Advancing Employable Skills for Students with Autism
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												  Autism CARES Act of 2014’’PUBLIC LAW 113–157—AUG. 8, 2014 128 STAT. 1831 Public Law 113–157 113th Congress An Act To reauthorize certain provisions of the Public Health Service Act relating to autism, Aug. 8, 2014 and for other purposes. [H.R. 4631] Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled, Autism Collaboration, SECTION 1. SHORT TITLE. Accountability, This Act may be cited as the ‘‘Autism Collaboration, Account- Research, Education, and ability, Research, Education, and Support Act of 2014’’ or the Support Act ‘‘Autism CARES Act of 2014’’. of 2014. 42 USC 201 note. SEC. 2. NATIONAL AUTISM SPECTRUM DISORDER INITIATIVE. 42 USC 280i (a) IN GENERAL.—The Secretary of Health and Human Services note. shall designate an existing official within the Department of Health Consultation. and Human Services to oversee, in consultation with the Secretaries of Defense and Education, national autism spectrum disorder research, services, and support activities. (b) DUTIES.—The official designated under subsection (a) shall— (1) implement autism spectrum disorder activities, taking into account the strategic plan developed by the Interagency Autism Coordinating Committee under section 399CC(b) of the Public Health Service Act (42 U.S.C. 280i–2(b)); and (2) ensure that autism spectrum disorder activities of the Department of Health and Human Services and of other Federal departments and agencies are not unnecessarily duplicative. SEC. 3. RESEARCH PROGRAM. Section 399AA of the Public Health Service Act (42 U.S.C.
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												  Entire Issue (PDF 2MB)E PL UR UM IB N U U S Congressional Record United States th of America PROCEEDINGS AND DEBATES OF THE 116 CONGRESS, FIRST SESSION Vol. 165 WASHINGTON, WEDNESDAY, JULY 24, 2019 No. 125 House of Representatives The House met at 10 a.m. and was They grew up in families of very portunities for mentorship, profes- called to order by the Speaker pro tem- modest means. While working full sional development, and scholarships. pore (Mr. CUELLAR). time, Ralph began a one-man security The society invites members who are f business in 1963. What started as Lake dedicated to education in different Norman Security Patrol, Inc., ex- fields, both active and retired, to build DESIGNATION OF SPEAKER PRO panded into two of the most successful up future leaders at the local level. As TEMPORE businesses in North Carolina and the we all know, the local level is where The SPEAKER pro tempore laid be- country: Security Central and the best practices and policies in edu- fore the House the following commu- AlarmSouth. cation come from. nication from the Speaker: Ralph learned the importance of se- Knowing that young educators in the WASHINGTON, DC, curity while serving as a U.S. Army po- Fifth District have such talented and July 24, 2019. liceman and turned his knowledge into locally engaged women behind them I hereby appoint the Honorable HENRY security and patrol services for homes makes me very proud. These women CUELLAR to act as Speaker pro tempore on and commercial entities. are shining examples of the powerful this day.
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												  The Autism–Tics, ADHD and Other ComorbiditiesMårland et al. BMC Psychiatry (2017) 17:403 DOI 10.1186/s12888-017-1563-0 RESEARCH ARTICLE Open Access The Autism–Tics, ADHD and other Comorbidities inventory (A-TAC): previous and predictive validity Caroline Mårland1,2* , Paul Lichtenstein3, Alessio Degl’Innocenti1,2, Tomas Larson1, Maria Råstam4, Henrik Anckarsäter1, Christopher Gillberg5, Thomas Nilsson1 and Sebastian Lundström1,5 Abstract Background: Reliable and easy to administer screening instruments focusing on neurodevelopmental disorders and associated conditions are scarce. The Autism–Tics, AD/HD and other Comorbidities inventory (A-TAC) has previously been validated and reporting good– excellent validity for several disorders. This article aims to expand these findings by including more conditions in a substantially larger sample augmented with the Swedish National Patient Register (NPR). Methods: Since 2004 parents of all 9-year-old Swedish twins have been invited to participate in a telephone interview in the Child and Adolescent Twin Study in Sweden, CATSS. The CATSS is linked to the NPR which includes data from in- and outpatient care. Data on neurodevelopmental disorders (A-TAC) collected in CATSS were compared with diagnoses from the NPR. We investigated diagnoses that had been made both before (previous validity) and after (predictive validity) the interview. Results: Sensitivity and specificity of A-TAC scores for predicting earlier or later clinical diagnoses were mostly good–excellent, with values of the area under the curve for a clinical diagnosis of autism spectrum disorder (ASD) of .98, attention deficit hyperactivity disorder (ADHD) .93, learning disorder (LD) .92, and oppositional defiant disorder (ODD) .99, with small differences in terms of previous and predictive analyses.
