy ways or scrapbooking. Since rolling out this program in April 2013, 72 F2F networks have been 3 for young women to get in touch: created in 29 states. Online Community Boards, in-person To ﬁ nd a YSC Face 2 Face group near YSC Face 2 Face (F2F) networks you or learn how easy it is to start one, and SurvivorLink one-on-one visit youngsurvival.org/get-involved/f2f. peer support.

Sometimes you need to talk one-on-one with someone who has been in a similar situation. YSC’s SurvivorLink program gives young survivors the opportunity to speak with a trained peer volunteer. Matches can be made based on life situation or a topic the young woman would like to discuss whether she is newly diagnosed, metastatic or years out from treatment.

To be connected or inquire about becoming a trained SurvivorLink mentor, 877.YSC.1011 or [email protected]. YSC educational and organizational navigators empower and assist young survivors at any stage of the journey. Three navigators are now available: the Newly Diagnosed Resource Kit, a Metastatic Navigator, and What’s Next? A Young Woman’s Post-Treatment Navigator. A Long-Term Survivor resource is planned for release in 2014.

To date, nearly 6,000 Newly Diagnosed Resource Kits, 1,500 Metastatic Resource Kits, and 800 Post- Treatment Navigators have been distributed for free. 4

The Newly Diagnosed Treatment Navigator has been so useful for me. It allows me to keep all my information in order, gives details of my treatments, provides an area to keep business cards and has a calendar to put my appointments.

Newly Diagnosed Resource Kit Metastatic Navigator Post-Treatment (NDRK) Navigator – ADRIENNE, DIAGNOSED AT 34

Photo courtesy of Chris Gharst photography As the premier advocate for all issues impacting young women with breast cancer, YSC is poised to impact the research and healthcare communities focused on this population. In 2012-2013, YSC gave oral and written presentations at numerous scientiﬁ c and professional conferences: Critical Mass: the Young Adult Cancer Alliance; the San Antonio Breast Cancer Symposium (SABCS); the Annual Academy of Oncology Nurse Navigators Conference (AONN); the National Breast Cancer Coalition Advocacy Summit (NBCC); the Association of Oncology Social Work (AOSW); the Breast Cancer in Young Women Conference (BCY1) in Dublin, Ireland; and the Advanced Breast Cancer International Consensus Conference (ABC2) in Lisbon, Portugal. YSC was honored to present the posters below at these prestigious conferences.

2013 YSC Research Think Tank: Determining Research Priorities for Young Women with Metastatic Breast Cancer (ABC2) 5 Surveying Young Women with Metastatic Breast Cancer to Create Interventions with Impact (ABC2) Face 2 Face Networks: An Innovative Way to Connect Young Women Diagnosed with Breast Cancer (AONN) A Powerful Toolkit Meeting the Diverse but Unique Needs of Young Women Diagnosed with Breast Cancer (AONN) YSC Research Think Tank To Determine Top Priority Research Needs in Young Breast Cancer Patients (SABCS) Want to End Breast Cancer? Prove it. Sign on. (NBCC) A Novel Strategy to Equip Healthcare Providers Serving Young Breast Cancer Patients (AOSW) 2012 The Long-Term Survivor: A Needs Analysis of Young Women Five Years Post Breast Cancer Treatment (BCY1) Young and Metastatic: Addressing the Unique Needs of Advanced Breast Cancer in Young Women (BCY1) A Novel Strategy to Equip Healthcare Providers Serving Young Breast Cancer Patients (BCY1) Addressing the Unique Psychosocial Needs of Young Women With Breast Cancer Post-Treatment (BCY1) A Novel Strategy to Equip Healthcare Providers Serving Young Breast Cancer Patients (Critical Mass) Getting Your Groove Back: Re-Establishing Intimacy After Cancer (Critical Mass and AOSW) 6

