Rock Stars of Science Briefing and tribute Capitol Visitors Center Thursday, September 24, 2009 About the Rock Stars of Science Campaign

Being a rock star is about the same amps, thunder and art it’s always been, but these days a rock star can be anyone whose genius moves the crowd—whether they’re onstage or in the lab. The star-powered cast of Rock Stars of Science joined the campaign to honor the researchers who are saving our lives, to make science rock as a career choice for the next generation and to raise their platinum voices in demand for future research funding.

THE FACT IS: IT’S URGENT.

Our most brilliant scientific minds are dedicated to finding cures for diseases like cancer, HIV/AIDS and Alzheimer’s, and our most celebrated artists stand behind them. In our lifetime, we deserve to see: • Our brain span match our lifespan • Early diagnosis to improve our odds • Our DNA become the blueprint for health • Research funding as a national priority

We Stand Together and Refuse to Accept “No Cure” as an Answer.

2 ROCK STARS OF SCIENCE BRIEFING www.rockstarsofscience.org ROCK STAR , co-founder, , rock & roll legend As co-founding member, principal co-, electrifying lead and co-producer of Aerosmith, Perry has achieved permanent iconic stature in the pantheon of rock. He has driven his band, over the course of three decades, to sales of more than 150 million albums, has won four and induction into the Hall of Fame. The world’s true Hero was immortalized last year when Aerosmith made history and created a cultural firestorm with the Activision released ®: Aerosmith®, an epic collaboration that marked the first music-based game to feature one band. Perry has lent his unparalleled talents to a virtual who’s who of rock and roll

royalty, as well as some of the world’s Photo by Melissa Mahoney most well-known musicians including , , , Tom Jones, Katy Perry, B.B. King, , Perry Farrell, Chuck Berry, , Run-DMC, , Nelly and Ron Wood of . Perry’s guitar prowess was documented in a version of James Moore’s “I’m A King campaigns to protect marine species and Bee,” which can be heard on the album and environments. film, “Lightning In A Bottle,” the 2005 On October 6th Perry’s Have Guitar, Will Martin Scorsese-produced concert Travel, his fifth solo CD, will be released. It documentary on the blues. follows self-produced solo projects Beyond his music career, Perry owns and including Let The Music Do The Talking operates his own food company, which not (1980), Once A Rocker, Always A Rocker only produces a variety of hot sauces but (1983), I’ve Got The Rock ‘N’ Rolls Again also is planning the launch of “Joe Perry’s (1981) and 2005’s Joe Perry, which received Rockin’ Roni Mac and Cheese.” Perry and universal critical praise and earned Perry his family are well-known animal lovers and his first solo Grammy nomination. He plans helped to fund the building of a new animal a “short, fast, hard tour” with the Joe Perry shelter in their community. Along with his Project this winter. wife Billie, the Perrys were instrumental in Perry and his wife have four sons (Tony, bringing awareness to the Friesian Horse, a Roman, Adrian and Aaron); they have a re- cause which helped to take the breed from cent addition, a grandson Austin from their the endangered to rare breeds list. The Per- oldest son Aaron. The legendary guitarist rys also support the Sea Shepherd Conser- frequently sits in with TAB THE BAND, vation Society whose members undertake which is led by sons Adrian and Tony.

www.rockstarsofscience.org ROCK STARS OF SCIENCE BRIEFING 3 Hosted by: Rock Stars of Science Briefing & tribute 11:30 am Welcome Terry Moran, ABC News’ Meryl Comer, Rock Stars of Science & Geoffrey Beene Gives Back® Alzheimer’s Initiative

Alzheimer’s 2020: Investment in Our Future Terry Moran: Interview with Co-Chairs, Congressional Task Force on Alzheimer’s Disease Representative Edward Markey (MA) Representative Chris Smith (NJ) Senator Mark Warner (VA) Senator Susan Collins (ME)

Vision for 2020 and Alzheimer’s Facts George Vradenburg, Geoffrey Beene Gives Back® Alzheimer’s Initiative & LEAD-Leaders Engaged on Alzheimer’s Wyeth Disease Robert Egge, Alzheimer’s Association/ Alzheimer’s Study Group

