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Oct. 5-7, 2017 2017 Navigating the Future: Individualizing Patient Care in the Face of Increasingly Complex Treatment Options OCT. 5-7, 2017 Bethesda North Marriott 5701 Marinelli Rd, Hotel & Conference Center Rockville, MD 20852 The Pulmonary Hypertension Association would like to thank Bayer HealthCare for sponsoring the 2017 PH Professional Network Symposium Program Book. Dear Friends Dear Friends, Welcome to the 2017 PH Professional Network Symposium, Navigating the Future: Individualizing Patient Care in the Face of Increasingly Complex Treatment Options. Since our last meeting in 2015, the field of pulmonary hypertension has continued to evolve with new medical and surgical treatment options and exciting research. With that in mind, our committee has worked diligently to provide an outstanding variety of topics and speakers that will build on our past knowledge as well as provide us with the newest advances in pulmonary Table of Contents hypertension. We have chosen sessions for both adult and pediatric health care professionals that we hope to be forward looking and inspirational. 1 Welcome to Symposium Symposium also provides a perfect backdrop for networking with your PH Welcome from the PHA colleagues. Evaluations from previous Symposia told us that this is one of 2 Board Chair the most valued aspects of our meeting. This year, we will host the second Symposium Networking Fun Walk, which supports PHA Conference patient Symposium History Highlights scholarships. The poster session will also be a great opportunity to engage in 3 thought-provoking discussion and ideas and this year, for the first time, CE Symposium Faculty and credits will be awarded for attending the poster session. 4 Speakers We are very proud to feature yet another impressive lineup of speakers and topics. Symposium will open with our special guest speaker Theresa Brown, 6 Classifications of Pulmonary R.N., and continue with these exciting plenary sessions: Hypertension Two Decades of Change: A Look at How Far We Have Come and Where We Are Going 12 Schedule at a Glance James Klinger, M.D.; Maureen Seckel, APRN, ACNS-BC, CCNS, CCRN, Detailed Schedule FCCM 14 Clinically Important Pulmonary Vascular Phenotypes Across the 23 Abstracts Current WHO Categorization: the PVDOMICS Project Heidi Erickson, B.S.N., R.N.; Lillian Hansen, NP-C, M.S.N., M.S., M.Ed.; 62 Continuing Education Franz Rischard, D.O., M.S. Accreditations New Frontiers in Lung Transplantation PHA Resources Pablo Sanchez, M.D., Ph.D.; Fernando Torres, M.D. 67 PHA Leadership Novel Pathways for Treating PAH 69 We sincerely hope you enjoy the 2017 PHPN Symposium! It is our hope that 74 Hotel Map you find it both stimulating and valuable to your practice. We certainly hope you take home so much more than you came with. 75 Exhibit Map Sincerely, Michelle Cash, MSN, RN, APRN Martha Kingman, DNP, FNP-C Chair, Symposium Committee Vice-Chair, Symposium Committee and the 2017 Symposium Committee PHPN SYMPOSIUM 2017 1 Dear Colleagues PHPN Symposium Committee Dear Colleagues, Michelle Cash, Katie Lutz, M.S.N., R.N., APRN Research Assistant IV Thank you for joining us this weekend. Chair, Symposium Committee Cincinnati Children’s Hospital Your commitment to staying informed Cincinnati Children’s Hospital Medical Center on the latest pulmonary hypertension Medical Center Cincinnati Cincinnati research and participation in an open Jennalyn Mayeux, exchange of ideas with your fellow PH- Martha Kingman, D.N.P., APRN, FNP-C treating colleagues reflects a dedication D.N.P., FNP‐C University of Utah Vice Chair, Symposium Committee Salt Lake City to our mission to extend and improve University of Texas Southwestern the lives of those affected with PH. Medical Center Susie McDevitt, Dallas R.N., M.S.N., ACNP I have been involved with the Pulmonary Hypertension University of Michigan Health Association (PHA) since 2003, shortly after my daughter, Daniela Brady, System F.N.P. Ann Arbor, Mich. Jocelyn, was diagnosed with pulmonary arterial hypertension New York Presbyterian Hospital (PAH) after several years of symptoms that were misdiagnosed by - Columbia University Medical Regina Overton-Barnes, Center R.N., B.S.N., M.S.N., FNP-BC her primary care physician. Statcare Pulmonary New York City Knoxville, Tenn. It is incredibly important for people who have all types PH that Patricia Gresham, Abby Poms, their medical professionals are well educated and up-to-date on M.S.N., ANP-BC, CCRN UCSF-Fresno/ Community R.R.T., CCRP the incredible treatments that have been developed in recent E Squared Trials and Registries Regional Medical Center years. Programs like this Symposium are a significant source of Durham, N.C. Fresno, Calif. achieving that expectation. Barbara Prendes, Lauren Hulett, I am very blessed that Jocelyn