Photos by Hillside Media

FERTILITY METASTASES PREGNANCY Ms. Anna Cluxton, Chair (A) Ms. Deb Molis, Chair, (A) Ms. Courtney Preusse, Chair, (A) Ms. Linda Dias (A) Ms. Kim Casamassima (A) Dr. Carole Baas (A) Dr. Francesca Duncan Dr. Silvia Formenti Dr. Virginia Borges Dr. Jacqueline Gutmann Ms. Stacy Gagas (A) Ms. Diana Chingos (A) Dr. Kutluk Oktay Dr. Generosa Grana Dr. VK Gadi Dr. Malcolm Pike Dr. Brunilde Gril Dr. Susan Love Ms. Penina Seidman (A) Ms. Roz Kleban Dr. Jose Russo Ms. Kristin Smith (A) Dr. Larry Norton Dr. Irma Russo Dr. Irene Su Ms. Joy Simha (A) Dr. Julia Tiernan (A) Dr. Pat Steeg Dr. Melissa Troester Dr. Linda Vahdat (A) = Advocate YSC’s priorities from here on in will be guided by the high level discussions that took place at the YSC Research Think Tank. Breast cancer in young women is not simply a – JOY SIMHA, SURVIVOR disease diagnosed at a young age; it has biological YSC CO-FOUNDER, RTT CHAIR characteristics and treatment concerns that differ from diagnosis in post-menopausal women. Today, we still don’t know why. That must change.

In 2012, YSC launched the Research Think Tank (RTT), an The Research Think Tank 18-month initiative to bring together knowledgeable advocates, was a true collaboration as well as leading researchers and clinicians who treat, have experience with, or focus on young women with breast cancer. between advocates The goal of this team is to drive smart and systemic change by and researchers, all refocusing the research community on the tough questions that of whom were focused need to be answered to improve the quality and length of life for on addressing the young women diagnosed with breast cancer. issues unique to young women diagnosed with 7 breast cancer. Six target areas were identiﬁ ed for review by the planning committee: Fertility, Identiﬁ cation – TRACY LEDUC, SURVIVOR, ADVOCATE & RTT PARTICIPANT of Risk Factors, Metastases, Pregnancy, Quality of Life & Survivorship, and Treatment.

During the initial phase, participants of each workgroup assessed the current state of research for their assigned area. In February 2013, participants then met in-person to defi ne what we know and don’t know and determine research priorities. IN MEMORIAM Three members of the RTT passed away after Currently, YSC is drafting a "State of the Evidence" report the February meeting. Advocates Kim Casamassima and Deb Molis, of the metastases workgroup, both summarizing the RTT meeting and its results and seeking died of metastatic breast cancer at ages 48 and 47, to secure publication of its fi ndings. YSC is also fi nalizing respectively. Dr. Irma Russo, an esteemed researcher its research agenda which will list the top research priorities and member of both the Risk Factors and Pregnancy workgroups, also died. We are forever grateful for pertinent to young women and breast cancer. In addition, their dedication and efforts on behalf of young strategies for engaging key stakeholders and potential women with breast cancer. research funders have been developed to ensure that research priorities are acted upon.

QUALITY OF LIFE IDENTIFICATION OF RISK FACTORS TREATMENT Ms. Ann Marie Potter, Chair (A) Ms. Deb Aruta, Chair, (A) Ms. Kimberly Hagerich, Chair, (A) Dr. Shari Goldfarb Dr. W. Archie Bleyer Ms. Leslie Hammersmith (A) Dr. Julie Gralow Ms. Diana Chingos (A) Ms. Hannah Klein Connolly (A) Ms. Sue Ann Mark (A) Dr. Brian Czerniecki Ms. Tracy Leduc (A) Ms. Nikki Oliver (A) Ms. Jennifer Ivanovich Ms. Debra Madden (A) Ms. Jean Rowe (A) Dr. Rebecca Johnson Dr. Ann Partridge Ms. Jeannine Salamone (A) Dr. Jose Russo Dr. Alexander Swistel Ms. Lillie Shockney Dr. Irma Russo Ms. Elizabeth Wohl Dr. Eric Winer Ms. Nancy Sauers (A) Ms. Medha Sutliff (A) Northeast Jennifer Beaudet New Hampshire Devin Boerm Washington, D.C. Diane de Jesús New York Diana Di Mare New Jersey Kim Hagerich Pennsylvania Launched in 2013, YSC’s new State Leader Jodi Inverso New Jersey program links a regional network of experienced Rana Kahl Virginia Paulina Kashirsky New Jersey breast cancer advocates who are committed Julie Klaski Ohio to YSC’s mission. Selected by YSC as key Kate McGough New York Jamie Pleva-Nickerson Connecticut advocates within their region, the State Leaders Erin Price-Schabert Virginia act as a link between local and statewide Melissa Richardson Ohio Victoria St. Martin New Jersey communities and YSC staff. These leaders help Laurie Yori Maryland identify state resources, serve on a Regional South Leadership Council and assist with outreach, Heather Baird South Carolina education and awareness activities throughout Sandy Castillo Texas their area. YSC is honored to have 58 leaders Allison Eng-Perez Florida Katerina Gmitter North Carolina in 26 states in its ﬁ rst year. A heartfelt thank Ishiuan Hargrove Florida Shari Kaple South Carolina you to all of YSC’s amazing State Leaders! Linda Larkin Florida Felicia Mahone Georgia FIND OUT MORE ABOUT BECOMING Alyssa Millman Florida A STATE LEADER FOR YSC Michelle Piña Amos Texas Libby Seabrook Brown South Carolina [email protected] Janice Weaver Georgia Rosie Wells South Carolina Leslie Williams Texas Jennifer Wiseman Arkansas

