Self-Determination and American Indian Health Care
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Self-Determination and American Indian Health Care: The Shift to Tribal Control Stephen Cornell, Miriam Jorgensen, Stephanie Carroll Rainie, Rachel Starks, and Maura Grogan, 5th Bi-Annual International Network of Indigenous Health Knowledge and Development Conference Image courtesy of the Honoring Nations September 2012 Presentation Roadmap ¤ Background ¤ Provision of health services for AIAN peoples ¤ Examples ¤ Research results ¤ What others have said ¤ Research questions ¤ What is tribal control? ¤ Some positive effects ¤ Some challenges ¤ Implications Term: American Indian or Alaska Native (AIAN) Copyright © 2010-2012 Arizona Board of Regents, on behalf of The University of Arizona. Background Provision of Health Services for AIAN Peoples Copyright © 2010-2012 Arizona Board of Regents, on behalf of The University of Arizona. Health Service Provision U.S. Census Bureau, Population Division, “Annual Estimates of the Resident Population by Sex, Race, and Hispanic Origin for the United States: April 1, 2000 to July 1, 2009 (NC-EST2008-03),” http://www.census.gov/popest/national/asrh/NC-EST2009-srh.html (accessed 20 December 2010). • Treaty/trust responsibility • Reservation health care is a federal responsibility. The Indian Health Service (IHS) within the Department of Health and Human Services has long been the primary agency delivering health care to reservation populations. • Federal policy of tribal self-determination • Begun in the mid-1970s for a number of services previously managed by the federal government. • Since the 1980s, a growing number of Native nations have taken over management of various aspects of health-care delivery, applying existing sources of community strength and resiliency to tribal control of health care management. • Does tribal management lead to better health-care delivery than direct IHS management? Copyright © 2010-2012 Arizona Board of Regents, on behalf of The University of Arizona. Health Service Provision U.S. Census Bureau, Population Division, “Annual Estimates of the Resident Population by Sex, Race, and Hispanic Origin for the United States: April 1, 2000 to July 1, 2009 (NC-EST2008-03),” http://www.census.gov/popest/national/asrh/NC-EST2009-srh.html (accessed 20 December 2010). • IHS serves 2m people from 566 tribes through • IHS direct health care services administered 12 area offices and 163 IHS and tribally managed service units. • Tribally-operated health care services Tribal facilities are operated under the authority of the Indian Self-Determination and Education Assistance Act (Public Law 93-638, as amended), Titles I and V (self-determination and self- governance contracts). • 82 Title V compacts (337 tribes; nearly 60% of tribes) • 231 Title I contracts • Urban Indian health care services and resource centers There are 33 urban programs, ranging from community health to comprehensive primary health care services. Approximately 600,000 American Indians and Alaska Natives reside in counties served by urban Indian health programs. U.S. Indian Health Service. “IHS Fact Sheets: IHS Year 2012 Profile – January 2012,” http://www.ihs.gov/PublicAffairs/IHSBrochure/Profile.asp Copyright © 2010-2012 Arizona Board of Regents, on behalf of The University of Arizona. Examples of Differences in Service U.S. Census Bureau, Population Division, “Annual Estimates of the Resident Population by Sex, Race, and Hispanic Origin for the United States: April 1, 2000 to July 1, 2009 (NC-EST2008-03),” http://www.census.gov/popest/national/asrh/NC-EST2009-srh.html (accessed 20 December 2010). Provision Tribe A Tribe B ¤ Title V compact combined ¤ Some Title I contracts with other funds ¤ Direct IHS primary care ¤ Tribally managed health- care services with many specialties available ¤ Direct IHS hospital care ¤ Another tribe provides ¤ Specialty care at distance hospital services ¤ Tribal health department ¤ Tribal health department ¤ Tribal programs ¤ Tribal programs Copyright © 2010-2012 Arizona Board of Regents, on behalf of The University of Arizona. The Shift to Tribal Control Copyright © 2010-2012 Arizona Board of Regents, on behalf of The University of Arizona. Study Population U.S. Census Bureau, Population Division, “Annual Estimates of the Resident Population by Sex, Race, and Hispanic Origin for the United States: April 1, 2000 to July 1, 2009 (NC-EST2008-03),” http://www.census.gov/popest/national/asrh/NC-EST2009-srh.html (accessed 20 December 2010). These conclusions represent a series of interviews and case studies conducted from 2005-2010. • The interview populaon included 18 tribal leaders, tribal employees, and academics. • The case study populaon includes six anonymous federally recognized, reservaon-based American