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2014 Annual Report Immune Deficiency Foundation 110 West Road Suite 300 | Towson, MD 21204 800-296-4433 www.primaryimmune.org [email protected]

The Immune Deficiency Foundation is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.

Why does IDF say THINK ZEBRA? In medical school, many doctors learn the saying, “when you hear hoof beats, think horses, not zebras,” and are taught to focus on the likeliest possibilities when making a diagnosis, not the unusual ones. However, sometimes physicians need to look for a zebra. Patients with primary immunodeficiency diseases are the zebras of the medical world. So IDF says THINK ZEBRA! From Our Leadership

It is with great pride we report that the Immune Deficiency Foundation (IDF) continues to grow and help thousands of individuals and families living with primary immunodeficiency (PI) diseases each year. Our national conferences, retreat weekends, and patient meetings throughout the U.S. provide incredible educational opportunities for individuals and families. Our full spectrum of educational publications, the hallmark of IDF’s efforts, have been heralded as the best patient resources about PI in the world. To provide easier access to more people and enhance how individuals manage their health, our online presence and resources have evolved tremendously.

In 2014, IDF moved forward with a bold agenda to innovate how technology could be used to help our community, and to increase our online presence. From IDF ePHR, our electronic personal health record, to our social networks, these unique technologies have given us more ways to engage with and help the PI community. We are reaching more patients with tools designed specifically for them. More than ever before, our community is plugged in and want to get involved, and our online resources allow them to do just that.

IDF has always focused on the patient using innovative approaches to help give researchers insight into the patient experience. In 2014 we developed a revolutionary research network focused on PI—PI CONNECT, the IDF Patient- Powered Research Network. PI CONNECT empowers patients to participate and help transform research by consenting to share their data and their individual experiences. This is truly part of a national movement that will help researchers find answers, ultimately individualizing treatment and providing better outcomes for patients. IDF received a grant from Patient-Centered Outcomes Research Institute (PCORI) to develop PI CONNECT, which brings together patient data from IDF ePHR with clinical data from the United States Immunodeficiency Network (USIDNET), the only national patient-consented registry for PI. And to truly bring patients into the research conversation, patients can let their voices be heard in the PI CONNECT Research Forum. Bringing together this information and the patient voice holds great promise to provide researchers further insights about the diagnosis and treatment of primary immunodeficiency, ultimately helping to improve quality of life for patients.

Individuals become a part of PI CONNECT through IDF ePHR, our electronic personal health record, which also underwent a major transformation in 2014 providing our users with the latest advancements in health record system management. The state-of-the-art platform enables users to enter and access their data no matter where they are with helpful, user-friendly features, transforming how individuals and caregivers manage health information.

The hub of our community remains the IDF website, www.primaryimmune.org, which saw record activity in 2014 with more than double the amount of visitors than 2013. Our popular social networks, IDF Friends and IDF Common Ground, received major updates in 2014, making it even easier for individuals and caregivers to connect in private communities, discuss their personal experiences and learn from each other.

With so many accomplishments in 2014, our digital impact is only part of the remarkable efforts underway in advocacy, education and research. Please take a moment to reflect on all achievements of the Foundation over the past year detailed in this Annual Report. Thank you to all of those who made it possible. Each member of our community plays a critical role in helping us grow, evolve and make a difference in the lives of those living with primary immunodeficiency.

Sincerely,

Marcia Boyle John Seymour, PhD, LMFT IDF President & Founder Chair, IDF Board of Trustees IMMUNE DEFICIENCY FOUNDATION

4 Annual Report 20142013

2014 Year in Review

Reflecting on the past year, it is always helpful to review ongoing programs and activities to evaluate the impact IDF truly has had while working on behalf of the primary immunodeficiency community in 2014.

IDF ePHR, the United States electronic personal Immunodeficiency health record developed Network (USIDNET) for individuals and The United States Immunodeficiency Network (USIDNET) families living with primary immunodeficiency diseases (PI), is a research consortium established to advance scientific received major enhancements in 2014, complete with a research in the field of PI. The work of this consortium is new, state-of-the-art system to transform how individuals funded by the National Institute of Allergy and Infectious manage their health. This one central location offers the Diseases (NIAID) of the National Institutes of Health latest advancements in health record system management, (NIH). USIDNET was established to advance scientific featuring convenient, user-friendly tools to help individuals research in PI and provide resources for work on PI, with PI live healthier lives. IDF ePHR keeps health including the establishment and expansion of a Patient information safe, secure and private at no cost to users. Registry, a program for the education and mentoring of Hundreds of individuals and caregivers are now tracking young investigators, and the maintenance of a Repository health information with IDF ePHR, and the number of users for cells for use in research. The goal of the Registry is to continues to grow. advance research in this field and to examine and improve the quality of life of individuals with PI. Present enrollment has surpassed 4,000 participants. In 2014, the USIDNET Steering Committee published the manuscript USIDNET: a strategy to build a community of clinical immunologists in The Journal of Clinical Immunology, with USIDNET Steering Committee Member, PI CONNECT Principal Investigator, and IDF Board Member, Kathleen Sullivan, MD, PhD of PI CONNECT, the new IDF Patient-Powered Research Children’s Hospital of Philadelphia as first author. Network, connects the information users have consented to share from their IDF ePHR with the United States Patient Services Immunodeficiency Network (USIDNET) patient-consented As a national patient organization, education is central to registry, which contains de-identified clinical data on our mission and each year, IDF hosts education meetings several thousand individuals with PI. PI CONNECT became throughout the country. IDF believes it is imperative to a reality after IDF was approved for a funding award from increase efforts to partner with healthcare professionals in the Patient-Centered Outcomes Research Institute (PCORI) geographic regions to reach more individuals with primary in December 2013. PI CONNECT is part of PCORnet: immunodeficiency diseases (PI) and enhance the content of the National Patient-Centered National Clinical Research the meetings. Network, which aims to advance the shift in clinical research to patient-centered studies, giving individuals Patient Education Programs “a seat at the research table.” Bringing together this In 2014, IDF hosted 23 Education Meetings and Family information through PI CONNECT gives researchers a better Conference Days, which are daylong meetings where local idea of the patient experience. PI CONNECT along with all experts present medical and life management sessions to networks in PCORnet has formed a national resource that adults. The Family Conference Days are Education Meetings boosts the efficiency of health research. with the addition of a youth program for ages 5 and up. Through these meetings, IDF reached 1,634 individuals.

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eImmune Deficiency Foundation IMMUNE DEFICIENCY FOUNDATION

IDF Get Connected Groups In 2014, IDF Teen Escape weekends were held in IDF Get Connected Groups provide an opportunity for Cleveland, OH and Garden Grove, CA with a total of 173 individuals to network and receive support in their local individuals attending. community. In 2014, 29 Get Connected Groups, hosted by IDF volunteers, were held in 13 cities in 10 states. Through IDF Young Adult Program In conjunction with the IDF Teen Escapes, two Young Adult these meetings, IDF reached a total of 214 individuals. Weekends provided an opportunity for individuals, ages 19-35, to learn about IDF programs and managing PI. They networked with others and shared their experiences. IDF Retreats IDF Retreats are weekend gatherings designed with IDF Volunteer Network everyone in the primary IDF has a nationwide network of dedicated volunteers immunodeficiency committed to increasing awareness of PI in local community in mind. communities. Many serve as peer support volunteers to Individuals with PI, parents, offer encouragement and understanding to others as they siblings, children and partners were live with PI. Others provide information on local resources, encouraged to attend and learn how to develop better host educational meetings, advocate for public policy, approaches to living with PI. Two IDF Retreats were hosted organize fundraising events and support IDF Walk for PI. in 2014, one in Atlanta, GA with 230 attendees from 24 Overall, thousands of volunteer hours are donated to IDF states, and another in Portland, OR with 222 attendees each year! from 17 states and Canada. Attendees learned the latest In 2014, peer support volunteers offered personalized information about the treatment and management of PI encouragement and advice to 508 individuals or family from leading physicians and healthcare professionals. The members living with PI in addition to spending thousands IDF Retreats were a big success bringing together more of hours supporting others on IDF Friends. An increasing than 450 people from across the country. number of individuals of all ages want to support the mission of IDF. IDF Teen Program The IDF Teen Program contains many elements and ways IDF Plasma Partners Program to reach teens in the best ways possible. The period of The IDF Plasma Partners Program creates awareness about transition from adolescence to adulthood is a difficult time PI diseases and shows the intertwined relationship between for most individuals. However, those affected by PI can individuals with PI, plasma donors and employees in have an even more complicated time. Throughout all the plasma collection centers throughout the U.S. IDF arranges components of the Teen Program are opportunities for plasma center visits for individuals and family members teens to develop into strong, capable individuals. Training living with PI, where they can gain a better understanding is offered to teen volunteers on the IDF Teen Council. of the importance of plasma donation. Often they are the Council members provide support at various IDF programs first person or family member who lives with PI that the and interact with other teens on IDF Common Ground, center staff or plasma donors have ever met. By hearing www.idfcommonground.org, the social network exclusively their stories, the donors and employees better understand created for teens living with PI where they can connect, the lifesaving role they play in the lives of individuals with share ideas and support one another. The IDF Teen PI through the plasma collection process. The companies Program currently has 140 teens participating. that participate in the IDF Plasma Partners Program IDF Teen Escape Weekends help raise funds and awareness for IDF. In 2014, our IDF Teen Escape weekends are a central part of the teen volunteer network helped spread awareness by distributing program. Teens, ages 12-18, learn from healthcare and thousands of pieces of educational materials and spoke to life management experts, mentors and peers, and issues 3,860 people during 75 visits to plasma centers. they face are tackled and confidence is gained. Meanwhile, IDF appreciates the companies that participate in the parents participate in sessions geared toward their own IDF Plasma Partners Program and help raise funds and issues and concerns. awareness for IDF. The support, enthusiasm and creativity

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of center employees along with the generosity of plasma Health Professional Outreach donors has helped this valuable program develop from a few IDF fosters a supportive environment for groundbreaking centers in 2005 to nearly 300 centers nationwide. Because continuing medical education to improve the diagnosis, the health of persons with PI and plasma businesses are so treatment and care of primary immunodeficiency diseases connected, IDF considers each company involved a partner (PI). IDF programs and publications for healthcare in improving the lives of patients. Thank you to our Plasma professionals promote the recognition and Partners: management of PI. BioLife Plasma Services IDF Medical Advisory Committee Biotest Plasma Centers The IDF Medical Advisory Committee (MAC) is comprised of CSL Plasma prominent immunologists from throughout the country who Grifols support the mission of the IDF through the development of science based standards for diagnosis and care for IDF Academic Scholarship Programs individuals with PI. When there is adequate support, IDF awards scholarships In 2014, members of the MAC presented at IDF local to undergraduate students living with PI who plan on Education Meetings and IDF Retreats. They also published completing their post-secondary education. The Eric Marder the article “Recommendations for live viral and bacterial Scholarship Program was open to individuals with a PI vaccines in immunodeficient patients and their close and was intended for undergraduate students attending contacts” in The Journal of Allergy and Clinical Immunology, or entering college or a technical training school. The April 2014. Each year, members of the MAC play a valuable Varun Bhaskaran (WAS) Scholarship Program was open role when addressing health insurance issues that concern to undergraduate or graduate students living with Wiskott the PI community, and they regularly help answer questions Aldrich Syndrome (WAS). For the 2013-2014 school year, from individuals and families as well as other healthcare $38,000 in scholarships were awarded, 36 scholarships professionals. through the Eric Marder Scholarship Program, and one from IDF Nurse Advisory Committee the Varun Bhaskaran Scholarship Program. The IDF Nurse Advisory Committee (NAC) works to improve the quality of healthcare and education provided by nurses Patient Advocacy Program who care for those living with PI and to increase awareness IDF assists individuals with PI with a broad array of services of PI through professional education and outreach. In including inquiries related to diagnosis, treatment, health 2014, the NAC participated in innovative projects to help insurance, peer support and literature requests. In 2014, improve the quality of healthcare and education provided IDF’s patient advocacy services helped fill the need for by nurses caring for those with PI here in the U.S. and 6,461 requests from individuals and families seeking internationally. Members presented at IDF local Education education, information and assistance, which is 1,240 more Meetings and IDF Retreats, answered patient questions, than 2013. The top three reasons that individuals call IDF and represented IDF at medical conferences. The NAC are for: (1) education, (2) assistance in dealing with the also created a patient-friendly version of the MAC vaccine many health insurance problems that they encounter and guidelines. The IDF Online Course for Nurses: Primary (3) assistance in locating an immunologist in their area. We Immunodeficiency Diseases and Immunoglobulin Therapy also worked with individuals with PI, providers, and insurers underwent a complete review and assessment by IDF NAC to advocate for an appropriate updated medical policy members. In total the course has had 2,104 registrants, and for IVIG. 837 certificates have been issued. Consulting Immunologist The IDF Consulting Immunologist Program provides physicians the opportunity to consult with expert clinical immunologists about patient specific questions and obtain valuable diagnostic, treatment and disease management information. Created to serve the needs of physicians who have questions about their patients with PI, this physician

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to physician service has been available since 1998 and has Public Policy and Advocacy provided hundreds of free consults to physicians. In 2014, Through public policy action and advocacy, IDF is a 77 clinicians used the Consulting Immunologist Program, strong and influential voice on the issues affecting and the program continues to be well-received. access to quality healthcare for patients with primary IDF and USIDNET LeBien Visiting Professor immunodeficiency diseases (PI), including all treatments, sites of care and specialists, and improving quality of life. Program The IDF and USIDNET LeBien Visiting Professor Program promotes improved knowledge about the diagnosis and IDF Advocacy Day 2014 treatment of PI. Teaching hospitals throughout North The 2014 IDF Advocacy Day on Capitol Hill gathered nearly America may request a leading clinical immunologist 50 participants that met with 109 legislative offices in to lead Grand Rounds or present at other educational support of The Patients’ Access to Treatment Act (PATA), activities, such as bedside rounds or house staff and/or which seeks to restrain out-of-pocket costs for patients who medical residents conferences. This program is available use expensive specialty drugs, such as immunoglobulin (Ig) at no cost to the participating hospital. In 2014, visiting therapy—a life-saving treatment for many patients with PI. professorships were held in 10 locations, including Mayo This bipartisan legislation that will help ensure patients with Clinic, Rochester, MN, University of Michigan Medical chronic, disabling and life threatening conditions to access School, St. Luke’s Children’s Hospital, Children’s Mercy the treatments they need. It would limit out-of-pocket costs for medications in a specialty drug tier (typically Tier IV or Hospital and Clinics, North Shore Long Island Jewish higher) to the dollar amount applicable to the drugs in a Health System, Medical College of Wisconsin, Mass General non-preferred brand drug tier. Hospital/Harvard, UCSF Benioff Children’s Hospital, Wake

Forest, and University of Texas Medical Branch (UTMB). Newborn Screening for Severe Combined Immunodeficiency (SCID) SCID Newborn and Conditions Associated with T Cell Lymphopenia Babies can look healthy at birth and still have health problems that need to be recognized and treated. For this reason The number of attendees grew from 1,100 in 2013 to over your baby had routine newborn screening tests done in the hospital before discharge. A few drops of blood were Screening in taken from your baby’s heel and tested for a number of disorders. One of the tests performed is to detect problems with the immune system. Your baby had a result on this test that was either abnormal or did not give a clear result, and 1,300 in 2014. therefore additional testing needs to be done as soon as possible. States

What Does An Abnormal Screening Test Mean? The screening test shows that your baby may have a low number of a type of white blood IDF continues to be cells called “T cells.” Low numbers of T cells can be associated with a genetic condition Medical Meetings & Exhibits called Severe Combined Immunodeficiency or SCID (pronounced “skid”) which would place your baby at extreme risk for serious, life-threatening infections. The screening test alone cannot be used to make a diagnosis of SCID, which is why a new blood test is needed to determine if your baby has a life-threatening immune disorder. You will receive instructions the grassroots leader from your medical provider or your State newborn screening program about getting a new IDF strives to increase visibility in the medical community specimen without delay. in working to have by attending national medical conferences that generally What is SCID? SCID is a set of more than a dozen different genetic disorders, all of which result in a failure to develop T cells and inability to make protective antibodies. Most newborns with SCID appear healthy at first because the mother’s immune system protects them from infections for the first few weeks of life. However, without treatment, even common infections can be life threatening. If your baby has SCID a treatment plan can be started to help prevent infections and establish a newborn screening include a booth in the exhibition hall. This allows staff to functioning immune system.

interact with physicians and other healthcare providers What Other Immune System Problems Could My Baby Have? (NBS) for Severe In addition to SCID, the screening test also picks up other conditions associated with low T cells. These are often not as severe as SCID, but are important to find out about and treat. Although these are immune diseases they are not related to who care for individuals with PI, to discuss educational HIV or AIDS and are not infectious. Combined Immune How Common is SCID? In past years, it was believed that the incidence for babies born each year with SCID was 1 in 100,000. New data available opportunities, and to distribute educational literature and from states that have initiated newborn screening programs for SCID suggest that the incidence may be somewhat more Deficiency (SCID) in all common.

discuss IDF resources. In 2014 IDF attended five medical How are SCID and Other Conditions Associated with T cell Lymphopenia Treated? 50 states. Babies with The most effective treatment for SCID is a bone marrow transplant. This treatment can be done soon after birth and has a high success rate when done in the first few months of life. Some of the other conditions associated with low T cells will also be treated with bone marrow transplant, while others may be most appropriately treated with other therapies. A exhibits around the U.S. with over 3,700 attendees, diagnostic evaluation by an immunologist will determine what kind of treatment your baby needs. SCID appear healthy at including the American Academy of Allergy Asthma and birth, but without early Immunology (AAAAI), Clinical Immunology Society (CIS), treatment, most often by Infusion Nurses Society (INS), Immunoglobulin National bone marrow transplant from a healthy donor, these infants Society (IgNS) and American College of Asthma, Allergy & cannot survive. As of January 1, 2015, 25 states were Immunology (ACAAI). screening. As of July 1, 2015, 33 states (75% of all US IDF presented scientific posters for: births) are screening and between six and nine states are • International Patient Organization for Primary expected to begin screening by the end of 2015. The SCID Immunodeficiencies (IPOPI) Newborn Screening Blog keeps the community updated as we work to implement SCID Newborn Screening in all 50 • Immunoglobulin National Society (IgNS) states. In 2014, there were 22 blog posts with more than • European Society for Immunodeficiencies (ESID) 3,800 sessions. • International Nursing Group for Immunodeficiencies (INGID)

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Medicare IVIG Access Demonstration Project Survey Research The goal of the Medicare IVIG Demonstration Project is to IDF national patient surveys provide crucial insight into the prove the cost effectiveness of allowing Medicare patients personal impact of primary immunodeficiency diseases with PI access to home infusions of IVIG. The demonstration (PI) and help IDF develop policies for improved diagnosis began enrollment in August 2014 with the first home and treatment. The major health surveys conducted by infusions covered beginning October 1, 2014. IDF works the government in the U.S., the National Health Interview collaboratively with CMS to help monitor and promote the Survey and the National Health and Nutrition Examination project. Nearly 1,000 beneficiaries enrolled from August Survey, do not collect information on PI. Survey Research 1-December 31, 2014. has provided active assistance in the following areas: Affordable Care Act (ACA) Implementation • XLA Survey, Published in The Journal of Clinical IDF works to keep patients and families living with PI up- Immunology to-date about the Affordable Care Act (ACA), also known as • Women’s Reproductive Health Survey, Published in the healthcare reform law. IDF has produced educational The Journal of Clinical Immunology videos, updated the IDF Insurance Toolkit, developed • Pediatrician Survey, Published in Clinical Pediatrics various articles as part of IDF communications, worked with • Poster Abstract Based on 2012 IDF National Patient other patient organizations, and commented on specialty Survey, Presented at the American Academy of Allergy, tier coinsurance legislation and various federal proposed Asthma & Immunology rules regarding transparency, restricted formularies, and • Poster Abstract, Presented at the American College of essential health benefits. Chest Physicians • Health Care Reform’s Impact of Patients with Primary Blood Safety immunodeficiency Survey Through American Plasma Users Coalition (APLUS), IDF • Physician “PI Baseline” Survey expressed support for the HHS proposed policy change Survey Research consults for the Primary Immune from a lifetime ban on donations to one year only if the Deficiency (PID) Treatment Consortium (PIDTC) and the FDA fully funded a robust hemovigilance monitoring United States Immunodeficiency Network (USIDNET), and system. HHS adopted the one year ban and is creating a the department supports IDF ePHR and PI CONNECT. hemovigilance monitoring system. Private Insurance Communications IDF was successful in working to solve problems with IDF communications manages the development and major insurers in 2014. IDF and the companies worked production of IDF resources, both print and online, to together to produce positive outcomes for those living with provide vital information to individuals and families living PI. In addition, IDF placed two articles in payer oriented with PI and healthcare providers. By expanding and publications outlining the need to work together with patient engaging more people, IDF can connect more individuals organizations and detailing the risks of restricted formularies and family members seeking answers and looking for others and inadequate networks. who understand—ultimately helping to improve their quality of life. Biosimilars Summer 2014 NUMBER 76 IDF advocates that patients have access to safe and Newsletter and effective biologic and biosimilar medicines. Biologic E-newsletter THE NATIONAL NEWSLETTER OF THE IMMUNE DEFICIENCY FOUNDATION Promoting Herd Immunity medicines are made from living organisms and are far In 2014, IDF communications in Your Community (PI) characterized by the body’s inability to vaccines for people with different kinds of make antibodies. People with XLA do not PI and addressed the concerns those with continued to update and make any protection for themselves when PI had about getting vaccine preventable more complex than traditional chemical drugs. Biosimilars they are vaccinated. “Many people view illnesses. The article emphasizes educating vaccination as a choice, not a must,” she parents and physicians about the critical said, “I’ve made it my mission to educate need for everyone to be vaccinated in order inform our community with our people that if they choose not to immunize, to maintain herd immunity. The article are medicines that are highly similar but not identical to it could literally be fatal to my children.” states, “Parents who elect not to vaccinate their children are actually placing themselves Sonia and Holden were recently featured and their children at increased risk of serious in a National Public Radio story for infection and even death … The increased newsletter, IDF ADVOCATE, advocating for herd immunity, or community biological medicines. Noting the need for the voice of risk of disease in the pediatric population, in immunity. Herd immunity occurs when part because of increasing rates of vaccine most of a population is immunized against refusal increases potential exposure of a contagious disease, such as measles or immunodeficient children.” individuals living with PI to be heard in the debate over published three times a year mumps, and, for the most part, everyone in that population is then protected against the Essentially, parents who choose not to disease because an outbreak is less likely. vaccinate their children not only put their families at risk of serious infection and even However, for many years, some Americans biosimilars, IDF organized a national patient organization (circulation of 32,500), and a The Green family (clockwise from top left): have taken herd immunity for Continued on page 2 Colby, Harrison, Sonia, Davis, Langford and Holden. granted, thinking that infectious Holden, Harrison and Davis have XLA. diseases that were once common, Deficien ne cy With four boys ranging from ages 9 to such as polio, measles or whooping u F m o u monthly e-newsletter, Primary 15, every day is busy for the Green family cough, have been wiped out. The m n I coalition, Patients for Biologics Safety and Access (PBSA), d a

of River Forest, Illinois. There is always success of national immunization t

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something happening, from finishing up programs has made many n homework to rushing to soccer practice. complacent and caused them to to provide that voice by meeting with the FDA, sending Immune Tribune (circulation But in the midst of the Green family’s busy think that vaccines are optional. schedule, mom Sonia makes time to get out As a result, herd immunity is being a simple message to all parents: Vaccinate threatened. of 19,000). your children to keep my children healthy. In April 2014, the IDF Medical National Presenting Sponsor comment letters to FDA, informing Congress and working Sonia, a law professor, and her husband Advisory Committee published an Details on Page 5 Colby, a lawyer, are the parents of Harrison article in The Journal of Allergy and (15), twins Holden (10) and Langford (10), Clinical Immunology* that reviewed IDF Walk for PI 2014 and Davis (9). Harrison, Holden and Davis the current body of knowledge Philadelphia – Boston – Los Angeles with the media. Twenty-two national patient organizations have X-Linked Agammaglobulinemia (XLA), about vaccines. The article made Greater Chicago – New York City – Houston a type of primary immunodeficiency disease recommendations about specific www.walkforPI.org

are members of PBSA. The national patient organization dedicated to improving This newsletter is sponsored by an educational grant the diagnosis, treatment and quality of life of persons from Grifols. with primary immunodeficiency diseases through advocacy, education and research.