Midwest Jennifer Barber Nebraska Laura Kuecker Wisconsin Jennifer Linares Illinois 8 Maureen Parrish Michigan Cassandra Peters Kansas April Robinson Michigan Kristin Rose Missouri I am honored to be a state Dana Stewart Illinois leader for YSC. It has given me West a voice to share my experience Lissette Averhoff California and help those newly diagnosed Bethany Aronow Colorado or those struggling with the Lisa Augustine California Dana Bilbao-Miller Idaho unique issues of a young Mindy Carpenter Arizona Mikala Edwards Arizona survivor. I have met so many Kristin Graham California Carol Hachey Oregon women who did not know about Judy Haley Washington YSC and I love bringing all of us Wendy Keating Washington Karen Lawson Washington together because no one should Angela McCourt California Amanda Nixon California ﬁ ght alone. Ariana Opp Colorado Ellen Schwerin California Krista Sullivan Arizona – ROSIE W., DIAGNOSED AT 35 STATE LEADER, S.C.

MIDWEST

WEST NORTHEAST

SOUTH 9

KATY PERRY took over the historic Hollywood Bowl October 23, 2013, for the sold-out We Can Survive concert she headlined to beneﬁ t Young Survival Coalition. Katy’s close friend and songwriter Bonnie McKee kicked off the show, which included incredible performances from Kacey Musgraves, Tegan and Sara, Sara Bareilles and Ellie Goulding. Fireworks literally exploded as Katy sang “Firework,” followed by a surprise encore where all of the artists teamed up to perform Perry’s hit “Roar.”

It was a night of celebrating fantastic music and life, all for a very important cause.

– KATY PERRY, SINGER-SONGWRITER

(Left to right) YSC Sr. Director of Development Jenna Glazer, Katy Perry, and YSC CEO Jennifer Merschdorf celebrate at the concert. Photo courtesy of Gabriel Olsen Co-founded in 2004 by Lisa J. Frank and Matt Purdue, YSC Tour de Pink® was created to raise awareness and funds for YSC. Growing from ﬁ ve participants in 2004 to over 1,200 riders this year, YSC Tour de Pink has generated more than $7 million and now consists of three outdoor bike rides: a one-day ride in Atlanta, Ga., and two three-day rides on the East and West Coasts.

Atlanta riders at the start. Photo courtesy of Fallon Designs

In 2013, YSC partnered with Liv/giant on the second bike design contest just for survivors. This year, Barb Greenlee’s cherry blossom design was selected. For each bike sold, Liv/giant donated 10% of the retail price to YSC.

Riding Tour de Pink was something that I never would have attempted before cancer. I felt like I had something 10 to prove. YSC helped me do just that. The Japanese cherry blossom is a daily reminder that life is short and sweet, to exist in the present moment, and to celebrate the gift of life.

Photo courtesy of Liv/giant – BARB GREENLEE, TDP RIDER, SEATTLE, WASH. DIAGNOSED AT 40

EAST COAST 2004 Boston, Mass. to New York, N.Y. 2005 New York, N.Y. to Hershey, Pa. 2006-10 Hershey, Pa. to New York, N.Y. 2011 Morristown, N.J. to Long Branch, N.J. 2012-13 Philadelphia, Pa. to Washington, D.C.

