Some Elements About the Prevalence of Autism Spectrum Disorders (ASD) in the European Union
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Issue 111 Special Needs
Issue 111 INSIDE THIS ISSUE Bureau of Community and Special Needs Health Systems From the Division Direc- Child Care Licensing Division tor ................................... 1 www.michigan.gov/michildcare Social Emotional Skills .. 2 (866) 685-0006 Working with Children with Attention Deficit Disorder ......................... 3 Autism 101 ...................... 4 Children with Sensory Processing Disorder ....... 5 From My World to Your Classroom or Home ....... 8 Developmentally Appro- priate Behaviors and Ex- pectations ....................... 9 ADA……….………………..14 FROM THE DIVISION DIRECTOR 2018 is coming to a close very rapidly from Child Care Licensing’s point of view. You have been constantly emailed, sent list serve notices, called or mailed information about the changes we were implementing in 2018. Thanks for your patience as we all went through all of the changes! Background check implementation journey in 2018: • Since March 28th until today we have processed over 77,900 fingerprints of staff, household members and licensees in Michigan. Remember we had no idea how many people worked in child care when we started. The state has paid for almost $3 million dollars of background checks for the child care provid- ers. • The updated PA116 of 1973 finally passed in December of 2017 and went into effect March 28, 2018. We are processing the rule changes currently. • Our in-person trainings were carried out to thousands of child care staff across the entire state over the past 12 months • Our backlog of fingerprints were at over 16,000 just a couple of months ago and today we are down to less than 190. This reduction will allow hiring to be processed much faster for providers employers. -
Appendix A. Exact Search Strings
Appendix A. Exact Search Strings Table A1. MEDLINE® – Ovid Version Table A2. MEDLINE® In-Process and Other Non-Indexed Citations – Ovid Version Table A3. PsycINFO® – Ovid Version Table A4. ERIC – Ovid Version Table A5. EMBASE – Ovid Version Table A6. CINAHL® (Cumulative Index to Nursing & Allied Health Literature) – Ovid Version Table A7. CINAHL® (Cumulative Index to Nursing & Allied Health Literature) – EBSCO Version Table A8. AMED (Allied and Complementary Medicine) – Ovid Version Table A9. Central (EBM Reviews - Cochrane Central Register of Controlled Trials) – Ovid Version Table A10. PsychARTICLES (OVID Journals) – Ovid Version Table A11. Web of Science® – Institute for Scientific Information – Thomson Corporation Table A12. BIOSIS Previews® – Institute for Scientific Information – Thomson Corporation Table A13. Social Sciences Abstracts Table A14. Academic Search Premier – EBSCO Version Table A15. Child Development and Adolescent Studies – EBSCO Version Table A16. Linguistics and Language Behavior Abstracts Table A17. Psychology and Behavioral Sciences Collection – EBSCO Version Table A18. Cochrane Database of Systematic Reviews, Database of Abstracts of Reviews of Effects, Heath Technology Assessment Database, NHS Economic Evaluation Database – Wiley Version Table A19. OCLC Papers First and OCLC Proceedings First – OCLC FirstSearch Table A20. Dissertation Abstracts Table A21. LILACS – OCLC FirstSearch Table A22. NLM Gateway – National Library of Medicine Table A23. DOAJ - Directory of Open Access Journals Databases searched for -
Working with Parents and Carers to Help Autism Development
Health and Medicine ︱ Dr Catherine Aldred & Professor Jonathan Green Guas/Shutterstock.com PACT:Working with parents and carers to help autism development Autism is an enduring condition utism is a common Newcastle, have over 15 years developed affecting over 1% of people neurodevelopmental disorder and tested a new approach, using video- worldwide but with a lack of A affecting over 1% of children feedback techniques with parents to help evidenced therapy to reduce and young people globally. It arises early them understand and respond to the its symptoms. PACT is an in development with often profound particular communication style of their PACT helps adults to interact in different ways to more effectively improve the communication skills of children who early social communication effects on social understanding and young child with autism. The Paediatric have different