the memory matters newsletter of Alzheimer’s Australia Vic Winter 2014

Bring it to the Table 3 ABOVE: The Hon Dr , Premier of , at Victorian Parliamentary Friends A Night to of Dementia. Photo: Arsineh Houspian Remember 4 The Premier attends launch Memory Walk of Dementia Learning Online & Jog 8 The Hon Dr Denis Napthine, Online is an innovative and accessible , attended the education resource that will go a long fourth biannual Victorian Parliamentary way to supporting and enhancing Friends of Dementia meeting held by the quality of care provided to the Alzheimer’s Australia Vic at Parliament estimated 320,000 people with House on 29 May. dementia in Australia. Dementia Learning Online, an “This is a significant step by innovative and interactive learning Alzheimer’s Australia Vic to ensure environment, was launched at the the increasing numbers of carers meeting. The resource aims to achieve in Australia are well trained, better practice improvement in the workplace informed and best equipped to among residential and community provide all people living with dementia carers who play a key role in the the highest quality of care that they lives of people living with dementia. deserve,” Ms McCabe said. Dr Denis Napthine congratulated all The launch of Dementia Learning present on the launch of the new Online was co-convened by Georgie resource and the importance of the Crozier MP, Parliamentary Secretary for work of Alzheimer’s Australia Vic. Health and MP, Shadow Maree McCabe, Alzheimer’s Australia Minister for Seniors and Ageing. Vic CEO, said that Dementia Learning Cont on Page 3