Elan By 2020: Research Momentum to Alzheimer’s Breakthrough Moderator: Terry Moran Panel: Jeffrey Cummings, MD, UCLA Steven T. DeKosky, MD, University of Virginia Samuel Gandy, MD, PhD, Mt. Sinai Ron Petersen, MD, PhD, Mayo Clinic GQ Magazine New Poll Data: Public Awareness and Attitudes about Alzheimer’s In cooperation with Alysia Snell, Lake Research Partners the Congressional Biomedical Research Caucus & Advocacy for Research: Congressional Task Force What’s Needed Now on Alzheimer’s Disease Mary Woolley, Research!America

4 ROCK STARS OF SCIENCE BRIEFING www.rockstarsofscience.org The Rock Star & The Scientist: 2:15 pm Same Brain Waves Moderators: Meryl Comer and Frontiers of Cancer Research and Terry Moran Stand Up to Cancer (SU2C) Moderator: Terry Moran Panel: Joe Perry, Aerosmith Panel: , /Actor, Dale Schenk, PhD, Elan Cancer Survivor Rudy Tanzi, PhD, Harvard University Amy Dockser Marcus, Wall Street Rock S.O.S Mascot: Blip, ECAD–East Journal Coast Assistance Dog for Vets Laura Shawver, PhD, Phenomix Corporation, SU2C Scientific Advisory 1:00 pm Committee Rock Stars of Science Tribute: Laura Ziskin, Filmmaker, SU2C Biomedical Research Leadership Council, Cancer Survivor

Terry Moran: Interview with Special Performance: “Believe Again” Co-Chairs, Congressional Biomedical Delta Goodrem Research Caucus Representative Brian Bilbray (CA) 2:45 pm Representative Mike Castle (DE) Grand Finale: All Rock Stars Representative Rush Holt (NJ)

Vision, Priorities for the NIH Francis S. Collins, MD, PhD, Director, National Institutes of Health

Musical Tribute to Congressional Champions of Research Music Performance: Joe Perry, Aerosmith Francis S. Collins, MD, PhD, NIH David Hull, Joe Perry Project Mascot Rudy Tanzi, PhD, Harvard Blip, “Rock Stars of Science” honorary mascot; ECAD–East Coast Joe Ryan, NHGRI Assistance Dog for Vets Blip is as a therapy HIV/AIDS and H1N1: Update & Forecast dog at a Westchester, Anthony Fauci, MD, Director, National NY, hospital and the Institute of Allergy and Infectious Veterans Hospital in Diseases the Bronx. Blip, helps our returning veterans with PTSD overcome social isolation, hyper-vigilance and flash- backs. Blip has 24 children and two grandchildren who are service dogs that help the physically disabled.

www.rockstarsofscience.org ROCK STARS OF SCIENCE BRIEFING 5 MODERATOR / EMCEE recording artists, spending 29 weeks at #1, Terry Moran, co-host, debuting at #2 in the UK. ABC News’ Nightline In 2003, at the age of 18, Goodrem was di- Moran became one of agnosed with Hodgkin’s Lymphoma, a form the three full-time of cancer that affects the immune system. anchors of Nightline She has since made a full recovery and is following ’s still in remission. She now devotes a great last broadcast in deal of her time promoting cancer charities. November 2005. He David Hull, bassist, Aerosmith & often anchors World News and other ABC Joe Perry Project News broadcasts. Before becoming Hull is an American bass co-anchor of Nightline, Moran had been guitar player. He is most ABC News’ chief White House correspon- notable for being the dent from September 1999 to November substitute bass player for 2005. Prior to his White House assignment, Aerosmith during a Moran covered Vice President ’s portion of their 2006 presidential campaign. Earlier, Moran “Route of All Evil” Tour worked as a correspondent and anchor for while the band’s normal bassist Tom Court TV, where he was recognized for his Hamilton was absent. In the early 1980s, Hull expertise in covering the Lyle and Erik was the bassist and background vocalist for Menendez murder trial in Los Angeles in , a band formed by 1993. He received the Lucia R. Aerosmith guitarist Joe Perry, as well as a Distinguished Achievement Award in 2003. local Connecticut band named White He appeared in the 2007 hit comedy, “The Chocolate and later The Dirty Angels. Heartbreak Kid,” starring Ben Stiller. Several of the songs on the Joe Perry Project’s albums were co-written by Hull.