communication resulting from their autism. intervention working through communication and patterns of Autism Communication Therapy (PACT) parents and carers that is the thinking and behaviour; effects that aims to help autistic children to develop first to have demonstrated long- usually endure through the lifespan. their early social communication skills. to usual care, as well as improved term improvements in autism Additionally, a quarter of people with A not-for-profit community interest PACT aims to help autistic children to develop everyday language. symptoms after therapy within autism go through their lives with company called Interaction Methods a clinical trial. This relatively low no or very little language. All this for Paediatric Autism Communication their early social communication skills. Importantly, these relative improvements intensity approach is referenced inevitably affects social skills, education, Therapy (IMPACT), has been set up to were still apparent when the children in UK national guidance confidence, and ability to find a job. -
AUTISTIC SPECTRUM DISORDERS a Guide to Services for Children
the Foundation for People with Learning Disabilities AUTISTIC SPECTRUM DISORDERS A Guide to Services for Children with Autistic Spectrum Disorders for Commissioners and Providers Rita Jordan, Glenys Jones & Hugh Morgan The Mental Health Foundation is the UK’s leading charity working for the needs of people with mental health problems and those with learning disabilities. We aim to improve people’s lives, reduce stigma surrounding the issues and to promote understanding. We fund research and help develop community services. We provide information for the general public and health and social care professionals. We aim to maximise expertise and resources by creating partnerships between ourselves and others including Government, health and social services. Since October 1998, The Foundation’s work with people with learning disabilities has been carried out under the name, the Foundation for People with Learning Disabilities. It remains part of the Mental Health Foundation. The Foundation for People with Learning Disabilities would like to thank The Shirley Foundation for funding this publication. Contents Contents Introduction ___________________________________________________ 2 Section 1: Definition, Identification and Diagnosis ________________ 3 What is an Autistic Spectrum Disorder? _________________________ 3 The Triad of Impairments in Autistic Spectrum Disorders _________ 3 Levels of Explanation __________________________________________ 5 Individual Differences __________________________________________ 6 Associated Conditions __________________________________________ -
The National Autism Project: Aims and Objectives
The National Autism Project: aims and objectives The National Autism Project: Address for correspondence aims and objectives E-mail: ian@ nationalautismproject. org.uk C Ian Ragan, London Editorial comment Dr Ian Ragan is the director of the National Autism Project (NAP), launched in April 2015 and funded by The Shirley Foundation. In this paper, he describes the key aims of the project and the advisers and organisations who are contributing to this work. He makes the case that the spending on autism, relative to other conditions, is very low and that this has limited the progress on identifying the most effective interven- tions. It is hoped that data will be gathered on the cost-benefit of different services and strategies which can then be used strategically to inform future practice in health, education and social care and the voluntary sector. Readers of the GAP Journal who would like to read more about NAP or contribute to its work can visit the website www.nationalautismproject.org.uk. Note: The term autism is used throughout this paper to denote all individuals on the autism spectrum, including those with Asperger syndrome. Introduction All charities face the issue of deciding how best to spend for young people and adults? Can we be sure that ‘ben- their money and to justify their existence to their donors, efits’, as normally defined by the neurotypical majority, supporters and beneficiaries. They can augment their are really meeting the needs of the autistic minority? in-house expertise with the opinions of independent It was to try and find answers to such questions that experts but every organisation still needs to develop Dame Stephanie (Steve) Shirley with others developed its own strategy, its future direction, and its goals and the idea of the National Autism Project (NAP) which was ambitions. -