Issue 113 WINTER 2014 WELCOME

At Alzheimer’s Australia Vic we it to the Table, which saw community Picture Darren James rely on people within our community members across the country gather their To find out more about to support and fund our work, and friends and families together to host an Bring it to the Table, email [email protected] community fundraising is essential to event in support of people with dementia, or call (03) 9816 5746. this achievement. It is largely through their families and carers. the effort of our tireless fundraisers that Alzheimer’s Australia Vic continues to This year we’re hosting a Family Fun provide essential support services and Day in July, which will treat children to merchandise in support of Alzheimer’s Australia some fun while acknowledging the role programs for the growing number of Vic provides valuable funds while enabling us to they play in supporting their loved one people impacted by dementia in our continue delivering policy and advocacy initiatives living with dementia. We’re also excited community. Testament to this is the for the hundreds of thousands of Australians living to be hosting our very first Memory outstanding increase of just under 60 with dementia and their carers. Walk & Jog fundraising event in per cent in the contribution from our in September as part of Dementia Sponsorship also plays an important role in community fundraisers during the last Awareness Month. our ability to deliver events, allowing us to financial year alone. establish mutually beneficial relationships with Be assured that by organising or June saw the continuance of this support organisations, businesses and individuals, participating in a community fundraising while volunteering can open up numerous with a hugely successful month of event, you will be raising much needed opportunities to become involved in the activities fundraising efforts, which would not have funds to support Alzheimer’s Australia and services we provide all year round. been possible without the contribution Vic and our work with people impacted of those in the community who took by dementia, their families and carers, Our next issue will share all the details about part. Our fundraising dinner, A Night enabling us to continue to provide leading our Dementia Awareness Month activities that To Remember, was an overwhelming services and programs in support of will run throughout September, focusing on the success, raising over $80,000, which will people living with all forms of dementia. theme of creating a dementia-friendly Australia. The fight against dementia takes a culinary be used to develop an educational and support program for children who have a In addition to contributing to our community Thank you again for your partnership and turn as people Bring it to the Table parent or grandparent with dementia. fundraising initiatives, there are other, support and the difference this makes to people countless opportunities to get involved impacted by dementia. Throughout June, we also celebrated with Alzheimer’s Australia Vic. Making a ABOVE: L-R Matilda, Tom, Joy, Izzy, Harley and Dulcie enjoy a tea party in the sky aboard the Star Observation Wheel. our national fundraising campaign, Bring donation, providing a bequest or purchasing Maree McCabe, CEO Throughout June, community increasing number of people living with it’s not just about who can cook Editorial team About us Board of Directors members across the country perfected dementia and those that support them. the most delicious meal, the group Alzheimer’s Australia Vic is the charity and Christine Bolt their entertaining skills to Bring it to got together to talk about dementia General Manager, Communications peak body providing education, support, Executive Joining the fight against dementia advocacy and information for the the Table in support of people with and support those who are touched Fleur Jacobs Chair Mr Graeme Samuel AC for Bring it to the Table in Melbourne Media and Communications Officer thousands of Victorians living with dementia, their families and carers. by the condition while indulging in dementia and their families. Vice Chair Mr Neil H. Samuel were siblings Izzy and Tom with Notes from the editor cupcakes and spectacular 360-degree Treasurer Mr Ian Knight The next edition of The Memory Matters will be Our vision is for a society committed Alzheimer’s Australia National their grandma Joy, along with Harley views of Melbourne. published in August 2014. If you would like to to the prevention of dementia, while Secretary Ms Frauke Tyrrell President, Ita Buttrose, said funds and siblings Matilda and Dulcie, suggest a story idea, submit a letter or feedback valuing and supporting people living with raised by the initiative will enable who took part in a tea party high Thank you to all those people who dementia. Members please contact Christine Bolt on 03 9816 5772, Alzheimer’s Australia to continue to in the sky aboard the Melbourne hosted and participated in ‘Bring it to [email protected] or now via… Ms To find out more about us and the services provide crucial support services for the Star Observation Wheel. Proving the Table’ events throughout June. Twitter: @AlzheimersVic we provide visit fightdementia.org.au/vic Mr Jerome Fahrer Facebook: Alzheimer’s Australia Vic or call the National Dementia Helpline on Mr Ian Hicks YouTube: AlzheimersVic 1800 100 500 Professor Fran McInerney Sign up for our monthly e-News: Mr Geoff Slade Launch of Dementia Learning Online... [email protected] Disclaimer Assoc Prof Michael Woodward Contact details Articles in this publication provide a general ...continued from page 1 summary only of the subject matter covered. Any Chief Medical Advisor Trading as Alzheimer’s Australia Vic Inc. person with dementia should seek professional Ms McCabe said that as the number of of this innovative online dementia Themes focused on throughout the advice about their specific case. Alzheimer’s Assoc Prof Michael Woodward Family Services T: 03 9815 7800 people with dementia is set to rapidly education program that will make a modules range from an introduction 98–107 Riversdale Road, Australia Vic is not liable for any error or omission F: 03 9815 7801 in this publication. Permission should be sought Hawthorn VIC 3122 Patron rise as Australia’s population ages, difference to the lives of all Victorians to dementia to expectations for from the Editor before reproducing articles. Postal Address Learning Services Once permission is given the source must be The Honourable AC QC improving the quality of care through living with dementia, their families service delivery, and enhancing 155 Oak St, Alzheimer’s Australia Vic acknowledged. Alzheimer’s Australia Vic does best practice training is imperative. and carers, and encourage aged care communication skills to adopting Parkville VIC 3052 Locked Bag 3001 not endorse any products, opinions or services of ABN 14 671 840 186 Hawthorn VIC 3122 any description. Printed on FSC and ISO 14001 accredited paper providers to adopt the training tool effective strategies to help prevent or using environmentally friendly inks “The intention of launching the online learning resource in Parliament House in their professional development minimise the impact of behaviour. program for all staff members,” said is to demonstrate to Members the For more information on Thank you to our supporters Alzheimer’s Australia Vic is Ms Crozier and Jenny Mikakos in a importance of aged care providers Dementia Learning Online, go to joint statement. grateful for ongoing support from: in their electorates to aim for best www.dementialearning.org. practice dementia care for all staff The online education resource features au Photos from the event can be levels in the care system,” she said. four modules that are designed to viewed via Alzheimer’s Australia Vic’s “We congratulate Alzheimer’s be user friendly, practical and can Facebook page, www.facebook.com/ Australia Vic on their development be completed in less than one hour. AlzheimersAustraliaVic

2 The Memory Matters Issue 113 WINTER 2014 National Dementia Helpline 1800 100 500 fightdementia.org.au/vic 3 A Night to Remember

ABOVE: L-R Max Walker AM, Meigan Lefebure, General Manager, Opal Aged Care (formerly Domain Principal Group), Katie Bentley, CEO, Trident Computer Services, Maree McCabe, CEO, Alzheimer’s Australia Vic,Nicholas Oates, Wacker Neuson

