Information to Accompany Patients Undergoing Nuclear Medicine Procedures
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HSE Health & Safety Executive Information to accompany patients undergoing nuclear medicine procedures Prepared by the Royal Surrey County Hospital and the University of Surrey for the Health and Safety Executive 2006 RESEARCH REPORT 416 HSE Health & Safety Executive Information to accompany patients undergoing nuclear medicine procedures Claire Greaves1, Victoria Senior2, Julie Barnett2, Marie Clark2, Joanna Pope2 and Paul Hinton1 Royal Surrey County Hospital 1Medical Physics Department Royal Surrey County Hospital Guildford Surrey GU2 7XX University of Surrey 2Department of Psychology University of Surrey Guildford Surrey GU2 7XH The aim of this research was to investigate information on restricting the exposure to radiation from nuclear medicine patients following diagnostic and therapeutic procedures. It comprised an audit of current practice in UK departments and interviews and focus groups exploring the views and experiences of patients and professionals. The majority of departments provide verbal and/or written information on restricting contact with others, particularly pregnant women and children. Fewer departments give instructions about minimising contamination. On the whole, information provided complies with or, in the case if diagnostic procedures, goes beyond the restrictions specified in the Medical and Dental Guidance Notes. Information is rarely produced in formats for people with disabilities or people who do not have English as a first language. We identified a need to communicate more effectively with patients the rationale for restrictions and the consequences of non-adherence. We also identified a need to raise awareness of radiation protection issues and disseminate information more effectively with professionals outside of nuclear medicine departments. Ways in which both of these needs can be addressed are discussed. This report and the work it describes were funded by the Health and Safety Executive and the Department of Health. Its contents, including any opinions and/or conclusions expressed, are those of the author(s) alone and do not necessarily reflect HSE or DoH policy. HSE BOOKS © Crown copyright 2006 First published 2006 All rights reserved. No part of this publication may be reproduced, stored in a retrieval system, or transmitted in any form or by any means (electronic, mechanical, photocopying, recording or otherwise) without the prior written permission of the copyright owner. Applications for reproduction should be made in writing to: Licensing Division, Her Majesty's Stationery Office, St Clements House, 2-16 Colegate, Norwich NR3 1BQ or by e-mail to [email protected] ii ACKNOWLEDGEMENTS We would like to thank the staff in the Medical Physics Department at the Royal Surrey County Hospital and members of the Institute of Physics in Medicine (IPEM) Nuclear Medicine Special Interest Group (NMSIG) for their help in piloting the questionnaire. We would also like to thank staff in the Medical Physics and Nuclear Medicine Departments at the Royal Surrey County Hospital for their help with recruitment of patients and the patients who agreed to take part in the study. Finally, we would like to thank all the participants in the focus groups and the workshops. Their comments were extremely valuable. iii iv CONTENTS Acknowledgements ...................................................................................................................... iii Contents......................................................................................................................................... v EXECUTIVE SUMMARY........................................................................................................... 1 Aims of the research ........................................................................................................... 1 Components of the research................................................................................................ 1 Main findings ...................................................................................................................... 1 1. MAIN REPORT................................................................................................................ 3 1.1. Introduction ............................................................................................................. 3 1.2. Current Advice ........................................................................................................ 4 1.3. Communication And Restrictions ........................................................................... 5 1.4. Aims And Objectives .............................................................................................. 6 1.5. Format Of The Report ............................................................................................. 7 1.6. Methods ................................................................................................................... 8 1.7. Results ..................................................................................................................... 9 1.8. Overall Conclusions .............................................................................................. 14 1.9. References ............................................................................................................. 15 2. ANNEX 1: NATIONAL SURVEY OF RADIATION PROTECTION INFORMATION PROVIDED IN ORDER TO MINIMISE THE HAZARD FROM NUCLEAR MEDICINE PATIENTS................................................................................................. 17 2.1. Introduction ........................................................................................................... 17 2.2. Aims And Objectives ............................................................................................ 18 2.3. Definitions ............................................................................................................. 18 2.4. Method................................................................................................................... 19 2.5. Results ................................................................................................................... 20 2.6. Discussion ............................................................................................................. 37 2.7. Conclusions ........................................................................................................... 40 2.8. Practical Implications ............................................................................................ 41 2.9. References ............................................................................................................. 42 3. ANNEX 2: EVALUATION OF DIAGNOSTIC AND THERAPEUTIC PATIENT INFORMATION LEAFLETS ....................................................................................... 43 3.1. Summary ............................................................................................................... 43 3.2. Overview ............................................................................................................... 43 3.3. Aims And Objectives ............................................................................................ 43 3.4. Method................................................................................................................... 44 3.5. Results ................................................................................................................... 46 3.6. Discussion ............................................................................................................. 55 3.7. Practical Implications ............................................................................................ 57 3.8. References ............................................................................................................. 58 4. ANNEX 3: EXPERIENCES AND PERCEPTIONS OF PATIENTS UNDERGOING DIAGNOSTIC AND THERAPEUTIC NUCLEAR MEDICINE PROCEDURES ...... 59 4.1. Summary ............................................................................................................... 59 4.2. Aims And Objectives ............................................................................................ 59 4.3. Method................................................................................................................... 60 4.4. Results ................................................................................................................... 61 4.5. Practical Implications ............................................................................................ 70 4.6. References ............................................................................................................. 71 v 5. ANNEX 4: UNDERSTANDING AND ACTING ON RADIATION PROTECTION INFORMATION: THE PERSPECTIVE OF HEALTH CARE PROFESSIONALS ... 73 5.1. Summary ............................................................................................................... 73 5.2. Aims And Objectives: ........................................................................................... 74 5.3. Method................................................................................................................... 74 5.4. Procedure............................................................................................................... 75 5.5. Practical Implications ...........................................................................................