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Social Networks IDF Videos IDF videos is the hub to access all of IDF’s video channels. The majority of content is generated by individuals with PI. All IDF videos combined have been watched more than 300,000 times. We have channels dedicated to: • IDF Advocacy • IDF CommonGround Both of IDF’s social networks, IDF Friends and Common Ground, were completely redesigned and built on new • IDF ePHR platforms. Launched in the beginning of 2014, both • IDF General Videos networks have received a great deal of positive feedback • IDF Reel Stories and a spike in usage. The networks are mobile-responsive, Awareness Month and World PI Week feature new user-friendly layouts, and are 100% private, In April, IDF promoted National Primary Immunodeficiency visible only to members—no one may access any site Awareness Month in the U.S. in conjunction with World content without creating an account. Additionally, IDF rolled PI Week (WPIW), April 22-29. IDF is an active member out the new Chat and Instant Message modules. of the WPIW Steering Committee, working closely with partner organizations to develop and execute the worldwide Social Media campaign. During Awareness Month and WPIW, IDF IDF reaches many members of the community through secured press opportunities and highlighted the importance of vaccines based on the IDF Medical Advisory Committee social media, and our numbers grew in 2014 with 7,467 article, “Recommendations for live viral and bacterial Facebook likes and 1,120 Twitter followers. In a year’s time, vaccines in immunodeficient patients and their close IDF Instagram followers jumped up to 166 in 2014 from 39 contacts,” which appeared in the April 2014 edition of The in 2013. Journal of Allergy and Clinical Immunology. IDF created an awareness poster promoting the resources available for those living with PI from IDF, and volunteers distributed the posters to their healthcare providers.

IDF Website Whack-A-Germ App The IDF website is often the first place individuals living One of the most popular games from the IDF Arcade, with PI turn when they receive a diagnosis. This is largely Whack-A-Germ is now an app. In the Whack-A-Germ app, due to the many valuable web-based resources IDF offers. players get the satisfaction of whacking the germ while The most visited pages on primaryimmune.org are on watching out for the friendly T-cells and phagocytes. The app is available for free from Google play (Android) and specific disease types such as Selective IgA Deficiency, the iTunes store (iOS). Search for “IDF Game.” Our online Common Variable Immune Deficiency and IgG Subclass IDF Arcade, filled with educational games for children of all Deficiency, as well as treatment options. Redesigned in ages, is still going strong and has been visited 1,318 times. 2013, the enhanced, mobile-responsive site receives more than 50,000 sessions per month. The content is regularly updated, and the site features an easy-to-use layout and menus. The traffic to our website more than doubled, generating 750,663 of session views in 2014. IDF Blog The IDF blog features news and updates about various topics that affect the PI community. In 2014 there were 99 blog posts.

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IDF Walk for Primary Immunodeficiency 2014 The IDF Order of the Zebra, which is our top fundraising club, IDF Walk for Primary Immunodeficiency supports vital IDF was first implemented in 2014. The order is the elite group programs and services, and increases awareness about of fundraisers whose efforts make an extraordinary impact primary immunodeficiency across the country. In 2014, a on the success of IDF Walk for Primary Immunodeficiency. gross revenue of $713,000 was generated, representing a If walkers set a fundraising goal of $1,000 or more on their year to date increase of 60%. The total number of donations personal fundraising page, and then reach that goal, they are increased by 2,078 at a total of 4,984 donations. In 2014, inducted into the IDF Order of the Zebra. Overall in 2014, IDF over 3,000 walkers and 337 teams participated at one of had more than 81 members raise over $1,000 and become a six sites across the country. Locations included Boston, part of the club. Greater Chicago, Houston, Los Angeles, New York City and There were over 63,000 unique sessions on www.walkforPI.org, Philadelphia. We also have a Nationwide Virtual Walk that and the IDF Walk for Primary Immunodeficiency Facebook page allows our community to support the walk program from gained 1,361 fans. Engaged constituents also promoted the wherever they live. walk through Facebook events for each walk across the country.

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8 Annual Report 2014

Leadership

IDF Board of Trustees

John Seymour, PhD, LMFT - Chair Mary Hurley Barbara Ballard Seth Kaufman Douglas R. Bell Chuck Lage John Boyle, PhD Robert LeBien Marcia Boyle Richard Low, Jr. Joel Buckberg - Secretary Brian Rath Rebecca H. Buckley, MD - Medical Advisory Yvette Shorten Committee Chair John Smith Carol Ann Demaret Kathleen Sullivan, MD, PhD - Medical Advisory Steve Fietek - Vice Chair Committee Vice Chair Terry Halper Amy Walsh

IDF Board of Trustees 2015 Back row, from left: J. Seymour; B. Rath; T. Halper; J. Boyle; C. Lage; M. Boyle; R. Low; J. Smith; S. Fietek; J. Buckberg; S. Kaufman; Y. Shorten. Front row, from left: K. Sullivan; M. Hurley, R. Buckley, B. Ballard; C. Demaret; A. Walsh. Not pictured: D. Bell and R. LeBien

IDF Staff Management Team

Marcia Boyle Julie Nzambi President & Founder Director of Human Resources & Office Management Katherine Antilla Sarah Rose Vice President, Education & Volunteers Chief Financial Officer Christine M. Belser Christopher Scalchunes Senior Vice President, Programs & Communications Vice President of Research Lawrence A. LaMotte Vice President, Public Policy

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IDF Medical Advisory Committee

Rebecca H. Buckley, MD – Chair Steven Holland, MD Duke University School of Medicine National Institutes of Health Kathleen Sullivan, MD, PhD – Vice Chair Howard M. Lederman MD, PhD Children’s Hospital of Philadelphia Johns Hopkins Zuhair Ballas, MD Harry L. Malech, MD University of Iowa National Institutes of Health Mark Ballow, MD Stephen Miles, MD University of South Florida All Seasons Allergy, Asthma & Immunology R. Michael Blaese, MD Luigi Notarangelo, MD Boston Children’s Hospital Francisco Bonilla, MD, PhD Boston Children’s Hospital Hans D. Ochs, MD Seattle Children’s Hospital Fabio Candotti, MD National Institutes of Health Jordan Orange, MD, PhD Texas Children’s Hospital Mary Ellen Conley, MD University of Tennessee Jennifer M. Puck, MD University of California, San Francisco Charlotte Cunningham-Rundles, MD, PhD Mt. Sinai Medical Center Sergio D. Rosenzweig, MD, PhD National Institutes of Health Alexandra H. Filipovich, MD Cincinnati Children’s Hospital John Routes, MD Children’s Hospital of Wisconsin Thomas Fleisher, MD National Institutes of Health William T. Shearer, MD, PhD Texas Children’s Hospital Lisa Forbes, MD Texas Children’s Hospital E. Richard Stiehm, MD UCLA School of Medicine Ramsay Fuleihan, MD Ann & Robert H. Lurie Children’s Hospital of Chicago Troy Torgerson, MD, PhD Seattle Children’s Hospital Erwin Gelfand, MD National Jewish Medical and Research Center James Verbsky, MD, PhD Medical College of Wisconsin Vivian Hernandez-Trujillo, MD Miami Children’s Hospital Jerry Winkelstein, MD

IDF Medical Advisory Committee 2015 Back row, from left: F. Bonilla; M. Ballow; T. Torgerson; E. Stiehm; M. Conley; R. Fuleihan; H. Lederman; F. Candotti; S. Holland. Front row, from left: J. Routes; H. Ochs; C. Cunningham-Rundles; W. Shearer; R. Buckley; J. Puck; M. Boyle. Not pictured: Z. Ballas; R. Blaese; A. Filipovich; T. Fleisher; L. Forbes; E. Gelfand; V. Hernandez-Trujillo; H. Malech; S. Miles; L. Notarangelo; J. Orange; K. Sullivan; S. Rosenzweig; J. Verbsky; J. Winkelstein. 10 Annual Report 2014

IDF Nurse Advisory Committee

Carla Duff, CPNP, MSN, CCRP – Chair Linda Lentini, RN University of South Florida Arizona Allergy Associates William Blouin, MSN, ARNP, CPNP – Vice Chair Larraine Lyter-Reed, RN, MSN, FNP-BC Miami Children’s Hospital Texas Children’s Hospital Loris Aro, RN Debbie Manning, BSN, RN, IgNS Sussman & Associates Immunology The Children’s Hospital of Philadelphia Maggi Dodds, RN, MS, CPNP Terry Rayburn, RN, BSN, ACRN Baylor College of Medicine/Texas Children’s Hospital Texas Children’s Hospital Kristin Epland, FNP-C Linda Anastasia Schneider BSN, RN, CPN Midwest Immunology Clinic The Children’s Hospital of Philadelphia Colleen Hill Dansereau, MSN, RN, CPN, CPHON Debra A. Sedlak, CPNP, MSN Dana-Farber Boston Children’s Cancer and Duke Medicine Blood Disorders Center M. Elizabeth M. Younger CRNP, PhD Mary Hintermeyer, APNP Johns Hopkins University School of Medicine Children’s Hospital of Wisconsin

IDF Nurse Advisory Committee 2015 Back row, from left: C. Duff; W. Blouin; D. Sedlak; L. Lyter-Reed; K. Epland. Front row, from left: L. Aro; L. Anastasia Schneider; D. Manning; M. Younger; M. Hintermeyer; L. Lentini. Not pictured: C. Dansereau; M. Dodds; T. Rayburn.

11 IMMUNE DEFICIENCY FOUNDATION

12 Annual Report 2014

2014 IDF Sponsors

Each year leading companies in the healthcare industry provide financial support to IDF. Without such funding, IDF would be unable to provide our community with many of the services, resources and programs that contribute to the improved quality of life for the individuals and families of those living with primary immunodeficiency diseases (PI).

IDF Core Service Sponsors are dedicated partners that support IDF at the highest level. They help fund direct services that offer peer support, help locate a specialist and offer information on dealing with health insurance issues. Local IDF patient meetings are offered throughout the country because of their generosity. They support medical and scientific programs like our Consulting Immunologist Program and the IDF & USIDNET LeBien Visiting Professor Program, as well as IDF exhibits at medical meetings.

IDF does not charge for membership, so funding from sponsors allows IDF to provide services and publications free of charge to our community.

Our sponsors understand the chronic nature of PI. Because the diseases never go away, patients and their families will continually rely on IDF, and we extend sincere appreciation to these companies for their continual support to make this possible.

IDF Core Service Leaders Baxter International Inc. CSL Behring Grifols

IDF Core Service Supporters AbbVie Biotest Pharmaceuticals lgG America | ASD Healthcare | US Bioservices Octapharma Sigma-Tau Pharmaceuticals

IDF Sustaining Contributors CVS Caremark | Coram Specialty Infusion Services Kedrion Biopharma Horizon Pharma Walgreens – IG Therapy Program

IDF Sponsors Accredo Healthcare BioFusion BioRx Coram Healthcare Orsini Healthcare RMS Medical Products Soleo Health

13 IMMUNE DEFICIENCY FOUNDATION

2014 Revenue

2.45%

7.08% Contributions and Grants

Government Grants and Contract Revenue 17.24%

Investment Income

Special Events 73.23%

2014 Expenses

7.06% Medical and Scientific

10.62% Services to Patients and 28.48% Families

Administration and Finance

Marketing and Fundraising

53.85%

14 Annual Report 2014

Statement of Activities and Changes in Net Assets For the Year Ended December 31, 2014

Temporarily Permanently Unrestricted Restricted Restricted Total

PUCLIC SUPPORT AND REVENUE:

Public support:

Contributions and grants $3,672,747 $1,618,009 $4,183 $5,294,939

Net assets released from restrictions 1,412,781 (1,412,781) - 0 - - 0 -

Total public support 5,085,528 205,228 4,183 5,294,939

Government grants and other contract revenue 1,246,185 - 0 - - 0 - 1,246,185

Revenue:

Investment income 175,450 - 0 - 1,443 176,893

Other income - 0 - - 0 - - 0 - - 0 -

Special events 512,206 - 0 - - 0 - 512,206

Total revenue 687,656 - 0 - 1,443 689,099

Total Public Support and Revenue 7,019,369 205,228 5,626 7,230,223

EXPENSES: Program services: Medical and scientific 1,793,055 - 0 - - 0 - 1,793,055

Services to patients and families 3,390,462 - 0 - - 0 - 3,390,462

5,183,517 - 0 - - 0 - 5,183,517

Supporting services: Administration and finance 668,537 - 0 - - 0 - 668,537

Marketing and fundraising 444,629 - 0 - - 0 - 444,629

1,113,166 - 0 - - 0 - 1,113,166

Total Expenses 6,296,683 - 0 - - 0 - 6,296,683

CHANGE IN NET ASSETS 722,686 205,228 5,626 933,540

NET ASSETS, BEGINNING OF YEAR 6,030,313 1,530,305 41,412 7,602,030

NET ASSETS, END OF YEAR $6,752,999 $1,735,533 $47,038 $8,535,570

15 IMMUNE DEFICIENCY FOUNDATION

Statement of Functional Expenses For the Year Ended December 31, 2014

PROGRAM SERVICES SUPPORTING SERVICES Medical Services to Administration Marketing and Patients and and Grand Scientific and Families Total Finance Fundraising Total Total

Salaries $446,907 $1,161,964 $1,608,871 $271,544 $177,871 $449,415 $2,058,286

Employee benefits 35,200 119,661 154,861 48,697 19,900 68,597 223,458

Payroll taxes, etc. 38,980 95,621 134,601 17,789 15,229 33,018 167,619

521,087 1,377,246 1,898,333 338,030 213,000 551,030 2,449,363

Professional fees 929,598 749,142 1,678,740 148,660 66,608 215,268 1,894,008

Training, conference, conventions, & meetings 74,869 583,658 658,527 6,268 57,523 63,791 722,318

Travel 73,090 209,117 282,207 6,154 22,296 28,450 310,657

Awards and grants 75,500 39,000 114,500 - 0 - - 0 - - 0 - 114,500

Occupancy 31,196 118,056 149,252 38,773 14,022 52,795 202,047

Insurance 2,492 9,432 11,924 2,167 2,052 4,219 16,143

Printing and publications 9,527 69,070 78,597 8,726 15,472 24,198 102,795

Telephone 8,690 26,846 35,536 13,566 3,941 17,507 53,043

Postage and shipping 32,275 78,167 110,442 3,817 17,556 21,373 131,815

Supplies 7,392 20,116 27,508 53,096 11,044 64,140 91,648

Rental and maintenance of equipment 10,491 39,703 50,194 13,039 4,716 17,755 67,949

Miscellaneous 38 98 136 16,588 5,704 22,292 22,428

Advertising - 0 - 18,686 18,686 - 0 - - 0 - - 0 - 18,686

Dues and subscriptions 5,475 9,231 14,706 5,565 5,600 11,165 25,871

1,781,720 3,347,568 5,129,288 654,449 439,534 1,093,983 6,223,271

Depreciation and amortization 11,335 42,894 54,229 14,088 5,095 19,183 73,412

$1,793,055 $3,390,462 $5,183,517 $668,537 $444,629 $1,113,166 $6,296,683

16 Annual Report 2014

Donors

$500,000 and above Mountain View Chevrolet Ellenmarie Dugan Baxter International Inc. Rhona’s Place Debbie Duhe and David Martinez CSL Behring Becki and Dennis Rion Irene and Gerald Eisenberg Grifols USA Tompkins-Broll Family Foundation Enterprise Holdings Foundation National Institutes of Health Georgia and John Wettstein Ethical Factor Rx Patient-Centered Outcomes The Feuerring Foundation Research Institute $2,500-$4,999 Arlon and James Fuerholzer Lisa Betts Thomas Galuszka, Sr. $100,000-$499,999 Marcia and John Boyle Megan Guenther IgG America / ASD Healthcare Commerica Wealth Management The Hirsch Family Foundation / US Bioservices Judith Dean Cammie Hunter Biotest Pharmaceuticals Corporation Downtown Pharmacy James Koch Horizon Pharma, Inc. ENA Healthcare Communications Annette Lage Octapharma USA, Inc. Anne Marder and Wally Bishop Dee and Robert Lanier $50,000-$99,999 Noelle and Blaine Marder Miki LeMay AbbVie, Inc. Brian and Kristin Rath Sarah Bush Lincoln Option Care, Inc. Susan Rosenthal and Michael Hershfield Joel Lipschultz Sigma-Tau Pharmaceuticals SCID Angels for Life, Inc. Erin and Richard Low Kedrion Biopharma Tracy Shaw Mark Christopher Auto Center Margaret Starley Megan and Vincent Maronski $25,000-$49,999 Kathleen Sullivan, MD and Bob D’Zuro Nancy and Sidney Martin Accredo The Wireless Zone Foundation for Giving Gerda and R.A. McDonough Biofusion Third Mind, Inc. Eric Mourkakos BioRx Stephanie Park Coram CVS/Specialty Infusion Services Bernadette and Dominick Passalacqua Estate of Nancy Garber $1,000-$2,499 Anitha and Prakash Patel, MD Orsini Healthcare Anonymous Paul Perreault RMS Medical Products Thayer and Chip Adams Airboat Adventures Pfizer, Inc. $10,000-$24,999 Koryn and Curtis Anderson Anita Phillips Estate of Kathleen Bell Robyn and Pug Bainter Paula and Daniel Reingold Lyona and Dwight Allison, Jr. Marie Bastick Christina Lingen and Kenneth Reinowski Lisa and Douglas Goldman Fund Berger-Haylor Family Fund Cory Robbins The Hutsell Family Fund BioScrip Cindy and Michael Ross Christina Mourkakos Biotechnology Industry Organization Barbara and John Routes PepsiCo Francisco Bonilla, MD Megan and Jason Ryan PerkinElmer Boston Celtics Shamrock Foundation, Inc. Nancy Ryan Smerge Family Foundation Catherine Bourassa Joan Schauer Soleo Health Tara and John Boyle Doris and Thomas Schleigh, Jr. Rebecca and Lawrence Stern The Brook Fund, Inc. Frederick and Judith Schott The Guetz Foundation Brotherhood of Railroad Signalmen Harry Schroeder, MD Michael Smith $5,000-$9,999 Diane and Joel Buckberg Sound Beach Soccer Club Tornado ADMA Biologics, Inc. Rebecca Buckley, MD Southwest Sertoma Bio Products Laboratory Laura and William Carroll Staten Island Kar Klub Kristy Cacucciolo Centurion Automotive & Powersports, Inc. Eilean and Mark Steiner, MD Jerry Focas Carolyn Chicoine Suffolk County Law Enforcement Cigar Club Haemonetics Diane and Philip Coffey Lynne and Rick Szott Louis and Virginia Clemente Foundation, Inc. Community Health Charities Michelle Taliaferro Seth Kaufman Brian Craycraft Wellington Tichenor, MD The Lenore and Howard Klein Nancy and John Cygan Vehicle Accessory Center Foundation, Inc. Diamond Hills Auto Group D. Shawn Wilson Anthony Marro The Dolan Family Foundation Roger Douglas David Young