WEST COAST 2010-11 Thousand Oaks, Calif. to Point Mugu State Park, Calif. 2012 Thousand Oaks, Calif. to Foothill Ranch, Calif. 2013 Thousand Oaks, Calif. to South Ponto Beach, Calif.

ATLANTA LEARN MORE For five years, the Atlanta ride has offered participants the option to cycle one to 100 miles or to participate in a 5K walk/run ysctourdepink.org YSC Tour de Pink @YSCTdP in north Atlanta. 11

Top: West Coast riders cruise along the beautiful coast. Bottom: East Coast riders enjoy the fall foliage. Photos by Capture 14 As part of YSC’s 15th anniversary celebration, the founding members of YSC were presented with the Kristen Martinez Legacy Award at In Living Pink in May 2013. These amazing volunteers were celebrated for their pioneering work bringing young adult oncology issues 12 to the forefront and creating YSC. The gala also recognized corporate honorees Celgene and Liv/giant with the YSC Circle of Excellence Award for outstanding dedication 2013 KRISTIN MARTINEZ to YSC and its mission. LEGACY AWARD RECIPIENTS – YSC FOUNDING MEMBERS Thank you to everyone who supported this Jorgeann Cruz Roberta Levy Schwartz special event and for your commitment to Lisa J. Frank Randi Rosenberg ensuring no young woman faces breast Jill Frey * Joy Simha cancer alone. Meg Herbig Nicki White Lisa Lesko * youngsurvival.org/in-living-pink Lanita Moss * Award received posthumously

Photos by Astrid Stawiarz Members of Congress Sen. Kelly Ayotte (R-NH)* Rep. Joyce Beatty (D-OH) Rep. Susan Brooks (R-IN) Rep. Cheri Bustos (D-IL) Rep. Shelley Moore Capito (R-WV)* Rep. Kathy Castor (D-FL) As the teams took the fi eld for the fi fth annual Congressional Women’s Rep. Susan Davis (D-CA) Softball Game benefi tting YSC, not even imposing skies could dampen the Rep. Donna Edwards (D-MD) Rep. Renee Ellmers (R-NC) spirits of the players or the nearly 1,000 people who came to cheer them on. Rep. Tulsi Gabbard (D-HI) After months of early morning training sessions, the bipartisan Congressional Sen. Kirsten Gillibrand (D-NY)* Rep. Janice Hahn (D-CA) Women’s team and the Bad News Babes (female members of the Washington Sen. Heidi Heitkamp (D-ND) Press Corps) were ready for that fi rst pitch. Rep. Robin Kelly (D-IL) Rep. Ann Kirkpatrick (D-AZ) Rep. Michelle Lujan Grisham (D-NM) Dana Bash of CNN and Sen. Amy Klobuchar (D-MN) called the plays, as Rep. Grace Napolitano (D-CA) Rep. Kristi Noem (R-SD) the tension mounted and the lead fl ipped several times. But in the end the Rep. Martha Roby (R-AL) Press Corps took the lead and won the game 11-8. Together, their efforts raised Rep. Ileana Ros-Lehtinen (R-FL) Rep. Kyrsten Sinema (D-AZ) $125,000 to support young women affected by breast cancer. Rep. Nydia Velázquez (D-NY) Rep. Debbie Wasserman Schultz (D-FL)* Coaches Tori Barnes, Head Coach The Congressional Women’s Softball Game has Rep. Ed Perlmutter (D-CO), Assistant Coach raised nearly $350,000 since it began in 2009. Jim Kiley, Pitching Coach Natalie Buchanan, Practice Assistant MacKenzie Smith, Practice Assistant