A Night to Remember a huge success

Thank you to the five fantastic chefs dinner, helping to raise – Chef De Cuisine Jeffrey Tan, IPF Culinary more than $80,000 to Consultancy Services; Executive Chef Mark develop an educational Normoyle, RACV City Club, Melbourne; and support program ABOVE: L-R Chefs Raymond Capaldi, Mark Normoyle, Pierrick Boyer, Executive Chef Raymond Capaldi, Hare and for children who have Dale Lyman and Jeffrey Tan Grace; Executive Chef Dale Lyman, William a parent or grandparent L-R Breanna, Kahrynn and Angliss Institute and Executive Pastry Chef with dementia. Pierrick Boyer, RACV City Club and Hannah share the experience Bringing together 330 guests, the people living with dementia, their families and of their mother who is living Le Petit Gateau. event featured five delicious courses with dementia Thank you to our carers and in this case for their children,” said These five Melbourne chefs generously with matching wine, each prepared by major sponsors Evan Gordon, General Manager, Fundraising, joined forces with legendary sportsman Max each of the five world-renowned chefs Trident Computer Alzheimer’s Australia Vic. Walker AM as Master of Ceremonies at who generously supported the night. The Services, Wacker The event featured an auction of several the glamorous 2014 A Night To Remember night was a unique culinary experience and Neuson and exclusive holiday packages to exotic fundraising dinner on 17 May at the RACV a celebration of Melbourne’s reputation as Opal Aged Care destinations, priceless experiences and other City Club. the culinary capital of Australia (formerly Domain premium items. You can see all the images Alzheimer’s Australia Vic in partnership with “The generosity of people getting behind Principal Group). capturing the night via our Facebook page, the Rotary Club of Manningham presented our A Night To Remember is so important www.facebook.com/AlzheimersAustraliaVic or the 2014 A Night to Remember fundraising to making a difference to the lives of all visit www.antr.org.au

4 The Memory Matters Issue 113 WINTER 2014 National Dementia Helpline 1800 100 500 fightdementia.org.au/vic 5 keeping you informed keeping you informed

Family Valuing People The power of Trish’s will fun day Alzheimer’s Australia launched an innovative, online organisational save Sunday 20 July self-assessment tool at the National Gallery of Victoria on Thursday 12 When her friend’s husband was diagnosed with Pick’s disease - a very rare the June. The tool is available, free of charge, for organisations seeking to form of dementia that causes a slow shrinking of brain cells due to excess achieve excellence in person-centred care, which is an approach that date enables an individual as well as their carer to become involved in the protein build-up - Trish Petch embarked on a passionate journey to make a decision making regarding their own care. difference to the lives of those affected by dementia. The easy-to-use online resource, Valuing People has been developed in collaboration with community aged care providers who have found A former psychologist and Sadly, her friend’s husband Jack died “Hopefully my bequest may it to be an invaluable resource in establishing person-centred care. The organisational resource is available online for any community aged care journalist, Trish’s interest in research last year. help research scientists to make and the brain led her to the Alzheimer’s provider regardless of size, service mix, cultural context or location. “Pick’s disease is a horrible one,” said a breakthrough in the ultimate Australia Vic newsletter The Memory Trish, of Black Rock. quest for the prevention of Dr David Sykes, General Manager of Learning and Development at Matters. Alzheimer’s and other types Alzheimer’s Australia Vic, said the national online resource demonstrates “The great tragedy was that his family Trish discovered Pick’s disease, of dementia.” innovation in the delivery of care for people living with dementia in wouldn’t acknowledge he had a commonly confused with Alzheimer’s Australia and their carers by providing organisations with the opportunity problem. He’d