ROCK STARS Delta Goodrem, singer/actor & Congressional biomedical cancer survivor research caucus co-chairs Goodrem is an Austra- Rep. Brian Bilbray (CA) lian singer-songwriter, Bilbray has been an pianist and actress. outspoken champion Goodrem rose to and supporter of issues prominence in 2002, important to the starring in the popular biomedical research Australian soap community. Bilbray was “Neighbours,” and this elected to represent the assisted her in establish- 50th District of California in 2006. He ing an international music career. Her serves on the House Committees on repertoire falls under the pop and adult Oversight and Government Reform, contemporary styles and heavily features Veteran’s Affairs and Science and Technol- the piano, which she usually plays barefoot ogy. In addition, he is co-chair of the while performing live. Goodrem has Congressional Biomedical Research achieved eight #1 singles in Australia and Caucus, a 78-member bipartisan caucus multiple UK Top 10 singles. Her debut dedicated to educating and advancing life album, 2003’s Innocent Eyes, made her one science issues throughout Capitol Hill. He of Australia’s highest selling female also serves on the House Diabetes Caucus,

6 ROCK STARS OF SCIENCE BRIEFING www.rockstarsofscience.org Alzheimer’s Caucus, Multiple Sclerosis Rep. Rush Holt (NJ) caucus, Research and Development caucus Holt earned his PhD at and Science Technology Engineering and NYU. He has held Mathematics caucus. He recognized the positions as a teacher, value of stem cell research to millions of Congressional Science Americans by voting to expand the number Fellow and arms control of stem cell lines available for research, expert at the U.S. State voting twice against the Republican Party Department. From 1989 and President Bush on measures that would until he launched his 1998 congressional have weakened or destroyed the ability of campaign, Holt was assistant director of the researchers to use these life-saving lines. Princeton Plasma Physics Laboratory, Bilbray has been an outspoken supporter Princeton University’s largest research for research funding, calling for more facility. He has his own patent for a solar funding for NIH in the stimulus bill. He was energy device and was a five-time winner of one of only 20 Republicans who voted for the game show “Jeopardy.” Holt serves on FY 2010 Labor HHS appropriations bill that the Committee on Education and Labor, the included millions for NIH research. Committee on Natural Resources and the Rep. Mike Castle (DE) House Permanent Select Committee on A former Deputy Intelligence. Holt is the only scientist and Attorney General, state only member from the New Jersey legislator, Lieutenant delegation to sit on the Intelligence Governor and two-term Committee. Holt is also the chairman of the Governor of Delaware, Select Intelligence Oversight Panel. He is Castle is serving a co-chair of the Research and Development record ninth term as Caucus and sits on Congressional caucuses Delaware’s lone member in the House of concerning Children’s Environmental Representatives. Castle has played a key Health, Renewable Energy, Sustainable role in enacting many important laws that Development, Alzheimer’s, Diabetes, improve the lives of all Americans, including Biomedical Research, Internet, Community welfare reform, the balanced budget act, College, Farmland Protection, Human the Crime Bill, No Child Left Behind, Rights and a Women’s Right to Choose. vocational education, campaign finance Rep. Jackie Speier (CA) reform, medical research and intelligence Speier (pronounced reform. Castle consistently uses his SPEAR) represents leadership as a negotiator to improve California’s beautiful, legislation, most recently ensuring impor- diverse and economi- tant social programs like health and cally vibrant 12th education do not suffer unnecessary Congressional District. funding cuts. Castle is the ranking member The district encompass- on the Subcommittee on Early Childhood, es the southwest quarter of San Francisco Elementary and Secondary Education. and most of adjoining San Mateo County. Some of Castle’s priorities include obesity Speier serves on: the Committee on prevention and child nutrition, Head Start Financial Services, the Committee on and the recruitment of highly qualified Oversight and Government Reform and the teachers. Castle also serves on the House Select Committee on Energy Independence Committee on Financial Services. Medical and Global Warming. Sworn into Congress and diabetes research are among Castle’s on April 10, 2008, Speier continues the priorities. work she did for 18 years in the California State Assembly and Senate, where

