Embracing Independence Service Users’ Stories
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dtVoice Issue 29, Summer 2014 Helping you stay informed about the work of The Disabilities Trust Embracing independence Service users’ stories A grand interview A shining Highlighting We speak to example at 25 concerns Temple Grandin Shinewater Court Policy and celebrates campaigns update The Disabilities Trust is a Registered Charity No. 800797/SC038972 www.thedtgroup.org Welcome Welcome to our latest Contents edition of dtVoice. News Shinewater Court celebrates 25 years 1 Planting success at The Maples 2 Award winning consultant An introduction 3 Battle of The Bands Rocking on 4 Tŷ Aberdafen update DJ in the house! 5 Celebrations at Avenue Road Rosegarth opening Barrie Oldham, Chief Executive Year of the Brain in Europe 6 elcome to the Matters of legislation are summer edition still front of mind and we Our amazing supporters of dtVoice. The have been campaigning for Event schedule Up on the roof 7 Wtheme of this issue is ‘Embracing good and consistent care Independence’ and celebrates within the Care Act, due for Features the achievements of those we implementation in April 2015. Embracing independence - support in determining how they Rachel 8 want to live their lives. Stories No dtVoice would be Embracing independence - come from across the UK and complete without coverage Matt 9 cover all the Trust’s divisions. of fundraising where we have the opportunity to thank all Embracing independence - We have enjoyed celebrating of those who have taken part, Velma 10 some significant anniversaries; a as organisers, competitors Embracing independence - maple tree was planted at ‘The or volunteers; we report Charlotte 11 Maples’ a year after the rebuild on a Battle of the Bands in Insight into a day: which has significantly enhanced support of BIRT and lots and Foundation Linkworker 12 the service users’ independence. forthcoming events. A grand interview 13 At the other end of the scale, Baking off for Shinewater Court has just I hope you enjoy the autism awareness 14/15 celebrated its 25th anniversary. magazine and we would Also, a brand new service, love to hear your views Comment The BIRT Centre for Wales, Tŷ via csscommunications@ Policy and campaigns update 16/17 Aberdafen, has opened. thedtgroup.org How to help The Disabilities Trust, First Floor, Tel: 01444 239 123 Leaving a gift 18 32 Market Place, Burgess Hill, Fax: 01444 244 978 West Sussex, RH15 9NP Email: [email protected] The Disabilities Trust is a Registered Search ‘The Disabilities Trust’ @theDTgroup Charity No. 800797. Scotland Registered Charity No. SC038972. www.thedtgroup.org News A shining example at 25 years he opening of Shinewater 1987 when the roof was literally Court in Eastbourne about to be placed. marked a very important So great was the demand for the Tlandmark in The Disabilities Trust’s service that the staff had to sift history. It was the second purpose through over 300 applications for built service commissioned by residency at the service in order the Trust, developed to meet to select the 30 service users. increasing demand for provision for people with severe and Shinewater Court was formally complex disabilities. opened by The Princess of Wales, on 30th May 1989, a momentous day which users to live as independent a saw hundreds lifestyle as possible. All rooms of people in have an intercom system, digital attendance. televisions, profiling beds and Diana was given overhead electronic hoists. There a full tour of is also eye tracking computer Shinewater Court equipment as well as the latest and met with WiFi networking hardware. many service users This promotes independence, and members of Work commenced on maximises individual choice and staff, as well as visiting the flats aids communications. Shinewater Court in 1986. The and treatment rooms. A special development was built as a dinner was put on by Eastbourne Carol Wade reflects back how quadrangle and comprised Catering College and speeches she came to work for the Trust: bungalows, flats and bed-sitting were made. Carol Wade, Service rooms for up to 30 adults, and Manager said: “There has never I applied for a Head had been made possible by the been a day like it since; police of Care post and was generous support of the Ernest arrived at 5am to start the day, offered the job on the Kleinwort Charitable Trust. followed shortly after by the spot, which wouldn’t Progress was unexpectedly Princess’s Lady in Waiting.” happen now! I remember hampered by the great storm of being really impressed Twenty five years by the organisation, even later Shinewater though they only had two Court continues to services at the time. The support people with philosophy of support severe and complex and even the layout of disabilities. Some of the building was very the greatest changes unique. Every service user over the years have had their own bedsit with been