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												  Autism Spectrum Disorders—A Genetics Review Judith HGENETEST REVIEW Genetics in Medicine Autism spectrum disorders—A genetics review Judith H. Miles, MD, PhD TABLE OF CONTENTS Prevalence .........................................................................................................279 Adenylosuccinate lyase deficiency ............................................................285 Clinical features................................................................................................279 Creatine deficiency syndromes..................................................................285 Core autism symptoms...................................................................................279 Smith-Lemli-Opitz syndrome.....................................................................285 Diagnostic criteria and tools..........................................................................280 Other single-gene disorders.......................................................................285 Neurologic and medical symptoms .............................................................281 Developmental syndromes of undetermined etiology..............................286 Genetics of autism...........................................................................................281 Moebius syndrome or sequence...............................................................286 Chromosomal disorders and CNVS..............................................................282 Landau-Kleffner syndrome .........................................................................286 Single-gene
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												  Key Findings from an Evaluation of the Autism CARES Research ProgramBuilding the Evidence Base: Key Findings From an Evaluation of the Autism CARES Research Program Autism CARES Act Legislation and Funding Autism spectrum disorder (ASD) is a range of developmental disabilities (DDs) affecting an estimated 1 out of 59 children.1 Individuals on the autism spectrum vary widely in their symptomatic presentation, sometimes exhibiting impairments in social communication and interaction and repetitive patterns of behavior, interests, and activities. Once diagnosed, individuals face numerous challenges accessing recommended health, education, and related support services. In 2014, the U.S. Congress passed the Autism Collaboration, Accountability, Research, Education, and Support (CARES) Act.2 Under the act, the Health Resources and Services Administration’s (HRSA) Maternal and Child Health Bureau (MCHB) supports grant programs that advance professional training, research, and the development of comprehensive, coordinated State systems of care for ASD and other DDs. HRSA has provided autism-related funding for programs since 2008. This document is one of four describing the activities and successes of the following types of grants: Autism Intervention Research Programs, including five research networks and two research grant portfolios: (1) Field-Initiated Innovative Research Studies, known as Autism-FIRST grants; and (2) Secondary Data Analysis Research, known as Autism-SDAR grants—as highlighted in this document Leadership Education in Neurodevelopmental and Other Related Disabilities (LEND) training programs
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												  GAO-17-352, YOUTH with AUTISM: Federal Agencies Should TakeUnited States Government Accountability Office Report to Congressional Requesters May 2017 YOUTH WITH AUTISM Federal Agencies Should Take Additional Action to Support Transition- Age Youth GAO-17-352 May 2017 YOUTH WITH AUTISM Federal Agencies Should Take Additional Action to Support Transition-Age Youth Highlights of GAO-17-352, a report to congressional requesters Why GAO Did This Study What GAO Found Research suggests that youth with According to GAO’s nationwide survey of school district special education ASD are less likely than youth with directors, GAO estimates that about 85 percent of districts in school year 2015- other disabilities to be successful in 16, provided youth with Autism Spectrum Disorder (ASD) services such as transitioning to work and instruction on life, social, and behavioral skills, as they transition from high postsecondary education and school to adulthood. ASD is a group of complex developmental disorders therefore, they may face a lifetime of characterized by difficulties with social interactions, communication, and reliance on public assistance. GAO repetitive behaviors. Districts provided these services as part of the planning for was asked to examine services the transition to adulthood required by the Individuals with Disabilities Education provided under IDEA to assist youth Act (IDEA). Fewer, though still a majority of, districts reported providing certain with ASD in transitioning to adulthood. types of employment-related supports. For example, GAO estimates that 69 For this report, GAO examined (1) services and supports provided to percent provided work experiences and 63 percent provided job coaching. While assist youth with ASD in transitioning the majority of districts reported providing transition services to students with to adulthood, (2) key challenges in ASD, the services provided varied by factors such as the size and poverty level successfully transitioning, and (3) the of the district, according to GAO’s analysis of survey responses.
