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Understanding Brain Tumours a Guide for People with Brain Or Spinal Cord Tumours and Their Families and Friends

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Understanding Brain Tumours a Guide for People with Brain Or Spinal Cord Tumours and Their Families and Friends Understanding Brain Tumours A guide for people with brain or spinal cord tumours and their families and friends. Understanding Brain Tumours A guide for people with brain or spinal cord tumours and their families and friends. First published 1995 (as Brain Cancer) Revised: 2003, October 2005, March 2009. © Cancer Council New South Wales 2009 ISBN 978-1-921041-77-8 Understanding Brain Tumours is reviewed approximately every two years. Check the publication date above to ensure this copy of the booklet is up to date. To obtain a more recent copy, phone the Cancer Council Helpline on 13 11 20. Acknowledgements We thank the reviewers of this booklet: Professor Brian Owler, Consultant Neurosurgeon, The Children’s Hospital at Westmead; Lindy Cohn, Helpline Consultant, Cancer Council NSW; Laraine Cross, Senior Clinician, Social Work, Calvary Mater Newcastle; and Dr Helen Wheeler, Medical Oncologist, Royal North Shore Hospital and North Shore Private Hospital. Editor: Laura Wuellner Cartoonist: Greg Smith Cancer Council New South Wales Cancer Council is the leading cancer charity in NSW. It plays a unique and important role in the fight against cancer through undertaking high-quality research, advocating on cancer issues, providing information and services to the public and people with cancer, and raising funds for cancer programs. This booklet is funded through the generosity of the people of NSW. To make a donation to help defeat cancer, phone 1300 780 113 or visit Cancer Council’s website at www.cancercouncil.com.au. Note to reader Before commencing any health treatment, always consult your doctor. This booklet is intended as a general introduction to the topic and should not be seen as a substitute for your own doctor’s or health professional’s advice. All care is taken to ensure that the information contained here is accurate at the time of publication. Cancer Council New South Wales 153 Dowling Street Woolloomooloo NSW 2011 Cancer Council Helpline: 13 11 20 Telephone: (02) 9334 1900 Facsimile: (02) 9334 1741 Email: [email protected] Website: www.cancercouncil.com.au Introduction This booklet has been prepared to help you understand more about brain and spinal cord tumours. It provides information about malignant (cancerous) and benign (non-cancerous) tumours, which are diagnosed and treated similarly. Many people feel understandably shocked and upset when told they have a tumour. We hope this booklet will help you understand how brain and spinal cord tumours are diagnosed and treated. We also include information about support services. We cannot advise you about the best treatment for you. You need to discuss this with your doctors. However, we hope this information will answer some of your questions and help you think about questions you want to ask your doctors or other health carers. You may like to pass this booklet to your family and friends for their information. This booklet does not need to If you’re reading this booklet be read from cover to cover – for someone who doesn’t just read the parts that are understand English, contact useful to you. the Cancer Council Helpline on 13 11 20 for services Some medical terms that may available in different be unfamiliar are explained in languages (see page 43). the glossary. Introduction 1 Contents What is cancer? ............................................................................................................... 4 The brain and spinal cord ........................................................................... 6 Nerve cells ........................................................................................................................................... 7 What is a brain or spinal cord tumour? ............................ 8 Causes ..................................................................................................................................................... 9 Symptoms ......................................................................................................................................... 10 How common are brain and spinal cord tumours? ............................. 12 Diagnosis .................................................................................................................................. 13 Physical examination ............................................................................................................. 13 CT scan ................................................................................................................................................ 13 MRI scan ............................................................................................................................................ 14 Further tests ................................................................................................................................... 15 Grading tumours ........................................................................................................................ 16 Prognosis ........................................................................................................................................... 16 Which health professionals will I see? .............................................................. 17 Treatment ................................................................................................................................. 18 Surgery ................................................................................................................................................. 18 Radiotherapy .................................................................................................................................. 21 Chemotherapy .............................................................................................................................. 23 Other therapies ........................................................................................................................... 25 Palliative treatment ................................................................................................................. 25 Rehabilitation ................................................................................................................... 26 Types of rehabilitation .......................................................................................................... 27 Driving ................................................................................................................................................... 28 2 Cancer Council NSW Making treatment decisions ................................................................ 29 Decision-making steps ....................................................................................................... 30 Talking with doctors ............................................................................................................... 31 Taking part in a clinical trial ............................................................................................. 32 Looking after yourself ...................................................................................... 33 Healthy eating ............................................................................................................................... 33 Being active ..................................................................................................................................... 34 Complementary therapies .............................................................................................. 35 Strengthening your relationships ............................................................................ 36 Changing body image .......................................................................................................... 36 Sexuality, intimacy and cancer ................................................................................... 37 Life after treatment ................................................................................................................. 38 Seeking support ........................................................................................................... 40 Practical and financial help ............................................................................................. 41 Understanding Cancer program ............................................................................... 41 Talk to someone who’s been there ....................................................................... 42 Cancer Council Helpline .................................................................................................... 43 Caring for someone with cancer ............................................................................. 44 Caring for a child with a brain tumour ................................................................ 44 Information on the Internet ........................................................................................... 48 Cancer information library ............................................................................................... 49 Question checklist .................................................................................................... 50 Glossary ...................................................................................................................................... 51 How you can help .................................................................................................... 56 Regional offices
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