17 IMMUNE DEFICIENCY FOUNDATION

$500-$999 Independent Charities Margaret Woods D&H Cares Anonymous (3) of America Cynthia and Joseph Zuraw Christine and Christopher Janelle Aamot Jeep Chrysler Dodge of Ontario D’Amico Sharon Abrams Aletha Jeske $250-$499 April Davis Advanced Entertainment Rhonda and John Karas Anonymous (2) Lauren Davis Technologies, Inc. Joshua Kurek Lindsey and Peter Allen Kristin Dicioccio Adventist Bolingbrook Hospital Bob Lampel Altria Group, Inc. Donna and Richard Dieterle Suzanne and James Almas, MD Janet and Charles Larsen AmazonSmile Foundation Kim DiGangi Jonathan Anderson Martha and Jonathan Mann Constance and John Andrea Witlin and Katherine and Daniel Antilla Holly and James McGill Archambault Edward Dippolito Molly and Mark Ballow, MD Irma Dodd McNelia Eric Arthur Cindy Dispirito Amnon Band Craig Mears Andrew Aulwes Timothy Doherty Deanna Barton Gregory and Joyce Miller The Auto XL Lisa and Steve Dowdall Laura Bauer Josette and John Miller Shelli and Jeb Baldwin Traci Duren The Baxter International Sandra Monroe Jan Barkley Matt Ehlers Foundation National Christian Marcellus Barnes Carol and James Ernst Christine and Chuck Belser Foundation, Twin Cities Denise and Scott Barnes Graig Fantuzzi Ramya and Deepak Bhaskaran John Nicholson Tom Barnunsh Cynthia Fiehler Suzanne Gendreau and Ocean View Presbyterian Shawna and Larry Barttelt First Choice Logistics, Inc. Thomas Birge Church Sewing Circle The Benevity Community Tom Fitzgerald Derry Blackwell Linda and William Olson Impact Fund Chris Fitzmaurice Colleen and Roger Brock Plumbers and Steamfitters Brad Bennett Flynn & Weitzke, P.C. Patsy and Michael Broge Local 91 Zina and Randy Berryhill Rashann and Ted Fontenot Rudel Burman Amy Pomponi Lisa and James Betsworth Karley Foreman John Burnell Kristin Preyss Laura and Burns Blackwell Michelle and Neal Fox Brian Conrad Lupe and Ricardo Ramirez Kathleen and Daniel Bosley Polly Francis Gayle Cook Matthew Rankin BP America, Inc. Michael Frankel Kelly Covarrubias William Reed Dee Bragg Donna and Michael Frecker Jennifer Craycraft The David and Eleanore Rukin Bravelets LLC Rita and Carl Friebel, Jr. Nancy Cross Philanthropic Foundation Illene and Sharod Broadhead Kay Gaffud Amy and Sean Cullen Robert Silich, MD, FACS Laurie and Kenneth Brovold Michele and Ben Garren Darren Davis Tim Sacheck Barbara Bush and Richard Gelber Kathleen DiStefano Jennifer and David Satterlee Serge M’sadoques Lucienne Glubinger Deanna and Russell Dodd Claudia Schoenig-Diesing Anthony Caletka Barbara and Peter Goodman Donatic Teri Schrock Calvi Electric Company The Gorman Family Steve Drew Chelsee and Troy Self Gina Carmignani Sonia and Colby Green Travis Fiegle Sherwood Lumber Corporation Lauren Carpenter Nancy Guerland Freeway Insurance Services, Inc. Yvette and Jerry Shorten Eleanor Carroll Leslie Gutuerrez Elayne Fromson Harry Spero Geraldine Cathcart Michelle Hanson Calvin Frost Norine Spero Linda and Jesse Cedarbaum Deborah Harris Ramsay Fuleihan, MD Sheryl and Scott Spradling Aiden Ceja Kenny Hawsey Brian Gaffud STARCON Manuel Chau Arlene and John Helfrich Elizabeth Garabedian Judith and E. Richard David Church Sarah Hoffman Lynn Gilmore Stiehm, MD Jessica Ciralsky Elizabeth and Steve McCrea GlaxoSmithKline Carrie and Jon Stimmel Sean Clarkin Amy and Mark Huftel Caryn and Joe Golden Kris Surratt Betty and Joseph Codispoti IBPN Marketing Research Nancy Green Eve Svare Martha Coleman Bureau, Inc. Robert Grillo The Taylor Foundation Cooper Construction and Illinois Tool Works Foundation Samantha Hahesy Irene and Lawrence Walsh Restoration, Inc. Industrial Powersource Health Net Foundation John Webb Russell Corbin International Footprint Claire Heekin Garrett Wilson Holly and Ken Crombie Association, Chapter 67 Sarah Helgeson Nancy Wilson Donna and Jerome Cronin Jack and Jill of America, Inc. Nicole and John Hill Marilyn and Jerry Culver’s Frozen Custard James Jacobsen Pamela Holt Winkelstein, MD Butterburgers Judelka Japa-Camilo HTW Auto Center Jay Wolfe CustomInk LLC Johnson Trust Company Leah Huizinga Katrina Woodward Christine Cwikla Cade Kelly Susan Hutsell

18 Annual Report 2014

$250-$499 (cont.) Printing Solutions Windham Police Association Deana and William Ashline Donn Kingsley Russell Ramirez Jo Young Association of periOperative Philip Kirk Mary and Ranjit Rath Young Electric Sign Company Registered Nurses Dawn Klouda Kathleen Reilly Bragilyn Ates Diana and Scott Kunz Rev3 Triathlon $100-$249 Jennifer Augustinaitis Melissa Lambert Tara and Jeff Reynolds Anonymous (5) Blake Austin Anthony Laporta John Richards Laura Abbott William Ax Jamie and Scott Lawrence Michael Rigas Roy Aboody Bev and John Axmann George Lee Valerie Riley Beth Abrams Denise Bacon Laura and Charles Librizzi Bonnie and Lou Ritt Natalie and Morton Abramson Anne and Robert Bachman Lincoln Financial Barbara and George Roberts Kathleen Addison David Baczewski Foundation, Inc. Jacqueline Robinson Jorge Aguilar Vimal Badami Donald Linden Mary and Donald Rozenberg Mark Aguilar Aurelie Baetche Fannie and Frank Lippmann Pete Rybacki AJ Landscape Center Andrew Bagg, MD, FAAAAI Kristen and Tammie Lombardo Michael Sancho Eric Alarid Denise Baker Howard Malloy Miguel Sancho Jacob Alderden Betsy and Michael Bald Debbie and Glenn Manning Deri Santos Raymond Allbright Kavita Bali Noelle and Blaine Marder Christina and Patrick Scheper Michelle Aloi Brown Casey Ballard Nicholas Marrangoni Eileen Schwaller Anita Altman Lucy and Herbert Ballien Myra and Michael Marranzino Joan and Greg Schwarz Claire Altman Debbie Banks Frances Massa Adam Semegran Gale and Charles Altman Emily Barajas McCann Torre Lazur Alan Shaw Nancy Altman Linda and Ralph Barajas McLanahan Corporation William Shearer, MD Kathy and Steve Altobelli Lynn Barba Astride and Michael McLanahan Amanda Skoskiewicz Molly and David Altobelli Barbara and Fred Theresa Meade Heather and John Smith Orlando Alvarez Kelly Barbetto Shannon Meijer Kelly Smith Nicholas Ambrosino Raphael Barishansky Agatha Melamed Barbara Resnick and Zoltan Ambrus Michelle Barishaw Donna Marie Mezsaros, PhD Howard Sollins American Paving Marguerite Barr Sandra and Aubrey Miles, Jr. Mary Ann South, MD Contractors, Inc. Robert Barr Jane Mills Kenneth Standley Vera Andderson William Barr Miller Place Union Free Joe Stevens Debra Anderson and Jose Mora Geovani Barraza School District Jennifer and Donald Stokley Janet Anderson Pamela Barrett Evon Mucker-Davis Stuller, Inc. Laura and Dave Anderson Danielle Barth Julie Mulligan Alyson Sugar Lisa Anderson Nicole Barth Connie and Timothy Myjak Kathy Sullivan Sandra and Thomas Anderson Stefanie Barth Michele Naismith T.E.L. Foundation Sarah Anderson Glen Bartlett Gail and Sydney Nelson Cheri Tabor Susan Anderson David Barton Daniel Neufeld Arthur and Phyllis Taub Zachary Ankney Sharon Bates Jennifer Nickelson Pam and Bobby Taub Annarummo & Associates Karen and Lars Bauerle Sharon and Mike Nisengard Carmen Thompson Insurance Diane Baum Northside Towing LLC Tara and John Tisch James Ansay Judy Baumgarten Thomas O’Sullivan United Way of Long Island Victoria Ansay Gail Baumgartner Kimberley Overs United Way of Massachusetts Jan Arabie Karen Baumgartner Amy Paddack Bay and Merrimack Valley Frances Aragao Michelle Baumgartner Paradise Auto & Truck Center UnitedHealth Group Tony Arango Baytown Insurance Agency Patricia Payne Prabhu Velan Andrew Arcuri BCD Consultants Pelham Police Relief Association Kit and Jeffrey Verona Frank Arena Randall Beach Sara and Jeremy Penn Marilyn von KleinSmid- Arenus Ronald Beall Pet Source Randolph Armature Group, Inc. Linda Bean Beth Pfeiffer Marc Waco Catherine and Steven St. Arnold David Becker Pfizer Foundation Matching Amy and Shawn Walsh John Arnold Sara Beinstein Gifts Program Lynn and Daniel Weggel Rachel Arnopolin James Beirne and Nancy Christina Pica Christy Lyras and Richard Paula Arrom Masucci-Beirne Heidi Plavecsky Wiedemer, Jr. Johnny Arthur Benjamin Bell Maureen Polacci Susan Williams Ellyn Ashida, MD Alexander Belser Print B3 Malea Wilson

19 IMMUNE DEFICIENCY FOUNDATION

$100-$249 (cont.) Bruce Bruning Catherine Carroll Virginia Coogler Evan Belser Cindy Brushaber Susan Carroll Sandy and Frank Cook Susan Benjamin Sharon Bryan Thomas Carroll Gloria Cooke Jean Bennett Buchanan Ingersoll Margie Carver Leah and Tom Cooper Brian Benton & Rooney, PC Michael Cassidy Cindy Cooper Theresa Bergan Jerri and Jack Buchner Cary Castle Claudette Corn Stacey Berk Mary Anne and David Buerge Charles Cathcart Corporate Executive Board Lee Berke Stephen Buford Susan Cathcart Priscilla Costello Thomas Berman Nancy and Dwight Bullard Beatrice Catullo Thomas Cote Dave Bernahl Linda Bulthuis Carla Cazares Matt Cote Anne and Eric Bernazzani Stephanie Bundage Juvane Citizens Bank CB Kathleen Coughlin Julie Beron Cheryl Bunting Nicholas Cedrone Keith Courtright Dorothy and Tristram Bethea Ann and Dan Burdzinski Robert Ceja Laurie and Jeff Courtright Amy and Daniel Bettencourt Denise and Charlie Burke Art Cepeda Sean Coyle Kathleen Bettenhausen Mary Ellen Burke Rich Cepeda Michael Craig Ken and Rita Beukema Tim Burke Winifred and Arnold Chait Russell Craig R. Harwood Beville Trisha Burkhart Carole Chamberlin Cramer Rosenthal McGlynn, LLC Beau Beyerle Christian Burns Tommy Chandler and Jill Crandall Zach Bieda Dawn and Robert Burns Janice Chandler, Ph.D Ellen Craycraft-Daugherty Kathleen Friday and James Burns Charles Chang Christina Criona Alexander Biele Misty Burns Kuo Chang, MD, FAAAAI Danielle Criona Bigane Paving Co J. Paul Burson Karen Chapin Rae Marie and John Crisel Joey and Greg Billups Jill Burson Jorja Chaplin Bradley Crisel Allen Bingen Brian Burton Maria Checton Mary Jo Cristino Patricia and Thomas Bixler Lane Buschhorn Susan and Victor Chen Rebecca Cronin Tricha Blackman Stefani and Ralph Bush Chana Chenfeld Marlyn and Henry Crook Elise Blaese William Bush Cliff Chenfeld Karen Cullen Blackrock Matching Alan Bushbaum Karen Chester Nancy Cummings, MD, FAAAAI Gift Program Jane and William Button Kristin Chiavarini Kevin Curry Brenna Blakey Geri Butz John Chioccariello David and Sondra Curth Jerry Blutman Larry Buzo Joe Christiana Kathy Cushing BNY Mellon Nancy Byrne Christmas Commandos Jared Cutler Bob Bode C and C Golf Carts Christina and Gordon D-A Specialty Co, Inc. Joanne and Steven Boender April Cabral Churchward Rishi Daing Donna Boersma Kerry and Vito Cacucciolo Cory Clair Joe Daleo Judith Shor Bogdan Heidi and Alex Cadavieco Kathleen Clark Anne and Jim Dalin Joanne Bonner Ryan Calkins Robert Clarke Matthew Dalin Amy Boonstra Shawna Callaghan The Clarke Family Richard Dalin Kathy and Dave Boss April Callahan Bob Claussen Ann Dalzell Meredith Bouchey Calumet Schools District #132 Mary Beth Clayton Norene Daniels Gerene Bovermann Mary Ann Cameron Ebony Clemon Nirmal Daniere Gordon Boyd Cynthia Campbell Erik Coats Anne Marie Darling Tiffany Bradshaw Ernie Canadeo Ellen and Joseph Codella, Jr. Donna Davidson Winnie and Craig Bratlien Mary Anne and Paul Cangemi Jennifer Cohen Marcy and William Davidson Cheryl Brennan Pierangela Caputo Rita and David Cohen Aled Davies Barbara Bridges Susan and Fernando Cardoza Suzanne Cohen Susan Davis Audrey Carrington-Bringe Kimberly Cargile Katrina Colbert Marla and William Davis and Clarence Bringe Patty Carmody LaTatia Colbert-Reed Kathleen and Gerry Davis Christopher Broach Amanda and Craig Carpenter David Colburn Carol Davis Yvonne Brock Catherine and Gary Ella Cole Amanda Davis Heather Brooks Carpenter, MD, FAAAAI Thomas Coleman, MD Sharon Dawson Brooks Properties Ginger Carpenter College of Criminal Justice Deanna Dayhoff Cheryl Brown Jan Carr Dawn and Scott Collum Vic De Martino Jane Detgen Brown Stephen Carrillo Barb and Jim Colony Michael DeAddio Kathleen Brown Beverly and John Carroll Conloera General Account Joanne Decosta Rick Brown Charlotte Carroll Thomas Conti Jon DeFouw

20 Annual Report 2014

$100-$249 (cont.) Ryan Duggan Barry Fitzgerald T.R. Gerard Barbara and Charles Degenhardt The Dulac Family Kathleen Fitzpatrick GFWC Madison Heights Dana Del Pizzo Kathleen and Russell Dumas Jackie and Carey Fleener Intermediate Women’s Club Fred Del Pizzo Walter Duralek, Jr. Ilene Fleischmann Sacha Ghai Jacqueline Del Pizzo Julie Durrant Florida Cypress & Fence Co. Lori and Giuseppe Giampaolo Carol Ann Demaret Francine Dyke Harold Floyd Anthony Giannaci Richard Demme Linda Dykstra James Foard Wendy and Dave Giardina Magdalena Denham Susan and David Dziemian Jeanne Foley Gilford Rotary Club Frank DePace Liliana Eagan Emilee and Ryan Fontenot Marla and David Gilmore Dena and Charles Deretchin Donna Eaker Jessica Fontenot Battaglia Gino Nidhi Desai and Amit Kalra Jill Eaton Cydney and Lewis Ford Carol and Andrew Ginsberg Gail Deutsch Maryam Edalat Suzie and Todd Ford Susan Giorgi-Branch and Frances Jean and Jeremy Edelman Cheryl Forlines Michael Branch Clifford Dewent Paul Edwards Herb Forsberg Paul Girolamo John Dewey Frank Eidelman Robert Foster Ken Gish Gaeton Di Napoli Chad Eisele David Fouts J.B. and R. Jean Glass Bernadette Diaz Sharon and John Eisele Jill Fraggos Anita Gleistein Dickinson Janitorial Paula Eisenhart Greg Balestrero and Lorraine Gliatta Supplies, Inc. Edith and Samuel Eisenstadt Frances Higgins Mary and Dann Glick Karen Diehl Christine Elliott Frank J. Lazzaro Revocable Charles Gobron Lynn Diehl Mark Ellis Living Trust Cynthia and Albert Godfrey, Jr. Robert Diehl Connie Engelhardt M. Franklin Brian Gold Nancy and Noel DiGerolamo Dorothy and Eric Engelsman Mary and Jeffrey Fratantuono Becky Goldberg Laura Dillenberger Renata Engler, MD, FAAAAI June Frechette Rachel Goldrich Shawn Diniz EPM, Inc. Ken Fredrickson Jonathan Goldsmith Amy Diobilda Victoria Epperly Melissa and Adam Freestone Burt Goldstein Gabrielle DiPrima Jennifer Epstein Bill Freitas Mark Goldstein Jessica Disney John Erffmeyer, MD, FAAAI Sandra and Don Freund Danette Gonzalez James Dispirito Susan and Grant Erickson Julie Friederich Nate Good Kelly DiSpirito Colleen Ernst Tracee Friederich-Settle Karen Goodman Thomas DiStaso Martha and Juan Escareno James Friedlander Lane Gordon Judith and Donald Dobernic Rosemary Esham Anne Frost Gore Propane LLC Emily Dobry Amy Eslinger Glen Fujimoto Susie Gorman Margaret Dodds The Ettenberg Foundation George Fujioka Kathy Gorman Richard Dolinko Anne Reddy and Shawn Everts Bill and Denise Fung Lewis Gould Patty and Brian D’Onofrio Keith Fader Harold Funk Karen Grajwer Susan Jane Donohue Susan and Keith Fader Marian Furst, PhD Taylor Grand Pre Mary Donohue Fairview Foundation Annette and James Fusco Gale Grasse-Murray Janice Donovan and Gayle Fantuzzi The Galbreath Group and Brian Murray Garrett Friedman Leslie and Lynette Farmer George and Heather Galindo Linda Green, MD Brooke Dooley Sandra and Meredith Farrell Nicole Gallagher Rachel Green Mitzee Dorman Jansie Farris Philip Gallagher, MD, FAAAAI Michaela Greenan Anish Doshi Megan Fastabend Carol Gallerizzo Fred Greenspan Ellen Dougan Frances Favrot Patricia and Edward Ganley Roxanne Greenstein Carrie Dovzak Heidi and Kevin Fay Jennifer Gardner Robin Greenwald David Dowd Debbie Fazzolare Deberah Garlich Genevieve and Michael Griffin Cathy and Timothy Downs George Fecske Beth Garofalo Ruth Ann Griffin Ann and Richard Downs Patricia and Donald Feiner Stephen Garofalo Jennifer Griffith Debra Doyle Alicia Feingold Teca and Christopher Garville Virginia and William Griffith Michael Drai Carla and Leonard Feinkind Elaine Germont-Gavette Kira and Bryan Grischow Eric Drap Cathy Feldman and Richard Gavette Barbara Grisham Frederick and Brian Drewes Richard Ferrante Sharon and Michael Gelfano Kelly and Brian Groff Ken Dryfhout Sonia Vohnout and Steve Fietek Katherine Fakas Gelles Robert Grunnah Rebecca Dryfhout Boyd Finch and Warren Gelles Laura Grunwald John Duffy Steven Finch Suzanne Genovese Nikka Gryte Cathy and Glen Duggan Natalie and Bernard Fish Beverly George Jean Guenther