Integrating Treatment for Autism Spectrum Disorders Through the Life Cycle
Integrating Treatment for Autism Spectrum Disorders Through the Life Cycle Robert L Hendren, DO Professor of Psychiatry and Behavioral Science Idaho Autism Summit November 2, 2019 Faculty Disclosure • Grants — Curemark, Roche, Otsuka • Advisory Board — Curemark, BioMarin, Janssen, Axial Biotherapeutics • Honoraria/Royalties: Oxford University Press, Taylor & Francis • Dr. Hendren does intend to discuss the use of off- label/unapproved use of drugs Learning Objectives • Identify successes and challenges in the developmental progression through the life cycle for people with developmental disabilities and their families • Identify and effectively treat comorbid medical, emotional and behavioral symptoms associated with autism spectrum disorders (ASD) • Consider integrating biomedical treatments for ASD including conventional psychotropic medication and what has been referred to as CAM/CIM into a comprehensive program. 2010 1 in 68; 2014 1 in 59 CDC Prevalence of Autism • Possible explanations include – Diagnostic expansion and substitution – Better reporting – Increased recognition – Increasing acceptability – Immigration for services – Environmental toxins – Infectious and immune vulnerability – Epigenetic processes Rutter M. Acta Pediatr. 2005;94(1):2-15. Centers for Disease Control and Prevention. Autism Spectrum Disorders. www.cdc.gov/ncbddd/autism. Accessed June 16, 2015. Hagerman R, Hendren RL (Eds). Treatment of Neurodevelopmental Disorders: Targeting Neurobiological Mechanisms. Oxford University Press; 2014. ASD Genetic Etiology (Levels 1 & 2) • Multiple genes: NRXN12q, 7q11.23, 15q11-13, 16p11.2, SHANK 3, 2, NLGN4, MTHFR 677>T, SEMA5A, 2Q22.1, GRIN2B, 5P14.1, CDH9, 10, FRX, PTEN • Identical twins: 60% to 90% – Fraternal twins: 0% to 36% – Siblings: 4% to 19% • Clear genetic etiology accounts for 25% of autism cases • Hundreds of genetic mutations, some de novo, lead to many ways to develop and treat autism • Is Precision Medicine Possible? Weiss KM, Issues Science and Technology in 2017 Levy D, et al. -
Regressive Autism: a Study in Early Developmental Patterns Rebekah L
Southern Illinois University Carbondale OpenSIUC Research Papers Graduate School 5-2014 Regressive Autism: A Study In Early Developmental Patterns Rebekah L. Brewer Southern Illinois University Carbondale, [email protected] Follow this and additional works at: http://opensiuc.lib.siu.edu/gs_rp Recommended Citation Brewer, Rebekah L., "Regressive Autism: A Study In Early Developmental Patterns" (2014). Research Papers. Paper 465. http://opensiuc.lib.siu.edu/gs_rp/465 This Article is brought to you for free and open access by the Graduate School at OpenSIUC. It has been accepted for inclusion in Research Papers by an authorized administrator of OpenSIUC. For more information, please contact [email protected]. i REGRESSIVE AUTISM: A STUDY IN EARLY DEVELOPMENTAL PATTERNS by Rebekah L. Brewer B.S., Southern Illinois University, 2012 A Research Paper Submitted in Partial Fulfillment of the Requirements for the M.S. Communication Disorders & Science. Rehabilitation Institution In the Graduate School Southern Illinois University Carbondale May 2014 RESEARCH PAPER APPROVAL REGRESSIVE AUTISM: A STUDY IN EARLY DEVELOPMENTAL PATTERNS By Rebekah L. Brewer A Research Paper Submitted in Partial Fulfillment of the Requirements for the Degree of Master of Science in the field of Communication Disorders & Science Approved by: Valerie Boyer, Ph.D., CCC-SLP Kirsten Schaper, M.S., CCC-SLP Graduate School Southern Illinois University Carbondale November 11, 2013 TABLE OF CONTENTS CONTENT PAGE Introduction ................................................................................................... -
The Economic Consequences of Autism in the UK Executive Research and Policy Briefing from the Foundation for People with Learning Disabilities