the introduction an en-suite bathroom, of assistive technology something quite and communications, uncommon at that time. enabling service dtVoice Summer 2014 - 1 News Growing success The new building replaced a three-storey Victorian building which had become outdated. The centre has a team of specialist staff who provide speech, language, music and art therapy. There is also a holistic support service that allows residents to carry out tasks such L-R: Anna Headley, Cllr. Dorothy Brown and service user Alex Burton as shopping. Anna Headley, Director he Maples service and Asperger’s and the staff are of Autism Spectrum in Reading has just wonderful people. The centre Partners, spoke of the progress celebrated the first enables the residents to live since the development: “We Tanniversary of its new £1.5 independent lives and it must are delighted to have obtained million building. The Maples bring great happiness to be able such an excellent achievement is run by Autism Spectrum to live in such fantastic and with our latest CQC report and Partners. It provides both peaceful surroundings.” this is a really positive reflection supported and independent on the staff and service users at There are 16 residents living in accommodation for adults with The Maples. As we are growing, three bungalows with eight autism and Asperger syndrome. we are also now looking to studio apartments which have increase our support team, so A maple tree was planted in en-suite accommodation and we are now actively starting to the grounds of the service at cooking facilities as well as eight recruit more high quality and Tokers Green to mark both the bedrooms, also with en-suites, dedicated staff to support our occasion and a report by the for those needing more support. service users in the new purpose Care Quality Commission (CQC) There are shared facilities built development. Our staff which found the centre had met including a dining room, are a vital part of a long-term all required standards. laundrette, activities room, investment in the lives of our Around 50 guests attended sensory garden and green gym. service users at The Maples.” the ceremony, including family members, at which Chairman of South Oxfordshire District The last year has been hugely successful. The service Council, Dorothy Brown, users have had a great year with many new opportunities planted the tree. and their quality of life is quite different. As a Trust, the After a tour of the complex, service users are at the centre of everything we do and Councillor Brown said: “The their progress is hugely important to us. Maples is the most wonderful Barrie Oldham, Chief Executive facility for people with autism 2 - www.thedtgroup.org Award winning Consultant ongratulations to routines as a prompting system. Dr Brian O’Neill, our The finalists had been carefully Consultant Clinical selected from many and varied CPsychologist at the Brain competitive nominations. Injury Rehabilitation Trust Amongst BIRT colleagues who service in Glasgow, Graham attended the awards dinner was Anderson House. Dr O’Neill the Director of BIRT, has won the LaingBuisson Susan Munroe: ‘Innovation’ category of the 2014 Independent Specialist “Dr O’Neill leads an Care Awards. The award was excellent neurobehavioural presented by Maria Davies multidisciplinary team at Dr Brian O’Neill from LaingBuisson and Michael Graham Anderson House in Portillo at a glittering awards Glasgow, serving people with dinner for the finalists. very challenging behaviour severe cognitive impairment and/or complex needs after to live independently. We Dr O’Neill was nominated by brain injury. We are delighted are very excited about the BIRT for the Guide project that he has won this award and range of applications that his that enables users with a brain celebrate recognition of the development, Guide, has and the injury to access technological ground breaking work he has potential impact it can have on support during their daily done to enable people with so many people.” Clinical Director appointment the Institute of Neurological to the Trust. She offers us a Sciences in Glasgow. She has considerable wealth of knowledge over 25 years of clinical, teaching and experience which will help us and research experience in enhance the Trust’s reputation for Clinical Neuropsychology. high quality support for people Barrie Oldham said: ‘I am with brain injury, autism and delighted to welcome Dr Copstick physical disabilities.’ I am very excited to have the opportunity to support and develop both BIRT’s excellent clinical services and Dr Sue Copstick the work of the Trust more widely. The ethos of the Trust is particularly appealing to me because of its r Sue Copstick has commitment to provide quality support for people commenced her post as the charity’s with complex disabilities, to undertake ground-breaking DClinical Director. She joins research and to pilot new ways of supporting people.