put on a great act when disease, was a rare disorder that to review their current approach in a wholistic way. his son was visiting, so his son was causes the frontal temporal lobes of people with dementia also sparked her convinced there was nothing wrong “The tool enables aged care providers to achieve excellence in dementia the brain, which control speech and interest in the Alzheimer’s Australia with him. But as soon as his son left, practice by providing a person-centred framework to strengthen the personality, to slowly atrophy. Vic virtual Forest Project – a world- his personality changed.” flexibility of their services and maximise consumer outcomes,” first sensory therapy application using So impressed was Trish with the Dr Sykes said. But it wasn’t just Jack’s disease that cutting-edge video gaming technology. content of The Memory Matters that prompted her journey of discovery into Using smart TV’s it aims to turn a Valuing People has been developed with funding from Alzheimer’s she became a member of Alzheimer’s dementia - or her decision to leave living room at home or in an aged care Australia Vic, the National Quality Dementia Care Initiative and the Federal Australia Vic just to receive the a legacy in her Will to Alzheimer’s centre into an enchanted space that Government’s Encouraging Best Practice in Aged Care (EBPAC) program. newsletters. Australia Vic. stimulates the senses and engages Alzheimer’s Australia Vic For more information on Valuing People, go to www.valuingpeople.org.au through interactivity. will be holding a special event for “I was very interested in dementia children who have a family member for more than 10 years,” said Trish. “The virtual reality means that they can or friend living with dementia. The “Some years ago I was in my 70s. The be in a safe environment,” she said. event will be held on Sunday 20 fact that my husband and I were aging “It’s obvious a lot of research has July from 1.30 – 4.30pm at the and we had a number of friends who gone into this and I love how it can Newport Substation. The main were losing their memory prompted be extended to include different purpose of the event will be to me to do something more. environments whether summer or simply treat these children to some “I really wanted to make a difference winter, Christmas or a beach. fun and acknowledge the role they to the lives of people living with play in supporting their loved one “It means people with dementia can dementia, so I not only became a living with dementia. Do you know be taken into different environments, volunteer in a nursing home, I also any primary-school aged children, and mentally go back to their decided to leave a bequest in my Will along with their families who would childhood. Ultimately it stimulates their to Alzheimer’s Australia Vic.” be interested in attending? brain. “Hopefully my bequest may help To request an invitation or further “A lot can be done to improve the research scientists to make a details, contact Brighid & Lynda, quality of life for people with dementia breakthrough in the ultimate quest for Family Clinicians, Alzheimer’s and hopefully to slow the progression the prevention of Alzheimer’s and Australia Vic, of the disease and for this reason, apart Trish Petch other types of dementia.” at home from my bequest, I will also donate with an Trish’s determination to during my lifetime to help Alzheimer’s Don’t miss out on issue of The your chance to Memory improve the quality of life of Australia Vic with their work.” Matters meet AFL Hawthorn For a confidential discussion on leaving a bequest please call champion, Natalie Sikora, Planned Giving manager, on (03) 9816 5776. Sam Mitchell, To support The Forest Project please visit http://givealzheimers who will be australiavic.org.au/event/theforestproject or contact Evan Gordon, attending the event! ABOVE: L-R Alzheimer’s Australia National CEO, Glenn Rees (right) joins Dr David Sykes, General Manager Fundraising on (03) 9816 5743. General Manager Learning and Development and Christine Pappon, Project Manager, Quality Dementia Care of Alzheimer’s Australia Vic at the launch of Valuing People