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she authored more than 300 bills that were chronically ill seniors and improve access to signed into law by both Democratic and clinical trials for patients of rare diseases. Republican governors. For the 111th Rep. Chris Smith (NJ) Congress, Speier has introduced her F.A.I.R. Smith is in his 15th term Plan (Fighting for Accountability, Innovation serving the 4th Congres- and Reform), a package of legislative sional District of New proposals encompassing issues as diverse Jersey. In addition to as regulating the Credit Rating Agencies, serving as co-chair of prevention and better treatment of MRSA the bipartisan, bicameral (staph) infections in hospitals and changing Congressional Task the way Congress allocates money to Force on Alzheimer’s Disease, he also eliminate politically connected earmarks. founded and chairs the Coalition for Autism Research and Education, the Spina Bifida Congressional Task Force Caucus and Lyme Disease Caucus. Smith for Alzheimer’s Disease ranks sixth among the 535 current Members of the House and Senate in having success- Co-Chairs fully brought to the floor the greatest Rep. Edward J. Markey (MA) number of bills that were later enacted into Markey’s career of law. His most notable health laws include activism and effective- Title I of the Children’s Health Act, which ness spans three authorized comprehensive autism research, decades, since he was The Stem Cell Therapeutic and Research elected to represent Act of 2005, The Veterans Health Care ’ seventh Improvement Act of 2004 and the VA district in 1976. He is a Health Care Programs Enhancement Act. senior member of the Energy and Com- merce Committee and chairs its Energy and Sen. Mark R. Warner (VA) Environment Subcommittee as well as the Warner was elected to Select Committee on Energy Independence the U.S. Senate in and Global Warming. He is co-founder and November 2008 and co-chair of the bipartisan, bicameral Task serves on the Senate’s Force on Alzheimer’s Disease, Cystic Banking, Budget, Fibrosis Caucus and Privacy Caucus. Commerce and Rules Markey is a champion for medical research, committees. He served improving access and quality of health care as Governor of Virginia from 2002-2006 and protecting consumer health and after spending 20 years as a business leader privacy. For several years, he has led the in the high-tech industry. As a private citizen charge in calling for increased appropria- and philanthropist, Warner helped create tions for the nation’s preeminent research the Virginia Health Care Foundation, which institution, NIH. He co-authored legislation has provided health care to more than that created the NIH clinical trials registry 600,000 under-served Virginians and and established incentives for pediatric SeniorNavigator.com, a referral network for medical device manufacturers. Markey older Virginians and their caregivers. As helped secure health information privacy governor, Warner inherited budget protections in the American Recovery and shortfalls that ultimately grew to $6 billion. Reinvestment Act. In the 111th Congress, he He left office with a budget surplus that has introduced legislation to raise the allowed Virginia to make the largest single profile of, and funding for, Alzheimer’s investment in K-12 education in state history, disease, improve the coordination of care to key reinvestments in one of the nation’s