21 IMMUNE DEFICIENCY FOUNDATION

$100-$249 (cont.) Erica Heibel Bob Humer Michelle Kaysen Laura Guenther Heifer Hill, Inc. Carla Hunter Monica and Joseph Kayser Nancy and Thomas Guetz Elizabeth Heimburger Michael Huntzinger Tim and Chris Kayser Michael Guggino Karel Keiter and Stephen Held Claudia Huot and Joseph Taylor Linda Keegan Casey Guidry Heather Hellem Gerard Huot Elizabeth Keels Richard Guillot, MD, FAAAAI K. Heller Jan and Charles Huot Nancy Kehoe Jim Guinn Cynthia and Mounir Helou Mary and Alan Hurley Kevin Kelley Mardelle Gundlach Marysue Henifin Eugene Hurwitz, MD FAAAI Margaret Kelly Shuchi Gupta Amir Henin Marcia and Robert Husband Rebecca Kemp Lawrence Guros Marian and Maynard Henjum Richard Huss Terri and Mike Kennedy Bob Gurwin Denise and Marty Henley Margaret Hvatum Kennell Realty, Inc. Tracy and David Gutierrez Dorothy Herbst Marilyn Hyde Kylea Kennemer H.C. Wainwright & Co., LLC Margaret Hermann Kathi Haynes-Hylander and Debra and Robert Kenney Billie Habari Hershey Trust Company Robert Hylander, MD Faith and William Kenney Bonny Hadiaris Rhea Hespen Michele Ingram Steve Kenul Jane and Bill Hadley Robert Hick Cheryl and Vince Ippolito Thomas Kerrick Howard Hafetz Brandi Higgins Tiina Itameri Carol and Ray Kerstetter Kathy and Scott Hafetz Carol Higgins Itron, Inc. Chris Kilmer Amy Hahesy Mike Higgins Ruth Iwano Emmeline Kim Faith Hahesy Diane Hill Rafael Izarra Maria Kim Cheryl Hahn Nancy and Raymond Hill Bruce Jacobsen Samuel Kimball George Hajishengallis Karen Hindin Kenneth Jacobsen Kirk Kinberg Yosh Hakutani Peggy Hindsman Sheila Jamroz-Shilling Karen and Richard Kinder Lisa Hale Paula Hines Laurel and Chris Jenner Scott King Patrick Haley Aimee Hirschhorm Lisa Jirsa Paula and Richard King Alan Hall Julie Hislope Bryan Jirsa Nancy Kingston Theresa and Terry Halper Wendy Hoebing Karen and David Jirsa Janice and Charles Kirkpatrick Margaret and Steven Hamilton Debbie Hoen Emmanuel Job Pete Kisich Lindsay Hamstra Patti Hoerig Devin Johnsen Michael Kleeman Elizabeth Hand Edward Hoey Amy Johnson William Klein Hank’s Refrigeration, Inc. Barbara and John Hoffman Cori Johnson Jacob Klipp Lynne Hansen Krista Hoffman J.D. Maclellan Concrete Co. Janet and Jim Klipp Bill Hanson Marie Hoffman John Johnson Deborah and Dan Kloker Celine Hanson Gerald Hoffstetter Malcolm Johnson Elaine Knape Sylvia and Michael Haracz Heather Hogan Tim Johnson Mary Ellen and Charlie Knight Kyle Harden Chris Holland Ann Johnston Jennifer Knight Virginia Hardy Joel Hollander Howard Johnston Colleen and Kevin Knoop Eileen Harney Gail and Craig Hollenback Diane Jordan-Wagner Martha and Jonathan Knowles Anita Harp Mary Ann Hollis Dan Joss Kelly Knox Jeannie Harris Holy Family Church Lisa Joyce Bonnie and Timothy Koerner Pam Harris The Home Depot Foundation Sharon and Andras Juhasz Koerner Machine and Rosanne Harris Diane Sewing and Bruce Kaechele Tool Maintenance Brooke Harrow Greg Honiotes Josh Kaechele Lizzle Kohn Lekisha Hartmann Steven Honma Kyle Kaechele Paula Kohn Donna Hassett Susan Horn Gary Kahn Ruth Lotsof and Daniel Komarek Helena Haws Emily Hovermale Kenneth Kalchbrenner Angela Kontas Julie Haws Corby Howard Kirsten Kallies Renee Koog Patricia and Joseph Hayden Linda and David Paul Howell Denise Kalman LeAnn Kooyenga Andrew Haynes Sharon and Grant Hrabovsky Kaneland Allergy and Lisa Koppelman Bob Heath Jennifer Hubbard Asthma Center SC Michael Kornick Kristi Heather Kate Huey Theresa Karle Nancy Kosakowski Helen Heck Brian Hughes Tara Kass Nancy and Bob Kossowsky Jen and John Heemstra Bridget Hugues Connie Martin and Alan Koterba Laurie Heemstra Christine Huhn Andrea Kassaw Elliott Kozulak Susan Heemstra Shelley Hull Monica Kattner Judy Kozulak Nancy and Brian Heffernan Dale Hulst Valerie Kaye Stacey Kraft

22 Annual Report 2014

$100-$249 (cont.) Matt Liss Denise Masson Bryan Meloy Jay Krames Mary Litwiller Master Mechanic, Auto Merck Foundation Michelle Kreitz Jack Lodge Wizard, American Minds Kelly Merryman Lara Kretschmer Alana Stubbs and Roy Allison Masters Patricia and Robert Mette Judy and William Krieger Loewenstein Laurie Masterson Katherine Metz Paul Krippendorf Deborah and Dennis Lofald Siny Mathew Laura and David Metzger Mary Kruciak Long Meadow Elementary School Mathieu Newton Sotheby’s Virginia and Frank Meuers Michael Kunitzky Chris Loomis International Realty Suzanne and Charles Meyer Lee Jay Kuo Tera Lorimer Jonathan Matz Larry Michael Terry Kuperschmid Alexander Loscialpo, MD Katy Maulsby Michael and Susan Kelly Kupper Lisa Loughlin Suzanne Maxey Dell Foundation Lara Kvale Andria Loutsch Alicia and Kevin Mayher Tyneisha Middleton Michelle and Scott Labrecque Robert Lovretich Amanda and Randy Mazey Cindy Miehlke Ann Lafoca Edward Ludwig Robert Mazza Debra Miehlke Maggie and Chuck Lage George Lufkin Cassie McBee Patricia and Carl Miehlke Shirley Bigley LaMotte and Richard Lundell Sarah and Sean McCabe Susan Miehlke Lawrence LaMotte Mike Lynch Victoria and Jim McCallum William Milani Stephen Lancaster Catherine and Ted Macdonald Sean McCarthy Kathleen Milanich K. Landes Dana Mackin Nancy McCarthy Carol Miletti Landmark Aviation Barbara and Kenneth Erin Mccarthy Cheryl Deep Miller Melissa Laneve Hall Magee Jolin McCleskey and L.A. Miller Jeffrey Langford, MD Catherine Maher Kathleen McComsey Gerry and John Miller Maureen Langguth Alyssa Maher Cody McCorkle Jen Miller Dianne Lannes Leonard Mahler Judy McCormick David Millington Yvonne Lantz Jean-Yves Maillat Robert McCune Genevieve Mills Largo Concrete, Inc. Claudia Mairone Lauren McDonald Patricia and Brian Miscall Sarah Larson Vernon Malaer Lorna and Steve McDonald Barbara and Phillip Mitchell Todd Larson Mary Malgoire Melinda McDonald Mary Mithen Cheryl Lartigue Bridgette and Ron Mallick Peggy McDonald Kenneth and Val Moczygemba Jain and Carl Lauter, Eleanor and William Mallory Patricia and Paul McDonald David Mogote MD, FAAAAI Alice and James Malloy Rob McDonald Niloufar Molavi Lavalley - Middleton Eric Malnar Susan Mcdonald Molina Building Supply Kate and Keith Malone Suzanne McDonald Kathleen and James Mora Marianne Lavery Gerry Malone Suzanne McDonough Susan Moranski Paul Lawson John Malone Bobette McGilberry Debra Morelock Bonnie Lawyer Kimberly Manche Bill McGrath Sandi Moreno Patricia Leaf Krista Bock-Mangan and Sherri McGue Ann Marie Moreno Artemio Jongco, MD and James Mangan Cindy McHugh Jill Moret Christopher League Michelle Manke Patrica McKeirnan Alexis Morgan Gary Lee Michelle and Steven Mannai Anna McLamb Blake Morrison Jennifer Leesfield Ellen and Donald Mannella D. McLanahan Reid Morrison Michele Leggio Courtney March Mary Ellen McMahon Felicia Morton and Kathy Lejeck Jeanne Markey Annie McNally Miguel Sancho LEMIT Daphne Markham Boggy McNally Xan Moseley Eileen Lepore Carol and Chloe Marks Laura and Robert McNeice Robert Mosher Jill Lesko Thomas Marlowe Donald McNeil Mary and D.T. Motzko Sarah Lesser Staci Maronski Nancy and Michael McNulty Simone Moultak Merredith and Ken Levin Jane Martin Laura McPhail Kirun Mulji Roberta and Joel Levine Matt and Jen Martin Pamela and Anthony McQuillen Rosemary Mullany Lori and Neil Levine Timothy Martin Maureen McTigue Thomas Munetz Elizabeth and Robert Levine Denise Martinez-Ramundo Ai Lan and Roger Kobayashi, MD Jose Muniz, MD, FAAAAI Laura Levy Susan Maselli and David Duclon Dan Meade Jan and Alan Murbach Nomi Levy-Carrick Debra Masey Barbara and John Meade Brenda Murphy John and Ann Marie Licata Molly Mason and Thomas Fink Melody and Mark Medellin Elisabeth Murray Arlene Licata MassMutual Financial Group Moon Mehta Lisa Murray Khammy Lim Joyce McCarthy and Rajan Mehta, MD, FAAAAI Eddy Myers

23 IMMUNE DEFICIENCY FOUNDATION

$100-$249 (cont.) Nancy and William Bert Polacci Tiffany Richardson Kelly Myers Otto, MD, FAAAI Evelyn Polcari G. Wendell Richmond Marilyn Nagle Vince Ouellette Chris Poli Rebecca Riebe Helane Naiman Over the Rainbow Karlene Poll Wendy Rieder John Najarian Learning Center Patrick Pollard Kristen Rietema Sarah Napier Michael Owens Kim and Mark Polto Kyle Riling Carolina Rubiano and Bruce Pace Susan Pomerantz Carla Rincones Mauricio Naranjo Debra and Charles Pace Silvester Pomponi Ruth and David Rinehart Julian Naranjo Catherine Pagano Grace Pomponi Adriana and Cesar Rios Hala Nasser Gail and Robert Paling Jacqueline Pongracic Claire Risoli Nationwide Mutual Susanne Palmacci Bonnie Poole Mary Lyons and Briane Ritchie Insurance Co. Thomas Palmer Betti Porat Tanya Rivera Jayne Naughton Anthony Panos Jason Porte RMK Consulting, Inc. Margaret Naughton Joyce Parker Elizabeth Portnoy Mitzi Robbins Patricia Naughton Sonya Parker Michael Portnoy Marcy Roberts William Nee Sandra and Dan Partrich Brian Power Carolyn Jo and Tom Roberts Nicolet Neidlinger Ashley Pasker Brenton Powers Dean Robinson Elaine Nelson, MD Shital and Vishal Patel Bree Powers Linda Bell Robinson Netria Corporation Shital Patel Gerald Powers Susan Robinson Sheryl and James Neuman Manas Pattanaik Jeffrey Prager Susan Rocca Lawrence Neumann Lorel Patterson Jeanette Price Nancy Roche Jeremy Neuner Amy Patterson Prism Laboratories, Inc. Pam and Mark Roden Luzetta and Delano Newkirk Jennifer Payne Gordon Przybyla Gloria Rodriguez Aaron Newman Geoffrey Pazzanese Phyllis Pubentz Sue and Walt Roehsner Patricia Newsham Amelia Peacock D. Ann Ford and Christina Purdy Maura Rogers and Joan Allen Sarah Pearl Rosemary Purrazzella Diana Rojas Tracey Nicastro Buddy and Peggy Joseph Purtell Joy and Franz Rolli Christy Nickerson C.B. Pekala Ellen Rabb Richard Romei Cal and Char Nishinaka Josh Pelz Robert Radin, MD, FAAAAI Rosemarie Romeo Katherine Nix Allison and David Penn Natalia Radula Shelley and Jim Romeo Christine Nocera Patricia and Paul Penn Angela Rafferty Tina Romeo Michael Noricks Karen and Dominic Penna Catherine Mary Rafferty Barbara and Anthony Rooklin Joan and Donald Norkus Cathy Peralto Vinod Raghavan Sandra Rose Tom Nugent Thomas Peralto Dennis Rajtora, MD Natalie and David Rose NYHealing Touch Sara Perez Noah Rakoski Dana Rosenblatt Shirley and Thomas O’Connor April Perry Melanie Ramirez Steve Rosner Kelly Oder Pamela and Kevin Perry Towma and Jason Rastad Brandon Ross, MD Shelli and Michael O’Donnell Joseph Person Alec Rastad Daniel Ross Siobhan Odriscoll Sue and Steve Peters Allissa Rastad Hillary Ross Karyn Odway Judith and Gary Peterson Michael Rastad Danielle Rossen OEM Press Susan and Richard Petrelli Paul Rastad Leslie and David Rotem Liz OIiveri Suzanne Petren-Moritz Cynthia Reardon Justin Roth Joan Olcott Johnnie Phares Chris Reck Jo Ann Roynestad Elizabeth O’Leary Dave Phelps Jack Recla Arye Rubinstein, MD, FAAAAI Tami and Joe O’Leary Olivia Phelps Jane Rector Runzheimer International LTD Susan and Jack O’Leary Marrey Picciotti Linda Rector Glenn Ruppel Laura Oliver Thomas and R. Pierce Howard Reed Linda and Daniel Ryan Rosemarie Oliver Donald Pierini Rebecca Reed Maidie Ryan Colleen Olsen Jayne Pigott David Reher Victoria Sahadevan Fossland Anne Olson Debbie and Benjamin Pincus William Reinking Saint-Gobain Corporation Deborah and Peter O’Malley Kate Pitman Norma and Jack Reynolds Foundation Timothy O’Neill Erin Pleva Sandra and Marlon Rhodes Salem Police Benevolent Ernest Ontano PMSCO Healthcare Consulting Lynne and Richard Rice Association Oracle Lauren Poche Kathleen Richards Rosemary Salerno Sarah Orleman Erin Poff Paul Richards J.J. Saltsman Tonette Ortal Julia and Donald Polacci, Sr. Frances Richardson Albert Sanchez

24 Annual Report 2014

$100-$249 (cont.) Mary Jane Shinozuka Star Interpreting, Inc. Patty Tilton Aquilino Sanchez Mark Shipham Barbara Stark-Baxter, MD Matthew Tomb Barak Sandra Janet and Thomas Shoemaker Jeannie Steidel Becky and Joseph Tometich Kurt Sands Beth Shorr Elyse Anne and Craig Steinhart Kathy and Mark Tonucci Miguel Santiago, Esq. Jon Shultz Beau Davin Stengel Winnie Toogood Amanda Santoro Beverly Shwarzer Ernest Stephens Unal Torenli Robert Santucci Rita and Timothy Sierra Kenneth Stephenson Total Home Services David Sass Marian Silber Ellen Sternberg Steve Townsend Roger Savage William Silva Charles Stevens Susan and James Tracy, DO Melissa and Christopher Carol Silven Molly Stevens Hailey Trapani Scalchunes Maureen Silven Vicki Stevens John Triester Klaus Schaefer Regina Silver Lori and Michael Stevenson Cheryl Troutman Barbara Schaeffer Suzanne Silverman Brian Stewart TTE Laboratories, Inc. Denise Schalliol Candace Simas Deanna Stewart Patricia Tuck Sari Schechter Terrence Simmons Diane, Cynthia, and Barbara Turino Aubrey Scher Sharon Simon William Stewart Yuki Turk Margaret Schiffer Carmela Simonetti Jeanne Stiles Vanessa Tuttle Ellen and Ilya Schiller Linda Simonton Mitchell Stinebaugh Masonry, LLC Portia Udeh Deborah Schlein Martha Pattillo Siv Susan Stiteler Lisa Unger Maryalice Schleuderer and Sichan Siv Jessica Stock United Machine Nancy Schmit Hal Sizer Molly Storz United Way of Rhode Island Linda Schneider Philip Sklar Kristen Strack Universal Floor & Wall Janet and Donald Schrock, Sr. Skotara LP Kim Strange Systems, Inc. Eileen and Bob Schwartz Tami and Paul Slaats Diane and Karl Stumpf Linda Uphoff Stuart Schwartz Virginia and Donald Smart Patricia and Haroldo Suarez Christy Vachon Susan Schwarz Deborah Smith Daniel Suez, MD, FAAAAI Jason and Melissa Jim Schwebel Kenneth Smith Robert Sugerman, MD Van Hofwegen Kathleen and Malcolm Laurie Smith, MD, FAAAAI David Sullivan Michael Van Nort Schweiker Margaret and Robert Smith Kathryn Sullivan Stephanie VanDerKamp Scopelitis, Garvin, Light, Matthew Smith Kim Sullivan Cathy and Rick VanDyken Hanson and Feary, P.C. Nolan Smith Rick Sullivan Carrie VanPaepeghem Mary Scott Robin Smith Suzanne’s Pet Care Steve VanPaepeghem Debra Sculley Sandra and Steven Smith Patsy and Jan Christopher Svare Joe Varney Colin Seal Joan Smola Debbie Swanson Zachary Vassar Mindy and Quentin Seals Mary Smoller Denise Swasty Alex Velasco Cara, Ricky, Sean, and Cindy Snyder Gregory Sweeney, DDS Margaret and John Adam Kearney Matt Snyder Rick Sykora Venglarcik, MD Larry Searle Michelle Sobel Matthew Szott Donna Venziano Deborah Sebree Socius Ashley Tabor Bev Victory Elizabeth Secord, MD, FAAAAI Karen and George Solliday John Tabor Tracy Virgil SecureTech Security, Inc. Lisa Sorensen Beth and Joe Tafuri Virginia Mangan Foundation Tracy and Dale Selbert Jan and William Southerton Maryann Tallman Joe and Joyce Viscusi Tanya Selvaratnam Myra Souza Anna and Frank Tanner Terriann and Jeff Vogel Dolores Senanis Karen Speed Martha Tarpay, MD Natalie Vogel Kathy Serfin Scott Spellman Marc Taub Sandra Vogel Linda and Steve Seto Rebecca Spencer Gail Taxy John Voss James Severin Logan Spere Nancy Taylor John Voytek Amanda Shanahan Sheri Spero Rosemary Taylor Shirley Vulpe Donna and Joe Shands Linda and Adam Spero Selma Taylor Sheryl Wagenheim Sarene Shanus Joan Casella Spinosa Dorothy and Larry Templeton Deborah Wagner Priya Sharma and Daniel Spinosa Dawn Terpstra Kay Walderzak Jennifer Shea Susie Sprague John Paul Teutonico Anne Walker Dawn Shelko Paul St. Laurent Lane Tewes Sylvia Walker Janet Tobin and Marion and Gary Stagner Thomas Anthony Dennis Walsh Suzanne Shelvin Carola Stalcup Furniture Service Theresa and Larry Walsh Gayle Shepardson Justine Stamper Carol Thompson Jolan Walter Debbie Shepherd May Stamper Patricia Thornber Christopher Walters

25 IMMUNE DEFICIENCY FOUNDATION

$100-$249 (cont.) Diane Wright Steve Appleton A. Belavitch Lynn and William Walton Felix Wu Nadia Arain Bajwa Kathy Bell Steve Warnalis Ruth Wu Lisa Archambault Jenna Bellenoit Christine Warner Susan Yoshimatsu- Lucinda Ardizzone Beverlee Bellinghieri Barbara Warren Davies and B Davies Swathi Arekapudi Danielle Bender Warrior Boats, Inc. John Young Jim Arie Christine Benevides Randi Wasserman Nicole Zaccaria Tom Armbrust Maria Benevides Tina and Richard Lois Zebus Patricia Armstrong Yvonne and Gary Benjamin Wasserman, MD Patricia Zeisloft Cara Arnold Amanda Bennett Watertown Savings Bank Rich Zielinski Donna and Doug Arnwine Ellen Benson Pamela Watkins Joe Zito Arnold Aronson Janet and Luther Benson Kylee Watson Barbara Zucker Richard Astorino Shawna Berggren Alice Webb John Zucker Theresa and Dwight Atchley Jennifer Bernazzani Mary Weber Eyal Attar Elisa and Steven Bernstein Mel Webster and $50-$99 Mike Augustin Phillip Berrry Kathleen Sullivan Anonymous (4) Michael Austin Angela Berryhill Madelyn Wechsler Fonda Abbey Lauren Ayr Beverly Berryhill Megan and Brian Wechsler Kathryn Ables Brandi Babin Lisa and Todd Berryman Katja Weinacht Brian Abraham Mary and Michael Badalamente Cecilia Bertone Jack Weinbaum Lorenza Abrams Donna and Daniel Bagby Justin Berutich Virginia and Jonathan Weiner Rachel Abzug Baird Foundation, Inc. Heather Bester Rabbi David Weis Giovanna Acquilano Amanda Baker-Burke Robin Bettenhausen Weise Fitness, Inc. Dana Adelmann Nancy Baker Nathalie Bickley Laurie Weisman Fran Adler Rebecca Baldock Joan and Michael Bier Naomi Welborn Barbara Adriance Velma Balentine Jack Birtwell Alicia and Joseph Wengert Stephanie Afman Linda Balfour Margaret Black Savage Bev and George Westjohn Gary Agahigian Kristy Lee Ballantine and Glenn Savage Dara Wexler Helen Ahern Anthony Barcellos Ellen Blackburn Shellie Whalen Thomas Ahern Amy Barker John Blackwell Kiersten and Christopher Luis Alcazar Melissa Barker Anna Blair Whitaker Susie Aldrich Laura Barlett Brad Blickstein Diane Whitcomb Bilen Alemayehu Ashlyn and Kurt Barnard Rhonda and Murray Blum Mary and Nicholas White Jean and Steven Algren Sherry Barnard Joshua Blumert Mary Lou and Timothy Wild Grace Allen Adrienne Barnes Ashton Blust Jean Wilde Judith Allen Christen Barnes Nicholas Boccanfuso Nancy and Neil Wilhelm Eileen Allenstein Susan Barnes Jen Boender Daniel Willett Angie Allie Lacey Barnett Barbara and Robert Bogg Darlyene Williams Alphera Melissa Barnhouse Cyndy Bohn Anita Williams Jessica and Frank Altman Lori Barnicke Joseph Bolduc Mary Jane and Scott Williams Anashlee Alvarado Chris and Colleen Barr Brad and Elena Bolin Sonya and Danny Williams Tatiana Alvarez Luke Barr Robin Bondelid Lois Willis Kathy Amidon Tracy Barr and Justin Bird Susan Bonds Kellyn and Logan Wilson Andrea Amiel Betsy Barrett Michele and William Borghard Paris Wilson David Anderson Michael Barrett Samuel Botsford Hugh Windom, MD, FAAAI Dean Anderson Jack Basta Emilee and Dylan Bott Brittany Wingstedt-Ludwig Edward Anderson Bradley Bates Lisa Botticelli Andrew Winter Greg Anderson Mary Jean and Robert Bazzetta Deborah Bouchard Sherrie Witcher Julie Anderson Kate Beardslee Sarah Bouman Virginia Witt Tanya and Jay Anderson Rick Beasley Adele Bova Katchen Wittner Ann Andonian Caitlin Beauchamp Trudy Bowman Cheryl Wolfley Alex Andrade Matthew Beaudoin Jodi Box Eugene Wollaston Virginia Andrews Barbara and Henry Bechard Box Hill Pediatrics Sara Woodbury Karin Anell Mallory Beck Eric Boyle Tara Woodbury Susan Angelilli Mike Becker Mary Kathleen and David Boyle Jennifer Woodman Jamie Annitto Michelle Beckman Dawn Brabec Cindy Workman Jay Apfelbaum Pat Beckman Cynthia Brackett-Vincent David Wright, MD, FAAAAI Gillian Appleton Kathi and William Beiswenger Jerry Bradley