6 The Memory Matters Issue 103 Summer 2011 National Dementia Helpline 1800 100 500 fightdementia.org.au/vic 7 keeping you informed keeping you informed

Join the walk to end dementia Have you liked us Alzheimer’s Australia a on Facebook? winner at The Victorian This year, Alzheimer’s Australia Vic is hosting the inaugural Geelong iAwards Memory Walk & Jog on Sunday 14 September. Memory Walk & Jog www.facebook.com/ started as a small community event in Homebush NSW. The first Memory AlzheimersAustraliaVic Alzheimer’s Australia Vic has Walk was held in 2008 and brought together 986 people whose lives had been acknowledged at The Victorian been touched by dementia. This year Alzheimer’s Australia Vic is pleased iAwards for the Virtual Dementia to host its first Memory Walk & Jog to raise funds for people affected by Experience, which recognises the dementia. achievements of home-grown Australian innovators at the cutting With more than 332,000 Australians living with dementia and 78,000 of edge of technology. those in our state alone, it’s a fatal condition that will almost certainly affect us or someone we love in our lifetime. All funds raised increase Alzheimer’s Alzheimer’s Australia Vic won the Australia Vic’s ability to provide vital support services, such as counselling, Education category award, which support groups, education to help family carers, and professional training recognises the most successful and across Victoria. These services reduce feelings of isolation and empower innovative application of Information people living with dementia and those caring for them. With your help, we and Communications Technology (ICT) can make sure that our support is always available to those who need it. to the delivery of education and training. For more details or to register, visit www.memorywalk.com.au The Virtual Dementia Experience is an interactive environment providing an experiential learning exercise for A taste of what’s to come – 2013 professional carers to lead them Sydney Memory Walk & Jog, into changing their attitudes and Leichhardt Oval interactions with people living with dementia thereby transforming their approach to caring. Training courses using the Experience have been ABOVE: L-R; Sisters Georgia and Bonnie Sharp join (L-R) Gary Blackwood, MP, State delivered since March this year at our Member for Narracan, Maree McCabe, CEO, Alzheimer’s Australia Vic, Barbara Potter AM Parkville site. For more information and Consumer Enid Telford at the cutting of the ribbon call 03 9815 7800. Being a iAwards Drouin office opening Dementia Winner People living with dementia, Vic’s CEO Maree McCabe was also Voice their families and carers will have present to officially acknowledge the access to more services in the government’s financial contribution Gippsland region as a result of and the importance of expanding Are you interested in expressing your a new Alzheimer’s Australia Vic dementia support services in the voice on dementia issues? We are office opened in Drouin on 17 April, region. funded by the State and Federal currently recruiting for membership In addition to existing offices at Governments. of the Alzheimer’s Australia Vic Lakes Entrance and Cowes, this Consumer Advisory Committee. This Gary Blackwood, MP, State Member new office will enable Alzheimer’s dynamic group meets every second for Narracan, officially opened the Australia Vic to expand and increase month to identify dementia issues new office and Enid Telford, who the information, support, counselling of concern; to review policy; to have cared for her husband Kelvin who and education services to people in dialogue with service providers; and to lived with dementia, shared her story the region living with dementia and advocate on behalf of Victorians living with guests. Alzheimer’s Australia their families and carers. with all forms of dementia. If you are interested in membership, further details can be found at http://www.fightdementia. org.au/victoria/consumer-advisory- Become a member today from as committee.aspx where you can view the Terms of Reference. little as $15. Call Rebecca to find Jack Sach at Alzheimer’s Australia out more on 9816 5783 Vic would welcome your call on 03 9815 7800.