10 ROCK STARS OF SCIENCE BRIEFING www.rockstarsofscience.org best public university systems and record NATIONAL INSTITUTES OF investments in the clean-up of the Chesa- HEALTH “ROCK DOCS” peake Bay. In 2004, Warner chaired the Francis S. Collins, MD, PhD, director, NIH National Governors Association and TIME Collins was officially Magazine named him one of “America’s Five sworn in on August 17, Best Governors” a year later. 2009, as the 16th director Sen. Susan M. Collins (ME) of the National Institutes Maine voters first of Health. He was elected Collins to the nominated by President U.S. Senate in 1996. Obama on July 8 and Collins is Ranking was unanimously confirmed by the U.S. Member and former Senate on August 7. A recipient of the chairman of the Presidential Medal of Freedom and a 2009 Homeland Security and National Medal of Science, Collins has made Governmental Affairs Committee funding landmark discoveries of disease genes and for home health care for elderly and led the Human Genome Project (HGP), an disabled citizens. She also serves on the international multidisciplinary scientific Appropriations Committee, Armed Services enterprise to map and sequence all of the Committee and the Special Committee on human DNA. All the data from the HGP is Aging. Previously, she served for six years freely available to the scientific community on the Committee on Health, Education, without restrictions and has provided the Labor and Pensions. A national leader who foundation of many advances in biology and has consistently supported programs to medicine. Collins has also led efforts to expand access to health care and improve ensure that the HGP is translated into tools health care, particularly in rural areas, and strategies to advance biological Collins coauthored the Access to Afford- knowledge and improve human health. able Health Care Act, which takes signifi- Anthony S. Fauci, MD, director, National cant strides toward the goal of universal Institute of Allergy and Infectious health coverage by bringing millions into the Diseases, NIH insurance system. The bill also strengthens Fauci was appointed the health care safety net and addresses director of NIAID in inequities in Medicare. In addition, she led 1984. He is one of the the fight to restore critical Medicare world’s leading experts funding for home health care so that elderly on HIV/AIDS and a key citizens and disabled can receive needed adviser to the White care in their own homes. She also founded House and Department the Senate Diabetes Caucus and led the of Health and Human Services on infectious effort to more than triple federal funding diseases and global health, including for diabetes research. As co-chair of the initiatives to bolster medical and public Congressional Task Force on Alzheimer’s health preparedness against emerging infec- Disease, Collins has worked to increase tious disease threats such as pandemic funding for Alzheimer’s research and influenza. Fauci oversees NIAID research on strengthen support for family caregivers. the prevention, diagnosis and treatment of infectious diseases such as HIV/AIDS and other sexually transmitted infections, influenza, tuberculosis, malaria and illness from potential agents of bioterrorism. Fauci’s own pioneering research on the

www.rockstarsofscience.org ROCK STARS OF SCIENCE BRIEFING 11 human immune system has advanced our understanding of neurological diseases like understanding of the regulation of the Alzheimer’s and Parkinson’s and helping to human immune response, such as the way accelerate drug development. the AIDS virus destroys the body’s Steven T. DeKosky, MD, vice president defenses, leading to its susceptibility. and dean, University of Virginia School of Medicine; former director, Alzheimer’s “ROCK DOCS” Disease Research Center, University of David B. Agus, MD, director, USC Center Pittsburgh School of Medicine for Applied Molecular Medicine; A pioneer in early director, USC Westside Cancer Center, detection of Alzheimer’s, Keck School of Medicine, University of DeKosky, along with Southern California University of Pittsburgh Agus is a leading colleagues William Klunk researcher and entrepre- and Chet Mathis, neur in personalized isolated the Pittsburgh B medicine for major compound (PIB), a plaque-like substance diseases such as cancer. secreted in the brain that allows the As an oncologist, Agus’ clearest scans possible of potential damage work has focused on the from Alzheimer’s. Prior to this study, there use of genomics (information from an had not been a non-invasive way to monitor individual’s genetic makeup) and proteomics the brains of people with Alzheimer’s, a (unique combinations of proteins at work significant barrier to studying disease within the body) to understand individual progression and treatment effectiveness. variations in cancer and response to DeKosky and others are currently conduct- treatment. He is also the founder of ing a series of tests on PIB in the brains of Oncology.com, the largest Internet resource early-onset Alzheimer’s patients in their and community for cancer patients and of early 30s who have a genetic risk for the Navigenics Inc., a genomics technology and disease, to pinpoint when brain function wellness company. begins to be affected, even before behavior is affected, so treatments can begin earlier. Jeffrey Cummings, MD, director, Mary Mt. Sinai S. Easton Center for Alzheimer’s Disease Samuel Gandy, MD, PhD, Professor in Alzheimer’s Disease Research; Research at UCLA; director, Deane F. professor of Neurology and Psychiatry & Johnson Center for Neurotherapeutics, Associate Director, Mt. Sinai Alzheimer’s University of California, Los Angeles Cummings modernized Disease Research Center; chairman measurement of brain emeritus, National Medical and Scientific function in major neuro- Advisory Council, Alzheimer’s Association logical diseases like A leading researcher Alzheimer’s. Cummings is developing drugs for an innovator in the prevention and treatment measurement of brain of Alzheimer’s through function and developed the Neuropsychiat- beta amyloid management, ric Inventory, one of the most comprehen- Gandy is an international sive procedures now widely used in clinical expert in the metabolism trials around the world. His work has helped of the sticky substance called amyloid that to standardize how brain function affects clogs the brain in patients with Alzheimer’s. behavior and quality of life, advancing our In 1989, Gandy and his team discovered the first drugs that could lower formation of