26 Annual Report 2014

$50-$99 (cont.) Kathleen Cangemi Eileen Collins Melanie Dawe Meredith Bradley Capital Area United Way Maureen Collins Rhonda and Chris Day Susan Braithwaite-Gilbert John Capobianco Dana Connell Lorna Day Julia Brankovic Karen Capozzi Katherine Connell Brett de Bary Kathleen Braswell Darlene and Richard Caraway Patrice Connolly Pamela de Vera Anita Breeze Tommy Carielli Marilyn and Robert Connor Dana De Vivo Amanda Brenner Jamie Carmody Dianne Cons Jillian Deaville Jim Brew Donna and Michael Carr Peter Coote Susan DeBruhl Colleen Bridge Catherine Carroll Donna Corcoran Cathy DeCaire Nancy and Tom Brigham Paula and Jimmy Carruth Steve Cornwell Geraldine Decker Richard and Mary Brockmeyer Mary Carson Costume America Kimberely DeFrain Sandra Brodnicki Jason Carter Karen Cotter Marybeth DeGroot Bruce Bronster Misti Carter Bree Covington John Del Pizzo Michelle Brooks Grey Cathcart Franes Covington Kathleen DeMari Norma Brooks Heather Cathcart Cowboy Comb Leslie and Theodore Demos Diane Brown Lucinda and Alan Cathcart Rachael Coyle Tracy Dengler Kimberly Brown Sadie Cathcart Wes Craft Deborah Dennison William Brown Mary Catt Glen Crawford Phyllis Dent Maryetta Broyles Debra Catts Lisa and Michael Crawford Michael DePrisco Garrett Bruinius Tara Caulder Nora Crawford Matthew Deriso Patricia and Grant Appell Chad Caussey Heather and Todd Creasy Derry Presbyterian David Brushaber Carol Cavanaugh Linda Cresap Scott Desgrosseilliers Kelli Bryan Central Dodge Molly Cresap Marian and Douglas Deslattes Vicki Buck Elizabeth Chakkappan Francie Crichton Susan Desmet Buckeye Allergy Maureen Chambers Beverly Crichton-Frater Nanci and J. Deverin Linh Bui Barbara and W. Christina and Dimitri Criona Theresa Dextraze Linda Buikema Eugene Chandler Stephanie Criona Diane Diamond Elaine Bukowski Jana Chaney Michael Cronin Jacqueline Dias Wm. Bullion Ann Chase Nathela Crooks Martie Dick Michael Burkenbine Renee Chase Cindy Crosbie Fern Dickey Angela Burns Carrie Chee Karen Cross Meg Dicks Augustus Burns Lisa Chesnell Katharine and William Cross Nancy and Ray Didier Dawn Burns Ryan Chew Rosemary and Jack Croudy Meggin Diederich Elaine Burns Matthew Childress Crown Entertainment Brayden Diehl Jean and Merle Burns, Jr. Kimberly Chrencik T. Ritchie Crump Kory and Brandon Dieter Kevin Burns Judith Chuten Jazmin Cruz Ernie Diez Margaret Burns Nicole Ciavatto Marisol Cruz Angelo DiFeo Scott Businsky Christina Ciccone Joan Csaposs Digital Strategy Yoga LLC. Peter Butch Maureen and Michael Cipriani Lisa and Andrew Csencsits Geoffrey DiMeglio Matthew Butryman Elena Ciprietti Mary Cueva Carolyn DiMuzio BW Service Company Adrienne Cirone James Cullinan Mary and Joseph DiPrima Susan Byer Eduardo Cisneros Castro Kris Cuneo Alyssa Dispirito Andrea and Timothy Byrne City Wide Maintenance Kathy Czeck Pauline and Emilio Dispirito Mary and William Byrne of Cincinnati The Family of Brian DaCosta Jackie and Peter DiSpirito Jarrett Byrnes Claim Relief, Inc. Tom Dahl Amulya Dixit Tom and Cathy Byrnes Steven Clair Andrew Dalson Darlene and David Doak Anthony Calcagni Erica and Benjamin Clear George Daly Gwyneth Dobson Eileen Calcagni Nicole Cleary Gerri Daneman Erin Doherty Sharon Calkins Roseanne and Joseph Cleary Chloe Daniels Debbie Dolan Bonita Hughes and Amy Callan Alex Clements Ruth Danis Maura Dolan Jeffrey Camara Tom Clements Nancy and Graham Danvers Ariella Dominguez Robert Cameron John Cleverly Steven Daroci Bonnie Donaho Christine Campbell Deborah Coates Deborah Davies Mary Ann and Ben Donatelli Lisa Campbell Trang Cockrill Julian Davies Susan and Edward Dong Pam and Jim Campbell Lynn Coffey-Edelman Nancy Davies Jennifer Doolan Wendy and David Campbell Barbara Cohen Traci and Kevin Davies Katie Doolen Heidi Cushing Candelario Seth and Alli Cohen Catherine Davis Marc Dorian

27 IMMUNE DEFICIENCY FOUNDATION

$50-$99 (cont.) Karen Feeney Michelle Gaudiello Kristina Gulliford Jillian Dorn Mindy Fein Susan and Barry Gedan Shailendra Gupta Jennifer Doyle Carole and Albert Felintin Beth Gelfond Tracy Gurock Michael Doyle Joann Felker Katie Gerard Christopher Guros Christine Drago Mary and Timothy Fentress Alysse Gerbino Megan Guros Susie Drapeau Elizabeth Ferguson Yvonne and James Gern Nora Guros Patrick Droll Anne Ferreira Kelli and Lee Geronime Christine and Jerry Guth Diane Drozdowski Philippa Ferridge Colin Gerrity Stacey Guthartz Cohen Kerri Druckmiller Stacey Fessler Carolyn and James Giannantonio Ellen Guthrie Renee Drumm Ann Marie Fico Michelle Giesecke Gloria Guzman Andrea Dunathan Ron Fielmann Giguere Lumber Sales, Inc. Terri Haas and George Gelish Letha and Thomas Duncan Michael Fietek Amy Gilbert Christine Hadley Martin Duncan Timothy Fietek Jessica Giles David Haese Judy Dunlap Amanda Figueiras Diana Gill Scott Hafetz Lauren Dunlap Lia Filitti Marianne Gillespie Charlotte and Roy Hagelin Ruth Ann and Dennis Dunton Robin and Evan Fineman Laura and Gary Glabman Mark Hakman Daniel Durling Janet Firestone Jeffrey Glass Joy and Terry Hall Joseph Dvorak Mara Fisher Arlana Glenn Lisa and David Hall Beth Dwyer James Fitzgerald Karen Glenn Rachel Hall Tina Dziewietin Tammy Flannery Ryan Glynn Anastasia Hallab Melissa Earley Permar Evelyn Fleischhacker Sheldon and Judy Godfrey Michele Hallihan Regina and Wendell Eaves Mary and Thomas Fleisher, MD Eleanor Goetz John Hallinan Karin Eby Diana Florio Kathleen and David Jennifer Hallowell Paola Echeverry Danea Forbes Goetz, MD, PhD Lauren Halonen Dawn Edgar Jim Ford Shannon Goff Melissa and Todd Halperin Mitzy Edgecomb Lois and Garold Fornander Wendy Goldberg Katie Hammerling Cathy Edminster Michelle Forrest Carol and Curtis Golden Elizabeth Hammond Ruth and John Egan Marin Fortune Paula Goldenberg Pam Hammond Tracy and Matthew Eichman Avram Fox Maura Brown and Mary Ann Handzus Ophira Eisenberg Judith Fox Peter Goldsmith Dan Hannon Danielle and Brent Elgas Karen Fraielli Alice Gomstyn Debra Hansen Linda Elkin Barbara and Sam Frajerman Karen Gomula Jennifer Hanson Anne Ellis Donna Francis Luis Gonzalez Kathleen Hanusey-Thomas Leslie Ellis Elinor Franco Brandi Goodwin Christopher Hanway Mitch Elwell lari Frank Rosemarie Goodwin Tanya Hardisty Lynda and Stephen Emanuels Maria Fredrickson Danielle Gordon Becky Harmon Dana English Michelle Freedman Elizabeth Gralewski Thomas Harney Angela and Rob English Deidre Freeman Amy Grant Mike Harris Katherine Engstrom Carie Frieder Deborah and Tony Grant Susan Harrold Mary Enright Stuart Friedman, MD Sammy and Elli Graves Gail Hart Kristina Entner Elizabeth Fritz Diana and Kevin Grecek Lucy Harth Barbara and John Erickson Emily and Richard Frye Valerie Grecek-Trinh Ty Harting Ruth Erion G Force Lock and Safe Fernanda Greco Julie Hass Nate Ernst Patricia Gaddess Jennifer Green Beverly Hatch Lorna and David Estes Russell Gage Maria Green Krista Haugen Terri and Dudley Evans Gainfield Sunshine Fund Paige Green Katie Hawkins Jennifer Fah Ximena Gallego Zach Greenberg Jennifer Hay Jared Fahey Joseph Galloway Brenda Greenfield Eileen Hayden Joseph Fahhoum, MD Ramson Gambiza Ted Gregg Mary Hayden Dan Faigenblat The Gammill Boys Jak Griecci Sherry L. Hayden Steve Fairbourne Gannett Foundation Suzanne Griffin Christian Healy Nancy Falk Dorothy and William Gardner Claire Grinley Barbara Heaphy Dana Fano Jenny Garretson Isaac Grisham Michael Hearne Nancy Fantuzzi Dave Garrett Tracy Grodsky Kelsey Heemstra Constance Farrar Sheila Garrity Katherine and William Grussi Rebecca Heidegger Margaret and John Farrell Catherine Gates and Mark Yorra Henry Guenther Dorothy and Douglas Heinlen Danielle Fazzolari Coach Gatley Therese Guest Janice Heinssen

28 Annual Report 2014

$50-$99 (cont.) Javier Huerta Janet Kaye Jessie Labov Diane Heite Kelly Huffman Dennis Kearney, Jr. Laura Ladewski Jason Helfert Kathy and Bruce Hulst Veronica Keenan Radka Lakosilova and Amelia Hellem Gerri Humbert Kelly Keesler Petr Lakosil Bruce Heller Reiko Watanabe and Dan Kelly Laurie and Lanny Lambert Jennifer Heller William Hunter Dina Kelly David Lamont Lloyd Hemauer Heather and Chris Huot Sarah Keniston Ann Lamothe Gary Henderson Jacki and Paul Huot David Kennan Mackenzie Lamothe Dana and Serena Henjum Sarah Hutcherson Meva Kennedy Kathleen Lange David Henkes Maria and Andrew Ierardi Michele Kerin Laura Langton Larry Hepler iGive Veronica Keris Mary Ann Lanier Wendy Herbert Sadie Irvine A.J. Kerrigan Molly Lapperre Sharon Herman Raji Jacob Daina Kersey Carol and Jansen Lasley Heather Hern Colleen Jacobs Lisa Kersten Lauryn Pappas Interiors Griselda Hernandez Kathryn and Jerome George Ketsios Michelle and Rich Lautato Heladia Hernandez Jacobsmeyer Debora Keville Nathan Lavalley Sally Hernandez Irene Jacqz Kevin Wetshall Graffiti Removal Leslie Lebitski Danny Herrera Carol and Allyn Janes & Maintenance, Inc. Merisa Leclerc Crystal Herrmann Teresa and William Jednorski Carmelita and John Keyes Barbara Leddy Rose Herron Dana Jellinek Carmen Khan Karen Lee Joanna Hershon Amanda Jenkins Young Kim Paula Lee Joel Herson Florence and Mark Jenkins Diana and Russell King Miriam and Robert Lehman Sue Hertz Angel Jimenez J.D. King Brynne Lehner Lynn Hervas Sharon and Charles Jirsa Terri King Ivy Lehner Linda Herzog JJ Advantage Security Rosemary Kinsella Jennifer Leitner Zach Hettenbaugh JMP3 Carol Kirr Phylis Lemberg Donna Hettman JoAnn Mangum Kiwas Living Trust Mary and John Lemm, Sr. Amanda Hietpas Vacation Rentals Catherine Kladis Megan Lennon Kathleen and Lawrence Higgins Carolyn and Arthur Johnson, Jr. Stephen Kliegerman David Leslie Den Hill Eric Johnson Ellen Kline Ariella and Naftali Levenbrown Jen and Nick Hill Jang Mi Johnson Barbara and Henry Knezek Jodi Levine Denis Hine Sheila and P. Johnson Eileen and Bernard Knoble Bruce Levinson Ruth and Edsel Hiner Ben Johnston Sangeetha Kodoth, MD Dana Levy Shaleigh Hinkle Lillian and Ben Johnston Mary and Wayne Kok Jill Lewis Michelle Hinz Margaret Johnston Roop Kollipara Sam Lewis Andrea Hirsch Angela Jones Ginny Kolze Lisa Lichtman Kathryn Hoek Ed Jones Dale Kooyenga Frenchee Liddell Joel Hoekstra Edward Jones Darin Kooyenga Susan Lieber Merry Hoekstra Ellen and Jack Jones Genna Kornweiser Matt Linde Barry Hoggard and Leslie Jones Kathleen Kosnar Terri Lindmark James Wagner Rocky Jones Nancy Kovach Sarah and Chris Lindstrom David Hohman Suzanne Jones Beth Kraft Elaine Linn Dawn and Brian Holloway Edward Josell Ned Kramer Lori Lischkge Sandra Holloway Jennifer Joseph Jean Kreiser Bruce Lish Tanya Holmes Tracie Jost Bethany and Kevin Krieger Scott Liss Karen Hommel JP Morgan Chase & Co. Miriam Krieger Susan Lissuzzo Linda Honma Michael Jurewicz Vickie Kriz John Locasale Penny Hoover Michele Justice Eric Kroll Dorothy and Ralph Locke Teresa Hoover Ali Kahle Patti Kruciak Beth Loftus Judy Horning Sandee and Stan Kahn Donna Krupski Eileen Loftus Sarah Horton Stacey Kalamaras Myra and Edward Kryscnski Elizabeth Loftus Sonia Houck Sabrina Kalchbrenner Peggy Kubinski Pauline Loftus Melissa Hough Dina Kancepolsky Bonnie Kuhrt Matt Lombardi Cathy and Dave Howard Judith and Scott Kaneff Suzanne Kujawa Brittany Long Mary Hrabovsky Gina Kanipe Laura Kunard Gina Long Wendy Hubbard Diane and Gary Katz Sharon and Ronald Kurth Judy Long A.J. Hudson Laura and Joel Thorp Katz Christine and Henry Kurtz Allison Looper

29 IMMUNE DEFICIENCY FOUNDATION

$50-$99 (cont.) Liz Martinez Yvonne Menager Patricia Murray Mary Lopopolo Lori Martinez Melissa Menchaca My Wonderful Walls Regina Lorenzen Olivia Masey Amy Mendez Katherine and J. William Myers Margaret Loughran Priyanka Mashelkar Marie Mendiola Susan Myers Louie’s Chophouse Mary Jane Masi Reagan Mensah Mark Myrent Meg Louthan Corey Masson Helen and Paul Meosky Rochelle Nahmias Linda Lovett Cindie Masui George and Bev Mercer Kelly Najmola Diane Lubarski Beth Mathews Lisa Mercer Madie Nash Emily Lucas William Matteson Karen and David Merriell James Naughton Susan Lucci Sharon and Guy Matthew Kim Merrill Jennifer Neary Jason Lucia Taylor Matulis Patricia Merrill Carol Neary Barbara Luger Christina May Tina Merrill Jodie Needham Theresa Luna Norma Jean Mayes Lisa Merritt Linda Neeley Rick Lundstrom Shellie Mayne Robert Messina Jill Negro Randy Lunt Rebecca and James Mazzeo Linda Metcalf Rose and John Nellegar Gail Lusvardi Donna McAllister Nicole Metzger Tara Newman Kate Lusvardi Michael McCabe Debbie Michalski Sam Nezzer Cameron Luttrell Debbie McCarthy Amber Miehlke Betty Ng Jeff Luzbetak Laura McCarthy Paul Miehlke Chi Nguyen Jeanette Luzzi Nancy McClain Igor Mikaelian Valerie Nichols Susie Lynch Jennifer McClellan Cricket Mikheev Karey Nicolini Adrienne Lyons Suzanne McCollum Alisa Milano Christine Nielsen Catherine Macdonald MaryEllen McCormack Jane Milano Jennifer and Scott Nishinaka Chiho Machado Ruth McCormick Eric Miller Robyn Noble Alexandra Machinist Shirley and Michael McCoy Lorraine Miller Michelle Nophsker Ann Mackin Tricia and Ron McCoy Robert Miller Wendy and Peter Van Norden Virginia Madla, MD, FAAAAI Megan McDermott Mary Joyce Milling Nan Norene and Robert Taplin Ryan Maglione Cynthia McDonald Joyce and Tom Mills Ainsley Norris Lisa and Terry Maher Fiona McDonald Gina Misch Camille Nourie Madeline Maish Lisa McEachern Aliza and James Mitchell Linda and Larry Novik Heidi Makela Dennis McGinn Ann Mitchell Jen Ochsenfeld Melanie Makhija Jim McGivern Doug Mitchell Daniel O’Connell Sapna Makhijani Kelly McGovern Nancy Mitnick David O’Connor Chris Makiej Sabrina McGuigan Rebecca Mitrisin Maeve O’Connor Catherine Malloy Virginia McHugh-Kurtz Franz Mittener Eileen O’Hara Rita Malloy Ann McKean MMJ Labs LLC Kozo Okumura Stephen Malloy Natalie McKee Natasa Montalto Rosalind Okun Mark Manchen Ray McKoski Stephen Montgomery Cathy O’Leary Joseph Mancuso David McLanahan Patricia Moody Kathryn Olsen Angelina Mangano Tom McLaughlin Casey Moore Amy Opahle Stephanie Manning David McMahon Donna Moore Elizabeth Osborne Karen Marcano Kristine and Matt McNally Kara Moran Lawrence Ostrow Jeffrey Marcinko Jill McNichols Nancy Moran Christine Ouellette Anna and Gregory Marcotte Eamon McNiff Sandra Moran Trisha Ours Karyn Margolis Sarah McPhee Anna Morelli Eileen Owens Mark Marino Darlene McQuen Stuart Morgan Benjamin Oyer Bonnie Markham Jeff McTigue Mendy Morris Laura Pacheco June and Lawrence Markland Justina Meade Erin Morrison Vernelle and Parviz Pakravan Christopher Maroldo Catherine Medai Brenda Morrow Ana and Charles Palmer Joseph Maronski, Jr. Carmen Medina Michelle Moser Tawanna Parham Kay and Michael Marron Maria Medina Karen and Seaborn Moss, MD Nancy Park Roberta Marshall Leslie and Tarun Mehta Sue and Jim Moss Sandra Park Kathy Marson Andrew Meier Margaret Mouzon Teresia and Christopher Parker Byron Martin Shelley Melanson Victoria Mukovozov Lisa Pasker Jennifer Martin Lon Meltesen Mandakolathur Murali, MD Gina Pastorello Sharon Martin Melvin Clark Plumbing Cathy Murphy Wendy Paszkiewicz Valenda Martin & Heating Co Courtney Murray Harsha Patel