8 The Memory Matters Issue 103 Summer 2011 National Dementia Helpline 1800 100 500 fightdementia.org.au/vic 9 keeping you informed keeping you informed

Dementia Awareness Month Steve Milton, one of three directors of Innovations in Dementia, a not-for- profit Community Interest Company in the UK, will deliver a public lecture on creating dementia-friendly communities at Melbourne City Conference Centre, 333 Swanston Street, Melbourne, on Thursday 18 Alzheimer Australia Vic’s September at 10.30am, as part of Dementia Awareness Month. The lecture will discuss the dementia- friendly concept as well as present practical examples from the UK Memberships experience of creating dementia- friendly communities. The new 2014/2015 Melbourne Innovations in Dementia work with and Geelong, Surf Coast and Ballarat people with dementia, partner Project developed in the Entertainment™ Memberships are organisations and professionals to DCE Support Planning available and contain thousands of develop and test projects that enhance course based on the life valuable up to 50 per cent off and the lives of people with dementia. story of an individual, Shepparton, , Narre Warren, which can be used as a ‘2-for-1’ offers from many of the best Driving & Dementia Steve Milton’s role in Dementia- method in supporting restaurants, cafés, arts, attractions, Caroline Springs and Mildura over Friendly Communities has been While people in the early stages coming months. a person living with hotel accommodation, travel and much of dementia can remain safe and highly influential in the UK, leading dementia more! From every Entertainment™ competent drivers, the condition Topics covered in the sessions: to dementia-friendly communities Membership we sell, 20 per cent goes involves a progressive decline in • recognising changes in driving as a priority of the Prime Ministers towards Alzheimer’s Australia Vic, functioning, which causes changes in ability Dementia Challenge in 2012. Dementia Care Essentials enabling us to support people living driving ability. • responding to changes in driving Steve Milton has worked in the Through Australian Government funding, Alzheimer’s Australia with dementia, their families ability dementia field since 1995. In 1996 Vic has been delivering the accredited Dementia Care Essentials (DCE) and carers. Changed Conditions Ahead is a program to aged care workers employed in residential, community and • legal and licensing requirements he set up the UK Alzheimer’s Society dementia and driving resource kit flexible aged care services across the state of Victoria. To order your copy of the that was launched earlier this year by for drivers helpline, which he ran until 2002. 2014/2015 Entertainment Book, phone During this time the helpline provided well-known Australian actor Terence • starting conversations about Aiming to provide dementia specific training, the objectives of the us on 03 9815 7800, email support and information to over Donovan. The kit, developed through driving program are to: [email protected] 150,000 people. He has been involved a partnership between Alzheimer’s • Increase the dementia care skills among aged care workers utilising or visit www.entertainmentbook.com. • working with health in training since 1994, and became an Australia Vic and RACV, supports principles of person-centred care au/orderbooks/1868y55 to order online. professionals, and how to stay associate trainer for Dementia Voice people living with dementia along • Provide training and assessment, including workplace assessment, for mobile, active and connected. UK in 2003. with their families and friends when it aged care workers in the units of competency from the Certificate III in Sessions will be interactive and Aged Care and the unit from the Certificate IV in Aged Care. comes to the challenges associated To register your interest, email rsvp.vic@ provide opportunities for questions with driving. alzheimers.org.au or call (03) 9816 5799 The current DCE project (December 2010-April 2014) been delivered to and discussion. Refreshments will 6167 aged care workers. Each program consists of three day face-to-face Resources include the Dementia also be provided. training either held at a central location or on-site at an aged care facility. and Driving Guide for Families and For a copy of the Changed Steve Milton, Carers and two short videos, available Conditions Ahead kit, contact Director, The aim of each program is to engage and encourage collaboration between on DVD and YouTube, which focus the National Dementia Helpline Innovations in aged care workers in the learning process and to use this training as an Dementia on starting conversations about on 1800 100 500, or you can opportunity to instigate cultural change to enhance the quality of aged care. driving and staying active, mobile and download the resources from the Over 90 per cent of participants who have undertaken the DCE training connected. kit at www.fightdementia.org.au/ felt that it has had a positive impact on their workplace behaviour and The project is also rolling out dementiaanddriving 96 per cent of participants would recommend it to others. community information sessions on For more information about a DCE is available for those who are currently working in Commonwealth The free Entertainment™ Book dementia and driving. To date these dementia and driving community funded aged care settings. Companion App is now available have been carried out in Hawthorn, information session near you, or to For further information visit http://www.fightdementia.org.au/victoria/ to download on your iPhone and Preston, Ballarat and Geelong. Further make a booking, phone accredited-programs_vic.aspx or please contact Sarah Bartlett on Android smartphone sessions will be delivered in Traralgon, 03 9815 7822. (03) 9816 5749 or via [email protected]