12 ROCK STARS OF SCIENCE BRIEFING www.rockstarsofscience.org amyloid. Gandy has written more than 150 Rudy Tanzi, PhD, Joseph P. and Rose F. original papers, chapters and reviews on Kennedy Professor of Neurology, Harvard this topic. Gandy has received continuous Medical School; director, Genetics and NIH funding for his research on amyloid Aging Research Unit, Massachusetts metabolism since 1986. General Hospital Ron Petersen, MD, PhD, Cora Kanow Tanzi specializes in Professor of Alzheimer’s Disease genetic and environmen- Research; director, Mayo Alzheimer’s tal factors involved in Disease Research Center, Mayo Clinic diminished brain College of Medicine function in Alzheimer’s A clinician, investigator disease, aging and Down and educator on syndrome. Tanzi has Alzheimer’s disease, identified several different genes that can Petersen is currently lead to diminished brain function in conducting a multidisci- Alzheimer’s, aging and Down syndrome. He plinary study of various is also working to use information from gene aspects of aging, mild defects that influence healthy aging of the cognitive impairment and Alzheimer’s brain and to develop novel therapies for disease. The research is designed to Alzheimer’s. develop models for predicting a subsequent Harold Varmus, MD, former director, NIH cognitive impairment in normal elderly (1993-1999) persons, potentially to guide early treat- Varmus, co-recipient of ment. Petersen was Ronald Reagan’s the 1989 Nobel Prize in personal physician and treated the former Physiology or Medicine, president’s Alzheimer’s. Petersen is one of has served as the the recipients of the 2004 MetLife Award president of Memorial for Medical Research in Alzheimer’s Disease Sloan-Kettering Cancer and the American Academy of Neurology’s Center in New York City 2005 Potamkin Prize for Research in Picks, since January 2000. He is a member of the Alzheimer’s and Related Disorders. U.S. National Academy of Sciences and the Dale Schenk, PhD, executive vice Institute of Medicine and has received the president, chief scientific officer, National Medal of Science, the Vannevar Elan Corporation Bush Award and several honorary degrees. Varmus has been an adviser to the Federal An inventor of the government, pharmaceutical and biotech- vaccination approach for nology firms and many academic institu- the treatment of tions. Varmus is the chairman of the Alzheimer’s, Schenk is Geoffrey Beene Cancer Research Center at the inventor of beta MSKCC . He was recently appointed by amyloid immunotherapy, President Obama as co-chair of the which seeks to use the President’s Council of Advisors on Science body’s own immune system to rid the brain and Technology (PCAST). of the plaque that is the hallmark of Alzheimer’s. His work in this area—as well as in early detection, testing and other therapeutic pathways—has led to the most advanced potential treatment approaches for the disease.