30 Annual Report 2014

$50-$99 (cont.) Rachell and Ivan Punchatz Michelle and Greg Robertson Catherine and Patrick Saulsbury Christine Patricca Therese Pung Mark Robichek Connie Saunders Robert Pavelik Pura Vida Bracelets Sarah Robinson Bryan Sawchuk Jill Pavlus Ira Putra Valerie Robison Liz Sawyer Gina Payne Ann Quigley Joy Robles Paul Scaletta Matthew Payne Pam Quigley Mary Rochon Lynn Schaefer Muriel Pearson Marina Quintana Jodi Roda Robin and Seth Schafler Lisa Pedersen Shorten Quintin Brooke Rodd Faye Schau Mary Pelenis RJ Wellbrock, Inc. Jennifer and James Rogers Edith and Herbert Schawrtz Tiffany Pemberton Terry Raburn Elizabeth Rohlfing Debra Schechner Gina and Aaron Penn Jan Radowicz Federico Rolando Karen Schecter Floyd Pentlin Elizabeth Rafferty Adrienne Roman Eugene Schiltz Rebecca Peralta April Rains Agatha and Charlie Romeo Kathleen Schino Sunil Perera Robert Raissman Judith Romeo Fran and Marc Schnee Carmen Perez Ravi Rajamani Nick Romeo Mike, Lisa, Anna, and Barbara Perkins Laura Ramirez Samuel Rose Nate Schnyders Dennis Permar, Jr. Tek Randhawa Sarah Rose Paul Schoenau Loyal Perry Becky Rapp Georgina Roselli George Schorn Maureen and Frank Perucca Audrey Rasch Patricia Rosenblath-Talaro Quinn and Jack Schorn Jim Peyton Jessica Rastad Linda Rosengard Kerri Schultz Jay Pfister Alexis and Kevin Rautio Shaun Rosenow Rami Schwartzer and PGilligan LLC Kenlee Ray Rita and Neil Ross Adina Rosen Emily Phillips Theresa Reade Jill Ross-Blair Colette and Albert Schweizer Frances Piasecki Sheri Redman Lisa Rossi Scott McNaughton Megan Pickette Katie Redmond Kathy and Bill Rothaar Development Group Cynthia Piechota Diane Rees Nikanna Roussou Christine and James Scotti Andy Pinto Susan Reese Sharon and Bob Rout Eileen Seaberg Ellen Pinto John Regan Bonnie and Stephen Rowley Luke Seaberg Jeff Piper Regen Spinal Rehabilitation PC Meghan Rubino Jana Seagard Margaret Pitts Ashley Reiland James Rudy Jill Searing Julie Plantamura-Devery Leslie Reis Kathleen Rumin Emily Seckler Krystyna and Walter Plewa Imogene Reisig Chantal Rushing Nikki Segalini Albie Pokrob Terri and Douglas Reiss, PhD Kevin Russell Joram Seggev Lauren Polak Eric Reitzel Mike Russell Amy and Howard Seife Amanda Polcari Tara Remiasz Brian Rutolo Daniel Sellen Renata Pomponi Amy Remondi Katherine Ryan Suvrajeet Sen Kevin Poole Maria Restivo-Adams Erik Rygg Dolores Senanis Brandi Porche Yudis and Yocheved Retig Larry Sachs Carolyn and John Seymour Jake Porte Janice Revellino Sandi and Brett Sadovnick Adrienne Sforza Diane and Robert Porter Alice and Bernard Reynolds Helena Safran Bobby Shackelford Jane Porter Doreen Reynolds Bettie Sager Roberta and Paul Shapiro Leanne and Stephen Ports Luann Ribeiro Wendy Saladino Shahnam Sharareh Nicola Poser Marilyn and Camden Rigg Elizabeth and Brent Salsgiver Izhar Sharon Thomas Potter Irene Rigney Amber Salzman Janalyn Sharp Todd Potter Peggy Sue Riley Sameh Samuel Claudia Shaum Karen Poulin Harvey and Sandra Rima Dana and Robert Tami Sheheri Cara Power Eustolia Rincones Samuelson, MD Kate Shein Soden Kim Powers Mary Rineer Martha Samuelson The Sherlock Family Shirley Prakelt Catherine Rippas Elizabeth Sanders Richard Sherman Mary Prekop Alison Ritieni Christine Sands Carrie Shield Armand Prestidge RMS Financial Services Rebecca Santosuosso Jackie and Don Shinault Joe and Margo Priest Lisa Roach Ayda Sanver Lee Ann Shipley Robert Proffitt Isaiah Robbins Kathleen Sarcone Jack Shiu Liane Pruchnik Deborah Roberts Irene and Carmine Sarno Doris Shoultz-Creek Nicora Prude Sharon Roberts Julie Sather and Jean Creek Joe Pruett Shelley and Phillip Roberts Marilyn and Elliot Satinoff David and Belkis Sica Moira Prunty Rachel Robertson Rosemary Satterlee Eileen and William Silk

31 IMMUNE DEFICIENCY FOUNDATION

$50-$99 (cont.) Patricia and Edward Suffern Tyler Turnquist Beverly Wayne Anne Silver Jessica Sugg Nawatsie Tyars Bruce Weaver Katherine Silver Summer Sitters Lorene Tyler Danielle Weber Lawrence Sindel Kathryn and Jay Summerhall Richard Tyler Zack Weber Joseph Sinico Tracy Summers Serdar Uckun Jane Webre Allen Sisk Diane Sumner Ultimate Business Source Jessica Weikel Gail Siskin Raija Suomela United Way of Coastal Susan Weinbaum Jacquelyn Skinner Cindy and Steven Sussman Fairfield County, Inc. Deborah and William Weiss Jeff Skummer Derek Sutfin United Way of King County Mindy Weiss Donna Slepicka Alice and Dale Sutter United Way of the Inland Valleys Theodore Weiss Anna and Matthew Smith Jana Svoboda United Way of Wendy Welch Bruce Smith Edward Sweet Westmoreland County Julie Wellborn Callie Smith Sweet Dawgs Frozen Yogurt LLC Kim and Bill Uphoff Walter Wells Charlie Smith Becky Swersky Karen Vacca David Weng Deb Smith Janet Tallarine Darlene Van Tash Sara Werkman Jennifer Smith Randi Talley Aaron Vander Horn Mary Ann Werner Julie Smith Karen Tank Kerry Vander Wal Valerie Werner Katie Smith Daniel Tartaglia Alecia Vanderbilt Denise and Dan Westerberg Kenneth Smoller Arthur Taub Connie Vandergriff Western Reserve Window Carole Sniegowski Jodi Taub Josefina Vargas Cleaning, LLC Lorraine Sobson Debbie Taub Krissy Varner Western Union Foundation Diane Sokal Joey Teevens Patricia Velazquez Lynette Westfall Jennifer Solari Rhea Telson Geraldine and John Ventrice Leanne Wheat Joseph Sollitto Temple Shalom Emeth Sophia Ventrice Paul Wheeler Loraine Soltis Mary Tennison Leslie Ventuleth Cindy White Marilyn Sommer and Mieke ter Poorten Elizabeth Justin Verola Michelle White Heather Guercio Asleaner Thomas Sherri Vickroy Vicki White Kate Sordelet Tarrance Thomas Peter Vieira Chris Wiedemann Randye Soref Angela and Dennis Thompson Katy Vile-Craig Carol and Craig Wiehe Louis Sosa Mark and Sandy Thorpe Daniel Villarreal Matt Wilkes Ray Southworth Julie Thurn Martha Vincent Joyce Wilkos Joseph Sowers Teresa Tiago Caitlin and Todd Vishnauski Deborah and Howard Priscilla Spencer Jenny Tibble Cindy Visser Willen, DDS Norine Spero Maureen Tieman Lynn Vizek Jeff Williams Mary Ann and Christopher Joanna and Christopher Tierno Jack Voigt Kelly Williams Di Spirito Leslie Tillman Judy and John Voytek Mary Willingham Pam Spooner Brad Tinder Kelli Voytek Cathy Wilson D. Sprague Sandra Tines Chris Vulpe Cecelia Wilson and Susan Mary Springman Pat Tiritilli Rebecca Wachtel Wilson Tomer Elizabeth St. Louis Paul Tivnan Rachael Wager-LaCross Ella Wilson Kathryn and Thomas Staebell Janice Tkacik Kimberly Wagner Mary Lou Wilson Helen Standen Gretchen Tonno Rev. Steven Wainwright Jennifer Wiltshire Brooke Stangeland Steve Tonno Misty Wallace Susan Wimmer Crystal Starke Erik Torkelson Lisa and George Wallenfels Patricia and Gerald Windstein Sandi Steele The Toro Foundation Barbara Walsh N.E. and Roger Wingert Renee Stefanacci Anna Torrence Brandy Walsh Tricia and Bill Winiker Cody Stephens Heidi Trachtenberg Brigid Walsh Dorothy Wintemberg Lisa Stevens Jenny Trahan Danielle and Matthew Walsh Cathy Winterfield Katherine Stevenson Michael Trank Katie Walsh Debra and Kevin Witt Carol Stewart Gregory Treantos Kenneth and Liz Walsh Lenny Wlezien Wendy Stewart Maria Trofa Michelle and Francis Walsh Arthur Wojtasik Ruth and Tom Stoit Gina Truby Jolan Walter, MD Sara and Myron Wolf Gary Stone Elsa Trujillo Nardea Walters Ashley Wolff Bill Stout Jacqueline Tucker James Wang Melanie Wollenberg Walton Stowman Charlene Tucker Doris and Ronald Warford Kara Wong Cynthia and Peter Sturtevant Emiley Tula Jason Wasserman Charlene and Robert Woodley Rosemary and Gerald Styler Kelly Turner Joshua Waters Colleen Woods

32 Annual Report 2014

$50-$99 (cont.) Jodi Anselmo Haley Barnard Barbara Berryhill Melissa Wyckoff Lena Antaramian Amy Barnes Vera Berryhill Margaret and John Yelsik Jess Anthony Shirley and K. Barnes Tamara Berthaud Patti Yost Fatima Antonio-Ponte Joyce Barnett Hojo Bess Marta Zamora Marianne and Alireza Anzabi Kate Barnickel Megan Bettenhausen Bernard Zeffren, MD Jeffrey Apgar Coralia and Cesar Barraza Prakrut Bhavsar Calla Zeisloft Mia Appelbaum Sandra Barrera Palma Karen Bickel- Hahn Lisa and Richard Zeitoun Kimberly Aquila Thomas Barrett Larry and Nancy Bickings Lisa Zielinski Shoko Aramaki Peggy and Frank Barringer Becky Bieda Maureen and Rich Zielinski Christina Araque Matthew Barry Debra Bieda John Zink Mark Archambault Susan Barry Emily Bieda Nicole Zola Haley Archambault Jennifer Barthel Katherine Bigelow Sam Zouzas Sandra Ardis Deborah Baszkowske Mirella and Randy Billups Adam Zucker Mira Arezina Rebecca Batterman Cynthia Birch Richard Zucker Arizona Foot Health, P.C. Shari and Arnie Baum Birch Street Bistro Kathy Zummo Lori Armbruster Nancy Bauman Patricia and Eugene Birkner Connie Zumwalt Patricia Armstrong Nancy Baumgartner Derek Bishop Marilyn Arnold Cynthia Bautista Diane and Robert Bittner Under $50 Stephen Arnold Melanie and Ramoncito Bautista Katie Black Patricia Abbott Jeri Arnston Amanda Baxter Lisa Black Nabih Abdou, MD, PhD Eric Arnwine Linda Baxter Bonita Blackburn Amita Abraham Librado Arrreola Kanesha Baynard Julia Blackburn Eyal Abraham Minnie and Gary Arthur Charlotte Beach Carmela Blackman Rabbi Susan Abramson Jill Arzouman Gloria Bean Melissa Blackwel Jeannie Acdan Kim and Ted Ashcroft Victoria Beard Steve Blake Alexa Acevedo Stephanie Ashley Bearkat One Jenni Block Peggy Adair Deborah Atwood Eric Bechhoefer Karen Block-Davis Audrey Adams Kara Ault Lisa Beck Darla Blomberg Angela Adler Lawonta Austin Vicki Becker Fran Bloomfield Susan and Howard Adler Andres Ayal Amanda and Matthew Joy Blosser Aetna Foundation Eliva and Manny Aylaju Beckstead Y. Blount Sara Ahrens Nicole Babilya Joan and Richard Beckstrom Holly Blue Cydney Aiken Nick Bacon Nancy Bedinger Diana Bluebaugh Melissa Aives Kristy Bader A. and G. Belavitch John Blum Kristin Albright Frances Baer LaTonya Bell Kimberly Blumenthal Tiffany Aldous Susan Baer Steven Bell Nick Boccanfuco Kelly Ales Patrice and James Bagby Helen Bellenoit Andrew Bockstein Veronica and Joseph Alfonso Diane Bagley Paul Bellenoit Tiffany Boggan Patricia and William Alhofen William Bailey Robert Bellenoit Leigh-Anne Boland Claudette and Ralph Allerdings Mary Bailey Laura Bellina Ellen Bolin Janine Allison Claire Bain Timothy Belloff Lilian Bollero-Mitchell Tara Altenritter Mary Baker Anna Benetos Caitlin Bonfiglio Marilyn Alu Chris Bakker Eric Bengali Carlene Bonham Yasmilin Alvarado Lisa Balabanian Kristin Benjamin Kathy Bonn Amy Alvarez The Balanced Body Karen Benjamin Sally Bonsall Jose Alvarez Heather Baldic Jonathan Bennett Pam Bonugli Jonathan Amar Sally Baldic Donna Bera Chip Booher Lauren Ambrosine Jeffrey Baldwin Lesley Bergeron Gail and Bob Book Carol Ambrosino Karen Baldwin Holly Beris Deanna Bookholdt Loen Amer Raymond Barajas Glenn Berkin Mansukh Borad Christine Andersen Paula Baran Larry Berkin Pamela Bordelon Kimberly Andersen-Bobbitt Carley Barbosa Dagmary Bermudez Judith and Charles Born Barbara Anderson Patricia Barbu Miguel Bermudez Doug Bornstein Claudia Anderson Sawyer Barclay Alberto Bernabe Carlos Borron Donald Anderson Kyle Barder Gretchen Berra Katharine Borthwick Judy Anderson Dawn Barger Miranda Berrada Karen Boseo Alexandre Andrade Melissa Barker Latoya Berryhill Rhonda Bouchard

33 IMMUNE DEFICIENCY FOUNDATION

Under $50 (cont.) Suzanne and Chip Burton Jason Champagne Tracey, Dan, Danielle, Willow Boudell Gabrielle Burton Grace Chan Mckibben and Nick Coletta Priscilla and Leopold Bourgault Mary Bushbaum Kim Chanbonpin Elaine Collins Dominic Bova Shari and William Buske Angela Chaney Tracy Collyer Stormy Bowers Diann and John Buss Margaret Chapman Candace Colvin Bonnie Bowes Deborah Butler Kristen Charkow Mae and Harry Combs Joanne Bowler Olivia Button Tiffany Charles Deana Commodore Tiffany Boyd Sherri Bycura Robert Charleton Marc Comrie Kelly Boyette Helen Byrne Janice Charlton Sheila and Steven Conant Kristen Boyle-Heimann Connie and Harry Cadotte Danielle Chase Laura Concannon Lori Boyters Sharon Cain Carrie Chastain Dahla Conklin Kevin, Colleen, Harper, John Caklovic Edwin Chatburn Richard Connell and Sawyer Bradley Audrey Caldwell Pamela Chaves Janice Connolly Rosemary and Jerry Braginton Lisa Califano Aida Chaves Laurie and Chris Conover Lucy Brandt George Callaghan Marscha Chenoweth Mary Ann and Louis La Conte Todd Brannon Carol Calsetta Katie Cherenzia Linda Conway Beatrice Brayboy Diane and Craig Camarote Evelyn Chiasson Angie Cook Claudette Breban Jill Camera Tricia Chieffo Trudy and Kevin Cook Miranda Breedlove Joanne Campbell Allison Chimera Stephanie Cooke Marcia Breit Joseph Campbell Jan Chirchirillo Sue Cooper Lauren Brenneman Ken Campbell Viviana Chirino Vicki and John Corbin William Bridge Kelly Campigotto Nate Chongsiriwatana Kristina Corcoran Phyllis Briggs Christy Cancienne Debbie and Rick Choquette Amy and John Corneau Karen Brighj The Canham-Clynes Diane Chorazy Annette Cornell Jennifer Bristol Wesley Cannon Lisa Christiano Oscar Correa Sharon Britton Gerry and Jon Caparotta Jane Christie Patricia Correa Susie Britton Mary Lou Cappellini Christofanelli Lynn Ann Corrigan Lynn Broadbent Car Program, Inc. Communications, Inc. Kate Corriveau Ann Brockmeyer Kirk Caraway David Chyten Nick Cortesi Ceci Brodski Paul Carbonella Rachel Ciapponi Amy Cosgrove Claudia Broman Christina Carden Maura Ciardiello Debbie Costa Kristyn Brophy Cindy Cardenas Kerri Ciccketti Bartholomew Costantino Mark Brosamer Katherine Carias, MD, FAAAI Amy Cikauskas Gerard Coste Beverly and Thomas Browe Teresita Carlos and Sal Cincotta Andrew and Thomas Costenoble Amanda Brown June Micu Micu Nancy Ciralsky John Costenoble Cheril Brown Heidi Carnahan Tammy Circkirillo Kim Cote John Brown Richard Carr Donna Clark Scott Cote Leslie Brown Sharron Carr Eric Clark Matthew Couling Nancy Brown Rachel Carrillo Gregory Clark Kenneth Cowan BRS Local 56 Londa Carrion Mary and Leonard Clark Taylor Cowart Nadine Bruinius Michael Carroll Nichole Clark Laura Cox Cara Brumley Elaine Carter Paula Clarke Brian Coyle Lory Bryant Liz Casey Victoria Clarke Jamie Craghead Allyson Buckland Jane Cash Mary Ann Clarkson Martha and Chuck Crannell Susan Buhite Natasha Casillas Becky and Gaylon Clayton Cori Crawford Heather Buleje Anna Cassidy Lindsay Clayton Kait Crawford Deana and Rod Bulington Luis Castro James Cline Crescent Circus Ruth Bunn Harriet and Sal Cefalu Sara Clingan Arianna Cribb Shirley Burch Danielle Cellere Janice Clulee Leslie Cristello April Burge Dodd Sharon Ceresi Patti Coe Katie Critelli Judelan Burgess Stacey and Pat Cerminano Billie Jo Cogley Ursule Critoph Sandy and Steve Burkett Gretchen Cesar Jill Cohen Carol Croto Carly Burkland Jean Cesar Rachel Cohen Connie Crumrine Nicole Burns Liam Cesar Howard Colclough Lizbeth Cruz Stephen Burns Tracey Chada Chris Cole Patricia Cuff Dawn Burris Sable Kocurek and Shannon Coleman Margaret Cumbie Burrows Locum Tenens NP Lisa Chambliss Coleman’s Pool Deck, Concrete Construction

34 Annual Report 2014

Under $50 (cont.) Desert Night Lights Pete Duemig Amy Everett Mai-Linh and Dan Cummings Danielle Deutsch Justin Duff Shirley Ewing Gina and Matt Cunha Jennifer DeValue Carole and Terrance Duffy Margaret and Stephen Fabian Jill Cunniff Lili DeVita Hartaj Dugal Laura Fahr Carmela Curatola Knowles Katherine and Charles DeVore Stephanie Dumaine Ella and Julianne Fahringer April Curatolo John Di Anni Lisa Dumont Carmen Faia Christine Currie Maureen Di Anni Gail Dunlap Paul Faiella Colleen Curry Mary Di Spirito Patricia Durisin Barbera Diego Fairbanks Patricia Curry-Hamilton Nancy Diamond Sara Durkee Nick Fairbanks Susan and Zoe Curt Nicholas DiBrito Mary Anne Duthie Edgar Fajardo Michelle Curtin Jen Dicker Dawn Dworak Pasqua Falabella Debra and Steven Cyrier Georgette DiDomenico Tiana Dyson Jennifer Falcon Cathryne Czarnecki Laura Dillon Maria Elena Eash Kevin Falkenstein Dee Czarniecki Glenna DiMartino Michelle East DeVol Family Molly Dahl Daniella DiMatteo Josh, Laura, Nessa, Nelly, Morgan Family Loretta Dahlem Cindy Dinh and Leigha Eaton Suchy Family Jeff and Vickie Dale Doreen DiPilato Donna Eaton Gregory Farber Linda and John Dale Anne DiPrima Beverly Echols Melissa Farias Margaret Dalex Bryan DiPrima Wanda Eckman Amanda Farmer Bridget Daley Sharon DiRago Diane and Robert Edelman Christine Farmer Russ Dalin Dan Ditomaso Marsha and Herb Edelman Kaitlyn Farris Rosemarie Daly Elizabeth Ditto Laurie Edenzon Michelle and Stephen Farris Nikky D’Amour Josh Dixon Michele and Andrew Edge Amy Fastenberg and Don Dandeneau Lauren Dixon Mary and Tad Edmunds James Marsh Sara Daniele Bonnie and Thomas Doak Lisa Ednie Andrea Fazio Naomi Danis Kym Dobbs Education and Mediation, Inc. Marilyn Fehrenkamp Ben Dattner Lillian Dodd Dory Bret Edwards Diane and Robert Felinczak John Davide Adrienne Doddato Paula and Douglas Egger Courtney Fernandez Jenny Davidson Pamela Dodge Aaron Ehle Melanie Fernandez Leslie Davidson Charles Doege Glenn Ehrenhaus Michelle Ferreira Stacey Davidson Susan Dolan April Ehrler Jennifer Ferriss Diane Davis Christopher Donaldson Lynn Ehrne Jessica Feuer John Davis Patti Donaldson Jaime Eichenbaum Jacquie Field Larry Davis Patricia and R. William Donnally Nathan Eifert Caitlin Fifield Matthew Davis Mary Jane Donohue Linda Eisenstadt Mari Figueroa Nicole Davis Elizabeth Mahoney Judy Ann Elfert Rebekah Filson Clairrisa Davy Darlene Donovan Nina Eliopoulos Sharon Finberg Thessa de Hollander Erica Donovan Elizabeth Arden Spas, Inc. Alexis Finch Adriana de Moya Kristen Donovan Alicia Elkins Danny Fink Brett Dean Tad Dorry Cindy and Ray Elliot Karen Finkelman Scott DeBerg Marci Dosovitz Fox Dustin Elliott Ruth Ann Finnell Kristin and Tim DeBoer Betsy Dougherty Jennielee Elliott James Firestone Sonja and Edwin Deeds Antoinette Douglas Kristy Elliott First Global Media Benjamin DeGroot Donald Douglas George Else Janice Fischetti Jennifer Deguino Rebecca Douglass Amanda Emerson Janice Fishbough William DeHaven Clare Dowd Wendy Ensz Jill Fitzpatrick Sheila Deis Catherine Doyle Abigail Ercoli Frank Flanagan Anna and Ed Del Castillo MaryAnn Dranzik Robin Ervin Bari Fleisher Theresa Del Prete Donna Drella Deanna Erwin LaQuay Fleming Dennis Delamar Alice and John Drennon Camille Eskell Lisa Fleming Sue DeLellis Donna Dressler and Juan Espinosa Mary Flower Amy Delgado Karen Weischedel Tina Estopare Kathleen and Liam Robin Dennis Brian Driscoll MaryLou Etzel Thomas Flynn Jessica Depace Cheryl Driscoll Monica Eurich Ruth Fogarty Michael DePascale Christine Droney Janet and Elmer Evans Misti Ann Foley Vivian DeRango Emily Droney Judy Evans Pamela Foley Christine DeSantis Diane Ducey Gail Evans-Sudler Jason Fontana