2013

DC Press Corps (aka Bad News Babes) Jill Agostino, New York Times Dana Bash, CNN** Christina Bellantoni, PBS NewsHour Photo by Jeff Malet Jennifer Bendery, Huffington Post Carrie Budoff Brown, Politico** Leigh Ann Caldwell, Freelance Political Reporter Lisa Desjardins, CNN Elise Foley, Huffington Post Caroline Horn, CBS News Emmarie Huetteman, New York Times Caitlin Huey-Burns, Real Clear Politics Kasie Hunt, Associated Press Jill Jackson, CBS News Brianna Keilar, CNN* Tamara Keith, NPR Jackie Kucinich, Washington Post Abby Livingston, Roll Call* Lynn Sweet, Chicago Sun-Times Shawna Thomas, NBC News Amy Walter, Cook Report* Kristen Welker, NBC Coaches Dave Espo, Associated Press Carl Hulse, New York Times Frank Thorp, NBC congwomensoftball.org CongressionalWomensSoftball @CWSoftballGame *Captain **Captain Emeritus Junior League of Kansas City Beats for Boobs, a Project of BCEF YSC gratefully Kappa Epsilon Fraternity Suzanne Beckmann Kids II Foundation, Inc. Belkin Burden Wenig & Goldman, LLP acknowledges Law Offices of Steven A. Varano, P.C. Diane J. Bender LIVESTRONG Michele Benson the generous Myriad Genetics, Inc. Michael S. Berman National Rural Electric Cooperative Association Phyllis Berney Nektar Christel Bethea contributions Oregano's Pizza Bistro BGR Consulting Engineers Rheem Manufacturing Company Rodney Bingaman of our funders Tarte, Inc. Husch Blackwell The Entertainment Software Association BMW/Mini of South Atlanta between The Ironman Foundation, Inc. Michael Borkowsky Varian Medical Systems Ann Borowiec July 1, 2012 and Vicki Speakman Memorial Fund, Inc Boy Meets Girl¨ Joseph Wolf, MD Sarah Boyd June 30, 2013. Brighton Retail $2,500—$4,999 Bristol-Myers Squibb Brown-Forman Corporation Anonymous William Burke Asset Management Specialists Ms. Gayle Capozzalo & Dr. Jack Heil Assurant Foundation Carol’s Daughter, LLC Barnes & Noble Booksellers Elizabeth Carroll $100,000+ Michael Bebon Janet Z. Carter Celgene Randi & Andrew Berdon Chevron Humankind Ford Motor Company Michael S. Berman Anna & Brian Cluxton Harley-Davidson Bikers For Boobies KC Steve Cody Oakley, Inc. Cancer Support Community Colgate University William L. Carroll Karey Collins Jeremy Clark $50,000—$99,999 Columbus Radiology Corp. Karey Collins Conquer Cancer Foundation Avon Foundation for Women Dana-Farber Cancer Institute Bruce Crain CCA Industries, Inc. Michael Dayton Cumberland Valley Girls Soccer Boosters Emergen-C Diekman Logistics Norm Dallago Genentech, Inc. Elvis Duran Dauphin County Technical School Giant Bicycle, Inc. Eveden Inc. Alane D. Davis Mentor Worldwide LLC Tricia Flaherty Charitable Fund Sean P. Dean Nordstrom Fire Department Credit Union James Del Favero Spencer Gifts, LLC Garden Cards for the Cure ® Kristin Del Virginia Susan G. Komen Georgia Baptist Health Care Ministry Foundation Janet DeNicola Urban Outfitters Katrina & Paul Gerber Deseret Management Corporation Hard Rock Café Chicago Diane & Doug DiYanni 14 $25,000—$49,999 Dr. Linda Harrison Dragonfly Fund Lauren T. Hill Amgen Edward and Cole, Inc Houston Aeros Hockey Club, LLC Eisai Inc. Esther F. Gerrison Elementary School Jewish Communal Fund Georgia Center for Oncology Research and Education Jose A. Falcon Johnson & Johnson Services Inc. Global Imports BMW Jason Fenton Kid O, LLC