AFTD’s 2020 Conference

Sheraton Hotel | , MD April 17, 2020, 9:00 a.m. to 5:00 p.m.

Every year, AFTD convenes persons diagnosed, care partners, researchers, healthcare professionals and others for our annual Education Conference. Join us this April in Baltimore for a day of learning, sharing and connecting. Find help and share hope with people who understand the FTD journey.

Highlights: • Learn about the latest updates in FTD science straight from the researchers who are helping to deepen our understanding of this disease • Take part in interactive breakout sessions focusing on clinical issues and FTD care strategies • Make important connections during specially tailored networking sessions and our evening social reception • Experience a truly unique and rewarding day surrounded by people whose lives have been touched by FTD

Register Today! Visit http://tinyurl.com/AFTD2020 today to register for AFTD’s 2020 Education Conference! If you would like to attend but cannot afford the registration fee, please contact [email protected] to request a waiver code to use at registration. Only people living with FTD and current care partners/caregivers and family members are eligible for this option. AFTD’s 2020 Education Conference Sheraton Inner Harbor Hotel | Baltimore, MD April 17, 2020, 9:00 a.m. to 5:00 p.m.

Featured Speakers Keynote Speaker:

Halima Amjad, Katie Brandt, MM, Rome Hartman MD, MPH, Assistant Director of Caregiver is a producer of Professor of Support Services the venerable Medicine at Johns in the FTD Unit at CBS news Hopkins Mass General and program 60 School of Medicine Co-Chair of the NAPA Advisory Minutes, which Council last May aired a segment he Murray Grossman, produced about FTD. Entitled MD, EdD, Professor Jennifer Pilcher, “The Cruelest Disease You’ve of Neurology and PhD, CMC, Founder Never Heard Of,” the story brought Psychiatry at the of Clear Guidance, newfound awareness of FTD’s University of Editor-in-Chief of uniquely devastating nature to Pennsylvania and Director of the the Journal of a national television audience Penn FTD Center Aging Life Care of millions. Over the course of his 35+ years in television The Very Rev. news, Rome has worked at CBS, Chiadi Onyike, MD, Tracey Lind, MDiv, NBC and the BBC. He has won MHS, Associate Dean Emeritus of many prestigious journalism Professor of Trinity Episcopal and television awards, including Psychiatry and Cathedral in a Peabody Award and multiple Behavioral Sciences Cleveland, Ohio Emmys. and Director of the FTD and Young-Onset Dementias Program at University

More Information about AFTD’s 2020 Education Conference

Hotel Information: Due to overwhelming demand, Conference. A special “quiet room” named in honor of rooms at the special AFTD group rate have sold out. A the late FTD advocate Susan Suchan will be open all day limited number of rooms are available at the Sheraton if you need a break; respite care is not provided. at the regular rate. You can reach the hotel by calling Arriving Early? Early registration will be available at 410-962-8300. the Sheraton on Thursday, April 16, from 4:30-6:30 p.m., Financial Assistance: AFTD offers attendees modest with regular registration beginning Friday at 8:00 a.m. financial assistance in the form of Comstock Travel Healthcare Professional Networking: AFTD Grants. You can find more information by visiting Education Program Manager Deena Chisholm will lead a http://tinyurl.com/ComstockGrants. networking lunch for healthcare professionals. Persons Living with FTD: AFTD encourages persons Questions? Please send an email to conference@ living with FTD to attend and participate in the Education theaftd.org with any additional questions you may have! AFTD’s 2020 Education Conference Sheraton Inner Harbor Hotel | Baltimore, MD April 17, 2020, 9:00 a.m. to 5:00 p.m.

Schedule and Speakers

8:00 a.m. 11:30 a.m. Registration Conference Keynote Address 9:00 a.m. Rome Hartman, Producer, 60 Minutes Welcome 12:00 p.m. Gail Andersen, AFTD Board Chair Lunch Christopher Coates, Retired Military Chaplain 1:00 p.m. Bob Meddaugh, AFTD Think Tank Breakout Sessions: Clinical Issues 9:15 a.m. 2:00 p.m. FTD Disease Overview Breakout Sessions: Care Strategies Halima Amjad, MD, Johns Hopkins University 3:00 p.m.

9:45 a.m. Break Landscape of FTD Research Murray Grossman, MD, University 3:20 p.m. of Pennsylvania Breakout Sessions: Support and Networking Chiadi Onyike, MD, Johns Hopkins University 4:30 p.m. Facilitator: Nadine Tatton, PhD, AFTD Conference Wrap-Up Session 10:20 a.m. 5:00 p.m. Break Social Reception 10:40 a.m. Join your fellow attendees, speakers, and AFTD Advocating for Dignity in Dementia staff and Board members for an informal social Katie Brandt, MM, Massachusetts reception after the conference. General Hospital The Very Rev. Tracey Lind, MDiv Jennifer Pilcher, PhD, Clear Guidance 11:15 a.m. AFTD 2019 Highlights Susan L-J Dickinson, CEO, AFTD AFTD’s 2020 Education Conference Sheraton Inner Harbor Hotel | Baltimore, MD April 17, 2020, 9:00 a.m. to 5:00 p.m.

Breakout Sessions Healthcare professionals, persons diagnosed, caregivers, and AFTD staff will facilitate a full slate of engaging and informative breakout sessions on a wide range of topics.

Clinical Issues Support and Networking 1:00 to 1:45 p.m. 3:20 to 4:20 p.m.

It Takes a Team Questions & Discussion for Care Partners Maya Lichtenstein, MD, Geisinger Medical Center Halima Amjad, MD, Johns Hopkins University Chuck Anastasia, AFTD Support Group Volunteer, Brain-Behavior Connections in Behavioral FTD former care partner Lauren Massimo, PhD, University of Pennsylvania Questions & Discussion on Research Current and Emerging Therapeutic Murray Grossman, MD, University of Pennsylvania Approaches to FTD Jamie Fong, MS, CGC, Baylor College of Medicine David Irwin, MD, University of Pennsylvania Questions & Discussion for People with FTD Understanding PPA Chiadi Onyike, MD, Johns Hopkins University Maya Henry, PhD, University of Texas at Austin Online Platforms for FTD Networking Genetics of FTD Lauren Gauthier, AFTD Jamie Fong, MS, CGC, Baylor College of Medicine Sharon Denny, MA, AFTD

Finding Hope in Loss: A Discussion Care Strategies for Former Caregivers 2:00 to 3:00 p.m. Bridget Moran-McCabe, MPH, AFTD A Positive Approach to bvFTD Ann Schoonover, MSW, AFTD Melanie Bunn, RN, MS, Positive Approaches to Care

Advocating for Care and What I Wish I Knew Jennifer Pilcher, PhD, Clear Guidance Katie Brandt, MM, Massachusetts General Hospital

Developing Communication Strategies Maya Henry, PhD, University of Texas at Austin

Approaches to Care in ALS/FTD Beth Rush, PhD, Mayo Clinic Jacksonville

Apathy and Grief Lauren Massimo, PhD, University of Pennsylvania Amy Shives, MEd, AFTD Think Tank