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Speakers, panelists, hosts Robert Egge, vice president, Public Policy & Advocacy, Alzheimer’s Association Meryl Comer, president & CEO, Geoffrey Egge leads the associa- Beene Gives Back® Alzheimer’s Initiative; tion’s efforts to elevate Executive producer, “Rock Stars of Alzheimer’s as a critical Science” for Geoffrey Beene Gives Back® federal and state Comer is an Emmy- government priority and award winning reporter, implement policies to producer and business better serve those talk show host with more affected by Alzheimer’s disease and related than 30 years of disorders. Immediately prior to joining the experience in broadcast Alzheimer’s Association, Egge served as journalism. She was one executive director of the Alzheimer’s Study of the first women in the early 1980s to host Group (ASG), a blue ribbon task force of a nationally syndicated TV business show. national leaders co-chaired by former Comer was named president of the House Speaker Newt Gingrich and former Geoffrey Beene Gives Back® Alzheimer’s Nebraska Sen. Bob Kerrey. Egge worked Initiative in November 2007. Winner of the closely with Gingrich, Kerrey and other ASG 2005 Shriver Profiles in Dignity Award and members such as Justice Sandra Day the 2007 Proxmire Award, Comer has O’Connor, Dr. Harold Varmus and provided testimony before Congress on Dr. Mark McClellan to develop the group’s behalf of the Alzheimer’s Association and national Alzheimer’s assessment and policy served on the 2008 Alzheimer’s Study proposals to overcome the mounting crisis. Group charged with presenting a National Strategic Plan to Congress in March 2009. G. Thompson Hutton, The Trustee, Geof- frey Beene Foundation, & Mara Hutton Amy Dockser Marcus, Pulitzer-Prize Tom Hutton, a winning reporter, Wall Street Journal practicing Dockser Marcus was attorney for over awarded the 2005 35 years, became Pulitzer Prize for Beat president and Reporting for a series CEO of Geoffrey she wrote about the Beene, LLC in physical, emotional and 2004. He is the founder and sole Trustee of monetary challenges the Geoffrey Beene Foundation (2006). facing cancer survivors. The Journal’s Middle Hutton established the Geoffrey Beene East correspondent from 1991 to 1998, she Gives Back® philanthropic initiative, in has written two books that grew out of her which all net profits from Geoffrey Beene, experiences there. The View From Nebo: LLC fund critical philanthropic causes. He How Archaeology Is Rewriting the Bible and also orchestrated the creation of the Reshaping the Middle East, was named one Geoffrey Beene Cancer Research Center, of the top nonfiction books of the year by headed by Dr. Harold Varmus, at Memorial the . Dockser Marcus Sloan-Kettering Cancer Center. Hutton has writes extensively about rare and overlooked directed the funding of the Geoffrey Beene diseases and the role of patient advocates in Cancer Research Center in the amount of driving drug development. She received a $106 million in value to date. Hutton also Robert Wood Johnson Foundation Investiga- created the Geoffrey Beene Gives Back® tor Award in Health Policy Research for a Alzheimer’s Initiative, which has spearhead- project focusing on improving care for ed the Rock Stars of Science campaign and survivors of rare cancers. was a principal sponsor of HBO’s 2009

16 ROCK STARS OF SCIENCE BRIEFING www.rockstarsofscience.org documentary series, “The Alzheimer’s animal kingdom. He uses computational Project.” Among other medically based techniques to compare genomic data from causes supported by Geoffrey Beene Gives relatively simple animals that branched off Back® are the American Heart Association, relatively early in evolutionary history, like American Diabetes Association, Rally for sea anemones and comb jellies, to more Research through the Alzheimer’s Associa- complex animals, like flies and humans. Ryan tion, HUMC—Hospice Inpatient Unit and plays drums in the National Human Genome Continuum Cancer Centers of New York. Research Institute’s house band, Ethidium Geoffrey Beene Gives Back® also supports Spill and has toured the U.S. and Europe as organizations dedicated to the protection the singer and guitarist of his own band, of women and children, Make-A-Wish Impossible Hair. Foundation, Friends of Karen, veterans, vari- Laura Shawver, PhD, Stand Up To Cancer ous causes to feed the elderly and home- Scientific Advisory Committee; CEO, less and the protection of animals, as well Phenomix Corporation as educational scholarships. Shawver has been involved Mara Hutton volunteers her full working with cancer research and time to help carry out the mission of the drug development as a Geoffrey Beene Foundation. scientist, biotechnology The Hon. John Edward Porter, chair, entrepreneur, survivor and Research!America philanthropist. Prior to Porter is a partner in joining Phenomix, she was Hogan & Hartson’s president of SUGEN, Inc., Washington, DC, office a biopharmaceutical company that focused and a member of the on understanding key molecular pathways firm’s Health Practice of cancer cells and developed the cancer Group. Prior to joining drug Sutent™. The deputy editor of Hogan and Hartson, Molecular Cancer Therapeutics, as well as Porter served 21 years as Congressman serving on other editorial boards, she is an from ’ 10th District. In Congress he active member in the American Association served on the Appropriations Committee for Cancer Research. Shawver is also an and as chairman of the Subcommittee on ovarian cancer survivor and advocate. After Labor, Health and Human Services and her diagnosis and treatment, she estab- Education; as vice chairman of the Subcom- lished The Clearity Foundation to share and mittee on Foreign Operations; and as vice apply her knowledge of the genetic chairman of the Subcommittee on Military signature of ovarian cancers to provide Construction. Porter has been honored by hope for more cures today. many organizations for his work to secure Alysia Snell, partner, Lake Research unprecedented funding increases for Partners biomedical research through the NIH. Snell, a partner since Joe Ryan, postdoctoral fellow & drummer, 1995, brings extensive Ethidium Spill experience conducting Ryan is a postdoctoral quantitative and fellow studying the qualitative research on evolution of animal DNA, the significant issues of in particular the genomic our day, as well as events that led to the synthesizing strategic communication for a complexity and diversity wide array of institutions and initiatives to exhibited throughout the help clients effectively and productively