Keep A Breast Foundation Bruce Forstall Karen Kochevar McDonald’s Lisa J. Frank Joshua L. Levine, M.D. Novartis Pharmaceuticals Corp. Lori Friedman Monsanto Fund Friends of the Wood-Ridge Northside Hospital Moonachie Football League Inc $10,000—$24,999 Daniel K. Nyaggah Anthony J. Gabriel Get Hitched Give Hope Perricone MD Gen4 Levine Footwear LLC Goals For Life, Inc Piedmont Healthcare Katrina & Paul Gerber Karen & Robert Kennedy Kristie Pugh Sen. Kirsten Gillibrand Laurence W. Levine Foundation, Inc. Quinn Plastic Surgery Center PC Carol & Eugene Glazer Lilly USA, LLC Razoo Mary I. Gormley Microsoft Giving Campaign Reinsurance Association of America Toyoda Gosei National Beer Wholesalers Association Terry Rice Gabrielle Gossner PepsiCo Linda & Tony Rubin Mark Graff Public Interest Projects, Inc St. Vincent's Academy Barb Greenlee Sanofi-Aventis SupportDona.org Trust Melisa & Barry Gum Roberta & Lee Schwartz Sweetest Sin Boutique Kelley Gupton We-Care.com Nicole & Carl Taylor Joseph Hall Theodore Cross Family Charitable Foundation Kevin Hall $5,000—$9,999 Ruth Martha Thomas Maureen A. Hampshire Access Management Group Title Boxing, LLC Eldon M. Harding Alpharetta Convention and Visitors Bureau Larry Tower Sara Hayes Amoena USA Corporation Toyota Motor North America, Inc. Giles Haysom Automatic Data Processing, Inc. Justin Truelove John E. Hennessy AutoTrader.com, Inc. Wilex Inc. Hincapie Sportswear INC Babeland, LLC Wine and Spirits Wholesalers of America, Inc. HM & CO BET Networks Kathleen C. Hochul Center for Reproductive Medicine $1,000—$2,499 Kenneth S. Hollander Center for Restorative Breast Surgery, LLC Abercrombie & Fitch Stacy M. Igel Chantelle Lingerie, Inc Lauren A. Albertson Joan Rau and Associates Comcast Argento SC By Sicura Inc. Pamela J. Johnson Dana-Co LLC Arthur M. Blank Family Foundation Montine Jordan Dominique Daniela Mr. Eric M. Bacolas & Mr. Michael Bonomo Cathryn Kearns Jill & Jonathan Frey Ball Corporation Andrea Kemp Genomic Health, Inc. Ballard Spahr Bruce Kiefer Grant Thornton LLP Bank of America Foundation Rachel Kupperman Courtney Hagen Aimée Bariteau & Eric Morgan Lane Powell PC, Attorneys at Law David L. Langstaff Le Dress LLC Stacy M. Lewis Suzanne K. Loechl Dinamarie Alcuri Desiree Holder-Walker Jana Rankin Carmen Lonstein Kathleen Arnold Stacy Igel Rochelle Rosen Jimmy Lopez Maya Bacolas-Glazer Jennifer Johnson Kate Rossetti LympheDIVAS Aimée Bariteau Mia Karpov Cynthia B. Rubin Bekah Maccaughey Claudia Bauman Lauren Kelley Dr. Joesph Ruggiero Ari Mahller Cecil Benefield Andrea Kemp Lisa M. Sasso Stephen Malamud, MD Annabel Berney Karen I. Kennedy Roberta Schwartz Sophia Marquez Victoria Bilodeau Sally Kesh & Darren Heil Karen Sellars Karen Maynard Colleen Boyle Dr. David Kutler Jennifer Smith Angela R. McCourt David Brouch Joanna Lawson Tiffany Smith Jim K. McDirmid Sheila Butler Stacy M. Lewis Lisa Sorensen Medco Sarah Cheek Sam Marks Amy Stein Michael S. Meisel Anna M. Cluxton Angela McCourt Marcia Stein Merck Partnership for Giving Jill Cohen The McCourt Family Victoria St. Martin Marlane Melican Joan & Brian Condon Ange McLaughlin Dr. Alexander Swistel Dr. Corinne D. Menn & Mr. David Menn Barbara & David Cappozalo Lara Mehanna Kristine Tano Jennifer Merschdorf & Jeffrey Gannon Monica Cuddy Jennifer