10 The Memory Matters Issue 113 WINTER 2014 National Dementia Helpline 1800 100 500 fightdementia.org.au/vic 11 research news Your Brain Matters

An update from the diagnosis of Alzheimer’s disease, function in healthy older participants. Australian Imaging, better differential diagnosis of Analysis of AIBL participants’ dietary Biomarkers and Lifestyle different types of dementia, and better patterns revealed differences between (AIBL) Flagship Study prediction of progression from mild a Western diet (characterised by red of Ageing cognitive impairment to dementia. In and processed meats, refined grains, healthy older people in the AIBL study, potatoes, sweets and condiments) and The Australian Imaging, older age was associated with higher a Prudent diet (characterised by higher Biomarkers and Lifestyle (AIBL) beta amyloid burden, consistent with consumption of vegetables, fruits and study is a longitudinal study of over age being the biggest risk factor for nuts). Higher prudent diet adherence 1000 volunteers from Melbourne Alzheimer’s disease. Beta amyloid was associated with better cognitive and Perth. Some are healthy older burden was found to increase over functioning, whilst higher adherence people, some have mild cognitive time, taking about twenty years to go to the ‘unhealthy’ western diet was impairment, and some have from the threshold of abnormal beta associated with poorer cognitive Alzheimer’s disease. Participants are amyloid burden to the levels observed performance and greater cognitive assessed every 18 months to enable in Alzheimer’s disease dementia. decline over 36 months. long-term research into ageing and the These findings confirm that brain development of Alzheimer’s disease. AIBL has made substantial changes in Alzheimer’s disease begin AIBL assessments include testing of contributions to our understanding of decades before clinical symptoms clinical factors and cognitive function, the cognitive and biological changes emerge. collection of blood and cerebrospinal associated with ageing in general and fluid (CSF) samples for biomarker Alzheimer’s disease in particular, and Mentally challenge your brain discovery, brain imaging, and obtaining Biomarker findings contributed to the international effort information on diet and physical in establishing standards for early Simple steps to maximise brain health activity. Imaging of beta amyloid has provided diagnosis of Alzheimer’s disease. It Ready to try significant insight into the development is important that this vital research something new? Now in its seventh year, AIBL is part of Alzheimer’s disease. However, due continues. To find out more, including Your brain is your most valuable vegetable patch or worm farming. of a substantial international effort to its high cost and the requirement health asset, and it’s never too early Sign up for the 21 Day how you might be able to help, visit You can also combine mental, to study the relationships between for non-standard PET technology, it or too late to start protecting it. aibl.csiro.au physical and social activities for Challenge at www. clinical characteristics and Alzheimer’s has limited use as a general population The Your Brain Matters program is an even greater benefit. Dancing yourbrainmatters.org. biomarkers in groups who carry screening tool for Alzheimer’s disease. Source: Ellis KA et al. Enabling a based on scientific research which is an excellent example of an au/challenge. different risk factors for Alzheimer’s The identification of blood biomarkers multidisciplinary approach to the study suggests that leading a brain healthy activity which combines all three disease. This research is critical to that track with the changes in brain of ageing and Alzheimer’s disease: an life may reduce a person’s risk of components for a boost to your brain We are asking you to pledge the development of approaches beta amyloid burden could provide a update from the Australian Imaging developing dementia. Mentally health. Learning the steps challenges a commitment to your brain to prevent dementia. Alzheimer’s cost-effective and accessible way to Biomarkers and Lifestyle (AIBL) study. challenging your brain is one of the your brain, moving around keeps health and spend the next disease is characterised by the identify those at risk of Alzheimer’s Int Rev Psychiatry. 2013; 25(6):699-710. 5 Simple Steps To Maximise Your accumulation of beta amyloid plaques you active, and dancing is always 21 days enjoying your new disease, to monitor disease Brain Health. experience. If you need ideas, and neurofibrillary tangles in the brain, progression, and to test the effects of more fun in a group. The best part is for which there is currently no disease Higher levels of mental activity that there are many different types the 21 Day Challenge website new therapies. Analysis of AIBL data Do you know lists over 50 activities to modifying therapy. Biomarker research has revealed a combination of blood throughout life are consistently of dance, which caters for different has revealed that these brain changes someone who may associated better brain function and abilities and interests. keep your brain active. Some biomarkers which is predictive of brain examples which are mentally begin 20 to 30 years before the beta amyloid burden. However, a lot be interested in reduced risk of cognitive decline and For more information on Your challenging as well as physical emergence of the clinical symptoms more work is required before this participating in dementia. However, it is important to Brain Matters, and to download or social include: that result in a diagnosis of Alzheimer’s technique could be used as a reliable dementia research? choose activities that are challenging a range of resources, visit www. disease dementia. This preclinical screening or diagnostic method. to you. Rather than only doing • Volunteer at a school or your phase provides an exciting opportunity A list of dementia research trials activities that you are good at, try yourbrainmatters.org.au Your Brain favourite charity currently recruiting participants Matters is supported by funding from for therapeutic intervention to prevent something different. • Start a DIY project or delay cognitive decline. Lifestyle findings is available on our website http:// the Australian Government under dementiaresearchfoundation.org. Starting a new ‘challenging’ activity the Chronic Disease Prevention and • Teach a friend or relative how might sound difficult, but it doesn’t The primary aim of the lifestyle au/get-involved-dementia-research Service Improvement Fund. to play chess Imaging findings programme of AIBL is to examine or by calling the National Dementia have to be. You just need to find physical activity and diet factors an activity you enjoy doing, but that You can also get some great ideas • Invite your friends to a The accumulation of beta amyloid Helpline on 1800 100 500. Studies weekly DVD Movie Club associated with healthy aging and with range from surveys to clinical drug also makes you think and learn new for mentally challenging activities plaques can now be detected in the Alzheimer’s disease. Previous research skills. There might be something you from the Your Brain Matters social • Read a book or listen to a living brain with positron emission trials and may be for people with shows that regular physical activity is dementia, their carers or healthy have always wanted to try, such as media sites. podcast while exercising tomography (PET) imaging. The AIBL associated with lower dementia risk. learning to play a musical instrument. Blog www.yourbrainmatters.org.au/blog study is using this and other brain older people. Please share this • Try a mentally demanding Data from the AIBL study indicates that information with anyone you feel You can also build on or learn new Facebook www.facebook.com/ sport like archery, sailing or imaging techniques to discover how intensity of physical activity is also an things about an activity you already YourBrainMatters the brain changes as Alzheimer’s may be interested in supporting orienteering. important aspect, with higher intensity dementia research. enjoy. If you grow beautiful roses, Twitter www.twitter.com/ develops. This could lead to earlier activity associated with better cognitive you might like to try growing a UrBrainMatters