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												  Young Adults and Transitioning Youth with Autism Spectrum Disorder2017 REPORT TO CONGRESS Young Adults and Transitioning Youth with Autism Spectrum Disorder Prepared by the: Department of Health and Human Services Submitted by the: National Autism Coordinator U.S. Department of Health and Human Services Cover Design Medical Arts Branch, Office of Research Services, National Institutes of Health Copyright Information All material appearing in this report is in the public domain and may be reproduced or copied. A suggested citation follows. Suggested Citation U.S. Department of Health and Human Services. Report to Congress: Young Adults and Transitioning Youth with Autism Spectrum Disorder. October 2017. Retrieved from the U.S. Department of Health and Human Services website: https://www.hhs.gov/sites/default/files/2017AutismReport.pdf Young Adults and Transitioning Youth with Autism Spectrum Disorder The Autism Collaboration, Accountability, Research, Education and Support Act (Autism CARES Act) of 2014 REPORT TO CONGRESS Submitted by the National Autism Coordinator of the U.S. Department of Health and Human Services August 3, 2017 Table of Contents Interagency Workgroup on Young Adults and Youth with Autism Spectrum Disorder Transitioning to Adulthood ................................................................................................ iv Steering Committee .................................................................................................... iv Members .................................................................................................................. iv OASH Stakeholder
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												  Navigating the Pathway to Diagnosis and Care for Individuals with Autism Spectrum DisorderNavigating the pathway to diagnosis and care for individuals with Autism Spectrum Disorder Nicholas Fears, Ph.D.; Karolina Kata, M.B.S., OMS-IV; Shannon Chang, OMS-III; Monica Nguyen, OMS-II; Abhinaya Ganesh, OMS-III; & Haylie Miller, Ph.D. July 20, 2019 Our Mission at UNTHSC: – Partner with stakeholders in the ASD community – Provide resources for individuals/families in need – Study sensorimotor function in ASD – Understand co-occurrence of ASD and other developmental disorders/conditions What to Expect Today: – Multiple short presentations that are all related – Some research data, some clinical evaluation – Lots of information in a short period of time – Many passionate, enthusiastic young scientists! ASD Diagnostic Criteria Social Communication Restricted, Repetitive Patterns & Social Interaction of Behavior or Interests Deficits in social or emotional Stereotyped motor behaviors reciprocity (hand flapping/rocking) Deficits in nonverbal communicative Insistence on sameness/routines behaviors (gestures/expressions) + Restricted interests abnormal in Deficits in developing, maintaining, intensity or focus & understanding relationships across multiple contexts Hyper- or hypo-reactivity to sensory (imaginative play/friendships) input or unusual sensory interest AND… Symptoms present in early development, cause clinically significant impairment, and are not better explained by intellectual disability or global developmental delay. Redefining Autism Spectrum Disorder (ASD): – Complex set of neurodevelopmental symptoms – Not just social
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												  Asperger and Schizophrenia: Between BoundariesASPERGER AND SCHIZOPHRENIA: BETWEEN BOUNDARIES Anna Massó1, Montserrat Vilà1, M. Gema Hurtado1, Santiago Batlle2, M. Teresa Campillo1 1Institut de Neuropsiquiatria i Adiccions, Centre Emili Mira, Parc de Salut Mar, Barcelona. 2Institut de Neuropsiquiatria i Addiccions, CSMIJ, Parc de Salut Mar, Barcelona Introduction Methods In psychopathology it is common co-occurrence of clinical disorders and Design: Retrospective analysis of clinical case. deciding to establish a comorbid or differential diagnosis is one of the Information of patient great challenges(1). An example is the one between Autism Spectrum Biography aspects: A 39-year-old male diagnosed with schizophrenia in infancy at age 11. Native of Barcelona. The younger of two brothers. Disorders (ASDs) and Schizophrenia Spectrum and Other Psychotic Currently single, he lives independently and is supervised by a foundation. He has a degree of disability of 65%, is inactive in the workplace Disorders (SSDs) whose distinction has been a topic of scientific dispute. but linked to a sports and volunteer program of the Association for the Rehabilitation of People with Mental Illness. Psychiatric family Before the 1970s, autism was conceived as a manifestation of childhood antecedents: a third-degree relative diagnosed of Schizophrenia and a third-degree relative diagnosed of Affective Disorder and Substance schizophrenia. Later, autism and schizophrenia were differentiated Consumption Disorder. Medical and psychiatric antecedents: No medical-surgical or substance use history. At age 6 he was linked to the according to the moment of appearance in the patients history and since (2) children's hospital due to problems in social interactions. that, the connection among both has been continually debated .