35 IMMUNE DEFICIENCY FOUNDATION

Under $50 (cont.) Cheryl Gandolfi Diana Godkin Shannon Guest For a Cure Dina Ganley Amanda and Stephen Goering Maira Guild Ronald Fort Teresa Ganzel Judith and Richard Goldbaum Stephanie Guinn-Burns Frances Fortini Arlene Garcia Beth Goldberg Sally and Dick Gulbrandsen Tammy Fossett Jose Garcia Fiona Golden Manav Gupta Bryan Foster Monique Garcia and Family Bobbie Goldman Robbin Gurr Heather Foster Surami and Luis Garcia Anne Goldstein Bence Gyorgy June Foster-Siggers Adrienne Cole and Mindy Golub Viktor Gyuris Lucille Fowler Mullin and Hudson Gardens Daniela Gonzalez Jason Haas Valerie Fowler Fenton Hillary Gardenswartz Marcia Goodall Laura Haas Patricia Fowler Alexander Garibay Savannah Goodman Julie Habel Susan Fowler Cassandra Garrett Elizabeth Goodrich Andrew Haberman Janice Fox David Gartman Martha and Robert Goodwin Sylvia and Joseph Hadad Lindsay Fox David Gartner Kelly Goorevich Brianne Haggerty Marcia and Russell Fox Laura Gassett Betty Gordon Rebecca and Wayne Haidsiak Maxine Fox David Gaudreau Jillian Gordon Megan Haile Suzanne Fraielli Marcella Gaughan Kathleen Gorman Maggie Hajkowicz Aida and Jose Franceschi Colleen Gavin Nicole Gose and James Arnold Vicki and Thomas Halden Henry Franco Carol Geary Andrew Gothelf Kelly Hale Blair Frank Crista Gebhardt Lauren Gottlieb-Mora Maribeth Hallahan Eric Frank Lewis Gedansky Tyler Gould Nancy and Mark Hallenbeck John Frank Kris Geibel Beth Gozdur Deborah Hallinan Juliette Franklin Erica Geis Kristen Graham Rachel Hallmark Tony Frascone Judy Geletko Lisa Graham Michael Halper Randy Frask Martha Gelles Michelle Graham Paulette and Ken Halpern Anne Frechette Dannielle Genovese Ellen Grall Emily Hamilton Jeffrey Freeland Ronald Genovese Cassie Grantham Jane and Harry Hamilton Christina Freeman Jess Geoghan Jason Grauer Maysam Hamlehdari Marcy Freeman Celeste Gerard Jennifer Graves Diane Hamm Cindy French Suzette Gerard Jamie Gray Mikki Hammitt Norman Friedman Beth Gerome Greater Horizons Angela Hammond Rachel Friedman Florence and Michael Gersch Chet Green Malinda Hanania RN Rhona Friedman Debi Gerstel Dana Green Mary and James Haney Marla Friend Cathy and David Gersztenkorn Evelyn Green Josephine Hannigan Rebecca Frierson Tracey Gertler Pamela and Dwight Green Amanda Hansen Dominique Frio Diana Gesse-St. Jour Sandra Green Jacque Hansen Pam and Dallas Fritz Lucille Giammarinaro Renee Green-Crowther Susan Hansen Staci Savage and Julio Fuentes Sue Giampa Marin and Daryl Greene Rachel Hanser Sandy Fuga Julie Giampaolo Pauline Greeney Charlotte and James Harding Donna and Daniel Fuhrman Lorraine Giarraffa Florence Sgarellino-Pickett Barbara and Michael Caterina Fuhrmeister Jessica Gibson and Kristianne Greenwood Hardoby, Jr. Joshua Fuhrmeister Patricia Gibson Mikal Greer Sandi Harkins Sandy Fulkerson Schaeffer Paulette Gifford Michael Gresk Jeff Harlan Barb Funk Paula Gilbert Donna Greyerbiehl Shawn Harlan Tiffany Fusco Steven Gilberto Kristina and Chris Griffin Pam Harland Jennifer Fuss Danielle Gilde Linnea Griffith Saudia Harper Kailani Gadlin Mary Gillette David Griffiths Christina Harris Norma and Michael Gaffin Carolyn Gillis Ann Grimm Alecia Harshaw Julie Gahl Michael Girardi Megan Grimm Colleen Hart Jackie Gallagher Gia Girolami Michelle Grossman Christine Hartman and Mary Gallagher Dana Gizzi Perry Grossman Joseph Mattson Rose Gallagher Amy Glamann Laura Grosz Nancy Hartman Kaleigh Gallant Lisa Glass Priscilla and Roy Grundy Linda Hartsell John Gallardo Marian and Joseph Glatterman Kenneth Guandique Jennifer Hartz Sandra Gallegos Kristi Glester Caroline Gubbrud Wendy Haseloff Latisha Gallman Debra Glod Sandy Guendling Mike Haseman Bryan Galloy Alice Glover Linette Guerra Connie and Stephen Hassinger

36 Annual Report 2014

Under $50 (cont.) Lisa and Edward Hill Marissa Hunt Carol Jones Amanda Hasten Natalie Hill Kathy and Wayne Hunter Dawn Jones Sue and Larry Hatch Peggy Hill Stacie Huntley Jennifer Jones Jenny Hatfield Susan and Rodney Hill Jon Huot Jude Anne Jones Marielle Hathaway Stacey Hilliard Kathryn Huot Julie Jones Gaye Hattem Courtney Hills Beth Hycaj Mary Jones Shanna and James Haun Michelle Hilman Joan Iacono Randi Lowery and Annie Hayden Lindsay Hilsen Christina Iannello Roland Jones, Jr. Patrick Hayden Kurt Himes Allyson and Richard Grills, II Scott Jones Andrea Hayes Judith Hinz Lisa Incaudo Francine Jordan Justin Hayes Janice Hirneisen Jackie Ipema Sheila Joyce-Bird Tamara Heacock Jacob Hirschhaut Linda and Christopher Iredale Susanne Wilson and Bill Judy Nora Healy Sandra Hlavacek Lindsey Ireland Jade Jumaeva Ellen Hebb R.J. Hoag Kelly Ireland-Smith Marguerite Juner Debbie Hedstrom Yvonne Hodges Loren Israel Badri Jureidini Michelle Heemstra Darlene Hofer Carol Ivey Kim Kaelin Mela Heestand Nancy and Maurice Hoffman Patrick Iwanicki and Allynn Kairis Adrienne Heffelfinger Riquette Hofstein Stephen Wolf Suhas Kalmanker Wendy Hegarty Kathryn Hogan Meghan Jablonski Heather Kamins Dori Hein Gaile Hogne John Jablow Joseph Kaminski Stanley Helfand Henry Hohberger Jane and Walter Jackson E. Kantrowitz Mel Hellem Diane Hohenwater Kathryn and Adam Jackson Anita and Art Kaplan Doris and Eugene Heller Monica Holbrook Jessica Jacobsen Robin Kaplan Randy Heller Hardy Holder Rita Rae and Jerome Jacobson Nancy Kapolka Lisa Hellier Ashley Holland Ashley Jacquin Autumn Kapter Arthur Hembrough Joan Holmes Karen Jacquin Kathy Karolewicz Linda Hemerik Sheila and Robert Holmes Kevin James George Kastli Lynn and Eileen Henderson Beth Holobowski Lisa Jang Jana Katsanis Jenifer Henry Sharon Holten Josh Janson Carole Katz Stacia Hentz Ashley Holtrop J. David Jarrett Lenny Katz Ian Herbert Peter Holtz Tracy Jarvis Kaysen Family Jamie Herkel Claudia Holtzman Patricia Jeansonne, MD Jennine Kazalas Angie Herman Jo and Gary Holzbauer and James Jeansonne Angie Kearney Margaret Herman Jeanne Homan Angie and Ward Firestone Dennis Kearney, Sr. Marcia Hermann Melinda Hood Robin and Jay Jenness Florence Kearney Michelle Hernandez Anne Hoover Isabell Jennings Krista Kearney Liz Herndon Becky Hopkins Marlene Jensen Mel and Rick Kearney Dana and Sean Heron Keith Hopps Liz Jessen Shawna Keel Nicole Herrador Patricia and Guy Horanberg Kathy Jimenez Claire Kegerise Juliana Herrera Cathy Horcher Paul Jirsa Keller Williams – The Melissa Herrera Miku Horimoto Brendan John Alice George Team Diane Herring Debbie and Jim Hornbeck Melinda Johns Leslie and Steven Kelly Kathy and Bob Herrmann Sharon Hornberger Lee Ann Johnson Berry Lynn Keltz Katie Herro Paula Hornbostel and Tim Berry Rebecca and Robert Kerben Sandy and Gene Herrs Deborah Horvath Bonnye Johnson Kathy Kerstein Adrienne Hersh Diane Horvath Cassie Johnson Laura Kessel Kristin Herther Brenda House Jennifer Johnson Corey Kessler Jan Herzog Joshua Howard Karli Johnson Karen Kessler Sarah and Sean Hess Mike Howard Kerensa Johnson Keystone Oaks High School Terri Hess Laura Howe Laura Johnson Mohammad Khan Mindy Heston Linda Howland Michael Johnson Elizabeth Khedoo Edward Hicks Kari Hruneni Sue and George Johnson Mina Kidd Lawrence Higgins Mary Huckin Tom Johnson Resa Kierstein Nancy Higgins Niall Huffman Beth Johnston Jodi Kikkert Debbie and Charles Hill Richard Human Diane Jolly Karen Kile Deborah Hill Sharon Hummerhielm Melissa Jolly Carmela Killeen Ida Hill Cathy Hunt Barbara Jones Meghan Killeen

37 IMMUNE DEFICIENCY FOUNDATION

Under $50 (cont.) Kimberly Kristof Ashirah Lazarus-Klein Lori Lion Kelley Kilpatrick David Kruchkow Leah Lazer Chester and Eileen lipner Sarah Kim Leslie Kruithof Rachael Lazo Beth Lippold Tracy Kimsey and Scott Myers Kim Kryscnski Mimi Le Brandi Little Catherine Kincheloe Kylene Kryscnski Jennifer Leake David Little Alicia King Jennie and Joseph Krzystof Pat Leavitt Ingrid Liu Amanda King James Kuhlen Chasity LeBaugh Carlos Lizarralde Donna and Kenneth King Teresa Kuhnhausen Michelle Lebowits Saelah Lobb Sherie King Adrian Kuhns Kim Ledoux Victoria Lobis John Kintner Kayla Kuhrt Kristin LeDrew Amy Locha Sally Kirkland Lindsey Kunkel Robb Leduc Sebastian Lohan Janine Kisley Edith Kursman Kristin Lee Nancy London Katalin Kis-Toth Wendy and Seth Kursman Mark Lee Maria Londono Jasmine Kitses Carol and Brian Kurtz Patricia Lee Paul Long Kelley Kivior Elliana Kurtz Lindsay Lefteroff Elizabeth Lopes Lisa Kladis Scott Kurtz Jennifer Legg Jo Ellen Lopez Stephen Klancher Vicki and Abraham Kushner Adam Lehner Lloyd Lopez Anne Klein Melanie Kwestel Miriam Leibovitch Louisa Lopez Janet Klein Nicole Kyvernitis Mary Catherine Leies Lolita Lorimer Rosemarie Klein L&R Investments & Loan LLC Christy Leighton Julie Lorimer ThresaAnne Klepser Lynn Laas Pamela Leins Victoria Lorseh Christy and Lizzy Kline Richard Lacy Carol and Larry LeMaster LaKisha Loville Michael Kline Janice and Gaetano Ladik Mary Lemke Stephanie Lowrance Tina Klinkhammer Lianne LaFauci Fernanda Lemos Samantha Lu Moonyeen Klopfenstein Marsha LaFerrara G.T. Lenard Heather Lucas Wesley Kloss Audrey and Richard Lefever Maya Lentz JoAnn Luch Colleen Knee Lisa Lagasse Elizabeth Lenz Michelle and Tom Ludwig Marytheres Knishka Angie Lage Christine Leo Megan Luff Katie Knobl John Laird Kathleen Leon Sally Lufkin Maura Knobl Laura Lallos Kaleigh Leon Matthew Lugar Fran Kobren Angel Lamb Katherine Lerner Miranda Luke Beth Koch Kelley Lametto Chris LeRoy Patrick Luke Geraldine and Earl Koenig Penny Lamm Tamara Lesh Carol Lusignea Carla Koepke Jessica Landaw Jackie Lessard Angie Luzbetak Judy and Tim Koeth Michelle Landreth Robin and Raymond Letendre Diane Ly-Leahy Ben Kogan Donna Landry Amanda and James Lett Heather Lynch Iris and Conrad Koller Lydia Langer Amber Leugs Christina Lyons Kathleen Kolman Mary Langer Thompson Richard Levasseur Allison Lytle Haley Kolodziej Sabreen Langford Laura and Mark Leventhal Jill Macaluso E. Joyce and Nick Kontas Kira Lanier Amy Levin Jen Macaluso Tamara Koons Joan Lapatin Laurie Levine Judy Maccaro Ashley Kopervos Tami Lapp Rita and Salvatore Levota Frances and Richard Mack Ronald Koretz Antonina Lare Andrew Levy Jessica Mackin Adam Korzon Ashley LaRosa Jill and Richard Levy Shirley Mackin Homira Koshan Robert Larson Betty Lewis Christine MacLennan Evangelia Kostopoulos Josefina Lascano Karen Lewis Lauren Madden Joan Fleming and Greta Kottmyer Jessica Lasher Brooks Shayna Lewis Rasha Madkour Amy Kousakos Diane Lasko Valerie Lichter Pam Maerzke Tom Kovarik Justin Lasko John Lierenz Janet Magargal Timothy Kowalczyk Colleen Latchic Angela Limanowski Heather Magee Sharon Kozak Heather and Marc Lattinville Megan Lincoln Marsha Magun Kevin Kozinski Anna and Richard Lauer Catie Lindberg Vinay Mahajan Nicole Krasinski Hanne Laursen Toni Lindsey Angie Mahoney Jenna Krause Tania Lautenslager Cira Linko Justin Mahy Cynthia Kravitz Karen Lavi Tammy Linnenbringer Van Mai Sharon Krieger Maria Lawrence Cheryl Linsday Barbara Maida Marcel Kristel Melanie Lawton David Linsday Marguerite and Claudio Maina

38 Annual Report 2014

Under $50 (cont.) Jennie Matarese Linda Meil Montville Adventure Boot Camp Barbara and Harold Maini Mike Mate Ian Meklinsky Beverly and Gerald Moore Jordana Maisel Sophie Mathewson Christopher Mello Angie Moorman Bharti Malkani Debra and Joseph Mathieu Tara Mello Diana Morales and Javier Ortiz Val Mallinson Alice and Rodger Matthewman Rosemary Melo Marisela Morales Ellen and Michael Malloy Jen Matthews Michael Mendelsohn Krystle Moran Nancy Manchester Tanya Matthews Juan Mendoza Marlene Moran Cathy Mancino Paulette Maxey Joe Menkin Steve Morey Marty Mandel Karen May Leslie Merahn Annette Morgan Robin Mangini Allison and Keith Mayberry Arelis Mercado Jessica Morgan Bonnie Mannila Amy Mayer Carolina Mercedes Laura Morgan Alexis Manquen Kate Mayernick Ruth Mercier LeeAnn Morgan Matt Mansfield Paula Mayhew Deborah Merlin Morningside Florist, Inc. Deborah Manson Jo Mayhew-Wennerberg Sam Merrill Barry Morrill Elena Marcheschi Shirely Maynie Beckett Merritt Brian and Danielle Morris Jeffrey Marcinko Daniel McAnally Katie and Mike Metallo Alice Morris Bryan Marcotte Tiffany McArthur Alyson Meyer Barbara Morrison Pete Marcoux Tyler McAteer Margaret Meyer Keyona Morrison Gail and Martin Marcus Colleen McBain Rebecca Meyer Meta Morrison Berri and Bernard Marglous Kelley McBride Matthew Mickle Thomas and Christina Morzello Rachel Margolies Meghan McCauley-Brown AJ and Abby Mida Kimberly Moser Michelle Gavens and Jim and Mary Ellen McClowry Karin Mika Armand Moss Brian Margolis Kathy McCollum Christina Miller Ashley Moss Tricia Marinella Todd McCorkle Cynthia Miller Rachel Moss Melissa Marinello Becki and Erica McCormick Danielle Miller RN Karen Mothkovich Madolyn and Mark Markham Beverly McCormick Gail Hoffman and Charles Miller Melissa Mott John Marocco Paul McCormick Jennifer Miller Kaye and Duane Mowen Marianne Marola Kimberly McCoy Laura Miller Charlene Mowery Jill Marquard Cathi McCracken Lauren Miller Jack Muldowney Kathryn Marron Traci McCue Michelle Miller Nancy Mulligan Karee Marsh Terri McCumber Leslie Millman Jo-Elle Munchak Kaitlin Marsi Lori McDaniel Debra Mills Amanda Munks Karissa and Steven Marson Kim McDevitt Linda and Randy Mills Deb Murawski Case Martin Will Mcdonnell Pamela Mills Karen Murphy Catherine and Robert Martin Liz McFarlane Wendy Milnes Mackenzie Murphy Marilyn and Tim Martin Emily McFerren Rich Minaglia Matthew Murphy Marline Martin Cathy McGee Scott Minauskas Karen Murray Paula Martin Joan McGee Darlene and M. Mingus Tom Murray Ramona Martin Matthew McGill Angelina Minutolo Lori Muscarella Steven Martin Denise McGillicuddy Jennifer Miquelon Kelly Musser Linda Martinez Kim McGrath Jose Mireles Catherine Myers Miriam Martinez Rev. John McGratty Denise and Brad Mirman Claire MzCellamare Miller Alessio Martino Mike McGreevy Betsy Ellen Misialek Debbie and Stephen Nachtegall Antonette Martino Andrew McIntosh Amy Mitchell Danielle Naim Jennifer Martins Brenda McIntosh Robert Mitchell Katie Najmola Caitlin Martinu Sarah McKay Kay Moffitt Sara Nandiwada Kirk Maruca Catharine McKenna Henry Molinari Brittany Nanney Elizabeth Marulis Colleen McKeone Christine Molinaro Ida Narli Elisa Maruottolo Tom and Sally McMurray Rita Molloy Lucy Navarro Allie Marzella Sarah McNabb Shirley Momjian Eddie Nelson and Trawler Casper Greg Masey Michelle McTighe Sharon Monferdini Faith and Jeffrey Nelson Dan Maslo Linda Meadows Patsy Monk Lois Nelson Carol Masone Kathryne and Larry Mealer Scott Monks Phyllis Nelson Janet Masters Manny Mederios Sara Montague Bon Neovakul Sara Masterson Sue Meeth Melisa Montas Phyllis Neufeld Linda Mastes Megan Lee Designs Emma Montgomery Carol Nevin