www.rockstarsofscience.org ROCK STARS OF SCIENCE BRIEFING 17 address the concerns of their constituen- improve health a higher national priority. cies. Snell is a lead partner on the issue side Woolley is an elected member of the of the firm and focuses on reproductive Institute of Medicine and a fellow of the choice, women’s health issues, the environ- American Association for the Advancement ment, animal rights, low-income and working of Science. She serves on several boards and poor, senior issues and children—including committees, including the Governing Council public education, early education, health of the Institute of Medicine, the National care, child care and afterschool programs. Academies Board on Life Sciences and the George Vradenburg, chairman, Geoffrey National Council for Johns Hopkins Nursing. She is a founding member of the board of Beene Gives Back® Alzheimer’s Initiative; associates of the Whitehead Institute for founding member, LEAD–Leaders Engaged Biomedical Research. She has served as on Alzheimer’s Disease president of the Association of Independent Vradenburg is a prime Research Institutes, as editor of the Journal example of the “encore of the Society of Research Administrators, as career.” Nominally a reviewer for the National Institutes of retired since 2003, he is Health and National Science Foundation and a civic activist, driven by as a consultant to several research organiza- insatiable curiosity, a tions. Woolley has a 30-year editorial and range of interests, publication history on science advocacy and passion for public service and determina- research related topics. She is a sought-after tion to make a difference. He serves as speaker and is frequently interviewed by chairman of the board of The Phillips science, news and policy journalists. Collection, the Geoffrey Beene Gives Back® Alzheimer’s Initiative and the DC Laura Ziskin, filmmaker, Stand Up To Cancer Education Compact. Additionally, Vraden- Leadership Council & cancer survivor burg is vice chairman of the Chesapeake Ziskin has been a motion Crescent Initiative. He serves on the board picture and television of The Greater Washington Board of Trade, producer and sometime the Washington Scholarship Fund and DC executive for 25 years. Children First. He is a member of the Her film credits include Private Sector Senior Advisory Committee “What About Bob?” of the Department of Homeland Security’s “The Doctor,” “No Way Homeland Security Advisory Council and Out,” “Pretty Woman,” “To Die For” and the he has founded business and nonprofit task “Spiderman” trilogy. As the founding forces on emergency preparedness for the president of Fox 2000, Ziskin shepherded greater Washington region. With his wife such films as “The Thin Red Line,” “Fight Trish, Vradenburg founded and co-chairs Club,” “Soul Food” and “Courage Under the National Alzheimer’s Gala and the Fire,” in addition to producing the 74th and Alzheimer’s Action PAC and publishes 79th Academy® Awards. Ziskin was Tikkun Magazine, a Jewish and interfaith diagnosed with cancer (stage 3 breast critique of politics, culture and society. cancer in 2004). As a cancer survivor, she is determined to use all her resources to make Mary Woolley, president & CEO, cancer a first-tier issue in this country. Research!America Woolley is the president and CEO of Research!America, the nation’s largest not-for- profit alliance working to make research to

18 ROCK STARS OF SCIENCE BRIEFING www.rockstarsofscience.org www.rockstarsofscience.org