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											Does Autism Merit Belief? Developing an Account of Scientific Realism for PsychiatrySam Fellowes, BSc, MA Does autism merit belief? Developing an account of scientific realism for psychiatry Ph.D. Philosophy March 2016 1 Abstract Sam Fellowes, BSc, MA Does autism merit belief? Developing an account of scientific realism for psychiatry Ph.D. Philosophy March 2016 The PhD outlines criteria under which a psychiatric classification merits belief and, as a case study, establishes that autism merits belief. Three chapters respond to anti- realist arguments, three chapters establish conditions under which psychiatric classifications merit belief. Chapter one addresses the pessimistic meta-induction. I historically analyse autism to show there has been sufficient historical continuity to avoid the pessimistic meta induction. Chapter two considers arguments from underdetermination. I consider the strongest candidate for an alternative to autism, classificatory changes which occurred between 1980 and 1985. I argue this does not constitute underdetermination because those changes were methodologically and evidentially flawed. Chapter three considers theory-ladenness. I consider the two strongest candidates for background theories which might have a negative epistemic effect (cognitive psychology and psychoanalysis). I show these have little influence on what symptoms are formulated or how symptoms are grouped together. Chapter four argues against psychiatric classifications as natural kinds and against notions that inductive knowledge of psychiatric classifications requires robust causes. I outline psychiatric classifications as scientific laws. They are high level idealised models which guide construction of lower level, more specific, models. This opens alternative routes to belief for psychiatric classification lacking robust causes. Chapter five shows that psychiatric classifications can set relevant populations for deriving statistically significant symptoms. The same behaviour can count as statistically significant for one psychiatric classification but not another.
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												  NAS Richmond Info Pack December 2020AUTISM: A SPECTRUM CONDITION AUTISM, ASPERGER’S SYNDROME AND SOCIAL COMMUNICATION DIFFICULTIES AN INFORMATION PACK A GUIDE TO RESOURCES, SERVICES AND SUPPORT FOR AUTISTIC PEOPLE OF ALL AGES; THEIR FAMILIES, FRIENDS, ASSOCIATES AND PROFESSIONALS Produced by the National Autistic Society’s Richmond Branch. Online edition December 2020 Introduction 1 Introduction AN INTRODUCTION: WHAT WE OFFER The Richmond Branch of The National Autistic Society is a friendly parent-led group aiming to support families and autistic people in the borough. We hold coffee mornings, liaise with other groups and provide regular updates through emails and our Branch website. We are also working with our local authority and other professionals to improve access to health, social services and educational provision. Our core objectives are: Awareness, Support, Information Our present activities: Awareness and liaison. Networking and partnering with other local organisations, sharing expertise and working with them to improve services. Raising awareness and representing families and individuals affected by autism by involvement in the local authority’s implementation of the Autism Strategy, SEND plus other autism interest/pan-disability rights groups. Family and individual support. This is offered primarily via email support, plus our coffee mornings. Information. We aim to help and inform families and autistic people, and do so via: • Our Branch website. This gives details of our Branch and NAS Head Office’s activities, other groups, general activities and events, plus the online Information Pack. • The NAS Richmond Branch Information Pack. An essential guide to autism services and support. Written by local parents, the Information Pack aims to help anyone affected by autism or Asperger syndrome, including parents, carers and anyone else who provides support.
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												  Neurodiversity 10Th Annual Nurturing Developing Minds ConferenceNeurodiversity 10th Annual Nurturing Developing Minds Conference Manuel F. Casanova, M.D. SmartState Endowed Chair in Childhood Neurotherapeutics University of South Carolina Greenville Health System Conflict of Interests Neuronetics (TMS platform), Neuronetrix Incorporated, Clearly Present Foundation Pfizer, Eisai, Nycomed Amersham, Aventis Pasteur Limited, Medvantis Medical Service Council of Health Care Advisors for the Gerson Lehrman Goup Royalties: Springer, Nova, Taylor and Francis, John Wiley I am a physician who deals with individuals with neurodevelopmental disabilities and have a grandson with autism. Neurodiversity “A new wave of activists wants to celebrate atypical brain function as a positive identity, not a disability.” New York News and Politics “…neurological (brain wiring) differences, traditionally seen as disadvantages, are really advantages.” Fox and Hounds “What is autism: a devastating developmental disorder, a lifelong disability, or a naturally occurring form of cognitive difference akin to certain forms of genius?” SUPOZA.COM NEURODIVERSITY AND AUTISTIC PRIDE Individual with autism vs. Autistic Individual Control subject vs. Typically developing(TD) subject What message are you sending??? “Why is it that what makes me me, needs to be classified as a disability?” A child under 18 will be considered disabled if he or she has a medically determinable physical or mental impairment or combination of impairments that cause marked and severe functional limitations, that can be expected to cause death or that has lasted or can be expected to last for a continuous period of not less than 12 months. Normal variation in the human genome A social category rather than a medical disorder Includes autism, bipolar disorders, and other neurotypes It does not need to be cured ABA is specially pernicioius.