39 IMMUNE DEFICIENCY FOUNDATION

Under $50 (cont.) Janie Padilla Cathie Pezanoski Rhonda Quigley Vaughn Newman Lauren Palen PG&E Corporation VonTrice R. Ladson David Nezzer Susan Palmer Elizabeth Phelps Andrea Rabon Helena Ngo Karen Palmer Amy Phillips Lois Raclyn Kim Nguyen Laura Palombo Gail Phillips Sandra and A. Joseph Rager Jake Nicotra Mary Panagrosso Matt Phillips Helene and Leonard Raifman Moira Nield Tom Paquette Annette and Christopher Pic Jane Rail Patricia Nix-Hodes Parce Rum Daniel Picha Joseph Raitano Ellen Nixon Kerry Paris Casey Pickett Raquel Ramirez Victor Nolen Dawn Digiugno Parker Charlotte Pickney Debi and Jose Ramos Lauren Noonan Gardenia Parker Jodi Pierce Lucero Ramos Meg Noreiko Shannon Parker Lisa Pierce-Kromelbein Judy and Gary Rand Kate Norman Mary Parkes Daniel Pincus Wayne and Carol Rankin Paige Nossek Chrissy Parks David Pincus Georganne Ratliff Greg Novack Christine Parks Jeff Pitcher Jeannine and Darren Ravenscraft Shannon Novak Laurel Parks Luis Pitones Maria and Tom Ravnic Susan Novelle Lisa Parness Penny Pitou Peggy Ray Kelli Nuttall Janet Parsons Joanna Pitt Christine and Del Raymond Erin O’Brien Garcia Jared and Avi Pashko Patti Pittock Real OT Solutions Christine OBrien The Pashote Family Trust Carla Pizzarello Dan and Billie Reed Staci O’Brien Lynn Patinkin Julie Ann Platt Kathi Reed Sheila O’Brien Sean Patterson Monica Poe Kelsie Reed Trisha O’Connell David Pattison Sherrie and Michael Pollack Robert Charles Reed, MD Jeanne O’Connor Tiffany Patton-Burnside Tali Pomerantz Susan Reed Tiffany Oest Aimee Pavek Anthony Pomponi Ikaika Regidor Kim O’Hara Kelsey Pawlowski Bonnie Pomponi Jill Rehak Kristin and Jim O’Hara Sophie Pearl Heather Pongracz Sharon Reifman Michelle O’Hara Becky Pearson Deneen Poole Peter Reimer Kenneth Ojala Cheryl Peckenpaugh Susan Popiol Grace Reiner Laura and Andras Olah Nancy Peistrup Barbara Porter John Reinhardt Molly Older Joan Peloso Carol Porter Linda Reisman Laura Olewnik Linda Pelton Danielle Potter Nancy Reisman Libby Oley Andy Penafiel Stephanie Potter Lauren Rennicks Rebecca Oloughlin Sara Penn Elizabeth Powers Kristin Reppi Jennifer Olsen Elizabeth Penna Linda Powers Liz Reynertson Donna and Marc Olsen Janis Pennini Tiffany Powers Patricia and William Reynolds Catherine Olson Irons Penovska Mary Pratt Penny Reynolds Andrew Olvera Diane Pensyl Richard Predl Karen Rhoads Andy Olvera Kathleen Peoples Kelsey Prescott Katja Rhoden Michaela Olvera Howard Pepper Michelle Preusser Chris Riccitelli Brooke O’Malley June Perlstein Penny Prince Lisa Rice Pejman Omidi Jackson Permar Sarah Prince Ann and Thomas Rich Stephanie O’Neal Joanne Permar Jen Prioriello Rebecca Richard Marilyn and James O’Neil Jennifer Perry Joshua Prost Cyndie Richards David O’Regan Nancy Perry Rhoda and Morton Posner Pruce Lindsay and Kyle Richerson Debra and John Orenstein Elizabeth Pesce Stewart Pruslin Linda Riffey Matt Orovitz Joy Peters Lynn Przybylinski Stacie Rios Harold Ortiz Lori Peters Lisa Pszonak Judith Ritner Colleen and James O’Sullivan Gretchen Peterson Margaret and Silvio Pucci Stuart Ritter Iris Otani John Peterson Roma Pulling and Chelsea Rivas-Goodwin Marilyn Otero Randy Peterson Cynthia Roberts Maria Rivera Jay O’Toole Jeannie Petkewicz Cathy Pulvermiller Alana Roberts Charmaine Ouellette Lerch Agnes Pettini Nisha Puri Tim Roberts Bailey Outerbridge Denise Pettway Laura Puzdrak Andrea Robinson Beth Ownby Priscilla Pettway Kathy Quaid Carolyn Robinson Selvi Oyola Julie Peyton Shirley and Leonard Queen Kevin Robinson

40 Annual Report 2014

Under $50 (cont.) Sean Salins Sasha Schwartz Navtanay Sinha Lakesha Robinson Laura Saltonstall Susan Schwartz Sisters of Mercy of the Americas Mary Robinson Bill Saltzer Joseph Schwartzburt Mid-Atlantic Community Randi Robinson Jim Samargis Lee and Iris Scopp Cary Skinner Sally Robinson Elizabeth Samuels Sharon Scott Christina Skinner Deborah Rodriguez Mariano Sancez Cliff and Nancy Scott-Rudnick Jennifer Skundrich Grayson Rodriguez Alison Sanchez Harvey Scribner JoAnn Slaney Mireya Rodriguez Susan Sanchez Cheryl and George Sedar Amber Slaton Yvonne Rodriguez Rochelle Sanders Chris Sekerak Nancy Slauson Beth and Thomas Roehl Tracey Sanders Donna and Jerry Sekula Michele and Gaylord Sledge Jean St. John and Steve Roenker Joyce and Gerald Sandison Joan Senator Mary Small Andrea and John Rogan Ginny Sands Jimmy Senia Kathy and Charles Smalley Arthur Roger Peg Sands Senior Resources, Inc. Donna Smawley Louis Romeo Kate Santangelo Kellie and Katie Senn Josh Smick Patricia and Robert Ronca Jessica Santiago Diana and Terry Senter Alicia Smith Katie Ronzano Robert Saposh Service Pro’s Appliance Repair Amalia Smith David Rooks Ivonne Sarria Decarla Sewell Ann Smith Mary Rose Shawna Sartin Linda Shackelford Ann and Robert Smith Fran Rosenberg Connie Saunders Jenny Shanahan Barb Smith Robert Rosenfeld and Kathryn Saunders Meryl Shapiro Byron Smith Eileen Walley Ken Savage Shirley Shapiro Carie Smith Joanne Ross Mildred Savage Penny Shaw Cindy Smith Marcie Ross Giulia and Phillip Savery George Shea Dawn Smith Roberta Rossi Danielle Scaramellino Julie Shea Elizabeth Torrance and Beverly Rossio Alberta Scasino Kate Shea Benjamin Smith Sherri Ross-Kenney Alexandra Scasino Carol Shedlin Joyce Smith Vanessa Rossolille Robert Scasino Susan Sheinbaum Katie Smith Margaret Rotella Maridonn Schaal Michele Shelton Kelvin Smith Madelyn Roth Heather Schader Sheri Shelton Lisa and Kenneth Smith Nicole Roth Jennifer Schaeffer Jody Sherman Maya Smith Amber Rothberg Yulia Schaffer Anne Shields Pamela Smith Saranne Rothberg Marger Elaine Schechter and Cathy and Jerry Shier, MD Zachary Smith Bonnie Royal David Herscher William Shifflett Emma Smoler Patty Ruback Susan Scheibenreif Angela Shifflette Jennifer Sneider Rebecca Rubenstein Sydney Scheiner Teresa Shinault Daniel Snyder Jaclyn Rubin Kim Scherieble Didi Shinefield Judith and Michael Snyder Paul Rubin Allison Scheuren Kali Shirk Lawrence Snyder The Rubino Family Janet and Frederick Schmidt Andrea and David Shoenfelt Emily Söderberg Jean and John Ruddy Shoshana Schmidt Cynthia Shoenfelt Julia Soderberg Ryan Rudloff Jessie Schmit Lesley and James Shore Philippa Soderberg Nancy Ruechel Vicky Schmitz Judith Short Ragnar Soderberg Charles Ruether Karen Schnase Lucia Shultz Daniel Solari Liz Rumsey Linda Schneider Gwendolyn Siani Barbra Solomon Kate Ryan Ashley Schoech Sara Siegfried Latasha Solomon Diane Rybak Clemens Schoenebeck Winifred Sienkewicz Colleen Soppet Dana Rybarski Cheryl Scholz Brooke Sigler Marie Sorbello Marlene and Douglas Saabye Martha Scholz Malissa Sill Jenny Sorrentino Mary Kay Sablich Catherine Schorn Sharon Silleck Carolyn and William Southwick Ellen Safran Craig Schreck Molly Silven Claudia Spallanzani Wendi Safran Carin Schrum Mark Silver Rick Sparks Katherine Sahak Beth Schuett Tammy Simas Katie Spaulding Anita Saint-Fleur Laura Schuler Trisha Simmons Blanca Spence Ester Salama Jay Schulman Patricia Simone Kelly Spencer Maura Salata Paul Schulman Audrey Simpson Pamela and Craig Spiewak Cassie Saldutti Lyndsey Schulze Karen Simpson Tiavia Spight Diana Salinas Lorna Schuster Rosemarie Singh Kathy Spillar Bert and Michael Salinger Barbara Schwartz Shakoya Singleton Sara Sprague

41 IMMUNE DEFICIENCY FOUNDATION

Under $50 (cont.) Bill and Corinne Stuart Victoria Tillotson Elaine Vavra Maureen Sproul Ari and Staci Studnitzer Carly Timmons Normita Vazquez Jacqueline and Samuel Sprowls Sarah Stuerzenberger Lourdes Tirado Theresa Vea Charlotte and Jack Spurr Janet Stutzman Sharon Todd Susan Vedovato Ryan Squire Andrea Succi Victor Tolentino Fabian Vega John Staab Daniel Sucher Nancy Tomczyk Melissa Velazquez Sarah Stadler Dorothy and Joseph Suehle Michelle Tompkins Gloria Velez Tracy Stagg Joann Sullivan Leandra Tonweber Christine Vellia Teresa Stamile Kellie Sullivan Stuart Tooles Daniel Venn Terri Stamp Mary Ann and Daniel Sullivan Elizabeth Toombs Gabe and Mara Vennesland Frances and Paul Stamper Ryan Sullivan Carol and Donald Torline Mary Venters Crystal Standley Joe Surette Virginia Torrez Kathleen Verna Mindy and Peter Standley Stephanie Sutow Jennifer Toscano Patrice Verner Joanne Starbuck Kristen Sutton Joshuaine Toth Elissa Vessal Lynn and Lawrence Stasiak Nadine Svetc Samantha Townsend Vibrating Hotel Beds Sue Stasiuk Kristin and Andrew Swain Lucy and Gene Toye Manufacturers, Inc. Amy Staub Gretchen Swan Mike Tran Kim Vickers Erika Stauffer Judith Swanson Esther Trauner Luciana Vieira Regina Stebbins Carol Sweet Theresa Travers Favi Villesca Amanda Steele Truett Sweet Jennifer Travis Pamela Vincent Jeanne Steele Peggy Sylvanowicz Gayle Triezenberg Gerald Vinci Anne Stein Margit Szabari Kim Trigoboff Jennifer Viola Mary Beth Stengler Andrea Szporn Jamilyn Trillo Jacob Virgil Erin and Michael Stephans Hoda Tahoun Luke Troxell Matt Virgil Jay Stern and Meg MaryJo Taira Bob Tula Ricky Virgil Sweeney Lawless Suzanne Talarico Jamie Turcotte Jackie Viscusi Odette and Melville Sternberg Donna Tapply Michael Turmelle Mary Ann Viscusi Jason Steuber Randy Tarter Kim Turnbull Noelle Vogel Alice and Russell Stevens Sara Tautfest Elma Turner Vicki Voss Chris Stevens Lee Tavares Jeanne Turner Karen Vrabel Barbara Stevenson Tawani Enterprises Stacey Turner Malia Vrooman Anna Stewart Alicia Taylor Susan Turner Lisa Vulliet Andrea Stiga Deborah Taylor Tara Turner Judi Wagman Rachael Stob Erica and Michael Taylor Tiffany Tyner Brandy and Jack Wagner Pam Stofko Lattise Teague Joan and Myron Uecker Joan and Lynwood Wagner Elissa Stohler John Tector Patricia Uidl Margaret and Jonathan Wagner Alicia Stollenwerk Kimberly Franco and Candace Ulmer Richard Wagner Daniel Stollenwerk Corbie Tedder Rachel and Matthew Umhoefer Kris Walden Bob Stone Michaelanne Teeters United Way of Central Elise Waldman Jill Stone Melissa Tewey Indiana, Inc. William Waldron Fran Storch Trudy Tharp Ruth Ann Uphoff Diane Walker Brenda Zenk and Scott Stover Andrew Therrien Jennifer Uribe Aileen Wall Sharon and Randall Strait Roger Therrien Ronna Goldstein-Usmani Margaret Wall Kris Stranahan Tristan Thibault Johnny Vaccari Keri Wallace Cindee Strausheim Randy Thill Angela and Francesco Valente Meghann Wallace Eric Strauss Lanita Thomas Carolyn Valenzuela Roy Wallace Sherry Strenger and Linda and Alexander Thomas Cheryl Vallarelli Sheila Wallington Charles Zeller Idella Thomas-Jackson Ashley Van Dyke Carolyn and Darrell Wallisch Stress-Less Massage Therapy Deidre Thompson Mark Van Hoesen Linda and Bob Walsh Mary Stricker Edwin Thompson Sally and Lane Vance Daniel Walsh Janneke Strickland Jim Thompson Carol Vandeventer Elizabeth Walsh Tammy Strickland Lisa Thompson Jazmin and Justin Vargas Linda Walsh Janice Strong Meira Tiboldo Reynaldo Vargas Lindsey Walsh Terri Stroud Jennifer Tice Justin Vargas Megan Walsh Andrew Strozinsky Caryn Tierney Suzanne Vasquenz Stephen Walsh Barry Struski Judy Tierney Karen Vasquez Ben Waltzer Denise Struve Anna Tierno Jillian Vatch Matalynne Wandel

42 Annual Report 2014

Under $50 (cont.) Ryan Wesley Melissa Wise Susan and David Yates Nichole Wandel Jacki and Kyle Wesolowski Mary Anne Wishnick Sabina Yazzie Vera Ward Debora Westbury Kim Wisneski Kinsley Ybarra Haley Warr Ann Whaley Harry Wisniewski Rebecca Yeager-Piazza Joanne Waryga Edith Wheat WOD Queen Wellness Bryan Yu Loretta Waters Doris Wheeler Kristina Wojcich Regina Zaderecki Melissa Waters Jennifer Wheeler Deborah Wolff Julia Zaffarese Candice and Heyward Watford Sonya Whicker Kerry Ann Wolfus Sarah Zagaglia Gena Weatherford Pat White Andrea Wollstadt Melissa Zahlten Maureen and Richard Weaver Sheryl White Carole and Jay Wolt Irma Zaldana Sandy Webber Skip Wickersham Rose Wood Kinga Zambo-Dailey Kaye Webster Debra and Michael Wier Catrice Woodbury Vladislava Zamfirova Jennifer Weed Gwendolyn Wilcox Maria Woods Chris and Ed Zdanowski Susan Weidman Sally Wilcox Mecca and Carl Woods Kari Zella Gabriela Weilmann Beth Wilkerson Irina Work Jodi Zenczk Meriss Weinmann Brenda Williams Karen Work Tina Zera Alyssa and Paul Weinstein Irene Williams Marie Work Susan and Ralph Zerweck Susan Weisbarth Della and John Williams Richard Wresneski Charlotte Zierer Stella and Michael Weisfus Kathryn Williams Greta Wright Ryan Zierer Elisette Weiss Pamela and Michael Williams Dan Wucherer Nikki Zieser Micah Weiss Sharon Williams K. and P. Wujcik Ivy Zimmerman Jill Welch Kristina Wilmot Kevin Wulfekuhle Lisa Zinck Tim Weller Bonnie and James Wilson Jason Wutkin Mary Zingales Donna Jeanne Wells Liz Wilson Todd Wyche Melissa Zuvers Patricia and Douglas Wells Mary Bess Wilson Patrice Wydra Rosemary Zwaan Peggy Wen Leslie Wimberley Paul Wyman Erin Zwaska Faye and Robert Werner Windowtech Susan Wynkoop E. David Zweigel Sue Werner Tammy Winkler Sheila Wyse Julia Zyrina Christine Wertz Shayla Winton Elmira Yasin

43 IMMUNE DEFICIENCY FOUNDATION

2014 IDF Walk for Primary Immunodeficiency Teams

TEAM NAME Ellie-Gators Keeping up with Ali (Anti) Bodies in Motion Fancy IGG Y Kegan Redford A Couple of Walkers Fire Station #2 King ‘o the Cats A Walk on the Wild Side Flad Fam Love Kristin’s Krusaders Accredo Healthcare Flying Green Zebras Kyzier’s Krew Advocate Munchkins For The Love of Zebras Lash Group Aidan’s A-Team Friends of Freckles Laura’s Amazing Antibodies Aidan’s Elwood Tigers Germinators Laurie Austin Aidan’s Herd Giving Back Les Zombies Aimables Aislynn’s Alicorns Go Joe 6 LIFE Alannah’s Avengers GoJoe - C ure G enetic D iseases Life with Liam All for Auntie Alyssa Good’s Gang Lil Boy Crooks Andrew Olvera Grant Immunity Lisa’s Stripes Archery Angels Grant’s Go Getters Lisa’s Team Autumn’s Team Gravell Girls Long B COSEY for Life Great Lakes Avengers Low Down Dirty Zebras Barb’s Walkers Grifols Lurie’s Children Baxter International Inc. Haemonetics MacKenzie Baylee’s Team Hahesy Maddie’s Herd Bickerman Herd Halper’s Helpers Madeline and her Daddy Bihn 44 Harper’s Team Madi’s (Ig)Gang Bikers Afoot Hart & Sole Magnum PI Krew Boston Strong Hill Climbers Maish Family Boys for PI Hope For CWH MakZebras Bradley’s Team Houston, We Have a Problem Mandy’s Immune Platoon Brandi’s Zebra Zoo Huskies MARS Inc. Brayden’s Zebra’s Believe Hypogamma Goblins Mavericks Brockin’ Zebras I Believe In Miracles Maverick’s Mission Burner Girl Zebras I Run for Seth Megan’s Immune Boosters Camden IgG America/US Bioservices/ASD Healthcare Melanna’s Misfits Catch ‘Em All In Memory of David Carey Memories of Madelyn Chelsee’s Herd Incredible Jaiden: BE STRONG! MGH-PID Christopher’s Cadre Infusion Partners - Melbourne Mighty Mighty Mason Chuck’s Champs Intouch Solutions Miles for Madison Claire Leah Iris’s Music Lovers MJ’s Team Claire’s Dream Team Isa is a Fighter Naranjitos Coram CVS/Specialty Infusion Services It’s a Hard Walk Life Niecy Corinthian Crusaders Ives Team Nip’s Life Support Cortes IVIG & Tonic No Big Diehl Courageous Zebras J&J’s Amazing Zebras Norachu’s Explorers CSL Champion Jaker’s Bug Stompers North Dallas Zebras Cure for Hunter Jenny’s Family NYC Greyhounds Curly Girl Club Jodi’s Team Owens Super Kids CVID Crushers Josie’s Helping Hand Pet People for PI Cynthia’s CVID Gang Justin’s Allstars Pivot Design David Center Walkers JustKaela Poretta & Orr, Inc. David’s W.A.S Warriors J-Walkers Prancercising Princesses Dorian’s Dream KAREN’S ZEBRAS Princess Kennedy: Team Zebra IDF Drennon Karissa and Rylee Pumping For Pattiann DWJ TEAM Kate’s Crusaders Purple Zebras Dylan’s Explorers Kathi B Rare breed Earning Our Stripes! Katie Kats Rastad for PI Kedrion Biopharma RETC CADETS

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2014 IDF Walk for Primary Immunodeficiency Teams cont.

TEAM NAME Team Gamma Girl Team Whitney Rock Of Polacci Team Green Team Zeb! Rock’n Ramundo’s Team Hammy Team Zebra Rose Warriors Team Hampton The Coat Ross/Rose Family for CVID Team Hoosiers The Duck Walkers!!! Run Reilly Team Hope The Elite Four Ryan’s Hope Team Hunter The Fighting Turtles Ryan’s Road Runners Team IDF The Jirsa Fam Ryder’s Stripes Team Inspiration The Out-of-Towners Sarah’s Journey Team Jackson! The Sub-Q-Tees Sassy Cygan steppers Team Jacob The Tortoise and the Zebras Savannah’s Blue Devils Team Jared The White Walkers Schorn Storm Team Jeannemarie The Wonders (Team Vogel) SCID Angels Team Joel The Woodlands Associates of Jack & Jill See Jane Walk Team Judy Koz! The Zack Pack Shooting Stars Team Justin The Zebrateers Silver Wolf Hybrids Team Kathleen ToKaVi SoCal Zebras Team Keel Tracy’s Troops Soldiers for Agammaglobulinemia Team Koopa’s Troopas Tremont Street Houligans SOLEO HEALTH Team Laura TRIGG Sonia Vohnout Team Levi Troop Ramus Spud’s Superstars! Team Liam TXImmunoGoblins Stacy Face Team Lisa U Cant See Me Starcon Striders Team Marcia Victorious Stripes Stephen’s Strollers Team Mason Wagner College Women’s Lacrosse Strides for Scaz Team Matthew - LIM Walgreens Infusion Services Sub-Qutie Carter Guidry Team McComsey Walgreens warriors Super Dawson Team MJ Walk for Casey SUPERBETH! Team Nate Walk to a Different Hoofbeat Superior Immune Globulins Team Naughton Walking for Ethan Take the lead with Ethan and Reed! TEAM NOAH WE CARE ABOUT RARE We don’t have a name yet Team Addie and Kenzie Team Olivia Welchlynn Team Aidan Team Palmer We’re OK Team Belser Team Pat West Coast Avengers Team Betts Team Penna West Side Stories Team Biofusion Team Pigott Westborough Rangers Football Team Team BioScrip Team Rath Whooties Team Boyders Team Rhode Island Wild Things Team BU Team RMS FREEDOM60 Wilson’s Wonders Team By-the-Sea Team Sam Xan Team Caeden Team Sebastian Zak Attack Team Central Florida Team Seth Zebra Cats Team CGD Team Somara Zebra Girls Team Chee Team Sophie Zebra Power Team CHOP Team Stacia Zebra Strong Team ClaudP Team Superman ZebraHeads Team Cole Team Tara Zebras Team CuKo Team Travis Zebra’s for K Team Cure Team Tuttle Zebras in Tiaras Team Dr. T. Team Vickers Team Fantastic Team Vineyard Team Frankie Team Wally Team Gabrielle Team Waya

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IDF Walk for Primary Immunodeficiency Sponsors 2014

National Presenting Sponsor Baxter International Inc.

National Supporting Sponsors CVS Caremark | Coram Specialty Infusion Services Grifols Horizon Pharma IgG America | ASD Healthcare | US Bioservices PepsiCo Walgreens – IG Therapy Program

Local Gold Sponsors CSL Behring***** Haemonetics Kedrion

Local Silver Sponsors Bio Products Laboratory** Downtown Pharmacy Octapharma Third Mind

Local Bronze Sponsors Accredo Healthcare Biofusion** Ethical Factor RX Soleo Health ******

**Two sites *****Five sites ******Six sites

The Immune Deficiency Foundation makes every effort to ensure the accuracy of donor and fundraiser lists. We extend our deepest regrets to any donor who may have been inadvertently omitted from this report. If you have a concern or correction, please contact us at 800-296-4433.

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