Indian naons that accepted the invitaon to par;cipate in the research. • Since this research is part of a larger project funded by the W. K. Kellogg Foundaon, two-thirds of the American Indian naons that par;cipated in this work were in the three states designated as focus areas for the Kellogg Foundaon: Michigan, Mississippi, and New Mexico. Copyright © 2010-2012 Arizona Board of Regents, on behalf of The University of Arizona. What Have Others Said? Management in Other Arenas U.S. Census Bureau, Population Division, “Annual Estimates of the Resident Population by Sex, Race, and Hispanic Origin for the United States: April 1, 2000 to July 1, 2009 (NC-EST2008-03),” http://www.census.gov/popest/national/asrh/NC-EST2009-srh.html (accessed 20 December 2010). • In the US, previous research indicates that American Indian nations taking advantage of federal opportunities for self-determination have experienced positive effects in such areas as economic development, land management, and policing (Berry 2009; Cornell and Kalt 2007; Edwards, Morris, and Red Thunder 2009; Harvard Project on American Indian Economic Development 2006; Krepps and Caves 1994; Wakeling, Jorgensen, Michaelson, and Begay 2001). • In Canada, Indigenous local control of health care services improved hospitalization rates (Lavoie et al. 2010), and exertion of First Nations practical-self rule reduced adolescent suicide rates (Chandler and Lalonde 2008; Chandler and Lalonde 1998). • In short, tribal control in a variety of arenas has produced practical benefits in the welfare of Native nations. Does this hold true for health care services provision? Copyright © 2010-2012 Arizona Board of Regents, on behalf of The University of Arizona. References Berry, Alison. 2009. "Two Forests Under the Big Sky: Tribal v. Federal Management." Bozeman, Montana. Chandler, M.J. and C.E. Lalonde. 2008. "Cultural continuity as a protective factor against suicide in First Nations youth." Horizons U.S. Census Bureau, Population Division, “Annual Estimates of the Resident Population by Sex, Race, and Hispanic Origin for the United States: April 1, 2000 to July 1, 2009 (NC-EST2008-03),” http://www.census.gov/popest/national/asrh/NC-EST2009-srh.html (accessed 20 December 2010). 9:13-24. Chandler, Michael J. and Christopher Lalonde. 1998. "Cultural Continuity as a Hedge against Suicide in Canada's First Nations." Transcultural Psychiatry 35:191-219. Cornell, Stephen E. and Joseph P. Kalt. 2007. "Two Approaches to Economic Development on American Indian Reservations One Works, the Other Doesn't." in Rebuilding Native Nations: Strategies for Governance and Development edited by M. Jorgensen. Tucson, AZ: University of Arizona Press. Edwards, Karen, Peter Morris, and Sharon Red Thunder. 2009. "Exercising Sovereignty and Expanding Economic Opportunity Through Tribal Land Management." The First Nations Development Institute and the National Congress of American Indians Policy Research Center, Washington, DC. Harvard Project on American Indian Economic Development. 2006. "Honoring Nations: Celebrating Excellence in Tribal Governance " Harvard University, John F. Kennedy School of Government, Cambridge, MA. Krepps, Matthew B. and Richard E. Caves. 1994. "Bureaucrats and Indians: Principal Agent Relations and Efficient Management of Tribal Forest Resources." Journal of Economic Behavior and Organization 24:133-151. Lavoie, Josee Gabrielle, Evelyn L. Forget, Tara Prakash, Matt Dahl, Patricia Martens, and John D. O'Neil. 2010. "Have investments in on-reserve health services and initiatives promoting community control improved First Nations' health in Manitoba?" Social Science & Medicine 71:717-724. Wakeling, Stewart, Miriam Jorgensen, Susan Michaelson, and Manley Begay. 2001. "Policing on American Indian Reservations." Washington DC: National Institute of Justice, U.S. Department of Justice. Copyright © 2010-2012 Arizona Board of Regents, on behalf of The University of Arizona. What Have Others Said? U.S. Census Bureau, Population Division, “Annual Estimates of the Resident Population by Sex, Race, and Hispanic Origin for the United States: April 1, 2000 to July 1, 2009 (NC-EST2008-03),” http://www.census.gov/popest/national/asrh/NC-EST2009-srh.html (accessed 20 December 2010). Health Care Services Management • Six comparison studies, published 1996-2002, analyzed data from 1980s-2001, excluded case studies • Four studies said tribal management leads to improved quality, expanded coverage, and easier access to health care services. • Six studies identified considerations for tribes to contemplate when moving toward tribal management or while managing health care services. • Five categories: funding, institutional, treaty and trust responsibilities, information needs, and access to health care services. Copyright © 2010-2012 Arizona Board