continues to do incredibly well in M.S., ANP‐BC R.N., B.S.N., M.B.A. Department of Veterans Affairs University of Kansas Health her treatments and dealing with PAH, and I am very thankful for Tampa, Fla. people like you who make the serious effort to stay up-to-date on System Kansas City, Kan. Allyson Rupp, treatments and methods of care that benefit PH patients. M.S.W., LCSW Jessica Humphrey, I hope your participation in this Symposium will be very Vera Moulton Wall Center for PharmD, BCPS Pulmonary Vascular Disease at University of Kansas Health beneficial to you and your patients and provide a true sense of Stanford Health Care System hope for all participants. Stanford, Calif. Kansas City, Kan. Christopher Thomas, Thank you for your participation in the 2017 PH Professional Javier Jimenez, PharmD, EMBA, BCPPS Network Symposium. M.D., Ph.D., FACC Riley Hospital for Children at Baptist Health South| Herbert Indiana University Health Sincerely, Wertheim School of Medicine Indianapolis Florida International University South Miami, FL Diahann Wilcox, D.N.P., APRN, ACNP-BC Tisha Kivett, University of Connecticut R.N., B.S.N. Farmington, Conn. Riley Hospital for Children at Roger K. Towle Indiana University Health Tonya Zeiger, Chair, PHA Board of Trustees Indianapolis R.R.T., CPFT Mayo Clinic Florida Robyn Kunkel, Jacksonville, Fla. PA-C University of Minnesota Heart Care Edina, Minn. 2 PHPN SYMPOSIUM 2017 Symposium History Highlights PH Professional Network (PHPN) is a community of more than 400 PH-treating health care professionals dedicated to enhancing Pcommunication and professional development and furthering pulmonary hypertension research and education. For the last 14 years, PHPN has provided the opportunity to learn from and network with other PH-treating health care professionals at a biennial Symposium. Celebrate the history of PH Professional Network Symposium by viewing the commemorative anniversary banners hanging in the Exhibit Hall Salon A-D. PH Resource Network Care Summit PH Professional Network Symposium 2003Expand, Explore, Exchange 2011Inspiring Hope: New Directions in PAH Bethesda, Md. Arlington, Va. In spring 2003, the newly-launched PH Resource In 2011, the PH Professional Network (PHPN) changed Network assisted in cohosting a first-time educational its name from PH Resource Network to more accurately program, PH Resource Care Summit. More than 60 reflect the increasing diversity of professional disciplines medical professionals attended the program, which set the among its members. This Symposium was the first that stage for future Symposia. the group hosted under its new name. PH Resource Network Symposium PH Professional Network Symposium 2005Learning Together, Moving Forward 2013The Power of Teamwork: 10 Years of Bethesda, Md. Professional Collaboration in PAH The 2005 Symposium was the first program fully planned Arlington, Va. and hosted by the PH Resource Network. A total of 300 The 2013 Symposium offered optional session tracks for medical professionals participated in educational sessions, the first time for certain disciplines including pharmacists, networking and advocacy. More than 40 Congressional respiratory therapists, social workers and pediatric-treating visits were made during the Advocacy Day portion of the health care professionals. These session tracks highlighted program. the continued growth in diversity among PHPN membership. PH Resource Network Symposium 2007PHenomenal Progress in PH: Bringing Advances PH Professional Network Symposium into Practice 2015Setting the Pace in the PH Race through Arlington, Va. Education, Research and Advocacy PHPN’s 2007 Symposium program was not only Arlington, Va. informative with educational perspectives, but more In 2015, PHPN hosted its first networking walk at interactive as well. Breakout sessions included practical Symposium. Walk participants are able to spend more topics on PH therapies and how to start a PH program. time networking with their peers while supporting their patients by fundraising for patients’ scholarships to PHA’s 2016 International PH Conference and Scientific PH Resource Network Symposium Sessions. 2009Leading Progress, Creating Partnerships: Empowering the Interdisciplinary PH Team Arlington, Va. PH Professional Network Symposium 2017Navigating the Future: Individualizing Patient The theme chosen for the 2009 Symposium depicted Care in the Face of Increasingly Complex the need for collaboration among all health professional Treatment Options disciplines in treating PH. With that goal in mind, this Symposium offered dual track sessions for the first North Bethesda, Md. time, which allowed for targeted education for new and In 2017, Symposium offers the opportunity to earn seasoned PH-treating health care professionals.
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