Merschdorf Amanda Thompson Dan Michaels Charles V. Davis Dulcinea L. Merton Margo Wald Ryan Miller Jeannine Donahue Midwest Cancer Care Sue Ward Stasia Obremskey Lisa J. Frank Valerie Miller Alison Warner Bernadette Olejko-Gadaleta Jill Frey Arielle Monaco Wheeler Stephanie Warren Pendray Orlando Sports Foundation Inc. Sarah Frey Floerchinger Sandi Morina Rachel J. Waxman Lissette Ortiz Dr. Robert Friedman Dr. John Ng Sally Weaver Parkway Dental Services, Inc. Dr. Lloyd Gayle Elizabeth Nikol Kristin S. Westbrook Patterson Companies, Inc. Renee Gewirtz Dr. Tim Opie Julie Wick-Powell Patterson Dental Co. Frank Giampoli Lissette Ortiz Pryor Rebekah Willis Stephanie & Steve Pendray Jenna Glazer Patty Osina Michael Wirth Alka M. Perryman Sondra Graff Lisa Osterman Kathleen Wright Phillips Van Heusen Foundation, Inc. Stephanie R. Gunn Garcia Brandi Palmer Jean Won John A. Plouse Courtney Hagen Mollie Passero Laurie Yori Kerry & Tim Poolman Dr. Peter Halperin Nancy Pollack Gina Zdanowicz Deborah Hearns Dr. E. Popa Michele Przypyszny Elizabeth Hodges Heather H. Popple Don Pufahl Ravi Reddy Renaissance Plastic Surgery, P.C. Reproductive Biology Assoc. Resource Magazine Retrofit 15 Maureen & Greg Reuter I know that every dollar that I donate and Rice & Dore Associates, Inc Susan Richardson raise for YSC will provide vital resources for Rolling Out Entertainment Ros-Lehtinen For Congress young women facing breast cancer. Anne Rossetti Joshua Sason – LISA J. FRANK, SURVIVOR, Erik L. Schumm YSC BOARD PRESIDENT & James Schwab YSC TOUR DE PINK CO-FOUNDER Sheara Seigal Terri M. Shade The Simha-Chari Family Gabrielle L. Sleet Lee Smith St. Joseph Medical Center Stefano La Sala Foundation, Inc. Jeremiah K. Stonge Carolyn & Charlie Strancke Kathleen Straub Scott Swisher TE Connectivity The Church Of Jesus Christ John Arbeeney Alice Klein Barbara S. Seeman Of Latter-Day Saints Foundation Kimberly Awao Lisa Lesko Carla Zandi Shamblen The Good Bead, Inc. Laura Bogdanski Jamie Lieberman Lisa Claire Shipes The Ohio State University Medical Center Elizabeth Borlik Janice Losen Hally Steiner The Scottdale Bank and Trust Company Helene J. Brooks Kristen Martinez Tamara Stevens Todd Thompson Marlene R. Brouch Yolanda Massaro Catherine Marie Stringer University Plastic Surgery Associates Sandy Clayton Christine Miller Jennifer Tracz Verizon Foundation Christine D. Corcoran Deana Mitchell Pam VanCompernolle Stephanie & Jeff Vossen Francine Dente Miglena Ivanova Mladenova Rita Welsh Warnaco Inc. Michelle L. Dunn Lisa Muccilo Kathleen Werner Dr. Carl S. Warren Adelina M. Freeman Johanna King Myers Loretta Wilson Edward K. Watson John Michael Gabala II Kristine Neuhoff Twyman Henry Wirth Wild & Wonderful PAC Cathleen Hart Andrea Oliveri Marsi White Willliam And Kelly Brandmeyer Ann Hayn Jennie M. Owens Nalini Yadla Charitable Fund Liz High Maria C. Peters Rebekah Willis Jean Hurwitz Linda Plato Eva Wirth Carla Francesca Impalli Margie Randolph Laurie Yori Claire Jackson Betsy Rosado Euna Yook Rachel Keenan Randi Rosenberg Jeffrey Zankel Kristy Kirchner Morty Schloss YSC was excited to welcome new partners Nordstrom and CBS Radio in 2013. YSC would like to extend a huge thank you to all of our generous partners who are deeply dedicated to helping young women with breast cancer.