12 The Memory Matters Issue 113 WINTER 2014 National Dementia Helpline 1800 100 500 fightdementia.org.au/vic 13 what’s new in the library workshops & training - book now

Our library is at 100 Riversdale Road, Hawthorn. It’s packed with books, videos, DVDs and journal articles. Here are a few of our newest items. Why not pay us a visit? July to September 2014 Alzheimer’s Australia Vic is a Registered Training Organisation. Bookings are essential: Call 03 9816 5708 or email to [email protected]

Registration forms and details: fightdementia.org.au/vic Registration: 15 minutes prior to course commencement

Free sessions Depression and dementia Beyond bingo – living well Understand the impact of depression on with Ipads® for dementia Dementia Blog Worried about your memory? people with dementia, how to identify ‘at risk’ As our Baby Boomer population As an alternate way to promote Memory weaving: Memory and Many people as they grow older individuals and appropriate strategies and hits the aged care sector, learn the wonderful resources and become worried that changes interventions. about the positive aspects of an anthology of communication aids for they are experiencing to their using an iPad to help interact tools we have available in the Tue 22July dementia journeys people with dementia memory may be the beginnings of and engage with a person library we have created a blog. 9:30am – 12:30pm dementia. It is important to have with dementia in a modern, Dementia Resources Blog Edited by Carolyn Vimpani (2014) Michelle S. Bourgeois (2014) Venue: Alzheimer’s Australia Vic, these changes investigated, so meaningful way. This course will showcase items from our 155 Oak Street, Parkville Memory Weaving is an Based on years of research with that they can either be treated, or will cover dementia and its collection, material published Cost: $160 $150 Members. CNE points: 3 by Alzheimer’s Australia as well anthology of poetry about people with memory impairments, the person can access appropriate impact on the brain, the uses as other resources from around loss and love, the gradual loss this practical book describes how to support and services that will Younger onset dementia (YOD) of an iPad and applications and the world. The blog is theme of the person as dementia create memory aids such as memory assist in planning for their future. This workshop is designed to provide a partici- you will gain an understanding based and some of our recent progresses and the loyalty and books, memory wallets, planners, This seminar covers what’s pant with a better understanding of the impact of how engagement in iPad topics have included; Dementia love that endures. The person memory boards, and reminder involved, where to go and how you dementia has on the younger person and their activities can lead to increased in prison communities, remains - mother, father, cards that use simple words and can encourage a person to have a family, as well as their distinctive care needs. interactions with families grandmother, grandfather, pictures to stimulate communication, diagnosis. and staff and bridge the gap Driving and dementia, the Tue 5 August spouse, friend... They have support memory, and improve between older and younger Montessori approach method Tue 15 July 9:30am – 12:30pm a history and if they cannot the quality of life of people with generations. and Brain health. Visit www. 10.30am – 12.00noon Venue: Alzheimer’s Australia Vic, hold their memories then dementia and related memory dementiaresources.wordpress. Venue: Portland Golf Club, Madeira 155 Oak Street, Parkville we must do so for them, to impairments. For further resources Thurs 31 July com to subscribe and you’ll be Packet Road, Portland Vic Cost: $160 $150 Members. CNE points: 3 weave anew the fabric of lived for younger readers visit our library 9:30am – 12:30pm updated on our online missives Cost: Free. CNE points: 1.5 Venue: Alzheimer’s Australia Vic, as they are posted. experience. blog Dementia Resources - http:// dementiaresources.wordpress.com/ 155 Oak Street, Parkville Lifestyle & Leisure Cost: Free. CNE points: 3 Dementia Care Activity programs based on the Montessori method Improvisational storytelling Programs This is an introduction to the Montessori for people living with what’s on Sensory and immersive approach demonstrating the creation and dementia therapies presentation of meaningful activities for This is a program designed to Efterpi Soropos of Human Rooms people living with dementia. You will better support the use of imagination, Ultimate Treadmill Challenge Is it dementia or old age? Getting How dementia friendly has developed workshops designed appreciate the importance of creating creativity and identity in Following on from the huge an assessment and diagnosis is your home? to teach staff how to incorporate successful activities that are meaningful for people living with dementia. success of last year’s event, Fitness As they age, some people become Join us at the Lilydale Bowling Club more sensory elements into the the person living with dementia, that will assist Improvisational storytelling Energy Studio in Park Orchards is concerned about the changes they on Thursday 11 September for a framework of daily care, from the families to restore meaningful engagement is a method that makes it again hosting the Ultimate Treadmill experience to their memory. Join free community seminar to examine use of simple easy to access ingre- when visiting someone living with dementia. possible for everyone to join Challenge in September to raise us for a free community seminar on some simple and practical design dients and options on how to re- Wed 23 July in without the fear of failing funds for Alzheimer’s Australia Vic. Tuesday 12 August in Swan Hill, to solutions you can implement in your develop and use of sensory rooms. Venue: Alzheimer’s Australia Vic, while encouraging the use of The studio will have 20 treadmills learn what’s involved, where to go own home to create a dementia- Thurs 3 July 155 Oak Street, Parkville imagination. running for 24 hours from 12pm on and how you can encourage a person friendly environment. 9.30am – 12.30pm Tue 12 August Wed 27 August Friday 5 September. to have a diagnosis. Venue: Alzheimer’s Australia Vic, Venue: Alzheimer’s Australia Vic, 9:30am – 12:30pm For more information or to register, 155 Oak Street, Parkville 98-104 Riversdale Road, Hawthorn Venue: Alzheimer’s Australia Vic, To find out more, visit For more information or to register, phone 03 9816 5708, email Cost: $160 $150 Members CNE 9.30am – 4.00pm 155 Oak Street, Parkville www.fitnessenergy.com.au or call phone 03 9816 5708 or email [email protected] or points: 3 Cost: $240 $225 Members. CNE points: 6 Cost: Free. CNE points: 3 Fitness Energy on (03) 9876 6800 [email protected] visit www.fightdementia.org.au/vic

14 The Memory Matters Issue 113 WINTER 2014 National Dementia Helpline 1800 100 500 fightdementia.org.au/vic 15 A bequest can change her future.

For a confidential discussion or more information, please call Natalie on 03 9815 5776.

If you are interested in raising funds and awareness for Alzheimer’s Australia Vic visit www.everydayhero.com.au/event/communityfundraiseAlzVic

Improving the lives of people with dementia is important to me.

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Donations of $2 or more to Alzheimer’s Australia Vic are tax deductible. I would like to find out more about making a bequest to Alzheimer’s Australia Vic I have already included a gift to Alzheimer’s Australia Vic in my Will Please send your donation to: For more information contact: Please contact me about organising my own fundraising event Locked Bag 3001, Telephone 03 9815 7800 I would like more information about becoming a member ARBN 0013779R | ABN 1467 184 0186 | 107NL Hawthorn 3122 Facsimile 03 9815 7801

16 The Memory Matters Issue 113 WINTER 2014