SummaryThe economic of findings consequences from the Learningof the autism Lessons in theproject UK A multi-methodExecutive evaluation research of and dedicated policy briefingcommunity-based from the services for people with personality disorder November 2007 Foundation for People with Learning Disabilities Autism has life-time consequences with a range of impacts on the health, economic wellbeing, social integration and quality of life of individuals with the disorder, and also on their families and potentially the rest of society. However little was known about the economic consequences of autism until the late 1990’s when the Foundation for People with Learning Disabilities, with funding from the Shirley Foundation, commissioned Professor Martin Knapp & Krister Jarbrink of the Centre for the Economics of Mental Health to estimate the costs of autism spectrum disorders (ASDs) in the UKi. That groundbreaking work has now been updated by • Average annual costs for adults with an ASD and a Professor Knapp, Renee Romeo and Jennifer Beecham to learning disability range from £36,507 to £97,863. take advantage of more detailed data that is availableii , • Average annual costs for an adult with a high-functioning again with funding from the Shirley Foundation. This means ASD range from £32,681 to £87,299. that in addition to the costs associated with health and social care support for people with ASDs, the new estimates The research has important implications for policymakers, include a broader span of public sector expenditure, such public services and families by demonstrating the breadth of as education and housing. These are placed alongside public services used by people with ASD, the high proportion estimates of the out-of-pocket expenses incurred by of the overall cost that falls to families, the lost productivity families and the income and employment opportunities to the UK economy, and the potential benefits that might lost by individuals with ASDs and their families. -
Medical Comorbidities in Autism Spectrum Disorders
TA-ESPA-ATP PAPER 2014 1st draft_Layout 1 21/07/2014 19:21 Page 1 Medical Comorbidities in Autism Spectrum Disorders A Primer for Health Care Professionals and Policy Makers Second Edition: July 2014 Prepared by: l Treating Autism l ESPA Research l Autism Treatment Plus TA-ESPA-ATP PAPER 2014 1st draft_Layout 1 21/07/2014 19:21 Page 2 Treating Autism , a charity run entirely by volunteers, provides information and support to families and individuals affected by autism with the aim of improving their quality of life. Registered Charity: www.treatingautism.co.uk No. 1113628, Limited Company Registered in England: No. 5594787. ESPA Research is a not-for-profit subsidiary of ESPA (Education and Services for People with Autism) dedicated to undertaking high-quality research into autism and related conditions all for the public benefit. www.espa-research.org.uk ESPA Research Ltd. Company registration: 6862992. ESPA Registered Charity No. 1037868 | Company No. 2909953 Autism Treatment Plus, dedicated to helping individuals with autism reach optimal health and learning, provides access to diagnostic, medical and behavioural services. www.autismtreatment.org.uk. Limited company registered in England: No. 08623707. © Treating Autism Publications, 2014 Second edition, published July 2014. (First edition published March 2013). All rights reserved. Reproduction of this report, in its entirety and unaltered, by photocopying or electronic means for noncommercial purposes is permitted. Otherwise, no part of this report may be reproduced, adapted, stored in a retrieval system or transmitted by any means, electronic, mechanical, photocopying, or otherwise without the prior written permission of Treating Autism Publications. ISBN: 978-0-9575787-2-2 A pdf version of this publication is available from the Treating Autism website www.treatingautism.co.uk. -
How Different Is Early-Onset Childhood Disintegrative Disorder from Autistic Disorder with Speech Loss?*
Open Journal of Psychiatry, 2013, 3, 39-45 OJPsych http://dx.doi.org/10.4236/ojpsych.2013.32A007 Published Online April 2013 (http://www.scirp.org/journal/ojpsych/) How different is early-onset childhood disintegrative * disorder from autistic disorder with speech loss? Hiroshi Kurita1,2#, Kanna Inoue3 1Department of Child Psychiatry, Zenkoku Ryoiku Sodan Center, Tokyo, Japan 2Department of Mental Health, Graduate School of Medicine, Tokyo University, Tokyo, Japan 3Department of Child Psychiatry, Nerima Welfare Center for Handicapped Persons, Tokyo, Japan Email: #[email protected] Received 27 February 2013; revised 30 March 2013; accepted 9 April 2013 Copyright © 2013 Hiroshi Kurita, Kanna Inoue. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. ABSTRACT Diagnosis; Regression To examine the difference between early-onset (< age 3) childhood disintegrative disorder (CDD) and au- 1. INTRODUCTION tistic disorder with speech loss (ADSL), 8 children Childhood disintegrative disorder (CDD) originates from with early-onset CDD (mean age = 7.6 years, SD = 3.8; Dementia infantilis first reported by Heller [1] in 1908 in 6 males) were compared with 92 age and gender-ratio six infants who had displayed profound mental regres- comparable children with ADSL (mean age = 6.8 sion during the third and fourth years of life. CDD is a years, SD = 4.1; 70 males) on 24 variables not directly subtype of pervasive developmental disorders (PDDs) in related to the key features of CDD (regression after DSM-IV [2] and ICD-10 [3], using similar diagnostic normal development for at least the first 2 years after criteria. -
Is There a 'Regressive Phenotype' of Autism Spectrum Disorder Associated with the Measles-Mumps-Rubella Vaccine?
Journal of Autism and Developmental Disorders, Vol. 36, No. 3, April 2006 (Ó 2006) DOI 10.1007/s10803-005-0070-1 Published Online: April 28, 2006 Is There a ‘Regressive Phenotype’ of Autism Spectrum Disorder Associated with the Measles-Mumps-Rubella Vaccine? A CPEA Study Jennifer Richler,1 Rhiannon Luyster,1 Susan Risi,1 Wan-Ling Hsu,1 Geraldine Dawson,2 Raphael Bernier,2 Michelle Dunn,3 Susan Hepburn,4 Susan L. Hyman,5 William M. McMahon,6 Julie Goudie-Nice,6 Nancy Minshew,7 Sally Rogers,8 Marian Sigman,9 M. Anne Spence,10 Wendy A. Goldberg,10 Helen Tager-Flusberg,11 Fred R. Volkmar,12 and Catherine Lord13 A multi-site study of 351 children with Autism Spectrum Disorders (ASD) and 31 typically developing children used caregiver interviews to describe the children’s early acquisition and loss of social-communication milestones. For the majority of children with ASD who had experienced a regression, pre-loss development was clearly atypical. Children who had lost skills also showed slightly poorer outcomes in verbal IQ and social reciprocity, a later mean age of onset of autistic symptoms, and more gastrointestinal symptoms than children with ASD and no regression. There was no evidence that onset of autistic symptoms or of regression was related to measles-mumps-rubella vaccination. The implications of these findings for the existence of a ‘regressive phenotype’ of ASD are discussed. KEY WORDS: Autism spectrum disorder; language development; regression; Autism Diagnostic Interview - Revised (ADI-R); measles-mumps-rubella (MMR) vaccine; gastrointestinal disorders. While most children with Autism Spectrum Dis- orders (ASD) are described as showing developmental differences from birth or early in infancy, a substantial 1 University of Michigan, Ann Arbor, USA. -
1996-2016 Twenty Years of Grant Making
THE SHIRLEY FOUNDATION 1996-2016 Twenty Years of Grant Making Autism and Information Technology An Overview of The Foundation’s Impact Table of Contents Table of Contents .................................................................................................................................... 1 1.0 Executive Summary ..................................................................................................................... 2 2.0 The Evaluation............................................................................................................................. 5 2.1 Purpose ................................................................................................................................... 5 2.2 Methodology ........................................................................................................................... 6 2.2.1 Limitations ....................................................................................................................... 6 2.2.2 Evaluation Process and Methodology............................................................................. 6 3.0 Survey Results ............................................................................................................................. 8 3.1 Theory of Change and Projects’ Presenting Problems ............................................................ 8 3.1.1 Theory of Change ............................................................................................................ 8 3.1.2 Funded Projects’