LEARN MORE AND SUPPORT YSC YOUNGSURVIVAL.ORG/PARTNERS-AND-SPONSORS

16 STATEMENT OF FINANCIAL POSITION AS OF JUNE 30, 2013

ASSETS Cash & Cash Equivalents Restricted $ 53,632 With an annual pledge of $1,200 or Unrestricted $ 340,672 more, these generous individuals are Grants Receivable $ 410,265 part of the exclusive YSC Leadership Other Assets $ 189,888 Circle and play an essential role in Furniture, Equipment & ensuring that YSC remains the premier Leasehold Improvements $ 12,799 resource for young women facing Noncurrent Assets $ 355,952 breast cancer. Total Assets $ 1,363,208

TO LEARN MORE, PLEASE VISIT THE LEADERSHIP CIRCLE TAB AT: LIABILITIES & NET ASSETS YOUNGSURVIVAL.ORG/DONATE Current Liabilities $ 151,297 Non-Current Liabilities — Net Assets

Anonymous Montine Jordan Unrestricted $ 796,951 Lauren A. Albertson Karen & Robert Kennedy Temporarily Restricted $ 214,960 Aimée Bariteau & Eric Morgan Bruce Kiefer Permanently Restricted $ 200,000 Michael Bebon Karen Kochevar Diane J. Bender Stacy M. Lewis Total Liabilities and Net Assets $ 1,363,208 Andrew & Randi Berdon – In honor of YSC’s dedicated staff Michael S. Berman Suzanne K. Loechl Michele Benson Stephen Malamud, MD STATEMENT OF ACTIVITIES Husch Blackwell Karen Maynard REVENUE William Burke Jim K. McDirmid Contributions $ 4,593,048 Ms. Gayle Capozzalo & Dr. Corinne D. Menn Dr. Jack Heil & Mr. David Menn Other Revenue $ 77,590 Elizabeth Carroll Jennifer Merschdorf Total Revenues $ 4,670,638 William L. Carroll & Jeffrey Gannon Jeremy Clark Ryan Miller EXPENSES Anna & Brian Cluxton Daniel K. Nyaggah Program Services $ 3,537,676 Karey Collins Bernadette Olejko-Gadaleta Bruce Crain Lissette Ortiz Supporting Services Michael Dayton Stephanie & Steve Pendray Management & General $ 651,221 Sean P. Dean Kerry & Tim Poolman Fundraising $ 559,476 Diane & Doug DiYanni Michele Przypyszny Janet DeNicola – In honor of Lisa J. Frank Total Expenses $ 4,748,373 – In memory of Randi Rosenberg Elvis Duran Change in Net Assets ($77,735) Katrina & Paul Gerber Kristie Pugh Jose A. Falcon Maureen & Greg Reuter Net Assets, Beginning of Year $ 1,289,646 Terry Rice Tricia Flaherty Charitable Fund Net Assets, End of Year $ 1,211,911 Lisa J. Frank Anne Rossetti Jill & Jonathan Frey Linda & Tony Rubin Lori Friedman Erik L. Schumm Katrina & Paul Gerber Roberta & Lee Schwartz WHERE DID THE REVENUE COME FROM? Carol & Eugene Glazer Terri M. Shade Barb Greenlee The Simha-Chari Family Corporate $ 2,643,877 Melisa & Barry Gum Carolyn & Charlie Strancke Individuals $ 1,626,185 Courtney Hagen – In honor of Anna Cluxton Kevin Hall Nicole & Carl Taylor Grants $ 322,986 Maureen A. Hampshire Ruth Martha Thomas Earned Income $ 36,710 Larry Tower Eldon M. Harding In Kind $ 40,880 Dr. Linda Harrison Justin Truelove Grand Total $ 4,670,638 Sara Hayes Stephanie & Jeff Vossen Giles Haysom Edward K. Watson This condensed financial information is based on audited financials. John E. Hennessy Rebekah Willis A full copy of the 2013 audited financials is available by contacting Lauren T. Hill Laurie Yori YSC at 80 Broad Street, Suite 1700. New York, NY 10004 80 Broad Street, St 1700 New York, NY 10004 youngsurvival.org • 877.YSC.1011

Cover Photos (Front & Back) by Andrew Zaeh @yscbuzz youngsurvivalcoalition YOUNG SURVIVAL COALITION SURVIVAL YOUNG is the premier organization organization (YSC) is the premier unique issues the critical to dedicated cancer. and breast women young to caregivers with survivors, YSC works advocacy research, and the medical, increase to communities and legislative women for the quality and quantity of life ages cancer diagnosed with breast 40 and under.