Care-Seeking for Birth in Urban India

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Care-Seeking for Birth in Urban India 1 The London School of Economics and Political Science Care-Seeking for Birth in Urban India Eleri Jones A thesis submitted to the Department of Social Policy of the London School of Economics for the degree of Doctor of Philosophy, London, January 2015 2 Declaration I certify that the thesis I have presented for examination for the PhD degree of the London School of Economics and Political Science is solely my own work other than where I have clearly indicated that it is the work of others (in which case the extent of any work carried out jointly by me and any other person is clearly identified in it). The copyright of this thesis rests with the author. Quotation from it is permitted, provided that full acknowledgement is made. This thesis may not be reproduced without my prior written consent. I warrant that this authorisation does not, to the best of my belief, infringe the rights of any third party. I declare that my thesis consists of 77,245 words. Eleri Jones 3 Abstract The thesis examines care-seeking for first births in low-income settlements of urban India. Care-seeking is framed as a dynamic, social process. The thesis shifts the research focus from non-use of maternity services to a more holistic notion of care-seeking strategies, and examines how they are shaped by patterned social relationships and their content. The study combines a prospective, qualitative design with multiple household perspectives. Seventy-seven in-depth interviews were conducted in 16 households. Matched data were collected for primiparous women and other household members, and interviews were conducted prospectively during pregnancy with a follow-up after birth. The study was conducted in Indore, a large city in the central Indian state of Madhya Pradesh, where a range of maternity care providers operate in a complex urban health system. This population could be characterised as strategic care-seekers, aware and discriminating across the range of care options available. Managing perceived risks was central to strategies, but solutions differed due to variation in perceptions of risks and their management. The notion that childbirth requires medical management was dominant. Yet, health facilities were also regarded as a potential source of risk. Strategies were plural and contingent, combining different providers across and within sectors, giving households control and flexibility in dealing with unfolding circumstances. Local narratives apportion responsibility for care-seeking to the household in which the woman is staying for the birth. The value placed locally on household-level ‘responsibility’ contrasts with the focus on women’s autonomy in the literature on maternal health. A corollary of responsibility is blame in the event of an adverse outcome, which impels households to seek care that meets expectations among their social ties. The thesis generates new insight on an issue that has previously been examined largely with static approaches, underpinned by individual rational actor assumptions. Findings reveal care-seeking strategies that go beyond a decision on whether or not to use a health facility. This partly derives from a complex urban health system providing choice, but it is also a response to the challenges households face in negotiating the health system to receive care they perceive to be ‘safe.’ The findings have implications for the policy goals of increasing births with a skilled attendant and improving quality of care. 4 Acknowledgements I gratefully acknowledge financial support I received from the Economic and Social Research Council (UK) and subsequently the Department of Social Policy at the London School of Economics (LSE). I am enormously grateful to Dr. Siddharth Agarwal, Neeraj Verma and other staff at the Urban Health Resource Centre (UHRC) for their hospitality, kindness and guidance during my time in Indore. Special thanks to Shabnam Verma at UHRC for her support, patience and hard work while assisting the research and for our many interesting discussions. I am grateful to the contacts who introduced Shabnam and me to the study households. Most of all, the research would not have been possible without the study participants who shared their stories, their homes and their time. I cannot thank my supervisors, Ernestina Coast and Tiziana Leone, enough for their encouragement, guidance and support throughout the research process. They have been truly inspiring mentors. Thank you also to Divya Parmar for reading and commenting on a draft of the methodology chapter. And I am very grateful to have been surrounded by wonderful friends at the LSE, who have made the PhD such an enriching experience. In particular, I would like to thank Paul Bouanchaud, Anne Marie Brady, Louise Caffrey, Valeria Cetorelli, Rachel Deacon, Victoria de Menil, Emily Freeman, Alice Goisis, Ellie Hukin, Else Knudsen, Sam Lattof, and Heini Väisänen. Finally, my heartfelt thanks to family and friends for always being there. Thank you in particular to my partner Alex Andreyev, who has supported me in every way possible over the past four years, kept me going and kept me smiling. And words cannot express my gratitude to my parents, Gareth Jones and Rita Jones. I owe everything to their love, support and belief in me. 5 For my father, Gareth Jones 6 Contents Lists of Tables and Figures ..................................................................................................... 9 Acronyms, glossary and translations .................................................................................... 10 Key to interview excerpts ..................................................................................................... 13 1. Introduction ....................................................................................................................... 14 1.1 Background ................................................................................................................. 14 1.2 Literature on maternity care-seeking in India ............................................................. 16 1.3 Research questions and outline ................................................................................... 21 2. Health Care-Seeking Framework ...................................................................................... 25 2.1 Introduction ................................................................................................................. 25 2.2 Dominant models of health care-seeking .................................................................... 25 2.3 Frameworks in studies of maternity care-seeking ...................................................... 27 2.4 Critiques of dominant health care-seeking models ..................................................... 29 2.5 Alternative health care-seeking approaches ................................................................ 33 2.6 The study’s care-seeking framework .......................................................................... 36 2.7 Summary ..................................................................................................................... 39 3. The Study Context ............................................................................................................ 41 3.1 Introduction ................................................................................................................. 41 3.2 Socioeconomic context ............................................................................................... 41 3.3 The context of marriage and childbearing .................................................................. 47 3.4 Trends in maternal health, health care and policy ...................................................... 49 3.5 Current maternal health care scenario ......................................................................... 55 3.6 The field site: Indore ................................................................................................... 60 3.7 Summary ..................................................................................................................... 66 4. Methodology ..................................................................................................................... 67 4.1 Introduction ................................................................................................................. 67 4.2 Research design .......................................................................................................... 67 4.2.1 Multiple household perspectives .......................................................................... 68 4.2.2 Prospective design ............................................................................................... 70 4.3 Fieldwork .................................................................................................................... 73 4.3.1 Research assistant ................................................................................................ 75 4.4 Household sample ....................................................................................................... 76 4.4.1 Sample summary .................................................................................................. 80 7 4.5 Household interviews .................................................................................................. 85 4.6 Key informant interviews ........................................................................................... 89 4.7 Data
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